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Birmingham City Council Court Ruling Affects All Local Authorities In UK

May 19, 2011

Birmingham City Council acted unlawfully over a decision to reduce its provision of care for disabled people, High Court judges have said.

The judgement has implications for local authorities in England and Wales.

Thursday’s ruling said local councils must abide by existing disability laws to eliminate discrimination.

It said councils must take account of people’s disabilities, even where that involves treating disabled persons more favourably than others.

‘Climate of cuts’

Across the UK there are 122 councils, as well as Birmingham, that currently only provide care to people with either substantial or critical care needs.

The judges said all public bodies had a duty to follow the disability discrimination law, while acknowledging that placed “significant and onerous” obligations on local authorities.

The families of four severely disabled people fought Birmingham council’s spending cuts decision and took legal action against the authority.

Solicitor Karen Ashton represented the families and welcomed the High Court ruling in London saying it gave disabled people a voice in law.

‘No new money’

She said the council’s proposed policy would have had “devastating” results.

“With consequences of this kind, then councils must look if savings can be made elsewhere,” she added.

Birmingham City Council said it welcomed the greater clarity of its duties with regard to the Disability Discrimination Act 2005.

Peter Hay, the council’s strategic director of adults and communities, said: “The original dilemma between reducing services in different areas remains.

“There is no new money as a result of the judgement and hard choices about meeting growing needs with fewer resources will have to be made by local authorities.”

The Conservative-Liberal Democrat run authority had proposed the cuts as part of a plan to save £212m.

In April a court sitting in Birmingham made an interim judgement that the council had acted unlawfully and this latest ruling is the full finding.

‘Strong message’

In a statement Unison said: “The council should rightly be condemned for defending the indefensible. Thousands of vulnerable people in the city would have been put at risk if it were not for the intervention of the courts.”

Deafblind charity Sense said the ruling should be a warning to all authorities.

Its head of legal services Kari Gerstheimer said other councils in England and Wales may be considering making similar cuts to social care.

“We hope that this judgement sends a very strong message to those councils, that we are in a climate of cuts.

“But even in a climate of cuts there are choices to be made and a civilised society does not choose to cut services to people with the greatest need – that’s disabled people.”

Previously the council said it had identified £118m worth of cuts by 2014-15 from its adult and communities directorate and needed to save £308m in total in the next four years due to the central government cuts outlined in the Spending Review.

It said only people whose needs were judged to be “critical” would qualify for council-funded care. Following the Adult social care judicial review on Thursday, the council said it would revise its plans and re-run the public consultation.

A council spokesman added: “It is important to point out that Mr Justice Walker has said that we were considerate and thoughtful of disabled people, in making our new offer, that our consultation was extensive but that it needed to be fully informed by impact assessment.”

RNIB Adds A Touch Of Braille To Its Chelsea Garden With The Help Of Children’s Author

May 19, 2011

I’ve just recieved the press release below from Jess Sweetman at the RNIB.

A giant braille poem will form an integral part of the RNIB Garden for children with sight loss, unveiled at this year’s Chelsea Flower Show. The poem was written by children’s author Michael Rosen, entitled Hand on a Bridge. Rosen will also be going to see the display on Monday 23rd May.

Visitors will be invited to feel the braille poem which reflects the overall theme of sight loss and children. It is hoped that this will prompt thought and discussion about the simple tools blind and partially sighted people use in order to live a fulfilling life. As well as including braille, garden designer Hervey-Brookes focuses on touch, scent and sound by using materials that have textural qualities, left in as natural a state as possible such as planed green oak, reclaimed Cotswold stone and Aberdeen granite. 

The extract from Michael Rosen’s poem:

Hand on the bridge

Feel the rhythm of the train

Hand on the window

Feel the rhythm of the rain

Hand on your heart

Feel the rhythm inside

Hand on your life

Feel the rhythm of time 

 

The RNIB Garden celebrates the redevelopment of one of the charity’s most cherished services, RNIB Pears Centre for Specialist Learning. The Centre provides individualised care, education and therapies to children with complex needs and sight problems, who inspired the theme of the garden – the experience of the senses.

 

After the show, the garden will form a central part of the outdoor space at the RNIB Pears Centre and will be enjoyed by young people with complex needs and sight problems day after day.

This is the second time that Paul Hervey-Brookes has designed a garden for RHS Chelsea Flower Show. In 2010 Paul designed a garden exploring the theme of biodiversity from Bradstone and was awarded a Silver Medal.

 

Deaf Not Dumb

May 19, 2011

I happened to be watching See Hear on BBC Two last night and was particularly interested in the piece they ran on a short film called Deaf Not Dumb. This is part of a project started by a group of young Deaf people which aims to educate hearing people about what it means to be Deaf in today’s world.

It really is very well made and well worth a watch- and the title definitely applies to its creators!

Eric Weihenmayer

May 19, 2011

Erik Weihenmayer went blind when he was 13 years old but new technology enables him to see with his tongue.

The BrainPort device gives him a sense of space and, together with a friend nearby, helps him scale Utah’s formidable Castleton Rock.

Inside the Human Body – Building Your Brain is presented by Michael Mosley and can be seen on BBC One at 9pm on Thursday 19 May 2011 and after on BBC iPlayer

PC David Rathband Challenges Theresa May On Police Pay

May 19, 2011

The police officer who was blinded by the gunman, Raoul Moat, has challenged the Home Secretary, Theresa May, over police pay.

Constable David Rathband recorded a video message for the Police Federation conference in Bournemouth where Mrs May was defending cuts to police budgets.

His question was introduced by the chairman of the Police federation Paul McKeever.

US Government Suing Starbucks For Firing Employee Because Of Her Dwarfism

May 18, 2011

I’d like to thank the US Government for showing so much sensitivity in this case. I hope their attempt to sue Starbucks is successful. On a lighter note, I’ve always preferred Costa anyway! Now I just have a very good reason not to go to Starbucks.

Starbucks is being sued by the US government for firing a dwarf from her barista job in El Paso, Texas, after she asked for a stool or small stepladder to help her carry out her duties.

Starbucks denied Elsa Sallard’s request and fired her from her barista job the same day, claiming the employee could pose a danger to customers and workers.

The US Equal Employment Opportunity Commission (EEOC), which filed the lawsuit on Monday, said the coffee company violated federal law by denying the employee, who was hired in July 2009 and let go after three days of training, a reasonable accommodation.

‘Starbucks has become a virtual icon of modern American culture, appealing to an incredibly diverse customer base,’ Robert Canino, a commission lawyer in Dallas, said in a statement.

‘We’d hope that when considering hiring a person with a disability, Starbucks would choose to enhance its brand with the mark of equal opportunity and access.’

Starbucks spokeswoman Stacey Krum commented that the woman was given her job on a trial basis. After three days, the El Paso store manager decided the work was too physically demanding for her to carry out.

‘Using the stool in that environment just wasn’t a reasonable accommodation in that store,’ she explained.

The EEOC, which tried and failed to reach an out of court settlement with Starbucks, is seeking lost wages and compensatory damages for Ms Sallard, as well as a court order that Starbucks adopt policies to correct and prevent disability discrimination.

New Concerns Over SEN Green Paper

May 18, 2011

Over at Left Foot Forward, Laurence Turner raises new concerns about the SEN Green Paper- most importantly, that every delay in this area is negatively affecting the development of vulnerable children.

Elective Amputation

May 18, 2011

An Austrian resident has voluntarily had his hand amputated so he can be fitted with a bionic limb.

The patient, called “Milo”, aged 26, lost the use of his right hand in a motorcycle accident a decade ago.

After his stump heals in several weeks’ time, he will be fitted with a bionic hand which will be controlled by nerve signals in his own arm.

The surgery is the second such elective amputation to be performed by Viennese surgeon Professor Oskar Aszmann.

The patient, a Serbian national who has lived in Austria since childhood, suffered injuries to a leg and shoulder when he skidded off his motorcycle and smashed into a lamppost in 2001 while on holiday in Serbia.

While the leg healed, what is called a “brachial plexus” injury to his right shoulder left his right arm paralysed. Nerve tissue transplanted from his leg by Professor Aszmann restored movement to his arm but not to his hand.

A further operation involving the transplantation of muscle and nerve tissue into his forearm also failed to restore movement to the hand, but it did at least boost the electric signals being delivered from his brain to his forearm, signals that could be used to drive a bionic hand.

Then three years ago, Milo was asked whether he wanted to consider elective amputation.

“The operation will change my life. I live 10 years with this hand and it cannot be (made) better. The only way is to cut this down and I get a new arm,” Milo told BBC News prior to his surgery at Vienna’s General Hospital.

Milo took the decision after using a hybrid hand fitted parallel to his dysfunctional hand with which he could experience controlling a prosthesis.

Such bionic hands, manufactured by the German prosthetics company Otto Bock, can pinch and grasp in response to signals from the brain that are picked up by two sensors placed over the skin above nerves in the forearm.

In effect, the patient controls the hand using the same brain signals that would have once powered similar movements in the real hand.

The wrist of the prosthesis can be rotated manually using the patient’s other functioning hand (if the patient has one).

World first

Last year, a 24-year-old Austrian named Patrick was the first patient in the world to choose to have his hand amputated, again by Professor Aszmann, and a bionic replacement fitted. He lost the use of his left hand after being electrocuted at work.

He can now open a bottle quickly and tie his own shoelaces.

“My reaction was ‘Oh my god, I’ve got a new hand!’,” he told BBC News.

“I can do functions which I did with my normal hand with the prosthetic arm,” he said, recalling his response to first being fitted with a bionic hand.

“I think it was very cool – I did not do things with my hand for three years and then you put on the new hand and one moment later, you can move it. It’s great.”

Patrick is already testing a new hand, which its makers say will give him much greater movement. The hand has six sensors fitted over nerves within the lower arm, rather than the two on his current prosthesis.

Multiple signals can be read simultaneously, enabling the patient to twist and flex their wrist back and forward, again using the same brain signals that would have powered similar movement in the real hand.

Professor Oskar Aszmann prefers to calls these elective amputations “bionic reconstruction” and has been working closely with Otto Bock, who have a research and production facility in Vienna.

Before the first operation, the professor held a symposium to discuss the procedure, to which senior surgeons and a theologian were invited.

He believes elective amputations are the best option for patients who have lost hand movement and who have no hope of regaining that movement through surgery.

“You see a patient come to you with a tremendous need for hand function and it’s only a thought away to come to the next conclusion,” he said.

“If the patient cannot address his only hand and I can change his anatomy in a way so he can communicate with an artificial hand, then of course I’ll just take away what’s there and provide a technological hand for him.”

But Professor Aszmann has faced opposition in some quarters, with senior colleagues even requesting he cancel this latest operation – requests the professor promptly rejected.

He said the alternative for patients like Milo would be years of pointless surgery.

“Milorad is now 26 years old and he wants to go on with his life. To biologically reconstruct a hand for him would be a never-ending story and in the end he would still have a non-functional hand.

“It is in the patient’s interest to provide him with a solution he can live with properly and successfully, and so I have no problem with cutting off his hand.”

In the event, the amputation itself passed without incident.

Scar tissue from a previous operation was removed and then the hand cut off with a pneumatic saw. Tissue was then taken from the hand and transplanted to the wrist to provide a cushion for the prosthesis.

Speaking from his hospital bed following the surgery, Milo was a little drowsy, but as positive as ever.

“I feel good,” he said, his bandaged arm lying on a cushion besides him.

“I’m happy that it’s over and look forward.”

Article At Disability Horizons

May 18, 2011

The second edition of online magazine Disability Horizons was published today. It includes an article by me, titled Writing About Disability.

Give Social Care The Same Priority As The NHS Says Peter Beresford

May 18, 2011

I’m linking to this Guardian Joe Public blog post, in which Professor Peter Beresford says that social care should be given the same priority as the NHS by politicians.

Guardian Letters On Disability Cuts

May 18, 2011

I’m linking to today’s Guardian letters page, as they are all on the Coalition’s planned disability cuts.

Ade Adepitan Remembers Carrying Olympic Torch

May 18, 2011

Paralympian basketballer Ade Adepitan carried the Olympic torch ahead of the 2004 Athens Games and for Beijing 2008.

He says going down the Mall in London with the flame was an “awesome” experience.

My Able Radio Slot

May 17, 2011

My Able Radio slot has just aired- here is the recorded version.

Wheelchair Stolen From Disabled Man In Manchester Park

May 17, 2011

I completely agree with the police on this. It’s unbelievable.

A disabled man has had his wheelchair stolen by a “pathetic” thief while he carried out therapeutic exercises in a Manchester park.

The 52-year-old, who had raised himself out of the chair, was using rails to help him walk around Broadfield Park in Moss Side at 1320 BST on Friday.

A man loaded the wheelchair and a set of keys into a blue van and drove off.

The victim eventually fell to the ground where he was discovered lying in the rain.

‘Utterly despicable’

Sgt Stacy Gibson said: “We are thoroughly determined to find the pathetic person responsible and put them in front of the courts to answer for this.

“It is utterly despicable that a criminal is so desperate to benefit from the vulnerability of others that they would steal a disabled man’s wheelchair while he exercises.

“If you saw or know something or you know what has happened to the wheelchair stolen, please contact me and be part of serving the justice this thief deserves.”

The thief, who is described as white, aged 25 to 30, 5ft 8ins tall with short fair hair, was wearing a white t-shirt and jeans.

He made off in a blue van towards Claremont Road.

Mother Worries That Cuts To Deaf Services Will Affect Son’s Future

May 17, 2011

A mother is worried cuts in services to deaf children will affect her son’s future.

Suzanne Pitchford, of Norton, Stoke-on-Trent, said the service was “stretched to the limit” after the council reduced the number of specialist posts.

The city council, which is making £21.6m savings following the government’s Spending Review, said it had cut the number of “teachers of the deaf” posts from eight to five.

However, the National Deaf Children’s Society (NDCS) claimed five posts were being cut, leaving three specialist teachers to help about 220 children. It said Stoke had seen the “harshest cuts” to services for deaf children in England.

Mrs Pitchford said the Stoke service had been “absolutely brilliant” in providing help for her five-year-old son Sam, who has hearing problems after being born with Goldenhar syndrome.

However, following the cuts, she said his teacher had been unable to attend routine appointments, where her expertise and support was essential.

Time struggle

Mrs Pitchford said: “She would attend appointments, she would try and support Samuel and check the hearing aids in his ears and check that he wore them at the correct levels and were maintained. And now unfortunately, she struggles to fit everyone in.”

“And we’re finding that even a simple thing such as a hospital appointment, she is having to back track and say ‘I can’t attend this hospital appointment because I have to rush off and see someone whose equipment has failed’.”

Mrs Pitchford said she was also worried specialists would no longer be able to “pop into” Sam’s school to see if he had any problems.

“Basically he’s going to lose his ability in class,” she said.

“His grades are going to slip down.

“The fact is he can’t properly hear what is being said to him and he’s only just getting used to his hearing aids.”

The NDCS said that the specialist teachers were vital in helping deaf children develop their communication skills and follow lessons at school.

The NDCS has expressed concern about cuts to services for deaf children across England.

It said figures it obtained under the Freedom of Information Act suggested one in five councils were cutting such services in some way, including 28 local authorities which were cutting posts for teachers of the deaf.

The charity said the specialist teachers were vital in helping deaf children develop their communication skills and follow lessons at school.

NDSC chief executive Susan Daniels said it had called on the secretary of state to investigate and “explain why frontline services are being cut from budget he said would be protected”.

‘More integrated service’

The charity said last year 65% of deaf children in England failed to get five GCSEs, grades A to C, including maths and English. This compared to 34% of children who had no special educational needs.

Ms Daniels said: “The support being taken away is not an optional extra, it is absolutely crucial for deaf children’s learning and development, particularly as they are already under achieving compared to other children.

“We are so alarmed about the longterm impact of these cuts that we will support families in legally challenging reductions to services their child receives.”

The charity said the figures were higher for the West Midlands, where 74% of deaf children did not get five GCSEs at grades A to C (including maths and English).

In March, hundreds of people signed a petition calling for the cuts to services for deaf children in Stoke to be reversed.

Labour-controlled Stoke City Council said as part of the budget process, a restructure was taking place among staff who supported children with special educational needs and disabilities.

Under the plans, 30 posts in this area were being reformed into a team of 22.

Sharon Menghini, director of children and young people’s services, said the changes would “provide a more integrated service for supporting deaf children in mainstream schools”.

“This new team will include teachers and support staff who will support schools to ensure that all children with special needs and disabilities make good progress across the city and continue to build on the good work already taking place in this area by our staff,” she said.

David Blunkett And Stephen Hawking Are The Public Faces Of Disabled Britain

May 16, 2011

I have just recieved the press release below from Jessica Strudwick at Mencap.

  • Majority of the British population are unable to name a high profile person with a disability
  • David Blunkett and Stephen Hawking are the most well known and Susan Boyle is the only public figure named who has a learning disability

Over half the British population (52 per cent) are unable to name a high profile person they have seen in the media with a disability, increasing to 99 per cent who are unable to correctly name someone with a learning disability, a new Ipsos MORI poll for charity Mencap, reveals.

Labour MP, David Blunkett, who is blind, and theoretical physicist, Stephen Hawking, who has motor neurone disease, were the most frequently mentioned people with a disability in the poll (13 per cent each), followed by actor, Stephen Fry, who has bipolar disorder (8 per cent). Less than one per cent of respondents were able to correctly name a high profile person with a learning disability, namely the former Britain’s Got Talent star, Susan Boyle.

Mark Goldring, Mencap’s chief executive, said: “In Great Britain there are 10 million people with a disability and 1.5 million people who have a learning disability. Despite this being a sizeable part of the population, the survey reveals that people with disabilities are under-represented in the media and in public life and that people with a learning disability are particularly invisible in UK society.”

“Mencap’s Viewpoint magazine has just released the ‘Hotlist’ for 2011 highlighting a number of talented individuals with a learning disability. This shows that Britain has a wealth of disabled talent and we need to see more positive role models in the media and in public life to help remove the stigmas associated with disability and to encourage a shift in public perception to enable people with a disability to be treated equally in society.”

The poll also revealed that a large segment of the public (41 per cent) believe that the number of people with a disability who they have seen, heard or read about in the media does not reflect that of society as a whole. Just 21 per cent thought media coverage of people with a disability was reflective of society.

Encouragingly, 44 per cent of the public are keen to see, hear or read more about people with disabilities in the media than there are at the moment with only a small minority (12 per cent) who disagreed.

Whilst Susan Boyle is the best known person with a learning disability in public life, there are countless other people who are incredibly skilled in their own fields including elite swimmer and 2012 Paralympic hopeful Daniel Pepper, local Welsh Councillor Sara Pickard and actor Tommy Jessop who has featured in Holby City and the BAFTA nominated TV movie, Coming Down the Mountain.

