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Blackpool South MP On DLA At PMQs Yesterday

March 17, 2011

Many disabled people in Blackpool could be left “marooned” in care homes if plans to change the Disability Living Allowance go ahead, an MP claims.

The £49.85 a week mobility part of the allowance for working-age people in care, which goes towards trips out, will be cut in the Welfare Reform Bill.

Labour MP Blackpool South Gordon Marsden raised the issue at Prime Minister’s Questions earlier.

David Cameron said the changes would stop people being “double counted”.

‘Not hospital patients’

Mr Marsden said: “Blackpool has above average numbers of residential homes for disabled people, including hundreds of my constituents.”

He said the plans “potentially maroons” those constituents in the care homes, as they were not ill.

Mr Marsden said the disabled people should not be compared to patients in hospitals.

But Mr Cameron replied: “I would urge him to look carefully at the bill and look at our plans.

“What he will see is that in the reform of the DLA, as we change that benefit and improve that benefit, we are putting the question of mobility into that reform.

“What we will do is avoid the double counting that has happened in the past.”

Louis Peers

March 17, 2011

The family of a boy who suffered severe brain damage due to hospital failures have received a £7m settlement.

Louis Peers, 11, from Solihull, has cerebral palsy as a result of mistakes made after his birth at Birmingham’s Heartlands Hospital on 6 December 1999.

Heart of England Foundation NHS Trust had previously admitted liability for failings in Louis’s care.

On Wednesday, the High Court in Birmingham approved a lump sum of £3m, plus annual payments for his care.

Not feeding properly

A hospital spokesperson said: “We are very sorry that the level of care Louis received in 1999 did not meet the highest of standards.

“We hope that the compensation received will go some way to assist with Louis’s care and improve his quality of life.”

Louis Peers was born at full term by caesarean section at Heartlands Hospital.

Julie Lewis, a medical law expert with Irwin Mitchell Solicitors, who represented the family, said staff had failed for three days to investigate why Louis was not feeding properly and becoming increasingly sleepy and floppy.

When a glucose test was taken on 9 December, his blood sugar levels were revealed to have dropped dangerously low and he was also suffering from hypothermia.

He was transferred to the neonatal unit where he was put on a dextrose drip. But by this time the brain damage he had suffered was irreversible.

‘Real struggle’

Ms Lewis said Louis now suffered significant physical and mental impairment.

The money has allowed Louis’s parents Christine and Karl Peers to move into a specially adapted home with Louis and their three other children.

Mrs Peers said: “The last 11 years have been a real struggle.

“I feel really let down by the midwives who were supposed to take care of Louis. I trusted them and their mistakes are something which my son now has to live with for the rest of his life.”

Mother Describes Son’s Severe ME To The BBC

March 17, 2011

Diana Newcombe’s 20-year-old son Oliver went from being a fit and active student to becoming bed-bound and unable to speak after having the flu in 2009.

Myalgic encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), is characterised by prolonged fatigue associated with symptoms such as muscle pain, headaches and sore joints.

The NHS watchdog NICE has produced guidelines on how to treat it, but some argue that it often still goes undetected.

Speaking to the BBC, Mrs Newcombe says Oliver was initially told he had depression.

Disabled Woman Jailed For 12 Years For Fire Deaths

March 16, 2011

I have no words.

A disabled woman has been jailed for 12 years for the manslaughter of a mother and daughter in a fire.

Bola Ejifunmilayo, 29, and her daughter Fiyin, three, died at Fishermead Boulevard, Milton Keynes, in September.

Barbara Zhanje, 48, of Kettering, Northants, had denied two counts of manslaughter at St Albans Crown Court.

She started the fire to get back at an ex-boyfriend in a spiteful act that led to the deaths of two innocent people, said Judge Stephen Gullick.

Angry over ex-boyfriend

The court heard Zhanje set fire to a home in Fishermead where her ex-boyfriend lived.

Ms Ejifunmilayo and Fiyin lived in a flat upstairs and could not escape the flames.

Wheelchair-bound Zhanje was found guilty of manslaughter and arson with intent by a majority of 10-to-2.

The jury heard the fire ripped through the first and second floors of the house in the early hours of 5 September last year.

The two victims from Nigeria, who had lived in a second-floor room for less than a month, died from smoke inhalation.

Their bodies were not found until the following day because firefighters and investigators wrongly believed all the seven people who lived at the house were accounted for.

Zhanje, of Mill Road, came to the UK from Zimbabwe nine years ago and had worked with children with learning difficulties.

In March last year she was involved in a road accident in which she broke her pelvis, femur and elbow and was left wheelchair bound.

She was angry at not being able to contact her former boyfriend Ananias Jumbe who was with his new girlfriend in Leeds.

After drinking half a bottle of wine at a friend’s house in Milton Keynes she went to Mr Jumbe’s home.

Her banging on the door just after midnight woke a resident who was told by Zhanje, “I just want to break the door and get my things because he’s my partner and he’s cheating on me”.

Less than two hours later one of the other people in the house was woken by the smell of smoke and saw flames coming up the stairs from the first floor where Jumbe lived.

She dialled 999 and a resident on the ground floor got out after hearing someone shout fire.

No remorse expressed

Prosecutor Ann Evans said firefighters were at the scene in 10 minutes and the resident from the other second-floor room, Muni Elmi, was taken to safety by ladders.

Forensic evidence matched glass from Jumbe’s door to glass fragments found on Zhanje’s clothes.

Defence barrister Niall Quinn QC said Zhanje had been “self-absorbed” that night.

Judge Gullick said: “It is clear you were determined to find out what he was up to.

“When you failed, you decided to teach him a lesson. It was a spiteful act.

“You caused two innocent people, one a three year old child, to lose their lives.

“You took no steps to alert anyone to what you had done. This is not a case where you have expressed remorse.”

Julie McElroy Goes The Distance For Cerebral Palsy

March 16, 2011

I have just recieved the below by email from Julie McElroy.

Julie McElory is at it again. Diagnosed with cerebral palsy at birth, Julie has overcome countless obstacles. After having crossed the Amazon Basin as part of the BBC’s Beyond Boundaries television series and helping to train and organise the first wheelchair climb of Ben Nevis, Julie is planning an 89km cycle ride form Edinburgh to Glasgow. Her previous adventures have helped to raise millions for charities across the UK. This ride is specifically to raise awareness and money for Bobath Scotland Children’s Cerebral Palsy Therapy Centre in Glasgow. Having used the Bobath Scotland Centre in her youth, Julie realises that, “In its 16-year history, Bobath Scotland has helped hundreds of children to realise their potential and live life to the full, as I have always done.”

 

Edinburgh to Glasgow is to be the first leg of ‘Julie’s Bobath Challenge.’ Her route will be through Broxburn, Linlithgow, Polmont, Falkirk, Bonnybridge and Kirkintilloch ending in Port Dundas, Glasgow where Bobath Centre is located. The route can be difficult for even an experienced and able-bodied cyclist, but Julie is determined to push the boundaries of her own abilities. Her ride will take place on the 31 March and the goal is to finish the same day. The bicycle was donated by Mike Downie co-owner of the Bike Chain in Edinburgh and has been fitted with mirrors to help Julie judge traffic as her hearing impairment limits her ability to do this.

Rani Kaur- An Asian Woman With MS

March 16, 2011

I’ve just discovered the blog of an Asian woman called Priya Mulji. Priya’s latest post is an interview with another Asian woman, Rani Kaur, who she describes as ‘a business woman, developer, massive charity volunteer, runs the Bhangra group Sahara, is stunningly beautiful,  has a to die for Yorkshire accent and she could one day potentially take over the world. Just a small point to note: she has Multiple Sclerosis.’

Rani Kaur runs a support organisation called, appropriately, Asians With MS. If this interests you, you can ‘like’ the Facebook Page or follow the Twitter account for more information.

Personally, I’m inspired by Rani Kaur’s attitude to life, love and DisAbility. She sounds well and truly DisAbled and has my best wishes.

Many thanks to Society Guardian for the info.



 

Taxi Firms Break DDA Over Guide Dogs, Says Guide Dog Owner

March 16, 2011

A blind woman claims some taxi firms are constantly breaking the law by charging for her guide dog.

Two firms in Peterborough have been fined after making Yvonne Saint-John pay extra for her dog Qwade, in violation of the Disability Discrimination Act.

But Ms Saint -John says her research suggests the problem is more widespread.

UK Experts Predict Rise In Cause Of Blindness

March 16, 2011

UK experts are predicting a steep rise in the rate of an eye condition that is already a leading cause of blindness.

Age-related macular degeneration (AMD) affects more than 600,000 Britons.

But an ageing population means this figure could rise by a quarter to nearly 756,000 by 2010, according to recent research in the British Journal of Ophthalmology.

Yet half of UK adults have never heard of AMD, a poll by the College of Optometrists suggests.

The survey of over 4,000 also found many people were unaware that a poor diet and smoking increases the risk of AMD.

AMD affects a tiny part of the retina at the back of the eye that controls central vision.

This makes it difficult for the individual to see fine detail, such as recognising people’s faces, reading or watching television.

There are two forms of AMD, wet and dry.

There is currently no cure for either forms but early diagnosis and treatment of wet AMD – which develops rapidly – is crucial in order to prevent vision loss.

Dry AMD, which is more common, develops gradually and is not treatable but there are services available to support people with this condition.

Dr Susan Blakeney, optometric adviser to the College of Optometrists said: “Age-related macular degeneration is the biggest single cause of sight loss in the UK so it is concerning that so few people are aware of it and its symptoms.

“By making people more aware of AMD and the impact that it can have, we hope to increase detection and people seeking access to support services.”

While AMD is a condition associated with older age, there are steps you can take earlier in life to minimise your risk.

Research suggests that a diet rich in leafy green vegetables, brightly coloured fruits and vegetables and oily fish may help prevent AMD.

Smoking also doubles your chances of developing the condition so quitting can also reduce your risk.

Dr Blakeney said: “I also recommend to patients that they regularly check the vision in each eye separately so that they can spot early changes.

“It is easy to do and only takes a couple of seconds, yet it could save your sight. You can do it by looking at a bit of graph paper and checking if you see any distortion or blank spots.”

The Skoog

March 16, 2011

The skoog is a new invention that makes music accessible to disabled children. I think it looks a bit like a young child’s toy from 20 years ago, but anything that makes the mainstream world accessible is a piece of progress in my mind. I thank its inventors, a team from Edinburgh University. Click here to see the skoog in action.

Patricia Martin

March 15, 2011

Of course not being able to speak is frustrating. I don’t think that should be accepted as any excuse for committing crimes though, do you, readers?

A deaf woman has been given a 15-month sentence for stabbing a man while on bail for attacking a police officer with a knife.

Patricia Martin, 48, of Linwood, left Andrew Finnegan severely injured after the attack in her home in October 2010.

Martin, who is also unable to speak, was jailed for 32 months in November for the attack on the police officer.

Paisley Sheriff Court heard both crimes were committed out of her frustration at being unable to communicate.

The two sentences are to be be served consecutively.

Martin stabbed Mr Finnegan in the back and chest when he got involved in a fight with her partner during a drinking session at her house on Muirhead Drive.

Solicitor Jonathan Manson previously told the court the original offence was committed when police went to her door and she lashed out in frustration at not being able to communicate properly.

The police officer was not seriously injured.

Sheriff David Pender said: “None of us can really understand the frustrations of being unable to communicate with those with whom you come into contact on a daily basis.

“While there can be no doubt that in normal circumstances the sentence which would be appropriate for an offence such as this – particularly as it was committed while you were on bail for a similar offence – would be substantial, it seems to me that would not be in the public interest.”

The court heard she would have been sent to Cornton Vale prison if the latest jail term imposed had exceeded 16 months.

Mr Manson said Martin, who is currently serving her sentence in Greenock prison, felt isolated and vulnerable when she was on remand at Cornton Vale as no members of staff used sign language and she was unable to communicate with anyone.

Martin was also given a seven-month supervised release order.

Gang Tip Former Serviceman Out Of Wheelchair

March 15, 2011

A former serviceman has been treated for head injuries after being tipped out of his wheelchair in an attack in Cheltenham.

The 52-year-old, from Peterborough, was approached by four people on the Honeybourne Line cycle path near Waitrose at about 2100 GMT last Friday.

They pushed him for a distance then tipped him over.

Police described it as an “appalling, unprovoked attack” and have appealed for witnesses.

Pc Mark Sallis, of Gloucestershire Police, said: “Fortunately, he has not suffered serious injuries but has obviously been left extremely shaken by the experience.

“This is an ex-service man who has fought for his country and as a result has to use a wheelchair.

“Those responsible have targeted this man who was unable to defend himself.”

Special School Staff Reinstated After Inquiry

March 15, 2011

Three members of staff at a special school in Kent have been reinstated after “serious allegations” against them were found to be unproven.

Two teachers and one teaching assistant were suspended from Wyvern School, Ashford, in November following claims by a parent of a pupil.

Kent County Council said the allegations were “thoroughly investigated” and found to be unproven.

It said the inquiry also found the school could improve its communication.

The investigation was carried out under the terms of the Kent and Medway Safeguarding Children Procedures.

‘Make further improvements’

A letter sent to parents stated: “In November 2010 you were advised that allegations had been made about the school and some members of its staff. This has also been reported by the local media.

“The allegations have been thoroughly investigated by agencies external to the school and found to be unproven.

“The investigation has identified some areas where the school can continue to make further improvements, such as communication with parents and other services that support children in the school.

“The school is committed to making these improvements.”

Pet Cat Senses Owner’s Epileptic Seizures

March 15, 2011

A Dorset family’s pet cat is believed to have saved the life of her epileptic owner who stopped breathing.

Lilly can sense when 19-year-old Nathan Cooper, from Bournemouth, is about to have a seizure and alerts his mother Tracey.

When Mr Cooper stopped breathing during a particularly bad seizure, Lilly kept licking his mouth until he drew breath.

Her early warnings also mean the family can move furniture to prevent Mr Cooper from injuring himself.

Mrs Cooper said: “Lilly has a very close bond with Nathan, he didn’t believe it when I told him what she was doing.

“After one fit, he stopped breathing and Lilly started licking his mouth and somehow it kick-started his breathing.

“When he came round, from when she licked him into breathing, and Lilly was right there, he just couldn’t believe it.

“I never knew a cat could do this.

“It’s made the world of difference to Nathan’s life and ours.

“Being able to get to him early makes a huge difference.”

Hospital staff have told the family that animals can sometimes detect impending epileptic fits.

The cat recently beat 6,000 other pets to win the Top Cat prize in a competition called My Pet Superstar.

Guardian Letters On The SEN Green Paper

March 14, 2011

For anyone who’s interested, I’m linking to today’s Guardian letters page. The letters are on the SEN Green Paper that was published last week.

Learning Disabled Couple Criticise Social Services After Being Forced To Give Up Children

March 14, 2011

This is part of the debate on DisAbility And Parenting.

A married couple with learning disabilities say they have been let down by social services and the judicial system after they were forced to put their children up for adoption.

The couple, who have since been allowed to keep another child, say their family has been destroyed.

The charity Mencap NI said such cases are a growing problem. However the health trust concerned said in most cases it seeks to support families to provide good care for their children while ensuring they remain safe.

The BBC have changed the couples names to protect their identity and privacy.

Several years ago, the health trust challenged Mary and Peter’s ability to be parents and their children were removed and placed for adoption.

They have since won the right to see them – but only twice a year.

“It just breaks my heart, I miss them and I want to have them,” Mary said. “Those visits are really hard – it’s just so hard having to leave them.”

The couple both spent a long time in residential care in Northern Ireland. Their past means that social services are involved in their married life.

While the couple agree they have a “mild learning disability” they believe this does not affect their ability to be good parents.

Peter says he regards himself as a good father who knows what is best for his children.

“I look after my family in a good way, pay the bills, run my home, feed the baby, do what any other parent does,” he said.

“When I hear other stories on the news about what other parents do to their children, I wonder why they are looking at my family, instead they should be taking more interest in what others are doing.”

Approximately eight years ago, the couple’s health trust questioned their ability to look after their children and eventually sent them to a centre in England where an assessment described them as being “severely mentally handicapped”.

Reports from psychologists said that the couple found it difficult to “accept advice and sustain levels of attention.”

When the care proceedings reached court, the judge in the case accepted the parents were loving and caring, but he found parts of the doctors’ evidence “positively chilling.”

But the couple dispute some of what the judge was told.

While they acknowledge they have a mild learning disability, they say how they sound and act does not prevent them from being good parents.

Too late

While social services did try to help the family, the parents were not always co-operative – something which later weighed against them in court.

