Man ‘Scared’ To Book Taxis After Guide Dog Incident
A partially sighted man who uses a guide dog says he feels scared to book taxis after an “upsetting” experience with a driver.
Samuel Willder, 24, from Swindon, relies on his dog, Bryony, for mobility and independence.
He booked a taxi at night from the company Veezu in the Penhill area in September, but claims the driver initially refused to let him into the vehicle. By the end of the journey, he says he was left feeling frightened at the roadside with oncoming traffic.
A Veezu spokesperson said the company took the allegation extremely seriously and had acted immediately by reminding the driver of his legal obligations.
Describing the driver’s reaction when he first saw Bryony, Mr Willder said: “He refused and said, ‘I’m not allowing any dogs into my car’.
“I explained that she’s a guide dog and helps me with my vision, but he still said, ‘No, I’m not allowing guide dogs’.”
Mr Willder said that after informing the driver it was illegal to refuse a guide dog, he was eventually allowed into the vehicle, but the journey was unpleasant.
He claimed during the journey had an “argumentative mood” and was swearing.
Mr Willder added that the driver refused to help him out of the car and dropped him at the wrong location.
He said: “A car was very close to us when we got out, which could have been avoided if he’d helped me…I had to go and find a nearby site to see exactly where I was in town and then struggled to find myself back home.”
Mr Willder said the experience has left him feeling unsafe and scared to use taxis again.
“I don’t want another taxi to treat me the same way,” he said.
Jessica Luke is regional policy and campaigns manager at charity Guide Dogs and a guide dog user.
She said: “It’s almost always illegal to refuse a a guide dog. It’s a deeply harmful form of discrimination.
“It’s prevented me from getting to to work on time, to medical appointments, social events.
“I think it’s really important that staff training includes awareness of the rights of assistance dog owners.”
A Veezu spokesperson said the company was committed to providing a safe, inclusive, and respectful environment for all passengers.
“The drivers conduct fell short of expectations and he has been reminded of his legal obligations and duty of care towards all passengers,” they said.
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I Swear- A Review
I Swear is a biographical film which follows John Davidson from Scotland to Buckingham Palace.
As a teenage boy John messes up a chance with a football scout because his early Tourettes Syndrome, which no one yet recognises as a disability, takes hold on the pitch- to everyone’s confusion. His parents, at this moment and many others, lack understanding and consider him rude and foolish.
Viewers are taken through his diffcult secondary school life to his twenties, where a chance meeting with a schoolfriend in a supermarket changes his life for the better. His friend’s mother, Dottie, takes him in and shows him care and understanding. She arranges a job for him with Tommy, who almost ignores his Tourettes and simply asks him to make tea as part of the interview (disabled adults, take note for your future PAs!).
Tommy encourages John to educate the world about Tourettes. Eventually John becomes a campaigner who supports young people and their families who are living with Tourettes as well as educating organisations and authorities. He recieves an MBE for his campaigning and swears at The Queen!
As the title suggests, the film contains a lot of swearing. The good news is that in 2025, unlike 1975, everyone knows that the swearing and tics are completely unintentional and caused by a recognised medical condition.
I’m very glad I went to see this film. I came away with admiration for John Davidson and new information about the history of Tourettes. I recommend it highly.
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AI Sensors Help Hundreds Live Independently At Home
Hundreds of people are now able to live more safely and independently at home in Medway thanks to new care technology.
The system, called Lilli, uses small, discreet sensors and artificial intelligence to understand a person’s daily routines, helping people stay in their homes and avoid unnecessary moves into residential care.
Medway Council said the technology had already helped save £1.6m in its first year.
Brett Burnell, whose father Keith lives with dementia and has the system installed in his flat, said: “I can check that he’s safe within his home and it allows him to continue to be at home for the foreseeable future.”
The programme is delivered by the council’s wholly owned tech partner Kyndi and supports “national health and care goals to move services into communities – and use digital tools to improve care”.
Mr Burnell said: “My dad’s obviously frail and getting older. It means that I can know what my dad is doing on certain occasions.”
He added that both he and his sister have the Lilli app which monitors their father’s activity, and “obviously I can check that he’s eating when the fridge is opened and I know that he’s awake and that he’s able to get everything”.
Councillor Teresa Murray, deputy leader of Medway Council, said the data was “helping us to transform how we deliver care”.
She said that in some cases the data has shown that an individual was no longer able to live alone, but it had also given “much-needed reassurance to families that their loved ones are safe to stay in their homes and communities, which is where they want to be”.
The technology works without cameras or microphones. Instead, small sensors track movement, eating, sleeping, bathroom use and home temperature.
The system learns what is normal for each person and flags anything unusual, such as signs of illness, reduced mobility, or wandering at night.
This helps carers respond earlier and tailor support to individual needs.
Medway is one of several councils trialling the system in response to growing demand for care.
The local authority said it was already helping older people and adults with learning disabilities get faster assessments and avoid health crises.
Evidence produced by the company suggests that for every £1 spent councils can save £45 and free up thousands of carer hours.
Clare Burgess, CEO of Kyndi, said that as well as the financial advantage the technology would offer a “social impact within Medway as people are more connected to their communities”.
“This really makes a difference to people’s lives,” she added.
I Swear- New Film About Tourettes
An actor starring in a film about Tourette’s syndrome said it was the “biggest challenge” of his career.
Robert Aramayo, who is from Hull, plays John Davidson, who became the reluctant poster boy for the condition in 1989 when he was 16.
The Lord of the Rings and Game of Thrones actor said he spent a lot of time with Mr Davidson during filming of I Swear.
“It was a real challenge, probably the biggest challenge I’ve done. Having John there and having his guidance and help was invaluable,” Aramayo said.
‘Pinch yourself moments’
Tourette’s syndrome is an incurable condition, external that causes someone to make sudden, repetitive sounds or movements, known as tics.
Mr Davidson, now 54, is credited as the person who introduced it to many people through a series of documentaries, beginning with John’s Not Mad in 1989.
He was later appointed MBE for his campaigning.
The comedy-drama film by Kirk Jones also features Maxine Peake, Shirley Henderson and Peter Mullan.
While speaking to BBC Radio Humberside, Aramayo praised his colleagues and described them as “incredible actors”.
He said there were “pinch yourself moments” while working with “legends”.
“It was intimidating but also the focus was on telling the best story that we could and that’s why they’re all amazing at what they do,” the actor added.
Aramayo said it was a “surreal experience” when he returned to his home city for a screening of the film, where his history teacher was in the audience.
“It was really, really lovely to be back in the Odeon where I used to go and see all kinds of films there when I was a kid,” he said.
He advised those in Hull who wanted to act to “just go for it”.
“I was lucky enough to be involved in Hull Truck Theatre and they’re amazing and I’m sure there’s loads of groups like that,” he said.
“If you believe it, just go with it.”
I Swear is in UK cinemas from 10 October.
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DWP Privately Admits Phone Delays May Be Driving Rise In Risk Of Claimant Self-Harm
With many thanks to Benefits And Work.
The DWP has privately admitted to stakeholders in the last few weeks that ESA phone delays may be contributing to a rise in the risk of claimants harming themselves. This is in stark contrast to hugely positive findings of the DWP’s customer experience survey, released last week.
The DWP have sent out an appeal to “stakeholders” – groups such as advice agencies and charities – asking for help solving the problem of “pain points” experienced by ESA claimants trying to get through on the phone:
“We are interested in identifying the pain points faced by ESA customers communicating with DWP, particularly issues surrounding telephony and the pain points our customers face when contacting DWP by phone.”
The DWP say that the number of ESA calls they are receiving is increasing and that “unresolved backlogs” are a key factor. But, says the DWP, “the link between backlog management, operational decisions, and customer behaviour isn’t fully understood.”
Additionally, the department is worried that efforts to clear the backlog “may unintentionally drive more customer contact, creating a cycle that strains resources and affects service delivery.”
In other words, they are worried that if they try to clear the backlog, they may make it even worse.
Even more concerningly, the DWP admit that “Additionally, 6 Point plan intervention during these phone calls are rising across all service lines, potentially due to delays impacting the customer experience.”
The 6 Point plan is a series of steps DWP staff are supposed to follow when a claimant says “that they intend to harm or kill themselves”. It includes summoning a colleague to act as a support partner, gathering information to gauge the level of risk and either providing referral advice or summoning the emergency services.
For the DWP to admit that delays in dealing with benefits enquiries could be causing claimant’s such distress that they may harm themselves is, to say the least, unusual.
It is also a very far cry from the findings of the wildly upbeat customer experience survey published last week, which found that:
76 per cent of customers agreed that it was easy to contact DWP about their benefit claim.
80 per cent of customers agreed that it was easy to use DWP services.
80 per cent of customers were satisfied with the time it took DWP to tell them the outcome of their new claim or change of circumstances.
There is no mention whatsoever in the survey results of some claimants becoming so distressed by the difficulties they experience using DWP services that they are at risk of harming themselves.
In their email to stakeholders, the DWP say that “We believe that our shared clients’ experiences are crucial to shaping a better system. Their stories of dealing with DWP processes will help us identify not only practical pain points but also the emotional toll that service delays can have on their lives. We are especially interested in capturing their feelings, anxieties, and any challenges they’ve faced when interacting with these systems.”
The department is asking stakeholders to tell them, in particular, about:
- “Contacting ESA/New Style ESA telephony service lines
- Any difficulties or frustrations they’ve had when interacting with ESA
- Any barriers or challenges faced when liaising with ESA
- Their feelings, anxieties, or positive experiences with these systems and services.
- Suggestions on how these processes could be made more accessible, user-friendly, and emotionally supportive.”
It is a positive thing that the DWP are trying to find ways to make their service more emotionally supportive.
The fact that they are being so secretive about the problem and their apparent reluctance to make the most obvious change of investing more resources in ESA telephony is very concerning, however.
And the chances of any of the findings of this research being made public by the DWP is almost certainly zero.
Disabled Strongwoman Hopes To Tackle Gym Stigmas
A personal trainer (PT) who is the country’s strongest disabled woman is calling for more people with disabilities to lift weights to tackle stigmas.
Louise Greer, who is a PT in Gloucester, said the assumptions she faced discouraged her when she first started lifting weights, but in September won Britain’s Strongest Disabled Man & Woman for the third consecutive year.
Ms Greer had meningitis and sepsis at two years old, resulting in her legs, left arm and her most of the fingers on her right hand being amputated.
The 28-year-old said: “When I started lifting there were no disabled PTs I knew of, especially not in the South West. So I said ‘you know what, I’m going to change that’. So I did.”
Strongman is a sport which sees athletes use raw strength and endurance to lifting, carrying and pulling awkward objects such as logs and stones.
Ms Greer said she discovered her love for the gym while at Hartpury University, but able-bodied PTs would “wrap me up in cotton wool”, telling her to “stay away from weights and stick to cardio-based machines”.
“When I started in the gym scene it was like ‘awh, the disabled kid is trying to get fitter’. I’m like ‘no, I want to bash records’,” she told BBC’s Extra Time programme .
“They said ‘are you ever going to get your PT qualification? Can you?’.”
She has also qualified for the World’s Strongest Disabled Woman, which takes place in Texas in November, and is raising money via a crowdfunder for her trip as she does not receive funding.
Ms Greer, who is originally from Northern Ireland, hopes to inspire more people with disabilities to try lifting weights in the gym.
“Go for it, you’re never going to know. If it doesn’t work, it doesn’t work. I went in saying ‘I will make this work’,” she said.
‘Do your own thing’
“If you want it, there’s going to be a way around it. If you know there’s a sport on and there’s a disabled person, go watch it. You’ll get ideas from it.
“There’s always ways around, If there’s a will there’s a way.”
Gary Clarke, who is the Britain’s first disabled strongman and is a key organiser in the event Ms Greer won, said he’s been training for 32 years after “biting the bullet and not worry what anybody else thought”.
“I knew I had a goal in mind to get bigger and stronger. To to be honest it’s the best thing I’ve done,” the 48-year-old from Chard, Somerset, said.
“Get out and do it, don’t worry about what other people think and do your own thing.”
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Job centre work coaches say they are struggling to find employers who can accommodate disabled people and get them into work.
The BBC spoke to two work coaches, who said opportunities are hardest to come by for those with long-term health conditions who may require a level of flexibility or additional support.
It comes as new data obtained by the BBC from the Department for Work & Pensions (DWP) suggests that the number of job seekers finding work each month is falling.
The DWP says they are “reforming a broken system by shifting our focus from welfare to work, skills and opportunities – backed by £1bn a year for employment support by the end of the decade”.
Mark Byers, a work coach of 15 years and a Public and Commercial Services Union rep, says there is a lack of employers able to provide support in the workplace for those with long-term health conditions.
He says work coaches are being stretched as they try to manage their caseloads, adding that his own workload has increased dramatically since he started the job.
“It feels like you are fighting with one arm behind your back,” he says.
“All appointments are 10 minutes, and once you’ve got through the security checks there is not much time. These short appointments mean you’re just being a benefits policeman.”
According to latest estimates, just over half (53%) of working-age disabled people are employed, compared with more than four in five (82%) non-disabled people.
The disability employment rate has not improved since 2019.
Overall, the average proportion of benefits claimants successfully finding work each month – known as the into-work rate – has fallen too.
It was 7.6% in the year to April 2025, below pre-pandemic levels and down from almost 10% in mid-2022.
There were 16,640 work coaches employed by the DWP in August, according to data obtained through a Freedom of Information (FOI) request – the lowest number since March last year and well below the Covid peak of more than 23,000 in 2021.
But the DWP now projects that it has more work coaches than it needs, having estimated a shortfall of thousands earlier in the year.
It has created spare capacity by reducing the amount of support for claimants across the country, including shortening initial meetings and cutting the number of follow-up appointments.
Previously, the Public Accounts Committee criticised what it called the DWP’s “seemingly complacent assurances that this reduction in support has had minimal impact on claimants”.
In March, the government said it wanted to redeploy 1,000 work coaches to provide personalised and “intensive” support to thousands of sick and disabled people.
The redeployed work coaches are not new recruits, but ministers hope they will help with the government’s ambition to achieve an 80% overall employment rate and cut the rising cost of health and disability benefits.
Saul Cahill, a work coach at a busy job centre in Gateshead and another PCS Union rep, says people with health conditions and disabled people are often the most difficult to support into work.
He says delays in other services like the NHS mean it can take longer to find someone suitable employment.
One person he has been supporting, who he says has been “really engaged” in their search for work – despite having a long-term health condition which means they are not required to do so – has been in his caseload since he started four years ago.
Many employers are simply not able to accommodate some disabilities, Saul says, while time constraints also mean he can not help them as much as he would like.
“I might be sitting with someone who is, on paper, doing all the right things and doesn’t seem to be getting any response,” he says.
“I’d love to sit down with them [and] go through the job applications together, and that’s not necessarily possible.
“People get very frustrated.”
Around 1.6 million universal credit claimants are in what’s known as the “intensive work search” category.
They are fit and able to work, but are either not working or working with very low earnings.
These claimants require significant support from a work coach, including meeting weekly for the first 13 weeks of their claim, and either weekly or fortnightly after that.
Almost 300,000 intensive work search claimants have been job-seeking for more than five years, 18% of the total.
Data from August shows there were 95 intensive work search claimants for every work coach.
Job centre funding allows for an average caseload of around 100, according to the National Audit Office (NAO).
But there are regional differences in the average caseloads being managed by work coaches around the country.
Caseloads were highest in Birmingham and Solihull, with an average 115 claimants per work coach, and lowest in South West Wales with 79.
Across Great Britain, the number of people claiming universal credit with no requirement to work – including those deemed unable to work due to ill health – has surged from fewer than 700,000 in January 2020 to more than 3.8 million in August 2025.
Part of the rise in claims is due to people moving on to universal credit from previous benefits, such as employment and support allowance (ESA).
But analysis by the Resolution Foundation think tank shows there has also been a genuine rise in the number of people out of work due to ill health.
In September, the new work and pensions secretary Pat McFadden said reform of the welfare system “must happen” to support people into work and address the rising cost of benefits.
Over the summer, the government walked back on its attempt to cut nearly £5bn off the disability and health-related benefits bill as it faced a rebellion of Labour MPs.
Many of the more significant changes are now subject to a review by disability minister Sir Stephen Timms.
But McFadden said welfare reform was “happening all the time”, adding that he would not rule out any changes.
The current system is “not getting the help to people who could work”, he added.
A DWP spokesperson said ministers were “delivering the biggest reforms to job centres since the early 2000s to end the tick box culture, giving staff the flexibility to offer a more personalised service to jobseekers and help them into good, secure jobs”.
“To help areas with the highest levels of economic inactivity we are rolling out a programme to connect offers of work, health and skills support for the people who need it.”