These are just a few people named in Mencap’s Viewpoint ‘Hotlist’ for 2011 which showcases 20 people with a learning disability who are extremely talented in the realms of sport, politics and the arts.

Actor Jez Colborne who also features in the Hotlist had this advice for people with a learning disability who want to pursue their talent: “Just make sure you don’t get put off. You’ve got a talent – use it. Don’t let anybody tell you ‘you’ve got a disability so it’s hard’. Yes, it’s hard, but I’ve done it so why can’t anyone else? I feel very strongly, that people shouldn’t put other people down.”

To find out more information about learning disability or to see Viewpoint’s Hotlist and picture gallery visit www.mencap.org.uk/hotlist.

Cheap Carer Tickets For Bath And West Show Scrapped

May 16, 2011

Cheap tickets for carers of disabled people visiting the Royal Bath and West Show have been scrapped.

In previous years, disabled visitors have been able to buy one ticket and receive another discounted for a carer.

The move has been criticised by Somerset charity Compass Disability Services which said it would prevent many disabled people attending.

A show spokesman said: “Regrettably, the carers concessionary rate has had to be withdrawn because of misuse.”

The charity’s chief executive officer, Richard Pitman, said: “We are disappointed that the Bath and West Show organisers have introduced this policy that may prevent many disabled people from attending the show.

“In my experience, it’s normal practice for organisers of an event to provide concessions for disabled people who are unable to access all facilities at the show or unable to attend without the assistance of a carer.

“We hope this means that all areas of the Bath and West Show will be fully accessible to disabled people”.

The show’s website states: “We provide excellent services to ensure all areas of the showground are accessible. All avenues have hard surfaces and all buildings, toilets and shower facilities can be accessed with ease, making your day out with us an enjoyable experience.

“Lift access is provided to the top floor of the Showering Pavilion and also to the Bath and West Restaurant.”

This year’s agricultural show will take place from 1 to 4 June.

Swiss Assisted Suicide Vote: UK Campaign Groups React

May 16, 2011

Campaign group Dignity in Dying says Swiss voters have made a “brave decision” in rejecting calls to ban assisted suicide for non-residents.

But anti-euthanasia alliance Care not Killing said it was disappointed after 78% voted against outlawing it.

Residents in Zurich were asked to decide whether assisted suicide should be banned, either for Swiss nationals or non-residents.

So far, 150 Britons have chosen to die at the Dignitas clinic in the country.

Some 85% of the 278,000 votes cast opposed the ban on assisted suicide and 78% opposed outlawing it for foreigners, Zurich authorities said.

While opinion polls indicated that most Swiss were in favour of assisted suicide, they had also suggested that many were against what has become known as suicide tourism.

Sarah Wootton, chief executive of Dignity in Dying, said: “With the present lack of a safeguarded alternative at home, this result will come as a relief to many people in Britain who want the choice of an assisted death, should they find themselves suffering at the end of life.

“The people of Zurich have taken a brave decision, and in doing so they have refused to turn their backs on dying Britons who want the choice to end their suffering – nor should we.”

She said the organisation wanted to see assisted dying legalised in the UK for competent adults under strict safeguards.

Dr Peter Saunders, campaign director of Care not Killing, representing over 40 organisations, said: “We are disappointed that voters in Zurich appear to have followed the call of the two major political parties to support the status quo in today’s referendum on assisted suicide after an earlier poll showed that two thirds of Swiss people were concerned about suicide tourism.

“However, we are pleased that the Swiss government is still planning to revise the country’s federal laws on assisted suicide next year.”

Zurich Vote Backs Assisted Suicide And ‘Suicide Tourism’

May 16, 2011

Voters in Zurich, Switzerland, have rejected proposed bans on assisted suicide and “suicide tourism”.

Some 85% of the 278,000 votes cast opposed the ban on assisted suicide and 78% opposed outlawing it for foreigners, Zurich authorities said.

About 200 people commit assisted suicide each year in Zurich, including many foreign visitors.

It has been legal in Switzerland since 1941 if performed by a non-physician with no vested interest in the death.

Assistance can be provided only in a passive way, such as by providing drugs. Active assistance – helping a person to take or administer a product – is prohibited.

‘Last resort’

While opinion polls indicated that most Swiss were in favour of assisted suicide, they had also suggested that many were against what has become known as suicide tourism.

Many citizens from Germany, France and other nations come to die in Switzerland because the practice remains illegal abroad.

One local organisation, Dignitas, says it has helped more than 1,000 foreigners to take their own lives.

Another group, Exit, will only help those who are permanently resident in the country – saying the process takes time, and much counselling for both patients and relatives.

Its vice-president, Bernhard Sutter, said the result showed Swiss voters believed in “self-determination at the end of life”.

The referendum had offered a proposal to limit suicide tourism, by imposing a residency requirement of at least one year in the Zurich area in order to qualify for the service.

It was backed by two conservative political parties, the Evangelical People’s Party and the Federal Democratic Union.

But the major parties of the left and right, including the Swiss People’s Party and the Social Democratic Party, had called on their supporters to vote against both motions.

The BBC’s Imogen Foulkes, in Geneva, says the size of the vote against a ban on assisted suicide reflects the widely held belief among the Swiss that is their individual right to decide when and how to die.

Their rejection of the proposal to limit assisted suicide to those living in Zurich shows that concerns about suicide tourism carry less weight with voters than their conviction that the right to die is universal, our correspondent says.

But the debate in Switzerland will continue, she adds. Polls show voters do want clearer national legislation setting out conditions under which assisted suicide is permitted.

The Swiss government is planning to revise the country’s federal laws on assisted suicide.

It has said it is looking to make sure it was used only as a last resort by the terminally ill, and to limit suicide tourism.

Disabled People Face Abuse And Threats Of Violence Since Benefit Fraud Crackdown, Finds Survey

May 15, 2011

Disabled people have faced greater hostility from the general public since the government launched its controversial benefits reforms, according to a survey by a leading charity.

A majority said that they experienced hostility, discrimination or even physical attacks from strangers on a weekly basis and more than a third claimed the situation had become worse in the previous 12 months.

Victims blame ministers for portraying all people with disabilities as scroungers as they seek to cut the number of people on disability benefits, including the 2.9 million people in receipt of disability living allowance (DLA) and the 1.9 million people deemed physically unable to work currently given incapacity benefit.

The government has presented changes, including the introduction of medical and psychological tests for those claiming DLA, as a way of getting tough on people cheating the system. But disabled charity Scope, which commissioned the survey, said there was powerful evidence that the “backdrop of negativity” behind the cuts was leading to a rise in hostility and even violence towards some of the most vulnerable in society.

In the survey 37% of people with disabilities claimed they were increasingly being abused on the streets, erroneously reported to the benefits fraud hotline and accosted when trying to use disabled parking spaces. Nearly two thirds thought others did not believe that they were disabled and half of respondents said they felt others presumed they did not work.

Around two thirds of the 676 surveyed said that they expected to experience some form of discrimination when trying to find a job. And more than half expected to be discriminated against in the workplace once they were employed.

The findings follow last week’s London protest by several thousand disabled people against cuts to services and benefits provided by central and local government. David Gillon, 47, from Chatham, Kent, who suffers from a debilitating back condition, told the Observer he was left distraught when he was recently reported to the Department for Work and Pensions’ fraud hotline.

“I spend only about four hours a week outside the house, but I was contacted by the DWP recently because someone had anonymously reported me for cheating,” he said.

“They asked me to come down to the job centre, but I had to explain that every time I went down there I had to have the next day stretched out in bed. They finally relented and came to my house and it took 30 seconds to realise that the allegation was nonsense. I don’t know whether it is jealously, resentment or fear, but things are undoubtedly getting worse. I feel more under threat of violence than for years.”

Mark Mayer, 38, from Dorking, Surrey, who has cerebral palsy, said: “It’s upsetting when complete strangers feel they can question me. At a supermarket the other day I was getting out of my car and a woman accosted me, demanding to know what my disability was. She said I didn’t look disabled and couldn’t see my blue badge. I showed it to her and she still demanded to know what was wrong with me, and I had to show her my walking sticks.

“The nonsense that everyone on disability benefits is a scrounger is adding to this sort of thing.”

Richard Hawkes, Scope’s chief executive, said he believed the decline in tolerance for disabled people would actually see fewer taking up jobs and playing a full role in society. He said: “Much of the welfare reform debate has focused on disabled people as benefit scroungers, and many disabled people feel this has led to the public being more sceptical about disability issues and more hostile to those who receive welfare support.

“Ironically this backdrop of negativity will only make it harder for the million disabled people who will be migrated off benefits to get a job.”

Aaron Brown

May 14, 2011

Cystic fibrosis is one of the country’s most common inherited diseases, and half of those with the illness are unlikely to live past their late 30s.

But Aaron Brown hasn’t let this affect him. At just 26, he’s recently qualified as a surgeon at York Hospital.

Penny Bustin caught up with him.

Swiss Vote Could End ‘Suicide Tourism’

May 13, 2011

As regular readers will know, I support disabled people’s right to live for as long as is naturally possible. So I don’t usually agree with the idea of assisted suicide or assisted death. However, I’m not sure how I feel about the news that on Sunday, voters in Zurich, Switzerland, will hold a referendum on two proposals relating to this issue- one to ban assisted suicide altogether, and another to only allow the practice for permanent residents of Zurich.

Opinion polls in Switzerland show that many people there believe a person has the right to decide when and how to die. So the proposal to ban the practice, suggested by the religious group, Evangelical Democratic Union, seems unlikely to be passed. However, voters are much less sure about whether Switzerland should be offering assisted suicide to citizens of other countries, where the practice remains illegal.

In recent years, terminally ill people from other European countries where assisted suicide remains illegal have ended their lives at the Dignitas clinic in Zurich. As a result the city has become known for ‘suicide tourism.’ If this proposal is passed, Dignitas may be forced to stop offering its services to overseas clients.

There is particular concern at the speed with which foreign patients are helped to end their lives- for many the procedure takes place within just a day or two of arriving in Zurich.

Campaigners against assisted suicide in Zurich are concerned that this is not the kind of image their city should have.

The founder of Dignitas, Ludwig Minelli, refused to comment. However, in an interview with the BBC last year, he said that the right to choose when and how to die is ‘the last human right’ and that he wanted to continue to help ‘implement’ this right.

But Zurich’s biggest assisted suicide organisation, Exit, already only offers its services to permanent residents of Switzerland. Vice President Bernhard Sutter told the BBC that he would be ‘happy’ if Germany or Britain could change their laws on assisted suicide.

If the laws in countries where the practice is illegal were to change, this would be very good news for disabled people like Lynn Gilderdale- those who genuinely wish to end their lives and have expressed this wish themselves. However, there is still, as always, the danger that a change in this law could lead to an increase in cases like this one, in which no one will ever know what the disabled person themselves wanted.

It will be interesting to see what the people of Zurich decide.

No Change On Gary McKinnon, Says US Attorney General

May 13, 2011

This is a real shame. As regular readers will know, I’ve always really hoped Gary McKinnon never gets extradited.

JustGiving Page Of The Week: Ian Kitchen

May 13, 2011

This week’s JustGiving Page Of The Week goes to Ian Kitchen, who is fundraising for the Hereditary Spastic Paraplegia Support Group. Good luck Ian!

Money Used For Care ‘Small Price To Pay’ Says Carer

May 12, 2011

Care for the most vulnerable people in the community is being reviewed up and down the country, as local councils deal with cuts to their budgets from central government.

A BBC survey suggests Wirral Council is making an estimated 20.6% cut to its adult social care budget following the government’s Spending Review.

It has said some savings have been made through the controversial closure of five council-run care homes, with care being transferred to independent providers.

Further savings will be made by offering those who use social services their own personalised care budgets to manage themselves.

Behind the statistics, though, lie an army of carers who rely on council-run centres to provide them with essential respite.

‘Wears you down’

One of those carers is Eddie Griffiths, whose son, Peter has severe learning difficulties.

He uses the Eastham centre in Wirral, which will remain open despite the council having to find £12m worth of savings in its adult social services provision.

Mr Griffiths said for those who use the centre, going there lets them have a “life worth having” and offers valuable relief to the carer.

“For the carer of someone with a learning disability, without a day centre you cannot possibly live for 24 hours a day with someone with a learning disability with any sort of constructive life,” he said.

“There is so much pressure that is put on you trying to meet their needs, it gradually wears you down, it really does, we need the respite care.

“The centre gives our people something to get up for, to come out for, to be involved in. They are having a life which is worth having.

“Without the day centre they couldn’t possibly do it. With the day centre they have friends, they have outings, they live as normal a life as possible.”

He said money spent on respite care did a “huge amount of good” all round.

“In our day and age if we cannot maintain a service to suit the most vulnerable people of our society, then it is a pretty sad show of mankind.

“If it did fail then the health situation of those carers and our sons and daughters, their health would fail and it would end up costing far, far more, than keeping people occupied and keeping them sane and keeping them happy, and giving them a bit of respite where it is needed, then it is a pretty small price to pay in the long run.

“It is a huge amount of money, but it does a huge, huge amount of good.”

Hardest Hit March: The Panel’s Verdict

May 12, 2011

Today’s Guardian online has published this piece with the views of four people who marched yesterday- and one who couldn’t.

Kade Romain

May 12, 2011

A 15-year-old girl from Trinidad who was born without ears has undergone the second stage of surgery in Scotland.

A medical team at a hospital in Edinburgh is constructing new ears for Kade Romain, who lived in an orphanage before coming to Scotland.

Ear specialist Ken Stewart has been carrying out the operations at the Spire Murrayfield Hospital in Edinburgh.

“We’re going to release the ear from the side of her head and re-create the groove behind the ear by taking a skin graft and putting that skin graft behind the ear,” he says as he prepares for the surgery.

Kade’s new ears were constructed from cartilage taken from her ribs.

The ear structures were positioned under flaps of skin on either side of her head.

Now that the scars have healed and the swelling has settled down, Mr Stewart can perform this second stage to make the ears “stick out” slightly.

‘Self confidence’

Kade is already wearing her hair pulled back from her face for the first time. A hearing aid has also helped her learn to speak English, and hear sounds she has never heard before.

“I can hear the sounds of the sea,” she says.

Her guardian Robina Addison is delighted with the progress.

“She’s got so much more self confidence now,” she says. “She’s gone from hiding behind her hair or a hat to not caring who sees her ears.”

Mrs Addison, a Scottish dance teacher, first met Kade in an orphanage in Trinidad.

Kade couldn’t attend school because of her deafness and was attending a day unit for children with mental handicaps, despite the fact her disability didn’t affect her intelligence.

Mrs Addison was inspired to organise a temporary visa for Kade to come to Scotland for the unusual operation.

The surgery would normally offered on the NHS but as Kade is a foreign national she does not qualify for free health care.

Instead the Spire Murrayfield private hospital offered its facilities and the surgical team has worked for free.

It hasn’t all been straightforward. Kade’s newly constructed left ear had to be removed when she developed an infection caused by botched surgery in Trinidad to try to drill a new ear canal.

“She’s about as complicated as ear reconstruction gets,” says Mr Stewart.

“Kade had a chronic infection that we weren’t aware of deep inside her ear, so we had to remove one ear and temporarily bank the cartilage in her chest for safe keeping.”

The infection has now been treated and the ear removed from between her ribs and reinserted under skin on the left side of Kade’s head.

Kade will eventually be fitted with a permanent bone-anchored ear canal.

‘Lovely future’

Since arriving in Mrs Addison’s home town of Montrose, Kade has attended school for the first time and has made friends with other pupils.

“She’s now learning to read and write,” Mrs Addison says. “She works hard and tries hard to be ‘more clever’, as she puts it.”

Mrs Addison and her husband now hope to adopt Kade permanently.

“Eventually the hearing aid won’t be visible at all and she’s going to be a completely new person. I’m sure Kade’s going to have a lovely future.”

Carers Save The Country £119 Billion Each Year

May 12, 2011

This article says a lot of good and very true things, so I’m linking to it.  I’m pleased to read in the article that the charity Carers UK is calling for a review of Carers Allowance, because I am too.

Charities Urge Changes To WCA

May 12, 2011

Six charities say people with serious illnesses are being found “fit to work” under new sickness benefits tests – and are urging changes to the assessment.

The MS Society, Parkinson’s UK and others have urged changes to make the test “fairer” for people with illnesses where symptoms vary over time.

The Work Capability Assessment, currently being used for first-time claimants, is being reviewed.

The government says tests show the majority of new claimants can work.

It comes as protesters start arriving in Westminster to take part in the Hardest Hit march against benefit changes and other government policies they believe will have a negative impact on people with disabilities.

People claiming Employment and Support Allowance (ESA) – which replaced incapacity benefit – for the first time now have to go through a new test, the WCA, which was introduced under the previous Labour government.

The test is also in the process of being rolled out to 2.6 million people who were already claiming disability benefits.

‘Significant discomfort’

But it has proved controversial and tens of thousands of people have appealed against its findings – with many appeals being upheld.

The group of six charities, which also includes the National Aids Trust, Arthritis Care, the Forward-ME group and Crohn’s and Colitis UK, has published a report for consideration as part of Professor Malcolm Harrington’s independent review of the WCA.

They say people with illnesses like Parkinson’s, HIV or arthritis are “wrongly being found fit to work” after taking part in the assessment when applying for ESA.

The charities recommended 12 changes to the current WCA, including amending wording of the test to ask whether claimants can complete “activities reliably, repeatedly and safely”, “within a reasonable amount of time”, and “without significant discomfort, breathlessness or fatigue”.

It suggests all claimants be invited to comment on how their condition affects them and suggests the Department for Work and Pensions develop a more specific definition of “work” based on the Australian system.

The report also says the severity and frequency of symptoms should be taken into account by assessors.

The charities said the WCA did not allow for people with symptoms that were worse on some days than others and points out that employers’ attitudes to such people “remain unclear”.

“We would welcome more systematic research to determine whether, in reality, someone whose condition means intermittent and unpredictable working would be considered for employment in the real world, although they might be considered ’employable’,” the report says.

‘Fair and consistent’

Simon Gillespie, chief executive of the MS Society, said: “As charities, we have been inundated by concerns from people living with a long-term health condition who’ve wrongly been found fit to work.

“Many of them want to work, but may require extra support to do so. Ensuring that the assessment is fair and consistent is therefore a vital task.”

He said the report was just a first step and the charities were working alongside Professor Harrington and the Department for Work and Pensions on the issue.

The Work Capability Assessment determines whether applicants are entitled to the highest rate of ESA – for those deemed unable to work due to sickness or disability – or are considered “fit for work”, in which case they are put on Jobseeker’s Allowance instead.

It can also place applicants into a “work related activity group”, where they will be expected to take steps to prepare themselves for work.

