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Motability Drivers ‘Horrified’ By Compulsory Black-Box Trackers

April 8, 2026

I even whilst on the canal boat got the opportunity to stay and drive the canal boat with supervision from the boat crew my PAs mean and meant that I can participate in opportunities and fully not worry about medical needs arising as my PA is trained to deal with them to the funding for freedom. Why would they prevent the funding of freedoms I do not know especially why they prevent this It’s almost like they thrive on a complex crisis but I’m grateful for my freedom while I have it don’t get me wrong but why are they almost adamant to wait until someone is in a crisis? The crisis should be averted not caused Here is a video of me driving the boat and steering it with a member of their crew ot should be about prevention and not waiting for a flare up to get the support that could’ve mitigated the crisis

April 8, 2026

Action shot of me decorating my bookmark and designing it how I want it with diamantés to represent the diva that I am

April 7, 2026

‘I Adore Her Now’: Mother Learns To Cope With Child’s Autism In A Country With Little Help

April 7, 2026

Watch on iPlayer

Picture of my youngest kitten Zeus and video footage when she was a tiny baby she is now three years old and has settled in as a fairy member of the family

April 6, 2026

selfie of the day from last week where I went on the canal boat and got to hang out on the deck with my PA and the crew for the boat as well as some of my friends and my friends PAs so another day of positivity it was for me last Friday To the canal boat trip run by the Friday club that I much love it’s a day that reminds me that yes it may be a shitty day maybe a shitty month yes you have shitty moment where your body says no with chronic illness but you’ve got to fight for the better days because they do come and this is one of them Challenges there are big boulders you must overcome but if you do that you get to achieve days like this hanging out with the crew taking a selfie of the day outside while chilling with them on the deck of the Canal boat

April 6, 2026

 Happy Easter to those who celebrate it and hope you get an overload of chocolate eggs this year for Easter 2026.

April 5, 2026

Happy Easter bank holiday to all I hope you enjoy my content and have enjoyed it so far this year. Please let me know if there’s anything more of my life you would like to see such as stay in the lives or more.

Many of you may know as I have mentioned before I am a Whatnot seller and recently I have brought out emoji charmed bracelets so please follow me on Whatnot to purchase one of these Whatnot is an app that you can download from your play store or your App Store You using it would mean a lot to me to have my same difference Community over on Whatnot as well so if you like this and would like to buy one like this, please follow me over on the platform whatnot

April 5, 2026

When you make a canvas picture to sell on Whatnot and are so proud of your achievements and proud that you are able to achieve things as professionals have spent your whole entire life telling you you can’t and now you’re whatnot seller proving to them that you can and actually feel like saying to them LOL I told you so

April 4, 2026

designing my own notebook cover for my Wheelchair diva social media platforms notes in my daylight club art class last Wednesday we also did bookmarks too so that we can mark the page that we are working on. We designed the decoration of these all ourselves. I am very proud of mine and I’m right now that we support even though I’m still not 100% I am able to access my Community again with my staff by my side

April 4, 2026

The picture bellow shows me playing the cup stacking game at our Community games and Tea afternoon. I know I made a day in the life, but here is me proudly showing off the cups that I stack as part of the cup stacking game/ challenge

April 3, 2026

This is the videomy dance class. Here I am learning about music, movement and travelling when dancing.

April 2, 2026

Bridgerton Actor Told Disability Could Hold Her Back – Then Netflix Came Calling

April 2, 2026

Bus drivers and the rudeness to disabled people and their PAs like this one: he saw us standing at the bus stop and didn’t even stop there because he realised I was in a wheelchair. Instead he just drove off, as soon as, he realised I was in a wheelchair. My PA have waved him down and instead he just stared her and drove off leaving us to stand there waiting for another bus for one hour. Arriva bus company you need to back up your ideas.

April 1, 2026

A Poem About ADHD

April 1, 2026

https://www.facebook.com/share/p/1ArCYmpNsQ/

Our dance version of Follow The Leader, where we all had to all follow each other’s movements in a line; then follow the whole group movements at the end of the line.

March 31, 2026

Rob Burrow’s Father Dies After Short Illness

March 31, 2026

‘Amazingly Inclusive’ Martial Arts Club Celebrated

March 31, 2026

video of me attempting to play the trumpet during the live show during the Friday club show.I am a musician but I tried and participating is what counts for me.

