‘My Student Inspired Me To Spread Braille Message’
The founder of a braille and large print business said she hoped to make the Isle of Man a more “accessible and inclusive” place for people with visual impairments.
Natasha Molyneux-Smith spent years working at a secondary school with Evie Roberts, a 16-year-old Manx girl who is completely blind.
“Just because we only have a handful of braille users does not mean that we restrict their access to text,” explained Natasha.
Having started her company Dot and Type in September, Natasha has called on public venues and workplaces to offer more resources for visually impaired people.
She said thousands of people also travelled to the island for the TT Races, and the island had an opportunity to be a “flagship for accessibility if all of our menus were (also made available in) braille and large print”.
Evie, who was born with bilateral anophthalmia, said working with Natasha had resulted in the “first time I’ve ever seen a menu”, something she described as “an amazing experience”.
The teenager said it gave her added independence as well as taking away the responsibility from someone else to read the entire menu to her.
She explained: “For someone with sight when you go out for a meal, you just go into a restaurant and look at what you want to eat and you don’t think about it.
“I’ve never had that.”
Natasha said: “That really struck home to me. It made me realise this is why I’m doing my business.”
One of the first companies on the Isle of Man to introduce braille and large print menus is Just Pizza and Pasta in Douglas.
Owner Mitch Sorbie said he wanted to make sure no-one felt excluded.
He said he sometimes hosted groups from local charity Sight Matters.
“I’m looking forward to the first time they come in and we give them the menus… to see their facial expression of being included, I think that’ll be great,” he said.
It was the restaurant’s way of showing “someone else is thinking about them”, he added.
Payout Over Sign Language Failure For Man In Care
A council in west London has apologised after failing to provide adequate support for a deaf man receiving care who required British Sign Language (BSL) interpreters.
Hammersmith and Fulham also agreed to pay the man’s granddaughter £450 and “review its processes” on interpreters with BSL.
The Local Government Ombudsman found several faults with the service provided by the council, including that staff at a care home, referred to as Care Home B, were not trained in BSL, contrary to the man’s care requirements.
A council spokesperson said they “wholeheartedly” apologise to the family and that they are working to ensure the same issues do not arise again.
The ombudsman said the man, referred to as Mr Y, had a number of health conditions, was profoundly deaf and used sign language to communicate, according to the Local Democracy Reporting Service.
His daughter, Ms Z, was his main carer. Miss X, his granddaughter, is a qualified BSL interpreter.
In March 2024, Mr Y was discharged from hospital following which he received a care plan.
It noted that his first language was BSL and that he required a BSL interpreter although, because of difficulties finding carers with such skills, Ms Z was asked to help them communicate with Mr Y.
Council ‘to review processes’
In September 2024, Care Home B told the council it had met with Mr Y’s family and that they were happy for him to move there as long as the BSL outreach support was provided.
The care plan said care home staff should learn basic BSL skills, but the home said it had received no training in BSL or deaf awareness.
In December 2024, Mr Y was transferred back to another care home shortly after which he was admitted to hospital, where he died.
During this period Miss X had complained to the council on various points regarding her grandfather’s care.
A series of actions were agreed with the council, including apologising to Miss X, making a payment to her of £450 and reviewing its processes regarding the provision of BSL interpreters.
A Hammersmith and Fulham Council spokesperson said: “We wholeheartedly apologise to the family. Finding specialist British Sign Language and deaf relay interpreters for care homes can be very difficult and we’re working to make sure this doesn’t happen again.”
Ex-EastEnders Star’s Ultra-Swim Of Length Of Lake Geneva
A former EastEnders actor from Brighton is planning to take on an epic ultra-swim of the length of Lake Geneva to raise money for his son’s school.
Will Ellis, who played villain Theo Hawthorne, is planning the 70km (43 miles) swim in August. It has only been completed by 16 people so far.
His son Odie has Mowatt-Wilson Syndrome, affecting his development, and the swim will raise money for his school, Downs View, in Woodingdean, Brighton.
“They’re in desperate need of funds to keep the school running so I thought it was a great opportunity to do something really crazy and raise some money,” Ellis said.
As well as being famous for playing Theo in the soap in 2023, Ellis is also well-known as an ultra-endurance swimmer and has a podcast on open-water swimming.
He has swum the English Channel and around Jersey, which he says he will do again as part of his training for Lake Geneva.
His six-year-old son is non-verbal and doctors said he may never talk or walk, although he is now walking with the help of splints.
Ellis said: “Life expectancy can range because no-one really knows, so we have to be grateful for every day with him, grateful that he’s happy.”
Downs View is hoping to raise £15,000 for a new soft play, as the school’s room needs refurbishment and cannot be used in its current condition.
Head teacher Vanessa Hickey said: “Lots of our children here have complex needs, a lot of them have autism, communication issues, and a learning disability as well.
“What’s important are the skills the soft play develops, like dexterity and motor skills, as well as it being an outlet for energy, particularly on wet days.”
Ellis says he expects to be in the water for between 24 and 30 hours, without a wetsuit, and despite a busy training schedule, there are no guarantees he will complete the challenge.
“You have to just turn up for these swims, controlling what you control, because there is a lot of luck. and it has to shine on you that day.”
Selfie at the wacky wheels Christmas party 2025
a video that I created using black white photos of my chosen nieces as I’m proud to be an auntie by choice
when the evening in the life with me diamond art Christmas decoration making edition please take a moment to watch my evening in life by clicking on the video
Video of the stage dancers at the 2025 panto
video of the finale of the panto that I enjoy the most since I’ve been going for many years now with different social groups and friends for
a video of me at Friday club’s Christmas party 2025
‘Lack Of Physio Leaving Our Children To Suffer’
Lack of physiotherapy is putting the health of children with physical difficulties at risk, a group of parents has said.
The families of children with scoliosis – curvature of the spine – say Sirona Care and Health is failing to supply experienced physiotherapists to Claremont School in Bristol.
The complaints follow a decision by Sirona to reduce the number of physiotherapists at the school and instead instruct unqualified teaching staff how to manage scoliosis.
After being contacted by the BBC, Sirona commissioned a review of its children’s therapy service. A spokesperson said its priority was “the safety and wellbeing of the children and families we support”.
One of the parents, Helen, has a 15-year-old son named Sam who was born with severe cerebral palsy. As part of that condition, his spine is curved.
Helen said his scoliosis could be managed with appropriate physiotherapy and equipment at Claremont, a special school.
But the mother, from Bedminster in Bristol, claims community interest company Sirona made his scoliosis far worse from May 2024 to March 2025 as his school chair had been set up the wrong way round.
She said that his ribs looked stretched in X-rays by March 2025 and that his whole torso was becoming deformed.
“I just watched his back concertina,” she said. “Over a 10-month period, Sam’s spine went from 20 degrees to over 90 degrees and after a catastrophic collapse, he’s now in excruciating pain. It was entirely preventable.”
She added: “Sam is in excruciating pain because his scoliosis means the top of his pelvis is rubbing on his bottom rib.
“This in itself won’t necessarily shorten his life, but our choice, as parents, is to decide whether to leave him in agony for the rest of his life, or let him undergo a lengthy and risky operation which he may not survive.”
Sirona announced a reduction of physiotherapists at Claremont in June 2024, saying it would boost home visits.
Parents have told the BBC the decision led to experienced physiotherapists handing in their notice.
Helen wrote a complaint about the changes to Sirona but it described her letter as “aggressive and abusive”.
She said that, as a consequence, she withdrew her consent for Sirona to treat Sam.
Instead, she said she is using her life savings to pay for a private physiotherapist, costing £90 an hour.
Another parent, Julian, said he was also unfairly accused of being aggressive by Sirona.
He said a formal investigation had been carried out into his daughter Gemma’s care but he “didn’t see any action” so continued to contact the company.
Julian said he and his partner then received a letter saying Sirona had been informed they had been “aggressive and threatening” towards the therapy team.
Sirona told them they were being given a “second stage warning about modifying their daughter’s care”, Julian said.
The company also told the parents that their daughter would no longer be seen in their home and would be seen only at school, with a member of staff present in order to “protect the therapists”, the father said.
He added: “We were not being threatening. When we challenged them on [the warning] they could not give us a solid example of why that was done.”
Julian also said because the family had “stepped in” to make sure her physio treatment had continued, they had manage to avoid complication such as acute pain, bowel blockages, interrupted sleep and seizures which said could “all be life threatening”.
The group of parents, whose children all attend Claremont, have now written an open letter that criticises Sirona’s cuts to school physiotherapy.
The letter says a number of parents have contacted Sirona and the special education needs team at Bristol City Council to raise their concerns about the “profoundly negative impact on the development of our children at Claremont”.
‘Deeply concerned’
The letter continues: “The absence of therapists on a daily basis is not acceptable and is having a detrimental effect on them and represents a cut in service.”
The parents say all of their children have ECHPs – an education, care and health plan, which is a legal document outlining their needs, including therapy, and which unlocks funding.
“As their parents, we want to know what is happening with this funding,” the parents write.
“What is being done to reinstate the provision our children need?
“We are also deeply concerned about the poor communication regarding the changes, which has come third hand without any explanation.”
‘We will act’
Sirona declined to comment about the families’ allegations but told the BBC its external review, which began on 1 December, is expected to run until mid-February.
In a statement, spokesperson Mary Lewis, Sirona’s chief nursing officer, said: “We have ensured that all concerns raised with us have been formally recorded and will be shared with the review team, and we are working closely with our partners throughout the process.
“The inquiry will look in depth at how the service is operating across all settings. It will identify what is working well, what may need to improve, and whether any factors within Sirona or the wider system could impact the delivery of the standard of care we expect.
“An Appreciative Inquiry is a structured, transparent and strengths-based method that examines the experience of those receiving care and those providing it.
“We will act on the findings of the review. Our priority remains the safety and wellbeing of the children and families we support, and ensuring our staff have the conditions they need to deliver high-quality care.”
the very musical performance of Aladdin that I saw in panto this year 2025 watch the video to see some of what I saw in this video blog
‘High-Tech Prosthetic Arm Would Be Life-Changing’
A teenager born without the lower part of her right arm is seeking to raise £20,000 to buy a high-tech bionic arm she said could transform her life.
Sadie, 17, from Winnersh, previously used a prosthetic arm as a young child but stopped as she felt it was hampering her independence.
But now, with her potentially starting university next year, she said the Hero Pro would enable her to complete everyday tasks that she can sometimes struggle with.
A campaign has currently raised £4,500 with other fundraising set to take place in early 2026, including a runner who is set to take on the Thames Path Ultra Challenge for Sadie’s benefit.
“Coming up to 18, I need more independence and I have always relied on my parents a bit. It really hit me when I went to secondary school and realised I was doing a lot more by myself. Two hands would make life a lot easier,” Sadie said.
She recalled that her earlier use of the prosthetic arm “felt like a nuisance”.
But she said the Hero Arm, which can pick up a maximum of 25kg, would be life-changing.
Sadie said tasks that other people might take for granted, like tying her hair and cooking, can be difficult.
“It sounds silly but they’re the little things, everyday tasks that Sadie wants to do alone now. She doesn’t want me and her dad helping her,” Sadie’s mum Sarah added.
“I feel so emotional but in such a fantastic way,” she added.
“It’s great to see. Sadie is a really determined character and always has been from the day she pulled off her prosthetic arm and threw it down.”
visiting the Christmas selfie decorations in my local town 2025
Sensory Grotto Makes Santa Visits Accessible
A charity has built a sensory grotto to make visiting Santa accessible to all.
Focus Birmingham, which cares for people with visual impairments and complex needs, aims to create a sense of calm with the grotto’s adaptable soft lights, gentle sounds and different textures.
It created the experience to make Christmas more inclusive and ensure that there was a “safe space” for everybody to enjoy a visit with Santa.
“The family’s reactions are amazing to what we do, it fills my heart all year,” staff member Thomas Ward said, adding that it gave “something to the wider community”.
Mr Ward said that the charity celebrated all events across Birmingham and Christmas time incorporated “lots of love”.
“We do this to give an opportunity for everyone to see Father Christmas, regardless of their age, their additional needs,” he said.
CEO of Focus Birmingham Kate Burke said the grotto was just one of many accessible events that the charity held with others, including Christmas fetes, bingo and sing-alongs.
“It’s so important because we believe everybody has the right to live life to the full and reach their potential,” she said.
Ms Burke said that Christmas could be a time with more barriers for those with care and support needs, so the charity made sure people had the same opportunities.
The charity’s specialist mini buses cost more than £400,000 a year to help keep the centre accessible.
It appealed for support for its Christmas campaign this year to help fund the transport service.
Adam Pearson Is Worried About Some Uses Of AI
Dr Shani Dhanda speaks to us from Tokyo where she’s delivering a keynote speech at the world’s first Accountability Summit which has brought together 500 companies who made disability pledges in the past two years to see just how well they’re doing. Plus she reveals how she would ideally celebrate IDPD
CEO of Paralympics GB, Dave Clarke, tells us what he thinks about marking the day and reveals the latest research about the number of disabled people getting involved in sport and what’s holding others back.
Plus, we have Hollywood film star, presenter and campaigner, Adam Pearson, in the house. He’s just been announced as the patron of Face Equality International. He talks about the challenges AI can pose for someone with a facial difference and gives us the inside scoop on his next big film role….a man he once loathed as a child, but has come full circle to love.
Intrigued? – Get your party hat on and take a listen!
Santa’s Little Yelpers Socialise With Saint Nick
Guide dog puppies have been preparing for Christmas with a visit to Santa’s grotto as part of their early socialisation training.
A dozen puppies and their raisers, who care for them during the first year of their lives, explored the grounds and gardens at Delapré Abbey in Northampton before seeing Father Christmas.
It was organised by sight loss charity Guide Dogs to help build their confidence in unfamiliar environments.
Claire Purr, the charity’s puppy development adviser, said it served as a reminder of why the charity needed to triple the number of its volunteer puppy raisers in the UK.