Professor Harrington published a report on the WCA last November, which the government fully endorsed and says it is acting on all his recommendations. He is currently undertaking a second review on further issues around the assessments.

‘Abandoned’

A spokesman for the Department of Work and Pensions said: “We want to ensure the Work Capability Assessment is as fair and accurate as possible and have already accepted all of Professor Harrington’s recommendations from the first year of his independent review.

“In year two he will specifically look at fluctuating conditions and we look forward to receiving his recommendations later in the year”.

Last month the government released figures for assessments of people claiming ESA for the first time between October 2008 and August 2010.

The figures showed 887,300 of 1,175,700 people applying for employment and support allowance (ESA) between October 2008 and August 2010 failed to qualify – either because they were found “fit to work” or dropped their claim before it was completed.

Only 6% of claims – 73,500 people – were considered to be entitled to full ESA support.

Employment minister Chris Grayling said at the time many benefit claimants had been “simply abandoned on benefits” and would be reassessed and given specialist back-to-work support.

He said those who could not work would get “unconditional support” but for others it was “right and proper that they start back on the road to employment”.

London Paralympic Prices Revealed

May 11, 2011

More than half of the two million tickets for the London 2012 Paralympics will cost £10 or less, organisers of the Games have announced.

More than 95% of tickets – for the 20 sports – will cost £50 or less, and 75% will be £20 or below, London 2012 said.

Opening and closing ceremony tickets start at £20.12 and go up to £500.

More than 4,200 athletes from 150 nations will take part in the Games from 29 August to 9 September 2012. Applications open in September.

The London Organising Committee of the Olympic and Paralympic Games said prices start at £10 for adults and £5 for anyone aged 16 or under and 60 or over on 29 August 2012, when the spectacle begins.

They are less than tickets for the Olympic Games, which range from £20 to £2,012, and saw about 1.8 million people apply for 6.6 million tickets.

London 2012 chief executive Paul Deighton said the pricing structure was fair, and he hoped it would encourage people to attend venues and create “fantastic atmospheres”.

He said: “The Paralympic Games will light up London with quite simply brilliant sport next year.

“The UK is the spiritual home of the Paralympic movement and with superb medal prospects for ParalympicsGB, we believe that the British public will come out in their thousands to watch.”

Olympics Minister Hugh Robertson said it was a once-in-a-lifetime chance to see the Games on home soil, and London mayor Boris Johnson said interest was already huge.

The Paralympic Games will be staged in many of the Olympic venues, including the Olympic stadium (athletics), aquatics centre (swimming) and velodrome (cycling), as well as the likes of Eton Dorney (rowing), Weymouth (sailing) and Greenwich Park (equestrian para-dressage).

The Olympic Park will also stage the five-a-side and seven-a-side football at the Olympic hockey centre and goalball at the Olympic handball arena, as well as wheelchair rugby and wheelchair basketball at the Olympic basketball arena, although some basketball will also be held at the North Greenwich Arena.

The ExCel exhibition centre in the Docklands will host boccia, judo, sitting volleyball, wheelchair fencing, table tennis and powerlifting.

The wheelchair tennis events will be staged at Eton Manor while the archery and shooting will both be held at the Royal Artillery Barracks in Woolwich.

For the Olympic Games, there has been criticism of the prices, the ballot system and the fact that money is taken from accounts before applicants know which events they have secured.

Applicants were originally told to make sure they had enough money in their accounts from 10 May to 10 June.

But organisers now say people will not be billed until next Monday at the earliest while they carry out ballots for oversubscribed events.

Hardest Hit: The Guardian Liveblog

May 11, 2011

http://twitter.com/#!/BendyGirl/status/68248293532119040

Many thanks to the Guardian for this and for their brilliant coverage of #hardesthit all week.

We Have A Dream- #HardestHit Speech

May 11, 2011

I’m lost for words, so I’ll leave the brilliant Kaliya- @BendyGirl– to do the talking.

Yvonne Fearney Has 3 Other Disabled Children, Court Told

May 11, 2011

A woman who admits killing her autistic son has raised three older children with disabilities, a court has heard.

Yvonne Freaney, 49, admits the manslaughter of her son Glen, 11, who was found strangled at a hotel near Cardiff Airport, but denies murder.

Mrs Freaney, from Penarth, Vale of Glamorgan, was living in a “nightmare” of care, Cardiff Crown Court heard.

The other children have ADHD, dyspraxia and Asperger’s Syndrome respectively. The case continues.

The jury has heard that that Glen was severely autistic, still wore nappies and needed help dressing, washing and feeding.

Mrs Freaney was solo carer for her four children when her former RAF husband Richard worked away from home, the court has heard.

The other children were referred to in court as Child One, who is aged 22, Child Two, who is 20, and Child Three, who is 15.

John Charles Rees QC, defending, said: “From the outside looking in, this is a nightmare.”

The 22-year-old was now at university studying law and the other children were said to be doing well, with the 15-year-old studying for his GCSEs, Mr Rees said.

The court heard that Glen would sleep for only four or five hours a night and could not communicate.

‘Detrimental to health’

Mrs Freaney had slept downstairs with her son for four or five years to allow the rest of the family to sleep, the court heard.

Mr Rees said: “It was very detrimental to her health and wellbeing and that she has shown her selflessness both in relation to Glen and other members of her family.

A paediatrician who had worked with the family over a number of years, Dr Nia John, accepted it was not a “sustainable situation” for the defendant.

Mr Rees said: “Mrs Freaney doesn’t look 49. She looks considerably older. She doesn’t wear well under the strain.”

“She doesn’t look like a lady who is putting herself first or looking after herself.”

Dr John, who is now a consultant, told the court she did not know that the defendant also cared for her own mother, who had Alzheimer’s, from 2006 until she died in October 2008.

The court has heard that police were called several times to the family home after alleged incidents of domestic violence and that the Freaneys’ marriage was “filled with problems”.

Social services became involved with the family after a police officer described their home as “uninhabitable.”

Mr Rees asked Dr John if she would have been concerned about Mrs Freaney’s mental state and her ability to look after the children if she had known about the condition of the house.

Dr John replied: “Yes, I would.”

Mr Rees asked: “What she did to Glen was wholly out of character for the Yvonne Freaney that you knew?”

Dr John replied: “It was never anything that we could foresee ever happening.”

‘Warm relationship’

She told the jury that no concerns had been raised by other professionals dealing with the Freaneys.

Dr John added: “She was good at putting a good face on things. She was very proud of Glen and a very proud lady.”

The jury also heard from Kerry Hartland, a teacher at Ashgrove School in Penarth, where Glen attended.

Mrs Hartland described Glen as a happy child but one who was difficult to manage and always needed one-to-one attention.

She said: “He seemed to have a close, warm relationship [with his mother].

“She was always helpful and very grateful for everything we were doing and always concerned about his welfare.

“She was always very happy when we showed her things he had done. She always seemed very proud of him.”

The trial continues.

Kent Council Probe Into Disabled Children ‘Mockery’

May 11, 2011

An investigation is being carried out into allegations that council staff mocked disabled children, calling them offensive names.

Kent County Council (KCC) said a member of staff had been suspended while a disciplinary hearing took place.

The allegations centre on the school transport office, where staff are said to have pinned on the wall pictures of children who looked different.

KCC said: “The county council totally condemns any such behaviour.”

A photo taken of an office wall with pictures of disabled children pinned to it is being investigated by the council.

It is believed pictures were sent to the office at Kings Hill, West Malling, by parents applying for school bus passes.

‘Particularly difficult’

Scope, the charity for disabled people, said it could not comment on the KCC case while the investigation was being carried out but it was not unusual to hear about such incidents.

“We work with disabled people and their families across the country and they tell (about) this low level but really quite unpleasant harassment and abuse,” said spokeswoman Alexandra O’Dwyer.

“For individuals trying to go about their lives and be exactly the same as everybody else it is one of the things that makes life particularly difficult.”

KCC said in a statement it expected the highest standards of professional conduct from all staff.

“Accordingly, these allegations are being dealt with very urgently and the member of staff involved in this issue has been suspended while a disciplinary hearing takes place in accordance with county council procedures,” it added.

Hardest Hit March: Online Support

May 11, 2011

Today in Central London, disability charities and disabled people’s organisations are getting together for the Hardest Hit March, to get our voices heard on issues like DLA reforms and social care cuts. As the event’s name suggests, we are going to be the group hit hardest by the Government’s planned spending cuts.

But if you can’t make the event, you can still get your voice heard. There’s a page on the event’s website with details of how you can protest online.

And to those who are participating, well done, stay safe and have a good time! There are many people who wish they could be there, and they are all thinking of you.

Radio 4 You And Yours: Are Disabled People Really Hardest Hit By Benefit Cuts?

May 10, 2011

Ahead of tomorrow’s Hardest Hit march by disability organisations in Central London, Radio 4’s You And Yours today asked the question above. My favourite disability blogger, BendyGirl, contributed but, unfortunately, couldn’t speak for long enough.

The part that caused the most reaction, however, was contributor Mark Littlewood’s views. If you missed the programme, it should be available on iPlayer here for the next week. You’re free to react to Mark Littlewood or anything else about it in the comments below.

My First Weekly Slot On Able Radio

May 10, 2011

I’m pleased, proud and very excited to be able to tell you that this morning, disability radio station Able Radio  have aired the first edition of what will be a weekly feature in which I will talk about current disability issues.

In case you missed it live, the recording is here.  I spoke about tomorrow’s Hardest Hit march through central London and the Work Capability Assessment.

Disabled Students Charity, Skill, Announces Closure

May 10, 2011

Sounds like it would be a real shame to lose this. Is it too late to try to save it?

Toby Morrison says his dreams of academic success and a career as a welfare worker were thwarted at school by teachers who saw only his disabilities. They were misguided, says the 19-year-old, now an occupational therapy undergraduate at Coventry University. “Their comments made me all the more determined to succeed – but didn’t make it any easier.”

The odds were certainly stacked against Morrison. Born with bleeding on the brain and hydrocephalus, he suffers lifelong problems including cerebral palsy, weakness on his right side, tunnel vision and partial epilepsy. His family gave all the support they could. But pursuing his ambitions in the wider world, he says, “was like doing the 100 metres with your shoelaces undone”.

Then everything changed. As a BTec national diploma student, he was on work experience at the charity Action for Kids when he was introduced to staff from Skill: National Bureau for Students with Disabilities. “They told me: ‘forget you have a disability, don’t let it get in the way of what you want, do the best you can’.”

The personal attention and appreciation of his aspirations this charity gave him were just what he needed. “It has given me the biggest boost of confidence,” says the young man, who soon became a youth ambassador for the Skill Volunteer Voices programme, visiting schools and colleges to encourage other disabled students.

So he was appalled to learn that Skill had run out of cash and was closing. In the fragmented world of charitable support for the disabled, Morrison is pessimistic that the well-focused campaigning and policy work of Skill will be taken up by others. It is a concern shared by many leading organisations in FE, some of which have had to take tough cost-cutting action for survival and have little flexibility left.

Relatively generous funding and support from business, colleges and other agencies, plus contracts for research and development, helped to sustain Skill for 40 years, and to fund a helpline for the disabled and a strong policy team with influence on government decision-making. But, says Peter Little, chair of the board and a trustee for 20 years, given the economic crisis, “the general fundraising climate grew difficult. We took a hit last year and were not able to replace those funding streams no longer available”.

On 7 June, the trustees and 500 active members of Skill will gather for the formal closure meeting. “We are in discussion with BIS [Department for Business, Innovation and Skills] to see where they can support others taking on the services,” says Little.

The skills minister, John Hayes, has expressed dismay at the closure and says: “The government remains committed to ensuring the needs of disabled students are met and we are in discussions with other organisations in the sector about taking this work forward.”

Skill is no ordinary charity, says Yola Jacobsen, programme manager for the National Institute for Adult Continuing Education, which itself recently had to make huge reductions. “It is a vital information and support service that has campaigned successfully for disabled people on so many fronts – promoting equality in education, training and employment. It has given people the power of self-management and the ability to participate.”

Its demise could not come at a worse time, she says, given the need for close scrutiny of new public duty regulations arising from the Equality Act and the special education and disability green paper, now before parliament.

But there are even deeper concerns for the future rights of disabled people, says Jacobsen. Skill tackles a big long-term problem facing disabled people – the disproportionately high numbers kept out of work and in poverty by the high costs of skills training. “It is not about intelligence and ability, but access and financial support.”

A powerful example of Skill’s effectiveness is its helpline. Over 50% of inquiries are about finance for learning, and it acts as an early warning alarm when systems fail. For example, when the Student Loans Company failed to make payments on time last year, Skill could identify 12,500 disabled students in England waiting for grants to pay for specialist equipment.

The small intelligence team sustained by Skill has been an essential service for FE organisations, working through the mire of legislation and regulations. “It was the only organisation in that niche and served a key role,” says Jacobsen. “I get many inquiries on technical issues and would confidently refer people to their free helpline. Who now will offer support for disabled students?”

Her biggest fear is the impact on student access of the 25% cut in college budgets – the sort of issue on which Skill was sharp-eyed, she says. “Colleges have to run as businesses and make the sums work. People who need extra support will lose out big time.”

College leaders agree there is a need for vigilance to alert ministers and funding agencies to any difficulties. Debbie Ribchester, a senior policy manager at the Association of Colleges, says: “We have concerns about the complexity of the system for people with disabilities and the SEN and disability green paper is seeking to address many of these issues.”

With Skill’s closure, other agencies such as the Institute for Learning and the Disability Alliance are looking to take on some of the work. But Toby Morrison fears it will “completely vanish. Maybe there will be pockets of support, but I don’t think any organisation could match the amazing level of work Skill did. It’s hard to comprehend how much they have done – for millions of people across the country”.

One In Five Councils In England Cutting Deaf Children’s Services

May 10, 2011

I’m linking to this article from today’s Guardian for anyone who is interested in this issue.

Woman Admits Manslaughter, Denies Murder Of Autistic Son Glen, 11

May 10, 2011

A mother who killed her severely autistic son by strangling him told police she had sent him to the “kingdom of heaven” where he would be happy without the disability, a court heard today.

Yvonne Freaney said she killed her 11-year-old son Glen at a hotel near Cardiff Airport, South Wales, because no-one else would look after him.

The 49-year-old admits manslaughter but denies murdering Glen, whose body was found in a room at the Sky Plaza Hotel in May last year.

Opening the prosecution at Cardiff Crown Court, Gregg Taylor QC told jurors: “This is going to be a difficult case.”

Freaney, from Penarth, Vale of Glamorgan, hung her head and stared at the floor as the case against her was outlined.

The court heard Freaney, who has three other children, harmed herself before lying on the bed beside her son.

She had laid his toys around him and sang to him as she held him tightly.

Mr Taylor said police officers arrived at the hotel just before 5pm.

He said Freaney told them: “I killed him about 36 hours ago, I have tried to join him. He’s in heaven now.

“I strangled him. I used my belt over there by the bed.

“He’s severely autistic, he’s in heaven now where he won’t be autistic, he’ll be happy now.”

Freaney was taken to hospital with a number of injuries to her wrists, arms, shoulder, chest and feet.

Mr Taylor said that after she was arrested Freaney added: “I had to do it, no-one else would look after him.

“I strangled him with my belt. I put him to sleep in the early hours. I needed to join him.

“I’ve sent him to the kingdom of heaven, he’s happy there.

“It’s funny, he was laughing when I strangled him, that’s when I knew he’d be happy there.”

The court was told Freaney said her only regret was that she had not taken her own life.

The jury heard Freaney had suffered from a long history of domestic abuse and self-harm, and lived in “dirty and cluttered” conditions.

Police were called several times to the family home after alleged incidents of domestic violence and social services became involved after a police officer described their home as “uninhabitable”.

Freaney left her husband in March 2010, taking Glen with her and stayed in a series of hotels in the following weeks.

The court heard Glen had severe autism, requiring 24-hour care and was totally dependent on his mother.

The jury was told Freaney was a devoted mother who was always encouraging him, emphasised his achievements and never left his side.

During the months leading up to Glen’s death the prosecution described a “build-up of pressure” on Freaney after her marriage came to an end and she was unable to find anywhere for herself and Glen to live.

Mr Taylor told the court Freaney had told doctors she did not want to leave Glen on his own, that her husband would not be able to cope and it would have been cruel to leave him behind.

Shane Barrett

May 9, 2011

A six-year-old boy left disabled after “wholly avoidable delays” at birth has won £4.6m in compensation.

Shane Barrett, of Saxlingham Thorpe, near Norwich, suffered serious brain injuries after his heart stopped beating during his birth in 2004.

A High Court judge approved a settlement from the Queen Elizabeth Hospital King’s Lynn NHS Trust.

The trust said it had agreed the payment without accepting liability but hoped the money would help Shane.

Lawyers for Shane claimed his injuries were caused by midwives at the hospital mistaking his mother Rachel Alger’s heartbeat for his during her labour.

Mrs Alger, who has since had two more boys, gave birth to her first son in the hospital in June 2004, when she and her husband Chris were living in Hilgay, near Downham Market.

But, Shane’s lawyers claimed, complications occurred when midwives mistook her normal heartbeat for the abnormal heartbeat of her baby.

Wheelchair-dependent

They argued that if his birth had been brought forward by just 10 minutes, he would have escaped permanent injury.

However, the delay in delivery left Shane brain damaged and suffering from cerebral palsy.

He is wheelchair-dependent and has severe learning difficulties.

In October 2009, the trust agreed to compensate Shane on the basis of 85% liability.

On Monday Mr Justice Eady approved a final settlement from the trust that will see Shane paid a total £4.6m over his lifetime for his ongoing care.

The judge said: “Shane has been very fortunate in relation to the devoted care he has been receiving from his parents over the past six years.”

Mrs Alger said outside court she was glad the family’s long legal quest was finally over.

In a statement, the hospital trust said it had settled on a “without liability” basis to avoid a lengthy and expensive court case.

“The trust is pleased that the case has now been settled and hopes that the payment will be of benefit to Shane,” it said.

Guardian Interview With Eleanor Lisney

May 9, 2011

I’m linking to a video interview with Eleanor Lisney of Disabled People Against Cuts from the Guardian website today, for anyone who is interested in watching it.

A Song For David Cameron

May 9, 2011

The brilliant BendyGirl strikes again, with a very original cover version of one of my favourite songs.

JobCentre Staff Given Guidelines On Dealing With Suicide

May 9, 2011

I’m scared. Very scared.

Staff working for jobcentres and other Department for Work and Pensions contractors have been given guidelines on how to deal with suicide threats from claimants as the squeeze on benefits takes hold.

A document sent to jobcentre staff in April details what it calls a “new policy for all DWP businesses to help them manage suicide and self-harm declarations from customers”.

