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My Experience In The #uksnow #disabilitysnow

February 5, 2012

I have just had the most interesting, unusual night. We got all dressed up to do the Saturday supermarket shop, but when we stepped outside we were greeted by slushy, snowy, watery stuff. If you’ve been watching the weather forecast this weekend, you’ll know this was not unexpected altogether- it just reached London a little earlier than we expected.

So, we made it to the supermarket, made a few other stops, and all was going well until we got about halfway home. That was when we got stuck in the white stuff. We had to go back where we came from, park at a safe spot and get a lift.

Luckily we made it safely home about 6 hours after leaving, but one thing I’m very sure of. It’s no fun being out in heavy snow, especially when you’re DisAbled.

So, if you must go out in it, please don’t go out in it alone.

Please leave your thoughts, tips and snowy experiences in the comments below. And stay safe, readers.

ASA Bans Christian Group’s ‘God Can Heal’ Adverts

February 4, 2012

I, for one, am glad these adverts were banned. They were insensitive.

A Christian group has been banned from claiming that God can heal illnesses on its website and in leaflets.

The Advertising Standards Authority (ASA) said it had concluded that the adverts by Healing on the Streets (HOTS) – Bath, were misleading.

It said a leaflet available to download from the group’s website said: “Need Healing? God can heal today!”

The group, based in Bradford-on-Avon, Wiltshire, said it was disappointed with the decision and would appeal.

HOTS Bath said its vision was to promote Christian healing “as a daily lifestyle for every believer”.

‘False hope’

The ASA said the leaflet read: “Need Healing? God can heal today! Do you suffer from Back Pain, Arthritis, MS, Addiction … Ulcers, Depression, Allergies, Fibromyalgia, Asthma, Paralysis, Crippling Disease, Phobias, Sleeping disorders or any other sickness?

“We’d love to pray for your healing right now!

“We’re Christian from churches in Bath and we pray in the name of Jesus. We believe that God loves you and can heal you from any sickness.”

The ASA said it had been alerted to the adverts by a complainant, and concluded that they could encourage false hope and were irresponsible.

HOTS Bath said: “It seems very odd to us that the ASA wants to prevent us from stating on our website the basic Christian belief that God can heal illness.

“All over the world as part of their normal Christian life, Christians believe in, pray for and experience God’s healing; our ministry, in common with many churches, has been active in praying for God’s healing (of Christians and non Christians) for many years.”

The group said it had tried to reach a compromise, “but there are certain things that we cannot agree to – including a ban on expressing our beliefs”.

The Healing On The Streets ministry was started by Causeway Coast Vineyard church in Coleraine, Northern Ireland, in 2005 and has been taken up by dozens of churches across the UK.

 

David Peaston Dies

February 3, 2012

R&B and gospel singer David Peaston, best known for the tracks Two Wrongs (Don’t Make it Right) and Can I?, has died aged 54.

His niece Neuka Mitchell, said the star passed away on Wednesday from complications of diabetes.

The musician, who had a string of hits in the late 1980s and early 1990s, came from a family of successful singers.

His mother Martha Bass sang with the Clara Ward Singers and sister Fontella Bass had a top-10 song in 1965.

Peaston kick started his career after winning several competitions on the Showtime at the Apollo TV show in the 80s.

Two Wrongs was his highest charting single, reaching number three in 1989.

In 1990, Peaston beat off competition from the likes of Soul II Soul to win a Soul Train Music Award for Best R&B/Soul or Rap New Artist.

In 2006, after a period of ill health caused by his illness – which led to both his legs being amputated, he returned to music with the album, Song Book: Songs of Soul & Inspiration.

Peaston is survived by his wife and two sons.

Deaf Teens: Hearing World

February 3, 2012

Insightful documentary by director Claire Braden about five deaf teenagers as they take their first steps into the hearing world. It follows some extraordinary young people who have some extreme and surprising attitudes towards their deafness. It highlights how not all deaf teens want to be able to hear and are often defiant against being part of the hearing world, but also the lengths some deaf teenagers will go to to improve their hearing.

Sara and Asher wouldn’t choose to hear even if they had that option; they are fully deaf and proud of their deaf culture. Not only do they not hear, but they also don’t speak. This makes Sara’s first days at university a real challenge, as she feels isolated and worries that her two support workers make her look like she has ‘special needs’. 19-year-old Meghan feels she has hit a brick wall in terms of her deafness and desperately wants to hear more. We are there as she undergoes a life-changing operation to have a cochlear implant fitted which should radically improve her hearing. But the operation doesn’t come without its risks and falls the week before she starts at university – a fully-hearing environment. Jake and Adam are identical twins, with one difference setting them apart – Adam is hearing but Jake is profoundly deaf. Adam and Jake have their own one-handed form of sign language and Adam isn’t afraid to ask Jake the tough questions over whether deaf couples should have deaf children or what jobs deaf people should be allowed to do. Christianah is entering her final year at her specialist deaf school where she and her friends have a very sassy attitude to their deafness, being quick to deride anyone who won’t take them seriously. It is their last year of living in a safe, deaf environment and the nerves are beginning to set in.

The film highlights the difficulties deaf teenagers face when they enter the big, wide hearing world for the first time – providing a fully-immersive experience which illustrates what it’s like to go to a music festival and not hear the music, how hard it can be to keep up with conversations and make friends, but also the joy of silence.

The King’s Speech Takes To The Stage

February 3, 2012

Almost a year after the film reigned supreme at the Oscars, The King’s Speech has finally made it to the stage.

A packed house at the Yvonne Arnaud theatre in Guildford, Surrey, gave the play a rousing reception at its world premiere on Thursday night.

Playwright David Seidler called it “the fulfilment of a very long dream”.

Seidler originally wrote his story about King George VI for the stage before he developed the screenplay.

Seidler went on to win an Oscar and Bafta for best screenplay for The King’s Speech in 2011.

But the play has never actually been performed until now.

The film starred Colin Firth as Bertie, the king who conquered his debilitating stammer with the help of maverick Australian speech therapist Lionel Logue (Geoffrey Rush).

In this stage version, the lead role is taken by Charles Edwards, with Australian-born Jonathan Hyde as Logue, and Emma Fielding as Queen Elizabeth.

Joss Ackland plays King George V and Ian McNeice is Winston Churchill. The play is directed by former RSC artistic director Adrian Noble.

Speaking exclusively to the BBC after the premiere, Seidler – who himself had a childhood stammer – said it had been a “very emotional night”.

“When I was a very young boy in the late 40s, my grandfather would take me to the Golders Green Hippodrome to see these wonderful creaky old British plays in which the diva and the leading man would swoop on stage and stand in the spotlight.

“To me, as a little boy of eight or nine years old, it was absolute magic and I thought, ‘I really want to be part of that world’ – which was a strange ambition for a boy who stuttered and couldn’t talk.

“Well, that little boy got a big thrill tonight.”

Plans to bring the play to the stage were in place before the film became a huge international hit, making $414m (£261m) at the global box office.

Seidler said he had no second thoughts about staging the production so soon after the film’s success.

“This is what I’ve always wanted,” he said. “I had always envisaged the film as being something that would give me a little bit of money so I could help get this on the boards.

“I don’t want to sound ungrateful, and I’m not, I’m so very pleased and happy the film did as well as it did. Winning an Oscar is just a wonderful thing to happen – certainly at my age – but this is what I wanted. This to me is more fulfilling than all the movies in the world.”

The stage version of The King’s Speech allows Seidler to explore characters and themes more deeply than Tom Hooper’s film.

“There is now a fully fleshed out relationship between Lionel and his wife Myrtle that didn’t exist in the film,” he said. “The stage version has a great deal more of the politics and I think a great deal more humour – it’s a richer canvas.”

Seidler began researching his storyline for The King’s Speech throughout the 1970s and 80s but abandoned it after the Queen Mother asked him not to pursue the project during her lifetime.

After the Queen Mother died in 2002, Seidler returned to writing the play. It was in 2005, at a script reading in London, that director Tom Hooper’s mother spotted its movie potential and told him she’d found his next film.

With unconfirmed reports that the Queen had seen and enjoyed the film version of The King’s Speech, would Seidler invite her to see the play?

“Any time Her Majesty would like a house seat, let me know and I will arrange it. I think it’s unlikely, but I would love her to see it – it would be a great honour.”

The King’s Speech is at the Yvonne Arnaud Theatre in Guildford until 11 February. It will then tour to Nottingham, Bath, Brighton, Richmond and Newcastle.

Saddles Stolen From Riding For The Disabled

February 3, 2012

A charity that helps people with disabilities to enjoy horse riding has been targeted by thieves in Dorset.

Three £400 saddles were stolen from the Riding for the Disabled Association stables on Ringwood Road, Ferndown on Tuesday night.

Police said the theft of the specially-adapted saddles will have a “detrimental impact” on the charity’s programme.

They appealed for horse owners to check the security of their equipment.

Blind Man, 52, Registered Blind For 36 Years, Found Fit For Work

February 2, 2012

This is crazy.

As the UK government continues to reform the welfare system, a 52-year-old man registered blind since he was 16 has been telling BBC Wales how he has lost benefits after being assessed as being fit for work.

With incapacity benefit being scrapped, Tony Harris attended a work capability assessment last September to see if he was eligible for its replacement, employment support allowance.

He says he was shocked to be told by letter in December that he was fit for work and not eligible for the allowance.

Mr Harris says he can barely see and can hardly use his hands due to rheumatoid arthritis,

He told BBC Wales political reporter Mark Hannaby he has lost £38 a week and is worried about going into debt and losing his home.

BREAKING NEWS: Guardian Makes Typo, Says Maria Miller Is Employment Minister

February 2, 2012

Read this if you can’t believe your eyes. I couldn’t believe mine either. So, can someone please tell me who the Minister For Disabled People is now then? I hope it’s not Chris Grayling!

I’m going to paste the text below in case the Guardian later corrects the typo:

The coalition has raised the stakes over its welfare bill by overturning seven key Lords amendments passed to soften the reforms, and taken the rare step to direct peers they have no constitutional right to challenge the Commons’ decisions further.

On most bills, the Lords can send amendments back and forth in what is known as parliamentary ping pong. The coalition, deploying a rarely used parliamentary device, claimed “financial privilege” asserting that only the Commons had the right to make decisions on bills that have large financial implications.

It argued that the Lords amendments collectively cut billions of planned savings. A similar tactic could also be used to throw out likely Lords amendments to the legal aid and health bills.

It is for the Speaker on the advice of clerks and the coalition to decide if financial privilege should be applied.

MPs backed the government’s plans for a £26,000 annual cap on overall household benefits including child benefit, overturning a defeat in the Lords. The Lords amendment, which was led by Church of England bishops, was overturned by 334 votes to 251.

The shadow work and pensions secretary, Liam Byrne, said he favoured a regionally based cap, reflecting different housing costs. He refused to say if this would mean the cap would be lower than £26,000 in the north of England.

Labour peers and some crossbenchers argued that the understood convention was that financial privilege only applied to money bills, such as the bill implementing the budget, adding that almost all Lords amendments have some financial consequence for the government.

Lord Hunt of Kings Heath, the deputy leader of Labour peers, said ministers were “hiding behind parliamentary procedure to curtail consideration of the amendments that we passed. If the government continues to do this on these bills, our role as a revising chamber is effectively undermined”.

The former lord chancellor, Lord Mackay of Clashfern, who led the Lords rebellion against charging single parents for using the Child Support Agency, said it was a “waste of taxpayers’ money at a time of considerable austerity” for peers to pass amendments that were subsequently rejected out of hand.

Lord Strathclyde, the leader of the Lords, said the procedure of invoking financial privilege was “well precedented” and “nothing unusual”.

He said: “The matters of privilege are not a matter for the government but a matter for the House of Commons – the Speaker of the House of Commons on advice from his clerks. The position of privilege has been jealously guarded by the House of Commons since 1671.”

He added: “I do not think we waste our time in debating these issues. We do not insist on all the amendments we pass in this House. We send them back to the House of Commons to get the government and the House of Commons to think again. If they have thought again and invoked financial privilege I think we should let the matter rest.”

In the Commons, Menzies Campbell, the former Liberal Democrat leader, was one of four of his party to rebel over imposing a one year limit on means-tested employment support allowance.

His party conference had voted against an arbitrary time limit in the autumn, but Jenny Willott, the party’s social security spokeswoman, voted for the one year limit, arguing that the Lords amendment of two years was also arbitrary. She said evidence showed the work capability assessment, the test used to determine if a claimant qualified for ESA, was improving.

Of the Liberal Democrat peers 12 rebelled on the so-called bedroom tax, for cutting benefit over “under-occupied” housing.

However, a nine-month grace period was announced before the £26,000 cap is imposed for someone made unemployed through no fault of their own, and who was in work for the previous 12 months; and a discretionary £80m fund in 2013/14.

Grayling said: “There is agreement that it is wrong to pay people who do not work more in benefits than people earn on average when they work. The cap sets a firm upper limit to total benefit entitlement which, for families and lone parents, will be equivalent to the average wage for working households”.

At Prime Minister’s Question Time David Cameron repeatedly challenged Labour to support the threshold, saying: “The cap is right and the cap is fair.”

Grayling said the public “overwhelmingly” supported the Government’s stance and accused Labour of being guilty of “flip-flopping” on the issue, initially supporting a benefits ceiling before the party’s peers supported an amendment in the Lords to exclude child benefit from any cap.

The Government also said it would not make any changes to its proposals to force those living in council houses that were bigger than they needed, to move.

The Lords had proposed social landlords could only force a tenant to move to a smaller home if a social landlord could offer alternative accommodation, which was supported in the Commons by Lib Dem deputy party leader Simon Hughes.

But the employment minister Maria Miller said the changes were needed to relieve the pressure on social housing and free up one million empty free rooms to help families in over-crowded accommodation. She said the average cost of the measure would be £14 a week.

In other reforms reimposed by MPs in six hours of debate: people who are recovering from an illness or injury will get contributory Employment and Support Allowance for one year, half the period that the Lords decided.

The limit would also apply to some cancer patients, despite moves by peers to exempt sufferers from the time limit.

Commons Votes Overturn Lords #WRB Amendments

February 2, 2012

My dear friends, we have some very scary people running our country.  All I can say is that David Cameron is very, very good at keeping his personal and professional lives separate, because even Ivan would not have escaped this lot.

Welfare Reform: The Dread Of Things To Come

February 1, 2012

Just a quick plug for this new e-book from Soundings:

ebook coverWelfare Reform The dread of things to come
The contributions to this short ebook have been written in the moment of political campaigning. They bear witness, employ argument and offer statistical evidence to challenge the way both Labour and the Coalition governments have designed and implemented welfare reforms.

Contributors: Peter Beresford, Declan Gaffney, Kaliya Franklin, Steve Griffiths Sue Marsh, Jonathan Rutherford

It is free to view online.

Syndrome Without A Name

February 1, 2012

A mother from Stafford is trying to raise the profile of a genetic condition that means her daughter has barely developed since she was four months old – and is unlikely ever to walk or talk.

Emma Hawley’s youngest daughter, Jessica, now 18 months old, has a condition which has come to be known by the generic term, Swan, which stands for Syndrome Without A Name.

The number of children affected is not known, but Mrs Hawley is calling on members of the public, and even doctors, to be made more aware of the problem.

She said she sensed early on there was a problem with her daughter.

“She just stopped developing. She just fell off all of her weight charts and used to just lie there in a world of her own.

“By four of five months, you start expecting them to smile and follow you round a room.

“I starting doubting whether it was myself thinking there was a problem, and as a family, you don’t like to admit to each other that you think there’s something wrong.”

‘Constant emotional rollercoaster’

Doctors initially said Jessica had reflux and prescribed medication but after six weeks Jessica was still no better.

By this point, Emma was extremely concerned; having had one child already, she knew that Jessica hadn’t reached some of her important baby milestones.

Jessica endured numerous tests to see if medical experts could find out what was wrong, but all came back negative.

Finally, they decided to take Jessica to a private consultant who arranged for an MRI scan, which showed there was something wrong; and that Jessica may never walk or hold a conversation.

Swan UK is a charity that offers support and information to families of children with undiagnosed genetic conditions.

“You have no idea what the future holds for a child,” said Lauren Roberts, from Swan UK.

“If you don’t have a diagnosis, you don’t know if they’ll ever walk, or talk, or what their life expectancy might be.

“You spend your whole life going through this constant emotional rollercoaster of test after test coming back negative and no-one being able to give you any answers.

“They can have their entire genetic code sequenced, but we still can’t find the root of the problem.

