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US Paralympic TV Coverage Disappointing

September 1, 2012

The chef de mission of the US Paralympic team has added her voice to the row over the lack of TV coverage in the US, saying it was disappointing that American viewers were not able to see more live broadcasts of the Games.

Aimee Mullins, a retired Paralympian, said: “I don’t know what the rationale was behind the decision, but we have a way to go. That disconnect between the US being a world leader in disability issues and the broadcast coverage in real time of the Games is disappointing.” Her comments follow criticism of the decision by the US host broadcaster, NBC, to only show four hour-long highlights packages of the Paralympics on its sports channel.

Mullins said she was confident US broadcasters would not be able to neglect the Games in the future. “The fact that not just the UK, but millions of people all over the world are watching this on some of their largest television stations – Australia, France, Germany – I think that the value of Paralympics broadcast rights are going to be something that NBC won’t be able to ignore.

“Of course I would love for more live coverage while the Games is happening, but I am less distressed about it than I was in past Paralympic years because the glory of the internet means that people aren’t being deterred by the fact that it’s not on NBC – they’re going to the internet and watching it anyway.”

Since retiring from sport, Mullins has worked as a model and actor and was recently made a L’Oréal Paris brand ambassador. She has also made a name for herself as a sharp commentator on disability issues in the US, which as recently as last year she would have described as being where “race or gender was 50 or 60 years ago”.

“When I watch Mad Men and I see the patronising attitudes to women that are so shocking for all of us to watch now, I feel that I’ve lived and see the same evolution in this regard around disability.”

Mullins was born without her outer shinbones and had both legs amputated below the knee; doctors said she might never walk. Instead she competed at top level of collegiate sport in the US, and competed at the Atlanta Paralympics, in the 200m, 400m and long jump, wearing one of the first pairs of Cheetah legs, the type now worn by Oscar Pistorius.

“I do feel that something has been happening in this last year, and I’m not saying this to be Pollyanna-like, but there’s been a quantum leap,” Mullins said.

She points to pop culture and new sophistication in prosthetics as the reason why US attitudes towards disability are beginning to improve.

Pulling up her trousers to reveal her woven carbon-fibre legs, she said: “If I’m running around New York with these legs on, children come up to me with questions like: ‘Where are the rocket boosters?’ … ‘Why can’t you fly?’ ‘When are you going to fix that?’ It’s been a paradigm shift in the last 10 years.

“Before, if people wanted to be polite they didn’t stare, they were afraid of what they didn’t understand, they didn’t want to sound rude, so they don’t ask questions. It creates this horrible impasse of discomfort for everyone. I feel like that’s really changed because of the role of aesthetics in all this gear.”

The numbers of people returning with serious war injuries has also forced people to reconsider their attitudes. “The veterans that are returning from Afghanistan and Iraq are the first generation of war veterans that, with their changed bodies, do not see themselves as ‘less than’; they do not expect to have a lesser-quality of life. I think a lot of that is to do with pop culture,” she said. “These kids have grown up with Terminator and Robocop and Avatar and all these video games where rebuilding your body to better suit your environment is actually beneficial.”

This shift has helped spark new interest in the Paralympics in the US. “The advertisements in the US – saying they were proud sponsors of the US Olympic and Paralympic team – that was also new. Coca-Cola and Samsung haven’t done patronising saccharine commercials about Paralympians; they’re doing beautifully shot advertisements about amazing athletic feats. It is extraordinary to run 400m in 46 seconds, it’s extraordinary to do the back stroke without arms. I think that advertisers have understood that. The general population has.”

Despite the controversy over NBC’s coverage, she pointed out that there was more coverage this year than ever before. “I don’t want to detract from that by pointing out what is lacking.”

Mullins said it was vital that people become more educated and open-minded about disability, not least because increased life expectancy meant it was something most people would encounter. “At some point in every person’s life you will need an assisted medical device – whether it’s your glasses, your contacts, or as you age and you have a hip replacement or a knee replacement or a pacemaker. The prosthetic generation is all around us. People don’t realise it, but it’s going to be you … your parents, your child … but that’s OK because it’s never been a better time for that to happen. The leaps in science technology are extraordinary and they are only speeding up.”

Frankie Boyle Defends ‘Jokes’ About Saudi Paralympians

August 31, 2012

I was wondering how long it would take him to say something  unfunny about the Paralympics. He has no sense of humour- he’s just sick.

Frankie Boyle has defended jokes he made on Twitter about the Paralympics, saying they were “celebratory”.

The comedian called the Saudi Arabian team “mainly thieves”, referring to criminals having their hands removed.

Boyle tweeted: “I’ll be joking about Paralympics same way I joked about the Olympics. That’s my job yo.”

He added: “Nobody thinks it’s a good thing to laugh at the disabled. But it is a genuine problem that we’re not allowed to laugh with the disabled.”

Boyle was supported by some of his online followers including Scottish comedian and actor Greg Hemphill, who said: “Well said mate. Inclusion vs. exclusion.”

However, Boyle’s defence caught the attention of former Paralympic athlete Dame Tanni Grey-Thompson who asked: “Would you mind saying disabled people please.

“We’re not ‘the disabled’. It’s ‘the table’….etc etc. thank you.”

Boyle also joked: “After all the trials they’ve gone through, these Paralympians face their greatest challenge in trying to not look bored by Seb Coe.”

The comic, who has almost a million followers on the social networking site, told critics: “Why not read the Paralympic jokes on my timeline and make your own mind up? Celebratory, non discriminatory, pretty funny.”

It is far from the first time Boyle has caused offence. In 2009, the BBC Trust said satirical gameshow Mock The Week breached editorial guidelines over a joke Boyle made about the appearance of Olympic swimmer Rebecca Adlington.

In 2010, Channel 4 defended jokes he made about model Katie Price after she complained to broadcasting regulator Ofcom.

Some reports have speculated that the latest row may have cost Boyle further work with the channel, which broadcast his comedy show Tramadol Nights and is also the home of Paralympics coverage in the UK.

A Channel 4 statement said: “Frankie Boyle was tweeting from his personal account and not on behalf of Channel 4. He is not under contract and there are no shows planned with him.”

Speaking to The Guardian, Mencap’s Dan Scorer praised Channel 4’s commitment to disability programmes but said: “It would be disappointing if these steps were undermined by providing a comedian who has repeatedly caused profound offence to disabled people opportunities to do so again.”

Protests At ATOS HQ

August 31, 2012

Get BBC coverage. This is a big day and we should celebrate that, if nothing else.

Disability rights campaigners have ended a week of protests outside the central London headquarters of IT firm Atos which carries out the government’s “fit for work” assessments.

Atos Healthcare is one of the main sponsors of the Paralympic Games.

Campaigners claim its tests for people on disability allowances are “damaging and distressing” and have even led to suicides.

Atos said it ensures its service is “professional” and “compassionate”.

‘Damage and distress’

The government – which makes decisions based on Atos Work Capability Assessments – has said it is trying to control the cost of disability allowances.

It says more than £600m a year is being spent on overpayments to people who no longer qualify for the level of benefits they are receiving.

It has said checks are important to make sure the benefit system supports people and does not trap them.

Demonstrations have been held throughout the week, culminating in an attempt to bring the firm’s headquarters in Triton Square, Marylebone, to a close.

Claire Glasman, Winvisible campaigner (pictured in wheelchair with loud hailer) has cerebral palsy and is on incapacity benefit.

She said that under Atos’s assessments wheelchair users are considered as those able to walk because they can “mobilise”.

She said her group has campaigned for a mother with a spinal injury who was injured at work, found unfit to carry on at work but scored zero on her assessment meaning she must apply for Job Seekers Allowance, find waged work or rely on relatives.

Ms Glasman said: “We don’t know how people are managing.

“Women are particularly affected because we are the ones most likely to be doing unwaged caring work as well as coping with severe health problems.”

Roger Lewis from Disabled People Against Cuts told BBC Five Live assessments were causing “huge damage and distress to disabled people”.

He said: “We now have a situation where we know that people have gone through the Atos assessments who have unfortunately died as a result. Some have committed suicide. Some have had heart attacks.”

He said a parliamentary group of MPs has been looking at coroners’ reports where Work Capability Assessments have been cited as a contributing factor.

The Department for Work and Pensions (DWP) said it did not have research data on the impact of assessments on people’s mental health and that no links could accurately be made to suicides.

A spokesman said 15% of “fit for work” decisions were overturned on appeal and the system was subject to an annual review.

He said: “Since 2010 we have considerably improved the Work Capability Assessment process.

“As a result we are seeing an increase in the number of severely disabled people being given long-term unconditional support.”

An Atos spokeswoman said it continually worked “with the government, disability rights groups and healthcare professionals and those going through the process on the ground.”

Paralympic Opening Ceremony Watched By 11 Million

August 31, 2012

A peak audience of 11.2 million watched Channel 4’s broadcast of the Paralympic Games opening ceremony in the UK, giving the broadcaster its biggest audience for more than 10 years.

An average 7.7 million tuned in to see Wednesday’s four-hour show, which featured appearances from Sir Ian McKellen and Professor Stephen Hawking.

Some 500 people complained about adverts interrupting the event.

Channel 4 said the ads were necessary to fund its coverage of the Games.

According to Stuart Cosgrove, Channel 4’s director of creative diversity, the complaints were not “in any way comparable to the levels of support that we’ve had for the fact that we’ve invested significant amounts of money to bring the biggest ever Paralympics to television”.

In an interview with BBC 5 live, he said the broadcaster made “a lot of effort to reduce the number of adverts that we’d normally play in prime time within its programming”.

There were no ad breaks during the creative element of the ceremony, he continued. But he admitted there were three during the athletes’ parade.

“Those breaks were taken at strategic moments where we maximised where we thought we could take legitimate advertising breaks to generate the revenue that pays for the entire coverage,” he said.

“It was a very hard call because we were making choices about what we thought the viewers wanted to see. On balance we decided the viewers wanted more extensive coverage of the Paralympics.

“We’re doing 150 hours on Channel 4 from breakfast to midnight. We thought the vast majority of people, 95% of people in the UK, accept that big sporting events have to be paid for.”

Viewing figures on Channel 4 on Wednesday hit 11.2 million around the time The Queen entered the stadium at 20:45 BST.

They began to tail off from 22:00, with an average 4.3 million watching by the end of the ceremony at midnight.

‘400% increase’

Cosgrove said Channel 4 was providing a “400% increase” in coverage compared with the BBC during the last Paralympics in Beijing.

During that opening ceremony in 2008, an average of 2.2 million viewers tuned in to watch on BBC One.

Last month a peak audience of 26.9 million people watched the Olympic Games opening ceremony on BBC One.

Averaging 22.4 million viewers, it was the UK’s 13th most-watched programme ever.

Reaction To The Paralympic Opening Ceremony

August 31, 2012

I was at the Paralympics yesterday watching the swimming. Photos coming soon…

Meanwhile, BBC Ouch had this reaction to the opening ceremony, which I watched on TV and thought was beautiful, and inclusive.

The Paralympics Allows Art To Ask Questions About Difference

August 29, 2012

Says Jonathan Jones in this very interesting article in today’s Guardian.

Disability Cuts Threaten Future Paralympians

August 29, 2012

Sue Marsh hopes the current Paralympians will remember the support they needed to get where they are today, and fight to keep it.

Should Technology Push Athletes Beyond Limits?

August 29, 2012

Oscar Pistorius was never going to win the race.

Just as well, some pundits agreed – as if there was a chance he would have done, he may not have been allowed to run it in the first place.

As the 400m semi-final at the London 2012 Olympic Games drew to a close, he may have been well off the pace, but he was well ahead of his time.

As the first double leg amputee to compete against able-bodied opponents at the Olympics, Pistorius has fired the starting pistol on arguably the most significant debate elite sport will ever encounter.

Soon, athletes using technology to enhance their bodies will be able to jump higher, leap farther and last longer – stretching our concept of what it means to push the human body to the limit.

It’s a limit no longer being pushed out on the track but in a scientific lab.

‘Look out the window’

It is in one such lab, within the Ottobock factory in Germany, that Heinrich Popow had his running blade developed. The Kazakhstan-born athlete – who moved to Germany as a seven-year-old – lost his left leg to cancer when he was nine.

In its place, a carbon-fibre masterpiece that will enable him to compete in the 100m and 200m, as well as the long jump.

“Before my amputation I was playing football, just like every little kid,” Popow told the BBC.

“It was not hard for me having an amputation, [but] it was hard for me to look out of the window and see the little kids playing football outside.”

Nate Williams is one of several engineers at the Ottobock Factory who has helped Popow forge his athletics career.

The factory has been making prosthetics for more than 85 years. Its founder, Otto Bock, pioneered mass-production prosthetics – a necessary step to handle a huge influx of war-hit amputees with little money to support them.

“We have a major research and development facility here,” Mr Williams says.

“The products are designed, manufactured and tested – all at this location.”

Popow’s blade is built up layer-by-layer before being placed into an autoclave and subjected to a high-powered vacuum.

“It comes in layers that are 0.1mm thick up to almost 2mm,” says Mr Williams.

“We’ve stacked those layers one on top of the other. We can orient the fibres in a certain specific direction so that we can maximise the stiffness and the strength.”

Nano-technology

Since those first prosthetics were made at the Ottobock factory in 1919, the purpose of Paralympic technology has centred on compensating for something – usually a limb – that is missing.

Yet, in the coming years, we may look back to Oscar Pistorius’ eighth place finish as the beginning of something far bigger.

“Rather than thinking about prosthetic devices as quite clunky apparatus that we stick on our bodies, a more likely scenario is where we have nano-technology devices under our skin and improving our physical properties without us really noticing it,” says Andy Miah, professor of ethics and emerging technology at the University of the West of Scotland.

Where some athletes today decide to utilise illegal performance-enhancing drugs, we could find ourselves with sportsmen and women with performance-enhanced bodies.

“In the future we will think of everybody as already disabled,” Prof Miah says. “And it won’t be a question of whether people that have disabilities are better or worse.

“It’s about trying to ensure that everyone with their particular limitations is able to use technology in a way that optimises their performance.”

Unsurprisingly, sports authorities are keeping a close eye on whether technology is being unfairly used, which already has a nickname – techno-boosting.

International Paralympics Committee’s (IPC) medical and scientific director Peter van de Vliet told the BBC performance-enhancing technology was monitored as strictly as medication.

“Whatever equipment you bring to the field of play, the critical endeavour is the human performance, rather than the impact of the technology and equipment.

“We cannot deny we should not hamper the development of technology. It is something where these two communities need to find each other and then agree on what can be put into the rules at which moment in time.”

‘Interaction celebration’

Mr Van de Vliet argues technology goes too far at the point at which it pushes performance beyond human limits.

But Prof Miah, like many in the scientific community, says “human limit” is an unenforceable boundary that is anti-sport.

“The spirit of sport is such that everyone believes we can go faster, we can jump higher, we can lift more weight – and technology is a part of that process.

“The moment that a foot hits the track is a technological interaction. The idea that sports are somehow a celebration of human natural talents is misleading. I think it’s a celebration of the interaction of biology with technology.”

Popow is preparing for an altogether different celebration – one of his own triumph over adversary.

His technology is not about making him somebody he is not, but someone he has always strived to be.

“I often get asked if I would like to get my leg back. I would say, ‘No, never ever’. I just got one bad thing in my life – and got 100 positive things now. I’m really happy with what I have.”

The interviews in this article were first heard on Click from the BBC World Service. To listen to their Paralympic technology special, click here.

Paralympic Torch Relay Heading For London

August 29, 2012

The Paralympic flame is heading for London in a 24-hour torch relay heralding the start of the 2012 Games.

Four national flames, kindled last week, were united in a cauldron at a ceremony in Stoke Mandeville – the spiritual home of the Paralympics.

A flame lit from that cauldron is being carried 92 miles from Buckinghamshire to London’s Olympic Stadium.

The Queen and the Duke and Duchess of Cambridge are set to attend Wednesday evening’s opening ceremony.

The Paralympic flame is being carried by some 580 torchbearers.

‘Inspiring a generation’

Around 3,000 invited guests, including Paralympians, representatives from disability groups and local residents, attended Tuesday evening’s ceremony at Stoke Mandeville Stadium.

Some 150 local residents took part in a lantern procession and formed a guard of honour for eight torchbearers who carried flames representing England, Scotland, Northern Ireland and Wales.

The children who were invited to take part in the procession, together with their parents, had gathered at Stoke Mandeville on 19-20 August to make the lanterns out of canes, crepe paper and sellotape.

One of those involved was 12-year-old William Lansdown from Hazlemere in Bucks, who has Down’s Syndrome and attends a sports group for disabled children.

“The lanterns looked brilliant,” said William’s mother, Lynn. “It was a great atmosphere, with the emphasis on families taking part and not just disabled people.

“The fact that so many children were involved made it special, given the theme of inspiring a generation to do more sport.”

Earlier, local performers entertained the crowds ahead of speeches by International Paralympic Committee (IPC) president Sir Philip Craven, Sebastian Coe, chair of Games organisers Locog, and culture secretary Jeremy Hunt.

Eva Loeffler, the daughter of the founder of the Paralympic Games, Dr Ludwig Guttman, paid tribute to the role the Stoke Mandeville Games had in defining the modern Paralympic movement.

Carrying the English flame was Katie Piper and Paralympian Tony Griffin.

Ms Piper, who suffered major injuries when her ex-boyfriend attacked her with sulphuric acid, was nominated for setting up the Katie Piper Foundation and raising awareness of burns survivors.

During a 10-year career Mr Griffin won 38 medals and works as Bolton’s Sports Ambassador promoting disabled sport.

The Scottish flame was carried by boxer Jon Jo Look, who has a prosthetic leg and coaches youngsters in the sport, and Noel McShane, who set up the National Wheelchair Tennis Association of Great Britain and the British Open Wheelchair Tennis Championships.

Darren Ferguson, a special constable who talked down a distressed man from a bridge, and Joseph Morris, who saved a girl from drowning in a river, carried the Northern Ireland flame.

Julie Gilbert and Marsha Wiseman carried the Wales flame.

Enlightenment ceremony

Shortly after 20:00 the first team of torchbearers – Paralympians chosen by the IPC – left the stadium, signalling the start of the 24-hour torch relay.

Making up the team were:

  • IPC president Sir Philip Craven took part in five Paralympic Games mainly in wheelchair basketball, and swimming.
  • Baroness Susan Masham represented GB at the first two Paralympic Games winning medals in swimming and table tennis.
  • Caz Walton has been involved in every Paralympic Games since 1964 as both an athlete and team manager.
  • Sally Haynes took part in the first Paralympic Games in Rome in 1960 and went on to compete at a further three Games winning medals in the Epee discipline of wheelchair fencing and table tennis.
  • Jane Blackburn took part in five Paralympic Games between 1972 and 1992 competing in archery, athletics, lawn bowls, swimming and table tennis. and winning 11 Paralympic medals including five golds.

Highlights of the relay route include visits to the National Spinal Injuries Centre, Stoke Mandeville, Lord’s Cricket Ground and London Zoo.

PARALYMPIC TORCH RELAY

  • Average speed – 3.5mph
  • 18 hours of torchbearing
  • 15 vehicles in convoy
  • Travels through 15 London boroughs

In Trafalgar Square former boxer Michael Watson, wheelchair racer Dame Tanni Grey Thompson and Paralympic swimmer Chris Holmes will carry the flame.

When it arrives at the Olympic Park in east London it will be used to light the cauldron during the opening ceremony of the Games.

The event, called Enlightenment and created by Bradley Hemmings and Jenny Sealey, will showcase the skills of disabled artists with a cast of 3,000 adult volunteers including injured soldiers and past Paralympic athletes.

The four national flames were kindled at the summit of the highest peaks in Scotland, Northern Ireland, England and Wales last week.

They were used to light ceremonial cauldrons in London’s Trafalgar Square on Friday, outside Stormont in Northern Ireland on Saturday, at the Mound in Edinburgh on Sunday and outside City Hall in Cardiff on Monday.

Paralympics Will Be Screened Globally

August 28, 2012

The London 2012 Paralympic Games will be shown in more countries than any previous Paralympics after organisers agreed a series of TV deals.

More than 100 countries will now screen the Games, with deals covering Latin America, Pakistan, the USA and Iran.

Unlike Olympic rights, which are sold by the International Olympic Committee, the Paralympic rights are sold by London 2012 organisers Locog directly.

The Games, which start on Wednesday, will be aired by Channel 4 in the UK.

“It’s fantastic to know that billions of people around the world will have the opportunity to watch,” Locog chairman Lord Coe said.

“The deals we have signed are a testament to how great Paralympic sport is. People watching the action on TV will get to see some incredible sport by incredible athletes.”

Locog said it expected to confirm further deals “in due course”.

Meanwhile, Lord Coe revealed more details about Wednesday’s opening ceremony.

Titled Enlightenment, he said it was “about human understanding, about limitations and the importance of knowledge”.

“It focuses on that extraordinary period in European history and the great intellectual revolution that took place between 1550 and 1720,” he added.

The ceremony will feature more than 3,000 volunteers including 50 disabled performers.

Brazillian Boy, 11, To Train At Bacelona- He Was Born Without Feet

August 28, 2012

An 11-year-old Brazilian boy has earned a place at the Barcelona football team’s summer training camp – despite being born without feet.

Gabriel Muniz was initially offered a place at the team’s training academy in Saquarema, Rio de Janeiro, after appearing on a popular sports programme in Brazil.

His story and skills inspired the club’s managers and he was invited to the team’s Spanish camp in September.

On The Eve Of The Paralympics, Public Transport’s Still Inaccessible

August 28, 2012

Jane Nicklinson Hopes Right To Die Campaign Will Not End With Her Husband’s Life

August 28, 2012

The wife of Tony Nicklinson, who died last week after losing a legal bid to end his life, said she hoped this would not be the end of the campaign.

Jane Nicklinson’s 58-year-old husband had locked-in syndrome after a stroke left him paralysed seven years ago.

He lost his High Court case to allow doctors to end his life without fear of prosecution on 16 August.

Mr Nicklinson died from pneumonia at his home in Wiltshire on 22 August after refusing food and fluids.

‘Absolute agony’

Mrs Nicklinson said: “This is certainly not the end of the campaign. I do hope that someone takes it up.”

Mr Nicklinson, from Melksham, had described his life as a “living nightmare” and his wife said the past few years had been “very hard”.

Speaking to the BBC for the first time since the death of her husband, she said she felt the legal campaign had been worthwhile.

She said: “Even though we didn’t win – all the hard work for the case has been done. I hope at some point, someone will come forward and carry on with what Tony started.

“I think we always knew the chances of winning at this stage were slim – possible but slim – and we’d never been told anything different so we were prepared for it.”

Speaking about the years since his stroke, she said: “For him it was absolute agony – it was torture for him. It was very hard for us to sit back and see him deteriorate but we were fighting the fight with him. It was what we could do for him. It was his wish.

“People have said: ‘How could you support him?’ – but how could I not support him?”

Mrs Nicklinson, who was a nurse, said the hardest part of the struggle was the medical one. She said: “Although locked-in syndrome isn’t a progressive illness, his condition had deteriorated quite a lot over the last few months.

‘Only pleasure’

“His posture had become very bad. He was finding it more and more difficult to use his computer because he was so hunched over – and using his computer was about the only thing he had any pleasure with.

“He was in more discomfort than pain – mental pain yes. He’d never taken painkillers because he said he wasn’t in pain but he’d just started to take them and it would take an awful lot for Tony to take painkillers.

“It was the day after [the High Court decision] that he said to me that the fight had just gone. He said he couldn’t take it any more. Within a couple of days he developed pneumonia – the last 48 hours were pretty unpleasant but thankfully it was quick. It’s just a shame that he couldn’t die the way he wanted to die.”

She said the family had known the court judgement a few days before it was announced publicly. She said her husband made a conscious decision to stop eating and taking fluids on 20 August. His GP had recommended antibiotics but Tony refused them.

Mrs Nicklinson said: “I think the moment was the day he broke down in front of all the cameras. I think it really hit him then that everyone else out there was going to know as well. It just completely knocked him for six.

“I think he had raised his hopes so much – probably out of proportion. He said he hadn’t been prepared for the emotional side of it for him and he was absolutely devastated.”

She said she did not believe her husband would have wanted to live much longer if the court had ruled in his favour.

She said: “He always said maybe knowing he could end his life when he wanted would be enough to keep him going. I don’t actually believe that it would.

“Maybe a couple of years ago when he said that, that was true but I think things had become really bad recently. I really think that if he had won, he would have ended his life quite soon.

“I don’t think he would have wanted to keep going for too much longer. One of the last things he said to me was: ‘I’m already dead – don’t mourn for me’.

“And it’s true, we did. I think in some respects, seven years ago was harder than this because we did lose the old Tony.”

The full interview with Jane Nicklinson will be broadcast on Lee Stone’s programme on BBC Wiltshire at 16:00 BST.

George Galloway Criticised For ‘Window Licker’ Comment On Twitter

August 28, 2012

This man does talk some rubbish, doesn’t he? This comment was completely unnecessary.

After being widely condemned for his remarks about the rape charges facing Julian Assange, George Galloway was under fire again at the weekend after calling someone a “window-licker” (a derogatory term for a disabled person) in a conversation on Twitter.

Galloway made the comment during a conversation on Sunday. He tweeted to @Hawfa: “you badly need medical help son. Will decent Rangers fans please substitute this windae-licker … “

The tweet was attacked as insensitive by fellow Twitter users and @Skipjack451 wrote: “I wonder what the disabled members of your constituency will make of your use of the slur ‘window licker’? You’re a disaster.”

Paul Carter (@Juniorc0) wrote: “@georgegalloway just called someone a window licker. Beyond contempt.”

In 2003, the term was voted third most offensive that could be used relating to disability in a poll run for the BBC’s Ouch! disability talk show.

Dan Scorer, senior campaigns and policy manager at the learning disability charity Mencap said: “We are appalled that George Galloway, a member of parliament, has used this unacceptable term of abuse, which is deeply offensive to disabled people. Hate crime and bullying are a daily reality for many disabled people and the use of language like this only furthers hostility and violence. We call on him to apologise immediately.”