The guidelines include a “six-point plan” for staff to follow which says: “Some customers may say they intend to self-harm or kill themselves as a threat or a tactic to ‘persuade’, others will mean it. It is very hard to distinguish between the two … For this reason, all declarations must be taken seriously.”

The internal document was sent to the Guardian by a senior jobcentre employee who has worked for the DWP for more than 20 years. It was accompanied by a letter from the source that said: “Absolutely nobody has ever seen this guidance before, leading staff to believe it has been put together ahead of the incapacity benefit and disability living allowance cuts.”

The employee, who asked to remain anonymous, said: “We were a bit shocked. Are we preparing ourselves to be like the Samaritans? The fact that we’ve dealt with the public for so many years without such guidance has made people feel a bit fearful about what’s coming.”

The DWP said that the new guidelines were not related to any recent policy changes and had been in development since 2009. “This guidance is about supporting our staff and ensuring we can help our customers.

“It is right that a customer-facing organisation that serves over 20 million, including the most vulnerable in our society, has guidance such as this in place.”

The team leader said the guidance had alarmed people in their team: “We’ve suddenly got this new aspect to our job. The bigger picture is people here are wondering how savage these cuts are going to be. And we’re the frontline staff having to deal with the fallout from these changes. “

Julie Tipping, an appeals officer for Disability Solutions, represents claimants who try to overturn decisions made following work capability assessment tests that they are fit for work.

She says that in the last year, two of her clients have made “real attempts” at suicide after a decision was made that they were fit for work. Both were taken to hospital and subsequently sectioned.

“It’s real and true. A lot of people think these people are crying wolf to get their money, but that’s not the case. They are suffering from real problems and can’t face it any more.”

Tipping said the pressure on vulnerable clients was “the cumulative effect of all these welfare changes. The test is simply not fit for purpose for assessing mental health problems. That’s on top of moving people on to jobseeker’s allowance, and all of the conditionality and risk of sanctions that goes with that.”

The Guardian revealed last month that some jobcentres were setting targets for advisers to stop people’s benefits for not meeting conditions attached to their jobseeker’s allowance.

A whistleblower said that the pressure on staff was leading to vulnerable claimants being targeted for sanctions. The targets have since been removed. But thousands of claimants of incapacity benefit and employment support allowance are being reassessed to see if they should be considered fit for work and moved on to jobseeker’s allowance.

Another jobcentre adviser said: “People have been coming off sickness benefits and thrown onto jobseeker’s allowance. It’s problematic because some customers are clearly not fit to work, and they are clearly very distressed. When you sense this you feel really upset because the system is allowing them to get like this and you feel part of the processing machine.”Eleanor Lisney, of Disabled People Against Cuts, said that the thought of being moved on to jobseeker’s allowance was like a sword hanging over the heads of disabled groups and she feared an increase in related suicides.

Legalising Assisted Suicide Would Put Pressure On Disabled People To End Lives

May 9, 2011

Celebrities including the author Sir Terry Pratchett and the actor Sir Patrick Stewart have backed a campaign to allow terminally ill patients to receive help to die.

But a new poll found 70 per cent of disabled people were concerned that such a reform would create pressure on vulnerable patients to “end their lives prematurely”.

The survey for Scope, the leading disability charity, also found 3 per cent of the 500 disabled people questioned in the ComRes poll feared that they would personally come under pressure to commit suicide if the law were changed.

The findings follow a row over the BBC’s plans to broadcast a programme showing a man taking his own life at the Dignitas suicide clinic in Switzerland. The documentary is to be presented by Sir Terry, who has Alzheimer’s and is a supporter of euthanasia. It is due to be aired this summer.

Richard Hawkes, chief executive of Scope, said: “Assisted suicide is a complex and emotional issue, and there are loud and passionate voices on both sides of the debate.

“But while high profile lawyers, doctors and celebrities such as Terry Pratchett and Patrick Stewart grab the headlines, the views of the thousands of ordinary disabled people who could be affected by this issue are rarely listened to.

“Our survey findings confirm that concerns about legalising assisted suicide are not just held by a minority, but by a substantial majority of those this law would affect.

“Disabled people are already worried about people assuming their life isn’t worth living or seeing them as a burden, and are genuinely concerned that a change in the law could increase pressure on them to end their life.”

Mr Hawkes called on the Government to establish a new independent commission to explore the question of whether assisted dying should be legalised.

The Scope/ComRes survey also disclosed that 56 per cent of disabled people felt the legalisation of assisted suicide would be detrimental to the way that they are viewed by society as a whole.

High profile supporters of the Dignity in Dying campaign to reform the law include the author Ian McEwan and former England cricketer Chris Broad, whose late wife committed suicide after suffering from motor neurone disease. The campaign calls for a change in the law to legalise assisted suicide for mentally competent, terminally ill adults.

An unofficial “commission”, chaired by the former Lord Chancellor, Lord Falconer, and organised by the think-tank Demos, is currently holding an inquiry into the issue.

The head of end-of-life care for the NHS in the West Midlands told the commission that the current law was not fit for the 21st century and called for patients to be given more choice over how they die.

James Hobley, Dancer With Autism, On Britain’s Got Talent

May 7, 2011

I first covered the story of James Hobley on Same Difference last year, when he appeared in the BBC Three documentary Autism, Disco & Me. I’ve just found out that James, now 11, is participating in this year’s Britain’s Got Talent. This is very good news, and while I don’t watch the programme, I hope he does well, and will be very happy if he wins.

You can follow James’ official Facebook page here.

Cystic Fibrosis Week 8-14 May

May 7, 2011

As any parent with young children could tell you, the days may be long but the years are short and can seem to fly by.

Time is a fickle thing and for mother-of-two Sophie Davison it is something to both cherish and fear.

Since finding out that her boys – James, aged four, and George, aged two – have a life-limiting illness, Sophie says she tries to make the most of every hour of each day that she gets to spend with them.

Her sons have an inherited condition called cystic fibrosis that cuts short their life expectancy.

Sophie recalls: “It came as a massive shock when we first found out.

“James was just two years old and was in hospital for pneumonia. And I was heavily pregnant at the time with George.”

It was days later when George was born that doctors realised what the problem was.

Baby George had a routine heel prick test that is given to all new babies to check for a range of health conditions that can be detected from a small sample of blood.

His test revealed that he had a serious, incurable inherited disease.

James’ doctors then decided to test him for the same condition and discovered that he also had it.

Sophie said: “It was a complete bombshell. My husband and I didn’t know we were carriers of this condition.

“No-one in our family had it so it was a massive shock.

“Within 24 hours our whole world had changed.”

Faced with the demands of caring for a new baby, Sophie also had to learn how to be a carer for both of her boys.

A day at a time

“We met with the cystic fibrosis team at the hospital and they taught us all about it. It was a lot to get our heads around.”

Because of the nature of the disease, which causes thick, sticky secretions to form that can clog some of the internal organs, both boys would need around 40 tablets a day to help their digestion and at least two sessions of physiotherapy every day for the rest of their lives to clear their lungs.

Sophie said: “It was pretty difficult to start with. James was just two years old and suddenly had a new baby brother to get used to as well as all of this.

“He had to take lots of medicine all the time and I had to do percussion treatment on him which involves about 20 minutes of patting to keep the lungs clear.

“It’s really difficult to get a two-year-old to sit still through that.”

With time the family developed a routine and both boys cope well with their therapy.

“James started school in September and he’s doing really well. I was a bit worried about it at first. I worried about how the teachers might cope with his condition. But they’ve been fantastic and it’s gone really smoothly.

“They understand his treatment and have let him have the high fat diet that he needs in his lunch box even though they obviously normally want to discourage this type of food.”

Looking to the future, Sophie is optimistic, even though her boys’ condition is life-limiting.

“We try not to think about the bad side.

“Since the boys were diagnosed the average life expectancy with cystic fibrosis has gone up already and the average age is now 38. And there are always new treatments on the horizon.

“We enjoy every day as it comes, and focus on making sure the boys have a really amazing life.”

She says the boys are also a great comfort to one another.

“Of course they fight now and again. They are brothers. But as they get older they can support each other and know that they are not alone.”

In the UK five babies are born with cystic fibrosis every week.

Over two million people in the UK carry the faulty gene that causes the condition – around one in 25 of the population.

If two carriers have a child, the baby has a one in four chance of having CF.

Cystic Fibrosis Week runs from 8-14 May 2011.

JustGiving Page Of The Week: Steve Davison

May 6, 2011

 JustGiving Page Of The Week is back, and this week’s slot goes to Steve Davison. Steve is fundraising for the Myotonic Dystrophy Support Group. His wife, Shona, has this DisAbility. Good luck reaching your target Steve!

Kylie Grimes

May 5, 2011

A woman who hit her head on the bottom of a swimming pool during a party in Surrey and was left paralysed is suing the owner for £6m at the High Court.

Kylie Grimes was injured when she dived into the pool in Farnham owned by David Hawkins in August 2006.

Philip Mott QC, for Ms Grimes, said the pool house should have been locked or there should have been warning notices.

Mr Hawkins, of Compton Way, who denies liability, said he considered the pool was safe.

The court heard he taught both his daughters to dive in the pool.

‘Clearly invited’

Ms Grimes, now 23, of Stephendale Road, has claimed her injury was caused by Mr Hawkins’s negligence or breach of his duties under the Occupiers’ Liability Act.

The court heard Mr Hawkins and his wife were away that night.

Their daughter Katie had asked her father to let her have a few friends over but a group of about 20 came back from the pub.

She said she did not invite Ms Grimes and did not expect people to go swimming, but did not know how to stop them, so turned the lights on for their safety.

She also said no accident had ever occurred in the 30ft (9.1m) pool which had a deep end of less than 6ft (1.8m).

Mr Mott said Ms Grimes was “clearly” invited back and was lent swimming kit by Ms Hawkins.

‘No legal basis’

He told the judge, who is only concerned with the issue of liability at this stage, she would have to decide where Ms Grimes dived from and how bad her dive was.

William Norris QC, for Mr Hawkins, said no sound legal basis existed on which Mr Hawkins could be held liable for the accident which happened in an “unremarkable swimming pool on domestic premises when the claimant, an adult, chose to do something which involved an obvious risk”.

He said: “The legal reality and practical result is that this tragedy was the result of her own choice to take the obvious risk of injury when diving into relatively shallow water.”

He said other people were in the pool so the actual depth would have been apparent.

Ms Grimes was paralysed from the chest down after she broke a vertebra below the base of her neck.

The case was adjourned.

ParalympicsGB Name Tim Hollingsworth As New Chief

May 5, 2011

ParalympicsGB has named UK Sport chief operating officer Tim Hollingsworth as its new chief executive.

Hollingsworth, 44, takes over from Phil Lane, who stepped down in February after 10 years in charge.

He will join the association in July, ahead of its 2012 simulation camp in Bath in August.

“I am thrilled to join the association at this vital time in its history ahead of London 2012,” Hollingsworth said.

“There is a tremendous opportunity not just to maximise our athletes’ success at the Games but also to drive a step-change in Paralympic sport and its ability to impact on attitudes and change people’s lives.

“I look forward to playing my part with a great team to deliver this.”

ParalympicsGB chairman Tim Reddish added: “This is a crucial appointment for our organisation as we head into what will be the most important Games ever for Paralympic sport in the UK.

“Tim stood out from a field of high calibre candidates and impressed us with his track record of building relationships in both the sporting and commercial sector.

“This, coupled with his clear passion for Paralympic sport and in-depth knowledge of the challenges and opportunities presented by a home Games, mean that we believe he is the ideal candidate to lead the organisation through 2012 and beyond.”

Drug Hope For Muscular Dystrophy

May 5, 2011

A drug that can boost muscle strength in mice shows promise as a possible treatment for Duchenne muscular dystrophy, research suggests.

The work could one day lead to a daily pill to treat all patients with the muscle-wasting disease, say Oxford University scientists.

About 100 boys are born with the condition in the UK each year.

It causes progressive muscle weakness, with most patients having to use a wheelchair by the age of 12.

The study, published in the journal PLoS ONE, was led by Professor Dame Kay Davies, of Oxford University.

She said: “We’ve shown that the drug can dramatically reduce muscle weakness in mice.

“These results give us everything we need to go forward into initial clinical trials in humans.”

There is no effective treatment for the inherited disease – steroid and growth hormones help manage the symptoms but cannot protect muscles from decline.

The drug was identified by screening thousands of therapeutic compounds for the ability to raise levels of a substance that boosts muscle strength.

The substance – utrophin – seems to compensate for the lack of a key protein, dystrophin, which does not work properly in muscular dystrophy.

The most promising candidate, named SMT C1100, was tested in a mouse model of muscular dystrophy at three laboratories in Oxford, Italy and the US.

Mice given the drug developed stronger muscles that did not tire as easily and could run 50% further in exercise tasks, the PLoS ONE study found.

Preliminary tests in healthy human volunteers raised no safety concerns but suggest a need for further work to improve the drug’s formulation.

Professor Max Parmar, of the Medical Research Council, said: “This study, without necessarily providing us with the final solution, does gives us an important platform from which to move forward and really make a serious progression through clinical trials.”

Dr Marita Pohlschmidt, director of research at the Muscular Dystrophy Campaign, told the BBC: “At this stage in the game this is very hopeful as it really works in the mice very, very well.

“It’s hopeful although you can never tell a family [affected by the disease] when or whether a treatment will come out of it.”

The research was partly funded by the Muscular Dystrophy Campaign and the Medical Research Council.

New Charity: Share A Star

May 5, 2011

Thanks to Matthew Smith for letting me know about a new charity called Share A Star. This charity aims to support seriously ill people under the age of 21. The organisation’s symbol is a star, as stars brought hope to its very inspirational founder, Jessica Taylor, when she herself was first seriously ill with M.E. She now wants to share these ‘stars’ with real stars- seriously ill young people. Please do visit the organisation’s website for more information.

Two Thousand Posts!

May 4, 2011

Dear Readers

I never thought I would blog 2000 times, but, as the title suggests, I just have. The site, to my great pleasure, continues to grow every single day. I have done, and learnt, so many wonderful things since I started blogging, and there are big things ahead.

I couldn’t have done any of this without you, so this 2000th post is a very general but very big THANKS to every single one of you for the clicks, comments and contributions. Every single one has made Same Difference what it is today.

Best wishes

Samedifference1

Able Radio: Spreading Your Message

May 4, 2011

I’ve been asked to publicise the following information by Able Radio.

Able Radio is a well established social enterprise providing all disabled people a voice in the UK. All presentation is by disabled presenters and those living with limiting medical conditions. We are now taking the opportunity to extend our reach as well as provide free information and access to services.  We are looking for informal partners large and small, to break down the barriers and also the opportunity to sign post and promote individual charities and groups.

Able Radio, Spreading your Message – promotion details 2011

 

FREE – Able Radio Directory

To be added to the web directory of services please provide a brief overview of your organisation. This should be condensed to a maximum of 2 lines.

FREE – Able Radio On-Air Promotion

These are produced to a script written by you with a total running time of 20 seconds. The “infocarts” will be voiced in-house and suitable non prs music added. The final recording will be scheduled to run within our 24/7 output on an adhoc basis.

For longer promotions, specific spot bookings and alternative production techniques a small charge is applicable (details on request).

FREE – Publicity and news announcements of your activities

We welcome your press releases etc and opportunities to interview personnel. Please send all information of this type to news@ableradio.com

FREE – Add the Able Radio player to your website for 24/7 news and entertainment

Your site users can enjoy our output and at no cost to you or them. If you wish to add Able Radio as a facility to your site please contact our programme coordinator who will arrange for  the appropriate website code and player information to be sent to you or your nominated web master. Contact Mal@ableradio.com

The Next Step……..

Get in contact with Able Radio and either send copy through or give us a call on 0845 4090 294


Why LisyBabe’s Voting Yes To AV Tomorrow

May 4, 2011

My fellow disability blogger Lisybabe has written a post on her personal site that I really think needs to be circulated to as many people in the UK as possible. If you’re planning to vote in the AV referendum that’s taking place tomorrow, you’ll be particularly interested. The post explains why LisyBabe disagrees with the No To AV campaign.

Most People Don’t Find Jokes About Disability Funny

May 4, 2011

This is good news. If comedians read the results of such surveys and take notice of them, comedy might actually go back to being just harmless fun. That will only be a good thing for everyone.

MOST people say they no longer find jokes about disability, race or sexuality funny.

More than eight out of 10 now believe such gags are unacceptable and a third told researchers they felt “uncomfortable” when told a joke about a sensitive subject.

The Royal London Society for the Blind survey was carried out in the wake of Frankie Boyle’s gag about Katie Price’s disabled son, Harvey, on his Tramadol Nights show.

Dr Tom Pey, the charity’s chief executive, said: “There is no place in our society for abuse which masquerades as humour.”

Mental illness was named as the joke subject most likely to offend, followed by physical disability and blindness.

Access To Elected Office For Disabled People

May 4, 2011

As a disabled person with an interest in politics, and who dreams of getting into politics one day, I think this is a move in the right direction.

If the House of Commons were truly reflective of the people it represents, at least 65 would be disabled. But, as the country prepares to vote in the local elections tomorrow, it is unlikely that many disabled people will be among those elected. While there are 10 million people registered disabled in the UK, there are no formal figures on the number of disabled election candidates; those standing for local or national office are not obliged to disclose such information.

The little research that does exist includes work by the University of Plymouth‘s elections centre. It conducted random surveys in 2008 and 2009 with more than 1,000 local election candidates. In 2008, when asked what best described their situation, 2.8% of candidates stated they were permanently sick or disabled. In 2009, the figure was 1.3%.

Given the prejudice and stigma experienced by disabled people, it is easy to imagine how disability might be regarded as a vote loser, or activists might be put off supporting disabled candidates who need extra support.

But the government hopes to encourage more disabled people into local and national politics, and to improve public attitudes to disability through a new training and development scheme. The Access to Elected Office for Disabled People project includes plans for a £1m fund to help disabled politicians meet costs. Political parties will be asked to improve their internal disability policies and to work with the umbrella organisation, the Local Government Association, and disabled organisations to develop a cross-party network of disabled councillors and MPs, who would become ambassadors and role models for aspiring candidates. Consultation on the scheme ends this month and it should start later this year.

David Blunkett, blind since birth, and perhaps the UK’s most well-known disabled politician, became a councillor in Sheffield 41 years ago. He says technological advances and legislation have helped to drive equality, and that he was never aware of other politicians or the public feeling that as a blind person he was not up to the job.

“Obstacles arise out of fear or ignorance of disability, people not knowing what is possible or how best to help,” he says, “with occasional paternalistic blips where individuals have been disquieted by the thought that someone with a major challenge could work not just on equal terms, but succeed in the same professional sphere that they are in. Much of this is covert rather than overt.”

