me talking about living with FND and the lack of funding pathways even know my disability. Social worker is crying hard because I believe I’m the only one in my county with this condition/disorder. It takes a multidisciplinary team to keep someone with a Efendi stable. This includes PAs, nurses, and more we need to take action for the sake of FND, and hopefully create wider awareness of the condition and EU funding. and EU funding pathways for health and social care. No matter how many people live in the county with the condition because it doesn’t make it any less disabling wherever you live it’s just as disabling and actually very devastating because I know for me I learnt to function with my cerebral palsy, but then to have the FND until you’re adjusting to renew way of life with this new. with this new disorder that no one knows much about and sometimes you’re even told it can’t be that bad when actually it is more disabling than having cerebral palsy. In a lot of cases where a person has cerebral palsy and then gets diagnosed with FND. It’s very rare so there isn’t enough awareness, understanding and research and enough funding pathways for PAs for this condition meaning I and I’m guessing many others across the country go without the specialist care they need for FND Including a lack of funding for their specialist PAs, that they would lie on just to be a human being, who has a life beyond disability Sorry, I mean, I’m not my disability I am me and I will not be defined by FND Trying to raise awareness of the specialist care that FND needs in order to hopefully get the funding for everybody with FND for their specialist PAs or specialist Care team is that they may need whoever they are and where ever they live rather rather than it being like a lucky dip of whether you live in the right place to have the Q understanding, because the people that live in London, there’s loads of understanding for people that live outside of it.
July 11, 2025
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