Galloway is in Indonesia and could not be immediately contacted.

Galloway’s tweet comes in the runup to the Paralympic Games and days after the MP was roundly condemned by senior figures in his own party, rape crisis groups and other MPs, after saying in a video blog last week: “Some people believe that when you go to bed with somebody, take off your clothes, and have sex with them and then fall asleep, you’re already in the sex game with them.

“It might be really bad manners not to have tapped her on the shoulder and said, ‘do you mind if I do it again?’ It might be really sordid and bad sexual etiquette, but whatever else it is, it is not rape, or you bankrupt the term rape of all meaning.”

The Respect leader, Salma Yaqoob, described the remarks as “deeply disappointing and wrong”.

Galloway defended his rape remarks, saying: “No never means yes and non-consensual sex is rape. There’s no doubt about it and that has always been my position”. But, he said, Assange had always denied the allegations against him.

He also tweeted during the furore: “Oh my, what a lot of ‘liberal’ useful idiots the Empire can count on. It’s about WIKILEAKS stupid … !”

He has been sacked as a columnist on the Scottish political magazine Holyrood.

I’ve written about my views on this in more detail here.

Boris Johnson: Paralympians Have The Qualities That Took Neil Armstrong To The Moon

August 28, 2012

I agree that Paralympians are very strong and very talented, but I think this is going a little bit over the top. Do you have any thoughts, readers?

Lottery Winners Colin And Chris Weir Fund SDR Surgery For Isabel Wallis, 4

August 27, 2012

 Last month, they bought a teenage boy a prosthetic leg. This couple have such big hearts. They are two of very few mainstreamers who use high profiles and money to do really positive things. The world needs many more like them.

A Scottish couple who scooped the UK’s biggest lottery win have offered to pay for a life-changing operation for a four-year-old girl with cerebral palsy.

Colin and Chris Weir from Largs, in Ayrshire, are providing the funds to send Isabel Wallis, from Musselburgh, to America to have the surgery.

Isabel’s parents had been raising funds to help pay for the operation.

They hope it will enable their daughter to live without having to use a wheelchair.

Her mother, Kate Horne, said: “I have been at breaking point trying to look after Isabel, but the generosity of everyone around us has always kept me going.

“Receiving the donation from the Weirs was overwhelming, words cannot describe it.

“It means that Isabel gets the operation she needs almost immediately, and the care she needs afterwards. It also means I can go back to being more of a mum.”

Ms Horne and Isabel’s father, Rory Wallis, have raised almost £15,000 over the past six months with help from friends, family and supporters.

Now that the operation is being paid for by the Weirs, the existing funds will be set aside to cover the cost of the intensive rehabilitation and physiotherapy needed after the surgery.

Mr Wallis, whose colleagues at Wetherspoons in Musselburgh, East Lothian, raised more than £1,000 for the fund, said: “People have been so incredibly supportive and it means so much to us.

“Now that Chris and Colin have stepped in to top-up the fund, we couldn’t be happier.”

The Weirs picked up more than £161m on the lottery in July last year – the largest jackpot ever won in Europe.

The amount of money donated by the Weirs for the operation has not been revealed.

Chris Weir said: “Kate and Rory have worked so hard to raise the money needed for Isabel’s operation, so it was a pleasure to help.

“We hope that the operation will give Isabel the chance of an active life. We wish her well.”

The ATOS Games Will Showcase Disabled People’s Anger At Paralympic Sponsors

August 27, 2012

Debbie Jolly explains all at Comment Is Free.

Pakistan: Doctors Examine Blasphemy Case Girl

August 27, 2012

Doctors in Pakistan have examined a young Christian girl imprisoned on blasphemy charges to determine her age and mental capacity, with the results due to be presented in court tomorrow.

Her lawyer says the girl, called Rimsha, is 11 or 12 years old and appears to have Downs syndrome.

She is being held in a maximum security prison after an angry mob accused her of desecrating pages of the Koran.

But her supporters say she has been wrongly accused.

Police say the girl was arrested last week in a Christian area of the capital Islamabad, after a crowd of people demanded that she be punished for allegedly desecrating pages of the Muslim holy book.

It is not clear whether she burned pages of the Koran or was found to be carrying them in her bag.

Attack fears

The doctors’ report will be presented at a bail hearing in Islamabad on Tuesday.

Christian leaders say she is as young as 11 but police quoted in some media reports say she may be older and that she had no mental impairments.

Pakistan’s Minister for National Harmony, Paul Bhatti, has said she is innocent and should be released.

He told the BBC earlier: “The police were initially reluctant to arrest her, but they came under a lot of pressure from a very large crowd who were threatening to burn down Christian homes.”

According to the BBC’s Orla Guerin in Islamabad, Rimsha’s lawyer said that when he saw her in jail over the weekend she wept and begged to be released.

Her parents have been taken into protective custody following threats, and many other Christian families are reported to have fled the neighbourhood.

There are fears that even if she is released, Rimsha’s family will not be safe in Pakistan. Others accused of blasphemy have been killed by vigilante mobs in the recent past.

Sir Ludwig Guttmann Will Be There In Spirit, Says Daughter

August 27, 2012

The village of Stoke Mandeville, on the edge of Aylesbury in Buckinghamshire, is an unremarkable place. Sedate, sleepy even, with quiet tree-lined streets flanked with semi-detached houses.

There is little to indicate the extraordinary story that unfolded here in the years following the second world war. But it was in the Stoke Mandeville hospital – the last refuge for servicemen paralysed in battle – that the maverick neurologist Dr Ludwig Guttmann revolutionised the treatment and perception of spinal injury victims and laid the foundations for the modern Paralympic Games.

On Tuesday night, his story – and the birthplace of the Paralympics – will be celebrated as the Stoke Mandeville stadium hosts a unique ceremony to create the Paralympic flame before it is carried into London via a 24-hour relay in time for the opening ceremony on Wednesday night.

“We have a unique heritage here and a responsibility to tell people about it,” said Martin McElhatton, the chief executive of WheelPower, the national organisation for wheelchair sport based at Stoke Mandeville stadium. “We know what our heritage is, we are proud of it – and London 2012 is a chance to celebrate it. We should be very proud as a nation that we gave the Paralympics to the world.”

Standing by the modest, but pristinely surfaced, running track at Stoke Mandeville where the flame will be lit, he explained that Tuesday’s ceremony is a celebration not just of Stoke Mandeville’s history but also its present. The stadium is still closely linked to the adjacent National Spinal Injuries Centre, one of the oldest and largest spinal injury centres in the world.

“Rehabilitation is still an essential part of what goes on here,” he said. “Not everyone can be a sporting star, but if a newly disabled person coming to terms with their injury can see people taking part in sport here it can inspire them and shows them what they can do.”

It is difficult to underestimate the impact Guttmann had on the treatment of spinal injuries. The doctor, who was Jewish, was the top brain surgeon in Germany before he was banned from practising medicine in 1933. After fleeing Nazi Germany in 1939 he set up the first specialist treatment centre for servicemen in 1944 at Stoke Mandeville hospital at the request of the British government, which anticipated a sharp increase in the number of men left paralysed after the D-Day landings.

At a time when disabled people were shut away in residential homes, when soldiers paralysed in the war were brought to the ward in coffin-like boxes and left to die from infected bedsores and urinary tract infections, Guttmann – called Poppa by his patients – revolutionised treatment, introducing sports into rehabilitation and activities such as watch repairs and typing to prepare patients for productive lives in the outside world.

“He had a twinkle in his eye but he was very stern. You didn’t get on the wrong side of him but underneath it he was very kind,” said a former patient, Sally Haynes, who was paralysed from the waist down after a horse-riding accident when she was 18. “He watched over you like a father in a way, to see your progress. He worked you out mentally.”

After her accident Haynes was put in a full plaster cast for two months before coming to Stoke Mandeville. With the help of Guttmann she went on to win a gold medal in fencing at the 1968 Paralympics.

There is no doubting Guttmann’s ambition for his patients. On 28 July 1948 – perhaps not coincidentally the opening day of the London Olympics – he chose to host a little-noticed archery and javelin competition for 16 paralysed men and women at the hospital.

“Small as it was, it was a demonstration to the public that competitive sport is not the prerogative of the able-bodied,” he later said.

From that point competitions were held every year, growing progressively larger, until war veterans and disabled people from around the world began taking part in what were known as the Stoke Mandeville Games. And in 1960, a week after the close of the 17th Olympic Games, the first Parallel Olympics – which would become the Paralympics – were held in Rome.

“We were guinea pigs. If you were in a wheelchair you didn’t get on a plane,” said Haynes, who went as a reserve to the first games and competed in the second in Tokyo in 1964. “Guttmann was always telling us we were pioneers, we were leading the way.”

Once in Japan the team had fun – on one occasion convincing locals that the hokey-cokey was Great Britain’s traditional dance – but the Games attracted little attention. When Haynes asked a BBC journalist why they did not cover the Games, he replied they were in bad taste.

“They didn’t want to watch a bunch of cripples,” she said. “There is no comparison to now. In those days being in a wheelchair was a constant struggle, you just had to accept you couldn’t do a lot of things or go to a lot of places.”

Reflecting on the competition that will start on Thursday – which will see 4,200 athletes from 165 nations compete – she said: “I think the world has accepted us now. I didn’t ever think we would get this far.”

Sport remains a key part of rehabilitation at the National Spinal Injuries Centre, according to Claire Guy, the rehabilitation programme lead.

Where Guttmann started with 26 beds, the unit now has 114 and supports around 5,000 outpatients. “The legacy we really hold on to is the sport. That hasn’t really changed a huge amount since Guttmann’s time,” she said.

When Daniel Alaile was admitted in 2010 after being stabbed in a gang-related fight in east London, the then 16-year-old had lost five stone, could barely move and was in constant pain. Now, sitting in the buzzing unit with its parallel bars, massage tables and walking frames, he is full of confidence, thanks in part to his rehabilitation, which included wheelchair basketball. “I guess it gave me hope,” he said. “Like, OK, I’m in a wheelchair, but there is still stuff I can do. I just don’t feel sorry for myself. Crying ain’t going to make things any better. You just have to take all the opportunities that are given to you.”

London 2012 is a powerful reminder of Guttmann’s legacy, said Guy. “In 1949, Guttmann said his aim was that the Stoke Mandeville Games be alongside the Olympics in level of importance and I think in London 2012 that has finally happened. This is what he wanted – sport and rehabilitation hand in hand. That is our legacy here.”

Guttmann, knighted by the Queen in 1966, died in 1980 but he would be bursting with pride at the prospect of the London 2012 Paralympics, according to his daughter Eva. “He would see that for the first time they truly are the parallel games. It would be his dream realised,” she said. “It is very emotional for me, there will be a lot of tears, but they are tears of happiness. My father is not there tonight, but he will be there in spirit.”

Sir Philip Craven Wants ‘Disabled’ Dropped From Paralympic Coverage

August 27, 2012

I think this is going a bit over the top. I explained why last year when he said he wanted the ‘d’ word not to be applied to human beings.

The Bolton-born president of the International Paralympic Committee has called for the word “disabled” to be dropped from coverage of the London Games. Sir Philip Craven, who has been president of the Bonn-based IPC since 1991, said it was time to re-examine the language used to describe Paralympians.

“This is sport. It’s not disability anything. I come from sport,” said Craven, who represented Great Britain at wheelchair basketball at five Paralympics between 1972 and 1988. “There’s no need for a replacement. Just use the terminology that people use in sport. You know what the word ‘disabled’ means. It means something that doesn’t work, doesn’t function. How would you like to be called that? If you want to use it, that’s your decision. But try and drop it. It’s not easy to begin with. But just drop it.”

Craven called for use of the word in connection with the Paralympics, which begins on Wednesday with an opening ceremony titled The Enlightenment, to be phased out. Despite his call, the official ParalympicsGB guide for the media suggests the use of the phrase “disabled person” as being in line with the 2010 Equality Act.

Craven predicted that the London Games, which will feature a record 4,200 athletes representing 165 countries and competing in 20 sports, would take the Paralympics to a “new frontier”. The London organising committee, which has repeatedly emphasised its aim to treat the Olympics and Paralympics as an integrated whole, is confident that all 2.5 million tickets for the Paralympics will sell out for the first time.

Even before the success of the Olympic Games sparked a renewed surge of interest, it had shifted more tickets than for any previous Paralympics. It has sold 2.3 million, with around 200,000 more due to come onto the market as final venue configurations are finalised.

“It’s the first time we’ve had such a long and fruitful relationship with an organising committee. It doesn’t surprise me, knowing also the British people and their love of true sport, it doesn’t worry me about having to live up to something because I just know the 4,200 Paralympians will do that,” said Craven.

“What has really thrilled me is the way that the British public has come out this summer and just caught the fever. That’s going to continue with the Paralympics, I just know it is.”

The Games will feature 16 National Paralympic Committees fielding teams for the first time, including Albania, Antigua, Malawi and Rwanda, the first sub-Saharan country to compete in a Paralympic Games. Other countries, including the Ukraine and Brazil, that have recently invested heavily in Paralympic sport are expected to challenge the British team’s aim of matching their Beijing achievement of finishing second in the medal table. Craven said he expected US athletes to challenge strongly, despite a history of under-investment in Paralympic sport. American broadcaster NBC will show just five-and-a-half hours of the Paralympics, none of it live. That compares with more than 150 hours that will be shown by Channel 4.

“It would be a bit boring if they all got it and they were all doing it and there were no new frontiers,” said Craven, who added that the IPC had developed its own online broadcasting operation to compensate for the lack of coverage in some territories.

He said it was important to remember how far the Paralympic movement had come since 1988, when the Seoul Games marked the first time that it had been held in parallel with the Olympics in the same host city. “There is this aura about the whole Games. From all over the world, people want to be in London,” explained Craven. There are hopes that the London Games will inspire a new wave of commercial attention in the Paralympics and those who compete in it.

Craven said that the renewal of its partnership deal with the International Olympic Committee to co-host the Games would help that process. “It’s a good and developing relationship and we’ve just signed a deal to ensure that continues to 2018 and 2020,” he said. “But we’ve also signed a partnership agreement, which we’ve never had before. Part of that involves the development of joint sponsorship or the promotion of both Games.”

The IPC president also defended the involvement of Atos, the IT giant whose name adorns the lanyards of all accredited Games athletes and staff but has been criticised by disability rights campaigners for its involvement in assessing whether benefit claimants are “fit for work”.

Craven said he could understand the Paralympics being used a vehicle to articulate wider concerns but said the IPC’s involvement with the company had been “very positive”. “All I can say is that we have a record over the last 60 or 65 years of being a fighter for the right causes. That’s what we will continue to do. But where they seem to be very upset with this particular part of that company’s organisation, our experiences within the Paralympic movement with Atos are very positive,” he insisted.

“They have given us incredible help with the development of our new website. That isn’t just people putting their expertise in, that’s people working night and day and really giving of themselves to make sure the deadline was met.”

The Paralympics Will Be Funny

August 27, 2012

So don’t be afraid to laugh at them, says Liz Carr.

Laurence Clark On Why He Hates Being Called Inspiring

August 27, 2012

He explained all in yesterday’s Guardian.

 

Tanni Grey Thompson: Paralympic Star To Rights Champion

August 27, 2012

The Guardian profiled her yesterday.

Business Opportunities For Paralympic Sponsors

August 27, 2012

Do the Paralympics have sufficient reach and interest to make it a useful commercial proposition for a company to sponsor them?

All the main sponsors of the London 2012 Olympic Games, such as Adidas, Visa and McDonald’s, are automatically involved with the subsequent Paralympics.

However, the British supermarket chain Sainsbury’s was not involved with the main event, yet it is a major sponsor of the Paralympics.

Clearly, the retailer thinks the Paralympics are not just an add-on to the main event, but that they are important in their own right and there is a commercial benefit in being associated with them.

Chief executive Justin King says the build-up has been tremendous.

“We know from the response of our customers that there is an enthusiastic public engagement with the Paralympics,” he says.

“Our colleagues and customers have enthusiastically embraced what the games stand for,” he says.

“It has fulfilled everything we hoped for it. Almost all of our colleagues are supportive of the idea that we’re involved,” he adds.

Equal acceptance

Sport for athletes with an impairment has been around for more than 100 years, according to the International Paralympic Committee. The Paralympics were first held in Rome in 1960.

Over the following half century, they have gradually acquired a higher public profile, with an increasingly enthusiastic audience.

And where there is an audience, there are business opportunities – including sponsorship.

The British swimmer Liz Johnson already has one gold and one silver medal from previous Paralympics, and she believes companies are more prepared to offer sponsorship because of the higher profile the Paralympics now have.

“For the first time ever Paralympians have been included alongside Olympians, so I think they have realised we are really athletes too,” she says.

But does her sponsorship help the profile of the businesses she is associated with?

“Everybody loves success – as athletes we are successful, that is why they have chosen us,” she says.

“It is not easy, you don’t just wake up with the ability to win a gold medal, so the highs and the lows of what we have gone through really reflect similar circumstances they have within a business or a project.”

Liz Johnson herself has faced many challenges, and she points to 2004 when she was doing her A-levels and driving 900 miles a week to get to training, and 2008 in Beijing, when she was striving to get a gold medal when her mother passed away with cancer.

“Everybody can relate to those stories and put things into perspective and think whatever life throws at you, there is always a way around it,” she says.

“Every four years the games become more elite and gain more respect because we are seen as elite athletes with a disability, rather than disabled athletes who do sports,” she adds.

Wider message

The emotional tales of human courage and dedication are part of the attraction of watching an athlete conquer adversity, but wouldn’t Sainsbury’s have achieved more of a commercial impact if they were associated with the likes of Usain Bolt or Mo Farah?

“No, we don’t see it that way,” says Mr King.

“One could argue that if you are an Olympics sponsor, then you’re fighting in pretty crowded territory.

” Most people would probably only be able to name one or two or three of the many Olympic sponsors.

“Companies that sponsor Olympics do it for their own reasons. The Olympics has spectacular international reach like no other event,” he says.

“But for us, being the first and indeed only Paralympic exclusive sponsor, focusing on the messages at a local level in our stores has been by far the better proposition for our business.”

Although Sainsbury’s spends about £3bn ($4.8bn) sourcing products abroad, its core business is in the UK and even though it will continue to support the British athletes, it is unlikely that they will have the same level of input when the next Paralympic Games are held in Rio de Janerio in 2016.

“I am sure there is a Sainsbury’s equivalent in Brazil that will be looking on at what we’ve done and perhaps they will do the same,” he says.

It has evidently been a good commercial decision for Sainsbury’s to be involved with the London 2012 Paralympic Games, but Mr King says there are other issues to consider.

“There is the wider Paralympic message,” he says.

“It isn’t about disability per se, it’s about individuals, whatever their challenges, being the best they could possibly be.”

Wheelchair Users Forced To Use Expensive Phone Line To Book Paralympic Tickets

August 26, 2012

Paralympic Games organisers have been accused of discriminating against the disabled after forcing wheelchair users to book tickets on phone lines costing up to 40p a minute.

A Mail on Sunday investigation has revealed that those trying to book wheelchair tickets for events have to ring an 0844 number in order to buy tickets or check availability.

Able-bodied people can simply buy them online from organiser LOCOG without incurring extra costs.

  Some disabled people now claim they have abandoned hope of attending the Games after being kept on hold for long periods running up large bills before eventually being told there are no tickets available.

Hundreds have complained about their treatment on blogs and social networking sites and some have joined a campaign group on Facebook called ‘Stop the Olympics from discriminating against wheelchair users!’

 Calls cost 5p a minute from a BT landline and up to 40p a minute from a mobile on the Orange network, 35p on Vodafone and Three, and 25p on O2.

Some networks also charge a connection fee. Many disabled people have to call the number on a mobile because they have specially adapted phones that are easier to use than landlines.

One woman, who has a disabled five-year-old son, said she called the ticket hotline more than 20 times on her Orange mobile phone and on some occasions spent up to half an hour on hold.

Such a call to the 0844 number would cost £12.

 Wheelchair user Sarah Bard, 32, from Nottingham, who has to use a specially adapted mobile phone, said she had given up trying to buy tickets after calling the hotline from her mobile six times and each time being put on hold for up to 15 minutes.

She said: ‘Locog have designed the system to restrict us. Why are they advertising an 0844? It is discriminatory towards the disabled. ‘My able-bodied friends can go online and check availability, see when the latest seats become available and buy them with no added charges.

Wheelchair users, meanwhile, get left with only one option and that costs us extra money.’

Last night former Labour Sports Minister Gerry Sutcliffe, chairman of the all-party disability sports group at Westminster, branded the phone charges ‘unacceptable’ and called on LOCOG to remove them.

He said: ‘This is completely ridiculous. Wheelchair users should be able to book their Paralympic tickets online just like everyone else.

‘I shall be contacting LOCOG as soon as possible to ask them to remove these charges and reimburse people who have incurred unnecessary expense so far. The Paralympics is about breaking down barriers – not subjecting wheelchair users to charges that other people don’t have to pay.’

 Wheelchair users who want to buy tickets to the Games, which start on Wednesday, are directed on LOCOG’s website to a section called ‘Ticket information for disabled people’.

This page informs them that they must call the phone line. The website says: ‘If you require a wheelchair space, you can purchase tickets by calling the London 2012 Accessibility team on 0844 847 2012.’

At the 2008 Olympics in Beijing, tickets for people with wheelchairs were sold online and through dedicated phone lines with no additional charges.

The disclosures are likely to prove embarrassing for LOCOG, which boasts on its website that it has ‘created a ticketing process which is inclusive and accessible’ and claims ‘it is important to us that people of all abilities can purchase tickets easily’.

The group on Facebook campaigning against the ticketing – which has 688 members – was founded by Terrijayne Butler, 33, whose 11-year-old son Reece has cerebral palsy and uses a wheelchair.

She wrote an open letter to LOCOG chairman Sebastian Coe complaining about the issue and sent her website’s link to his personal Twitter account but says she has had no response.

She said: ‘My fear was that my phone bill would end up being more than the actual tickets for the family. I know some people who have got through fairly quickly but others who have told me they have been waiting for more than half an hour only to be cut off.

‘It is severely depressing that disabled people are being treated as second-class citizens like this.’

When a Mail on Sunday reporter called the number yesterday, after getting through it took 11 minutes of talking to an operator to find out which tickets were available.

Our reporter was told the only available wheelchair tickets were for Goalball and cost £15 for adults and £5 for concessions.

A companion would be able to attend free. There were also ground passes available for the Olympic Park and ExCeL centre.

Richard Hawkes, chief executive of disability charity Scope said: ‘At a time when disabled people report that attitudes towards them are deteriorating, the Paralympics offers a once in a lifetime opportunity to make a hugely positive difference.

‘Despite increasing the number of wheelchair accessible seats in the Olympic Stadium, there doesn’t appear to be any additional provision made for disabled people who want to buy these tickets.

‘The majority of people these days want the convenient and cost effective option of making their purchases online and disabled people are no different.’

Alex Rankin, from disability charity Aspire, said: ‘It could be in breach of the Equality Act. LOCOG should investigate how they can refund the cost of the call to all those people. It is unfair and unjustified to discriminate in this way.’

And Bobby Ancil, from Muscular Dystrophy campaign Trailblazers, said: ‘Forcing disabled people to call premium rate numbers to book tickets is simply unjustifiable.’

Last night LOCOG said it did not make any revenue from the phone line. It is unknown if Ticketmaster, who handles the ticket sales, makes anything from the calls.

LOCOG also said it had not received any complaints about the cost of calls and that the average length of calls to the phone line was less than two minutes.

A spokesman said: ‘All spectators were able to apply for tickets online for more than a year. ‘From November 2011, we provided a bespoke phone line to ensure customers could discuss their individual accessibility needs.

‘We really are trying our best. There are so many needs – soldiers and others who need legroom for their prosthetic limbs. We try to switch them and need to talk to them. We are proud to do more for spectators with accessibility needs than any other sporting event in this country.

We offer free Games mobility scooters at Games venues, free blue badge parking, and a free companion seat for every wheelchair space.

By May just under 1.5 million of the total 2.5 million Paralympics tickets were still unsold. By August 7, about 1.1 million tickets remained, by August 14 about 400,000 were left and last night there were 200,000 unsold.

 

John Armstrong

August 26, 2012

John Armstrong woke up in the early hours of Thursday 15 March feeling unwell. He went downstairs for a cup of tea but became so poorly that he collapsed at the table and called out his wife’s name. Liz came down at 4.15am and saw John sitting in his chair with his head in his hands.

“He couldn’t stand up because he had lost his sense of balance,” she says. “He was still lucid at this point, but in great stress, so I called 999. The paramedics checked his temperature, which was erratic, as was his heart rate. He went to Leeds General Infirmary but by the time I got down there John was sinking fast.

“He should have died, really, because of the severity of the bleed on his brain. LGI said subsequently that technically it was not a stroke, hence the battle I have had to get appropriate physiotherapy for someone with John’s injuries.”

Doctors performed a brain scan that showed bleeding on the brain stem and, while many injuries such as John’s would have been considered inoperable, the surgeon sent John to theatre.

“I went to see him at 3pm after the operation and he was sedated but he was alive – he was still with us,” says Liz.

Following the operation, John began to regain some movement, albeit slowly. He had a tracheotomy carried out to enable him to get the oxygen he needed and take away the mucus building up in his lungs. Medical staff had to keep draining fluid from the top of his head because of the damage sustained to his brain.

After around six weeks in the intensive care unit and high dependency unit, John was moved to ward 25 at Leeds General Infirmary, an acute ward serving general medical and elderly patients, but which has one nurse to every eight patients, as opposed to the 1:1 and 1:2 ratio in the ICU and HDU wards.

“Up until then, the care was amazing,” says Liz. “Anything and everything was being done. I wasn’t thinking about physiotherapy at that stage. Physios were in ICU/HDU, checking that patients could move their arms, checking the tracheotomy was OK.”

