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Becoming Blind

March 2, 2012

PC David Rathband told of his struggle to cope with becoming blind. Here, BBC Ouch’s Damon Rose, who lost his own sight aged 13, tells how difficult the experience can be.

Politicians And Patrons Pay Tribute To PC David Rathband

March 2, 2012

PC David Rathband is believed to have taken his own life.

Here, famous faces from David Cameron to Duncan Bannatyne pay tribute to the man who, for a very tragic reason, has been one of Britain’s best known police officers for the past two years.

Duncan Bannatyne Pays Tribute To Friend David Rathband

March 1, 2012

On the Today programme.

‘Don’t Undo All The Progress’

March 1, 2012

Disabled people have made in the last 50 years, says Baroness Jane Campbell.

PC David Rathband Dies

March 1, 2012

I can’t believe this. I’m sure it’s going to get coverage tomorrow so I’ll keep you posted, readers. My thoughts are with his family.

The police officer shot and blinded by gunman Raoul Moat has been found dead at his home in Northumberland.

Northumbria Police force said David Rathband had been discovered at his house in Blyth.

Moat shot his former girlfriend Samantha Stobbart and killed her new boyfriend Chris Brown in Birtley, in July 2010.

The next day he shot and blinded PC Rathband as the traffic officer sat in his patrol car in Newcastle.

For almost a week Moat was the subject of a huge manhunt which ended when he apparently shot himself dead after a stand-off with armed police in the market town of Rothbury, Northumberland.

The officer lost his sight and was fitted with prosthetic eyes.

In September, last year PC Rathband announced he and his wife Kath were separating.

Have You Seen Matthew Harvey?

February 29, 2012

 

https://twitter.com/#!/helen_hale/status/174977638216122368

Concerns Over Learning Disability Care

February 29, 2012

Just one in five NHS and privately-run hospitals and care homes for people with learning disabilities meet national standards, according to a series of unannounced inspections.

The Care Quality Commission (CQC) has published its latest batch of reports on whether people get safe and appropriate treatment and care, and if they are protected from abuse.

The results showed just four out of 20 providers met essential standards for both care and welfare and safeguarding. Of 67 reports published so far (including the latest 20), just 17 providers were compliant with both standards.

The CQC said it had issued a formal warning over Walkern Lodge, a hospital for up to six women in Stevenage run by the private firm Cambian Learning Disabilities Limited. Inspectors said they had “major concerns” regarding safeguarding at the hospital.

They also expressed major concerns over safeguarding at another hospital, Bloomfield Court, and 5, 6 Ivy Mews in London, run by private firm Curo Care Limited.

At Walkern Lodge, inspectors found staff saying they regularly restrained people with learning disabilities but proper logs were not kept and managers denied this even happened. Two staff were suspended during the investigation.

Inspectors also found incidents had occurred relating to “missing money, a disclosure of alleged abuse, a potential incident of physical abuse and two separate incidents of serious self harm, that had not been reported to the Hertfordshire safeguarding team or to us, the Commission”.

The CQC said it had since been back to inspect Walkern Lodge and was satisfied that “necessary improvements” had been made.

A joint statement from Mencap and the Challenging Behaviour Foundation said lessons must be learned:”These latest CQC reports again reveal serious concerns about the care people with a learning disability are receiving in specialist assessment units, and it is extremely worrying that 16 of the latest 20 units inspected by the CQC are not fully compliant with essential quality and safety standards.”

Care services minister Paul Burstow said: “People with learning disabilities deserve individualised care, and these inspections are rooting out unacceptable practice. Where concerns are raised, both the NHS and local authorities have already begun to take action. Providers must provide good care, but commissioners must design and buy the right services in the first place.”

Paralympic Torch Unveiled To Mark Six Month Landmark

February 29, 2012

With six months to go to the start of the Paralympics, London 2012 organisers have revealed the design for the torch.

The torch has been given a mirrored finish so its colour adapts to its surroundings and also shines at night on the final stage of the torch relay.

Locog has also announced that 33 communities around the UK will stage flame celebrations during the relay.

Meanwhile it has been confirmed that the Queen and Duke of Edinburgh will open the Olympic and Paralympic Games.

The Olympics start on 27 July with the Paralympics getting under way on 29 August.

The Queen opened the 1976 Olympics in Montreal while the Duke performed the role on her behalf in Melbourne in 1956.

King George VI opened the last London Olympics in 1948 with his grandfather King Edward VII starting proceedings in the city 40 years earlier.

Paralympic flame lighting events are to be held on consecutive days in each of the UK’s capital cities.

They start in London on 24 August with the four flames uniting at a special ceremony in Stoke Mandeville, home of the Paralympic movement, on 28 August.

The relay will then begin its 24-hour journey to London’s opening ceremony.

Continue reading the main story

London 2012 – One extraordinary year

The flame will be carried from the Stoke Mandeville Stadium by 580 torchbearers, working in teams of five, to the Olympic Stadium where the cauldron will be lit to herald the start of the Games on the evening of 29 August.

Dame Tanni-Grey Thompson revealed the torch on BBC Breakfast and said: “When the flame is lit it’s very sparkly and it will pick up a lot of light It is also very light so it can be easily carried.

“Also what’s different is how our flame is lit. We are currently working out different ways of doing it and the power of human endeavour will start it off.

“There’s a huge amount of pressure on the athletes. We are in a really good place and it is going to be the best Paralympic Games we have ever seen. I think we do very well by having the Games afterwards and the uniqueness of our own torch relay is also important.”

Torch design

The torch was created by London-based designers Edward Barber and Jay Osgerby who said it was driven by a desire to reflect modernity and innovation.

It is made from an aluminium alloy – light while being strong and heat resistant.

Cutting-edge laser technology has been used to create thousands of round perforations which will help ensure that heat from the flame is quickly dissipated without being conducted down the handle.

The holes also make the torch lighter and give it a strong texture that is easy to grip.

The colour of the mirrored-finish should mean that the teams of torchbearers will not be lost in the darkness.

London 2012 chairman Lord Coe said: “With six months to go we are on track to deliver a great Games that will showcase some of the most inspirational athletes from around the world.

“The torch relay will provide the perfect start by involving people from across the UK in events celebrating the flame and help to ignite passion for the Paralympics.”

A flame lighting event in London will kick off the relay before Belfast stages the second lighting event and the first of the four evening Flame Festivals on 25 August.

Edinburgh on 26 August and Cardiff on 27 August will be the next two host cities before the four flames come together in Stoke Mandeville the following day, where they will be combined to create the London 2012 Paralympic Flame..

PARALYMPIC RELAY FACTS

  • First torch relay – Seoul Olympics, 1988 with 111 disabled people among the 282 torchbearers
  • The relay has been part of each Paralympics since then
  • By Sydney 2000 there were 920 torchbearers and the flame was lit during an Aboriginal lighting ceremony
  • In Salt Lake City 2002, Eric Weihenmeyer, the first blind man to climb Everest, carried the torch to the podium of the stadium
  • For Athens 2004 the Paralympic Flame was lit in the Hephaestus Temple and 680 torchbearers took part
  • Beijing 2008’s flame was lit in the Temple of Heaven with 850 torchbearers carrying the torch along two routes, split between ancient and modern China
  • Beijing’s Paralympics in 2008 had 3,951 athletes from 146 countries
  • Paralympics is short for Parallel Olympics

The English communities which have been chosen to host flame celebrations will send representatives to the opening event in London.

Once there they will each collect part of the flame in a lantern and transport it back to their home towns to be used at their individual events.

National representatives will attend the lighting ceremonies in Belfast, Edinburgh and Cardiff and take part of the flame from their respective capital.

Flame celebrations will be staged in the following places:

ENGLAND North East: Beamish. North West: Manchester, Preston, Merseyside, Cheshire. East: Cambridgeshire, Bedfordshire, Essex, Norfolk, Suffolk, Hertfordshire. East Midlands: Leicester. West Midlands: Hereford, Coventry, Trentham Lake, Cannock. South East: Horsham, Aylesbury. South West: Bath, Plymouth, Weymouth & Portland. Yorkshire: Leeds, York, Sheffield, Beverley, Huddersfield.

WALES Conwy.

SCOTLAND Glasgow.

NORTHERN IRELAND Cookstown, Ballymena, Derry, Newry and Mourne, Carrickfergus.

How Accessible Is The New Twitter?

February 29, 2012

I wasn’t able to access Twitter on my holiday. When I returned, I found that it has a new look. I just Tweeted a general comment about how I don’t like the new look- and in response I got yet more proof that disability is everywhere. See for yourselves, readers:

https://twitter.com/#!/dinogoldie/status/174831291844403200

So, please use this thread to tell us what you think of the new Twitter. Is it no longer accessible to you? Do you like it or hate it?

Mia Blackwell- The Girl Who Can’t Smile

February 29, 2012

I have many very special friends who don’t have verbal communication. Their smiles can light up any room. They’ve taught me about the beauty of a smile- especially the smile of a severely disabled person.  So to me,  this is one of the most tragic disabilities I have heard of so far.

The family of a six-year-old girl with a rare syndrome which means she cannot smile said they are desperate for more research into the condition.

Mia Blackwell, from Bilborough in Nottingham, is one of 124 people in the UK with the rare Moebius Syndrome, which causes facial paralysis.

Gemma Blackwell, Mia’s mother, said there was little known about how it was caused or what the future held.

She has started fundraising to help the Moebius Research Trust.

The trust needs to raise £250,000 in order to begin research into the condition.

Genetics techniques

Mrs Blackwell said: “I want Mia to meet other people that are like her and have got this condition.

“It’s heartbreaking that research can’t be done until this money has been raised, for Mia it’s not going to make any difference but it would be nice to help other families in the future.”

Dr Toni Wolff, a paediatrician at Nottingham City Hospital, helped diagnose Mia and said research was desperately needed.

“I had not seen [the condition] before and we were excited to meet Mia,” she said.

“Because [Moebius Syndrome] is quite rare it hasn’t been prioritised.”

Dr Wolff said new genetics techniques might be able to help if a group of children with the condition could be brought together.

Mrs Blackwell said: “You have to have a thick skin, it’s not obvious what Mia’s condition is [so] people will say ‘she looks like she’s got the weight of the world on her shoulders’.

“We just sort of laugh it off.”

Oscar Pistorius Interview In Daily Mail

February 29, 2012

For once the Daily Mail have published something sensible about disability. It’s an interview with Oscar Pistorius about London 2012.

Leeds General Infirmary To Carry Out SDR Operation

February 29, 2012

A specialist operation which could help children with cerebral palsy to walk unaided is to be performed at Leeds General Infirmary.

Consultant paediatric neurosurgeon John Goodden studied the technique in the United States with an American surgeon who developed the procedure in 1991.

Most families have had to raise the money to go to the US for the surgery.

Mr Goodden said it was “tremendous” he had been given permission from trust managers to carry out the operation.

The micro-neurosurgery, called selective dorsal rhizotomy (SDR), involves identifying and cutting the spinal nerves causing stiffness and pain.

The decision to fund the £24,000 operation and aftercare is made by each patient’s local primary care trust.

Mr Goodden said patients from across the country could be referred to Leeds for treatment.

He said he had three patients currently waiting for funding approval and was hopeful the first operation would take place within four months.

‘Phenomenal’ results

He said: “It’s a surgery that helps a lot of people and for the right children can make a huge difference to their lives.”

“For us to do it in this country I think is absolutely of paramount importance.

“We’re not a third world country, we’re a first world country and we should be able to look after our children and that’s why I went to the States to learn how to do this.”

Mr Goodden described the operation as having “phenomenal” results.

He added: “I’ve seen a child who had a very good level of mobility but still had spasticity and was tiring early and was told by his physiotherapist ‘here’s a wheelchair, that’s what you’re going to need for long distances, get used to it’.

“Being told at six or seven years old that you’re going to need a wheelchair for the future is heartbreaking.

“Instead he’s had surgery… he’s not going to need that wheelchair and that’s a fantastic gift for us to give our children.”

Julie Elliott’s five-year-old son Ben, who has cerebral palsy, underwent the procedure in the US after the family raised about £50,000 to pay for it.

Ms Elliott, from Killingworth, North Tyneside, said Ben was a “walking example” of the success of the operation.

She said: “These children need SDR and for Leeds to get up and running is a step in the right direction.”

Life’s Too Short Up For Best Sitcom Rose D’Or Award

February 29, 2012

Personally, I really enjoyed Life’s Too Short, so I’m very pleased to read this and I hope it wins the award.

Ricky Gervais comedy Life’s Too Short is up against Channel 4’s Friday Night Dinner for the best sitcom prize at this year’s Rose d’Or TV awards.

Channel 4’s Black Mirror, The Million Pound Drop Live and The Great British Bake Off are among other UK contenders.

British shows account for 16 of the 36 shows shortlisted this year.

The winners of the awards, which took a break last year, will be announced on 10 May at the end of the Rose d’Or TV festival in Lucerne, Switzerland.

Life’s Too Short, starring Warwick Davis, and Friday Night Dinner go up against Israel’s Tall and Greenbaum in the sitcom category.

The Million Pound Drop Live, presented by Davina McCall, vies with ITV1’s The Cube and Israel’s Still Standing for the best game show prize.

Charlie Brooker’s Black Mirror satire The National Anthem competes with Belgium’s What If? and Israel’s The Saddest Sketch Show in the World for the comedy award.

In the children’s category, the BBC’s Horrible Histories series and The Gruffalo’s Child are nominated alongside Dutch show How To Survive…?

Page Eight – starring Bill Nighy, Rachel Weisz and Sir Michael Gambon – will compete in the best TV movie category, while BBC Three series Don’t Tell the Bride is up for best factual entertainment show.

Martina Cole’s The Runaway, which was broadcast on Sky One, is up for best series, along with Pan Am and ITV1’s The Jury.

In the lifestyle category, ITV1’s May the Best House Win and the BBC’s Great British Bake Off go head to head.

The programmes were whittled down from more than 400 entries by a panel of 50 ahead of the Rose d’Or festival, which begins on 6 May.

“I’m thrilled to see 36 outstanding programmes in the running for a Golden Rose,” said festival director Markus Helbling.

In 2010 – the last time the awards took place – Channel 4 show The Inbetweeners was named best comedy series.

What Legal Aid Bill Will Mean For CP Compensation Claims

February 28, 2012

Any thoughts on this, readers?

Hate Crime Campaign I’m Not Laughing Goes National

February 28, 2012

A piece of progress.

Rosie Mayes

February 28, 2012

The father of a Sheffield woman left paralysed in a car crash has talked of his “huge relief” after a successful legal fight to get her lifelong care.

Rosie Mayes, 22, was left tetraplegic when the car, driven by her then-boyfriend, overturned and hit a bank.

Ms Mayes was in hospital for 10 months after the crash, in December 2009, in Dronfield, Derbyshire.

The legal action was prompted when the driver’s insurance firm contested liability over the crash.

At a hearing at the High Court in Leeds on Friday, Ms Mayes was granted a further interim payment of damages to allow her care to continue.

Her legal team said a settlement was in the process of being put together to fund the support she needs.

‘Dreadful and avoidable’

Ms Mayes, who had to be cut free from the wreckage of the car by firefighters, spent 12 days in intensive care.

She is now confined to a wheelchair and requires 24-hour care.

Andy Wynne, her father, said: “Nothing can ever bring back the life that Rosie had before this dreadful and avoidable accident.

“The decision by the insurance company to contest liability was really a body blow for all of us, and on top of everything Rosie has had to go through, to add the uncertainty and the stress this has caused really was outrageous.”

At the time of the crash, Ms Mayes was studying for a degree in history at York University.

She said: “It’s affected my life, and my family and friend’s lives as well.

“As far as the future’s concerned, I’m not sure what career I want to do, but since I’ve had this injury, there’s a lot of things I feel like I want to change.”

She has now resumed her studies at Sheffield University.

Dame Anne Begg MP Due To Fly Home After Wheelchair Fall Injury

February 28, 2012

I’m sorry to read this and I wish her all the best.

Injured Aberdeen MP Dame Anne Begg is due to be flown to a hospital in her constituency after falling from her wheelchair and breaking her leg and wrist.

The 56-year-old Aberdeen South Labour MP has been cared for in hospital after falling in London last week.

She is being transferred to Aberdeen’s Woodend Hospital where she is expected to remain for several weeks.

Dame Anne told BBC Scotland she was looking forward to coming home.

She said she would be able to continue to work from her hospital bed.

The MP was born with Gauchers Disease, a genetic condition that causes bones to break easily.

She has been an MP since 1997 and was the first full-time wheelchair user to be voted into Westminster.

She was appointed Dame Commander of the Order of the British Empire for services to disabled people and equal opportunities in the 2011 New Year Honours.

Dame Anne formally received her honour at Buckingham Palace earlier this month.

Saving Face- The Film About Disability That Brought Pakistan It’s First Oscar

February 28, 2012

As a British Asian, Pakistani, disabled woman, I couldn’t be more proud to hear about this:

Film-maker Sharmeen Obaid-Chinoy’s triumph in becoming the first Pakistani to win an Oscar has been greeted with jubilation in her home country.

Tributes on TV and social media have been pouring in, with local channels repeatedly showing footage of her receiving the award on Monday.