However Peter says it was not all their fault.

“They talked over us as if we were invisible and not to us. It was hard to take in what they were doing, we weren’t even told we needed legal advice until it was too late. “

Mary explained: “It was very hard going through all that pain, thinking you were going to get the children back and then you don’t get them back and they are put up for adoption.”

Despite having some of their children removed, the couple are being allowed to keep their latest baby.

They say it’s down to the support they received from Thorndale family support centre, a specialist childcare and parenting facility run by the Salvation Army.

Based in Belfast, it is the only one of its kind in Ireland. Currently over 50% of its residents have learning disabilities and it receives referrals from social services across the country.

Director Dawn Richardson said it was important to make sure that no parent is discriminated against.

“We feel parents with a learning disability can potentially make very good parents,” she said.

The BBC has seen a copy of the assessment carried out by the Thorndale team.

In contrast to reports by social workers eight years ago – Thorndale found the couple “embraced the opportunity to be assessed and demonstrated their ability to handle and interact with their baby appropriately.”

For Mary it was a positive learning experience which helped in their fight to keep their baby. She says it is a pity the service wasn’t made available to them years ago.

In a statement the health trust concerned said that in most cases, following an assessment of the individual cases, it seeks to provide support services to families so they can provide good care for their children while ensuring they remain safe.

“This will often involve difficult and balanced decisions which must be taken in order to support parents coping in a range of difficult circumstances but also to ensure that the needs of children continue to be met,” the statement added.

However Maureen Piggot, director of Mencap NI, says not enough support is being offered to people with learning disabilities who are trying to keep their children rather than having them placed in care.

She said that while the protection of children is paramount, adults with learning disabilities must be offered the same degree of protection and support from social services.

“This is an increasingly worrying development where we are being contacted by parents who have a moderate to mild learning disability but who are finding that their ability to be parents is being challenged by Social Services and the court system,” she said.

Time Limiting ESA Will Cost Working Families Everything, Says Sue Marsh

March 14, 2011

My fellow blogger and campaigner Sue Marsh wants the word to be spread about the effects of time-limiting ESA to one year. This is a very moving story, and I am more than happy to help by linking to it.

New ‘Messaging’ Clue For MS And Other Brain Disorders

March 14, 2011

Scientists say they have discovered a “maintenance” protein that helps keep nerve fibres that transmit messages in the brain operating smoothly.

The University of Edinburgh team says the finding could improve understanding of disorders such as epilepsy, dementia, MS and stroke.

In such neurodegenerative disorders, electrical impulses from the brain are disrupted.

This leads to an inability to control movement, and muscles wasting away.

The brain works like an electrical circuit, sending impulses along nerve fibres in the same way that current is sent through wires.

These fibres can measure up to a metre, but the area covered by the segment of nerve that controls transmission of messages is no bigger than the width of a human hair.

Signal failure

The scientists discovered that the protein Nfasc186 is crucial for maintaining the health and function of the segment of nerve fibres – called the axon initial segment (AIS) – that controls transmission of messages within the brain.

They found that the AIS and the protein within it are important in ensuring the nerve impulse has the right properties to convey the message as it should.

Professor Peter Brophy, director of the University of Edinburgh’s Centre for Neuroregeneration, said: “Knowing more about how signals in the brain work will help us better understand neurodegenerative disorders and why, when these illnesses strike, the brain can no longer send signals to parts of the body.”

Dr Matthew Nolan, of the university’s Centre for Integrative Physiology, said: “At any moment tens of thousands of electrical impulses are transmitting messages between nerve cells in our brains.

“Identifying proteins that are critical for the precise initiation of these impulses will help unravel the complexities of how brains work and may lead to new insights into how brains evolved.”

The work was funded by the Wellcome Trust and the Medical Research Council.

New Wing For Blind Servicemen’s Centre In Wales

March 14, 2011

A rehabilitation centre for blind servicemen and women has received a £2.6m boost thanks to the Royal British Legion.

St Dunstan’s in Llandudno has used these funds to create a new high dependency unit for serving and ex-servicemen at the former North Wales Medical Centre.

It is named the Poppy Wing, in recognition of its benefactors.

It will have with 10 beds, a gym, arts and crafts room and training kitchen.

The wing will look to help those from the armed services from Wales and the north west of England who have lost their sight through injury, illness or old age to gain independence.

Robert Leader, chief executive of St Dunstan’s, said: “The unit is essential to ensure St Dunstan’s can continue in its mission to enable blind ex-service personnel to live independent, full lives.

‘Fantastic work’

“This is a wonderful example of organisations working together to ensure that our brave troops receive the help they urgently need to cope with the challenges of blindness and other injuries, especially at a time when men and women are returning from current conflict wounded every day.”

Royal British Legion director general, Chris Simpkins, said: “The legion has taken care of serving and ex-service people and their families for 90 years and continue to stand shoulder to shoulder with all who serve.

“It’s an honour to support the fantastic work of St Dunstan’s through our external grants and we’re delighted that the new unit will be named the Poppy Wing, in recognition of our donation.”

The Poppy Wing is part of an on-going renovation and expansion project to provide further rehabilitation and training and will be ready for use later this year.

Please Help Stepping Stones DS Get Some Votes!

March 12, 2011

http://twitter.com/#!/sharonkitten/status/46340257272184832

Of course I can help. Readers, I’ve just voted, and I hope you will too.

A Special School’s View Of The SEN Proposals

March 12, 2011

This week’s government proposals on special educational needs call for a simpler, less adversarial system to help parents secure support for their children. Education specialist Mike Baker hears one special school’s reaction to the proposals.

To understand the significance of getting it right on special needs education – particularly for children requiring the most intense support – you need only spend a day at Treloar’s school and college in Hampshire.

Providing for young people with cerebral palsy, spina bifida and muscular dystrophy, this independent residential institution offers highly specialist – but inevitably expensive – provision.

For the children who come here, Treloar’s is usually a life-changing experience.

But because the costs are so high, and the procedures are often so bureaucratic and complex, it’s not always a smooth process.

Like many specialist providers, Treloar’s is an independent charity funded from the fees paid by the state, as part of pupils’ special needs statements.

Graham Jowett, a former principal of Treloar College, who now acts as its consultant, believes the government’s Green Paper published this week shows the government is “moving broadly in the right direction”.

‘Bureaucratic and bewildering’

Treloar’s has welcomed the Green Paper’s view that the process of assessing children’s special needs is too “bureaucratic, bewildering and adversarial”.

The document proposes replacing the current system of statements – documents detailing what help a child requires – with new “Education, Health and Care Plans”.

Mr Jowett says the students who come to Treloar’s need intensive provision including, for many, full-time residential accommodation.

That makes this sort of special needs provision “very expensive”, he says, with the result that some local authorities “view us with suspicion” and families are often “at loggerheads” with the authorities over the cost.

Treloar School educates about 80 children aged nine to 16, while the adjoining Treloar College accommodates 167 students aged 16+.

About 90% of students at the college are in wheelchairs, which they steer around visitors with great speed and adroitness.

An impressive workshop provides a “pit-stop” for repairs to wheelchairs that have been driven too hard or which need to be ingeniously customised to students’ needs.

In the residential accommodation, the bedrooms are equipped with hoists and other specialist equipment designed to allow students to be as independent as possible.

Students’ needs vary, but fees can run to tens of thousands of pounds a year.

Inclusion debate

For Treloar’s, one of the frustrations of the current system is that many students arrive with statements of special needs that were made when the children were much younger.

This means the statements may either over-estimate or under-estimate a student’s needs.

The Green Paper recognises the problem, stipulating that the proposed new care plans should be “regularly reviewed to reflect changing needs”.

The government is also seeking to link up different agencies better, acknowledging that families often have to “negotiate different elements of a child’s support separately”.

It is an issue that Mr Jowett also points to, saying statements often tend to look only at children’s educational needs while failing to take account of therapeutic and holistic needs.

But he is less certain about the Green Paper’s proposal that by 2014, parents will have a legal right to manage the funding for the support their children need.

Not all parents will want to take this up, he says, as experience shows many are “daunted by managing their own educational finances”.

Mr Jowett is, however, delighted that the Green Paper promises to end the “bias towards inclusion”.

Much of the debate over special needs has been over the policy of inclusion, which involves attempting to keep children in mainstream school wherever possible.

Its proponents believe it equips children with special needs better for mainstream society and helps improve their integration into it – also building understanding among the children who learn alongside them.

But special needs vary widely and there have been concerns over whether the policy is pushing some children into difficult environments where mainstream teachers are not able to provide effective support.

“The constant message is that inclusion is better, even though 80% of disabled children report being bullied in mainstream school – our pupils say how good it is to be in the same boat as others around them,” says Mr Jowett.

One former student told him: “It’s great to be in a place where you don’t have to explain your disability, or have a grown-up everyone thinks is your mum following you around carrying your laptop.”

Costs pressure

But as a non-mainstream provider, is Treloar’s simply defending its own interests by opposing inclusion?

Amanda Quincey, principal of Treloar College, insists that “where students do not need our services we are honest and don’t offer a placement” because they could stay in mainstream schools with the right support.

However, she says the real tensions arise because of the current assessment and funding system.

“The people we are dealing with are under pressure to reduce costs and are asking us to reduce what we do,” she says.

And concerns over funding are shared by local authorities.

While the Local Government Association says some councils have “made great strides” in improving provision, it too stresses that the government must ensure “sufficient funding” for future special educational needs provision in a climate of cuts.

The government says it plans to commit more money, but has not yet given details.

Mr Jowett too is worried about “whether the funding will be there” for the changes.

And the future of the system, he says, is particularly important because advances in medical care mean that the number of children with very complex special needs, like those at Treloar’s, is increasing.

Tsunamis And Earthquakes And Disability

March 11, 2011

I woke up to news of the massive earthquake and tsunami that hit Japan today. There are now tsunami alerts in several nearby countries including Hawaii and Australia. It seems somehow wrong not to write a short post about the event. I’d just like to say that my thoughts and best wishes are with all who have been personally affected by the disaster. This being a disability blog, I would like to mention particularly any disabled people in the region, or anyone who may become disabled as a result of the disaster.

For anyone who is concerned about family and friends, the Foreign Office has set up a helpline: 020 7008 0000.

The Guide Dog’s Guide Dog

March 11, 2011

A short and sweet story to make you smile, readers. Happy Friday!

A blind man and his dog, which has also lost its sight, are both being helped by a new guide dog.

Graham Waspe of Stowmarket in Suffolk, was helped by guide dog Edward for several years until the Labrador had to have his eyes removed due to cataracts.

Edward, who is otherwise healthy, still lives with Mr Waspe as a pet and is led around by his successor, Opal.

“They’ve become quite good friends and I think Edward is happier for having another dog around,” Mr Waspe said.

The 60-year-old, who lost one eye and has limited vision in the other, said Edward has coped amazingly well with his loss of sight, partly due to his awareness of “left” and “right” commands from his guide dog training.

He said he found it “very very traumatic” that Edward would not understand what had happened following the surgery to remove his eyes.

The cataracts he had developed were inoperable.

JustGiving Page Of The Week: Karen Wild

March 11, 2011

This week’s JustGiving Page Of The Week goes to Karen Wild, who is fundraising for Cancer And Bio Detection Dogs. Best wishes Karen!

Junrey Balawing

March 10, 2011

MEET Junrey Balawing, the Filipino who is about to become the world’s smallest man – and a huge star.

At just 22 INCHES high, the 17-year-old is tinier than a one-year-old.

When he turns 18 on June 12, he will take the title – smashing five inches off the current record.

The titchy teen has not grown since his first birthday, struggles to walk and cannot stand up for long.

But he beams with pride when talking about his likely world record.

He said: “If I were the smallest man in the world, it would be very cool.”

Junrey lives with his parents and three younger – but taller – siblings in a village in a remote region of the Phillipines’ Zamboanga del Norte province.

He has to stay at home with his mum, Concepcion, while his sisters Jaycel, 13, and Jeanritch, six, and 11-year-old brother Jay-art go to school.

Concepcion, 35, says: “He needs my care every minute of every day. Junrey can only walk with some help and he can’t stand for too long because he’s in too much pain.”

His parents carry him around much of the time. Blacksmith dad Reynaldo, 37, works away for most of the week but when he is home Junrey enjoys sitting on his shoulders and going for a wander in the village.

Concepcion noticed her son’s growth was stunted as he neared his second birthday.

She said: “He was always sick and we noticed he wasn’t growing so we took him to see a doctor but they were baffled.”

When Junrey was 12 the same doctor advised the family to give him vitamins – but they could not afford them.

Despite his size, Junrey has a healthy appetite, tucking in to chunks of breads and corn. His fading green and white birth certificate – proving he was born in 1993 – takes pride of place in the family home.

He has learnt to write and draw and, when he can, he helps out at the family’s basic yet comfortable farmhouse, feeding their chicken.

Concepcion added: “I would love to be able to work while my other children are at school but I can’t leave Junrey.

“But he loves it when I tell him he’s the smallest man in the world, he just smiles with pride.”

The current title holder is Khagendra Thapa Magar, of Nepal, who is 26.4in tall.

Even before winning the record, Khagendra, born in a remote village, had become a household name on the Indian subcontinent.

He turned 18 in October, taking the title from 27in Edward Nino Hernandez – who had only been awarded it eight days before.

The battle for the title had begun after the previous record-holder He Pingping from China died of a heart attack aged 21 in March last year.

David Cameron Backs Accessible Video Game Centre

March 10, 2011

This post from the Guardian Games Blog says that David Cameron is backing a new centre in his constituency at which severely disabled people can access video games and computers. That’s great. Now if only he would back the existence of DLA, he’d be perfect.

Disabled Children Wait Up To A Year For Wheelchairs

March 10, 2011

When I first heard a story like this, it hit me very hard. But since I started blogging, I’ve heard so many similar stories that I am no longer surprised. It’s still a sad situation but, unfortunately, I now realise it’s nothing more than another reason why councils are crazy!

Disabled youngsters are having to wait up to a year for wheelchairs with the result they have outgrown them by the time they arrive, it emerged today.

Often, they then face a hospital operation because of the effect an uncomfortable chair can have on their muscles.

The story emerged today as the Government announced plans for a radical overhaul in the way children with special needs are assessed.

Out will go the controversial statements which can take months to compile before agreeing on measures to support an individual child.

In its place will come a single assessment process which will detail a child’s educational and health needs.

Christine Lenehan, director of the Council for Disabled Children, said that – under current procedures – children could face as many as 32 assessments by the time they reach the age of eight.

“Every time you’re assessed you have to tell your story,” she said. “If you’re the parent of a disabled child so telling your story hurts.”

She added: “We have have had children waiting up to six months or even a year for their wheelchair.

“Some of the services for wheelchairs are incredibly inefficient.

“A child can’t go to school and can be in pain while they wait. We’ve had children who have had to go into hospital because the wheelchair affects their muscle growth.”

She was speaking at the launch of a Green Paper outlining the biggest reforms to tackling special needs for at least thirty years.

“Too often the particular support that children and their families require is put in place needlessly late,” it said.

“Parents say that the system is bureaucratic, bewildering and adversarial and does not sufficiently reflect the needs of their child and their family circumstances …

“While some families deal with these challenges on top of juggling a range of support for their child, in many households the demands of everyday family life mean that parents are exhausted from having to put additional energy into getting the help their child needs.”

Under them, parents will have the right to apply to take over the running of their special school if the local authority wants to close it .

The school could then operate as one of Education Secretary Michael Gove’s flagship “free” schools.

Ministers revealed today that a number of voluntary groups and charities had expressed interest in running their own special schools.

It could lead to specialists in tackling dyslexia or autism getting state aid to run schools.

Children’s Minister Sarah Teather said: “We have heard time and time again that parents are frustrated with endless delays to getting the help their child needs and by being caught in the middle when local services don’t work together.

“The new single assessment process and plan will tackler this issue and mean that parents don’t feel they have to push to get the services they are entitled to.”

However, Andy Burnham, Labour’s education spokesman, said the Green Paper’s “”noble aims seem hopelessly out of touch with the reality on the ground”.

“Councils are laying off the specialist teams that carry out the assessments and provide the support these children need,” he added.

SEN Shakeup: BBC News Readers React

March 10, 2011

BBC News has published some reactions from parents and family members of children with SEN to the proposals in the Green Paper published yesterday.  You are, as always, welcome to share your own thoughts on this issue in the comments below.

Ethan’s New Ear

March 10, 2011

A nine-year-old boy born without his right ear has had pioneering surgery to give him a new one using cartilage from his ribs.

Ethan Giles-Bowman has a congenital condition called Goldenhar Syndrome which leaves babies with an underdeveloped face.