“It’s mainly because it’s such a tiny change in their genetic code that doesn’t get picked up in the tests.”

Ms Roberts said the charity had been going for six months and they were already helping more than 250 families.

“It’s estimated that for children with learning difficulties somewhere between 30 to 50% might have a condition that’s unknown.

“When families come to us, it’s often common themes: they feel incredibly isolated, they feel like they’re living in this kind of limbo-land because no-one can give them any answers.”

Mrs Hawley has taken Jessica to baby swimming classes since she was five weeks old. As a baby swimming instructor, she realised this was one way that she could help Jessica.

Raise awareness

Without a diagnosis or treatment plan, she could not make her daughter better, but getting her in the pool and floating in the water, she thought she could at least aid Jessica’s muscular development.

“Being weightless in the water, Jessica is able to float and paddle easily. She finds it hard to put weight on her legs on land, but in the water she is equal to other children her own age.

“It is such a relief to see her in the water, floating and enjoying splashing about without a care in the world, just like any healthy child.”

The couple remain optimistic and continue to fight to find out what is wrong with Jessica, however they are beginning to come to terms with the fact that they may never find out.

But they hope to raise awareness of the condition in medical circles and to help other families suffering similar experiences.

“We went to Birmingham’s Children’s Hospital in December and we saw the paediatric consultant there, and I said ‘she’s got a Swan, a syndrome without a name, and he went ‘Oh I’ve never heard of that one.’”

“At the moment I’ve got nothing to research… Google’s a lovely thing, but it’s also a bad thing, because you just latch onto anything.”

Disability Charity’s Bus Stolen In Manchester

February 1, 2012

A Greater Manchester charity that transports people with disabilities has been left “sickened” and “let down” after thieves stole its minibus.

The white 10-seater bus, owned by Trafford Wheelers, was taken from outside a house in Derbyshire Lane, Stretford, between 02:00 and 07:00 GMT.

Police said it has logos on it and is easily identifiable.

Charity manager Helen Hines said: “I am just so sickened someone would take it. It is obviously for disabled people.”

The Citroen minibus, which has rear wheelchair access, was bought by the charity using grants and fundraising.

‘Let people down’

“We call it a minibus, but it is basically an ambulance. We used it to transport people who cannot get around by themselves,” Miss Hines continued.

“We have already had to let people down today, who have now had to stay at home. Their families have had to arrange care or stay off work to look after them.”

Trafford Wheelers is a cycling-based charity that transports people with disabilities to various parks, trails and venues so they can ride.

Police have asked anyone with information to contact them.

Train Hits Mobility Scooter Woman At Station

February 1, 2012

A woman is believed to have escaped with minor injuries after her mobility scooter fell on to a railway track and was hit by a train.

The incident happened at about 14:30 GMT at Barnsley railway station in South Yorkshire.

British Transport Police said although the full extent of her injuries is not known, it is thought she escaped with minor injuries and shock.

The woman was freed by the fire service and airlifted to hospital.

EasyJet’s Profits Come At Too High A Price

February 1, 2012

For disability rights campaigner Tanvi Vyas, considering the way the airline treats disabled people. I must add that I sincerely agree with every word of her Comment Is Free article.

Government’s Seventh #WRB Defeat In Lords Over Children’s DLA

January 31, 2012

The government has suffered a seventh defeat in the House of Lords over proposed changes to the welfare system.

Peers rejected plans to cut some of the benefits given to children on the lower rate of Disability Living Allowance.

Ministers had wanted to reduce the amount of money paid to disabled children who do not need care at night – such as the profoundly deaf or those with Down Syndrome.

But peers voted down the proposals by 16 votes.

The government has suffered a series of defeats in the Lords, principally on its proposed £26,000 cap on total benefits for families and proposed changes to employment and support allowance for cancer patients.

Ministers have insisted that they will seek to reinstate the proposals when MPs reconsider the plans – starting on Wednesday.

Ahead of Tuesday’s vote, the government said the proposed change to Disability Living Allowance would help to direct more support towards the most severely disabled who do need round-the-clock care.

But critics argued the change would see many families losing as much as £1,400 a year.

Labour Should Thank Goodness For Councillor Andrew MacKenzie

January 31, 2012

And his weekend Tweets about disabled protestors, says J C Duncan.

Former Soldier Chris Gwilt, Now Deaf, Joins Mount Everest Group

January 31, 2012

A former soldier from Lincoln has joined a group of injured servicemen who are training to climb Mount Everest to raise £2m for the charity Walking With The Wounded.

Chris Gwilt, who lost his hearing in a grenade attack while serving in Afghanistan in 2009, said he wanted to make more people aware of injured and disabled soldiers.

Singing Teacher Has Rare Speech Disorder

January 31, 2012

A singing teacher, who once auditioned for the Spice Girls, is trying to raise awareness of the rare neurological condition that’s paralysed her voice box.

Lianne Morgan, from Cowbridge in the Vale of Glamorgan, is still able to sing but she finds speaking very difficult.

She has been diagnosed with Spasmodic Dysphonia – and plans to set up a self-help group for fellow sufferers.

Nick Palit reports.

Erin Brockovich And The Mystery Illness

January 31, 2012

No, readers, it’s not a sequel to the 90s Hollywood movie. This time, I’m talking about the real life environmental activist Erin Brockovich, who is trying to solve the mystery of an illness at a New York high school. It sounds and seems like a severe form of Tourettes to me- what do people think?

On a lighter note, perhaps it might lead to a sequel!

High school students in the small community of Leroy, New York State, have been coming down with strange tics and verbal outbursts, with no obvious cause.

Some medics believe their symptoms are brought on by mass hysteria, but now environmental activist Erin Brockovich has said she believes a toxic chemical spill 40 years ago could be to blame for the mysterious illness.

The BBC’s Laura Trevelyan reports.

London 7/7 Survivor Daniel Biddle Creates Access App

January 31, 2012

He first featured on Same Difference in 2010. It’s lovely to read this.

A severely injured survivor of the 7/7 bombings has created a smartphone app to help people with disabilities travel around London more easily.

Daniel Biddle lost both his legs, spleen and left eye after a bomb exploded on a tube train in July 2005.

His Ldn Access app details step-free access, ramps and usable toilet facilities at thousands of venues.

Mr Biddle says he created it after finding that his wheelchair had made many venues become inaccessible.

“What happened on 7/7 robbed me of the ability to just go anywhere,” he said.

“I can think of numerous instances where I’ve stopped somewhere to use the toilet or gone to a restaurant only to find it is impossible. There is such a lack of useful information for people in a wheelchair, those with learning difficulties or people with a visual or hearing impairment.”

Icon controls

Venues covered by the program include hotels, theatres, restaurants, pubs and attractions.

The app was created with the help of Mr Biddle’s friend Tobi Collett.

It works by using location-based technology to pinpoint where a user is, providing intuitive icons and simple terminology to make their choices from, breaking down bigger categories such as restaurants into smaller specific ones such as Chinese or Indian.

Tapping the icons brings up the information needed to make an informed choice as to whether a destination will meet the needs of the user’s disability.

Mr Biddle said: “We made the app very intuitive because someone with dexterity problems, or arthritis in their hands, may not be able to type out long words. It’s just a simple push on a simple icon.”

The app also contains a section devoted to the Olympics, with accessibility information for each venue and nearby places to visit.

It also works offline, meaning even being underground on the Tube is no barrier to knowing where it is possible to get off easily.

Improved access

The two friends first came up with the idea nearly a year and half ago, after which they provided the necessary information to a professional coder.

“We had to identify which venues we wanted to list based on location and accessibility, then use each venue’s website and a telephone access audit where necessary,” said Mrs Collett.

“To double check we then took to the streets and visited random locations listed in the app.”

The program differs from other related apps on the market, including Parking Mobility and Toilet Map, because it is not limited to specific tasks such as where to find a disabled parking bay or an accessible public lavatory.

Instead there it offers a wider range of access information covering everything from bingo halls to the Wembley Arena.

The Leonard Cheshire Disability charity is already involved with another app – Do Some Good – which allows people to rate the accessibility of their local high street, but it welcomed the idea of other developers offering associated software.

“A directory of accessible places is a very useful tool. 40% of disabled people that we surveyed reported they’d had difficulties using shops and services in the past year,” said Guy Parckar, the organisation’s campaigns manager.

At present Ldn Access only works on Apple’s iOS devices after becoming live last night on the tech firm’s App store.

But Mr Biddle and Mrs Collett hope to reinvest money earned from downloads to create versions for Blackberry, Android and Windows Phone, as well as similar programs for other cities across the UK.

“With this app we hope to use the latest technology to change people’s mindsets and show how the disability isn’t the problem, the lack of access is the problem,” said Mr Biddle.

“Technology can be great for improving independence and we hope this allows the disabled to decide what they want to do, and just go out and do it.”

Spending Cuts May Affect Warwickshire’s Deaf Pupils, Says Charity

January 31, 2012

Deaf children in Warwickshire may fall behind in school as a result of funding cuts, a charity says.

The county council has begun charging schools for specialist support for deaf pupils with “lower levels of need”, a Freedom of Information request found.

The National Deaf Children’s Society (NDCS), which put in the request, fears the pupils’ education will suffer as schools cannot afford the extra funds.

The council said it was carefully monitoring any impact of the changes.

NDCS and parents of some of the pupils have launched an online petition calling for the council to reverse the move.

The charity says the change affects 100 out of 230 deaf pupils in the county and means at least 63 schools will not receive additional funding for specialist staff.

‘Highest needs’

Jo Campion, deputy director of policy and campaigns at NDCS, said: “The support that deaf children need in schools is not a luxury.

“This isn’t an optional extra that you can just have when you want it – it’s essential support that deaf children need in order to learn.”

She said deaf children were already underachieving at school and said 74% in the region failed to get five good GCSES.

The council said it had to focus its resources on children and young people with the highest needs, whatever their need or disability.

“The council is committed to providing support to deaf children who are not yet in school and those in school with higher levels of need from the council’s own resources in line with our statutory responsibilities,” a spokesman said.

“It is the responsibility of schools to provide for children with lower levels of need and schools are developing their skills and expertise to do so with the opportunity to buy additional support from the council if required,” he added.

The council said it was soon to meet NDCS representatives to discuss its provision, which it was closely monitoring.

Hollyoaks Searching For Actor To Play Deaf Teenager

January 30, 2012

Hollyoaks producers have begun searching for an actor to play a new deaf character.

The Channel 4 show’s bosses are casting for 16-year-old Mikey, who will initially appear as a guest on the soap, Digital Spy reports.

The character – who could become a permanent fixture in future – is also set to be at the centre of an online spin-off which will tie into his TV role.

A web advert for the part reveals: “Hollyoaks is looking for a deaf actor over 16 years old. This is a brilliant role for a young deaf actor.

“After a few initial episodes, the role will feature heavily in ground-breaking online material, before returning to the show and potentially becoming a regular character.

“Actors can be fully or partially deaf, must be able to communicate in sign language, and must be either 16 or older and able to realistically play 16.”

Student Almost Blinded By Fake Vodka

January 30, 2012

 

In November, Sheffield University student Lauren Platts bought a cheap bottle of what she thought was vodka, for £5.99.

She says the man in the off-licence jokingly said ‘It will blind you’. Miss Platts said she laughed at the time but now she thinks he was not far wrong.

After drinking about a third of a bottle mixed with lemonade she spent the next two days unable to get out of bed.

After speaking to Trading Standards officers, she now knows it was not vodka at all.

“I had the worst migraine ever, I was extremely sick, with blurred vision. On the second day I wondered whether I’d ever get better.”

Two months on and the 21-year-old from Chesterfield in Derbyshire still has blurred vision and regularly loses peripheral vision.

“I’ve been sent home from work because of the vision problems. It’s really scary. I think I might have it for good, but I’m just grateful to be alive or not completely blind,” she said.

Miss Platts now knows what she drank was industrial alcohol.

Often methylated spirit is mixed with bleach to change the colour of the alcohol, so it resembles vodka.

Other chemicals like isopropanol, used in cleaning fluids, and chloroform, used in pesticides, have also been found in bogus brands.

Police and Trading Standards say the illegal industry is becoming more sophisticated.

In Boston, Lincolnshire, in July, five men died in an explosion at an industrial unit. Police later confirmed they had found a filtration plant for making fake vodka within the small building.

Miss Platts’ symptoms are classic signs of someone who has consumed methanol and other chemicals, often used by illegal brewers.

She is among a growing number of vodka drinkers, especially students, who are seeking out cheap brands. Universities in Sheffield and Leeds reported a spike in counterfeit alcohol in student areas in November.

The student welfare officer at Sheffield University, Matt Denton, said they had posted warnings on their website.

Students have described feeling extremely ill after drinking what they thought was cheap vodka, and some have suffered memory loss.

Trading Standards teams across the country say they are seizing illegal alcohol every week.

A consultant at Lincoln County Hospital, Vikas Sodiwala, said patients were turning up at casualty departments showing similar symptoms to Miss Platts – dizziness, nausea, stomach pains, vomiting and blurred vision.

He said they had bought it at off-licences, drank it at a party, or even got it from car boot sales.

“Methanol can attack the optic nerve at the back of the eye. This is what can affect a person’s vision and in some cases make them blind,” he said.

“I’m hearing this is now a nationwide problem and other colleagues in the East Midlands are reporting an increase in patients who don’t realise they’ve consumed industrial alcohol not vodka.”

A spirits industry expert has warned the bootleg factories where the fake vodka is made are a disaster in the making.

Ed Binsted, president of the British Bottlers Institute, said: “These places are like timebombs. Look at what happened in Boston with the five men who died in the unit there where fake vodka was found.

“These places are popping up all over the country. The industry needs to be one step ahead of the bootleggers – they’re getting better at forging the bottles and labels. But the contents are lethal.”

Miss Platts’ story is featured on BBC Inside out in the East Midlands, at 19:30 GMT on Monday.

Three Thousand Posts

January 30, 2012

It’s hard to believe I’m writing this, readers. After four and a half years, this is this blog’s 3000th post!

I am pleased to say it continues to grow every day. I just wanted to take this chance to send out a big thanks to each and every one of you.

With best wishes as always

Samedifference1

:Lib Dems Must Listen To Members On #WRB

January 30, 2012

Says Lib Dem blogger George Potter at Comment Is Free.

Disabled People Encouraged To Use Trains

January 30, 2012

Personally, I rarely use any public transport, as it is physically impossible unless someone is with me. But I thought this might interest some of you.

There has been an increase in the number of passengers with disabilities who are choosing the rail network to get around.

The industry says it is because of so many improvements made to stations and trains over the past decade, but it also understands that more needs to be done.

The BBC’s Graham Satchell has been testing some of the changes.

Rod Liddle’s Attack On Disability Cannot Be Ignored

January 30, 2012

Says Frances Ryan at Comment Is Free.

Photos From The March For The Invisible

January 30, 2012

 

Best Of The Rest: A Round Up Of Posts On The March For The Invisible

January 29, 2012

Here’s a little round up of blog posts on yesterday’s March For The Invisible in London. If you took part, please let us have a link to your post to add to this list.

‘Unwashed’ Disabled Protestors Should Move To North Korea, Tory Councillor Tweets

January 29, 2012

This is one of those rare times when I break my own comments policy and swear. In all seriousness- what the Hell?

(Thanks to Sunny Hundal).

March For The Invisible Blocks Oxford Circus

January 28, 2012

Disability activists and UK Uncut stop traffic for two hours, chaining themselves together across Regent Street in a demonstration against the welfare reform bill.

The BBC Covers The March For The Invisible In London Today

January 28, 2012

Activists campaigning for people with disabilities are carrying out what they are calling a “disruptive act of civil disobedience” in London today to protest against the government’s Welfare Reform Bill.

The campaigners from disability groups and the group, UK Uncut argue that the new policies will cause hundreds of thousands of families to lose their homes or become “imprisoned” inside.

The government argues that the universal credit will create a simpler and fairer system of support for disabled people.

Adam Lotun from the campaign group Disabled People Against Cuts spoke to BBC Breakfast about why he is attending the protest.

Right To Die Man ‘Martin’ Wins First Step Of Case

January 27, 2012

I covered his case last year. This is an update.

A man who was virtually paralysed by a stroke has won the first step in his legal bid to pursue his right-to-die.

Known only as Martin, he would require professionals to help as his wife has said she will not assist him.

But current guidance suggests they may be prosecuted, where loved ones would not, and Martin’s case is this discriminates against him.

This High Court judgement means lawyers and doctors can discuss assisted dying with him, but only to prepare his case.