She won the award for best documentary in the short subject category for her film Saving Face, about acid attacks on women. The film chronicles the work of acclaimed British-Pakistani plastic surgeon Mohammad Jawad.

It follows him as he travels around the country to perform reconstructive surgery on survivors of acid violence and is told by survivors going through the recovery and reconciliation process.

Ms Obaid-Chinoy’s dedication at the Oscar ceremony was pointed: “For all the women in Pakistan working for change, don’t give up on your dreams – this is for you.”

Although the film and its international acclaim has served to bring to the fore this brutal aspect to Pakistani society, activists say there is still a long way to go before the situation on the ground truly changes.

One of the acid attack victims featured in the documentary did not want to speak on the record as she still lives with the husband who carried out the crime. She says that it is necessary to do so for the sake of the children.

‘Horribly disfigured’

The observational documentary was filmed entirely in Pakistan, primarily in the centre of the country and in the cities of Rawalpindi, Karachi and Islamabad.

The practice of acid attacks in Pakistan leaves victims – who are mostly women – horribly disfigured in the face.

Although thousands are affected by acid attacks, in a country where women are often the victims of numerous crimes, the problem has often been under-reported.

But in 2011 legislation was introduced to address the problem. The Acid Control and Acid Crime Prevention Bill stipulates that attackers can be jailed from 14 years to life, in addition to receiving a 1m rupees fine (£7,000; $12,000).

But life for many victims also amounts to a form of imprisonment.

Another acid attack victim – who still has not been compensated for the attack against her – says that she is thrilled over Ms Obaid-Chinoy’s win.

“We’ve been watching TV all morning,” she said, “and I don’t have the words to thank Ms Obaid-Chinoy for what she’s done.

“I think it will become easier for women now and it will scare the perpetrators.”

Meanwhile Prime Minister Yousuf Raza Gilani has announced the highest civil award for Ms Obaid-Chinoy. Such moves have been warmly welcomed by her admirers.

“When the bill was passed Sharmeen was there to film it. It was a huge deal for women,” said politician Marvi Memon who featured in the film.

“The law is already in place but Sindh [province] has been defaulting – so people may wake up now because of this documentary. I think this issue has come to the forefront.

“We are extremely proud of Sharmeen – she is hardworking, capable and it is an honour for Pakistan that we have won an Oscar through her.

“She won and she embodies a beautiful woman of Pakistan – she is beautiful inside and out.”

Other supporters are equally full of praise.

“This documentary shows we are not powerless – Pakistani women… are not victims anymore, but agents of change,” proclaims Valarie Khan, Chairperson of Acid Survivors Foundation who helped Ms Chinoy make the documentary.

“There are 200 attacks a year,” she says, with reports [of such incidents] increasing.

“We have treated 150 patients – it is a long-term treatment [programme] but there is much more work [still] to do.

“We need to focus on [the police] investigation, the trial [process] and rehabilitation and we hope this documentary adds pressure not to stop here.”

When she was nominated for the award in January Ms Obaid-Chinoy said it was the “stuff dreams are made of”.

Now that dream has been fulfilled.

Disabled People Love Theme Parks, Sunshine

February 28, 2012

When I thought about what I would be posting on my first full day back blogging, I wasn’t expecting to have to cover quite such a big load of scribble from the Sun quite so soon. Yuck. Just yuck.

I must thank the amazing Nicky Clark for the info, and take this opportunity to tell her that I sincerely agree with the very good points she is making here.

Personally, I have been very much physically disabled- and very much entitled to DLA- for life. School trips to Chessington World of Adventures were the highlight of several academic years, and guess what, world? Rollercoasters and banana boats were the highlights of those school trips!

Research Offers Hope For Type 1 SMA Babies

February 28, 2012

Scottish research has shown it could be possible to reverse the muscle damage seen in children with a form of motor neurone disease.

Spinal muscular atrophy (SMA) – “floppy baby syndrome” – is the leading genetic cause of death in children.

It affects one in 6,000 births, but 50% of those with the most severe form die before the age of two.

The University of Edinburgh mouse study suggests a drug could boost levels of a protein and so reverse muscle damage.

Children with SMA experience progressive muscle wastage, loss of mobility and motor function.

One in 40 people carry the genetic mutation that causes the disease.

It is estimated that, at any one time, up to 6,000 people in the UK have SMA.

There are three grades of the condition, with type one being the most severe. Most cases are detected when a baby is very young and displays problems eating, swallowing and breathing. Often they can also fail to cry when they are born.

Type 1 babies have floppy limbs and “flickering” tongues.

Type 2 is usually picked up when children are between six and 18 months old. Affected children are able to sit, but cannot walk.

Type 3 is the mildest form of the disease. Children are usually diagnosed over the age of two. Many have problems walking and may require a wheelchair.

However, SMA does not affect children’s mental abilities.

It was known that in the condition, there is damage to the nerves. But the Edinburgh research team, led by Tom Gillingwater, professor of neuroanatomy, found they also suffer from unhealthy muscles – and that this damage can occur even if the nerve connections are healthy.

They found that muscles are damaged by having low levels of a protein called SMN, which is caused by a genetic mutation.

This mutation also disrupts the muscles’ blood supply, leading to further damage.

Important role

In the second study, the researchers treated mice with SMA with a class of drugs known as HDAC inhibitors.

It was found treatment increased the levels of the protein in muscle by targeting the genetic mutation.

Prof Gillingwater said: “SMA is the most common genetic cause of infant death in the western world.

“By showing the important role that muscles play in this disease, we can now focus our efforts on trying to block the disease in all affected tissues of the body.”

Research is now under way, looking at whether HDAC or other drugs can be tailored to further improve muscle control and increase blood supply.

Lucy Blythe, of the SMA Trust, which funded the research, said: “These findings are significant.

“This is a tragic condition, because so many babies with type 1 die before the age of two.”

Victimisation, threats and abuse: Police must gain trust of young disabled to crush hate crime says campaign group

February 28, 2012

A press release from Trailblazers:

Young disabled people are failing to report threatening behaviour and verbal and physical abuse in public due to a fear that these crimes will not be taken seriously, a young campaigners group has warned today.

 

The Muscular Dystrophy Campaign’s Trailblazers, a 400-strong campaign group of disabled 18-30 year-olds, is urging police authorities to review their handling of disability-motivated hate crime, as a new report, Under Investigation, launches today showing that up to 80 per cent of young disabled people believe that the police do not take crime aimed at this group seriously enough.

 

The Trailblazers’ survey reveals that:

 

  • two out of three young disabled people have been taunted or verbally abused because they are disabled

 

  • 62 percent of young disabled people say they have been or may have been the victim of disability hate crime

 

  • only four out of ten young disabled people who completed the survey and have been harassed or abused, have reported the incident to a person in authority

 

  • eight out of ten young disabled people who completed the survey think the police do not take disability hate crime seriously enough.

 

 

Young disabled people told of reluctance to report incidents of verbal abuse, spitting and confrontational behaviour, due to the belief that their local police force would fail to take action or that the incident was not ‘significant enough’ to warrant police time.

 

Trailblazers is now calling for a nationwide initiative between forces to crack down on disability-motivated crime by building links with local disabled groups, providing alternative ways for reporting abuse, and reviewing approaches to recording and tackling incidents. 

 

The Trailblazers’ study has raised concerns that many young disabled people are not reporting these incidents, with over 60% of people surveyed in Under Investigation saying they had been a victim of disability hate crime, in contrast to the tiny amount of cases reported to the police every year. In 2010 only 726 cases of disability hate crime were prosecuted in England and Wales*.

 

Marc Pyle (25) from Swindon has the muscle-wasting condition Becker muscular dystrophy, which affects the way he walks. He says that he has been faced with repeated incidents of verbal abuse from strangers, but only felt able to inform the police following a physical attack. He said:

 

“People regularly taunt me for the way I walk, which has changed due to the muscles in my legs weakening. The perpetrators are usually big groups of men, who like to shout comments or mimic my walk. I’ve been attacked physically once, while at university in Newport. I was on the way to the pub with a group of friends, when a gang of young lads surrounded us on the pavement. My friends were able to run from the scene, but I couldn’t and was kicked onto the floor.

 

“Having been beaten up for being disabled it seemed fair enough to report this to the police. However, they didn’t really seem to care. It took three hours for them to get to the scene and as no one was prepared to act as a witness they said there was nothing they could do.”

 

Beccy Oughton (35) from Lancashire has limb-girdle muscular dystrophy and uses a wheelchair. She tells how after experiencing a violent incident in a nightclub she was reluctant to contact local police. She said:

 

“I was attacked a while ago and decided not to report it to police as I had no faith they would do anything about it. My husband was a DJ at the time, and I often joined him when he was working in clubs. One evening I was approached by a stranger who claimed to know me. She and her friends encircled me. She started claiming loudly that she had been to school with me and that I wasn’t disabled then. Aside from this being utterly untrue, like most muscle-wasting conditions, mine is progressive – I could walk as a teenager but my disability is getting worse the older I get. I tried to diffuse the situation, but she refused to listen. She lunged at me and grabbed my hair, and tried to pull me out of my wheelchair by it. It was only because my husband saw what was happening from the DJ booth and cut the music dead that the bouncers came over to intervene.”

 

Since the attack Beccy’s local police authority has proactively invested resources into tackling disability-motivated crime, leading her to feel greater confidence in reporting incidents. She said:

 

“At the time I didn’t think there was any point in reporting it to the police. I faced this kind of aggression so regularly that it didn’t seem to be worth bringing it up. However, Lancashire police force has done a lot of outreach work since then. I’m now confident that next time it happens people in authority will take it seriously. If the police don’t tolerate disability motivated abuse, then neither do you.”

 

Bobby Ancil, Project Manager of the Muscular Dystrophy Campaign Trailblazers, said:

“It’s disturbing that in 2012 young disabled people are still facing these kinds of offences.

Many of those who tell us about incidents of unprovoked abuse and threatening behaviour have no idea that they have been victims of a “hate crime” in the eyes of the law. People feel that attacks have to be sustained and physical for the police to take them seriously, and that sadly, day to day intimidation and verbal abuse must just be tolerated.

 

“I hope this report inspires the victims of hate crime to report the abuse they face and that the police start working effectively with disabled people’s groups like Trailblazers to put an end to this shameful situation.

 

“If police forces are to regain the trust of young disabled people and tackle the underreporting of intimidation and abuse, we need to see both willingness and ability to do so across each and every police authority. We need a joined up approach.”

I’m Back!

February 27, 2012

I’m back. Offline life has settled down enough for me to return to posting. Look out for the return of Same Difference from midnight tomorrow night.

Best wishes

Samedifference1

 

Motability and Insuring Your Car Under This Program

February 27, 2012

This is a guest post by Miles Schmidt. Thanks to Miles.

Are you looking to purchase a car, but are disabled and worried about the high cost of modifying a car for your use? Those who fall into this category should look into the motability program offered by many UK car dealers. What is Motability? This is a program offered by UK dealers which allows you to drive a new car and use a portion or all of your War Pensioners’ Motability Supplement or Higher Rate Motability Component of the Disability Living Allowance to pay for it. There are no assessments, waiting lists or credit checks making it easy to get behind the wheel again and get back on the road.

There are some requirements that must be met in order to qualify for this program. Not only must you be receiving payment under one of the above programs, but you must receive a certain amount. For the War Pensioners’ program, you must receive at least £57.40 a week. For those who will be making use of a portion of their Disability Living Allowance, this amount drops to £51.40 a week. In addition, you must have a minimum of 12 months of your award length remaining to qualify. For those who are unable to drive under this program, relatives and friends may be able to be the named driver and the same is true if your child is the one who qualifies under the program.

If you believe this program is right for you and you have checked to ensure you are eligible, there are a few other things to consider. Look at the price and fuel consumption among other things. Ask about necessary adaptations and wheelchair accessible models. By doing so, you can feel comfortable knowing that you are getting a car that meets your every need.

Once you have received your car, you will need to have it insured. Many find this to be a difficult task to accomplish. Mainstream insurers often have a difficult screening process and you may encounter those who are not familiar with this program making the entire process even more complicated. When choosing an insurer, look for one who works with participants in the motability program on a regular basis. In addition, you want to ensure that the quote you receive is competitive. Don’t pay more than you have to. With the right insurer, you can be mobile again in a very little time.

Unexpected Break

February 7, 2012

Dear Readers,

Offline life has taken over. I have to take an unexpected break from blogging for a while. I’ll post again as soon as I can.

Until then, I leave you in the very capable hands of Kaliya Franklin, Sue Marsh, Martyn Sibley and Disability Horizons for a fair mix of disability politics and DisAbility lifestyle.

Best wishes,

Samedifference1

Katie Puper’s Sight Restored By Stem Cell Surgery

February 6, 2012

A woman left partially blind in one eye after an acid attack has had her sight restored following stem-cell surgery.

Doctors at the Queen Victoria Hospital in West Sussex took tissue from an anonymous donor, grew it and then stitched it into Katie Piper’s damaged eye.

She told Victoria Derbyshire that the operation has been successful.

‘A Lot Of Disabled People Are Terrified Of DLA Changes’

February 6, 2012

Lady Grey-Thompson, one of the UK’s most successful elite sportswomen and Crossbench peer in the House of Lords, discusses her reservations about the government’s welfare reform bill, how society’s attitudes to disabled people have hardened, and why Paralympians should join the disability rights campaign.

No Shortage Of Jobs, Says Maria Miller

February 6, 2012

A government minister has insisted there is “no shortage of jobs”, blaming unemployment on people’s unwillingness to apply for the work available.

Maria Miller, the minister for disabled people in the Department for Work and Pensions, said on Sunday night she believed the unemployment problem was down to a lack of “appetite” for the jobs on offer.

Her comments are likely to provoke anger among those desperately seeking work with little success. The latest official count of unemployed people stands at 2.68 million, while the figures show the number of new workers being sought by employers in the last quarter of 2011 at 463,000. This is equivalent to around six people for every vacancy in the country.

Recent analysis by the Institute for Public Policy Research found wide variations across the country. In Hartlepool there are 16 jobseekers for every vacancy, while in Middlesbrough there are 12.

But Miller appeared confident the problem lay with people’s unwillingness to take jobs and making sure they know “where those jobs are”.

Asked about unemployment on BBC Radio 5’s Pienaar’s Politics, the minister said: “If you actually look at the facts and the figures, there’s 400,000 jobs at any one point in jobcentres. I was up in the Wirral on Friday talking to one of our local jobcentres there and there isn’t a shortage of jobs. What there can be is a lack of an appetite for some of jobs that are available, so we’ve got to make sure people have got the right skills, that they don’t see a risk in moving into employment and that this is actually not just a choice but it’s actually the route they are going to take. So I don’t think it’s a lack of jobs at the moment, I think it really is making sure that we’ve got people knowing where those jobs are.”

She continued: “Every family should be a working family. I think it’s not so much workshy as have people got the right skills? Can we overcome their fear of the risk of going into work, or indeed, some of the fear of the problems that it will create for the rest of their family … it’s not just about that individual, it’s about their family as well, and it’s not just about skills, it’s getting them to be not afraid of taking on that job.”

When those classed as “economically inactive” – not looking for work for a variety of reasons – are factored in, the figure for those out of work and below the age of retirement swells to 9.29 million. This includes those claiming out-of-work disability benefits.

Miller said it was important for the government to reform the welfare system to ensure those who wished to work could. She said the benefit cap was vital to reduce the unsustainable level of benefit payments, but that measures would be introduced to ensure vulnerable people were protected.

“It’s absolutely right that we have to be sure that all of the reforms we put in place are fair and there are some very clear exemptions when it comes to the benefit cap for anybody who’s in receipt of disability living allowance or the successor the personal dependence payment. What’s important is that we also recognise that many disabled people do want to be able to get back into work. Half of disabled people do work at the moment; many more would like to. So it’s absolutely right that we should be structuring our welfare system to support people to be able to do that.

“So whether it’s through the universal credit, which will remove that cliff-edge – an immense risk that disabled people face at the moment when they go back into work, putting in place the work programme, or indeed work choice which gives specialist support, all of that can help remove disabled people from that feeling of being trapped into welfare dependency.”

‘You Don’t Look Disabled’

February 6, 2012

At 24, Holly Ferrie has to cope with disruption to her life on a scale few of her age could recognise. A complex and as yet not fully diagnosed arthritis-related condition causes her almost constant pain in her legs and feet. On occasions, her legs are seized by agonising spasms.

Yet Ferrie fears she doesn’t seem disabled enough. People who don’t know her, she says, find it hard to comprehend the severity of a condition that afflicts someone so young and is not immediately obvious. “They either get very confused or think I’m faking, or say, ‘I hope the injury gets better soon’, things like that,” she said. “I’ve lost some friends over it. Pain is invisible and hard for people to understand.”

Such attitudes, Ferrie contends, have become more common and more vehement since the government began arguing for wholesale reductions in disability-related benefits on the basis that many were falsely claimed or received by people who were exaggerating their symptoms or whose health had improved.

