The Results Are In!
After three long months, Big Brother has left his family alone. For the rest of 2008, at least.
I was extremely disappointed when Darnell came fifth. Mikey came a brilliant second. Rachel was this year’s winner.
I would just like to say that even though neither Darnell nor Mikey managed to win, they have both shown the nation that it is very possible for a DisAbled person to participate fully in Big Brother. Somewhere along the way, they managed to raise awareness of their DisAbilities.
I will be following both of their careers very closely, and I wish them both all the best as they return to ‘the outside world.’
DisAbility At It’s Best
Best of luck to Simon Wilson. He is, not surprisingly, DisAbled.
Paralympic Classification
The 2008 Paralympics in Beijing will stage 20 sports but not all disability categories can compete in each event.
Each sport has different physical demands and so has its own set of classifications.
The A-Z of the classification system is here, for those who are interested.
The Paralympics Lead China Into AccessAbility
What a great article. This is brilliant news for DisAbled people everywhere. We can only hope that it will last.
I’m Lost For Words
Both DisAbled Housemates Are In The Final!
The last round of nominations have been completed. Even though Mikey and Darnell each recieved one nomination, I am thrilled to report that neither of them faces the public vote this week. This means that they have both made it to the final week of BB9. Congratulations Mikey and Darnell! As always, they both have my full support, and as I have always said, I hope that either one of them will win.
Either Lisa or Sarah will become the final housemate to be evicted on Friday night.
Paralympics? What Are Those?
The Paralympic Games start on the 6th of September this year. If you didn’t know this date, blame the mainstream media. I promise regular coverage on Same Difference, but first, I have a rant and some important things for you, my readers, to consider.
The Beijing Olympics have been planned, anticipated and trained for for the last seven years. The preparation has been in the mainstream media on and off for the last four. But who has covered the Paralympic preparation? No one. It is a fact known to anyone who cares that the Olympics and the Paralympics take place in the same year, in the same city. But since no one told me when the Paralympics were starting, I wrongly assumed that both events were taking place at the same time, and wondered why there was no news of the Paralympics in the mainstream media.
Of course, the whole world knew that the Olympics were starting on the 8th of August. It was not until seventeen days, two spectacular celebrations, millions of fireworks and, in the case of Team Great Britain, 47 medals, later that the sighted eyes of the mainstream world finally turned to the 2008 Paralympics and those truly DisAbled men and women who will compete in this, the most prestigious event in amateur DisAbility sport.
I have three questions. One for China, one for the press, and one to the general public. First, to the press. They advertised the starting date of the Olympics for weeks before the event started. So why did they wait so long to advertise the starting date of the Paralympics? Maybe they don’t think DisAbility deserves to be celebrated as much as the ‘spirit of the Olympic Games’ does. Personally, I think they are wrong there. DisAbility Sport always takes more effort and determination than mainstream sport ever will, so, in my opinion, the Paralympians deserve equal, if not more, publicity.
My second question is for China. They chose to start the mainstream Beijing Olympics on the 8th of August because, as they told the whole world, eight is a lucky number in China. Obviously they thought hosting the Olympics would bring luck to their country. So why couldn’t they have chosen to start the Paralympics on the 8th of September? Don’t they think that hosting an event of DisAbility sport will bring them luck? Obviously not. Here, I can only hope that they will be proved wrong.
My final question is more of a general one. Is there any really good reason why the truly DisAbled Paralympic stars could not have had their event at the same time as the mainstream Olympics? That would have meant true inclusion for them, as well as a feeling of belonging, being truly welcomed and being truly wanted for DisAbled communities worldwide. Unless there is a really good reason why this would be completely impossible, I would just like to say that it is something that I, personally, would like the organisers of London 2012 to seriously consider.
All that is left for me to do is to promise regular coverage of the 2008 Paralympics on Same Difference, and to wish the truly DisAbled members of Paralympic Team Great Britain loads of fun, friendship, safety and success. Anyone from Team Great Britain who gets a medal will instantly make it on to this list. May the fastest wheelchair win!
Rex Doesn’t Like Mikey
I have never seen such blatant discrimination as what Rex showed against Mikey in Wednesday’s highlights show.
For this week’s task, the housemates have to learn and perform the music video to Michael Jackson’s Thriller. They chose Rex as choreographer, and he chose Nicole to be Michael Jackson.
My problem started when Rex and Nicole went to the Diary Room to ask about the fairness of Mikey participating in the task. Big Brother very rightly informed them that they would be judged on their effort and achievement over the whole task as well as on the final video, and that if Mikey was having trouble with the task he should tell Big Brother himself,
Mikey then told Rex, Nicole and later Big Brother that he did want to and would participate in the task, and that all he needed was for Rex to give him clearer instructions!
Rex responded that he isn’t used to teaching someone who can’t see, and later told Nicole that he doesn’t like Mikey. Maybe this is because he has never been able to ignore Mikey’s DisAbility.
Mikey responded to this blatant discrimination by showing the nation that he is well and truly DisAbled. As always, he has my full support.
Nominations Day Number 10
Great news from the Diary Room! Neither Mikey nor Darnell recieved a single nomination this week! So here’s to yet another week of DisAbility in the Big Brother house!
Harry Potter? DisAbled?
No, I can’t believe it either! Nineteen year old Daniel Radcliffe, the boy who brings Harry Potter from page to silver screen, has a problem that no amount of magic will solve. He has revealed that he suffers from the neurological DisAbility dyspraxia.
He says this means that he still has trouble tying his shoelaces. Not that it’s stopped him making millions in Muggle money or anything! There may just be hope for me after all.
Daniel Radcliffe is exactly the kind of person who puts the Ability in DisAbility. He is a true inspiration to anyone with any DisAbility. I now have an extra reason to wish him all the best in life as both a magician and a Muggle.
Hilary Lister Abandons Her Voyage
I have been following Hilary Lister’s progress on this blog since I first heard about her attempt to sail solo around the British coast. So I am very sorry to read today that she has had to give up on this for now. She is still, in my mind, a truly DisAbled inspiration, and I wish her all the best in any future attempts, and in life.
Nominations Day Number 9
As Head of House, Mikey could not be nominated this week. Darnell recieved no nominations this week. So here’s to another week of DisAbility in the Big Brother House!
DisAbled Skinheads, Strictness And Slapping
The big news from the Big Brother House is that the Heaven and Hell Divide has come down at last! Mikey is still the Head of House, and is turning out to be very strict! One of his new duties is to make sure that all the housemates stay awake all day so, in yesterday’s highlights show, he was threatening to walk around with two cups of water to pour over anyone he caught sleeping!
For this week’s task, the housemates had to visit the Big Brother Barber Shop and fill a sack with the hair that Lisa, the Big Brother Barber, cut off. As Head of House, Mikey showed his DisAbilities by having his head completely shaved. Darnell did the same, even though he said that his hair was the only thing that makes him look like a black guy.
Mohammed recieved a warning in the Diary Room for jokingly slapping Mikey’s newly shaved head!
Mikey Is Head Of House!
Yes readers, Mikey is the new Head of House this week! What an inclusive bunch this year’s housemates are! Congratulations Mikey!
I am absolutely shocked, and deeply upset, to read about the case of seven-year old Lucy Chapman.
The Chapman family planned to start a new life in Nova Scotia, Canada. The local authorities had approved their arrival. However, after a six hour flight, a border guard informed them that because Lucy has a rare genetic disorder that leaves her unable to speak and with learning difficulties, she would never be allowed into the country.
Mr Chapman says he was told by the border guard that because she was disabled she had a lifetime ban.
Canadian authorities have tried to deny this blatant discrimination by suggesting that the Chapmans may have simply lacked work permits. Personally, I don’t believe this for a second.
The family believed they had the necessary paperwork in place, down to the clearance required for their black labrador, Harvey.
Mrs Chapman says: My dog was allowed to stay. My dog has a higher status than my daughter in Canada, just because she is disabled.
The family have employed a Canadian lawyer to fight their case and have vowed not to give up.
I find it shocking that any Western country could have a blanket ban on disabled immigrants in the 21st century, as late as 2005, when the Chapmans first started planning their move. Obviously Canada doesn’t have a Disability Discrimination Act. Being DisAbled, I, for one, am very glad that I don’t live in a country where the authorities have such an outdated attitude. I only wish someone could tell them to get their attitudes to DisAbility out of the 1500s.
Of course, I wish the Chapmans success in their appeal.
Nominations Day!
Darnell and Mikey recieved one nomination each this week, but luckily neither of them faces the public vote. Darnell’s punishment after crossing the divide yesterday was that he lost his right to nominate. Stuart and Dale face eviction on Friday.
Darnell Crosses The Divide
Tonight, Darnell climbed over the divide from Heaven into Hell. He was called to the Diary Room immediately to be reminded of the rules and told that he will be punished. That’s all I know for now, but watch this space!
Banning Multiple Choice Questions In Professional Exams Will Lock The Doors Of Mainstream Employment To Many Forever
When you first read about the case of Naomi Gadian, you may think she has a point. She is a second-year medical student who claims that she has difficulty answering multiple choice exam questions because she has dyslexia. She claims that the use of multiple choice questions in professional exams discriminates against people with this DisAbility. So she is now planning to take legal action against the General Medical Council in an attempt to ban the use of multiple choice questions in professional medical exams.
My first reaction to this case was that Ms Gadian is taking this too far. After all, I wondered, if she finds multiple choice questions difficult, could she not just have asked for a different method of testing for herself, passed her exams and left it at that?
You see, I have a physical DisAbility. I am lucky enough to be able to communicate verbally, but for many of my friends who are not so lucky, multiple choice is the only method of communication and expression they are able to use in all areas of their lives. As a result, I have always loved the system. When I first heard about her case, I was unable to understand why Ms Gadian, or anyone with dyslexia, would have difficulty with it.
So it has taken me some time to write about this case. At first, even though I disagree with Ms Gadian, I was reluctant to write about her at all. After all, since I don’t have dyslexia, or know very much about it, I can accept that those who do have problems that are very different to mine. And I realise that people with severe physical DisAbilities will never realistically be able to sit medical examinations, as they will never realistically be able to become doctors.
I decided to write this after reading about an interview with John MacKenzie, Ms Gadian’s lawyer, in which he said: ‘Every professional body or employer who relies for a professional qualification, or as a promotional gateway, on multiple-choice questions, is heading for a fall.’
