Bethany Has Got The Drugs She Needs To Live!
A fantastic update on this, readers:
I have some great news! Bethany has been funded for her medication. We went to pick it up last Monday and the relief is amazing!
After all this Bethany finally has the medication she needs. And it looks like the petition has even helped the NHS look again at it’s policy around the length of time a funding policy agreement between them and NICE takes. We ended up getting the drugs via a critical illness policy.
I want to thank absolutely everyone that signed this petition and supported us. It has made the world of difference.
It’s been a long journey – but finally we are starting to look towards the future. And it’s a future where Bethany can start to feel better and we can enjoy our time as a family together.
It feels like a miracle.
I’ve written the full story for the Huffington Post – which you can read here.
Thank you again from the entire Henry Family!