“Santa’s been amazing, and it is a fun thing, but actually it’s really good for their training too for them to learn to be around all these different things,” she said.
“There would be no guide dogs without puppy raisers; we need people to raise our puppies to help them on their journey to be successful guide dogs.
“We don’t have that many homes at the moment, so it’s been a challenge this year getting people on board.”
Linda Whitwell, one of the county’s most experienced puppy raisers, said the festive visit was “something different” for her 12-week-old labrador called Hollie.
“She [Hollie] seemed to really enjoy it,” she said.
“It’s nice that it’s all different experiences and it’s good for them anything like that.”
There are 12 volunteer puppy raisers in Northamptonshire, who introduce them to different experiences and prepare them for their formal guide dog training.
If they complete their training, they go on to become assistance dogs for people with sight loss.
Ms Whitwell – looking after her 17th dog – said the role of a puppy raiser “is very rewarding”.
“Although the cat wouldn’t agree with me,” she joked.
“It’s a lot of fun, it’s all experiences, socialising them and going to different places.
“If we go on holiday, we take them with us because it’s all new scenes and the seaside.
“People often say to me ‘I’d love to do it, but I just couldn’t let them go’.
“You’ve got to get the mindset [that] it’s not my dog and I’m doing this to change somebody’s life.”
Disabled Adventurer Starts South Pole Challenge
An adventurer has begun an attempt to reach the South Pole and break a record for the longest-ever sit-ski expedition by a disabled person.
Darren Edwards, from Shrewsbury, who is paralysed from the chest down, hopes to cover 137 miles (222km) over a period of 20 days
He is raising funds for charity Wings for Life, which is researching cures for spinal cord injuries.
In an update from base camp before he set off, Mr Edwards said his sit-ski had been adapted to become more “Antarctic proof” with rebuilt foot plates and a sheepskin padding.
The current record for the longest sit-ski to the South Pole stands at almost 69 miles (111km).
Joining him on the South Pole expedition are explorer Lucy Shepherd, Chief Scout Dwayne Fields and filmmaker Matthew Biggar.
The team will camp overnight, navigating temperatures as low as -30C and the risk of extreme winds, altitude sickness and snowstorms.
Former mountaineer and army reservist Mr Edwards was paralysed in 2016 at the age of 26 after a rock climbing accident.
Since then, he has been part of the first disabled team to cross Europe’s largest ice cap, Vatnajokull in Iceland, and undertaken seven marathons in seven days on seven continents.
He has also led a rowing crew across the English Channel and kayaked from Land’s End to John O’Groats.
Artist Nnena Kalu Earns ‘Historic’ Turner Prize Win
Nnena Kalu has won this year’s Turner Prize, the UK’s most high-profile art award, for her “bold and compelling” sculptures and drawings – and has made history as the first artist with a learning disability to win.
The judges praised Kalu’s brightly coloured sculptures – which are haphazardly wrapped in layers of ribbon, string, card and shiny VHS tape – and her drawings of swirling, tornado-like shapes.
Kalu, 59, is an autistic, learning disabled artist with limited verbal communication.
Charlotte Hollinshead, who has worked with her for 25 years, said on stage at the ceremony: “This is a major, major moment for a lot of people. It’s seismic. It’s broken a very stubborn glass ceiling.”
‘Idol, legend, winner’
In a moving speech delivered alongside Kalu, she said: “This amazing lady has worked so hard for such a long time.
“It’s wonderful she’s finally getting the recognition she rightly, rightly deserves.”
Glasgow-born, London-based Kalu was announced as the winner of the award – and its £25,000 prize money – at a ceremony in Bradford, the UK’s current city of culture, on Tuesday.
She accepted the honour while wearing a rosette bearing her photo and the words: “Idol, legend, winner, whatever.”
Kalu has been gradually gaining recognition in the art world in recent years after working as a resident artist with Action Space, which supports artists with learning disabilities, since 1999.
‘Incredible amount of discrimination’
Ms Hollinshead, her studio manager and artistic facilitator, said: “We are so happy that Nnena’s talent and beautiful work is now out in the world for you all to see this complex artist who creates gorgeous, complex forms – all while listening to disco music, often as loud as possible.
“Nnena’s career reflects the long, often very frustrating journey we’ve been on together… to challenge people’s preconceptions about differently abled artists, but especially learning disabled artists, an important creative community so undervalued.
“When Nnena first began working with Action Space in 1999, the art world was not interested.
“Her work wasn’t respected, not seen, and certainly wasn’t regarded as cool.
“Nnena has faced an incredible amount of discrimination, which continues to this day, so hopefully this award smashes that prejudice away.
“Nnena Kalu, you’ve made history!”
‘Beautiful intricacy’
Kalu’s work has divided opinion among art critics, but the Turner Prize judges were impressed by the “really compelling sculptures and drawings that could only be made by Nnena”, according to the jury chairman, Tate Britain director Alex Farquharson.
Her drawings, which come in sets of two or three near-identical shapes, have “a beautiful intricacy to them” and “look like swirling vortexes”, he said.
Her sculptures, meanwhile, are hanging shapes covered in reams of re-purposed materials including fabric, rope, parcel tape, cling film and paper.
They resemble three-dimensional versions of abstract expressionist paintings, Mr Farquharson said.
“But they’re not paintings, they’re not flat on the wall. They’re suspended in the space that you’re in, like brightly coloured rocks or creatures.
“They’re at almost your eye level. Although there are no figurative features at all, they appear to be communing among themselves and with you.
“The use of materials is highly unusual, including video tape that gets wrapped round and round.
“The colours and the lines the materials make are very like brush marks translated into three dimensions. They’re very gestural, they’re very expressive, they’re very compelling.”
‘Quality and uniqueness’
The judges deliberated for two or three hours, Mr Farquharson said, and stressed that their choice of winner was based purely on merit.
“The result wasn’t about wanting, first and foremost, to give the prize to Nnena as a neurodiverse artist. That wasn’t a driving factor,” he said.
“It was an interest in, and a real belief in, the quality and uniqueness of her practice, which is inseparable from who she is.”
It is a historic moment, though, he told BBC News.
“It breaks down walls between, if you like, neurotypical and neurodiverse artists. It becomes really about the power and quality of the work itself, whatever the artist’s identity is.
“So maybe what’s historic about it is it’s one more move to include really great neurodiverse artists in the picture we present of art today.”
The result was announced at a ceremony at Bradford Grammar School, the former school of artist David Hockney.
Works by all four shortlisted artists are currently on show at the Turner Prize exhibition at the nearby Cartwright Hall gallery, which will run until 22 February 2026.
The other nominees were Rene Matić, Zadie Xa and Mohammed Sami, who will receive £10,000 each.
The Turner Prize has been the UK’s most coveted and controversial art award since it was founded in 1984. Past winners include Lubaina Himid, Jeremy Deller, Grayson Perry, Steve McQueen and Damien Hirst.
Blind Footballer Robin Williams Dies Aged 37
The news was shared by IBSA Blind Football:
It is with profound sadness that we share the news of the passing of Robin Williams. Robin passed away at his home on Monday evening after a lifelong battle with (retinoblastoma). He was just 37 years old.
Robin was a former England Blind Football International player who loved playing football for his country (in total he played 106 times and scored 30 goals, including London 2012 Paralylmpic Games).
The whole Blind Football community mourns the loss of a true legend. Our thoughts are with his loved ones during this difficult time.
When Madeline Alterman started Artbox in Islington in 2011, she only had £300, a handful of volunteers and an idea – to support artists with learning disabilities and autism.
Now her organisation works with more than 90 artists each week, providing studio space, materials and tuition.
Some of their works have been exhibited, commissioned and sold, with artist Shruti designing the advent calendar for beauty brand Lush, and Seatton painting the cover art for Irish music artist CMAT’s second studio album, Crazymad, for Me.
Meanwhile, Richard’s painting called SHIP was featured in last month’s edition of the House and Garden magazine.
Artbox was born out of Ms Alterman’s belief that adults with learning disabilities need “real opportunities” rather than “token gestures”.
“I was hearing the same issues again and again: loneliness, isolation, nothing fulfilling to do, not feeling valued, shrinking budgets and almost no access to paid or purposeful work,” she explained.
Ms Alterman, who has a background in art and psychology and co-directs the organisation, grew up with a younger brother who has learning disabilities.
“We were encouraged to include him in everything, to advocate for him, to understand the system, and to push for better support.”
‘Mummy, Daddy, I’ve sold a painting!’
I visited the studio on a Thursday afternoon for one of the week’s livelier sessions, with the Backstreet Boys blasting through the speakers.
“Everyone here presents with their own differences,” said tutor Katie Parsons.
“You can’t just say ‘people with autism hate loud noises’ – that’s not the case. Certain people with autism hate loud noises in the same way that certain people without autism hate loud noises.”
Seeta, 52, arrived with a picture of a parrot she had seen on TV and planned to draw. It took her approximately an hour and a half to create an expertly drawn and coloured rendering.
Diagnosed with meningitis at six months old, Seeta said she has epilepsy and panic attacks, and was in comas throughout her youth.
At the age of 20, she sold her first painting.
“I ran home shouting, ‘Mummy, Daddy, I’ve sold a painting!'”
Violet started attending the sessions at Artbox when her mother died.
“When I first joined, I only wanted black and red because I was grieving so much,” she said.
“Then I came out of the light and saw all the bright colours and suddenly it was like, ‘I can do this, I can be an artist now’.”
Violet is also volunteer and workshop leader for Artbox – the workshops help the organisation to raise funds and build confidence in the artists who lead them.
One artist with Down’s syndrome returned to the Francis Crick Institute, which had previously worked with her as a patient, to deliver a workshop for World Down’s Syndrome Day.
Ms Parsons, herself a practicing artist, said she was inspired by both the confidence and “amazing lack of preciousness” possessed by the artists.
“One of their most incredible qualities is that they don’t have that self-conscious nervousness about creating that a lot of us do – second-guessing whether we’re doing the right thing and whether we’re doing it correctly,” she said.
She added the organisation would keep finding ways for artists’ work to be “seen, celebrated, and taken seriously”.
“When adults with learning disabilities receive the right environment – properly staffed, well-resourced, and grounded in respect – they thrive.”
videos of singing happy birthday and bringing the cake out in Dinner Club and General celebrations for my birthday
Nigella Lawson Opens Training Pub For Young People
Food writer and TV chef Nigella Lawson has opened a pub designed to help prepare young people with learning disabilities or autism for employment.
The North Star, set up by Brighton-based charity Team Domenica, provides the young people with real-world training opportunities that allow them to build their skills, confidence, and independence.
Alongside Ms Lawson, the Brighton venue was opened by Baroness Rosa Monckton, who founded the charity in honour of her daughter, Domenica, who has Down’s syndrome.
Georgia Pink, the charity’s enrichment coordinator, said: “Our main goal is to empower… and help them gain paid employment.”
The charity was founded in 2016 after Domenica left college and faced a lack of opportunities typical for young adults with learning disabilities.
Just 4.8% of adults with a learning disability and autism are in employment in England, according to figures from the NHS.
Through the programme, Team Domenica has said that 86% of candidates progressing into employment have stayed in their position for more than two years.
Ms Pink, who has worked at the charity for almost six years, called all the candidates “incredible”.
She said they do everything “with real confidence and determination”.
“Their self-confidence and sense of belonging in the community,” Ms Pink added.
“Feeling appreciated by employers and colleagues is really important.
“Everyone should have the right to do that,” she continued.
Educate, Don’t Segregate: Free Online Rally For Inclusive Education
Join the Rally for Inclusive Education
Disabled People’s Organisations, activists, parliamentarians and supporters are uniting to oppose the government’s agenda that increases segregation in education. Together, we are demanding an education system that values Inclusive Education and the rights of all Disabled people.
We demand an end to:
- Building new special schools and SEN Units
- Delays to the School’s White Paper on SEND reform
- Funding structures that favour segregated schooling
- Cuts to SEND resources in mainstream schools
- The use of force, restraint, and seclusion in educational settings
- Systemic barriers that exclude Disabled people
- Government failure to uphold the UNCRPD commitment to Inclusive Education
Date: Wednesday, 10 December 2025
Time: 6:30pm – 7:30pm
Location: Zoom
Access BSL interpreter and caption provided
Speakers & Contributors
Co-Chairs:
- Rick Burgess – Greater Manchester Coalition of Disabled People
- Michelle Daley – ALLFIE
Confirmed Speakers:
- Marsha de Cordova MP – Battersea
- Svetlana Kotova – Inclusion London
- David Buxton – Action on Disability
- Sharon Smith – SEN Jungle
More speakers to be announced…
Defend the right to Inclusive Education for everyone.
Hosted by ALLFIE – The Alliance for Inclusive Education
PIP Withdrawn From Amputee Over Cricket Video
The family of a man who lost his leg when he was two years old have asked for a rethink of a decision to strip him of his disability benefits and force him to pay back £36,000.
Shaun Rigby from Telford had his Personal Independence Payment (PIP) withdrawn after a video emerged, showing him take part in a game of cricket.
But his family said: “Playing cricket does not negate Shaun’s disability; it showcases his determination to lead a fulfilling life despite it.”
The Department of Work and Pensions said its decision had been backed by an independent tribunal and PIPs were “awarded based on how a condition impacts a person’s day-to-day needs, as opposed to the condition itself”.
In an online petition, Mr Rigby’s family said he had “overcome incredible odds since losing his leg below the knee in a tragic tractor accident when he was just two years old”.
They said despite his physical challenges, the 37-year-old had tried to “live as fully as possible, embracing activities like cricket not only for his own mental and physical health but also to share joyful moments with his family”.
Mr Rigby said he used to play for England’s disability cricket team, before eventually having to give it up.
He said: “I stopped playing about 2014, just because I couldn’t do what I wanted to do, my body was sort of breaking down.”
Since then, he said the pain became worse and he was successful in applying for PIP in 2016 and a Motability car three years later.
