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Wheelchair diva takes up the dance floor in her local music bar/nightclub. This is what the appropriate funding can help us do. Without it we have no access to our Community and are socially excluded and isolated; not by choice, but by just the lack of funding. They only care for funding personal care Assistants, also known as P.As, to provide time to shower and nothing else in our lives. Until crisis. The bare minimum is all that’s important to them not the fact that we are allowed other things in our life. This is why I am fundraising for my Care and support fund constantly, so I don’t have to wait for their permission to actually live a good quality of life where I have less flareups and less illness. People are with me to manage that illness if medical needs arise from it this is living a decent and acceptable quality of my life with FND and chronic pain including neuropathic pain

May 4, 2026

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