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Easy Read News- A Newspaper For People With Learning Disabilities

January 23, 2013

Readers, I’m very proud to say that one of my favourite disability campaigners, one of my favourite disabled people, one of my favourite online contacts, just all-round amazing person, Kaliya Franklin, has written this article for today’s Guardian about an amazing project that she helped to start!

As I became more involved in campaigning I realised how difficult it can be to ensure information is accessible to all. Some disabilities were relatively easy to provide accessible information for, by asking people to make transcripts of audio for people with hearing impairment or ensure written information is compatible with speech-reading software used by those with a visual impairment. But it felt unconscionable to be campaigning for all people with disabilities without providing information that could be understood by people with learning disabilities as well.

In September 2011, I challenged the Labour leader, Ed Miliband, at the party conference on why his party wasn’t speaking on behalf of disabled people. He apologised and pledged to do more. I wanted every disabled person to know about this promise so that they could hold him to it, but I knew that my blog or Twitter account wouldn’t reach many people with learning disabilities, of which there are an estimated 1.5 million.

So, I got in touch with the disability charity United Response, which advocates better access to democracy, to write up an “easy read” report on what had taken place – one which used visual cues and simplified language to get across the important information. To my delight, hundreds of people read it and passed it on. Twitter was buzzing with it.

We worked together again on the first report by disability campaigners Spartacus, which challenged the government’s plans to abolish disability diving allowance. United Response translated the Responsible Reform report into an easy-read version, helping it to have a bigger impact across traditional and online media.

United Response media team and I agreed it was a shame that there wasn’t a more regular source of easy-read news. It was a lightbulb moment. That’s when the idea of Easy News was born, the first-ever newspaper aimed specifically at people with learning disabilities. A publication that would keep them informed on key events and political stories in a way that would make sense to them.

The Big Lottery funded a year-long pilot. I stayed in touch, offered encouragement and was thrilled to watch the idea take shape. UR Consultants – an expert team of people with learning disabilities employed by United Response – translated the news stories into an easy-read format.

Research by the charity among 300 people with learning disabilities found that just 16% were interested in politics, largely because of the inaccessible way it is presented. Only one in 10 read newspapers, but an encouraging 58% said they would read an easy-read one.

Of all the campaigning I have done over the past few years, Easy News is the project I am most proud and excited to be involved in. Full participation in society means being able to understand and inform ourselves about the world around us – only then can we choose who to vote for and be part of the democratic process as full citizens. It is also really important that politicians understand people with learning disabilities have the right to vote, because often political decisions are based on how certain groups of voters will react to them. Easy News is a vital part of this process and another step along the road to full rights and participation for all disabled people.

Read an extract from Easy News at guardian.co.uk/social-care-network. • Kaliya Franklin blogs at benefitscroungingscum.blogspot.co.uk and tweets @BendyGirl

Barnet Council Taken To High Court By Disabled Pensioner Over Outsourcing

January 23, 2013

The “easyCouncil” model of no-frills local services is set to go on trial this spring after the High Court announced it will review a £320m services contract due to be outsourced by the Conservative-controlled London Borough of Barnet.

The case is being brought by Maria Nash, a 67-year old disabled resident who says she fears for her life if support services are removed if and when the private outsourcing firm, Capita, takes over. The judicial review of the legality of the contract means the signing of the deal, which was supposed to happen at the end of January, has been delayed. Capita was to take over services in April – just ten days after the hearing is expected to conclude in late March. It declined to comment on the legal battle.

The judicial review at the Royal Courts of Justice is the sternest test yet of radical council reforms being tested around the country. Councils last year faced cuts in their spending budgets averaging over 10% caused by Whitehall cuts and declines in council tax revenues, according to the Institute of Fiscal Studies.

Similar attempts at radical cuts and outsourcing have triggered political crises at Cornwall Country Council – where the leader was ousted – and Suffolk County Council, where the leader stepped down.

Barnet’s describes its proposed reforms – outsourcing contracts worth over £600m – as “major and unprecedented” and they have already sparked widespread protests and political upheaval.