But the DWP decided to withdraw both after their attention was drawn to the video of him playing cricket in 2023.
His family said it had been “a light-hearted community cricket match”.
They argued that “participating in adaptive sports is a well-known form of rehabilitation and psychological well-being for individuals with disabilities”.
The decision to strip him of his benefits took away his independence and his ability to care for his family, they said.
Mr Rigby said he understood why the DWP had made the decision, but wanted the government department to know he played despite his condition and did it partly to inspire others.
He said he would undergo six days of “torture” after playing, because of the pain.
The family has asked the DWP to reassess his case and reverse the decision.
His wife, Lauren, said losing the PIP payments was difficult in itself, but the thought of having to repay the £36,000 was causing the family “stress and worry”.
“Do they want us to go into poverty?” she asked.
Mrs Rigby added she wanted to push back at some of the negative comments they had received after it was announced he would lose the payment, but that there had been “nothing but good comments” since the online petition was launched.
The DWP said: “Following Mr Rigby’s appeal, where he was able to challenge his benefit entitlement, an independent tribunal agreed with DWP’s decision.”
It also said that every PIP claim was different, because of individual circumstances “including age and the ability to manage a condition without supervision or assistance”.
Mr Rigby is waiting to hear what the weekly repayments will be on the £36,000 and believes it could be up to £35 a week.
The DWP said it was committed to working with anyone struggling with repayment terms.
Streeting Orders Review Into Mental Health And ADHD Diagnoses
Health Secretary Wes Streeting is launching an independent review into rising demand for mental health, ADHD and autism services in England.
It will look at both whether there is evidence of over-diagnosis and what gaps in support exist.
The government said it was already investing in expanding services, but there are long waits for therapy in many areas.
NHS figures show rates of mental health problems and ADHD have increased significantly over the past two decades – and the government believes there are people being referred on to waiting lists who do not need treatment.
Streeting has previously suggested mental health conditions are being “overdiagnosed”.
Announcing the new review, Streeting said: “We must look at this through a strictly clinical lens to get an evidence-based understanding… That’s the only way we can ensure everyone gets timely access to accurate diagnosis and effective support.”
It comes as ministers seek to tackle a growing welfare bill – although the Department of Health and Social Care has stressed this review is running separately to that.
While some benefits require people to demonstrate how a health condition is affecting their ability to work, a formal diagnosis is not strictly necessary for many.
Earlier this year, the government was forced to climb down on planned cuts to disability benefits, including for those with mental health conditions, after facing major backlash from more than 100 of Labour’s own backbenchers.
But on Monday, the prime minister promised a renewed push on reforming the welfare system, which is said had “trapped people in poverty” and “wrote young people off as too ill to work”.
Led by clinical psychologist Prof Peter Fonagy, the new review’s findings will be published in Summer 2026.
Prof Fonagy said the aim was “to test assumptions rigorously and listen closely to those most affected, so that our recommendations are both honest and genuinely useful”.
NHS figures show that the number of adults aged 16 to 64 reporting mental health problems reached 22.6% in 2023-24, up from 17.6% in 2007.
Rates are higher in the young and among the unemployed.
As of March this year, around four million working-age adults in England and Wales claimed either disability or incapacity benefit – up from almost three million in 2019, according to research, external from the Institute for Fiscal Studies (IFS).
The DHSC said the increased pressure on the NHS “means that for too long, people with acute needs have faced long waits, had to navigate overstretched services, experienced inequalities in care and felt abandoned when support was needed most”.
The review will look at how NHS services are working and what support people could be given earlier.
Government sources said they wanted to establish a baseline for diagnosis and what good quality care looked like.
It is thought one of the factors in long waits was that people who did not necessarily need treatment were ending up being referred on to waiting list when practical support, such as help with social or financial issues or a short-burst of talking therapy could provide the solution.
Investment is already being made in increasing support in schools and expanding talking therapy services.
Royal College of Psychiatrists president Dr Lade Smith said: “We expect the review will adequately consider the many complex reasons that more people are in need of mental ill-health, ADHD and autism support.
“We have a real opportunity to ensure that millions of people receive the care they need both now and for generations to come.”
Mental health charity Mind welcomed the government’s announcement and signalled their willingness to contribute to the review.
“This is a huge opportunity to really understand what is driving increasing levels of mental illness, especially among our young people,” chief executive Dr Sarah Hughes said.
The National Autistic Society said: “We need urgent action because, while we are currently seeing the number of people seeking an assessment levelling out, the average waiting time is rocketing.”
Jack and the Beanstalk open air concert at the carnival
Sheriff With MND Uses Voice App To Speak In Court
A Dundee sheriff robbed of his voice by motor neurone disease (MND) is continuing to dispense justice from the bench with the aid of new technology.
Alastair Carmichael was diagnosed with the disease in early 2024, and now communicates with staff, lawyers and the accused using synthetic voice apps.
He is believed to be the only judge in the world currently conducting criminal jury trials in this manner.
The sheriff was speaking ahead of former rugby league star Kevin Sinfield arriving in Dundee on Saturday as part of his 7 in 7: Together ultramarathon challenge to raise money for MND research and treatment.
MND is a neurodegenerative condition where messages from the brain and spinal cord stop reaching the muscles.
High-profile cases include former Scotland international rugby player Doddie Weir, who died at the age of 52 in 2022, six years after being diagnosed.
The 62-year-old sheriff, who has sat on the bench in Dundee for a decade, said he first noticed “something was up” when he developed a persistent lisp in May 2023.
“The lisp didn’t go away as I had hoped it might,” he told BBC Breakfast.
“And then I found I was having to work a bit harder to get some consonants and words out.
“My oldest friend had MND and his voice had been affected so I suspected that something wasn’t right.”
The sheriff was initially reassured by his doctor that he did not have the condition, which affects about 480 people at any one time in Scotland.
He said: “However, she only had one symptom to go on, so I don’t blame her for not finding anything and at least it put my mind at rest for a few more months.”
After his symptoms progressed, he was referred to the neurology department at Ninewells Hospital, and ultimately diagnosed.
Unable to use his natural voice anymore at work, he has used an app called SpeakUnique to communicate in court for more than a year as he adjusts to what he calls “the new me.”
He said: “I have four different IT systems and I use them by having stored phrases that I can amend as needed and by also text to speak where I type in the letters and my synthetic voice says the words.”
“I think we’ve now come to the happy place where it’s just part of the furniture, and we can all just focus on the cases that are calling and on achieving justice in them.”
Sheriff Carmichael also uses visual cues in court, often pointing to the person he is about to address via the software to alert them.
He downplays the unique working situation he finds himself in.
“I have never claimed to be the only judge using text to speak IT in order to conduct criminal jury trials, but I am the only one we are aware of so far,” he said.
“With all the IT that is around it wouldn’t surprise me if there were other somewhere, it’s a big world.
“For example, employment judge Hugh Lumby who also has MND is using similar IT in his work in the London South region.
“It doesn’t really matter if I am the first or how many judges there are using this kind of IT.”
What does matter, he believes, is that it shows that people with the condition or other illnesses can continue to work, if adjustments are made to suit their situation.
He said: “This allows employers to retain experienced staff and consistency and allows people to continue to work and contribute to society. What’s not to like about that?”
The sheriff is determined to continue working for as long as he can.
He said: “Working gives me a focus away from MND and it allows me to feel like I am still participating in society.
“I always felt grateful for the start that I had in life, and have wanted to give something back by contributing to society.
“My job is a very public one, and continuing to work gives me the chance to show that even if you have lost your voice, you can continue to work with the assistance of voice IT and with the assistance of positive-minded people.”
‘Massive efforts’
He is full of praise for Kevin Sinfield’s charity challenge, saying the ex-rugby league star is doing “amazing things” for MND research and treatment.
Sinfield was inspired by, and continues to run in memory of, his former Leeds team mate, Rob Burrow, who was diagnosed in 2019 and died, aged 41, in June last year.
The sheriff said: “His massive efforts are helping to put him MND in the public eye and are helping to encourage people and organisations to give generously.
“This money is funding research and funding assistance, every penny helps to make things better now and in the future.
“He is also showing that if you set your mind to achieve something, then you can indeed achieve it. “
The sheriff said that his speech has now been affected to the extent that his family do not understand what he is saying, and his swallowing is now “less efficient.”
He said: “Beyond that, I am still mobile and can still do most things that I want to, although not necessarily in the same way as I used to.
“I must stress I could not have done this by myself.
“I’ve had help and support from my family, the medics, from the judges, from the court staff, and from the lawyers in court.”
He said that MND is a “nasty disease” that no one should have to face alone.
He said: “I am now far more reliant on other people than I used to be, and this is a humbling situation to be in.
“I’m lucky because the people who I work with have embraced risk and are willing to give it a go and see what happens.”
Singer Example Criticized For Telling Disabled Fans To Stand
British singer Example faced backlash after repeatedly demanding audiences stand and dance during performances on tour with boyband JLS, including telling a pregnant disabled fan she looked stupid for remaining seated. The incident at London’s O2 Arena sparked widespread criticism on social media and raised questions about accessibility awareness at live music events.
Elliot John Gleave, 43, who performs under the stage name Example, serves as the opening act for JLS on The Club Is Alive: 2025 Hits Tour. A video posted to TikTok showing the singer complaining about seated audience members has been viewed more than 45,000 times, according to the concertgoer who shared it.
The pregnant and disabled fan, posting as kxrstyyx on TikTok, wrote that getting called out by Example was not on her bingo card for 2025. The video captured the singer asking what audience members were doing and saying they looked stupid for not standing. The fan explained she was 27 weeks pregnant and disabled, making it necessary for her to remain seated during the performance.
Multiple concertgoers reported similar incidents at different venues throughout the tour. One attendee said that in Nottingham, Example complained the whole time about people being seated. Another wrote that he displayed similar behavior in Cardiff, appearing angry that everyone was sitting down.
The disabled fan revealed in comments on her TikTok post that at one point during the show, she held up her walking aid to indicate why she needed to sit. However, Example reportedly proceeded to call her stupid despite seeing the mobility device. This detail emerged when another follower commented that they remembered the camera showing her holding up the walking aid.
Supporters flooded the comments section expressing sympathy and sharing their own concerns. One person who identified as having chronic pain said they felt terrible for the concertgoer when the incident happened and expressed relief about not having front row seats. A wheelchair user commented that their boyfriend joked about Example telling them to get up and dance.
Another attendee at the O2 show stated they kept telling their group they didn’t like Example because he was being really rude during his performance. The consistent reports from multiple venues suggest the singer’s behavior represented a pattern rather than an isolated incident.
Example achieved commercial success between 2010 and 2013 with hits including Won’t Go Quietly, Kickstarts and Changed the Way You Kiss Me. The singer also had a number one single with Stay Awake and featured on Calvin Harris’s track We’ll Be Coming Back. His recent appearance on The Masked Singer as Bear helped remind audiences of his musical catalog and won him new fans.
The fan later told The Sun that after the concert, she met JLS members who treated her kindly. She said the boyband members were absolutely lovely, mentioning how they loved that she had painted her walking aid in matching colors. The contrast between Example’s behavior and JLS’s response highlighted different approaches to fan interaction and inclusivity.
JLS consists of Aston Merrygold, Oritsé Williams, Marvin Humes and JB Gill. The group became one of Britain’s biggest pop acts after finishing second on The X Factor in 2008 behind Alexandra Burke. They have sold over 10 million albums, scored five number one singles and won two BRIT Awards along with five MOBO Awards.
The group initially split in 2013 but reunited in 2020, launching their Beat Again Tour in 2021 after pandemic delays. Their subsequent tours in 2021 and 2023 filled arenas across the United Kingdom. The Club Is Alive: 2025 Hits Tour features their classic hits including Beat Again, Everybody In Love, The Club Is Alive, Love You and She Makes Me Wanna.
Example was personally invited by JLS to serve as special guest support for each show on the tour. In promotional materials, Example expressed excitement about performing on huge arena stages, describing performing as his bread and butter. He acknowledged that all the performers are getting older but promised the energy from everyone would be worth the ticket price.
The controversy highlights ongoing challenges regarding accessibility and awareness at live events. Many venues offer accessible seating and accommodations for disabled patrons, yet performers sometimes fail to recognize that not everyone can participate in standing or dancing. Medical conditions, disabilities, pregnancy and other factors legitimately prevent some audience members from standing for extended periods.
Concert etiquette has evolved as awareness of disabilities has increased, with many artists making efforts to be inclusive of fans with various accessibility needs. Some performers specifically acknowledge seated sections and encourage audience participation without requiring physical standing. Others create designated accessible areas where fans can enjoy shows without pressure to stand.
Social media has amplified accountability for performers whose comments or actions exclude disabled fans. Previous incidents involving artists demanding audiences stand have sparked similar backlash, with disability advocates emphasizing that invisible disabilities mean performers cannot determine who is capable of standing simply by looking at them.
The incident raises questions about whether Example will adjust his performance approach for remaining tour dates. Artists have previously apologized and changed their behavior after receiving feedback about accessibility issues. However, Example has not publicly commented on the criticism or the specific incident involving the pregnant disabled fan.
The tour continues through early 2025 with dates scheduled across multiple cities. JLS has built a reputation for engaging with fans and creating an inclusive atmosphere at their shows. Their positive interaction with the disabled fan after Example’s comments suggests the headlining act maintains different standards for fan treatment.
Disability rights advocates emphasize that accessibility extends beyond physical accommodations like ramps and designated seating. True inclusion requires awareness from all performers and staff that audience members have diverse needs and capabilities. Comments that shame or pressure people to stand can create hostile environments for disabled patrons who already face barriers to attending live events.
The video evidence and multiple witness accounts from different venues establish a pattern suggesting Example’s comments were not accidental or taken out of context. The repetition across multiple cities indicates the singer made similar demands of audiences throughout the tour rather than this being a single misunderstanding.