Another cruel paradox is that she has never qualified for such benefits, even when housebound for six months when her condition first became severe in late 2009. She now has a well-paid job as a web developer for Surrey University in Guildford. “It’s really upsetting to become part of this group and then find yourself vilified,” she said. “The most annoying thing is that I pay quite a high rate of tax and people seem to think I’m a scrounger. People don’t seem to be getting the message that not all disabled people are out of work.

“I’ve found that as my health has improved and these government messages have been getting stronger, I’ve been getting more abuse. When you’re using a walking stick and clearly stumbling people are more likely to help you. But if you don’t look like you’re in pain people are more likely to attack you. I’m almost scared of looking healthier, because people won’t believe me.”

Ferrie says she is most likely to be insulted or abused on the street after a media article on supposed welfare abuse by the disabled. On a recent occasion, a group of students refused to share a taxi with her, she recounts. “After the next articles came out I tweeted, ‘I wonder how long it’s going to be this time before someone says or does something to me?'”

It took five days. On another occasion, she was rushing for a bus about to depart from a bus garage when her way was blocked by a staff member standing in the vehicle’s doorway. “I said to her, ‘Excuse me, can I get on the bus please?’. She looked down at my stick, looked up at my face and said, ‘No. You should have walked faster.'”

Ferrie explained why she could not move more quickly, and met a response dripping with more scepticism: “Oh, really?”

“In the end I had to push past her,” Ferrie said. “I burst into tears on the bus. I couldn’t believe someone would say that to me.” Mark Mayer, 38, from Dorking in Surrey, says he faces a similar problem in that his cerebral palsy is not always immediately obvious. In recent months he has found himself increasingly challenged when using disabled parking spaces or other facilities.

“I’ve had people say, ‘You don’t look disabled’. I’ve had people asking to look at my blue badge to make sure it’s mine. I know people who won’t park in a disabled bay anymore because they don’t look disabled. It’s more noticeable now. Every time it happens I ask myself if I’m making a mountain out of a molehill, but not so long ago I don’t think I had to deal with this stuff.”

Benefit Cuts Causing Increased Abuse Of Disabled People, Say Charities

February 6, 2012

The government’s focus on alleged fraud and overclaiming to justify cuts in disability benefits has caused an increase in resentment and abuse directed at disabled people, as they find themselves being labelled as scroungers, six of the country’s biggest disability groups have warned.

Some of the charities say they are now regularly contacted by people who have been taunted on the street about supposedly faking their disability and are concerned the climate of suspicion could spill over into violence or other hate crimes.

While the charities speaking out – Scope, Mencap, Leonard Cheshire Disability, the National Autistic Society, Royal National Institute for the Blind (RNIB), and Disability Alliance – say inflammatory media coverage has played a role in this, they primarily blame ministers and civil servants for repeatedly highlighting the supposed mass abuse of the disability benefits system, much of which is unfounded.

At the same time, they say, the focus on “fairness for taxpayers” has fostered the notion that disabled people are a separate group who don’t contribute.

Scope’s regular polling of people with disabilities shows that in September two-thirds said they had experienced recent hostility or taunts, up from 41% four months before. In the last poll almost half said attitudes towards them had deteriorated in the past year.

Tom Madders, head of campaigns at the National Autistic Society, said: “The Department for Work and Pensions is certainly guilty of helping to drive this media narrative around benefits, portraying those who receive benefits as workshy scroungers or abusing a system that’s really easy to cheat.”

He added that ministers such as the work and pensions secretary, Iain Duncan Smith, were being “deeply irresponsible” in conflating Disability Living Allowance (DLA), which helps disabled people hold down jobs, and Employment and Support Allowance (ESA), a payment for those unable to work. This “scrounger rhetoric” was already having an impact on people’s lives, Madders said, citing a woman who rang the charity to say a neighbour who formerly gave lifts to her autistic child had stopped doing so following press articles about disabled people receiving free cars under a government scheme.

Some disabled people say the climate is so hostile they avoid going out, or avoid using facilities such as designated parking bays if they “don’t look disabled”.

The government has committed to making significant cuts to disability benefits, including a 20% reduction in the DLA bill by 2015/16. Much of its public focus has been on alleged fraudulent claims or cutting benefits to those whose conditions have improved.

Charities point to a series of ministerial statements arguing that the “vast majority” of new ESA claimants are able to work, while the disabilities minister, Maria Miller, said last month that £600m of DLA was overpaid each year, not mentioning that a greater sum is saved by others not receiving what they are due.

This is “playing directly into a media narrative about the need to weed out scroungers,” said Richard Hawkes, chief executive of Scope. “Our polling shows that this narrative has coincided with attitudes towards disabled people getting worse.

“Disabled people tell us that increasingly people don’t believe that they are disabled and suddenly feel empowered to question their entitlement to support.”

David Congdon, head of policy at Mencap, said the charity feared where this could lead. “We are concerned that this narrative of benefit scroungers or fakers connected to the welfare reform bill does risk stigmatising all people with a disability,” he said. “The worry would be that this could lead to an increase in resentment against disabled people, and even an increase in hate crimes.”

There was “an incredibly strong focus on benefit fraud within the DWP”, said Guy Parckar, policy manager for Leonard Cheshire. “It is mentioned at all possible opportunities. Of course, whenever there is fraud you want that to be tackled, but there should be some serious thought given to the long-term impact that this has. There is the impact of potential hate crime, and issues around that.”

Neil Coyle, head of policy for Disability Alliance, said his organisation was being told of increasing levels of verbal abuse, and worried this could lead to attacks.

“There’s a lot of concern that the level of abuse and harassment goes unrecorded because it’s seen almost as a norm. It seems to be growing as a result of a mis-perception of much more widespread abuse of benefits than actually exists. That’s being fed by the DWP in their attempts to justify massive reductions in welfare expenditure.”

A DWP spokeswoman said the department was committed to supporting disabled people but needed to “do more to change negative attitudes”, and had begun a cross-government consultation on tackling discrimination.

She said: “Our welfare reforms are designed to restore integrity into the benefits system and to ensure that everyone who needs help and support receives it.”

David Gillon from Chatham in Kent, said: “I think we’ve lost all the progress we made in the last 30 years in terms of acceptance.” Gillon, whose chronic back condition forced him to give up a job with British Aerospace, recounts walking on crutches past a pub in the middle of the day and receiving shouts of: “We’re going to report you to the DWP.” He said: “When there’s a bad article in the press, the next day you think, ‘Do I really need to go out of the house?’ We’re being forced back into the attic, locked away from society.”

Fazilet Hadi, head of inclusion for the RNIB, said she also felt the tone was set by ministers: “I think they should be more careful. At the moment it feels like the government is not on the side of disabled people. Most people don’t have that much exposure to disabled people. They don’t see us in the lifestyle pages, they don’t see us in the fashion pages. The only reference they see is in these stories. And that’s why the language is so important.”

My Experience In The #uksnow #disabilitysnow

February 5, 2012

I have just had the most interesting, unusual night. We got all dressed up to do the Saturday supermarket shop, but when we stepped outside we were greeted by slushy, snowy, watery stuff. If you’ve been watching the weather forecast this weekend, you’ll know this was not unexpected altogether- it just reached London a little earlier than we expected.

So, we made it to the supermarket, made a few other stops, and all was going well until we got about halfway home. That was when we got stuck in the white stuff. We had to go back where we came from, park at a safe spot and get a lift.

Luckily we made it safely home about 6 hours after leaving, but one thing I’m very sure of. It’s no fun being out in heavy snow, especially when you’re DisAbled.

So, if you must go out in it, please don’t go out in it alone.

Please leave your thoughts, tips and snowy experiences in the comments below. And stay safe, readers.

ASA Bans Christian Group’s ‘God Can Heal’ Adverts

February 4, 2012

I, for one, am glad these adverts were banned. They were insensitive.

A Christian group has been banned from claiming that God can heal illnesses on its website and in leaflets.

The Advertising Standards Authority (ASA) said it had concluded that the adverts by Healing on the Streets (HOTS) – Bath, were misleading.

It said a leaflet available to download from the group’s website said: “Need Healing? God can heal today!”

The group, based in Bradford-on-Avon, Wiltshire, said it was disappointed with the decision and would appeal.

HOTS Bath said its vision was to promote Christian healing “as a daily lifestyle for every believer”.

‘False hope’

The ASA said the leaflet read: “Need Healing? God can heal today! Do you suffer from Back Pain, Arthritis, MS, Addiction … Ulcers, Depression, Allergies, Fibromyalgia, Asthma, Paralysis, Crippling Disease, Phobias, Sleeping disorders or any other sickness?

“We’d love to pray for your healing right now!

“We’re Christian from churches in Bath and we pray in the name of Jesus. We believe that God loves you and can heal you from any sickness.”

The ASA said it had been alerted to the adverts by a complainant, and concluded that they could encourage false hope and were irresponsible.

HOTS Bath said: “It seems very odd to us that the ASA wants to prevent us from stating on our website the basic Christian belief that God can heal illness.

“All over the world as part of their normal Christian life, Christians believe in, pray for and experience God’s healing; our ministry, in common with many churches, has been active in praying for God’s healing (of Christians and non Christians) for many years.”

The group said it had tried to reach a compromise, “but there are certain things that we cannot agree to – including a ban on expressing our beliefs”.

The Healing On The Streets ministry was started by Causeway Coast Vineyard church in Coleraine, Northern Ireland, in 2005 and has been taken up by dozens of churches across the UK.

 

David Peaston Dies

February 3, 2012

R&B and gospel singer David Peaston, best known for the tracks Two Wrongs (Don’t Make it Right) and Can I?, has died aged 54.

His niece Neuka Mitchell, said the star passed away on Wednesday from complications of diabetes.

The musician, who had a string of hits in the late 1980s and early 1990s, came from a family of successful singers.

His mother Martha Bass sang with the Clara Ward Singers and sister Fontella Bass had a top-10 song in 1965.

Peaston kick started his career after winning several competitions on the Showtime at the Apollo TV show in the 80s.

Two Wrongs was his highest charting single, reaching number three in 1989.

In 1990, Peaston beat off competition from the likes of Soul II Soul to win a Soul Train Music Award for Best R&B/Soul or Rap New Artist.

In 2006, after a period of ill health caused by his illness – which led to both his legs being amputated, he returned to music with the album, Song Book: Songs of Soul & Inspiration.

Peaston is survived by his wife and two sons.

Deaf Teens: Hearing World

February 3, 2012

Insightful documentary by director Claire Braden about five deaf teenagers as they take their first steps into the hearing world. It follows some extraordinary young people who have some extreme and surprising attitudes towards their deafness. It highlights how not all deaf teens want to be able to hear and are often defiant against being part of the hearing world, but also the lengths some deaf teenagers will go to to improve their hearing.

Sara and Asher wouldn’t choose to hear even if they had that option; they are fully deaf and proud of their deaf culture. Not only do they not hear, but they also don’t speak. This makes Sara’s first days at university a real challenge, as she feels isolated and worries that her two support workers make her look like she has ‘special needs’. 19-year-old Meghan feels she has hit a brick wall in terms of her deafness and desperately wants to hear more. We are there as she undergoes a life-changing operation to have a cochlear implant fitted which should radically improve her hearing. But the operation doesn’t come without its risks and falls the week before she starts at university – a fully-hearing environment. Jake and Adam are identical twins, with one difference setting them apart – Adam is hearing but Jake is profoundly deaf. Adam and Jake have their own one-handed form of sign language and Adam isn’t afraid to ask Jake the tough questions over whether deaf couples should have deaf children or what jobs deaf people should be allowed to do. Christianah is entering her final year at her specialist deaf school where she and her friends have a very sassy attitude to their deafness, being quick to deride anyone who won’t take them seriously. It is their last year of living in a safe, deaf environment and the nerves are beginning to set in.

The film highlights the difficulties deaf teenagers face when they enter the big, wide hearing world for the first time – providing a fully-immersive experience which illustrates what it’s like to go to a music festival and not hear the music, how hard it can be to keep up with conversations and make friends, but also the joy of silence.

The King’s Speech Takes To The Stage

February 3, 2012

Almost a year after the film reigned supreme at the Oscars, The King’s Speech has finally made it to the stage.

A packed house at the Yvonne Arnaud theatre in Guildford, Surrey, gave the play a rousing reception at its world premiere on Thursday night.

Playwright David Seidler called it “the fulfilment of a very long dream”.

Seidler originally wrote his story about King George VI for the stage before he developed the screenplay.

Seidler went on to win an Oscar and Bafta for best screenplay for The King’s Speech in 2011.

But the play has never actually been performed until now.

The film starred Colin Firth as Bertie, the king who conquered his debilitating stammer with the help of maverick Australian speech therapist Lionel Logue (Geoffrey Rush).

In this stage version, the lead role is taken by Charles Edwards, with Australian-born Jonathan Hyde as Logue, and Emma Fielding as Queen Elizabeth.

Joss Ackland plays King George V and Ian McNeice is Winston Churchill. The play is directed by former RSC artistic director Adrian Noble.

Speaking exclusively to the BBC after the premiere, Seidler – who himself had a childhood stammer – said it had been a “very emotional night”.

“When I was a very young boy in the late 40s, my grandfather would take me to the Golders Green Hippodrome to see these wonderful creaky old British plays in which the diva and the leading man would swoop on stage and stand in the spotlight.

“To me, as a little boy of eight or nine years old, it was absolute magic and I thought, ‘I really want to be part of that world’ – which was a strange ambition for a boy who stuttered and couldn’t talk.

“Well, that little boy got a big thrill tonight.”

Plans to bring the play to the stage were in place before the film became a huge international hit, making $414m (£261m) at the global box office.

Seidler said he had no second thoughts about staging the production so soon after the film’s success.

“This is what I’ve always wanted,” he said. “I had always envisaged the film as being something that would give me a little bit of money so I could help get this on the boards.

“I don’t want to sound ungrateful, and I’m not, I’m so very pleased and happy the film did as well as it did. Winning an Oscar is just a wonderful thing to happen – certainly at my age – but this is what I wanted. This to me is more fulfilling than all the movies in the world.”

The stage version of The King’s Speech allows Seidler to explore characters and themes more deeply than Tom Hooper’s film.

“There is now a fully fleshed out relationship between Lionel and his wife Myrtle that didn’t exist in the film,” he said. “The stage version has a great deal more of the politics and I think a great deal more humour – it’s a richer canvas.”

Seidler began researching his storyline for The King’s Speech throughout the 1970s and 80s but abandoned it after the Queen Mother asked him not to pursue the project during her lifetime.

After the Queen Mother died in 2002, Seidler returned to writing the play. It was in 2005, at a script reading in London, that director Tom Hooper’s mother spotted its movie potential and told him she’d found his next film.

With unconfirmed reports that the Queen had seen and enjoyed the film version of The King’s Speech, would Seidler invite her to see the play?

“Any time Her Majesty would like a house seat, let me know and I will arrange it. I think it’s unlikely, but I would love her to see it – it would be a great honour.”

The King’s Speech is at the Yvonne Arnaud Theatre in Guildford until 11 February. It will then tour to Nottingham, Bath, Brighton, Richmond and Newcastle.

Saddles Stolen From Riding For The Disabled

February 3, 2012

A charity that helps people with disabilities to enjoy horse riding has been targeted by thieves in Dorset.

Three £400 saddles were stolen from the Riding for the Disabled Association stables on Ringwood Road, Ferndown on Tuesday night.

Police said the theft of the specially-adapted saddles will have a “detrimental impact” on the charity’s programme.

They appealed for horse owners to check the security of their equipment.

Blind Man, 52, Registered Blind For 36 Years, Found Fit For Work

February 2, 2012

This is crazy.

As the UK government continues to reform the welfare system, a 52-year-old man registered blind since he was 16 has been telling BBC Wales how he has lost benefits after being assessed as being fit for work.

With incapacity benefit being scrapped, Tony Harris attended a work capability assessment last September to see if he was eligible for its replacement, employment support allowance.

He says he was shocked to be told by letter in December that he was fit for work and not eligible for the allowance.

Mr Harris says he can barely see and can hardly use his hands due to rheumatoid arthritis,

He told BBC Wales political reporter Mark Hannaby he has lost £38 a week and is worried about going into debt and losing his home.

BREAKING NEWS: Guardian Makes Typo, Says Maria Miller Is Employment Minister

February 2, 2012

Read this if you can’t believe your eyes. I couldn’t believe mine either. So, can someone please tell me who the Minister For Disabled People is now then? I hope it’s not Chris Grayling!

I’m going to paste the text below in case the Guardian later corrects the typo:

The coalition has raised the stakes over its welfare bill by overturning seven key Lords amendments passed to soften the reforms, and taken the rare step to direct peers they have no constitutional right to challenge the Commons’ decisions further.

On most bills, the Lords can send amendments back and forth in what is known as parliamentary ping pong. The coalition, deploying a rarely used parliamentary device, claimed “financial privilege” asserting that only the Commons had the right to make decisions on bills that have large financial implications.

It argued that the Lords amendments collectively cut billions of planned savings. A similar tactic could also be used to throw out likely Lords amendments to the legal aid and health bills.

It is for the Speaker on the advice of clerks and the coalition to decide if financial privilege should be applied.

MPs backed the government’s plans for a £26,000 annual cap on overall household benefits including child benefit, overturning a defeat in the Lords. The Lords amendment, which was led by Church of England bishops, was overturned by 334 votes to 251.