This makes it clear that, if Ms Gadian’s case is successful, the use of multiple choice questions could be banned from all professional exams. Some have argued that medicine could be the wrong profession for Ms Gadian and others who have her DisAbility. Of course, locking people with dyslexia out of medicine as a direct result of their DisAbility would go firmly against the Disability Discrimination Act. That is the last thing that I would ever want to see happen.
I would like to suggest that the General Medical Council and other professional examining bodies who use multiple choice as a method of testing base the decision not to use this method on individual cases, difficulties and requests. I believe that, by banning this method completely, while they may meet the needs of dyslexic candidates, they will forever lock the doors of professional employment to many others who, as a result of physical DisAbility, can never use any other method of communication. Since these people are intellectually very capable of enjoying a career in the profession of their choice, that would lead to a far worse breach of the Disability Discrimination Act, in my opinion, than the one that Ms Gadian claims is currently being carried out against her.
This post is part of the Inclusion Rules! debate at Same Difference.
Darnell In Heaven and Mikey In Hell
Darnell and Mikey have ended up on opposite sides of the house this week. They have also come out on exactly opposite sides of the Head of House challenge, with Darnell coming first in the group by reciting the alphabet backwards in a brilliant 51 seconds and Mikey coming last by taking over 15 minutes to do the same task. Unfortunately, since Darnell has already been Head of House once, this week the title went to the second-fastest housemate, Rachel.
Darnell Survives Again… And Lovers Reunited!
I am very pleased to inform you, my readers, that tonight, Darnell has survived his second public vote.
Luke was evicted, which means that he and Rebecca will soon be re-united (if they haven’t been already!)
And, in a shock twist, tonight Big Brother has re-united another loving couple, by sending Rex’s girlfriend in to the House as a replacement for Maysoon, who walked on Wednesday.
Congratulations Kelly Knox!
Kelly Knox has won Britain’s Missing Top Model. She has shown the nation that she is truly DisAbled, and I wish her a very successful modelling career!
Big Brother Is Still The Real Head Of House
Breaking Big Brother related news, readers!
When tonight’s highlights show revealed that Dale and Luke would face the public vote this week, I happily wrote a nice, cheerful blog post in my head about how we would get to have another week of DisAbility on our screens. Then, viewers were given a special sneak preview of tomorrow’s highlights show, where we discovered, to my great sadness, that seven extra housemates will face the public vote as punishment for discussing nominations!
These seven extra housemates include Darnell. Stuart is also included, and thanks to MSN, I can exclusively reveal that he has lost the title of Head of House!
So, for the second week in a row, I sadly ask you, my readers, to KEEP DARNELL IN!
Thank you.
Rex Discriminates Against Mikey
I’ve never liked Rex much. I am sad to say that I have just been reminded why.
The housemates from Heaven (Mikey, Rex, Mohammed and Stuart) spent Sunday night in front of a big TV screen, watching the audition videotapes of the housemates from Hell.
This was one of Big Brother’s better ideas. My problem with it, though, started when I saw the way Rex spoke to Mikey.
Rex was surprised by Rachel’s tape, so he turned to Mikey and said “I wish you could have seen that.” Newsflash, Rex. There are a lot of sensitive sighted people in this world who wish that blind people could see a lot of things. Few would ever dream of saying that to a blind person’s face, though, because we know that, no matter how much we wish they could see, they wish for their sight a million times more than we ever could or will, and they don’t need to be reminded of that.
Later, Rex told Mikey that he was “at a slight disadvantage because he couldn’t see them, because it’s all about the body language.” Newsflash number two, Rex. Mikey knows that, too.
All I can say is that after tonight’s highlights show, my family are very lucky that we still have a TV, because I was very close to breaking the screen!
Disabled married off for entry into the UK
This is a guest post. It was originally posted yesterday by Rumbold on Pickled Politics. Thanks to Rumbold and Sunny Hundal.
The Independent on Sunday has a story about how some families are forcibly marrying off their disabled children to people from the subcontinent, who are then able to live in the UK. Some families believe that because of their children’s disabilities, this is the only way to get them married off, and this mindset is exacerbated by the fact that South Asian families are less likely to seek help from disabled organisations:
“Mandy Sanghera, a social worker with Voice UK, a charity which helps people with learning disabilities, believes that the emphasis must be on protecting vulnerable individuals rather than on the communities which are failing them. “In 15 years I have worked with more than 100 people with learning disabilities forced into marriage, from south Asian, African and Middle Eastern communities. Forget the political correctness: these human rights abuses are very real and need to be stopped,” she said.
Ms Sanghera worked with Rani, a woman in her twenties with learning difficulties and mental health problems. Rani’s mother felt under pressure from the community to arrange for her to marry an Indian man who needed a British passport. Her mother decided this would be a good match, believing that no one else would marry her. After a year of marriage, Rani suffered a miscarriage and it was discovered that Rani’s husband was physically abusing her and stealing her benefits to send to his family. But her family pressured her to stay with him for the sake of honour.”
Mikey In Heaven
After two weeks in Hell, I am thrilled to say that Mikey has finally earned himself a week in Heaven by coming second in the Chilli Challenge. Stuart came first, and is Head of House this week.
Darnell Survives His First Public Vote!
I am thrilled to report that Darnell will stay in the Big Brother House for at least another week. Rebecca was evicted tonight.
Darnell Goes To Jail
Tonight’s highlights show featured Darnell being sent back to jail. This time it was because he told Rex that he nominated him!
This Is Now A Website!
As I’m sure you’ve noticed, this blog now has it’s own domain. To celebrate, it’s been redesigned. It has a new name, a new tagline, and a new look. And you don’t need to be registered with WordPress to comment any more. I hope you like the changes! I have plans for this blog to get better with time. Look out for more links and pages and, of course, posts as often as I can!
The Inclusion Room
I’d just like to say that I agree with every bit of this great article. Let me react to some of my favourite bits.
Jane Muir tells us how, because of his physical DisAbilities, her 16 year old son had to be moved out of mainstream lessons, and into the ‘assisted learning group,’ where he’s taught by teaching assistants. This has been dubbed ‘the inclusion room,’ a classroom reserved for DisAbled pupils in a mainstream secondary school.
They are read stories meant for people ten years younger, like Roald Dahl’s The Twits. As Muir rightly says:
at secondary school, why not move on to Oliver Twist, or Jane Eyre, The Curious Incident or even My Left Foot? What about Wilderness by Roddy Doyle? Why not read something that addresses social issues of race or gender or disability, or something that lifts you into a higher realm of understanding or perception, or that gives you a glimpse of other ways of seeing and other possibilities of being? Isn’t that what education is about?
She says that her son and his class don’t have qualified teachers, because there is no money for qualified subject teachers in the assisted learning group, and they aren’t even seen as necessary, except for music, swimming, maths and English.
Reading this article has made me very sad, because, to quote from Muir again, I am a passionate supporter of the idea of inclusion, but this, an “inclusion room”, is not it.
Of course it isn’t. It hasn’t been for 50 years. The ‘inclusion’ of an ‘inclusion room’ like the one that Muir describes in a mainstream school is not real inclusion at all. It is the opposite. It is a process known as Integration, where mainstream schools let DisAbled children use their building, but not much else.
For me, my friends, our parents, and just about every other campaigner for inclusion in the UK today, this just isn’t enough. We want real inclusion. We want to be allowed, as I have said in an earlier post, to be around able-bodied children, to learn what they learn and to do, as much as possible, what they do.
Calling integration inclusion will never make integration inclusion. I loved being included, but if I had been integrated, I would much rather have stayed in a special school. Integration would have made me feel excluded and disabled, not, as I was, included, welcomed and DisAbled.
Yes, people did feel differently about this once, but that was 50 years ago. Integration is not what so many DisAbled children and their parents have fought so hard for for so long. We did not fight our personal battles, or celebrate our personal victories, so that this outdated practice would still be taking place. Reading that DisAbled children, anywhere in the UK, are still only being integrated, in this century, has, quite honestly, made me want to cry.
Sadly, it seems like DisAbility Rights campaigners must fight again. We must, once again, find a way to put a stop to integration and replace it with real inclusion for every DisAbled child who wishes for a mainstream education. ‘Inclusion rooms’ must take the nearest time capsule back to the 1950s. Jane Muir’s son and his friends must be allowed to learn French, Geography, and anything else they want to learn, in mainstream classrooms, with able-bodied children. Otherwise everything that we and our parents have done and fought to do was a waste of our time and our mainstream schools’ money.
This post is part of the Inclusion Rules! debate at Same Difference.
Sad But Not Surprised
Tonight, I am very sad, but not surprised. As I expected, Darnell is facing the public vote this week, with six nominations.
In other news, Mikey recieved a nomination!
I’d like to ask you all, readers, to vote out either Mohammed or Rebecca and KEEP DARNELL IN!
DisAbled Housemates From Hell
I’m sad to report that both Mikey and Darnell will be spending this week in Big Brother’s idea of Hell.
Darnell’s Reign Is Over!
Darnell’s time as Head of House came to an end today. Unfortunately, most of the housemates thought that he turned out to be terrible at the job! Even more unfortunately, Mikey was one of those housemates! I’m now waiting for nominations day because, after seeing the fight between Darnell and Stuart over the Head of House election in tonight’s highlights show, I’m sad to say that I don’t like Darnell’s chances of escaping the public vote this week!
Exceptions To Religious Rules
Seventeen-year old Mohamed Khatria, from Leicester, lost his sight in 2005. He uses a guide dog, Vargo, to get around, but, because dogs are regarded as unclean in Islam, he cannot take her into the Al Falah Mosque. This means that Khatria can’t attend the Mosque himself, so he has now requested the imams (religious leaders) at the Mosque to review this rule. They have agreed, and they hope that this will set a national example.
Ibrahim Mogra, a senior imam at the Muslim Council of Britain, emphasised that Vargo would not be allowed into the mosque’s prayer hall and Mr Kharia would be expected to wash before praying.
He admitted that some Muslims may find the idea difficult to accept, so the MCB are taking time and care to consult scholars in the UK and abroad. They are hoping to get written acceptance of this exception, so that any individual who feels uneasy about it can be assured.
Personally, I am very happy to hear that this exception will be made. I am a Muslim and proud of this, but before that, I am a person with a DisAbility. So I strongly believe that no one has any right to stop anyone going anywhere because of anything to do with their DisAbility. By not accepting Mohamed Khatria’s guide dog, these imams are preventing him, and other blind people, from safely entering their Mosque.