I’ve been desperate to make a documentary about special educational needs and disabilities (Send) for ages.
You might know me as EastEnders’ Linda Carter but I’m also a mum to my autistic son. He’s also dyslexic and has ADHD.
It took months of perseverance and hard work from my husband and I to try to get the right education for him. At times, it felt like a battle.
That is why I wanted to make this film for Panorama, so I could meet other families who were going through the same thing, and speak to teachers, councils and the government about how Send children are educated in England.
There are more than 1.7 million children in England with Send. It is a broad group, including autistic children and people who struggle with speech and language, have ADHD and physical disabilities, among other conditions.
Schools in England already provide some support to these students but if parents think their child needs extra help they can make an application to their council for what’s called an Education, Health and Care Plan (EHCP).
An EHCP is a crucial document because it is legally binding, states where a child should go to school and outlines how much extra support they should get.
My husband and I spent hours filling in the forms to request an EHCP and many families find the process very frustrating.
Buddy and Tunde
Not long after I meet 15-year-old Buddy, he shows me his favourite cuddly toy, Reindeer Dog.
Buddy’s autistic, meaning his brain experiences and reacts to the world in a different way from many people’s. He struggles with meeting people his own age, understanding his emotions and anxiety. Buddy likes to keep Reindeer Dog close to him.
After moving to London from Scotland in October 2024, Buddy’s mum, Tunde, started applying for schools. She says she tried at least 11 schools but many of them didn’t get back to her, and those that did said they were full or could not give Buddy extra support without an EHCP.
At the start of this year more than 638,000 EHCPs had been issued to children and young people in England, a 10.8% rise on the year before and an 80% increase in six years.
The increase is partly because parents and schools have got better at identifying children who have special educational needs, especially autism, as opposed to there being more children with Send.
It is the second time Buddy and Tunde have applied for an EHCP. Their first application was turned down before Buddy was assessed. Councils reject about a quarter of EHCP applications at the assessment stage, according to the Department for Education.
When they lived in Scotland, Tunde says they did not have to apply for the equivalent of an EHCP. Buddy’s comprehensive school arranged support for his learning, although not for his emotional needs.
Scotland has a different system for helping children with Send; schools there aim to deliver more support without the need for parents to apply for the equivalent of an EHCP.
“It’s a madness,” Tunde says. “[Getting extra support] was so easily done, and it could be easily done again.”
While Buddy is not able to go to school, the council is providing him with 19 hours of lessons per week in the local library.
Tunde tells me the process of applying for an EHCP has been so time consuming she had to stop working as a midwife and health visitor for a time.
“I can’t do the parenting. I can’t get him to these appointments, and work at the same time… I couldn’t get my son seen in the right amount of time and see other people’s babies in the right amount time. And it was a toss up – and my son won,” she says.
We catch up with Buddy after a lengthy speech and language assessment.
“Draining… that’s all I’ve got for you,” he says as he leans against a fence, Reindeer Dog tucked under his arm.
A school for Buddy
It’s September and as millions of children start term, Buddy is still being taught in the library. Two months after I first met him, he’s getting an EHCP but his education is still not settled.
The council agreed to Tunde’s request that he go to an independently run school that works with children who struggle in mainstream schools.
Before Buddy can start there, the school has already taken over the lessons he receives in the library. But Tunde’s now not sure the school will be able to deliver what she believes her son needs to improve his social skills and confidence with children his own age.
“We were all prepared for September… and he’s still not at school, he’s still having one-to-one,” she said.
“I think … preparing to be around other kids and then still just being one-to-one with adults has really knocked him back and made him not want to go to school.”
Southwark Council says it takes Tunde’s concerns very seriously and it will continue to support her family to ensure they receive the provision they need without further delay.
It says it knows how hard it can be for families to navigate the system, and how distressing delays in securing support can be.
It says it has invested in a specialist information and advice team, and now ensures children are assessed by specialist teachers at the earliest stage, and it is open to reviewing the situation when parents are concerned about education placements.
‘The current system is broken’
I know there is another side to this story.
The huge rise in the number of EHCPs is putting councils under severe financial pressure. It is estimated by the Department for Education that English councils are set to run up a total accumulated Send deficit between £4.3bn and £4.9bn by March 2026.
The government says it has invested a billion pounds to help councils pay for EHCPs and £740m on new Send school places.
I went to West Sussex County Council to interview one of few people in local government prepared to talk to me on the record about Send funding.
Jacquie Russell is a Conservative councillor and cabinet member for children, young people and learning.
“The current system is actually very adversarial. Our parents are increasingly tired and anxious and fed up of fighting… Staff sickness levels are really, really high at the moment,” she says.
“The current system doesn’t work. It is broken. It’s not delivering the best outcomes for children.”
Demand for EHCPs is now outstripping funding in West Sussex. In 2015, the council had about 3,400 children with an EHCP. Today there are more than 10,000.
As a result the Send deficit has been growing year-on-year, so that at the end of 2025 it stands at more than £123m.
“That [money] is really essentially meant to be for local services. That would have ordinarily gone to repair your roads… and other local services,” she says.
“The current position is not sustainable.”
The government agrees. It is planning major reforms of the Send system, though final plans have not yet been agreed.
The minister for school standards, Georgia Gould, told me the upcoming reforms were “not taking support away from families”.
“We’re wanting to put more support in earlier,” she said. “Where people have fought for support, and that’s in place, we want to make sure that that support continues.”
She also told me she wanted to work with parents to get the reforms right and to get support at the “earliest possible point rather than having to battle”. The minister added that parents would still have a “legal basis” to get support.
For me, and thousands of other parents of Send children, applying for an EHCP feels like a battle about your child’s future. Who does not want the best possible education for their son or daughter?
But for every parent fighting, there is a council counting the cost.
All eyes are now on the government to see if its reforms can relieve the pressure on so many families.
Former England Rugby Captain Moody Reveals MND Diagnosis
Former England captain Lewis Moody has revealed he has been diagnosed with motor neurone disease and admitted he cannot yet face the full implications of the muscle-wasting condition that killed fellow rugby players Doddie Weir and Rob Burrow.
The 47-year-old, who was part of the 2003 Rugby World Cup-winning side and lifted multiple English and European titles with Leicester, spoke to BBC Breakfast two weeks after learning he has the disease.
“There’s something about looking the future in the face and not wanting to really process that at the minute,” he said.
“It’s not that I don’t understand where it’s going. We understand that. But there is absolutely a reluctance to look the future in the face for now.”
Moody, speaking alongside his wife Annie, says instead he feels “at ease” as he concentrates on his immediate wellbeing, his family and making preparations for when the disease worsens.
“Maybe that’s shock or maybe I process things differently, and once I have the information, it’s easier,” he added.
Moody discovered he had MND after noticing some weakness in his shoulder while training in the gym.
After physiotherapy failed to improve the problem, a series of scans showed nerves in his brain and spinal cord had been damaged by MND.
“You’re given this diagnosis of MND and we’re rightly quite emotional about it, but it’s so strange because I feel like nothing’s wrong,” he added.
“I don’t feel ill. I don’t feel unwell
“My symptoms are very minor. I have a bit of muscle wasting in the hand and the shoulder.
“I’m still capable of doing anything and everything. And hopefully that will continue for as long as is possible.”
MND can progress quickly.
According to the charity MND Association, the disease kills a third of people within a year and more than half within two years of diagnosis, as swallowing and breathing become more difficult.
Treatment can only slow deterioration.
“It’s never me that I feel sad for,” added an emotional Moody.
“It’s the sadness around having to tell my mum – as an only child – and the implications that has for her.”
Speaking from the family home with his wife and their pet dog by his side, Moody was overcome with emotion when he spoke about telling his sons – 17-year-old Dylan and 15-year-old Ethan – the devastating news, saying: “It was the hardest thing I’ve ever had to do.”
“They are two brilliant boys and that was pretty heartbreaking,” Moody said.
“We sat on the couch in tears, Ethan and Dylan both wrapped up in each other, then the dog jumped over and started licking the tears off our faces, which was rather silly.”
Moody said the emphasis was staying in the moment.
“There is no cure and that is why you have to be so militantly focused on just embracing and enjoying everything now,” he said.
“As Annie said, we’ve been really lucky that the only real decision I made when I retired from playing was to spend as much time with the kids as possible. We don’t get those years back.”
A knee problem prevented Moody taking up an invitation to play in the inaugural 745 Game last autumn.
The fundraising cross-code match, which brings together league and union stars, was the brainchild of Burrow and Ed Slater, the former Leicester and Gloucester second row who also lives with the disease.
Burrow died in June 2024, while Slater is now in a wheelchair and struggles to speak without the help of a computer programme.
Moody finds it hard to reconcile that he is now part of the match’s cause, rather than a supporter.
“It is daunting because I love being active and embracing life, whether it’s on the rugby pitch, watching the kids, whatever it is,” he said.
“There’s a lot of questions around what we need to put in place for the future. It’s still so new, I found out two weeks ago.
“I feel slightly selfish in a way that I’ve been reluctant to reach out to anyone, to Ed.
“But there will be a time when I can. And I would like to as well.
“If they’re watching – I’m not ready yet, but I absolutely will [be].”
Elite athletes are disproportionately affected by MND, with a study of Italian footballers suggesting the rate of the disease is up to six times higher than in the general population.
It is thought that by limiting the oxygen available and causing damage to motor neurone cells, regular, strenuous exercise can trigger the disease in those already genetically susceptible.
Moody, who won 71 England caps and toured with the British and Irish Lions in New Zealand in 2005, was nicknamed ‘Mad Dog’ during his playing career, in honour of his fearless, relentless approach to the game.
He played through a stress fracture of his leg for a time with Leicester and once sparked a training-ground scuffle with team-mate and friend Martin Johnson when, frustrated, he abandoned a tackle pad and started throwing himself into tackles.
After coming on as a replacement in the Rugby World Cup final win over Australia in 2003, he claimed a ball at the back of the line-out in the decisive passage of play, setting a platform for scrum-half Matt Dawson to snipe and Jonny Wilkinson to kick the match-winning drop-goal.
Moody has already told Johnson, who captained England to that title, and a couple of other former England team-mates about his diagnosis.
Geordan Murphy and Leon Lloyd, who Moody played alongside at Leicester, have set up a fundraising page to help support him and his family.
But many of Moody’s former team-mates will be learning his news with the rest of the public.
“There will be a time when we’ll need to lean on their support but, at the minute, just having that sort of love and acknowledgment that people are there is all that matters,” he said.
“Rugby is such a great community.
“I said to the kids the other day, I’ve had an incredible life.
“Even if it ended now, I’ve enjoyed all of it and embraced all of it and got to do it with unbelievable people.
“When you get to call your passion your career, it’s one of the greatest privileges.
“To have done it for so long with the teams that I did it with was a pleasure. And I know they will want to support in whatever way they can and I look forward to having those conversations.”
Today Is World Cerebral Palsy Day 2025
Since 2012, Cerebral Palsy organisations worldwide have been marking World Cerebral Palsy Day on October 6th each year.
Here at Same Difference Cerebral Palsy is our disability and is what drove us to start this site.
So every year on this day, we wear green, the colour of CP, and remind readers that today is the day to celebrate anyone with CP who may be in their everyday life.
Also, please remember the priceless place that parent carers have in the CP community. Their 24/7 caring roles will not end at midnight tonight and we could not do anything without them.
Paralympian’s Joy At Making It Down The Aisle
A paralympian has revealed how she surprised the congregation at her wedding after secretly training to make it down the aisle using crutches.
Suzanna Hext, 37, from Cornwall, who has been in a wheelchair since a horse-riding accident in 2012 left her paralysed, tied the knot with partner Gareth in the village of St Just-in-Roseland, in July.
The world-champion swimmer said even her own mother did not know she was planning to be “upright” getting to the altar, and “almost passed out” at the sight.
Hext, who recently uploaded a video of the big day to social media, described it as “the most perfect day – I didn’t want it to end”.
“As soon as we got engaged I told Gareth I really wanted to be upright in some way whilst going down the aisle with my dad,” said the gold-medallist, who was also six months pregnant at the time.
“Having no feeling or functional movement from the waist down, I had to practise and practise, and I had quite a lot of help from the team at the hospital I attend.”
She used a combination of crutches, fixed-leg splints and upper body strength.
“Everyone cheered when I reached the end, their reaction was incredible,” Hext added.
“It was a moment that I will treasure forever.”
Born and raised in Cornwall, her life changed forever when a horse she was breaking in reared up and landed on top of her.
The incident left her with life-changing injuries to her spine, head, pelvis and shoulder.
Years of hospital treatment followed but watching the Paralympics in 2012 encouraged her to stick with sport.
She won various medals as a para equestrian but took up swimming to great success in 2017.
Now living in Calne in Wiltshire, she is also deaf and wears cochlear implants.
Her hearing dog Kimmy, who she has credited with “transforming” her life, had pride of place at her wedding.
Paralympic Chief Expects ‘Reaction’ To Russia Ban Lift
The president of the International Paralympic Committee says he knows “there will be a reaction” from other countries over the decision to lift a ban on Russian and Belarusian athletes.
IPC members voted on Saturday to lift a partial ban, meaning the athletes can compete under their nation’s flags at future international events – such as the 2026 Winter Paralympics.
The partial ban – allowing athletes to compete as neutrals – was introduced in 2023, replacing a full ban after the 2022 Russian invasion of Ukraine.
IPC boss Andrew Parsons told BBC Sport countries have “the right to not like the decision made, and I do understand it. But we are a democratic organisation and our membership has spoken, knowing there will be reaction, knowing it’s a controversial topic”.
The Ukrainian National Paralympic Committee said the IPC had allowed Russia and Belarus to “raise their flags, drenched in the blood of hundreds of thousands of people”.
It added: “[We] condemn this disgraceful decision of the IPC general assembly, which discredits the International Paralympic Committee, and call on all national Paralympic committees worldwide against the admission of those who encroach upon the fundamental human right – the right to life.”
Despite the IPC vote, athletes will still need their individual sporting federations to lift their own bans in order to represent their countries.
For example, while the IPC decision would allow Russian and Belarusian athletes to compete under their own flags at the Winter Paralympics in Milan and Cortina d’Ampezzo in March 2026, the bans from the international bodies that govern the six sports on the schedule in Italy would currently prevent them from doing so.
Parsons, who was speaking at the Para Athletics World Championships in New Delhi, India, added: “Decisions made by the general assembly are made by more than 200 members. They took the decision – my job is to implement that decision.
“Many people know my personal position. I don’t think it’s worth mentioning now. I work for the IPC; I need to follow what is decided by the membership.
“History will tell – I don’t think we are on one side or the other; we are sports organisations. It’s something I don’t think is fair that only the world of sport has to be the one trying to solve issues when it comes to politics.
“I think politicians and world leaders have the power to make it happen, not us. Not sport administrators, not athletes.”
Cafe Helping Autistic Students To Thrive Reopens
A coffee shop in Mountsorrel is providing autistic students with valuable work experience designed to help them build confidence and employment skills.
Breward’s Coffee Shop is one of the enterprises at Homefield College, a specialist centre that offers education, training and independent living for people with learning disabilities.
When working at the cafe, in The Green, students take on responsibilities, including serving drinks, meeting and greeting customers, using the till and handling money, and taking a stock check.
The shop recently reopened after undergoing a major refurbishment, with more space for visitors.
The work at the shop helps the students gain confidence in areas including communication skills, maths, and functional IT, the college said.
Student Jacob Atkinson, 21, said working at the shop had helped him become a lot more confident with people in addition to getting work experience.
Sadie, 17, has been working at the coffee shop for a year and said she had been enjoying the experience.
She said it had helped her “communicate with my peers and be more confident”.
She also added that her favourite thing about working there was “taking the customer’s order”.
Chris Tullin, vice-principal at Homefield College, said: “We’re immensely proud of all students that come to the college, particularly the ones who work here at Breward’s.”
He said the students played a “real part” in the revamp of the shop, which now included bigger serving areas, more space in the kitchen and more seating for visitors.
Why I’m Challenging Nike, Adidas And Puma Over Single Shoes
Stef Reid grew up as a sports-obsessed child, dreaming of playing rugby internationally. But on the eve of her 16th birthday, her life changed forever.
Severe propeller lacerations from a horrific boat accident left doctors with no choice but to amputate her right foot.
Initially she continued to pursue rugby, but her agility and speed weren’t the same and she grew tired of comparing her performance to when she had both feet.
“I didn’t want to give up on my goal just because I was an amputee, but life is constantly changing and we have to update our goals instead of forcing them to work in a reality that no longer exists,” she says.
So she moved on from rugby and took up athletics. Using a light, springy carbon-fibre blade on her right leg, she eventually became a world champion Paralympic long jumper and sprinter for both Canada and Great Britain – winning medals, breaking records and receiving an MBE.