It wasn’t long before John developed a urinary infection and was sent back to ICU for more than a week before returning to ward 25 for another month. He made some progress, according to his wife, but then developed another two urinary infections.

Struggling to cope with the second infection and an erratic heartbeat, John was sent back to the HDU. Another month passed before he was considered well enough to return to ward 25, but John was getting increasingly agitated and depressed.

Shaking her head as she recollects the difficulties her husband has faced, Liz says: “He pulled his traccy tube out because he was so distraught. They had a new tube put in, but one hour later he took that out and two nurses couldn’t restrain him. They needed me to calm John down before sedating him.”

On 19 June Liz demanded a meeting with medical staff but was told she would have to wait a week. “I went ballistic,” she says. The meeting was arranged the next day and Liz, a tutor at the University of Leeds, was told John could receive only one physiotherapy session a week.

“I couldn’t believe it. I was told that John could only have one session a week because the department was undergoing a ‘restructuring process’, so two posts had been ‘frozen’, two physios were away on maternity cover and their posts had not been filled and a couple of physios were on annual leave so they were around six staff down.

“Physio is the only way he could get better and he was not getting the physio that he needed. I felt he would get more infections because he was immobile and if he was given the correct amount of physio he would have been well enough to move to the rehabilitation centre at Chapel Allerton. John was becoming more aware by this stage of what was going on and I told them I was taking further action.”

Barely sleeping that night, Liz woke up at 5am, went downstairs and began her campaign. She hand-delivered the first letter of complaint to the ward an hour later.

From 21 June to 20 July, John remained in ward 25, and by the fourth week, with Liz having met senior representatives of the Trust, who agreed that John would get the appropriate number of sessions per week, he finally started to receive more physiotherapy.

But since then he has refused some sessions. John can now talk a little, so staff are obliged to ask him if he wants physio, and he sometimes refuses because he is so fed up.

“Since the end of July he has had another urinary infection and a chest infection,” says Liz. “His body copes better now with the infections than before and he can receive treatment in situ with antibiotics. But the infections prevent John from having more physio.

“The irony now is that he is finally guaranteed a certain number of physio sessions per week, but can’t have them all. His mental state varies, which is quite typical with such a brain injury.”

Liz, who visits her husband twice a day and feels as if she has become a “fixture” at LGI, is in no doubt of the effectthat cuts to post-surgical services are having on patients such as John. “Inadequate care has had a direct affect on John’s recovery. The doctors feel as if their work is being compromised by cuts to costs and resources. These doctors are the best in terms of their quality of care but the after-care is inadequate. It is short-term thinking.

“If John had been given more sessions earlier, I believe he would be a lot better today. I feel we are going forwards and backwards at the same time because progress is so very, very slow. There have been times when John doesn’t fully understand why he just can’t come home. I can’t see John going into rehab until September at the earliest.”

In the last week, John’s mobility has increased, and Liz hopes it will not be too long before he can embark on the next stage of his recovery.

“After all we’ve been through, we can see some light at the end of the tunnel,” she says.

Aussie Comedian Adam Hills Will Host ‘The Last Leg’ On Channel 4 Every Paralympic Night

August 25, 2012

Adam Hills thinks “mutant” is a much better word than “disabled”. “It sounds so much cooler,” he says with a broad smile. At a press launch earlier in the year for Channel 4’s coverage of the Paralympics, he introduced the minister for disabilities as “the minister for mutants”. “And then Channel 4 came out with its Meet the Superhumans ad campaign. Superhumans! I think it stole it from me … it took mutant and made it sound even cooler.” The problem with the word disabled is that it has so many negative connotations, he says. “And I don’t think people who are considered disabled think about themselves as being disabled. Even when people talk about my disability, for a number of reasons I feel weird. There’s nothing I can’t do, so technically I don’t think I am disabled, I don’t think I count.”

During the Paralympics, Hills is presenting a nightly comedy show called The Last Leg. Disability and comedy have rarely succeeded on TV together. This week, I’m Spazticus, Channel 4’s prank show featuring a cast of actors with disabilities received a largely negative response. And it is not as if there isn’t an increasingly large number of comics with disabilities – Francesca Martinez, Laurence Clark, Lee Ridley, Steve Day – working on really great stuff on the circuit.

But still, I wonder if a Paralympics comedy show is appropriate – doesn’t it send the message that it is a kind of novelty sideshow to the “real” Olympics?

“I think it is appropriate because [it can be] funny, and most Paralympians think it is,” says Hills, who was born without a right foot and wears a prosthesis. “They joke about it. It’s funny to walk into a room full of disabled people.”

I think I must have a puzzled expression because he explains that he went to the closing night party at the Beijing Paralympics, which he was covering for Australian television. “You’ve got a guy in a wheelchair snogging a girl with dwarfism, you’ve got a blind guy chatting up a girl with cerebral palsy. It’s funny – not as in mocking or going, ‘These people look ridiculous’ – it’s joyous funny, something to be celebrated. With comedy and disability people go, ‘Ooh, where’s the line?’ There is no line – if you’re celebrating, then you won’t say the wrong thing. As long as it comes from the place of going ‘This is great’. And it is, it’s an amazing sporting event. I think because everyone behind the show loves the Paralympics, we get it, we’ve seen a lot of Paralympic sports and we’ve all gone beyond that [he puts on an insipid voice], ‘Oh isn’t this inspiring’ and instead gone, ‘This guy’s awesome. It’s about the sport really.”

Does he think there are still a lot of patronising attitudes about Paralympic athletes, that kind of cloying triumph-over-adversity angle? “Oh definitely. But there is triumph over adversity – the great thing about the Paralympics is that everyone has a story. Except for the people born with disabilities. They’re boring.” He laughs. “‘What’s your story?’ ‘I was born without a foot’ ‘Dull. Move on.’ I think it makes them more accessible. You watch Usain Bolt – he’s clearly got an amazing gift and it’s been nurtured and trained and he has done nothing else but do that since he was a kid. I can’t connect with that. Then you see someone, for instance someone like Martine Wright [the sitting volleyball player] who lost her legs in the 7/7 bombing – a person on their way to work, they’ve lost their legs and they’ve pushed themselves and they’ve done this. It’s actually easier to relate to that than some of the Olympians I think.”

We sit in the garden of a cafe near his north London flat, where Hills lives with his wife Ali, an opera singer, and their two-year-old daughter. At 42, he has been a comedian for more than 20 years; better known in his native Australia, where he presented a television music show, he has steadily been building a large British fanbase, appearing on TV panel shows and touring his act, most recently at the Edinburgh festival.

Hills grew up in a Sydney suburb. His parents were told not to treat him any differently from his brother. “‘If he falls over, let him pick himself up’,” he says. “They enrolled me in gymnastics classes from a young age, I started playing tennis early on. I became relatively sporty and nothing stopped me. I still played football and cricket and ran around. It wasn’t as if I sat on the sidelines and couldn’t do what the other kids did.”

His father worked for Qantas, and his first exposure to comedy was on a flight. “I found the comedy channel and I was blown away that there was someone being funny on the radio,” he says. “It was Victor Borge and it was a routine about how punctuation in speech should have noises, so you know when someone is doing a comma. I became entranced by it. Because I listened to it over and over, I heard the cadence and the rhythm.” He sought out his dad’s Peter Sellers and Bill Cosby albums. “And I started listening to Billy Connolly and Robin Williams. I would quote them word for word at school. but I never really thought of it as a viable career path.”

At university, where he was studying to be a journalist, he went with a friend to the Sydney Comedy Store, where an open mic night was on. “When I did my first gig I thought, ‘This is it’.” He started working as a stagehand at a TV station, then applied to be a comedy writer on a radio breakfast show. There, he started performing his characters on the radio, and was soon snapped up as a breakfast show co-host. Offered his own show in another city, Hills realised he had to make the decision between radio and stand-up. He chose stand-up.

What did he like about it? He thinks for a moment. “I like the way I feel when I’m on stage,” he says.” There’s a quote I once read, I think from Bono of all people, something like: ‘In real life, I’m not the person I ideally want to be, but when I’m on stage that’s the closest I get.’ It’s the same for me. When I’m on stage, it’s the closest I get to the person I wish I was every day – positive, interested in people, everything I say I have thought about, nothing rattles me. I feel in the moment, relaxed, happy.”

In recent years, Hills’ shows have been based on audience interaction, something he describes as “a very liberated way of performing. You walk out on stage and have no idea what’s going to happen. Also there is a different laugh you get from an ad-libbed moment – the audience can tell something has happened that no other audience will ever see again, so the laugh is bigger and more of a release.” His shows have also become notable for being among the few with a regular sign-language interpreter, which means he has won a large number of deaf fans.

Last month, he performed at a Muppets gala show in Montreal; Kermit said they should “rough that guy up and make him a Muppet”, but I believe he is the closest a human can get to a Muppet. He is gentle and expressive, his face permanently creased into a smile.

His extreme niceness is something that is often picked up by reviewers. One called his comedy “celebratory, sun-drenched humour”. He seems happy with the tag (he seems happy with everything). “I remember an early gig in Adelaide, where I was compering, and talking to a load of butchers [in the audience],” he says. “I started putting them down, doing jokes about them. I brought on the next act and the crowd turned on them. I thought, ‘Why is there so much negative energy in the room? Oh God, because I put it there.’ There was no reason for me to talk down to them, it was purely because that’s what I thought you did in comedy.” (Around the same time, his father watched a recording of Hills’ material and stormed out, saying it was “filth”.) “Now, whenever I talk to the audience, I’m not going to put people down. I’m going to lift them. I want them to leave feeling better than they felt when they came in.”

Does he worry that credibility comes only from performing edgy material? “I did for a while. I guess I used to think, ‘Will I just be considered a crowdpleaser?’ The ‘nice’ tag is always bandied around, but I really don’t care about credibility any more. I think you go through that stage, you want to be respected by your peers, you want people to say, ‘You have to go and see Adam, the things he is saying!’ Eventually you go, ‘It doesn’t matter.’ We all work best when we do our own thing and don’t compare ourselves to any other comedians.”

He has just returned from the Edinburgh festival. I ask him how he feels about the focus on misogynistic comedians and the rise of the so-called rape “joke”. “A lot of people are talking about that but there are some wonderful shows there – Tony Law’s beautiful, nonsensical, silly, almost childish show is just one. The ‘rapey’ comedians are getting the attention, but the real comedy that is going on up there, probably the next wave of comedy, are people like him and Felicity Ward, and some of the sketch shows. My theory is it’s gone as offensive as you can get and it’s going to start swinging back. For me, it’s all about what you’re actually saying. If all you’re doing is making a joke about rape, that’s not funny to me. There are things to be said about rape, and you have to be doing [a joke about it] for a reason – you can’t just be going, ‘Ha ha, I just made a joke about rape.’ There can be a guilty pleasure at laughing at something you’re not meant to laugh at, but it can tip over into hate.”

Jokes about disability follow the same principle, he says. “Of course I don’t think we should laugh at people if it’s purely because they’ve got a disability – there has to be a reason behind it. If you’re just a guy in a wheelchair going, ‘Look at me, I’m in a wheelchair, aren’t I funny?’ I’m not sure that’s empowering anyone. When I started talking about my foot on stage, there had to be a reason for it. My foot always set off metal detectors at airports. After September 11, they’d go, ‘We need to check’, but when I said it was an artificial foot they didn’t want to offend me and they would go, ‘I’m sorry mate, go, go.’ Part of me would be going, ‘Dude, check, there could be a knife!’ I want to know the plane is safe, I don’t want know that some guy could pretend to have an artificial foot and get on with a knife. I talked about that on stage, and the point of that was: don’t be scared. Don’t worry if you ask what happened and I tell you and you say, ‘Oh god, I’m so sorry.’ There’s nothing to be sorry about.”

He remembers the comedian Phil Kay asking him about his foot. “His first question was, ‘Are you all right with it?’ And I went yeah, and he went ‘good’. That’s basically all people want to know when they see someone with a disability – ‘are you OK with it because I feel bad for you?’. I think that’s why the Paralympics is wonderful because you see a guy with one leg walk down to the pool and take his leg off and you go, ‘Oh, I hope he’s all right with it.’ And then you see him swim an amazing time, far faster than you could ever do, and you go, ‘Yeah, he’s fine’.”

• The Last Leg is on Channel 4 at 10.30pm every night during the Paralympic Games

Magic Physiotherapy For Disabled Children

August 25, 2012

I wish this had been available to me as a disabled child. It would really have made physio fun and I feel it might have helped.

Children with disabilities are being encouraged to take up magic to help their conditions, in a project supported by Guy’s and St Thomas’ Charity.

Many of the young people suffer from a condition brought on by a stroke – but the magic appears to be helping.

Almeena Ahmed reports.

 

One In 10 Drivers In Wales Admit Blue Badge Bay Abuse

August 25, 2012

As a blue badge holder, blue badge abuse has always driven me mad. Literally. I’m pleased to see surveys like this being carried out, but I fear the stats for bay abuse are much higher than people will admit.

One in 10 drivers in Wales have admitted they park illegally in spaces set aside for disabled people.

A survey has found as many as one in four in some areas confess to using a spot reserved for blue badge holders.

Gold medal-winning Paralympian cyclist Simon Richardson says he has to time his visits to supermarkets to be sure a disabled parking bay is free.

The 45-year-old wheelchair user says he finds a non-blue badger holder taking up a disabled bay at least once a week.

Mr Richardson, of Porthcawl, in the county of Bridgend, said disabled people had to “structure their life” around finding a bay free.

The survey found Bridgend was worst for parking space abuse, with one in four admitting to misuse.

The survey of more than 1,000 people across Wales found those aged 45-55 were the worst offenders, with one in six saying they had parked in reserved spaces often.

The Welsh government commissioned the survey as part of a crackdown on so-called “space invaders,” who either use a blue badge fraudulently or park in a designated space without a blue badge.

Councils across Wales are issued new-style badges that are linked to a new UK database of eligible users, making it easier for police and police and parking wardens to check that the badge is being used legitimately.

The survey found nearly 70% thought it was never justified to park illegally in the bays, although 6% argued that it was acceptable if someone was in a hurry or wanted to stay only a few minutes.

More than a third said the punishment should be clamping or being towed, while only a fifth said a fine of less than £100 is sufficient.

Mr Richardson said: “Blue badges are not patrolled enough. The signs say don’t do it, but inevitably people are not bothered.

“We have to structure our life around being able to get into a parking bay.”

Mr Richardson will light the Paralympic cauldron in Cardiff on Monday and carry the Paralympic torch in London on Wednesday.

But he cannot take part in the Games because he is still recovering from being run down in August 2011 while training for the London Games on the A48 near Bridgend.

His fellow Paralympian, Baroness Tanni Grey-Thompson, herself a blue badge holder, has lent her name to the drive to encourage greater respect for the parking rights of disabled vehicle users.

She said: “Abuse of the system is definitely a problem, and things need to change.

“I think this issue has got worse and gradually the problem has become more widespread over the years. People do cheat the system.”

Frank Gardner On Flying With A Wheelchair

August 25, 2012

Frequent air travel is part of a BBC security correspondent’s job – but flying with a wheelchair is sometimes more difficult than it needs to be.

Under a dark and thunderous monsoon sky the co-pilot squinted up at the rain. It was falling in sheets.

Phnom Penh airport in 2008 was rather nonplussed by my wheelchair.

“There are steps up to the plane,” said the ground staff apologetically, “so how will you get up there?”

I was rather hoping the airline would have the answer to that one but in the end the solution presented itself in the form of the energetic co-pilot due to fly this turboprop shuttle to Siem Reap and the fabulous temples of Angkor Wat.

“Hold on,” he said with a grin, “I give you piggyback”.

This was definitely beyond the call of duty but I was suitably grateful as we grappled our way, in fits of laughter, up the rain-lashed steps with jagged forks of lightning streaking across the Cambodian night sky.

If you want to travel to the remoter corners of the earth with a wheelchair, I realised, you may have to leave dignity at the door and accept a degree of discomfort.

But what about taking a wheelchair on regular scheduled airlines to major destinations?

Since being shot and left partly paralysed in a terrorist attack in 2004 I have had to make some fairly major adjustments to how I travel.

Initially, weak and groggy after seven months in hospital and 14 surgical operations, I needed a companion with me on every flight.

Even a short flight from London to Geneva left my emaciated backside painfully sore.

Now back to strength, I have no hesitation in telling airline and ground staff exactly what help I do or don’t need.

“If the plane is on a jetty I can wheel myself to the door,” I tell them. “But I’ll need one of those narrow aisle chairs to get me from there to my seat.”

This is not usually an issue but recently a certain national airline refused to provide even this service, in fact they tried to refuse altogether to help me get to the toilet on an eight-hour-plus flight, insisting that this would be up to my fellow passengers.

I warned them that this was unacceptable – in fact it was against Civil Aviation rules – and that it probably wasn’t too smart to treat someone in the media this way.

I survived the flight, uncomfortably, and then rather petulantly aired the story on the BBC Radio 4 consumer affairs programme You and Yours where it was picked up by the Mail on Sunday.

The result is that the airline has now backed down and changed its policy, to the great relief of disabled tour groups who had been trying for years to get them to comply.

So how is flying with a wheelchair any different from flying without? It is not all bad. People tend to be kind, patient and helpful and you often get an almost VIP status, being ushered to the head of queues, which can be a little embarrassing.

If you are lucky, you get to pre-board before the other passengers.

Airports vary widely when it comes to getting you to your seat, with some insisting on strapping you into what I call “a Hannibal Lecter chair” that immobilises the arms and legs like the one Anthony Hopkins’ character was strapped into in the film Silence of the Lambs.

On a short-haul European flight of under four hours airlines rarely provide an onboard wheelchair. So with the toilet out of reach I simply don’t eat before or during flying.

At the other end you usually have to wait for the entire plane to empty while trying not to fantasise about… a toilet.

Once, after a British Airways flight back from Rome the airport’s high-lift truck never turned up at Heathrow, leaving me and my family still stranded onboard a whole hour after everyone else had walked off the plane.

To their huge credit, both the captain and co-pilot refused to abandon us, eventually carrying me bodily down the steps in the dark. The next morning I got an apologetic phone call from the CEO of British Airports Authority, Colin Matthews.

Emerging into the terminal is usually straightforward, though recently in Rwanda I was asked, with a winning smile, if I wouldn’t mind waiting outside under an acacia tree while they stamped my passport as there were too many steps up into the terminal.

I did not mind at all, it made sense, but I did object in Berlin when a surly airport taxi driver took one look at my lightweight, manual wheelchair, shook his head and accelerated away.

As you can see, wheelchair travel can be something of a battle but what it really comes down to, I have concluded, is a combination of attitude and forethought.

Most airlines and airports are only too happy to help travellers in wheelchairs but sometimes fail to spot what is going to make life harder for us, or more often what is likely to rob us of our dignity and independence, like kettling all disabled passengers into a sort of roped-off “disabled ghetto” or bending over us and speaking very, very slowly.

These are some of the very few times I have lost my cool in an airport.

Justice For Daniel Roque Hall: Petition, Video And Facebook Page

August 25, 2012

I’ve just found and signed a petition calling for justice for disabled prisoner Daniel Roque Hall. This was started at the end of July but is still getting regular signatures. So if you live in the UK, please sign it and share it wherever possible.

For a disabled person, having medical needs met is as important as food. No one would let a non disabled prisoner starve, no matter how serious their crime. Why did the prison accept him if they couldn’t meet his needs, particularly when they said they could?

Updated 5pm: Daniel’s mother speaks passionately about the case in the video I’ve just found, posted below.

 

Updated 5.30pm: For those wanting to keep up with this case I’ve just found a Facebook page here.

Three Links About Accessible Holidays

August 25, 2012

 

From the Guardian:

Dancing On Wheels Winner James O’Shea Is Now Paralympic Swimmer

August 24, 2012

One of the UK’s big hopes for Paralympic glory has spoken about being encouraged to take up competitive swimming by the former Olympic medallist Mark Foster.

James O’Shea, a professional wheelchair dancer, met Foster during filming for a television programme, Dancing on Wheels.

O’Shea was speaking ahead of the launch of Sport Doesn’t Care Who You Are, a viral film aimed at challenging audience’s perceptions of disabled athletes.

ATOS Will Review Letters To Claimants After Mental Health Mistake

August 24, 2012

The government contractor Atos Healthcare has said it will review all the correspondence it sends to people claiming sickness benefits.

The announcement follows a “mistaken comment” in a letter – seen by BBC News – to a claimant with depression.

Atos incorrectly told the claimant that assessors were not required to be specifically trained in mental health.

The private firm said it would ensure that its letters were “clear and easy to understand” in future.

Atos carried out nearly three quarters of a million face-to-face assessments last year on people claiming the new sickness benefit, Employment and Support Allowance.

‘Panic attack‘

One of the claimants, Claire Whitwell, from Stockton on Tees, prompted Atos’s review.

Ms Whitwell has social anxiety disorder and depression, but was declared fit to work following a medical assessment last year. The decision was later overturned by an appeals tribunal.

In June, she was asked to attend another assessment to see whether her condition had changed.

Ms Whitwell said she had a panic attack, in part because she said the assessor did not know anything about depression, and complained to Atos over the incident earlier this month.

In the reply on 13 August, seen by BBC News, an Atos customer relations manager explained there was no requirement for assessors to be specifically trained in mental health.

However, an Atos spokeswoman has now said this comment was “mistaken”, insisting that all assessors do have specific mental health training.

“We have improved the way we assess those with fluctuating and mental health conditions,” the spokeswoman said.

“All our doctors, nurses and physiotherapists have received specific training in mental health and there are now mental function champions in place across our centres to offer.

‘No training’

But Ms Whitwell said Atos had made a terrible mistake and was now trying desperately to backtrack.

“The person who did my last two medicals was stated as a registered nurse. She clearly didn’t have any mental health training,” she said.

“The [Department for Work and Pensions] may as well have got a decision from a dentist.”

Paul Farmer, chief executive of mental health charity Mind, said her case raised the broader issue of how people with mental illnesses are assessed.

He said: “Over a third of people apply for Employment and Support Allowance because they have mental health problems. We know that many are wrongly declared fit for work.

“We want the government to make sure that the health professionals assessing people with mental health problems have an appropriate level of mental health expertise.”

In statements, the Department for Work and Pensions and Atos said they were working with disability groups to improve the medical tests, known as the Work Capability Assessment, and had recruited 60 “mental function champions” to give advice to the doctors and nurses carrying out the tests.

Disabled Prisoner Daniel Roque Hall’s Life At Risk Because Service Not Providing Care

August 24, 2012

I don’t condone any crime by anyone, ever. But surely the medical needs of all prisoners should always be met.

No Triumph, No Tragedy: Sun 26 Aug- Margaret Maughan, First British Paralympic Gold Medallist

August 24, 2012

I’ll be listening to this with great interest.

The first Paralympic Games in Rome in 1960 was a disorganised and undignified affair, symptomatic of attitudes in the 1950s and 60s. Soldiers carried competitors to and from the athletes’ village, and score-keeping was haphazard.

When archer Margaret Maughan won Britain’s first-ever gold medal in the Paralympics, there was no crowd, no podium and almost no Maughan.

She had to be dragged off the coach going back to the rudimentary Olympic village to be presented with her prize. As no-one was keeping the score in the archery competition, she had no idea she’d won, let alone the fact there was a ceremony.

The incident was typical of the first Paralympics which took place in Rome in 1960, which, as Maughan acknowledges, had something of a sports day feel about it.

Maughan’s other event was a swimming race, in which she was the only competitor.

It is hard to imagine this when you see more recent glitzy events, with their hours of TV coverage, their sports equipment costing thousands of pounds, and complete with the darker side of big-time competitive sport, drug-testing and classification disputes.

Paralympic villages these days are fully wheelchair accessible, each athlete has an assistant to help with any special needs, and they can get advice about anything from diet to the very latest equipment.

In Maughan’s first games, the accommodation was borrowed from the Italian army, and competitors had to be carried in and out by soldiers.

Undignified it might have been, but Maughan didn’t seem to mind. Indeed, she rather coyly admits that some of the soldiers were “quite dishy”.

In any case, they’d been prepared for such indignities when they were all loaded onto their flights out to Rome from a forklift truck.

“People just took it for granted in those days,” Maughan says. “We were just glad to be going.”

It was a sign of the times and Maughan, now in her 80s, tells her story with the laconic acceptance of her generation. It had been typical of her treatment since a road accident in Malawi in 1959 left her paralysed and in a wheelchair.

After being flown home, she was taken to Stoke Mandeville Hospital, then more or less just a row of huts, but offering what was at the time the most sophisticated treatment around for those with spinal injuries.

It was run by Ludwig Guttmann, one of the leading experts in the field, whom Maughan greatly admired, even though he conducted the place a bit like an army camp.

Maughan once had the temerity to tell Guttmann that she was bored. Far from getting the sympathy someone so recently paralysed might have expected, she was told to pull herself together – there were still plenty of interesting things to do in life, he told her.

Discipline was tough, trips to the local pub which got out of hand were greeted with a firm dressing-down by the doctor, and accompanied with threats that you might have to leave the hospital.

It was Guttmann who decreed that sport was therapy, and turned what began as sports days into the start of an international phenomenon – the Paralympics.

A few hundred competitors went to the first Games. Now it’s about 4,000. Then, hardly anyone noticed the athletes go. Now, there are hour upon hour of television coverage.

Then, competitors begged time off work, if they were lucky enough to have a job. Now athletes such as South African sprinter Oscar Pistorius and Britain’s former wheelchair racer Tanni Grey-Thompson are household names.

But Maughan’s story shows how the rudimentary 1960 event was symptomatic of attitudes back in the 1950s and 1960s.

On her return from Rome, she and her wheelchair had to travel in the guard’s van on the train back to her home town in Preston.

Although she was a qualified teacher, it was assumed that she would be unable to control a class and instead she was offered a job stamping cards in an office.

There was no financial support. No anti-discrimination legislation. But Maughan wonders whether present generations had the same get-up-and-go as she and her friends had.

While she is delighted that the modern Paralympics is now a major international festival, she wonders whether some of the camaraderie has been lost along the way.