In Ethan’s case, it meant his right ear was no more than a small flap of fleshy lobe which he self-consciously hid by growing his hair long.

But thanks to surgeons at the London Royal Free Hospital, Ethan now has a brand new ear that he is proud to show off with a short new haircut.

Life-like replica

Ethan is one of the first children in the UK to undergo the complex surgery.

The reconstruction process begins with creating a skin pocket at the site of the ear by pulling and stretching the tissue already there.

Next, three small pieces of rib cartilage are harvested which are then carved and wired together with fine stainless steel wire to make an intricately detailed framework that resembles an ear.

This framework is then carefully inserted in the skin pocket.

If this is a success, six months later the surgeons perform another operation to free the ear from the head so that it juts out a little in the usual way.

Ethan is due to undergo this last phase of surgery this spring. Although it will not restore the lost hearing in his right ear, it will complete his ear’s look.

His mother Kathryn, from Sheffield, says although Ethan is apprehensive he is looking forward to having the operation.

“He’s keen to get it finished. It’s always been Ethan’s choice to have the surgery. He’s been the one saying he wants a new ear.”

Kathryn said the surgery has already given Ethan a new lease of confidence.

“He was quite an outgoing child until about the age of four and then he became aware about his appearance and it affected his confidence.

“When he was seven he started to grow his hair to cover it up, but now he’s got his new ear he wants to show it off and has had his hair cut shorter again.

“He wants people to see it. And he’s looking forward to being able to wear sunglasses this summer. They won’t slip off now.”

Ethan’s surgeon, Mr Greg O’Toole, said although the surgery was complex Ethan’s case was thankfully straightforward.

“We expect him to come back to see us soon so we can release the ear from the side of his head. It should give him a good cosmetic result.

“It is amazing what a difference the surgery can make to children like Ethan. It can enormously change their life and give them a much needed boost of confidence.

“Without surgery they can be extremely self-conscious and become reclusive. I’ve seen adults who have not had the corrective surgery who suffer greatly as a result and are seriously psychologically disabled.”

For more on this story, watch the One Show on BBC 1 at 19:00 on Friday 11 March.

New Papworth Trust Fundraising Campaign: £2012 By 2012

March 9, 2011

I’ve just been sent the below by Helen Sampson at Papworth Trust.

To celebrate 500 days to the London 2012 Olympic and Paralympic Games on 15 March, the disability charity Papworth Trust will launch a new fundraising campaign, £2012 by 2012.

The campaign challenges groups or individuals to raise £2012 by the launch of the Games on 27 July next year. Everyone who succeeds will get a personal thank you letter from Phil Packer MBE, Papworth Trust Envoy and founder of the British Inspiration Trust.

Great Britain wheelchair basketball player Lee Manning is backing the appeal. “With the Trust’s help, I hope I will be flying the flag for Britain at the 2012 Paralympics,” says Lee. “Papworth Trust already works with over 20,000 people each year in the East of England. With your help, every pound raised will support even more disabled people to achieve their goals.”

Whether you’re an individual or a team, there are lots of ways to try to raise £2012. The Trust has put together an A-Z of fundraising ideas at www.papworth.org.uk/2012, where you can also register your interest in taking part and find other resources to support you.

If you’d like to discuss any other 2012-themed fundraising ideas, or to sign up for £2012 by 2012, please contact Mandy Barker, Fundraising Manager, on 01480 357200 or email 2012@papworth.org.uk.

GP Report Could Mean Eviction For Disabled Man

March 9, 2011

Lee Gilliland has been told he cannot see the study that determined he lacked mental capacity, on the grounds it would cause him “substantial distress”.

But as a result of the report the state’s Official Solicitor has been appointed to represent him in a dispute over his late grandmother’s will, and he is now likely to lose his home and have to pay out an estimated £37,000 in legal bills.

Mr Gilliland, 42, is also unable to appoint a new solicitor because he has been judged mentally incapable of doing so, and has had to look for another medical professional who will declare that he does have capacity.

His case has now been taken up by an MP who believes it highlights the unfairness of the law whereby which a person can be deemed to lack mental capacity on the say-so of a single “expert” and then lose all rights to make decisions about their finances or personal welfare.

It follows a series of cases in the Court of Protection in which judges have been asked to rule on whether or not people judged to lack capacity should be banned from having sex, forced to undergo surgery against their will and even sterilised.

Related Articles

John Hemming, the Liberal Democrat MP who chairs the All Party Parliamentary Group of Family Law and the Court of Protection, said: “Mr Gilliland clearly understands the case. It does not need an expert to demonstrate that he does.

“However, on the basis of a single report written by a GP that he is not allowed to see he has been stopped from fighting his case.

“The Official Solicitor has conceded the case on the basis that makes him homeless and also means that the solicitor’s costs swallow up possibly three quarters of all the money due to Mr Gilliland.

“Mr Gilliland is physically disabled and unable to attend court. However, that does not mean that he should not have the ability to instruct a solicitor to fight the case on his behalf.”

Mr Hemming has written to the Official Solicitor to ask him to withdraw from the case, and also raised it with ministers in the Ministry of Justice.

He added: “We should be particularly concerned about the way in which assessments of mental capacity are performed. There are hundreds of people who are having their liberty constrained as a result of mental capacity assessments. However, it is clear that the way these assessments are being performed is unsafe. What worries me particularly is that almost all of these cases are held in secret which means that we have unreliable assessments without any true accountability.”

Under the Mental Capacity Act 2005, anyone judged to lack the capacity to manage their own affairs must have a “litigation friend” to act on their behalf in a civil case.

The assessment that they lack capacity can be made by a single medical professional.

If a suitable representative cannot be found, they will be represented by the Official Solicitor or a private firm of lawyers acting in his name.

In Mr Gilliland’s case, he had been dealing with a standard solicitor for a year following the death of his 97 year-old grandmother, Doris Clark, in 2008.

He was in a probate dispute with his mother over his grandmother’s will and estate, including the terraced house in Bristol where he has lived for much of his life.

But then last year he says the solicitor asked a GP, whom he had not seen for several months, to write a report on his mental capacity.

This led to the Official Solicitor being appointed to take over his case, but Mr Gilliland was prevented from seeing the contents of the report. He suffers from several mental and physical health problems, including Post Traumatic Stress Disorder, which prevent him from leaving his home.

The doctor that carried out the report has now retired but a manager at Wellspring Surgery told Mr Gilliland that she “had concerns that disclosure of her letters to the solicitor would be likely to cause you substantial distress”.

Since then, the Bristol lawyer acting on behalf of the Official Solicitor is said to have agreed that Mr Gilliland should move out of the £100,000 house and that following its sale he would receive 50 per cent of the proceeds. But he will then have to pay the solicitor £37,000 in legal fees, leaving him with an estimated £13,000 and nowhere to live.

He has tried in vain to appoint another solicitor although he has managed to get a PTSD counsellor to declare that he does have mental capacity, and hopes this new report will be accepted by a judge this month.

Mr Gilliland said: “I feel I’ve been stitched up like a kipper – this GP should never have been approached anyway.”

He said it was “immensely distressing” not knowing what had been written about him, and added: “I don’t want to go anywhere near a GP’s surgery or hospital now.”

The solicitor and NHS Bristol declined to comment.

A spokesman for the Official Solicitor said: “A protected party can assert their capacity at any time during the proceedings.

“In this case it will be for the Court to determine whether or not they require a litigation friend.”

Left Foot Forward Post On SEN Green Paper

March 9, 2011

Thanks to Left Foot Forward for publishing this post by Laurence Turner. It looks at the SEN Green Paper, which was published today.

Scope Blogpost On DLA Reform Debate

March 9, 2011

I was asked to write this blogpost for the Scope blog. It’s about the debate on DLA reforms that took place in Parliament earlier this morning. I’m sharing it here for those of you who don’t visit the Scope site.

Snow White, Prince Charming And The Seven Dwarf Sons

March 9, 2011

This original short story was a piece of University coursework. We were asked to retell a fairy tale. I’m blogging it because people on Facebook said they’d like to read it. So, here it is… don’t laugh too much please!

Fairytale Retold: Snow White, Prince Charming and the Seven Dwarf Sons.

 

By the time this story was written, Snow White was a grown-up. She had married the king’s son, who had rescued her from the forest and taken her home to be cared for by his parents after her horrible stepmother threw her out of their palace when she was seven years old. They were happily married and very much in love. However, there is no such thing as a life without problems, not even in a fairy tale.

 

Snow White had been rescued from a terrible life of child abuse at seven. She grew into a very superstitious teenager and, when the good king and queen allowed her to marry their son, she told him that she wanted seven children. After all, seven was her lucky number. When it came time to have children, though, the doctors said they would never be able to give her any at all! So Snow White and Prince Charming cried and screamed, but still no doctor in the country could give them any children.

 

Still, Snow White remembered how it had felt to be unwanted by her terrible stepmother. So she and Prince Charming phoned the social services and told them they wanted seven children, boys who could play ball games with Prince Charming.

 

***

On the other side of London, in a tiny little house, sat an ordinary mum and dad a lot like yours and mine. Like the grown-up prince and princess, they longed for seven children.

 

“One will be shy,” said the mum with a smile. “One will be happy. One will sleep all day. One will cry all night. One will fail in school. One will get a lot of colds. The last will be a Doctor.” Her husband smiled and agreed.

 

And then it happened that this mum and dad went to the doctor one day. “You have seven babies in your tummy,” the doctor told them when the mum asked him why she always felt so sick. The excited parents looked at each other and smiled. All their dreams were coming true!

 

But when the babies were born, they were too small. “Will they ever grow bigger?” asked the worried parents. “Never,” said the doctors. “They have a disease. They are dwarfs.” The parents were confused. They sat and cried for weeks. At last, they knew they could not live with these seven little boys, who could never make their mother’s dreams come true, so they gave them up for adoption.

 

***

 

Now, at last, Snow White’s prayers were answered. Social Services phoned the Prince and told him about the seven brothers. Snow White and Prince Charming talked and talked about the tiny little boys. They were good, sensitive, understanding people. They knew they could love the babies just as if they were their own. So, that Saturday afternoon, they went to meet them.

 

“One is shy,” explained the social worker. “One is always smiling. One never wakes up! One cries all night. One is always sneezing!” She looked at the sixth and her expression changed. “He will never go to school,” she said sadly. Then she looked at the seventh and smiled. “With a bit of love and support, he will be a Doctor,” she said.

 

Of course Snow White loved the babies straight away. So she and Prince Charming took them home. As they grew, Snow White found that the social worker had been right about their personalities. She named the shy boy Bashful. The one who smiled was named Happy. Their brothers were Sleepy, Grumpy, and Sneezy. The one who had been told he would never go to school, they called Dopey, and Snow White gave up her days and taught him to read and write at home. As the brothers grew, the family nicknamed the seventh Doc. They had happy childhoods, playing ball games with Prince Charming when they were not at school and watching Snow White cook when she was not giving Dopey lessons.

 

The sad day came when the boys turned 18, but, because they had been adopted by Snow White and Prince Charming, they were allowed to stay on at the palace for as long as they liked. Then, one day soon after their 18th birthday, only six dwarfs could be found. The whole family looked everywhere for Sneezy. But when they found him, he was dead. Snow White had been scared this might happen, but she knew that there was nothing that could be done.

 

So she cremated the smallest of her sons and placed his ashes in a tiny cardboard coffin, and kept it in the palace, and the whole family learnt to guard it with their lives. Until the day that Grumpy flew into a rage and accidentally knocked it off the shelf! But Snow White could not be angry. She had her memories, and she had her other six sons. So, somehow, she accepted the truth and life carried on in the palace.

 

When this story ended, Bashful was still shy, Happy was still smiling, Sleepy hadn’t woken up for a week and Grumpy was in a very bad mood! Doc had grown into a supportive and successful doctor. As his parents had taught him to do, he treated everyone equally and never turned a patient away.

 

Snow White and Prince Charming lived happily in the same palace with Dopey. Snow White was still giving him lessons. By now, he could read and write. Snow White and Prince Charming were still very much in love. Most important of all, although they had accepted by now that nothing could bring Sneezy back to them, they were all still guarding his memory with their lives.

More Disability Coverage From Left Foot Forward

March 9, 2011

Neil Coyle has written another post on the disability benefit cuts and the Welfare Reform Bill for Left Foot Forward. I thank them for their continued coverage of this very important issue, and hope some of you find the post useful.

SEN Statements To Be Scrapped

March 9, 2011

How do parents of DisAbled children feel about this? Please leave any comments below. It sounds like progress to me.

Ministers are due to unveil a major shake-up of special educational needs (SEN) support in England’s schools.

Under the proposals, education and health care plans are set to replace statements, which detail the support children with the severest level of need can expect.

The plans would be drawn up after a single assessment, rather than the numerous checks children now undergo.

A green paper detailing the proposals is due to be published on Wednesday.

The SEN system is one of the most controversial areas of England’s education system. In 2006 a Commons education committee labelled it “not fit for purpose”.

Currently, children who have a severe, multiple health or learning need or disability are supposed to be assessed by their local authority for the support that they need at school.

‘More mediation’

A statement of special educational needs is then drawn up. This relates to about 2.7% of children in England. A further 21% have a lower level of SEN which is supported directly by the school.

But parents and special needs campaigners claim councils can be unwilling to “statement” pupils, because of the legal entitlement and possible extra costs that it brings. Many face a long fight to get to the stage where a statement is drawn up.

And although statements are supposed to have regard to health needs there can be problems getting access to the services required because they are funded separately.

The whole process can lead to numerous assessments by different agencies involved with the child, such as the school, health and social services. The Council for Disabled Children estimates that a disabled child experiences 32 different assessments on average.

It can also mean delays in children getting the support that they need to learn effectively and a huge amount of stress for parents who are left to fight for what they believe their child is entitled to.

A possible new single assessment system, and accompanying education and health care plan, is to be piloted in 25 local authorities to try out how to get all the services working with the child working together.

‘Conflict of interest’

It is envisaged that instead of a child undergoing many separate assessments on separate days, everyone involved would meet together at the same time.

There have also been complaints that the organisation carrying out the assessment, the local authority, is the one who pays for the support it sets out.

“At the moment we know that parents’ confidence in the system is seriously undermined by that perceived conflict of interest,” a Department for Education spokesman said.

So ministers will also look at involving state-funded voluntary groups in co-ordinating the support packages families need.

This might mean a deaf children’s charity co-ordinating the package of need for a child who has hearing problems, for example.

More mediation will be encouraged for cases where parents and local authorities cannot agree on the support for a child, in a bid to reduce the adversarial nature of the system.

There are also plans to give children personal budgets so that their parents can control how the funding allocated to them can be spent.

Parliament Debate On DLA Reform

March 9, 2011

There was a debate in Parliament today on the DLA reforms. It started at 930 this morning, before the second reading of the Welfare Reform Bill. If you’re interested, you can watch it here, live until 11am today and recorded after that.

Council Candidate Stands Down Over Disablist Tweet

March 9, 2011

A Labour candidate will not stand in the local elections in Kent after being criticised for making jokes about blind people and anorexia sufferers.

Former mayor of Gravesham Ray Parker had been due to fight the Northfleet North ward in May.

On the Twitter website he asked whether Britain would have less litter if blind people had pointed sticks.

Disability campaigner Kevin Alderton, who lost his sight in an attack, said the comments were “despicable”.

Mr Parker also made a joke on the internet about dating an anorexic.

Susan Ringwood, chief executive of eating disorders charity Beat, said the condition killed young people and was not the matter for a light-hearted joke.

In a statement, Mr Parker said: “Following misguided comments on my Twitter page I am standing down as Labour’s candidate for Northfleet North.

“I sincerely regret and apologise for any offence these comments may have caused.”

What Will ESA Cuts Mean For Disabled People?

March 8, 2011

Neil Coyle, the Director of Policy for Disability Alliance, has written this article for Left Foot Forward. It looks at what ESA cuts will mean for disabled people, and I thought some of you may find it interesting.

DisAbled Woman’s ‘Wales By Bike’ Safety Capaign Is Backed By Sheen

March 8, 2011

Hollywood star Michael Sheen is supporting a campaign encouraging safe motorcycling on Welsh roads.

The actor, will join police officers and patrons of safety charities to launch the Wales By Bike initiative.

Sheen, who grew up in Port Talbot and is also a motorbike enthusiast, will speak at the event in Swansea Valley.

The campaign is also backed by Melanie Davies, who was paralysed after in a biking accident when she was 15, but is still passionate about motorcycles.

She said she was keen to ensure that others didn’t suffer the same fate.

