A Music Workshop with the daylight club on Wednesday afternoon
here are some photos of me participating in the music workshop playing maracas, drum’s sticks and creating a song.
we used provided words to create a song and learnt about different tempos and dynamics in music as well as having a go reproducing them.
this is inclusion. People may think that a quality of life is a flashy car or a very wellpaid career, but for me it’s being able to participate in my community, as I did before Functional Neurological Disorder (FND).
I cannot do this with insufficient funding, so here I am trying to somehow make the invisible visible by sharing my story. The quality of my life and people like me depends on funding providers that rely on box ticking exercise. I have a rare FND condition with fluctuating severity, so there is no box to tick. On the other hand, all the difference to my quality of life comes with the right support, such as from their specialist PA team and when my medical needs are met to participate in activities like today it makes up the quality of my life and makes feel like a human being again.
The quality of my life depends on people who make the decision actually caring about me and my right as a human, including the right to dignity, respect and appropriate privacy.
Same Difference 