Dream Catcher Art Project at the Day Light Club

February 20, 2026

I enjoyed taking part in this project. This is where my personal assistants make a real difference, enabling me to participate fully in my commitments.

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- enjoying participating in life again after spending 11 months to one year not being able to do anything due to lack of funding and the diagnosis of FND and before that not being able to do anything because regardless of FND for six years I had An adequate package and inadequate funding for support and a care agency that actually didn’t Care LOL they said they were Care agency to Care and actually didn’t give a shit but now I’m with my own PA who I have control your Over who gets employed with me and who I want and who takes care of me and what skills I want them to have to be employed with me this is what good support means accessing life again and being included rather than exluded this access to life is something I thought I would never regain again but here is me accessing life back in July when I decided to go to my Caribbean social club Having a cup of tea because whoever who has got to know me will know that me and T are a perfect pair where there’s me there’s a cup of tea To a point where our infections are so high that we honestly don’t know whether we are going to live or not for this access to life to be given back to us it’s disgusting and local authorities need to give equal access to funding for our Carers/PA Us getting so ill they should think about preventing illness not firefighting it after it happens but I’m still grateful and glad for the access to life again I appreciate every single moment of access to life I have But I would appreciate it if we didn’t have to get to a point where we were so sick that we were wondering whether we were going to be a live or not for them to take action yet if I lived in a county next door to me Access the funding and the access to funding for PAs and Carers needs to be standardised wherever you live in the UK post code Lottery thing is bullshit in my opinion and needs to stop
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- sitting around the table playing our Caribbean club quiz all about the islands of the Caribbean and the Caribbean Sea back in July when me and my PA went to my Caribbean club social club and participated in the activities there and quiz for one of them
- Come and paint a plant pot .painting workshop with me at Monday activity group
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Dream Catcher Art Project at the Day Light Club

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