The shadow work and pensions secretary, Liam Byrne, said he favoured a regionally based cap, reflecting different housing costs. He refused to say if this would mean the cap would be lower than £26,000 in the north of England.

Labour peers and some crossbenchers argued that the understood convention was that financial privilege only applied to money bills, such as the bill implementing the budget, adding that almost all Lords amendments have some financial consequence for the government.

Lord Hunt of Kings Heath, the deputy leader of Labour peers, said ministers were “hiding behind parliamentary procedure to curtail consideration of the amendments that we passed. If the government continues to do this on these bills, our role as a revising chamber is effectively undermined”.

The former lord chancellor, Lord Mackay of Clashfern, who led the Lords rebellion against charging single parents for using the Child Support Agency, said it was a “waste of taxpayers’ money at a time of considerable austerity” for peers to pass amendments that were subsequently rejected out of hand.

Lord Strathclyde, the leader of the Lords, said the procedure of invoking financial privilege was “well precedented” and “nothing unusual”.

He said: “The matters of privilege are not a matter for the government but a matter for the House of Commons – the Speaker of the House of Commons on advice from his clerks. The position of privilege has been jealously guarded by the House of Commons since 1671.”

He added: “I do not think we waste our time in debating these issues. We do not insist on all the amendments we pass in this House. We send them back to the House of Commons to get the government and the House of Commons to think again. If they have thought again and invoked financial privilege I think we should let the matter rest.”

In the Commons, Menzies Campbell, the former Liberal Democrat leader, was one of four of his party to rebel over imposing a one year limit on means-tested employment support allowance.

His party conference had voted against an arbitrary time limit in the autumn, but Jenny Willott, the party’s social security spokeswoman, voted for the one year limit, arguing that the Lords amendment of two years was also arbitrary. She said evidence showed the work capability assessment, the test used to determine if a claimant qualified for ESA, was improving.

Of the Liberal Democrat peers 12 rebelled on the so-called bedroom tax, for cutting benefit over “under-occupied” housing.

However, a nine-month grace period was announced before the £26,000 cap is imposed for someone made unemployed through no fault of their own, and who was in work for the previous 12 months; and a discretionary £80m fund in 2013/14.

Grayling said: “There is agreement that it is wrong to pay people who do not work more in benefits than people earn on average when they work. The cap sets a firm upper limit to total benefit entitlement which, for families and lone parents, will be equivalent to the average wage for working households”.

At Prime Minister’s Question Time David Cameron repeatedly challenged Labour to support the threshold, saying: “The cap is right and the cap is fair.”

Grayling said the public “overwhelmingly” supported the Government’s stance and accused Labour of being guilty of “flip-flopping” on the issue, initially supporting a benefits ceiling before the party’s peers supported an amendment in the Lords to exclude child benefit from any cap.

The Government also said it would not make any changes to its proposals to force those living in council houses that were bigger than they needed, to move.

The Lords had proposed social landlords could only force a tenant to move to a smaller home if a social landlord could offer alternative accommodation, which was supported in the Commons by Lib Dem deputy party leader Simon Hughes.

But the employment minister Maria Miller said the changes were needed to relieve the pressure on social housing and free up one million empty free rooms to help families in over-crowded accommodation. She said the average cost of the measure would be £14 a week.

In other reforms reimposed by MPs in six hours of debate: people who are recovering from an illness or injury will get contributory Employment and Support Allowance for one year, half the period that the Lords decided.

The limit would also apply to some cancer patients, despite moves by peers to exempt sufferers from the time limit.

Commons Votes Overturn Lords #WRB Amendments

February 2, 2012

My dear friends, we have some very scary people running our country.  All I can say is that David Cameron is very, very good at keeping his personal and professional lives separate, because even Ivan would not have escaped this lot.

Welfare Reform: The Dread Of Things To Come

February 1, 2012

Just a quick plug for this new e-book from Soundings:

ebook coverWelfare Reform The dread of things to come
The contributions to this short ebook have been written in the moment of political campaigning. They bear witness, employ argument and offer statistical evidence to challenge the way both Labour and the Coalition governments have designed and implemented welfare reforms.

Contributors: Peter Beresford, Declan Gaffney, Kaliya Franklin, Steve Griffiths Sue Marsh, Jonathan Rutherford

It is free to view online.

Syndrome Without A Name

February 1, 2012

A mother from Stafford is trying to raise the profile of a genetic condition that means her daughter has barely developed since she was four months old – and is unlikely ever to walk or talk.

Emma Hawley’s youngest daughter, Jessica, now 18 months old, has a condition which has come to be known by the generic term, Swan, which stands for Syndrome Without A Name.

The number of children affected is not known, but Mrs Hawley is calling on members of the public, and even doctors, to be made more aware of the problem.

She said she sensed early on there was a problem with her daughter.

“She just stopped developing. She just fell off all of her weight charts and used to just lie there in a world of her own.

“By four of five months, you start expecting them to smile and follow you round a room.

“I starting doubting whether it was myself thinking there was a problem, and as a family, you don’t like to admit to each other that you think there’s something wrong.”

‘Constant emotional rollercoaster’

Doctors initially said Jessica had reflux and prescribed medication but after six weeks Jessica was still no better.

By this point, Emma was extremely concerned; having had one child already, she knew that Jessica hadn’t reached some of her important baby milestones.

Jessica endured numerous tests to see if medical experts could find out what was wrong, but all came back negative.

Finally, they decided to take Jessica to a private consultant who arranged for an MRI scan, which showed there was something wrong; and that Jessica may never walk or hold a conversation.

Swan UK is a charity that offers support and information to families of children with undiagnosed genetic conditions.

“You have no idea what the future holds for a child,” said Lauren Roberts, from Swan UK.

“If you don’t have a diagnosis, you don’t know if they’ll ever walk, or talk, or what their life expectancy might be.

“You spend your whole life going through this constant emotional rollercoaster of test after test coming back negative and no-one being able to give you any answers.

“They can have their entire genetic code sequenced, but we still can’t find the root of the problem.

“It’s mainly because it’s such a tiny change in their genetic code that doesn’t get picked up in the tests.”

Ms Roberts said the charity had been going for six months and they were already helping more than 250 families.

“It’s estimated that for children with learning difficulties somewhere between 30 to 50% might have a condition that’s unknown.

“When families come to us, it’s often common themes: they feel incredibly isolated, they feel like they’re living in this kind of limbo-land because no-one can give them any answers.”

Mrs Hawley has taken Jessica to baby swimming classes since she was five weeks old. As a baby swimming instructor, she realised this was one way that she could help Jessica.

Raise awareness

Without a diagnosis or treatment plan, she could not make her daughter better, but getting her in the pool and floating in the water, she thought she could at least aid Jessica’s muscular development.

“Being weightless in the water, Jessica is able to float and paddle easily. She finds it hard to put weight on her legs on land, but in the water she is equal to other children her own age.

“It is such a relief to see her in the water, floating and enjoying splashing about without a care in the world, just like any healthy child.”

The couple remain optimistic and continue to fight to find out what is wrong with Jessica, however they are beginning to come to terms with the fact that they may never find out.

But they hope to raise awareness of the condition in medical circles and to help other families suffering similar experiences.

“We went to Birmingham’s Children’s Hospital in December and we saw the paediatric consultant there, and I said ‘she’s got a Swan, a syndrome without a name, and he went ‘Oh I’ve never heard of that one.'”

“At the moment I’ve got nothing to research… Google’s a lovely thing, but it’s also a bad thing, because you just latch onto anything.”

Disability Charity’s Bus Stolen In Manchester

February 1, 2012

A Greater Manchester charity that transports people with disabilities has been left “sickened” and “let down” after thieves stole its minibus.

The white 10-seater bus, owned by Trafford Wheelers, was taken from outside a house in Derbyshire Lane, Stretford, between 02:00 and 07:00 GMT.

Police said it has logos on it and is easily identifiable.

Charity manager Helen Hines said: “I am just so sickened someone would take it. It is obviously for disabled people.”

The Citroen minibus, which has rear wheelchair access, was bought by the charity using grants and fundraising.

‘Let people down’

“We call it a minibus, but it is basically an ambulance. We used it to transport people who cannot get around by themselves,” Miss Hines continued.

“We have already had to let people down today, who have now had to stay at home. Their families have had to arrange care or stay off work to look after them.”

Trafford Wheelers is a cycling-based charity that transports people with disabilities to various parks, trails and venues so they can ride.

Police have asked anyone with information to contact them.

Train Hits Mobility Scooter Woman At Station

February 1, 2012

A woman is believed to have escaped with minor injuries after her mobility scooter fell on to a railway track and was hit by a train.

The incident happened at about 14:30 GMT at Barnsley railway station in South Yorkshire.

British Transport Police said although the full extent of her injuries is not known, it is thought she escaped with minor injuries and shock.

The woman was freed by the fire service and airlifted to hospital.

EasyJet’s Profits Come At Too High A Price

February 1, 2012

For disability rights campaigner Tanvi Vyas, considering the way the airline treats disabled people. I must add that I sincerely agree with every word of her Comment Is Free article.

Government’s Seventh #WRB Defeat In Lords Over Children’s DLA

January 31, 2012

The government has suffered a seventh defeat in the House of Lords over proposed changes to the welfare system.

Peers rejected plans to cut some of the benefits given to children on the lower rate of Disability Living Allowance.

Ministers had wanted to reduce the amount of money paid to disabled children who do not need care at night – such as the profoundly deaf or those with Down Syndrome.

But peers voted down the proposals by 16 votes.

The government has suffered a series of defeats in the Lords, principally on its proposed £26,000 cap on total benefits for families and proposed changes to employment and support allowance for cancer patients.

Ministers have insisted that they will seek to reinstate the proposals when MPs reconsider the plans – starting on Wednesday.

Ahead of Tuesday’s vote, the government said the proposed change to Disability Living Allowance would help to direct more support towards the most severely disabled who do need round-the-clock care.

But critics argued the change would see many families losing as much as £1,400 a year.

Labour Should Thank Goodness For Councillor Andrew MacKenzie

January 31, 2012

And his weekend Tweets about disabled protestors, says J C Duncan.

Former Soldier Chris Gwilt, Now Deaf, Joins Mount Everest Group

January 31, 2012

A former soldier from Lincoln has joined a group of injured servicemen who are training to climb Mount Everest to raise £2m for the charity Walking With The Wounded.

Chris Gwilt, who lost his hearing in a grenade attack while serving in Afghanistan in 2009, said he wanted to make more people aware of injured and disabled soldiers.

Singing Teacher Has Rare Speech Disorder

January 31, 2012

A singing teacher, who once auditioned for the Spice Girls, is trying to raise awareness of the rare neurological condition that’s paralysed her voice box.

Lianne Morgan, from Cowbridge in the Vale of Glamorgan, is still able to sing but she finds speaking very difficult.

She has been diagnosed with Spasmodic Dysphonia – and plans to set up a self-help group for fellow sufferers.

Nick Palit reports.

Erin Brockovich And The Mystery Illness

January 31, 2012

No, readers, it’s not a sequel to the 90s Hollywood movie. This time, I’m talking about the real life environmental activist Erin Brockovich, who is trying to solve the mystery of an illness at a New York high school. It sounds and seems like a severe form of Tourettes to me- what do people think?

On a lighter note, perhaps it might lead to a sequel!

High school students in the small community of Leroy, New York State, have been coming down with strange tics and verbal outbursts, with no obvious cause.

Some medics believe their symptoms are brought on by mass hysteria, but now environmental activist Erin Brockovich has said she believes a toxic chemical spill 40 years ago could be to blame for the mysterious illness.

The BBC’s Laura Trevelyan reports.

London 7/7 Survivor Daniel Biddle Creates Access App

January 31, 2012

He first featured on Same Difference in 2010. It’s lovely to read this.

A severely injured survivor of the 7/7 bombings has created a smartphone app to help people with disabilities travel around London more easily.

Daniel Biddle lost both his legs, spleen and left eye after a bomb exploded on a tube train in July 2005.

His Ldn Access app details step-free access, ramps and usable toilet facilities at thousands of venues.

Mr Biddle says he created it after finding that his wheelchair had made many venues become inaccessible.

“What happened on 7/7 robbed me of the ability to just go anywhere,” he said.

“I can think of numerous instances where I’ve stopped somewhere to use the toilet or gone to a restaurant only to find it is impossible. There is such a lack of useful information for people in a wheelchair, those with learning difficulties or people with a visual or hearing impairment.”

Icon controls

Venues covered by the program include hotels, theatres, restaurants, pubs and attractions.

The app was created with the help of Mr Biddle’s friend Tobi Collett.

It works by using location-based technology to pinpoint where a user is, providing intuitive icons and simple terminology to make their choices from, breaking down bigger categories such as restaurants into smaller specific ones such as Chinese or Indian.

Tapping the icons brings up the information needed to make an informed choice as to whether a destination will meet the needs of the user’s disability.

Mr Biddle said: “We made the app very intuitive because someone with dexterity problems, or arthritis in their hands, may not be able to type out long words. It’s just a simple push on a simple icon.”

The app also contains a section devoted to the Olympics, with accessibility information for each venue and nearby places to visit.

It also works offline, meaning even being underground on the Tube is no barrier to knowing where it is possible to get off easily.

Improved access

The two friends first came up with the idea nearly a year and half ago, after which they provided the necessary information to a professional coder.

“We had to identify which venues we wanted to list based on location and accessibility, then use each venue’s website and a telephone access audit where necessary,” said Mrs Collett.

“To double check we then took to the streets and visited random locations listed in the app.”

The program differs from other related apps on the market, including Parking Mobility and Toilet Map, because it is not limited to specific tasks such as where to find a disabled parking bay or an accessible public lavatory.

Instead there it offers a wider range of access information covering everything from bingo halls to the Wembley Arena.

The Leonard Cheshire Disability charity is already involved with another app – Do Some Good – which allows people to rate the accessibility of their local high street, but it welcomed the idea of other developers offering associated software.

“A directory of accessible places is a very useful tool. 40% of disabled people that we surveyed reported they’d had difficulties using shops and services in the past year,” said Guy Parckar, the organisation’s campaigns manager.

At present Ldn Access only works on Apple’s iOS devices after becoming live last night on the tech firm’s App store.

But Mr Biddle and Mrs Collett hope to reinvest money earned from downloads to create versions for Blackberry, Android and Windows Phone, as well as similar programs for other cities across the UK.

“With this app we hope to use the latest technology to change people’s mindsets and show how the disability isn’t the problem, the lack of access is the problem,” said Mr Biddle.

“Technology can be great for improving independence and we hope this allows the disabled to decide what they want to do, and just go out and do it.”

Spending Cuts May Affect Warwickshire’s Deaf Pupils, Says Charity

January 31, 2012

Deaf children in Warwickshire may fall behind in school as a result of funding cuts, a charity says.

The county council has begun charging schools for specialist support for deaf pupils with “lower levels of need”, a Freedom of Information request found.

The National Deaf Children’s Society (NDCS), which put in the request, fears the pupils’ education will suffer as schools cannot afford the extra funds.

The council said it was carefully monitoring any impact of the changes.

NDCS and parents of some of the pupils have launched an online petition calling for the council to reverse the move.

The charity says the change affects 100 out of 230 deaf pupils in the county and means at least 63 schools will not receive additional funding for specialist staff.

‘Highest needs’

Jo Campion, deputy director of policy and campaigns at NDCS, said: “The support that deaf children need in schools is not a luxury.

“This isn’t an optional extra that you can just have when you want it – it’s essential support that deaf children need in order to learn.”

She said deaf children were already underachieving at school and said 74% in the region failed to get five good GCSES.

The council said it had to focus its resources on children and young people with the highest needs, whatever their need or disability.

“The council is committed to providing support to deaf children who are not yet in school and those in school with higher levels of need from the council’s own resources in line with our statutory responsibilities,” a spokesman said.

“It is the responsibility of schools to provide for children with lower levels of need and schools are developing their skills and expertise to do so with the opportunity to buy additional support from the council if required,” he added.

The council said it was soon to meet NDCS representatives to discuss its provision, which it was closely monitoring.

Hollyoaks Searching For Actor To Play Deaf Teenager

January 30, 2012

Hollyoaks producers have begun searching for an actor to play a new deaf character.

The Channel 4 show’s bosses are casting for 16-year-old Mikey, who will initially appear as a guest on the soap, Digital Spy reports.

The character – who could become a permanent fixture in future – is also set to be at the centre of an online spin-off which will tie into his TV role.

A web advert for the part reveals: “Hollyoaks is looking for a deaf actor over 16 years old. This is a brilliant role for a young deaf actor.

“After a few initial episodes, the role will feature heavily in ground-breaking online material, before returning to the show and potentially becoming a regular character.

“Actors can be fully or partially deaf, must be able to communicate in sign language, and must be either 16 or older and able to realistically play 16.”

Student Almost Blinded By Fake Vodka

January 30, 2012

 

In November, Sheffield University student Lauren Platts bought a cheap bottle of what she thought was vodka, for £5.99.

She says the man in the off-licence jokingly said ‘It will blind you’. Miss Platts said she laughed at the time but now she thinks he was not far wrong.