An employer or head teacher who did this would be accused of breaking the Disability Discrimination Act. I’m not saying that imams should be accused of this, or that every Muslim should celebrate this exception. All I am saying is that this is the 21st century, the year 2008. Guide dogs, like wheelchairs, are a fact of life in England today. If wheelchair users can be pushed to the synagogue on the Sabbath, then I, personally, don’t see why guide dogs can’t be allowed into Mosques. You may not agree, and that’s fine. But before you make up your mind, here’s something to consider. If you feel uncomfortable praying with a dog, you will, in these cases, be making a fellow Muslim feel uncomfortable while he is praying. Last I checked, that was a far worse crime than praying with a dog.
Woo Hoo!
Neither Mikey nor Darnell got any nominations this week, so we get to keep them both! Woo Hoo!
You’re Not Qualified To Do The School Run, Mum!
I recently asked a friend’s mother if she needed a CRB check to take care of her daughter, who is severely DisAbled. She found my question hilarious. Of course, I wasn’t completely serious. After all, why on Earth should any parent need a CRB check to care for their own child?
Ask Merthyr Tydfil council. According to this article, they told Jayne Jones, from Aberfan, that she couldn’t travel to school with her son, Alex, 14, in the council-provided taxi until she has a completed CRB check.
Alex has Cerebral Palsy and epilepsy, and requires 24 hour care. He is in danger of having an epileptic fit at any time, and his parents are the only people who have been trained to give him his anti-convulsant drugs. So, says Mrs Jones, ” “If we can’t get in the cab with him, then he’s being put at risk.”
She explains: “I would be in no contact with any children other than my own child. “
“It would be a case of me going to school and catching a bus home and that’s it. “
Now, personally, I’ve never liked councils. Jayne Jones’ experience has only reminded me exactly why. How can Merthyr Tydfil council not allow a child’s own mother, and full time carer, to take care of him? Especially when they know that this would put his life at risk? In my opinion, it is just another example of political correctness gone crazy!
Councils are always cutting costs, and complaining about needing money. If Merthyr Tydfil council allow Mrs Jones to act as Alex’s escort, they will be saving an escort’s wages, as well as ensuring that Alex Jones’ life is not placed at risk. I believe that this is one case in which a CRB check is completely unnecessary, and would do more harm than good.
There are some things that I believe the government, and councils, should take action to control. The school run is not one of those things. If a loving mother needs a piece of paper before she can take her own child to school, then we live in a very sad world. Maybe the time when my friend’s mum will need a CRB check to live with her daughter isn’t that far away after all…
Women will need completed CRB checks to get pregnant next!
Darnell, DisAbility and A Sneak Preview!
This weekend, thehousemates were asked to choose their first ever Head of House. They had to decide on three housemates to stand for election. Darnell showed his true DisAbilities yet again by participating fully in House activities when he, along with Dale and Luke, volunteered.
I can exclusively reveal that Darnell won! He is the new Head of House, and is immune from next week’s eviction! I can’t say much more, except that I am very, very happy about this.
And with great power and great privilege comes great responsibility… watch this space!
Whose World Is It Anyway?
I read an interesting article in my favourite magazine, Pick Me Up, recently. Now, I know what you’re thinking, and you’re right. That’s hardly the most serious publication around, is it? But, for once, it really got me thinking.
Amanda Stainer, 35, had a stroke in late 2004. As a result, she lost the ability to speak, read and write. Her mother suggested that she attend adult education classes in order to relearn reading and writing.
So far, so ‘normal.’ But the adult education classes being suggested took place at the Royal National College for the Blind… and Stainer can see!
It was her reaction to her mother’s suggestion that made me think. If everyone else was blind, would I be the odd one out?
Now, we’ve all heard of Mainstreaming, also known as Inclusion. I would define this as the process of allowing, and accepting, a child or person with a recognised DisAbility into a mainstream school or another area of mainstream society. It’s difficult and challenging for everyone involved, but it’s recognised, and many have proved that it’s possible.
So, you see, DisAbled people in areas of mainstream society have been feeling like the ‘odd one out’ for a very long time. What Stainer’s story got me thinking about was, what happens when the process of Mainstreaming is reversed?
What happens when you send a sighted person into a place filled with blind people, a hearing person into a place filled with Deaf people, or an able-bodied person into a place filled with wheelchair users? I am going to call this the process of Specialisation.
I would guess that attempting to Specialise a ‘normal’ person would lead to exactly the same thing that happens when you attempt to Mainstream a person who is DisAbled. Unless the ‘normal’ person is in a position of authority, such as teacher, boss or Learning Support Assistant, they have no reason to be in a place that is ‘meant’ for people with DisAbilities. So they don’t fit in.
DisAbled people have been arguing for many years that we have very good reasons, and every right, to be included into all areas of mainstream society. I am the first to say that we do. The thing is, do the mainstream want to be Specialised as much as we want to be Mainstreamed? Not usually. Why? Well, because they have been brought up believing that they are superior to us, just because a higher percentage of people in the world are lucky enough to be able to see, hear, walk or communicate verbally. We, however, have been brought up believing that, even though there are more of them, we are different, but equal. So we fight for inclusion into what ‘they’ call ‘the normal world.’
Stainer was very nervous before her experience of Specialisation. In the end, she fell in love with a fellow student at the Royal National College for the Blind, a man who has Retinitis Pigmentosa.
I’ve always thought that equality for the DisAbled population will be achieved when we are all allowed to join the mainstream. Reading Stainer’s story, however, has made me realise that, in places that majorities reserve for minorities, minorities become majorities and, therefore, they become ‘the norm.’ Now, I’m left wondering whether the real way for DisAbled people to achieve true equality with the mainstream is not for them to allow us into ‘their’ world, but for us to allow them into ‘our’ world. If they want to come, that is.
I think that it might be time that we started encouraging Specialisation as well as Inclusion. We have, after all, been trying, some more successfully than others, to fit in with ‘them’ for too long. However, if we are so ‘different, but equal,’ why can’t we offer them a place in ‘our’ world for a change? Who knows? We might just lead them to love!
This post is part of the Inclusion Rules! debate at Same Difference.
More Money, Better Care, Less DisAbility
Exactly one week ago, I posted on my blog about my views on compensation that is provided to families when their children are left with Cerebral Palsy due to hospital negligence during labour or shortly after birth. My post talks about how physical health is priceless, and how no amount of compensation can ever be enough to make up for the problems and the pain caused to people with Cerebral Palsy and their families. I suggest, in this post, that what the government, and hospitals, really need to do is improve maternity wards, and the care that they provide to pregnant women during labour, and to newborn babies after birth.
So I was very, very pleased when I heard news reports about a review of all the maternity units in England, which was recently carried out by the Healthcare Commission.
A survey of 150 NHS Trusts by the Commission has found low staffing levels and poor facilities in some hospitals.
The report revealed some trusts had as few as two beds available per 1,000 births, meaning that each bed was used, on average, by more than one woman in 24 hours.
The report found that some hospitals were far worse staffed than others, with a ratio of fewer than 23 midwives per 1,000 births, compared with 40 per 1,000 in the most generously staffed units.
Healthcare Commission chairman Sir Ian Kennedy said many hospitals had made improvements already as a result of the review but problems remained.
“There is no doubt that the report contains some tough messages,” he said.
“There is clearly more to be done to improve the quality of clinical care as well as the experiences of women.”
As a result of this report, the government has said it will provide £330m for maternity wards. They are also planning to recruit 4000 midwives by 2012. Government critics, however, have said that women have had to put up with failings for too long.
In my opinion, this report should have been carried out a very long time ago. I do not completely agree with the view that the promised improvements are too little, too late, however. Of course, they come too late for Andrew Dixon, Callum Robertson, Daniel Kay, Owen Johnson, and all others who have been left with severe Cerebral Palsy as a direct result of hospital negligence or a lack of facilities on maternity wards.
However, if these improvements take place, and if they mean that even one mother and newborn baby receive a high enough level of care in the maternity ward to prevent Cerebral Palsy, they will have come on time. So I sincerely hope that the government can keep these promises. If they do, they might just save themselves some money by reducing rates of disability in the UK. Nothing would make me happier than to see that happen.
Mikey’s DisAbility
Tonight’s hghlights show featured Mikey being truly DisAbled. He told Belinda that he didn’t want a scene made about his DisAbility, and that he didn’t want her saying he needed special help when he didn’t. Nice work, Mikey.
Time Travel: Case Two
It seems to be Time Travel Day today here on RTAID! This article has just provided me with even more proof that some members of the mainstream are, unfortunately, still living in the 1500s. This is totally outrageous, as well as illegal. I hope the girls enjoy their £4500 compensation, even though I’d rather have seen the manager of the beauty salon lose her job! I hope that having to make the payout has taught her that her behaviour is extremely outdated and needs to change very fast!
Travelling Back In Time
RyanAir need to be told that their policy of leaving without DisAbled passengers if they are not able to board their flight breaks the Disability Discrimination Act! I find it unbelievable that things like this are still allowed to happen in the West in this century. One thing’s for sure, I will never fly RyanAir while they have this policy!
Another Week of DisAbility
But only just! I’m sad to say that Darnell recieved three nominations this week! Luckily Mikey didn’t recieve any again.
In other DisAbility related news, new housemate Belinda saw three housemates walking away when Mikey walked over to where they had been standing. She decided that this must be something to do with Mikey’s disability! Thank goodness for Mario, Lisa, Luke and Rebecca, who were all upset to hear this!
Mikey Goes To Jail Again!
Just a quick post to say that tonight’s highlights show featured Mikey going to jail for talking about nominations again. This time the conversation was with Luke.
Blind To The Benefits of an Inclusive Education
I am writing this post with some sadness, in reply to Ian Hamilton’s article, in which he says that he suspects that he is out of line with other disabled people in his view that integrated education doesn’t work well for the majority of blind children.
Hamilton does make some good points in his article, and that’s one of them! Let me reply to some of his points with my views and experiences.
Personally, I believe that the drive to integrate blind children into mainstream schools has more to do with political dogma than providing visually impaired pupils with a rounded education.
He may have a point here. Blind children, after all, can be educated in Braille. As Braille becomes more recognised, they will, no doubt, be able to recieve a rounded education in specialist schools as well. But I honestly doubt that their wish to be in mainstream education has anything to do with politics.
For me, my friends and our parents, the wish to be in mainstream education was about wanting to be around able-bodied children, while learning what they learnt and doing, as much as possible, what they did. Special schools, for us, didn’t teach very much. As one teenager once said: If I was in a special school, there would be no simultaneous equations or whole-day Art exams. Instead, in Maths I would be counting to 100, and in Art I would be finger painting.