She’s now retired from professional sport, but has shown a similar adaptability and resilience in her new career which includes acting, modelling and broadcasting including competing in Dancing on Ice.
Now she’s campaigning for big brands such as Nike, Adidas and Puma to sell single shoes rather than pairs.
In part it’s about cost – high-end running shoes cost around £200, and when she was competing she only needed one but had to buy two, meaning she wasted hundreds of pounds on shoes she never wore.
Stef Reid’s fight for single shoes
The former Para-athletic world champion challenges footwear companies that she says are failing amputees.
But her biggest motivation – is the principle. Many of the big brands proudly display models with blades in their shop windows, but don’t sell shoes individually for athletes like Stef.
“I loved the bladed mannequins, and I wish 15-year-old Stef had seen those.
“But now I want retailers to match their inclusive imagery with the actual buying experience”.
Stef isn’t alone. While she wears two shoes with her day-to-day prosthetic, many other amputees don’t.
And beyond disability, thousands of people whose feet are different sizes are also affected by having to buy two shoes of the same size rather than two singles.
Nike launched a single shoe programme last year, letting customers buy one shoe at half price at select stores. However this is not clearly advertised, requires the customer to contact the care support team and is not available online.
When Stef raised the issue, she was not pointed to the scheme but instead offered a one-time 15% discount. “That’s not much use in the long term, as I’m always going to have one foot”.
Adidas, which equip the British Paralympic team, also do not sell single shoes online. However they say it is possible to buy a single shoe in some stores, depending on stock. The company added it is in the “advanced stages” of finalising a comprehensive policy.
Puma meanwhile, does not sell any single shoes in store or online and, like Decathlon, did not respond to a request for comment.
While Nike and Adidas have made positive steps towards addressing the issue, Stef thinks sports brands should sell single shoes at all their shops and online as standard practice.
Small steps
Some smaller businesses and grassroots organisations are already proving it is possible.
High street footwear company Schuh sells single shoes for half the price of a pair, while shoe chain Office also allows you to buy odd sized pairs of shoes through their outlet site.
And then there’s small scale solutions such as Jo’s Odd Shoes, founded by Jo O’Callaghan who lost her right leg to complex regional pain syndrome.
The condition makes it too painful to wear a prosthetic limb, leaving her, like many amputees, only needing one of a pair of shoes.
She set up a Facebook Group where members could swap or donate spare shoes. Many retailers also donate shoes to the scheme.
The items are free for members, aside from a small fee for postage and packaging.
It’s a service that air sport athlete Jack Pimblett has benefited from.
Born with talipes, or club foot, which stunted the growth of his right foot and leg, he struggled to find two shoes which fitted well when he was younger.
He often had to put cotton wool in his shoes to fill the extra space.
As an adult, he manages by buying a combination of junior and adult shoe sizes – buying a right shoe in size 5 and a left shoe in size 7.
But this imposes a significant financial strain, with Jack typically spending around £150 for two pairs of shoes.
“It would be nice to be able to buy shoes that fit… [without] paying twice,” he says.
Stef acknowledges the change she’s calling for takes time and money, but urges firms to push forward.
“All it takes is that first step forward in the right direction,” she says.
Jonathan Bryan’s Mum Vows To Continue Legacy
The mother of a teenager who campaigned for the educational rights of non-verbal children has vowed to continue running his charity in his memory.
Jonathan Bryan, 19, from Wiltshire, was born with severe cerebral palsy and died earlier this year.
Unable to walk, hold a pen or communicate verbally, he was taught to read at the age of seven, using his eyes to spell out words on a letter board. He went on to launch the campaign Teach Us Too, which became a charity in 2018.
Asked what Jonathan would want his legacy to be, Chantal Bryan said: “He would love for all children to be taught to read and write in school, regardless of how they look on the outside or the label they’ve been given.”
Jonathan’s journey was captured in a CBBC documentary and his 2018 memoir Eye Can Write, which shared his experiences of disability, education and faith.
Mrs Bryan said she had to take him out of his special needs school to teach him to read and write because literacy was not part of his curriculum.
At the age of nine, Jonathan told her: “I really need to make a difference for children like me in education.”
This determination led him to launch Teach Us Too.
Its mission is to ensure children with complex needs are given the chance to read and write.
“Writing was his big love. It gave him the ability to express himself in words he wouldn’t otherwise have had,” Mrs Bryan said.
She added that her son always believed the “charity is bigger than just my story”.
“There are other children that have learnt to read and write, but there are so many more who could be taught more than they are at the moment,” she added.
Since Jonathan’s death, the family has received letters remembering not only his determination but also his humour.
“His timing wasn’t great because it took him a while to say things, but he loved to put in a witty quip – being able to write gave him the ability to do that,” Mrs Bryan said.
She added that Jonathan also had “an extraordinary faith”.
“It was the one thing that never changed,” she said.
“He felt strongly that none of us talked about death enough. He prepared as much as he could, even writing his own funeral service, explaining before each hymn and reading why he had chosen it.”
Doctors Actor Highlights Healthcare Access Issues
An actor with Down’s syndrome has completed a 16-mile walk in a bid to raise awareness of the barriers people with learning difficulties face when trying to access healthcare.
Rishard Beckett, who played Lawrence in former BBC soap Doctors, walked the canal route from Rugby to Coventry on Thursday.
It came after an NHS-commissioned report said people with a learning disability were, on average, more likely to die from a treatable cause than the general population.
NHS England in the Midlands said GPs were working to ensure people with a learning disability were accommodated by the healthcare system.
Mr Beckett, from Rugby, gave an acting performance with friends during his walk to demonstrate how difficult it can be for people with learning disabilities to answer healthcare questions.
He played the part of a patient who was struggling to respond to questions being asked of him by a doctor.
“I want to help people and make sure that their health is OK,” he told BBC Midlands Today.
Emma O ‘Brien, from charity Grapevine, accompanied Mr Beckett on the walk and said there were “huge barriers” to accessing healthcare.
She said it was easier for people without disabilities to call up a doctor, speak to a receptionist and make an appointment.
“Someone with a learning disability might need reasonable adjustments to be able to do that,” she added.
‘Measurable impact’
The latest Learning from Lives and Deaths – People with a Learning Disability and Autistic People (Leder) paper was published in September by King’s College London.
It analysed the deaths of 3,556 people with a learning disability from January to December 2023 and found 39% of them were classed as avoidable deaths – 18% higher than the rate for the general population.
A spokesperson for NHS England in the Midlands said there had been an improvement in care for people with a learning disability over the past few years, with a “measurable impact on health outcomes”.
They said: “Across the Midlands, GPs are working on ensuring that people with a learning disability get the reasonable adjustments they need to access healthcare including recording specific requirements and offering longer appointment slots.”
Trailer for fellow friend, and TikTok, boss and fellow author
She wrote this book about quality over quantity of the name, suggests things around her family member, who is Perative and got her inspiration from that family member who is palliative so please purchase it on Amazon. If you can, please feel free to share the trailer it’s called quality over quantity by Michelle Newman.
More than a thousand disabled children across the UK are waiting for wheelchairs and mobility equipment that could transform their lives, Whizz Kidz say.
The charity, external, which helps wheelchair users up to 25 years old, has been forced to close its specialist wheelchairs waitlist for the first time in its 35-year history.
They say escalating costs and squeezed NHS budgets are creating a “huge demand” for their service, leading to long delays.
NHS England says it’s working with local healthcare providers to deliver better services and NHS Scotland says it’s committed to ensuring vital services were protected.
The Department for Health Northern Ireland says by the end of August, the regional service had delivered 87% of all wheelchair categories within 13 weeks.
Whizz Kidz recorded a thousand children waiting for equipment when it decided to close the waitlist, but say many more are missing out.
BBC News has spoken to two families about the impact the long waits are having on them.
‘She doesn’t get another childhood’
Wren has cerebral palsy, affecting her speech, all four of her limbs and her posture, meaning she needs help with everyday activities.
At home the 11-year-old uses an NHS manual self propelled chair. It took more than a year to get this chair, well over the NHS’s official target of 18 weeks.
While Wren’s mum, Anna, says the arrival of her NHS chair was greatly received – Wren will soon grow out of it.
Anna also told the BBC it’s heavy and cumbersome, meaning Wren can only self propel it a few metres before she needs help.
The family turned to Whizz Kidz when they were told Wren is not eligible for a powered wheelchair through the NHS.
Whizz Kidz provided her with a chair to use at school, but her family is worried that Wren will soon outgrow that chair too.
Using her powered wheelchair at school is “one way for her to assert her independence,” Anna says. “She has great fun whizzing around.”
But the family is unsure when they’ll get a new one when she grows, given the back-log at the charity.
“I don’t want Wren’s world to get smaller as she gets bigger,” Anna says.
“She doesn’t get another childhood and we want to keep the options open for her for whatever she wants to do.”
Whizz Kidz pointed to a number of factors for the increase in demand for their services.
The charity says NHS wheelchair services were implementing a stricter criteria whilst facing squeezed budgets.
It also said costs were escalating across the industry. The average specialist wheelchair costs £4,800, according to the charity, with inflation continuing to push up the cost of equipment.
Sarah Pugh, CEO of Whizz Kidz called the situation” a national crisis”.
“Behind every statistic is a child missing school trips, missing playtime with friends, or living in pain,” she says.
“This cannot be acceptable in the UK in 2025. We urgently need the public’s support to reopen the list – because childhood can’t wait.”
Whizz Kidz has launched the Childhood Can’t Wait appeal, to raise £750,000 to reopen the waitlist and cut waiting times.
‘I don’t have any independence’
Like most teenagers her age, Ivy loves spending days in the park with her friends, shopping and gaming.
But unlike most teenagers, she relies on her friends and family to help her out.
Ivy has single ventricle circulation, external, a life-limiting heart condition, which means only one side of her heart is working.
Ivy, is able to walk, but only very short distances. It means she’s not eligible for a powered chair, but does have a manual wheelchair from the NHS.
However the exhaustion caused by her condition means she’s unable to propel herself and relies on others to push her.
“I have to rely on my mum to drive me to school—and it’s only a 15-minute walk,” Ivy says.
“I have to have my friends push my manual wheelchair around from lesson to lesson…It’s not fair.”
“I get left out when I’m in the wheelchair because obviously I can’t take myself around.”
Ivy had hoped starting secondary school in 2024 would provide her with more freedom, which is why her mum Emma applied to Whizz Kidz for an electrical attachment for Ivy’s wheelchair to make life easier.
They applied in January that year and are still waiting.
Emma acknowledges that they are not in high need, but says the attachment “would just enhance her [Ivy’s] life massively, to not have to rely on somebody else all the time”.
There’s also a mental and physical toll on the family.
“It gets quite heavy pushing a wheelchair around for 12 hours at a time – your shoulders and your back ache,” Emma says.
Emma’s ultimate goal for Ivy is to live life like any normal teenager and enjoy her life without constraints.
“It would hugely enhance our lives and give Ivy that independence… we would have to make some real big sacrifices to be able to afford the electrical attachment on our own,” Emma says.
The BBC asked the NHS in each part of the UK for their response.
The Department for Health Northern Ireland says by the end of August, the regional service had delivered 87% of all wheelchair categories within 13 weeks.
NHS England told us they offer personal wheelchair budgets for people to pick a wheelchair that meets their individual needs, adding it was working to deliver” better services that improve access and experiences for wheelchair users”.
In Scotland a spokesperson said the government was committed to ensuring vital services were protected and eligibility criteria for the provision of children’s wheelchairs has remained unchanged since 2014.
The Welsh government has not yet responded.
String up birthday card for my grand mothers birthday
Who is me doing a string art project of a birthday card for my grandmothers birthday tomorrow? What do you think?
Claire Lomas’ Family Speaks For First Time After Her Death
The family of a woman who raised nearly £1m for charity have recalled how she was “still bright and sticking her thumbs up” in hospital before she died following a microlight crash.
Claire Lomas, from Melton Mowbray, Leicestershire, began fundraising after a 2007 horse accident left her paralysed, with her efforts including completing the 2012 London Marathon in a robotic suit.
She died five weeks after the air accident in Jordan in 2024.
Now, for the first time since her death, her family have spoken to the BBC about continuing Ms Lomas’s legacy.
Her husband, Dan Spincer, said his wife had been invited to the Middle East by a company to make a documentary, which she was “really excited” about.
“We went out there, and it just went wrong,” he said.
A pre-inquest hearing was told Ms Lomas was flying an adapted microlight in Jordan on 15 July 2024 when it veered off a road after landing and crashed into a rock. She died in hospital five weeks later.
Her father Martin Lomas said: “Even in hospital, in Jordan, she was still bright when we went in to see her.
“She couldn’t speak because she was all tubed up, but she was still bright and sticking her thumbs up.”
Stuart Hall, a close friend of Claire, added: “My last conversation with Claire was in the hospital. I must have spent an hour just holding Claire’s hand and talking. That’s my last memory of Claire.”
Mr Hall and Mr Spincer are now preparing to take on the Great South Run on 17 October – the last of three challenges the pair are doing in wheelchairs to take Ms Lomas’s fundraising efforts past the £1m mark.
The pair have already taken part in the Great North Run and the Great Manchester Run to raise money for the Nicholls Spinal Injury Foundation, a charity which hopes one day to help find a way to reverse spinal injuries.
Mr Hall, known as Pid, said Ms Lomas “could achieve anything”.
“Her big mantra was lamp-post to lamp-post,” he said. “You might not see 26 miles ahead, but you’ll see the next lamp-post, and if you get there, you go to the next lamp-post.”
Ms Lomas was told she would never walk again after she was thrown from her horse at the Osberton Horse Trials in 2007 but a suit with mechanical legs, called ReWalk, helped her to take her first steps again at a rehabilitation centre in East Yorkshire five years later.
The suit used braces to support the legs, motors to help rotate joints, weight and motion sensors and a battery pack.
Feet sensors detect when weight is lifted, motion sensors detect hip movement and upper-body sensors allow users to control movement.
Ms Lomas was the first person in the UK to use the ReWalk suit and wore it to complete the 2012 London Marathon in 17 days.
She used it again to complete the Great North Run in 2016, earning the nickname “bionic woman” for her achievements.
Ms Lomas was also selected to light the Paralympic flame in 2012 and was appointed MBE in 2017 for her fundraising efforts.
Her father said: “She decided she was going to get up, do other things and have a good life – and that’s what she did.”
Agency Battle
The agency battle is there on the social media platform TikTok please come and support me and touch the screen. If you can and you have TikTok, my name is in the poster
BREAKING: Huntington’s Disease Successfully Treated For First Time
One of the cruellest and most devastating diseases – Huntington’s – has been successfully treated for the first time, say doctors.
The disease runs through families, relentlessly kills brain cells and resembles a combination of dementia, Parkinson’s and motor neurone disease.
An emotional research team became tearful as they described how data shows the disease was slowed by 75% in patients.
It means the decline you would normally expect in one year would take four years after treatment, giving patients decades of “good quality life”, Prof Sarah Tabrizi told BBC News.
The new treatment is a type of gene therapy given during 12 to 18 hours of delicate brain surgery.
The first symptoms of Huntington’s disease tend to appear in your 30s or 40s and is normally fatal within two decades – opening the possibility that earlier treatment could prevent symptoms from ever emerging.
Prof Tabrizi, director of the University College London Huntington’s Disease Centre, described the results as “spectacular”.
“We never in our wildest dreams would have expected a 75% slowing of clinical progression,” she said.
None of the patients who have been treated are being identified, but one was medically retired and has returned to work. Others in the trial are still walking despite being expected to need a wheelchair.
Treatment is likely to be very expensive. However, this is a moment of real hope in a disease that hits people in their prime and devastates families.
Huntington’s runs through Jack May-Davis’ family. He has the faulty gene that causes the disease, as did his dad, Fred, and his grandmother, Joyce.
Jack said it was “really awful and horrible” watching his dad’s inexorable decline.
The first symptoms appeared in Fred’s late 30s, including changes in behaviour and the way he moved. He eventually needed 24/7 palliative care before he died at the age of 54, in 2016.
Jack is 30, a barrister’s clerk, newly engaged to Chloe and has taken part in research at UCL to turn his diagnosis into a positive.
But he’d always known he was destined to share his father’s fate, until today.
Now he says the “absolutely incredible” breakthrough has left him “overwhelmed” and able to look to a future that “seems a little bit brighter, it does allow me to think my life could be that much longer”.
Huntington’s disease is caused by an error in part of our DNA called the huntingtin gene.
This mutation turns a normal protein needed in the brain – called the huntingtin protein – into a killer of neurons.
The goal of the treatment is to reduce levels of this toxic protein permanently, in a single dose.