Third parties

In the High Court, two senior judges – Lord Justice Toulson and Mr Justice Charles – said it was a “tragic case” which raised legal and ethical issues.

They said that, in order to prepare his case properly, his team needed to be able to talk to individuals or organisations – including Dignitas in Switzerland – which might be able to assist Martin, 47, in ending his life and to take statements from him.

They permit those discussions for the “broad purpose” of “stating that the solicitors may obtain information from third parties and from appropriate experts for the purpose of placing material before the court and that third parties may co-operate in so doing with out the people involved acting in any way unlawfully”.

Rosa Curling, from solicitors Leigh Day & Co who are representing Martin, said: “We are grateful for the court’s judgment handed down today, which confirms that we can press ahead with the preparation of our client’s case without fear of criminal and/or disciplinary action being taken against us.

“Martin has made clear to us that he wishes to end his life and, thanks to the judgment handed down today in the High Court, we can now proceed with preparing his legal claim.

“We can instruct doctors to advise him on his options regarding his wish to die and also take steps to identify an individual who might be willing to assist him in taking his life.”

However, Martin’s lawyers made it clear the ruling was specific to this case.

Full-time care

Before Martin’s stroke in 2008 , he was a keen rugby player and cyclist. But he is now immobile, only able to move his head and his arms, toes and throat slightly and relies on full-time carers.

He cannot speak and relies on a computer to communicate.

Martin wants to go to the Dignitas centre in Switzerland in order to die, but would need help from others to do so.

Assisting suicide is against the law but in 2010 the Director of Public Prosecutions published guidance for use by prosecutors in England, Wales and Northern Ireland.

The guidelines have been interpreted as providing some reassurance to family members who help relatives to die.

But there is a fear that prosecution could be more likely if the person involved is “acting in his or her capacity as a medical doctor, nurse, other healthcare professional, a professional carer (whether for payment or not), or as a person in authority”.

Since Martin does not have a close family member willing to assist him, he decided to challenge the guidelines.

James Delingpole Has Joined Rod Liddle’s Party

January 27, 2012

I’ve never heard of him, but it seems he’s another scribbler of rubbish.

Rod Liddle has just incurred the wrath of the disability lobby by having a go in his Sun column at “pretend disabled” people. Included in this category, Rod decided, were people with fibromyalgia and ME. Lots of people queued up Twitter to say how horrid they thought he was, wishing he would succumb to some kind of disability himself, etc.

I suppose, having recently suffered from an ME-like illness I should be one of them. But unlike Rod’s Twitter critics I took the trouble to read the full article and I think Rod’s point is well made. There really are far, far too many people sponging off the taxpayer right now with their fake or exaggerated disabilities and they’re one of the reasons we’re in the financial mess we’re in.

One of.

Disability; anti-racism; diversity; anti-homophobia; anti sex-discrimination; etc: every one of these has its specialist lobby group which considers it its bounden duty to screw the economy for as much as it possibly can. Sometimes it does so directly, through entirely unnecessary government offshoots like the Equality and Human Rights Commission; sometimes it does so indirectly, via all the various forms of swingeing anti-discrimination legislation and regulation and inconvenience imposed on private business.

And amazingly the government actually pays these lobbyists to grumble and campaign for even more stringent, costly legislation and regulation. A report last year from the Taxpayers’ Alliance showed that in 2007/8 over £37 million of our money was spent on our behalf, so that hard-left organisations like Friends Of The Earth and the New Economics Foundation can campaign for more encroachment in our lives by the overweening state.

This isn’t going to last. It cannot last. Future historians are going to look back in astonishment at the lunacy of an age when, according to one government definition from the New Labour era, fully 11 million people – that’s a quarter of the adult population – qualified as disabled. Where does the money come from?

Three places: taxation; inflationary money-printing; borrowing.

Every time the disability lobby squeals for more another few jobs are lost, another few basis points are lost from GDP growth. But these people don’t care; they know better than that: the government owns a magic money tree and its ability to distribute the fruits thereof is boundless.

Global Game Event Considers Disabled Gamers

January 27, 2012

From the Guardian’s Games Blog:

Thousands of coders are taking part in a global game development challenge, and many are being encouraged to consider a specific audience: gamers with disabilities

Autism Risk Shows From 6 Months Says New Study

January 27, 2012
It may be possible to detect autism at a much earlier age than previously thought, according to an international team of researchers.A study published in Current Biology identified differences in infants’ brainwaves from as early as six months.

Behavioural symptoms of autism typically develop between a child’s first and second birthdays.

Autism charities said identifying the disorder at an earlier stage could help with treatment.

It is thought that one in every 100 children has an autism spectrum disorder in the UK. It affects more boys than girls. While there is no “cure”, education and behavioural programmes can help.

One of the researchers, Prof Mark Johnson from Birkbeck College, University of London, told the BBC: “The prevailing view is that if we are able to intervene before the onset of full symptoms, such as a training programme, at least in some cases we can maybe alleviate full symptoms.”

His team looked for the earliest signs of autism in 104 children aged between six and 10 months. Half were known to be at risk of the disorder because they had on older sibling who had been diagnosed with autism. The rest were low risk.

Older children with autism can show a lack of eye contact, so the babies were shown pictures of people’s faces that switched between looking at or away from the baby.

Sensors attached to the scalp looked for differences in brain activity.

In low-risk babies, or high-risk babies that did not develop autism, there was a large difference in the brainwaves when looking at each type of image.

There was a much smaller difference in the brainwaves of babies who developed autism.

‘Very effective’Prof Johnson said: “It is important to note it is not a 100% predictor. We had babies who flagged up warning signs who did not develop autism.”

There were also babies who did develop autism who had low-risk brainwaves. The test would need to be more accurate before it was used routinely.

Prof Tony Charman, Centre for Research in Autism and Education at the Institute of Education, said: “Differences in the use of eye gaze to regulate social interaction are already a well-recognised early feature in many children with autism from the second year of life.

“Future studies will be required to determine whether measurements of brain function such as those used in our study might one day play a role in helping to identify children at an even earlier age.”

Christine Swabey from the charity Autistica said: “The hope is that this important research will lead to improved identification and access to services for future generations.

“Ultimately, the earlier we can identify autism and provide early intervention, the better the outcomes will be.”

Dr Georgina Gomez-de-la-Cuesta from the National Autistic Society said: “Further research to investigate these differences will eventually lead to earlier recognition of the condition.

“Early intervention is very effective in supporting those with autism, so recognition in infancy can only be beneficial in helping individuals with autism reach their full potential.

“However, this important research is still in its early stages, and larger studies looking at several early markers of autism will be necessary before a robust clinical diagnosis could be possible at such a young age.”

Lib Dems Urge Nick Clegg To Back #WRB Lords Amendments

January 27, 2012

Nick Clegg is coming under unprecedented private pressure from his own party to back a string of Lords amendments designed to protect children and those with disabilities from the impact of the government’s welfare reforms.

A letter from more than 50 former Liberal Democrat parliamentary candidates in the 2010 election has been sent to Clegg urging him to respect party policy and vote to allow disabled people to retain employment support allowance for at least two years without being means tested.

The letter, passed to the Guardian, warns more than 800,000 people with disabilities will be hit by the reforms, and expresses deep concern that the employment minister, Chris Grayling, has said the government defeats in the Lords will be overturned.

Liberal Democrat MPs are also being called to a meeting with campaign groups and charities to hear the case for backing a Lords amendment that excludes child benefit from the planned £26,000 cap on benefits.

The government has vowed to overturn all six amendments passed by peers during the bill’s report stage and will be pushing the issue to a vote in the Commons next Wednesday. The co-ordinated pressure from Liberal Democrat grassroots is designed to force the government to make concessions that ministers have so far insisted will cost billions, and will only add to a dependency culture.

In another warning shot, the party’s federal policy committee will meet after next week’s Commons vote to discuss its response if Lib Dem MPs vote against agreed party policy.

Clegg has also been under private pressure from the party’s deputy leader, Simon Hughes, to either accept the Lords amendments or find some other way to prevent family break-ups.

Labour will be tabling its own proposals on the cap shortly, aware that a cap is highly popular with some of its core supporters.

One of those organising the pressure on Liberal Democrat MPs, Gareth Epps, a member of the party’s policy committee, said: “Underpinning the vote are a series of fault lines that have the potential, if mishandled, to make the fiasco over tuition fees look like a picnic.”

The letter from the 50 former parliamentary candidates to Clegg states: “Contributory employment and support allowance is a benefit given to people who have had to stop work due to ill health or disability, but who are well enough to return to work at some point. It is only given to those who have paid sufficient national insurance Contributions during their working life. Some disabled people will be able to return to work, but many will need more time and support to do so.

“The Department for Work and Pensions estimates that 94% of disabled people will take longer than a year to find work. This means that many who remain unemployed after these 12 months will lose all benefit support.

“That would mean that, by 2015/16, 700,000 people would be affected and 280,000 would lose their entire benefit payment – currently £94.25 per week.

“We are deeply concerned that the minister, Chris Grayling, has already indicated he intends the welfare reform bill to pass without the amendments on contributory ESA when the bill returns to the Commons.

“At federal conference we passed a motion which said we should not have an arbitrary time limit on cESA.”

It concludes: “We believe you and Lib Dem parliamentarians should uphold party policy and principle and only support the welfare reform bill with the amendments passed in the House of Lords.”

George Potter, the mover of the motion on ESA at the party’s autumn conference, described the voting of some Liberal Democrat peers over the past fortnight as “shameful, illiberal and flying in the face of democratic institutions of the party”.

In fact, fewer than half the Liberal Democrat peers voted with the whip on ESA and even more rebelled on charging single parents for the use of the CSA.

Epps also warns of a car crash if the MPs ignore the party’s own policy. He warns: “We did not vote overwhelmingly in September to oppose the ESA changes for cancer sufferers just so our elected representatives could do the opposite.

“If we did, then why not tear up any pretence of being a democratic party, abolish conference and let Danny Alexander and a few unelected advisers write the manifesto on their own?”

Epps insists he supports the principles behind the welfare bill, and recognises the government has won concessions on other issues.

Rod Liddle’s Back- And This Time He’s In The Sun

January 26, 2012

Remember Rod Liddle, readers? I didn’t- well not until about half an hour ago, anyway. That was, until I found out that he scribbled this load of rubbish for the Sun today. (The second  link will take you to a ‘freezepage’ with many thanks to the brilliant @latentexistence- for some reason between 11.41am and now, the online version of the piece seems to have disappeared. However the lovely people at Political Scrapbook have got a picture of the page as it appears in the printed paper.)

The text:

MY New Year’s resolution for 2012 was to become disabled.

Nothing too serious, maybe just a bit of a bad back or one of those newly invented illnesses which make you a bit peaky for decades — fibromyalgia, or M.E.

There’s lots of money to be made from being disabled — your money, taxpayers’ money, as it happens.

And it is far easier to be disabled these days than was ever the case.

Also, I am nothing if not a creature of fashion, a cool and with-it hipster, daddy-o, who is always up to date with the latest trends.

And being disabled is incredibly fashionable. The number of people who claim to be disabled has doubled in the past ten years.

And who can blame them? Not only do you get money from the Government and don’t have to go to work — but if you play your cards right you might get one of those badges which lets you park wherever you want.

Right in front of the cashpoint, for example. And you can use those enormous toilets with levers and handgrips and emergency buzzers they have in all public places, without feeling too guilty about it.

The latest figures regarding incapacity allowance came out this week. It is now estimated that 80 per cent of people who are claiming sickness benefit are actually fit to work. What’s more, almost a million people have been on Invalidity Benefit for more than a decade.

When you suggest that this is a public scandal, the disabled charities get very cross and accuse you of victimising the infirm.

But I’m not, I’m victimising the people who are pretending to be infirm in order to claim money from the state.

Or at least, I’m trying to: I don’t suppose it will have much effect. Just water off their supposedly bad backs.

Then the Left-wingers will say — hang on a minute, you fat old fascist, more money is lost to the country as a result of tax avoidance by the very rich than is wasted through sickness benefits.

Well, maybe it is. And the Government should deal with that with a bit more vigour than they do right now.

But it still doesn’t make fraudulently claiming sickness benefit OK, does it?

That’s like saying we shouldn’t get worked up about crimes such as rape because murder is far worse.

It’s a silly argument.

More than anything, though, the people fraudulently claiming sickness benefit are doing a disservice to those who really deserve it: The people who are truly disabled or ill. It has become easier to claim these benefits, partly as a consequence of the disablement charities who, out of their own self-interest, insist that an ever-greater proportion of the population is disabled.

I think we should all pretend to be disabled for a month or so, claim benefits and hope this persuades the authorities to sort out the mess.

Disabled bloggers and Tweeters  are getting their own back on him and having the last laugh. They are far stronger than me- I feel like screaming, then crying, but I know that won’t help which is why I have simply linked them instead.

Broxtowe Borough Council Leader’s Incapacity Benefit Fraud Charge

January 26, 2012

What do you think of this case, readers? He is clearly disabled and so entitled to some benefit…

The leader of Broxtowe Borough Council has been charged with benefit fraud of more than £45,000.

Milan Radulovic, 56, of Cross Street, Eastwood, is accused of failing to declare council allowances on an incapacity benefit claim form.

The Labour councillor is due to appear in court on 16 March.

Mr Radulovic, of Cross Street, Eastwood was council leader from 1995 until 2007 – the same year he received an MBE – and resumed the position last year.

In 2005, he won a six-figure payout from the Queen’s Medical Centre for suffering serious health problems after an operation.

The politician was left almost blind in one eye from keyhole surgery complications to remove a gallstone.

Medical staff went ahead with the procedure despite Mr Radulovic requesting open surgery.

Injured Soldiers Training To Climb Mount Everest

January 26, 2012

A group of injured soldiers are training to climb Mount Everest for the charity Walking With The Wounded.

For some it is their second challenge, as they took part in a North Pole expedition last year with Prince Harry.

The BBC’s Alison Freeman met some of them in Cumbria.

This Week’s Able Life Slot

January 26, 2012

This week on Able Life, George Johnson and I discussed The Two Worlds Of Charlie F and the Paralympics. Here is what we said.

Debbie Purdy’s Husband Told To Quit Work To Get Benefits

January 25, 2012

I think it is awful that a terminally ill person is being persecuted for something as small as not paying council tax. Just awful. Common sense has obviously gone away from this situation.

A terminally-ill woman being prosecuted for failing to pay council tax says she has been told she would be better off if her husband quit work.

Debbie Purdy said she had been told by the benefits office five times that she would get more benefits if her music teacher husband stopped working.

Ms Purdy, from Bradford, said she had to choose between paying her council tax and buying food.

The government said it did not comment on individual cases.

Advice ‘ridiculous’

Right-to-die campaigner Ms Purdy receives disability living allowance and incapacity benefit. She said if her husband was unemployed they would get further benefits including free council tax, free prescriptions and help paying the interest on their mortgage.

Ms Purdy was summoned to Bradford Magistrates’ Court on Wednesday. Her case was deferred while she sought further advice from the Citizens’ Advice Bureau.

She said: “I haven’t got any money to pay a bit of the council tax. If we pay a bit of the council tax then we just don’t eat.

“I’m terrified of going to court but I’m excited that maybe somebody will listen. The welfare state is not doing what it was supposed to and maybe we have an opportunity to make our voices heard.

“Five different people in the benefits office have said he should stop working and that seems ridiculous. Surely everything that the government is telling us is that work should pay.”

The Department for Work and Pensions said it did not comment on individual cases but that planned reforms of the welfare system would benefit people such as Ms Purdy.

Injured Soldier To Get Bionic Arm That Is Controlled With His Brain

January 25, 2012

As the first British serviceman injured in battle to use a new bionic arm, Cpl Andrew Garthwaite’s story has already been remarkable.

But this week he underwent six hours of surgery at a hospital in Austria at the start of a process to make it even more so – to prepare him to be fitted with an arm he will be able to control with his brain.

The 24-year-old, from South Tyneside, was badly injured in Helmand, Afghanistan, in September 2010 when a Taliban rocket-propelled grenade took off his right arm and killed one of his comrades.

He first had to learn how to carry out everyday tasks with one arm but was delighted to learn he would have one of the latest models of bionic arms fitted.

He could hold a beer and do basic tasks. He could also perform his party trick – rotating his hand 360 degrees.

A technician then designed a new arm so he could ride his motorbike.

Rewire nervous system

He approached it all with a positive attitude and said his optimism was boosted by the support he had from his family, his friends and medics who saved his life.