Rosemary Gilligan, elected to Hertsmere borough council, in 2002, has severe arthritis, the chronic fatigue syndrome myalgic encephalopathy (ME), and uses crutches. She benefited from a one-year leadership programme run by the disability charity Radar. Gilligan, a former mayor at the Conservative-run council, says people with physical and learning difficulties can get involved in politics.

“On the leadership programme you meet people with learning disabilities, people who are deaf or blind,” she says, “but you start talking to them and you get to know, with a bit of help and technology, they can get over them.” Gilligan cites the example of a councillor in Stevenage with severe mobility problems who used telephone canvassing during the last elections.

Wheelchair-using peer Lady [Jane] Campbell has spinal muscular atrophy and needs help with most tasks. She wants imaginative ideas for overcoming problems. “Many disabled people would want to get out on the street and knock on doors and canvass but, for some, like me, it would be impossible. It might be that we find other ways of engaging the public.”

Campbell has already successfully challenged parliament to find one solution: “I am physically unable to make long speeches so I asked if another lord could speak for me,” she explains. “They initially said, ‘It wouldn’t be your speech.’ I said that was nonsense, I wrote the speech. They finally agreed. If you can change hundreds of years of tradition you can do anything, and we do need to change to include disabled people because it’s not a democracy if we don’t.”

Interview With Ian Ford Of Hearing Dogs For Deaf People

May 4, 2011

The Guardian have interviewed Ian Ford, Chief Executive of the charity Hearing Dogs For Deaf People. He talks about Deaf Awareness Week and how hearing dogs help their owners.

Wheelchair User Attacked By Gang

May 4, 2011

I wish things like this were more unusual than they are, but I’m still shocked every time I read about something similar.

A man was tipped from his motorised wheelchair, kicked and robbed by a gang in Salisbury, Wiltshire.

The male and female youths blocked the 51-year-old’s path in Sycamore Drive, Bishopdown, between 0130 and 0230 BST.

One of them jumped onto his lap and tried to get hold of the joystick when he refused to hand over his belongings.

The victim was also hit to the back of the head before the gang kicked him while on the ground and stole his wallet.

Wiltshire Police said the victim shouted for help and the group ran off towards Bishopdown Farm.

They returned a few minutes later, said nothing to the man and put the wheelchair back on its wheels.

They then fled towards the Jewell Close area with the man’s wallet and were last seen heading towards the Green.

The victim was able to get home and received hospital treatment for concussion, cuts and bruises.

The gang was made up of three young men aged 17 to 20, and two young women aged 16 to 18.

Det Sgt Nigel Porter said: “This was a despicable attack and must have been terrifying for the victim who could not defend himself.

“It is fortunate that he was not more seriously injured during the ordeal.

“I am absolutely appalled by this behaviour and I am appealing for the help of the community, who will no doubt be equally disgusted, to identify those responsible.

“I would like to hear from anyone who was in the area at the time of the robbery, who heard or saw any suspicious activity or who can help me find the offenders.”

Wheelchair Skills Sessions With The Back Up Trust

May 3, 2011

I’ve just read this article in today’s Guardian and thought some wheelchair-using readers might find it useful. Tim Rushby-Smith, DisAbled journalist, writes about his six years in a wheelchair and his work teaching wheelchair skills to users with spinal cord injury charity, the Back Up Trust.

Interview With Able Radio

May 3, 2011

I have big news, readers. I’m going to be interviewed on disability radio station Able Radio today at 3pm. You can listen live at www.ableradio.com.

Update 4.45: If you missed it live, the recorded version is here.

Many thanks to Able Radio for this very exciting opportunity!

Apert Syndrome

May 3, 2011

On one side of the gleaming operating theatre, one-year-old Finley lies anaesthetised and unconscious.

The whole of Finley’s skull has been removed and his brain lies exposed, its pulse beating the seconds away.

Across the room, plastics and reconstructive surgeon David Johnson is cutting, sawing and breaking apart the pieces of Finley’s skull before refashioning them to provide a completely new skull shape.

In 30 minutes’ time, David will be finished and will place the new skull over Finley’s brain and sew up the long zig-zag scar running from ear to ear over his scalp.

Upstairs at Oxford’s John Radcliffe Hospital, Finley’s parents wait and hope for news that the operation is over and that their baby boy is safe.

It has been a long 12 months for Diane and Lee Amey.

When Finley was born in Salisbury, Lee immediately noticed he was different. “His head was a funny shape with a horn a bit like a rhino, his hands were all joined together and his eyes were very bulgy.”

The family were referred to the Oxford Craniofacial Unit where they learned that Finley had a rare genetic condition called Apert Syndrome.

Apert babies suffer lots of problems with their growth.

All of us have sutures in our skulls which allows the growing brain to push out the plates of the skull but in Apert babies, these sutures are all fused together. This is what was distorting the shape of Finley’s skull and causing his eyes to bulge.

As the brain grows, pressure can build up inside the restricting skull. This can be dangerous, so the Oxford unit carries out a complex operation to remake the skull and give the brain space to grow.

It is an extraordinary operation to watch.

“It’s like 3D carpentry really,” says David Johnson. “Many of the techniques we use are the same except the raw materials we’re working is bone.”

After four or five hours of surgery, Finley’s operation is complete and he is wheeled away to the recovery room to be reunited with his parents.

They see a baby who looks different after his surgery and who can, for the first time, close his eyes.

But, sadly, this is not the last operation he will face.

Holistic approach

Apert babies are born with their fingers and toes fused together so there will have to be operations to give him a functioning grip.

And, although the problems with his skull have now been addressed, his face will not grow in normal proportion, so he will have to have another operation in a few years’ time to detach the bones of his face and slide them forward over a period of months on a metal frame.

The Oxford Unit has well over 1,000 children on their books. Every week they see 21 patients and perform three major head operations.

Only 20% of the patients have the type of genetic syndromes which will need repeated operations.

The vast majority of the children have one suture fused – usually caused by mechanical pressure in the womb. Their problems can be addressed by a one-off operation to remodel their skulls.

Oxford is one of only four centres in the country licensed to carry out the complex surgery needed by children like Finley.

The unit is led by two plastic surgeons and includes neurosurgeons, psychologists, speech therapists, orthoptists (eye specialists), and play therapists to make sure children do not fall too far behind during their lengthy hospital stays.

It also has specialist nurses and geneticists to research conditions and advise parents.

And it was actually the team’s senior geneticist, Professor Andrew Wilkie, who identified for the first time the exact location of the tiny genetic “spelling mistake” which causes Apert Syndrome.

The team’s psychologists counsel parents on how to deal with the stress of surgery but they also advise them on how to cope with having a child who often looks very different.

“The hardest thing has been people staring at him,” says Lee. “I found that very difficult at first. But now, I encourage people to come up and ask a question so we can explain what’s happened.

“Finley’s no different from anyone else really… he just looks different.”

The series Children’s Craniofacial Surgery is produced for the BBC by Landmark Films.

The first programme will be broadcast on BBC Two on Wednesday, 4 May at 2100 BST. Or catch-up afterwards on BBC iPlayer.

RNID Warns Welsh Teenagers On Loud Music For Deaf Awareness Week

May 3, 2011

Teenagers are being warned about the dangers of listening to loud music for long periods of time.

The Royal National Institute for Deaf People (RNID) will meet year 12 pupils at St Cyres School, Penarth, in the Vale of Glamorgan, on Wednesday.

It is one of several events being staged by the charity around Wales to raise awareness about hearing loss.

The RNID said there were 480,000 people in Wales who were deaf or hard of hearing.

Events marking Deaf Awareness Week will also be held in Cardiff, Swansea, Wrexham, Welshpool, Powys, and Dolgellau, Gwynedd.

At St Cyres School, RNID volunteer Matthew Skinner will talk to a group of 17-18-year-old pupils as part of a campaign called Don’t Lose the Music.

It aims to make young people aware of the risks of listening to loud music for long periods, so they can take the steps to protect their hearing and enjoy music for longer, the charity says.

Mr Skinner will use a specially-designed soundhead which measures the sound pressure of an MP3 player over an average of 30 seconds.

Students will be asked to plug their MP3 players into the head, which lights up green, red or amber according to the volume of the music player, and indicates whether the volume is dangerously high.

‘Isolated and depressed’

The RNID’s director in Wales, Richard Williams said: “There are 480,000 people in Wales who are deaf or hard of hearing.

“We know that it can take someone up to 15 years to take action about their hearing loss. In this time they may find it difficult to communicate in the workplace and social situations, and become frustrated, isolated and depressed.

“This is why hearing loss needs to be recognised as a major public health issue which carries a serious impact on the quality of a person’s life.”

Among the events for Deaf Awareness Week will be a hearing check and information session at a Mothers’ Union group in Mumbles, near Swansea, a drop-in session for hearing aid users at the Corn Exchange in Welshpool and a volunteers’ coffee morning at the RNID’s office in Cathedral Road, Cardiff.

Wheelchair Tennis: World Team Cup Results

May 2, 2011

The Great Britain women’s wheelchair tennis team beat Switzerland to finish third at the World Team Cup in South Africa.

Having lost to Germany in Friday’s semi-finals, Louise Hunt and Jordanne Whiley were keen to finish on a high.

Hunt lost in straight sets to Swiss number one Karin Suter-Erath before Whiley levelled the tie by beating Simona Rusnak 6-3 6-0.

And the GB pair fought hard to win the deciding doubles match 3-6 6-1 6-3.

Hunt and Whiley’s bronze medal followed Friday’s third place-finish for the quad team of Peter Norfolk, Antony Cotterill and Jamie Burdekin.

Cotterill gave GB the advantage in their play-off against Canada but Burdekin was edged out by world number five Sarah Hunter.

But Paralympic singles champion Norfolk and Burdekin led 6-1 2-0 in the doubles decider before Canada had to retire.

The GB juniors lost 2-1 to Australia in their play-off for third place while the men’s team beat Austria 2-1 to finish seventh.

Making Physio Fun For Children With Cystic Fibrosis

May 1, 2011

Could computer games be the solution for persuading children with cystic fibrosis to complete their physiotherapy?

The genetic condition leads to the build-up of thick mucus in the lungs.

Physiotherapy, including breathing exercises, is used to clear the lungs and open up the airways.

Carys, aged 12, from Glasgow, has two sessions a day, – but as her mother, Michelle McMonagle, says: “There is a conflict between what she wants to do and what she knows she has to do.”

For Carys, computer games, drawing, music, drama and movies are all more appealing.

“There’s other things she wants to do. It’s like washing dishes or any chore, you’d rather be doing anything else,” says Ms McMonagle.

Skipping physio

Doctors in the US have noticed children rarely perform their breathing exercises, preferring to do other things, such as playing computer games – so they combined the two.

Instead of using a hand-held controller or motion sensor, these games rely on a spirometer, which measures how much and how fast air is exhaled.

Breathing is used to drive a car in one racing game and to blow slime off animals in another.

Professor Peter Bingham, from the University of Vermont and Fletcher Allen Health Care, tried the games out on 13 children with cystic fibrosis (CF), aged between eight and 18.

He said: “The key finding was that children actually use them.

“Spirometer games can be a good way to involve children in respiratory therapy.

“It’s ethical and appropriate to meet kids where they are with some engaging, digital games that can help them take charge of their own health.”

Professor Peter Bingham now wants to do a larger clinical trial on the games’ effectiveness.

Ms McMonagle said: “I know lots of parents who already use trampolines to encourage exercise; anything that makes physio more attractive is going to help.”

The condition affects more than 8,500 children and young adults in the UK.

Gemma Matthews, from the Cystic Fibrosis Trust, said: “Children with CF have a heavy daily burden of treatment every day, which they often find tiresome.

“Clinicians and parents are constantly thinking of new ways to encourage children to do their treatment and engaging them through video games is a great way to make treatment less of a chore.”

Hello, I’m A Wheelchair

May 1, 2011

Dear Readers,

This original poem is my contribution to this year’s Blogging Against Disablism Day. I hope you enjoy it!

Hello, I’m A Wheelchair

Hello, I’m a wheelchair
And my name is Becky
At least, that’s the name of
The girl who steers me.

As she wheels me down the street,
She dreams of standing on her feet.
The look on her face you don’t see.
You’re too busy looking at me.

She gives you a smile so true
But you don’t see that, do you?
The smile on her face you don’t see.
You’re too busy looking at me.

Hello, I’m a wheelchair
And I’m steered by Becky
A girl who’d so much rather
Be climbing a tall tree.

So when you meet my best friend,
Look closer, and you’ll see
Without her, where would I be?
Parked in a garage, that’s where, watching you climb a tree.

When you see me and Becky,
There’s one thing you don’t see
I couldn’t move without her,
Any more than she could move without me!

I’m Back…

April 29, 2011

I’m back from the Easter break, readers. But I’m only posting this very short and general post today to get things going again. Britain has a beautiful new princess and hopefully, there is absolutely no disability link in what will forever be known (or at least until the next one) as The Royal Wedding.

So, I’m off to watch the news along with the rest of the country. It’s lovely to be home.

Easter Holiday

April 22, 2011

Same Difference and I are going on an Easter Holiday. The blog will return after the Easter break.

I’ll leave you with this cartoon by Eddie Freeman. Season’s Greetings!

Prosthetic Leg Man Gets ‘Unfair’ Parking Fine

April 21, 2011

A disabled man claims he was given a parking ticket after he pulled his car over into a loading bay because his false leg had fallen off.

Lee Scarrott received the £70 fine after he made an emergency stop in the space in Nottingham city centre as he tried to find a missing piece of his prosthetic limb.

The 47-year-old, who lost his right leg in a motorbike accident in 2007, appealed against the ticket and was initially turned down by Nottingham City Council, but the authority eventually dropped the charge.

Mr Scarrott, of Gardendale Avenue, Clifton, told the Nottingham Post he drove his specially adapted car into the city centre on December 3 last year and parked legally in a disabled bay in St Peter’s Gate before carrying out some errands.

On his way back to the car, the suction pin which keeps his prosthetic limb attached to his body began to come loose and it was only as he drove away that he realised.

After driving a short distance, his false leg fell off and he pulled over into a loading bay in Victoria Street to try to find the suction pin, thinking it must be in the street.

Mr Scarrott, who normally walks unaided, said he used a walking stick to go back and look. Having found the missing part, he returned to his car, only to find a ticket stuck to his windscreen.

He told the paper he had only been away from his car for five minutes, and added: “I think it’s unfair, and the way the council had treated me is a disgrace.”

A spokesman for the city council said a personal apology had not been issued to Mr Scarrott but confirmed that, in light of the circumstances, the council had cancelled the penalty notice.

He said: “The action that the parking attendant took was appropriate at the time, having walked past and seen the car illegally parked. The most appropriate thing to do once we found out the full details was to waive the fine, which we did.”

Disabled Grandmother Headbutts Attackers

April 21, 2011

A disabled grandmother who headbutted a teenage would-be mugger said that she did it because it was what her grandchildren would expect of her.

The 49-year-old, who is just five feet tall and registered disabled, was ambushed by three youths in hooded tops as she drove her mobility scooter along a road in Barnstaple, Devon, but fought back, causing them to flee empty-handed.

The mother of six, who does not want to be identified, said that her 24 grandchildren would have expected her to be strong and not let the criminals have their own way.

She said she had also been inspired by the memory of her dead brother.

“They were not expecting me to fight back,” she said.

“I am a very strong person because of what I have gone through in my life. As they attacked me, I heard my grandchildren saying to me in my head ‘Nan, get up and fight them’.

“When I headbutted the robber I think I broke his nose, it was that strong. Once they saw me attack him his mates scarpered and so did he.”

The attack happened at around 7.30pm on March 25 in the Whiddon Valley area of the town as the grandmother returned home from the fish and chip shop. The three young attackers appeared from woodland next to the path on Westacott Road and tried to steal her handbag until she started fighting back.

The fight did not go all her way, as she was tipped from her scooter and kicked, needing hospital treatment for face and stomach injuries which exacerbated a previous medical condition.

Her scooter was damaged beyond repair and she spent all her savings on a new one. She said she had been left afraid to go to the street where she was attacked after dark.

RNIB Unveils Chelsea Flower Show Garden

April 21, 2011

I’ve just received the press release below from Jess Sweetman at the RNIB.

RNIB’s RHS Chelsea Flower Show garden will be a voyage of discovery where visitors will feel compelled to take off their shoes, according to designer Paul Hervey-Brookes.

The RNIB Garden celebrates the redevelopment of one of the charity’s most cherished services, RNIB Pears Centre for Specialist Learning formerly know as Rushton School and Children’s Home. The Centre provides individualised care, education and therapies to children with complex needs and sight problems, who inspired the theme of the garden – the experience of the senses.  

RNIB aims to build awareness and understanding of what it’s like to live without sight by providing visitors, no matter what their range of vision, a deeper experience of texture and sound. Hervey-Brookes will focus on using materials that have textural qualities, left in as natural a state as possible. The garden will provide a space where raw natural components are fused with textural plants and contrasting colours to create a stimulating voyage of discovery where visitors feel compelled to take off their shoes and connect with their surroundings on a deeper level.

After the show, the garden will form a central part of the outdoor space at the RNIB Pears Centre and enjoyed by young people with complex needs and sight problems day after day.

Lesley-Anne Alexander, Chief Executive at the Royal National Institute of Blind People, said: “RNIB is really excited to be involved with RHS Chelsea Flower Show. All of the children at RNIB Pears Centre for Specialist Learning have been learning about the event and getting to know the flowers and plants that will be in the garden. They’re really looking forward to the garden being transferred to its permanent home.”

Garden Designer, Paul Hervey-Brookes, said: “Chelsea is possibly the most prestigeous and adrenaline fueled event in the gardening calendar. I feel that the RNIB Garden is not only something the children at the Centre will enjoy but also one that will help others to empathise with blind and partially sighted people. I am thrilled to be involved with RNIB and at Chelsea once again.”

This is the second time that Paul Hervey-Brookes has designed a garden for RHS Chelsea Flower Show. In 2010 Paul designed a garden exploring the theme of biodiversity from Bradstone and was awarded a Silver Medal.

‘Mrs P’ Withdraws Court Of Protection Sterilisation Bid For Daughter ‘P’

April 21, 2011

I covered this case in detail the day it first came to public attention. As I said then, I was waiting with interest for the final ruling. I’m very happy to read tonight that the case has been withdrawn. This is a big step forward for those who are, as I am, against the sterilisation of disabled women without a medical reason.

A legal attempt to sterilise a 21-year-old mother with “significant learning difficulties” to prevent further pregnancies has been withdrawn.

The mother of the woman from London had argued it was in her “best interests” and wanted the procedure to take place once her second child had been born.

Her decision to halt the action came after the birth took place.

Unusually, the Court of Protection case was in public because it raised issues of “considerable” importance.