I hear shouts of: But it’s different for blind children! That is true. But only because, personally, I think they may be asking for too much from mainstream education. As Hamilton says:
For example, the first time I was able to play football with other blind people was an incredible experience. On that occasion, there was a bell in the ball to help us play the game. Now I felt part of the team rather than hanging about the edges hoping that the ball would just suddenly find me. As a blind person in a sighted school, I would never have got into the school football team.
Personally, I never wanted to be on my mainstream school’s football team. There must, however, have been ways for Hamilton to play football with a team of blind children without being in a specialist school!
Let me respond to some other things. Hamilton says that the part of his education that benefitted him the most was his time at the Royal National College for the Blind, because meeting and finding out about the world with other visually impaired people was vital for me to understand my own value. It helped me to learn about how blind people operate.
I’m not going to argue with this point at all. I’ve always said that every disabled person needs other people with the same disability in their life, because that is an unbreakable connection. I just feel sad to read that Hamilton felt that the only place that he could meet other blind people was in a specialist school. I guess this was where I was lucky. I’ve always had people with my disability in my life. They are my closest friends, but I didn’t meet them all at special school.
However, after making this good point, Hamilton says: Blind children need to be taught that they have a rightful place in the visual world.
Very true, but how are they ever going to be taught that if they are not included into the visual world from childhood, through a mainstream education? If I had not gone to mainstream schools, I would never have believed that I had a place in able-bodied society.
Being the only blind person in the classroom with the talking computer and the classroom assistant only highlights the fact that you are different from everyone else.
So does being the only person in the classroom allowed to type with a classroom assistant. So does being the only person in the playground with a walking frame or wheelchair. So does having a classroom assistant drawing for you during Art. Of course that’s true. But for me, these things were well worth the embarrassment that they caused. Because making me feel different was not all that they did. They also taught two mainstream schools full of able-bodied children and teachers about life with a disability. If even one of them sees a disabled person today and doesn’t discriminate against them because they think of me, then it was all worth it.
Politicians tell us that mainstream education is what the disabled community wants.
That’s because it’s true. Mainstream education for disabled children is not about being able to participate in PE, art or cookery. It’s about being around everyone else, while remembering your own limits, finding your own talents and being able to take them as far as your own intelligence allows you to. I have always believed that anyone with enough intelligence to handle the academic work at a mainstream school should be allowed to study at one. I, for one, couldn’t care less if they need to do their work in Braille, Sign Language or Facilitated Communication. This will only teach everyone involved valuable life lessons.
This post is part of the Inclusion Rules! debate at Same Difference.
A New, Cool Set of Wheels
In 2000, Mike Spindle, a British engineer, was going on holiday when his flight from Luton airport was delayed. In the airport lounge, Spindle noticed a fashionable teenage boy in a traditional, boring wheelchair. Struck by the contrast, he immediately started planning what would, eight years later, become this:
It’s cool enough to make me wish I needed a wheelchair! My reaction is the same one I always have to progress on anything DisAbility related: About time, too! Stylish sports cars have existed for decades, yet, according to one expert, when it comes to wheelchair design, wheelchair users can often feel like second-class citizens.
One of the first users of a Trekinetic chair, James Foster, 36, says:
“The Trekinetic is an awful lot faster than a standard wheelchair and a lot better once you get off paved surfaces as well. I’m always camping, fishing and kayaking and I’d never get to some of the places I go without it. In a conventional wheelchair you are always looking down at the ground, taking care to spot possible obstacles such as stones or tree roots, but in the Trekinetic, you don’t need to bother. The drum brakes are great for holding the chair back and steering it when going downhill. The chair is good at getting over kerbs, as well; with the large wheels at the front, you don’t need to use the “wheelie” technique you would in a normal wheelchair to get the small wheels over the kerb. It also helps break down a lot of barriers. People won’t normally approach someone in a wheelchair but everywhere you go in the Trekinetic, it leaves a wake of turned heads and quite a few people come up to ask you about it. At the Isle of Wight Festival last year, I could hardly move because of the interest in it. I for one wouldn’t go back to using a conventional wheelchair.”
What a great review! A big thanks to Mike Spindle from me. He is obviously my favourite kind of person- sensitive, understanding and able-bodied. A very rare, but wonderful, combination. I’m sure that, someday soon, the Trekinetic will be a major player in the global mobility scene.
Sticking Together
Tonight, for once in my life, I was happy to be proved wrong. When Mikey nominated Darnell on Monday, I said that the DisAbled housemates don’t stick together. Darnell proved me wrong tonight, though.
The housemates had set up a punching bag in the garden. Some of the others were surprised that Mikey had managed to punch it. They said this in front of Darnell, and he stuck up for Mikey.
He said that Mikey is human, and that he has capabilities. He said he wasn’t surprised that Mikey had been able to punch the bag, and wondered why, to the others, this was the story of the century.
He said that if he was blind and anyone talked about him like that, he would be pissed off.
Nice one, Darnell. If Mikey had heard him, I’m sure he would have regretted his nomination!
Placing Value on Something Truly Priceless
I often wonder why hospitals bother giving millions of pounds of compensation to families after children are born with Cerebral Palsy. Even if the hospital concerned is directly to blame for the child’s DisAbility, as it always is when compensation is fought for and awarded, giving compensation seems pointless to me.
Now, don’t get me wrong. I’m not saying that hospitals should get away with leaving people DisAbled for life. Nor am I saying that people with CP and their families don’t deserve the compensation. They do. Cerebral Palsy is a lifelong DisAbility. When caused by hospital negligence, it is usually very severe.
The latest case of hospital negligence where compensation was awarded was that of Owen Johnson. I have also featured the cases of Andrew Dixon, Daniel Kay and Callum Robertson on my blog. If the idea of compensation being awarded in the first place didn’t upset me so much, I would definitely stop to wonder why there isn’t a female on that list!
Getting back to the point of this post. Compensation definitely helps. No one is denying that. And every time a case comes to public attention, the payout is higher. Ask anyone affected by Cerebral Palsy, though, and I am sure that they will all tell you that they would much rather have full physical health, or an able-bodied family member, than any amount of money. If you watch the video about Owen Johnson, you will see that his mother, for one, definitely agrees with me on that.
In my opinion, what the government, and hospitals, really need to do is improve maternity wards, and the care that they provide to pregnant women during labour, and to newborn babies after birth. I strongly believe that if the government gave more money to hospitals to be spent on maternity wards, pregnant women and newborn babies would have better facilities, and would therefore recieve better care. If better care was available to mothers and babies, babies wouldn’t end up with severe, sometimes life-threatening, cases of Cerebral Palsy due to mistakes made by hospital staff. If hospitals didn’t cause Cerebral Palsy, families wouldn’t need to claim compensation. If compensation wasn’t claimed, the government would have more money. We can always hope that the millions they would save just might be spent on improving facilities for pregnant women and newborn babies!
Unfortunately, even after seeing five cases of hospital negligence leaving people with severe cases of Cerebral Palsy, I still have no idea how much time, or how many compensation claims or cases of Cerebral Palsy, it is going to take before the government finally realises this simple truth. What I can tell you for sure is that, no matter how many millions of pounds are awarded in compensation to people with Cerebral Palsy, full physical health and parents’ dreams for their children are priceless. Since Cerebral Palsy can’t usually be cured, no matter what, no amount of compensation will ever be enough for anyone concerned. So, lets stop placing values on things that are priceless, and instead, let’s start improving our maternity wards. That way, our government will save millions, and they might just reduce the number of DisAbled people in the world in the process.
Personally, I think that would be wonderful. As always, I welcome your comments.
Creature Discomforts Finally Hits Our Screens
As soon as I heard about this, I blogged here saying that it’s a brilliant idea. I still think it is.
It’s already been in our magazines for quite a while. This summer, it’s finally going to hit our screens. About time, too! I can’t wait to watch the adverts. A big thanks from me to Leonard Cheshire DisAbility, the charity that these adverts are campaigning for, and Aardman, who created the characters, for thinking up the idea.
Wheelchairs on the Catwalk
DisAbled models. Impossible? Not any more. New reality TV programme Britain’s Missing Top Model will give one young, DisAbled female the chance to do a fashion shoot for top fashion magazine Marie Claire. The programme started on BBC3 on Tuesday, July 1st.
Although I won’t actually be watching this programme, I will be following it closely through BBC Ouch and Facebook. When I first heard about it, my reaction was About time, too! It will definitely challenge stereotypes of beauty.
I know one thing for sure. All the participants are truly DisAbled. I wish them all the best of luck!
Discriminating Against Darnell
It was only yesterday that I was saying that this year’s Big Brother housemates are an inclusive bunch. I am very sorry to say that tonight’s highlights show proved me very wrong.
For this week’s shopping task, the house has been turned into a zoo. The housemates have to wear animal costumes and carry out appropriate tasks. One of the tasks is that, when Big Brother plays Kiss From A Rose by Seal into the house, the two housemates who are dressed as seals have to run outside and get a bucket of fishy water thrown over them.
My problems with today’s episode started when the housemates were deciding which of them were going to be the seals. The housemates agreed that it had to be people who liked water. Then Mario said, right in front of Darnell, that being a seal was not for people who don’t like the sun, cause you’ll be out there, and if you’re going to get burnt and you don’t like the sun then it’s not for you.
I heard this and felt like screaming! In my opinion, to make Darnell listen to that is blatant discrimination! Doesn’t Mario know that Darnell can’t help not being able to go out into sunlight? I’m sure that, if it was possible, Darnell would love to be able to do this! Being DisAbled and knowing my own limits, I am also sure that Darnell isn’t stupid when it comes to his. I very much doubt that he would have chosen to be a seal, whether or not Mario had so cruelly reminded him that this would be impossible!
The rabbits in the task have to munch on carrots every 15 minutes. Later in the same programme, Kat told Darnell that carrots are very good for the eyes because they are full of vitamin A. She said that he should eat carrots because if he did, he might be able to see much better! Darnell said that would be really good, if that was true. She said it is true twice, even after he told her that it isn’t. At the end of the conversation, Kat gave Darnell a hug. How fake can you get?
If I was Big Brother, both these housemates would have been given official warnings. If I was a housemate, my nominations for next week would be sorted!
Before I go, I have a suggestion for Big Brother. For next week’s task, the housemates should be made to research Albinism!
