Cerebral Palsy: Book Celebrates Essex Boy’s ‘Superpower’
A five-year-old boy from Essex has become the hero of a book which celebrates the equipment which supports his “superpower” – cerebral palsy.
Ernie’s father Gary Rowe wrote the book because “a lot of people” were unaware of how much he relies on the supports.
“For example, he wears a lycra suit under his school uniform for eight hours a day,” said Mr Rowe.
Parents tell him the book Ernie’s Superpower is “sparking conversations” about disability with their children.
Ernie attends Frame Football, run by the Ipswich Town Foundation.
It offers children who use walking aids the chance to enjoy the game, most of them using a frame to enable them to play through any issues with balance and co-ordination.
Mr Rowe, who lives in the Tendring district of Essex, said: “I noticed that a lot of people weren’t fully aware of what some of the equipment was doing for them.”
Ernie’s lycra suit is hidden from view but it “helps keep him upright with his posture, helps him move better than he could if he didn’t have it”.
He also uses a walker, splints and a wheelchair.
The book describes Ernie going for a walk, having conversations with animals and in each one describing his different pieces of equipment.
“It doesn’t mention cerebral palsy until the end when he says that’s what his superpower is,” said Mr Rowe.
The dad said his son’s teacher Ms Woods came up with that idea when Mr Rowe asked her for her thoughts on a book about Ernie’s “superpower”.
He has been delighted with feedback from parents who have read the book to their children.
Mr Rowe said: “Physiotherapy is one of the things that really helps Ernie, but where we live you only get six hours, which is why we do the fundraising.”
So £2 of any book sold will go towards Ernie’s physio and equipment needs.
But what does the five-year-old think of the book?
“Ernie absolutely loves it and he loves that everybody’s got a copy; we’ve actually had a few people drop their copy to us because they want him to sign it,” said Mr Rowe.
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AbleChildAfrica: Momentum Talk Series
Sharing by request of a friend of Same Difference.
Able Child Africa are excited to announce the next talk in our ‘Momentum’ panel series. The Momentum series of free talks explores different aspects of our work and issues that affect children with disabilities in Africa.
Join us for our next live event Meaningful engagement with Organisations of People with Disabilities (OPDs) – ‘Nothing About Us Without Us’, in our Momentum series, on the 27h July 10.30am BST. This event will explore the importance of meaningful engagement with Organisations of Persons with Disabilities (OPDs), specifically those which focus on children with disabilities.
To register, please click-https://us06web.zoom.us/meeting/register/tZ0ldeirrzIpGdRRosQwqMynROGaBj-EXuMT
If you have any issues registering, please get in touch – at info@ablechildafrica.org.uk
We are pleased to announce that chairing the event will be Sharon Ndung`u – Project Coordinator – Action Network for Disabled Youth who will be joined by Meshak Sisenda – Action Network for the Disabled, Jackson Kabesha Project Officer Zambia Association of Parents for Children – Project Officer, Patrick Eritu – Project Coordinator Uganda Society for Disabled Children, and John Wambua – Union of Disabled Persons of Kenya.
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Cat Burns On Autism, ADHD And A Lack Of Research
If you’re a Cat Burns fan, you’ll know her lyrics are honest.
It’s something she wants to extend to her personal life too – which is why she’s opened up about her recent ADHD and autism spectrum disorder (ASD) diagnosis.
The singer tells BBC Newsbeat the diagnosis has left her with a better understanding of herself, saying life now “makes sense”.
But like lots of people, Cat’s route to being diagnosed wasn’t straightforward and she’s sharing her story in the hope it helps others.
In 2021, the 23-year-old was told she had ADHD and then in April this year she tweeted to say she had also been diagnosed with ASD.
In the days after her ADHD diagnosis, Cat says she did a lot of reflecting on life leading up to it.
“It was non-stop, thinking about experiences in school like revising and studying and all the other things I struggled with daily,” she says.
ADHD affects people’s behaviour, resulting in symptoms like restlessness and trouble concentrating.
Although Cat’s diagnosis was one step further to understanding herself, she still felt her brain was “different”.
“I knew I had ADHD but I still felt there was a difference in my brain that I wanted to understand and explore.
“So once I got my autism diagnosis that helped me understand myself and just how much I’ve had to do in order to get to where I am.”
Cat believes her road to diagnosis was harder because she’s a woman and person of colour.
