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Disabilities and the differences between them and how people with these disabilities believe they are perceived by society
Happy Saturday to all!
New fundraising things that I am doing as someone who needs to raise £4,000 for her respite care and support. I am now a creator on TikTok Shop, I now do Tiktok Lives raising awareness for Cerebral Palsy and the disabilities that can be associated.
Raising awareness for the associated conditions that can come along with Cerebral Palsy and the impact of those on unpaid care givers and the lack of respite support and funding.
Goodnight to all my viewers
Fundraising poster
jewellery item of the day for you all
Good afternoon to everyone
tight, making during lockdown another out of lockdown project Zorger of lockdown, project of memories
awful year are Projects memory of art projects during lockdown, and this was one of them
Paralympians Urge Nike To Allow Single Shoe Sales
A Paralympian has criticised Nike for using amputee mannequins to promote its products when it doesn’t sell single trainers.
Stef Reid, a single-leg amputee, said she was only able to buy the company’s running shoes in pairs.
She told BBC Newsbeat companies that portray “an image of diversity and inclusion” should back it with action.
Nike thanked her for raising the issue and said it was “exploring opportunities”.
It added that it hoped to learn from its One Shoe Bank programme, currently only available in the US.
The scheme provides single-leg amputees with one free trainer each year free of charge.
Stef, who has competed at Beijing 2008, London 2012 and Rio 2016, lost part of her right leg in an accident when she was a teenager.
After spotting a pair of Nike trainers in one of the brand’s own stores, Stef, who has competed for Great Britain, says she was told she had to buy both shoes.
When Stef explained her situation, and pointed out that the shop was using one-blade, one-shoe mannequins, she says she was offered “a one-time discount”.
The retired athlete says she has “no problem paying” for her hobby, but can’t understand why she’s paying for a product when she has to “chuck the other half out”.
“I’m still only going to have one foot, so this isn’t a solution. And it’s bigger than me,” she says.
Stef says she doesn’t want “a one-time solution”, but wants to be heard.
“This isn’t just about me. They said they were going to take it to higher up.
“I just want a conversation with Nike.”
‘Finding a sole-mate’
British Paralympic athlete Sophie Kamlish also feels “companies should do more”.
“Nike are using the image of inclusion, which is really cool. You wouldn’t have seen that a few years ago, but they’re not being as helpful when it comes to buying one shoe,” the 27-year-old tells Newsbeat.
Sprinter Sophie has competed in T44 events and represented Great Britain at London 2012 and Rio 2016.
“It’s irritating and annoying because I’ve got these perfectly good shoes just hanging around my house that I have to throw in the bin, or not use at all,” she says.
Sophie, who lives in Bath, says she’s “been very lucky” to find a shoe-swap partner with someone who had an opposite side amputation.
“But it’s quite a rarity to be able to find that sole-mate,” she says.
Josephine Bridges, founder of charity Positive Bones, adds that one-shoe could benefit everyone, including people who aren’t amputees.
“There are people who have shoe sizes that are slightly different on each foot. And so if we’re able to buy one shoe, there’s a real benefit there.
“Sometimes you have one shoe that wears out much faster than the other.
“It could mean that people could be less wasteful by getting that one shoe replacement.”
Josephine had her amputation in 2018, and agrees “more representation” is a good thing.
But when it’s not followed up with actions, “it can it can kind of cut a bit in the gut,” she says.
Stef feels it’s not a case of companies being “intentionally non-inclusive”, but more a case of “nobody’s asked the question”.
“Often I think it’s an oversight,” she says.
“I don’t have an expectation that every company is going to cater to me as an amputee, at a financial loss to them.
“But diverse and inclusive thinking can lead to a better way of doing business.”
In a TikTok video, Stef, who won T44 bronze in 2008 when previously representing Canada, also spoke about other companies – Decathlon and Brooks Running – having similar policies.
Brooks told Newsbeat it’s “a brand that believes in the power of a diverse running community” and was “looking into solutions to fill” requests for single shoes.
Decathlon has not yet responded to Newsbeat’s request for comment.
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drawing of the day, featuring Marshmello cat
A teenage runner with Down’s syndrome is hoping to make history as the youngest person with a learning disability ever to complete a marathon.
Lloyd Martin, 19, whose family is from Cardiff, will run the London Marathon on 21 April with his mum Ceri Hooper, 54, as his guide.
Guinness World Records has created a record title for Lloyd to attempt.
He would be the youngest person to complete a marathon in the intellectual impairment category (LL2).
“I love running with my mum. She’s a marathon runner. I love her, she’s a legend,” Lloyd said.