On Tuesday, the council debated a possible referendum on the contracts after a 8,000 signature petition demanded one. Last year, the council leader Richard Cornelius survived a vote of no confidence, the chief executive resigned unexpectedly and two Conservative councillors rebelled. Brian Coleman, a former adviser to the London mayor Boris Johnson, said “the council needs to dump this flawed scheme” while Sury Khatri complained “we do not have a mandate“.

Nash’s case is that neither the Capita contract, nor a planned £290m contract to outsource planning, cemeteries, highways, environmental health and other services, are legal because the council has failed to consult on the decisions, has failed to meet its public sector equality obligations and based its decisions on “grossly inadequate assessments of the relative merits and risks involved and hence are unreasonable and amount to a breach of its fiduciary duty.”

Nash is a former holistic therapist who now suffers from arthritis, osteoperosis and diabeties and relies on public funding of £2,000 per month to pay for personal care assistants to help her wash, dress, eat and go shopping. She said she was “terrified” by the extent of cuts to services she uses and complained she needed more information from the council.

“I can’t sleep at night for worry and my pneumonia, which should have passed, I can’t get rid of,” she said.”The moment Capita get hold of this contract, I am not going to be able to get the help I need. I will vegetate or be left to die. I am not going to be able to be independent.”

In papers submitted to the court, she argues that by the time the 10-year outsourcing contract expires, the council will be so reliant on the private companies it “will no longer possess the knowledge and competence to act as a local authority”. She says the reforms will hammer the local economy.

“If our streets aren’t clean or the pavements aren’t accessible, parking is not available then the people that suffer are not only the residents, but businesses that rely on the residents to be able to go and shop and use their services,” she said.

“If the disabled or elderly aren’t able to get out of their houses that will have a huge impact on the way they live and function and if they are not independent and safe that causes huge problems not just for them but their family, friends and the community. It is a downward spiral.”

Barnet is planning to contest the case vigorously and is understood to be confident its policy will survive intact.

“I am delighted the court have fast-tracked this process and given us the earliest possible hearing date,” said Councillor Dan Thomas, cabinet member for resources. “The new support and customer service organisation contract will save the taxpayer £1m a month. Barnet Council is keen that we start to make these savings as quickly as possible.”

Alison Moore, leader of the Labour group, said residents were outraged at the lack of consultation. “Moving to a council that commissions most of its services from someone else is a fundamental change in the way local services are provided, and it will have an impact on local people, including the most vulnerable,” she said.

Hydrotherapy Pool Closures Criticised By Users

January 22, 2013

I’ve had hydrotherapy- it helped me find an interest in swimming as well as being a very useful form of treatment for my disability. I’m aad to read this.

For patients who use hydrotherapy pools, the warm waters offer relaxation, freedom from pain and a brief escape from the ailments that stop them moving freely the rest of the time.

Yet a growing number of these specialist facilities in hospitals are closing, despite hydrotherapy bringing relief to disabled children, stroke survivors and those whose lives are curtailed through debilitating conditions such as rheumatoid arthritis and multiple sclerosis.

Medical charities and the Chartered Society of Physiotherapy (CSP) , whose members help patients get therapeutic benefit from immersing themselves in the waters, sometimes lowering them in using a hoist or floating bed, claim the shrinking number of these purpose-built pools will set back patients’ recovery and affect their quality of life. The CSP blames tight budgets and the drive to make £20bn of efficiency savings by 2015.

The future of the hydrotherapy pool at hospitals in Orpington in south London, Torbay in Devon and the Scottish Borders is also in doubt, the latter because of a redevelopment of the hospital’s ground floor, while two others closed in 2011 in Lincolnshire.

The pool in Orpington hospital is under threat because of huge financial problems engulfing South London healthcare trust, which runs it. Its potential closure is being opposed by the local Tory MP, Jo Johnson, who points out that it only opened in 2003 and did so with the help of a £350,000 donation from local people. Given their “extraordinary generosity” he is “particularly concerned” the pool may disappear.