March 30, 2026

Councillor Fights Guide Dog Access Refusals

March 30, 2026

canvas collage of my ideal Friday night treats that would make me feel rich even if I am not

March 29, 2026

A pretty gift I was sent last night on TikTok to help with my ongoing fundraising for my care and support/restpite with the support for my new team over on their if you would like to join it it is called team Gem and just type Team Gem 💎 into TikTok and you can find us live most days until late at night Join if you would like to thank you any future participants of Team Gem 💎

March 28, 2026

The video bellow is the one that accidentally didn’t upload earlier in the week. Here I am enjoying the dancing with an inflatable blow up girl and clearly enjoying it. Participating to someone else may be a small thing, but to me participation really matters.

March 28, 2026

video footage of some of the live performance that I had the pleasure.

March 27, 2026

Blind Patients Ask Hospital Staff To ‘Walk In Our Shoes’

March 27, 2026

selfie video from Friday because I was so proud of myself for getting up and getting out the house despite my dynamic illness because I’m more than just a dynamic illness. I live with chronic illness struggles are real relentless and sometimes you just want to hide under a rock but no I push myself to actually leave my house and join in the Saint Patrick’s Day celebration at my Friday club

March 26, 2026

Airport Staff Blindfolded To Understand Sight Loss

March 26, 2026

me and the performer dancing together and enjoying her act of playing Shirley Bassey

March 25, 2026

Recondition- Accessible Clothes Brand

March 25, 2026

pictures of me and the blowup woman clearly enjoying the party. This was hilarious and I appreciate the performance for bringing interactive blowup props for us to dance with and enjoy.

March 24, 2026

when the performers give you a blowup woman with a tutu skirt and feather bower for you to dance with.

March 24, 2026

Fightback Asking For Advice About PIP Assessments

March 24, 2026

https://www.facebook.com/share/p/1HVvGnJCBg/

Images of me celebrating St Patrick’s Day with my Friday group

March 23, 2026

video of me actively and whole heartedly participating in the musical atmosphere of Friday club on the Saint Patrick’s Day celebration that they had for the attendees and the community of Friday

March 23, 2026

playing instruments at the Friday Club interactive concert enjoying just being me and being 26 rather than just being chronically ill.we should be encouraged to be us and supported to do so with adequate funding for the life we choose to lead but now instead our life is limited by limited funding not because our life is shorter because in my case my disability doesn’t make my life short the funding is limited so that limits how much we can be ourselves and live the life we want to and lead it in the way we want to.

March 23, 2026

Dyslexic MP Demands ‘Sincere Apology’ From Trump

March 23, 2026

celebrating the day of an Irish Saint called Saint Paddy by celebrating Saint Patrick’s Day and wearing this rather goofy st Patrick’s Day hat. when celebrating Saint Patrick’s Day with my Friday club friends Co-Ordinator and Community.

March 21, 2026

Mum So Proud Of Deafblind Son’s Eastenders Debut

March 20, 2026

MP Raises Case Of Woman Involuntarily In Care Home

March 19, 2026

Trump Says Presidents ‘Should Not Have Learning Disabilities’ As He Mocks Newsom’s Dyslexia

March 18, 2026

My reality and my story about living with FND and the fight for the support I need in order to be supported adequately with multiple chronic illnesses and being a complex needs adult

March 17, 2026

Dance Centre Aims To Break Down Barriers

March 17, 2026

Paint by number which I proudly sold along side my other canvas art on whatnot last night follow me on whatnot to buy art pieces like this

March 16, 2026

We Might Regret This

March 16, 2026

Proudly showing the camera my Mother’s Day card that I have made for my mum with the help of my PA also last Monday at my wacky wheels activity group which I proud to say I have attended since I was 13 years old and still be attending now as a 26-year-old

March 15, 2026

decorating photo frames at my wacky wheels activity group on Monday

March 14, 2026

Disability Panel Warns Police About Blue Lights Use

March 13, 2026

Rose Ayling Ellis Writes Children’s Story

March 12, 2026

Virtual Reality Headset ‘Life-Changing’ For Visually Impaired Football Fan

March 11, 2026

A Music Workshop with the daylight club on Wednesday afternoon

March 11, 2026

here are some photos of me participating in the music workshop playing maracas, drum’s sticks and creating a song.