Mum Ceri said Lloyd had always talked about wanting to take on the 26.2 mile (42 km) race so, when he was offered a place in November, there was only one answer.
“Anything is possible and not just for those with Down’s syndrome, literally anyone can run a marathon,” he said.
Ceri is the perfect coach for Lloyd – she has represented Wales since she was a teenager in cross country and track races.
She has run the London Marathon four times and also completed the Boston and Chicago races.
Lloyd has cheered her on at London, along with his brother Finlay and stepdad Gordon.
But getting Lloyd marathon ready in just five months was always going to be a challenge.
Although he has more than 30 Parkruns under his belt, until Christmas the weekly 5km (3 mile) timed run was the furthest distance he had ever completed.
Ceri had to create a bespoke training plan including a weekly long run to get Lloyd used to the rigours of being on his feet for several hours.
But before that, the family had to ensure Lloyd was healthy enough to take on the challenge.
Like many babies born with Down’s syndrome, Lloyd was diagnosed with a hole in his heart.
He has been back to see doctors and he has been given a clean bill of health.
With just 11 days to go until the race, he is ready to go, and determined to cross the finish line with a smile on his face.
He is also not worried about how long it might take.
“It’s not about the time. It’s about having fun with my family and staying together,” he said.
“If I get tired or sore, I’ll just keep going or I’ll probably take a break for a few minutes, then rethink and then get running again.
“Just go with it, embrace it.”
The Special Olympics GB helped Lloyd secure a place in the marathon, he is also a gymnast and footballer with the organisation.
He is the third Welsh Special Olympics athlete to run the marathon.
As he prepares for the biggest challenge of his life, Lloyd wanted to share the message: “Don’t take your dreams out of you, put the dreams in you and figure out what you can do because anything is possible.”
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axing for me playing hangman when we went to this fairground games for one year ago me and my best friend, Izzy one-year memory🥸
Michael Ball Sings With Disability Group At Albert Hall
Musical and theatre star Michael Ball said it was “a joy” to perform at the Royal Albert Hall alongside hundreds of musicians with learning disabilities.
More than 700 performers – including 250 from the Music Man Project which started in Essex – sang along with the Royal Marines Band.
Wendy Wilson, whose family travelled to London from Wales to see her perform said: “I can’t believe it.”
Ball said: “I hope this is the first of many times we perform together.”
David Stanley, founder of the Music Man Project, said Monday night’s concert was “in honour” of the murdered Southend West MP Sir David Amess, adding he “would have loved it”.
Sir David – who supported the charity for years before his death in 2021 – said the performers were destined for Broadway, Mr Stanley said.
Listen: Michael Ball sings with Southend charity
The project has expanded across the UK with 14 regional teaching centres and its participants perform nationally and abroad.
The charity released a Christmas single in 2022, which reached the top 10 in the UK charts.
Monday’s concert featured students from places including Bristol, Hampshire, Hertfordshire, Kent, Lancashire, North Ayrshire, Suffolk and West Sussex.
Ian Jewell, from Southend-on-Sea, said he was “very nervous” when he performed at the 2019 concert, but was more relaxed this time.
“I just like doing the trips and the concerts, being here at the Albert Hall again – I love it,” he told the BBC.
Meanwhile, Ms Wilson has been involved with the Music Man Project since she was in school.
“My uncle Pat and uncle Tony came down from Wales to see me perform – I can’t believe it,” she said.
Michael Ball became involved with the charity in 2023, telling the BBC he “leapt” at the chance to become its patron.
“It does nothing but bring joy, acceptance and a platform for people with learning disabilities, and we share this language of music,” he said.
The charity wishes to one day reach Broadway, with the hope their new patron “may get it over the line”, said Mr Stanley.
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if you Tuesday call everyone
‘Playing An Autistic Character Helped Me Unmask Myself’
Comedian Ashley Storrie has revealed playing an autistic character in her first lead acting role helped her to become more open about her own challenges.
Ashley plays Nina a neurodiverse palaeontologist in Dinosaur, a comedy drama set to air on BBC Scotland on 14 April.
The six-part series follows Nina and her family in the lead up to her sister Evie’s impromptu wedding.
Ashley, who has autism, said the role enabled her to “unmask” in real life.
She told BBC Scotland News: “I don’t know if you go ‘oh I’d love to play a woman who is autistic like me’ but it turned into a dream for the fact it’s given me the opportunity to do acting.”
The BBC Radio Scotland host said while there were some crossovers between her and her character, there were lots of differences.