Continue reading the main story

“Start Quote

One minute I was walking – I’m 6ft tall and had a promising career as a possible model – and it just all went”

End Quote Melanie Davies

“It was on 10 May 1980 – I was 15 years old and going out with a 19-year-old who I thought was God and had a massive bike,” she said.

“We’d been to Porthcawl for a day out and were driving back along Aberavon seafront and we ended up going a round a 90 degree bend with sand in the road.

“He lost control of the bike and I was flung thru the air and landed on a wall and consequently broke my back.

“One minute I was walking – I’m 6ft tall and had a promising career as a possible model – and it just all went.

“(I was) trying to come to terms with the fact that I would never walk again, that I would not be in control of my bladder and other bodily parts.”

The number of bikers killed on Welsh roads has reduced from its peak in 2007, but safety campaigners say there is still work to be done to bring down the number of motorcycle fatalities.

The Wales by Bike leaflet, now in its fifth year, has been designed to provide bikers across Wales with tips on how to be safe, common causes of accidents and training advice.

The Broken Of Britain In The Guardian!

March 8, 2011

As part of the Left Out In The Cold campaign, The Broken Of Britain wrote a letter to Maria Miller calling for DLA reforms to be removed from the Welfare Reform Bill. It was signed by many famous disabled people, MPs and supporters. Today, the Guardian have published an edited version of the letter. Well done to The Broken Of Britain!

Work Capability Assessment Gets Assessed And Fails

March 8, 2011

From today’s Guardian:

“I felt it was assumed that I was lying. It was more like a police officer cross-questioning a suspected offender than someone looking at my health and welfare and mental condition.”

MPs on the work and pensions select committee were in Burnley on Monday listening to the views of benefit claimants who have been part of a pilot for a new test designed to filter those people able to work from those who are too sick or disabled to do so.

If they expected positive accounts they will have been disappointed. Speaker after speaker at the public meeting at Burnley football club gave negative accounts of their experience of being tested for eligibility for the new employment support allowance, the replacement for incapacity benefit, which is to be introduced nationwide from the start of next month.

About 50 people attended the highly charged, emotional meeting. Most did not introduce themselves by name but simply with a brief description of the nature of their medical condition, and their accounts provided MPs with a detailed picture of what it feels like to undergo the work capability assessment (WCA) – the new computer-led test.

The test has been vigorously criticised by charities such as Citizens Advice and by a government-commissioned independent review, saying that the process is impersonal, and ill-equipped to gauge the seriousness of mental health conditions, or the nuances of complex medical problems.

One by one, individuals outlined the difficulties they had experienced. “I just seemed to be a number. The health professional didn’t know what one of my conditions was,” one man said.

“It was a complete farce,” a second man said. “They asked: How did you get here? How are you going to get home? Do you shop? Do you bathe yourself? But not how does it hurt? Where did it hurt? None of that. “I’ve got arthritis in my legs, my knees, my shoulders.”

“My wife scored zero points,” another said. “The test was a total waste of time; it was all physically orientated, nothing about her mental state. They asked things like ‘Can you brush your teeth?’ How that relates to mental health issues is beyond me. It was overthrown at tribunal. I can only describe it as mental torture; she was a mental wreck after it.”

Paul Hogarth, from the local Citizens Advice Bureau, said the system had been widely portrayed as a process of “rooting out the shirkers”, but argued that the test was not fit for purpose, frequently declaring people with serious health conditions fit for work. The advice centre had supported many people to tribunals, 80% of whom had seen the assessor’s decision overturned, he said.

Among those who successfully appealed was Ean Williams, 45, who told MPs that he had originally been given zero points in his assessment, despite having multiple sclerosis, and providing a letter from a surgeon stating he was too ill to work.

To qualify for the benefit, claimants need to be awarded 15 points.

“I’m sure that some people do scam the system, but why were they targeting me? I have hard medical evidence saying I had MS,” he said.

Kevin Nuttall, a welfare rights adviser working with Action for Blind People in Lancashire, said he had supported someone through a test which concluded that he had “mild visual impairment” and was fit for work. “He was in fact registered blind,” he said.

Over the next three years 1.5 million people currently claiming incapacity benefit will undergo the work capability assessment, carried out by a medical and IT company, Atos. The new test is tougher than the old version, and the government expects to save £1bn over five years by encouraging people into work, or failing that on to a lower-paid benefit.

Oliver Heald, the Conservative MP for North East Hertfordshire, asked whether it was not a good thing that people with mental health problems were being helped into work. “Isn’t it about changing attitudes? Trying to find out what are the capabilities of that person – and shouldn’t that person be able to use their talents?” he asked.

There was loud disagreement from the hall. “But the work capability assessment isn’t like that. It’s hostile,” one man said. One woman described the frustration of trying to get in contact with the Atos headquarters to query her assessment result, stating she had dialled the number “about 125” times. “There’s a recorded voice saying, Sorry, all our advisers are busy. And the line goes dead.”

Others said the large number of appeals meant a long wait for cases to be heard, and in the meantime they were allocated the lower rate of benefit, £65 a week, rather than £91. “I am waiting for a tribunal, but I’m told that it won’t be before June, because there are so many people waiting. I’m stuck on the £65 benefit until then,” a woman with ME said, and began to cry.

The chair, Dame Anne Begg (Labour, Aberdeen South), said this was the first time in her nine years on the committee that MPs had ventured out and talked to real people. “We should do this kind of thing more,” she said.

Afterwards she said she was concerned about the speed with which the reform was being pushed through: “Personally, I see there are serious problem with the WCA. My view is that either they should be slowing down the national rollout or speeding up the implementations of changes to the system.”

DLA Fraud Couple Under Curfew

March 8, 2011

Cases like this are why so many people who need DLA so desperately are suffering so much. I’m shocked to read the article.

A couple who claimed more than £6,000 in disability benefits while running a stud farm have been handed a suspended prison sentence.

Nicolas Arnold, 57, and wife Mair, 57, received financial aid after claiming various health problems left them “virtually unable to walk”.

Cameras caught them carrying food pails and mucking out horses at Blackbridge Arabians in the Garw Valley.

Magistrates in Bridgend ordered the pair to be placed under curfew.

They were given an eight-week custodial sentence suspended for 12 months.

Fraud investigator Garth Jones played the court an 18-minute DVD of surveillance showing the couple working on their stud farm over a nine-month period.

‘Diabetes’

He said: “As you can see, neither of them are displaying any difficulty with their mobility.

“In fact, they were running an operation called Blackbridge Arabians specialising in Arabian horses.”

He added: “At no time during the video surveillance did Mr or Mrs Arnold make use of any walking aids.”

The court was told the couple claimed disability living allowance saying neither of them could walk and they suffered from conditions including diabetes and heart problems.

Nicolas Arnold wrote on claim forms that “words could not describe” how tough his life was.

He claimed he “could barely walk” as he battled diabetes, hypertension, heart arrhythmia, sleep apnoea, depression, severe back problems and impotence.

Mair Arnold said “chronic fatigue and depression” meant she slept up to 20 hours a day.

Prosecutor Jonathan Holmes said the couple had both been receiving benefits payments for their care and mobility allowance for nearly 15 years.

He said: “Nicolas also received the highest rate of allowance related to care, claiming he needed round-the-clock attention including help using the toilet.

“Mr Arnold filled in the form saying that he could not walk at all.

“He said he walked zero metres seven days a week and needed a walking stick or someone to help him stand up and get his balance.”

Walking stick

Mrs Arnold said she could not walk at all and needed a zimmer frame, walking stick, wheelchair or carers, he told the court.

But surveillance footage showed her holding a rake as she cleared horse manure out of their stables.

He said the footage showed Mr Arnold taking manure away using the wheel barrow and carrying two blue buckets of horse-feed along a 200m farm track.

Magistrates’ chairman John Hughes said: “The offences were so serious that they warranted an eight-week custodial sentence.”

But he suspended it for 12 months and put the couple on a combined 24-hour curfew.

Mrs Arnold will be under curfew from midday to midnight while her husband will be unable to leave the house from midnight to midday.

How The Cuts Will Hit Blind And Disabled People

March 7, 2011

Andrew Kaye, Policy Manager at the RNIB, has written this post for Liberal Conspiracy which I thought some of you might find interesting.

Paralympic Swimmer Jonathan Fox Sets New World Record

March 7, 2011

Paralympian Jonathan Fox broke his world 100m backstroke record in the heats at the British Championships on his way to winning the event.

Fox, who has cerebral palsy, set a new S7 category mark of one minute 10.70 seconds in Manchester, beating his old record of 1:11.94 set last year.

But he missed out on a second world record in the final, clocking 1:11.36.

“I’ve been working hard over the past three months so I wanted to see what I was like in a race,” he said.

“I’ve been working hard on the back end of my races in training and it has all paid off – I didn’t think I was going that fast.”

Fox, who won gold last year’s World Championships in Eindhoven in his previous best time, moved from Cornwall to work with coach Mick Massey at the Manchester High Performance Centre late last year.

His time in Manchester qualified the 19-year-old for the IPC European Championships which will be held in Berlin this summer.

“I’ve put a marker down with that time and it will give me confidence for the Europeans knowing my closest rival is now about two seconds behind me,” he added.

Fellow Beijing Paralympian Stephanie Millward took gold in the women’s 100m backstroke and Natalie Massey silver, both qualifying for the European Championships.

Serious Concerns Over New MS Treatment

March 7, 2011

Serious concerns have been raised about a controversial vein-widening treatment being offered to people with multiple sclerosis.

An investigation by BBC Inside Out discovered that one doctor carrying out the procedure in Egypt is not licensed to practice medicine in that country.

The BBC understands that in the UK, an NHS GP has been reported to the doctors’ watchdog, the General Medical Council, for organising the treatment through his private company at a cost of nearly £8,000.

The operation has been dubbed the ‘Liberation Procedure’ by those who believe it helps relieve the symptoms of MS, an incurable condition.

Unproven treatment

It involves inserting tiny balloons into the body via an incision in the groin. The balloons are fed up to certain veins in the upper body and neck, then inflated to stretch the vessel wider.

Some patients also have small metal tubes – or stents – inserted to prop their veins open.

The treatment is based on a new and unproven theory that MS is caused by vein blockages which impair the flow of blood from the brain.

This is a radical departure from the mainstream view that there is no known cause of the disease.

It is thought that several thousand people with MS may now have been “liberated” at private clinics in countries like India, Poland and Bulgaria.

Some have posted before-and-after internet videos showing their apparent improvements.

But the MS Society says these results could be down to the placebo effect and the fact that multiple sclerosis symptoms can come and go over time.

Dr Doug Brown, head of biomedical research at the MS Society, says: “One of the complicating factors is the placebo effect where people feel better for going through a treatment process but not necessarily because of the treatment directly.

“It’s an unproven treatment and until this treatment goes through a clinical trial it is impossible to say if its works and if it is safe for people with MS.”

Blocked veins theory queried

The theory that blocked veins cause MS was put forward just over two years ago by an Italian doctor Paolo Zamboni.

His research seemed to show that only people with MS had multiple abnormalities of certain veins in their upper body which impaired the flow of blood out of the brain.

He called this supposed condition chronic cerebro-spinal venous insufficiency or CCSVI. He said it never occurred in the healthy people in his study.

In 2010, a US researcher claimed that he had found CCSVI in just over half of people with MS. This work has not yet been published.

However seven published studies by independent researchers have failed to back up Zamboni’s findings.

Some of those research teams have suggested that what he interpreted as abnormalities were in fact normal and harmless anatomical variations found in everyone.

John Zajicek, Professor of Clinical Neuroscience at the Peninsula Medical School in Plymouth, said: “I can understand that people get desperate. But there’s virtually one new treatment a year that people with MS get led into and proves to be ineffective.

“At the moment there’s no evidence to my mind that this procedure and this explanation for multiple sclerosis have any value at all.”

Concern about treatment risks

Because the theory remains unproven, the procedure is not available on the NHS.

There are also concerns about the risks. Two deaths have been connected to Liberation abroad. Both of those patients had stents which are believed to increase the risks of complications.

Nonetheless, vein widening – without stents – is now being offered in the UK by a Glasgow-based company called the Essential Health Clinic.

BBC Inside Out presenter Sam Smith went undercover to be scanned by Essential Health – the first stage in the treatment process which in total costs just under £8,000.

She was diagnosed with CCSVI.

London-based vascular surgeon Ian Franklin said of Sam’s diagnosis: “This reinforces the concern a lot of people have that some of these anomalies might be present in the normal population and raises the question that it might not be specifically linked with MS.”

Essential Health is run by a practising GP Dr Tom Gilhooly. He denies any wrongdoing.

Dr Gilhooly insists the Liberation procedure is supported by sound scientific evidence.

He told the BBC: “You are not going to change what we do, you’re not going to change our determination to make these patients better. I see these patients, I know these patients, I value these patients, I’ve looked after them for years. I’ve seen them after the procedure, the vast majority are improved.”

Asked why he thought he had been reported to the GMC, he said he knew nothing about the complaint.

British patients seek treatment abroad

Essential Health has a long waiting list and some British patients are seeking treatment abroad.

Dr Tariq Sinan from Kuwait carries out the procedure on patients from all over the world at a private clinic in Alexandria in Egypt where they do not use stents.

He says he has seen amazing improvements in the patients he has treated.

The Inside Out team travelled with MS patient, Karen Lewis, from Devon, to Egypt.

But shortly before Karen’s operation he admitted to the BBC crew that he is not licensed to practice medicine in Egypt.

Karen agreed to him carrying out the procedure anyway.

Two months later, she says her walking and the feeling in her hand have improved – and she is convinced the operation was worthwhile.

She said: “It’s like a whole weight has been lifted. Whereas before I used to shed a tear every day, I haven’t cried since I had the procedure.

“If this is placebo, I’ll take it every day.”

This programme is broadcast on Inside Out South West on Monday 7 March BBC One at 1930 and nationwide via the BBC iPlayer following transmission.

Man With MND Records Voice For Young Son

March 7, 2011

A man from Bolton who has motor neurone disease (MND) is recording his words so his baby son will be able to hear his voice.

Laurence Brewer was diagnosed with MND – a progressive condition that damages the nervous system – in 2008.

Mr Brewer, 43, has already lost much of his mobility. Concerned that his speech could be next, he went online and discovered a speech synthesis programme called ModelTalker which allows him to record his speech patterns.

The driving force behind it is Mr Brewer’s 13-month-old son, Stan.

“At the moment, if my voice goes in the next six months he might not recognise me,” said Mr Brewer.

“But, in five years time, if I have the voice banked he can hear what I sounded like or an idea of what I sounded like. So it’s a memory.”

Range of dialects

One of the most well-known people with MND is Professor Steven Hawking, who uses a voice synthesiser which has a US accent.

Since then, technology has moved on and there is now a range of voices and dialects to choose from.

But Mr Brewer and his partner Dani are hopeful they can preserve his real voice for the sake of their baby son.

Mr Brewer, who works for the University of Salford, now spends his weekends and evenings recording his voice.

“It’s not word-perfect and I imagine that the final voice will be a bit like a Lancastrian dalek which makes me smile quite a lot,” he said.

“But I quite like that idea that Stan will hear that and it’ll be part of me and part of my cultural identity.”

Dr Sarah Creer of the University of Sheffield, has spent years researching the use of personalised speech synthesisers.

She said: “When you have this database, the recordings are chopped into smaller units and then you can recombine those units to make new utterances.

“You will then actually be able to say anything at all that you wanted to say by recombining those units together. “

James Baker, care adviser at the Motor Neurone Disease Association, said it was a great step forward.

“For some people with MND, loss of speech can be one of the hardest things to come to terms with.

“Voice banking is an exciting area and, as the technology improves, it may allow people to retain their voice that MND has cruelly taken away.”

You can watch Mr Brewer’s story on Inside Out North West, BBC One, Monday 7 March at 1930 GMT.

New Broken Of Britain Campaign: Left Out In The Cold

March 7, 2011

 

On the eve of the second reading of the government’s controversial Welfare Reform Bill, on 9 March, disabled activist Kaliya Franklin stripped off to demonstrate what the result would be for disabled people across the UK if disability benefits are slashed to the bare minimum.

 

The photo shoot depicts a naked Franklin lying on the sand on a wintry beach, next to her empty wheelchair.

 

“I was absolutely frozen when I took my clothes off for the photo shoot,” says Franklin, “but it was nothing like as cold I and other disabled people will be if the government removes our essential benefits.”

 

The Left Out In The Cold awareness-raising campaign is being organised by disability rights group The Broken of Britain, of which Franklin is a founder and director.

 

Says Franklin, “It’s vital that every able-bodied person remembers they are just an accident or illness away from being disabled themselves. Many people think if they do become disabled that the state will look after them.