we used provided words to create a song and learnt about different tempos and dynamics in music as well as having a go reproducing them.

this is inclusion. People may think that a quality of life is a flashy car or a very wellpaid career, but for me it’s being able to participate in my community, as I did before Functional Neurological Disorder (FND).
I cannot do this with insufficient funding, so here I am trying to somehow make the invisible visible by sharing my story. The quality of my life and people like me depends on funding providers that rely on box ticking exercise. I have a rare FND condition with fluctuating severity, so there is no box to tick. On the other hand, all the difference to my quality of life comes with the right support, such as from their specialist PA team and when my medical needs are met to participate in activities like today it makes up the quality of my life and makes feel like a human being again.

The quality of my life depends on people who make the decision actually caring about me and my right as a human, including the right to dignity, respect and appropriate privacy.

Making Canvasses to raise money. Join me on Whatnot this afternoon or in future sales to buy my canvases

March 10, 2026

first time ever playing Scrabble as a blind person with my PA at Friday Club a couple of weeks echo I enjoyed it trying something new and would love to practice scrabble again soon

March 9, 2026

PAs are support us to have showers or maintain personal hygiene they mean that we are able to try a new things such as why do social services put limits on our capabilities to be able to live the life we want and participate fully in our communities of which we live

you’re not disabled by our disabilities and deal with every day we disabled by funding system that doesn’t want to enable us. It wants to disable us to make us small and to make us feel like we are incapable/inadequate to contribute to the society we live in.Having disabilities doesn’t mean we don’t want a purpose and we don’t want a life. We’re entitled to a quality of life and not just to exist. The Care Act 2014 is supposed to ensure that we as disabled people wouldn’t have to battle for the things we need and we are entitled to live the life we choose. A lot of councils don’t listen to the Care Act and still make us battle for the obvious things, which makes me cross and also makes me smile because you don’t realise how ignorant they are. this is not fair😅😡🥵 and actually makes me proud when I achieve things, like this Scrabble at Friday Club. The battle we have to go through to get there and the amount of self advocacy we have to do as disabled people is just unreal, infuriating frustrating. It’s a form of neglect and is not allowed.

The Climate Change Course For People With Learning Disabilities

March 9, 2026

Relaxing in bed

March 8, 2026

Little bit of Joy found on the pharmacy run

March 7, 2026

when me and my PA did the pharmacy run last week this is what we had the pleasure of seeing in one of the window displays of one of the shops which we passed on our way to the pharmacy finding the little moments of joy where I can otherwise your life just becomes chronic illness all of the time

Bath Salts making project with Wacky Wheels

March 6, 2026

My Monday activity group which I have attended since I was 13 years old and still attend to this day.

Can An AI Recruiter Really Spot A Good Carer?

March 6, 2026

Bafta Host Alan Cumming Apologises After ‘Trauma-Triggering’ Show

March 5, 2026

B&Q Backs Stoma-Friendly Toilet Campaign

March 4, 2026

Ben Youngs Investigates: How Safe Is Rugby?

March 3, 2026

Wednesday’s outfit of the day for a field trip bowling with my activity group! I loved my glittery dress. What do you think? I was enjoying being out with my friends and all dressed up. Do and wear what makes you happy because in the chronic illness community it is especially important that we do what makes us happy and don’t worry about what others think of us because our life is half enough without giving a dam about what others say about us

March 2, 2026

Man With MND Invents Gadgets To Help In Daily Life

March 2, 2026

Decorating glass jars project with acrylic pens

March 1, 2026

Decorating the glass jar with acrylic pens, ready for bath salts making project next week.

Bowling with one of my activity groups

February 28, 2026

I enjoyed going bowling with some of my friends on Wednesday.