After drinking about a third of a bottle mixed with lemonade she spent the next two days unable to get out of bed.

After speaking to Trading Standards officers, she now knows it was not vodka at all.

“I had the worst migraine ever, I was extremely sick, with blurred vision. On the second day I wondered whether I’d ever get better.”

Two months on and the 21-year-old from Chesterfield in Derbyshire still has blurred vision and regularly loses peripheral vision.

“I’ve been sent home from work because of the vision problems. It’s really scary. I think I might have it for good, but I’m just grateful to be alive or not completely blind,” she said.

Miss Platts now knows what she drank was industrial alcohol.

Often methylated spirit is mixed with bleach to change the colour of the alcohol, so it resembles vodka.

Other chemicals like isopropanol, used in cleaning fluids, and chloroform, used in pesticides, have also been found in bogus brands.

Police and Trading Standards say the illegal industry is becoming more sophisticated.

In Boston, Lincolnshire, in July, five men died in an explosion at an industrial unit. Police later confirmed they had found a filtration plant for making fake vodka within the small building.

Miss Platts’ symptoms are classic signs of someone who has consumed methanol and other chemicals, often used by illegal brewers.

She is among a growing number of vodka drinkers, especially students, who are seeking out cheap brands. Universities in Sheffield and Leeds reported a spike in counterfeit alcohol in student areas in November.

The student welfare officer at Sheffield University, Matt Denton, said they had posted warnings on their website.

Students have described feeling extremely ill after drinking what they thought was cheap vodka, and some have suffered memory loss.

Trading Standards teams across the country say they are seizing illegal alcohol every week.

A consultant at Lincoln County Hospital, Vikas Sodiwala, said patients were turning up at casualty departments showing similar symptoms to Miss Platts – dizziness, nausea, stomach pains, vomiting and blurred vision.

He said they had bought it at off-licences, drank it at a party, or even got it from car boot sales.

“Methanol can attack the optic nerve at the back of the eye. This is what can affect a person’s vision and in some cases make them blind,” he said.

“I’m hearing this is now a nationwide problem and other colleagues in the East Midlands are reporting an increase in patients who don’t realise they’ve consumed industrial alcohol not vodka.”

A spirits industry expert has warned the bootleg factories where the fake vodka is made are a disaster in the making.

Ed Binsted, president of the British Bottlers Institute, said: “These places are like timebombs. Look at what happened in Boston with the five men who died in the unit there where fake vodka was found.

“These places are popping up all over the country. The industry needs to be one step ahead of the bootleggers – they’re getting better at forging the bottles and labels. But the contents are lethal.”

Miss Platts’ story is featured on BBC Inside out in the East Midlands, at 19:30 GMT on Monday.

Three Thousand Posts

January 30, 2012

It’s hard to believe I’m writing this, readers. After four and a half years, this is this blog’s 3000th post!

I am pleased to say it continues to grow every day. I just wanted to take this chance to send out a big thanks to each and every one of you.

With best wishes as always

Samedifference1

:Lib Dems Must Listen To Members On #WRB

January 30, 2012

Says Lib Dem blogger George Potter at Comment Is Free.

Disabled People Encouraged To Use Trains

January 30, 2012

Personally, I rarely use any public transport, as it is physically impossible unless someone is with me. But I thought this might interest some of you.

There has been an increase in the number of passengers with disabilities who are choosing the rail network to get around.

The industry says it is because of so many improvements made to stations and trains over the past decade, but it also understands that more needs to be done.

The BBC’s Graham Satchell has been testing some of the changes.

Rod Liddle’s Attack On Disability Cannot Be Ignored

January 30, 2012

Says Frances Ryan at Comment Is Free.

Photos From The March For The Invisible

January 30, 2012

 

https://twitter.com/#!/Pete_Riches/status/163901496096854016

Best Of The Rest: A Round Up Of Posts On The March For The Invisible

January 29, 2012

Here’s a little round up of blog posts on yesterday’s March For The Invisible in London. If you took part, please let us have a link to your post to add to this list.

‘Unwashed’ Disabled Protestors Should Move To North Korea, Tory Councillor Tweets

January 29, 2012

This is one of those rare times when I break my own comments policy and swear. In all seriousness- what the Hell?

(Thanks to Sunny Hundal).

March For The Invisible Blocks Oxford Circus

January 28, 2012

Disability activists and UK Uncut stop traffic for two hours, chaining themselves together across Regent Street in a demonstration against the welfare reform bill.

The BBC Covers The March For The Invisible In London Today

January 28, 2012

Activists campaigning for people with disabilities are carrying out what they are calling a “disruptive act of civil disobedience” in London today to protest against the government’s Welfare Reform Bill.

The campaigners from disability groups and the group, UK Uncut argue that the new policies will cause hundreds of thousands of families to lose their homes or become “imprisoned” inside.

The government argues that the universal credit will create a simpler and fairer system of support for disabled people.

Adam Lotun from the campaign group Disabled People Against Cuts spoke to BBC Breakfast about why he is attending the protest.

Right To Die Man ‘Martin’ Wins First Step Of Case

January 27, 2012

I covered his case last year. This is an update.

A man who was virtually paralysed by a stroke has won the first step in his legal bid to pursue his right-to-die.

Known only as Martin, he would require professionals to help as his wife has said she will not assist him.

But current guidance suggests they may be prosecuted, where loved ones would not, and Martin’s case is this discriminates against him.

This High Court judgement means lawyers and doctors can discuss assisted dying with him, but only to prepare his case.

Third parties

In the High Court, two senior judges – Lord Justice Toulson and Mr Justice Charles – said it was a “tragic case” which raised legal and ethical issues.

They said that, in order to prepare his case properly, his team needed to be able to talk to individuals or organisations – including Dignitas in Switzerland – which might be able to assist Martin, 47, in ending his life and to take statements from him.

They permit those discussions for the “broad purpose” of “stating that the solicitors may obtain information from third parties and from appropriate experts for the purpose of placing material before the court and that third parties may co-operate in so doing with out the people involved acting in any way unlawfully”.

Rosa Curling, from solicitors Leigh Day & Co who are representing Martin, said: “We are grateful for the court’s judgment handed down today, which confirms that we can press ahead with the preparation of our client’s case without fear of criminal and/or disciplinary action being taken against us.

“Martin has made clear to us that he wishes to end his life and, thanks to the judgment handed down today in the High Court, we can now proceed with preparing his legal claim.

“We can instruct doctors to advise him on his options regarding his wish to die and also take steps to identify an individual who might be willing to assist him in taking his life.”

However, Martin’s lawyers made it clear the ruling was specific to this case.

Full-time care

Before Martin’s stroke in 2008 , he was a keen rugby player and cyclist. But he is now immobile, only able to move his head and his arms, toes and throat slightly and relies on full-time carers.

He cannot speak and relies on a computer to communicate.

Martin wants to go to the Dignitas centre in Switzerland in order to die, but would need help from others to do so.

Assisting suicide is against the law but in 2010 the Director of Public Prosecutions published guidance for use by prosecutors in England, Wales and Northern Ireland.

The guidelines have been interpreted as providing some reassurance to family members who help relatives to die.

But there is a fear that prosecution could be more likely if the person involved is “acting in his or her capacity as a medical doctor, nurse, other healthcare professional, a professional carer (whether for payment or not), or as a person in authority”.

Since Martin does not have a close family member willing to assist him, he decided to challenge the guidelines.

James Delingpole Has Joined Rod Liddle’s Party

January 27, 2012

I’ve never heard of him, but it seems he’s another scribbler of rubbish.

Rod Liddle has just incurred the wrath of the disability lobby by having a go in his Sun column at “pretend disabled” people. Included in this category, Rod decided, were people with fibromyalgia and ME. Lots of people queued up Twitter to say how horrid they thought he was, wishing he would succumb to some kind of disability himself, etc.

I suppose, having recently suffered from an ME-like illness I should be one of them. But unlike Rod’s Twitter critics I took the trouble to read the full article and I think Rod’s point is well made. There really are far, far too many people sponging off the taxpayer right now with their fake or exaggerated disabilities and they’re one of the reasons we’re in the financial mess we’re in.

One of.

Disability; anti-racism; diversity; anti-homophobia; anti sex-discrimination; etc: every one of these has its specialist lobby group which considers it its bounden duty to screw the economy for as much as it possibly can. Sometimes it does so directly, through entirely unnecessary government offshoots like the Equality and Human Rights Commission; sometimes it does so indirectly, via all the various forms of swingeing anti-discrimination legislation and regulation and inconvenience imposed on private business.

And amazingly the government actually pays these lobbyists to grumble and campaign for even more stringent, costly legislation and regulation. A report last year from the Taxpayers’ Alliance showed that in 2007/8 over £37 million of our money was spent on our behalf, so that hard-left organisations like Friends Of The Earth and the New Economics Foundation can campaign for more encroachment in our lives by the overweening state.

This isn’t going to last. It cannot last. Future historians are going to look back in astonishment at the lunacy of an age when, according to one government definition from the New Labour era, fully 11 million people – that’s a quarter of the adult population – qualified as disabled. Where does the money come from?

Three places: taxation; inflationary money-printing; borrowing.

Every time the disability lobby squeals for more another few jobs are lost, another few basis points are lost from GDP growth. But these people don’t care; they know better than that: the government owns a magic money tree and its ability to distribute the fruits thereof is boundless.

Global Game Event Considers Disabled Gamers

January 27, 2012

From the Guardian’s Games Blog:

Thousands of coders are taking part in a global game development challenge, and many are being encouraged to consider a specific audience: gamers with disabilities

Autism Risk Shows From 6 Months Says New Study

January 27, 2012
It may be possible to detect autism at a much earlier age than previously thought, according to an international team of researchers.A study published in Current Biology identified differences in infants’ brainwaves from as early as six months.

Behavioural symptoms of autism typically develop between a child’s first and second birthdays.

Autism charities said identifying the disorder at an earlier stage could help with treatment.

It is thought that one in every 100 children has an autism spectrum disorder in the UK. It affects more boys than girls. While there is no “cure”, education and behavioural programmes can help.

One of the researchers, Prof Mark Johnson from Birkbeck College, University of London, told the BBC: “The prevailing view is that if we are able to intervene before the onset of full symptoms, such as a training programme, at least in some cases we can maybe alleviate full symptoms.”

His team looked for the earliest signs of autism in 104 children aged between six and 10 months. Half were known to be at risk of the disorder because they had on older sibling who had been diagnosed with autism. The rest were low risk.

Older children with autism can show a lack of eye contact, so the babies were shown pictures of people’s faces that switched between looking at or away from the baby.

Sensors attached to the scalp looked for differences in brain activity.

In low-risk babies, or high-risk babies that did not develop autism, there was a large difference in the brainwaves when looking at each type of image.

There was a much smaller difference in the brainwaves of babies who developed autism.

‘Very effective’Prof Johnson said: “It is important to note it is not a 100% predictor. We had babies who flagged up warning signs who did not develop autism.”

There were also babies who did develop autism who had low-risk brainwaves. The test would need to be more accurate before it was used routinely.

Prof Tony Charman, Centre for Research in Autism and Education at the Institute of Education, said: “Differences in the use of eye gaze to regulate social interaction are already a well-recognised early feature in many children with autism from the second year of life.

“Future studies will be required to determine whether measurements of brain function such as those used in our study might one day play a role in helping to identify children at an even earlier age.”

Christine Swabey from the charity Autistica said: “The hope is that this important research will lead to improved identification and access to services for future generations.

“Ultimately, the earlier we can identify autism and provide early intervention, the better the outcomes will be.”

Dr Georgina Gomez-de-la-Cuesta from the National Autistic Society said: “Further research to investigate these differences will eventually lead to earlier recognition of the condition.

“Early intervention is very effective in supporting those with autism, so recognition in infancy can only be beneficial in helping individuals with autism reach their full potential.

“However, this important research is still in its early stages, and larger studies looking at several early markers of autism will be necessary before a robust clinical diagnosis could be possible at such a young age.”

Lib Dems Urge Nick Clegg To Back #WRB Lords Amendments

January 27, 2012

Nick Clegg is coming under unprecedented private pressure from his own party to back a string of Lords amendments designed to protect children and those with disabilities from the impact of the government’s welfare reforms.

A letter from more than 50 former Liberal Democrat parliamentary candidates in the 2010 election has been sent to Clegg urging him to respect party policy and vote to allow disabled people to retain employment support allowance for at least two years without being means tested.

The letter, passed to the Guardian, warns more than 800,000 people with disabilities will be hit by the reforms, and expresses deep concern that the employment minister, Chris Grayling, has said the government defeats in the Lords will be overturned.

Liberal Democrat MPs are also being called to a meeting with campaign groups and charities to hear the case for backing a Lords amendment that excludes child benefit from the planned £26,000 cap on benefits.

The government has vowed to overturn all six amendments passed by peers during the bill’s report stage and will be pushing the issue to a vote in the Commons next Wednesday. The co-ordinated pressure from Liberal Democrat grassroots is designed to force the government to make concessions that ministers have so far insisted will cost billions, and will only add to a dependency culture.

In another warning shot, the party’s federal policy committee will meet after next week’s Commons vote to discuss its response if Lib Dem MPs vote against agreed party policy.

Clegg has also been under private pressure from the party’s deputy leader, Simon Hughes, to either accept the Lords amendments or find some other way to prevent family break-ups.

Labour will be tabling its own proposals on the cap shortly, aware that a cap is highly popular with some of its core supporters.

One of those organising the pressure on Liberal Democrat MPs, Gareth Epps, a member of the party’s policy committee, said: “Underpinning the vote are a series of fault lines that have the potential, if mishandled, to make the fiasco over tuition fees look like a picnic.”

The letter from the 50 former parliamentary candidates to Clegg states: “Contributory employment and support allowance is a benefit given to people who have had to stop work due to ill health or disability, but who are well enough to return to work at some point. It is only given to those who have paid sufficient national insurance Contributions during their working life. Some disabled people will be able to return to work, but many will need more time and support to do so.

“The Department for Work and Pensions estimates that 94% of disabled people will take longer than a year to find work. This means that many who remain unemployed after these 12 months will lose all benefit support.

“That would mean that, by 2015/16, 700,000 people would be affected and 280,000 would lose their entire benefit payment – currently £94.25 per week.

“We are deeply concerned that the minister, Chris Grayling, has already indicated he intends the welfare reform bill to pass without the amendments on contributory ESA when the bill returns to the Commons.

“At federal conference we passed a motion which said we should not have an arbitrary time limit on cESA.”

It concludes: “We believe you and Lib Dem parliamentarians should uphold party policy and principle and only support the welfare reform bill with the amendments passed in the House of Lords.”

George Potter, the mover of the motion on ESA at the party’s autumn conference, described the voting of some Liberal Democrat peers over the past fortnight as “shameful, illiberal and flying in the face of democratic institutions of the party”.

In fact, fewer than half the Liberal Democrat peers voted with the whip on ESA and even more rebelled on charging single parents for the use of the CSA.

Epps also warns of a car crash if the MPs ignore the party’s own policy. He warns: “We did not vote overwhelmingly in September to oppose the ESA changes for cancer sufferers just so our elected representatives could do the opposite.

“If we did, then why not tear up any pretence of being a democratic party, abolish conference and let Danny Alexander and a few unelected advisers write the manifesto on their own?”

Epps insists he supports the principles behind the welfare bill, and recognises the government has won concessions on other issues.

Rod Liddle’s Back- And This Time He’s In The Sun

January 26, 2012

Remember Rod Liddle, readers? I didn’t- well not until about half an hour ago, anyway. That was, until I found out that he scribbled this load of rubbish for the Sun today. (The second  link will take you to a ‘freezepage’ with many thanks to the brilliant @latentexistence- for some reason between 11.41am and now, the online version of the piece seems to have disappeared. However the lovely people at Political Scrapbook have got a picture of the page as it appears in the printed paper.)

The text:

MY New Year’s resolution for 2012 was to become disabled.

Nothing too serious, maybe just a bit of a bad back or one of those newly invented illnesses which make you a bit peaky for decades — fibromyalgia, or M.E.

There’s lots of money to be made from being disabled — your money, taxpayers’ money, as it happens.

And it is far easier to be disabled these days than was ever the case.

Also, I am nothing if not a creature of fashion, a cool and with-it hipster, daddy-o, who is always up to date with the latest trends.

And being disabled is incredibly fashionable. The number of people who claim to be disabled has doubled in the past ten years.

And who can blame them? Not only do you get money from the Government and don’t have to go to work — but if you play your cards right you might get one of those badges which lets you park wherever you want.

Right in front of the cashpoint, for example. And you can use those enormous toilets with levers and handgrips and emergency buzzers they have in all public places, without feeling too guilty about it.

The latest figures regarding incapacity allowance came out this week. It is now estimated that 80 per cent of people who are claiming sickness benefit are actually fit to work. What’s more, almost a million people have been on Invalidity Benefit for more than a decade.

When you suggest that this is a public scandal, the disabled charities get very cross and accuse you of victimising the infirm.

But I’m not, I’m victimising the people who are pretending to be infirm in order to claim money from the state.