 

“But the fact is that even under current provisions, disability benefits are not enough for disabled people to live on. If the Welfare Reform Bill is passed, the situation will become unimaginably worse.”

In January, Franklin released a video on YouTube that explained how able-bodied people would be in for a major shock if they found themselves needing to apply for disability benefits. The video can be seen at http://www.youtube.com/watch?v=q7EXSpmrVMU.

The Broken of Britain group has been campaigning since summer 2010 to raise awareness of the government’s wider anti-disability policies. The group has consistently drawn attention to disabled people being the target of unjust government rhetoric and sham consultations, tabloid slander and political myths.

It says: “We are now the targets of deep and damaging cuts to disability services that are contained in and symbolised by the Welfare Reform Bill. The Bill disguises cuts and changes to a number of benefits, from housing benefit to Income Support that will punish disabled people.”

Disability In Cyberspace

March 6, 2011

There are more than 10 million people living in the UK with a long-term illness, impairment or disability according to the Office for Disability Issues (ODI) and although medical treatment and pre-birth screening have reduced this number dramatically over the last half-century, many of the problems faced by this population have not changed. Compared with their non-disabled counterparts, people with disabilities in this country are still more likely to be poor and unemployed with fewer qualifications than non-disabled people, more likely to be the victims of crime and more likely to experience occupational and social discrimination.

This was supposed to have been fixed by the web. After all, to put it crudely, there are no staircases online. If you subscribe to the mythology that’s been spun into the fabric of the internet by technological utopians, the web should be a totally accessible resource available to all, where everyone can achieve personal and social self-actualisation despite the barriers that they face offline. It should be the great leveller. It should be, but, as always, it’s more complicated than that.

In 2003, I started an MSc in social psychology, with all the wide-eyed expectations of a baby academic. I was going to prove that the web – and specifically online games such as EverQuest and World of Warcraft – could provide benefit to society. To demonstrate my hypothesis, I chose to look at the qualitative and holistic experiences of people with severe physical disabilities; I interviewed game players who had injured their spinal cords so severely that they were almost completely paralysed.

My argument was that with the right tools, physical disability becomes mutable in cyberspace; the act of achieving goals that relied on the brain rather than on brawn – making the physical corpus obsolete – would serve to increase players’ well-being. Indeed, thanks to a variety of exceptional engineering adaptations, my participants were able to play with able-bodied online people, exercising their psychological identities rather than the physical ones that tended to dominate social interactions offline.

Two results stood out. First, the web offered personal and physical anonymity to a population that experiences a significant amount of stigma offline. In general, for people such as my participants who cannot “pass” in real-world situations the web allows them to experience an unrestricted liberty. They can interact in a place where there are no barriers to access that single them out. The disembodied nature of online interaction gave them a sense of control over how they were perceived and transformed the power dynamics that exist offline when a disability is overt.

Second, the web was described as an empowering platform, giving the participants the sense that they were in charge of their own destinies. Extending this observation to the wider web, levelling up doesn’t just happen in games; getting information, getting a posse, being an agent of change through whatever means gives the individual an ego boost and is far more achievable now than it ever has been.

I was pleased with these results, but surprised at how little research has been done looking at these questions, given the potential social benefit. Almost universally, the results of the few small-scale studies that have been published in this area indicate that the web is an untapped resource for disabled people, with the potential to transform social participation by providing information and networks that should reduce the negative effects of social isolation. Based on these, there are countless initiatives to get people with disabilities online, such as Race Online 2012 and Directgov, and to reduce the significant access gap.

Unfortunately, this is part of the problem. All of this supports a theory called the social model of disability, which says that it’s society that creates the barriers to access and equality that people with disabilities experience, rather than the disability itself. In other words, it is architecture, culture and social constraints that exclude disabled people from full participation. Clearly, the web has been a great place to test this: remove the obvious barriers and the evidence uncovers happy, fully-functioning members of society. But these barriers still exist. We still live in the real world.

One of the strongest criticisms against the social model is that by hiding a physical disability, or attributing non-physical impairments to clumsiness or inattention, disabled people perpetuate a discriminatory society and reinforce the perception of personal tragedy, inefficacy and stigma. The web is the greatest passing platform of all: everyone is normal online. And so where does that leave our attitudes towards disability offline?

Over the past decade, there have been improvements for people with disabilities in employment, education and participation in cultural activities, but the web is not the only factor in this change. Unsurprisingly, the gaps between disabled and non-disabled people in these areas are still significant; the ODI reports that only 48% of disabled people are employed, compared with 78% of non-disabled people.

If the web’s limitless potential was actually being realised, we would expect greater changes to have occurred over the past 20 years. It seems ironic that a technology that has the potential to empower a group may also be perpetuating divisions.

The web has transformed the personal experiences of disabled people by creating a playing field for empowerment with access to information, connections and a platform for change. Yet we must reflect on our social attitudes to disability in the offline world instead of ignoring what we can’t see online. Only then will the web’s effect on disability become truly clear.

Wrongly Labelled SEN Children To Get Better Support At School

March 5, 2011

A government-backed strategy to take children off the special needs register by giving them better pastoral care in schools will be unveiled as part of a shakeup of special needs provision.

Ministers believe too many pupils in England’s schools are being wrongly labelled as special needs – in some cases because parents are serving in Afghanistan or because they were born in summer and are younger than their peer group. Teachers’ expectations of children labelled SEN are too low, government sources say.

In a forthcoming green paper, the government will call for the roll-out across the country of a pilot project that has cut the proportion of children on the SEN register by 10%. At one school the percentage has fallen from 45% to 25%. The pilot began in 2009 and operates in 10 local authorities.

The Achievement for All scheme works by identifying why children are falling behind and giving them personalised support – in one case, at a school in Coventry, a girl whose family life was chaotic was given lifts to school by a teacher.

The change will not involve children diagnosed with disabilities such as autism or dyslexia, but those considered to have mild emotional or behavioural problems on the lower tiers of special needs – known as “school action” and “school action plus” – which have grown in recent years. Officials say the changes are not about curbing budgets because no extra money is given to schools for children on the lower tiers.

Paul Green, head of Lyng Hall school, Coventry, one of the pioneering schools, said: “One of the really successful things about this work is that you separate out which kids have a significant special educational need, something diagnosable, and which are kids not making enough progress for a variety of reasons. We would have had kids in the past on the SEN register who were two years behind in their reading age. The reason they’re two years behind is because their attendance was only 50%. They haven’t really got a special need – they need to be at school more.”

In the past, the definition of special needs was so broad that children with asthma were included. The old approach led to children being identified as having special needs after emotional or behavioural problems were picked up at school. But that masked social problems.

Typically, families in Lyng Hall’s catchment area get into difficulty over debt, struggle to pay the rent and live in overcrowded housing. In one case, a pupil’s family were burning furniture in a metal bin to keep warm and cook food after their gas was cut off.

The school appointed 20 associate teachers focused on pastoral care. Green said: “We have no teaching assistants, no learning mentors, no family support coaches. It’s one person supporting the child and family, not half a dozen people dipping in and out at different times.

“What we try and do is make it personal – you seem to have a problem with female teachers, you seem to have the wrong mates, or it might be someone who struggles with any numeracy work. It’s about us having higher expectations of kids, and about kids having higher expectations of themselves.”

Katie, 14, is one of those who might have been identified as having special needs. She wasn’t coming to school because her mother was having anxiety attacks and wanted her to stay at home. Katie said: “I had to help my mum because she was poorly. The teachers got everyone in the family to support my mum, my brothers and sisters. So if she’s ever worried at home, instead of keeping me off school she can speak to someone else. It’s made a big difference. I like school better and I’m in more now. I was getting low grades because of my attendance but now they’re getting higher so I can do my GCSEs.”

The approach allows the school to focus on children with complex special needs including dyslexia, who are taught in small classes, where they stay in the same room and have the same teacher for many subjects. When they are ready, they are moved to mainstream classes.

In the Green Paper ministers will announce an extension of the Achievement for All programme across the country. The government will invite bids for an external organisation to extend Achievement for All.

More than one in five children in England are identified as having SEN – 21% of the school population in January 2010. But only 2.7% have statements. Over half of the pupils, 11.4%, are in the School Action category.

In recent years the proportion of children with SEN but without statements has nearly doubled – from 10% of all pupils in 1995 to 18.2% or 1.5 million children in 2010.

London Blue Badge Frauds Busted By The BBC

March 4, 2011

Disabled blue badge fraud purportedly costs the country £46m each year.

In London misuse is widespread, with many drivers illegally using the badges of family or friends.

Blue Badges can change hands on the black market for hundreds of pounds.

BBC London’s Paul Curran went out with an enforcement team in London to see what happens to drivers who misuse disabled badges.

BBC Inside Out 7th March Catches Up With Bionic Eye Patients

March 4, 2011

Two years ago, BBC Inside Out reported on the start of a pioneering trial at Moorfields Eye Hospital in which completely blind patients were fitted with bionic eyes which gave them the first glimmerings of vision.

Matthew Wright returns to Moorfields to catch up on the patients’ progress and find out what the hopes are for the future of this radical technology.

This programme is broadcast on BBC Inside Out London on Monday 7 March BBC One at 1930 and nationwide via the BBC iPlayer following transmission.

An Account Of An ATOS Test

March 4, 2011

This is an account of a recent ATOS medical by DisAbled blogger Ms Humphrey Cushion. Reading it has helped me learn more about them, as I’ve never had one. She has also linked to a petition to sack ATOS at the end of her post.

JustGiving Page Of The Week: Julie Maycock

March 4, 2011

This week’s JustGiving Page Of The Week goes to Julie Maycock. Julie will be running a marathon later this month to fundraise for M.E. Research UK, because her childhood friend has ME. Best wishes Julie!

Health Services Are Failing Deaf Children With Additional Needs

March 3, 2011

Deaf children with additional needs are having their futures blighted by bad, unprofessional and often non-existent support and medical care.

Some medical staff are “overwhelmed by these children’s complexity of needs” while others treat deafness as a minor condition that can be addressed later in the child’s life, according to the largest study into the experiences of deaf children with complex disabilities, published on Wednesday.

In one case, doctors failed to diagnose a deaf child as also being profoundly blind until she was 18 months old, despite the mother repeatedly reporting her daughter’s inability to see.

In another case, the behaviour of a blind toddler who repeatedly hit his head against hard surfaces was dismissed as normal for a child with learning disabilities. It was not until the father persuaded the doctor to watch a film he had made on his laptop, that the child was diagnosed with a brain tumour.

Susan Daniels, chief executive of the National Deaf Children’s Society (NDCS) at the University of Manchester, which funded the Complex Needs, Complex Challenges report, said: “We are alarmed by the findings of this research, which shows services are not geared up to support or care for children who are deaf and have other disabilities.”

The research revealed the “shockingly low” expectations some professionals have of these children: often, the report said, a result of them seeing a collection of conditions instead of the whole child.

“As the number of children with complex needs rises, due to increasing survival rates of children who are born prematurely or suffer a severe illness, it is becoming even more important for services to drastically improve how they support these families,” added Daniels, who is organising an NDCS weekend for families and deaf children with additional complex needs (ACN) from 4 March.

“We urge professionals to work with parents to address shortfalls so that deaf children receive the support and care they need,” she added.

Dr Wendy McCracken, co-author of the report, interviewed 50 families of deaf children with conditions such as autism, Down’s syndrome and cerebral palsy.

It is estimated 40% of deaf children have an additional disability. The NDCS estimates that 10% of deaf children, approximately 4,500, in the UK have ACN.

The report comes ahead of the government’s special educational needs green paper, due to be published this month.

“This group raises significant challenges for support and medical services because of the complexity of their needs,” said McCracken. “But instead of striving to help them, researchers frequently exclude these children from research studies.”

She found that professionals seemed “overwhelmed” by the complexity of these children’s needs, with others telling parents that their child’s deafness was a minor issue that “could be dealt with later”. The report also found evidence of parents being wrongly told that their child did not meet the referral level for support services.

“Children were also denied treatment, in particular cochlear implants, on the basis of their additional complex needs,” McCracken said. “This suggests that some professionals are poorly informed about the potential benefits of cochlear implantation for deaf children with additional complex needs, and may as a result be discriminating against these children.”

Even the specialists at special schools for children with learning disabilities lacked the skills and knowledge to help deaf children with other, complex needs, the research found.

“This is contrary to the expectation that deaf children with additional complex needs can take advantage of all the specialisms within such schools,” said McCracken.

“Several parents expressed concern about services having low expectations of their child,” she added. “There were some examples of poor professional practice, where serious conditions were left undiagnosed and often only picked up by a chance encounter by other professionals.”

Accessing and dealing with services is so difficult that the majority of parents in the study said it was the most challenging part of having a disabled child.

They described audiology departments not being able to cope with children’s behaviour, or that they were unable or unwilling to adapt tests for children with additional complex needs.

“My son is deaf and has cerebral palsy, and so is physically unable to do the tests the hospital try to make him do,” said one mother. “It doesn’t matter how often I tell them: they just say it’s the only test that they can do and they can’t refer or treat him until he can complete the test.”

Special School Standards Praised After Inspection

March 3, 2011

Education inspectors have heaped praise on staff and parents for improvements at a special school in Dumfries.

Standards at Langlands, which caters for pupils with profound and complex needs, came in for sharp criticism following a review in 2008.

But a new follow-up report said the school had now been transformed into a calm, stimulating environment.

Her Majesty’s Inspectorate of Education also said there was a strong focus on learning and achievement.

Head teacher, Elizabeth Watson, was singled out as the inspiration for the changes.

In 2008, inspectors rated Langlands as “unsatisfactory” or “weak” in 11 out of 14 key categories, finding weaknesses in meeting learning needs, making improvements in performance and the involvement of staff in the life and work of the school.

A follow-up visit in 2009 found an “effective start” had been made to addressing the issues raised in that report.

In the latest findings, the inspectorate said the school – which caters for young people aged 12 to 18 – had improved “significantly” since the original inspection.

It added: “Young people are now motivated by higher quality learning and are achieving more.

“The quality of learners’ experiences, their achievement, the school’s approaches to meeting learning needs, the curriculum and planning for improvement are now at a satisfactory or better level.

“As a result, we will make no further visits in relation to the inspection report of October 2008.”

Verbal Abuse Is Disability Hate Crime, Says DPP

March 3, 2011

Keir Starmer QC, the Director of Public Prosecutions, warned name calling, mimicking and bullying of disabled people are all crimes but not enough victims realise.

He urged more to come forward with reports of abuse and called on society to change its attitude and stop dismissing such attacks as “routine”.

He also admitted prosecutors are “still in the foothills” when it comes to prosecuting such offences and signalled a tougher stance.

Last month the Conservative MP Paul Maynard, who has cerebral palsy, said he felt he was mocked by MPs on the floor of the House of Commons during a debate.

He was later said to have supported a decision by John Bercow, the Speaker, to take no further action.

In 2007, Fiona Pilkington killed herself and her severely disabled daughter Francecca, 18, in Leicestershire, after years of abuse from yobs.

In a speech to Sussex Law School last night, Mr Starmer said: “Many disabled people do not appreciate that constant name calling, mimicking and bullying which often escalates to more serious forms of harassment and violence are criminal activities.

“That may be because such behaviour is so widespread as to be considered routine.

“The idea of people being targeted as a victim of crime because of their disability is still relatively new.

“It is not fully understood by the general public and, more surprisingly perhaps, is not always recognised by the victims of such behaviour or by those with responsibility for dealing with it.

“Unless we as a society recognise and confront this issue there is little prospect of more cases coming into the system and we will have missed a valuable opportunity to tackle this important area.”

Studies suggest almost one in four disabled people experience harassment in public, including 90 per cent of people with a learning disability.

However, Mr Starmer said prosecutors charged in 506 cases last year compared with 9,214 for race or religious hatred offences and 907 for homophobic hate crimes.

He highlighted one case where a girl who wore an eye patch was called a “fat pirate”.

But he also admitted that prosecutors themselves have been guilty of not tackling the issue firmly enough with some guilty of assuming the victims will not make reliable witnesses.

He added: “Disability hate crime strikes at all disabled people by undermining their sense of safety and security in the community.

“For this reason disability hate crime should be regarded as particularly serious.

“Such crimes are based on ignorance, prejudice, discrimination and hate and they have no place in an open and democratic society.”

Wheelchair Basketball Player Simon Gibbs In Two Year Ban

March 3, 2011

British wheelchair basketball player Simon Gibbs has lost his appeal against a two-year ban for testing positive for the designer drug mephedrone in 2010.