The therapy uses cutting edge genetic medicine combining gene therapy and gene silencing technologies.
It starts with a safe virus that has been altered to contain a specially designed sequence of DNA.
This is infused deep into the brain using real-time MRI scanning to guide a microcatheter to two brain regions – the caudate nucleus and the putamen. This takes 12 to 18 hours of neurosurgery.
The virus then acts like a microscopic postman – delivering the new piece of DNA inside brain cells, where it becomes active.
This turns the neurons into a factory for making the therapy to avert their own death.
The cells produce a small fragment of genetic material (called microRNA) that is designed to intercept and disable the instructions (called messenger RNA) being sent from the cells’ DNA for building mutant huntingtin.
This results in lower levels of mutant huntingtin in the brain.
Results from the trial – which involved 29 patients – have been released in a statement by the company uniQure, but have not yet been published in full for review by other specialists.
The data showed that three years after surgery there was an average 75% slowing of the disease based on a measure which combines cognition, motor function and the ability to manage in daily life.
The data also shows the treatment is saving brain cells. Levels of neurofilaments in spinal fluid – a clear sign of brain cells dying – should have increased by a third if the disease continued to progress, but was actually lower than at the start of the trial.
“This is the result we’ve been waiting for,” said Prof Ed Wild, consultant neurologist at the National Hospital for Neurology and Neurosurgery at UCLH.
“There was every chance that we would never see a result like this, so to be living in a world where we know this is not only possible, but the actual magnitude of the effect is breathtaking, it’s very difficult to fully encapsulate the emotion.”
He said he was “a bit teary” thinking about the impact it could have on families.
The treatment was considered safe, although some patients did develop inflammation from the virus that caused headaches and confusion that either resolved or needed steroid treatment.
Prof Wild anticipates the therapy “should last for life” because brain cells are not replaced by the body in the same manner as blood, bone and skin are constantly renewed.
Approximately 75,000 people have Huntington’s disease in the UK, US and Europe with hundreds of thousands carrying the mutation meaning they will develop the disease.
UniQure says it will apply for a licence in the US in the first quarter of 2026 with the aim of launching the drug later that year. Conversations with authorities in the UK and Europe will start next year, but the initial focus is on the US.
Dr Walid Abi-Saab, the chief medical officer at uniQure, said he was “incredibly excited” about what the results mean for families, and added that the treatment had “the potential to fundamentally transform” Huntington’s disease.
However, the drug will not be available for everyone due to the highly complex surgery and the anticipated cost.
“It will be expensive for sure,” says Prof Wild.
There isn’t an official price for the drug. Gene therapies are often pricey, but their long-term impact means that can still be affordable. In the UK, the NHS does pay for a £2.6m-per-patient gene therapy for haemophilia B.
Prof Tabrizi says this gene therapy “is the beginning” and will open the gates for therapies that can reach more people.
She paid tribute to the “truly brave” volunteers who took part in the trial, saying she was “overjoyed for the patients and families”.
She is already working with a group of young people who know they have the gene, but don’t yet have symptoms – known as stage zero Huntington’s – and is aiming to do the first prevention trial to see if the disease can be significantly delayed or even stopped completely.
Stoma Swimmer Leading Trek For Kenyan Women
In September 2023, Gill Castle became the first person with a stoma to swim the channel and now she is embarking on a new challenge. She is leading 16 women – most of whom have suffered birth trauma, or have a stoma, or both – up Africa’s highest mountain.
It is a bright, sunny autumn day when we meet in a gravel car park in the Simonside Hills in Northumberland.
Four women, dressed in the pink and blue colours of Mrs Castle’s charity Chameleon Buddies, are throwing rucksacks on to their backs for a training day, ahead of their hike up Kilimanjaro in a fortnight’s time.
“We’ll make our way along the ridge and then up to the top where we should get a fantastic view – we’ve got fantastic weather for it,” Mrs Castle says.
Mrs Castle had a colostomy after she was injured during the birth of her son in 2011.
Since then, she has proved that having a stoma does not have to stop people doing amazing things.
Having posted videos of her swimming with her stoma during the pandemic, she built links with a hospital in Eldoret, in western Kenya, which helps women there with stomas.
These women are often unable to access stoma bags and have limited access to medical help.
So when Mrs Castle became the first woman with a stoma to swim the channel, it was to raise awareness of their struggle and to raise money to help them.
She now travels to the Gynocare Hospital regularly to run support groups as part of her own charity Chameleon Buddies.
Mrs Castle says the decision to climb Kilimanjaro was partly because she “loves a challenge”, but also because she wanted to help other women.
“I wanted to give other people the opportunity to challenge themselves, like I have, and take on the baton and take that up the mountain for all these other women that we are going to support in Kenya.”
Among those training is Julia Robinson, from Allendale, in Northumberland.
Ms Robinson, who turned 40 this year, has been inspired by Mrs Castle’s can-do attitude.
Her son was stillborn in 2015, which she said led to her colitis “taking control” of her and causing her to stay at home due to the pain.
She had two more healthy children, who are now aged five and seven, and in 2021 she was offered a stoma.
“I was unsure at the time but ultimately it’s the best thing I have ever had, it’s given my life back,” Ms Robinson says.
“So this is a challenge to say ‘life’s still got a lot to give’.”
Liz Hinds, from Alnwick, is 54 and has Crohn’s disease.
She had an ileostomy more than two decades ago when she was very ill.
“I’ve never spoke about it in 22 years to anyone, until I met Gill Castle,” Ms Hinds says.
“I’d never shown anyone. My family knew I’d had it, but for me it was a very hidden, quiet thing which I’ve lived with.
“I think at that time I was very young and it wasn’t well known and you didn’t have the support.
“And so for me it always felt a bit of a stigma – for the first time suddenly I’m talking about it openly.”
Ms Hinds is now a trustee of Chameleon Buddies and has visited the hospital in Kenya with Mrs Castle.
She says she feels “humble to suddenly realise how much we have here” and “blessed” to give something back, adding that anyone with a stoma should not let it define them.
Mrs Castle says when they reach the top of the mountain it will be “epic”.
“I know how much it means to everybody to make it to the top and what everyone has gone through in order to get there,” she said.
“So I can’t wait.”
When asked what the Kenyan women thought of it all, Mrs Castle says while they thought it was “crazy”, it was also emotional for them.
“They know what our women on the trek are putting themselves through for them,” she says.
“The temperatures on the summit can down to -15C (5F), so you are talking about people trying to fumble with a stoma bag when it’s really, really cold.
“But I do think everyone is regarding this as sort of a metaphorical mountain for their own trauma.”
Autistic Athlete Angus Leckonby Sets Third Guinness World Record
An athlete has set his third Guinness World Record after becoming the youngest person with an intellectual disability to complete a two mile (3.2km) open water swim.
Angus Leckonby, who is autistic and lives with verbal dyspraxia, added to his tally after taking part in London’s Swim Serpentine open water swimming event on Saturday.
The 23-year-old from Octon in East Yorkshire completed his swim at Hyde Park in 52 minutes and 40 seconds.
His father Matthew Leckonby said it had been “an incredible year” and “never did we imagine Angus would hold three Guinness World Records”.
He said: “The move to triathlon over the past 12 months has been amazing for him.
“We’ve already started looking at events he wants to do next year, and he’s very excited about what the future could hold.”
Angus said: “I am feeling so proud of myself. It was a good swim.
“The hard work is swimming the big distance, but it was exciting. Swimming has helped me a lot, it has been good for me, and it was exciting to get in the water and swim around.”
The latest title follows Angus’s achievements at the TCS London Marathon earlier this year, where he became the fastest and youngest man with an intellectual disability to complete a marathon.
Angus has been using his record-breaking achievements to raise funds for the Special Olympics Great Britain charity which says it uses the power of sport to transform the lives of children and adults with an intellectual disability.
“Angus is a trailblazer and a true inspiration to everyone in the Special Olympics GB family,” said Special Olympics GB chief executive Laura Baxter.
“To achieve three Guinness World Records in one year, across marathon running and open water swimming, shows extraordinary dedication and courage. His achievements prove what is possible when people with intellectual disabilities are given opportunities, support and belief.”
She added the funds raised would help more athletes transform their lives through sport.
BREAKING: Trump Links Tylenol To Autism
President Trump is giving a speech as I type. He is announcing an alleged link between Tylenol and Autism and setting out immediate plans to ban Tylenol during pregnancy except for extreme fever.
I am deeply sceptical about this, readers. Do you have any thoughts? Your comments, as always, are welcome below
Billy Monger Takes Part In Hyde Park Swim Festival
Former racing driver and TV star Billy Monger has taken part in an open water swimming festival with thousands of others in central London.
Monger, whose legs were amputated following a crash at Donington Park in 2017, hailed Swim Serpentine at Hyde Park a “really cool thing to be a part of”.
The 26-year-old from Charlwood, in Surrey – one of 5,000 participants in the event – has set his sights on competing at the Los Angeles Paralympic Games in 2028.
After his swim, he said it was “nice to do an event where there is such a good atmosphere”.
He added: “As much as it is training and it serves a purpose, it is doing something where everyone has a smile on their face and is happy and excited to go out there.”
Broadcaster Ayo Akinwolere also took part in the event which has seen participants take on a variety of distances – half a mile, one mile, two miles or six miles.
Last October, Monger broke an Ironman record at the World Championship in Kona, Hawaii.
In 2021, he raised £3m for Comic Relief with Billy’s Big Challenge, when he walked, cycled and kayaked across England.
Blue Badge Fraud: ‘More Fakes Than Ever Before’
Blue Badges are being faked, doctored, stolen and sold online, fraud investigators are warning.
They are also finding people using badges belonging to family members without them present, and even badges of those who have died – which is illegal.
Paul Slowey, from the Blue Badge Fraud Investigation (BBFI) agency, says he is confiscating “more fake badges than ever before”, and that the Blue Badge scheme is being “thoroughly abused” by those wanting to get free parking that they are not entitled to.
The government says it has strengthened powers by enabling plain clothes officers to inspect Blue Badges and confiscate those being used misused.
The Blue Badge scheme gives disabled people access to specially adapted designated bays.
Badge holders are allowed to park for free in on-street pay-and-display bays and for up to three hours on yellow lines – except where there are loading restrictions.
They are also exempt from paying the London Congestion Charge which costs £15 / day.
Parking can come at a premium, with on-street bays costing as much as £5.90 per hour in some parts of the south-east England.
This makes the badges desirable to thieves and fraudsters, who sell them on.
The BBFI agency, a community interest company run by Mr Slowey from Hampshire, helps local councils check drivers are using Blue Badges correctly.
Fake and stolen badges are being sold online for hundreds of pounds
He says he is confiscating “more fake badges than ever before”, and that the Blue Badge system is being “thoroughly abused”.
Mr Slowey is calling for more enforcement to help check and seize badges, which he hopes will lead to prosecutions.
The use of fake badges, taking up the already limited number of disabled bays, has a knock-on effect.
Steve Swyer, who lives in rural Surrey. has a Blue Badge because he has multiple sclerosis (MS).
He uses a wheelchair so he needs to park somewhere level and with a dropped kerb and which is close to his destination.
He says disabled bays cater to these needs, but often cars are parked in the bays with no Blue Badge displayed.
“It used to make me quite angry but I’ve got so used to it now. It’s just become a part of normal life for me – to pull up and realise you can’t get where you need to go,” Mr Swyer said.
“If I didn’t have the car I’d spend probably 90% of my time indoors, literally not seeing anybody or going anywhere.”
He says he is always fearful someone might break into his car to steal his Blue Badge.
“You’re advertising something that’s very valuable – it makes you a target.”
East Sussex County Council is one of the local authorities now checking for Blue Badge abuse.
Mark Jobling, an investigations officer in the council’s Blue Badge team, says one-in-five badges is being misused.
He says he mostly deals with disabled people’s family members using the badge without the badge holder present, but also has had cases of people using a deceased relative’s badge.
Erika North from Kent works for BBC Children in Need. She also has multiple sclerosis.
Disabled bays near where she lives “are so in demand, often by 10am the few areas that have disabled bays are already full up,” she says.
“My Blue Badge enables me to carry on as I normally should be able to do for as long as possible.
“It’s not some sort of perk”.
Parking in a disabled bay without displaying a valid Blue Badge can result in a fine.
Blue Badge misuse – such as using someone else’s permit – comes with harsher penalties.
It is a classed as fraud and is punishable by an unlimited fine or up to two years in prison.
A new scheme to crack down on Blue Badge misuse was launched in Brighton and Hove in December.
‘Competing priorities’
The charity Disabled Motoring UK is calling for local authorities to be given more resources for enforcement.
The Local Government Association says councils will do what they can, but they have to take into account a number of competing priorities when using their limited resources to take enforcement action against blue badge fraud.
A Department for Transport spokesperson said: “Exploitation of the Blue Badge scheme is completely unacceptable – it is a vital resource helping many people travel with confidence.
It says it is “supporting the police to tackle this issue by working closely with local authorities”.
It says it has strengthened the powers to help local authorities tackle fraud and misuse, and given them the ability to cancel stolen badges.
‘I Created A Successful Business Thanks To A Disability Grant – But Cuts Will Sink It’
Josh Wintersgill has been running a successful business selling products to help wheelchair users travel for six years, but its future hangs in the balance.
He’s been using the government’s Access to Work scheme to help with some of the additional costs of running his company and is afraid that he may lose it after his one-on-one support was slashed by 80%.
The Business Disability Forum (BDF) says businesses and their disabled employees are being “set up to fail,” despite the government’s ambitions to get 80% of disabled people into the workforce.
The Department for Work and Pensions (DWP) said it was reviewing all aspects of the scheme.
Josh needs physical support with most things throughout the day because of his disability. This includes travelling, overnight stays and packing and shipping customer orders. Without this support he says he would not be able to run his company.
The Access to Work grant was providing him with a support worker five days a week, but on reassessment, it was reduced to one day.
He said: “They’re basically with me all the time. They help me in every facet of helping me do my job and without them, I can’t do any of that.”
Josh has appealed the decision and has not had any support since the start of July, when his grant ran out, despite no change in his personal circumstances.
Under the Access to Work scheme, external, companies and employees can apply for grants to help support disabled people in the workplace.
The programme can pay employees and businesses for the extra costs associated with being a disabled worker – things that go beyond what is legally required by employers to provide. It covers a range of things like paying for taxis, assistive technology and British Sign Language interpreters.
Disabled people have told the BBC their awards have been significantly reduced, completely taken away and in some cases left them forced to shut their businesses and turn down job offers.
Josh is currently managing by using his own money to keep the business afloat, but says things are “very tight” and he’ll only be able to do this for the next few months.
“I’m not getting everything done that I used to get done,” he says. “There’s so much to do that it’s just so hard to stay on top of it… it’s just really frustrating.”
Josh says Access to Work helped him get into work and set up his own business, but is fearful of what will happen if that is taken away.
“It’s scary to think that I’m a disabled entrepreneur, helping disabled people and potentially being deprived of doing that.”
“We have a system that’s making it very difficult for you to remain in work,” he adds.
Campaign group Access to Work Collective was set up in response to problems people were facing when applying or reapplying for grants. Its founder, Dr Shani Dhanda said since July they’ve amassed almost 4,000 members.
The group recently sent an open letter to the prime minister asking him to take “urgent” action to fix the “broken” scheme.
‘Affecting the quality of our work’
The lunchtime rush at the Sea Change cafe in Sunderland is under way. The social enterprise employs 25 neurodiverse adults and uses Access to Work to support most of them.
Lexie O’Connor has been at the cafe since it opened in 2019. In between customers she explains how working at the cafe has given her confidence and a sense of pride and now trains others on how to work with neurodiverse and disabled staff.
Lexie’s reapplication took 10 months to come through and when it did the hours for her one-to-one support worker had been greatly reduced, leaving the business to make up the shortfall.
“A lot of employers in that time physically would not be able to manage keeping people like myself employed,” she said.
Lexie says she sees a lot of her colleagues worry about their job prospects because of the problems with Access to Work. The cafe has said it already had to let two members of staff go because support was cut.
“We’re worrying so much about it, it’s affecting the quality of work that we worked so hard to get to in the first place.
“I feel like places like Sea Change are trying their best, they are fighting for people like me.”
‘Set up to fail’
Ministers have widely acknowledged Access to Work as a key driver in getting disabled people in work, but in an interview with the BBC, minister for social security and disability, Sir Stephen Timms, said the problem was the “huge numbers of people wanting it”, adding they had been struggling “to keep up with the demand”.
Spending on the programme increased by 41% in 2023-24 to £257.8m.
In February 2025 about 62,000 applications were waiting to be processed, with 33,000 people awaiting payment, according to the DWP.
A government consultation on Access to Work closed at the end of June with ministers currently reviewing what a new scheme could look like.