Nominations: Round 3
It seems that the Big Brother 9 housemates can’t get enough of DisAbility! What an inclusive bunch! We get to keep both Mikey and Darnell for at least one more week. I am thrilled.
The bad news is that this week, Darnell recieved two nominations. Luckily for all the DisAbled viewers out there, though, Mikey did not recieve any nominations this week. This honour seems to alternate between the two! Hmmm.
Interestingly, Mikey nominated Darnell! I guess the DisAbled population of the BB house doesn’t stick together after all!
DisAbility Vs The House of Lords
This is a guest post, which was originally posted on Monday by Caroline Ellis at OurKingdom. Thanks to them.
Tomorrow, a battle will take place in the House of Lords in which the human rights of disabled and older people will be pitted against the forces of Government complacency.
Crossbench peer Baroness (Jane) Campbell of Surbiton will move an amendment to the Health and Social Care Bill at Third Reading guaranteeing anyone in receipt of a care package the ability to take it with them when they move. At the moment, if a disabled person has the audacity to relocate – whether for a new job or to be closer to family – they will most likely face months or even years waiting for a new support package to be put in place. Even if their very lives depend on continuity of support, the reality is they will experience a stressful, humiliating, debilitating and often fruitless battle. Little wonder then that many think it simply isn’t worth the bother.
Jane Campbell is one of the most respected leaders of the disability movement and one of the most respected experts on social care, independent living and the transformation of public services. Jane does not think it acceptable that she remain effectively a prisoner of her local authority, at risk of life and limb if she should move to a different council. So she has set out to tear down one of the most glaring remnants of the old Poor Law that puts disabled people at the mercy of their parish.
Human rights are, necessarily, being prayed in aid. The right to family life is one that goes by the wayside as local authorities compete to see how stingy they can be with newcomers, and how long they can drag the process of reassessment out. Freedom of movement is another victim. Included in a protocol to the European Convention on Human Rights it is also specified in the new UN Convention on the rights of persons with disabilities which exhorts states to recognise liberty of movement for disabled people and empower them to freely choose their place of residence. The UK Government aims to ratify this at the end of the year – but ratification implies you actively enable citizens the ability to enjoy the rights enshrined in the Convention, not so in this case.
Jane’s amendment is being fiercely resisted by Government, who may offer only a pointless sop: inclusion of proposals on portability and continuity of social care support in their promised Green paper on adult care reform for further consultation (a Green Paper they have little hope of ever implementing).
It is also resisted by the Local Government Association whose briefing is littered with classic paternalism such as “Councils will always strive to provide the best level of care possible for those in need” (err in case you hadn’t noticed mate you have statutory obligations towards disabled people as citizens)
It has however received strong backing from seven leading national disability organisations, Carers UK, BIHR, the big hitters in the older people’s lobby, peers of all parties and of none and the Equality and Human Rights Commission. Community care lawyer Luke Clements has pointed out the necessity of legislating now to ensure the fundamental principle of continuity of social care support does not continue to be thwarted by bureaucratic delay and maladministration on the part of local authorities.
But from Government there cometh no movement. Never mind the millions that are wasted on pointless reassessment of people whose needs haven’t changed and never mind the millions lost to the economy when disabled people are left unable to work or contribute, you just can’t go around changing the law at the behest of disabled people and their chums even if they know more than you.
Ministers, civil servants and officials at the Local Government Association don’t have to deal day in, day out with the human fallout from a community care system still rooted in the poor law, it certainly doesn’t affect them personally. For them it’s a theoretical policy matter that can easily wait till another day.
Not so those at the receiving end. Disabled people hope fervently for a division tomorrow and for that division to result in the provision being added to the Bill. Sure Government can try and reverse it in the Commons but politically that looks deeply unattractive and will be met by vociferous lobbying. If the independent living movement fails to get or win a division we will be back – for battle in Parliament, battle in the courts. We’re declaring war on complacency and war on the poor law.
Living The Life of Mikey
I was thrilled when I saw this week’s Sunday task on Monday’s highlights show. The housemates had to spend a day without sight. They wore blindfolds and worked in pairs. One was blindfolded, while the other was sighted and guiding them.
And who was the leader of this task? Mikey. Obviously. It was his responsibility to choose the pairs and to support them all through the task. Obviously, in the process, they asked him lots of questions about life without sight, which he happily answered. These included every sighted person’s favourite: “Do you dream?”
When the other housemates were asked how they thought the task went, Mario said that he learnt a lot from it. I was thrilled to hear Luke’s response- that he now has more respect for Mikey. I think that was Big Brother’s plan.
I’d like to thank them for designing an interesting, educational task in which Mikey could be fully included. Nice work, Big Brother.
Mikey’s Turn!
Sunday’s highlights show featured Mikey and Mario being sent to jail for talking about nominations. Great to see that there is no DisAbility allowance when it comes to going to jail!
Wheelchair Challenge To Teachers
Nice one! I wish him luck in his fundraising!
Darnell Goes To Jail
Tht’s right, readers. Yesterday’s highlights show featured Darnell and Dennis going to jail for talking about nominations! Dennis was the choreographer of the dance video task, and no one was allowed to take his place. So no one was very happy with either of them!
Over a Year!
June 21st, 2008 marked one year since I started Remembering The Ability in Disability. I can’t believe what this blog has grown to!
In the last year, I have: ‘met’ several DisAbled inspirations,
Participated in an event for DisAbled bloggers,
Started one Facebook group that is directly connected to a blog post,
Been linked in a mainstream online newspaper,
And last but definitely not least, cross-posted an article on a mainstream blog!
Here’s to many more years of Remembering The Ability in DisAbility! Thanks for your interest and support!
Nominations: Round Two
There hasn’t been much DisAbility related stuff going on in the BB house lately. But nominations came in on Tuesday. I’m thrilled to report that, once again, we can look forward to another week of DisAbility on our screens. This time, however, it was Mikey’s turn to recieve a nomination, while Darnell didn’t.
Inclusion Begins In The Toyshop
Dolls with Down’s syndrome. What a brilliant idea!
These dolls are designed with the aim of giving Down’s children a toy that reflects themselves as they are, and not the mainstream version of physical perfection trailblazed by the likes of Barbie and Baby Annabel.
About time, too. If you want to teach a disabled person that, actually, they’re DisAbled, well, you’re not going to have much luck if you take them to toyshops filled with blonde, blue-eyed beauties called Barbie. Ask me. As a young DisAbled female, I wasn’t much into dolls. I used to think there was something wrong with mine, because they had straight knees!
I spent my childhood sticking my Barbie dolls in drawers, while trying to do physio on a teddy bear because he, at least, could bend his paws.
Then, one day, a little too late to really be in my childhood, along came Share-A-Smile Becky, Barbie’s friend… in a bright pink and purple wheelchair! I was a young teenager, but my first thought was “what a wonderful idea!” Of course, I bought her. That was the start of many hours spent making sure she was comfortable in her chair, because “I know how it feels not to be!”
One nine-year-old girl with Down’s, according to the article, pointed at her Down’s doll and said this is me.
Share-A-Smile Becky was me-and my best friends. I only wish she’d been created years ago- so that we- and our mainstream female friends- could have known that dolls bend their knees, too!
So, parents, whether she is DisAbled or not, I’d like to ask you to buy a Down’s doll- or Share-A-Smile Becky- for your daughter. You see, these days, acceptance- and inclusion- both begin in the toyshop.
And I, for one, will be buying these dolls for as many girls as possible!
From DisAbility To Deportation
Sheriff Chaw and his partner, Fatou Singateh, arrived in the UK from the Gambia in 2002 to study banking. When their daughter, Fatima, was born in 2004, she contracted meningitis a few weeks after her birth in Crawley, South London. As a result, her hearing was damaged. Doctors at Great Ormond Street Hospital replaced her inner ear with cochlear implants. Her hearing is now improving.
So far, so fantastic. So what’s the problem? The British government’s immigration laws!
Chaw and Singateh applied for their student visas to be extended so that Fatima could recieve treatment for her hearing loss. However, their application was recently rejected by the Home Office. They now face deportation to the Gambia, where they say that the implants will quickly become useless.
Naturally, the couple are very distressed at the possibility of Fatima losing the hearing that she has regained.
“If she goes back she will lose everything,” said her father, Sheriff Chaw. “[The implants] can fail at any time and if they do there is no way out for her … she will be stuck with these machines in her head that don’t work and there will be no one to help.”
The hearing aids cost £15,000 each. They need regular reprogramming and maintenence to ensure that they function properly. Chaw says his daughter’s hearing and speech have improved dramatically since she recieved the implants after two operations in 2006.
“The implant is working very, very well now and she is happy,” said Chaw. “She can hear sounds and she is beginning to hear her voice and the words are coming bit by bit … like now she is saying daddy.”
Both Chaw and Singhateh said Fatima’s progress would be under threat if they were forced to return to the Gambia.
“It’s disappointing because they have given her a chance and now they are taking it away – it will be a huge trauma for her to suddenly become deaf,” said Chaw. “She’s never been to the Gambia and doesn’t even know there is a chance that she could be taken away from all this.”
The couple plan to appeal, but they say they are not hopeful. “The trauma she will get when the implants stop working – I don’t think she will cope with it,” said Chaw. “This implant is for life and in that sort of region there is nothing like that. Even an ordinary hearing aid can be a problem to maintain.”
“There is nothing like counsellors, speech and hearing therapists or teachers who can help … she doesn’t know that her whole world could be about to collapse.”
The Home Office says that it does not comment on individual cases, but claims that: “We would not seek to remove anyone who has an application or review outstanding.”
I am deeply moved by this case. I am sure that deporting this family will lead them to a preventable tragedy. So, I am writing this post to ask you all to join the Facebook group that I have set up. Lets see what we can do to keep this innocent child and her family in England… and save her hearing.
Thanks for reading.
Update on Hilary Lister
I was sorry to read this article. I hope it doesn’t hold her up too much, and still wish her all the best.
Some Inspirational DisAbility
All the best to Hilary Lister from me. She’s just the kind of DisAbled inspiration I love to blog about!
Nominations Are In…
Nominations are in from the Diary Room! I am thrilled to say that, although Darnell received one nomination, Mikey didn’t receive any. So there will definitely be at least another week of DisAbility in the Big Brother House!
In other nominations news, Mikey nominated Alex. No surprises there!