But reporting restrictions mean that no details about the woman’s identity can be published, including the name of the NHS trust or the local authority involved.

Expert evidence

The case first came to court in February, the day before the woman was due to give birth.

The woman’s mother – referred to only as Mrs P – wanted a ruling to enable the sterilisation to take place once the baby had been delivered by caesarean section. But the case, before Mr Justice Hedley, was adjourned for expert evidence to be obtained.

Announcing the decision to end proceedings, president of the Family Division Sir Nicholas Wall said it had been right for such a hearing to be “publicly debated” and open to “scrutiny and debate”.

But he added: “P has given birth and there is no longer any application by her mother Mrs P for sterilisation and therefore the issue of sterilisation has gone from the case”.

Birmingham City Council Disabled Care Limits Ruled Unlawful

April 20, 2011

Judges have ruled that Birmingham City Council’s plans to limit social care for disabled people are unlawful.

The families of four severely disabled people took the case to the High Court sitting in Birmingham.

The test case is the first in a series of possible legal challenges to councils around the UK mounted by those facing cuts to social care.

Birmingham City Council is planning to reduce care packages to about 4,000 people over the next three years.

The authority, a Conservative-Liberal coalition, says it needs to make the cuts to help slash £118m from its budget.

It explained that only those whose needs had been assessed as “critical” would qualify for council-funded care.

But the judges ruled that the council business plan was unlawful because it failed to comply with Section 49a of the Disability Discrimination Act.

The four people, who cannot be named for legal reasons, include a 65-year-old woman with severe learning difficulties who receives 24-hour care in a home paid for by the council.

‘Hugely beneficial’

They also include a 25-year-old man with a rare genetic disorder and severe learning disabilities who receives overnight respite care, also funded by the council.

Both were set to lose their council-funded care.

The sister-in-law of the 65-year-old woman said: “I’m deeply concerned about what impact this will have and it’s important to take a stand here.

“She relies on the council’s support to assist her with daily living skills and to support and promote her independence, including assisting with personal care tasks, preparation of meals and safely accessing the community.

“The care is hugely beneficial and without it her quality of life would fall dramatically.”

The case was also brought on behalf of a 30-year-old deaf, autistic man with severe learning disabilities who is prone to self-harm. His specialist day care would also have gone under the plans.

The fourth person is a 36-year-old woman with severe learning difficulties whose day care centre will close and who is also set to lose respite care.

Subtitled Screenings At Greenwich Picturehouse

April 20, 2011

I have just recieved the following information by email from the Greenwich Picturehouse:

We have our next season of subtitled screenings for d/Deaf and hard of hearing audiences at Greenwich Picturehouse confirmed.

They will be screening every Tuesday, with family films screened during the school holidays and more adult titles in term time. Bookings can be made online at http://www.picturehouses.co.uk/cinema/Greenwich_Picturehouse or over the phone on 0871 0902 5732.

Please find details below of our forthcoming screenings for d/Deaf and hard of hearing audiences and help us spread the word!

ARTHUR (12A), Tuesday 26 April (tickets on sale from Friday 22 April)
The Oscar-winning 80’s comedy gets a 21st-century re-boot, with vivacious funnyman Russell Brand inheriting the eponymous role made famous by Dudley Moore.

This update sees Arthur, a boozy but loveable upper-class fop, face the ultimate dilemma when he falls for a girl his family strongly disapprove of. Arthur’s not about to let his relatives’ fickleness stand in the way of true love, but will talk of him being denied the handsome inheritance he’s been awaiting force him into a sudden change of heart? With Jennifer Gardner, Greta Gerwig and Helen Mirren.

FAREWELL (12A) – Tuesday 3 May (tickets on sale from Friday 29 April)
Featuring a heavyweight European cast and steeped in ’80s Cold War atmosphere, director Carion’s (MERRY CHRISTMAS) FAREWELL is a taut espionage thriller based on true events that changed the world.

Colonel Sergei Gregoriev (played by revered director Emir Kusturica, ARIZONA DREAM), a Russian KGB operative, finds himself increasingly disenchanted with the communist regime. He starts liaising with the enemy, supplying documents to a Moscow-based French engineer, who relays them to the French secret service. At the height of the Cold War, Ronald Reagan (Fred Ward) meets with French president François Mitterrand (Philippe Magnan) to use this information to alter the course of international politics.
(NB – in French, English and Russian with full English subtitles)

HANNA (12A) – Tuesday 10 May (tickets on sale from Friday 6 May)
A full-blooded action-thriller with a pulsing score from The Chemical Brothers, HANNA marks a change of tack for multi-BAFTA-winning British director Joe Wright (ATONEMENT).

The plot follows a teenage assassin named Hanna (Saoirse Ronan, THE WAY BACK), who’s been raised to kill in an isolated snow-blanketed shack in Finland by her ex-CIA father (Bana, MUNICH). Her moment of truth arrives when her father sends her out on a stealth mission across Europe, where she is duly tracked by a team of intelligence operatives commanded by a ruthless US government agent (Blanchett, ROBIN HOOD). As she nears the end of her assignment, however, the truth about her existence will change Hanna’s fate forever.


WATER FOR ELEPHANTS (12A) – Tuesday 17 May (tickets on sale from Friday 13 May)
Adapted from Sara Gruen’s novel by acclaimed screenwriter Richard LaGravenese (THE BRIDGES OF MADISON COUNTY, THE HORSE WHISPERER), WATER FOR ELEPHANTS is a deeply romantic film that confronts the trauma of loss and how seemingly insignificant decisions can shape the course of our lives.

Recently orphaned and adrift, Jacob Jankowski (Pattinson, TWILIGHT) jumps aboard a passing train and enters the world of freaks and misfits in a second-rate circus struggling to survive the Great Depression. Landing the job of looking after the animals, he encounters Marlena (Witherspoon, WALK THE LINE), a gentle and alluring equestrian who happens to be betrothed to the villain of our tale. This timeless and endearing story of love against the odds has a beautiful period recreation that harks back to classic Hollywood melodrama on a grand scale.

ATTACK THE BLOCK (15)– Tuesday 24 May  (tickets on sale from Friday 20 May)
One half of comedy team Adam and Joe, Joe Cornish marks his first venture into feature filmmaking with ATTACK THE BLOCK, an urban comedy with an intergalactic twist.

After an alien spaceship crash-lands in a south London neighbourhood, a gang of local hoods hunt and kill the onboard invader before parading it through their closely guarded block. But this is just the beginning.

As the attacks become more frequent, the youths must rally together to defend their territory and save the planet. With Nick Frost (HOT FUZZ), Jodie Whittaker (VENUS) and Luke Treadaway (CLASH OF THE TITANS) also starring, ATTACK THE BLOCK promises to be 2011’s answer to fellow British comedy alumnus KICK-ASS.

PIRATES OF THE CARIBBEAN: ON STRANGER TIDES (cert tbc) – Tuesday 31 May (Half Term family screening, 11am)
Captain Jack is back! In this fourth instalment of the swashbuckling franchise Jack Sparrow (Depp) teams up with his salty old pal Barbossa (Rush, THE KING’S SPEECH) and sets out on an epic quest to uncover the legendary Fountain of Youth. But their plans are thrown off course when an old flame (Cruz, NINE) turns up unannounced and tricks Jack aboard her father’s vessel. As fate would have it her pop’s none other than the infamous Captain Blackbeard (Ian McShane, THE SORCEROR’S APPRENTICE), who’s out to claim the Fountain for himself.

The first PIRATES film to be presented in 3D, ON STRANGER TIDES promises to be a rip-roaring adventure for the whole family.

HANGOVER 2 (cert tbc) – Tuesday 7 June  (tickets on sale from Friday 3 June)
After their legendary lads’ weekend in Las Vegas, the boys find themselves in a spot of bother all over again in Todd Phillips’ highly anticipated sequel to 2009’s smash hit comedy THE HANGOVER.

This time, Phil (Cooper, LIMITLESS), Alan (Galifianakis, DUE DATE) and Doug (Bartha, THE REBOUND) head to Bangkok for their best pal Stu’s (Helms) wedding. But things go awry when Stu’s brother-in-law-to-be goes missing and the gang hit the city to find him and save the ceremony. Expect the unexpected from this riotous buddy comedy, including plenty more wild cameos from the likes of Mike Tyson and Paul Giamatti (BARNEY’S VERSION).

X-MEN: FIRST CLASS (cert tbc) – Tuesday 14 June (tickets on sale from Friday 10 June)
While comic-book movies continue to jostle for our attention in a lately somewhat crowded genre, Matthew Vaughn’s (KICK-ASS) attempt to reinvigorate the hitherto lucrative X-MEN franchise will certainly not disappoint this summer.

As the origin story to end all origin stories, X-MEN: FIRST CLASS takes us all the way back to the early 1960s, where Professor Charles Xavier (McAvoy) and his best friend Erik Lehnsherr, aka future archenemy Magneto (Fassbender), are gearing up their Mutant comrades to thwart the single greatest threat the world has ever known. With an all-star cast and blockbuster effects, Vaughn’s film promises to give the genre a much-needed injection of new blood.

Foreign language subtitled films we will be showing:

ADELE BLANC SEC (12A), from 22 April
Who else could unleash a pterodactyl swooping above the boulevards of pre-First World War Paris? Set your imaginations to soar with French director Luc Besson’s return to the big screen with his version of Jacques Tardi’s much-loved cartoon strips and books.

Intrepid young journalist Adèle Blanc-Sec (Bourgoin) laughs at fear and is ready for anything. Which is just as well as she must face down Egyptian mummies, buck-toothed villains and a refugee from the Jurassic era in her quest to find a cure for her desperately ill sister.

THE EXTRAORDINARY ADVENTURES OF ADÈLE BLANC-SEC blends eye-popping fantasy with gorgeous period detail and precisely the sort of strong female lead we would expect from the man who gave us NIKITA.

France fell in love with Louise Bourgoin, for her portrayal of a thoroughly French heroine full of wit and charm, and we’re sure you will too.

13 ASSASSINS (15), from 6 May
Culminating in an epic 45 minute battle sequence that stands up as one of the most blistering action set-pieces in cinematic history, 13 ASSASSINS is a work of refined visionary genius from prolific and controversial Japanese auteur Takashi Miike.

Japan, 1844. Lord Naritsugu Matsudaira (Inagaki) is a vindictive young megalomaniac whose blue blood status gives him free rein to rape and murder as he pleases. But his wanton behaviour doesn’t go unnoticed and veteran samurai Shinzaemon (Yakusho, BABEL) is called in to head up a daring assassination plot. He enlists the services of eleven more samurai, comprising both seasoned elders and steely upstarts. A brash local chancer joins the band of brothers en route and the first stages of Shinzaemon’s carefully laid plan come together. But will they be enough to bring Naritsugu to justice once and for all?

LE QUATTRO VOLTE (cert tbc), from 27 May
One of the real highlights of this year’s Cannes film festival was this almost wordless film of striking beauty and originality. Set in remote, rural Calabria in southern Italy it is a delicate and wryly funny meditation on rural life.

Quasi-documentary in form and with a pace exquisitely matched to that of the village itself the main subjects are an elderly goatherd, baby goat, dog, fir tree and smoking charcoal kiln. There is no dialogue as such but a rich soundscape of goat bells and howling winds, church bells and burning wood. The film’s titles translates as ‘The Four Times’ derived from a Pythagorean text identifying man’s nature as mineral, vegetable, animal and rational; the overall feel is of something elemental, primordial even.

In LE QUATTRO VOLTE one can find echoes of the poetry of SLEEP FURIOUSLY or the dry humour of HUKKLE (2003) but this is a rare and wondrous work.

For more information, visit http://www.picturehouses.co.uk/cinema/Greenwich_Picturehouse.

Beckwith-Wiedermann Syndrome

April 20, 2011

The family of a youngster, who has a rare genetic condition that could see him grow to more than 7ft tall, hope experts in America can offer help.

Jack Ives, from Rotherham, South Yorkshire, has Beckwith-Wiedermann syndrome and is already more than 4ft tall aged four-years-old.

The youngster has distorted growth patterns such as different-sized limbs.

Now his parents want specialists in America to assess how his quality of life could be improved in the future.

His parents said medical staff told them there were only 64 other cases in the UK.

Jack Ives is more than 4ft 2in (127cms) high and as tall as many children twice his age although he is just a month short of his fifth birthday.

The syndrome means he grows a lot faster than children of a similar age.

Growth anomalies

His mother, Hayley Ives said the condition meant Jack has growth anomalies that are quite rare.

She said: “The right side of his face is bigger than the left side and the left side of his body is bigger than the right side and that also affects internal organs.

“He has one leg longer than the other by roughly 3.5cms (1.3ins).”

Jack was born six weeks premature weighing 7lbs 3ozs but spent most of his first year of life in the intensive care unit at Sheffield Children’s Hospital.

Hayley Ives added: “He was born with a very large tongue which blocked his airway and as a result had to have a tube fitted into his throat to help him breathe.”

The youngster has to wear a special shoe that has a wedge fitted to balance the length of his legs.

His parents said doctors had told them Jack could potentially grow to a height of 7ft 5in by adulthood.

His father Darren Ives said Jack had a number of difficulties to deal with.

He said: “He tries his best, he really does, and the leg length difference hurts his hips.”

The family are hoping to raise £2,500 to fly Jack to America where specialists dealing with the condition may see ways of improving his quality of life.

New Pill Made Available To MS Patients

April 19, 2011

The first pill that could help relieve the early stages of multiple sclerosis is being made available.

It offers an alternative to those failing on the current treatments of injections and hospital infusions.

Trials showed the drug, named Fingolimod, halved relapse rates among some patients.

It is estimated that 100,000 people in the UK have MS.

The NHS advisory body, the National Institute for Health and Clinical Excellence (NICE), is now reviewing the drug to assess the cost effectiveness of the new treatment. Its recommendations will decide if the drug will be made freely available to NHS patients in England. It costs approximately £20,000 a year to treat a patient.

Sam Sheppard, who has had MS for five years, joins BBC Breakfast together with Dr Doug Brown, head of biomedical research at the MS Society.

Virus And Low Sunlight Increase MS Risk

April 19, 2011

Low levels of sunlight coupled with glandular fever could increase the risk of developing multiple sclerosis (MS), say researchers.

There are many suspected risk factors for MS and the disease is known to be more common away from the equator.

The study, in Neurology, suggested that low levels of sunlight could affect how the body responds to infection.

The MS Society said the study, based on hospital admissions data in England, added weight to existing evidence.

MS affects about 100,000 people in the UK and is more common in the north of England than in the south.

There are also high levels of both vitamin D deficiency and MS in Scotland, where the MS Society is considering carrying out separate research on a possible link between the two. Around 10,500 people have MS in the country, the highest prevalence of the condition in the world.

With MS the protective layer around nerves, known as the myelin sheath, becomes damaged. Messages from the brain to the rest of the body are disrupted, resulting in difficulty moving, muscle weakness and blurred vision.

Light plus virus

The researchers at the University of Oxford looked at all hospital admissions in England between 1998 and 2005.

They found 56,681 MS cases and 14,621 cases of glandular fever, which is caused by the Epstein-Barr virus.

The study also used data from Nasa on sunlight intensity.

The researchers found that by just analysing sunlight, they could explain 61% of the variation in the number of MS cases across England.

However when they combined the effect of sunlight and glandular fever, 72% of the variation in MS cases could be explained.

Professor George Ebers, from the University of Oxford, said: “It’s possible that vitamin D[which is made when the skin is exposed to sunlight] deficiency may lead to an abnormal response to the Epstein-Barr virus.

“More research should be done on whether increasing UVB exposure or using vitamin D supplements and possible treatments or vaccines for the Epstein-Barr virus could lead to fewer cases of MS.”

Dr Doug Brown, head of biomedical research at the MS Society, said: “This work adds weight to existing evidence that MS is caused by a number of factors working in combination.

“Vitamin D has been closely studied in recent years and is thought to be a key factor in the development of MS, we look forward to seeing more research dedicated to this important area.”

Pam Macfarlane, chief executive of the Multiple Sclerosis Trust, said: “Further research is needed, but being able to accurately predict the risk of getting MS and identifying preventative measures would be another step forward.”

Studies in the UK have suggested that the MS prevalence rate in England and Wales is between 100 and 140 per 100,000, about 170 in Northern Ireland and as high as 190 in Scotland. Individual studies in Orkney have recorded rates of over 200.

It has also been noted that areas of high MS prevalence around the world have been settled by Scottish immigrants, according to the MS Trust.

Airlines Facing EU Action For Refusing Wheelchair Users Travel

April 19, 2011

Shuaib Chalklen, the UN’s “special rapporteur on disability” has complained to the European Commission after he was denied boarding on a flight from Heathrow to Geneva because he is a wheelchair user.

Mr Chalklen’s ticket was booked by the UN but he was told that he would not be allowed on Swiss International Airlines flight LX 353 if he planned to travel unaccompanied. The airline insisted that travelling alone, on the one hour and 40 minute journey, he would not be able to use the in-flight lavatory facilities.

“I think it is absurd. I am a paraplegic frequent flyer for the last 15 years and I’ve travelled around the world on my own,” he told The Daily Telegraph.

After Mr Chalklen protested that, as a UN human rights monitor, he regularly travelled alone the airline finally relented and allowed him to travel five days later than originally planned.

“I have had this experience before. It is spreading. Something has gone wrong. They are not applying European law,” he said.

A spokesman for Swiss airlines said: “We transport many wheelchair users. We have looked into this and our medical department gave him the OK to fly with us.”

Last week, a disabled woman successfully sued Ryanair after her husband was forced to carry her onto an aircraft using a fireman’s lift after a wheelchair life failed to arrive and the couple faced missing their flight.

Wheelchair-bound Jo Heath, who suffers from multiple sclerosis, won £1,750 compensation for Ryanair’s failure to provide the assistance and breach of disability discrimination laws.

Aurélien Daydé, a spokesman for the European Disability Forum, said that complaints were coming in on a daily basis, including a case that involved denied boarding for Jean-Luc Simon, the paraplegic chairman of the Disabled Peoples’ International.

“It is happening every day and with most airlines. We need the EU to strengthen the law and make sure it is enforced,” he said.

Siim Kallas, the European commissioner for transport, is planning to issue new guidance on the law to Britain before the 2012 Olympics and is planning to increase the powers of the national bodies that enforce passenger rights.

“It is not enough for people to have rights on paper if they don’t work on the ground. We know there are still far too many cases where people with disabilities are being refused basic access to flights,” he said.

“The Commission will bring forward new guidelines before the end of the year to close loopholes.”

Benefit Money Lost In Reassessment Confusion

April 19, 2011

Some people in Lincolnshire have had their benefits suspended due to confusion over allowance changes.

Benefit claimants are being reassessed and moved from incapacity benefit to employment support allowance.