Angela Matthews, director of public policy and research at BDF called on the government to make access to work “more efficient and more resourced”.
She told the BBC: “Disabled people are set up to fail and so are employers, because disabled people won’t get what they need to be able to work and employers won’t have the means or the support to provide an inclusive workplace for disabled people.”
Member of BDF, Allianz UK, said despite the size of the insurance business, it had not been immune to the struggles with Access to Work.
Diana Salmon, head of occupational health and safety at the firm, says the biggest issue has been the long waits for awards to be processed. In some cases people are waiting longer than 10 months to start work.
Diana says: “It [the delays] could put people off applying to us… so we do our best but we can’t afford really to pick up the high support costs.”
She referenced a recent example of a new recruit who left the company shortly after starting the role because it took nearly a year to get specialist equipment in place so they could fully carry out the job.
“We want to provide an inclusive environment, but without timely Access to Work funding for colleagues with complex disabilities, they are potentially being excluded,” Diana said.
Diana has herself used Access to Work in a previous job. The money paid for travel costs to visit her team in different locations, which she otherwise wouldn’t have been able to do, but said she sees the value in the programme.
“It would be much more difficult for us to attract, recruit and to retain employees with disabilities [without the scheme],” she said.
In a statement the DWP said: “We inherited an Access to Work scheme that is failing both employees and employers, which is why – as part of our welfare reform – we consulted on how it could be improved.
“We are reviewing all aspects of the scheme and will develop future policy with disabled people and the organisations that represent them.”
It added there had been “no change in Access to Work policy”.
Reform And Danny Kruger- A Match Made In Heaven
With many thanks to Benefits And Work.
Shadow DWP minister Danny Kruger has defected from the Conservative party to join Reform UK, possibly adding to the party’s store of benefits knowledge, but probably not to its supply of compassion for claimants. In fact, Kruger considers that Reform are far too generous when it comes to benefits.
Kruger’s defection comes too late for him to become the Reform spokesperson on welfare benefits, that job having very recently been given to Lee Anderson.
However, Kruger will no doubt be contributing to Reform’s future policy on benefits.
As an Eton, Edinburgh and Oxford educated evangelical Christian son of South African parents – property developer Rayne Kruger and Great British Bake Off judge Prue Leith – Kruger’s formative years were very different to the impoverished start of Lee Anderson.
And as a leader writer for the Telegraph and speech writer for David Cameron, Kruger’s working life was also rather different to that of former coal miner Anderson.
But they will no doubt bond over their shared unhappiness at the number of people receiving PIP for mental health conditions, in particular.
As Anderson assured us earlier this month:
“It’s become fashionable now to have mental health problems, to have your own counsellor, to go for therapy, to have anxiety attacks, to get down to the local benefit centre and sign on for PIP or ESA.”
Kruger aims for a more statistics based assault on claimants, but the sentiment is similar:
“ . . . the incidence of disability in our society is rising by 17% while benefit claims are rising by 34%. For some of the less severe mental health claims, it is far worse. In January 2020, there were 7,000 claims for people with anxiety disorders; this year, there are 31,000. In January 2020, there were 155,000 claims for anxiety and depressive disorders mixed; now there are 365,000.”
And Motability for claimants with mental health conditions is a particular sore point for Kruger:
“One area where the Government do not seem to be looking for savings is in the Motability scheme. It was supposed to help physically disabled people get around, but now we have 100,000 new people a year joining the scheme, many of them not physically disabled at all.”
And again earlier this month:
“I am sorry to hear that there are still no plans to reduce spending on personal independence payments. . . . Given that veto on cuts to PIP, I implore him again to consider the benefits to which PIP is a gateway, such as Motability, disability premiums, council tax discounts and blue badges. Will he promise at least that those entitlements could come down?”
However, Kruger has not always been a fan of Reform’s benefits plans, which he considered far too generous. Just a couple of months ago he was complaining that:
“I do quite like the Reform party and I agree with its Members on lots of things, but there is a problem: they would spend money like drunken sailors. I can see what is happening and I am very worried about it—they will end up in an electoral pact with the Liberal Democrats with a joint ticket to protect welfare spending.”
No doubt, Kruger will do what he can to toughen up Reform’s stance on benefits.
And there is one thing that definitely unites him with the Reform family – a dislike of foreigners claiming benefits, as he explained to DWP minister Stephen Timms when debating the Timms review of PIP:
“I hope that the Minister does not plan to co-produce his plans with foreign nationals—although, knowing Labour lawyers, I expect they will say that the European convention on human rights demands that they do just that. Does he think that subsidising more and more foreign nationals is what the British social security system is for? If not, will he restrict sickness benefits to British nationals only, as we have argued for?”
Reform UK and Danny Kruger seems to be a match made in heaven.
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‘Every Beach Should Have Accessible Wheelchairs’
A woman has called for all beaches to have accessible wheelchairs after she had an “amazing experience”.
Jo Whitehouse, who took part in triathlons and, in 2011 a Channel swim, hired a beach wheelchair in Ingoldmells, Lincolnshire, this summer.
The 52-year-old said it got her back to her “happy place”, adding: “I did nothing but grin like an idiot, it was amazing to actually be on the beach and get my feet a bit wet.”
A spokesperson for Beach Ability Lincolnshire, which loaned the beach wheelchair to Ms Whitehouse, said it wanted all the county’s beaches to be accessible. The charity is planning to expand its services into two more resorts next year.
It currently has seven wheelchairs to suit different needs and a walker, all of which are free to use at Ingoldmells beach.
Ms Whitehouse, of Huddersfield, West Yorkshire, was diagnosed with multiple sclerosis in 2002.
She was visiting the resort this summer with her husband. She said: “Being in the water, on the beach and by the seaside generally, is one of my happy places.
“Being in the open air and around nature has proven to be beneficial for many people. This is something every council, beach and charity should get behind.”
Sharron Boam, who lives near Mansfield, also hired a beach wheelchair for her 31-year-old son Andrew Boam this summer.
Andrew, who cannot walk or talk, was “laughing his head off” when he was able to get a taste of the sea, his mum said.
“He was very excited because every time we come to Ingoldmells, he’s pointing to the sea and sand but we can’t get him on there.
“As soon as we got on to the sand he was really happy and smiley. It nearly made me cry.”
Mrs Boam added that the beach wheelchairs are important because “otherwise he’d just be sat on the edge watching everyone else”.
Teresa Marie Price, chair of trustees at the charity, said it was working with local councils and parish councils to get permissions to make all Lincolnshire beaches accessible. “We are currently waiting on two resorts’ permissions and hopefully we will be up and running with them in March 2026.”
Mary Powell, tourism manager at Lincolnshire County Council, added that beach accessibility aids were a “great initiative” that had already had fantastic benefits for Ingoldmells visitors with disabilities.
“Anything that improves accessibility on our beaches, meaning families can enjoy the sun and sea together, can only be a good thing,” she said.
Taxi Driver Who Refused To Carry Guide Dogs Fined
A taxi driver who refused to allow two blind customers to get into his vehicle with their guide dogs has been fined £200.
Nozir Rahman, 31, arrived at Chester Railway Station to collect the passengers, but drove away after saying they could not put their dogs in the car.
The passengers had told the firm employing Rahman, KingKabs, that they had assistance dogs when they made the booking, according to Cheshire West and Chester Council.
KingKabs reported Rahman to the local authority’s licensing team, which charged him with an offence under section 170 of the Equality Act.
The council said Rahman, from Chester, gave three different reasons for not carrying the dogs to the complainants, to the taxi company and then to officers of the council when he was interviewed.
He pleaded guilty to the offence at Chester Magistrates’ Court on Wednesday 10 September and was also ordered to pay £300 in prosecution costs and an £80 victim surcharge on top of the fine.
Taxi drivers have a legal obligation to accept assistance dogs unless they have a specific medical exemption certificate, and are made aware of the requirements during their training.
The council said Rahman must now appear before its general licensing sub-committee, which will consider whether he is “fit and proper” to hold a taxi licence.
Me taking part in an inclusive dance performance with moving memory called ‘Golden Slumbers’ at the festival.
Clay workshop at the Boing festival that I went to and me taking part in it.
Sign Language ‘Absolutely Essential’ Says Paramedic
A student paramedic who helped organise basic sign language training for hundreds of future NHS workers has said it is “absolutely essential”.
Daniel Hunt, 38, from Keynsham, set up the deaf awareness sessions at the University of the West of England (UWE) in 2023, while studying for his degree. He graduated in July with first class honours.
Now a paramedic with the South Western Ambulance Service, his deaf awareness training has been integrated into the Paramedic Science degree at UWE.
Mr Hunt said: “Deaf people can contact 999 and use sign language on an app and request the emergency services, but once we arrive that service stops. So having sign language is absolutely essential.”
Mr Hunt said the “sessions exploded in popularity” when they were first introduced.
“The training was delivered by deaf trainers and deaf organisations, so it was really impactful,” he said.
“They’re hugely popular and now [UWE has] integrated that into the paramedic curriculum and are looking to roll it out to midwifery and optometry students.
“That’s amazing and that’s the thing I’m most proud of.”
Mr Hunt, who is not deaf or hard of hearing, said he “gave [sign language] a go” several years ago and “fell in love with the language”.
But it was only after talking to friends in the deaf community about his work as a paramedic student that he realised the potentially life-threatening communication problems they faced.
“I really believe that communication is the most important skill a paramedic can have,” he said.
“We’re going out to people in a real time of need and in emergency situations.
“It’s often a crisis for them and it makes it so much worse when we can’t communicate effectively.”
He said at the moment, paramedics have to rely on “writing things down and lip reading” when attending a deaf patient.
“When we attend people who speak different languages, we ring up and get an interpreter on the phone, but for sign language there’s nothing in place,” he said.
‘Inclusive patient care’
Julian Simpson, from UWE Bristol, said Mr Hunt had made an “extraordinary impact” during his time as a student.
“Dan’s work to improve deaf awareness across UWE and beyond reflects his unwavering commitment to ensuring that patients do feel seen, heard and understood,” she said.
A spokesperson for the South Western Ambulance Service NHS Foundation Trust (SWASFT) said they were “really proud” of the contribution that Mr Hunt has made.
“His work, driven by a passion for inclusive patient care, has helped shine a light on the communication barriers faced by deaf and hard-of-hearing individuals in emergency medical settings,” the spokesperson said.
“This development is a positive step towards more inclusive pre-hospital care and supports the trust’s commitment to reducing health inequalities and improving communication with all patients.”
Another project I have started and completed this summer
writing and publishing my own book called ‘Invisible Battles Visible Strength’. This is where I talk about my disability and my battles that I have faced to achieve my goals and be successful. If you would like to I will put the Amazon link in this post for you to purchase and read my book. Every bit of proceeds of the sale of this book with go to funding my respite care and funding my daily living support with my PAs and independence and this will enable me to have the freedom I chose.
P.S if you would like to download the ebook version of my story that I have publish and wrote you will not be able to do this through the kindle/amazon app you will need to do this through the Amazon website of your country in order to purchase this and once purchase it will work on any device you read your ebook on.
Front and back cover of the book I have wrote and published so that you know you are purchasing the right one.
Boing Festival 2025. The festival, which I enjoy taking part in many aspect of which I will show you in my upcoming blokes.
Sunny Hotel rooms selfie’s
This includes the hotel room selfies that I took in the hotel room I stayed in with the help of my live in PA. This is why PAs are important and the work they do need to be more recognised than care agencies as someone that has used both service. Firstly, PAs allows me more freedom to allow us to live a more fulfilling life. Whereas agencies just care about the rules and regulations and not the person. PAs care about both, but most of all they care about us and most of all they care about how we choose and want to live life and so do the platforms that introduce disabled people to PAs. They care about it being right not only when you employ the PA but throughout your relationship with that person as their employer when you are employing carers independently of agencies and decides to employ and employ your own PAs and go with platforms that can introduce you to wealth of PAs and coordinate your own care and support from that PA with the help of your platform coordinator. You can also choose from a wealth of PAs, which you basically go online shopping so it’s a better secure platform to shop.
Changing Attitudes To Autism Through Photography
Autistic children and young people from south Wales have created a photography exhibition to try and change negative attitudes.
“But you don’t look autistic” includes portraits of a number of neurodivergent adults and children.
Jade West from Rewild Play, a Newport charity, said neurodivergent children were “bombarded with messages of can’t” but the exhibition was trying change that mindset.
Fifteen-year-old Liam felt “pride” that his portrait featured in the exhibition and said he wanted to take part in response to other people’s reactions when he told them he was autistic: “A lot of the time, they just speak to you as if you’re not as smart as them… or you just can’t do the things they do.
“Normally it’s like, ‘oh, that’s sad’… it’s condescending.”
Liam said the support he received from the charity helped him “accept the fact” he was autistic.
He is on the waiting list for an official diagnosis, but said he had been told by professionals that he exhibited autistic and attention deficit hyperactivity disorder (ADHD) traits.
Mackenzie, 16, said taking photographs and interviewing those sitting for them helped him learn about the “different aspects of autism”.
Diagnosed at eight years old, he has been subjected to negative attitudes: “It’s really annoying when people kind of treat you as if you’re like, a little bit less.”
The initial idea for the exhibition stemmed from a conversation Jade had with her daughter that made her recognise the need for “positive representation”.
Jade was diagnosed with ADHD at the age of 42 and is on the waiting list for an autism diagnosis.
The self-described “chatty” 45-year-old said stereotypes meant people did not understand her diagnosis, telling her “you can’t be autistic”.
The mother-of-two’s photograph, also featured in the exhibition, aimed at tackling “misconceptions”.
She said: “I still don’t voluntarily offer up the information because I’m going to get judged.
“Maybe there’s a part of me that wanted the positive representation for myself.
Although both Liam and Mackenzie admit feeling uncomfortable by featuring in the project, they felt strongly they wanted to be part of a change in people’s attitudes.
Liam explained that it was “very hard” when people’s views could be “negative a lot of the time”.
Mackenzie added: “People seem to think that the only form of autism is the kind of one where you’re, like, really struggling.
“It’s really annoying because people with autism can do things. And a lot of people who make really good things have autism.”
The Cafe Helping People With Disabilities Find Work
A new inclusive cafe aimed at helping young adults with disabilities find employment and develop skills has opened.
Stuart and Sharon Hobbs were inspired to open the new cafe in Martlesham, Suffolk, after their son Kyle, who has Down syndrome, found there were limited work opportunities after college.
The new venue, called 21 Young Hearts, has taken on 12 trainees with a range of disabilities who will be supported and given training.
Mr Hobbs said the family had funded the cafe themselves and were supported by friends, while Mrs Hobbs said she wanted the cafe to become a community hub.
“One of the things we found was that when Kyle finished college, there wasn’t much for him to go into and try and get a wage,” Mr Hobbs explained.
“We wanted to flip things on its head so it gives the opportunity for adults with disabilities to earn a wage, and this is what he is going to become a part of.”
The cafe is open, but an official launch will be held on Monday between 13:00 BST and 16:00.
“It’s important we get it right for everyone, it’s important that we get it right for the trainees, the staff, and actually the community,” Mrs Hobbs added.
“I want it to be a community hub, a space for everyone, no disability is a barrier here at all.
“It’s really about making sure we can offer things to everyone, and it’s exciting.”
As well as the 12 trainees, there will be six staff members supporting them.
Emma Pulford, the care director of the cafe, is on hand to reassure the trainees and support them where they need.
“I think it’s really important to get to know them on that individual level so that they feel comfortable to come and do what they deserve to do,” she said.
“They deserve [to work] and there just isn’t enough out there… we want to change that.”
Mr and Mrs Hobbs said they were focused on ensuring the cafe’s opening went well, and had a long-term goal of potentially opening more cafes across Suffolk.
Top GCSEs ‘A Further Step Towards Podcasts Career’
A Manx student hopes “lots of As” in her GCSE results will help her realise her dream of turning her podcast – which tackles stereotypes around disabilities – into a full-time career.
Evie Roberts, who is blind, has already interviewed author Stephen Fry and broadcaster Fearne Cotton for her Talking in the Dark podcast.
The teenager, born with bilateral anophthalmia, said she was “really happy” with her results because she can now study A-Levels at Ballakermeen High School (BHS) and then hopefully study journalism at university.
Evie was one of more than 1,000 young people on the Isle of Man to pick up their results on Thursday. The overall pass rate remained at 98% for a third year.
The Department for Education, Sport and Culture also confirmed the number of students who received A* to C had dropped 2% to 71%, with those achieving top grades of A* to A remaining at 20%.
It said about 90% of students were set to attend sixth form or University College Isl of Man (UCM), with about 10% expected to move directly into employment.
Now set to study A-levels in sociology, music and classics, Evie said her GCSE revision had benefitted from “really useful” Youtube videos which “helped sum up topics” .