Music industry professionals note that opening acts face challenges energizing crowds who primarily came to see the headliner. However, most artists recognize that demanding physical responses from audiences proves counterproductive and potentially excludes fans with legitimate reasons for remaining seated. Building energy typically requires reading the room and meeting audiences where they are rather than imposing requirements.
The controversy may affect Example’s reputation and future booking opportunities as both venues and artists increasingly prioritize accessibility and inclusive fan experiences. Social media documentation of the incidents ensures the behavior remains part of public record, potentially influencing how promoters and fellow artists view collaborating with the singer.
For the pregnant disabled fan who shared the video, the experience of being called out and called stupid by a performer she paid to see left a negative impression that overshadowed the positive aspects of meeting JLS afterward. Her decision to share the video on TikTok brought attention to accessibility issues at concerts and generated conversations about how performers should treat all audience members with respect regardless of their ability to stand.
Champion Climber Sets Sights On 2028 Paralympics
A paraclimber from Guildford is aiming to become one of the first athletes to compete in the sport at the Paralympics.
Matthew Phillips is a three-time time world champion in the AU2 (Upper Arm Amputation) category.
“It’s something I dreamed of when I did swimming – to get the opportunity to be one of the first paraclimbers at the Paralympics is another level,” said the 25-year-old.
“I’m hoping I can still keep at my previous level and come back, but I know the field has got so much stronger.”
Phillips, who was born with the bottom part of his right arm missing, began competing in 2016 and won world titles in 2018, 2019 and 2021.
He had retired from competitive climbing, but returned to the sport earlier this year after the announcement it would make its debut at the 2028 Paralympics.
“It raised some serious questions about whether I came back or not, but it’s the Paralympics isn’t it?” he said.
“I work with a lot of strong and incredibly talented climbers, but I can do moves they can’t do because of my arm.
“It’s shorter, I can use it as a lever, I can pull on it more, I can burn them off as such.”
Born in Farnborough in Hampshire, Phillips lives in Guildford and regularly climbs at Surrey Summit.
He also boulders all over the world as a hobby.
“It’s as much a comfortable space for me as it is a competition space, I’d come and climb if there were no competitions,” he said.
“It’s a peaceful place for me.”
‘PE Teachers Need More Education On Disabilities And Sport’
A top British wheelchair tennis player has started a campaign to make physical education (PE) more inclusive for children and young people with disabilities.
Ruby Bishop, 21, from Norwich, said she faced huge barriers to taking part in PE at school but is now rated the fourth-best player in Great Britain and has represented her country at global sporting events.
She has called on PE teachers to have a better understanding of the sports needs of children with special education needs and disabilities (Send).
A government spokeswoman said every child should benefit from quality sport both inside and outside of school, and that its Inclusion 2028 programme helped provide training for staff involved in providing PE for those with Send.
What was Bishop’s experience growing up?
Bishop said: “I have cerebral palsy. I left high school in 2020 and I myself wasn’t included in PE lessons. Too many children are left out of PE because of their disability.
“I was never invited to the sports awards, despite my success outside of school representing Great Britain. That wasn’t celebrated within the PE department and I feel that it should have been.”
She said she had worked with lots of children and there was still a lack of knowledge in schools about disabled sports.
Bishop told BBC Politics East: “PE teachers need more education on disabilities, and disabilities and sport.
“I’ve seen first-hand how discrimination in PE can impact young people’s confidence and wellbeing.”
What is she calling for?
Bishop said: “I want it to be a legal requirement that every secondary school in the UK has a sports wheelchair in their sports cupboard, like they would have a football goal or a tennis net.
“PE is not just about a match; it teaches you many life skills. It gave me a sense of purpose in life.
“The PE curriculum needs to change to mould around disability sports.
“I would love to see everybody doing a session on sitting volleyball and trying to get it as inclusive as possible.”
Her campaign has been backed by her constituency MP Alice Macdonald (Lab, Norwich North) who is raising the issue in the House of Commons.
How many people take part in wheelchair tennis?
Nearly 17,000 monthly participants across more than 600 venues in Great Britain take part in wheelchair tennis, according to the Lawn Tennis Association.
Wheelchair tennis is played in more than 100 countries worldwide, according to the International Paralympic Committee’s overview of the sport.
Great Britain has had a lot of success at wheelchair tennis with British pair Alfie Hewett and Gordon Reid winning the World Team Cup in 2015, 2019, 2023 and 2024.
What does the government say in response?
A Department for Education spokeswoman said: “This government is committed to breaking down barriers to opportunity so every child can achieve and thrive.
“Regardless of their circumstances, background and abilities, every child should have access to quality sporting opportunities both inside and outside of school.
“That’s why as part of our Plan for Change, we’re investing up to £300,000 a year to deliver the Inclusion 2028 programme which upskills teachers to deliver high quality, inclusive PE school sport and physical activity to pupils with Send.”
Christmas carnival 2025 as well as the fair at the carnival
Kyle Sieniawski Dies Aged 14 With MND
A teenager has died less than a year after being diagnosed with motor neurone disease (MND), a rare degenerative condition that typically affects adults over 50.
The family of Kyle Sieniawski, 14, from Pontypridd, Rhondda Cynon Taf, confirmed his death in a tribute on Friday describing him as a “beautiful boy” that made them smile “a million times and more”.
“We’re absolutely heartbroken to announce that our little superhero has very sadly lost his battle with MND,” they said.
“Kyle fought with everything he had but in the end it all became too much for him and he very sadly passed away yesterday evening.”
Kyle was diagnosed with MND in January at the age of 13, after he began losing mobility in his arm. His condition deteriorated rapidly, and he later became unable to use any of his limbs. He relied on a breathing mask and feeding tube.
Following his diagnosis, Kyle’s family said they were “desperate” to bring him home from hospital but were unable to do so because their property could not be adapted to meet his needs.
His parents and brother spent more than nine months living with him at Noah’s Ark Children’s Hospital in Cardiff.
According to the family, Kyle was moved into intensive care earlier this month after developing an infection.
They had been active on social media, sharing updates about his condition and the wider challenges faced by people living with MND on a Facebook page called Kyle’s MND Story.
In their tribute, the family added: “We’ll miss you so very much buddy and we love you more than words could ever possibly say.
“We can already picture you up there challenging your two nans and grandad to a game of Connect 4, and that you’re making them smile, just like you made us smile a million times and more.”
Celebrity Traitors Star Ruth Codd Recovering After Second Leg Amputation
Celebrity Traitors player and actress Ruth Codd has said she is recovering after a second leg amputation operation.
The Irish performer posted on TikTok, saying she is staying with family after surgery to remove her leg below the knee.
Codd had her first amputation aged 23, after injuring her foot playing football as a teenager, saying it had led to eight years of complications and pain.
Speaking about her recent operation, she said, external: “Good news, we’ve had a full-circle moment. I’m back making TikTok content in my parents’ house. Bad news, I can’t do it upstairs, because I’ve just had my second below-knee amputation.”
She added: “There’s a lot to unpack for everyone involved.”
The 29-year-old built a following posting on TikTok, before being cast in Netflix horror series The Midnight Club, her TV debut.
More recently, Celebrity Traitors viewers saw Codd share her correct suspicions about fellow player Jonathan Ross, before being murdered on the show.
Codd had spoken previously about intending to have her latest operation in an interview on YouTube channel FFTV.
“The way I use my crutches means I’m always up on my tippy-toes,” she told host Grace Neutral.
“With the second one, it was just the same situation.
“My quality of life, it’s never going to get any better from this point.”
Codd appeared in a live-action remake of How To Train Your Dragon earlier in 2025.
She played Phlegma the Fierce, a Viking warrior without part of her leg.
Around the film’s release, Codd said she was proud to play a “strong, capable” character with a limb difference.
“The amount of health problems I’ve had the last year haven’t stopped me doing anything,” she told FFTV.
“But I feel like it has hindered me and made my ability to do my job more difficult.
“I’ve been through it once before, so I think with two prosthetics, I’ll be pretty unstoppable.”
Dog Aid Charity Extends £100k Fundraising Deadline
A charity that helps adults with physical disabilities to train their own canine pet to become an assistance dog has given itself longer to raise the £100,000 it needs to stay open.
Dog Aid, which is based in Shrewsbury, said it needed the help because, like many small charities, it had suffered rising costs and a reduction in grants and donations.
When it launched its appeal last month, it set itself a deadline of 15 November to raise the money, but has now extended that to 15 January.
CEO Belinda Johnson said the charity had already raised £45,000 and she had “been blown away by people’s generosity” so far.
Since Dog Aid was founded in 1996, it has helped 476 disabled people to “train their dogs and improve their lives”.
The charity has five members of staff, and they help people with dogs to coach their own pets.
Ms Johnson said she was “optimistic and hopeful” of raising the remaining money and the charity had “received a huge amount of support from the communities of Shropshire”.
She said she hoped people might be motivated to give to the charity over the festive period.
‘Premium’ Cars Like BMW And Mercedes Cut From Motability Scheme
Disabled people who have a car through the Motability scheme will no longer be allowed “premium” vehicles such as BMWs and Mercedes.
Motability said the change would be made with immediate effect, as it announced a new ambition for half of the cars it leases to be British-built by 2035.
Ahead of Wednesday’s Budget, critics have called on the government to look at changing the scheme, which allows eligible disabled people to lease adaptable cars.
Chancellor Rachel Reeves said the increased use of British-built cars would “support thousands of well paid, skilled jobs” and help to boost the economy.
It comes after recent speculation over potential changes the government could make in the Budget to bring down the cost of providing the scheme to a growing number of eligible claimants.
The number of people with a Motability car has increased sharply in recent years, to 860,000. Many of the cars leased by the scheme are adapted to be accessible for wheelchair users.
The increased demand is a result of more people becoming eligible for the higher-rate mobility component of the Personal Independence Payment (PIP), which accounts for the greater travel and transport costs experienced by disabled people and which Motability customers put towards the lease of a car under the scheme.
Higher-end vehicles account for about 50,000 of the vehicles leased by the scheme, with customers paying the additional cost for a premium vehicle using their own money.
Motability has long argued that the scheme provides a lifeline to disabled people.
Speaking earlier in November, Heidi Alexander, the transport secretary, said she would be “comfortable” with removing “really high-end cars” from the scheme.
Earlier this month, Farah Black, a disabled woman in Northern Ireland, spoke to the BBC about leasing a BMW on the Motability scheme.
She was unable to drive at all for 12 years after a serious injury, which led to life-threatening sepsis and the amputation of her leg.
She said she cried when she picked up her BMW, which is adapted for her needs as a wheelchair user and which she paid the additional cost for as an advance payment.
“We should all have a choice,” she said.
“Just because I’m disabled – why can I not have a choice and drive what I want?”
Motability said it was “refocusing” which vehicles were available on the scheme, adding that it would “focus on vehicles that meet disabled people’s needs” and are “safe, reliable and affordable to run”.
As well as Mercedes and BMW, other brands being removed as part of the change include Audi, Alfa Romeo and Lexus.
The brands are no longer available to select as options on the Motability website.
But Matt Ryder, who used to work on Motability policy for the Department for Work and Pensions, said the problems with the scheme go beyond offering premium brands.
He said the scheme, which only leases brand new cars which are replaced every three years, could become more efficient by supplying nearly-new cars instead.
“A car is not a luxury, but a brand new car is a luxury purchase,” he said.
On its commitment to British-built cars, Motability said it would be working closely with manufacturers in the short term to increase the proportion of cars it leases which are made in the UK.
It wants 25% of cars on the scheme to be UK-built by 2030, up from 7% currently.
Andrew Miller, chief executive of Motability Operations, said the scheme was a “lifeline to freedom and independence” for its customers, adding that they “want to do even more to support the economy” going forward.
Hospital Staff Ask Deaf Couple, ‘What Is A BSL Interpreter?’
A health trust has apologised to a deaf couple after hospital staff did not know what a British Sign Language (BSL) interpreter was.
Colleen Agnew’s husband was taken to hospital recently after an episode in which he was struggling to breathe, due to underlying health issues, at their home in Kilrea, County Londonderry.
Her son notified Causeway Hospital of their communication needs ahead of their arrival, but they were met with confusion upon arrival, Mrs Agnew said.
Apologising for the “distress caused”, the Northern Trust said information on booking BSL interpreters is regularly provided to staff and a reminder would be issued as a result of this incident.
The trust also said lanyards have been introduced which patients can wear to indicate they may need additional communication support.
The NHS has a legal responsibility to ensure its services are accessible to everyone, including the provision of interpreters.
‘No idea about deafness’
Mrs Agnew’s first language is BSL.
Upon arrival at hospital, she typed her request for an interpreter on her phone.
But the receptionist asked, ‘What is a BSL interpreter?’, Mrs Agnew said.
“They had no idea about deafness. They had no real incentive to try and sort out this problem. They just sort of froze.”
Mrs Agnew said she noted posters in reception about multiple language interpreters but none for BSL.
Not having access to an interpreter led to the couple being left, “worried”, for two hours at the hospital, their daughter, Susannah Agnew, said.
Mrs Agnew eventually obtained an interpreter, using her own contacts.
“I felt really rushed and panicked… my main priority was to make sure my husband was OK,” she said.
“All my anxieties disappeared whenever I finally got an interpreter into the hospital. It means that I could finally communicate, I could finally understand what was going on.”
How many people use BSL?
People who are born profoundly deaf, meaning they have little or no hearing, often rely on sign language rather than speech to communicate.
A BSL interpreter helps translate sign language into spoken language and vice versa.
Estimates for the number of BSL and Irish Sign Language (ISL) users in Northern Ireland vary widely.
A 2020 Stormont study said there may be as many as 18,000 people who use BSL or ISL.
While the Department of Health says approximately 8,000 people in Northern Ireland use either type of sign language.
Communication barriers
The couple’s children often have to help their parents, in terms of communication and phone calls.
Their daughter told BBC News NI that the communication barriers deaf people face are unfair.