Gibbs will now miss next year’s Paralympics in London.

The Court of Arbitration for Sport ruled that Gibbs could not prove a friend had spiked his drink with the banned stimulant in February 2010.

The World Anti-Doping Code allows reduced penalties only when athletes prove how they ingested it.

Gibbs was seen as one of the country’s finest prospects and named male newcomer of the year at the Wheelchair Sports Awards in 2009.

He is ineligible for the Paralympics because of an International Olympic Committee rule which bars athletes who receive a doping ban of at least six months.

CAS rejected the International Wheelchair Basketball Federation’s appeal that the ban imposed by Britain’s anti-doping authority was too harsh. A British appeal panel had upheld the sanction but suggested “a few months” was appropriate.

In his ruling, CAS arbitrator Michael Beloff said the World Anti-Doping Code allowed reduced penalties for certain drugs – “specified substances” which can sometimes be used inadvertently – only when athletes proved how they ingested it.

“To permit an athlete to establish how a substance came to be present in his body by little more than a denial that he took it would undermine the objectives of the code and rules,” wrote Beloff.

Beloff said that Gibbs should not be stigmatised as a doper and that mephedrone – widely known as ‘meow meow’ – was “hitherto unrecorded” as a doping product, although as a stimulant with similar properties to amphetamines it was prohibited in sport.

Gibbs tested positive at a competition weeks after being selected for a national team training camp to prepare for the 2010 world championships.

The court heard that Gibbs “consumed a significant quantity of alcohol and repeatedly left his drinks unattended” on an evening spent in several pubs.

A friend of Gibbs gave evidence to the initial British hearing that he spiked a drink but the panel “did not find [his] evidence to be reliable and credible”.

At the CAS appeal heard in London, Gibbs’ legal team asked the sports court to consider his reputation as a role model, his Olympic ambitions and the fact mephedrone was a legal recreational drug at the time. It has since been criminalised by the British government.

New Play: Laundry Boy

March 2, 2011

I’ve just been sent a Tweet about a new play by an inclusive theatre called Face Front. The main characters in Laundry Boy have learning difficulties, and the main actors are learning disabled. The Face Front website says:

Martin’s time has come to move on from dependence to independence. His journey is both terrifying and exciting as he falls in love, suffers loss and gains a glimpse of who he could be.

Everything was ticking along as normal for Laundry Boy, Martin – or so he thought – when suddenly he was spun into making some life-changing choices.

Fluff and fold or college?
Love or just friends?
Marmite or jam?

Will he be able to choose for himself? Or have the decisions made for him? Follow Martin in this sometimes painful yet heart-warming story as he whirls from boy to man.Laundry Boy is a new play devised and performed by an outstanding team including award winning writers Julie McNamara and Ray Downing, Choreographer Chisato Minamimura and popular Learning Disabled actors Peter Faventi and Ellen Goodey. Directed by Annie Smol.

 

Woman Arrested For ‘Bang, Bang’ Remark To PC David Rathband

March 2, 2011

A woman has been arrested for allegedly standing behind a policeman blinded by Raoul Moat and saying “bang, bang”.

The comment was made as Pc David Rathband arrived at Newcastle Crown Court for the trial of two men accused of helping gunman Moat last July.

Police said a 22-year-old was held for a public order offence.

Qhuram Awan, 23 and Karl Ness, 26, deny aiding Moat, who killed the boyfriend of his ex-partner and went on to shoot Pc Rathband before killing himself.

Police said a woman was arrested on the fourth floor concourse inside the court building and was led outside in handcuffs by three uniformed officers.

Pc Rathband has been in court most days since giving his prosecution evidence in the trial of Mr Awan and Mr Ness.

The pair deny conspiracy to murder, attempted murder, a firearms offence and robbery.

Police helicopter

Moat shot and killed Chris Brown, 29, the new boyfriend of his former girlfriend, Samantha Stobbart, 22, whom he also shot during the attack in Gateshead.

He went on to shoot Pc David Rathband, blinding him, before going on the run.

Mr Awan was arrested when he and Moat’s former business partner Mr Ness were spotted by a police helicopter looking for Moat in Rothbury.

The gunman was on the run for a further three days before killing himself on 10 July following a six-hour stand-off with police in Rothbury.

Mr Awan, of Blyth, Northumberland, denies the attempted murder of Pc Rathband, one charge of conspiracy to murder, one charge of possession of a firearm with intent to endanger life, and one of robbing a shop.

Mr Ness, of Dudley, Gateshead, denies the murder of Mr Brown, attempting to murder Pc Rathband, one charge of conspiracy to murder, one charge of possession of a firearm with intent to endanger life, and one of robbing a shop.

The trial continues.

Boris Johnson Dodges Disabled Protestors

March 2, 2011

http://twitter.com/#!/Pete_Riches/status/42805384586604544

Guardian Interview With Clare Pelham, Chief Executive Of Leonard Cheshire Disability

March 2, 2011

I’m linking to this interview in today’s Guardian with Clare Pelham, the Chief Executive of Lenonard Cheshire Disability.

Riven Vincent On Victoria Derbyshire

March 2, 2011

Posted 10.05 am:

Riven Vincent is on Victoria Derbyshire’s radio show- I’m listening as I type.

Update 2pm:

In case you  want to hear the interview, it’s on iPlayer here for a week.  Discussion on this topic runs for most of the show so please sit through the news and sport.

I called in to strongly disagree with the views of a nutcase named Claire. Comments on her extremely outdated and unbelievable views are very welcome below- I’ll even let you off for swearing this time!

Update 3/3: The ‘nutcase named Claire’ turned out to be Claire Khaw. She has a blog that is, in my opinion, full of absolute rubbish. Her blog post on the Victoria Derbyshire radio show is scary stuff. Comments are from Victoria’s Facebook page which is much more deserving of a link than anything Claire may scribble.

Update 3/3 8pm: I’ve just read that Claire Khaw is a member of the BNP. I’m not at all surprised. She’s probably Jeffrey Marshall’s best friend. Or his wife.

Autism Respite Centre In Liverpool Set To Close

March 2, 2011

A secure care service for children with autism and severe learning difficulties in Liverpool is set to close, blaming a cut in funding from the council.

The Toy Library and Family Resource Centre, which provides respite for parents and carers, is due to close at the end of the month.

PSS, which runs the centre, said it was closing due to “increasing financial restrictions and government cuts”.

Parents whose children use the centre have said they are devastated.

‘Alternative services’

Sandra Wall, from Woolton, whose nine-year-old daughter goes to the centre twice a week, said the impact on her family would be “huge”.

She said: “The centre is fantastic and the staff are brilliant.”

“There’s a great light sensory room and ball pool which the children love playing in.

“The children all go in smiling and go out smiling, they have a really good time there,” she said.

“We know when we drop her off there that she is happy and she is safe and she is looked after, and all her needs are being met.

“The impact it will have on all of our lives, it will be a nightmare.

“It will have a huge impact in that there is no outside support, there is no way that my daughter can go to an after school club like other children her age that don’t need the support that the Family Resource Centre offers.”

A spokesman for PSS said: “Due to the increasing financial restrictions and government cuts, PSS will be closing its Family Resource Centre.

“We are working closely with our partners, Liverpool City Council, to ensure that all the children and families using the Family Resource Centre are signposted to appropriate alternative services.”

Mainstream Campaigners 38 Degrees Want To Help Us Save Our DLA

March 1, 2011

Mainstream campaigning organisation 38 Degrees are trying to decide what their next campaign will be. I must thank them, because one possibility is a campaign to save Disability Living Allowance. But, they have thought up a few possibilities, and have put them to a vote. So please click here to vote for a campaign to save our DLA. Thanks!

Disabled Welsh Man Offered Council Home

March 1, 2011

A former police officer partially paralysed by a spinal condition says a council has finally offered him a home after months in hospital.

Anthony Hawkins, 47, from near Aberystwyth, Ceredigion, should have been discharged from Tregaron hospital on 10 January.

Ceredigion council had until Tuesday to offer Mr Hawkins a specially-adapted property.

The local authority said it did not discuss individual cases.

Mr Hawkins, who uses a wheelchair, claims he was declared homeless by the council a few weeks ago after an occupational therapist ruled that his current rented home, in the village of Llanfarian, was unsafe and unsuitable for someone with his health problems.

Mr Hawkins, who was a police officer in Jersey for nearly 10 years, said the council had a legal requirement to find him a home by Tuesday.

He has multiple discopathy which has led to the collapse of part of his spine. It will eventually lead to paralysis from either the waist or the neck down, he said.

Mr Hawkins has been in Tregaron hospital since last October, and has also spent a few days at the University Hospital of Wales, Cardiff, where he had emergency surgery.

Steven Neary’s Father Mark Talks To Victoria Derbyshire

March 1, 2011

A father who fought for his right to have his twenty year-old autistic son live at home with him has won his case.

Mark Neary from Uxbridge in Middlesex was separated from Steven in December 2009 for what was meant to be just a few days but in April 2010, Hillingdon Council applied for a Deprivation of Liberty order, meaning he could only return home from care for a couple of hours at a time and was barred from staying overnight.

The case went to the Court of Protection at the end of last year and a judge granted an interim order that has allowed Steven to return home.

Mark Neary tells BBC Radio 5 live’s Victoria Derbyshire how his son is settling in back at home.


Blind Photographer Gary Waite Is Blackpool Advert Star

March 1, 2011

A blind photographer is the star subject of a new TV advert for a mobile phone company filmed in Blackpool.

The commercial showcases Croydon photographer Gary Waite capturing the resort in its glory using a Nokia camera phone.

He said: “I’ve been taught to use my other senses to take pictures.

“For instance, hearing and smelling the sea air and the sound of the roller coaster then, like every photographer, taking as many shots as possible.”

The 49-year-old, who lost his eyesight 10 years ago due to a hereditary eye disorder retinitis pigmentosa, has only recently discovered his talent for taking pictures.

It was charity PhotoVoice, which aims to empower marginalised communities through photography, that introduced Mr Waite to the art of taking pictures in 2009.

It gave a presentation at a support centre he was attending on the charity’s work.

Although he had never been into photography before, “I even hated having my picture taken”, he decided to give it a go.

He took part in the charity’s Sights Unseen project which taught sensory photography techniques for blind and visually impaired people.

“They got us to touch and feel objects first in group therapy then we went out on location to places like the park and the Imperial War Museum.”

They then introduced the use of a cane to touch objects and measure the height and distance of the subject.

“The cane is my eyes,” he said.

He combined his new found love of photography with his passion for music. He DJs at a blind club, with a photography exhibition on the West Indian sound systems he grew up with at the Notting Hill Carnival.

It proved so popular he went on to publish a book titled Favourite Sessions in 2010.

When the phone provider contacted PhotoVoice for someone to film doing a photo-shoot in Blackpool, they put Mr Waite’s name forward for the campaign.

Matt Dawe, projects manager at the charity, said the commercial showed that vision was no barrier to producing stunning shots.

“[It] shows that as well as finding photography enjoyable and rewarding, blind and partially sighted people can take fantastic photographs and share their unique perspective on the world with others.”

He added: “Gary, and other blind and partially sighted people, experience the world in no less vivid detail than anyone else; it is just that senses other than sight naturally take precedent.”

Shooting some of Blackpool’s famous landmarks like the Pleasure Beach and the piers has given the photographer a new found appreciation of the resort.

Mr Waite explained: “It was a great experience. Blackpool’s a fabulous place and the people are so friendly.”

He said he could not wait to return, adding: “I’ll definitely be coming back soon.

“I didn’t get a chance to do any sight-seeing so I want to come back for the Illuminations’ Switch On when the new Tower attractions will be finished and I really want to visit Blackpool FC.”

Meanwhile, Visit Blackpool, which helped with the filming, is pleased with the publicity it has generated for the town.

Councillor Maxine Callow, cabinet member for Blackpool’s tourism and regeneration, said: “The advert really showcases our resort and reinforces what a great place Blackpool is to visit.”

A Message From Peter Gichura

March 1, 2011

From an email I have just recieved:

Dear supporter of Peter,


Thank you so much for signing the petition to stop the deportation of Peter Gichura, the Kenyan disability rights activist, who was scheduled for deportation last Monday.  The good news is that Peter’s solicitor filed an injunction and judicial review, which temporarily delayed the deportation – so Peter is still in London, and still volunteering, supporting fellow disabled Londoners 3 days a week.

However, the situation is still critical, and deportation is a real and urgent threat. We have over 970 signatures on the petition – please can you help us break through the one thousand mark, by sharing the link by email, facebook, twitter, with even more of your friends?  We keep Peter’s MP and solicitor up to date with the totals, so it really helps.


Thank you to everyone who has done so much already – here is a personal message from Peter (he would email you himself, but he doesn’t have regular access to internet at the moment, so as Peter’s friend I’m just helping out..)

“Thank you friends – you have gone the extra mile in my time of need. I am overwhelmed and humbled by the love and support that has been shown me, by so many – those of you who know me, and those of you who don’t.  All of you have a special place in my heart.  Your support gives me hope and strength.”

Other things you can do:
If everyone gets just two more people to sign the petition, we will triple our already fantastic response.
Assante Sana (“thanks very much” in Swahili) from Peter and from all of us campaigning to stop his deportation.
Best wishes,

Lee Webster

I Know A Person In A Wheelchair Who…

March 1, 2011

In celebration of International Wheelchair Day, here’s an original poem written by me, full of compliments to wheelchair users!

I Know A Person In A Wheelchair Who…

I know a person in a wheelchair who has a lovely smile
I know a person in a wheelchair who longs to run a mile
I know a person in a wheelchair who’s a Paralympic star
I know a person in a wheelchair who’s as clever as you are.

I know a person in a wheelchair whose favourite colour’s red
I know a person in a wheelchair who has trouble going to bed
I know a person in a wheelchair who watches Home and Away
I know a person in a wheelchair who laughs every single day.

I know a person in a wheelchair who loves going to school
I know a person in a wheelchair who’s really, really cool
I know a person in a wheelchair who’s a friend so very true
I know a person in a wheelchair who’s an awful lot like you!

If you like this poem, you can buy more of my original poetry here for a low price.

Today Is The 4th International Wheelchair Day!

March 1, 2011

International Wheelchair Day was the very good idea of wheelchair user Steve Wilkinson (@wheelchairsteve.) I’ve only just read about it, but the Day’s Facebook Page says:

For no other reason than it coincided with my late mother, Joyce’s birthday, on 1st March 2008, I declared on Ecademy that 1st March would become International Wheelchair Day.

By pure coincidence, as you will see if follow the link, that is the date in 1922 when Michael Flanders, the gentleman in the wheelchair in the comedy singing duo, Flanders and Swann was born. Michael had polio.

Younger people are more likely to relate to Flanders & Swann through the modern day comedy duo Armstrong and Miller and their spoof characters, Brabbins and Fyffe.

I’d like all wheelchair users from all over the World to ‘like” this group and celebrate this 4th anniversary by sharing a post on this page on Tuesday 1st March 2011.

Let’s see how many people we can get

Thank you.
Steve “WheelchairSteve” Wilkinson

I would just like to add that I think wheelchair users should use this day to celebrate themselves, and everyone else should use this day to celebrate wheelchair users!


Have You Seen Max The Assistance Dog?

February 28, 2011

A pregnant Surrey woman is desperate to find her missing dog who is trained to alert her when she is about to suffer an epileptic seizure.

Andree Trotter’s dog, Max, disappeared on the railway line in the Hurst Green/Oxted area.

She trained the family pet to recognise an oncoming seizure.

Miss Trotter, who is eight months pregnant, said: “I have had no warning of my attacks approaching and am both frightened and heartbroken.”

Miss Trotter said that her and her fiance, Alan Whitlock, got Max from dog rescue centre, and he soon sensed when she was about to have a seizure.

“He wouldn’t let anyone near me, and would just sit down next to me,” Miss Trotter said.

When alerted of an seizure, Miss Trotter can take her medication and lie flat on the floor to reduce the risk of serious injuries.

“We trained him to bark, which only took a month or two,” she said.

Three-year-old Max went missing three weeks ago and the couple have put up hundreds of posters around the railway line where they think he went missing.

They are offering a “substantial” reward, but have had no reported sightings of Max.

Miss Trotter said: “It is quite scary now, because I thought with him around he would be able to warn me and I could put the baby down and get to a safe space.

“Without him I fear anything could happen.”

ParalympicsGB Chief Quits

February 28, 2011

ParalympicsGB chief executive Phil Lane is to leave his post with immediate effect after 10 years in charge.

During his time in charge, GB finished second in the medal table at both Athens in 2004 and Beijing in 2008.

It means the association will be looking for a new head just 18 months before the 2012 London Paralympics.