Evie’s exams included braille papers, tactile images, a scribe and extra time, doubling the length of two-hour exams.
She said she had been left “incredibly tired after exam season”.
Evie said she had taken a break from her podcast, which she hosts with the help of her teachers, to focus on her exams.
The teenager said she was looking forward to “getting back in the studio again soon… to keep telling people’s stories”.
Getting Real Voice Back After 25 Years
When Sarah Ezekiel was 34 and pregnant with her second child she was diagnosed with Motor Neurone Disease (MND). She lost the use of her hands and all “intelligible speech” within months, and her marriage broke down.
Twenty-five years later, a family VHS tape filmed in the 1990s, resurfaced. Amongst the blaring TV and people talking in the background was eight seconds of Sarah chatting – barely audible at best.
Despite the unlikelihood of rescuing anything from it, assistive tech company Smartbox set to work. Simon Poole looped and cleaned the scratchy audio with a variety of tools until the cockney accent and lisp , Sarah used to hate, returned in all their glory. Sarah can now use her own voice with her eye gaze technology.
For her now grown-up children, Aviva and Eric, it was the first time they had ever heard their mother’s voice.
Danny Berney- The CP Dad
A man who is living with cerebral palsy and has become a stay-at-home dad for his 11-month-old son has taken to social media to share “laughs, hacks and life”.
Danny Berney, 32, a former nursery worker from Leamington Spa, has been posting videos on TikTok that rack up hundreds of views.
They explain how he has cerebral palsy on his left-hand side and show the adaptations he uses at home, such as carrying his son downstairs.
He told BBC CWR how he went through “a lot of mental struggles” before he and his partner agreed that they would “see if being a stay-at-home dad will work”.
Mr Berney said views that men earned money and women stayed at home were still common.
“Society nowadays is kind of like the man has to earn the money and stuff and the woman stays at home. Why can’t you reverse the roles?
“It’s exactly the same as my job. Why can’t there be people who are male who work in the nursery sector? Why does it always have to be females? Why can’t we switch that around?”
Mr Berney also has a sports channel on Instagram and uses that platform to help people make adaptations to stay active.
He said he uses his latest social media account, where he posts as “The CPDad”, to show other parents how they can make adaptations.
He explained how he showed parts of his life that he struggles with – tasks such as dressing his son, changing his nappy and opening the stair gates.
Mr Berney said: “It’s going in the right way and I’m really enjoying it – I’m really glad I’ve made the plunge”.
Meet The Acrobat Making Aerial Skills Accessible
The director of a community circus skills provider aims to break down the financial and physical barriers to take part in her sessions.
Adele Cliffe from Kinetic Heights CIC has run free workshops with specialised equipment throughout the summer.
Her team of instructors have disabilities and neurodivergence and understand the importance of accessibility.
“We all came together as a collective to start something where we could give back to the community and work with those marginalised groups,” she explained.
“There wasn’t something like that for us when we were younger,” she explained.
As a child, Ms Cliffe said she struggled to engage in PE sessions after being involved in a car crash.
“I really struggle with keeping focus on things and I had to find something to help me build my muscles back up,” she remembered.
“I found circus completely on a whim and I just fell in love with it because it felt like doing exercise but it was fun.”
Ms Cliffe enjoyed the activity so much that she was a self-employed instructor for six years before co-founding Kinetic Heights.
“It really does help with mobility, physical, mental and social well-being,” she said.
Whether out in the community or at their base at All Saints Community Hall in Hanley, the team have accessible variations of equipment to suit all participants.
All her instructors are also trained in circus training therapy, helpful when teaching neurodivergent children.
“We have non-verbal children feeling comfortable in the space to be able to be the most chirpy, cheeky child in the class.”
“Honestly, it’s the dream I’ve worked towards it for so long,” she beamed.
Thanks to the One Stoke Grant Project, supported by the Staffordshire Community Foundation, the non-profit organisation are able to offer free workshops until January 2026.
Richard Rudd Set For Triathlon Challenge
A man living with multiple sclerosis (MS) who is preparing for a triathlon has said he tries to “keep a positive outlook and make the most of every opportunity.”
Richard Rudd, from Hereford, was diagnosed with MS at the age of 21, when he was working as a machine driver in Birmingham, with dreams of becoming a builder.
He had always been “very hands on”, his carers said, with hobbies including fishing, clay pigeon shooting, motorbikes and greyhound racing – but he still enjoys laser clay shooting and fishing.
Mr Rudd, 54, has written on his fundraising page how MS could make daily life unpredictable and physically challenging. Media caption,
He now takes part in laser clay shooting because it is more accessible, and he goes fishing at Andy’s Fishing Lake, near Hereford, with his carer – he said he liked the ambience there
On Saturday, he will take part in the Superhero Series Triathlon at Dorney Lake in Windsor, an event designed for people of all abilities, including a swim stage, bike stage and a push or run stage.
The Superhero Series was founded by Paralympian Sophia Warner in 2016 so everyone could be active and take part in a large-scale sporting event.
The event has no cut-off times or equipment restrictions and people can team up with family and friends and do as much or as little as they wish.
Mr Rudd is raising money for the Oxygen and Wellness Therapy Centre which he attends in Hereford.
It supports people living with long-term health conditions.
He will take part in the challenge with the help of carer Wendy Wait, her daughter Emma and Samantha Stacey from the centre, and has been training for a year to prepare.
Ms Wait said they had trained on gym equipment twice a week to prepare for the challenge, and Mr Rudd had been taking part in dance activities to keep fit.
Mr Rudd, who uses a wheelchair, said the dance sessions were “groovy” and kept him “out of trouble”.
In his appeal for donations, he wrote: “Thank you for reading my story, and for cheering me on – every bit of encouragement helps. I’ll do my very best to make you proud.”
Accessible Hotel Granted Wedding Venue Licence
An accessible hotel in Jersey has been granted a licence allowing it to host weddings.
Maison des Landes in St Ouen’s has 23 rooms for people with disabilities and their carers.
General manager Steve Martin said the hotel would be open to anyone looking for a wedding venue and bookings could begin from September.
Suzanne Day, support service manager at disability charity Enable Jersey, said the move would make a “positive difference” for people planning their weddings.
“Whether living with a disability themselves or trying to find a venue that provides facilities for friends and family members, couples now have not just an accessible option, but a beautiful location for their wedding day,” said Mrs Day.
“We know that not all wedding venues in Jersey offer accessible facilities therefore this is such a step forward, not just for our Jersey community but those who may wish to come to Jersey to get married.”
Mr Martin said the hotel applied for the wedding venue license following encouragement from guests.
“People started to ask, ‘wouldn’t it be a great wedding venue, have you thought about doing weddings? Have you thought about opening up to the public for other things?’,” he said.
“So we’ve applied for a wedding licence and luckily we’ve been granted it by the Registrar and the Constable.”
Mr Martin said the plan was for people to be able to hire the whole hotel.
“Obviously we can’t really do weddings May to September when it’s very busy and the hotel’s very active,” he said.
“The plan is to maybe start doing weddings the other six months of the year and see how it goes from there.”
The hotel said it was working with an events company to organise the ceremonies while it provided the venue.
Model And Actress Ellie Goldstein To Make Strictly History
Model, actress and disability campaigner Ellie Goldstein has joined the line-up for this year’s Strictly Come Dancing, making her the first star with Down’s syndrome to take part in a regular series of the dance show.
She follows in the footsteps of TV presenter George Webster, who was a contestant on the 2022 Strictly Christmas special.
Goldstein was added to the line-up for Strictly’s 23rd series on Wednesday alongside two more new names – former England rugby union captain Chris Robshaw and Drag Race UK finalist La Voix.
Nine celebrities have now been revealed for Strictly, which will air on BBC One and iPlayer from September to December. Others are expected to be confirmed in the coming days.
Down’s Syndrome Association chief executive Carol Boys said they were “absolutely thrilled that Ellie has been chosen”, and it was “a wonderful recognition of her hard work”.
“It’s so important for other people who have Down’s syndrome, as well as the wider community, to see representatives in big shows like Strictly,” she told BBC News.
“We will be cheering Ellie on every week and can’t wait to see her on the dance floor!”
In May 2023, Goldstein became the first model with Down’s syndrome to feature on the cover of British Vogue, and also made history by leading a campaign for Gucci.
Earlier this year, the 23-year-old joined the cast of BBC children’s period drama Malory Towers – based on the books by Enid Blyton – playing Nancy.
The east Londoner told BBC Breakfast she was “honoured and excited” to be joining Strictly, which she wants to win, and hopes to be paired with professional dancer Nikita Kuzmin because she wants to marry him.
“It’s a show I’ve loved watching for so long, and the chance to now be part of it feels like a dream,” she added. “I know it’s going to be challenging, but I’m ready to do it with the glitter and glamour and make some magic on that dancefloor.”
Blind Woman Raises Thousands With Wing Walk
A blind woman has raised thousands of pounds after fulfilling a childhood dream of performing a wing walk.
Mel Griffiths, from Arnold in Nottinghamshire, has had failing vision since birth but has always dreamed of taking on the feat after seeing a Blue Peter presenter doing a wing walk in the 1980s.
Mrs Griffiths, 60, achieved her ambition on 8 August at Wickenby Aerodrome, in Lincolnshire, on an aircraft flying at 600ft (183m), at speeds of around 120mph (193km/h).
She has now hit her target of raising £5,000 for the Guide Dogs charity.
Wing walking involves the passenger being strapped to a fixed frame on the top wing of a biplane.
Mrs Griffiths said: “It was probably the most exciting and exhilarating thing I’ve ever done, and I could quite easily have got straight back up there and done it again.
“When you don’t have sight, although your other senses aren’t improved, you are more aware of them.
“It was loud up there – you could hear the noise of the plane and the wind.
“I could feel the plane ascending and descending and the g-force on my face as the plane turned.
“They dipped the plane around a bit, which made it a fun flight – it wasn’t just a little fly around!”
Mrs Griffiths chose to raise funds for Guide Dogs as she has been supported by seven guide dogs and is currently partnered with her guide dog, Elsa, a golden retriever-German shepherd cross.
Deaf Drag Queens’ Bid To Keep Gay Sign Language Alive
Some acts at the Edinburgh Festivals are guaranteed to stop the traffic.
But it’s a practicality for Mary and Danielle, who as well as negotiating the city cobbles in sky high heels, are also deaf.
Their show Deaffy Drag Queens: Glitter, Gags and GSV is one of 70 at this year’s Edinburgh Deaf Festival, which got under way at the weekend.
At 64, Mary is ready to hang up her heels, but not before she trains her successor, 18-year-old Danielle.
“I’ve been doing drag for 40 years,” says Mary. “And I first came across Danielle in Norwich where I was appearing at a festival.
“I’d known her family for years and she was very keen on drag, even though she was only 16 at the time.”
Although she was young, Danielle had grown up watching RuPaul’s Drag Race and was particularly inspired by American queen Jinkx Monsoon who won the fifth season of the show.
“It changed my life. I just felt like I could relate to her straight away,” she says.
“She had no idea about drag but then just found herself and it really changed everything about her life. She’s such a great role model for me and that’s why I want to be the first deaf drag queen in the world to be on Drag race.”
Mary says she’s be delighted to pass the baton (or perhaps the sceptre) to Danielle since it would also continue her passion for GSV – gay sign variant.
A flamboyant version of British Sign Language, developed by the deaf LGBT community, Mary first learned it when she moved from Ireland in the 1980s and joined the London-based Brothers and Sisters Club.
The language allowed deaf, gay people to communicate discreetly. During the Aids epidemic, it became even more important in the midst of stigma and misinformation.
Mary, who by then was a nurse, said it had a powerful emotional appeal when dealing with people who were dying.
Today, it’s barely used by the wider deaf community and Mary is determined to keep it alive. She shows me some of the signs which are variations of the BSL signs.
“So for example, for shop, we sign it like your handbag on your arm.
For shoes, we sign it as if we’ve got high heels on.
So it’s more elaborate, more flamboyant and has more facial expressions.”
Despite being fluent in BSL, Danielle says she found GSV tricky to learn.
“It’s like a new language,” she says.
“I had to ask Mary to repeat things, but once I got it, I loved it.
“It’s so expressive whereas with BSL you can sometimes have a blank face.”
Does Mary think that Danielle can persuade a new generation to embrace GSV and save it from dying out?
“Oh yes, definitely and I will keep using it until I’m dead.
“I will not be giving it up.
“And a lot of deaf people are more aware of GSV. They say they like it more than BSL because it’s rich in language and culture. It’s a more heightened way to communicate.”
‘Disabled People Deserve Dolls That Represent Us’
A woman who creates miniature mobility aids and medical accessories for dolls is launching a new range of powerchairs and scooters for the figurines.
Grace True, from Sheffield has been making items such as walking sticks, ostomy bags and wheelchairs for toys since 2023.
The 29-year-old, who has fibromyalgia and uses a powerchair herself, said she had only felt confident enough to use mobility aids after seeing others use them, something she said had “changed my life”.
“Children seeing a doll using an aid can give them the confidence to use the things they need to benefit them. And people seeing them more often can eliminate biases and stigmas early,” she added.
Ms True, who runs Disabled Dolly, is working with 3D design software company Solidworks to create the new chairs and mobility scooters.
“I myself use a powerchair, so I understand how life-changing something like that can be,” she said.
“It’s something I’ve wanted to make since day one. To finally create that will be the biggest achievement for Disabled Dolly to date and, personally, it will be really wonderful.”
She said she hoped the business would show what was possible in the industry and “drive the narrative for change” in representing disabilities.
“If I can see the importance and make it possible, then why aren’t the larger doll companies doing more?” she added
James Taylor, strategy director at disability equality charity Scope, said Disabled Dolly was “paving the way” and urged other businesses to take inspiration.
“When disabled people don’t see themselves represented, then talent and potential goes unrecognised and negative attitudes go unchallenged,” he said.
The first wheelchair-using doll from Barbie-makers Mattel, Becky, was discontinued soon after its release in 1997 due to the chair being too wide for the door of the Barbie Dreamhouse.
The next Barbie dolls with disabilities were not released until 2019.
‘Necessary, not niche’
Ms True said: “When you are waiting for bigger companies to create things, you are waiting for them to deem something important or profitable enough to be made.
“So, a lot of children grow up not seeing themselves in their toys, and some adults are just experiencing that representation now.”
Steven Morris, campaigns officer at disability charity Sense, said it was “wonderful” to now see children and adults represented in their play and hobbies.
“As a child almost no mainstream toys were aimed towards disabled children like me, he said.
“This can have an impact on your self-esteem, and lead you to feel even more isolated as a disabled child.”
He said he would like disability-inclusive items to be seen as “necessary, not niche”.
“Many of the children we support at Sense have dolls which reflect their disabilities, and it’s clear from the looks on their faces how much this means to them,” he added.
Disabled Dolly items are made to order, which Ms True said gave people more flexibility in creating a doll that feels similar to them.
“When you are acclimatised to seeing yourself everywhere as someone who is non-disabled, representation can be something that is taken for granted,” she added.
“People underestimate the power dolls and toys have.”
Devon Man With Locked-In Syndrome Becomes Author
A man from Exeter who has contributed to a book about living with locked-In syndrome says he hopes his writing “can help future victims of this condition”.
Bram Harrison, 48, suffered brain damage after a bicycle accident 27 years ago, which has left him unable to move any part of his body apart from his eyes. He communicates using an eye-controlled computer.
His 5,000-word piece in Giving a Voice to Those Living with Locked-In Syndrome is among pieces from 12 contributors in the book edited by neuroscientist Shannan Keen.
Ms Keen said she hoped the book would educate medical professions about the condition and the care needed and provided, especially in the days after diagnosis.
His chapter, called Vicissitude, is about his accident, his diagnosis, and a communication breakthrough with technology.
The rare condition sees patients not able to move any part of their body, although they can feel, hear and see. Often, though, they may be able move their eyes and eye lids.
It has several causes including a stroke, cancer, illness or injury.
Bram explained: “Being diagnosed as having locked-In syndrome, for me, was a great thing. The alternative isn’t pleasant.
“Imagine being locked in a tiny box, completely trapped inside an empty building and nobody knows you are there.
“Well, being diagnosed means the doctors know you’re in the building.
“I’ve written about emerging from a comatose darkness; and then, after nine years of silence, using an eye-controlled computer, I spoke to the whole world.”
Ms Keen said: “It was really fascinating to read how his life had unfolded; what happened, how he’d been before he had his accident, the feelings that he had during his recovery, and how’s he’s managed to move forward with his life and create a really meaningful life for himself.”
She said she wanted educate those who looked after people with the condition about the importance of support immediately after diagnosis.