This arm system, though, has its limitations and Cpl Garthwaite needs to flex his back or chest muscle to achieve a single, robotic movement.

He was then deemed eligible for some remarkable surgery. It involved flying to Vienna, to have what the medics there called Targeted Muscle Reinnervation (TMR), the first step on the process to receiving the arm he will control with his mind.

Speaking before he went, he said: “I’m really excited at going over. A little bit nervous but I think the outcome is going to be great.”

The surgeons at the hospital in the Medical University of Vienna have rewired his nervous system.

He is believed to be the first person from the UK to undergo this cutting-edge technique in the field of bionics.

Cpl Garthwaite said he had been “lost for words” when he learnt that and was “honoured” to have been chosen.

‘Difficult surgery’

Surgeons at the hospital are working closely with bionics company Otto Bock, in Vienna, to create one of the most intelligent bionic systems in the world.

In an operation lasting six hours on Tuesday surgeon Prof Oskar Aszmann and his team worked out which of the mass of tiny nerves from his shoulder joint operated his arm and hand. Once they isolated those, they rewired them into his chest.

After the surgery, Prof Aszmann said: “It all went extremely well.

“It was a surprise to me because he had a shrapnel injury, there was a rocket wound, so normally you have to expect a lot of scar tissue, but it was not the case.

“It was a difficult surgery, but we could identify all the nerves that we wanted to and transfer them to the appropriate targets.”

In the coming months these nerves will grow. Cpl Garthwaite’s mind will work out which nerves do what, and will learn how to control those nerves.

He will then be able to control his bionic arm in such a way that it will become intuitive, unlike the slow robotic movements of his current arm.

He will be able to think several moves and his arm and hand will react naturally. His bionic arm will be thought-controlled.

‘Exciting prospect’

After his complex, remarkable surgery, Cpl Garthwaite too will soon feel a hand on his chest, his own hand.

And, as the nerve endings grow he too will be able to operate his bionic limb by simply thinking about those hand and arm movements.

Prof Aszmann said: “For the first four to five months he will be very numb and not feel anything, but after around six months, he will feel his own index finger and thumb in his shoulder, so when he pinches his shoulder he will say ‘oh this is my index finger or here’s my thumb’.

“That’s really exciting because, in the future we will have little senses in these artificial fingers and they will have direct sensory feedback.”

Before the surgery, Cpl Garthwaite said he was excited at the prospect of having a more natural arm movement and being able to use it quickly rather than the slow process it can be currently and even the possibility of being able to feel hot and cold.

He said: “I still have my down days and I still have flashbacks and memories, which will never leave us, but you just learn to crack on.

“With this new target I have got to hit now, it is keeping my mind occupied.

“You just want to look into the future and just think what’s actually going to happen, how much it’s going to benefit me.”

See more in Look North on BBC1 in the North East and Cumbria on Wednesday 25 January at 18:30.

DaDaFest Wins The Lever Prize

January 25, 2012

A piece of good news about DisAbility entertainment, especially considering this from 2010.

‘Normal People’ Support Government Cuts, Says IDS

January 25, 2012

This statement was revealed to the public on Monday. I’ve been looking for the exact quote and a link to it ever since. So my thanks go out to reader Patricia Smith who has just given me the link on Facebook. I must also, of course, thank the lovely people at Ekklesia who originally posted the quote below on Monday.

Iain Duncan Smith, the welfare reform minister, who has in the past been held up as a standard-bearer for ‘compassionate Conservatism’ has angered critics by claiming that ‘normal’ people support the government’s cuts and changes.

As for IDS, all I have to say to him is: “Sir, what is a normal person, anyway?” If “normal people” support cuts, then in my opinion, no one supports cuts, because in my opionion, there is no such thing as a normal person.

Dear readers, I recall the words of a very good Psychology teacher who once taught me. Whenever she explained a concept that could not be seen, she used to smile and tell us to let her know if we met it walking down the street.

So, if you ever happen to meet a “normal” person on your travels, readers, please do let me know- I’d love to meet one too!

Meanwhile- no one supports your cuts, Mr Prime Minister. A member of your Cabinet has said it himself…

 

No Charges For Man Who Took Wife To Dignitas

January 25, 2012

A man has been told that he will not be prosecuted for helping his wife travel to an assisted suicide clinic in Switzerland, where she took her life.

Aled Owen, from the Conwy Valley took wife, Janet, who had been suffering from multiple sclerosis (MS), to the Dignitas clinic in 2009.

He had been waiting for nearly 18 months to hear if the Crown Prosecution Service would take action.

North Wales Police confirmed no action will be taken against him.

“I was confident nothing would happen and I wouldn’t be prosecuted,” he told BBC Wales.

“To be honest even if I had known that I was going to be prosecuted I would have done it anyway.

“Although I was pleased with the way the police handled it I think the whole process should have been shorter.”

Mrs Owen, 54, worked as a carer for people with Alzheimer’s disease.

‘Surreal’

She was diagnosed with MS in 2004 and managed to continue an active life as someone who enjoyed walking and singing before her condition began to deteriorate.

Mr Owen described his wife as a determined person who had previously made up her mind she did not want to live with a debilitating condition.

“For me it was difficult because I knew what was in store for her so it was a lose-lose situation really,” he said.

“And if I didn’t go with her she would have gone herself. She was a very determined lady.”

He said the hardest part of the “surreal” process was leaving the clinic and returning home alone which he described as “very upsetting”.

In a statement, North Wales Police said: “We can confirm that North Wales Police investigated the matter and it was referred to the Crown Prosecution Service in line with national practice.

“They have reviewed the file and concluded that no no further action will be taken.”

Murder Accused Woman Has Learning Disabilities

January 25, 2012

A woman from Great Yarmouth who denies murdering a neighbour after she had fought with his girlfriend has an IQ of 66, a court has been told.

Shane Boulton, 21, of Stanley Terrace, died from a stab wound after he was attacked on 19 June 2010.

Norwich Crown Court heard that Katy Bown, 18, who has been charged with murder, has learning disabilities.

A forensic consultant psychiatrist, Dr Daniel Dalton, added that she had problems with her “moral reasoning”.

Not schizophrenic

He told the court he had accessed medical reports and records and said Miss Bown had a long-standing history of self-harm, inducing vomiting, consuming alcohol and “explosive violence” in relation to situations with stress, and that she had a history of short, turbulent relationships.

When the prosecution cross-examined him, Dr Dalton said she was not schizophrenic.

The doctor said Miss Bown “spoke of the joy of holding a knife to the neck of a family member” in the past and how she felt a sense of power and control by holding the knife.

“It is very difficult to know whether she thinks before she acts,” he told the court.

Earlier John Farmer QC, prosecuting, said about an argument in the street between Miss Bown and Mr Boulton’s girlfriend, Claire Matheson, and how Mr Boulton, who had been drinking, went outside to separate them.

The fight ended and Mr Boulton stayed outside talking to a neighbour.

Miss Bown went round the corner, back to her home three doors away.

She returned with a knife and stabbed Mr Boulton, Mr Farmer said.

Disabled Man Attacked On Mobility Scooter

January 25, 2012

Two men who attacked a disabled man are being sought by police in Cumbria.

The 55-year-old victim was riding his mobility scooter in the Longtown area of Carlisle on Sunday evening when the pair stopped him by blocking his path.

One of them is believed to have said “go on, hit him” and he was punched in the chest and stomach.

Anyone with information about the incident, which happened at the corner of Lovers Lane and Moor Road at about 17:15 GMT, should contact police.

One of the attackers is thought to have been wearing white trainers while both spoke with local accents.

UK Uncut To Join Forces With Disability Campaigners For Day Of Civil Disobedience In London On Saturday

January 25, 2012

Thank you, Guardian. I’ve been wondering what this was, now I know.

As for my opinion on the day of action itself- I think I’ve said here before that I would not personally want to attend such an event. However, those who do have of course got every right to carry out these actions peacefully and to be completely safe in the process.

Finally, I would like to send out a big thanks to UK Uncut for joining forces with disability campaigners. I know I have said this here before, but it is only when the mainstream start listening that we will really be noticed, and so something will really be done to change our situations. Having the support of a mainstream group that is as well known as UK Uncut makes me feel like the mainstream are finally listening to us. The media will cover UK Uncut- and we will be covered in the process. They will finally see just how far we are prepared to go for our cause. That can only be a good thing.

The direct action group UK Uncut has joined disability activists to plan civil disobedience against the welfare reform bill in London this weekend, which they say will bring chaos to the centre of the capital.

Saturday’s action, billed as “hugely daring and disruptive”, is a shift for UK Uncut from previous action against alleged corporate tax avoiders, such as occupying stores run by Vodafone and the Arcadia retail group. It is forming alliances with campaigners against specific spending cuts it views as being, in part, the direct consequence of reduced tax receipts.

As well as joining with Disabled People Against Cuts (DPAC) for Saturday’, UK Uncut has joined with Fuel Poverty Action, which is planning direct action against energy companies, councils and housing providers, beginning on Friday.

Saturday’s action, labelled “a message from the invisible”, remain secret; those taking part areasked to meet at Holborn tube station on Saturday morning to travel en masse to the location.

A member of DPAC who asked to be identified only as Andy said a “non-violent campaign of mass civil disobedience” would disrupt central London, reminiscent, he said, of protests by disability activists in the 1990s against government cuts and non-accessible public transport, in which people halted traffic in London’s West End by chaining themselves to buses.

Such action was necessary, he said, because the goverment was not listening to disabled people over the welfare reform bill and planned cuts to the disability living allowance, which the charity Mencap believes could lead to 500,000 disabled people losing money.

“We’re seen as an easy target,” Andy said. “It began when they got rid of all those quangos, including groups which help disabled people get their views across.

“Up to now, the voices of disabled people haven’t been heard in this debate. That’s why we feel we have to create a space for our voices. We want to explain what is happening.”

Separately, Fuel Poverty Action has joined UK Uncut to plan events from Friday to Monday against government buildings and the offices of energy companies in London, Leeds and Cambridge, with more promised.

While UK Uncut has existed for little more than a year, its campaigns have given attention on the tactics used by corporations to minimise their tax bills, and the effect this has on government revenue.

The group has targeted Vodafone, which denies claims it saved billions in a tax deal with revenue and customs managers. Lst year, the Commons public accounts committee said HM Revenue & Customs had made secretive “sweetheart” deals with Vodafone and others. UK Uncut has also targeted shops run by Sir Philip Green‘s Arcadia fashion retail empire. Green saved tax in 2005 when a £1.2bn dividend was paid to his wife, Tina, who lives in Monaco, rather than to himself.

In March last year, more than 150 UK Uncut supporters occupied part of Fortnum & Mason, in London’s Piccadilly in London, a protest whichthat led to a controversial trial in which 10 people were eventually convicted of aggravated trespass.

The move towards direct action against cuts is a step for what has become one of the UK’s fastest-growing protest groups. UK Uncut is sympathetic to but sepatarate from the Occupy movement, known in the UK for its long-running camp next to St Paul’s Cathedral in London.

Sarah Evans of UK Uncut said the group believed that measures such as the welfare reform bill were unnecessary and unwanted: “Instead of taking serious action against rich companies’ tax-dodging and their fancy corporate lawyers, David Cameron is instead choosing to make the poorest and most isolated pay for the economic crisis they didn’t cause.

“The tax dodged by Vodafone alone is four times as much as the government hopes to save through this devastating bill. “

Accessing The Olympics

January 25, 2012

The BBC Ouch! blog published this post yesterday which gives lots of useful information about how to access London 2012 as a disabled person.

Road Death Father Died Saving Disabled Son’s Life

January 24, 2012

A pedestrian killed on a road in Cumbria died saving his disabled son’s life, his family has said.

George Tyson was walking with his son on the A5087 at Conishead Bardsea on Sunday when they were hit by a car.

The 61-year-old, of Ulverston, died at the scene. His son, Garry, was injured, but not seriously.

Cumbria Police said that inquiries were still ongoing but early indications seemed to show Mr Tyson had pushed his son out of the way.

A 17-year-old male driver was arrested on suspicion of causing death by dangerous driving and later bailed.

Mr Tyson’s daughter Melanie said on behalf of the family that he died “doing the thing he loved the most”.

“He was walking, as he does most Sundays, with my brother Garry, down the Coast Road towards Ulverston,” she said.

‘Inseparable from dad’

“My dad’s life was cruelly taken away from him, although through various witness statements, the story is blessed with his selfless act of saving the life of my brother.”

She added that her father was a “loyal Ulverstonian”, who was heavily involved in the local community.

“Most people of Ulverston will know him through the long-term care and help he has shown my brother and most people with have at some point seen them pacing through town on their many missions,” she said.

“Garry, who was left disabled following his own tragic accident, was inseparable from his dad and the huge amount of time, care and patience my dad showed will be hugely missed.”

How Jim Mansell CBE Changed The World For People With Learning Disabilities

January 24, 2012

In 1970, there were 60,000 adults and children with learning disabilities living confined, institutional lives in long-stay hospitals. That autumn, a young student newly arrived at Cardiff University agreed to help take a group of children from the city’s Ely hospital to the cinema on a Saturday morning. From that point on, the hospitals stood no chance.

The student was Jim Mansell (pictured). His experience that October day was to change him, his direction in life and, arguably, the very basis of how we support people with the most profound intellectual disabilities. Today, at least in England, the long-stay hospitals have all gone.

Mansell, who went on to become the country’s leading authority on working with people with what is now called “challenging behaviour”, is due on Thursday to receive the CBE, announced in the new year’s honours list. Despite very poor health, he is said by friends to be determined to keep his appointment at Buckingham Palace.

It’s a long way from Ruthin Gardens, Cardiff, where, remarkably, Mansell and three fellow students decided to share a house with five people from Ely – an arrangement that set the pattern for the supported living model that was to enable almost all those in long-stay hospitals to move into the community. Revisiting the house for a BBC radio programme in 2005, Mansell recalled that fateful cinema outing. Ely in 1970 had only recently been the subject of one of the first inquiries into ill-treatment of people then termed “mentally handicapped”, yet conditions remained shocking by present-day standards. The children had shaven heads because lice were endemic, Mansell said, and “I remember not enough underwear, so people [were] wearing pillowcases pinned around them, trousers held up with pins”.

He continued: “We took a crocodile of these children across the road, out of the hospital, and through a council estate to a cinema, and the people on the estate came out … to press money into our hands to buy things for these children because they were in such obvious need. We were so angry about what was going on, we formulated the idea that really these kinds of places shouldn’t exist and people should be able to live in houses with whatever support they needed in the community.”

Within a fortnight, Mansell had called a meeting to discuss Ely’s closure – the idea that he might lack credentials for what he was doing “was actually a question that never occurred to me”.

Ely was not finally to shut until 1996. By then, Mansell had played a pioneering role in the long-stay hospital closure programme in England and was founding director of the Tizard Centre, one of the world’s leading centres of study of learning disability and community care. He had also led work on the definitive official guidance for councils and the NHS, published three years previously, on Services for People with Learning Disabilities and Challenging Behaviour or Mental Health Needs.

He revised and updated the guidance, which became known as “the Mansell report“, in 2007, and in 2010 published a second report for government, Raising Our Sights, which focused on support for people with the most complex needs. There was an underlying and wholly false prejudice, he concluded, that people with profound impairments were “not fully human”.

Speaking truth to power, often bluntly, has been a constant throughout Mansell’s career. Last year, he had no compunction about speaking out over revelations of abuse of people with learning disabilities at Winterbourne View, near Bristol, one of the private hospitals that critics see as recreating long-stay institutions. Writing in the Guardian, Mansell said: “The real solution … is to stop using these kinds of places altogether.”

Now with an array of academic titles, Mansell, 59, is still working when his health allows. As he said of his campaigning days in Cardiff, it would not occur to him to do otherwise.

Disabled Man Died After Lift From Plane At Stansted

January 24, 2012

A minor injury suffered by a disabled man when he was lifted from his aeroplane seat contributed to his death five days later, a coroner has ruled.

Robert Browne, 69, of Norwich, received bruising to his chest when being moved into an “aisle chair” at Stansted Airport, an inquest in Norwich heard.

He died in hospital on 26 September 2010.

Norfolk deputy coroner Jacqueline Lake said the lifting manoeuvre had led to a haematoma in his left chest wall.

Violently sick

Mr Browne, of Gristock Place in the Marlpit area of the city, was returning from a holiday to Spain on 21 September with his wife Jennifer and 11-year-old granddaughter.