“This exciting time for British sport is providing an ideal environment for me to pursue new career opportunities,” said Lane, a former headmaster.

“The staff team at ParalympicsGB is well-placed to deliver fantastic support to British Paralympic athletes and ensure their continued success.

“I am looking forward to watching them compete in what promises to be the best Paralympic Games ever.”

ParalympicsGB chairman Tim Reddish added: “Phil has chosen to focus attention on new challenges and I respect that.

“I would like to thank Phil, on behalf of myself and the board, for the work he has done over the last 10 years promoting the Paralympic movement and his significant contribution in successfully taking GB teams to the last five Winter and Summer Paralympic Games.

“We wish him all the very best in his future endeavours.”

Councillor Apologises For ‘Retard’ Tweet

February 28, 2011

Sorry for having to use the R-word in the headline!

A councillor branded people protesting against cuts at a Hull City Council meeting “retards” in a rant on Twitter.

Conservative group leader John Fareham made the comment after Friday’s meeting, which saw the council approve a controversial £65m savings plan.

It read: “15 hours in council today very hard hitting day and the usual collection of retards in the public gallery spoiling it for real people.”

Mr Fareham, who has since apologised, has been criticised by Mencap.

Unison has demanded action is taken over his “disgraceful behaviour”.

‘Abused for hours’

Plans approved at the meeting, which was delayed due to hecklers, included the axing of 1,400 jobs and cuts to day care centres, leisure centres and highway budgets.

The Bricknell councillor said the comment was “misguided”, and added in a further Twitter post that it came after he was “abused for hours, returned home to excrement in house and saw intimidation”.

He added: “I apologise unreservedly for the adjective (sic) in my earlier tweet about the intimidation by some people. I got it wrong and I’m sorry.”

Unison regional organiser Steve Torrance said several people with physical and learning disabilities were in the public gallery at the time.

He added: “Not only are Councillor Fareham’s remarks offensive and unwelcome generally, they are of particular concern given that members of the public with disabilities were present in the gallery throughout the council debate as well as the people who care for them.

‘Offensive language’

“Unison will be petitioning the next council meeting calling for the council leader to defend the rights of disabled people not to be abused in this way and for action to be taken over Councillor Fareham’s disgraceful behaviour towards members of the public and trade union members.”

Mr Fareham was reprimanded by the Lib Dem-run council’s standards committee last year for making derogatory remarks about other staff.

He was ordered to write a letter of apology and attend a training course.

A Mencap spokesman said: “Councillor Fareham has now apologised for using that language, both on Twitter and to Mencap.

“We campaign about the use of language offensive to people with a learning disability because we believe that it contributes to a culture where harassment and bullying of people with a learning disability is all too common.”

Dame Tanni Grey Thompson Up For Another Award

February 28, 2011

Dame Tanni Grey Thompson is up for another award!

http://twitter.com/#!/ScopeVIPSupport/status/42156324603039744

I’ve just voted for her, and I’d love to see her win.

Extra Fund For Short Breaks For Carers In Scotland

February 28, 2011

Families in Scotland with severely disabled children could benefit from an extra £2m to fund short breaks.

The Scottish government said the money would be in addition to £5m already allocated over the next five years.

The new funding, which will be for 2011/12, aims to prioritise children with complex and exceptional needs and their families.

The money will be allocated to the voluntary sector, with groups being invited to come forward with proposals.

It follows a recommendation from the National Review of Services for Disabled Children, which has just been published.

Public Health Minister Shona Robison said: “Carers make an enormous contribution within their families and to our society.

“That’s why we have already committed investment of £5m over the next five years for carers who look after loved ones of all ages.

“But parents looking after children with complex or exceptional needs have exceptionally tough demands placed upon them.

“Severely disabled children can be entirely reliant on their parents for everything and families can be left utterly exhausted.”

She added: “Providing a short break – either for parents and their other children or for the whole family – can make a huge difference in sustaining families and keeping them going.”

Educational needs

The review report includes a range of measures to improve the lives of disabled children and their families.

A survey has suggested that almost 45,000 young people in Scotland have additional support needs.

The report says there is good practice, but it is often “hard won, and can be too rare”.

Findings include that disabled children and those in hospital have educational and social needs that can often be overlooked.

It adds that the understanding of child protection issues, as they affect disabled children and young people, needs to be improved.

Meanwhile, Scotland is to lead a UK-wide project to develop nursing in the field of learning disability.

Chief Nursing Officer for Scotland Ros Moore said: “I am delighted that Scotland is to lead this project, which is aimed at modernising and enhancing the profile and contribution of learning disability nursing, and ensuring these specialist nurses use and develop their skills to provide the best possible health outcomes for this group of people.”

JustGiving Page Of The Week: Jenny Kerr

February 25, 2011

This week’s JustGiving Page Of The Week goes to Jenny Kerr, who will be taking part in a skydive this June to fundraise for the Turbo Trust. Best wishes Jenny!

Amelia Gentleman Would Like To Sit In On Your Work Capability Assessment

February 24, 2011

Guardian journalist Amelia Gentleman wrote in the comments here yesterday:

I’d absolutely like to sit in on anyone’s WCA.
Email me direct if there’s anyone who would like to invite me! amelia.gentleman@guardian.co.uk

She was responding to someone who has questions about how ATOS carry out assessments and suggested a fly-on-the-wall investigation.

Personally, I have grown up strongly disliking being watched by student therapists during physio sessions. I would not like the idea of medical students being present while I was having a doctor’s appointment or any kind of operation. I see  these as very private situations where you and trained professionals of your choice discuss your personal and private medical history.

I understand that some may see the WCA as slightly different, since you don’t actually know or choose the ‘professsionals’ who carry these out. I’m not on employment support benefits, so won’t need a WCA any time soon, but from what I’ve heard about them, they still discuss and assess your condition in a way that I would see as very personal and private. So if I was to need a WCA, I wouldn’t want anyone at mine who didn’t have to be there.

However, if you feel differently and have a WCA coming up, please drop Amelia an email. And if you have feelings to share about trainee professionals sitting in on your medical appointments, those are very welcome in the comments below.

Are All The King’s Fools Making Progress?

February 24, 2011

The Guardian have published this article, looking ahead to  the new play starring actors with learning DisAbilities, All The King’s Fools, which runs at Hampton Court Place from today until Sunday. I’m linking to it here for anyone who might be interested.

Most Locked In People Are Happy, New Study Shows

February 24, 2011

The majority of people with locked-in syndrome are happy, a small French study suggests.

The disease “traps” people in their own body, able to think, but incapable of moving or talking.

The study of 65 patients, published in the British Medical Journal’s BMJ Open, found 72% reported being happy, with just 7% wanting help to commit suicide.

Experts said it showed it would be unwise to make assumptions about people’s mental state.

The findings could also have implications on the assisted suicide debate, the researchers said.

However, they warned that there could be some bias in the study with the most unhappy patients refusing to take part.

The participants, from the French Association for Locked in Syndrome, responded by blinking or moving their eyes.

Happy

About half of those questioned, 55%, had recovered some speech and 70% had recovered some limb movement.

The majority, 72%, said they were happy and 68% said they never had suicidal thoughts.

The longer people were locked-in, the more likely they were to be happy.

Researchers at the University of Liège, Belgium, said: “We suggest that patients recently struck by the syndrome should be informed that, given proper care, they have a considerable chance of regaining a happy life.

“In our view, shortening of life requests are valid only when the patients have been give a chance to attain a steady state of subjective wellbeing.”

Dr Adrian Owen, from the Centre for the Brain and Mind at the University of Western Ontario, said: “This is an extremely important study with a clear message – we cannot, and should not, presume to know what it must be like to be in one of these conditions.

“I think most of us feel that life in a lifeless body would not be a life worth living, but this study demonstrates that this is not always the case.

“On the basis of the results, it would be unwise for us to make assumptions about the mental state of those individuals.”

The King’s Speech Is A ‘Godsend’ Says One Stammerer

February 24, 2011

The film The King’s Speech is a “Godsend” for the thousands of people in the UK with a stammer, says Harry Dhillon, who has suffered with the condition since his adolescence.

Looking at the same footage of George VI opening the Empire Exhibition in Scotland in 1938, that moved lead actor Colin Firth to tears when he researched his leading role, he says he finds the monarch’s bravery inspiring.

Harry is president of Trojan Speakers, a club in west London devoted to the art of public speaking, part of the international Toastmasters association.

He explains how confronting his fears of public speaking actually helped him to control his stammer.

Blind Man Tackled Two Burglars

February 24, 2011

A blind man has taken on two burglars who broke into his home.

Keith Jones, 48, from Ebbw Vale, Blaenau Gwent, says he sensed where the pair were standing and tackled them.

But the raiders fled without stealing anything when Mr Jones, who has been blind since he was three, grabbed the phone to alert police.

Gwent Police, who are hunting for the two men, said: “Keith did a great job. He was incredibly brave to tackle two men he couldn’t see.”

Mr Jones, a voluntary worker, uses a white cane to get about in the adapted home he shares with wife Blessing, 37.

He said he put one of the raiders in a bear hug and tried to pin the other one down at the same time. One managed to escape while he kept wrestling the other by wrapping his arms around him.

‘Quite scary’

But the burglar freed himself when Mr Jones grabbed the phone, and the pair got away with only an empty satellite navigation box.

He said: “I’m sure they singled me out because they thought I’d be an easy touch but they were wrong.

“It’s a shame really but I couldn’t hang on to him and call the police at the same time so he got away.”

He said: “It was quite scary because I couldn’t see the burglars but I wasn’t going to let them get away with anything.

“I hope the embarrassment gets them to give up their life of crime and try something new. They could be the shame of the criminal community.”

Mr Jones was able to give police a description of the burglars despite his blindness.

He said: “I could tell from their voices they were in their 30s and they had local accents.

“The guy I tackled was a little bit taller than me and he was quite fat. Hopefully police will catch them soon.”

Woman In Wheelchair Not Allowed On Bus

February 24, 2011

A bus company has apologised after a Nottinghamshire wheelchair user was told she could not get on a bus.

Karen McPhail and her husband Peter tried to board the specially-adapted low floor bus after a shopping trip but were told it was unsafe by the driver.

Mr McPhail, 62, who said the couple had used a similar bus that morning, eventually pushed his wife 2.5 miles (4km) home to Newark.

Stagecoach said not all of its low-floor buses could carry wheelchairs.

It said it was investing in its fleet to ensure all vehicles would be accessible for wheelchair users by 2015.

Mr McPhail said: “It’s very upsetting. She’s getting very depressed, because she now feels like a second-class citizen.”

‘Real difficulty’

He added: “To me, it’s discrimination if buggies with children in can go on.”

A spokesman for Stagecoach East Midlands said: “We are continuing to invest in our fleet to ensure all of our vehicles will be fully accessible to wheelchair users by the required date of 2015.

“We have a small number of early low-floor buses which are not certified by the Department for Transport to carry people in wheelchairs and it would be breaking the law to let drivers take wheelchairs.

“We are working hard to replace these and apologise to Mr and Mrs McPhail for any inconvenience this has caused them.”

Ruth Scott, from disability charity Scope, said: “Unfortunately the McPhail story is not unusual.

“We know that significant numbers of disabled people, particularly those with mobility problems have real difficulty in accessing public transport.”

Twins Run Three Marathons For Disabled Friend’s Physio

February 24, 2011

Twin brothers will attempt three marathons in three days along the Dorset coast to raise money for their disabled friend.

Matt and Simon Phelps, from Poole, will undertake the Jurassic Coast Challenge in March, to help pay for “much needed” physio for Rob Ayres.

Mr Ayres, 27, from Leicester, suffered a brain injury in 2008 when he was hit by a car on a night out.

Matt said: “He couldn’t talk or move his limbs. Now he aims to walk again.”

Before he was injured Mr Ayres had served two tours in Iraq with the Royal Marines, before leaving to embark on a career as a nurse.

‘Absolutely gutted’

Matt said: “When Rob was initially taken to hospital his family and girlfriend were told the devastating news that it was unlikely he’d last the night.

“I was absolutely gutted, I didn’t think I’d get the chance to see him again.

“Of course being a fighter Rob survived, but then doctors said he would never talk again. A year later though and he uttered his first words.

“It was thought he would never be able to move his limbs properly again, but after dedication and hard graft he has function in them and is now learning to walk.”

Mr Ayres was discharged from hospital recently, after two years.

Matt added: “Unfortunately this now means that his family have to fund his neuro-physio appointments, which cost £90 an hour, and it’s likely he’ll need at least one a week for the foreseeable future.

“If Rob is ever to achieve his goal of walking again these appointments are imperative.”

Matt and Simon have been training for the 78.6-mile (126.49km) challenge, to help fund some of these costs, since December 2010.

‘Chafed nipples’

The brothers are currently running 40 to 50 miles (64 to 80km) a week in preparation, through Sandbanks, Lulworth and Swanage, and have so far raised about £700 for Mr Ayres.

Matt said: “The Jurassic Coast is such an inspiring landscape it almost makes running a pleasure.

“It’s nice to be able to get out in the fresh air instead of having to run in the streets.”

Although training is going well Matt admits to a few “minor drawbacks”.

He said: “I’m not a natural runner, I’ve got flat feet.

“And Simon has already got shin splints, and he had to go to the shop mid-run the other morning to buy plasters for his chafed nipples.”

Nik Royale

February 23, 2011

You won’t catch me climbing any walls, but I’m inspired anyway!

A climber with cerebral palsy who has qualified as an instructor fears he may have to move to England to get work.

Nik Royale, 37, of Caernarfon, Gwynedd, battled against the odds to qualify as an instructor on indoor climbing walls.

“I can find full-time employment doing this, but not in this area,” he said.

Mr Royale says he finds it particularly frustrating when he lives in a region that is a major climbing area and boasts a number of indoor climbing centres and walls.

“When I said I wanted to teach from a wheelchair they said that wasn’t possible,” he added.

“I’m in my chair 70% of the time now. I use my legs as little as possible these days because they’re so unreliable.”

Currently, when he wants to climb, he travels to Awesome Walls in Liverpool, where he trained and passed his instructor’s assessment.

A member of the public might not realise that a person in a wheelchair could get a climbing wall qualification
Jon Garside, British Mountaineering Council

Simon Aldridge, manager of the Liverpool centre, said: “Nik is fully qualified to instruct. He could work for himself or for any company.

“He was perfectly safe belaying and doing anything from the wheelchair, so I can’t see that being much of a problem.

“And with his qualification he doesn’t actually have to climb the walls, he’s more there as a supervisor to make sure everyone’s doing everything safely.”

Jon Garside, training officer for the British Mountaineering Council (BMC) and Mountain Leader Training England, the body with which Nik qualified, said access might be a problem at some centres.

He said: “A lot of climbing walls are built in existing buildings like churches. The vast majority are not in a purpose-built building.

“So there may inadvertently be a compromise with access. But some in north Wales do have ground level access.”

Hurdles

He added that disability climbing competitions and awareness workshops have been run for a number of years.

“A member of the public might not realise that a person in a wheelchair could get a climbing wall qualification,” he added.

Nik has only been able to use his qualifications to teach friends and family so far.

“I’ve been offered work in Manchester and possible work in Liverpool. I’ve also been offered work in instruction in Oxford and Kent,” said Nik, who only took up climbing in 2008 when he scaled Tryfan in the Ogwen Valley for charity.

He has a progressive form of cerebral palsy and agreed to be filmed as he pursued his dream of becoming an instructor to show what hurdles he had to overcome.

The film, Equal to Everybody Else, was created by local producers 2Ray Productions, and has been published on the website of one of his sponsors, DMM Climbing of Llanberis.

Epilepsy Action Warns Of Fears Over Latest Kanye West Video

February 23, 2011

The latest video from hip hop star Kanye West could cause epileptic seizures, experts have warned.

Those with photosensitive epilepsy should avoid the video for All of the Lights, which features singer Rihanna.

Epilepsy Action said the extensive use of flashing images could trigger seizures in some people, and there is no warning at the start of the video to alert them to the risks. The video has received almost five million hits on file sharing website YouTube.

In 2007, Epilepsy Action received calls from people who had suffered fits after seeing animated footage promoting the 2012 Olympics in London. It was removed from the organisers’ website and the video was re-edited.

The charity asked Cambridge Research Systems to run the All of the Lights video through a piece of kit called the Harding Flash and Pattern Analyser. Experts found it contained flashes at a rate high enough to trigger seizures in people with photosensitive epilepsy.

Around 5% of the 456,000 people in the UK with epilepsy have this form, making them vulnerable to flashing and flickering lights.