She intends to go to the Games to enjoy a bonanza of sport which could not have been imagined 50 years ago – and where Team GB will be fully expecting to equal, and perhaps succeed, the medal haul of their Olympic compatriots.

Peter White interviews Margaret Maughan on No Triumph, No Tragedy on BBC Radio 4 on Sunday 26 August at 13:30 BST, or listen via the Radio 4 website

Paralympic Torch Relay Launched

August 24, 2012

A ceremonial cauldron has been lit in London’s Trafalgar Square to launch the Paralympic torch relay.

Claire Lomas, who was paralysed in a horse riding accident, lit the cauldron from the English national flame kindled on Scafell Pike.

Prime Minister David Cameron, London Mayor Boris Johnson and London 2012 chairman Seb Coe attended the ceremony.

The relay travels from Stoke Mandeville to London overnight on Tuesday for the Games opening ceremony on Wednesday.

Mr Cameron marked the occasion by wishing Paralympic Games competitors good luck.

“After a fortnight of Olympics withdrawal symptoms, it’s time to dust off the GB flags and get ready for two more weeks of spectacular sport,” he said.

“Over these next two weeks, we’re going to have more of those moments that will bring us together and make us proud.

“We are going to show the whole world that when it comes to putting on a show, there is no country like Britain and no city like London.”

Ms Lomas, who completed this year’s London Marathon in 16 days wearing a “bionic suit”, was left paralysed from the chest down in a riding accident.

Using a Paralympic torch she lit the cauldron which will stand on the north terrace of the square outside the National Gallery.

She said: “It’s an amazing opportunity and I feel very proud and privileged to be asked.

“I wish everyone competing in the Paralympics loads of luck.”

During the event, 26 flame ambassadors from across England collected a flame in a lantern to take back to their local celebrations.

Before the cauldron lighting the flame visited the Royal Opera House. Later in the day it will be carried in front of performers from the Notting Hill Carnival, visit the Houses of Parliament and be taken on the Docklands Light Railway.

Lord Coe said: “The national flame in England will help to light the way to the Paralympic Games.

“It will also give people the chance to celebrate the amazing achievements of the inspirational Torchbearers who all embody the Paralympic values of courage, determination, inspiration and equality.”

Mr Johnson has given the order for a giant Paralympic Agitos logo, the symbol of the Paralympic Games, to be lowered from Tower Bridge.

He said: “With just five days to go London is ready to make history and host the most successful Paralympic Games ever seen.”

Four national flames were kindled at the summit of the highest peaks in Scotland, Northern Ireland, England and Wales on Wednesday.

Following on from the event in London, the national flames will be used to light cauldrons outside Stormont in Northern Ireland on Saturday, at The Mound in Edinburgh on Sunday and outside City Hall in Cardiff on Monday.

Next Tuesday the four flames will be brought together in Stoke Mandeville where they will create the Paralympic flame, signalling the start of the relay.

Starting out from Stoke Mandeville Stadium at 20:00 BST, the Paralympic flame will be carried 92 miles by 580 torchbearers, working in teams of five, through Buckinghamshire, Hertfordshire and London to the Olympic Stadium in Stratford.

There it will be used to light the cauldron at the opening ceremony of the Games on the evening of 29 August.

FAMILIES ASK: IS DISABLED SEATING READY ACROSS ALL PARALYMPIC VENUES?

August 24, 2012

With 14 different venues on offer and less than one week to go until the the Paralympic Games, disabled ticket holders are looking to the LOCOG website and phone lines for answers to their seating queries. Unfortunately, much of the information is missing that would ensure wheelchair users can remain independent at the Games.

As Melissa Chapin, mother of 7-year old twins, explains, “Press statements and Games phone staff are saying very different things. Disabled parents especially want reassurance that they will be able to sit with their families. Not all wheelchair spaces are mixed with general seating in all cases. Parents are asking for a few minor adjustments beforehand so focus can return where it belongs, on the athletes.”

Venues for the Paralympics include: Brands Hatch, Copper Box, Eton Dorney, Eton Manor, ExCel Centre, Greenwich Park, North Greenwich Arena, Olympic Park, Olympic Stadium, Riverbank Arena, The Mall, The Royal Artillery Barracks, the Velodrome and Weymouth & Portland.

To date, LOCOG have addressed wheelchair seating availability at just one venue, the ExCel Centre, and for one event, Sitting Volleyball. “There was a mention on TV in response to some of my queries,” she says, “but I have day passes for several sports. Also, nothing has been explained on the website or enquiry line for the general public”.

“We can’t just show up on the day and hope that stewards will be able to sort us out,” she says, “there are just too many of us.”

With this in mind, what support are families with wheelchair users requesting?

ISSUES
• Wheelchair users and their families aren’t able to plan in advance, take responsibility and maintain independence. Lack of communication and information is creating fear, anger and confusion.
• Press statements and Games phone staff are saying very different things. Information available is incomplete or inaccurate. Wheelchair seating availability has been addressed at one venue only (ExCel) for one event (Sitting Volleyball).
• Making ourselves known to stewards on the day will not be enough, there are hundreds of us.
• Good info and communication promotes independence, trust and best practice for future. Wheelchair users and other disabled spectators are the Paralympic Games’ best ambassadors!

Website, maps and venue layouts show broad location of spectator area, not seating placement. Maps and venue layouts missing vital information, such as:
• Location of wheelchair seats in relation to general seating
• Total capacity / number of seats available (of either kind)
• Ratio of wheelchair to general seating
• Length/width in metres of arenas, passageways and toilets
• Distance in metres between facilities

BEFORE THE GAMES
– Create/announce dedicated wheelchair seating phone line. Release in statement to press.
– Retrain ticketing phone staff to identify tickets purchased pre-Nov 2011, transfer call to dedicated team
– Ask ticket holders for invoice number, proving tickets bought together. Match invoice numbers with seating needs throughout process.
– Ascertain size of problem in advance, prepare solution at each venue as far as possible
– Train ALL seating staff to address wheelchair users’ solutions, not just 1 or 2 (prevents bottleneck)

AT THE GAMES
– Where possible, reserve first row behind wheelchair seats for family members
– Ask ticket holders to show invoice as proof family tickets bought together. Match invoice numbers against seating needs. Give priority to early purchasers, esp pre-Nov 2011 watershed.
– Provide temporary children’s chairs near wheelchair using parents.
– Create dedicated team to care for displaced families during events.

HISTORY
– September, 2011: Games tickets go on sale
– Tickets available for purchase in any combination
– Wheelchair using parents able to buy tickets for their children

– November, 2011: Wheelchair users tickets pulled from the website, now sold via phone only
– Child tickets only available via website, cannot be purchased without (non-disabled) adult ticket
– No longer possible for families with wheelchair users to buy their tickets/seats together

—
ENDS

For further information, please contact Melissa Chapin directly on (07890) 656990 or info@melissachapin.com

Celebrate Paralympians, But Remember They Needed State Help To Get There

August 24, 2012

Says Polly Toynbee at Comment Is Free.

Tonight: Don’t Hate Us

August 24, 2012

Well, actually it was last night. But for those who missed it, here is the link to Francesca Martinez’s very good documentary on disability hate crime.

If you saw the doc, you are very welcome to discuss it below.

Paralympics Still Allows Life After Injury For Wounded Soldiers

August 24, 2012

In today’s Guardian, Amelia Gentleman goes right back to the roots of the Paralympics and meets some wounded soldiers turned sportspeople.

Olympiad Festival Will Open Doors For Disabled Artists

August 24, 2012

Three of them explain all here.

Right To Life Case Adjourned Until 1 October

August 24, 2012

A Muslim man’s right-to-live court battle has been adjourned until October after claims he is no longer in a persistent vegetative state.

A QC for the family of “Mr L” from Greater Manchester told a high court judge new video evidence has been seen by an independent expert in neurology.

The judge adjourned the case of the 55-year-old man until 1 October.

Mr Justice Moylan said Mr L should be resuscitated if he suffers a fresh cardiac arrest before the next hearing.

But he added doctors did not have to revive him if they judged that such action would not restart his heart and maintain breathing.

“No medical practitioner or nurse is required to act contrary to their professional judgment and duties as assessed at the relevant time,” he said.

Mr L’s family is disputing the Pennine Acute Hospitals Trust policy not to treat the man if he worsens.

Video footage

They argue, according to their Muslim faith, “life is sacred” and everything must be done to prolong life – including life-prolonging treatment, no matter the pain – “until God takes it away”.

Dr Peter Newman, a neurology specialist, was expected to support the trust’s application for a declaration that it would not be in Mr L’s best interests to offer him ventilation or resuscitation if there is “a life-threatening event”.

However, on Wednesday night the family visited Mr L with a trust doctor, the family’s QC Jenni Richards told Mr Justice Moylan.

Although not a neurologist, the doctor produced a statement in which he accepted there was a “closing of eyes and grimacing” when Mr L’s eyes were cleaned, which was filmed.

Ms Richards told the court: “That video footage was viewed this morning by Dr Newman and Dr Newman’s view… was that Mr L was no longer in a persistent vegetative state.”

Claire Watson, appearing for the trust, said that “clearly there has been a change in the diagnosis” but it had not been possible “to obtain a definitive view from the treating clinicians at the hospital whether or not that will alter their care plan for L”.

Patient L suffered severe brain damage in July following a third cardiac arrest and his medical team had stated he was in a persistent vegetative state.

Doctors argue he would have “minimal prospects of improving neurological function” and no “meaningful quality of life” if treatment was given.

Cheating At The Paralympics

August 23, 2012

Would you break your own toe to win a Paralympic medal? Would you sit on a sharp object or strangulate your testicles? It’s cheating, but a scientist who will be monitoring athletes at the Paralympic Games says a third of competitors with spinal injuries may be harming themselves to boost their performance.

The practice, called “boosting”, is designed to increase blood pressure and enhance performance.

It’s banned by the International Paralympics Committee (IPC), but some researchers say these are the desperate acts of athletes trying to compete on a level playing field.

“There have been times where I would specifically give my leg or my toe a couple of really good electric shocks” says Brad Zdanivsky, a 36-year-old Canadian quadriplegic climber who has experimented with boosting in the gym.

Common boosting techniques

  • Overfilling the bladder, by clamping a catheter
  • Sitting on a drawing pin
  • Use of tight leg straps
  • Twisting and/or sitting on the scrotum
  • Cracking or breaking a bone

“That would make my blood pressure jump up and I could do more weights and cycle harder – it is effective.”

One British journalist with years of experience covering the Paralympics says he has heard of athletes using small hammers to crack or break a toe.

The point of these activities is to raise the athlete’s blood pressure and heart rate.

When able-bodied competitors engage in hard physical activities like running or swimming, blood pressure and heart rate increase automatically. Athletes with spinal injuries do not get that response. “Boosting” is a short cut to higher blood pressure and the improved performance that comes with it.

In medical terms it’s defined as the deliberate induction of a dangerous condition common to quadriplegics called autonomic dysreflexia (AD). Many everyday activities that cause discomfort, even something as trivial as sunburn, can set off the condition naturally.

Zdanivsky turned to boosting when his spine was crushed in a car accident in 1994, because he didn’t want the injury to curb his passion for mountain climbing.

“I tried several different ways of doing it. You can allow your bladder to fill, basically don’t go to the bathroom for a few hours and let that pain from your bladder do it.

“Some people do that in sports by clipping off a catheter to let the bladder fill – that’s the easiest and the most common – and you can quickly get rid of that pain stimulus by letting the urine drain out.

“I took it a notch further by using an electrical stimulus on my leg, my toe and even my testicles.”

But boosting comes at a price.

“You are getting a blood pressure spike that could quite easily blow a vessel behind your eye or cause a stroke in your brain,” says Zdanivsky.

“It can actually stop your heart. It’s very unpleasant, but the results are hard to deny. The saying is that winners always want the ball, so it doesn’t matter if it’s unpleasant, it gets results.”

The IPC has been aware of the problem for many years. Boosting has has been banned since 1994.

But remarkably little scientific research has been done to assess how many athletes are willing to take these extreme measures to improve their performance.

A survey carried out by the IPC during the Beijing Paralympics indicated that around 17% of those who responded had used boosting. Some experts believe the real figure could be higher.

Could it be as high as 30%, I asked Dr Andrei Krassioukov, an associate professor at the University of British Columbia and an experienced researcher into spinal injuries?

“Correct. It is possible,” he replied.

“I will tell you right now as a physician people want to feel better, first of all – they feel better with their blood pressure higher. But a second thing driving it is the desire to win, to have a fair playing field with other paralympic athletes who have higher blood pressure.”

While many athletes with spinal injuries will suffer from low blood pressure, there is considerable variation from one individual to the next.

“There is still a disadvantage between paralympians who have normal blood pressure and those who don’t and this puts a significant number of athletes at a disadvantage,” Krassioukov says.

“As a physician I totally understand why these Olympians are doing this, but as a scientist I am horrified with these events.”

He believes that changes to the system of classification would help – for example by changing the points system that aims to ensure that teams with a roughly equal level of overall disability compete against one another in wheelchair rugby and basketball.

Currently, the system takes no account of blood pressure and heart rate.

IPC Chief Medical Officer Peter Van de Vliet says he has no data that would support or disprove Krassioukov’s estimate that up to 30% of paralympians with spinal injuries engage in boosting.

It’s an unacceptable practice, he says, and the IPC has no sympathy with the idea that it levels the field of play.

The IPC has no plans to add physiological characteristics into their classification systems, he adds.

“Paralympic qualification for athletes with physical impairment is on the basis of a neuro-muscular-skeletal impairment rather than a physiological one,” he says.

IPC rules on boosting

  • The IPC forbids athletes to compete in a hazardous dysreflexic state
  • A hazardous dysreflexic state is considered to be present when the systolic blood pressure is 180mm Hg or above
  • An examination may be undertaken by physicians or paramedical staff… at any time
  • Any deliberate attempt to induce Autonomic Dysreflexia is forbidden… the athlete will be disqualified from the particular competition

During the Beijing games, the IPC carried out about 20 blood pressure checks on athletes before events. They didn’t find any clear evidence of people boosting.

The IPC says it will continue to monitor athletes closely before events at the London games.

Anyone they suspect is boosting – symptoms include sweating, skin blotchiness and goose bumps – will be subjected to blood pressure checks.

If athletes are found to have a systolic blood pressure of 180mm of mercury or above, they will not be allowed to compete in “the particular competition in question”. But they will not receive a long-term ban.

Brad Zdanivsky argues that checks like this will not be effective in cutting out boosting. He says you would need to test an athlete’s blood pressure regularly over a sustained period to be able to know for sure whether any given reading was natural or “boosted”.

“There is no real solution, it is an ugly can of worms that no-one wants to open it and talk about,” says Zdanivsky.

He believes that only a tragic event will bring the problem out into the open.

“What’s going to happen one day is that someone is going to have a stroke right on the court and then they are going to have to talk about it.”

Matt McGrath’s documentary Cheating at the Paralympics will be broadcast at 1832GMT on 23 August 2012 on the BBC World Service

Woman Loses Sight In One Eye After Swimming Wearing Contact Lenses

August 23, 2012

A woman lost the sight in one eye after going swimming in a pool at a hotel spa wearing contact lenses.

Jennie Hurst, from Southampton, contracted acanthamoeba keratitis – a rare and painful infection caused by amoeba which naturally occurs in water.

The infection causes hypersensitivity to light and the 28-year-old said she was confined to a dark room for three months.

She is now warning of the dangers of swimming or showering wearing contacts.

Ms Hurst underwent four operations, stays in hospital, and a treatment regime in which she had eye drops administered every half hour.

She said: “During that time I was literally confined to my bedroom with blackout blinds at the window. The only thing I could do was to listen to the radio.

“One evening, I was so desperate to look out of window to get a glimpse of the outside world that I opened my curtains in the middle of the night.

“As soon as I did this the moon shone in my eyes and it really hurt. I didn’t do that again in a hurry.”

The British Contact Lens Association said risk factors for infection in contact lens wearers include:

  • Using tap water during lens care (to rinse lenses or the storage case) or inadequate hand drying prior to lens handling
  • Wearing lenses while swimming (without goggles), showering or in hot tubs
  • Using ineffective lens care solutions
  • Failing to follow lens care instructions
  • Symptoms of acanthamoeba keratitis include a sensation of having something in the eye, watery eyes, blurred vision, sensitivity to light, swelling of the upper eyelid and extreme pain.

Ms Hurst said she has been left with no vision in her left eye and the damage to her cornea could be permanent.

The environmental coordinator, who had been wearing contact lenses for five years, went swimming at a hotel while on a residential training course with work.

“The irony is that I don’t even like swimming – I only did a few laps,” she said.

“My consultants were quite surprised that I had gone swimming and probably thought that I had been a bit lazy whereas I wasn’t aware of the problem at all – it didn’t even enter my brain to take them out.

“I felt guilty that I had let it happen when actually I could have just taken my contacts out and saved everyone a lot of time and bother and myself a lot of pain.

“I have always been so careful with my contact lenses. I always remove them when sleeping and always use contact lens solution to wash them.”

According to the British Contact Lens Association there are 3.7 million contact lens wearers in the UK which represents 7.5% of the adult population.

Parwez Hossain, the consultant ophthalmologist who treated Ms Hurst at Southampton General Hospital, said: “If you’ve been wearing contact lenses and you start developing irritation in the eye and sensitivity to the light which doesn’t settle down after a few hours you need to go and see a doctor or optician.

“If it lasts longer than 24 hours you need to go and see an eye specialist.”

Should People Offended By Jokes Be Offered Compensation?

August 23, 2012

Today’s Independent online section has a piece that raises this very interesting question. A 74-year-old Irish man heard a joke as part of cruise entertainment. He recently sued the owner company of P&O Cruises because he found the joke racist.

This got me thinking and I left a comment saying that in some cases, people should be offered compensation or ticket refunds if they hear offensive jokes.

The question is- what do you think?

Right To Live Case: Patient ‘L’ No Longer In Vegetative State

August 23, 2012

A Muslim man at the centre of a right-to-live court battle is no longer in a persistent vegetative state, London’s High Court has heard.

A QC for the family of “Mr L” from Greater Manchester told the judge new video evidence has been seen by an independent expert in neurology.

The family of the 55-year-old man say he would want to be revived, due to his faith, if his condition deteriorated.

Pennine Acute Hospitals Trust does not want to treat the man if he worsens.

Patient L suffered severe brain damage in July following a third cardiac arrest and his medical team has stated he is now in a persistent vegetative state.

However, his relatives said it is too early to determine whether he is in such a state.

In a High Court statement, the family said Patient L was “able to understand us, hear us and we believe that he reacts”.

The case continues.

Jordanian Sex Charge Men To Miss Paralympics

August 23, 2012

The three members of the Jordanian Paralympian squad facing sex charges have been pulled out of this year’s Paralympic Games.

Faisal Hammash, Omar Sami Qaradhi and Motaz Al-Junadi are charged with sex offences in Antrim.

Locog said they had been told by the Jordanian National Paralympic Committee that they would not be entering the athletes into the games.

They said the athletes had returned to Jordan.

On Wednesday, a court in Coleraine, County Londonderry, heard that The King of Jordan has taken a personal interest in the case

A Jordanian embassy official offered bail sureties at the hearing.

Bail of £500 ($793) was granted with a surety of £5,000 ($7937) from the Jordanian government for each defendant.

The case had been adjourned while the judge considered the bail applications.

The squad is one of several international teams using the Antrim Forum sports complex as a training base in advance of the Games which begin in London next week.

The three men, two of whom compete in wheelchairs, are all members of the Jordanian Paralympics power-lifting team.

Faisal Hammash, 35, faces two counts of causing a child to engage in sexual activity.

Omar Sami Qaradhi, 31, is charged with three counts of sexual assault and one of voyeurism. At least two of the assaults were against children.

Motaz Al-Junadi, 45, faces one charge of sexual assault. All the offences took place between 16 and 20 August.

King Abdullah’s interest in the case was reported by one of his government officials who promised to return the accused men to Coleraine Court following the games if bail was granted.

The Jordanian Embassy in London released a statement saying it regretted the incidents that had led to the charges of the three members of the paralympic team.

“In line with its duties towards its citizens, the embassy provided direct consular support to the three members of the team charged with the offences,” it said.

“A senior diplomat from the embassy attended the hearings this morning at the Magistrates Court in Antrim, and posted bail for the three sportsmen pending their reappearance in Belfast for their trial in October.

“The embassy wishes to further express its appreciation to the courts for promptly appointing a defence lawyer for the three men and facilitating its Consular services to its citizens.

“The embassy in London wishes to reassure the courts of its continued cooperation and maintains utmost respect for the due process of the law.”

Former Boxer To Carry Paralympic Torch

August 23, 2012

Former boxer Michael Watson will be a torchbearer in the Paralympic relay.

Watson, along with Dame Tanni Grey Thompson, will take the flame next Wednesday in Trafalgar Square in the 24-hour relay from Stoke Mandeville.

The flame, which sets off on Tuesday evening from the spiritual home of the Paralympic Games, will be made up of four flames from around the UK.

These were lit on Wednesday and will be at Flame Festivals in London, Belfast, Edinburgh and Cardiff over the weekend.

The cauldron in London on Friday will be lit on the steps outside the National Gallery on the north terrace of Trafalgar Square by Paralympic former event rider Claire Lomas, who completed this year’s London Marathon in 16 days.

The flame will be taken to a number of places in the city on Friday including the Houses of Parliament, the Royal Opera House and on the Docklands Light Railway while it will also be met by performers from this weekend’s Notting Hill Carnival.

Second Locked In Man, ‘Martin,’ 47, Will Appeal Court Ruling Denying His Right To Die

August 23, 2012

Lawyers representing a second locked-in syndrome sufferer – who lost his High Court action on the same day as Tony Nicklinson – have announced that they are to appeal.

They said the court’s ruling last week denied the 47-year-old man “the opportunity to take the necessary steps to end his own life”.

The man, who cannot be identified for legal reasons but is referred to as “Martin”, suffered a massive stroke in August 2008.

He is unable to speak and virtually unable to move, describing his life as “undignified, distressing and intolerable” – and wants to be allowed a “dignified suicide”.

Richard Stein, head of human rights at law firm Leigh Day & Co, said: “Martin is very clear that he wants to end his own life as he chooses.

“As an able-bodied person, I have the ability to choose how I live and how I die.

“Martin’s right to choose the manner of his death is denied to him by his disability and the courts.

“We will continue to fight for a ‘compassionate defence’ for anyone who will help him take the necessary steps to end his tortuous existence.”.

Martin said in the statement: “I am relieved for Tony and offer my condolences to his family for the man they’ll miss.

“I hope that I too can be set free from this existence but I would like it to be in the manner of my choosing.”

Older Fathers Link to Autism, Finds Study

August 23, 2012

A genetic study has added to evidence that the increase in some mental disorders may be due to men having children later in life.

An Icelandic company found the number of genetic mutations in children was directly related to the age of their father when they were conceived.

One prominent researcher suggested young men should consider freezing their sperm if they wanted to have a family in later life.

The research is published in Nature.

According to Dr Kari Stefansson, of Decode Genetics, who led the research, the results show it is the age of men, rather than women, that is likely to have an effect on the health of the child.

“Society has been very focussed on the age of the mother. But apart from [Down’s Syndrome] it seems that disorders such as schizophrenia and autism are influenced by the age of the father and not the mother”.

Male driven

Dr Stefansson’s team sequenced the DNA of 78 parents and their children.

This revealed a direct correlation between the number of mutations or slight alterations to the DNA, of the child and the age of their father.

The results indicate that a father aged 20 passes, on average, approximately 25 mutations, while a 40-year-old father passes on about 65. The study suggests that for every year a man delays fatherhood, they risk passing two more mutations on to their child.

What this means in terms of the impact on the health of the child is unclear. But it does back studies that also show fathers are responsible for mutations and that these mutations increase with age.

And, for the first time, these results have been quantified and they show that 97% of all mutations passed on to children are from older fathers.

“No other factor is involved which for those of us working in the field is very surprising,” said Dr Stefansson.

He added that the work backed other studies that have found links between older fathers and some mental disorders.

“The average age of fathers has been steeply rising [in industrialised countries] since 1970. Over the same period there has been an increase in autism and it is very likely that part of that rise is accounted for by the increasing age of the father,” he said.

The findings should not alarm older fathers. The occurrence of many of these disorders in the population is very low and so the possible doubling in risk by having a child later in life will still be a very low risk.

Nearly all children born to older fathers will be healthy. But across the population the number of children born with disorders is likely to increase if this theory holds true.

Older fathers and therefore genetic mutations have been linked with neurological conditions because the brain depends on more genes for its development and regulation.

So mutations in genes are more likely to show up as problems in the brain than in any other organ. But it is unclear whether the age of fathers has an effect on any other organ or system. The research has not yet been done.

The reason that men rather than women drive the mutation rate is that women are born with all their eggs whereas men produce new sperm throughout their adult life. It is during sperm production that genetic errors creep in, especially as men get older.

Writing a commentary in the Journal Nature, Prof Alexey Kondrashov, of Michigan University, said young men might wish to consider freezing their sperm if future studies showed there were other negative effects on a child’s health.

“Collecting the sperm of young adult men and cold storing it for later use could be a wise individual decision. It might also be a valuable for public health, as such action could reduce the deterioration of the gene pool of human populations,” he said.

Dr Stefansson, however, told BBC News that from a long-term perspective the decision by some men to have children later in life might well be speeding up the evolution of our species.

“The high rate of mutations is dangerous for the next generation but is generating diversity from which nature can select and further refine this product we call man,” he said.

“So what is bad for the next generation may be good for our species in general.”

Remploy Workers To Stage Week Long Strike From 3rd September

August 23, 2012

Disabled workers at factories being sold by the government are to stage a four-day strike over the threat of job losses.

Members of the GMB and Unite unions at Remploy sites in Chesterfield and Springburn, Glasgow, will walk out from 28 August.

Officials accused the Department for Work and Pensions of removing the obligation for a new employer to provide a pension, and warned that potential buyers may want to make redundancies based on an individual’s disability.