He had been paralysed on the left side of his body for 11 years, after suffering two strokes, and needed to be lifted in and out of his aeroplane seat by two people.

Mrs Browne said the armrest could not be moved, which the inquest heard was standard on Thomson flights, and two or three attempts at the lift had caused her husband to cry out in pain.

She said her view had been obscured, but two extension straps intended for seatbelts were then placed under her Mr Browne’s arms to lift him into the aisle chair.

Giving evidence, Integrated Services Solutions (ISS) handlers Stephen Clark and Adrian Koziak said they would have lifted Mr Browne manually as ISS did not use straps, and anything unusual would have been recorded.

Mrs Browne said she had noticed bruising on her husband’s left arm on 26 September, when paramedics arrived to take him to hospital after he was violently sick and “didn’t think he was going to make it”.

‘Serious medical conditions’

He died later that day due to bronchial pneumonia and a large haematoma in his chest wall.

Medication to prevent blood clots meant haematoma could be caused by something relatively minor and become large, pathologist Dr Ahsan Ali said.

Summing up, Mrs Lake said she was satisfied that a manual lift or a lift with straps would have caused bruising.

Giving her narrative verdict, Mrs Lake said: “Mr Browne suffered a minor injury to his chest wall being lifted from an aeroplane seat to an aisle chair, which led to his death, contributed to by a background of underlying serious medical conditions.”

Aardman Changes Leprosy Scene After Complaint

January 24, 2012

Film animation company Aardman is to change a scene in their new film which “pokes fun” at people with leprosy.

Charity Lepra Health in Action objected to the scene in the trailer for Pirates! In An Adventure with Scientists! which sees an arm fall off a crew member on a “leper-boat”.

An Aardman spokesman said it would change the scene “out of respect and sensitivity” for leprosy sufferers.

In a statement, Lepra said it was “genuinely delighted” by the decision.

The scene shows the arrival of the Pirate Captain on board a captive ship, demanding gold.

“Afraid we don’t have any gold old man, this is a leper-boat,” explains a crew member. “See,” he adds as his arm falls off.

Bristol-based Aardman has not commented how the scene has been changed, but says it will be acceptable to leprosy affected people.

One person is diagnosed with leprosy every two minutes worldwide, according to Lepra.

Serving Soldier Killed Disabled Man

January 24, 2012

A serving soldier killed a disabled man in a pub car park in Wiltshire when he punched him during a row, a court has been told.

Pte Daryl Talbot, 21, from Larkhill, appeared at Salisbury Crown Court charged with the murder of 34-year-old Jon Paul Garland on 1 January.

The court was told the University of Plymouth graduate had died from head injuries.

Mr Talbot denies murder and an alternative charge of manslaughter.

Mr Talbot, who was based at the Royal School of Artillery at Larkhill in Wiltshire at the time of the alleged incident, claimed Mr Garland tried to head butt him.

‘Vulnerable victim’

The court was told Mr Garland had a birth defect which left him with arms half the normal length and his hands not formed properly, so was not able to defend himself.

The jury heard Mr Talbot had argued with his girlfriend Alexandra Smith over another man and was angry when he met “vulnerable victim”.

Prosecution barrister Simon Edwards said: “There was no justification for the violence the physically superior defendant used towards Mr Garland that left him severely injured.

“The defendant struck Mr Garland on more than one occasion to the face and head with tragic results.

“He had little chance of defending himself or deflecting the blows because he was disabled in the sense that he had very short arms.

“There can be little doubt this defendant intentionally attacked his victim,” the barrister added.

Mr Garland, who worked in IT for the Ministry of Defence, was found in the car park and pronounced dead at the scene.

The case, which is expected to last five days, continues.

Missing 10 Year Old Boy With Autism Found Safe And Well

January 24, 2012

Some good news.

A missing 10-year-old boy with autism and a speech impediment from Coventry has been found “safe and well”, police said.

Concern for the boy had grown when he ran out of his school in Keresley at about 15:15 GMT.

A West Midlands Police spokesman said they had received reports that he had been found on a train at about 21:00 GMT.

The force helicopter had been used to assist officers with their search.

Marcus Hilton

January 24, 2012

A man from West Yorkshire has become the first person in Europe to take part in an embryonic stem cell trial to treat a rare eye disease.

Marcus Hilton, 34, from Wakefield, suffers from Stargardt’s macular dystrophy (SMD), which causes progressive sight loss.

The disease develops in childhood and affects about one in 10,000 people.

Mr Hilton is the first of 12 patients to be injected with retinal pigment epithelial (RPE) cells into the eyes.

The 34-year-old, who runs two bars in Wakefield, said he was “thrilled” and “excited” to be taking part in the trial.

“I’m over the moon, they have had early results in America showing this treatment could work,” he said.

“It could change many people’s lives – to have some sight restored would be a dream come true.”

Mr Hilton said he was hopeful he could eventually have some sight restored, which would enable him to read books with his four-year-old daughter.

SMD is a hereditary disease that causes loss of central vision.

Mr Hilton’s condition was picked up at school when he was seven years old, but the diagnosis was not confirmed until three years later.

“I was aged about 10 when it was diagnosed by specialists at Moorfields,” he said.

“Besides being unable to drive, having the disease has an impact and I have had to engineer my life around it.

“I would never read out of choice because it is too much like hard work.”

‘Assess impact’

Mr Hilton was injected with the RPE cells during a 90-minute operation at Moorfields Eye Hospital in London on Friday.

“I was put under anaesthetic and they made a small hole in the front of my right eye to inject the stem cells,” he said.

“At the moment, because it was only done a few days ago, everything is very blurred.”

Although it will be years before the treatment is proven, early results from the US suggest the method is safe and could lead to a suitable therapy.

Professor James Bainbridge, who is a consultant surgeon at Moorfields Eye Hospital, led the operation.

He said: “We are very pleased that the first transplant surgery has gone smoothly and look forward to seeing the results as the trial progresses over the next two years.

“While this is primarily a safety trial, we will have the opportunity to monitor engraftment of retinal cells and to assess any impact on sight.”

 

John Newton: Man Jailed For 10 Years For Kidnap And Murder

January 24, 2012

A man has been jailed for 10 years for the kidnap and manslaughter of a Teesside father.

Lee Woodier, 25, who was found guilty of kidnapping in September, has also been found guilty of manslaughter of John Newton from Redcar.

Woodier, of Shelley Road, Middlesbrough, was sentenced to five years each for kidnap and manslaughter at Teesside Crown Court.

John Newton, 45, suffered 60 internal injuries and died in March 2011.

In September, the judge Peter Fox QC ordered a retrial after the jury failed to reach a verdict on the murder charge against him.

Andrew Jackson, 25, George Thomas Jr, 52, and his son, Stephen Thomas, 30, who denied the charges, were convicted of kidnap and murder in September 2011.

Grandfather George Thomas Sr, 77, was cleared of kidnap and murder.

Let Nature Feed Your Senses

January 24, 2012

A press release I’ve just received:

Getting out into the countryside and onto farms need not be difficult thanks to a new initiative called Let Nature Feed Your Senses. Farms and nature reserves across the country are opening their gates and offering free visits to people that currently cannot, or do not, have access to the countryside because of age, ability or social situation.

 

While the very act of taking exercise has undoubted health benefits, numerous studies also show that connecting with nature leads to increased well-being, physically, psychologically and even socially.

 

Let Nature Feed Your Senses is a Big Lottery funded initiative run by farming charity LEAF (Linking Environment And Farming) and Sensory Trust. The project organises memorable sensory-rich farm visits that help connect visitors to nature and the story of their food.

 

Farm visits are available to a huge range of groups of people, including wheelchair users, people with dementia, those with neurological conditions such as cerebral palsy and multiple sclerosis, and those with sensory disabilities, learning difficulties and brain injury.

 

75 farms and nature reserves around the country are hosting Let Nature Feed Your Senses visits. There are sites to meet a variety of needs and hosts will adapt visits to suit different groups’ requirements. Many of the farms are wheelchair accessible with plenty of things to see, smell and touch at wheelchair height. Some farms also offer tramper access.

 

Visits can be booked from now until August 2012. You can search for farms near you via the website www.letnaturefeedyoursenses.org or by calling 0247 6413 911 or 01726 222 900 to speak to a project coordinator.

Adam Spinks

January 24, 2012

A man who was brain damaged at birth in a Bury hospital more than 20 years ago has received a £3.35m settlement payment from the NHS.

Adam Spinks, 24, who has cerebral palsy, was born at Fairfield Hospital in December 1986.

Mr Spinks’ family said he was starved of oxygen due to mistakes at his birth, which led to his disability.

The North West Strategic Health Authority said it wished Mr Spinks and his family “well for the future”.

While the authority has not accepted full liability for Mr Spinks’ condition, it agreed to settle the case by paying compensation at 50% of his claim.

‘Immense relief’

Mr Spinks’ solicitors said that mistakes by his surgeon had delayed his delivery by caesarean section and he had been deprived of oxygen which had contributed to his condition.

Mr Spinks’ mother Jacqueline said: “The past 24 years have been incredibly difficult for the family and we have some tough times ahead, but to know that we have the means to be able to support Adam is an immense relief.

“However, we don’t want any other families to go through the same situation, so we hope that Adam’s case will demonstrate the devastating effects that birth injuries can have and improve levels of care for pregnant women.”

A spokesman for NHS North West said: “The North West Strategic Health Authority is pleased that settlement has been agreed with the parents of Adam Spinks.

“Adam was born in December 1986 and regrettably suffered brain damage.

“Legal proceedings were commenced in 2007 and following detailed investigations, a compromise in respect of liability was reached in 2009.

“The parties then worked together to reach a financial settlement, which has now been approved by the court.”

Sally Leonards, of Manchester-based JMW Solicitors who represented Mr Spinks, said: “No amount of money will ever substitute for the ability to lead a full and normal life.

“However making Mr Spinks’ life as comfortable as possible must be the priority now and this money will enable his family to do that.”

Margo MacDonald MSP’s Right To Die Bill Reconsidered

January 24, 2012

Independent MSP Margo MacDonald is to launch a fresh attempt to give terminally ill people in Scotland the right to choose when to die.

Ms MacDonald’s previous End of Life Assistance Bill fell in a free vote at Holyrood just over a year ago.

The Lothians MSP, who has Parkinson’s disease, claimed there was wide public support for the legislation.

Her new consultation will clarify the extent to which a physician would be able to assist a patient.

It is not illegal to attempt suicide in Scotland but helping someone take their own life could lead to prosecution for culpable homicide.

Ms MacDonald’s bill would have allowed people whose lives became intolerable through a progressive degenerative condition, a trauma or terminal illness to seek a doctor’s help in dying.

It also proposed a series of safeguards which would prevent abuse of the legislation.

Public interest

Ms MacDonald said it was important to allow terminally ill people some dignity.

She said: “Since the defeat of my original proposal in December 2010, the volume of correspondence I’ve received on the matter, coupled with the continuing public interest, stimulated in part by some high-profile statements in favour of the general principle of assisted suicide, indicates to me a consistent level of support for individuals suffering a terminal illness or condition, for whom life becomes intolerable, to have the legal right to request help to end their life before nature decrees.”

Last month, a group of experts said there was a “strong case” for allowing assisted suicide for people who are terminally ill in England and Wales.

The Commission on Assisted Dying – set up and funded by campaigners who want to see a change in the law – said the current system was “inadequate”.

It said it was possible to allow assisted dying within a strict set of rules to ensure it was not abused.

The commission, chaired by former lord chancellor Lord Falconer, said that, under their proposals, a terminally-ill person would need to be able to take the medication themselves, as a clear sign their actions were voluntary.

Blind Patients Can See Better

January 24, 2012

A controversial trial treatment for vision loss using human embryonic stem cells has produced “ground-breaking” early results, it has been claimed.

Two “legally blind” patients with different forms of macular degeneration – one old and one middle-aged – showed signs of improved vision four months after receiving the implants, said scientists.

One, a woman in her fifties suffering from Stargardt’s disease, went from being unable to read any letters in a standard eye test to reading five letters. She was also able to spot single-finger movements whereas before she could only discern movements of the whole hand.

The other patient, a woman in her 70s with dry age-related macular degeneration, experienced an improvement that allowed her to read 28 rather than 21 letters. Neither patient appeared to have suffered any serious adverse affects from the therapy, such as teratoma – a form of cancer that can be generated by multiplying stem cells.

The results, from a trial being conducted in the US, appear in the latest issue of The Lancet medical journal.

The two women were given transplants of retinal tissue grown in the laboratory from human embryonic stem cells (hESCs). In each patient, around 50,000 of the cells, called retinal pigment epithelium (RPE) cells, were injected through a thin tube into the back of one eye.

Embryonic stem cells offer the hope of promising regenerative treatments because they can differentiate into any kind of tissue in the body, from brain to bone. Human ESCs can be grown continuously in the laboratory but are controversial because they must originally be obtained from early-stage human embryos.

Dr Robert Lanza, from the US biotech company Advanced Cell Technology in Marlborough, Massachusetts, who led the study, said: “This is the first report of hESC-derived cells ever transplanted into patients, and the safety and engraftment data to date looks very encouraging.

“Although several new drugs are available for the treatment of the wet type of AMD, no proven treatments currently exist for either dry-AMD or Stargardt’s disease. Despite the progressive nature of these conditions, the vision of both patients appears to have improved after transplantation of the cells, even at the lowest dosage.”

Commenting on the new findings, British expert Professor Daniel Brison, co-director of the North West Embryonic Stem Cell Centre in Manchester, said: “This is a very exciting moment for embryonic stem cell therapies. This is the first peer-reviewed scientific report showing that cells derived from human ES cells can be transplanted safely into a patient with no sign of complications.”

Ministry Of Justice Objects To Tony Nicklinson Court Case

January 23, 2012

The court case of a severely disabled man seeking permission for a doctor to “lawfully” end his life should not go ahead, the Ministry of Justice says.

At the High Court, the ministry’s lawyer said only Parliament can decide such a request – not a court.

Tony Nicklinson, 57, wants the court to declare that a doctor could intervene to end his “indignity” and have a “common law defence of necessity” against any murder charge.

The case was adjourned till 8 February.

Mr Nicklinson, from Melksham, Wiltshire, had a stroke in 2005 and was left with “locked-in syndrome”.age, affecting upper part of brain stem, which destroys almost all motor function, but leaves the higher mental functions intact

He communicates through the use of a perspex board or by using his Eye-Blink computer and sums up his life as “dull, miserable, demeaning, undignified and intolerable”.

He is seeking declarations that it is lawful for a doctor to terminate his life, with his consent and with him making the decision with full mental capacity.

At the preliminary hearing David Perry QC, representing the Ministry of Justice, asked the judge to strike out the action – which would bring it to an end.

“There are compelling reasons why the court should not intervene,” he said.

Mr Nicklinson “is saying the court should positively authorise and permit as lawful the deliberate taking of his life”, he said.

“That is not, and cannot be, the law of England and Wales unless Parliament were to say otherwise.”

Appropriate safeguards and conditions could only be introduced by Parliament, rather than courts deciding on a case-by-case basis, he added.

Michael Connell Returns To UK For Rest Of Jail Sentence

January 23, 2012

The family of a man with learning difficulties jailed for smuggling ecstasy into Thailand are campaigning for him to be released from custody.

Michael Connell, of Bury in Greater Manchester, was stopped at Bangkok airport in November 2003 with 3,400 pills hidden in facial cream jars.

He pleaded guilty in 2004 and was sentenced to 99 years, reduced to 20.

He has returned to the UK to serve the rest of his sentence. He served eight years in Bangkok’s Bang Kwang prison.

The notorious jail is often referred to as the “Bangkok Hilton”.

Mr Connell’s father Derek said his son had become involved with drug dealers in his neighbourhood who had offered him a holiday to Thailand if he took the pills with him.

Customs officials found the ecstasy tablets in Connell’s travel bag after they were detected by an X-ray scan at the airport.

The pills had an estimated street value of $85,000, according to the Thai customs department.

‘Naive kid’

He was jailed for 99 years but had his sentence reduced to 30 on appeal and has been further reduced to 20.

His father said he understood his son would have to serve half of the remaining sentence, six years, in the UK, before being released on parole.

He is currently being held at Wandsworth prison in south-west London and his father is expecting him to be transferred to Whitemore in Cambridgeshire.

Mr Connell senior said his son was a “naive kid with learning difficulties. He was stupid to do it – he knows he was stupid to do it”.

He added: “He has done eight years in probably the worst prison in the world. I think he has done enough.”

He is now writing to the Ministry of Justice to ask ministers to consider his case.