“She lives her whole life very unmasked and very open about her autism but that’s only something I’ve kind of felt able to do since playing Nina,” Ashley added.
“Before this I tried a lot more to be normal, to make other people feel comfortable but Nina didn’t do that so that became something we had in common.
“I now feel more at liberty to just be myself and say ‘I’m autistic so I’m not being rude’.”
Ashley said the programme differed from other shows featuring an autistic lead character because “it’s not all doom and gloom”.
“Sometimes that can be a bit unhelpful. It’s always good to have the voices of people who have lived those things,” she said.
Ashley is also listed as the show’s co-creator, alongside Matilda Curtis, as she helped convey her own “lived experiences”.
The comedian said: “I think it’s important that we keep seeing all different types of characters on our screen because, unfortunately or fortunately, I think we live in a world where people’s opinions are formed from the media they consume.
“So when you say to somebody ‘I’m autistic’, they’ll say ‘but you’re not rocking back and forth or counting toothpicks’ because their only point of reference is Rain Man. That is a problem.”
The series is set in Glasgow and the west coast of Scotland, and features locations that will be familiar Scottish audiences, including Kelvingrove Art Gallery and Museum.
The decision was only taken to set the drama in Scotland after Ashley successfully auditioned.
The comedian said she was happy to be able to film in her home city, as it is “one of the most beautiful in the world”.
Ashley said: “It was very comforting filming in places that I knew but also just getting to put down on paper, and show growing up Scottish, in a way that hasn’t necessarily been done before.
“I think outside of Scotland there is this image of Scotland, that is somewhere between Trainspotting and Outlander and there’s not a lot in the middle.”
One episode also features Rothesay on the Isle of Bute, a place Ashley used to visit with her grandmother as a child.
As well as showing off the sites of Scotland it also features a host of stars including Still Game’s Greg Hemphill, who plays Nina’s father Ade, and River City’s Sally Howitt.
The cast also includes Sanjeev Kohli, David Carlyle and Katie Dickie.
You can watch Dinosaur on the BBC Scotland Channel on 14 April at 22:30 or on BBC Three on 16 April at 22:30.
the story about Sarah for the muscle wasting disease, Duchenne, muscular dystrophy. #DisabilityStoryOfTheDay #Design#
A mother and her disabled daughter were left stranded in their home for month when the council delayed fixing their lift.
Tracey Jones said that she thought the way Ealing Council treated her and daughter Tierney, 17, was “disgusting”.
The lift is the only way that Tierney, who needs a wheelchair and round-the-clock care, can get from the first floor of their house to the front door.
Ealing Council said it has apologised and compensated the family.
Ms Jones said her daughter had been unable to attend St Ann’s school, Ealing, and had therefore not been able to access the specialist help she needs and usually receives there.
During the period when the lift was broken, Ms Jones was told that Tierney had been flagged with social services due to her absence from school. She also said that Tierney’s health had suffered, due to her inability to move about and do physiotherapy.
“I had to get antibiotics from my GP because my daughter… wasn’t doing physio, which she would normally do at school. She got a chest infection,” Ms Jones explained.
“It was worse than lockdown. For the whole month, she was confined to her bed.”
Because Tierney has Pontocerebellar Hypoplasia type 2 she may suffer seizures, so needs constant monitoring. For this reason Ms Jones could barely leave her daughter’s bedroom.
Tierney cannot be lifted without a hoist and has severe scoliosis, which makes moving her in other ways very painful. Added to this her chair is extremely heavy and can only be managed by lift.
The lift was finally repaired on 17 March, 27 days after it broke. Tracey said the council has promised to send her £250 towards heating her home – which needed to be warmer than usual – over this time.
Ms Jones said she has not yet received the money, although she has never been interested in compensation and had only wanted the lift repaired in a timely manner
“I feel totally let down,” she said. “I just think that they weren’t any use to me.”
A spokesperson for Ealing Council said: “We recognise that this situation was completely unacceptable and [that we] fell far short of the service that we strive to offer to residents.
“This is why Ms Jones received a full apology from the council and compensation towards the extra costs incurred during the time whilst the lift was broken. We are working with our contractors to try and ensure that this does not happen again.”
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Happy Friday and I hope you all enjoy the weekend…
Item of the very early morning…
Amazon item of the early morning…
Disability Football Team Celebrates 20th Year
A football club for players with disabilities or mental health difficulties is celebrating its 20th anniversary.
Maidstone United Raiders was set up in 2004, with just four members but now has more than 200, with “demand to join higher than ever”.
Raiders manager Lorraine Humm got involved after finding opportunities limited when she was younger, so did not play until she was 18.