Even before they attended hospital, Mrs Agnew said they experienced issues trying to contact the emergency services via a specialist app, set up in 2022.
The 999 BSL app, which connects users with an interpreter to relay emergency calls, repeatedly cut out when she tried to use it, she said.
However, an Ofcom report published this year found “at least two lives are saved per year due to the service”.
Matthew King, general manager at Sign Language Interactions, said they take any report of service disruption very seriously and are investigating the incident.
Deaf people can also contact emergency services by using Relay UK, a broader service that includes a text-based emergency option called Emergency SMS which users can register for by texting “register” to 999.
The family are calling for more hospital staff training, clearer protocols for booking interpreters and basic sign language awareness across healthcare settings.
They also believe sign language should be taught in schools.
Seana Taylor, from the Foyle Deaf Association, is also a child of deaf adults (CODA).
She said every CODA is likely to have a story similar to the Agnews.
When Ms Taylor’s mother needed surgery recently, she said it was easier to book an interpreter herself than to try and go through the hospital.
However, she said there is a lot of good work ongoing to address issues in healthcare settings.
“It’s just about people,” she said.
“The people that are delivering the service, does everybody understand the processes, is there any further training that needs to be done?”
World First Gene Therapy For Childhood Dementia
A three-year-old boy has astounded doctors with his progress after becoming the first person in the world with his devastating disease to receive a ground-breaking gene therapy.
Oliver Chu has a rare, inherited condition called Hunter syndrome – or MPSII – which causes progressive damage to the body and brain.
In the most severe cases, patients with the disease usually die before the age of 20. The effects are sometimes described as a type of childhood dementia.
Due to a faulty gene, before the treatment Oliver was unable to produce an enzyme crucial for keeping cells healthy.
In a world first, medical staff in Manchester have tried to halt the disease, external by altering Oliver’s cells using gene therapy.
Prof Simon Jones, who is co-leading the trial tells the BBC: “I’ve been waiting 20 years to see a boy like Ollie doing as well as he is, and it’s just so exciting.”
At the centre of this remarkable story is Oliver – the first of five boys around the world to receive the treatment – and the Chu family, from California, who have put their faith in the medical team at Royal Manchester Children’s Hospital.
A year after starting the treatment, Oliver now appears to be developing normally.
“Every time we talk about it I want to cry because it’s just so amazing,” says his mother Jingru.
The BBC has followed Oliver’s story for more than a year – including how scientists in the UK first developed the pioneering gene therapy and how the medical trial they are conducting almost didn’t get off the ground due to lack of funds.
We first meet Oliver and his dad Ricky in December 2024 at the clinical research facility at Royal Manchester Children’s Hospital. It’s a big day.
Since being diagnosed with Hunter syndrome in April, Oliver’s life – like that of his elder brother, Skyler, who also has the condition – has been dominated by hospital visits.
Skyler had shown some late development in speech and coordination, but this had initially been put down to being born during Covid.
Ricky tells me his sons’ diagnosis came as a complete shock.
“When you find out about Hunter syndrome, the first thing the doctor tells you is ‘Don’t go on the internet and look it up because you’ll find the worst cases and you’ll be very, very disheartened’.”
“But, like anybody, you look it up and you’re like, ‘Oh my goodness, is this what’s going to happen to both my sons?'”
Children are born apparently healthy, but around the age of two they start to show symptoms of the disease.
These vary and can include changes to physical features, stiffness of the limbs and short stature. It can cause damage throughout the body, including to the heart, liver, bones and joints and in the most serious cases can lead to severe mental impairment and progressive neurological decline.
Hunter syndrome almost always occurs in boys. It’s extremely rare, affecting one in 100,000 male births in the world.
Until now, the only medicine available for Hunter syndrome was Elaprase, which costs around £300,000 per patient, per year and can slow the physical effects of the disease. The drug is unable to cross the blood-brain barrier and so does not help with cognitive symptoms.
But today, Oliver is being hooked up to a machine and having some of his cells removed – the first crucial step in trying to halt his genetic disorder in this one-off treatment.
“His blood is being passed through a fancy machine that is collecting a specific type of cell called stem cells which will be sent to a lab to be modified and then given back to him,” Dr Claire Horgan, consultant paediatric haematologist explains.
Oliver’s cells are carefully packaged and sent to a laboratory at Great Ormond Street Hospital (GOSH) in London.
In Hunter syndrome, a genetic error means that cells are missing the instructions for making an enzyme, iduronate-2-sulfatase (IDS), essential for breaking down large sugar molecules which over time accumulate in tissues and organs.
Scientists insert the missing IDS gene into a virus, which has its genetic material removed so that it can’t cause disease.
A similar method has been used in other gene therapies, such as the treatment for another rare inherited condition, MLD.
Dr Karen Buckland, from the Cell and Gene Therapy Service at GOSH, explains: “We use the machinery from the virus to insert a working copy of the faulty gene into each of the stem cells.
“When those go back to Oliver, they should repopulate his bone marrow and start to produce new white blood cells and each of these will hopefully start to produce the missing protein [enzyme] in his body.”
There still remains the issue of how to get enough of the missing enzyme into the brain.
To overcome this, the inserted gene is modified so that the enzyme it produces crosses the blood-brain barrier more efficiently.
We next meet Oliver back at the clinical research facility at Royal Manchester Children’s Hospital.
This time he’s with his mum Jingru, while Ricky has stayed in California to look after Skyler.
There is a sense of anticipation as a member of the research team opens a large metal cryopreservation tank where Oliver’s gene edited stem cells are frozen, having been transported back from GOSH.
A small, clear infusion bag is removed and slowly brought to body temperature in a tray of liquid.
After multiple checks, a nurse draws the clear fluid containing around 125 million gene-modified stem cells, into a syringe.
Oliver is used to hospitals, but is fretful, and wriggles as the research nurse slowly injects the treatment, about a cup full, into a catheter in his chest.
Jingru holds Oliver steady in her arms. After 10 minutes, the infusion is done.
An hour later, a second, identical infusion is made. Oliver continues to watch cartoons on a portable screen, oblivious to the potential importance of what’s just happened.
And that’s it. The gene therapy is complete. It seems to be all over rather quickly, yet the ambition here is huge: to stop Oliver’s progressive disease in its tracks, in a one-off treatment.
After a couple of days, Oliver and Jingru fly back to California. Now the family, and the medical team must wait to see if the gene therapy has worked.
In May, Oliver is back in Manchester for crucial tests to see if the gene therapy is working. This time the whole family is here.
We meet in a park in central Manchester and it’s immediately clear that things are looking good.
Oliver is more mobile and inquisitive than I’ve seen him. Admittedly, he now has the freedom to play and is out of hospital, but he appears brighter and healthier.
Ricky is thrilled: “He’s doing really well. We have seen him progressing in his speech, and mobility. In just three months he has matured.”
The really big news is that Oliver has been able to come off the weekly infusion of the missing enzyme.
“I want to pinch myself every time I tell people that Oliver is making his own enzymes,” says Jingru. “Every time we talk about it I want to cry because it’s just so amazing.”
She tells me he is “so different” from before the treatment, is talking “a ton” and is engaging more with other children.
It is lovely to finally meet five-year-old Skyler who is very protective and caring towards his younger brother.
“My wish upon the star is for Skyler, to be able to get the same treatment,” says Ricky. “It feels like Oliver has got a reset in his life, and I want the same thing for Skyler, even though he’s a bit older.”
Initially it was thought that Oliver was too old for the trial, as the treatment cannot reverse existing damage, but tests showed he was still largely unaffected.
Skyler seems to take delight in the world around him, and is keen to hold my hand and chat as we walk to the park.
Ricky explains that Skyler has delayed development in speech and motor skills, but is undergoing infusion therapy, which gets the treatment to his body, but not his brain.
Oliver returns to Manchester every three months for a few days of follow-up tests.
In late August, further checks confirm the gene therapy is working.
Oliver is clearly thriving, and to date is now nine months post treatment.
Prof Jones, whom Oliver calls Santa because of his white beard, is beaming: “Before the transplant Ollie didn’t make any enzyme at all and now he’s making hundreds of times the normal amount.
“But more importantly, we can see he’s improving, he’s learning, he’s got new words and new skills and he’s moving around much more easily.”
However, Prof Jones exercises a degree of caution: “We need to be careful and not get carried away in the excitement of all this, but things are as good as they could be at this point in time.”
On the rooftop garden at the hospital, Oliver plays with his dad.
“He’s like a completely different child. He’s running around everywhere, he won’t stop talking,” says Ricky.
“The future for Ollie seems very bright and hopefully this means more kids will get the treatment.”
In all, five boys have been signed up for the trial, from the US, Europe and Australia. None are from the UK as patients here were diagnosed too late to qualify.
All the boys will be monitored for at least two years. If the trial is deemed a success, the hospital and university hope to partner with another biotech firm in order to get the treatment licensed.
Prof Jones says the same gene therapy approach is being applied to other gene disorders.
There are similar treatments on trial in Manchester for MPS type 1 or Hurler syndrome and MPS type 3 or Sanfilippo syndrome.
Ricky and Jingru say they are “eternally grateful” to the Manchester team for allowing Oliver to join the trial.
They say they are astonished by his progress in recent months.
Oliver’s now producing the missing enzyme and his body and brain are healthy.
“I don’t want to jinx it, but I feel like it’s gone very, very well,” says Ricky.
“His life is no longer dominated by needles and hospital visits. His speech, agility and cognitive development have all got dramatically better.
“It’s not just a slow, gradual curve as he gets older, it has shot up exponentially since the transplant.”
Researchers at the University of Manchester led by Prof Brian Bigger had spent more than 15 years working on creating the gene therapy for Hunter syndrome.
In 2020 the university announced a partnership with a small US biotech company Avrobio, to conduct a clinical trial.
But three years later the company handed back the licence to the university, following poor results from another gene therapy study and a lack of funds.
The first-in-human trial, which would soon help Oliver, was in jeopardy before it had even begun.
Prof Jones: “We had to move very quickly to try to save the whole idea and find another sponsor and another source of funding.”
It was then that British medical research charity, LifeArc, stepped in, providing £2.5m of funding.
CEO Dr Sam Barrell said: “A huge challenge for the more than 3.5 million people in the UK living with rare conditions, is getting access to effective treatments – currently 95% of conditions have none. “
The Chu family are relieved the trial didn’t come to a halt and now hope Skyler may one day benefit from the same gene therapy as his brother.
“I would walk to the end of the earth, backwards, forwards, upside down, barefoot, to make sure my kids have a better future,” says Ricky.
🪺👛👨🏼🦼👨❤️💋👨🥰🥰
Designer Told ‘Disabled People Don’t Need Fashion’
A designer who was told “disabled people don’t need fashion” says she felt so angered that she now has an adaptive clothing firm, which appeared on the catwalk at London Fashion Week.
As a student, Hanan Tantush was showcasing customised clothing for disabled people as part of her coursework – after seeing her grandad’s struggles following cancer surgery – when she heard the comment.
“That sentence made me so angry,” she says.
The 23-year-old, from Chester, says she believes the fashion industry has “evolved” but “disability is still treated as a niche”.
Her response was to build up the adaptive fashion firm Intotum – Latin for “as a whole” – which she platformed at London Fashion Week earlier this year.
‘Empowered not pitied’
The idea had been some years in the making after Hanan noticed her grandad Michael Myers struggle to find trousers he could wear with his stoma bag.
“Every pair of trousers rubbed against it or pressed on the bag,” she says.
“The only thing he could wear without pain was jogging bottoms and he hated how they looked.”
Her grandad had been a Merchant Navy engineer who wore his uniform with pride, she says.
“Every memory I have of him is of him looking sharp. Trousers pressed, shirt tucked in, shoes polished.”
But the stoma bag, she says, was affecting his lifestyle, accessibility and clothing.
“He’d often say how difficult it was to manage his stoma bag in public toilets, especially at football, and over time he stopped playing bowls for the same reason – something he’d done for 40 years.
“Seeing clothing strip away his confidence like that broke something in me.”
Hanan has since been involved in making and promoting stylish clothes tailored for people with different disabilities and neurodivergences, saying she wants them to “feel empowered, not pitied”.
About 17 million people in the UK have a disability – a quarter of the population, external – but Hanan says “disability is still treated as a niche”.
“When big brands launch ‘adaptive’ lines, they’re often just tracksuits in different colours,” she says.
“People tell me they want to feel stylish, to walk into a room and be seen for their outfit, not their condition.”
Items included wheelchair trench coats and capes, side-opening trousers and clothes with magnetic or Velcro fastenings instead of buttons.
After her grandad’s experiences, there are also items with discreet pockets for stoma bags.
“He tells everyone about my business. He knows he inspired it all,” she says.
Hanan wants to broaden her collections and eventually have branches in stores, saying: “Fashion – the very thing that should help us express who we are – has shut out an entire community.”
She says increasing the ability for disabled people to “dress without thinking twice about what they can or can’t wear” has prompted customers to contact her.
Some of those who have got in touch have told her “it’s the first time they’ve dressed independently in years”.
“That’s what success looks like,” Hanan says.
Man With CP Fundraises For AAC Technology After ITV News Report
Kind-hearted viewers of ITV Granada Reports have helped raise enough funds for a life-changing piece of technology that will allow a Liverpool fan with cerebral palsy to communicate like never before.
Ryan Edwards, from Wallasey, has required round the clock care and a breathing machine his entire life, but his family say that’s never stopped the “bright and funny” 32-year-old from being the happy person he is.
His younger sister, Samantha Edwards, said: “He’s got the most gorgeous smile. People say they wish they could just bottle up his laugh and it could be given out to everyone. He’s got such an aura about him that everyone deserves to see.”
Ryan is non-verbal and his family rely on visual cues to understand what he needs, but that all changed when he took part in a trial for a communication device that allowed him to control a computer with his eyes and have it speak aloud for him.
Samantha said: “In that time it was fantastic. He was able to tell us he loves us, he was able to tell us what he wanted to do, even things like watch TV. We were absolutely amazed.”
