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The Personal Is Political

April 14, 2015

“The Personal Is Political” started out as a feminist slogan. But when I heard of it recently, I was reminded of my early days as a disability blogger.

In the early days of Same Difference, I was asked what inspired me to go into politics. I responded that I wasn’t in politics, that politics was far too serious for me. I was just a person living with a lifelong disability and trying to show the outside world, through my writing, that disabled people can do amazing things and have positive lives, too.

To me, my wish to focus my writing on disability, on the positive things disabled people can do, was simply a personal one. It was inspired by a lifetime of personal struggles. A lifetime of being told that I couldn’t do what I wanted to do because I am disabled. A lifetime of watching my wonderful, intelligent, inspirational, personal friends struggle to prove their intelligence and go to school- because they are disabled.

It took me quite some time to realise that Disability Rights is politics. That I was in politics. That I am in politics. That I have been in politics, without knowing it, all my life. Since birth, in fact.

Because since birth, I’ve been part of the disability community. A community that has faced many struggles, as have feminists. A community that still has many struggles to face, and probably always will. A community that works hard to reduce struggles and improve situations for ourselves, and for those yet to join us.

I strongly believe that those who care for us- our parents, siblings and later, partners or spouses or even children, are also members of our community. Their support can be very valuable, because they, the non-disabled, are always taken seriously by wider society, while we disabled people, most of the time, sadly, are not.

Of course, I didn’t know all this at birth, and neither did my parents. In the early years of my life, we all faced very personal struggles to come to terms with the specific problems I would face, which were personal to me. My parents must have faced very natural and understandable feelings of sadness, maybe even grief, as we all realised exactly what my challenges and my limits would be.

What can be more personal to a person, to a family, than coming to terms with disability? With a difference, a very significant, visible difference, that was so unexpected to parents?

My parents had never heard of my disability before I came into their lives. Their friends had never heard of it. Many parents of disabled children describe facing difficulties when their friends don’t understand what their lives become. What can be more personal than that?

Studies have shown that couples who have disabled children are more likely to separate or divorce as a result. What can be more personal than that?

Yet the wide, welcoming, and in my eyes at least, wonderful, disability community that we have formed is far from personal. It has members of all races and religions. Members of all ages and nationalities. Members I meet every day and members I have never met.

And the political disability community has grown over my personal lifetime. In Western countries in the late 20th century, disabled people used to get together in small groups and protest on streets, chaining themselves to buses, buildings and similar. Now, the birth of the Internet has allowed the disability community to grow larger than ever before. It has made valuable information available to frightened parents, fast and free of charge, at the click of a mouse. It has allowed severely disabled people to make friends on social media, from the comfort, safety and accessibility of our own homes. Friends who offer valuable support and complete understanding- because they face the same situations in their daily lives, even though they may not live in the same town or even the same country. Most importantly, the birth of the Internet has made the politics of disability safely accessible to many people who can’t attend street protests because they, or the person they care for, are often too ill to participate.

The disability community has always been there, waiting to support and welcome those who were ready to look for advice and meet others who shared their challenges. Whenever a group of people who face similar challenges and struggles come together to fight their situation, a political movement is created.

So the personal has always been political for disabled people, too. Now, with the Internet, our personal is more political than ever before. So, feminists, I borrow your slogan, with thanks.

4 Comments leave one →
  1. Methusalada74's avatar
    April 14, 2015 3:28 am

    You life experiences & your journey intrigued me. I hope that you are able to write & share much more with those whom you really wish to reach.

    Like

  2. Methusalada74's avatar
    April 14, 2015 3:32 am

    I personally would like to know more about your school years if possible .

    Like

    • samedifference1's avatar
      April 14, 2015 9:21 am

      I had mainstream education, mostly. In my day no one in special schools took exams, even if they had the intelligence. So I had few friends in school and those I had, sadly, didn’t really last.

      Like

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    Like

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