The Raiders, who train at The Gallagher Stadium, were the first to play on the pitch when it opened in 2012 to break it in for the first team.
Speaking to BBC Radio Kent, Ms Humm said: “We’ve had players go off to play in Football Golf at Euro Level and in England’s Deaf Squad.
“Others have gone on to join the academy at Maidstone and one of them also mentioned using life skills gained from the club to get a job at a chemist.
“Some of the players do stewarding or sell programmes at the stadium to gain work experience.”
One of the team’s players is 23-year-old Charlie Lee-Amies from Tonbridge.
Speaking to BBC Radio Kent, he said: “I’ve been here a long time, seven years now. I’m really enjoying it and I’ve got a lot of friends here.
“Now I’ve got an internship doing home and garden services. I am enjoying it and driving a van!”
Another Raiders player, Hope Stevens, said: “When I first started, I didn’t have a lot of confidence, but now my confidence is growing all the time.
“It’s not just about playing football, its meeting up with your friends and socialising.”
Her carer, Ray Bailey, said Hope rarely missed a session.
“I can see the happiness in her face,” he said, adding: “On the way home she never stops talking about football.”
Ms Humm said demand had soared after the men’s team’s FA Cup run this season.
They also took some players to away games against Ipswich Town and Coventry City.
She said she intended to hold a party, presentation and mini tournament to celebrate the anniversary.
Item of the early evening…
Good afternoon to all my followers…
disability story of the day. Are you about a little girl with a rare disorder called Pfeiffer syndrome?
Saying of positivity for you all…
Item of the day…
Saying off the morning for all!
Scunthorpe Mother Calls For Better Disabled Play Access
A Scunthorpe mother has said it is “heart-breaking” that her disabled daughter is unable to use play parks like other children.
Lorna Fillingham said many playgrounds did not have equipment suitable for her 14-year-old daughter Emily-May.
A recent report by charity Scope found that only one in 10 parks nationally was fully accessible.
Ms Fillingham said she just wanted her daughter “to have the same play opportunities as any other child”.
“There are inclusive play area guidelines out there that local councils can follow in order to make sure that everybody is included when they are developing play parks, and I think that’s what absolutely needs to be done,” she said.
“I could go to a brand new play park tomorrow and there’d be absolutely nothing in it for my child to play on.
“It’s about remembering that there are disabled children in the community.”
The Scope research found that 47% of playgrounds were inaccessible to children with disabilities.
More than 1,000 parks were surveyed, and the report found that “most had little or no accessible equipment, with some even having features that could be unsafe for disabled children, like no fencing around the playground or uneven floor surfaces”.
Some had gates that were too small to allow wheelchair access, and play equipment with steps.
The charity has launched an online playground accessibility map to allow parents to plan their days out.
North Lincolnshire Council said it was committed to ensuring “parks and green spaces are accessible and can be enjoyed by as many residents as possible”.
A spokesperson said: “To support this driving ambition, the council has successfully secured more than £320,000 in additional funding to make spaces even more inclusive.
“This has enabled the council to complete a raft of projects, with more under way, including the area’s first wheelchair-friendly allotment and horticultural site at Somervell Park in Scunthorpe, which will launch later this month.
“New park developments are not adopted if they do not incorporate disabled-accessible features, and the council has worked closely with Lorna to ensure they are inclusive, including adding a wheelchair-accessible roundabout and a changing-places facility at Normanby Hall Country Park.”
Good night to all my viewers!
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The above is the link. I need to do this by July 2024 to enable me to access the respite needed.
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Myah
Pinterest update for you all…
…and get me to the target by the end of July 2024
A man who broke his neck playing rugby aged 17 hopes to become the first spinal injury complete tetraplegic to scale Mount Kilimanjaro.
Max Levene said he was having “the best game of my life”, when a tackle at a school match changed everything.
He has no movement or feeling from the chest down and limited arm movement, but the University of East Anglia (UEA) graduate, now 31, has big ambitions.
He hopes to scale Africa’s highest peak with the help of friends in September.
“In the summer of 2009 while staying in Kenya with my military parents, who were working there at the time, I first saw the majestic Mount Kilimanjaro across the Tanzanian border,” Mr Levene said.
“Aged 17, I decided that one day I would climb the mountain.
“Little did I know that a few months later I would never walk again. Kenya would also be the last place my parents ever saw me take a step.”
The rugby game at school in Truro, Cornwall, seemed to put an end to his dream.
“I’d been having the best game of my life that day,” he recalled.
“We were winning, and I remember saying to my friends that I felt like I was really on it.”