But after the three week trial, Ryan’s family were told he doesn’t meet the criteria for funding to keep the equipment permanently.
Samantha said: “It’s really frustrating… but we woke up one day and just thought you know what? We’re going to get it. We’re going to fight for it.”
Ryan’s family set up a fundraiser to secure the £12,000 they need to pay for a permanent Smartbox eye gaze communication device.
Hundreds of people donated money, exceeding the target by more than £5,000 after Ryan’s story aired on Tuesday evening.
Reacting to the news, Samantha said: “We are over the moon. We didn’t honestly expect anything near what’s happened, it’s amazing.
“We’ve been crying for the past hour, not knowing what to do, shaking. Honestly we couldn’t thank people enough, everyone’s been so generous.”
Samantha has dedicated herself to helping Ryan as a member of his 24 hour care team, and says the device will change everything.
Samantha said: “It will open his world completely. Just being able to communicate as any 32 year old adult would. He’s got so much in his brain that needs to get out, but he can’t without this technology.
“There’s such an opportunity to express his thoughts. Being able to know the littlest things will change everything for him.”
Ryan’s family now hope they will be able to buy the device to allow him to share his happy personality with even more people.
“We never thought it would happen,” Samantha added. “It doesn’t feel real.”
And she had a special message for viewers: “You’ve made Ryan’s Christmas. For Christmas he’s going to have his voice. Thank you so much.
“We’re absolutely flabbergasted.”
London Marathon Will Be My Everest, Says Hampson
Taking on the London Marathon will be “my Everest”, says former England rugby player Matt Hampson.
He was an up-and-coming 20-year-old prop at the Leicester Tigers when he was left paralysed from the neck down after a scrum collapsed in a training session with the England Under-21 squad in 2005.
He set up the Matt Hampson Foundation six years later to support and rehabilitate other young people seriously injured through sport.
Now Hampson, of Oakham, in Rutland, is planning to raise £100,000 in the 2026 London Marathon, using a specialist racing chair pushed by a team of runners.
He said the money raised would support his foundation and expand its Get Busy Living Centre near Melton Mowbray.
“London is my chance to raise funds for the foundation and also to raise awareness of what we do and who we support,” he said.
“The pressure’s on, because I’ve set a time to get under five hours, so it’s hopefully a realistic target.
“I’ve weighed up the options and weighed up the risk of the challenge, and I think it’s worth that risk.”
Hampson, 41, said: “I want to practice what we preach here, which is get busy living, and we’ve got so many beneficiaries who inspire me every day.
“I want to raise awareness of the foundation, and raise vital funds to keep us up running and doing what we do.”
He said he was excited to see and feel the specialist racing chair, adding: “I always need a challenge and I always need something to channel my energy into – and this is it.”
Hampson will be trained alongside his team, which includes a longstanding member of his care team, as well as a personal trainer from the foundation and two of his best friends.
Due to him being on a ventilator in order to breathe, a number of precautions will need to be in place during the race.
Tilly Cummings, clinical lead at the Matt Hampson Foundation, said: “If his ventilator pops off, he can’t breathe for himself, which obviously is fairly critical. So they will have to run with a backup ventilator as well.”
Ms Cummings also said Hampson would face the risk of pressure sores and would need to maintain his body temperature or risk autonomic dysreflexia – a condition which can increase the risk of brain haemorrhages and strokes.
AI To Help Improve Technology For Disabled People
People with disabilities who use technology to communicate and carry out everyday tasks say they want it to become more personalised and versatile.
Students at National Star College in Gloucestershire met executives from a global tech company to talk about how AAC (Augmentative and Alternative Communication) devices can improve.
Aid Holmes told the delegates from Smartbox that he used to hate his AAC as a child, but it has since become an essential part of his life.
“Now I take my AAC everywhere I go because I feel naked without it. It would be like someone ripping your voice box out of your body. This is my voice.”
Mr Holmes said a simple solution that would make a big difference would be an AAC device which lasts for 24 hours, “so I can talk all day without charging”.
AACs are varied but many work by people programming phrases using a screen.
It can then create phrases using an artificial voice, operate computers and apps or control devices where they live.
Hannah Hadley has cerebral palsy and controls her device using what is known as Eye Gaze – which tracks her eye movements to navigate the screen.
She told the panel that she would like an app to run her a bath for a sense of independence, and to use her device to pursue her dream of designing adapted fairground rides for disabled people.
Emily Harris, speech and language therapist at National Star College, says despite their transformative life changing potential, the speed of using the equipment is restrictive.
“They’re very difficult to use,” she said. “They’re often slow, and so trying to bridge that gap between a typical conversation – in terms of speed and content – and the equipment that the AAC users have available to them is the next big challenge that would make a huge difference.”
As technology develops, experts say the ability of working faster, having increased autonomy and independence will be helped by artificial intelligence (AI).
Dougal Hawes, the CEO of SmartBox, said: “AI is often seen or viewed with fear but in our world AI is a real force for good.
“We were talking to students about tools that will really speed up their rate of communication so you help them with correcting their typing, help them use acronyms to say things quicker.
“We also use an AI technology for voice cloning so people can get a personalised voice that sounds like them and where they’re from in the country, their age and it really reflects them and their personality so that is now a feature of our products.”
Andy Perrygrove uses technology that tracks a dot on his glasses to play the guitar and he regularly joins in at open mic nights in Gloucester.
His key worker, Dave Stokes, says it can go further.
“Andy’s always been a fan of music so to be able to engage in music, something that he’s not really been able to do because of his disabilities, has opened up so much for him,” he said.
“He’s using it to sing as well – it can translate what he’s doing using AI to actually create a voice and singing lyrics as well, which is phenomenal.”
Chief operating officer of Talk To Me Technologies in the US, Kate Dunning, said what they heard means that they have to keep challenging themselves and making technology even more personalised.
“Never automating for automations sake,” she said.
“Always thinking about that end user and using the idea of ‘what do they have to say’ and ‘how will they best to say it’.”
The family of Birds of a Feather actress Pauline Quirke have spoken of their “disbelief” at her 2021 dementia diagnosis.
Although the family are unsure what stage she is at, they said: “She’s still funny, she’s talking, she’s happy.”
Despite being “very private”, they told BBC Breakfast they wanted to raise awareness and funds for the condition.
“My mum has always been a charitable person. It’s what she would want me to do,” said her son, Charlie Quirke.
Best-known for playing Sharon Theodopolopodous in long-running sitcom Birds of a Feather, 66-year-old Quirke was also nominated for a Bafta in 1997 for playing a convicted murderer in BBC drama The Sculptress.
In 2022, she was made an MBE for services to the entertainment industry, young people, and charities.
But earlier this year her husband, Steve Sheen, who she married in 1996, had to announce her retirement.
This ended both her 50-year acting career, along with her role as head of Pauline Quirke Academy of Performing Arts, which has about 250 academies, and more than 15,000 young students across the UK.
Steve said they first got an inkling something might be wrong with Quirke in November 2020, after she received a script.
“She started reading it and she phoned me on that day and said, the words are not going in. That’s where it started,” he said.
Their reaction after the diagnosis was “disbelief, really”.
“We looked at each other and went, ‘Can’t be, it’s long Covid. Got the flu’.”
Charlie added he was “quite surprised that this was possible in a woman in her 60s, and it can happen to people in their 50s, people in their 40s, so it’s something you have to deal with and learn about”.
Dementia is described as “young onset” when symptoms develop before the age of 65. It most often develops in people between the ages of 45 and 65 but can affect people of any age.
Asked what stage Quirke is at in her dementia journey, Steve said: “We don’t know. She’s still funny. She’s talking. She’s happy.”
“Is it four years, eight years, 10 years, 12 years, 20, who knows?”
Charlie added: “And that’s the problem, no one tells you.
“My mum knows exactly who we are. Every time she sees all of us, she smiles, laughs, says ‘I love you’, says ‘hello’.”
They spoke about why they were sharing their experience, and what they had learned so far.
“Unfortunately we are not in the state where we can do much about it,” Steve said.
“Just take every day and try and take the best moment out of that day you can.
“It’s a long journey. If we can just help a little bit by using Pauline as the catalyst to make more people aware, then we should, to use her to boost awareness and raise funds for dementia research.”
Steve said the impact of the condition hit them slowly.
“It’s so gradual that for the first year, two years, you’re thinking, ah, she’s alright.
“Now, we’re three or four years in, it’s a little bit different. This is why awareness is important. We didn’t know how long it lasts or how long you have with it, or how bad it is or how quick it is.”
Charlie added that it “progresses and changes every day, but so do we – we change and progress, and so we’re forever learning”.
The NHS website states dementia is a syndrome (a group of related symptoms) “associated with an ongoing decline of brain functioning”.
Next month, Charlie is doing a fundraising walk for Alzheimer’s Research UK, going 140 kilometres to places that shaped his mother’s life, including homes she has lived in, theatres and TV studios she has worked at.
It will also include the Buckinghamshire headquarters of her children’s drama academy.
“This is my mum’s legacy,” he said.
“This is going to be one of the stops on my trek, because she wanted to nurture the next generation of young actors.”
Steve paid tribute to his wife, saying: “What you see is what you get. Loving. Brilliant. She’s an iconic actress because her talent is immense.”
Charlie added: “She is an incredible, strong, courageous woman that’s been through a lot and she keeps going.
“She’s a fighter and it’s incredible to see, yeah, very proud of her.”
Australian Paralympic Gold Medallist Paige Greco Dies At 28
Australian Paralympic gold medallist Paige Greco has died at the age of 28.
The para-cyclist, who clinched her country’s first gold medal at the Tokyo 2020 Paralympic Games, died on Sunday at her home in Adelaide after a “sudden medical episode”, said AusCycling, the sport’s national governing body.
Greco’s family is “devastated by her loss, [but] incredibly proud of the person she was and the way she represented Australia”, her mother Natalie said in a statement published by AusCycling.
“Paige meant everything to us. Her kindness, her determination and her warmth touched our family every single day,” Mrs Greco said.
Greco, who had cerebral palsy, started out as a track-and-field athlete before turning to cycling in 2018.
Throughout her career, she won several World Championship titles and World Cup medals.
At the Tokyo 2020 Paralympic Games she broke the record for the women’s C1–3 3,000m individual pursuit, a track event where cyclists race head-to-head on opposite sides of the track.
She went on to win bronze medals in the women’s C1-3 road race and time trial at the Games.
Greco sat out of selection rounds for last year’s Games held in Paris because of health issues, but returned to elite competition this year, The Guardian reported.
In August, she won another bronze medal at the para-cycling World Championships in Belgium, this time for the C3 road race event.
Tributes poured in from various corners of Australia’s sporting community following news of Greco’s death.
AusCycling’s chief executive officer Marne Fechner called her an “extraordinary athlete who achieved outstanding accomplishments at the highest levels of [the] sport”.
“Much more than that, she touched the lives of everyone around her with her positive spirit and courageous outlook,” Fechner said.
Paralympics Australia’s chief executive officer Cameron Murray said “Paige’s achievements on the international stage were exceptional, but it was her kindness, her quiet determination and the way she uplifted people around her that will stay with us all”.
“She had a rare ability to make people feel included and supported, and her influence will no doubt leave a lasting impression on so many,” he said.
Strangers Mocked Me In My Wheelchair For ‘Tongue Out’ Trend On TikTok. Nobody Intervened
“Stop them!” I shouted, as I sped through London’s Finsbury Park station in my electric wheelchair. I was surrounded by commuters. Nobody intervened.
I had been travelling alone and was checking my route home in a passageway, when suddenly I felt someone looming over me.
I’d looked up to find a man standing inches from my face, staring down at me. He was motionless, and looking me dead in the eye. I froze – I thought I was about to be mugged.
The man smirked, stuck out his tongue, and pulled a vacant expression. Then I noticed someone was filming me from behind. As I spun around in my wheelchair, more of their group joined them through the turnstiles.
Furious, I gave chase, hoping to make them delete the video. But just as I got close, the men ran up a stairwell, laughing. That was the last I ever saw of them.
I’d become the latest victim of the “tongue-out” TikTok prank, where people stick their tongue out at strangers while pulling a face, and film their reaction – but this time twisted to mock me for my disability.
The situation felt familiar. A year ago, I wrote about facing TikTok-inspired disability harassment from school kids who shouted “Timmy” at me outside my local train station.
This referenced a disabled character from satire series South Park, who uses a wheelchair and can only shout his own name, usually loudly and uncontrollably. Revived on TikTok decades later and stripped of comedic context, mimicking Timmy has again become a way to mock disabled people.
That time I chose to call the kids out directly in conversation – hoping it could be a learning experience to challenge their prejudices.
This time, in Finsbury Park, I took action.
Fed up of feeling powerless, I immediately reported the incident as a hate crime – now defined in the UK by law to include perceived hostile acts toward protected characteristics like disability.
The British Transport Police (BTP) confirmed my experience was similar to a spate of other incidents that seemed to have been fuelled by the TikTok craze.
People being targeted in person by those chasing online clout is an area of “growing concern”, according to Ciaran O’Connor from the Institute for Strategic Dialogue (ISD), a think tank focusing on online hate.
He says social media algorithms “prioritise shock, confrontations and adversarial encounters” – or, as many of us know it, “ragebait” – over empathy.
Online hate ‘to go viral’
The original tongue-out TikTok prank, copied by the men who targeted me, isn’t quite as sinister as you might expect. It was popularised by young US influencers like Pink Cardigan this summer, who amassed millions of likes by staring, tongue out, at bemused customers through shop and diner windows, external.
The comedy hinges on the reactions of people who “aren’t in on the joke”, explains Aidan Walker, whose videos about internet culture have amassed millions of views on TikTok. The tongue-out trend, like many of its kind, began as something “obnoxious and inconsiderate, rather than inherently hostile”, he says.