The Citizens Advice Bureau (CAB) and Shoreline Housing Partnership said 120 people a month were losing money by not notifying the authorities of change.

The Department for Work and Pensions (DWP) said people had to inform local authorities if they were transferred.

Those being reassessed are sent letters informing them of the changes to their entitlements and told they must tell their local council.

‘Vulnerable’ people

But Tony Gaskins, chief executive of CAB in the area said: “My main worry is people not acting upon their change of circumstances because they think everything is done for them.

“That then leads to them not having housing benefit and council tax benefits paid and getting into rent arrears.

Continue reading the main story

“Start Quote

It terrifies me. The changes are so far reaching”

End Quote Anne Maggs Shoreline

“Some people have vulnerability issues and when the letter says talk to your councillor, do they know what they’re telling the council?”

CAB said more than 30 people each week were having their benefits suspended after failing to notify the local authority of changes.

Gemma, who did not provide her surname, from Grimsby, said she lost out on eight weeks worth of benefits when she was moved from job seekers allowance to employment support allowance.

“I ended up losing my property because they didn’t pay me the rent that I needed, and then when I did get back-paid I didn’t have enough for a deposit because I had to pay the debt off with the previous landlord.”

Anne Maggs from Shoreline, which manages social housing, said: “It terrifies me. The changes are so far reaching that I think people are going to have to realise the welfare changes will affect them.

“They’ve got to ask for help from what ever agency they can.”

In a statement DWP said: “When incapacity benefit customers receive initial reassessment letters they are reminded that it is their responsibility to inform their council of any changes that could affect their ongoing entitlement.”

Adam Bojelian

April 19, 2011

Adam Bojelian is an 11-year-old who likes writing poetry and has won several accolades including a Brit Writers Award and a Blue Peter Gold badge.

He has had to overcome incredible challenges as he is blind, suffers from cerebral palsy, several life-threatening conditions and communicates by blinking.

Jono Lancaster Follow Up: So What If My Baby Is Born Like Me?

April 18, 2011

For Jono Lancaster, who has Treacher Collins syndrome, the decision about whether to have a baby or not is agonising.

At the age of 26, Jono is happy with how he looks, but the genetic disorder that affected the way his facial bones developed in the womb has caused him years of anguish.

His condition means he has no cheekbones – so his eyes droop downwards – and he has problems with his hearing, so has a bone-anchored hearing aid.

It has resulted in years of bullying, several operations and numerous hospital visits. It also led his parents to give him up for adoption 36 hours after he was born.

But perhaps the most vital factor for Jono and his long-term girlfriend, 20-year-old Laura Richardson, is that it is also hereditary, so any child Jono fathers naturally has a 50% chance of having Treacher Collins.

Jono says until he met Laura, he always assumed he would adopt.

“It worked really well for me, and giving a child a second chance, I think that’s brilliant.

“But Laura thinks she will have those instincts of really wanting to carry a child, and she’s worried that she might find it hard to look after someone else’s child – or that the child will just want to find its natural parents.

“Plus she really wants our child to be ‘our’ child. And I really want to look after her when she is pregnant, for her to be on the sofa, or for me to run downstairs at 2am when she fancies a pickle.”

He says ruling out children is not an option.

“I’ve always dreamed of being a daddy. I crave father and son moments – my adoptive mum was absolutely amazing but I never had a father figure in my life, and that’s something I really, really want. I want to do the school run, take my child to dance, gymnastics or football – whatever they want.”

But for the couple – and particularly Jono – the thought of having a child naturally opens a minefield of morals, emotions and self-questioning.

“Knowing that there’s a good chance of passing your condition on to your child. It scares me and I question whether it’s the right thing to do.

“The big debate in my head is how can I knowingly put my own child through potential suffering,” he says.

To add to their predicament, Treacher Collins syndrome – which is thought to affect up to one in 10,000 people in the UK – varies in severity, but there is no way of predicting how severely a child will be affected.

While some sufferers have problems with hearing and facial features, others can be born unable to breathe.

“I’ve met a girl that needed a tracheotomy and 24-hour care, and another boy had to have his jaw extracted – which means putting a brace on every morning and and twisting it, which breaks the jaw – how can I knowingly put a child through that? I’d feel so guilty.”

But Jono says if they decide to have a child naturally, “abortion is not an option” for him.

“I want to make the right decision. Right from the very start. So if I decide to have a child naturally, we go through the whole thing. Not just give up on it halfway through.”

Because doctors have been able to locate Jono’s abnormal gene, the final option that Jono and Laura are considering is IVF with pre-implantation genetic diagnosis (PGD).

The procedure is controversial – both ethically and from a religious point of view – because it involves testing embryos for genetic disorders before implanting an unaffected one in the womb.

Some disabled groups also argue it harms their chances of equality and understanding. Ian Macrae, editor of the magazine and website Disability Now, says he would never condemn an individual for making their own choice, but he had significant concerns about screening embryos.

“It re-enforces the stereotypical notion that disability per se is a bad thing that should be excluded and that disabled lives are intrinsically less valuable.

“Also, if you make the comparison with ethnicity, which I know is not always helpful, and you want to start doing this to people of colour, then there would be, quite rightly, an outcry. For me, disabled people are part of the rich mix of a diverse society.”

We want to be working towards a society that can accommodate the range of needs that people have, rather than getting rid of the people, he says.

Macrae himself has a congenital cataracts condition that could have been passed to his children but he says he would not have agreed to screening, had screening been available.

For Jono, it is the moral issue that is particularly poignant.

“When I first heard of IVF PGD I had this kind of moral dilemma going on in my head, that if my parents had chosen to do it, I wouldn’t be here today.

“Then there are all these other amazing people in the world with genetic disorders, I think the world is a better place because they are in it. I’d feel in some way like I’m insulting or disrespecting them, and that’s what I’m struggling with.”

He also feels guilty that Laura would bear the brunt of the procedure.

“She’d have to inject the hormones, have the eggs taken out – it puts her under so much pressure and that frustrates the life out of me because this is my condition.”

Although Jono thinks having a child through IVF PGD is probably best option for their child, he says he is still goes through an “emotional rollercoaster” when he thinks about actually having to make a decision.

“I could argue with myself all day – there’s an answer and an argument for everything.”

Dr Christine Patch, a genetic counsellor at Guy’s and St Thomas’ hospital, says it is important for couples like Jono and Laura to understand the facts, talk through choices and make the decision that is right for them – taking into account their culture and personal beliefs.

“It’s very hard for people with the condition themselves – they are the ones that know much better than anyone else how it is to live with it.

“Many will be conflicted, they may quite rightly see themselves as being able to fulfil a normal valuable role in society, so thinking about not having a child the same as them is difficult for them emotionally and psychologically.”

Jono agrees that understanding his options has been a huge step forward and will allow him to move on.

“Starting a family should be a romantic and exciting time – and hopefully by the time we are ready to have children, we’ll be able to make our dream a reality.”

So What If My Baby Is Born Like Me? will be broadcast on BBC Three at 2100 BST on Tuesday 19 April 2011

Blogging Against Disablism Day: May 1st 2011

April 18, 2011

I’ve just read that Blogging Against Disablism Day will be held again this year, on Sunday, May 1st as usual. This will be the fifth event. The event was the great idea of a blogger known as Goldfish. I thank her for hosting it on Diary Of A Goldfish each year and I look forward to taking part!

Star Trek Actor Sir Patrick Stewart Joins Assisted Suicide Debate

April 18, 2011

Actor Sir Patrick Stewart has spoken about his decision to become a patron of an organisation campaigning to legalise assisted suicide in the UK.

In an interview with the Sunday Times, the 70-year-old said the choice to have an assisted death “should be a right”.

“Should the time come for me… I would like there to be a choice I might make about how I die,” he continued.

His comments follow those of author Sir Terry Pratchett, who is to appear in a BBC documentary about assisted suicide.

“I believe everybody possessed of a debilitating and incurable disease should be allowed to pick the hour of their death,” said the 62-year-old, who was diagnosed with a form of Alzheimer’s in 2008.

News of the BBC Two programme, to be shown this summer, drew censure from the Care Not Killing organisation, which accused the BBC of “acting like a cheerleader for legalising assisted suicide”.

Both Sir Patrick and Sir Terry are patrons of Dignity in Dying, which campaigns for a change in the law on assisted dying for terminally ill, mentally competent adults.

Care Not Killing campaigns against any such change in legislation, promoting instead the provision of “more and better” palliative care.

In his interview, Sir Patrick said his mind had been made up following a heart procedure he underwent five years ago after being diagnosed with coronary heart disease.

He also mentioned a family friend who had been “driven to an extreme situation of ending their life in the most ghastly way”.

Last year a UK inquiry into the issue of assisted suicide was launched with funding from Sir Terry.

Chaired by former justice secretary Lord Falconer, the Commission on Assisted Dying is expected to publish its findings in December.

Best known for his role as Captain Jean-Luc Picard in Star Trek: The Next Generation, Sir Patrick has also been seen in the X-Men films.

Later this year he will play Shylock in The Merchant of Venice as part of the Royal Shakespeare Company’s 50th birthday season.

Mother’s Funding Despair For Terminally Ill Daughter’s Care

April 18, 2011

The mother of a terminally-ill girl says she has considered putting her into care because of funding delays.

Poppy Blewett-Silcock, eight, has Warburg Micro Syndrome, meaning she is blind, unable to speak or walk and needs tube feeding.

Both the Caerphilly social services department and Aneurin Bevan Local Health Board (LHB) acknowledge that Poppy, who is unlikely to live far beyond 10, urgently requires a variety of support.

Her mother, Dr Tymandra Blewett-Silcock, from Caerphilly, says they ahve been left waiting for six-months as neither body will take responsibility for funding her for support.

Poppy’s needs range from respite and nursing care, to equipment such as a hoist, specialist wheelchair and bath seat.

Dr Blewett-Silcock said such specialist equipment and support would make her daughter’s final years easier, safer, and more enjoyable.

“I don’t know who should be picking up the tab, and quite frankly I don’t care,” she said.

“I just need the support in order to make whatever time we have with Poppy as safe and hassle-free as possible.”

“Don’t get me wrong, we have a fantastic life. Even though Poppy is blind, tube-fed, and in a wheelchair, she is a mischievous bundle of fun.

“But as she’s grown and her condition has progressed, the support she needs has increased dramatically.”

“Everyone agrees what she needs, but social services say she has nursing needs, and should therefore be funded by the NHS, while the LHB say, as she isn’t being treated at home as such, social services should pay as her needs are purely care-based.”

She added: “We are patient, but time is unfortunately the one thing Poppy doesn’t have on her side.”

She also said that although funding for a bath hoist was still under dispute, they had been warned against manually lifting Polly out of her bath.

She had recently been told no equipment orders would be placed until funding was agreed, she added.

“It’s an absolutely terrible thing for any parent to say, but if we simply said we couldn’t or wouldn’t care for Poppy any longer, then they’d have to cater for her needs, and the argument would be resolved one way or the other,” she added.

Specialist suppliers

Caerphilly council and the Aneurin Bevan LHB denied they had reached deadlock.

A LHB spokesman said: “Continuing health care cases do need to be thoroughly assessed and we apologise for any delay whilst this work has taken place.

“We are working with the local authority to ensure that the equipment required is sourced as quickly as possible to bring about a satisfactory conclusion for the family.”

Caerphilly council said it had worked closely with the family over years to provide the best levels of care and support.

“These needs have changed and become more significant over time, so we have recently reassessed the situation to identify the most appropriate equipment for their home,” said a spokesman.

“Unfortunately, some of this equipment is of a bespoke, specialist nature such as hoists, slings and seating which needs to be purchased and installed by specialist suppliers.”

The spokesman said they were sorry about the delay due to technical requirements but reassured the family that they were doing everything possible to speed up the process and ensure that they receive the best facilities on offer.

Disabled Man Feels Let Down At Housing Delay

April 18, 2011

A disabled Nottingham man who has been on a waiting list for a council bungalow for a year says he feels let down by the local authority.

Patrick Byers, 55, who suffers from a degenerative spinal condition, has been offered two homes in the past few weeks.

Both offers were withdrawn by Nottingham City Homes (NCH) because they were later deemed not suitable.

A NCH spokesman said the second bungalow did not have disabled parking.

Medical advice

The NCH spokesman apologised for the inconvenience and said finding a home for Mr Byers was still “a priority”.

“We’re sorry for the inconvenience Mr and Mrs Byers have suffered. Re-housing them is a priority for us and we are determined to find them something that meets their needs as soon as possible,” the statement said.

Mr Byers said he was told a bungalow was available in early April but then the offer was withdrawn when the current occupants decided not to move.

He lives with his wife Karen in a one-bedroom council bungalow in Top Valley but needs a two-bedroom house to meet his needs.

Mr Byers said he was frustrated by the delays: “How can they do this to people? I have had enough and we feel we can’t fight them anymore.”

A Review Of One Last Goodbye

April 18, 2011

This is a guest post by Matthew Smith, who blogs here as Indigo Jo. Thanks to Matthew.

One Last Goodbye is Kay Gilderdale’s account of her life with her daughter Lynn, who suffered from very severe ME from mid-1992 (after initially falling ill in November 1991) until her death in December 2008. ME has been described by Leonard Jason, an American doctor who suffers (more mildly) from the condition, known in that country as Chronic Fatigue Syndrome, as “more debilitating than just about any other medical problem in the world”, and Lynn had one of the worst ever cases of it. For all but the first few months of her illness, she was totally bedridden, unable to speak or swallow, in constant, terrible pain, and experienced what she described as “permanent nausea/vomiting” along with numerous complications including adrenal and ovarian failure; in her last couple of years, hardly any part of her body was unaffected.

After a prologue describing waiting for the verdict in her trial in January 2010, Kay moves to describing, in two chapters, her upbringing in Dublin, where her father was a successful businessman although he fell on hard times around the time of the author’s birth, and where her elder brother sustained an injury in a car accident, leading to brain damage and lifelong disability. As a trainee nurse in London, she met and fell in love with Richard Gilderdale, a policeman; the two married and moved to East Sussex, with her husband becoming a village policeman and the couple settling in Stonegate. Lynn was born in September 1977; they named her Lynette, but she later insisted on being called Lynn. Kay describes her as well-motivated, sporty, fond of music but not in an academic sense, and fun-loving, and notes that she took it for granted that she would get married and have children. When she became ill after her BCG vaccination in 1991, it initially seemed like any other bug, but her condition took in repeated infections that “seemed to have total and free access to her body”. She began to be sensitive to light and sound, and when her mother took her shopping before Christmas, naively imagining that “she could override [Lynn’s] noise and light sensitivity with a spot of retail therapy”, Lynn begged to be taken home. She began falling over at home, having spasms and fits, and increasingly lost her memory, not knowing what things were or who people were.

When the Gilderdales sought help, they encountered hostility from everyone except their local GP, Dr Jane Woodgate. A consultant at Kent and Sussex Hospital in Tunbridge Wells angrily demanded to know why Lynn had missed so much school; the paediatrician Lynn was referred to diagnosed her with ME, saying he had seen many young people like her and they all got better; he told her she was lucky to have a “fashionable” disease. When Lynn was almost at rock bottom and could no longer swallow, they got her admitted to a clinic in north London that supposedly specialised in ME, but at which she encountered terrible cruelty (she later alleged that she had been sexually assaulted there, although this book does not mention that). A consultant performed a “psychological experiment” by putting Lynn in a dark room with heavy curtains and removing her clock, and finding himself unable to explain the severity of Lynn’s condition, he referred her to a psychiatrist. In her next hospital, Lynn overheard nurses talking about her and saying that her father had “obviously” sexually abused her, while in a psychiatric unit at Guy’s Hospital in London, she was put in a windowless room where children were able to throw things at her. By the end of her time there, she had lost the ability to speak.

At every point, the Gilderdales were lied to, assured that the doctors regarded ME as a physical illness rather than a mental one and that they had a treatment plan, but the plans never materialised and it rapidly appeared that they did not in fact accept that her illness was physical. Time after time, Kay and Richard Gilderdale had to intervene when Lynn was put into unsuitable accommodation (such as a room with building works outside) or treated cruelly or disrespectfully; if it were not for their daily visits, her situation could have been even worse than it was. During a later admission, one doctor frankly told Kay Gilderdale that “ME does not exist”, and that Lynn’s condition was “Lynn Gilderdale syndrome”. It was clear that none of them had ever seen a case of ME that severe before, and did not recognise it as the same thing even if they could see that Lynn was dreadfully ill. From my admittedly limited research, it seems as if there was a rash of cases of severe ME in adolescent girls dating from that time, and all the victims are still severely affected, but nobody knew that in 1992. The book Osler’s Web by Hillary Johnson, which tells the story of ME in the USA in the 1980s and early 1990s, mentions no case anything like it. Still, that does not excuse the outrageous cruelty they subjected Lynn to, nor the contemptuous attitude they displayed when they failed to identify Lynn’s illness with their tests, particularly as subsequent tests showed very serious abnormalities, as has been the case for many other sufferers.

Lynn’s illness was shocking in its severity, even compared to most of the other well-known severe cases (except, perhaps, Sophia Mirza). Fellow sufferer Vikki George (known for founding the charity Post Pals, which arranges for gifts to be sent to sick children, which she runs from her bed in a dark room in Bookham, Surrey), said in an appearance on ITV Meridian news last year that her case was “certainly the worst for the longest period”. What was most distinctive about it is the level of physical disability it visited on her which was seemingly permanent; she was effectively paraplegic, unable to feel or move her legs, unable to speak or swallow, and entirely bedridden, unable even to raise her head, consistently from mid-1992 until her death. It is quite common for people with severe ME to temporarily lose their speech, or to be tube-fed because of difficulties swallowing or severe nausea which means they cannot bring themselves to eat, but losing these faculties for so long is quite unusual, and raises the possibility of whether she would ever have regained them if her general condition had improved. Normally, a bedridden ME sufferer can get on a commode or make it to the toilet and back; Lynn would pass out if someone raised her.

Her ordeal in hospital in 1992 was not to be her last; over the years, she would suffer a punctured lung, resulting in needing life support, be accused of inducing a skin rash that actually originated with her cat (while in hospital for treatment for an adverse reaction to her liquid feed), have her back broken while being lifted, was awake during an operation to fit a PEG tube (that is not in this book, but you can read Lynn’s account of it here: http://chronic-health.livejournal.com/305565.html, towards the bottom of the page), and be made to stay on an open ward during her final stay, during which she contracted four separate bugs which persisted after her discharge. Small wonder that she decided never to be admitted again, whatever the circumstances.