A recent NHS review of local health services concluded that fewer people are using hydrotherapy pools. But Johnson, whose brother Boris is the London mayor, says that is contested by many of his constituents. “Every effort should be made to secure the pool with an alternative management structure that would ensure long-term financial viability and give residents a choice between water-based and land-based therapy,” he says.

The National Ankylosing Spondylitis Society warns that the pool closure would have “a devastating impact” on the ability of local patients, who have used it for years, to manage their condition. “For our members, exercising in a warm, shallow hydrotherapy pool protects their joints and enables them to stretch and move in a way they cannot do on land,” says Maddy Randall, the charity’s branch and policy development manager. Patients denied hydrotherapy end up needing more medical help and are thus a bigger drain on the NHS, she adds.

Jeanne Murray was one of a group of people with ankylosing spondylitis, a painful spine condition, who had used the pool at Diana, Princess of Wales hospital, in Grimsby, every fortnight for seven years until it was closed in May 2011 by Northern Lincolnshire and Goole hospitals trust. A month earlier, the trust closed another pool in Scunthorpe. Both pools, which together were used by between 70 and 217 patients a month, are still lying empty.

“Shutting the pool I used in Grimsby makes me feel so cross. It was shortsighted,” says Murray, a 62-year-old finance assistant. “Hydro pools really benefit people’s health. Since I stopped going I’ve had more problems with my elbows, feet and shoulders than before.

“It makes you relaxed to be in the water. It loosens you up. The warmth penetrates your bones. It’s far easier exercising in a  hydro pool than on land.”

Patients affected by closures say the advice given to some to use local swimming pools is no use because the water is too cold and specialist physiotherapists and equipment are not available.

Phil Gray, CSP’s chief executive, says NHS managers should explore different ways of using facilities that offer valuable services for patients in order to preserve them. “The pools can be used by external organisations outside treatment hours in order to generate additional income to make them financially viable. This has been done very effectively elsewhere,” he says.

He points to the example of the Royal United hospital in Bath. NHS patients with an array of orthopaedic, musculoskeletal and neurological conditions use its 5ft-deep hydro pool, which is heated to between 34C and 36C, on Tuesdays, Wednesdays and Thursdays between 9am and noon. Patients get a maximum of six sessions lasting 30 minutes, each with a therapist.

But the hospital also offers a range of private sessions in the pool including patients doing their own exercises with a therapist on the poolside for supervision (£35 for 10 sessions) for those undergoing rehabilitation, one-on-one sessions with a senior hydrotherapist (£50 for 30 minutes), and aquatone, which are gentle exercise classes, taught by a therapist on the poolside (£40 for 10 sessions). Patients may prefer more access – the facility has a waiting list – but the public/private trade-off helps ensure it remains open.

The pool at Charing Cross hospital, in London, shut its doors on New Year’s Eve. Imperial College healthcare NHS trust, which runs the hospital, said at the time it could no longer afford the £101,978 annual cost of keeping open a facility dating back to the 1970s and used by about 700 patients a year. “Although this has been a popular resource for some patients, it is not used enough to justify the running costs,” said a trust spokeswoman.

But pressure from the local council and NHS bodies has prompted a U-turn by the trust. “We aim to reopen the facility in February. The reopening follows discussions with our local commissioners and representations from Hammersmith & Fulham council,” says the spokeswoman. “The trust has always acknowledged that the pool is a popular resource for some patients, but we face the challenge that it is not used enough to cover its running costs”.

The trust will be looking at potential opportunities for increasing income, such as renting the pool to other acute NHS trusts, community services and groups, or to learning disabilities services.

Met To Appeal Over ZH Case

January 22, 2013

This case shocked me so much when I heard about it last year that I started a campaign to get the Met to apologise, not appeal. So I’m sad to read this.

The father of an autistic boy restrained by Metropolitan Police officers after he jumped into a swimming pool has attacked the force for challenging a ruling against them.

Last year a judge said officers had falsely imprisoned and discriminated against the boy, known only as ZH.

He was placed in handcuffs and leg restraints and put in a police van.