Or at least, I’m trying to: I don’t suppose it will have much effect. Just water off their supposedly bad backs.

Then the Left-wingers will say — hang on a minute, you fat old fascist, more money is lost to the country as a result of tax avoidance by the very rich than is wasted through sickness benefits.

Well, maybe it is. And the Government should deal with that with a bit more vigour than they do right now.

But it still doesn’t make fraudulently claiming sickness benefit OK, does it?

That’s like saying we shouldn’t get worked up about crimes such as rape because murder is far worse.

It’s a silly argument.

More than anything, though, the people fraudulently claiming sickness benefit are doing a disservice to those who really deserve it: The people who are truly disabled or ill. It has become easier to claim these benefits, partly as a consequence of the disablement charities who, out of their own self-interest, insist that an ever-greater proportion of the population is disabled.

I think we should all pretend to be disabled for a month or so, claim benefits and hope this persuades the authorities to sort out the mess.

Disabled bloggers and Tweeters  are getting their own back on him and having the last laugh. They are far stronger than me- I feel like screaming, then crying, but I know that won’t help which is why I have simply linked them instead.

Broxtowe Borough Council Leader’s Incapacity Benefit Fraud Charge

January 26, 2012

What do you think of this case, readers? He is clearly disabled and so entitled to some benefit…

The leader of Broxtowe Borough Council has been charged with benefit fraud of more than £45,000.

Milan Radulovic, 56, of Cross Street, Eastwood, is accused of failing to declare council allowances on an incapacity benefit claim form.

The Labour councillor is due to appear in court on 16 March.

Mr Radulovic, of Cross Street, Eastwood was council leader from 1995 until 2007 – the same year he received an MBE – and resumed the position last year.

In 2005, he won a six-figure payout from the Queen’s Medical Centre for suffering serious health problems after an operation.

The politician was left almost blind in one eye from keyhole surgery complications to remove a gallstone.

Medical staff went ahead with the procedure despite Mr Radulovic requesting open surgery.

Injured Soldiers Training To Climb Mount Everest

January 26, 2012

A group of injured soldiers are training to climb Mount Everest for the charity Walking With The Wounded.

For some it is their second challenge, as they took part in a North Pole expedition last year with Prince Harry.

The BBC’s Alison Freeman met some of them in Cumbria.

This Week’s Able Life Slot

January 26, 2012

This week on Able Life, George Johnson and I discussed The Two Worlds Of Charlie F and the Paralympics. Here is what we said.

Debbie Purdy’s Husband Told To Quit Work To Get Benefits

January 25, 2012

I think it is awful that a terminally ill person is being persecuted for something as small as not paying council tax. Just awful. Common sense has obviously gone away from this situation.

A terminally-ill woman being prosecuted for failing to pay council tax says she has been told she would be better off if her husband quit work.

Debbie Purdy said she had been told by the benefits office five times that she would get more benefits if her music teacher husband stopped working.

Ms Purdy, from Bradford, said she had to choose between paying her council tax and buying food.

The government said it did not comment on individual cases.

Advice ‘ridiculous’

Right-to-die campaigner Ms Purdy receives disability living allowance and incapacity benefit. She said if her husband was unemployed they would get further benefits including free council tax, free prescriptions and help paying the interest on their mortgage.

Ms Purdy was summoned to Bradford Magistrates’ Court on Wednesday. Her case was deferred while she sought further advice from the Citizens’ Advice Bureau.

She said: “I haven’t got any money to pay a bit of the council tax. If we pay a bit of the council tax then we just don’t eat.

“I’m terrified of going to court but I’m excited that maybe somebody will listen. The welfare state is not doing what it was supposed to and maybe we have an opportunity to make our voices heard.

“Five different people in the benefits office have said he should stop working and that seems ridiculous. Surely everything that the government is telling us is that work should pay.”

The Department for Work and Pensions said it did not comment on individual cases but that planned reforms of the welfare system would benefit people such as Ms Purdy.

Injured Soldier To Get Bionic Arm That Is Controlled With His Brain

January 25, 2012

As the first British serviceman injured in battle to use a new bionic arm, Cpl Andrew Garthwaite’s story has already been remarkable.

But this week he underwent six hours of surgery at a hospital in Austria at the start of a process to make it even more so – to prepare him to be fitted with an arm he will be able to control with his brain.

The 24-year-old, from South Tyneside, was badly injured in Helmand, Afghanistan, in September 2010 when a Taliban rocket-propelled grenade took off his right arm and killed one of his comrades.

He first had to learn how to carry out everyday tasks with one arm but was delighted to learn he would have one of the latest models of bionic arms fitted.

He could hold a beer and do basic tasks. He could also perform his party trick – rotating his hand 360 degrees.

A technician then designed a new arm so he could ride his motorbike.

Rewire nervous system

He approached it all with a positive attitude and said his optimism was boosted by the support he had from his family, his friends and medics who saved his life.

This arm system, though, has its limitations and Cpl Garthwaite needs to flex his back or chest muscle to achieve a single, robotic movement.

He was then deemed eligible for some remarkable surgery. It involved flying to Vienna, to have what the medics there called Targeted Muscle Reinnervation (TMR), the first step on the process to receiving the arm he will control with his mind.

Speaking before he went, he said: “I’m really excited at going over. A little bit nervous but I think the outcome is going to be great.”

The surgeons at the hospital in the Medical University of Vienna have rewired his nervous system.

He is believed to be the first person from the UK to undergo this cutting-edge technique in the field of bionics.

Cpl Garthwaite said he had been “lost for words” when he learnt that and was “honoured” to have been chosen.

‘Difficult surgery’

Surgeons at the hospital are working closely with bionics company Otto Bock, in Vienna, to create one of the most intelligent bionic systems in the world.

In an operation lasting six hours on Tuesday surgeon Prof Oskar Aszmann and his team worked out which of the mass of tiny nerves from his shoulder joint operated his arm and hand. Once they isolated those, they rewired them into his chest.

After the surgery, Prof Aszmann said: “It all went extremely well.

“It was a surprise to me because he had a shrapnel injury, there was a rocket wound, so normally you have to expect a lot of scar tissue, but it was not the case.

“It was a difficult surgery, but we could identify all the nerves that we wanted to and transfer them to the appropriate targets.”

In the coming months these nerves will grow. Cpl Garthwaite’s mind will work out which nerves do what, and will learn how to control those nerves.

He will then be able to control his bionic arm in such a way that it will become intuitive, unlike the slow robotic movements of his current arm.

He will be able to think several moves and his arm and hand will react naturally. His bionic arm will be thought-controlled.

‘Exciting prospect’

After his complex, remarkable surgery, Cpl Garthwaite too will soon feel a hand on his chest, his own hand.

And, as the nerve endings grow he too will be able to operate his bionic limb by simply thinking about those hand and arm movements.

Prof Aszmann said: “For the first four to five months he will be very numb and not feel anything, but after around six months, he will feel his own index finger and thumb in his shoulder, so when he pinches his shoulder he will say ‘oh this is my index finger or here’s my thumb’.

“That’s really exciting because, in the future we will have little senses in these artificial fingers and they will have direct sensory feedback.”

Before the surgery, Cpl Garthwaite said he was excited at the prospect of having a more natural arm movement and being able to use it quickly rather than the slow process it can be currently and even the possibility of being able to feel hot and cold.

He said: “I still have my down days and I still have flashbacks and memories, which will never leave us, but you just learn to crack on.

“With this new target I have got to hit now, it is keeping my mind occupied.

“You just want to look into the future and just think what’s actually going to happen, how much it’s going to benefit me.”

See more in Look North on BBC1 in the North East and Cumbria on Wednesday 25 January at 18:30.

DaDaFest Wins The Lever Prize

January 25, 2012

A piece of good news about DisAbility entertainment, especially considering this from 2010.

‘Normal People’ Support Government Cuts, Says IDS

January 25, 2012

This statement was revealed to the public on Monday. I’ve been looking for the exact quote and a link to it ever since. So my thanks go out to reader Patricia Smith who has just given me the link on Facebook. I must also, of course, thank the lovely people at Ekklesia who originally posted the quote below on Monday.

Iain Duncan Smith, the welfare reform minister, who has in the past been held up as a standard-bearer for ‘compassionate Conservatism’ has angered critics by claiming that ‘normal’ people support the government’s cuts and changes.

As for IDS, all I have to say to him is: “Sir, what is a normal person, anyway?” If “normal people” support cuts, then in my opinion, no one supports cuts, because in my opionion, there is no such thing as a normal person.

Dear readers, I recall the words of a very good Psychology teacher who once taught me. Whenever she explained a concept that could not be seen, she used to smile and tell us to let her know if we met it walking down the street.

So, if you ever happen to meet a “normal” person on your travels, readers, please do let me know- I’d love to meet one too!

Meanwhile- no one supports your cuts, Mr Prime Minister. A member of your Cabinet has said it himself…

 

No Charges For Man Who Took Wife To Dignitas

January 25, 2012

A man has been told that he will not be prosecuted for helping his wife travel to an assisted suicide clinic in Switzerland, where she took her life.

Aled Owen, from the Conwy Valley took wife, Janet, who had been suffering from multiple sclerosis (MS), to the Dignitas clinic in 2009.

He had been waiting for nearly 18 months to hear if the Crown Prosecution Service would take action.

North Wales Police confirmed no action will be taken against him.

“I was confident nothing would happen and I wouldn’t be prosecuted,” he told BBC Wales.

“To be honest even if I had known that I was going to be prosecuted I would have done it anyway.

“Although I was pleased with the way the police handled it I think the whole process should have been shorter.”

Mrs Owen, 54, worked as a carer for people with Alzheimer’s disease.

‘Surreal’

She was diagnosed with MS in 2004 and managed to continue an active life as someone who enjoyed walking and singing before her condition began to deteriorate.

Mr Owen described his wife as a determined person who had previously made up her mind she did not want to live with a debilitating condition.

“For me it was difficult because I knew what was in store for her so it was a lose-lose situation really,” he said.

“And if I didn’t go with her she would have gone herself. She was a very determined lady.”

He said the hardest part of the “surreal” process was leaving the clinic and returning home alone which he described as “very upsetting”.

In a statement, North Wales Police said: “We can confirm that North Wales Police investigated the matter and it was referred to the Crown Prosecution Service in line with national practice.

“They have reviewed the file and concluded that no no further action will be taken.”

Murder Accused Woman Has Learning Disabilities

January 25, 2012

A woman from Great Yarmouth who denies murdering a neighbour after she had fought with his girlfriend has an IQ of 66, a court has been told.

Shane Boulton, 21, of Stanley Terrace, died from a stab wound after he was attacked on 19 June 2010.

Norwich Crown Court heard that Katy Bown, 18, who has been charged with murder, has learning disabilities.

A forensic consultant psychiatrist, Dr Daniel Dalton, added that she had problems with her “moral reasoning”.

Not schizophrenic

He told the court he had accessed medical reports and records and said Miss Bown had a long-standing history of self-harm, inducing vomiting, consuming alcohol and “explosive violence” in relation to situations with stress, and that she had a history of short, turbulent relationships.

When the prosecution cross-examined him, Dr Dalton said she was not schizophrenic.

The doctor said Miss Bown “spoke of the joy of holding a knife to the neck of a family member” in the past and how she felt a sense of power and control by holding the knife.

“It is very difficult to know whether she thinks before she acts,” he told the court.

Earlier John Farmer QC, prosecuting, said about an argument in the street between Miss Bown and Mr Boulton’s girlfriend, Claire Matheson, and how Mr Boulton, who had been drinking, went outside to separate them.

The fight ended and Mr Boulton stayed outside talking to a neighbour.

Miss Bown went round the corner, back to her home three doors away.

She returned with a knife and stabbed Mr Boulton, Mr Farmer said.

Disabled Man Attacked On Mobility Scooter

January 25, 2012

Two men who attacked a disabled man are being sought by police in Cumbria.

The 55-year-old victim was riding his mobility scooter in the Longtown area of Carlisle on Sunday evening when the pair stopped him by blocking his path.

One of them is believed to have said “go on, hit him” and he was punched in the chest and stomach.

Anyone with information about the incident, which happened at the corner of Lovers Lane and Moor Road at about 17:15 GMT, should contact police.

One of the attackers is thought to have been wearing white trainers while both spoke with local accents.

UK Uncut To Join Forces With Disability Campaigners For Day Of Civil Disobedience In London On Saturday

January 25, 2012

Thank you, Guardian. I’ve been wondering what this was, now I know.

As for my opinion on the day of action itself- I think I’ve said here before that I would not personally want to attend such an event. However, those who do have of course got every right to carry out these actions peacefully and to be completely safe in the process.

Finally, I would like to send out a big thanks to UK Uncut for joining forces with disability campaigners. I know I have said this here before, but it is only when the mainstream start listening that we will really be noticed, and so something will really be done to change our situations. Having the support of a mainstream group that is as well known as UK Uncut makes me feel like the mainstream are finally listening to us. The media will cover UK Uncut- and we will be covered in the process. They will finally see just how far we are prepared to go for our cause. That can only be a good thing.

The direct action group UK Uncut has joined disability activists to plan civil disobedience against the welfare reform bill in London this weekend, which they say will bring chaos to the centre of the capital.

Saturday’s action, billed as “hugely daring and disruptive”, is a shift for UK Uncut from previous action against alleged corporate tax avoiders, such as occupying stores run by Vodafone and the Arcadia retail group. It is forming alliances with campaigners against specific spending cuts it views as being, in part, the direct consequence of reduced tax receipts.

As well as joining with Disabled People Against Cuts (DPAC) for Saturday’, UK Uncut has joined with Fuel Poverty Action, which is planning direct action against energy companies, councils and housing providers, beginning on Friday.

Saturday’s action, labelled “a message from the invisible”, remain secret; those taking part areasked to meet at Holborn tube station on Saturday morning to travel en masse to the location.

A member of DPAC who asked to be identified only as Andy said a “non-violent campaign of mass civil disobedience” would disrupt central London, reminiscent, he said, of protests by disability activists in the 1990s against government cuts and non-accessible public transport, in which people halted traffic in London’s West End by chaining themselves to buses.

Such action was necessary, he said, because the goverment was not listening to disabled people over the welfare reform bill and planned cuts to the disability living allowance, which the charity Mencap believes could lead to 500,000 disabled people losing money.

“We’re seen as an easy target,” Andy said. “It began when they got rid of all those quangos, including groups which help disabled people get their views across.

“Up to now, the voices of disabled people haven’t been heard in this debate. That’s why we feel we have to create a space for our voices. We want to explain what is happening.”

Separately, Fuel Poverty Action has joined UK Uncut to plan events from Friday to Monday against government buildings and the offices of energy companies in London, Leeds and Cambridge, with more promised.

While UK Uncut has existed for little more than a year, its campaigns have given attention on the tactics used by corporations to minimise their tax bills, and the effect this has on government revenue.

The group has targeted Vodafone, which denies claims it saved billions in a tax deal with revenue and customs managers. Lst year, the Commons public accounts committee said HM Revenue & Customs had made secretive “sweetheart” deals with Vodafone and others. UK Uncut has also targeted shops run by Sir Philip Green‘s Arcadia fashion retail empire. Green saved tax in 2005 when a £1.2bn dividend was paid to his wife, Tina, who lives in Monaco, rather than to himself.

In March last year, more than 150 UK Uncut supporters occupied part of Fortnum & Mason, in London’s Piccadilly in London, a protest whichthat led to a controversial trial in which 10 people were eventually convicted of aggravated trespass.

The move towards direct action against cuts is a step for what has become one of the UK’s fastest-growing protest groups. UK Uncut is sympathetic to but sepatarate from the Occupy movement, known in the UK for its long-running camp next to St Paul’s Cathedral in London.

Sarah Evans of UK Uncut said the group believed that measures such as the welfare reform bill were unnecessary and unwanted: “Instead of taking serious action against rich companies’ tax-dodging and their fancy corporate lawyers, David Cameron is instead choosing to make the poorest and most isolated pay for the economic crisis they didn’t cause.

“The tax dodged by Vodafone alone is four times as much as the government hopes to save through this devastating bill. “

Accessing The Olympics

January 25, 2012

The BBC Ouch! blog published this post yesterday which gives lots of useful information about how to access London 2012 as a disabled person.

Road Death Father Died Saving Disabled Son’s Life

January 24, 2012

A pedestrian killed on a road in Cumbria died saving his disabled son’s life, his family has said.

George Tyson was walking with his son on the A5087 at Conishead Bardsea on Sunday when they were hit by a car.

The 61-year-old, of Ulverston, died at the scene. His son, Garry, was injured, but not seriously.

Cumbria Police said that inquiries were still ongoing but early indications seemed to show Mr Tyson had pushed his son out of the way.

A 17-year-old male driver was arrested on suspicion of causing death by dangerous driving and later bailed.

Mr Tyson’s daughter Melanie said on behalf of the family that he died “doing the thing he loved the most”.

“He was walking, as he does most Sundays, with my brother Garry, down the Coast Road towards Ulverston,” she said.

‘Inseparable from dad’

“My dad’s life was cruelly taken away from him, although through various witness statements, the story is blessed with his selfless act of saving the life of my brother.”

