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I am not just disabled. I am a Wheelchair dancer, who takes part in inclusive dance projects. Here is what they don’t realise: the right support can open up a person’s world. Here is me participating a few Sundays ago, when the right support and funding was made available. Even though they only made it available for five weeks while am ill. The reality is: they think that my needs will go away after 5 weeks when they certainly will not. Every time I get a flare up or my condition worsens, I need at least 3 months for rehabilitation, as a bare minimum. This is also for figuring out what my new support needs are for me to still have a life which I am happy within. Just because they and I hope it will go away in five weeks, I know realistically it will not. FND can be invisible until it’s very visible and the person like me is in crisis.

April 12, 2026

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