The Met is to appeal against the judgement on Tuesday, saying it could affect operational effectiveness.

In 2008, ZH, then aged 16, was on a school trip to Acton Baths in west London. He has severe autism and epilepsy and a mental age of five. He can react adversely if touched or approached by someone he does not know.

During the trip, he became fixated by the water and approached it, staying by the pool side for at least half an hour. His carers told swimming pool staff that his behaviour was consistent with his condition and that he had to be given time to move away of his own accord.

When police officers called by the pool manager arrived, they tried to take hold of ZH. He immediately jumped into the chest-deep water. Witnesses say he was not in trouble in the water and bobbed up and down excitedly.

But as police officers then tried to forcibly get him out, ZH became agitated and distressed. Soaking wet, he was eventually restrained by two pairs of handcuffs and leg restraints and locked into the cage compartment of a police van.

Central London County Court heard that the experience exacerbated ZH’s epilepsy and he was diagnosed with post-traumatic stress disorder.

In a significant ruling against the Met, the judge Sir Robert Nelson found the force had subjected ZH to inhuman or degrading treatment and to unlawful discrimination because of his disability. He awarded the boy almost £30,000 in damages.

The judge said: “What was needed from the police on their arrival was a calm assessment of the situation so as to ensure that they were as fully informed as the circumstances permitted before taking action.

“They were not summonsed to deal with a crime, but with a disabled young man trying to get into a swimming pool.”

In a statement issued through solicitors Bhatt Murphy, ZH’s father criticised the Metropolitan Police for refusing to accept the ruling and deciding to argue the case before three of the country’s most senior judges at the Court of Appeal.

ZH’s father said: “The thousands of pounds of public money spent by [Metropolitan Police] Commissioner Hogan-Howe defending the indefensible would be much better spent requiring his officers to treat people with disabilities humanely.”

A spokesman for Scotland Yard said: “The issues raised in this case are very important. The Metropolitan Police Service believe that the County Court Judgement would impact on future operational effectiveness and are therefore appealing the decision.”

Part Time Workers Will Be Told To Increase Hours Or Lose Universal Credit

January 22, 2013

I can’t believe this article. My disability and medical requirements mean I can’t ever see myself being able to work full time. Yet if a suitable employer would have me, I would work part time with pleasure. I’m sure there are others in my situation who share my thoughts and feelings on this.

Nearly 1m people who are in work and claim benefits may be required to work longer, increase their earnings or face losing access to the new universal credit, two welfare ministers, Lord Freud and Mark Hoban, said on Monday.

The state’s capacity to ask more of those in work and those that are self-employed is likely to be transformed by the introduction of universal credit in April, the ministers said at a Policy Exchange event.

Lord Freud, the welfare minister, said: “The fact that those in work will come under the ambit of the JobCentre Plus for the first time as a result of universal credit gives the government radical new opportunities.

“Those in work currently face no obligations within the system to increase their hours in work and the system offers them no incentives to do so either. People on low wages can lose up to 96p in every £1 they earn as they increase their hours in work.”

He claimed that as a result employers told him their staff did not want to work longer hours for fear of losing benefits. He cited B&Q as one firm that had told him their staff repeatedly requested not to work longer hours for fear of losing benefit: “This conversation is replicated in company after company.”

He claimed work incentives under universal credit will be as much as 12 times more generous, as recipients will retain more of their extra income. Critics say that the system will penalise those who can’t increase their hours. Hoban said that as part of the drive to keep part-time workers in work for longer, he proposed these workers could receive monthly statements telling them how much better off they would be if they increased their hours, as well as receive texts telling them how much they will benefit from working longer hours, or getting better-paid work through developing higher skills.

He said new demands could also be placed on the self-employed, pointing out that the tax credit system as it stands allowed people to pursue hobbies, earn nothing and subsidise their income through state support “without any expectation that they will increase their earnings and move towards self-sufficiency. This flies in the face of a principled welfare system”.

The latest phase in DWP thinking came as the thinktank Policy Network published separate comparative international polling showing little support in Britain for a shift away from a traditional welfare state to one more similar to Northern Europe, where spending is focused on supporting working families and early years.