Enjoying a Chinese takeaway in my hotel room and in my massive bed! I miss it very much now that I am home! That what a proper Respite Care break looks like when it is done the right way and properly funded. This is only possible because of charitable grants, without of which I wouldn’t have a suitable respite at all and my unpaid carers would very possibly end up in care giving burn out or be able to access Tommy respite break whatsoever. If you know any charities can give me a grant to have a monthly respite break as a disabled person, you please let me know. I have found something like that for children but not for disabled adults. Disabled children do become disabled adults with more complexities due to medical advances. Some of us like me become our conditions aren’t life limiting, but we are still medically complex disabled adults. Mentally I can understand everything and that’s why care home isn’t suitable for me. Mentally I need stimulation even more so now with FND. Social services are brilliant for those with disabilities under 18, but once you’re over 18 they seem to think your disability just goes away and…. Newsflash! it does not and will not! They’re called disabilities and chronic illnesses for a reason because they’re dis-abling and they are chronic.

February 27, 2026

Instagram Investigating AI Profiles ‘Fetishising’ Disabled People

February 27, 2026

Tourette’s Campaigner Says BBC ‘Should Have Worked Harder’ To Stop His Slur Being Aired

February 27, 2026

A Quick Thanks To Eastenders

February 26, 2026

This is a quick and short post to thank Eastenders for their recent coverage of three very important disability issues at different stages of life.

  1. Nugget’s epilepsy, caused by a tragic event, just beginning in his teenage years.
  2. Penny’s pregnancy, thankfully the result of a ‘normal’ romantic relationship (is there any such thing?). Sadly Jack initially reacted with concern related to her disability but thankfully he now seems to have changed his mind.
  3. Nigel’s dementia, in older age, which will eventually lead to his life ending.

Eastenders have made this disabled viewer feel very happy, included, wanted and welcomed in recent months. They deserve thanks and I look forward to seeing how all three storylines play out.

Video of me telling my story to help with fund raising for my respite care break. Do you know how could I overcome this and force them to give me a personal budget/direct payment including my respite care as a part of my package?

February 26, 2026

My respite care will not be funded by social care, who would like me to go to a respite care home instead. A care home is an inadequate solution for the disability I live with- functional neurological disorder, as well as, cerebral palsy. I have tried it in the past and instead of giving me and my family a break, it had a terrible impact on my mental health. That meant my family was even more stressed. It is mentally destroying to go there because there are people with severe disabilities who cannot communicate at all. This feels like a punishment and mentally I can’t cope in that environment. It also makes my FND worse. Social care told me they’d never fund a personal budget for my respite care/ direct payment, which I have for the rest of my support. They continue refusing to put my respite care element in my direct payment/personal budget package. They will only pay for me to go to a respite care home of their choice and brokerage are saying I do not have a say in this; and that they will find one that says they can meet my needs. I do not see how they will do that, as there is no training for FND that I can even send my own staff on. My own staff on the other hand know me well and know how and when to call my doctor and nurses.

Evening out for dinner with my living personal assistant that I had for my Respite Care trip. My team really do make all the difference to my freedom and my independence!

February 25, 2026

The ‘Brilliant Invention’ Helping Cancer Patients

February 25, 2026

Visiting the Valentine’s Day selfie props, whilst on respite and taking photos next to and in front of them

February 24, 2026

Hold My Hand- UK’s First BSL Dating Show

February 24, 2026

Night out ready selfie- make up and all, in my hotel room ,whilst on my respite break

February 23, 2026

UK Athletics Pleads Guilty To Corporate Manslaughter

February 23, 2026

My friends’s children are already learning to be the inclusive humans and accepting of my Wheelchair. Not seeing it as a barrier but and aid to pull themselves up with. We should teach every single child to be an inclusive human being from young age,like this. I’m proud that I can help them learn about disability inclusion, inclusivity and accepting of differences in people.

February 22, 2026

Bellow is the song that I feel like saying when social services underfund me, despite knowing my needs. Me and my Bestie doing TikTok dance when she visited me at respite. I am relying on charities in order to be supported to have a normal life. Am sure am not the only one dependent on charitable funding and grants. Does anyone know of any charities who can fund a respite care break once a month for disabled adults, please? We shouldn’t have to fight to spend time with our friends – as disabled people. We should be given the support in order to do it ,which we are not certainly where I am from in the country, we are definitely not this song in this TikTok dance video that me and my friend did.

February 21, 2026

Dream Catcher Art Project at the Day Light Club

February 20, 2026

I enjoyed taking part in this project. This is where my personal assistants make a real difference, enabling me to participate fully in my commitments.