She added that her father was a “loyal Ulverstonian”, who was heavily involved in the local community.

“Most people of Ulverston will know him through the long-term care and help he has shown my brother and most people with have at some point seen them pacing through town on their many missions,” she said.

“Garry, who was left disabled following his own tragic accident, was inseparable from his dad and the huge amount of time, care and patience my dad showed will be hugely missed.”

How Jim Mansell CBE Changed The World For People With Learning Disabilities

January 24, 2012

In 1970, there were 60,000 adults and children with learning disabilities living confined, institutional lives in long-stay hospitals. That autumn, a young student newly arrived at Cardiff University agreed to help take a group of children from the city’s Ely hospital to the cinema on a Saturday morning. From that point on, the hospitals stood no chance.

The student was Jim Mansell (pictured). His experience that October day was to change him, his direction in life and, arguably, the very basis of how we support people with the most profound intellectual disabilities. Today, at least in England, the long-stay hospitals have all gone.

Mansell, who went on to become the country’s leading authority on working with people with what is now called “challenging behaviour”, is due on Thursday to receive the CBE, announced in the new year’s honours list. Despite very poor health, he is said by friends to be determined to keep his appointment at Buckingham Palace.

It’s a long way from Ruthin Gardens, Cardiff, where, remarkably, Mansell and three fellow students decided to share a house with five people from Ely – an arrangement that set the pattern for the supported living model that was to enable almost all those in long-stay hospitals to move into the community. Revisiting the house for a BBC radio programme in 2005, Mansell recalled that fateful cinema outing. Ely in 1970 had only recently been the subject of one of the first inquiries into ill-treatment of people then termed “mentally handicapped”, yet conditions remained shocking by present-day standards. The children had shaven heads because lice were endemic, Mansell said, and “I remember not enough underwear, so people [were] wearing pillowcases pinned around them, trousers held up with pins”.

He continued: “We took a crocodile of these children across the road, out of the hospital, and through a council estate to a cinema, and the people on the estate came out … to press money into our hands to buy things for these children because they were in such obvious need. We were so angry about what was going on, we formulated the idea that really these kinds of places shouldn’t exist and people should be able to live in houses with whatever support they needed in the community.”

Within a fortnight, Mansell had called a meeting to discuss Ely’s closure – the idea that he might lack credentials for what he was doing “was actually a question that never occurred to me”.

Ely was not finally to shut until 1996. By then, Mansell had played a pioneering role in the long-stay hospital closure programme in England and was founding director of the Tizard Centre, one of the world’s leading centres of study of learning disability and community care. He had also led work on the definitive official guidance for councils and the NHS, published three years previously, on Services for People with Learning Disabilities and Challenging Behaviour or Mental Health Needs.

He revised and updated the guidance, which became known as “the Mansell report“, in 2007, and in 2010 published a second report for government, Raising Our Sights, which focused on support for people with the most complex needs. There was an underlying and wholly false prejudice, he concluded, that people with profound impairments were “not fully human”.

Speaking truth to power, often bluntly, has been a constant throughout Mansell’s career. Last year, he had no compunction about speaking out over revelations of abuse of people with learning disabilities at Winterbourne View, near Bristol, one of the private hospitals that critics see as recreating long-stay institutions. Writing in the Guardian, Mansell said: “The real solution … is to stop using these kinds of places altogether.”

Now with an array of academic titles, Mansell, 59, is still working when his health allows. As he said of his campaigning days in Cardiff, it would not occur to him to do otherwise.

Disabled Man Died After Lift From Plane At Stansted

January 24, 2012

A minor injury suffered by a disabled man when he was lifted from his aeroplane seat contributed to his death five days later, a coroner has ruled.

Robert Browne, 69, of Norwich, received bruising to his chest when being moved into an “aisle chair” at Stansted Airport, an inquest in Norwich heard.

He died in hospital on 26 September 2010.

Norfolk deputy coroner Jacqueline Lake said the lifting manoeuvre had led to a haematoma in his left chest wall.

Violently sick

Mr Browne, of Gristock Place in the Marlpit area of the city, was returning from a holiday to Spain on 21 September with his wife Jennifer and 11-year-old granddaughter.

He had been paralysed on the left side of his body for 11 years, after suffering two strokes, and needed to be lifted in and out of his aeroplane seat by two people.

Mrs Browne said the armrest could not be moved, which the inquest heard was standard on Thomson flights, and two or three attempts at the lift had caused her husband to cry out in pain.

She said her view had been obscured, but two extension straps intended for seatbelts were then placed under her Mr Browne’s arms to lift him into the aisle chair.

Giving evidence, Integrated Services Solutions (ISS) handlers Stephen Clark and Adrian Koziak said they would have lifted Mr Browne manually as ISS did not use straps, and anything unusual would have been recorded.

Mrs Browne said she had noticed bruising on her husband’s left arm on 26 September, when paramedics arrived to take him to hospital after he was violently sick and “didn’t think he was going to make it”.

‘Serious medical conditions’

He died later that day due to bronchial pneumonia and a large haematoma in his chest wall.

Medication to prevent blood clots meant haematoma could be caused by something relatively minor and become large, pathologist Dr Ahsan Ali said.

Summing up, Mrs Lake said she was satisfied that a manual lift or a lift with straps would have caused bruising.

Giving her narrative verdict, Mrs Lake said: “Mr Browne suffered a minor injury to his chest wall being lifted from an aeroplane seat to an aisle chair, which led to his death, contributed to by a background of underlying serious medical conditions.”

Aardman Changes Leprosy Scene After Complaint

January 24, 2012

Film animation company Aardman is to change a scene in their new film which “pokes fun” at people with leprosy.

Charity Lepra Health in Action objected to the scene in the trailer for Pirates! In An Adventure with Scientists! which sees an arm fall off a crew member on a “leper-boat”.

An Aardman spokesman said it would change the scene “out of respect and sensitivity” for leprosy sufferers.

In a statement, Lepra said it was “genuinely delighted” by the decision.

The scene shows the arrival of the Pirate Captain on board a captive ship, demanding gold.

“Afraid we don’t have any gold old man, this is a leper-boat,” explains a crew member. “See,” he adds as his arm falls off.

Bristol-based Aardman has not commented how the scene has been changed, but says it will be acceptable to leprosy affected people.

One person is diagnosed with leprosy every two minutes worldwide, according to Lepra.

Serving Soldier Killed Disabled Man

January 24, 2012

A serving soldier killed a disabled man in a pub car park in Wiltshire when he punched him during a row, a court has been told.

Pte Daryl Talbot, 21, from Larkhill, appeared at Salisbury Crown Court charged with the murder of 34-year-old Jon Paul Garland on 1 January.

The court was told the University of Plymouth graduate had died from head injuries.

Mr Talbot denies murder and an alternative charge of manslaughter.

Mr Talbot, who was based at the Royal School of Artillery at Larkhill in Wiltshire at the time of the alleged incident, claimed Mr Garland tried to head butt him.

‘Vulnerable victim’

The court was told Mr Garland had a birth defect which left him with arms half the normal length and his hands not formed properly, so was not able to defend himself.

The jury heard Mr Talbot had argued with his girlfriend Alexandra Smith over another man and was angry when he met “vulnerable victim”.

Prosecution barrister Simon Edwards said: “There was no justification for the violence the physically superior defendant used towards Mr Garland that left him severely injured.

“The defendant struck Mr Garland on more than one occasion to the face and head with tragic results.

“He had little chance of defending himself or deflecting the blows because he was disabled in the sense that he had very short arms.

“There can be little doubt this defendant intentionally attacked his victim,” the barrister added.

Mr Garland, who worked in IT for the Ministry of Defence, was found in the car park and pronounced dead at the scene.

The case, which is expected to last five days, continues.

Missing 10 Year Old Boy With Autism Found Safe And Well

January 24, 2012

Some good news.

A missing 10-year-old boy with autism and a speech impediment from Coventry has been found “safe and well”, police said.

Concern for the boy had grown when he ran out of his school in Keresley at about 15:15 GMT.

A West Midlands Police spokesman said they had received reports that he had been found on a train at about 21:00 GMT.

The force helicopter had been used to assist officers with their search.

Marcus Hilton

January 24, 2012

A man from West Yorkshire has become the first person in Europe to take part in an embryonic stem cell trial to treat a rare eye disease.

Marcus Hilton, 34, from Wakefield, suffers from Stargardt’s macular dystrophy (SMD), which causes progressive sight loss.

The disease develops in childhood and affects about one in 10,000 people.

Mr Hilton is the first of 12 patients to be injected with retinal pigment epithelial (RPE) cells into the eyes.

The 34-year-old, who runs two bars in Wakefield, said he was “thrilled” and “excited” to be taking part in the trial.

“I’m over the moon, they have had early results in America showing this treatment could work,” he said.

“It could change many people’s lives – to have some sight restored would be a dream come true.”

Mr Hilton said he was hopeful he could eventually have some sight restored, which would enable him to read books with his four-year-old daughter.

SMD is a hereditary disease that causes loss of central vision.

Mr Hilton’s condition was picked up at school when he was seven years old, but the diagnosis was not confirmed until three years later.

“I was aged about 10 when it was diagnosed by specialists at Moorfields,” he said.

“Besides being unable to drive, having the disease has an impact and I have had to engineer my life around it.

“I would never read out of choice because it is too much like hard work.”

‘Assess impact’

Mr Hilton was injected with the RPE cells during a 90-minute operation at Moorfields Eye Hospital in London on Friday.

“I was put under anaesthetic and they made a small hole in the front of my right eye to inject the stem cells,” he said.

“At the moment, because it was only done a few days ago, everything is very blurred.”

Although it will be years before the treatment is proven, early results from the US suggest the method is safe and could lead to a suitable therapy.

Professor James Bainbridge, who is a consultant surgeon at Moorfields Eye Hospital, led the operation.

He said: “We are very pleased that the first transplant surgery has gone smoothly and look forward to seeing the results as the trial progresses over the next two years.

“While this is primarily a safety trial, we will have the opportunity to monitor engraftment of retinal cells and to assess any impact on sight.”

 

John Newton: Man Jailed For 10 Years For Kidnap And Murder

January 24, 2012

A man has been jailed for 10 years for the kidnap and manslaughter of a Teesside father.

Lee Woodier, 25, who was found guilty of kidnapping in September, has also been found guilty of manslaughter of John Newton from Redcar.

Woodier, of Shelley Road, Middlesbrough, was sentenced to five years each for kidnap and manslaughter at Teesside Crown Court.

John Newton, 45, suffered 60 internal injuries and died in March 2011.

In September, the judge Peter Fox QC ordered a retrial after the jury failed to reach a verdict on the murder charge against him.

Andrew Jackson, 25, George Thomas Jr, 52, and his son, Stephen Thomas, 30, who denied the charges, were convicted of kidnap and murder in September 2011.

Grandfather George Thomas Sr, 77, was cleared of kidnap and murder.

Let Nature Feed Your Senses

January 24, 2012

A press release I’ve just received:

Getting out into the countryside and onto farms need not be difficult thanks to a new initiative called Let Nature Feed Your Senses. Farms and nature reserves across the country are opening their gates and offering free visits to people that currently cannot, or do not, have access to the countryside because of age, ability or social situation.

 

While the very act of taking exercise has undoubted health benefits, numerous studies also show that connecting with nature leads to increased well-being, physically, psychologically and even socially.

 

Let Nature Feed Your Senses is a Big Lottery funded initiative run by farming charity LEAF (Linking Environment And Farming) and Sensory Trust. The project organises memorable sensory-rich farm visits that help connect visitors to nature and the story of their food.

 

Farm visits are available to a huge range of groups of people, including wheelchair users, people with dementia, those with neurological conditions such as cerebral palsy and multiple sclerosis, and those with sensory disabilities, learning difficulties and brain injury.

 

75 farms and nature reserves around the country are hosting Let Nature Feed Your Senses visits. There are sites to meet a variety of needs and hosts will adapt visits to suit different groups’ requirements. Many of the farms are wheelchair accessible with plenty of things to see, smell and touch at wheelchair height. Some farms also offer tramper access.

 

Visits can be booked from now until August 2012. You can search for farms near you via the website www.letnaturefeedyoursenses.org or by calling 0247 6413 911 or 01726 222 900 to speak to a project coordinator.

Adam Spinks

January 24, 2012

A man who was brain damaged at birth in a Bury hospital more than 20 years ago has received a £3.35m settlement payment from the NHS.

Adam Spinks, 24, who has cerebral palsy, was born at Fairfield Hospital in December 1986.

Mr Spinks’ family said he was starved of oxygen due to mistakes at his birth, which led to his disability.

The North West Strategic Health Authority said it wished Mr Spinks and his family “well for the future”.

While the authority has not accepted full liability for Mr Spinks’ condition, it agreed to settle the case by paying compensation at 50% of his claim.

‘Immense relief’

Mr Spinks’ solicitors said that mistakes by his surgeon had delayed his delivery by caesarean section and he had been deprived of oxygen which had contributed to his condition.

Mr Spinks’ mother Jacqueline said: “The past 24 years have been incredibly difficult for the family and we have some tough times ahead, but to know that we have the means to be able to support Adam is an immense relief.

“However, we don’t want any other families to go through the same situation, so we hope that Adam’s case will demonstrate the devastating effects that birth injuries can have and improve levels of care for pregnant women.”

A spokesman for NHS North West said: “The North West Strategic Health Authority is pleased that settlement has been agreed with the parents of Adam Spinks.

“Adam was born in December 1986 and regrettably suffered brain damage.

“Legal proceedings were commenced in 2007 and following detailed investigations, a compromise in respect of liability was reached in 2009.

“The parties then worked together to reach a financial settlement, which has now been approved by the court.”

Sally Leonards, of Manchester-based JMW Solicitors who represented Mr Spinks, said: “No amount of money will ever substitute for the ability to lead a full and normal life.

“However making Mr Spinks’ life as comfortable as possible must be the priority now and this money will enable his family to do that.”

Margo MacDonald MSP’s Right To Die Bill Reconsidered

January 24, 2012

Independent MSP Margo MacDonald is to launch a fresh attempt to give terminally ill people in Scotland the right to choose when to die.

Ms MacDonald’s previous End of Life Assistance Bill fell in a free vote at Holyrood just over a year ago.

The Lothians MSP, who has Parkinson’s disease, claimed there was wide public support for the legislation.

Her new consultation will clarify the extent to which a physician would be able to assist a patient.

It is not illegal to attempt suicide in Scotland but helping someone take their own life could lead to prosecution for culpable homicide.

Ms MacDonald’s bill would have allowed people whose lives became intolerable through a progressive degenerative condition, a trauma or terminal illness to seek a doctor’s help in dying.

It also proposed a series of safeguards which would prevent abuse of the legislation.

Public interest

Ms MacDonald said it was important to allow terminally ill people some dignity.

She said: “Since the defeat of my original proposal in December 2010, the volume of correspondence I’ve received on the matter, coupled with the continuing public interest, stimulated in part by some high-profile statements in favour of the general principle of assisted suicide, indicates to me a consistent level of support for individuals suffering a terminal illness or condition, for whom life becomes intolerable, to have the legal right to request help to end their life before nature decrees.”

Last month, a group of experts said there was a “strong case” for allowing assisted suicide for people who are terminally ill in England and Wales.

The Commission on Assisted Dying – set up and funded by campaigners who want to see a change in the law – said the current system was “inadequate”.

It said it was possible to allow assisted dying within a strict set of rules to ensure it was not abused.

The commission, chaired by former lord chancellor Lord Falconer, said that, under their proposals, a terminally-ill person would need to be able to take the medication themselves, as a clear sign their actions were voluntary.

Blind Patients Can See Better

January 24, 2012

A controversial trial treatment for vision loss using human embryonic stem cells has produced “ground-breaking” early results, it has been claimed.

Two “legally blind” patients with different forms of macular degeneration – one old and one middle-aged – showed signs of improved vision four months after receiving the implants, said scientists.

One, a woman in her fifties suffering from Stargardt’s disease, went from being unable to read any letters in a standard eye test to reading five letters. She was also able to spot single-finger movements whereas before she could only discern movements of the whole hand.

The other patient, a woman in her 70s with dry age-related macular degeneration, experienced an improvement that allowed her to read 28 rather than 21 letters. Neither patient appeared to have suffered any serious adverse affects from the therapy, such as teratoma – a form of cancer that can be generated by multiplying stem cells.

The results, from a trial being conducted in the US, appear in the latest issue of The Lancet medical journal.

The two women were given transplants of retinal tissue grown in the laboratory from human embryonic stem cells (hESCs). In each patient, around 50,000 of the cells, called retinal pigment epithelium (RPE) cells, were injected through a thin tube into the back of one eye.

Embryonic stem cells offer the hope of promising regenerative treatments because they can differentiate into any kind of tissue in the body, from brain to bone. Human ESCs can be grown continuously in the laboratory but are controversial because they must originally be obtained from early-stage human embryos.

Dr Robert Lanza, from the US biotech company Advanced Cell Technology in Marlborough, Massachusetts, who led the study, said: “This is the first report of hESC-derived cells ever transplanted into patients, and the safety and engraftment data to date looks very encouraging.