From about 2004 onwards, Lynn’s memory and cognitive abilities began to improve, and judging by this book they improved very rapidly; unless the chronology is a bit out (and it does say that Lynn missed the fall of the Berlin Wall and Nelson Mandela’s release, which happened before Lynn fell ill, in 1989 and 1990 respectively), Lynn first recognised a written word aged 27, the age she reached in September 2004; her early online communications were assisted by Kay, to whom she signed what she wanted to write, and she then wrote them down so that Lynn could type them. Eventually, she was able to type unaided and made Kay promise that she would not read her diaries, a promise Kay kept even after her death. With the exception of the famous “DNR” posting from 2008 which has previously appeared in the press and which was read out in court, this book contains no material sourced from Lynn’s private blogs. Curiously, the name Jessie Oliver, which Lynn adopted for her online activities, never appears in the book.

Unsurprisingly, the last third, or so, of this book deals with the events which come after the punctured lung incident in October 2005. After that ordeal, Lynn began to lose hope in ever getting better, increasingly insisting that she was “too broken”. She drew up an advanced directive (i.e. a living will), which specified that she was not to be treated for anything that left her unconscious, although if she was suffering and conscious, she did want to be treated. “If I get a nasty lump (wots that ilnes kalled), I do NOT wont treatment 4 this,” she wrote. Most adamantly, “NO 1 SHOULD BE ABLE 2 PUT ME IN A MENTAL HOME”. Kay was quite surprised by discovering Lynn’s final suicide attempt; Lynn had promised not to attempt suicide behind her parents’ backs again after an earlier attempt and had been making plans for Christmas, but insisted that she could not go on another day. Kay notes that Lynn’s demeanour in her last few months had generally been happy (in between bouts of sickness and hours on the bed-pan), and that she had continued talking to her friends online and listening to music; this is not unusual in people who have resolved to kill themselves and are certain that their ordeal will soon be over.

I should declare an interest at some point: although I never knew Lynn Gilderdale under any name and have never met Kay, I do know some of Lynn’s friends including one who has been in contact with the author. I’ve come across some of Lynn’s online writing (although none of the friends-only stuff) and formed a very positive impression of her personality. She was certainly very caring, very appreciative of others’ concern for her welfare, and often took pains to avoid causing them any irritating by warning them of her abbreviated writing style or her long blog posts about her health (which, she said, was most of its content as her illnesses totally dominated her life) and sometimes played down health crises which had in fact been devastating for her, when conversing with severely disabled and sick friends (none of them quite as sick as she was). This book increased my respect for both the author and for Lynn. It showed Lynn to be a mature woman, understanding of others’ needs and eager to help them in any way she could. Of course, that is her mother writing, but it certainly fits with what I gathered from her own writing. There are passages about Kay’s feelings during the process of Lynn’s death and afterwards, such as thinking of Lynn in her “cell-like room” at Guy’s when she was 14 while confined in a police cell. There are no doubt those who will be sceptical and call it self-justification, but it fits with what those I know who have met her say about her, and what Lynn wrote about her.

This book is a powerfully-written memoir, which shows the depth of Kay’s love and respect for Lynn. She expresses no regret for assisting in Lynn’s suicide, but clearly feels a lot of grief at losing her (again, something mutual friends confirm). What this is not is any kind of investigation as to how widespread the kinds of abuses Lynn suffered were, or are, and such a book is sorely needed and Lynn’s story would no doubt feature heavily in it. There have been countless stories since of people with ME, including severe ME, suffering because of the disbelief of doctors who insisted that their illness was being “encouraged” or was the result of abuse, leading to children being removed from their families or threatened with such action. Sufferers admitted to hospital still find that the environment makes their symptoms worse as it does not accommodate their sensitivity to noise, light, smells and chemicals; only this past weekend I learned of a woman with severe ME being admitted to hospital in an emergency, and coming out worse than she went in. One would hope, however, that this book would open people’s eyes (including the medical profession’s) to how damaging their current practice can be, so that nobody else suffers a major relapse or is so traumatised that they give up on life. It’s a very much needed wake-up call.

One Last Goodbye is published by Ebury Press at £6.99.

After School Club ‘Lifeline’ At Cardiff Special School

April 18, 2011

A new after-school play scheme for children with special educational needs in Cardiff has been welcomed by parents as a “lifeline”.

The club at The Hollies school in Pentwyn provides structured play for children with physical and learning disabilities.

Parent Maria Carey sad it was difficult to access schemes for her disabled son and called the scheme “amazing”.

A summer play scheme is also planned.

It secured £18,000 funding for equipment and supplies and guarantees the running costs for the after school scheme for the first year.

Business manager Kay Hughes-Jones, who joined The Hollies seven years ago, has worked to get charitable status and set up the Hollies Action Group in 2007 to raise money.

“There’s a huge need for a specialist structured play facility for children with special educational needs as most of the children at the school can’t access mainstream play schemes,” she said.

“We’ve consulted with the parents at the school and there’s already been a 50% take-up ahead of the club opening this month”.

“It’ll provide much needed respite for some parents and it’s great for the children as the activities that we’re organising can be enjoyed by all the children at our school and their siblings”.

Staff have organised a regular diary of activities for the after-school club.

Therapies include relaxation massage and rebound, which uses a trampoline and can be enjoyed by both physically challenged and autistic pupils.

Karate classes

There will also be karate classes with a special needs instructor and dance workshops run by Rubicon dance.

A large part of after-school club funding has come from Clybiau Plant Cymru Kids Clubs.

Francis Daw, the childcare business development Officer for Cardiff, said: “If a school has out-of-hours childcare available it can offer respite in some cases and also provide parents with greater flexibility to work longer hours or pursue additional training and education.”

Maria Carey’s son Jak, 10, attends The Hollies and is looking forward to attending the after-school club.

“It’s a lifeline to parents as some children, once they come home from school, they don’t go back out,” she said.

“The after-school club will be wonderful for him as now he knows he’ll be able to do Rubicon dance every week.”

“Children with special needs require specially structured play. It’ll be amazing for our children. We can’t access mainstream play schemes so finding out of school activities can be a nightmare.”

“As a parent myself I can see how desperate other parents are for the chance for their children to access after school clubs.”

Ms Hughes-Jones said her ambition was to run a summer play scheme for children when registered with the Care and Social Services Inspectorate for Wales (CSSIW).

London Marathon 2011: Wheelchair Race Results

April 17, 2011

Britain’s David Weir produced a commanding performance to win his fifth wheelchair London Marathon title.

The 31-year-old from Surrey moved ahead of Swiss rival Heinz Frei in the final 300 metres during an exciting finish.

Weir, who won three golds at the IPC World Championships in Christchurch in January, suffered two punctures in last year’s race but still finished third.

Meanwhile, Briton Shelley Woods was beaten on the line by American Amanda McGrory in the women’s event.

The pair, along with Sandra Graf and Tatyana McFadden all turned into The Mall together.

But McGrory and Woods went clear of the other two before the American, who won the Paris marathon last week, pipped the Briton by about half a wheel.

Debbie Purdy Reveals She ‘Cancelled End Of Life Plans’

April 16, 2011

Right-to-die campaigner, Debbie Purdy has revealed she cancelled plans to end her life following a landmark ruling.

The multiple sclerosis sufferer went to the House of Lords to clarify whether her husband would be prosecuted if he helped her to end her life.

It was ruled that if he was judged to have acted with compassion he would not be prosecuted.

Ms Purdy said had she not pursued the clarification she would have had to end her life two years ago.

‘My life is not unbearable’

The campaigner from Bradford said that prior to the legal clarification she was preparing to go to Switzerland to end her “not unbearable” life while she was capable of travelling alone, without involving her husband, Omar Puente.

She said the ruling meant she was able to postpone the plans indefinitely, knowing that Mr Puente would be able to accompany her abroad in the future.

Ms Purdy said: “Two years ago, when we won in the House of Lords I was halfway through preparation to go to Switzerland because I was losing the use of my arms and I was terrified of what that would mean for me.

“But the thing is I haven’t made up my mind about what I want to do because my life is not unbearable.

“But I would have been dead for two years by now if we hadn’t have won.”

Ms Purdy said following the ruling she was confident enough to cancel the plans in the knowledge that her husband would not be held accountable for her death in the future.

But she added: “It wasn’t the best solution we could have.

“It didn’t change the law. It didn’t make it possible for me to ask my doctor to help me in this country but I know that if my husband helps me push my wheelchair they will examine his motivation.”

Parents Fight To Save Autism Centres In Wales

April 16, 2011

Parents are fighting to save two centres at opposite ends of Wales which help autistic children.

A protest group is opposing the proposed closure of an autism centre which provides therapy and teaching at a school in Buckley, Flintshire.

Meanwhile a mother in the Vale of Glamorgan wants to save a facility for disabled children in Barry.

National Autistic Society Cymru said it was a tough time for councils but local needs had to be assessed thoroughly.

Parents are campaigning against plans to shut a unit at Westwood community school in Buckley, which provides specialist therapy and teaching for up to 10 children.

Flintshire and Wrexham council provide the service and launched a consultation, saying it was becoming unviable due to pupil numbers.

Parent Bev Mathias of Caergwrle, near Wrexham, said improvements to her son, Elliot, five, were “phenomenal” since he started at the centre two years ago.

“I know other parents who feel the same,” said Mrs Mathias, who believes the school could be used by more children if it is better advertised.

The Buckley unit teaches children using a method called Applied Behavioural Analysis and requires “intensive 1:1 adult input”, according to a Flintshire council report.

The report said that while an appropriate form of intervention, as recognised by the National Autistic Society, it was only one of many methods and its success rate varied depending on individual needs.

Education officials propose to close the centre by September and “provide a broader programme for pupils” elsewhere.

Parents have set up an online petition and a Facebook group as part of their campaign.

Tom Davies, Flintshire council’s head of development and resources, said the report to the council executive on 15 March agreed to the consultation with parents and staff.

“Responses to the consultation will be returned by the end of term, and reported to members,” he said.

“The decision will then be taken by the executive whether or not to publish a statutory notice proposing the closure.”

‘Devastated’

Wrexham council has also been asked to comment.

In the Vale of Glamorgan, the mother of an autistic boy has written to Prime Minister David Cameron to ask him to help keep a facility for disabled children open.

Mei Wong, from Penarth, said she was “devastated” to hear the Smart Club in Barry was to close because of cutbacks.

She takes her son Andy, eight, to the Saturday morning club every week.

He also received “respite care overnight to give me and my family a night’s break”, every fortnight.

In her letter to Mr Cameron, Ms Wong wrote: “The purpose-built facility was opened less than a year ago at some considerable cost so surely it is not too much to ask to keep it open?”

Downing Street said it had not yet received the letter.

Vale of Glamorgan council said: “This is an unfortunate situation and in an ideal world the council would not have to cut any services.

“However our budgets are being reduced and we are having to make some unpleasant decisions.”

Shirley Parsley, national co-ordinator for National Autistic Society Cymru, said: “There is no denying that it is exceptionally tough time for local authorities but there are long-term cost benefits in providing individuals and families with the right support at the right time.

“Before local authorities take any decisions about the future of local services, it’s vital they avoid a false economy by working with families to thoroughly assess local need and the impact cuts could have on the local community.”

Mother Seeks To Let Disabled Daughter Die

April 15, 2011

As someone who supports the right to live, I’m sad to read this:

A mother is seeking a court’s permission to withdraw life-sustaining artificial nutrition and hydration from her brain-damaged daughter.

The woman, 53, who can only be referred to as “M” for legal reasons, is in a “minimally conscious state”.

At a preliminary hearing at London’s Court of Protection, Judge Mr Justice Baker said it was a “unique” case with “very important issues of principle”.

The Official Solicitor, acting for the woman, is strongly opposing the bid.

Vikram Sachdeva, counsel for the mother, said that M had suffered from serious brain damage since 2003.

She was previously healthy before being struck down by encephalitis (inflammation of the brain).

Initially, it was thought she was in a persistent vegetative state (PVS), but subsequently the diagnosis was agreed to be that of minimal consciousness, said Mr Sachdeva.

It is this that makes the case significant, he added, as previous cases which have come before the courts have involved patients who were in PVS.

He told the court: “It is the applicant’s expert’s opinion that she is in a very low level minimally conscious state with no meaningful interaction with the environment.”

It was also said that there was evidence she “experiences bodily pain and physical discomfort on a regular basis”.

However, the court heard that the application is “strongly opposed” by the Official Solicitor, who represents M’s interests.

Vulnerable cases

At the full hearing, which is expected to take place in July and last 10 days, the judge will hear expert evidence from both sides on M’s level of awareness and will reach a decision on whether treatment can lawfully be withdrawn.

Caroline Harry Thomas QC, representing the Official Solicitor, said the outcome of their medical expert report was that M could respond to touch and did so.

She added: “There is clear evidence of possible communication using a switch, which was quite stark and very surprising.”

She said M was medically stable and there was “no indication that she is nearing the end of her life”.

It will be argued that she has “awareness” and the application will be “strongly opposed”.

Most cases in the Court of Protection, which deals with sensitive matters concerning society’s most vulnerable people, are heard in private.

But Mr Justice Baker said that, because of the public importance of the issues in this case, it could be reported on an anonymised basis.

Sir Terry Pratchett To Make Right-To-Die Documentary For The BBC

April 15, 2011

British author Sir Terry Pratchett is to participate in a BBC Two documentary about assisted suicide, it has been announced.

The Discworld writer will travel to a Dignitas clinic in Switzerland with a 71-year-old who suffers from motor neurone disease.

Sir Terry, who was diagnosed with a form of Alzheimer’s in 2008, said he was “a firm believer in assisted death” and wanted to learn more about it.

The film will be shown in the summer.

Dignitas, the Swiss group which assists terminally ill people to end their own lives, was founded in 1998. Many people from countries where assisted suicide is illegal travel to its clinic to die.

In the UK, assisting suicide is illegal and carries a jail term of up to 14 years.

But more than 100 Britons have gone to Dignitas and no family members or friends have yet been prosecuted.

“I believe everybody possessed of a debilitating and incurable disease should be allowed to pick the hour of their death,” Sir Terry said.

“And I wanted to know more about Dignitas in case I ever wanted to go there myself.”

Last year, a UK inquiry into the issue of assisted dying was launched with funding from Sir Terry.

The BBC’s commissioning editor for documentaries, Charlotte Moore, said: “Assisted death is an important topic of debate in the UK, and this is a chance for the BBC Two audience to follow Sir Terry as he wrestles with the difficult issues that many across Britain are also faced with.”

The documentary will also see the writer explore how different European countries deal with the issue.

It is not the first time assisted suicide has been addressed by a television programme.

In 2008, a Sky documentary called Right To Die? showed 59-year-old Craig Ewert, who also suffered from motor neurone disease, end his life.

Ouch Interview Paul Maynard

April 15, 2011

BBC Ouch have interviewed Paul Maynard, the MP who has CP. He talks about a trip to Downing Street and being mocked in the House of Commons.

JustGiving Page Of The Week: Holly Clough

April 15, 2011

Holly Clough and her friend, Lianne, are fundraising for Dogs For The Disabled. Holly’s is this week’s JustGiving Page Of The Week. Good luck to them!

Re-Framing Disability

April 14, 2011

If the history of disability/disabled people is your area of interest, you may like this review of Re-Framing Disability, an exhibition featuring portraits of disabled people from the past 400 years.  The portraits are owned by the Royal College Of Physicians, where the exhibition will be until 8 July. Thanks to BBC Ouch for the info.

Frankie Boyle Named ‘Most Offensive Comic’

April 14, 2011

I, for one, am not surprised, and very pleased, to read this. I think it’s progress!

Comedians have named Frankie Boyle the nation’s most offensive stand-up.

Frankie, who has caused a storm with jokes about Katie Price’s disabled son Harvey on his Channel 4 sketch show, came top in a study carried out with over 100 British-based stand-up acts.

The Scottish star of TV series Tramadol Nights was followed by US-born comic and magician Jerry Sadowitz, Jim Davidson and Roy Chubby Brown in the list.

Daniel Kitson, who rarely appears on television, beat big names such as Michael McIntyre to be crowned the favourite “comedian’s comedian”.

Billy Connolly was second, followed by comedian and actor Eddie Izzard and Tommy Cooper, who died after collapsing on stage from a heart attack at a live TV performance in 1984.

Liverpool was branded the toughest city to perform stand-up in, followed by Nottingham.

The Midlands was named the region of the UK that is most receptive to stand-up in the poll commissioned by TV channel Dave.

The north-west of England is the region with the biggest reputation for heckling, according to the survey.

Just under a third of comics (31%) said they had been so nervous before taking to the stage that they were physically sick beforehand. Over half, 55%, said that their jokes had been stolen.

The survey involved interviews with 112 comedians, including Bill Bailey, Jo Brand, Tim Vine, Dave Gorman, Rhod Gilbert, Mark Watson, Jason Byrne and Greg Davies, and was commissioned by TV channel Dave to mark the new series Dave’s One Night Stand.

Kay Gilderdale On Woman’s Hour

April 14, 2011

Kay Gilderdale, mother of Lynn, is on BBC Woman’s Hour today, talking about Lynn and her new autobiography, One Last Goodbye. I’m listening live here right now. If you miss that, you’ll be able to listen on iPlayer here later today. Comments welcome, as always.

Catherine Zeta-Jones Reveals Bipolar Disorder

April 14, 2011

Catherine Zeta Jones has received treatment for bipolar disorder after dealing with the stress of her husband’s battle with throat cancer.

Zeta Jones, 41, made a decision to check into a “mental health facility” for a brief stay, said her publicist.

Michael Douglas, who was diagnosed last year, said in January his tumour had gone and he was beating the disease.

Last September, Zeta Jones said she was “furious” that doctors failed to detect the cancer earlier.

Bipolar, also known as manic depression, causes severe mood swings, that usually last several weeks or months.

Zeta Jones’s publicist Cece Yorke said the actress sought treatment for the condition following the stress of her husband’s cancer fight.

“After dealing with the stress of the past year, Catherine made the decision to check in to a mental health facility for a brief stay to treat her bipolar II disorder,” said Yorke.

“She’s feeling great and looking forward to starting work this week on her two upcoming films.”

It is unclear when Zeta Jones, who is from Swansea, was diagnosed with bipolar disorder or where she received treatment.

Shortly after her husband was diagnosed with cancer, the actress revealed she was “furious” that doctors failed to detect the disease earlier.

In an interview with People magazine last September, she said: “He sought every option and nothing was found. I knew something was up. He knew something was up.”

“It makes me furious they didn’t detect it earlier,” she added.

The star, who won an Oscar for her role in Chicago, was made a CBE by the Prince of Wales at Buckingham Palace in February.

Kay Gilderdale On Woman’s Hour Tomorrow

April 13, 2011

http://twitter.com/#!/BBCWomansHour/status/58192316317446144

Scope Live Blog: Campaign Tips

April 13, 2011

Scope are holding a Live Blog as I type, giving tips on campaigning to Disability Rights campaigners. Please click here to read or participate in the discussion.