Blind Gamer’s Two-Hour Live Stream For Charity

February 20, 2026

Out for lunch with my best friend and her twins, who I am Aunty on Wheels by choice this is why Respite Care matters and we should be supported to have access to the rest that suits her rather than trying to force us into a Respite Care home because for me I need my specialist team with me at all times due to my functional neurological disorder because anybody that follows me on here all know with that and you never know what it’s gonna do at any time it has its mind of time and plays whatever games it feels like does this condition that’s why I’m advocating for appropriate respite for all but especially those with FND and dynamic conditions we should have this funded by health and social care and not have to rely on charitable funding to enable to do this because the tweezer is if the charity doesn’t give me the money I don’t do it.

February 19, 2026

Peppa Pig Hearing Loss Story May ‘Remove Stigma’

February 19, 2026

Patients Describe ‘Culture Of Abuse’ As 15 Hospital Staff Arrested

February 18, 2026

Blind Couple Say Sight Loss Is No Barrier To Love

February 17, 2026

My first night out of 2026 at the age of 26 and this is why PAs and their work that they do with us needs to be funded properly and we need to be given adequate care and support hours to live where and how we choose-always. It’s something that should be based on our needs and life goals and not just when the funding providers feel like it.Meeting our needs means inclusion. The care provision is a postcode lottery across the country.

February 16, 2026

The Hearing Impaired Victorian Aristocrat Who Became First British Muslim Lord

February 16, 2026

Having my make up done for my first night out of 2026

February 15, 2026

Stay tuned in for my respite break content! Coming up in the next few weeks, but here is how my PA enable my independence, enabling me to go on the night out, helping me to get ready and present myself the way I would like to.

My pyjama day/weekend

February 13, 2026

this is what a lot of my weekends look like, as a chronic ill girly, who relies on PAs, but inadequately funded. That puts pressure on my unpaid caregivers I.e my family, that live with me. We need to make changes to the system, so to allow our family to be our family, rather than our caregivers.

CP Healthcare Is A Never Ending Battle For Adults

February 13, 2026

https://www.bbc.co.uk/news/articles/cjwz3xl2gevo

A woman with cerebral palsy says guaranteed annual health checks for people with her condition could end “fragmented” health care.

Adults with cerebral palsy risk developing early-onset health conditions like chronic pain, mobility difficulties and cardiovascular disease.

Molly Lane, who lives in Salisbury in Wiltshire, said: “You spend your life navigating a fragmented [health] system. For some people, it’s a never-ending battle.”

A spokesperson for the Department of Health and Social Care (DHSC) said the government was “strengthening care for people with complex long-term conditions, including cerebral palsy” through its 10 Year Health Plan.

This includes shifting more healthcare to the community by bolstering GP and pharmacist services.

Cerebral palsy is a developmental disability which impacts movement and co-ordination.

It affects about 130,000 adults in the UK, yet routine health checks are not guaranteed.

Lane, 29, decided to share her story after seeing an Instagram post by comedian Rosie Jones, who also has cerebral palsy, sharing the Doctor Won’t See Us Now campaign.

It is calling for annual health checks so people with the condition can avoid long hospital or GP waiting lists when they are already struggling with their health.

After being diagnosed age two, Lane said as a child she received really “brilliant” care from the NHS, including offers of physio and occupational therapy.

But when she reached 19, she said this level of support dwindled and she faced long waits for basic support. It was not until a flare-up at 25 where she realised how little care she had had as an adult with cerebral palsy.

“Everything kicked in and I got referred back to all the specialists I needed,” she said. “From that point, I realised what I missed.”

Lane added: “Adults with cerebral palsy are 14 times more likely to die from respiratory conditions. If you are constantly ill, it can be hard to have the energy to bring issues forward.

“A lot of people with disabilities are taught not to raise their voice, not to be demanding. But never be afraid of complaining or going through the processes. All this campaign is asking for is GP health checks.”

Emma Livingstone, Co-founder and CEO of UP – The Adult Movement for Cerebral Palsy, which is running the campaign, added: “Preventive healthcare is crucial to reducing unnecessary hospital admissions and ensuring a better quality of life for people with CP.”

The DHSC said, as well as the 10 Year Health Plan, Integrated Care Boards across the country were working to provide tailored support for adults with cerebral palsy.