“Although several new drugs are available for the treatment of the wet type of AMD, no proven treatments currently exist for either dry-AMD or Stargardt’s disease. Despite the progressive nature of these conditions, the vision of both patients appears to have improved after transplantation of the cells, even at the lowest dosage.”

Commenting on the new findings, British expert Professor Daniel Brison, co-director of the North West Embryonic Stem Cell Centre in Manchester, said: “This is a very exciting moment for embryonic stem cell therapies. This is the first peer-reviewed scientific report showing that cells derived from human ES cells can be transplanted safely into a patient with no sign of complications.”

Ministry Of Justice Objects To Tony Nicklinson Court Case

January 23, 2012

The court case of a severely disabled man seeking permission for a doctor to “lawfully” end his life should not go ahead, the Ministry of Justice says.

At the High Court, the ministry’s lawyer said only Parliament can decide such a request – not a court.

Tony Nicklinson, 57, wants the court to declare that a doctor could intervene to end his “indignity” and have a “common law defence of necessity” against any murder charge.

The case was adjourned till 8 February.

Mr Nicklinson, from Melksham, Wiltshire, had a stroke in 2005 and was left with “locked-in syndrome”.age, affecting upper part of brain stem, which destroys almost all motor function, but leaves the higher mental functions intact

He communicates through the use of a perspex board or by using his Eye-Blink computer and sums up his life as “dull, miserable, demeaning, undignified and intolerable”.

He is seeking declarations that it is lawful for a doctor to terminate his life, with his consent and with him making the decision with full mental capacity.

At the preliminary hearing David Perry QC, representing the Ministry of Justice, asked the judge to strike out the action – which would bring it to an end.

“There are compelling reasons why the court should not intervene,” he said.

Mr Nicklinson “is saying the court should positively authorise and permit as lawful the deliberate taking of his life”, he said.

“That is not, and cannot be, the law of England and Wales unless Parliament were to say otherwise.”

Appropriate safeguards and conditions could only be introduced by Parliament, rather than courts deciding on a case-by-case basis, he added.

Michael Connell Returns To UK For Rest Of Jail Sentence

January 23, 2012

The family of a man with learning difficulties jailed for smuggling ecstasy into Thailand are campaigning for him to be released from custody.

Michael Connell, of Bury in Greater Manchester, was stopped at Bangkok airport in November 2003 with 3,400 pills hidden in facial cream jars.

He pleaded guilty in 2004 and was sentenced to 99 years, reduced to 20.

He has returned to the UK to serve the rest of his sentence. He served eight years in Bangkok’s Bang Kwang prison.

The notorious jail is often referred to as the “Bangkok Hilton”.

Mr Connell’s father Derek said his son had become involved with drug dealers in his neighbourhood who had offered him a holiday to Thailand if he took the pills with him.

Customs officials found the ecstasy tablets in Connell’s travel bag after they were detected by an X-ray scan at the airport.

The pills had an estimated street value of $85,000, according to the Thai customs department.

‘Naive kid’

He was jailed for 99 years but had his sentence reduced to 30 on appeal and has been further reduced to 20.

His father said he understood his son would have to serve half of the remaining sentence, six years, in the UK, before being released on parole.

He is currently being held at Wandsworth prison in south-west London and his father is expecting him to be transferred to Whitemore in Cambridgeshire.

Mr Connell senior said his son was a “naive kid with learning difficulties. He was stupid to do it – he knows he was stupid to do it”.

He added: “He has done eight years in probably the worst prison in the world. I think he has done enough.”

He is now writing to the Ministry of Justice to ask ministers to consider his case.

A Ministry of Justice spokesperson said they were unable to comment on individual cases.

But she confirmed that, under the Prisoner Transfer Agreement, British nationals imprisoned in Thailand were able to transfer to the UK to complete their sentences.

“Prisoner transfers are not there to enable a prisoner to receive a reduced sentence, but to help alleviate the problems of imprisonment abroad such as language, cultural and visiting difficulties.”

Michael Connell’s case is featured on Inside Out North West on BBC One at 19:30 GMT.

Disabled Couple In Free Theatre Ticket Row

January 23, 2012

I think this is a difficult case, readers. I can see what the theatre staff were thinking when they refused Mr Nicol’s partner the free ticket. They were considering health and safety issues. However, using a wheelchair herself does not make the lady any less able to be a carer. Theatre staff are wrong to make that suggestion.  Anyway, surely the couple know their own and each other’s abilities and surely that is all that really matters?

What do you think?

A disabled man has criticised a theatre in Surrey after he was refused a free carer’s ticket for his girlfriend because she also uses a wheelchair.

Philip Nicol, from Reigate, said after buying tickets for an act at Dorking Halls Theatre, staff phoned him back.

He was told if his partner could not help him in an emergency she was not a carer.

Mole Valley District Council defended the decision and said his partner was not entitled to a free ticket.

Mr Nicol, 48, who has a condition called Adrenomyeloneuropathy which has left him unable to walk, said he had been left feeling “useless”.

He said he and his partner had used the theatre before and had been granted a free ticket.

‘Role of a carer’

“They do not understand the disability issue at all,” he said.

“My partner cares for me when I suffer mood swings and tiredness with my condition.”

David Howell, portfolio holder for assets at the council, which runs the theatre, said: “A customer with a disability who needs a carer’s help is always entitled to a free ticket for the carer.

“However, our staff were then told that the person accompanying this customer was also a wheelchair user. It was felt they could not fulfil the role of a carer within the building, especially in an emergency.

“So in this situation they could not be classed as a carer and could not be offered free admission.”

Meet Richard Whitehead- Britain’s Blade Runner

January 23, 2012

A Nottinghamshire athlete who runs on special blades is aiming for gold at the London Paralympics this summer.

Richard Whitehead, who was born without legs, already holds the world record for the 200 metres in his disability category, but has also started competing in the marathon.

The 35-year-old runner from Lowdham said he has faced come challenges in adjusting to the new discipline.

Ross Fletcher reports for BBC’s Inside Out East Midlands.

Push Girls

January 23, 2012

This looks like something I would like to watch.

As any aspiring actor will no doubt testify, carving a career in Hollywood is tough. So imagine the challenge if a hopeful were paralysed and confined to a wheelchair.

A new show based on just that scenario is set to be the next big thing in reality TV.

Push Girls, which will air on the Sundance Channel in April, follows the personal lives of four wheelchair-bound women as they negotiate familiar struggles from motherhood to relationship break-ups.

The women say it was the producers’ honest, straight-talking approach that convinced them to take part in the 14-episode series.

Angela Rockwood, 36, was an actress who appeared in The Fast and the Furious before a 2001 car accident left her without the use of her torso, arms or legs.

‘I’m a quadriplegic, so I need more assistance than the other girls,’ she told the New York Post.

‘I need someone to come in and catheterize me. I need someone to bathe me. I need someone to lotion me up…This is my reality, and it was important that the show capture that.’

Ms Rockwood may not be able to wash or go to the toilet without help but the main issue consuming her life is more commonplace – a divorce.

‘I think the common denominator with us is our wheelchairs,’ she adds of her co-stars. ‘But it’s not about the wheelchair. It’s about our spirit, and how we just live life to the fullest.’

Model Tiphany Adams, 28, survived a drunk-driving crash in her senior high school year that left three of her friends dead. She was given a five per cent chance of living by doctors.

She told the paper: ‘Most people would want to give up. But all four of us girls chose to triumph over the tragedy.’

Indeed, Auti Angel, 42, was a successful hip-hop dancer who worked with Milli Vanilli in the early Nineties, before a car smash in 1992.

‘I was J Lo before J Lo,’ Ms Angel told website disaboom.com. ‘I danced with LL Cool J. I went on tour with rap artists and I was about to sign a record deal as part of an all-Latin female Hip Hop group.

‘Then, the tragic car accident happened, severing my spinal cord and leaving me wheelchair bound.’

But despite being dropped by the record company because they were not ‘willing to wait [for her recovery]’, Ms Angel’s energy and dynamism has never dimmed.

‘Once a dancer, always a dancer,’ she said. ‘The spirit of dance never dies, no matter what happens to your body.’

Like her castmates, Ms Angel’s goal will be more familiar to the show’s audience – one of trying to get pregnant and start a family.

The final member of the cast is Mia Schaikewitz, 32, a former competitive swimmer, who lost the use of her legs after a rare type of brain haemorrhage at the age of 15.

In the show, Miss Schaikewitz assesses the break-down of her relationship with her able-bodied boyfriend and faces swimming again for the first time since her accident.

Producer Gay Rosenthal, who was also behind hit series Little People, Big World, says Push Girls is a groundbreaking idea.

‘I am always trying to forge new frontiers,’ she told the New York Post. ‘I started developing this show as soon as I met the girls.’

But she added that the concept of a reality television show about four wheelchair-bound women was a hard one to sell.

‘There definitely were some [networks] who didn’t know what to do with’ the show, she admitted.

Muhammad Miah- The Boy Who Has Never Eaten Food

January 23, 2012

Eighteen-year-old Muhammad Miah has never been able to eat.

While many people are trying to eat less after the excesses of the festive season, Muhammad cannot even drink tap water.

“The water has got to be boiled or be mineral water otherwise my gut doesn’t like it. My stomach is very sensitive.”

A serious gut condition means he has had to rely on artificial nutrition since birth.

During the day his meals come in liquid form, containing protein, carbohydrate, fat, water, minerals and vitamins.

At night a pump feeds more nutrients directly into his stomach via a special tube.

In the past he has had to rely on being fed intravenously, where the contents of the feed bypass the usual processes of eating and digestion.

There was a particularly bad spell a few years ago, Muhammad recalls.

“My gut stopped working at all. I couldn’t even have liquid nutrition or water. It was a case of ‘nil by mouth’. That lasted several months.”

Nerve failure

Known as intestinal pseudo obstruction, Muhammad’s rare condition is thought to affect 12 to 15 children in the UK.

The intestines lose the ability to push food, stool or air through the gastrointestinal tract.

Doctors at Great Ormond Street Hospital in London, where Muhammad has been treated, believe that his particular condition is caused by a failure of the nerves within the smooth muscle of the intestines, something known as hollow visceral myopathy.

But he still see a potential positive side to his condition.

“Sometimes I think I’m healthier than other people. When you think about all the junk food people are eating… at least I won’t get fat.”

Doesn’t he ever get desperate to devour a proper meal?

“My feeds are so well timetabled now that I don’t really get hungry, to be honest. And when I’m really unwell I don’t feel hunger anymore. It’s just normal to me.”

Despite his brave attitude, the condition has had a major impact on Muhammad’s life.

Although he is managing to pursue his studies at Newham College and hopes to go on to university next year, he has days when his energy levels are very low and he struggles to get out of bed.

‘Knife edge’

Dr Nikhil Tharpar, senior lecturer in paediatric gastroenterology at University College London’s Institute of Child Health, says there is an urgent need to understand gut conditions better.

“We can only control the symptoms at the moment. The treatment is just allowing patients like Muhammad to survive. We don’t offer any cure.

“But we want to look at why these birth defects develop in the first place, and do some research looking at stem cells to grow some of the missing nerves.”

Dr Tharpar acknowledges that children with intestinal pseudo obstruction have a lifelong problem which they cannot change.

“These children are very brave, despite everything.

“They can have a very poor quality of life, be in and out of hospital every week and suffer severe constipation and blood clots.

“They are often living on a knife edge.”

Great Ormond Street Hospital in London has recently been designated the national centre for diagnosing and treating children with the condition.

“Bowel problems are so common,” says Dr Tharpar.

“Fifty per cent of children suffer from bowel problems at some point.”

In an effort to raise awareness and money for bowel disease research, Dr Tharpar is climbing Kilimanjaro in February.

After many operations, Muhammad’s energy levels would not allow him to take part in such an exhausting challenge.

But he is hoping that the trek and any future research will have life-changing implications for him.

The Two Worlds Of Charlie F

January 23, 2012

Readers, do any of you know if this play is having a proper stage run? Have you seen it? It looks very interesting to me.

On a brightly-lit stage at the Theatre Royal Haymarket, two young men are comparing their injuries, and trading good-natured jibes. One has lost two legs, the other ‘only’ one.

The men are not actors, but still serving in the armed forces, and their wounds are all too real.

Marine Cassidy Little and Rifleman Daniel Shaw, an infanteer from 4 Rifles, are just two of the 30 injured or wounded servicemen and women who have joined the Bravo 22 Company project – the brainchild of theatre producer Alice Driver – to bring their experiences to the stage on Sunday.

The Two Worlds of Charlie F is probably the closest most West End audiences will get to the front-lines in Afghanistan, and the slow and painful process of recovery endured by the injured.

The characters are based on the men and women’s own stories, written and produced by professionals at the theatre’s Masterclass Trust.

‘Amazing experience’

The language of the play is wholly authentic, with the drama of the fictional Charlie F and his comrades moving seamlessly between black humour and pathos, though rarely self-pity.

During rehearsals, the forthright orders from director Stephen Rayne are reminiscent of a sergeant major.

Rifleman Shaw, 20, volunteered to take part in the project while at Tedworth House Recovery Centre, after losing both legs to a roadside bomb in Helmand in 2009.

“The play has been an amazing experience, and I feel good doing it, but there are a few emotions that do come back on stage, and it’s the same for everyone,” he says.

“But it’s in the past and you have to get over it. Regardless of your injuries, there’s no point crying about it.”

He hopes the play will help the audience understand the physical and mental impact of the soldiers’ injuries, and what their families have to face.

“My mum and dad and my ex-girlfriend are coming to see it. I’ve explained to them what happens in the play – especially when it gets quite emotional – and I’ve warned them not to fret.”

Captain Anna Poole, who plays a captain, says the last time she was on stage was tap-dancing at school, 23 years ago.

She, too, is matter-of-fact about her injury, after losing a leg as the result of an accident while competing for Great Britain in a luge contest in 2005.

“It is incredibly nerve-racking to go up on stage,” the 34-year-old admits.

“A lot of the guys say they would rather be storming compounds back out in Afghanistan than going on stage. It’s a different type of fear, but it’s also great fun.”

The Bravo 22 Company project does not shy away from showing the hurt and pain suffered by the injured and their families, and also deals with tough subjects such as sex post-injury or emotional estrangement when partners or relatives find it hard to cope.

“It’s a very personal play, with quite raw emotions,” says Capt Poole.

“It’s been quite difficult to watch some of it, because you know whose girlfriend had those experiences, or which guys you’ve seen go through a lot of grief, when they come out of their operation and can’t put on their prosthetic limbs.

“It’s been a cathartic process for many of us, and the audience will struggle not to get their hankies out. “

Those taking part say they are grateful for support from the Royal British Legion, Masterclass and the MoD in letting them tell the “grittier” side of the recovery process.

“A lot of documentaries focus on the point of being injured, but what they don’t show is this incredible patch in the middle when your ups and downs are astronomical,” Cpt Poole says.

“I hope the play will give people a better understanding, and the knowledge that when they contribute to military charities, they are helping people like us rehabilitate – no matter where or how those injuries were sustained.”

Capt Poole is due to leave the Army soon, and is studying glass-blowing – a rather different future to the one she had imagined – but one she is looking forward to with enthusiasm.

Rifleman Shaw is also looking to the future with hope, despite his life-changing injuries.

“It’s just time. Everyone needs time. For myself, I woke up one morning and said – right, got no legs. What else can I do? OK, I’ll do everything I can do, rather than crying about what I can’t do.”

‘Two worlds at once’

The play is one of the first to deal with the personal consequences of the UK’s two most recent wars; its title an allusion to the different worlds inhabited by the wounded, pre- and post-injury.

The Welsh playwright, Owen Sheers, began by talking to the wounded, first alone and then in groups, gathering their stories.

“It wasn’t always easy for them to talk about it,” said Sheers, who is also a novelist and poet, and last month became the Welsh Rugby Union’s first artist-in-residence.

“Quite often I was the first person they’d told stuff to, and that was an indication of what this project meant for them, being willing to go back to some quite painful places,” he said.

“What a lot of wounded servicepeople struggle with is inhabiting a series of two worlds at once.

“They will lay their heads down to sleep and in an instant they will be back on the frontline, but then they’ll wake up next to their wife.

“I hope the audience will get a soldier’s eye-view of what it means to be injured or wounded and go through this recovery period, and be reminded of what those three letters ‘war’ actually mean, and how far the consequence of one person’s war and wounding stretches.

“We’ve been involved in conflict for 10 years, yet it’s very easy to live in Britain and not be aware that we are a country at war.

“I think that is irresponsible – and I think we need to be aware for all our sakes about the absolute realities of what war means.”

Audi Apologises To Disabled Driver After Order Was Rejected

January 23, 2012

This is something that those of you lucky enough to be disabled drivers may find useful.

Sue Marsh

January 20, 2012

Dear Readers

The campaigner behind the Spartacus Report, Sue Marsh, is seriously ill in hospital. She explains all in this post at her personal blog.

My thoughts are with Sue and her family and friends at this time. I am simply one of her many online followers, contacts and admirers, but through this tiny little blog post, I am sending out my very best wishes and sincere hopes for Sue’s full and speedy recovery.

As I said to Sue, we must fight but we must also sometimes stop to remember why the fight started.

Samedifference1