Luke nominated Mario because Mario keeps bringing up Mikey’s DisAbility. Luke thinks Mario is trying to make himself look good to the public. He said that Mikey knows that he has a disability and that he needs help in certain situations, and Mario doesn’t need to keep bringing this up. Nice one, Luke.
Darnell’s Day
Darnell’s Saturday in the Big Brother House started well. When Big Brother called for the most musical housemate to go to the Diary Room, several of the housemates cheered Darnell on to take the job. This was music to my inclusion-friendly ears. Wow, I said to my TV, these people are so inclusive! Darnell’s being treated so normally in there!
When Darnell got to the Diary Room, he discovered that by going in, he had agreed to become the conductor of Big Brother’s orchestra. So far, so great.
Enter Mario.
“Not everyone is going to get the instrument they want to play,” Darnell patiently explained to Mario, who was unhappy with his tuba. “All we need to do now is get people willing to play an instrument.”
“I’ll play anything,” replied Mario, before provocatively adding: “You’ve got to take people’s strengths in the team.”
“How about you get your instrument, go in your corner and do your thing,” suggested Darnell.
“My concern is that the group is happy,” replied Mario, trying to have the last word.
“I feel like you’re trying to reverse it and make me look stupid,” snapped back an increasingly irate Darnell. “I feel like you just tried to play me.”
“I think you need to listen,” suggested Mario.
“I think you need to stop making people look like they’re not competent,” spat back Darnell.
And the argument rumbled on…
Honestly, it was too long to write the whole thing out!
Darnell was also shown today saying that the only way his child could get Albinism was if their mother had the DisAbility as well. Interesting… Later, he said that he’s been left out of things so much in his life that he’s always said that if he ever had the opportunity to be a leader, he would never forget how that felt, or let it happen to other people. He isn’t afraid to talk about his DisAbility or his experiences on national TV. Most of the time, he talks a lot of sense… I wish I was in the Big Brother house with him… he’s my kind of guy. But since that can’t happen, all I can do is say that he is truly DisAbled, and, of course, he will have my support until he leaves the house.
Another Wonderful Idea…
What a shame that a private company had to think this up. I can’t help wondering why the government couldn’t have done it already? Thank you very much, SAGA. I’m off to nominate a couple of loving mothers! (Not including mine. Sorry Mum!)
A Very Short Post…
Just to say that everything in this article is totally true.
Darnell and Jennifer Sitting in a House…
Arguing over dinner! Tonight’s highlights show featured this.
As always, it’s great to see Darnell showing his true DisAbilities by participatiing fully in the usual Big Brother bickering!
A close friend of mine told me that she knows him, so now I have another reason to hope that he wins. If Michael doesn’t, that is.
So, that was your daily dose of DisAbility drama from Big Brother 9. Good night.
Big Brother’s Blind Bunny Boy
I am thrilled to see that after three days in the Big Brother house, both Michael and Darnell seem to be well and truly DisAbled.
In today’s highlights show, Darnell was saying that although he has a disability, he doesn’t like or want special treatment. He was having a very ‘normal’ chat with some of the others. Even if there is no such word on this blog. He’s my kind of guy.
Then there was this interesting exchange between Michael and Alexandra after Michael put on Sylvia’s knickers during Mario’s stag do, then used the F word:
Speaking within earshot of Michael, Alexandra told Rebecca about her stance towards his knicker wearing and swearing: “I don’t think that was a mistake or misunderstood… he can be as malicious as any other person. I think to tiptoe around him is something I’m not prepared to do.”
“At the end of the day, it wasn’t the worst stag night. The aim is to please the stag, which we did. Under normal circumstances girls don’t get a look-in,” Michael responded from the sidelines.
“The conclusion is that the guy is disrespectful,” Alexandra told Rebecca, “so I have no respect for him.”
“I’m not asking for respect,” said Michael.
“I don’t give two ***** what you’re asking for,” she snapped back.
And this was after Michael volunteered to dress up as a ‘bunny boy’ for the stag night, when Alexandra herself refused to be a bunny girl!
Now I ask you, why shouldn’t Michael swear? Just because he can’t see? What rubbish.
Michael then asked Alexandra what her name was again. Three guesses who his first nomination will be!
Mario, on the other hand, has been great with Michael. He’s done everything from showing him around on Day 1 to choosing him as best man to going to the Diary Room and defending Michael after the argument with Alexandra, saying that Michael is totally blind… that’s not an excuse, but he couldn’t see what he was picking up, and he didn’t do it out of any malice to anyone. Great.
I’ve also seen Mohammed being very helpful to Michael over the last couple of days.
But watch this space for more from Michael and Alexandra…
It’s True!
Yes, that’s right! The rumors that there was going to be a blind housemate in Big Brother 9 UK were 200% true.
Why 200%? Well, we have Michael, who became blind at the age of 8. I had heard that ‘the blind housemate’ was going to be the first one in, so when the first 8 housemates entered, without a white stick in sight (sorry, I know that’s a terrible joke!) I was starting to think that maybe, yet again, the rumours of a physically DisAbled housemate were just that- rumours. Then, to my great delight, Michael came into the house, proudly holding out his white stick, and was warmly welcomed by everyone.
We also have Darnell, who has Albinism. I was very happy to see that, so far, the biggest problem the others had with him was that they couldn’t work out how to pronounce his name!
I guess the inclusion of these two housemates explains this year’s logo:
The red and shattered eye!
I am absolutely thrilled to see that the rumours were true. I hope that both Michael and Darnell set a positive example to all the DisAbled viewers of Big Brother, in the process of raising awareness of their DisAbilities. I, for one, will be watching their progress very closely, and I am hoping that either one of them will win. Watch this space for daily updates!
Progress on Something That Drives Me Mad
I hope this is passed by Scottish Parliament. The abuse of Blue Badge parking spaces ‘drives’ me mad (pun intended!). I only wish that this would happen in England.
I was very happy and very impressed to read that these propsals would be a hallmark for the type of country Scotland wants to be – thoughtful of others and caring for people with a disability.
I have to say, while I’m here, that I was very impressed with the wheelchair access in Scotland when I went there on holiday a few years ago. Now this is enough to make me wish I lived there!
Why I Will Be Glued To BB9 UK
According to this article, the new series of Big Brother UK, which starts on Thursday, June 5th, will include a blind housemate.
Being physically DisAbled, I am thrilled by these reports. I have waited nine series to see a physically DisAbled housemate in the Big Brother House. As much as I loved the 2006 UK winner, Pete Bennett, who has Tourette’s Syndrome, this condition is not my idea of a physical DisAbility. I could be wrong about that, though, so no offence to anyone if I am. That is just my opinion.
“BB is ready to take a blind person into the house.
“Everything possible has been done to make sure the person settles in and is not sidelined. The house has been designed in an accessible way.
“Bosses plan to do everything in their power to make sure the person’s stay is comfortable and enjoyable.”
I am hoping against hope that these reports turn out to be true. I have no doubt that if they do, countless DisAbled people across the UK will be glued to BB9, and will be backing this housemate to win. One thing is for sure. I will be one of them. And I will be following the housemate’s progress closely on this blog, right through to their eviction… or victory. Watch this space!
Making A Mountain Out Of A Fundraising Event
The challenge to push wheelchair users up Ben Nevis, the highest mountain in Britain, and raise money for two DisAbility related charities, Scope and Capability Scotland, took place today. Eight wheelchair users ended up participating. It was originally meant to be ten.
The able-bodied organiser, Ken Hames, was interviewed on BBC News about the challenge today. Julie McElroy, a truly DisAbled 22 year old with CP, also took part. I have been following this challenge closely on this blog for the last two months. I was very happy to hear that it was successful, and also that one of the reasons that it took place was to raise awareness of disability.
All the wheelchair users, as well as Julie McElroy and anyone else with any mobility trouble who may have taken part in the challenge, are truly DisAbled. They are an inspiration to anyone with any DisAbility. I’d like to wish them all loads of luck for the future. I’d also like to thank BBC News for covering the story tonight. Most of all, I’d like to thank Ken Hames for the sensitivity that he has shown by organising the challenge in the first place, and for his support of the efforts that all DisAbled people constantly make to raise awareness of DisAbility. The mainstream world needs many more like him.
An Update From Julie McElroy
Anyone who read my post a while ago about the amazing DisAbled challenger, Julie McElroy, might be interested in this article. As always, Julie is an inspiration to everyone with a DisAbility. I wish her all the best.
Mothers, Sons, CP, and Books… is it a fashion trend?
First there was Heather McCarter’s children’s book about talking wheelchairs, David and His Wheels Go To The Park. Now, the latest offering from a mother of a boy with Cerebral Palsy is Blue Sky July by Nia Wyn. It’s up for the Wales Book of the Year award. Here’s hoping she wins, and wishing her and her son loads of luck in the constant challenge that is life with a DisAbility.
Chewing The Fat: Dave Hingsburger on watching a wheelchair-using flirt in action.
The Beauty Offensive: Seahorse Blogs for ME awareness.
Wheelchair Dancer: On accessibility in NYC.
Another DisAbled Inspiration!
Alfie Russell was 10 when a car knocked him off his bike. Nine years later, he ran the London Marathon, not caring that his accident left him with what BBC News described as ‘head injuries.’ It sounds more like he woke up with CP to me!
Anyway, I wish Alfie Russell loads of luck. Whatever he wants to call his problems, one thing’s for sure. He’s truly DisAbled.
All my own searching this time, I promise!
Chewing The Fat: Dave Hingsburger on DisAbility in a dinner queue.
Diary of a Goldfish: Goldfishes feel pain, apparently. Well, human ones do. And they write essays about it in the process!
Wheelchair Dancer: On spite and DisAbility.
Best Of The Rest Special- All About ME
Yesterday was Blogging For CFS/ME awareness day. I don’t know enough about this DisAbility to do very much, but I did decide to devote today’s roundup to it. I came across a roundup of posts written yesterday to mark the day, so I decided just to borrow it! A very special thanks to RachelCreative!
Deaf viewers can now access the BBC
The BBC has really improved it’s coverage of, and attitudes to, DisAbility over the time that I’ve been blogging. This is something that I have thanked them for many times.
I have another big thanks for them today, because they have now added subtitles to all programmes on all of their main channels. This means that these channels are now 100% accessible to Deaf, deaf and hard of hearing viewers. (Thanks to this excellent article on BBC Ouch for explaining the difference between Deaf and deaf to me. I promise to make the distinction in all future posts about this DisAbility).
This is great progress in the fight to make the hearing world accessible to all those who can’t hear. Great news!