GMB national officer Phil Davies said: “Members are concerned that no information about three potential buyers has been given to them. The DWP has removed the obligation for a new employer to provide a pension.

“We understand that all three potential buyers may want to make redundancies based on the individual disability.”

The GMB said 25 Remploy factories closed last week under controversial government plans to switch spending to help individual workers find jobs in mainstream sectors.

Kevin Hepworth of Unite said: “To attack the most vulnerable in our society and throw them on the scrapheap is an act against disabled people.”

Half of the 54 factories are to close by the end of the year, 18 will close or be sold next year and the remaining nine face an uncertain future.

https://twitter.com/carl_chambers/status/238516982335553536

Deaf Sign Language Teacher Volunteers In Iran

August 22, 2012

A deaf teacher of sign language from Newcastle has spent three weeks as a volunteer in Iran.

Tessa Padden, 55, taught the basics of sign linguistics, which are common across all sign languages, and explained the importance of sign language teaching.

With the help of an Iranian interpreter, she also gave talks and led question-and-answer sessions about linguistics in Tehran, Isfahan and Shiraz.

She said: “I told them about my own journey from leaving school and when I thought deaf people were consigned to working in routine and menial jobs.

“But through improving opportunities for deaf people through TV, university research and better interpreter provision, deaf people in Iran could aim to achieve more.

“I wanted to encourage and motivate deaf people in their own communities to take possession of their own language and culture and take the lead in working for a better future for the deaf community.”

She was also asked to address the inaugural Iranian sign language interpreters conference in Zanjan which included about 200 people and ran workshops for groups of interpreters.

She said: “At the conference, the students that I’d been teaching were so motivated. Some of them came up on stage and said how much they’d enjoyed the three days linguistic training and wanted to share that and they wanted to promote this in Iran.

“They were really positive and that’s what I wanted to see, deaf people being confident and assertive enough to get on stage to talk to interpreters.

“One of the things I respect most is that many of the interpreters in Iran are volunteers.

“They do this work for deaf people because they come from deaf families or because they want to support deaf people and I was really gobsmacked by that. I admire that quality in Iranian interpreters.”

After studying sign language teaching at Durham University, Mrs Padden has since taught the basics of sign linguistics in Spain, Ireland and Africa and runs a website that teaches British sign language.

Aside from the basic signs, the signs for other words can vary due to cultural or historical reasons.

She said: “Some signs for the words ‘eat’ and ‘drink’ are similar across different languages but can differ for cultural reasons since people round the world eat and drink in many different ways.

“Irish sign language derives more from French sign language through Roman Catholic deaf educators. American sign language is more similar to French sign language as well, for different historical reasons.

“Another feature of all sign languages is the use of facial expression, but the facial expressions don’t always mean the same thing in different sign languages.”

Stiff upper lip

Mrs Padden, who has been deaf all of her life, said that she can often relate to deaf people’s frustrations with communication.

“With growing up in a hearing society, I always thought most deaf people feel the same, that hearing people are above us, they are superior to us,” she said.

“When I went to Durham University, I realised I was equal. Our language was equal, we had a culture of our own and it was just a case of upbringing.

“That helped me, and if people lack information and knowledge I can pass that on to them and convey to deaf people that they can achieve the same as hearing people in different ways.”

During her three-week stay in Iran, Mrs Padden stayed with an Iranian family and said she learned a lot about the Iranian culture.

She said: “I watched the way they were talking to each other and the way that they talked over each other and cut across each other was quite different to British culture.

“But they were really warm and approachable. Iranian men smile a lot more and they show their teeth a lot and you don’t get that here.

“While I was teaching them about the cultural differences I mentioned this and they all laughed and asked what British people were like but they already knew about the British stiff upper lip.”

Tony Nicklinson Dies

August 22, 2012

As far as I know, his last wish has come true naturally.

Tony Nicklinson, a man with locked-in syndrome who fought for the right for doctors to legally end his life, has died.

The 58-year-old was paralysed from the neck down after suffering a stroke in 2005 and wanted a doctor to be allowed to terminate his life.

Last week Mr Nicklinson, from Welksham, Wiltshire, lost his High Court case to allow doctors to end his life.

He is reported to have died at 10:00 BST.

The father-of-two was left paralysed with locked-in syndrome after suffering a stroke while on a business trip to Athens.

He said he was “devastated” by the court’s decision and would appeal against it.

I’ve followed the case closely for the last few years. While I never supported Mr Nicklinson’s wish to be assisted to die, I am genuinely sad to read of his death and I send very sincere condolences to his wife and daughters.

The Undateables: Series 2 Looking For Participants

August 22, 2012

I am posting this at the request of Betty, the production company.

Locked In Syndrome Man Michael Cubiss Is ‘Happy’

August 22, 2012

Michael Cubiss has locked-in syndrome, which means he’s paralysed and can’t talk.

A High Court decision not to allow doctors to end the life of fellow sufferer, Tony Nicklinson, without fear of prosecution had a profound impact on Michael and his wife Wendy.

The Oxfordshire couple contacted BBC Breakfast because they wanted to show that living with locked-in syndrome can be positive.

Graham Satchell went to meet them.

North East Lincolnshire Council Changes Taxi Wheelchair Access Rules

August 22, 2012

Scary stuff, dear readers.

Taxi drivers in North East Lincolnshire will no longer be required to buy wheelchair friendly vehicles.

The council voted to change its regulations and allow a “mixed fleet” of cabs.

It means that drivers with existing saloon cars can replace them with similar models without wheelchair access.

A local disability rights campaigner said all taxis should have wheelchair access.

The local authority said it had made the change after consulting with drivers and taxi users.

Currently there are 103 wheelchair-accessible hackney carriages in North East Lincolnshire, which make up 43% of the total.

‘Best way forward’

The Labour leader of North East Lincolnshire Council, Chris Shaw, said having 43% of taxis with wheelchair access was “all the market can bear”.

Mr Shaw said: “We think that by having a mixed fleet policy, that’s possibly the best way forward.”

Mark Bagley, of the Choices and Rights Organisation which helps disabled people in the region, said wheelchair-accessible taxis could be used by anybody.

Taxi driver Derek Grant said many owners had already bought wheelchair-adapted cabs due to the existing guidelines.

“Some of the guys have spent a lot of money on buying these wheelchair-converted vehicles, which we’ve had no choice in,” he said.

The council also decided not to force the area’s taxis to be painted the same colour.

Commuters Told To Prepare For Paralympics

August 22, 2012

Commuters are being urged to make alternative travel arrangements for the second time this summer as London prepares to host the Paralympic Games.

Travel bosses have outlined plans to cope as the transport network prepares for another influx of visitors and children go back to school.

The Paralympic Games are the second largest sporting event in the world with 2.5m tickets expected to be sold.

The Games run from 29 August to 9 September.

Transport for London (TfL) has urged commuters to avoid travel hotspots during the Games, with traffic expected to be much heavier as schools return from their summer breaks.

Premier League football matches in the capital, BBC Proms in the Park and the Thames Festival are also expected to heap more pressure on the transport network during the Games.

East London, particularly around the Olympic Park in Stratford, the ExCeL centre and Greenwich Park, will be hit with the greatest demand as this is where many of the competitions will be staged.

‘Unique challenges’

TfL expects up to 215,000 spectators to visit the Olympic Park on most days during the Paralympics.

London’s transport commissioner Peter Hendy said: “We already know the London 2012 Paralympic Games will see the most spectators in its history, which is fantastic.

“And with the new school year beginning in the second week and larger groups expected to travel together on the public transport network, we expect these Games to hold some new and unique challenges.

“We’re confident that transport will cope well during the Paralympic Games, as it did during the Olympics, provided businesses and Londoners continue to plan and change the way or time that they travel, using the tools and information available at getaheadofthegames.com.”

Mayor of London Boris Johnson said: “One of the things that made the Olympic Games such a great success was the way Londoners changed the way they usually travel, arriving at work a little earlier or later to avoid the busiest times.

“I want to thank every Londoner for that, and to ask everybody to plan ahead once more, so they can get out and enjoy everything London has to offer during the Paralympics and help keep our great city moving.”

Commuters have been warned they could face heavy congestion with the arrival of the Paralympic Games Torch Relay in London and the opening ceremony at the Olympic Park on 29 August.

Team GB’s Olympians and Paralympians will be honoured with a parade through the streets of the capital on 10 September.

It is set to begin at Mansion House in the City of London and finish in central London.

The Games will also be screened along with live entertainment at Trafalgar Square and at Potters Field by City Hall, bringing further travel congestion.

TfL has warned the Jubilee Line from Waterloo to Stratford, the Central Line from Holborn to Stratford and the entire Docklands Light Railway (DLR) will see the largest number of passengers during the Games, particularly between the peak hours of 0730 BST to 0930 and 1600 to 1900.

Some key national rail stations, such as King’s Cross, St Pancras, London Bridge, Paddington, Waterloo and Victoria are also expected to be busier than normal around these times.

Park and Ride

London Underground, the DLR and London Overground will run an hour later during the Games, with the last trains leaving central London and Paralympic venues at around 0130.

National rail services will also operate additional services during the Games.

On the roads, a Paralympic Route Network (PRN) will be in operation, but on a smaller scale than the Olympic Route Network (ORN), TfL said.

The PRN will start to be introduced overnight on 25 August before it becomes fully operational on the first day of the Paralympics.

It will include 8.7 miles of Games Lanes on roads linking the City of London – where the International Paralympic Committee (IPC) and the world’s media will be based – with the Olympic Park and other venues, including ExCeL, the North Greenwich Arena, Greenwich Park and Royal Artillery Barracks.

There will also be a separate games lane on the M4, which comes into force on Wednesday.

Motorists have been urged to avoid driving around the PRN routes and venues, particularly around the Olympic Park in Stratford and on the A102 approach roads north and south of the Blackwall Tunnel.

The A2, A12 and A13 routes into London are also expected to be busier than usual, particularly in the morning peak.

Ticket holders who have a Blue Badge and plan to drive to Paralympic events have been reminded they must book park-and-ride or blue badge parking at venues in advance.

Ofsted Report Warns Of Higher Risk Of Neglect And Abuse For Disabled Children

August 22, 2012

Disabled children in England need better protection against neglect or abuse, suggests a report by children’s and education watchdog Ofsted.

The report says disabled children are more likely to be victims of abuse, but are less likely to have a child-protection plan to safeguard them.

Ofsted’s report was based on a survey of cases in 12 local authorities.

Inspectors say that a lower standard of care for children with disabilities is unacceptable.

Ofsted looked at 173 cases involving children with disabilities and found that problems were not always recognised or dealt with quickly enough.

‘Neglect’

Inspectors found good examples of support for families – but in some cases the focus was on helping parents rather than protecting children.

The report says that poor care sometimes amounted to neglect.

There were cases of children missing school and medical appointments, living in poor conditions, receiving an inadequate diet or not receiving the assistance available for health problems.

As an example of a successful intervention, a child was helped with a hearing aid and spectacles that they needed.

Parents did not always recognise the help that children needed, the report suggests.

Ofsted says local authorities and safeguarding-children boards needed to work together to make sure that children with disabilities receive the help they needed.

Its deputy chief inspector, John Goldup, said: “Inspectors saw some fantastic examples of good early multi-agency support for children and their families.

“But in some cases the focus on support for parents and their children seemed to obscure the child’s need for protection.

‘Tough decisions’

“The report highlights the need for greater awareness among all agencies of the potential child-protection needs of disabled children, for better and more co-ordinated assessments, and for more effective monitoring by local safeguarding-children’s boards.

“We cannot accept a lower standard of care and protection for disabled children than we expect for all our children.”

David Simmonds, chairman of the Local Government Association’s Children and Young People Board, said: “Of course, no child should remain in an unsafe environment.

“However, in cases where the situation is not clear-cut, social workers face incredibly tough decisions.

“Clearly there is more work to be done to make sure there is common understanding and effective communication between local partners so that all children are kept safe from harm.”

Four Paralympic Flames To Be Created Today

August 22, 2012

Four separate teams are scaling the highest peaks of England, Wales, Scotland and Northern Ireland to create the Paralympic flames.

Once at the summits of Scafell Pike, Snowdon, Ben Nevis and Slieve Donard, they will strike flint against steel to spark fire.

The flames will then be carried down in lanterns ahead of celebrations in London, Edinburgh, Cardiff and Belfast.

The Paralympic Games opening ceremony takes place on Wednesday 29 August.

The teams are made up of scouts, mountain guides and people with disabilities, and are expected to take about four hours to reach the peaks.

Lord Coe, who has joined scouts as they climb Snowdon, told the BBC: “We wanted to focus on human endeavour and team work and that’s why, from Stoke Mandeville – the spiritual home of the Paralympic Games – into the Paralympic Stadium, we are going to have a 24-hour relay.

“We wanted to make it different and lighting it on the four tallest peaks in the four home countries was a great way of starting it off.”

Mountaineer Kevin Shields, who has epilepsy and is missing part of his left hand, is in the Scottish group.

Continue reading the main story

FLAME FESTIVALS

  • London, 24 August – Trafalgar Square
  • Belfast, 25 August – City Hall and Stormont
  • Edinburgh, 26 August – The Mound and Meadowbank Sports Centre
  • Cardiff, 27 August – City Hall and Roald Dahl Place

He was the first disabled climber to enter the Ice World Cup and has scaled some of the UK’s most challenging mountains.

He said: “It is such an honour to be included in the Paralympic Flame creation. Ben Nevis is such a unique place of beauty and the perfect setting for this once-in-a-lifetime moment”.

The teams will use a ferrocerium rod and strike it against a rough steel surface to produce the sparks that will create the flame.

In London, a ceremonial cauldron will be lit in Trafalgar Square, and Belfast’s festival will have a lantern procession outside City Hall and a cauldron-lighting outside Stormont.

Scotland’s flame will light a ceremonial cauldron on the Mound in Edinburgh and a lantern procession at Meadowbank Sports Centre, while Cardiff’s ceremony will include a cauldron-lighting outside City Hall and a lantern procession in Roald Dahl Place.

The flames will then unite in the home of the Paralympic movement, Stoke Mandeville, ahead of a 24-hour torch relay which starts at 20:00 BST on 28 August and travels overnight to London.

It will see the Paralympic flame carried 92 miles by 580 torchbearers, working in teams of five, from Stoke Mandeville Stadium through Buckinghamshire, Hertfordshire and all six of London’s host boroughs to the Olympic Stadium in Stratford.

There it will be used to light the cauldron at the opening ceremony of the Games on the evening of 29 August.

Meanwhile, Heathrow Airport is gearing up for its busiest day as athletes begin arriving ahead of the Paralympics.

And the first of the Paralympic Games lanes has come into force on the M4, taking traffic from Heathrow into central London.

It will operate each day as needed from 0500 to 1000 BST, with “ordinary” traffic able to use it outside these times.

The M4 lane is part of the 8.7-mile Paralympic Route Network (PRN).

The rest of the restricted lanes will come into force next Wednesday, when the Games begin.

British Airways said in the run-up to the Games it would be flying in teams from 25 countries, including ParalympicsGB.

Along with the athletes, the airline is also transporting equipment such as 300 wheelchairs, firearms, weapon bags, physiotherapist cases, bike boxes, tandem bikes, bow and arrows, hand cycles and boccia kits.

Andy Lord, BA operations director, said it had been a “mammoth operation”.

“It is a privilege to fly thousands of athletes, their coaching teams and their sporting equipment into London for the Paralympic Games and follows on from the great service we delivered for the Olympic Games,” he said.

Man In Right To Life Battle Smelt Perfume, Family Tells Court

August 22, 2012

The family of a man in a vegetative state have told a court they believe he can understand them and even sniffed perfume on a scarf brought from Mecca.

In a High Court statement, they said Patient L was “able to understand us, hear us and we believe that he reacts”.

They are in dispute with Pennine Acute Hospitals Trust, which does not want to revive the 55-year-old if he worsens.

The family says the man would want every step taken to preserve his life because of his deep Muslim faith.

Mrs L described through an interpreter how she had visited her husband on the day of Eid, following the conclusion of the Muslim season of Ramadan at the weekend.

‘Wanting to believe’

She said: “I took a scarf and there was perfume he (Mr L) himself had brought from Mecca, so I put it on that scarf.

“Then we put the scarf in his hands and we felt like somebody is having a sniff, and he took a sniff of it.

“It is true sometimes he does not realise what is happening but sometimes he does.”

But an intensive care expert told London’s High Court the family’s claim Mr L could relate to them was a case of “wanting to believe” he was responding.

Patient L suffered severe brain damage in July following a third cardiac arrest and his medical team have stated he is now in a persistent vegetative state.

However, his relatives say it is too early to determine whether he is in such a state.

‘No meaningful recovery’

His family’s lawyers have stated that, if he could choose, he would never agree to a Do Not Resuscitate order because of his religious beliefs.

At the hearing at the Court of Protection, a statement from the family said they felt “strongly that L is able to understand us, hear us and we believe that he reacts”.

Intensive care expert Dr Michael Bell, who has examined Patient L under instruction from both the trust and his family, said he did not see him achieving any “meaningful neurological recovery”.

He said he had studied three videos in which Patient L’s family claimed they had seen evidence of him responding to them, but “could not see any evidence of that”, an opinion which he said was backed up by doctors, nursing staff and physiotherapists involved in his care.

Dr Bell added he could not “clinically” explain the family’s perceptions but said they could be because “they want to believe he is capable of recognising that they are there and making some response”.

The case continues.

Katie Hopkins On Blue Badge Holders

August 22, 2012

Recently spotted on Katie Hopkins’ timeline:

Katie, why don’t you try having a mobility-related disability, even for a day? See how ‘sprightly’ you feel then.

Blind Football Team Dream Of Going Full Time After The Paralympics

August 21, 2012

Players in the Paralympic GB 5-a-side football squad have said they hope the 2012 Games will raise the profile of the sport and lead to a full-time team.

Robin Williams, from Exeter, Devon, has had to juggle his career with football.

The 24-year-old, who is doing a PhD in Maths and Statistics, said: “If we do well in London then I can see the sport picking up and then potentially having the opportunity to go full-time.”

Played by visually impaired athletes using a ball with a noise-making device inside, Mr Williams said there were only two teams out of eight taking part in the Paralympic 5-a-side competition who were not full-time.

“We get a minimal amount of funding, just enough to pay the bus fare, aside from that there is nothing,” he said.

“At the Paralympics there’s only us and Turkey who aren’t full-time… If we can do well at London then we might get more.”

Mr Williams lost his sight after suffering Retinoblastoma – cancer of the retina – when he was two.

His sporting career started with swimming, in which he got to an international level, but at 15 he gave up and later tried football after he saw England receive “a complete hammering” in the 2006 World Cup for the Blind.

Mr Williams said: “I went into the England squad in 2009 but missed out on selection for the European Championships and that bugged me quite a lot and I made it my goal to make the World Cup squad in 2010, which I did, although I spent most of it sat on the bench.”

In January the 24-year-old decided to focus on football so he opted to go part-time with his PhD.

How Paralympic 5-a-side football works

  • The football contains ball bearings so it is audible
  • The goalkeeper is sighted and able-bodied
  • The four other players wear eyeshades to take account of differing degrees of eyesight
  • A guide behind the goal directs players to shoot
  • The pitch is surrounded by a rebound wall and there are no throw-ins
  • Players call out “yeah” and their names to make teammates aware of their presence
  • Rules stipulate the players must call out “voy!” – meaning “I’m here” – as they approach to tackle

“I went part-time to take a bit of the pressure off,” he said.

“I had to take a 50% wage cut and a PhD doesn’t pay much anyway – it’s just enough for rent and food.”

Dan James has also had to take a wage cut from Devon and Cornwall Police, where he is a Police Community Support Officer (PCSO), in order to compete internationally.

The 25-year-old, who used to be on the books of Exeter City, is the team’s goalkeeper – a position that is held by a sighted and able-bodied player.

Mr James played through the ranks of the Devon club from the age of 11, but was dropped at 18 when the team was relegated.

He said the sport had given him a new take on the game.

Mr James is hopeful the Games will attract support and possibly funding for the Paralympic team.

He said: “On our day we could beat anyone… I’d say we’re the best amateur team in the world.”

The Football Association has set the team, who have their first match on 31 August, the target of getting a medal at the Games, but the team have their own target which is to get gold.

Mr Williams said: “We need to try using the Olympic Games as motivation.

“There were plenty of people who won medals there who, on paper, wouldn’t have done so, so we’ve got to make sure we go there and do that and Brazil are the team to beat.”

Campaigner Liz Carr To Star In Silent Witness

August 21, 2012

Sincere thanks to the BBC for this piece of progress. And best wishes to Liz, who is amazing.

Silent Witness star Tom Ward, who has played Forensic Pathologist Dr Harry Cunningham since 2002, will bow out of BBC One’s long running drama after his final episode airs later this month.

The two-part episode, And Then I Fell in Love, sees Harry move in with close friend and colleague Dr Nikki Alexander (Emilia Fox) when a gas explosion in his flat leaves him temporarily homeless.

Filming on the next series is underway for transmission in early 2013, and will see the arrival of David Caves in his first TV role as forensic scientist Jack Hodgson. David has a theatre background, having recently played Petruchio in the Royal Shakespeare Company’s The Taming of the Shrew, as well as a number of productions by international theatre company Cheek By Jowl.

Straight-talking and disarmingly quick-witted, Jack is one of the youngest forensic scientists in the country. What he lacks in experience, he more than makes up for in talent and dedication.

David says: “I was absolutely surprised and delighted to be part of a show that has been running as long as Silent Witness. It is a big change for me having just done theatre up to this point, but it’s very exciting to play a brand new part and the freedom that gives you. I’m having a lot of fun”.

Joining David in the new series is Liz Carr, regular presenter on the BBC’s Ouch! Podcast, as Forensic Lab Scientist Clarissa Mullery.

Jack and Clarissa have enjoyed a successful working relationship and she has played a critical role in his career progression. He has persuaded her to join him at the Lyell Centre: she is the only person who can truly penetrate his male bravado and make him listen, keeping him grounded and eliminating some of his wilder theories.

Liz says: “I’m loving playing a character who’s witty, smart and sarcastic. It does make me giggle that I’m a forensics expert. At school I couldn’t study chemistry and physics because the labs weren’t wheelchair accessible… ahh the irony!”

Kate Harwood, BBC Controller, Series and Serials Drama, says: “Silent Witness owes a great debt to the talented Tom Ward, who has given us our beloved Harry with wit, style and passion to Silent Witness for ten seasons. We will miss him so much and wish him all the best for his future…but of course every change is an opportunity and we’re thrilled to welcome David Caves and Liz Carr into the team.

“As a forensic scientist Jack is a change of direction for Silent Witness. He will take us into stories in different and exciting ways. He will be a fantastic, physical and lively presence on the team and we are so enjoying the change of pace and energy.

“Liz, his clever, subtle, slightly sly assistant, will also be taking the show into a new and more modern era. We welcome them both aboard.”

 

Disabled A Level Art Student Paints With Mouth And Achieves A*

August 21, 2012

As regular readers will know, Art’s not my cup of tea. Inclusion, however, certainly is and this story is yet more proof of what disabled people can achieve in mainstream education, given a chance and appropriate support.

Congratulations Heather!

A student who feared having to drop art because of a painful joint condition has learned to paint with her mouth instead.

Heather Purdham, 17, a student at Westcliff High School for Girls in Essex, has hypermobility syndrome.

The condition means her joints are loose and makes holding a pen or brush both difficult and painful.

Having taught herself to paint with her mouth, she has been awarded an A* in her A-level art exam.

Heather was diagnosed with hypermobility syndrome last December but knew something was wrong at the start of her AS levels, when the volume of writing she had to do increased significantly after GCSEs.

The condition affects all of her joints, but her ankles and hands the most.

“I was sitting in my art lesson and I was crying, it was really embarrassing,” said Heather.

“My art teacher took me to one side and said ‘if you want, you don’t have to do this subject, but you’re talented and I’m sure you can find a way around it’.”

At first, Heather, who lives in Westcliff, tried holding a brush between her toes.

Inspired by the artist Alison Lapper, who was born without arms, Heather then tried painting holding a brush in her mouth.

Heather said: “As soon as I realised I could do it with the dabs, I thought it looked really good and I don’t have to drop art and I was overjoyed.

“Just because you have a disability doesn’t mean you have to stop doing something.

‘Tremendous inspiration’

“I think there are always ways you can adapt, even if it is not the conventional way to do things.”

Heather’s father Graham said her paintings reminded him of the work of Rolf Harris.

Peter Vinten, art teacher at Westcliff High School for Girls, said the painting Heather did for her A-level had filled her fellow students “with awe”.

He described Heather as “a tremendous inspiration” and praised the “control of colour and shape” in her work.

As well as art, Heather studied psychology, geography and religious education. She did her written papers using a computer and got four A grades, two of them starred.

Heather is to study psychology at the University of York and hopes to specialise in paediatric psychology. She plans to continue with her art.

This is part of the Inclusion Rules! Debate.

Michael J Fox To Make Full Time TV Return In Sitcom About Parkinsons

August 21, 2012

Twelve years after giving up full-time acting to focus on fighting Parkinson’s disease, Michael J Fox will star in a new TV comedy based on his illness.

The Back to the Future star will play a father of three dealing with the degenerative nervous system disorder.

NBC television called Fox “utterly relatable, optimistic, and in a class by himself”.

In recent years, Fox gradually returned to TV with recurring roles in the likes of Boston Legal and The Good Wife.

However, the new 22-episode sitcom marks his first long-term commitment to a show since he left political comedy Spin City in 2000.

“I have no doubt that the character he will create – and the vivid family characters surrounding him – will be both instantly recognizable and hilarious,” said NBC Entertainment Chairman Robert Greenblatt.

Fox made his name in the 1980s TV comedy Family Ties, winning three Emmy Awards for his role as Nixon-loving, Reagan-worshipping teenager Alex P Keaton.

His movie career took off when he played teen adventurer Marty McFly in the Back to the Future franchise and starred in horror spoof Teen Wolf.