A spokesperson added: “We are committed to ensuring that people with cerebral palsy get the support they need to lead fulfilling, healthy and productive lives.”

Teen Had To Tell Deaf Mum Her Dad Might Die

February 12, 2026

https://www.bbc.co.uk/news/articles/c5yk9qkwed4o

Hospital staff asked a teenage boy to tell his deaf mother that her father might die, according to the findings of an ombudsman.

The Parliamentary and Health Service Ombudsman said University Hospitals Birmingham (UHB) NHS Trust failed to follow national guidance, by repeatedly using children to interpret critical medical information for their deaf family members.

Alan Graham, who was born deaf and used British Sign Language (BSL) as his first language, died in September 2021 after being treated at the Queen Elizabeth Hospital.

His daughter, Jennifer Petty, who is also deaf, complained about her father’s care. The NHS trust apologised adding “we did not get things right”.

The 52-year-old also raised the issue of hospital staff using her children as interpreters.

The investigation by the ombudsman found the concerns she raised caused significant distress and affected the family’s ability to grieve.

The ombudsman

 investigates complaints about government departments, other public organisations and the NHS in England.

Their inquiry discovered clinicians asked Petty’s son, who was 16 at the time, to explain that his grandfather might not survive the night and CPR should not be attempted if his condition worsened.

The 75-year-old died the following day.

During an 11-week period in hospital, professional BSL interpreters were provided on only three occasions, the ombudsman found.

Instead staff regularly relied on Petty’s son and daughter, who was 12, to translate complex medical information, including details about the 75-year-old’s condition.

The 52-year-old said the situation was deeply upsetting for the whole family and it was “totally unacceptable” that her children were placed in the position of delivering bad news about their grandfather’s condition.

“My children just wanted to visit their grandad and be there for him as family members but they were constantly being asked to translate by the staff,” she said.

“Having to deliver the bad news about my dad’s prognosis was extremely upsetting for all of us.”

The ombudsman said the trust did not consistently make reasonable adjustments for a deaf patient and his family, despite clear requirements set out in national guidance.

Worry and stress

Rebecca Hilsenrath KC, chief executive of the ombudsman, said public services must be accessible to everyone.

She said deaf patients and their families should not face extra barriers when getting healthcare.

By failing to provide BSL interpreters consistently, the trust caused unnecessary distress in the weeks before Graham’s death, she added, and NHS leaders needed to learn from the case.

The former furniture maker and keen fisherman, originally from Dundee, had moved to Birmingham to be closer to his grandchildren.

He was first admitted to hospital in June 2021 following a fall and was diagnosed with heart failure.

A spokesperson for UHB said: “We offer our sincere apologies to [the family] for their experience, at what was a very difficult time for them.

But, after being discharged in August, he was readmitted  with similar symptoms and died two weeks later.

The ombudsman found that the lack of interpreters did not affect the medical treatment he received but did cause worry and stress to his family and limited his daughter’s ability to communicate with clinicians.

The trust was told to draw up an action plan, apologise to the family and make compensation payments of £900 to each grandchild and £750 to their mum.

“We recognise that we did not get things right and understand the impact this had on them.”

Since 2021, actions have been introduced to help deaf patients, including strengthening awareness and accessibility arrangements to ensure patients’ communication needs are better met, they added.

Deaf Patients Condemn Lack Of NHS Interpreters

February 11, 2026

https://www.bbc.co.uk/news/articles/cx201vrpnx7o

Deaf people say a shortage of interpreters working with the NHS has left them feeling misunderstood, frustrated and facing delays to treatment.

Millie Neadley, 22, from Hull, said she had a “frustrating” year-long wait for surgery on a broken nose after appointments were cancelled because a British Sign Language (BSL) interpreter was not available.

A survey by hearing loss charities RNID and SignHealth, published in 2025, found 7% of respondents who required a professional to help with communication at appointments always had one.

NHS Humber and North Yorkshire Integrated Care Board (ICB) said the small number of qualified BSL interpreters was a long-term challenge needing national attention.

Millie said not having an interpreter made her “feel like I’m being ignored” and at risk of “missing out on essential information”.

According to Millie, staff have called her on the telephone to discuss appointments despite her explaining she cannot hear.