Hello and welcome to Best of the Rest, my daily roundup of my favourite blog posts on my favourite subject- DisAbility!
Babe on Wheels: A few things we should not say to wheelchair users.
Chewing The Fat: Dave Hingsburger hates getting junk e-mail. Especially when the senders are faking DisAbilities.
Screw Bronze!: The amazing Elizabeth McClung is back with a gift for her readers- and a few free plugs for her friends.
If you, or anyone you know, has a post that you’d like to see featured in this roundup, drop me a line on sarah.i.85@hotmail.co.uk and I promise to respond.
I know, this was meant to be a collection. But since no one really seems to have blogged about DisAbility today, I can only bring you two links from DisAbled bloggers. Hopefully tomorrow I’ll find five! But for now, here we go:
Giraffe-a-licious: Jenny on the connection between her health and her hair.
Screw Bronze!: Elizabeth McClung has faith in her brain. Most of the time.
Liberal Conspiracy: A free plug for the mainstream blog that inspired this feature, just because they did.
If you, or anyone you know, blogs about DisAbility and wants a post featured in this roundup, please drop me a line at sarah.i.85@hotmail.co.uk and I promise to respond. To be considered, though, the post needs to be written on the day or the day before the roundup is posted. Thanks.
New Feature!!
Hello Readers
I’ve seen a lot of great DisAbled bloggers out there on the net. So I’ve decided that from today, RTAID will have a new feature. Every day, I will search the world of DisAbility blogging and bring you the best of the rest!
This feature will be called Best of the Rest.
Attention Authorities!
Hello Readers
This is my contribution to Blogging Against Disablism Day 2008. It’s a little early, and very long. Thanks for reading. Enjoy!
Attention Authorities!
We have a message for you about the rights of those you call ‘different.’ That’s right. People with disabilities. Your files. Your paperwork. Your percentages. Your statistics. Your numbers. We have a message for you about our rights. Yes, we do have rights. At least, we send you this message in the hope that you will allow us to have rights, because all human beings are equal. Whoever you believe God is, God created us all. Yes, even those of us who you call ‘disabled.’ Most of you think that we were only created so that you would have a job. I have no doubt that you are right. But guess what? We were still created by God.
I am a Creative Writing student. I am 22. I love soap operas. Do you want to find out more about me? I hope so. I also have Cerebral Palsy. Do you still want to find out more about me? I hope so. Do you agree that I am just like you? I hope so, but the bad news is, because you’re mainstream professionals, I have my doubts. Here’s the good news: a few have proved my doubts wrong. I hope you’ll be some of them, but it’s going to take a lot for you to earn my trust. And in this letter, I’ll tell you exactly why. I hope that no one ever needs to write you a letter like this again. You can control that, and it’s easier than you think.
I have a fairly ‘normal’ life. However, maybe I don’t. After all… what is normal? It doesn’t exist. At least, I don’t think so, because I have never seen it!
The support of teachers and examiners throughout my mostly mainstream education took me through GCSEs, A levels, and university. I am grateful to them all for giving me the chances that they gave me, but I was always caught somewhere in the middle. Somewhere between the ‘mainstream’ world of shopping, television and homework, and the ‘special’ world of Learning Support, extra time and physiotherapy. There were times when I felt as though I was living a double life! Let me tell you a secret, though. The ‘special’ world is not all that special. In fact, sometimes, it can be heartbreaking. It is a world of pain and loss and death. How special is that? Is it any different to ‘your’ world? I didn’t think so.
I suppose you could say that these feelings are natural in a situation like mine, a situation in which, throughout my life, these two worlds have been forced to collide countless times. I feel lucky to have had enough support to understand and accept these collisions without too much disruption being caused to the formal commitments of either world.
However, my friends have not been as lucky. They have even better brains than mine, but just because they are in wheelchairs, they are not able to show those brilliant brains to the world. Just because they can not speak, no one knows that they have all the information they need to know stored in their minds. Just because they can not write, no one believes that they know anything.
I ask you all, as ‘mainstream’ professionals, should this make a difference? Should a person who has an almost perfect mind be sent to a school for children with learning difficulties just because they can’t speak to their teachers ‘normally?’ I don’t think so, but it was people like you who put one of my closest friends through this situation.
Should a child who has the mental ability to achieve a result which is three levels higher than her best friend’s result be forbidden to attempt an exam, simply because it would take her too much time to provide a teacher with answers? I don’t think so, but I’ve seen it happen. Unfortunately, I’m the friend whose result was lower!
Blogging Against Disablism Day 2008
I have just signed up for the third Blogging Against Disablism Day on May 1st. On this day, loads of DisAbled bloggers make a special effort to post a post about DisAbility. This is the great idea of The Goldfish, a guest blogger from BBC Ouch. She has been rewarded for allowing me to participate with a spot on my blogroll.
I don’t have a sidebar, so I tried to post her banner in this post. I haven’t got a clue about HTML, though, so as I expected, it didn’t work!
Anyway, if any of you are DisAbled bloggers, please spread the word, and if you haven’t already, please sign up.
Around The World in Seven Marathons
Dave Heeley, 50, is blind. But he hasn’t let that stop him from travelling the world, and running seven marathons in seven cities in seven days! Amazing. Unfortunately, by the time I found out about him, it was too late for me to track his progress daily. But I decided to write him a few paragraphs now that he’s finally finished!
He’s been to Brazil, the Falklands, Los Angeles, Sydney, Dubai and Tunisia. His last stop was the London Marathon on Sunday, which he completed in an amazing 5 hours and 23 minutes.
He managed to raise thousands of pounds for the charity Guide Dogs For The Blind in the process. Brilliant. He’s a true inspiration, and fully deserved the street party that was held to celebrate this amazing achievement.
If that’s not DisAbility, I don’t know what is! I wish him loads of luck.
A Small Tribute
To Joanne Harris. The close friend of Craig Phillips, the winner of the first series of Big Brother, had Down’s Syndrome. When he won Big Brother, he offered her his £70,000 prize towards operations. Now, she has died in hospital in Birmingham aged 25.
Who Wants To Be A Millionaire?
When you’re in a wheelchair, and have been for most of your life? Andrew Dixon, a 20 year old man with Cerebral Palsy, doesn’t have much of a choice about that. He has recently recieved millions of pounds of compensation for the mistakes made during his birth in 1987 that caused his DisAbility.
Now, I’m sure Andrew Dixon isn’t complaining about the fact that he is now a millionaire. Who would? But every time I hear about someone who has recieved compensation for being born with Cerebral Palsy, I feel like crying. Money doesn’t buy time back. It can’t buy Andrew Dixon’s parents’ dreams for their son back. All it can do is buy him a better wheelchair and more carers. Thank God his lawyers realise that “No amount of money can compensate for what Andrew has lost and what the family has been through.”
Here are my personal thoughts on compensation. It certainly does help, but who wants money when you don’t have health? Compensation for things that are as totally irreplacable as time, energy, life, health, hopes and dreams just seems pointless to me. But Andrew Dixon’s story has only proved to me yet again that hospitals and the government really need to put more money into maternity wards. As always, I really wish that they would realise this.
It seems very simple to me. If maternity wards had more money, mothers and babies would have better care. If mothers and babies had better care, babies wouldn’t end up with severe, sometimes life-threatening, disabilities because of mistakes made by hospital staff. If babies didn’t end up with disabilities, mothers wouldn’t need to claim compensation. What would happen if mothers didn’t need to claim compensation? Surprise, surprise. Hospitals would have more money. Money that I personally hope they would spend taking better care of pregnant women and newborn babies.
Unfortunately, I still have no idea how much time, how many claims for compensation, or how many severe cases of Cerebral Palsy it is going to take for the authorities to realise this simple fact. Until this finally happens, all I can do is hope that Andrew Dixon likes his new set of wheels!
More DisAbility
Miles Hilton-Barber is another DisAbled challenger. All the best to him from me. He’s an inspiration.
Thank you very much, Channel 4!
Channel 4 is trying to push disability into the mainstream – and get more disabled people working behind the camera.
About time too! Side note- did anyone else get the ‘push’ joke? Ha, ha.
This is an interview with a few DisAbled filmmakers, and Alison Walsh, Channel 4’s disability editor. My favourite bits:
“More and more [disabled] people in television are working on films – and not just being the subjects of documentaries about how amazing their disabilities are,” says Walsh, who has rheumatoid arthritis. “Although these sorts of films are good they cannot tell the whole story.
“As a disabled person you constantly feel that you’re having to teach people, but that is changing. Employers should be – and increasingly are – looking at a disabled person and thinking, what can this person bring, and then, when there are practical difficulties, realise that there are ways round them.”
Thank you very much. Again, about time too!
C4 has extended its researcher training programme and is aiming to introduce disabled people into commissioning and other areas where they are underrepresented, such as press and marketing. Walsh is doubling from three to six the broadcaster’s yearly accessibility placements for the disabled. The BBC similarly offers specialised work placement schemes for disabled people through its Extend programme – with many of those on the scheme going on to further work within the corporation.
Thanks agan, C4, and thanks to the BBC as well!
Pushing disability into the mainstream means that the days of specialist programming such as BBC’s From the Edge, C4’s Same Difference and ITV’s Link are over. “They did a job but specialist programmes made disabled people feel other and outside,” adds Walsh, who says she is “not a big fan” of employment quotas for disabled staff in broadcasting.
“I would rather see us encourage disabled talent in other ways than tick boxes and set targets. The best way to tackle prejudices is to put a disabled person in a team working on a television project and lead by example. If you work with a disabled person you discover that they were not different to anyone else and have something different to bring to the party.”
I love the name Same Difference, as you all know already, but not much else about the idea behind it. I couldn’t agree more with Walsh!
Abortion, Murder, or Compassion?
Hello Readers. You’re lucky to be getting this post, because when I read what I’m about to write, I felt like crying, screaming, or breaking my computer! Luckily for my computer, I chose to scream!
What’s the problem? David Cameron. Or rather his statement that he will agree to keep the law that allows abortions up to 39 weeks if an unborn child is diagnosed with a disability. Yet he has pledged to vote to reduce the abortion limit for healthy babies to 20 weeks from the current 24.
39 weeks. A ‘normal’ human pregnancy is 40 weeks long. By 39 weeks, you have a fully developed person.
Is he forgetting that premature babies can easily survive if they’re born at 36 weeks? So, a lot of children who are alive today, both disabled and able bodied, would have been literally murdered if they’d been ‘aborted’ at 39 weeks. Because by 39 weeks of pregnancy, they would have been up to three weeks old! And that was before modern science. Now, babies can survive if they’re born even earlier than 36 weeks. Isn’t that a very scary thought? It’s definitely a thought that makes me shiver.