A Ministry of Justice spokesperson said they were unable to comment on individual cases.

But she confirmed that, under the Prisoner Transfer Agreement, British nationals imprisoned in Thailand were able to transfer to the UK to complete their sentences.

“Prisoner transfers are not there to enable a prisoner to receive a reduced sentence, but to help alleviate the problems of imprisonment abroad such as language, cultural and visiting difficulties.”

Michael Connell’s case is featured on Inside Out North West on BBC One at 19:30 GMT.

Disabled Couple In Free Theatre Ticket Row

January 23, 2012

I think this is a difficult case, readers. I can see what the theatre staff were thinking when they refused Mr Nicol’s partner the free ticket. They were considering health and safety issues. However, using a wheelchair herself does not make the lady any less able to be a carer. Theatre staff are wrong to make that suggestion.  Anyway, surely the couple know their own and each other’s abilities and surely that is all that really matters?

What do you think?

A disabled man has criticised a theatre in Surrey after he was refused a free carer’s ticket for his girlfriend because she also uses a wheelchair.

Philip Nicol, from Reigate, said after buying tickets for an act at Dorking Halls Theatre, staff phoned him back.

He was told if his partner could not help him in an emergency she was not a carer.

Mole Valley District Council defended the decision and said his partner was not entitled to a free ticket.

Mr Nicol, 48, who has a condition called Adrenomyeloneuropathy which has left him unable to walk, said he had been left feeling “useless”.

He said he and his partner had used the theatre before and had been granted a free ticket.

‘Role of a carer’

“They do not understand the disability issue at all,” he said.

“My partner cares for me when I suffer mood swings and tiredness with my condition.”

David Howell, portfolio holder for assets at the council, which runs the theatre, said: “A customer with a disability who needs a carer’s help is always entitled to a free ticket for the carer.

“However, our staff were then told that the person accompanying this customer was also a wheelchair user. It was felt they could not fulfil the role of a carer within the building, especially in an emergency.

“So in this situation they could not be classed as a carer and could not be offered free admission.”

Meet Richard Whitehead- Britain’s Blade Runner

January 23, 2012

A Nottinghamshire athlete who runs on special blades is aiming for gold at the London Paralympics this summer.

Richard Whitehead, who was born without legs, already holds the world record for the 200 metres in his disability category, but has also started competing in the marathon.

The 35-year-old runner from Lowdham said he has faced come challenges in adjusting to the new discipline.

Ross Fletcher reports for BBC’s Inside Out East Midlands.

Push Girls

January 23, 2012

This looks like something I would like to watch.

As any aspiring actor will no doubt testify, carving a career in Hollywood is tough. So imagine the challenge if a hopeful were paralysed and confined to a wheelchair.

A new show based on just that scenario is set to be the next big thing in reality TV.

Push Girls, which will air on the Sundance Channel in April, follows the personal lives of four wheelchair-bound women as they negotiate familiar struggles from motherhood to relationship break-ups.

The women say it was the producers’ honest, straight-talking approach that convinced them to take part in the 14-episode series.

Angela Rockwood, 36, was an actress who appeared in The Fast and the Furious before a 2001 car accident left her without the use of her torso, arms or legs.

‘I’m a quadriplegic, so I need more assistance than the other girls,’ she told the New York Post.

‘I need someone to come in and catheterize me. I need someone to bathe me. I need someone to lotion me up…This is my reality, and it was important that the show capture that.’

Ms Rockwood may not be able to wash or go to the toilet without help but the main issue consuming her life is more commonplace – a divorce.

‘I think the common denominator with us is our wheelchairs,’ she adds of her co-stars. ‘But it’s not about the wheelchair. It’s about our spirit, and how we just live life to the fullest.’

Model Tiphany Adams, 28, survived a drunk-driving crash in her senior high school year that left three of her friends dead. She was given a five per cent chance of living by doctors.

She told the paper: ‘Most people would want to give up. But all four of us girls chose to triumph over the tragedy.’

Indeed, Auti Angel, 42, was a successful hip-hop dancer who worked with Milli Vanilli in the early Nineties, before a car smash in 1992.

‘I was J Lo before J Lo,’ Ms Angel told website disaboom.com. ‘I danced with LL Cool J. I went on tour with rap artists and I was about to sign a record deal as part of an all-Latin female Hip Hop group.

‘Then, the tragic car accident happened, severing my spinal cord and leaving me wheelchair bound.’

But despite being dropped by the record company because they were not ‘willing to wait [for her recovery]‘, Ms Angel’s energy and dynamism has never dimmed.

‘Once a dancer, always a dancer,’ she said. ‘The spirit of dance never dies, no matter what happens to your body.’

Like her castmates, Ms Angel’s goal will be more familiar to the show’s audience – one of trying to get pregnant and start a family.

The final member of the cast is Mia Schaikewitz, 32, a former competitive swimmer, who lost the use of her legs after a rare type of brain haemorrhage at the age of 15.

In the show, Miss Schaikewitz assesses the break-down of her relationship with her able-bodied boyfriend and faces swimming again for the first time since her accident.

Producer Gay Rosenthal, who was also behind hit series Little People, Big World, says Push Girls is a groundbreaking idea.

‘I am always trying to forge new frontiers,’ she told the New York Post. ‘I started developing this show as soon as I met the girls.’

But she added that the concept of a reality television show about four wheelchair-bound women was a hard one to sell.

‘There definitely were some [networks] who didn’t know what to do with’ the show, she admitted.

Muhammad Miah- The Boy Who Has Never Eaten Food

January 23, 2012

Eighteen-year-old Muhammad Miah has never been able to eat.

While many people are trying to eat less after the excesses of the festive season, Muhammad cannot even drink tap water.

“The water has got to be boiled or be mineral water otherwise my gut doesn’t like it. My stomach is very sensitive.”

A serious gut condition means he has had to rely on artificial nutrition since birth.

During the day his meals come in liquid form, containing protein, carbohydrate, fat, water, minerals and vitamins.

At night a pump feeds more nutrients directly into his stomach via a special tube.

In the past he has had to rely on being fed intravenously, where the contents of the feed bypass the usual processes of eating and digestion.

There was a particularly bad spell a few years ago, Muhammad recalls.

“My gut stopped working at all. I couldn’t even have liquid nutrition or water. It was a case of ‘nil by mouth’. That lasted several months.”

Nerve failure

Known as intestinal pseudo obstruction, Muhammad’s rare condition is thought to affect 12 to 15 children in the UK.

The intestines lose the ability to push food, stool or air through the gastrointestinal tract.

Doctors at Great Ormond Street Hospital in London, where Muhammad has been treated, believe that his particular condition is caused by a failure of the nerves within the smooth muscle of the intestines, something known as hollow visceral myopathy.

But he still see a potential positive side to his condition.

“Sometimes I think I’m healthier than other people. When you think about all the junk food people are eating… at least I won’t get fat.”

Doesn’t he ever get desperate to devour a proper meal?

“My feeds are so well timetabled now that I don’t really get hungry, to be honest. And when I’m really unwell I don’t feel hunger anymore. It’s just normal to me.”

Despite his brave attitude, the condition has had a major impact on Muhammad’s life.

Although he is managing to pursue his studies at Newham College and hopes to go on to university next year, he has days when his energy levels are very low and he struggles to get out of bed.

‘Knife edge’

Dr Nikhil Tharpar, senior lecturer in paediatric gastroenterology at University College London’s Institute of Child Health, says there is an urgent need to understand gut conditions better.

“We can only control the symptoms at the moment. The treatment is just allowing patients like Muhammad to survive. We don’t offer any cure.

“But we want to look at why these birth defects develop in the first place, and do some research looking at stem cells to grow some of the missing nerves.”

Dr Tharpar acknowledges that children with intestinal pseudo obstruction have a lifelong problem which they cannot change.

“These children are very brave, despite everything.

“They can have a very poor quality of life, be in and out of hospital every week and suffer severe constipation and blood clots.

“They are often living on a knife edge.”

Great Ormond Street Hospital in London has recently been designated the national centre for diagnosing and treating children with the condition.

“Bowel problems are so common,” says Dr Tharpar.

“Fifty per cent of children suffer from bowel problems at some point.”

In an effort to raise awareness and money for bowel disease research, Dr Tharpar is climbing Kilimanjaro in February.

After many operations, Muhammad’s energy levels would not allow him to take part in such an exhausting challenge.

But he is hoping that the trek and any future research will have life-changing implications for him.

The Two Worlds Of Charlie F

January 23, 2012

Readers, do any of you know if this play is having a proper stage run? Have you seen it? It looks very interesting to me.

On a brightly-lit stage at the Theatre Royal Haymarket, two young men are comparing their injuries, and trading good-natured jibes. One has lost two legs, the other ‘only’ one.

The men are not actors, but still serving in the armed forces, and their wounds are all too real.

Marine Cassidy Little and Rifleman Daniel Shaw, an infanteer from 4 Rifles, are just two of the 30 injured or wounded servicemen and women who have joined the Bravo 22 Company project – the brainchild of theatre producer Alice Driver – to bring their experiences to the stage on Sunday.

The Two Worlds of Charlie F is probably the closest most West End audiences will get to the front-lines in Afghanistan, and the slow and painful process of recovery endured by the injured.

The characters are based on the men and women’s own stories, written and produced by professionals at the theatre’s Masterclass Trust.

‘Amazing experience’

The language of the play is wholly authentic, with the drama of the fictional Charlie F and his comrades moving seamlessly between black humour and pathos, though rarely self-pity.

During rehearsals, the forthright orders from director Stephen Rayne are reminiscent of a sergeant major.

Rifleman Shaw, 20, volunteered to take part in the project while at Tedworth House Recovery Centre, after losing both legs to a roadside bomb in Helmand in 2009.

“The play has been an amazing experience, and I feel good doing it, but there are a few emotions that do come back on stage, and it’s the same for everyone,” he says.

“But it’s in the past and you have to get over it. Regardless of your injuries, there’s no point crying about it.”

He hopes the play will help the audience understand the physical and mental impact of the soldiers’ injuries, and what their families have to face.

“My mum and dad and my ex-girlfriend are coming to see it. I’ve explained to them what happens in the play – especially when it gets quite emotional – and I’ve warned them not to fret.”

Captain Anna Poole, who plays a captain, says the last time she was on stage was tap-dancing at school, 23 years ago.

She, too, is matter-of-fact about her injury, after losing a leg as the result of an accident while competing for Great Britain in a luge contest in 2005.

“It is incredibly nerve-racking to go up on stage,” the 34-year-old admits.

“A lot of the guys say they would rather be storming compounds back out in Afghanistan than going on stage. It’s a different type of fear, but it’s also great fun.”

The Bravo 22 Company project does not shy away from showing the hurt and pain suffered by the injured and their families, and also deals with tough subjects such as sex post-injury or emotional estrangement when partners or relatives find it hard to cope.

“It’s a very personal play, with quite raw emotions,” says Capt Poole.

“It’s been quite difficult to watch some of it, because you know whose girlfriend had those experiences, or which guys you’ve seen go through a lot of grief, when they come out of their operation and can’t put on their prosthetic limbs.

“It’s been a cathartic process for many of us, and the audience will struggle not to get their hankies out. “

Those taking part say they are grateful for support from the Royal British Legion, Masterclass and the MoD in letting them tell the “grittier” side of the recovery process.

“A lot of documentaries focus on the point of being injured, but what they don’t show is this incredible patch in the middle when your ups and downs are astronomical,” Cpt Poole says.

“I hope the play will give people a better understanding, and the knowledge that when they contribute to military charities, they are helping people like us rehabilitate – no matter where or how those injuries were sustained.”

Capt Poole is due to leave the Army soon, and is studying glass-blowing – a rather different future to the one she had imagined – but one she is looking forward to with enthusiasm.

Rifleman Shaw is also looking to the future with hope, despite his life-changing injuries.

“It’s just time. Everyone needs time. For myself, I woke up one morning and said – right, got no legs. What else can I do? OK, I’ll do everything I can do, rather than crying about what I can’t do.”

‘Two worlds at once’

The play is one of the first to deal with the personal consequences of the UK’s two most recent wars; its title an allusion to the different worlds inhabited by the wounded, pre- and post-injury.

The Welsh playwright, Owen Sheers, began by talking to the wounded, first alone and then in groups, gathering their stories.

“It wasn’t always easy for them to talk about it,” said Sheers, who is also a novelist and poet, and last month became the Welsh Rugby Union’s first artist-in-residence.

“Quite often I was the first person they’d told stuff to, and that was an indication of what this project meant for them, being willing to go back to some quite painful places,” he said.

“What a lot of wounded servicepeople struggle with is inhabiting a series of two worlds at once.

“They will lay their heads down to sleep and in an instant they will be back on the frontline, but then they’ll wake up next to their wife.

“I hope the audience will get a soldier’s eye-view of what it means to be injured or wounded and go through this recovery period, and be reminded of what those three letters ‘war’ actually mean, and how far the consequence of one person’s war and wounding stretches.

“We’ve been involved in conflict for 10 years, yet it’s very easy to live in Britain and not be aware that we are a country at war.

“I think that is irresponsible – and I think we need to be aware for all our sakes about the absolute realities of what war means.”

Audi Apologises To Disabled Driver After Order Was Rejected

January 23, 2012

This is something that those of you lucky enough to be disabled drivers may find useful.

Sue Marsh

January 20, 2012

Dear Readers

The campaigner behind the Spartacus Report, Sue Marsh, is seriously ill in hospital. She explains all in this post at her personal blog.

My thoughts are with Sue and her family and friends at this time. I am simply one of her many online followers, contacts and admirers, but through this tiny little blog post, I am sending out my very best wishes and sincere hopes for Sue’s full and speedy recovery.

As I said to Sue, we must fight but we must also sometimes stop to remember why the fight started.

Samedifference1

£5.6M Compensation For CP Girl, 11

January 20, 2012

An 11-year-old girl left with severe brain injuries after mistakes by hospital staff at Cumberland Infirmary in Carlisle has been awarded £5.6m compensation from the NHS.

The girl, whose identity is protected by a court order, suffered brain damage after delays at her birth.

North Cumbria University Hospitals NHS Trust has admitted medical negligence.

It has agreed to pay a £2.3m lump sum and index-linked payments of up to £200,000 a year for life.

Speaking outside court, the girl’s mother said: “The last 11 years have been very hard. We hope that we can now get the care and equipment that she needs to give her a better life.”

The High Court heard staff at the hospital missed indicators that the girl’s mother, who is from the Carlisle area, had a placental abruption before and during her delivery.

It heard the girl’s brain was starved of oxygen because of unnecessary delays and she was not breathing when she was born.

In what he called a “very, very severe case” Mr Justice Haddon-Cave said the girl suffered extensive brain damage and now has very limited mobility, severe mental problems and needs round the clock care from her parents.

Her life expectancy is also reduced.

The compensation will help pay for a specially-adapted house as well as specialist equipment and support from a team of carers.

The settlement came a week after the NHS Litigation Authority, which handles compensation claims for the NHS, was given an extra £185m by the government to cover the growing cost of clinical negligence settlements.

Francesca Martinez And #SpartacusReport On This Week

January 20, 2012

@latentexistence is brilliant!

Jaspal Dhani’s Guardian Letter On #SpartacusReport

January 20, 2012

A letter to the Guardian from Jaspal Dhani, the Chair of the UKDPC, on the Spartacus Report and related issues.

Where Next For The Spartacus Campaign?

January 19, 2012

Asks Sue Marsh at Comment Is Free.

My Review Of Off Balanced By Zachary Fenell

January 19, 2012

Is my latest article for Disability Horizons.

Local News Report On Martin Sabry

January 19, 2012

Heathrow Airport Building Lifts To Handle Paralympians’ Wheelchairs

January 19, 2012

 This is good news. What a shame they can’t teach EasyJet a thing or two!

EasyJet ‘Degrades’ Wheelchair Using Man By Turning Him Away From Flight

January 18, 2012

Not another one!

A wheelchair user who was forced off an Easyjet plane at Gatwick because of safety fears has criticised the airline.

Martin Sabry, from Cambridge, who was paralysed from the chest down 17 years ago, was asked to leave the Montpelier-bound service by cabin staff.

The 39-year-old was told they were not satisfied he could reach the emergency exit in the event of a crash.

The airline has apologised to Mr Sabry and launched an investigation.

Mr Sabry said that after he was told to leave the 4 January flight, the purser asked him to read aloud a card with the airline’s safety guidelines as other passengers walked by.

‘Quite degrading’

“In the gangway he was asking me to read the card aloud line by line and at the end of each line say ‘yes I can do that’,” he said.