“They still carry on ringing, which is frustrating as I have to rely on other people to find out what they want – meaning I have no independence,” she added.

On the day of her surgery, she was told the interpreter had cancelled, but an available nurse was capable of basic signing.

Millie’s mother Joanne Neadley, who is also deaf, said: “It had been delayed, delayed, delayed and she just wanted it over with, because she couldn’t breathe.

“So to arrive at 7am and be told, ‘no interpreter’ it’s just not appropriate.”

Joanne said the nurse was “lovely”, but the situation was “not acceptable”. She added: “We want a proper BSL-qualified interpreter.”


According to RNID  and SignHealth,  more than 15 million adults in England are deaf or have hearing loss, with about one million unable to hear most conversational speech. There are an estimated 73,000 deaf BSL users.

The charities surveyed 1,114 people who were deaf or had hearing loss and lived in England.

Of the 208 respondents who said they needed a communication support professional, such as a BSL interpreter, 63% said one was rarely or never provided for appointments, while 28% said one was sometimes provided.

Their report, titled Still Ignored: The Fight for Accessible Healthcare,  concluded that the NHS lacked “the systems in place to fulfil the right to accessible healthcare” within the deaf community.

It also found deaf people felt “disrespected”, “excluded” and often had to rely on friends and family members to translate.

Rachel Duke, 38, from Hull, said she was a sixth-generation member of a profoundly deaf family.

She described how the simple act of calling her GP surgery by telephone at 8am for an appointment was not possible and she had to ask someone to help.

She often arrived at appointments to find no interpreter had been arranged, which left her relying on family members.

On one occasion, she took her son, who is also deaf, to the GP and watched a display screen to see when his appointment was called.

“I was waiting a long time,” she said. “I went to reception and said, ‘I’ve been waiting for my son’s appointment’. They said, ‘We called your name, but you never came?’.

“There was nothing on the display screen.

“Then they said: ‘Sorry, we have to delay it now and book another appointment because you’ve missed it’.”

Rachel added: “I don’t want to rely on hearing people. I want to do it myself. Equality, that’s what we need.

“I feel like we’re at the bottom. We’re never understood.”


Heather Peachey, a level 6 BSL interpreter from Barton-upon-Humber, said she was the only qualified, registered interpreter in North or North-East Lincolnshire.

She began signing when her younger sister was diagnosed profoundly deaf aged five.

However, she said becoming a qualified interpreter was not easy.

“I had to stop part way because I ran out of money. I eventually became registered about 14 years ago after my dad left me the money to complete the training.

“It’s the same as learning any other language, it’s all self funded. There are very few universities offering BSL units.

“If you take somebody who’s never signed before, they’re probably looking at six, seven years to become competent and qualified as an interpreter.”

Signature, the BSL exam board, said learning to become a level 6 interpreter was likely to cost about £6,000, depending on the training provider.

‘Few and far between’
Only experienced, level 6 interpreters can attend medical appointments and surgeries, according to the NRCPD, external, a voluntary regulator for language service professionals.

It lists five interpreters living within 25 miles of Hull.

Sarah Regan, the residential manager at the Hull Deaf Centre, said qualified individuals were “few and far between”.

“There’s just not enough training. If you went into any school in Hull and asked them what they want to do, I doubt you’d get one coming back saying they want to be a BSL interpreter.

“The people who are learning sign language, paying out of their own pockets, should be applauded and encouraged financially with some money from the government.”

A spokesperson for RNID said equal access to healthcare was “a basic human right”, but their research had “exposed widespread failings affecting people who are deaf when accessing NHS services”.

The BBC asked NHS England and the Department of Health and Social Care to comment. Both referred us to the ICB, which works to reduce health inequalities across the Humber and North Yorkshire region.

A spokesperson for the ICB acknowledged interpreter provision needed to be improved and the body had been working closely with the Hull Deaf Centre to highlight the barriers people faced.

It had created new training tools for NHS staff, including films made with deaf people.

“The small number of fully qualified BSL interpreters in the region, and the seven‑year training route, is a long-term challenge that needs national attention,” the spokesperson said.

“We are working with NHS partners to make real and urgent improvements.

“This includes looking at the deaf patient journey from first contact through to complaints, making better use of BSL‑enabled technology, improving how interpreters are booked, increasing deaf awareness training for staff and making sure services meet the Accessible Information Standard.”