She added: “The feeling of desperation and not understanding, A: what’s happened, and B: what their future can hold is very difficult; it’s a shame that isn’t something that’s focused on.”
Philip Robinson met Bram shortly after his diagnosis and said Bram liked to push boundaries.
He said: “When I first met Bram, I saw a young man struggling to come to terms with what had happened, and then that changed into a young man thinking: ‘What can I do now?’
Apart from writing, Bram has been a radio DJ on community radio, calling himself DJ Life Tech.
He also said that legacy was important to him.
He said: “I hope my words can help future victims of this condition.
“I’ve always wanted my life to be recorded in some way. I didn’t think I would be a writer though.”
He added he hoped developments in technology would provide more breakthroughs for people with the condition.
He said: “Technology is constantly evolving, opening new possibilities.
“Before my accident, I never really considered the true meaning of the words ‘life-changing injury’.
“Now making the most of a complicated life is my main concern.”
UK’s First Disabled Strongman Launches Mission
The UK’s first disabled strongman is fundraising to secure the future of a national event for strongmen and strongwomen.
Gary Clarke, 48, from Chard, Somerset, is a key organiser for the British Disabled Strongman Competition, which he set up in 2015 – but this year, it lost several major sponsors.
Mr Clarke said weightlifting has improved his cerebral palsy and is keen to support others so they can benefit from the sport.
He said: “The lifting has helped with my cerebral palsy 100% and I will always lift a barbell of some description. It’s ingrained in me… and it just makes sense to me.”
The annual competition will take place in Uxbridge, London, on the 13-14 September.
Mr Clarke was starved of oxygen when he was born three months prematurely. This traumatic birth left him with cerebral palsy.
But after receiving extensive physio through his younger years, he was able to walk with crutches.
He said he “always found a way” to achieve what he wants.
“When I started doing weights, the gym was up a set of stairs so I found a way to get up on the crutches. It was the warm up I think,” he said.
He progressed to power lifting and bench pressing for Great Britain then saw there was a Disabled Man Championship in Iceland in 2011.
“It was unchartered territory,” he said. “It was tough. I remember doing the van pull on paving slabs that weren’t level and the tyres were let down as well.”
‘Very proud’
Mr Clarke competes in the seated class for people with restricted use of their limbs, which means he is only allowed to use his upper body.
He said becoming the first person to represent Great Britain made him very proud.
“The thing I want to get across is it’s not a tokenism thing, it’s hard,” he added.
After training for about 20 years, he said he is more practical now and does not go “hell for leather”.
“I train specifically for competitions and am more selective,” he added.
He is urging people to donate to next year’s British Disabled Strongman Competition.
PACE4PACE Fun Run, Roll And Stroll
Same Difference has been asked to publicise this event by the PACE Charitable Trust.
Euro Hero Hampton Offers Support To Para Lioness
Kaitlyn Clark was told she would never play football due to her visual impairment, but thanks to watching her England Euro 2025 hero Hannah Hampton – who lives with the same condition – she has pushed ahead.
The 20-year-old is now a Para Lioness and has represented England in the Women’s Blind Football Team, despite being told she was not good enough by scouts while growing up.
“It was like a dagger to the heart,” she told BBC Radio WM, who arranged a surprise meeting with her hero.
When the BBC contacted Hampton, from Birmingham, she said she was “angered” by her story and wanted to meet Ms Clark to show her support.
According to the NHS, strabismus is a condition where the eyes point in different directions – a visual impairment both Hampton and Ms Clark were diagnosed with at a young age.
She said: “Football has been a massive part of my life over the last 10 years.
“Hannah shows that you can reach the highest level even with a disability. She’s an inspiration to never stop dreaming.”
At the age of 17, Ms Clarke began representing England in blind football.
She told the BBC: “I started playing when I was nine and then was in and out of teams because they always thought I wasn’t good enough.
“I’d get scouted by teams; they’d watch me play and want me, then they’d find out I had a visual impairment and say they didn’t want me.
“It made me quite angry; I don’t let my visual impairment get in my way.”
Ms Clark was playing for Southampton Football Club’s Para team, which included blind players, when an England scout invited her for trials for the team’s visually impaired squad.
“It was quite shocking; I’d always been rejected by teams and then England come knocking on your door.
“It was overwhelming. You’re a little girl from Southampton kicking a ball around to playing for your home country.”
‘Incredible achievement’
During her interview with BBC Radio WM, Ms Clark was surprised when her hero, who saved two penalties to help England retain their Euro 2025 crown in Basel last month, entered the studio.
Goalkeeper Hampton said: “I’m right around the corner, so I thought I couldn’t not [meet her] – there’s so many things we had to put up with growing up with visual impairments – and my whole story is to go out and try and inspire people.”
The Lioness said their condition did not make them different from other football players.
Speaking directly to Ms Clark, she added: “To hear your story was just incredible.
“I’m glad you’ve not stopped playing football and not let people put you off.
“Just keep that dream alive – and you did that by representing your country – not many people can say they’ve done that; it’s an incredible achievement in itself.”
“Hearing your story, it made me angry – we’re no different from anyone else. We’re human beings; we have feelings, and if it makes you happy, you have to keep going.”
Ms Clark posted on her Facebook after the interview.
She said: “A massive thank you to Guide Dogs UK and BBC Radio WM for this amazing opportunity to speak about my journey as a football player, and a huge thank you to Hannah Hampton for coming to surprise me during the interview; it’s something I never thought would or could happen.”
Disabled Adventurer’s Mountain Climb Hits Screens
A short film telling the story of a record-breaking mountain climb by a disabled adventurer will be shown at a special screening next month.
The film follows Nick Wilson from Towcester, Northamptonshire, as he ascends Yr Wyddfa, also known as Snowdon.
He is the first disabled person to climb the mountain solo using a purpose-built all-terrain powerchair.
“This isn’t just my story. It’s about showing what’s possible when lived experience meets inclusive engineering,” Mr Wilson said.
The film will be shown at the Royal & Derngate theatre in Northampton on 21 August.
Former soldier Mr Wilson, 48, served in Northern Ireland, Kosovo, Iraq and Afghanistan before being forced to retire with severe spinal injuries.
The film, titled Project RockClimber, explores his journey through chronic pain and mental health struggles, and how collaboration with Rock Engineering led to the creation of the RockClimber, a prototype mobility device designed for extreme environments.
He completed the climb in July 2024.
“The chair saved my life, and now we want to use it to show how accessibility can be approached differently, with hope and ambition at the centre.”
The screening will also support the Wheelchair Alliance, a national campaign for improved access and visibility for disabled people.
Jo Gordon, chief executive of Royal & Derngate, said: “It’s great to be able to support the invaluable work [Nick Wilson] is doing to champion accessibility – a subject which is so important to us here at Royal & Derngate.”
Student Graduates With Guide Dog In Mini Gown
A University of Wolverhampton student has graduated with her guide dog by her side, with the pooch wearing a smaller version of the black gown for the occasion.
Caitlin Leigh graduated with a BSc in Sport and Exercise, accompanied to the ceremony and stage by her dog Honey to help mark the completion of her studies.
Ms Leigh is visually impaired and overcame significant challenges to complete her degree, the university said, and Honey has been with her every day during her three-year course.
“Honey was more than a guide, she was my independence, my confidence, and my calm,” she said. “I couldn’t have done this without her.”
One of Ms Leigh’s tutors made the gown for Honey and said she had to be involved in the ceremony.
“I decided to make the gown for Honey as I felt it only right that she be dressed up to cross the stage as well.
“I had never made anything like that before but popped to my local fabric shop with the measurements and gave it my best shot – don’t look too closely at the sewing.
“She looked very smart, and I think it was a nice addition.”
The university has supported Ms Leigh during her studies and said her success “was a testament to her determination…. and the unwavering presence of Honey, who attended every lecture, seminar, and practical session, come rain or shine”.
Ms Leigh, who was born with a progressive eye condition called congenital glaucoma, and the university have launched a fundraising campaign to support Guide Dogs UK.
“Caitlin’s story embodies the resilience, compassion, and community spirit we’re proud to foster at Wolverhampton,” Teresa Graham, assistant faculty registrar, said.
“We’re honoured to support her in giving back to the organisation that made her journey possible.”
“To anyone facing challenges, don’t let anything stop you. The university supported me every step of the way, and they’ll support you too. You are capable of more than you know,” Ms Leigh added.
Taxi Driver Fined For Refusing To Take Guide Dog
A taxi driver has been fined after refusing to carry a guide dog in his vehicle.
The incident happened at a taxi rank in Witham in Essex in August and a prosecution was brought by Braintree District Council.
Ovidiu Budulan, a 40-year-old licensed Hackney Carriage driver from Braintree, admitted failing to comply with the 2010 Equality Act and was fined £325 at Chelmsford Magistrates’ Court.
Sharon Schaffer, chief executive officer at Support4Sight, said: “It really needs to be embraced that guide dog owners must have access to the same public transport as anyone else.”
Budulan, who was also ordered to pay a £130 victim surcharge, was approached by a person who was registered blind.
However, a second Hackney Carriage driver did agree to take them.
Mary Cunningham, Conservative cabinet member for stronger communities at the council, stressed that most taxi drivers in Witham were helpful.
“This case sends a clear message that discrimination against passengers with a disability will not be tolerated,” she said.
“We expect all licensed taxi drivers to understand and comply with their legal obligations and responsibilities.”
Budulan was also ordered to pay costs of £600 to the council.
Rachel Dale, a taxi industry specialist in Essex, said: “The issue with this is it is a Hackney Carriage driver who is not monitored – he is his own boss.
“Paying a large sum of money is one thing, but they should be aware they could lose their licence.”
She added that drivers should have “compassion for people” and provide “a professional service”.
Ms Schaffer added: “When you are refused [a ride], the impact is really damaging both practically and emotionally.”
She added that guide dogs “are never going to be a threat” on any form of public transport but she understood some people might have medical reasons for not allowing animals in their taxis.
She emphasised that for people with assistance animals “the law is on your side”.
Disabled Man Attempts World Record Mountain Climb
A former professional rugby player turned disabled adventurer is set to take on his biggest challenge yet in a world-first mountain challenge.
Ed Jackson played for Bath and Wasps before his career ended when he broke his neck in a swimming pool accident in 2017 and was told he would never walk again.
Since then he has taken on climbing challenges around the world, launched a charity and had a film made about his journey.
Along with a team, Mr Jackson will attempt to reach the highest peak undertaken by people with disabilities – a feat he hopes will “plant a flag in the ground for accessible adventure”.
“We’re not just climbing a mountain — we’re shifting mindsets, breaking barriers, and opening the door to future explorers who’ve been told they don’t belong here,” he added.
The two-week expedition will see Mr Jackson, disabled adventurer Luke Tarrant, and their team explore the remote Tien Shan mountain range in Kyrgyzstan.
From basecamp, they will aim to summit a previously unclimbed peak of more than 5,000 metres (16,404 ft).
Mr Jackson hopes the world-first challenge will “rewrite the rules of who gets to explore, and prove that with the right mindset, innovation, and support, anything is possible”.
He admits that that there may be a “less than 50%” of reaching the peak of the mountain but says it will be an adventure.
The team will be fundraising for Millimetres 2 Mountains, the charity co-founded by Mr Jackson to support “others overcoming adversity through adventure”.
If they are successful, the team will have the chance to name the mountain.
“This is Kyrgyzstan’s mountain, whether we get to the top first or not.
“We want the kids of Kyrgyzstan with disabilities to name the mountain, so that they have got something to inspire them,” Mr Jackson said.
Drake Music Opens Applications For Emergent Artists 2025
Do you know viewers where I would find a accessible lodge in Gloucester to rent as a holiday home for when I go and see my friends that is affordable unload type thing that can take?
As England’s Lionesses prepare for their victory parade today after bringing football HOME we at Same Difference thought we’d share some information for any DisAbled women who would like to get involved im playing the beautiful game.
The FA believes that there should be flexible, inclusive and accessible playing opportunities for everyone, whatever their level of ability.
There are now a range of opportunities for players with a disability to access football at various level.
You may be an enthusiastic grassroots player who likes nothing more than a kick about with your friends and enjoys the social aspect of this participation.
Others may have ambitions to develop as a player and to play competitively in a league or cup competition, others may have ambitions of playing for their country – the good news is that the systems are in place for you to access football at the level that meets your needs and aspirations.
Player pathway
As well as mainstream football, there are two main pathways that players with a disability can choose to follow dependent upon what suites them best. Some may choose to play across all three.
Disability-specific football
We believe that disabled people should be playing in mainstream football. However, we also realise that some disabled people may be better provided for or simply prefer to play in disability specific football, whether that be ‘pan disability’ or impairment specific football. This may be on a temporary or permanent basis but we believe the most important thing to be that there is a choice available.
Pan disability football
Most disabled footballers tend to play pan disability football as this format allows players with a broad spectrum of disabilities, impairment and health conditions to play together. Typically the only players excluded from this format will be those who use a wheelchair or those who are blind. See the impairment-specific section below for details of how wheelchair users and blind footballers can get involved.
If you think pan disability football is for you then there are female-specific options available, with a range of mixed gender opportunities.
Pan disability recreational ‘Turn Up and Play’ centres
For some players affiliated football is not an option because of the lack of desire, time commitment, ability, or simply that they don’t want to play competitive football.
Through the Disability Workforce Fund there will be over 100 female-specific ‘Turn Up and Play’ centres and many more mixed gender centres at locations across the country commencing in 2016-17.
These centres will cater for both adults and children and will allow players to play football in an organised but informal way. For more information about centres in your area please contact your local County FA.
Pan disability leagues and teams
There are now nearly 200 affiliated female disability teams that mainly play across the 36 County leagues within England. There are many more mixed teams, particularly at youth age groups where teams tend to be mixed as opposed to single-sex teams.
These teams and leagues form the foundation of the disability player pathway and provide an environment in which players can play competitively on a regular basis. In many cases, these County-based leagues have been established and are supported by County FAs who deliver them in partnership with a range of organisations to ensure that provision is both standardised and sustained.
County leagues develop provision for five key groups who play ‘pan disability’ football – adult male, adult female, U16 mixed U14 mixed and U12 mixed. The format varies, but typically it will be either 5-a-side or 7-a-side with fixtures taking place monthly at a central venue between September and May.
County leagues work with County FAs to ‘sign post’ players that have the ability to participate in mainstream activity to the appropriate playing opportunities, allowing the leagues to focus their efforts on providing opportunities for players whose ‘disability’ prevents them from achieving their potential in mainstream football.
The leagues adopt ‘ability banding’ where there are enough participating teams and clear differences in the ability level of players. (‘Premiership’ competitions are sometimes delivered on a regional basis with ‘Championship’ and ‘League’ divisions being delivered locally via County-based leagues).
Premier League level: Players participating at this level are able to cope physically, have good levels of spatial awareness, excellent ability to understand tactics and good levels of physical strength and fitness.
Championship level: Players participating at this level are mobile, have spatial and tactical awareness, knowledge of the laws of the game and have a good level of fitness.
League level: Players participating at this level have limited mobility, spatial awareness and fitness.
For more information about teams and leagues in your area please contact your local County FA.
Impairment-specific football
Impairment-specific football means that players with more or less the same impairment play with and against each other. Each impairment group plays a format of football that has been developed or adapted specifically to cater for the players’ needs and there are various forms of classification which exist to try and ensure fair competition.
International competition for disabled players exists in seven different impairment groups – Amputee, Blind, Cerebral Palsy, Deaf, Learning Disability, Partially Sighted and Powerchair (Wheelchair). At present the only female international squad is the England Deaf Women’s team. This is mainly due to the lack of international competition opportunities available for women in other impairment groups.
The FA is committed to ‘Football For All’ and will work with the international impairment-specific sports organisations to try and address this issue in the coming years.
Impairment-specific opportunities for disabled people to play football are not exclusive to these groups. At a local level there are recreational and competitive opportunities for other impairments groups including Downs Syndrome and Mental Health.
Impairment-specific ‘Turn Up and Play’ centres
As outlined previously there are a range of female-specific and mixed gender ‘Turn Up and Play’ centres across the country, which will open in 2016-17, funded by the recently-launched Disability Workforce Fund. The majority of these are pan disability, however a small number will focus on specific impairment groups in partnership with the relevant National Disability Sports Organisation, the Wheelchair Football Association and the English Amputee Football Association. For more information about centres in your area, please contact your local County FA.
Impairment-specific teams and leagues
There are currently six national impairment-specific leagues that provide for the following impairment groups: Amputees, Blind, Cerebral Palsy, Deaf, Partially Sighted and Powerchair.
At present there are no national impairment-specific leagues for females which is mainly due to a lack of female impairment-specific teams.