“I’ve been in a wheelchair for 17 years and I’ve seen an awful lot, but this is quite degrading.”

By the time that Mr Sabry – who has used Easyjet several times – was allowed to reboard the plane it was ready for take-off so he missed his flight.

Catherine Lynn, director of customer service and revenue at Easyjet, apologised to Mr Sabry.

She said: “Certainly this is not the experience that we want to give to any of our passengers, particularly passengers who have mobility difficulties.

“It has gone wrong, we have made some mistakes and we are doing a full investigation.

“The good news is that we carry successfully over 1,000 passengers with reduced mobility every day, but we got it wrong on this occasion and we’re really sorry.”

Ollie Flitcroft Explains Why He Left The Conservative Party

January 18, 2012

Former councillor and disabled person Ollie Flitcroft writes at Comment Is Free about why he left the conservative party.

Baroness Tanni Grey Thompson On Lords Defeat

January 18, 2012

Please click this link to hear what Baroness Tanni Grey Thompson had to say last night after the Lords defeat on DLA reforms.

Citroen Yes Advert Is A No After Epilepsy Complaints, Says ASA

January 18, 2012

A television advertisement for Citroen has been banned after complaints claiming it brought on epilepsy symptoms and caused a seizure.

The advert, which featured flashing images, was shown on channels including Sky, ITV and UK Gold.

It had scenes in rapid succession, with the word “yes” flashing.

Ten people objected with some reporting the onset of symptoms associated with photo-sensitive epilepsy, while one viewer reportedly suffered a fit.

The same word appeared 304 times across the screen, in black and then white writing.

The Advertising Standards Authority (ASA) said broadcasters told it the advert had been checked by Clearcast, which monitors advertisements to ensure they meet required standards.

But Ofcom said it had breached current guidelines.

The ASA has now ruled the piece may not appear again in its current form.

Stacey Rennard, campaigns manager at Epilepsy Action, said: “We are pleased that the decision has been taken to withdraw this advert if it means that people with photosensitive epilepsy are no longer at risk.

“We’re also pleased that the Advertising Standards Agency and Ofcom recognise that flashing and flickering lights can cause problems for some people with epilepsy.”

Guardian Liveblog- What Next For Disability Benefits?

January 18, 2012

Today’s Guardian Liveblog is asking what happens next for disability benefits after yesterday’s Lords defeat. You can follow it here if you are interested.

Twas One Day After Heartbreak

January 18, 2012

This was originally posted at Disability Voices last February, as part of the Broken Of Britain’s One Month Before Heartbreak blogswarm. The original title was Twas One Month Before Heartbreak.

I’ve been looking for a reason to repost it here ever since, but until today, there has never been a better one. This minor rewrite of the piece seems appropriate today, after last night’s defeat in the Lords for disability campaigners and common sense. It’s also a celebration of the protest that took place yesterday outside the Lords, but got no coverage.

Enjoy…

‘Twas One Day After Heartbreak

‘Twas one day after heartbreak, and all through the town
Bloggers were blogging stories of their own
The stories were written with love and with care
And knowledge that heartbreak was already there

The children were settled all snug in their beds
But nightmares of heartbreak raced round in their heads
Mothers in dresses, dads in baseball caps
Were woken by tears from dreams and from naps

Out in the streets there was such a clatter
That the mainstream came out to see what was the matter
Over to windows they ran in a flash
Tore open shuttters and pulled up the sash

The sun, making slush of old melted snow,
Gave a fake brightness to the cold streets below
And what to their wondering eyes should appear
But eight wheelchair users, in a row, free of fear

With little old carers quite lively and quick
And a young man with a guide dog and a little white stick
More rapid than eagles the little group came
Screaming and shouting, calling Government Ministers by name

“Now Cameron, Osborne and IDS too
Miller, you’ve joined them, we were counting on you!
To the back bench, or the end of the Earth,
Go anywhere you like, our votes you’re not worth!”

At high speed those wheelchairs flew
The guide dog, the white stick and the young man too
Demanding the money they needed to live
That the Ministers threatened no longer to give

Once they had called it DLA
Now they had decided to take it away
These people protested to stop its replacement
With something called PIP- a seed?- at my basement

They were dressed in fur from their head to their feet
Their clothes were covered in old snow and new sleet
I noticed laptops and mice on their laps
And walkers with cameras taking some snaps

To post on their blogs tomorrow, no doubt
To speak the thousand words of a long day out
Their hands they were joined in friendship forever
I didn’t think they would give up, not never!

Not till they got what they wanted, at least
To keep DLA, then they’d pay for a feast
They smiled up at me as they raced out of sight
Saying “Help us keep DLA, please, you know it’s right!”

A Nice Update On Alex Jordan

January 18, 2012

Earlier this month, I covered the story of Alex Jordan, whose autism left her unable to leave her house, and feeling like a prisoner in it. Now, thanks to the BBC Ouch! blog, I have just read a very nice update about her.  Alex now leaves her house often, to go to a part time voluntary job.

Government Win By Just 16 Votes On PIP Amendment

January 17, 2012

The government has headed off a House of Lords defeat over plans to replace the Disability Living Allowance.

Ministers want to amend the system to make sure claimants have more medical tests, but opponents say this will mean 500,000 people will lose benefits.

A proposal to delay the scheme by carrying out an extended pilot project before it is implemented across the country was beaten by 16 votes.

The government suffered three Lords defeats on the issue last week.

Introduced in 1992 to help disabled people cope with the extra costs they face in their daily lives, Disability Living Allowance is paid to two million people of working age.

It is thought that half a million fewer people will qualify for the replacement Personal Independence Payments by 2015 if the changes are passed.

The government wants to pass its Welfare Reform Bill by the end of the parliamentary session in May.

It says the proposals will substantially reduce the multi-billion pound welfare bill, helping to cut the deficit while also increasing incentives to work and targeting support for the vulnerable more effectively.

Do Disability Rights Cost Too Much?

January 17, 2012

A BBC blog post by Mark Easton, which I thought some readers might find useful.

Your DLA Stories From The Guardian

January 17, 2012

On Friday, the Guardian asked for your DLA stories. Here are eight of them.

Is £600M Of DLA Really Overpaid?

January 17, 2012

Polly Curtis discusses the answer to this question in this post at the Guardian blogs.

How #SpartacusReport And The Campaign Went Viral

January 17, 2012

Something extraordinary happened last week in the volatile micro-blogging world of Twitter: a medium normally obsessed by celebrities, football and sex turned its collective attention instead to disability. A handmade campaign against welfare cuts launched by a tiny band of disabled activists took the social media world by storm.

Over the course of Monday 9 January, hundreds of thousands of people tweeted around #spartacusreport. In the jargon, the hashtag “top trended” for most of the day. In other words, of all the topics of the day, a serious report (entitled Responsible Reform) outlining in careful detail the government’s alleged multiple lies and evasions over its proposed disability living allowance (DLA) reform had proved, incredibly, hugely popular.

Prior to last Monday, virtually all the mainstream media had ignored the report, and the campaign itself. That morning, the buzz, diligently begun by a network of hundreds of disabled people, started to grow. Then powerful tweeters spotted it: the actor and writer Stephen Fry (who has more than 3 million Twitter followers) tweeted his support, unasked. The flood of public interest he sparked by that tweet temporarily crashed one of the websites on which the report was hosted.

Lord [John] Prescott and Tony Blair’s former press secretary Alastair Campbell added their Twitter backing. More celebrities started to tweet about it: musician Billy Bragg, crime writer Val McDermid, Coronation Street actor Julie Hesmondhalgh. Thousands of Twitter users followed suit, keeping Spartacus trending.

On Monday afternoon, the Department for Work and Pensions press office took to Twitter in an attempt to justify the government’s reforms, using the Spartacus hashtag. This was significant: the government was having to enter the debate on the disability activists’ own terms. The political journalist Paul Waugh later tweeted that #spartacusreport offered “proof that social media can transform a campaign. Publicity worth millions I suspect”.

By Wednesday night, the stunning success of the campaign became even clearer when the House of Lords delivered a hat-trick of defeats to the government’s welfare reform bill, over clauses affecting disabled children, cancer patients, and the time limiting of employment support allowance.

The combination of political upset and the ubiquity of #spartacusreport seemed to crystallise a new mood of public unease over welfare reform, artfully characterised by the Labour party as a feeling that government had “crossed the basic line of British decency”.

By this time, the mainstream media had begun to sit up and take a closer interest in disability benefits. The following evening, after a day in which the media had picked over the government’s humiliation in the Lords, the BBC’s Newsnight programme invited the work and pensions minister Chris Grayling on air to debate the defeated proposals (which the coalition government intends to restore when the bill returns to the Commons). To oppose him, sat one of the principal architects of the Spartacus campaign, Sue Marsh.

The success of the campaign did not entirely surprise political blogger and commentator Sunny Hundal, editor of the Liberal Conspiracy blog. “They had a compelling story to tell. It made everyone think, ‘This is a group of people that will really be hit by the cuts.’ It was a proper grassroots campaign.”

The symbolism of Marsh’s Newsnight appearance, heralding as it may have done the emergence of a new form of disability activism (Marsh calls it “from-bed activism”), empowered by social media and operating largely outside conventional media and charity channels, was powerful. This kind of public hearing for disabled people was precisely what she and fellow activist Kaliya Franklin had been planning for the past 18 months, although they never quite believed they would achieve it.

Twenty-one years ago Marsh was diagnosed with Crohn’s disease, a debilitating condition that now requires daily medication and anti-sickness injections. As a teenager she went to university (“against the advice of my GP”) and subsequently worked in sales for several years before quitting for health reasons: “I got ill, had surgery, and I could not keep the job. In the end my friends said, ‘You have to stop this, you are killing yourself.’”

Around three years ago she started her own ironically-titled blog, Diary of a Benefit Scrounger, to monitor the proposed cuts to disability benefits. She became a prolific, highly respected blogger, guesting on the left of centre blogs Left Foot Forward and Liberal Conspiracy, as well as the Guardian’s comment is free. Her blogpost just before Christmas, reporting that she had been turned down as ineligible for DLA, went viral on Twitter.

So, why did the Spartacus campaign work so spectacularly? Marsh says: “Luck, in part. But people were desperate for [it]. We gave thousands of people something that they could easily use to express their views, and rally behind. And it gave us hope – up to then we didn’t have any hope.”

Fellow Spartacus activist Franklin says it was the internet, blogs and Twitter that enabled disabled people to get their voice heard, unmediated by traditional media. “None of this would have happened without social media. The campaign has been done by people mostly from their beds. We would not have been able to find each other had we not had access to social media.”

Franklin also hosts a successful blog – Benefit Scrounging Scum – where some of her made-for-YouTube videos have become cult viewing (her “shame on you…” message to David Cameron marked the beginning of the Spartacus campaign in October 2010). One clip records her putting the Labour leader Ed Miliband on the spot at last year’s Labour party conference, with Franklin’s eloquence about politicians’ toxic use of “benefit scrounger” rhetoric contrasting with the awkwardness of a surprised Miliband.

“I have to give Ed his due. I’m not a Labour party member but, to be fair, he rang me afterwards and gave me a full 15 minutes and had the grace to listen very carefully to what was being said,” says Franklin. Labour, she says, has been much more attentive since, though, she points out, it paved the way for many of the current welfare changes, “and has found it very difficult to find a way out of the mess it has created”.

Law graduate Franklin, 36, was not disabled as a child. She had planned to join the army before an accident, while teaching in the US after university, exacerbated existing inherited health problems. At 28, she was diagnosed with Ehlers-Danlos syndrome. Symptoms include joint hypermobility and arthritis, and she has serious and persistent health and mobility problems. “Since October, I do not think I have been out of my pyjamas for more than a handful of days,” she says.

The importance of DLA for Franklin is that it helps her to live independently. Despite her mobility and health difficulties, she is not eligible for social care support, having been assessed as requiring only “moderate” needs. She has been refused an NHS wheelchair, and relies heavily on a support network of friends and neighbours to help her.

One of the problems, she says, is that despite years of underfunding for adult social care, people assume the state’s support for disabled and chronically sick people in receipt of DLA is much more comprehensive than it is, and that “we all have a nice bungalow and an adapted car”.

Despite their success, the Spartacus campaigners are already counting the personal cost to their health. Some, already ill, have retired exhausted.

For herself, Franklin feels this is a price she may have to accept as the welfare reform bill debate intensifies: “It’s a position of moral conscience. We could not live with ourselves if we did not give everything. Those of us in the core group [of campaigners] have understood that we risk damaging our health by doing this. But some things in life are more important.”

Radio 5 Live Discussion On DLA

January 17, 2012

Thanks to @latentexistence.

Timebomb Fear As Growing Numbers Diagnosed With Neurological Conditions

January 17, 2012

The NHS is facing a “neurology timebomb” as the number of people with conditions such as Parkinson’s and motor neurone disease (MND) increases, an umbrella organisation for charities in the field has said.

The Neurological Alliance, which represents more than 70 charities and organisations, said the NHS will be caught unawares unless urgent action is taken and accused the government of having its “head in the sand”.

Figures from Parkinson’s UK suggest that by 2020 will be 162,000 people with Parkinson’s disease – which affects actor Michael J Fox and boxing legend Muhammad Ali – 28% more that the 127,000 now diagnosed.

The number with MND is set to rise by 27% in the same period and 50 people are newly diagnosed with multiple sclerosis (MS) every week.

The alliance argues that services are being run in a “haphazard way” with no clear strategy, potentially wasting billions of pounds of taxpayers’ money.

It follows a damning report in December from the National Audit Office (NAO), which found that emergency hospital admissions for people with neurological conditions have risen by almost a third despite a government financial investment in services.

While access to services has improved and waiting times have fallen, the study found, key areas of care have got worse.

In 2009-10, 14% of people with Parkinson’s, MS and MND who were discharged from hospital after an overnight stay were readmitted within 28 days as an emergency. People admitted as an emergency are also often treated by doctors and nurses with no neurological training, with evidence suggesting this worsens outcomes for patients. Furthermore, the report found delays in diagnosis and treatment.

Steve Ford, the chair of the Neurological Alliance and chief executive of Parkinson’s UK, said: “A crisis is looming but the government has its head in the sand. When it comes to helping vulnerable people with a neurological condition, the government is floundering around in a fog of its own making.

“We need a leader to champion improvements – a neurology tsar, if you like, backed up with a plan and a strategy. “When diabetes, cancer and stroke were assigned tsars, things really started to happen. People affected by neurological conditions are fed up with being at the bottom of the government’s ‘to do’ list.

“It is time the Department of Health sorted out this mess. It’s not about spending more money: it’s about getting good value and quality services.”

Ford will give evidence to the Commons public accounts committee on Wednesday in light of the NAO report.

Simon Gillespie, the chief executive of the MS Society, added: “The government now needs to send a clear message to everyone living with a neurological condition that these services are a priority.”

The estimated number of people who have MND in the UK is 4,200, but this is predicted to rise to 5,330 by 2020. About 100,000 people in the UK have MS.

The Liberal Democrat minister of state for care services, Paul Burstow, said: “We know that care for people with neurological conditions is not good enough and we must do more. It is clear that too many people are not getting personalised support to suit their needs.

“This is exactly why we need to reform the NHS so we give people with long-term health conditions more control over their care and support, in consultation with clinicians. That is why we are developing a new outcomes strategy, piloting personal health budgets, and rolling out tele-health to deliver better results for people and make sound use of NHS resources.”

Guardian Liveblog: Maria Miller, Your DLA Stories And The Lords Debate

January 17, 2012

The Guardian are promising an action-packed day at their Liveblog. You can follow it as it happens here.

Disability Benefit Changes ‘Rushed’

January 17, 2012

Changes to disability benefits are being “rushed through” to meet Treasury targets, campaigners have argued as peers prepare to debate the issue.

They want ministers to delay changes to Disability Living Allowance, saying new medical assessment tests are not ready.

Former RNIB chairman and crossbench peer Lord Low said “the livelihoods of disabled people were at stake”.

But ministers said DLA was “20 years out of date” and £600m a year was being paid out to people no longer eligible.

A group of cross-bench peers, backed by some charities, want planned changes to Disability Living Allowance (DLA) and its replacement – the Personal Independence Payment (PIP) – to be put on hold pending further consultation.

Campaigners say the plans will drive more people into poverty. Ministers have conceded some changes but say their plans will focus help on those who need it most.