According to Ofcom regulations, the video should not be broadcast on UK television but there are no such rules governing online.

A spokeswoman for Epilepsy Action said the charity had contacted Kanye West’s agent, YouTube and other online sources to ask that they take the video down. Representatives have also written to Culture Secretary Jeremy Hunt asking about any plans to regulate online videos.

Aimee Gee, PR and campaigns manager at Epilepsy Action, said: “We are deeply concerned that this video may be harmful to some people with photosensitive epilepsy.

“We are doing all we can to warn people who may be affected not to watch it. It has already received millions of hits on YouTube so we feel it is unfortunately very likely that people may have already been affected.”

New Book: Live Eels And Grand Pianos

February 23, 2011

I received a Tweet from Andrew Bradford, author of Live Eels And Grand Pianos, saying that I might be interested in his writing. I checked his website, and here’s what it says:

Live Eels and Grand Pianos will be published by Callio Press March 4 2011

“Live Eels and Grand Pianos” is both a family memoir and a significant contribution to the social history of the twentieth century. It tells the story of the author’s parents, Charlie and Kathy Bradford.

Charlie and Kathy were seriously disabled by Polio when they were young children. Charlie contracted the disease in 1909, when he was three, and Kathy in 1913, when she was ten months old. “Live Eels and Grand Pianos” tells the story of their extraordinary courage in the face of adversity.

In the 1940s the idea of seriously disabled people marrying and raising children was so unusual that the author’s birth was reported in the national Sunday newspapers. This book tells how Charlie and Kathy managed to find work and raise a family, and about the prejudice and hostility they suffered, as well as the kindnesses they encountered and the campaigns that they took part in. It includes over twenty black and white photographs of the author’s family taken between 1920 and 1980.

This book has been added to a very long list of disability related books I would like to read!

Amelia Gentleman On The Fallout Of Cameron’s War Against ‘Sicknote Culture’

February 23, 2011

Amelia Gentleman has written this very good, but very long, piece on the fallout of benefit cuts. See if you can spot the place in the article where she has very kindly linked little old me!

All The King’s Fools

February 23, 2011

From the BBC Ouch Blog:

Six actors with learning difficulties have created a new theatre piece celebrating the role of jesters in history.

The play, All The King’s Fools, is influenced by historical research revealing that some of the most famous jesters of the mid sixteenth century had intellectual disabilities.

“This is really important work uncovering a hidden chapter in the history of popular entertainment. We aim to show the true skill of these historic performers and the debt owed to them by comic entertainers over the last five centuries,” says Director Peet Cooper.

The show is to be performed at Hampton Court Palace in Surrey in the courtyards and cloisters where jesters entertained the Tudor Court nearly 500 years ago.

Inspiration for the project came after Cooper was asked by Hampton Court Palace to play the role of Henry VIII’s fool Will Somer.

When he discovered Somer was said to be a ‘natural fool’ or ‘innocent’, Cooper felt he couldn’t play the role authentically and decided to contact actors who could help.

The performers are from The Misfits, a theatre company which provides opportunities for people with learning disabilities, and who work to challenge discrimination.

Penny Lepisz, Maude Winkler Reid, Marsail Edwards, Paul Prangly, Bill Loveridge and Greg Tibbets incorporate traditional fooling and clowning techniques with their own style of performance.

Music is by musician Sarah Moody who has worked at the Theatre Royal in Bath, the Nottingham Playhouse and for BBC Radio 4.

Marsail Edwards said: “[the audience] will learn that people with learning difficulties can act. They don’t think we can act very well and also they think the words ‘learning difficulties’ means we can’t do a lot, but we can. I think, most of all, people will find our performance moving.”

All The King’s Fools starts on Thursday 24 February 2011 and runs to Sunday 27 February. There are performances at 10.00 and 16.30 each day.

Playing In The Dark For Children With Rare Genetic Disorder

February 23, 2011

Children with a rare skin condition are getting help through a unique play scheme that allows them to play outside at night when most playgrounds and facilities are closed.

Xeroderma Pigmentosum (XP) is a genetic disorder that causes extreme sensitivity to the sun’s ultraviolet rays.

The scheme is an opportunity for XP sufferers to get together with each other outside in a safe environment.

Facilities provided by the group include a special coating on playground and football pitch floodlights.

Amelia Gentleman Says Charities Can’t Celebrate Yet On Mobility Allowance Progress

February 22, 2011

Last Thursday, the Government announced that plans to cut the mobility component of DLA  for people in residential care homes will now be implemented one year later than originally planned, in 2013. But Amelia Gentleman says charities can’t celebrate this small amount of progress yet. Here, she explains why not on the Joe Public Blog.

Ade Adepitan Tells The Telegraph About The 2012 Paralympics

February 22, 2011

The British public hasn’t experienced a Games first hand in all its glorious technicolour yet, and I guarantee it will change the way many people will view disability sport, and disability in general.

Even though I’m obviously hardened to the event, as a two-time Paralympian for Great Britain, little things say so much.

I can remember being deeply touched in Sydney by two Paralympians from Africa. They had seen something about the Games in a newspaper.

They trained, raised the money themselves and got to Sydney to represent their people, even though they knew they would not be medal winners.

When I saw those two guys at the opening ceremony, carrying their flag, I had tears in my eyes. They will have had the respect of their people for that and will have inspired more people with disabilities to take up sport.

There will be so many unsung heroes like them at the Paralympics in London next year.

The Paralympic World Cup in Manchester in May is a precursor to next year’s main event. It has become an important annual stepping stone in the calendar year on year, since its inception in 2005.

For paralympic athletes, opportunities are limited to take on your main rivals in high pressure situations, at multi-sport events.

When I first came to this country from Nigeria, I used callipers. I had contracted polio as a small child and used callipers until I was 13.

The first thing I saw when I started at primary school was kids playing football in the playground. It took about two break times before I was allowed to join in. I was picked last in the line-up.

Growing up as a kid in London, I had always dreamt of playing football for England. I can remember being put in goal in primary school, someone taking a shot, and me saving it. He was the best player in the school.

All the kids were pointing and talking. Then one of them — one of the tough kids – pushed all the others out of the way, and told them never to laugh at me. I became a playground legend in that moment.

That said, I had a pretty bad experience with sport at school. I think it was my third year in primary school when I finally plucked up the courage to ask the school football coach if I could get a chance in the school team.

He didn’t even give me a reply. So from then on I just played football in the playground.

You’ll find that most paralympians have had to fight for what they’ve got.

I started off as a weightlifter, and was British junior wheelchair champion as a powerlifter at 15. I was selected for the World Championships in Miami, but my dad wouldn’t let me go because it was my GCSE year.

I was then asked to join a basketball team, and I left home at 17 to play my sport. Wheelchair basketball gave me my niche.

Most people recognise me from the BBC Ident a few years ago, turning tricks in my basketball wheelchair, and it probably changed my life.

I’ve had a career in television ever since, and will be working on Channel 4’s coverage of the Paralympic Games.

Emmerdale’s Jackson Walsh In Assisted Suicide Shocker

February 22, 2011

A PARALYSED character in Emmerdale is to die in a controversial assisted suicide storyline, The Sun can reveal.

Jackson Walsh’s mother and his lover crush a lethal dose of tablets in a drink.

The ITV1 soap, watched by eight million viewers, was slammed last night by campaign groups who fear the producers are using the plot just to “chase ratings”.

Jackson, played by Mark Silcock, 22, was injured in a road smash last year.

He will ask boyfriend Aaron Livesy (Danny Miller) and mum Hazel (Pauline Quirke) to help end his life.

An Emmerdale insider last night said: “Jackson will start discussing plans to end his life in the next few weeks.

“His resolve to see it through will strengthen, which will lead to many rows and emotional scenes.

“Throughout the plot, there will be a phone number on screen for a helpline for anyone affected.”

Industry watchdog Mediawatch-UK slammed the storyline. Spokesman David Turtle said: “Emmerdale has been trying to push the boundaries for some time just to boost ratings. It’s a soap, not a serious discussion about a serious topic.”

Alistair Thompson, of the Care Not Killing Alliance, said: “I hope this is done for the right reason and not to chase ratings.”

In 2000 EastEnders character Ethel Skinner took morphine pills, aided by friend Dot Cotton.

Assisting a suicide can lead to 14 years’ jail.

An Emmerdale spokeswoman said last night: “We do not confirm or deny speculation about future storylines.”

Scope have Tweeted asking what people think of this storyline idea. Personally, I don’t agree with assisted suicide because, as a disabled person who cares deeply for my family and friends, I could not make anyone I love live with the knowledge that they had killed me, whether or not this would lead to them going to jail. Apart from that, every life is equally valuable. Many disabilities already shorten lives far too much, and I don’t see why anyone should be given the right to make those lives any shorter than they have to be. I believe in disabled people’s right to live as well as is physically possible, with as much support as we need to do this.

I don’t watch Emmerdale, but I know it is very popular in the UK. Personally, I feel quite sad to think that a programme with an audience the size of Emmerdale’s would consider covering such an issue. I really hope that if and when this storyline hits the screen, it is properly and thoroughly researched, and not covered in a way that leads to anyone, disabled or not, being given the idea that assisted suicide is somehow suitable for every disabled person.

Guardian Interview With Cerrie Burnell

February 22, 2011

I’m linking to this interview from yesterday’s Guardian with the DisAbled CBeebies presenter, Cerrie Burnell. It’s good to see that two years after she first hit the headlines, Cerrie continues to be an inspiration to anyone with any DisAbility. She has always had, and will always have, my best wishes for a very successful career.

Grandmother Admits Kicking Disabled Grandaughter, 12

February 21, 2011

An Edinburgh grandmother has admitted kicking her 12-year-old granddaughter who has learning difficulties and is unable to speak.

Edinburgh Sheriff Court heard the attack on the girl in October 2010 was seen by witnesses, who then phoned the police.

The 57-year-old woman admitted carrying out the attack on the girl, who cannot be identified, in Craigmillar.

Sentence was deferred until next month for background reports.

‘Very distressed’

Fiscal depute Malcolm Stewart said: “The girl has profound learning difficulties to the extent she is unable to communicate verbally although she uses a form of signing.

“At about 1320 GMT two witnesses heard the sound of a disturbance and when they looked they saw the accused standing over the girl who was lying on the ground.

“The witnesses saw the accused kick her to the left side of the body while she was on the ground and they were very distressed by what they had just seen.”

Mr Stewart said the woman was arrested and at the police station she told officers she had simply lost her temper.

Defence agent Keith Leishman told the court the girl was in care and her grandmother now only had supervised contact with her.

George Hudspeth

February 21, 2011

What a miracle.

George Hudspeth had been registered blind for 10 years after he was diagnosed with dry macular degeneration, an incurable condition that eventually led to him losing his sight completely a year ago.

However, George amazed his doctors when he suddenly found he could see again, and it all happened after he spoke to a photograph of his late wife.

The BBC’s Bill Turnbull spoke to George from his home in Daventry, Northamptonshire and to Helen Jackman, the Chief Executive of the Macular Disease Society.

Cast Offs’ Dan Joins Hollyoaks

February 21, 2011

I’m very pleased to read that Peter Mitchell, better known as Cast Offs’ wheelchair using character Dan, is making his debut on Hollyoaks tonight. He’ll be playing Pete Hamill, the new head teacher of Hollyoaks High.

Thanks to Hollyoaks for casting a talented wheelchair using actor in a role that doesn’t appear to focus on his disability. I don’t watch the show, but I hope fans accept and enjoy Peter’s role.

To mark the occasion, BBC Ouch have interviewed him.

Celebrities Support Dignity In Dying Campaign

February 21, 2011

Actor Sir Patrick Stewart, author Ian McEwan and former England cricketer Chris Broad have pledged their support to a campaign calling for a change in the law on assisted dying in the UK.

Dignity in Dying, which aims to legalise the choice of assisted dying for terminally ill, mentally competent adults, said the trio of new patrons were among more than 30 additional high profile supporters of their campaign in the last 12 months.

Sir Patrick said: “We have no control over how we arrive in the world but at the end of a life we should have control over how we leave it.”

Broad’s wife Michelle was suffering from Motor Neurone Disease and ended her life alone when her suffering became unbearable.

He said: “My wife Miche died alone because she had an incurable disease. She was a very gregarious person and to die alone because the law wouldn’t allow loved ones to be with her at that time must have been awful for her.

“We are, by nature, creatures who make decisions and like company. Why then if we are struck down with an incurable disease are we forced to end our lives alone? This law must change and I support Dignity in Dying in their pursuit of this.”

McEwan’s support for a change in the law was reinforced by one of his friends, Dr Ann McPherson, becoming terminally ill with pancreatic cancer.

He said: “People who have a definite terminal illness and who are mentally competent and who want to be able to die and to do so on their own terms should be able to do so without criminalising the people around them.

“There is a lot of unnecessary suffering caused by people either having to leave their homeland to go and die or people having to criminalise near family and friends. The case seems to be quite overwhelming.

“The issue is not really of death but of how you live out that last chapter, those last sentences. To do it calmly with all the people around you that have mattered and you love in familiar surroundings should be a wonderful thing – not to be writhing on a hospital bed or sitting glumly several hundred miles away from home.”

Cornwall Speech Therapy Pilot Project Gets £250K Grant

February 21, 2011

A speech therapy pilot project in Cornwall has been awarded £250,000 by the National Institute for Health Research.

The Seeing Sound project will test a method which uses a computer to show the tongue movements of children.

The Electropalatography treatment helps the child to modify the movements of their tongue for particular sounds, with clearer sounding speech.

It will be tested over the next two-and-a-half years.

NHS Cornwall and Isles of Scilly’s Lucy Ellis, chief investigator on the project, said: “I am delighted that the project has received this fantastic grant.

“Improved communication in hearing impaired children is of fundamental importance in helping them with their social lives, ensuring that they flourish at school and in making emotional attachments to those around them.”

Fire At Estonia Orphanage Kills Ten Disabled Children

February 20, 2011

A fire has raced through an orphanage for disabled children in western Estonia, killing 10 of them, a rescue service spokesman said.

There were 37 children and nine adults inside the wooden building when the fire started in the coastal town of Haapsalu, said Viktor Saaremets, a spokesman for the Western Estonia Rescue Services Centre.

“By the time rescue workers and firefighters arrived at the scene three or four minutes later the building was completely in flames,” he said.

Ten children were killed and one adult was injured, Saaremets said. The others were evacuated to a nearby building and were not hurt, he said.

The cause of the fire was not immediately clear.

“Fire safety inspectors went there in January and found that the building met all the necessary criteria,” Saaremets said.

The Estonian government met for an emergency meeting after the blaze and declared Monday a nationwide day of mourning.

Estonian president Toomas Hendrik Ilves expressed his condolences.

“The tragic accident in the Haapsalu orphanage shocked the whole of Estonia today,” Ilves said in a brief statement.

The Haapsalu orphanage was opened as a home for disabled children in 1950, when Estonia was occupied by the Soviet Union, according to its website. In 1996 it moved into the current building, which was funded by the Estonian government as well as Swedish, Finnish and US donors.

Blind Man Left Stranded On Eurostar Service

February 19, 2011

A blind man from Kent is considering taking legal action against Eurostar after he was left stranded on a train in Brussels.

Dr Tom Pey, chief executive of the Royal London Society for the Blind and Dorton House School, in Seal, had asked for a conductor to help him on arrival.

He was travelling to the European Parliament to press for improved rights for guide dog owners.

Eurostar has apologised, blaming “a breakdown in communication”.

Dr Pey, who is registered blind and can only distinguish between light and dark, described the experience on 2 February as “distressing”.

He travelled to Brussels from Ebbsfleet International station in Kent, but had chosen not to take his guide dog on the return journey.

Instead, he had arranged in advance to be guided off the train by a Eurostar employee.

When no-one turned up, he was left to wander around the station in Brussels for more than an hour before he finally found his way out.

“For me it was just terrifying because you literally don’t know where you are, and if that happened to you in London for instance, at least you know how you can stop and ask for help,” he said.

“When you’re in a foreign country it doesn’t necessarily work that way and you’re pretty much on your own.”

‘Rare situation’

A Eurostar spokesman said: “This was obviously a distressing experience for Dr Pey and we called him last week and apologised unreservedly.

“We are committed to providing support to all our passengers who require assistance and while situations like these are thankfully rare, this incident is being taken extremely seriously.

“Together with our SNCB [Belgium’s national rail company] colleagues at Brussels Midi we are currently investigating why this happened and are committed to preventing any further such incidents.”

It said it had offered Dr Pey two pairs of first-class tickets to be used for fundraising purposes, and had also offered to make a financial donation to the Royal London Society for the Blind.