When I was harassed, the adult men, seemingly in their early 20s, chose to use the trend to mock disability – perhaps to set apart their upload. They likely “performed with the intention to go viral”, adds Mr O’Connor.
I am yet to find footage of my incident uploaded to TikTok, or other social media platforms – but this does not diminish the likely intent.
TikTok says the vast majority of content uploaded of the trend is not targeted or hateful and therefore does not violate its policies.
The platform’s community guidelines prohibit hate speech, hateful behaviour, or promotion of hateful ideologies, including discrimination on the basis of disability.
When BBC News reported a video of teenagers appearing to target a man with Down’s syndrome by adopting the tongue-out pose outside his window, moderators removed the video.
Reluctance to report
Mr O’Connor says viral trends have been twisted to target other minority groups too, including LGBTQ+ people and migrants, with content creators motivated by an endless hunt for engagement.
Home Office statistics, external for England and Wales show hate crime continued to rise this year, driven by racial and religious offences.
While recorded disability hate crime fell by 8% in 2025, this follows sharp rises in recent years, and disability charities warn of a distorted picture.
The Crown Prosecution Service (CPS) last year described disability hate crime, external as one of the “most pervasive and under-reported” forms of discrimination.
The apparent fall in disability hate crime reports reflects “a lack of confidence in reporting, not a reduction in hostility”, says Ali Gunn from disability charity United Response.
The charity’s research suggests, external just 29.9% of disabled people report crimes against them, with only 2% of public order offences resulting in convictions – the lowest of any minority group.
I experienced these difficulties first hand when reporting my incident. Despite the definition of disability hate crime covering a broad range of perceived hostile acts – far beyond verbal abuse – I was initially told the case would not be pursued because CCTV would not have audio and no ableist or derogatory language had been used.
I pushed back – emphasising the targeted intimidation of being surrounded in my wheelchair, and asked whether the CCTV had been studied. It was only then my case was re-opened and taken on by another officer.
The footage has since been analysed, with stills of the suspects passed on to BTP’s investigative team.
TfL apologised for the incident and the way BTP initially handled it. TfL commissioner Andy Lord wrote to me to express his disgust at the harassment I faced and affirm TfL’s commitment to improving the reporting and awareness of disability hate crime.
Journey to change?
The need to tackle hate crime on and around public transport is clear. TfL data shows overall hate crime reports on its services rose 39.7% between 2022/23 and 2024/25, with a slight drop between 2023/24 and 2024/25.
Last month, comedian Rosie Jones, who has cerebral palsy, had wine thrown over her during what she described as an “ableist and homophobic attack”, external on the train home from a gig with fellow comic Lee Peart.
“They mocked our voices, shouted slurs at us and even threw a wine bottle (plastic, thankfully),” Jones wrote in a post on Instagram. “It was a stark reminder that my cerebral palsy makes me stand out, and is often used as a weapon against me.”
Since my experience at Finsbury Park, what has stayed with me, perhaps more than the filming, is how passersby failed to step in.
It made me realise that bystanders can feel incredibly conflicted about taking action.
It is this hesitance to step in that lies at the heart of TfL’s new Act Like A Friend campaign, which encourages passengers to strike up a conversation with the person being targeted, and behave as if they know each other.
The network encourages customers to report all incidents they believe are motivated by hate and hostility to the police, including hate filming.
“Everyone deserves to be and feel safe when travelling on our network,” says Siwan Hayward, TfL’s director of security policing enforcement. “The behaviour that Alex describes is deplorable”.
United Response’s Gunn called hate filming a growing and deeply distressing trend for disabled people.
He urged social media companies to “strengthen moderation” around viral challenges by improving systems for victims or their advocates to flag harmful content.
This includes not only removing offending content, but ensuring users who post it face tougher sanctions.
“Being mocked or secretly filmed strips people of dignity and reinforces the message that public spaces aren’t safe or welcoming,” he says. “These incidents sit alongside more overt forms of disability hate crimes and share the same underlying problem of hostility and exclusion.”
Four months on from what happened, I am quite dispirited. While I’m pleased I took action as far as I could, the harassment I’ve experienced in recent years has left me acutely aware that the fight now takes place on two fronts – online and in the real world.
So, what to do? Clearly, there needs to be bigger-picture change to tackle hate in either sphere. But on an individual level, nothing is more powerful than looking out for each other, beyond screens. Hate thrives on invisibility.
gift list
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QEF To Close After 90 Years
A charity supporting people with disabilities, which was opened by the Queen Mother (then Her Royal Highness the Duchess of York), has announced it will close after more than 90 years.
The Queen Elizabeth’s Foundation for Disabled People (QEF), in Leatherhead, was founded in 1934 by Dame Georgiana Buller and Stanley Evans, and supports nearly 10,000 people a year.
The charity said in a statement: “It is with immense sadness and regret we inform you that QEF will commence a wind down programme from 11 November.
“We have worked tirelessly over the last year to try and save the charity and improve its finances.
“Unfortunately there wasn’t a viable solution that met all the necessary requirements to overcome the challenging financial situation QEF faced.”
The charity added the wind-down programme was expected to take 28 days to allow time for alternative placements to be located for residential clients at its Care and Rehabilitation Centre.
Following this, the charity said QEF intended to file for administration.
“It has been our privilege to support disabled people for more than 90 years, providing expert services that have changed many lives, and we are deeply saddened that it cannot continue,” the charity said.
‘Cornerstone of our community’
Helen Maguire, MP for Epsom and Ewell, said she was “deeply saddened” over the closure of QEF.
“QEF has been a cornerstone of our community in Leatherhead, offering wonderful care that has seen thousands of people rebuild their independence,” she said.
“I saw first-hand the incredible work of their staff when I visited earlier this year, and my thoughts right now are with them and their clients during what will likely be a very difficult time.”
Maguire added she was in contact with the charity to “seek urgent clarity on the implications of the closure”.
‘My Son, 4, Has Childhood Dementia – I’m Heartbroken’
The mother of a four-year-old boy has said her “heart is broken” after he was diagnosed with a form of childhood dementia.
Tammy McDaid, from Swansea, said her son Tate has Sanfilippo Syndrome and is not expected to survive to adulthood.
She has set an £11,000 fundraising target for her “handsome little man” to potentially take part in clinical trials abroad in the hope of slowing the development of the disease.
Tammy, 33, said her main focus was on making precious memories with her son, as there is currently no cure for his condition.
Sanfilippo Syndrome Type A, also known as Mucopolysaccharidosis type III (MPS III), causes the gradual loss of abilities, such as walking and eating.
Because of its neurodegenerative nature, Sanfilippo Syndrome is often called “childhood Alzheimer’s” or “childhood dementia.”
According to the Society for Mucopolysaccharide Diseases (MPS Society), a charity which helps children living with Sanfilippo Syndrome, about 140 children in the UK have the condition.
Tate, who has always been non-verbal, was diagnosed with autism at the age of two.
“Deep down I always suspected there was something more,” said Tammy.
Tate underwent an MRI scan in March 2024, when medics found spaces in his brain which were a sign of dementia, Tammy said.
He was then referred to Noah’s Ark Children’s Hospital in Cardiff, where the MPS III diagnosis was made.
She added that her “little sidekick” made her “a very proud mum”.
“From day one he really has been the most happy and content little boy,” she said.
“He enjoys the simple things in life and he has the most contagious smile.
“I am so blessed and proud of him. Even though he can’t talk, he hugs and kisses me.”
Tammy said Tate loves to run and climb, and she hoped clinical trials “can slow down the regression of [Tate’s] mobility, as that is what is going to hit me the hardest”.
“He could climb before he could walk. I just want him to be able to do this for as long as possible,” she said.
“My handsome little man won’t live to see his 18th birthday. My heart is broken and honestly, I am one drained mumma.”
After setting up a GoFundMe page and receiving thousands of pounds within days, Tammy said it was “the first time in a long while I have felt hope”.
“This time last week I couldn’t talk about him without crying,” she said, adding she was grateful for the support of the Ty Hafan children’s hospice and the local community.
Tammy said she had contacted the Cure Sanfilippo Foundation to see if Tate could be accepted on to any clinical trials abroad.
She said she “didn’t have time to waste” as she had been told that children with the condition can start to deteriorate from the age of five or six – and Tate turns five at the end of this month.
“I got the diagnosis and got told basically to come back when he starts deteriorating because there is nothing they [medics] can do,” said Tammy.
“The next year is quite critical in Tate’s life as it’s around now that things start to show.”
If Tate is not accepted on to a trial, Tammy said she wanted to use the money raised “to travel to as many countries as possible with him”.
Ahead of World Sanfilippo Awareness Day on Sunday, she said she also wanted to raise awareness of the condition, as both she and Tate’s father carried the Sanfilippo syndrome gene.
Call To Create Official Register Of Assistance Dogs
Groups representing assistance dog users are calling for “stronger legal protections” to protect disabled people who say they are being discriminated against in public spaces.
Campaigners, lead by Assistance Dogs UK (ADUK), say they are often refused access to shops, restaurants, public transport and other services because of their assistance dogs.
Vicky Worthington, executive director of ADUK, said: “Current laws fall short of providing the clarity, protection and consistency needed to ensure fair treatment.”
A government spokesperson said it was illegal for a premises to refuse entry to someone with an assistance dog “with very few exceptions”.
Garry Botterill, a former Sussex Police officer and founder of Service Dogs UK, said there should be a mandatory assistance dog register to give bars, restaurants and other facilities the reassurance that they are legitimate.
“The definition of assistance dogs isn’t great in law, there is no requirement for people to train their dogs to a high standard, to be under an umbrella organisation,” he said.
Mr Botterill explained that people will buy jackets for their dogs to make it appear as though they are service animals.
“That makes it really difficult for service providers to recognise what is a well-trained assistance dog and what is someone utilising something from the internet to make their dog looks like an assistance dog,” he said.
Jordan Chapman, who lives in Coulsdon, Surrey, is a British Army veteran and paramedic who has been partnered with PTSD assistance dog Teddy for three years.
He agrees there should be a database of assistance dogs.
“We have to be sensible with how we apply that, but absolutely there should be a national register to meet a minimum standard of training,” he said.
Mr Chapman explained how he was refused entry to a restaurant, which he regularly visited before having Teddy, because of their dog policy.
“Unfortunately, that’s just a normal thing,” he said.
Toni Brown Griffin, from Tunbridge Wells in Kent, said she was sometimes “shadowed” by security staff when walking around stores or has been refused entry to certain premises altogether.
“It can be quite intimidating,” she said.
Ms Brown Griffin said there was an increasing problem with pet dogs making a nuisance of themselves to working dogs.
She said businesses react to poorly-trained dogs “yapping and weeing” by banning all dogs.
Research from Assistance Dogs International and the International Guide Dog Federation found 43% of assistance dog handlers were refused access to a premises in the past year and 65% reported problems caused by dogs misrepresented as assistance dogs.
Campaigners are heading to parliament on Tuesday to ask the government to strengthen legislation, including by “clearly defining assistance dogs in law, ensuring consistent expectations for training, behaviour and welfare”.
ADUK said it wanted legislative change, but was not calling for a register at this time.
The government spokesperson said: “No one deserves to be held back or treated unfairly because of their disability and the Equality Act 2010 protects everyone against discrimination and ensures disabled people have the right to be treated equally.
“It is illegal to refuse entry to a disabled person with an assistance dog – with very few exceptions.
“Where individuals are concerned they have been a victim of discrimination, there is advice available through the Equality Advisory and Support Service.”
Geoff Holt Awarded Honorary Degree
A record-breaking disabled sailor paralysed at the age of 18 after diving into shallow water has been presented with an honorary degree.
Geoff Holt MBE, from Wallington near Fareham, Hampshire was the first quadriplegic sailor to cross the Atlantic and went on to set up Wetwheels, a charity that provides specially-designed accessible boats to disabled people.
Bournemouth University said the Honorary Doctorate in Business Administration was in recognition of his courage and resilience in rebuilding his life.
At a graduation ceremony held at the Bournemouth International Centre Mr Holt said it was a “tremendous honour…it’s just wonderful to be recognised”.
After the graduation ceremony Mr Holt said: “It’s just wonderful to be recognised not just for me but for my wife too who is part of my team.”
Mr Holt credits his achievements to his wife Elaine. They met while she was working as a nurse at the hospital where he was treated following his accident.
His advice to students was to focus on what you can change, rather than get bogged down in what you can’t.
He said: “To use a nautical metaphor, it’s about the journey. Things change at sea, the weather changes, the sea state changes and that can be said about the world we live in.
“Things change, and you have to be able to adapt.”
During the 40 years since his accident, Mr Holt has earned numerous honours, including an MBE for his work in disabled sailing, a BBC South Sports Personality of the Year award, and the Stelios Award for Disabled Entrepreneurs.
He circumnavigated Great Britain in a power boat in May-June 2024 and continues to inspire and support others through his involvement with the RNLI and RYA Sailability.
Please Support Us, Deaf Athlete Urges Government
A north London footballer is pleading with the government to help give deaf athletes the same opportunities as other athletes.
Lucindha Lawson from Crouch End is due to represent Great Britain in the 2025 Deaflympics in Tokyo next week – the deaf equivalent of the Olympics – after raising the £4,000 entry cost through donations.
Unlike Olympic and Paralympic athletes, Deaflympics competitors are not eligible for grants and must self-fund their participation.
The government said it was “dedicated to making sport in this country accessible and inclusive for everyone, including deaf people”.
‘Very stressful’
Lawson has represented her country four times at the Deaflympics, a multi-sports event for elite deaf athletes who compete at an international level that takes place every four years.
Speaking to BBC London before reaching her fundraising goal, she said it was “stressful” and “difficult” to raise the money needed to compete.
“We have to ask local communities, charities, businesses to try and raise the money ourselves,” she told BBC London.
“It does affect my career in football.
“It’s very stressful, I am always thinking about the financial aspect, so I might forget about training and it might steer me off the wrong way, whereas if I didn’t have the financial constraints I could just continue (with football).”