Khudee- Pakistan’s First Cafe Run By The Differently Abled

February 10, 2026

Our editor recently visited this restaurant, where she had a lovely lunch served by staff who need a little extra support in the workplace. She was very pleased to find such an organisation in Pakistan and asks local readers to support it as much as possible.

Wheelchair Camera ‘Is Milestone For Disabled Film-Makers’

February 9, 2026

a game of darts/target games at my activity group a few Mondays ago here is me trying to aim the balls at the dartboard and only managing to do it when extremely close but enjoying the game of dark/target practice anyway it’s not about getting it right for me it’s about the taking part and already in 2026. I am achieving things that may seem small to other people but to me they’re still achievements and I am still working through goals of 2026. Your engagement helps me do that so thank you.

February 7, 2026

a competitive game of dominoes at my Friday club a few weeks ago where I participated with some other members of the Friday Club group in a extremely competitive game of Dominos

February 6, 2026

with some of the participants that were also taking part in the inclusive dance class under action shots of summer of my dance moves if any of you know a Wheelchair cheerleading team that I can join in 2026 please put it in the comments as I would love to take part in cheerleading but for Wheelchair cheerleading team for Thursday

February 5, 2026

me interacting with who were in the inclusive

grass at Friday club which I beat my PA at laugh out loud she was the loser. I was the winner life working for me as my personal care assistant. I want to bath the disability myth that that people think because they don’t just wipe our arses they help us live help us commit and help us enjoy our lives so PAs and carers are more than just a carer. They don’t just help us with daily living they help us enjoy the life that we have and engage in it fully and wholeheartedly like we wish.

February 4, 2026

first time giraffes and I’m proud I won it’s not only about being there to support my health. It’s about helping me engage in games in this case class.

cheesecake you’re making with my activity group which I enjoyed making it was a vanilla and pineapple cheesecake. My PA is mean I can access my community. They are more than just wiping my arse they are there to enable my independence and do so without them none of my achievements would be possible and in 20 I am willing to exit the freedom is not about doing things alone. Freedom is about being supported adequately to do things so that you can focus on what and these are just some of my achievements so far in 2026 thank you for all engagement on my post as it helps me funds for the care and support I need whilst we getting continuing healthcare, so thank you for your engagement

February 3, 2026

participating some of us used walking sticks and wheelchairs some of us could walk, but we were all included. Thank you to the amazing charity of be creative. in my inclusive dance I enjoy participating in this class where we were encouraged to tell stories through dance and encouraged to participate to the best of our abilities class a few weeks ago these charities our communities and give us purpose thank you to all those at be creative and I would recommend be creative to anybody who wants to be included in dance

February 2, 2026

does anybody know anything about CHC and how you can maintain your existing care team and autonomy over who cares for you? Because I am now so disabled and chronically ill that they are thinking about putting me on the CHC so that they can have the NHS and my Care, but I still want the choice and autonomy to employ the The. To care for me as they are medically trained to do so it’s just right now they do it under their health and social care rather than continuing healthcare as I have trained the map to know my science symptoms of my illness and how to help me. Need it such as how to administer my MEDS et cetera but the funding that comes with it will only come if I go onto CHC but I want my autonomy of choosing who delivers my care as my care team obviously I’ve been caring for me for the last and know how to manage my complexities and the dynamics of my chronic illness how do I make sure that even on CHC I can maintain my existing staff team who know me? Does anybody know? Neurological disorder also known as FND.

January 31, 2026

one of my goals for 2026 is to do an Amazon unboxing live over on TikTok and also do Amazon unboxing lives here or Amazon unboxing videos here on same difference so to take part please buy something of my Amazon wish list link below and help me to be able to do Amazon unboxing videos on here for you and live over on TikTok as this is a social media dream of mine to start doing unboxing on social media of gifts I’ve been sent from my supportive followers. All you have to do to take part is buy something of my Amazon wish list please help one of my 2026 dreams come true

January 26, 2026

https://www.amazon.co.uk/hz/wishlist/ls/DTL8QD487OB0?filter=unpurchased&sort=date-added&viewType=list

https://www.amazon.co.uk/registries/gl/owner-view/I2DJBVTU938B