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Woman With MS Granted Right To Die

November 20, 2015

A woman in the end stage of multiple sclerosis has been granted the right to die, in a landmark legal ruling.

The woman’s daughter had told how her mother was “completely incapacitated” and had asked Mr Justice Hayden to allow doctors to stop providing “clinically assisted nutrition and hydration”.

Medical experts said the woman, who cannot be named for legal reasons, was in a “minimally conscious state”, however the judge concluded that it would be disrespectful to the woman to keep her alive in a manner she would “regard as grotesque”.

Granting the application on Thursday, he said the focus of the case was her right to live the last of her days in the way that she would have wished.

“[The woman] now 68 years old is profoundly impaired both physically and cognitively in consequence of the progressive degenerative impact of multiple sclerosis. It is now 23 years since [she] received her diagnosis.”

The woman, who is being cared for at a specialist unit in north-west England, is a former hairdresser. Her daughter told the court that her immaculate appearance was part of her belief system.

She told the judge: “I cannot emphasise enough how much the indignity of her current existence is the greatest contradiction to how she thrived on life and, had she been able to express this, then without a doubt she would.”

“My mum’s immaculate appearance, the importance she placed on maintaining her dignity and how she lived her life to its fullest is what formed her belief system; it’s what she lived for,” the daughter said. “All of that is gone now and very sadly my mum has suffered profound humiliation and indignity for so many years.

As well as hearing from the daughter, Hayden was presented with the views of other relatives, medics involved in her treatment, carers, independent medical experts and lawyers he had appointed to represent the woman earlier this month.

No one involved opposed the daughter’s application.

Four years ago, a brain-damaged, minimally conscious 52-year-old woman was denied the right to die by another judge.

Mr Justice Baker’s ruling at the time was hailed as a decision which clarified the law relating to the care of the severely disabled.

He had said there was dignity in the life of a disabled person who was well-cared for and kept comfortable and so concluded that life-supporting treatment should not be withdrawn.

He said the 52-year-old had some positive experiences which could be extended.

Responding to the decision made today, Davina Hehir, director of policy at campaign group Compassion in Dying, said: “This case represents a landmark for the courts taking into account a person’s previously expressed wishes when deciding what treatment they would or would not want.

“The experience of the family in this case must have been harrowing and our hearts go out to them. People can help to avoid these distressing cases by planning ahead for their own treatment.”

Hayden said during the hearing that he could not contemplate a more difficult decision and that his ruling was an evolution in case law.

Mathieu Culverhouse, a specialist court of protection lawyer based at law firm Irwin Mitchell, which represented the woman’s daughter, also said the decision was the first of its kind.

“This is the first time that the court of protection has agreed to withdraw treatment from someone receiving life sustaining treatment while considered by medical experts to be in a ‘minimally conscious state’,’ he said.

“The judge has decided that withdrawing the life sustaining treatment is in the woman’s best interests given her current quality of life,” he said.

“While this is clearly distressing for her daughter, she is relieved that the court has been able to review and examine the expert medical evidence available and hear detailed legal argument before making a decision which will now end her mother’s suffering and indignity.”

Campaigners who oppose assisted dying warned the ruling could put vulnerable sick or disabled people at risk. Peter Saunders, director of Care Not Killing said: “This case demonstrates judicial mission creep whereby judges, through subjective application of vague and ambiguous legal precedent, are able to shape and remake the law.

“In so doing they erode legal protection for vulnerable people and give an invitation to those who wish to rid themselves of a financial or emotional care burden to push the envelope even further.”

In the case, the woman’s interests were represented by the Office of the Official Solicitor, which provides legal help to mentally ill people.

Her lawyers initially said the judge should conclude that there was a “strong presumption in favour of the benefits of continuing life”.

But after hearing evidence, they altered their view and said they had decided to support the application.

Arrangements will now be made for treatment to be withdrawn in line with national clinical guidelines.

2 Comments leave one →
  1. November 20, 2015 2:18 pm

    Reblogged this on lawrencerowntree.

  2. November 20, 2015 9:45 pm

    Reblogged this on campertess and commented:
    I don’t have any strong views on this and I think it’s right that the decision is taken on case by case. There is something seriously wrong having to travel abroad to die probably before you are ready because you have to take that journey able bodied and without family members with you.

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