Introduced in 1992 to help disabled people cope with the extra costs they face in their daily lives, DLA is paid to two million people of working age. It is thought that half a million fewer people will qualify for PIPs by 2015 if the changes are passed.

‘No confidence’

One critic of the proposals, Lord Low – president of the Disability Alliance charity – said the changes were being driven by the government’s need to save money rather than the interests of disabled people.

“This is being rushed through to meet Treasury targets,” he told BBC Radio 4′s Today programme.

“The assessment system for disabled people, for the new PIP benefit, is not ready yet. This is a work in progress. Disabled people do not have confidence that the government is yet ready to deliver an assessment system which will achieve the outcome which is fair to them and takes proper account of disabled people’s needs for a benefit of this kind.”

The problems with a new “work assessment” test for incapacity benefit – which is causing controversy years after coming into force – should be a warning to ministers, he added.

“We need to take more time to get it right as disabled people’s livelihoods are at stake.”

But disabilities minister Maria Miller said campaigners were wrong to suggest that DLA was being cut by 20% and the government remained “absolutely committed to the idea and practice” of enabling people with disabilities to live independent lives.

“What we are trying to do in these difficult economic times is to make sure that the rate of growth does not continue to spiral in the way as it has done in the past,” she told the BBC.

“In the future we will be spending the same on DLA as we did last year.”

‘Benefit for life’

Many vulnerable people were currently “falling through the net”, she added, and changes were needed to ensure support was “getting through to the people who need it the most”.

“We know that DLA is not a modernised benefit, it does not support people with severe mental health problems and learning difficulties in the way we would want to in this day and age as it is a benefit which is 20 years out of date.”

Ms Miller said flaws in the system also meant that £600m was being paid out every year to people whose conditions did not justify it while others were being under-supported when their medical situations worsened. “There is not in-built reassessment and that means 70% of people are claiming this benefit for life.”

The government has already agreed to halve the time seriously ill or disabled people will have to wait to be eligible for PIPs from six to three months.

The move came after peers defeated the coalition over other proposed changes to eligibility for another benefit, employment support allowance (ESA) – formerly known as incapacity benefit.

The government wants to pass its welfare reform bill, one of its flagship pieces of legislation, by the end of parliamentary session in May.

It says the proposals will substantially reduce the multi-billion pound welfare bill, helping to cut the deficit while also increasing incentives to work and targeting support for the vulnerable more effectively.

Charities Call For Delay To Disability Benefit Changes

January 17, 2012

Sixteen major disability charities are calling for the the government to delay planned changes to benefits for disabled people.

They want an independent review of the proposals.

Peers are hoping to defeat the government on the issue in the Lords this evening, but the ministers say they need to “get on with an important reform”.

Carole Walker reports.

Leprosy Charity’s Anger At Aardman Animations Film Scene

January 17, 2012

A film trailer by the makers of Wallace and Gromit has been criticised for “poking fun” at people with leprosy.

Essex-based Lepra Health in Action has expressed “disbelief” at the scene in Aardman Animation’s The Pirates! Adventures with Scientists.

The charity said the film, due for release in March, sees an arm fall off a crew member on a “leper-boat”.

A spokesman for Bristol-based Aardman said it took criticism like this seriously and was reviewing the matter.

Lepra’s president Sir Christian Bonington said: “It might make you laugh but leprosy stigma not only hurts, it is still forcing people to live a life on the fringes of society.

“Not only is the dropping off of body parts a total misnomer we have to ask ourselves, as we watch it uncomfortably, is it acceptable for us to be laughing at the millions of people who are disabled by leprosy?”

‘A leper-boat’

The scene shows the arrival of the Pirate Captain on board a captive ship, demanding gold.

“Afraid we don’t have any gold old man, this is a leper-boat,” explains a crew member. “See,” he adds as his arm falls off.

Lepra Health in Action, originally formed in 1924, works with 3,000 schools across the UK to promote an understanding of the disease, work which the charity said has been undone by the trailer.

Chief executive Sarah Nancollas said: “The high profile use of this play on a misleading stereotype has the potential to set the leprosy agenda back years.

“We have already received complaints from people affected by leprosy in Brazil and India.”

Leprosy is caused by the bacteria Mycobacterium leprae, a very slow-growing bacteria similar to that which causes tuberculosis.

It is a painful condition which, although curable, can leave sufferers deformed and crippled if left untreated.

One person is diagnosed with leprosy every two minutes worldwide, according to the charity.

Actor and writer Stephen Fry has tweeted his support of the charity calling it a “cheap joke”.

#SpartacusReport In Guardian Letters

January 17, 2012

A letter has been written to the Guardian about the Responsible Reform Report and Pat’s Petition, among other things. They published it yesterday, and I’m linking to it now.

Families Fear Disability Benefit Cuts Ahead Of Welfare Reform Bill Debate

January 17, 2012

Some people’s lives are almost unimaginably hard, stricken by bad luck. The welfare state is there to mitigate misfortune, or it was. Emma and Chris Ford have three severely autistic children below the age of eight. Emma was once a well-paid PA, but that life is a world away, as both parents have given up work to care for the children full time. They stand to lose £2,716 a year in the welfare reform bill now being debated in the House of Lords.

The Fords are remarkably resilient, but after her third child was born, Emma suffered a long bout of postnatal depression. The children get harder to look after as they get older and, she says now, ”If I’d understood what the diagnosis of the others meant, I wouldn’t have had a third.”

But she’s not complaining – or at least, she hasn’t until now. Their two-bedroom, housing association home in Horsham, West Sussex, is cramped for three hyperactive children. Rhys, six, is in special school, a child with no sense of danger, on impulse throwing himself down stairs, pulling furniture down on top of himself or hurtling into the road regardless of traffic. Outside he needs a wheelchair. Barely speaking, he eats with his hands, smearing food everywhere and he needs Ritalin to manage at school. He wakes at 4am every morning and has to be watched every waking minute from then on. As we talk, he sits for hours in a big woolly hat, peering through his thick specs at a repetitive computer game that keeps him calm and happy.

Martyn, seven, manages in mainstream school with a teaching assistant to help: he bounces about the sitting room with the youngest, Caitlin. She has just had a heart operation, wears a hearing aid and, aged three, hardly talks, so she starts in special school soon. Life is a struggle, but a kind volunteer comes in for two hours a week so Chris and Emma can go for walk alone for a brief break. “I can manage. Life with the children is fine for us and I’m not complaining,” Emma says. “We do have most things we need and we’re not asking for anything more. Just please don’t take anything away.”

When universal credit comes in, two of their children will lose out as disability additions to their child tax credits are abolished, with only a small increase coming for the third child. Other cuts in the bill, as yet undefined, may take more from them.

Losing more than £53 a week means cutting out the children’s extra activities and trips out: special riding for Rhys, dancing for Caitlin, karate for Martyn, who is frequently bullied. Different aspects of the welfare reform bill often mean the same family is hit over and over. The Fords’ housing association have offered a four-bedroom house, giving the children rooms of their own, so they wouldn’t wake each other up any more. But Emma doesn’t know yet if the £181-a-week rent will be covered by new housing benefit rules only entitling them to a three-bed house.

All eyes will be on the Lords on Tuesday night, none more anxiously than those millions on disability benefits watching as the bill cuts its way towards them. Will the Lords rebel again, as they have four times so far? Crossbenchers hold the key, but will they stay up long enough? Many peers are incensed by Lord Freud’s clumsy attempt last week to overturn their rebellion late at night after most had gone home.

Today they debate the abolition of the disability living allowance (DLA), to be replaced with the less generous personal independence payment (PIP). The government’s tougher new criteria include figures showing that 2.2 million who would have drawn DLA will be cut to 1.7 million. There is no research justification for this – but Iain Duncan Smith, the work and pensions secretary, has pledged to cut DLA costs by 20% – and its overall fraud rate is just 0.5%. This is part of the overwhelming £18bn cut that transforms the welfare state from one that pays according to need into one that hands out according to criteria designed to limit funds, despite need.

Contentious

To shrink the number of claimants, everyone on DLA will have a new medical assessment, which attracts today’s most contentious amendments. Nearly two million working-age disabled people will be processed rapidly through what threatens to be a crude check, not by doctors, at the phenomenal administrative cost of £675m.

Many fear the new tests will be as bad as the tests for the employment and support allowance, carried out by occupational health company Atos, where 40% of decisions have been wrong, and overturned on appeal. Some people have died within days of being passed “fit for work”.

Baroness Grey-Thompson, a cross-bencher, will put an amendment to ensure that before the tests are rolled out in a hurry, parliament receives an independent report on a pilot sample, with a trial period. She reflects the anxiety of all the disability charities: how fair can a new points system be with a pre-set intention to cut 20% regardless?

The Fords will be among the many watching and hoping the Lords soften the impact of the bill, as other cuts rain down on them already from social services and the NHS. “I can manage the children, it’s the admin that gets me down,” says Emma. “It’s struggling to get appointments for things they need.”

Their list of appointments includes a paediatrician, therapists, a cardiologist, an opthalmologist and an audiologist, sometimes two or three a week in different clinics. “They took away the speech and language therapist, that was the first to go – and yet that was the most valuable of all to us. The therapist taught Rhys to speak, and Caitlin needs help. We needed to be taught how to communicate with them, not to ask questions or offer complicated choices they couldn’t cope with.”

Emma’s life is spent on the telephone, arguing the case for her children. It took over three years to get a statement for Rhys to secure his special school place. The DLA form is a notorious 40 pages long, a ferocious barrier for many claimants who, by definition, have difficulties: so far she has had to fill those forms out 12 times for her children. “How would anyone manage who couldn’t read or write very well, or doesn’t understand the system?” she wonders. “Those people who go for PIP tests will have no idea what to say, or what to do if their money is taken away.”

Francis Maude, the Cabinet Office minister, is the Fords’ MP, and Emma rolls her eyes when she tells of his doorstep visit at the last election: “I said I was really worried his party would cut benefits for disabled people. He said to me, face to face, ‘You know about David Cameron’s son, that’s why you know there’s no way we’re going to harm disabled children like yours’. Right there, on our doorstep.”

Once disabled children reach the cliff edge of 18, things get worse for their families. Michelle Harrison, in Nottingham, has a son, Pete, who is 19. He too is severely autistic, and can’t speak, wash or dress himself. Often he refuses to eat, or get in a car. He goes to college for a basic life skills course, but lost his education maintenance allowance, a precious £30 a week, when it was abolished last term. With acute diabetes, he has to have his blood tested every four hours, day and night, sleeping in his mother’s room for fear of night-time seizures.

Pete is on the highest rate of DLA, but Michelle fears he will be downgraded in the PIP tests. It happened once before when a teacher mentioned in a report that he could get himself round school, forgetting to add that it was only with help from a full-time assistant. As a result, he was downgraded to mid-level DLA: “It happens so easily, so randomly,” Michelle says.

Staunch campaigner

She works as a carer, a cleaner, takes in lodgers, teaches English as a foreign language and makes hanging baskets. “Anything to keep off benefits, but I couldn’t cut back a penny more than we do already,” she says. She struggled when the washing machine broke down last week. As a staunch campaigner with disability charity Contact a Family, she says, “I’ve been an advocate for disabled families for years now, but if I didn’t know the system, I wouldn’t cope.”

One of the amendments would ensure PIP testers ask for medical reports from claimants’ own doctors, so they have full records, unlike the Atos work capability tests. “The new PIP tests terrify everyone, because we know what they are for: they are designed to throw a lot of people off benefits,” says Michelle.

If she reaches the stage where she can’t cope with her 6ft son, it would cost the state £3,000 a week to keep him in residential care. Michelle says she voted for Cameron: “I really believed that someone with a disabled son would never harm us. How wrong I was.”

Donna Glynn lives alone in east London, a 38-year-old wheelchair user who was born three months premature and suffers from cerebral palsy. She wants to work, but jobs are scarcer than ever for disabled people, though she has nine good GCSEs and has worked as an administrator. When the bill passes, she is typical of hundreds of thousands who will lose £20 a week when the PIP comes in, as she is not on the top level of DLA.

As a long-term jobseeker, she has just been put on a work programme with private company Ingeus. Unfortunately when she went for her appointment there were steps and no wheelchair access. When someone offered to help, she was told she couldn’t legally come in as there was no disabled toilet. But she still hopes they’ll find her work.

“Losing £20 might seem nothing in Westminster, but on £115, that makes a lot of difference to me,” says Donna. “What can I cut back? It’ll be the black cabs that take a wheelchair, which cost £7 one way to see my mum. I’m very stuck and socially isolated; the internet’s my salvation, but I won’t get out to see people much. Do they have any idea what losing £20 will do?”

Like all the 3.2 million people, old and young, on DLA, she knows the Lords can’t overturn the bill – but they can still mitigate some of the damage it threatens.

Baroness Tanni Grey Thompson On The Welfare Reform Bill

January 17, 2012

A disabled Peer has her say.

The government faces another rebellion over its controversial welfare reform bill after opponents tabled an amendment threatening to once again split support in the House of Lords.

Opening a new front against the government plans, Baroness Grey-Thompson, one of the most successful disabled athletes in the UK and a TV sports presenter, will seek to amend parts of the bill with provisions that mean that there would have to be a pilot scheme before a tough new assessment regime for disability living allowance is introduced.

Campaigners against the bill argue that only once the scheme is shown to work safely can it be expanded to include all two million claimants of the benefit.

Grey-Thompson said she was motivated by real worries about the proposed big changes to how disabled people are supported. “It makes sense to have a trial,” she said.

“It does not have to be long. In my experience as an athlete, you can have all the training plans you like but it’s only when you start doing it that you can see whether it works or not.

“Hundreds of thousands of people will be affected by these changes. We want the government to do what it says, which is helping people.”

The vote in the House of Lords on Tuesday follows a defeat for the government over three other amendments last week.

The coalition proposes to replace the working-age disability living allowance (DLA) with a new personal independence payment, and cut spending by 20%.

DLA is a welfare payment designed to help people look after themselves and aimed at those who find it difficult to walk or get around.

At present the government says it will review its proposals after three years. However, critics point out that after 36 months the system would be bedded down and hundreds of thousands of people will have lost their benefits.

The allowance pays out a maximum of £73.60 a week, its middle rate is a little over £49 and the lowest payment less than £20. However the government argues that in just eight years the numbers claiming DLA has risen from 2.5 million to 3.2 million, an increase of around 30%, which will cost the taxpayer £12.6bn this year.

Ministers have argued that there are no checks on who gets the benefit, hence the need for an assessment system.

However, campaigners say achieving the level of saving required would mean cutting 460,000 people from the benefit roll – a chop that would mean arbitrary judgments being made.

There is disquiet about any system that resembles the controversial working capability assessment, which is used in other parts of the welfare system to encourage people off benefits and into employment. However, it has been criticised for “widespread inaccuracies” in the medical reports used to help to determine whether individuals are eligible for sickness benefits.

The government had to revise the assessment after its own independent reviewer found that it had underestimated the number of people who needed support by 60% in one benefit.

Of particular concern are mental health problems which is the only area of working-age DLA benefits that is growing. Mental health problems are notoriously difficult to diagnose and campaigners say that without a medical consensus on how it affects work readiness, the assessment will be used to force people back to work.

Tuesday Treat: The Deaf Italian Bookkeeper

January 17, 2012

I posted a lot of serious stuff yesterday, and I hope I’ll be posting a lot more serious stuff later today. But first, I thought I’d share a disability-related joke with you. This is done in fun- no offence is intended to readers who can’t hear.

The Deaf Italian Bookkeeper 
 
A Mafia Godfather finds out that his bookkeeper, Guido, has cheated him out of $10,000,000.00
His bookkeeper is deaf. That was the reason he got the job in the first place.    It was assumed that Guido would hear nothing so he would not have to testify in court.
When the Godfather goes to confront Guido about his missing $10 million, he takes along his lawyer who knows sign language.
The Godfather tells the lawyer, “Ask him where the money is!
The lawyer, using sign language, asks Guido, Where’s the money?

Guido signs back, “I don’t know what you are talking about.” The lawyer tells the Godfather, “He says he doesn’t know what you are talking about” The Godfather pulls out a pistol, puts it to Guido’s head and says, “Ask him again and tell him if he doesn’t answer I’ll kill him!”

The lawyer signs to Guido, “He’ll kill you if you don’t tell him.”
Guido trembles and signs back, “OK! You win! The money is in a brown briefcase, buried behind the shed at my cousin Bruno’s house.

The Godfather asks the lawyer, “What did he say?” The lawyer replies,
 
“He says you don’t have the balls to pull the trigger.” 
Don’t you just love lawyers?
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