In the 1990s the 51-year-old actor’s role in TV political comedy Spin City won him an Emmy, three Golden Globes, and two Screen Actors Guild Awards.

Having been diagnosed with Parkinson’s disease in 1991, Fox took the decision to semi-retire from acting in 2000 as his symptoms worsened.

He founded the Michael J Fox Foundation dedicated to finding a cure for the disease, promoting the development of improved therapies and raising public awareness.

The Canadian actor continued to guest star in shows including Scrubs and Curb Your Enthusiasm, as well as doing voice-over work for the Stuart Little movies.

Filming for the new sitcom, loosely based on Fox’s own personal life, will start this year with the rest of the cast still to be announced.

The actor said he was “extremely pleased” to be working on the show.

In May he told ABC News in the US that a new drug regimen had helped him control the tics that are a result of the disease and could allow him to take on more acting roles.

“To bring Michael J. Fox back to NBC is a supreme honour,” said Greenblatt. “We are thrilled that one of the great comedic television stars is coming home again.”

The as-yet-untitled series will be broadcast from autumn 2013.

Wheelchair User Pushing Himself Across Africa

August 21, 2012

Wow. I wish him luck.

Zackary Kimotho from Kenya has been a wheelchair user since he was shot in a car-jacking eight years ago.

While he is one of thousands of Kenyans with spinal injuries, there is currently no specialist care available in the country.

Now Zack is attempting to raise nearly £2m to build a Spinal Injury Rehabilitation Unit in Nairobi – the first in East Africa.

To do this he is pushing himself across Africa – from the Kenyan capital Nairobi to South Africa, where the nearest Spinal Unit is.

Matthew Pinsent met him as he approached the Kenya-Tanzania border. He had covered over 100 miles but still had more than 2,000 remaining.

Behind The Paralympics: Online Disability Campaigning

August 21, 2012

While there are fears that traditional methods of disability activism are on the wane, a new campaigning spirit is been forged using the social media revolution.

The past 18 months have seen the first flowerings of a new network of activist groups and a shared, inclusive approach that has thrust their engaging campaigning style into the public eye.

Galvanised by the government’s draconian welfare reform agenda, the new activism arguably is helping to renew a disability movement thought by some to have lost its way in recent years.

The staggering Twitter-driven success of the “We Are Spartacus” campaign in January announced the emergence of this new wave. This carefully planned viral campaign steered by a tiny band of activists almost single-handedly put the previously arcane issue of cuts in disability living allowance on the public agenda.

Winning support from celebrities such as Stephen Fry and Alastair Campbell, the campaign took both the mainstream media and government ministers by surprise, and brought disability benefit cuts to the attention of hundreds of thousands of people. Two days after it launched, the coalition lost three votes in an evening on welfare reform in the House of Lords.

By the end of the week the media – which had almost uniformly ignored the Hardest Hit march on London – the biggest ever march by disabled people, three months previously – had begun to sit up and take interest. By the end of the week, one of the leading lights of the Spartacus campaign, Sue Marsh, was live in the BBC Newsnight studio debating welfare reform with employment minister Chris Grayling. A new activism had begun.

This was not a traditional campaign – one that had started with a letter to the Guardian or a meeting a in dusty civic hall and grown through charity lobbying. It grew rapidly and lived through social media networks bringing together and giving a voice to tens of thousands of people who were excluded from mainstream media and politics.

Marsh says the approach is different from the old-style “chain ourselves to the railings” approach. It was partly a recognition that traditional activist techniques no longer guaranteed traction with politicians and the media, and partly pragmatic – the knowledge that illness or disability meant many activists were confined to their home for all or some of their life, but were able to engage productively through social media (Marsh calls it “bed-tivism”).

Twitter has given talented “accidental activists” like carer Nicky Clark the chance to change attitudes, most dramatically when she persuaded the actor Ricky Gervais to stop using the word “mong” (which she argued was an abusive term for people with Down’s syndrome). Activist Kaliya Franklin’s “ambush” of Labour leader Ed Miliband over the use of “scrounger” rhetoric (and the subsequent viral distribution of the encounter) had similar effects.

To some the Spartacus movement’s pragmatic approach may seem to lack the radical boldness or grandeur of the great campaigns of the 1970s and 1980s. But as disability consultant and campaigner Jane Young points out, these are different, more defensive times, requiring different methods.

She notes that one of the most recent Spartacus campaigns has been over contentious proposals by Worcestershire county council to cap social care expenditure, potentially forcing many disabled people currently living in their own homes to move into institutional care.

It links current campaigners back with their predecessors in the 1960s and 1970s who fought so hard to win independent living for disabled people.

Behind The Paralympics: History Of The Disability Movement

August 21, 2012

The Paralympics will be a celebration not only of sporting prowess, but also of the huge advances made in the emancipation of disabled people in Britain. Although there remains far to go – and there are major concerns that the coalition’s welfare cuts will set back those advances – that fundamental change is surely irreversible: as a leading expert puts it, the genie is out of the bottle. We are becoming accustomed to seeing disabled people in the community, in the workplace and in the media. Forty years ago, many would have been in residential care.

Much of this has come about through the efforts and organisation of disabled people themselves. Led initially by a handful of activists, a nascent disability rights movement seized the initiative in the 1970s and began campaigning for legislative and welfare reforms that now underpin striking societal change.

But in 2012, just as the opportunity comes to make a show of Britain’s progress before a global audience, the disability movement finds itself at a crossroads – and, some say, becalmed. The leaders who emerged in the 70s and 80s have gone, or are departing, and the agenda, perhaps understandably, seems dominated by a struggle to preserve gains won.

“In some ways we are much closer to the 70s than to where we were in the 90s,” said Ian Macrae, the editor of Disability Now magazine. “As a community we are having to fight a very particular battle [over] what the government is doing … which is preventing us from making the wider case about why we need more in the way of independent living.

“We have got so completely trapped in the tunnel of argument over welfare reform that disabled people are increasingly happy to present themselves as victims. The leaders of the movement of the 80s and 90s fought [against] that tooth and nail.”

Some of the most influential of those leaders had shaped their views through visits to the first centres for independent living in the US, where disabled students were provided with personal assistants to enable them to live in the community while at university. Their lifestyle made a profound impression on the visitors, several of whom were living in residential homes where the regimes had scarcely progressed since before the second world war.

A letter published in the Guardian in September 1972, proposing a consumer group to represent disabled people living in institutions, is often seen as the start of the UK independent living movement, leading as it did to the creation of the Union of Physically Impaired Against Segregation (Upias) (pdf). The early 1970s were heady days on the political left and the group’s founders drew parallels with the struggles for equality of women, black and gay people: Vic Finkelstein, one of its prime movers, was a psychologist with a spinal cord injury who came to the UK from South Africa as a refugee after being banned by the apartheid regime for civil rights activism.

A second key organisation was the Disability Alliance, founded in 1974 with the goal of a comprehensive income scheme for disabled people and chaired by Peter Townsend, a leading poverty expert. A paper, titled Fundamental Principles of Disability, summarising discussions in 1975 between the alliance and Upias, is regarded as the first statement of the “social model” of disability.

The social model, as distinct from a medical model, treats physical or mental impairment separately from disability in the way in which disabled people are excluded from full participation in society. Finkelstein – who helped develop the idea of the social model with its prime architect, the disability academic Michael Oliver – used to describe a hypothetical village in which all the residents used wheelchairs and everything was tailored to their needs. When able-bodied visitors arrived, it was they who experienced problems and felt excluded.

The social model became the dominant philosophy of the emerging UK disability movement after its adoption by the British Council of Organisations of Disabled People (BCODP), founded in 1981. As disability researcher and commentator Tom Shakespeare has argued, the model’s importance was that it gave the movement a strategy – barrier removal – and it replaced in the minds of disabled people the idea that they were in some way deficient with the notion that they were in fact oppressed.

The effect was liberating. “They didn’t have to be sorry for themselves: rather, they could be angry,” he wrote in his book Disability Rights and Wrongs. “Rather than a demeaning reliance on charity, disabled activists could now demand their rights.” Such demands were given practical form initially by centres for independent living. The first were founded in Hampshire and Derbyshire in 1984, although some universities – notably Oxford, Essex, Southampton and Cardiff – had already been developing US-style schemes whereby disabled students shared accommodation with others without disabilities who provided support and assistance.

Funding for those starting to live independently came from enlightened local councils, acting at the time with dubious legal authority, and a social security benefit called the domestic care allowance. When the government set out to withdraw the allowance in 1986, triggering outrage, the resulting campaign was the first indication of the gathering strength of the disability movement. Within a year, ministers had announced the independent living fund, a state-funded quango to award discretionary grants worth hundreds of pounds a week to disabled people to live in the community. The bigger prize, however, was a legitimised and universal system of direct payments by councils. The BCODP began to campaign for this in 1989. The statute took effect in the last days of the Major administration in 1997.

That a Tory government passed the measures was highly significant: the idea resonated well with Conservative principles of individualism and self-determination. Under Labour, in a subtle switch of tactics, the disability movement deployed a human rights argument to sustain the case for disabled people having greater choice and control over their lives. Indeed, “choice and control” have been watchwords espoused by politicians of all hues since the mid-90s.

The focus shifted under Labour to equality of opportunity and equality before the law, following the landmark legislation passed towards the end of the Tory government in the Disability Discrimination Act (DDA) 1995 – which for the first time required employers and providers of services to help disabled people by making “reasonable adjustments” that would remove barriers to their access and participation.

For an employer, this might mean varying a job specification to take account of a person’s disability or providing adapted equipment, such as desk or chair. For a retailer, it means making “reasonable” arrangements for disabled shoppers to be served: not just providing step-free access where possible, but ensuring someone is available, for instance, to assist a blind person who requests help.

The DDA was amended and strengthened in 2005, imposing a duty on public bodies to promote equality. It was superseded, except in Northern Ireland, by the Equality Act 2010, which consolidated all anti-discrimination legislation in a statutory mirror of the Equality and Human Rights Commission (EHRC). Since 2007 the commission has combined the advisory and watchdog functions of formerly separate equalities bodies including the Disability Rights Commission.

Many lament the passing of the DRC, which Labour had set up in 2000. Bob Niven, who was its chief executive, said: “Having a joined-up commission has not been as good as disabled people would have hoped; most people would say it has not lived up to expectations. Of course there are similarities [across all groups at risk of discrimination] but I think the experience of being totally blind is not comparable with any other experience; having serious mental health difficulties is different from anything else.”

Niven is nonetheless convinced that the position of disabled people in Britain is markedly improved. “It’s very different than 10 or 15 years ago in terms of access to buildings, trains and public spaces, employment opportunities and application of technology. And it’s much, much better in terms of public attitudes.” Richard Howitt, Labour MEP for the east of England and vice-chair of the disability group in the European parliament, says the UK lags behind some other countries in meeting special educational needs, and that too many disabled people still live segregated lives. But he considers it to be out in front on non-discrimination. “If you had to go to court and say you had been treated less than fairly, Britain would probably be the place to do it,” he said. For Frances Hasler, a leading figure in the social care sector who has worked closely with the disability movement, the acid test is public transport. “Every time I see a wheelchair user waiting at a bus stop in London, that gives me pleasure,” she said. “You can’t turn that kind of thing back. You can’t stick the genie back in the bottle. There is a lot of doom and gloom at the moment, but overall there has been a massive move forward. Although deinstitutionalisation is not yet complete, it’s pretty mainstream. The idea that young disabled people don’t belong back in institutions is certainly well embedded.”

All agree that there remains much to do. Disabled people continue to suffer persistent disadvantage in almost all aspects of life: one in three live in poverty; one in two of working age are unemployed; and older teenagers are twice as likely as their non-disabled counterparts not to be in education, employment or training. Hate crime has become a serious issue, with recorded incidents growing by 60% between 2009 and 2011.

Yet just as the disability movement needs fresh impetus, there is a seeming crisis of leadership and direction. Many of the movement’s leaders have gone or are, by their own admission, burnt out. Where will the new generation come from?

Some argue that, as talented young disabled people can now enjoy rewarding careers, they have little time for campaigning: research by the charity Radar in 2009, though far from exhaustive, traced 110 disabled “high flyers” earning £80,000-plus salaries.

Another suggestion is that a sense of complacency may have set in after the remarkable gains of the 1990s. Macrae said: “After the DDA, a lot of people, including some of the activists, said: ‘That’s it, we have got what we want now.’ They stopped protesting, stopped saying, ‘This is not enough.’ A lot of the spirit and a lot of the anger went out of the movement.”

Anger is certainly evident now, in reaction to the coalition’s disability benefit changes, and much of it is being expressed by new grassroots networks of disabled people linked by social media. But there is a frustration among veterans of past struggles that they have been drawn into an agenda not of their choosing and are having to fight a rearguard action to try to preserve entitlements. Some are seeking to regain the initiative.

In a recent paper for the Joseph Rowntree Foundation, Jenny Morris, who was a disability policy adviser to the Labour government, has argued that disabled people need to instigate and lead a wider debate about the nature and purpose of the welfare state, applying to it the concept of reasonable adjustments that lies at the heart of the DDA, and thereby challenging the creeping prejudice that benefit payments are merely a drain on the economy.

Liz Sayce, chief executive of the charity Disability Rights UK, which now incorporates Radar and the Disability Alliance, believes there are significant issues – potential “quick wins” – that could be taken up even at a time of austerity. These include campaigning for the government’s forthcoming disability strategy to have real teeth, and exposing the failure of Whitehall departments to work together on disability issues; ensuring ministers fulfil their promise to overturn the ban on jury service for people with a mental disorder and to scrap the legal provisions that can have them stripped of company directorships, and pressing for tougher action against negative portrayals of disabled people in the media.

Sayce is more sanguine than others about the emergence of new, young leaders of the disability movement. Some 450 people have been through leadership programmes initiated by Radar and the charity established a network of high flyers, Radiate, with the support of Lloyds bank. Her Radar predecessor Kate Nash has gone on to help establish networks of disabled employees in more than 220 companies and public bodies including Lloyds, BT and the houses of parliament.

“Many of these people won’t become leaders in the classic, activist sense,” said Sayce. “But we shouldn’t forget those who are leading opinion in different ways, across all sorts of sectors. Twenty or 30 years ago, there simply wouldn’t have been disabled people in these positions.”

The disability movement faces a further, more fundamental question about its future direction, however. Shakespeare has come to the conclusion that for all the strengths of the social model of disability as a campaign umbrella, by adopting it uncritically in the 1980s and adhering rigidly to an unchanging interpretation of it since, the movement has taken a wrong turn. The importance of people’s individual and shared impairments has been played down; the potential of medical intervention and advance has been dismissed; and the disability community has turned inward and failed to make alliances with other groups in society, he said.

Shakespeare threw down his challenge in his book in 2006, calling for a reappraisal of strategy to galvanise disabled people once again. “Since 2000, the disability movement in Britain appears to have stagnated,” he wrote. “Despite important and progressive changes in wider society, the politics of disability seem to have run out of steam.” Six years on, his challenge remains.

A Review Of I’m Spazticus Episode 2

August 21, 2012

Yesterday afternoon, I had a very interesting conversation with a good friend. She had seen Sunday night’s episode of I’m Spazticus, which I had missed. She told me that it was very disablist.

I was unpleasantly surprised. When I first heard the format of I’m Spazticus, I had high hopes for the programme. Disabled people pranking non-disabled people? That’ll be a laugh, I thought. That’ll turn stereotypes upside down.

I even overlooked the title. That was until my friend pointed out quite rightly that no one would make a programme about black people pranking white people with a title containing the ‘N’ word. So, I realised, why does the title make reference to that old insult that physically disabled people have worked so hard to get rid of? But then, Channel 4 have quite a history of getting disability-related titles wrong, don’t they?

If it’s being shown as a lead up to the Paralympics, though, why couldn’t they have called it I’m Paralympus? That would have been much more positive and inclusive of all disabilities.

Then I watched tonight’s episode. I was expecting it to make me smile, at least. Instead, I spent the whole thing shaking my head, feeling like screaming.

I watched in wonder as a talking guide dog was asked for directions by a man who treated him more like a person than he did his owner. As any guide dog owner will tell you, many of them, unfortunately, experience this often in real life. Few of them find it funny.

In the very next scene, I held back screams as we were introduced to a (thankfully) fictional charity called the Guide Dwarves Association. I watched as a real person who really has dwarfism was led around on a lead as a blind person carried a charity box, complete with encouraging comments like ‘good dwarf’ in the tone all dog owners use to their pets. So, a dog was being treated like a person, while a disabled person was treated like a dog. Again, all that will do to stereotypes is reinforce them. To me, it’s about as funny as spoiled milk.

Then there was the lineup of dwarves in the police station where one of the captions was ‘Sleepy? Only with women who say no.’ This made the feminist in me scream as well!

The movie trailer sketch at the end was simply pointless. It informed us that if you take the ‘d’ and the ‘f’ out of dwarf, you get war. Then dwarves were shown shooting each other. The title of the movie? Born on the Dwarf of July.

If, as I heard, the Restricted Growth Association were offended by the comedy series Life’s Too Short, I imagine this programme will lead to many more complaints than that ever did.

If this is Channel 4’s lead up to the Paralympics, I hate to think what their coverage will be like. But then, as I told my friend, nothing surprises me with Channel 4. I’ve never really liked the way they cover disability, but recently, I thought they were making some progress in this area. Sadly, though, just a week before covering the biggest event in disability sport, they are back to their old ways.

And readers, before you tell me to grow a sense of humour, let me just tell you that the friend I had this conversation with is non disabled.

Cross posted at the Independent blogs.

Paralympic Flag Raised Over 10 Downing Street

August 20, 2012

David Cameron predicted that the dedication and persistence of Britain’s Paralympians was about to pay off as the official flag of the 2012 Games was raised in Downing Street.

The Prime Minister wished UK competitors luck and vowed to cheer them on at the biggest Paralympics yet, which opens on August 29.

Officially called the Agitos, the Paralympic symbol replaces the Olympic rings that have been flying over Number 10.

Mr Cameron said: “I would like to congratulate all of Britain’s athletes selected for ParalympicsGB.

“This is a huge achievement and the result of years of training and hard work, but all that dedication and persistence is about to pay off.

“The Paralympic Games began in Britain and our continued commitment to them is clear as we approach the start of the biggest Paralympic Games yet – with more countries, more athletes and more spectators than ever before.

“2012 is set to be a fantastic celebration of world-class sport and it is also an incredible opportunity for ParalympicsGB to inspire many others to be the best they can be.

“I would like to wish everyone on ParalympicsGB the best of luck for the Games, I will be cheering them on all the way and I know the whole country will be too.”

Muslim Man’s Family In Court Of Protection Battle For His Right To Life

August 20, 2012

I hope this case is successful. The family are basing the case on the man’s religion. I am also a Muslim and I do not support assisted suicide, or failure to make every effort to resuscitate. My views have nothing to do with religion. The biggest and most important part of my identity is my disability, so I believe that disabled people, whatever religion they follow, have every right to live with support for as long as is naturally possible.

The family of a Muslim man in a vegetative state are challenging in court a hospital trust which does not want to revive him if he deteriorates.

Doctors at the Pennine Acute Hospitals NHS Trust say resuscitation would not be in the best interests of Patient L, who cannot be named for legal reasons.

But relatives of the 55-year-old from Greater Manchester argue that to let him die would be against his religion.

The case is being heard at the Court of Protection, High Court, London.

The family of the patient believe if he could express his wishes he would never agree, because of his faith, to an order that he should not be resuscitated or ventilated if there was “a life-threatening event”, the court heard.

‘Life is sacred’

Claire Watson, appearing for the trust which is responsible for Patient L’s care, said it was the unanimous view of clinicians and independent experts that he was in a persistent vegetative state.

The patient has “minimal prospects of improving any neurological function and no meaningful prospect of further recovery”, the court was told.

“Rather than there being the prolongation of life, there would be the prolongation of death and lack of dignity,” Ms Watson added.

Judge Mr Justice Moylan was told it was the family’s view that “life is sacred and it would be contrary to the tenets of their religion not to provide life-supporting treatment”.

The case continues.

Tony Nicklinson Ruling Was The Right One

August 20, 2012

This is a guest post by Matthew Smith. It was originally posted here today. Thanks to Matthew.

Last week the British High Court ruled that the courts could not allow doctors to end the life of a man who is severely paralysed following a stroke in 2005 at his request; their reasoning was that to accept the request from Tony Nicklinsnon would be to make a major change to the law, something only Parliament could do. Nicklinson said he planned to appeal, although he has precious little chance of succeeding as murder has always been illegal both here and in Europe. The BBC reported on the case here and featured an article by Nicklinson himself here.

There are two myths which have been repeated again and again about this case. One is that Nicklinson has locked-in syndrome. He does not. A brief watch of some of the videos of him showed that he has much more movement although little of it is purposeful. He also has a voice, although he does not have enough muscle control to speak and uses an eye-gaze system to communicate but it does enable him to express emotions to some extent. Genuine locked-in syndrome means having no movement except in the eyes: there is no facial expression, for example. It may have been his condition shortly after his stroke, but it is not now.

Another untruth is that he is incapable of taking his own life himself. As a disabled person whose tweets I have been reading pointed out, anyone capable of operating a power-chair, which Tony Nicklinson is, has access to a number of methods of achieving that aim without getting anyone else’s hands dirty. Probably the same method he could use to operate a power-chair could be used to operate a communication device more effectively than using eye-gaze — I have seen videos of a woman using the same chin joystick to both move her power-chair and operate a computer mouse, and by the look of things it could do other things as well.

The problem is that Nicklinson, asked by the same disabled person why he did not get himself a power-chair, replied that he did not need one as he never went out. He seems to spend his entire life in the same room, watching TV and surfing the Internet and pretty much waiting to die. Various disabled people have tried to persuade him to avail himself of various aids so that he can make something of his life because they suspect he is depressed and agoraphobic, but he insists that he is not, and thus gets no help with them. Clair Lewis, AKA Miss Dennis Queen, who is also disabled, has an even harsher judgement on him:

Know what it isn’t easy for some of us crips. To sympathise, I mean – Tony’s attitude is quite offensive.

I am tired of the pitiful debates. I am exasperated with this dishonest man who admits denying himself a better life but blames it on his body. I agree Tony needs to see his doctor – not for a lethal injection, for some anti depression support and a kick up the proverbial about how life can get much better if he puts down his fear and self loathing and lets it.

Come on Tony! Give life a go – almost all of the rest of us manage without suicide. Try living before you throw your life away dude!

I was listening to the discussion about this case on the BBC London morning show last Friday, and heard his situation compared unfavourably to Prof. Stephen Hawking’s, and described as a “life sentence”. While I accept that Nicklinson won’t be writing any long tomes on theoretical physics any time soon, his communication situation is actually much better than Hawking’s: Hawking has deteriorated significantly over the years and is able to communicate using only his cheek, producing around one word per minute. It is also a strange “life sentence” that can be served in one’s own home in the company of one’s wife and children, if one has any: Stephen Downing and the Guildford Four did not get that privilege.

In this country, assisting a suicide remains illegal. Those advocating the abolition of this law claim that it attracts sentences of up to 14 years. In practice, people who assist the suicide of someone with extreme or terminal illness when it is clear that the deceased gave their full consent and did the final act (e.g. drinking or injecting the lethal substance) themselves are almost never imprisoned, something that has been the case for more than 20 years at least. The law also makes it illegal to encourage suicide, so the ghouls who shout “jump” when police are trying to coax someone away from the edge of a bridge are committing a crime by this law as well; someone who encourages a vulnerable or mentally-ill person to kill themselves would get a much stiffer penalty than someone like Kay Gilderdale, who got a conditional discharge in 2010 for assisting the suicide in 2008 of her daughter Lynn, who was several orders of magnitude more ill and disabled than Nicklinson and had been for more than 16 years, since age 14.

I think the Gilderdale case actually demonstrates that we have got the balance about right with assisted dying for the terminally and long-term ill: there is some leniency and compassion for those who break the law in extreme circumstances, but there must always be an investigation and the disapproval remains, and must do because it protects the vulnerable both from themselves (feeling suicidal when dealing with a new or worsened state of disability or ill-health, for example) and from others (and the pressure can be subtle or even unintentional, such as constant complaints about the expense of time and money in caring for them and remarks about how wretched their condition is), and offers some protection to carers facing pressure to end someone’s life by allowing them to say they will not break the law and risk going to prison. It also protects vulnerable people from those who think they know what is best, as in the case of Frances Inglis who killed her son with a heroin overdose, convinced that he was in pain and would not recover (his doctors did not agree), and was jailed for his murder. Those who advocate assisted dying always say they can think of safeguards so that nobody can be railroaded into assisted dying when they do not really want it, but much the same can be said about the death penalty and the fact remains in both cases that once someone is dead, there is no bringing them back.

It may sound harsh but someone needs to tell Tony Nicklinson and others like him to sort their ideas out and find something to do with their lives, rather than idling away while waiting to die. He is not Lynn Gilderdale; he could get out if he wanted to and is fairly healthy even if severely disabled, and could do more than sit in front of the TV all day — indeed does, but for an utterly futile endeavour which is entirely unnecessary in his case. That energy could have been expended for some benefit to himself or to wider society — and the resulting sense of achievement might have given him something to live for.

Park Changing Look For The Paralympics

August 20, 2012

Just five days after the last Olympic athletes departed, the first Paralympians are arriving at the Athletes’ Village on the Olympic Park in east London.

There are 16 days between the Olympic Games closing ceremony and the opening of the Paralympic Games and workers have been busy making changes to the park.

Banners and signage are being changed, buses are being converted and new volunteers are being trained as only a third of those who helped to run the Olympics are moving on to the Paralympics.

London 2012 architects Populous integrated Paralympic thinking into their plans from the start of the London 2012 project. The Athletes’ Village and the stadia were all designed with the Olympics and Paralympics in mind.

The park was built with accessible toilets, ramps and wheelchair spaces in the main venues.

The Athletes’ Village housed 11,000 competitors during the Olympics and its lower floors will be used by 4,200 Paralympians from 165 nations, with rooms fitted out beforehand to cater for wheelchair access for wheelchair-using athletes.