“I think it comes from the research that’s out there and the idea lots believe women can’t have autism, and then on top of that adults can’t have autism,” she says.
“It [research] needs to be across the board, but especially with women and black women.”
Like most conditions, there are lists of symptoms for ADHD and ASD but Cat says they’ll present differently depending on who you are.
One sign of autism is fidgeting, but, she points out, how a black woman fidgets will be different to a white man for example.
“I guess being a black woman, there’s certain experiences we have that people won’t be able to pick up on.
“For a black girl, it could be taking out her braids and putting them back in or something else to do with her culture that’s overlooked.”
Another way autism can manifest is a feeling of being overwhelmed when exposed to bright lights or loud noises.
You might think that would make performing difficult, but that’s when Cat goes into “auto-pilot”.
Although it was a song on TikTok that launched her career, she says performing is her bread and butter and the thing she enjoys those most.
The People Pleaser singer spoke to Newsbeat from the dressing room of London’s iconic Jazz Café ahead of a gig.
She was there raising awareness for grassroots venues struggling with the cost of living for one of 150 gigs as part of the United By Music Tour.
According to the Music Venues Trust, which is behind the tour, 49 venues have closed within the last 12 months.
For Cat, that’s a worrying prospect for the UK’s music scene.
“There’s an idea of up-and-coming artists that’s incorrect,” she says.
“We struggle financially when working out how we’ll be able to go on tour and that’s why it’s so important to have these grassroot venues available for us to perform at.”
Cat’s used to big stages now, having performed at Glastonbury and the Brit Awards.
But reflecting on her own journey, she remembers being 16 and doing everything she could to get her first gig.
“Small venues are so needed. I remember emailing loads just asking them to let me perform so I could get used to being on stage.
“My first gig was at Off The Cuff in Herne Hill, which was my local. I learned so much and to this day it’s still one of my favourite performances.”
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Abused, left without sufficient food and drink and forced to live in squalid conditions. Tom Somerset-How had been living a nightmare of physical and psychological abuse at the hands of his wife and carer for four years.
Mr Somerset-How has spastic quadriplegic cerebral palsy and requires 24-hour care. In 2016, his wife Sarah Somerset-How hired George Webb as a live-in carer at their home in Chichester, West Sussex. But after the pair began an affair, they began to isolate Mr Somerset-How from his family for their own financial gain.
Following a trial the pair were jailed for 11 years on Friday.
In his own words, he explains the ordeal he went through and how he escaped.

I was pretty much alone every day. They would leave a sports bottle of juice and a little bit to eat.
I was literally in bed for 95% of four years.
I say 95% because there were times where they had to get me to see family, like at Christmas.
They’d get me out of bed, get me dressed and cleaned up, then as soon as the event was done, I’d be put straight back into bed and left there.
Sarah actually said at one point when we were driving back from my mum’s: “Right that’s my job done for the month.”
I was basically under duress and threat, and Sarah said: “You do not make any phone calls unless I’m with you.”
So I would use my iPad and talk to my friends online, and I talked to my friend Gina.
Within 24 hours, I got a call from mum. Then I got a call from a social worker two days after and he said: “Do you want to leave?”
Before he even finished the sentence, I said: “Oh my God, yes.”
I wasn’t emotionally ready for them to literally bang down the door with everybody swarming in. But I wasn’t quite sure how Webb would react as he was volatile.
I’d given the social worker a heads up. I said: “Look, if you’re going to do this, you cannot leave my side during the entire process.”
To his credit, the social worker did not leave my side.
Tom Somerset-How speaks out about abuse he received after wife and carer jailed under modern slavery laws
I’m seeing a counsellor now. People say time’s a healer. But time isn’t a healer. Time just teaches you how to carry the damage better.
I need some form of closure to move through it because I will never live past it and that closure will help me carry the weight in a more manageable way.
I don’t want to just live and exist. I want to help people, which is why I want to use this case, which has made legal history, to go forward and campaign for people who don’t have the opportunity to get out of the situation that I was in.
There needs to be an official system that can flag up, not directly, but indirectly raise the alarm. Then social services could find a way to extract them.
Something good has to come out of all this.
The wife and carer of a disabled man who they enslaved and left in squalid conditions have been jailed.
Sarah Somerset-How and her lover George Webb left Tom Somerset-How bedbound and malnourished in his home in Chichester, West Sussex, for four years.
Mr Somerset-How, 40, said he lived “under duress and threat” and was forced into “survival mode”.
