A Message From The Mother Of Daniel Roque Hall

Getting Daniel released from his prison sentence – which caused him to be hospitalised for five months – saved his life and we are both forever grateful for all the efforts made on his behalf.  When Daniel came home from hospital in February 2013 he was very frail, mentally and physically, and it took a year for him to make a recovery.  Unfortunately Daniel’s heart has been permanently damaged by what happened in prison and he cannot recover from that, which causes more health complications.  However his spirit has got stronger and although day-to-day life is always very difficult for Daniel, he has begun to write a book about his experiences which he hopes will contribute to understanding what it’s like living with a very severe and progressive disability and illness.  He is also taking speech lessons with an actor to maintain and optimise his speech, and now that the weather is warming up, he is able to go out more and exercise.

I am writing now to ask for your support again.  We are fundraising to enable Daniel to travel to China where he can have stem cell treatment, together with intensive traditional therapies including massage and acupuncture which can help maximise the impact of stem cell treatment.  There is no risk attached to this treatment (and no ethical issues as the stem cells are from umbilical cord blood) and although it is not a cure, it has been used successfully to alleviate some of the worst symptoms of Friedreich’s Ataxia.  This treatment is not available in the UK.

If you would like to support our fundraising efforts, please go here to make a donation, and for more information about the treatment.

Please send this email on to anyone you know who might help.

Thank you again,

Anne Hall