US CF Activist Claire Wineland Dies Aged 21

September 4, 2018

by samedifference1

Same Difference heard of her after her death, but we link to this statement and publish her TED talk in tribute:

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- me when a member of my team unleashed my hair from its Platz so that she could help me washing it this is my hair when it is left down to it natural devices do you like it? Not sure if I like it being left down to its natural devices as when it goes poopy after it dries I think I look like side show bob.Do you think I should wear it like this more often?
- I made when focusing on product creation whilst on Respite Care please come to my auctions to buy necklaces like this one that are in the auction as I have several like this.
- Wheelchair diva takes up the dance floor in her local music bar/nightclub. This is what the appropriate funding can help us do. Without it we have no access to our Community and are socially excluded and isolated; not by choice, but by just the lack of funding. They only care for funding personal care Assistants, also known as P.As, to provide time to shower and nothing else in our lives. Until crisis. The bare minimum is all that’s important to them not the fact that we are allowed other things in our life. This is why I am fundraising for my Care and support fund constantly, so I don’t have to wait for their permission to actually live a good quality of life where I have less flareups and less illness. People are with me to manage that illness if medical needs arise from it this is living a decent and acceptable quality of my life with FND and chronic pain including neuropathic pain
- When you want to show your customers your jewellery but don’t have a jewellery stand so you put it on your nosseco bottles to show them what it looks like but then have to put the bottle is not included in the advertisement for the product. It was fun that I got to enjoy the funny moments of life like this because I wasn’t constantly worrying about the fact I am disabled and about how we can mitigate my disability while sticking to hours that don’t meet need it was nice to be me and enjoy the funny moments but this is just my kind of humour.
- my outfit of the day a couple of Thursdays ago courtesy of cancer research charity shop while I was on respite, elegant charity shop fashion at its finest what do you guys think? Love the colour on me

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News, Views and Information For People With Disabilities

US CF Activist Claire Wineland Dies Aged 21

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US CF Activist Claire Wineland Dies Aged 21

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