She said UK Deaf Sport was going to pay for her to take part, but she would be required to pay back the sum it spends or face being barred from future events.
“I would have to make a repayment plan and pay it out of my own pocket, which really I shouldn’t have to do,” she said.
“I’m representing my country so it’s really disappointing.”
Although she is “really proud” to represent Great Britain, she said she felt “in bit of a trap”.
Being deaf, she is not permitted to take part in the Paralympics and therefore she cannot apply for funding.
Lawson urged the government to “please support us”.
“The Deaflympics is really important to the deaf community,” she said. “This was set up before the Paralympics… but it doesn’t seem like it’s recognised by the government, or world federations.
“Why aren’t we getting funding, because we should all have the same equal opportunities?”
‘Shameful’
Funding for UK Olympians and Paralympians primarily comes from UK Sport, which distributes government and National Lottery money to national governing bodies.
Athletes then receive individual funding through these programmes.
However, there is currently no funding for elite deaf athletes in the UK.
UK Deaf Sport chief executive Chris Ratcliffe told MPs this month it was “shameful” that deaf athletes were missing out on funding.
The government said it could not provide extra funding to high-performance athletes outside of what it already gives “to support Olympic and Paralympic success”.
But it said it did provide £1.2m each year for grassroots activities in deaf sports.
Winter Canal Boat Trip with Friday Club
Balls With Wacky Wheels
Campaign Aims To Help Deaf Children Access Football
A grassroots football club has started a campaign to raise awareness of the inclusion of deaf children in the game.
HS Sports, run by Harvey Scholes in Swindon, has made minor adjustments to its communication, which has allowed two young players to play alongside their hearing team-mates.
The campaign has been backed by Swindon Town FC manager, Ian Holloway, who said “it’s about time”, adding there is “no reason a deaf boy or girl couldn’t end up playing top flight football”.
Mr Scholes, who wants other clubs to follow their lead, said he wanted to share the journey of “talented” Stanley and Jacob to show what is possible.
Nine-year-old Stanley was born deaf and received cochlear implants at 14 months old. He plays for three teams, including the England deaf football team.
“I want to get to the level they [Premier League players] are, and work harder and harder,” he said.
He plays alongside Jacob, 10, who wears hearing aids and also plays for three teams – and dreams of playing in the Premier League.
Jacob admitted that it can sometimes be difficult on the pitch with information coming from all directions, but that it has not affected his love for the game.
“Sometimes you mishear your coach, or your players, and sometimes what you need to do,” he said.
They feature in a video made and shared on social media by Mr Scholes, and which has been viewed thousands of times.
Jacob’s dad, Aarron, said he hopes this will stop talented young players with hearing loss being overlooked.
“The looks he gets due to having hearing aids, what we find is they’re seen as a barrier,” he said.
“Just because he has a disability, it doesn’t make a difference. There’s no inability in his work.”
Mr Holloway, who has three deaf children, said being deaf is “something to be proud of”, but added “unfortunately the rest of the world doesn’t always buy into it”.
He said that provided football clubs approach inclusivity correctly, it should not stop young players achieving their goals.
“You need written things everywhere, so they can point at it,” he said.
“As long as we do it correctly… there’s no reason a deaf boy or girl couldn’t end up playing top flight football.”
hair Saturday with a face mask and all wall sitting in my armchair
Shops Need ‘Mindset Change’ On Disabled Access
Millions of pounds a month are lost by UK shops and businesses because they are not accessible to people with disabilities, according to an awareness campaign.
Purple Tuesday, which says a “mindset change” is needed, is urging retailers to consider new ways of improving inclusion such as adapting sensory experiences for neurodivergent people.
Some 16 million people in the UK have a disability, and 90% of disabled people found their shopping experience was affected by a lack of accessibility, according to the Business Disability Forum.
Mike Adams, the founder of Purple Tuesday, says retailers and others who offer services need to make changes to the way they operate to attract disabled shoppers.
Purple Tuesday trains businesses and organisations to improve their accessibility and inclusion standards in shops, restaurants and public spaces.
Campaigners gathered in Piccadilly Circus in central London to watch the screens turn purple to celebrate Purple Tuesday, which is also marked in several other countries.
Mr Adams told BBC London: “In terms of the disability population, wheelchair users comprise 8%.
“So we need to think about how businesses can support the other 92% – people with mental health, neurodiversity, long-term health conditions – where some of the accessibility changes that are required aren’t physical ramps and lifts but are more mindset changes that actually cost very little or nothing.”
Jamie Kerroosh, chief healthcare officer at Boots’ Piccadilly shop, said the health and beauty retailer had partnered with Purple Tuesday in the past year to make improvements to increase accessibility.
He told BBC London: “We have done British Sign Language training for all of our colleagues – 52,000 people now with a bit more ability to talk to all of our customers, just simple phrases but still showing a warmer welcome.
“We have partnered with Purple to work on some inclusive packaging.
“That means for those customers that have got either physical challenges or those neurodivergent customers, we now have a bit more understanding through some research we did with Purple on how we can make opening products, using products a little bit easier.”
Purple Tuesday, which is in its eighth year, said research from the University of Bristol and the Money Advice Trust revealed the combined spending power of disabled households in the UK is £446bn a year.
Government research published in July on the accessibility of private-sector products and services for disabled people in the UK found that 88% of people with disabilities had to use workaround solutions, external or compromises when accessing retail businesses.
The Business Disability Forum said in its response to the research that businesses “are putting up barriers which prevent more disabled people spending more money with them”.
The advocacy group added: “Adjustments and accessibility here are really about removing a difficulty which gets in the way of someone spending money with a business.
“If the legal and moral case that every human being is valuable and of equal worth in society doesn’t land with businesses, the profit case certainly should.
Footballer Heartbroken Over MND Diagnosis
A woman who has played football since she was a child is calling for more research into potential links between the sport and motor neurone disease (MND).
Stacy Whittle, 37, from Worcester, was diagnosed with MND in July 2025 having started to experience symptoms last September.
Ms Whittle began with neck pain and an inability to raise her arms above her head, and later her breathing became laboured.
She can no longer walk and uses a ventilator at night, and said it was heartbreaking to know she would not be around to see her two children grow up.
Ms Whittle started playing football aged eight, including for West Bromwich Albion when she was 16 as well as several local teams, and only stopped playing in the season before she was diagnosed.
“More and more sporty people and younger people are being diagnosed with it, and to me it seems like there might be a link,” she said, stressing the need for fundraising for more research to find a cure or treatment.
MND is a degenerative condition that affects the brain and spinal cord.
“No family should have to go through what we are… we’re trying to get through every day.”
Given that her children, aged 11 and 16, play football and rugby, Ms Whittle said they had discussed whether she would have played football had she known she might get MND in the future.
“I said I wouldn’t change it, as growing up playing football are some of the best memories that I have, and I absolutely love it.
“It’s just unbelievable that this is happening to me, I’m only 37, my boys are so young.
“It’s hard to deal with the fact that I’m not going to be there for them growing up, it’s heartbreaking.”
Players from her club, Areley Kings Ladies FC in Kidderminster, set themselves a challenge of covering 2,000 miles in October through walking, cycling, running and swimming with an aim to raise £2,000 for the MND Association.
Team-mate Kat Webster said the MND diagnosis had been devastating for Ms Whittle and her family, and they had wanted to do something positive, and raise money and awareness for the charity.
England Win Thriller To Clinch Wheelchair Ashes
Joe Coyd scored a try two minutes from time as England produced a stunning second-half fightback to beat Australia in the final Test and win the Wheelchair Rugby League Ashes.
Australia led 30-18 at half-time, but England scored six tries after the break to clinch the series 2-0 at the Gold Coast Sports and Leisure Centre in Queensland.
England also came from behind to win the first Test 56-28 on Thursday.
Diab Karim opened the scoring for Australia with a try after two minutes of the second Test.
Two tries from England’s Rob Hawkins, who scored a hat-trick in the opening Test, and one from Finlay O’Neill were cancelled out by two Bayley McKenna scores, and Adam Tannock and Dan Anstey tries.
Jack Brown instigated England’s fightback in the second half, scoring twice and setting up two tries for captain Lewis King, who ended with a hat-trick.
Tries from Zac Schumacher and Anstey brought Australia level at 42-42 before England substitute Mason Billington’s cool final pass sent Coyd over for the winner.
Australia host the Wheelchair Rugby League World Cup in 2026.
England and France have dominated the tournament since its inception in 2008, but the ‘Wheelaroos’ showed their development in this series.
‘Lack Of Interpreters Meant I Believed I Had HIV For Two Days’
A deaf man mistakenly believed he had tested positive for HIV because he couldn’t get access to an interpreter in hospital.
Richard MacQueen, a father-of-three from Dundee, was being treated in A&E for pneumonia and misunderstood the nurse when he was given his test results.
The 42-year-old is profoundly deaf and British Sign Language (BSL) is his first language.
He said he had asked for an interpreter in hospital several times.
“My father was there. He was really the only hearing person in my family who was willing to help but he doesn’t have advanced BSL skills at all and I really needed an interpreter,” he said.
“The doctor brought a nurse, who was a very nice person, but she had very basic sign language skills.
“He used her as a communication method and they were talking about my HIV results, and she did this thumbs up sign and I thought, ‘Well what does that mean?’ Does that mean that I have it? That I am HIV positive, or I’m OK because I’m negative?”
Mr McQueen was confused and upset.
“I was worried about whether I had HIV or not, whether I would face a lifetime of treatment, whether I might die from this. I had no idea how I was going to tell my family.”
Richard says it took two days for a qualified interpreter to arrive and explain he had been given the all-clear.
“If an interpreter was provided initially, I would never have had to have gone through all that,” he said.
Richard is now sharing his experience to launch a new app – the first of its kind in the UK – which links deaf people and BSL users with interpreters.
He hopes it will mean mistakes like the one he experienced won’t happen to anyone else.
SignPort, which has been described as ‘Uber for BSL interpreters’, was developed by the Edinburgh-based charity Deaf Action with the support of a Scottish government innovation scheme.
Richard, who took part in a 10-month pilot for the app, says it’s a huge step forward for the deaf community.
“You can use it all the way from the workplace to a wedding. It’s going to make a massive change for us as deaf people. Finally, we can connect directly to interpreters in one place.
“Always in the past we had to consult with a number of different agencies and service providers – email them, search all this stuff out for ourselves, try to contact interpreters direct and you were really in the dark.
“It was very time consuming, very stressful because you never knew if you were going to have an interpreter.”
The new app brings everything into one place. Users can easily see which interpreters are available.
According to Scotland’s 2022 Census,more than 100,000 people in Scotland can speak BSL. And up to a million have some form of hearing loss.
Phillip Gerrard, chief executive of Deaf Action, said the app would be a “game changer” for BSL users.
“Scotland is indeed leading the way in providing this innovative service. Scotland has a really great tradition of innovation in many areas, but especially for the deaf community and by the deaf community.
“This is going to make a huge difference, not only for Scotland but for the whole of the UK, because as soon as the rest of the UK see what’s here they’re going to want the same.”
The app is free to download and use for deaf BSL users and interpreters, with interpreter fees paid by the person or organisation who makes the booking.
It comes after a review commissioned by the Scottish government in 2019 found the struggle to find interpreters wasn’t always due to a shortage of trained professionals, but because the existing booking system was fragmented and time consuming, leading to missed appointments and barriers to education.
SignPort took two years to develop, with Deaf Action working alongside technology firm Burrotech through the Scottish government’s CivTech programme.
The Scottish government is encouraging businesses to sign up to the app.
Deputy First Minister Kate Forbes said: “This app builds on our commitment to make Scotland a more inclusive place for deaf people. It also represents exactly the kind of innovation we want to see through our CivTech programme – technology that transforms lives and removes barriers.
“This app addresses challenges that have persisted for too long. As a social enterprise, SignPort will reinvest in the very communities it serves, creating lasting change beyond improving bookings. This is community-led innovation at its best.”
Blind Women Launch Naked Calendar To Tackle Stigma
A group of blind women have created a nude calendar to challenge the stigma surrounding vision loss and to show they are “normal women, with normal lives”.
The images for the Weston-super-Mare Blind Naked Calendar 2026 feature nude models’ portraits with a filter, to help depict their own vision loss conditions and will raise money for the charity Deafblind UK.
Josephine Boulter, who is Miss August and November in the calendar, said she came up with the idea after someone made a “patronising” comment while she was on holiday in Butlins.
She said: “It was like he was surprised I could have fun. Then it hit me – let’s do a calendar. Something that says, ‘here we are’.”
She said on the holiday a “patronising” person patted her on the shoulder and said, “well done you. You enjoy yourself”.
“I want to raise awareness that people are more than their sight loss, and hopefully raise a bit of money for Deafblind UK too,” she said.
“I’m fiercely independent, [I] take care of myself.”
Ms Boulter said she was unaware of her vision loss until she was diagnosed at the age of 39 with Bonnet syndrome – a condition in which the brain compensates for missing visual information by filling in the gaps.
“We need people to see us for us, we’re really capable, when you can’t do something you find another way, if you can’t accept it – you move forward,” she added.
Rita Coles, who is Miss April, said she was “proud” she featured in the calendar.
“It was nerve-wracking, but it was good fun,” she added.
Rod Cullen, deputy CEO of Deafblind UK, said when he heard the idea, he thought it was “perfect”.
The charity, which supports people living with a combination of sight and hearing loss, said deafblindness affects 450,000 people in the UK.
When describing the calendar, Mr Cullen said he thought it was “fantastic”.
“To cut through and find something that really resonates with people is a challenge.
“I hope this calendar has done that, and it’s a big challenge for next year to find something else to go along with,” he added.





























































