The law to allow such late abortions of babies with disabilities would have had me screaming anyway. But what makes it even worse is that David Cameron and his wife have a severely disabled five year old son themselves. The Daily Mail article includes a family photo.
So if he wants to agree to kill disabled people, what does that say about his feelings for his own son? If the choice he wants to give to parents had been available to his wife five years ago, would he have kept his own child? What would have happened to his child if the English public wasn’t watching his every move? I could be totally wrong, and for his son’s sake, I really hope I am. But it does make me wonder that the father of a disabled child could say such things against disability to a whole country…
And he’s forgetting that most disabilities can’t be tested for in pregnancy anyway. Some of those that can be tested for can now, thank God, be cured during pregnancy if they’re caught early enough. This is absolutely wonderfully amazing, but unfortunately, it can’t help everyone. So what would happen if a disability wasn’t caught in pregnancy? Would he be so quick to back the murder of a disabled child after birth for the same reasons? I really hope not.
Someone I have just spoken to about this gave me the surprise of my life with her reaction. She is usually the most sensitive member of the mainstream I know, but she agrees with abortion. She says that disabled children don’t choose to be born with their disabilities.
That’s very true- I certainly didn’t. But now that I’m here, I’d much rather have the life I’ve got than no life at all. Luckily for me, I have parents who would not have made the choice, even if it had been available to them.
It is, apparently, a free country. So decide for yourselves, readers. Is the abortion of a disabled person at 39 weeks still abortion, or is it murder, or compassion? Whatever you decide, I have only one thing left to say to David Cameron. There is no way on Earth that he will ever get my vote.
Are they deaf? or just DisAbled?
Tomato Lichy can’t hear. He has a partner and a child who can’t hear either. Anyone would say that this is picture perfect, even if it is a very silent picture. So what’s the problem? Well, now they’ve decided that they’d rather that any other children they have couldn’t hear either. They, along with other people who can’t hear, like Cathy Hefferman, claim that not being able to hear is not a disability. They see themselves as part of a linguistic minority, says Lichy, and they are proud to speak Sign Language.
It is a very natural thing to be proud of your language. I’m very proud of mine. And it does make perfect sense to me that if those who could hear learnt Sign Language, then not being able to hear wouldn’t be a problem at all.
An interviewer, who can hear perfectly, told Lichy that those who can’t miss out on hearing Beethoven. Cathy Hefferman hilariously, but rightly, says in her excellent article that: lots of people choose not to listen to him, but they’re not disabled. Or if, like me, they are, then they can hear!
Now to some, a silent world is a lonely place. So those who can hear wonder why anyone would knowingly want to make their child miss out on music, TV, and spoken conversation. Well, Hefferman covers this in her article. As well as her hilarious response to the Beethoven comment, she says that those who can’t hear read subtitles, type into their phones and speak something called… you guessed it… Sign Language. That doesn’t ‘sound’ like a disability to me. Or at least, Lichy and Hefferman have done a brilliant job of turning it into a DisAbility. Which, with a little help from a few sensitive inventors who wanted Lichy, Hefferman and others who can’t hear to access the hearing world, is exactly what it has now become.
The problem is that deciding that you don’t want your child to be able to hear will soon be made illegal. So people, mostly those who can hear, think that Lichy and his partner, Paula Garfield, need a bit of help. In their heads, that is. And I can see that point too. After all, I am very grateful to be able to hear. And if they particularly wanted to make sure that their children could hear, I would be the first person to hate them deeply for it!
I am very grateful for my own disability. Most of the time. But at the same time, I would never in a million years want to knowingly give my child my disability. Becuse, as much as I love it, there are things it stops me from doing that I would love to be able to do. Even though I try not to let it stop me living a good life, I do realise this, and see myself as having a disability.
But if Lichy, Garfield, Hefferman and others who speak Sign Language don’t see themselves as having a disability, then I can understand them not seeing a problem with wanting a child who can’t hear.
I’m sure that Lichy and Garfield know that since their first child can’t hear, there is a chance that their second child won’t be able to hear either, without them having to check or choose this, or break any laws. I hope, if this is what they want, that this is what happens. For now, all I know is that for a man called Tomato and a lady named after a cartoon cat, they sure speak a lot of sense. And I, for one, couldn’t care less that they do it in Sign Language. In fact, I wish I could speak Sign Language myself.
Because the Sign Language speaking community is obviously full of truly DisAbled people. And those are exactly the kinds of people I love.
DisAbility in Literature- The Language of Others
The book review in Sunday’s Observer doesn’t say whether the main character is represented positively or not, and I can’t say because I haven’t read the book. But I’d love to, since the main character has a DisAbility, Asperger’s Syndrome. I’ve always wanted to read books with DisAbled main characters, and hoped that they would be available for the mainstream. It’s about time more of them were written. Thank you very much from me, Claire Morrall.
Neighbourly Inclusion
Someone must have complained to the scriptwriters of Neighbours about the number of times that they have previously forgotten the Ability in DisAbility, because I am very pleased to report that they have finally made huge improvements in their coverage of my favourite subject.
Susan Kennedy has just been diagnosed with MS. Brilliant move by the scriptwriters to give a recognised DisAbility to a recognised character who has always been so ‘normal.’ She’s such an old favourite that the mainstream will always love her, DisAbility or not, so in the process of her storyline, hopefully they will realise that even if you become DisAbled, your old ‘normal’ self never really goes anywhere.
The real surprise here is Briget Parker, who has sensationally ditched her good friend and one-time love interest Declan Napier for not being able to accept her DisAbilities, and is now seriously considering dating a boy called Josh, who is in a wheelchair! She met him at hydrotherapy, which they call physiotherapy, but no one’s perfect. At least they’re trying very hard, and I thank them for that and hope they keep it up!
Or should I say, ten wheelchairs? You get Julie McElroy, a truly DisAbled female from Scotland who, despite her own walking difficulties, caused by Cerebral Palsy, has agreed to take part in a challenge to help push ten wheelchair users up Ben Nevis, the highest mountain in Britain, to help raise money for the CP charity, Scope, and Capability Scotland!
And she has already spent four weeks crossing the Andes mountain range in South America, something that will see her featured on the BBC2 series Beyond Boundaries: Across the Andes later this year.
Now I like to think of myself as being DisAbled. Julie McElroy’s DisAbilities are scarily similar to mine, but you won’t find me agreeing to climb any mountains any time soon, wheelchair-using friends or not! That is, of course, unless you count the staircase in my house… That’s enough of a mountain for me, thank you very much!
Julie McElroy and her companions may be about to put me to shame, but all 11 of them are exactly the kind of DisAbled inspirations that we love to blog about here at Remembering The Ability in Disability. I truly wish them all the best with this very difficult challenge. I’m just not sure if anyone will ever follow in their footsteps… er… I meant tyre tracks!
Update 2/4: Apparently the organisers are still looking for volunteers for this event…
Not my usual cup of tea… or should I say curry?
This isn’t the usual sort of thing you find here at RTAID, readers. But Kate Knight, who tried to kill her husband by putting anti-freeze in his anniversary dinner three years ago, was featured in the Pick Me Up, my favourite magazine, last week. Or I should say, her neighbour, Sarah Johnson, told the terrible story. So when I read on BBC Ouch that Kate Knight has been jailed for 30 years, I couldn’t resist blogging about it.
Lee Knight has been left deaf, blind and needing 24 hour care, but he still manages to take care of his nine year old son. Kate Knight deserves her sentence, but instead of killing her husband, she has turned him into a DisAbled inspiration. That should show her! As for Lee Knight, all the best to him from me.
The London Marathon… on wheels?
Yet more DisAbility sport for you, my lovely readers. I didn’t even know that the London Marathon had a wheelchair race! But then, they do say you learn something new every day. So here’s my fact for today. All the best to all the wheelchair racers in this year’s London Marathon. Oh, and lets not forget the mainstream racers… after all, they did let us in!
Deaf Dancers
Another international example of DisAbility, this time from China. Best of luck to them.
I would just like to say that I am very much human
I hope that you agree, unless you’re the Mayor of Belfast. According to the BBC Ouch blog, this so-called person has decided that footpaths in his city are difficult for disabled people to negotiate, as well as for “human beings”.
That would be my cue to learn that wonderful language called Meow. Apparently in Belfast, I would have about as much importance as my cat.
As for his excuse that it was a genuine slip of the tongue? Two words, Mayor. Freudian slips…
Goodbye readers, I’m going to talk to my cat. I hope that by the time I get back, Belfast will have a new Mayor. Hopefully one who hasn’t forgotten his brain in 1984.
The Second British Freak Show
Corinna Downing, head of events at BAFTA, has finally admitted the real reason behind BAFTA’s refusal to screen Richard Butchins’ documentary, The Last American Freak Show. It made her feel uncomfortable. Well, guess what, world? her outdated attitude makes Mat Fraser, BBC Ouch columnist and DisAbled actor and singer, feel uncomfortable. Along with Richard Butchins and every other DisAbled person on planet Earth. Including me.
I’d like to congratulate Richard Butchins for writing his article. There was no real need for him to explain himself, though, because every DisAbled person who has heard this story is no doubt behind him 100%. I, for one, will not be watching the real Freak Show. I mean the mainstream BAFTAs, of course. As for Corinna Dowling? The freak should be sacked. Obviously she forgot her brain in 1984.
The Right Kind of Wheels on Ramsay Street!
I interrupt this attempt at blogging about DisAbility to inform you, my lovely readers, that Neighbours in the UK has moved from BBC1 to channel Five after 23 years.
Now the real reason for this post. Miracles really do happen. It has brought a wheelchair with it! A wheelchair that is attached to a teenage boy called Josh, who, so far, doesn’t appear to have any hope of a miraculous recovery… or crutches. I love his character already, after he hilariously informed two mainstream teenage females today that “You guys are so brave because you don’t let your condition get you down!”
Classic. Okay, so these idiots thought he was “Hot… for a guy in a… you know…” and that ‘it’ (him being in a chair) was “a waste.” But then, nothing and no one can go from terrible to perfect overnight… At least the scriptwriters at Neighbours are finally making some effort to represent disability positively. I can only hope that it lasts. And that Josh, his wheelchair and his classic sense of humour stick around on Ramsay Street for a very long time to come…





