Really hope everybody’s having a good Saturday evening/afternoon and has enjoyed not having to go to work today or college or any type of study program
January 20, 2024
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- Wheelchair diva takes up the dance floor in her local music bar/nightclub. This is what the appropriate funding can help us do. Without it we have no access to our Community and are socially excluded and isolated; not by choice, but by just the lack of funding. They only care for funding personal care Assistants, also known as P.As, to provide time to shower and nothing else in our lives. Until crisis. The bare minimum is all that’s important to them not the fact that we are allowed other things in our life. This is why I am fundraising for my Care and support fund constantly, so I don’t have to wait for their permission to actually live a good quality of life where I have less flareups and less illness. People are with me to manage that illness if medical needs arise from it this is living a decent and acceptable quality of my life with FND and chronic pain including neuropathic pain
- When you want to show your customers your jewellery but don’t have a jewellery stand so you put it on your nosseco bottles to show them what it looks like but then have to put the bottle is not included in the advertisement for the product. It was fun that I got to enjoy the funny moments of life like this because I wasn’t constantly worrying about the fact I am disabled and about how we can mitigate my disability while sticking to hours that don’t meet need it was nice to be me and enjoy the funny moments but this is just my kind of humour.
- my outfit of the day a couple of Thursdays ago courtesy of cancer research charity shop while I was on respite, elegant charity shop fashion at its finest what do you guys think? Love the colour on me
- relaxation time including a bubbly bath, electric candles and a lot of time focusing on self-care and relaxation this is the pamper life and the life of having time for self care .
- immunology that I passed my diploma in a couple of weeks agobut didn’t have the chance to post it this is the life of a determined Wheelchair diva who is determined to have a career in young adult and palliative care specialising in palliative care for people with cystic fibrosis and muscular dystrophy.
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