A pilot dispensation policy exists, specific to adult disability football competitions, to ensure there are still opportunities for females to play their own impairment-specific format of football, even when there are not enough female players for a single-sex team or competition to be formed. Adult disability competitions such as the impairment-specific leagues outlined above can request special dispensation to allow mixed gender teams as a temporary measure, until the numbers become sufficient to have female specific teams and competitions.
For more information about impairment specific teams and leagues please contact your local County FA.
We warmly congratulate the Lionesses and hope to be celebrating the success of a DisAbled Lioness team someday soon with equal excitement.
Chess Tournament For Visually Impaired Takes Place
A chess tournament for blind and visually impaired people that has been running for three decades has attracted players from around the world.
The event organised by the Braille Chess Association is taking place in Bournemouth, Dorset.
Competitor Abi Baker said: “I wanted to find something to do which meant I could be relatively good at it without a huge amount of sighted help.”
Taking place in the Marsham Court Hotel until Saturday, Ms Baker is taking on players from as far afield as Austria and the United States.
“If I make a really bad move, it’s a product of my own mind – the wind didn’t put the piece there,” she said.
As opposed to sighted chess, which is played on a single board, each player in the tournament has their own board.
Players announce their moves to each other and replicate their opponent’s move on their own board.
That allows them to keep track of the board by feel – without having to reach over and touch their opponent’s pieces.
The boards are also adapted for visually impaired people, with raised tiles and tactile pieces.
One participant, Marilyn Bland, travelled to the event from Texas in the United States.
“I’m enjoying meeting all the people I’ve been speaking with on Skype over the years,” she said.
“I’ve lost my first game because of an oversight on my part, but I’ve drawn all my other games, so I’m happy so far.”
John Jenkins has organised four of the tournaments so far.
“I’ve been playing chess for 70 years now – probably getting slowly worse,” he said.
“No game is ever the same – I’d recommend it to anybody, particularly for children, because it teaches them so much about concentration and problem solving.
“All of these people are here are blind – but they’re resilient. They just want to get on with it, and they enjoy playing chess.”
Blind Business Owner Creates QR Codes For Menus
A Devon business owner is hoping to make ordering at restaurants and cafés easier for blind people using QR codes.
Brandon Hulcoop – who has been blind since birth – set up his All Things Dotty business in 2023 to make Braille menus for venues across the UK.
The 23-year-old from Plymouth’s latest development is the creation of QR codes which can give blind or visually-impaired diners an audio version of an eatery’s menu so they do not have to rely on others to read out the options.
Mr Hulcoop has also launched a petition to ask the government to introduce legislation which would require all hospitality venues to have accessible menus.
The QR codes are embossed with Braille, so visually-impaired customers can feel where the code is, scan it with their phone and listen to the menu at their leisure.
Mr Hulcoop said, in his experience, most visually impaired people – especially the younger generation – preferred to use technology.
He added: “By scanning a QR code, it opens the restaurant up to a whole new world of people.”
Mr Hulcoop said when he asked some restaurant owners why they did not provide Braille or audio menus, their response was they do not think there was the demand.
“My question to restaurants and cafes is how do you know whether you get a visually-impaired customer,” he said.
“Not everybody uses a long cane or a guide dog, and people don’t ask for an accessible menu because, let’s face it, very, very few people had accessible menus available.”
The Boathouse restaurant in Plymouth, which already offers customers Braille menus, is one of the first eateries to use a QR code.
General manager George Ford said: “I would say someone being visually-impaired or hearing-impaired is no different to having an allergen.
“We should always cater for it and make everyone feel as normal as possible.
“If you are visually-impaired and you are coming to a venue without a Braille menu or a large-print menu, you probably feel quite isolated.”
Accessible Play Area To Be Built For SEND Children
Plans for an accessible playground to make life easier for SEND children and families have taken a step forward.
Littlemore Parish Council has chosen a supplier for the play area, which will have rides suitable for a range of disabilities and special needs.
Features could include a sensory area, wheelchair-friendly equipment and a communications board for non-verbal children.
Rose Carter, who runs an SEN learning provider and has been advising the council, said: “It’s really important that these vital spaces are inclusive for our community.
“If you get things right for children and young people with SEND needs then you get it right for everybody – but it doesn’t always work the other way round.
“Unless things are fully accessible, people with a physical or learning won’t be able to take part in things and be a full member of the community – and surely that’s what we we want.”
The current site includes swings, a log walk and picnic benches.
Littlemore Parish Council submitted an Invitation to Tender for the site in April, meaning contractors and suppliers could bid to take on the building work.
An allocation of £90,000 in Community Infrastructure Levy money has been made to the project.
A investigation by disability charity Scope in 2023 found only two out of the 19 playgrounds they visited in Oxfordshire met a high standard of accessibility.
They assessed the sites on criteria like step-free access, colourful equipment, wheelchair-friendly equipment and handrail support.
…
‘Deaf Learner Drivers Need More Support’
Deaf campaigners have called on the government to help make learning to drive more inclusive, as figures reveal there are no British Sign Language (BSL) qualified driving examiners anywhere across Britain.
Official figures showed in 2023-2024 that 38.71% of profoundly deaf learners passed their practical test.
Sammey Ahmed, from Birmingham, who is deaf, passed his test in 2019, but said communication could be major barrier when learning.
He benefited from a scheme run by the charity Deaf World, an organisation that supports young deaf people in the West Midlands.
Its road safety project 1st Gear helps learners get up to 25 hours of driving experience under the guidance of qualified BSL interpreters.
Mr Ahmed followed that up by booking extra driving lessons with a standard instructor, but he said it had not always been a smooth ride.
“It really is [difficult]. The driving instructors are hearing, so the main barrier we face is communication,” he said.
“If I want to learn in-depth knowledge or specific areas of driving, I’m limited to basic gestures. So it really is quite frustrating.
“‘There is a lot of deaf people who don’t have their driving licence, they feel quite isolated because of that.”
Mr Ahmed now works for Deaf World as a youth officer, supporting the work of the charity.
The Royal National Institute for Deaf People said learning to drive could be crucial for many of those it worked with.
Teri Devine from the charity said: “Deaf people are the same as everyone else. They want to go out and do things that they enjoy and want to be involved.
“For deaf people, the biggest barrier is lack of access. It’s society that disables a person.”
For the theory test, the DVSA makes BSL interpreters available for candidates to book. And in recent weeks, a BSL translation tool has been introduced to the booking website in what it said was a government first.
Many permanently deaf adults have low literacy levels, as reading is based on spoken language, meaning they rely almost entirely on BSL.
The DVSA said extra support had been provided in 1,128,178 theory tests taken between April 2024 and March 2025,
Of this, 1,832 were taken with BSL on-screen and 363 were taken with a BSL interpreter.
The practical test is more of a challenge.
At the moment, many learners rely on an interpreter who they are allowed to bring with them in the vehicle as well as the examiner, but communication can still be difficult.
For Mr Ahmed, learning to drive has allowed him to meet his friends and take part in cricket sessions.
“In my free time I can come here [to the cricket nets], that’s why being able to drive is so important,” he said.
“The deaf community experience an increased percentage of isolation, with deaf people more likely to stay at home.
“It’s helped me by giving me options of places to go – without being able to drive, it would be so much more difficult.
“The idea of public transport is not enough for the deaf community.”
In a statement, the DVSA said anyone who met the required standard could pass the driving test regardless of disability and it encouraged people to disclose their needs so reasonable adjustments could be made.
The DVSA added that if a candidate needed to pay a fee for an interpreter in the practical test, it would reimburse the cost.
BEEAKING: Ozzy Osbourne Dies Aged 76
Breaking news tonight readers, the sad death of Ozzy Osbourne. A name it is impossible not to have heard.
Ozzy Osbourne was diagnosed with Parkinson’s in 2019. So, this is an open thread for your tributes to a truly DisAbled and extremely famous person.
RIP Sir.
Stevie Wonder: ‘I’ll Keep Playing As Long As I Breathe’
At the age of 75, Stevie Wonder is still going strong.
His latest UK tour, which wrapped up earlier this month received rapturous reviews, with critics calling the star “fresh and on form,” for “a riotously joyful celebration, ” of his music.
But while contemporaries like Billy Joel and The Eagles are reducing their musical commitments, Wonder says he will never consider retiring.
“For as long as you breathe, for as long as your heart beats, there’s more for you to do,” the Motown legend told the BBC’s Sidetracked podcast. “I’m not gonna stop the gift that keeps pouring through my body.
“I love doing what I’m doing. An artist never stops drawing. As long as you can imagine is as long as you are going to be creative.”
The star also confirmed he was still working on a new album, titled Through The Eyes Of Wonder, which he first discussed in 2008.
The project has previously been described as a performance piece that will reflect his experience as a blind man.
It would be his first studio album since 2005’s A Time To Love; extending a recording career that started in 1962, when he was just 11 years old.
Wonder spoke to Sidetracked presenter Annie Macmanus, the day before he headlined the BST festival in London’s Hyde Park – playing a two-and-a-half hour set that encompassed his biggest hits, from Superstition and Isn’t She Lovely to You Are The Sunshine Of My Life and I Wish.
Most of the set was drawn from the 1970s purple patch when he won the Grammy Award for best album three times in a row, for Innervisions, Fulfillingness’ First Finale and Songs In The Key Of Life.
Wonder told Macmanus that he never tired of revisiting those records.
“Songs are like children, they’re with you forever,” he said. “They are statement from the spirit within you.
“And singing those songs is like me taking another breath.”
America ‘going backwards’
Earlier this month, during a concert in Cardiff, the musician addressed a long-standing conspiracy theory that he is not actually blind.
“You know there have been rumours about me seeing and all that?” he told the audience, “But seriously, you know the truth.”
“Truth is, shortly after my birth, I became blind,” he told fans.
Calling his disability a gift, Wonder continued: “Now, that was a blessing because it’s allowed me to see the world in the vision of truth, of sight.”
In his Sidetracked interview, the singer talked about the importance of using music to spread positivity and speak truth to power.
Throughout his life, he has been a vocal civil rights campaigner, and played a key role in the campaign to have the birthday of Martin Luther King Jr recognised as a national holiday in the US.
Wonder, who campaigned for Democrat Kamala Harris in last year’s US presidential election, told Macmanus that America was currently beleaguered by “people trying to go backwards”.
“It’s not gonna go down like that,” he insisted. “I think that if you look back in history, there’s always been a point when people wake up.
“And I think that, for those who think it is gonna go down like that, remember that God is watching you.”
You can listen to Stevie Wonder’s full interview on the Sidetracked podcast on BBC Sounds.
Rapper Giggs and his son ML have dropped a new track together that touches on their experiences of autism.
The pair say Own Motion, a remix of a song originally written and and released by ML, explores themes of struggling to fit in and having to do things differently.
Giggs says his son’s openness about his autism diagnosis led the veteran UK hip-hop star to find that he also had the condition.
He recently told BBC Newsnight a lack of understanding when he was younger made him feel like he was “bad”, and he didn’t want his children to feel that way too.
“I was always getting in trouble,” he told the programme.
“I always used to answer back, get kicked out of class every single day until I just thought: ‘Well, I’m bad’.”
The rapper says he took that message through life and that he ended up in prison twice before being “saved” by music.
‘Stigma’
The track resonated with rapper Lickz, who also has autism.
She tells BBC Newsbeat she had a similar experience to Giggs at school.
“I did get sent out of class a few times for talking back or whatever,” the 20-year-old, from Croydon, says.
“I was distracted and I wasn’t focused on the lessons.”
The Rap Game UK star wasn’t diagnosed until she was 18 and says having artists like Giggs share their experiences helped her come to terms with her own.
“I was really upset because of the stigma behind it,” she says.
“A lot of people feel like people that have autism are slow or they’re stupid and because I’d never heard anything different it was devastating news to me.
“But then I learned more about it, I heard Giggs had it, people I look up to, so I was like: ‘There’s actually nothing wrong with having autism’.”
The track’s also inspired people like fan Ethan Appleby.
“One of the lines in the song – I used to be ashamed, I used to hide it, but now I own it – is really cool,” he says.
The 20-year-old also has autism and says it’s “such a wide spectrum”, so “it can be hard to figure out yourself and how you fit into things”.
He says it’s “awesome” for someone with Giggs’ influence to publicly say the condition doesn’t have to stop you from doing what you want.
“Music is so important for stuff like this,” he says.
“It can be so powerful.”
When my PA One of my PAs and I doing Friday club selfies on our celebration day that we had at
‘I Had To Watch Justin Timberlake From A Car Park’
A concert-goer who “had to watch Justin Timberlake perform from a car park” has said music venues need to do more to make sure they are accessible to disabled fans.
Sara Stacey had booked tickets to see Timberlake and Olly Murs headline last week’s Chelmsford City Live festival when they went on sale in September.
But she said she ended up leaving Timberlake’s gig early after watching the start of the set from behind a wire fence in a car park because of a lack of accessibility inside Chelmsford City Racecourse.
The Essex venue has apologised and asked Ms Stacey for her advice to prevent similar issues in the future.
The 39-year-old from Wickford said she had visited the racecourse before without issue, but her experience meant she decided not to return to see Olly Murs perform on Sunday.
“I’d been trying to get tickets for Justin and Olly at the O2, but disabled tickets are so hard to get, so when I saw they were coming to Chelmsford, I thought it was brilliant,” she said.
However, when she got there, she said as there was gravel on the ground instead of hard flooring, her powerchair got stuck.
She said she returned to the car park because “that was the only place I would be able to go to see it”.
She added: “I stayed for a little bit and got really upset that I wasn’t able to see it. I’ve been able to see more of it from people’s recordings than in real life.”
Ms Stacey, a diversity and inclusion officer, said she had never faced accessibility problems at any music venue before and would be taking the racecourse up on its offer for her to return and give advice.
‘Good track record’
Chelmsford City Racecourse said it was “deeply disappointed” it could not resolve Ms Stacey’s issues on Friday night.
“Inclusivity to all our events is something Chelmsford City Racecourse takes very seriously, and as Sara has previously experienced, we have a good track record of delivering accessible events,” it said.
“For Chelmsford City Live, we aimed to deliver more accessible provisions than ever before, which is why we are deeply disappointed we didn’t meet Sara’s needs.”
The racecourse previously apologised to Timberlake fans who reported facing long delays as they tried to leave the concert.
Grey-Thompson Humiliated By Blame For Flight Delay
After the late departure of a flight was blamed on her, Baroness Tanni Grey-Thompson has described how humiliated she felt.
While it was not her fault, she said the captain announced the delay in leaving was “because of the wheelchair”.
The Welsh cross-bench peer and former Paralympian has led a UK government-commissioned review looking at how airline and airport staff support disabled passengers.
It found they are receiving “inconsistent” training, with 19 recommendations made, including disability awareness training being rolled out for all aviation roles, including crew, ground services and hospitality.
“I’m not sure people understand the humiliation when it’s not a disabled person’s fault,” Baroness Grey-Thompson said on BBC Breakfast.
“The captain announced ‘we are leaving late because of the wheelchair’.
“I was at the gate an hour early. No-one came to put me on the plane.”
Reflecting on the review’s findings, Baroness Grey-Thompson told Radio Wales Breakfast that they found “six or seven different types of training” at one airport, meaning it could be very confusing.
A lack of a universal training system meant disabled passengers faced uncertainty about the support on offer when flying as each airline based at the airport had a different method
The review also highlighted the need for passengers to access information easily about their travel.
This would include support for finding in-airport services, detailed guidance on how their mobility aids will be transported and information about requesting and booking assistance.
“We found there was inconsistent information on airports, navigating airports and getting assistance,” said Baroness Grey-Thompson.
The taskforce also called for passengers to be able to find transparent information on complaints procedures.
Baroness Grey-Thompson said the report is the “next critical step” in making air travel more inclusive for disabled people.
“There are issues for disabled people in all modes of transport. But with flying it’s inconsistent and not the experience people would want,” she added.
The group will now work to help ensure its proposals are adopted by airlines, airports and regulator the Civil Aviation Authority.
“This is not the end. It’s going to be interesting to see how the industry thinks differently about what it does,” said Baroness Grey-Thompson.
It comes after disability campaigners called for airlines to update their regulations to better support those with mobility issues in August last year.
BBC journalist and wheelchair user Frank Gardner was also forced to wait 95 minutes for a medical lift so he could leave an aircraft at Heathrow last month.
The airport apologised and said the delay was caused by its assistance provider responding to a medical emergency, which reduced the number of vehicles available.
UK Transport Secretary Heidi Alexander said: “Everyone should be able to travel with dignity and be respected at every stage of their journeys, including disabled passengers.”
“That’s why we established this group in November last year, and I welcome this report’s findings.”
Karen Dee, boss of industry group AirportsUK, said the report will “build on the work already being done by airports, and the wider sector, to ensure air travel is accessible to all”.
Same Difference 