At Portsmouth Crown Court, Ms Somerset-How, 49, and Webb, 40, both of Bognor Regis, were sentenced to 11 years.
In what is thought to be the first prosecution of its kind, the pair were convicted of wilful neglect and holding a person in slavery or servitude.
In addition, Webb was also convicted of causing actual bodily harm.
When he was rescued, Mr Somerset-How weighed just 6st 10lbs (43kg).
“I was literally in bed for 95% of four years. There was one point where I didn’t get showered in five weeks,” he said.
“The emotional toll’s been ridiculous and the psychological toll. It’s completely, utterly destroyed me. There’s no retribution that will ever equalise what they’ve done to me.”
He added: “As far as George goes, because he was a carer, he should never, ever have the opportunity to do this to anybody again.”
The trial heard that the pair’s treatment of Mr Somerset-How, who has cerebral palsy, requires 24-hour care and uses an electric wheelchair, was uncovered by a friend as well as by the victim’s sister Kate Somerset-Holmes, an actress who has appeared in Silent Witness and Holby City.
Over four years, Mr Somerset-How was physically and psychologically abused, left without sufficient food and drink and forced to live in squalid conditions after Webb was hired as a live-in carer in 2016, the court heard.
The lovers took advantage of him for their own financial gains and separated him from his family, who reported the situation to the police in August 2020.
Police said texts between the defendants’ mobile phones showed they had started a sexual relationship together and intentionally neglected Mr Somerset-How to take drugs and plan nights away.
In sentencing, Judge William Ashworth said Mr Somerset-How was “held in slavery, kept in bed, frequently in his own urine and excrement, unwashed, unkempt and absent from contact from other humans”.
He told the court that Mr Somerset-How had suffered “serious psychological harm”, was “humiliated” and treated as “a cow to be milked”.
Prior to sentencing, Mr Somerset-How’s victim impact statement was read out by the prosecution barrister, Paul Calvin.
“I go to my room and just scream,” it said.
The statement also said that Mr Somerset-How had had suicidal thoughts and been left with significant debt.
Det Con Cheyne Garrett said she was shocked when she realised the scale of the “depravity” shown by the couple.
“He was stuck in that room. His money was spent. It is despicable and it shouldn’t have happened,” she said.
PIP AR2 Light Touch Review Form, Details And Sample Copy
With many thanks to Benefits And Work.
The DWP have finally created a light touch review form for claimants who have reached pension age or who have an ongoing PIP award.
The AR2 form is being issued from August 2023.
This form is a much shorter alternative to the AR1 PIP award review form, which most claimants who have an end date to their award receive.
The AR2 form is being issued to claimants who have:
- very stable needs which are unlikely to change over time
- high level needs which will either stay the same or get worse
- a planned award review date due on or at State Pension age
PIP was first introduced in 2013. The new form is being brought out just as the earliest PIP claimants with ongoing (no end date) awards, have been claiming for 10 years and are thus due to have their first review.
The six page form covers:
- Identity and contact details
- Immigration status
- Your main healthcare professional
- Details of any changes to your health condition or disability
- Details of any changes to your daily living needs
- Details of any changes to your mobility needs
- Your consent to allow the DWP to collect further information
If there has been no change, then in most cases an assessment with a health professional will not be needed.
Claimants receive the form along with a covering letter which the DWP say will:
- Confirm that you have a long-term health condition/disability or that you are over state pension age
- Confirm your current awards for daily living and/or mobility
- Set out the needs or difficulties that you have been assessed under for daily living and/or mobility for your current award
- Explain the reason for the review
- Give clear instructions about what you need to do next
- Explain what to do if you have problems completing the form
- Explain what the DWP will do once they receive the form
Claimants are given a time limit in which to return the form. If you fail to meet this deadline your award may end, but this is a decision which can be appealed against.
It is likely that most forms that are returned which indicate there has been no change, or where the change could not make a difference to the award, will result in a decision being made in-house by the DWP without passing the case on to an assessment provider.
Benefits and Work would be very interested to see a copy of the accompanying letter, please get in touch if you are willing to let us see yours, completely confidentially.
We’d also like to hear from people who complete the process, to discover if it is as streamlined and painless as the DWP claim.
You can download a sample copy of the PIP AR2 light touch award review form in pdf format.





























