A tackle towards the end of the game left him paralysed, resulting in complete tetraplegia – paralysis in all four limbs.
Mr Levene later went on to study business economics and earn a master’s degree in development economics at the UEA in Norwich, and after graduating took up a post as an economist in London with the civil service.
But, the dream of climbing the mountain never quite went away.
“I assumed that I’d never be able to do anything like that for the rest of my life,” said Mr Levene.
“But now, 13 years on, I have realised I should complete the mission, even if the challenge is now far greater.”
The aim of the challenge is to raise money “for two really excellent charities” – the Rugby Football Union Injured Players Foundation and the Inspire Foundation charity which funds to address independence and quality of life after spinal cord injury.
He began planning the logistics of the trip last July and started training in September.
A personal trainer has helped him lose weight and build muscle, he said.
He will be accompanied by a team of eight friends and sponsors.
Mr Levene is fundraising for the specialist equipment – including a new chair – to help him reach the summit, but everything else is being self-funded by those on the trip – including the flights, hiring porters and associated costs of embarking on such a challenge.
The aim is to “raise as much money as possible for these charities”.
“I think it will probably be about an eight-day round trip, because we want it to be achievable,” he said.
“I want to spread awareness that people with disabilities – any disabilities – can achieve great things.
“Yes, people need additional support, and we should have that support, but, with it, we can go on to succeed.
“You should say yes to every opportunity,” he added.
Good morning to all my viewers, i hope you have a good and successful day after a long weekend
Actress Sally Phillips said she was “so upset” after her son who has Down’s syndrome was not allowed to play at a trampoline park.
She said she was told Olly, 19, needed a letter from his GP to take part.
The Miranda star told BBC Breakfast that children and young people like Olly were being “singled out for being different”.
Oxygen Free Jump, the trampoline park, said it was “deeply sorry” he could not take part and was left disappointed.
The company said it was following safety guidance from British Gymnastics.
Phillips, also known for roles in Smack the Pony and the Bridget Jones’s Diary films, told Breakfast: “This admin burden on special needs parents to be part of the community – to do a normal thing, to take normal risks that everyone else is allowed to take – is just unbearable.”
“Times have really changed for people with Down’s syndrome,” she added. “Olly is used to being able to do what his contemporaries can do.”
She said they had gone to the London activity centre with Olly’s younger brother, and his brother’s friend, having been “hundreds of times before”. When they arrived, a woman on the front desk took her to one side before calling over a manager.
“I was so, so upset for Olly to be prevented,” she said. “There were so many things wrong with it… one is that they’re weeding out people with visible disabilities, so if you have an invisible disability, you’re not required to bring in a doctor’s letter.”
After the incident, she said her son “burst into tears” in the car park. He told BBC Breakfast he “felt really upset” but that, as someone who has done gymnastics previously, he still wants to go to trampoline parks despite last week’s experience.
Phillips said the information is “out of date”, explaining that Olly was required to have an X-ray checking for any neck instability to join the British Gymnastics Association.
This X-ray does not “give the information required” to take part in physical activities, she added, as neck instability issues can only be detected once symptoms are being experienced – so if there are no symptoms, “you can participate like anyone else”.
“It would be fine if there was a sort of genuine issue but it strikes me that the issues are, the neck thing is just misinformed and the insurers had found something they can ask for so they asked for it, without it actually being helpful,” she said.
She said she was told Olly would need a doctor’s letter every time he went to the trampoline park, meaning using NHS resources to make an appointment or paying out for a letter.
Phillips – who along with Olly is a patron of the Down’s Syndrome Association – said she had received many replies from parents who had gone through the same thing after recounting the episode on X, previously Twitter.
There is a “big psychological effect” on those who are not allowed to do the same as others, she added.
In its statement, Oxygen Free Jump said it was sorry that Olly could not take part and was left disappointed, adding: “The only reason a company like ours exists is to help everyone, but particularly children, enjoy active play.
“We would welcome the opportunity to collaborate with the relevant parties to review the current guidance and enable as much active play as we can, safely.”
In response, Phillips said it was not fair for the onus to be on parents to help make the changes, but that she would engage in discussions.
“They will allow us to do the work for them to change, whereas actually I think they need to educate themselves,” she said. “We’d really appreciate it if we didn’t have to and we could just get on with having a normal life.”
MP Caroline Nokes wrote on X that it was a “pretty grim day for inclusion” following Phillips’ interview, and a separate story about a photography company offering parents class photos without children with complex needs. The firm involved has since apologised.
“These are battles families should not be having to fight,” she wrote.
Same Difference 