“All of the venues were designed to be inclusive and accessible, which has meant a minimal transition in the two weeks between the Olympic and Paralympic Games, other than the changes to fields of play,” Chris Jopson, associate principal at London 2012 architects Populous, told the BBC.

Some changes have been made however – for example about 300 buses have been converted to allow space for five or six wheelchairs.

Venues have increased their wheelchair seating capacity. The Olympic Stadium will have 568 spaces compared to 394 during the Olympics.

Sixteen venues – including the BMX circuit, the Water Polo Arena, Horse Guards Parade, Lee Valley, Hadleigh Farm, Wembley and six football stadiums – will not be used during the Paralympics.

Others will host different sports. The Copper Box, which staged handball and some modern pentathlon events at the Olympics, will be the venue for goalball.

The seven-a-side football competition will be played on the distinctive pink and blue surface of the Riverbank Arena which hosted the Olympics hockey competition.

Populous are also building a 3,000 seat five-a-side football venue on the Olympic hockey warm-up pitch.

There are new venues too.

Brands Hatch in Kent will be used for road cycling events while a specialist tennis venue has been created inside the Olympic Park. Eton Manor has four indoor and six outdoor wheelchair tennis courts, all designed in a striking blue.

Mr Jopson said: “It’s a different Games with a different brand, and there’s a been a big programme to change the look of the Park.”

Venues and 2,000 fleet vehicles have been decorated with the Paralympic Agitos – red, green and blue swoops representing the Paralympic motto “spirit in motion” – which will also replace the giant Olympic rings on Tower Bridge and in Trafalgar Square.

So the Paralympic Games will look different, but from the success of ticket sales they might feel very much the same as the Olympics.

Previously, Paralympians have performed in front of half-empty crowds. With 2.2 million out of 2.5 million Paralympics tickets having sold so far, that will not be the case next week.

The Paralympic Games run from 29 August to 9 September.

Pakistan: Girl, 11, With Downs Syndrome Arrested For Blasphemy

August 20, 2012

This is awful. I can tell you that Muslims are not supposed to dispose of the Koran with their everyday waste bags. However, an 11-year old girl who, as in this case, is not a Muslim, is very unlikely to know this. This girl is unlikely to even have the mental capacity to know the full details of Christianity- it is unreasonable to expect her to know the details of Islam.

Can I make clear that even if she was a Muslim, my views on this would have been what they are now.

This story has made me ashamed of a country I usually love.

 Pakistani police have arrested a mentally disabled 11-year-old girl after a mob accused her of desecrating pages of the Koran.

The mob demanded the Christian girl’s arrest and threatened to burn down Christian homes outside the capital Islamabad, local media say.

Officials said the girl could not properly answer police questions.

Her parents have been taken into protective custody following threats and other Christian families have fled.

It is thought that the girl has Down’s syndrome.

Paul Bhatti, Pakistan’s minister for National Harmony, told the BBC that the girl was known to have a mental disorder and that it seemed “unlikely she purposefully desecrated the Koran”.

“From the reports I have seen, she was found carrying a waste bag which also had pages of the Koran,” he said.

“This infuriated some local people and a large crowd gathered to demand action against her. The police were initially reluctant to arrest her, but they came under a lot of pressure from a very large crowd, who were threatening to burn down Christian homes.”

He said more than 600 people have fled from the Christian neighbourhood.

Rights activists have urged Pakistan to reform its controversial blasphemy laws, under which a person can be jailed for life for desecrating the Koran.

Many of those accused of blasphemy have been killed by violent mobs, while politicians who advocate a change in legislation have also been targeted.

Last year, Shahbaz Bhatti, the minister for minority affairs, was killed after calling for the repeal of the blasphemy law.

His death came just two months after the murder of Punjab Governor Salman Taseer, who also spoke out about the issue.

Refused A Heart Transplant- Because He’s Autistic

August 20, 2012

 

I’m publicising this email from Change.org because I’m just shocked by it.

My son, Paul, will die without a heart transplant. But the Hospital of the University of Pennsylvania refuses to put him on the transplant list — because he’s autistic.

Paul is only 23, and he’s amazing. He was diagnosed with a deadly heart condition four years ago, but he battles through it with a smile. He’s smart and creative — we just self-published a story he wrote, and he’s working on a sequel. He loves his nephews. And the whole family loves him.

I don’t know how to tell my son that his doctors refuse to give him the operation that could save his life.

I promised Paul that I would fight for him with every breath, no matter what it takes. But I’m afraid my voice alone isn’t enough. I started a petition on Change.org asking the Hospital of the University of Pennsylvania to put my son on the transplant list — will you sign?

Paul’s doctor says one of the reasons he doesn’t qualify for a transplant is that he can’t name all the medications he’s on. This is ridiculous, because Paul takes 19 medications. My son has faced discrimination because of his autism all his life, but this time, that discrimination could kill him.

I was devastated when I found out the hospital wouldn’t help Paul — it was the worst moment any mother could imagine. But then I read about another mom who got her mentally disabled daughter on the list for a life-saving kidney transplant after more than 50,000 people signed her petition on Change.org. That’s what inspired me to start my petition for Paul. I know that if enough people sign my petition, the hospital will give my son a chance to survive.

Please sign my petition asking the Hospital of the University of Pennsylvania to put my son, Paul, on the list for a heart transplant that could save his life.

Thank you,

Karen Corby

London 2012: Meet The Paralympians

August 19, 2012

Today, the Guardian started a series of articles called Meet The Paralympians which might interest some of you.

Channel 4 Training Presenters With Disabilities For Paralympics

August 19, 2012

Good news.

Channel 4 has invested £600,000 in training a fresh band of TV presenters and reporters with disabilities and Paralympic sporting experience to work alongside experienced anchors such as Clare Balding and Jonathan Edwards, when live coverage of the Games begins next week.

It is also unveiling a system of screen graphics, invented by Giles Long, one of the UK’s most successful Paralympic swimmers, based on human figures to depict conditions such as dwarfism, amputations and brain damage. These will help viewers to understand, at a glance, why athletes who often appear so different compete against one other.

Called the Lexi Decoder system, it works on a traffic light principle. Diagrammatic figures showing missing limbs are coloured green, yellow, orange or red, depending on the level of disability – green for no impairment, red for severe.

Channel 4, which paid around £5m for the television rights to the London Paralympics, said research showed that many people were confused by the system of classification. It hopes that improved understanding will boost audiences for the lavish nine-day coverage, running from a breakfast show to late at night.

Giles Long, 36, from Wood Green, north London, who won 20 major medals as a butterfly swimmer, including a gold in Atlanta in 1996, invented the Lexi system and took it to Channel 4 – using a ballpoint pen and notepad to explain his idea – after it won the rights in January 2010 over the BBC.

Long said: “There is a gap in understanding. I realised in Beijing people thought the result of one swimming race was unfair because the Chinese athlete had no legs. The way to think about classifications is the weight bands in, say, boxing. You never see a flyweight and heavyweight boxing each other. Grouped together, Paralympic athletes face a common challenge.”

The graphics work, he said, because “it’s about boiling down what people sitting on the sofa need to know in an instant, at the point of the race.

“You see diagrammatic figures everywhere – tube, bus, road signs, we are using everyday language but applying it an accessible way. I know the people competing in the Games won’t find them shocking at all. If you want to compete, you have to go through an assessment. It’s integral to sport.”

The Lexi Decoder will be used only as a 20-second shot of information, and will not be attached individually to athletes. It covers just eight sports: swimming, athletics, cycling, table tennis, wheelchair rugby, basketball and volleyball. The classification numbers for races will also use the traffic light system. The coding attached to each race will also be colour coded.

Long, who owns the rights to the Lexi Decoder, will also be reporting from the poolside for Channel 4 and has been trained over the past 18 months with attachments at the BBC and Sky. Channel 4 sifted through 350 online applications to find disabled reporters or presenters to train. The finalists were taken to week-long “boot camps” at the National Film and Television School and seven novices, such as Rachel Latham, were given contracts, at around £20,000 a year, to prepare, plus fees for working on events, such as the late night Road to the London Paralympics Extra and BT World Cup Rugby.

Latham, 23, applied after she had to retire from Paralympic swimming at 20 because of an injury sustained in Beijing. She joined the C4 scheme after finishing a degree in Sheffield in 2011. Her training included shadowing Adrian Chiles at ITV.

Latham said her experience and disability – her left arm and shoulder were injured at birth – make a difference. “Athletes are comfortable with me. It is natural to talk about classification, I can explain it with ease. There can be a problem with having too much information, but that’s where the training came in,” said Latham.

Alison Walsh, C4’s disability manager, said it had achieved its target of a 50:50 split between disabled and able-bodied on-screen presenters, but said C4 had learned lessons after its coverage of World Athletics last autumn was criticised because of some inexperienced contributors.

Georgie Bingham, an experienced sports presenter who will anchor C4’s daily afternoon show, has been paired with former marine Arthur Williams, who is paralysed below the waist. Bingham said: “It makes huge sense to me. It’s a brilliant thing. He will be bringing in his wheelchair to explain how it works in the wheelchair races. It is not without a bit of risk, but Arthur is young, enormously bright.”

For BBC2’s Beijing Paralympic coverage, 56% of viewers were aged over 55, with a bias towards women. The opening ceremony peaked at 2.9 million viewers, with the closing one attracting 990,000. The average audience for the 7pm-8pm The Games Tonight programme was 1.7 million, and 20 million people watched at least five minutes. C4’s coverage is on a completely different scale: the biggest ever live event in its history.

Walsh is confident that her team of new reporters will work well.

“They have trained as hard as the athletes. If they succeed, they deserve gold medals.”

Creating The Spectacle: Part 1- Finding Freedom

August 18, 2012

This is amazing. I covered her earlier this year but I’d never seen her in action before last night’s Channel 4 News. Would you like me to keep posting these videos?

 

Cat Of The Year Helps Boy With Selective Mutism

August 18, 2012

Something sweet for those of you who share my love of cats.

A pet which changed the life of a boy with a severe anxiety disorder has been named National Cat of the Year.

Jessi-Cat was honoured for helping Lorcan Dillon, seven, cope with selective mutism, a condition which affects his ability to express himself.

Lorcan, from Davyhulme, Greater Manchester, can now say “I love you” and share his emotions when he finds it difficult to speak to people.

The cat was honoured by feline charity Cats Protection.

‘Incredible bond’

Jessi-Cat was crowned overall winner by celebrity judge, the prog rock keyboard player Rick Wakeman, after winning the Best Friends category which was one of five award categories.

“The bond between Jessi-Cat and Lorcan is incredible and it has clearly had a hugely positive impact on Lorcan’s home and school life,” said Mr Wakeman.

He added: “Jessi-Cat helps Lorcan to communicate and express emotions that ordinarily Lorcan wouldn’t be able to do.”

Lorcan and his mother Jayne Dillon, 44, were at the awards ceremony to accept Jessi-Cat’s prizes – a star-shaped trophy, a three-month supply of cat food, a year’s worth of cat litter and a framed photograph.

She said the family decided to get a cat to see if it would help Lorcan communicate better.

She said: “Lorcan is able to connect love to Jessi-Cat, something he can’t do with people, and she’s been a great support to him when things have been really hard.

“He does not express his emotions, he would not say ‘I love you Mummy’, he just doesn’t do it.

“But with the cat he can cuddle her, he can stroke her, he can talk to her and he can say ‘I love you Jessi-Cat’.”

My First Post For The Independent Blogs

August 17, 2012

The Independent blogs have very kindly published my piece on PE and inclusion. This is my first post for them and I hope it will be the first of many.

UK Judge Annuls Forced Marriage Of Disabled Woman

August 17, 2012

As an Asian woman, I think I can see what the parents were trying to do. They were looking for a carer for their daughter. This happens often and has recently had a lot of coverage.

But no person, disabled or otherwise, should be forced into marriage. And if this woman lacks the understanding to be married, then the annulment is a good thing.

I wonder if there will be more cases like this one brought to courts and public attention? I hope so.

A judge has said the arranged marriage of a UK woman of Bangladeshi origin, who is disabled and has severe learning difficulties, should be annulled.

Mrs Justice Parker ruled that the woman clearly lacked the mental capacity to consent to marriage and it should be a “nullity” in England.

The judge rejected the family’s argument that the marriage was in the woman’s best interests.

The marriage in Bangladesh allowed the woman’s husband to settle in the UK.

The woman, whose identity is not being made public, is unable to perform basic daily tasks and has learning difficulties which are described as very significant.

In 2003, the woman’s parents arranged for her to marry a cousin in Bangladesh who was subsequently given permission to come and live with her in the UK.

Police intervened when the marriage came to the attention of the local authorities.

In the latest ruling, the judge said the marriage should be annulled.

Rising numbers

The parents argued that they were trying to give their daughter security by finding her a husband, and that annulling the marriage would bring shame on their family.

The ruling comes as the authorities in the UK are taking steps to tackle a rise in the number of forced marriages involving people with learning disabilities.

More than 50 such cases were referred to the Foreign Office and Home Office’s specialist Forced Marriage Unit last year.

Last week local councils in England introduced measures to try to tackle the problem.

They issued guidelines for social workers and other staff to raise awareness and spot potential victims.

It is unlawful to give permission for a marriage on behalf of a person if they cannot consent themselves.

The Forced Marriage Unit said it was dealing with a “growing number of referrals” involving such people.

A Review Of The Best Of Men

August 17, 2012

This is a guest post by Andrew Bradford. It was originally posted here.

Last night BBC2 broadcast a one-off drama “The Best of Men”,that showed the work of Sir Ludwig Guttmann at Stoke Mandeville Hospital in the1940s. The play was written by Lucy Gannon (Soldier Soldier) and Guttmann was played by the excellent Eddie Marsan (War Horse, Happy Go Lucky). Guttmann’s patients – all soldiers – are played by Rob Brydon, disabled actors David Proud and Ben Owen-Jones, and George McKay.

 

The play showed that spinal injury rehab was a highly unfashionable branch of medicine at the time. Virtually all of the patients were injured servicemen, and those that could be cured by surgery had been cured, while those who couldn’t respond to surgery were simply sedated and – quite literally- left to rot as pressure sores took their toll. The life expectancy of a spinal injury survivor at the time was just two years. Guttmann and his team were starved of resources as the medical establishment couldn’t see the point of what they were doing.

 

But Guttmann could empathise with these men because, like them, his life had been shattered. He was a German Jewish refugee who had already lost his career, his country and most of his family. He had fought back to establish a new career in a new country, and he knew that if his patients were to lead fulfilled lives, he had to motivate these men to fight back in thesame way. Sport was just one of his weapons, sheer force of personality was another

 

Guttmann’s story is an example of how immigration has enriched the United Kingdom. Without immigration we’d have no Jessica Ennis, MoFarah or Ludwig Guttmann, and possibly no Paralympic movement.

 

There’s an exhibition about Guttmann’s work at London’s Jewish Museum until September 16th.

Samedifference1 adds:

I reviewed this last night in one Tweeted sentence:

And to add to the immigration point, the thought of no immigration suddenly scares me to bits…

 

Another #Paralympic Win: London 2012 Respond To Parents’ Pressure On Wheelchair Seats

August 17, 2012

This looks like good news.

London 2012: Thousands More Paralympic Tickets On Sale

August 16, 2012

Paralympics organisers have put 45,000 more tickets on sale in addition to the 20,000 already available for the opening and closing ceremonies.

Most are for athletics, but they are also for events including cycling, equestrian and wheelchair basketball.

Some 2.2 million Paralympics tickets have been sold so far, with 2.5 million expected to be made available in total.

Games organiser Locog said public enthusiasm for the Paralympics reflected that for the Olympics.

Locog chairman Lord Coe said: “After the nation took the Olympic Games and Team GB to their hearts in such a spectacular way, it is no surprise that they look set to do the same for ParalympicsGB and the Paralympic Games.

“We are working flat out to stage a memorable Paralympic Games and I’m delighted that the enthusiasm and support for our Games from the UK shows no sign of wavering.”

There are 25,000 tickets on sale for athletics, priced between £10 and £45, and fewer numbers for wheelchair basketball, track cycling, equestrian and rowing. They are available from the London 2012 ticket website.

Locog said further tickets would become available as seating plans for the venues were finalised.

Some 100,000 tickets are set to be released during the Games itself on a session by session basis.

There are four types of ticket for the Paralympics:

  • Reserved – for a specific seat for athletics, track cycling, swimming and medal events in some other sports
  • General admission – any seat for other Olympic Park sports plus rowing, equestrian, road cycling, events at the ExCeL arena, archery, shooting and wheelchair basketball. Some finals are excluded
  • Olympic Park day pass – access to sports including goalball, wheelchair basketball, wheelchair rugby, wheelchair tennis and football
  • ExCeL day pass – access to table tennis, judo, sitting volleyball, wheelchair fencing, powerlifting and boccia at the ExCeL arena

Locog commercial director Chris Townsend said: “Many people visiting the Paralympic Games will be experiencing these sports for the first time so we wanted to provide a broad experience for spectators.

“The day passes will allow people to dip in and out of sports and experience a range of sports in one day. We expect that this will mean at various points throughout the day venues will appear to have empty seats, but this won’t mean tickets haven’t been sold or people haven’t turned up. At some point during the day we anticipate all seats will be used.”

Right To Die Hearings: Tweets And Reactions

August 16, 2012

I’ll update this as more come in.

https://twitter.com/paulebowen/status/236093134554157057

The Nicklinsons have started a petition which I cannot sign as I don’t share their view but I thought some of you might like to know it’s out there.

https://twitter.com/lisybabe/status/236134897360719872

https://twitter.com/dinogoldie/status/236180011130949633

https://twitter.com/LauraJoDavis/status/236414064866238465

https://twitter.com/LauraJoDavis/status/236439940202909696

Tony Nicklinson And ‘Martin’ Lose Their Right-To-Die Cases

August 16, 2012

Regular readers will know my views on the issue of assisted suicide. This is not a relief for the Nicklinsons or the family of ‘Martin’, but for me, and others who believe in disabled people’s right to live, I can now admit that it is a relief.

A man paralysed from the neck down has lost his High Court case to allow doctors to end his life without fear of prosecution.

Tony Nicklinson, 58, from Melksham, Wiltshire, communicates by blinking and has described his life as a “living nightmare” since a stroke in 2005.

Mr Nicklinson said he would appeal against the decision.

The case went further than previous challenges to the law in England and Wales on assisted suicide and murder.

‘Misery’

Father-of-two Mr Nicklinson was left paralysed with locked-in syndrome after a catastrophic stroke while on a business trip to Athens.

Speaking through a machine just before the judgement, Mr Nicklinson said he would be “relieved” to know the verdict.

He added: “If I lose we will appeal, and I am forced to live a life I no longer want for a while longer.”

The case differed from other “right-to-die” cases which have focused on assisted suicide. Mr Nicklinson would be unable to take lethal drugs, even if they were prepared by someone else.

For someone else to kill him would amount to murder.

In June, his barrister Paul Bowen QC told the High Court: “Tony has now had almost seven years to contemplate his situation.

“With the continuing benefits of 21st Century health and social care his life expectancy can be expected to be normal – another 20 years or more. He does not wish to live that life.”

Mr Bowen added: “The claimant, who has made a voluntary, clear, settled and informed wish to end his own life with dignity, is too disabled to do so.

“The current law of assisted suicide and euthanasia operate to prevent him from adopting the only means by which he could practically end his life, namely with medical assistance.”

‘Untenable’

David Perry QC, who is representing the Ministry of Justice, said Mr Nicklinson’s “tragic and very distressing circumstances evoke the deepest sympathy”.

“Notwithstanding the distressing facts of his situation, the defendant submits that the claim for declarations is untenable. The law is well established,” he added.

The case is being contested on the issue of “necessity” arguing that the only way to end Mr Nicklinson’s suffering is to allow him to die.

This was used in 2000 when conjoined twins were separated, saving one even though doctors knew the other would die.

Mr Nicklinson’s team will also argue that his case is covered by Article 8 of the European Convention on Human Rights which deals with the right to respect for private and family life.

The judges will also publish a determination in the case of another paralysed man with locked-in syndrome, named only as Martin, who is 47.

Part of his case involves a challenge to the Director of Public Prosecution’s policy on assisted suicide.

Four Remploy Factories In Wales Have Closed

August 16, 2012

Four Remploy factories in Wales are to close on Thursday.

Sites in Aberdare, Abertillery, Merthyr Tydfil and Wrexham will shut, to be followed at a later date by Swansea, with a total loss of 189 jobs.

The UK government has claimed the £320m budget for disabled employment services could be better spent.

The Welsh government has announced a £2.4m scheme for employers who give jobs to former Remploy workers for at least four years.

Last month, Remploy officials rejected a private bid to take over the Wrexham factory, safeguarding 40 jobs.

It was also confirmed in July that five Welsh Remploy plants will close in total. Two other sites which had been at risk, at Bridgend and Croespenmaen in Caerphilly county, will remain open.

Minister for Disabled People Maria Miller has told the House of Commons: “We are doing everything we can to ensure that Remploy workers will receive a comprehensive package of support and guidance to make the transition from government-funded sheltered employment to mainstream jobs.”

Roy Whitney, lead representative for Unite in south Wales, told BBC Wales it was a “heartbreaking day”.

“To be honest, the company has not prepared the disabled people at all, it’s been like Welsh lambs to the slaughter house.

“They say there are plans in place with the Welsh assembly, they are helping us, they have set up a task force team, but as far as the UK government are concerned they destroyed a family that has been in existence for 60 years.”

Mr Whitney was not hopeful for the future.

“There is no work out there for fit people, what makes the UK government think there’ll be work out there for disabled people?

“If we’re here in 12 months time it’ll be through the efforts of Welsh assembly and not through the efforts of the UK government – they don’t care.”

The factories were established 66 years ago.

And some of the workers have been employed there all their working lives like Nicholas Green, 41, from Wrexham, who started 26 years ago from school.

“I have grown up here with all the lads,” he said.

“I have had no experience anywhere else so it’s scary for someone like myself as I have no idea what to expect.”

The last shift ends at 13:00 BST on Thursday at Wrexham.

Shadow Welsh Secretary Owen Smith said the announcement was a “real blow for those employees who have relied on stable employment in Remploy factories for many years”.

“The Remploy factories are an imperfect solution for the employment needs of disabled workers but for many they’ve been a real lifeline and they remain, in the present climate, a source of employment in areas where jobs are increasingly hard to come by,” he added.

Plaid Cymru’s Hywel Williams backed the Welsh government’s calls to devolve the Remploy budget.

“We can achieve a great deal in creative and worthwhile development in supported employment in Wales if the responsibility, and most importantly the resources, are transferred from London to Cardiff,” he said.

Assisted Suicide Hearings: Profile Of ‘Martin’

August 16, 2012

Just under two hours to go for Tony Nicklinson- but he’s not the only one waiting to hear whether his life can end. ‘Martin,’ 47, whose case I have also been following for a while, will also have his case heard. The Telegraph have profiled him.

 

Tony Nicklinson Case: Judgement To Be Released Today At 2pm

August 16, 2012

I will, of course, be blogging the judgement as soon as I possibly can.

I’ve been following this case closely for the last few years so regular readers already know my views. Yours are very welcome, as always.

The Best Of Men To Be Shown Tomorrow At 9pm

August 15, 2012

BBC Ouch have just reminded me about this. I’ll be watching.

The first Paralympic games took place in Roam in 1960 but the idea for a parallel games for disabled people was born 12 years earlier, right here in the UK.

The Best of Men, a feature length drama airing this Thursday on BBC Two, tells the story of how the spinal injury ward at Stoke Mandeville hospital in Buckinghamshire, was transformed from a place where paralysed servicemen went to die, into the venue for the first parallel Olympic Games.

The 1948 Games featured wheelchair using athletes competing at sports including archery and table tennis.

Based on a true story, the film begins during World War II with the arrival to the ward of its new head: a German refugee called Dr. Ludwig Guttmann.

Played by Eddie Marsan, Guttmann is dismayed to find a ward full of paralysed soldiers who are all heavily sedated, confined to bed, and being made comfortable until their inevitable deaths.

The life expectancy for someone with a spinal injury in the UK was less than two years back then but Guttmann turned this around and got them all up and moving.

The Best of Men was written by Lucy Gannon who, amongst other things, wrote ITV drama Soldier Soldier. She says that her research led her to believe that the care of spinal patients at Stoke Mandeville pre-Guttmann was well-intentioned.

“At that time, most [spinally injured patients] died within a year, from infections contracted through bed sores and urine, or through simply remaining completely immobile”.

As this was their expected fate, the approach, Lucy says, was to give them “peace and quiet and love, and to be kind to them until the end”.

But Guttmann’s pre-war work as a neurologist at a top German hospital had taught him new ways to treat spinal patients.

The drama shows Guttmann who, despite initial resistance from other staff, removes the men’s casts, treats their bed sores and infections and begins the rehabilitation process.

The main thrust is not the medical process, about how mobile each man became, or even about the sport they would eventually be prescribed to build their strength – it is all about the relationships.

Comedy, sadness and hope are conveyed via interactions between the soldiers, played by Rob Brydon, disabled actors David Proud and Ben Owen-Jones, and George McKay. It also portrays the strong bond between Guttmann and his patients.

In the drama, dr. Guttmann, or “Poppa” as he became known, continuously challenges preconceptions of what they can achieve and helps them to realise that suddenly, they have a future.

Lucy believes that It was Guttmann’s war-time experiences as a Jew in Germany which really bonded him to the men in his care.

“When he came out of Germany, he’d lost his career, his home and most of his family. Guttmann had his feet kicked out from under him – as they [his patients] had. He had established the need to press on regardless and he made these other people press on too.”

Ludwig Guttmann is characterised as having a headstrong and charismatic personality. At a recent screening of the drama, a former patient of his told Lucy the story of a newcomer to the ward who was said to have broken his back only the day before Ludwig Guttmann approached him for the first time. He asked the man if he swam and, when he said yes, the doctor instructed: “I’ll see you at the pool at 2 O’clock this afternoon”.

Best of Men concludes as the main characters take part in the very first Parallel Olympic Games. Within four years, the Games had become international and now, in 2012, athletes from 165 countries will soon travel to London to take part in the modern Paralympics that he created.

Working on this project has brought writer Lucy Gannon to the conclusion that the work of Ludwig Guttmann will not be complete until the Paralympics and Olympics should eventually become one.

“I hope that The Best of Men makes people realise that what was not possible 40 years ago, is possible now, and that what is not possible now, might be in the future. It would be wonderful if in 20 years time, the Paralympics were included with the main Olympics. Guttmann’s legacy will only be fully fulfilled when there is no such thing as the Paralympics. … the sooner we do it, the better.”

The Best of Men will be shown on BBC Two, at 9 PM on 16 August. Catch it afterwards on iPlayer.

Paralympian Gold Medallists WILL Get Individual Stamps

August 15, 2012

I’ve been fully supporting a little campaign to get individual stamps for our Paralympic Gold Medallists on Same Difference for the last week.

So today I’m very very pleased to be able to publish this Tweet:

With the help of some Tweets, some bloggers and a loving mother’s petition, WE WON!

Update 4.30pm: New Statesman have covered this.

Update 6pm:  So have the BBC.

The UK Motorhome & Caravan Autumn Fair Welcomes Trabasack

August 15, 2012

A press release from Trabasack:

The Trabasack team are proud to announce that they’ll be exhibiting at the UK Motorhome & Caravan Autumn Fair at Newark Showground on September 1st and 2nd. The Mobility and Disability Aid Exhibitors area of the event is brand new this year and the Trabasack team are thrilled to be involved and to have the opportunity to show patrons exactly how useful their product range can be. All visitors to the event, will see exactly how multifunctional and all-purpose the Trabasack can be and how these products can be used by a range of different users for their caravanning and other leisure pursuits.

The Autumn Fair show is the last UK Motorhome & Caravan Fair of 2012 and is open to day visitors, club rallies, weekend campers. There will be over 100 trade stands to attending.
An estimated 10,000 visitors came to the UK Motorhome & Caravan Autumn Fair show in 2011. The Autumn Fair is the perfect event to find your next motorhome or caravan, and is especially suited  to first-time buyers who are able to experience and view a huge range of styles and models.
The 2012 Autumn Fair show is great value – a Day Ticket are just £5 before the event or Weekend Camping is only £40 in advance, which includes some fantastic free entertainment in the evening!

The Trabasack team will be sharing their stand with one of their partners from the business network Kandu Group, Mountain Trike. Products from both companies will be available to test and representatives from each company will be on hand to answer any questions.

Trabasack – Bag a Table Anywhere

The lap tray and bag product range is designed with universality in mind. Early adopters included wheelchair users who realised how fantastic the products were as wheelchair lap trays but in fact, the Trabasack is a wholly multiuse product and an ideal space saving device for your holidays and general caravan pursuits.

http://trabasack.com/camping-tray

The Trabasack products combine a bag compartment and sturdy lap tray, ideal for use as a food tray at campsites when space is tight and you’re dining al fresco. What’s more, if you’re planning a hike or countryside excursion, Trabasack is ideal for packing your essential bits and bobs in the bag compartment and when you stop for a snack or to engage in any artistic pursuit perhaps, you can use your Trabasack as a portable table. Small and compact, as well as extremely lightweight, the Trabasack product range is designed with all potential users in mind and the range of carry options, additional straps and Velcro-friendly Connect surface option make it appeal to a wide audience. What’s more the hardy canvas material is both waterproof and durable, making the product fantastic for use in all environments.

The Trabasack team are pleased to be at the Motorhome and Caravan Fair to offer their product to a wide audience and show how useful it can be, for a wide range of users from those wanting a safe place to keep their hot drink round the campfire, to artists needing a flat surface for their sketch pad whilst up in the moors.

Mountain Trike – the All-terrain Wheelchair Company

Mountain Trike markets itself as the active chair for active people and offers users the chance to venture out in any terrain, widening opportunities and accessibility. They both sell and rent out their trikes and the extra functionality provided by the product is in addition, not instead of, the regular functionality you would expect from a standard wheelchair. Developed initially as a university engineering product, things are only getting better for the company and anyone interested in seeing their product and the versatility it provides, is welcome to approach the stand at the Motorhome Fair.
The chance to exhibit their product at an event aimed at the general public gives the Mountain Trike team a chance to show how their trike allows wheelchair users to access all the same activities as those who aren’t and how enjoying pursuits such as caravanning are not restricted or inaccessible.

Both Trabasack and Mountain Trike will be happy to answer any questions and provide any information about their product ranges at the Motorhome and Caravan Fair in Newark and look forward to seeing you there.

Booking forms can be downloaded here http://crafttraybag.com/uk-motorhome-caravan-autumn-fair-…

Getting there:

Newark Showground, Winthorpe, Newark-On-Trent, Nottinghamshire NG24 2NY

By Road:

The Showground is situated adjacent to the junction of the A1, A46 and A17 trunk roads, giving easy access to the country’s major road networks.

By Train:

East Coast Mainline Train stops at Newark Northgate station only 10 minutes form the fair. Travel by train from London in 90 minutes. A Grimsby to Nottingham line offers connections to the Midlands at Newark Castlegate Station.T

Successful Career Women In Loving Relationships- With Asperger’s Syndrome

August 15, 2012

When it comes to making a lasting impression on a first date, there are few women who could top Sarah Hewitt. As husband Chris now recalls: ‘Sarah invited me to her flat and we were sitting on the sofa, sharing a bottle of wine and chatting.

‘It was all very pleasant and at one point during the conversation I leaned over and touched Sarah on the leg. She punched me in the face, right between the eyes.’

He could have been forgiven for taking this as a clear signal to run a mile. But Chris, 56, a builder and property developer — now married to 34-year-old Sarah — was undeterred.

‘I realise that most men would have been put off by what happened, but I’d known Sarah as a friend for years and I’ve always been drawn to her because she’s different.

‘Although she can be serious and professional, she has a rather child-like outlook on life which is so refreshing. She’d punched me because I’d taken her by surprise. She simply wasn’t expecting my touch.’

 But that wasn’t the only reason. Sarah, a senior consultant for a firm which helps telecommunications businesses, is one of a number of  high-achieving women in Britain who have Asperger’s Syndrome, a form of autism sometimes referred to as a ‘hidden disability’ because the symptoms of it are not immediately apparent.

It means she has problems with social interaction and communication — often misreading signals and saying or doing what many people would regard as inappropriate.

One in 100 people in the UK are thought to be on the autistic spectrum, but there are no accurate figures for how many women are on it because so many of them go undiagnosed.

‘Women are much better at masking their symptoms than men, so it’s far harder to say how many of them have it,’ says Dr Judith Gould, of the National Autistic Society.

‘As girls, they are very good at copying other people’s behaviour, so they often get through junior school and adolescence without anyone noticing. It’s only as they get older that they often suffer other mental problems such as eating disorders or nervous breakdowns. That’s when Asperger’s may finally be diagnosed.’

Understanding social nuance doesn’t come easily to people with the condition and punching Chris, whom she married five years ago, is not the first time Sarah has misread signals.

‘I’ve upset plenty of people,’ she admits. ‘I upset Mum all the time because I’m always checking best-before dates on her food and the ingredients of meals she’s made. I inspect every glass before I drink out of it, and even though Mum knows I only do it because I have Asperger’s, she takes it as personal criticism.’

 Sarah has also got herself into trouble at work several times by repeating other people’s jokes and comments without understanding that they were inappropriate.

‘For example, I’ve gone up to people in the office and said things like: “You must be ‘Octopus Mike’ or ‘Orange John” — the secret nicknames people have given them.

‘But, the way I see it, I didn’t come up with those names, I’m just repeating what other people have said.’

Sarah’s mother suspected she might have autism when she was still a baby, since she failed to make eye contact and resisted any physical contact — both classic traits of autistic children.

‘She didn’t bond with me, so Mum took me to the doctors. He said I’d grow out of it, but of course I didn’t,’ she says.

Sarah did well at her studies, leaving private boarding school with ten GCSEs and three  A-levels, but there were periods of teenage rebellion where, she says, she went on drinking binges and ‘off the rails’. ‘I always found it difficult to get on with groups of people, so I suffered from a low-level bullying,’ says Sarah.

‘I was quite studious, but I struggled with the academic side of things — not necessarily the level of work, but with organisational things like doing the wrong homework, or taking the wrong books to the wrong lesson.’

Sarah realised she was different to other girls when she was in her teens, but it wasn’t until she was 26 that she was diagnosed with Asperger’s Syndrome. As a result of the disorder, she feels she has never coped well with looking after herself.

‘When I lived on my own after university, I never had any clothes to wear because I’d end up wearing something once, throwing it to one side and never bothering to wash it. I just went out and bought something else instead.’

Typically, autism and Asperger’s are often thought of as masculine disorders thanks to the lack of emotion and empathy sufferers display.

Sarah can relate to this. She feels much more comfortable navigating reams of data and figures than dealing with people. And a simple trip to  the supermarket can be a nightmare for her.

‘Asda and Sainsbury’s are particularly difficult for me because of the way the stores are laid out,’ she says. ‘I can’t block out external stimuli, so the lighting and the noises from the fridges can be distressing.

‘When I’m with Chris I stay in the car and let him do the shopping. I can only describe it as my brain being like a computer which can only work for so long running a certain number of programmes before it crashes.’

At home, Chris takes care of chores such as cooking and cleaning. ‘Sarah’s absolutely useless at all that,’ he says. ‘So she looks after the more technical side of things — setting up the television or reading through instruction manuals.

‘If we’re buying a sofa, Sarah will read through all the small print before we sign, which can be frustrating, but at least we know she won’t have missed a trick.’

 This is behaviour that Emily Woodhams-Beazeley, a financial analyst for a water company, understands only too well.

Intelligent, successful and highly motivated, she has an IQ of 140, which puts her in the genius category, and she was recently awarded the highest-possible performance rating by her employer.

But, once or twice a week, 30-year-old Emily will find the hubbub of her large, open-plan office too much to bear. Stressed, overwhelmed and anxious, she is forced to flee the building and work on her laptop from the sanctuary of her car until she has calmed down.

‘Working in an open-plan office is a challenge for me sometimes,’ says Emily, who lives in Reading, Berkshire, with her husband Steve, 56, an engineer, and five-month-old  daughter Poppy.

‘I’m very sensitive to light and noise, so with 200 people all working in one room, it can feel like fireworks going off in front of my eyes — and as if people are banging saucepans in my ears. I often have to escape for half an hour, count to ten, and get my thoughts in order before I can go back.’

Emily was in her 20s when she finally found an explanation for the problems that had plagued her all her life.

‘At school I was always terrified that I was in trouble and I’d get tearful in most lessons,’ she explains.

‘I thought the teachers were angry because they were shouting. It was only when I was doing my A-levels, and someone pointed out to me that the teachers only spoke loudly because they wanted the whole class to hear them, that I realised it wasn’t just me they were yelling at.

‘As a child, I’d always found making friends very difficult. My first instinct when I’m upset is to burst into tears, which in the adult world isn’t acceptable. People said I’d grow out of it, but I didn’t.’

Emily was studying at Loughborough University and had suffered a nervous breakdown by the time she finally got help. She explains: ‘I’d been very depressed and anxious, and wouldn’t leave the house. I was crying all the time.’

She was referred to a support centre that helps people with disabilities, and it was there that one of the doctors suggested she may have Asperger’s, which tests subsequently confirmed.

‘It was such a relief when I realised I wasn’t on my own,’ she says. ‘Being a woman with Asperger’s is difficult, and even now I don’t meet many women with it. I’m in a social group for people with the condition, and the majority of them are men.’

So how does Emily cope in the area where empathy and human communication skills are considered to be crucial — mothering?

It’s not a problem, she insists.  ‘People might suspect it hinders things, but actually I’ve found it helps. Babies and young children like routine and so do people with Asperger’s, so the two go hand in hand.’

The condition has also helped Emily’s career. Indeed, there are female university lecturers, military strategists, writers and artists who all have Asperger’s, and whose particular talents include exceptional memories, logic and research skills.

Emily adds: ‘My husband calls me a cross between a computer and an encyclopedia. I’ve been very lucky because I’ve used Asperger’s to my advantage in my job. As a financial analyst, I spot patterns in figures which other people have missed.

‘I can work out what things mean from thousands of numbers. I have no concept of getting bored, whereas some people find working out lots of data incredibly dull.’

Like Sarah, when Emily is shopping at the supermarket she too can be easily overwhelmed by the noise and lights, and if one thing on her shopping list is unavailable, she is thrown into confusion.

‘People with Asperger’s like to have things done in a certain order, so if something messes that up, it’s quite stressful,’ she explains.

‘It takes me at least two hours in the morning to prepare for work. I lay all my clothes out the night before and have a set routine, but if my husband moves something and it isn’t where I expect it to be, that can add an hour to my day.’

Another successful woman with Asperger’s Syndrome is Dr Becky Heaver, 33, a psychology research assistant at the University of Brighton, who describes coping with the condition as ‘going through life in a little boat while everyone else is on a cruise liner’.

And Becky can only cope with one person at a time in her boat, she says.

‘I much prefer spending time one-to-one, so working in academia is perfect for me, and I was probably drawn to psychology because I wanted to understand people better.

‘My work involves lots of spreadsheets, and I’m able to see patterns and solve problems other people can’t see so clearly. But the thought of giving a lecture or presentation scares the life out of me, so I try to steer clear of anything like that.’

Becky had long suspected she had the condition but was only given a formal diagnosis two years ago, when she paid to have a private assessment.

‘It was a massive relief to be told I had it because it took away the feelings of guilt I’d had for so long.

‘For years I’d been so hard on myself, telling myself I needed to try harder to fit in, and that I needed to make more of an effort socially.’

In fact, Becky has few friends, preferring to have just one at each stage of her life because that is all she can cope with.

She lives with her boyfriend of three-and-a-half years, Alex, 31, who’s a builder.

He understands the syndrome because he believes that he too is on the autistic spectrum — although he has not had a  formal diagnosis.

‘My condition has affected my past relationships,’ says Becky. ‘Some boyfriends have thought it odd that I have a lot of routines in my day, but that’s what makes me feel safe.

‘In the morning, for example, I like to do things in the same order, but Alex understands that.’

As for having children, Becky says she has trouble envisaging her future. ‘I don’t like change,’ she says. ‘So it’s difficult to see what the future will bring. I’m not sure if I want a family.

‘I’m perfectly happy, and even if  I could change having Asperger’s, I wouldn’t.

‘If I didn’t have it, I wouldn’t be able to do the job I do so well. It’s a part of who I am.’

Details Of The Paralympic Torch Relay

August 15, 2012

Scouts will light four flames atop the highest peaks of England, Wales, Scotland and Northern Ireland to spark the Paralympic torch relay.

They will strike flint against steel on Scafell Pike, Snowdon, Ben Nevis and Slieve Donard on 22 August.

The flames will visit UK capital cities before uniting in the home of the Paralympic movement, Stoke Mandeville.

A 24-hour relay will then take in Tower Bridge, London Zoo and Lord’s en route to the Games’ opening on 29 August.

There, the cauldron will be lit to herald the start of the Games.

‘Light a lantern’

Starting at 20:00 BST on 28 August, the overnight relay route will see the Paralympic flame carried 92 miles by 580 torchbearers, working in teams of five, from Stoke Mandeville Stadium through Buckinghamshire, Hertfordshire and all six of London’s host boroughs to the Olympic Stadium in Stratford.

Sites it will visit include:

  • The National Spinal Injuries Centre, Stoke Mandeville
  • The famous Abbey Road crossing in Camden, where the torchbearers include wheelchair basketball and badminton player Philip Tew
  • Lord’s Cricket Ground in St John’s Wood, where it will be carried by five members of the UK’s first blind women’s cricket team
  • London Zoo
  • Piccadilly Circus
  • Tower Bridge, carried by coach David Walkerdine who was nominated by Paralympian Richard Whitehead
  • Hackney Town Hall
  • Marsh Lane Playing Fields in Waltham Forest
  • Stratford Park in Newham

The 24-hour relay would be be a celebration of the courage, determination, inspiration and equality that every Paralympian represents, said London 2012 Chairman Sebastian Coe.

Torch relay locations 28-29 Aug

  • Aylesbury
  • Weston Turville
  • Aston Clinton
  • Tring
  • Berkhamsted
  • Bourne End
  • Bushey
  • Harrow
  • Brent
  • Barnet
  • Camden
  • Lambeth
  • Westminster
  • City of London
  • Tower Hamlets
  • Southwark
  • Lewisham
  • Greenwich
  • Hackney
  • Waltham Forest
  • Barking & Dagenham
  • Newham
  • Olympic Park

“By creating the four flames through human endeavour at the four highest peaks in the UK we will ensure that the spirit of each home nation is represented in the Paralympic Flame,” said Lord Coe.

He urged spectators support the Paralympic torch relay by taking lanterns to a flame festival, supporting a torchbearer or lining the route of the 24-hour relay.

After the spectacular success of the Olympic Games, London was now gearing up for a Paralympic Games that was already on track to be a sellout for the first time ever, said Mayor of London Boris Johnson.

“The Paralympic torch relay is the perfect moment to get your flags back out and get behind the incredible athletes taking part as the excitement builds once again right across the capital,” said Mr Johnson.

Most of the 580 Paralympic torchbearers were chosen by the British Paralympic Association or through public nomination campaigns run by BT, Lloyds TSB and Sainsbury’s.

Flame Festivals

Flame festivals will be held in London on 24 August, and then on consecutive days in Belfast, Edinburgh and Cardiff before the four flames come together in Stoke Mandeville to create the Paralympic flame.

London’s event will see a ceremonial cauldron lit in Trafalgar Square, Belfast’s festival will have a lantern procession outside City Hall and a cauldron-lighting outside Stormont.

Scotland’s flame will light a ceremonial cauldron on the Mound in Edinburgh and a lantern procession at Meadowbank Sports Centre, while Cardiff’s ceremony will include a cauldron-lighting outside City Hall and a lantern procession in Roald Dahl Place.

In addition, some 38 communities around the UK will stage flame celebrations during the August Bank Holiday weekend, with communities sending a representative to collect part of the flame from their national capital to be the centre-piece of local festivities.

After the flames unite at Stoke Mandeville on Tuesday 28 August, the 24 hour relay begins.

Reflective design

The torch has been given a mirrored finish so its colour adapts to its surroundings and also shines at night on the final stage of the torch relay.

It was created by London-based designers Edward Barber and Jay Osgerby, who were also behind the Olympic torch. They said it was driven by a desire to reflect modernity and innovation.

It is made from an aluminium alloy – light while being strong and heat-resistant.

Cutting-edge laser technology has been used to create thousands of round perforations which will help ensure that heat from the flame is quickly dissipated without being conducted down the handle.

The holes also make the torch lighter and give it a texture that is easy to grip.

The ESA50 Form Is Not Fit for Purpose

August 15, 2012

But never fear… the brilliant Sue Marsh is on the case.

Council Took Six Days To Tell Mother Her Disabled Son Had Died

August 15, 2012

This is just shocking.

Social services took nearly a week to tell a mother her disabled son had died it was revealed today.

Michael Kershaw, 20, had been in care for most of his life after being born with the degenerative neurological condition Pelizaeus-Merzbacher.

But despite being estranged from their son, parents Nicola Young and Mark Kershaw were assured by a court they would be kept up to date with his welfare.

 But, Ms Young, 38, who is separated from Mr Kershaw, was left devastated after discovering Michael had passed away – six days after his death.

Social Services claimed they had no contact numbers for the couple but both parents argued they could have easily been traced.

Ms Young, from Washington in Sunderland, said: ‘There was no reason why they couldn’t have phoned.

 ‘They have the contact numbers for myself and my ex-husband. It’s been a nightmare.

Ms Young finally got to learn of Michael’s death after her own mother Christina Mussett, 57, passed on a message from Mr Kershaw who had been informed the day before.

Mr Kershaw, 39, of Roker, said: ‘I was distressed, I went on my hands and knees when the social worker was on the phone telling me, it was more anger.’

Social services took on Michael’s care many years ago after Ms Young began suffering severe depression. Both she and Mr Kershaw continued to have full parental rights, but when Michael turned 16 they were told he no longer wanted contact with them.

‘I was distressed, I went on my hands and knees when the social worker was on the phone telling me, it was more anger.’
Mark Kershaw, Michael Kershaw’s father

However, the couple were given a promise through Sunderland County Court that they could get a monthly update on his well-being. They claim they struggled to get information.

Mr Kershaw said: ‘I’ve been ringing for the last three years to find out what’s going on, they just pass the buck.’

Ms Young, who now lives with husband Paul, 37, is preparing a complaint against Sunderland City Council.

The council’s executive director of health, housing and adult services, Neil
Revely, said: ‘We sympathise with Nicola and other family members at this sad time.

‘Michael had lived with foster carers both as a child and with carers as a
young man for most of his life, and over the last few years there has been
little contact from his family.

‘This meant inevitable difficulties with updating contact details of the
various family members who lived apart. Throughout this time Michael’s well being was always of paramount importance to us.

‘We worked with Michael, his carers and family, to ensure that the care and
support he received was in his best interests and in accordance with his
wishes.

‘Michael’s sad loss has affected everyone who looked after him.’

Both Michael’s parents attended his funeral service. An inquest in to his death, on July 7, has been opened and adjourned by the coroner.

A post mortem examination proved inconclusive and the results of further tests are pending.

Nicholas McCarthy- The One Handed Pianist

August 15, 2012

His career choice isn’t my cup of tea, but good on him for winning his battle and living his dream.

As a teenager seeking his first place at a school for young pianists, Nicholas McCarthy was refused an audition and told he would never succeed.

Having one hand, the head teacher told him, would always hold him back and it was better not to waste his and other people’s time.

While some might have given up, Mr McCarthy went on to become the first one-handed pianist known to have graduated from the Royal College of Music.

Of the early audition, he said: “It was soul crushing because that’s all I wanted to do.

“I could feel it would be an uphill struggle, but it made me more determined, I’m quite a stubborn character.”

The 23-year-old from Tadworth, in Surrey, was born without his right hand.

He taught himself to play an electric keyboard as a young boy, but did not start piano lessons until he was 14.

Mr McCarthy said he had planned to become a chef but changed his career path the moment a friend played him a piano sonata by Beethoven, which “dumbfounded” him.

At the age of 17 he secured a place at the junior department of London’s Guildhall School of Music and Drama, winning the annual piano prize.

He then went on to the prestigious Royal College of Music in London, graduating last month.

‘How is this possible?’

The college’s head of keyboard, Prof Vanessa Latarche, said her pupil had been “incredibly enterprising” in overcoming some big challenges such as developing the stamina to present a 50-minute recital with one arm.

“He has been a great inspiration to many of his fellow students in showing what it is possible to achieve with a disability,” she said.

Mr McCarthy is a member of Britain’s first disabled orchestra – the paraorchestra – which played to paralympic athletes last month to welcome them to London.

“When I first joined the orchestra, a couple of the musicians who are partially sighted and blind didn’t believe I was playing with one hand, that was a big complement to me,” he said.

“The music is all written for the left hand alone, I’m not changing anything, I’m playing the music as it was written.

“It’s written very cleverly, but you’ve got to be very quick and good with the pedalling to sustain the base notes while playing the top notes.”

Ravel, Prokofiev and Bartok are among the composers who have written pieces for just the left hand.

Mr McCarthy said he thought a lot of people came to see him perform “for curiosity and think ‘how is this possible?'”.

“For many, the first reaction is astonishment, that wow factor. I’ve had some people who thought I’d played with a backing track, but it is just me and my left hand.”

Next week he will perform in Malta at the offices of the country’s prime minister and in September he will headline his first evening concert at Fairfield Halls in Croydon.

Mr McCarthy’s self-determination and belief were instilled in him from an early age by his non-musical parents Ray and Julie.

Salesman Ray, 46, said he always let his son do things people said he could not do.

He said his son was one of the first among his peers to ride a bike after he adapted it to put both brake levers on the left-hand side.

“You can allow to be defined by society, by colour, race, creed or disability, but if you decide you’re not going to, the world’s your oyster,” he said.

Disability Hate Crime At Its Highest Level

August 14, 2012

Today’s Guardian reports that disability hate crime is at its highest level since records began and asks why there are still so few reports of or convictions for it.

PAUPERS’ PICNIC For INDEPENDENT LIVING

August 14, 2012

An email from Linda Burnip:

PAUPERS’ PICNIC for INDEPENDENT LIVING

 

 

SEPTEMBER 13th 2pm CENTRAL HALL, HOUSE OF COMMONS

 

 

MEET 1.30pm- 1.45pm at College Green, Abingdon Street if you want to go in as a group.

 

We hope to organise a meeting with MPs before the lobby but even if we can’t do this due to the summer recess we will be lobbying MPs and then having another picnic in the Central Hall. Please bring plenty of bread and water to eat and share. We then hope to make a visit to another relevant building nearby.

 

“The Independent Living Fund is a ring fenced resource, for disabled people with high support needs that can provide a better lifestyle and outcomes for service users whose full needs would not be met by local authority funding. “

 

Unlike local authority and health care funding which tends to focus simply on keeping disabled people alive and clean the funding available from ILF helps disabled people to take part in society on an equal basis to non-disabled people.

 

In 2010 Maria Miller, minister for Disabled People announced ILF was unsustainable and it was immediately closed to new applicants. It is planned to close completely from 2015 with no replacement funding put in place to provide this vital support to those with the most complex support needs. There is currently a very unsatisfactory consultation taking place about the future of ILF funding.

 

 

We must make it clear that we will not be silenced by this government’s injustices nor will we simply disappear.

 

To lobby your MP you need to go to the House of Commons visitor’s entrance and fill out a green card or contact your MP beforehand and tell them you want to lobby them about keeping the Independent Living Fund and why it is important to you.

 

You can find your MPs contact details at www.parliament.uk or you can write to them at House of Commons< London , SW1A 0AA .