The Policy Network paper, backed by YouGov polling, claims that a conservative bias in social attitudes to welfare – entrenched support for the traditional welfare state, promising higher pension payments, social security benefits, and public spending on health and education – has been reinforced by the financial crisis, while public support for welfare spending on new social risks such as gender equality childcare and skills has little support.

The DWP said: “Universal credit brings together a vast array of on- and out-of-work benefits, and is due to be spread across the UK by 2017. Currently, workers who claim tax credits or housing benefit have no expectations placed upon them to help them reduce their reliance on welfare. Under universal credit, working claimants who could reasonably be expected to increase their earnings will be expected to take action to do so.”

 

Stanbridge Earls School Criticised For ‘Failing’ Disabled Girl

January 22, 2013

A school has been accused of failing to protect a pupil who said she was raped twice by students.

Stanbridge Earls School for children with special educational needs in Romsey, Hampshire, was found to have discriminated against the girl by excluding her following the allegation.

A tribunal said the school found she had breached rules prohibiting engagement in sexual activity.

The tribunal said it had cause for “grave concerns” about safeguarding.

The girl, who cannot be identified for legal reasons, no longer attends the boarding school.

‘Inexcusable’

The First-tier Tribunal Special Educational Needs and Disability found the school failed to protect a vulnerable disabled pupil who was a victim of grooming and sexual abuse by male pupils at the school.

It branded the failure “inexcusable” and said serious concerns need to be addressed by the authorities.

The tribunal said head teacher Peter Trythall’s conduct “borders on contempt for statutory duties”.

In a letter to parents, Mr Trythall said they took the tribunal decision “extremely seriously” and would rectify the shortcomings identified.

He wrote: “This was a complicated and distressing case and the first of its kind ever experienced by the school, and is not representative of the way we normally meet the needs of our pupils.

“We are writing personally to the pupil concerned to apologise.”

The tribunal heard the girl visited the school nurse and said she had had sex.

It said the school did not contact the girl’s parents, believing she had consented to the intercourse.

She later told her mother what had happened and she contacted the school.

The claim was reported to the police via Hampshire Social Services.

No prosecution

The following term the girl says she was raped again and the school said she would have to be excluded because she had broken rules by having sex on school grounds.

Speaking to the BBC, the girl’s father called for some staff to be removed from the school to protect pupils.

He said: “There is an enormous amount of retraining there to protect others and I think there’s also some staff removal needed to safeguard the people that are there.”

Hampshire Constabulary said it thoroughly investigated the two sexual assault allegations before passing a file to Crown Prosecution Service (CPS) which decided not to prosecute.

The girl’s parents appealed against the decision but it was upheld following two reviews.

A CPS spokesman said in a statement there was “insufficient evidence” to provide a realistic prospect of conviction for rape.

It added: “The CPS was satisfied that there was sufficient evidence to prove that offences of unlawful sexual activity with a child had taken place, but that it was not in the public interest to prosecute the two boys concerned.”

#visitsuey- Disability Campaigners’ Request To @Ed_Miliband

January 21, 2013

Disability campaigner Sue Marsh is in hospital, readers.

While I’ve been away from Twitter watching President Obama, er, become President Obama again, some of her other friends, fans and followers have decided to set up a hashtag to try to get Labour Party Leader Ed Miliband to visit her there to show solidarity with disabled people.

If you know Sue Marsh, please do drop by the hashtag, take a look and spread the word!

Burglary Puts Top Wheelchair Fencer’s Career In Doubt

January 21, 2013

This is such a shame.

Two men have been charged after burglars stole up to £30,000-worth of specialised fencing equipment from a top disabled athlete last weekend.

Adrian Derbyshire, a British wheelchair fencing champion, said the theft from his Warrington home put his whole career in doubt. He has not retrieved all of the stolen items taken in the burglary, which took place at around 7.15am on Saturday morning.

Derbyshire, 38, appealed for help recovering the items, saying he could be forced to retire from the Great British fencing squad without the equipment.

The items, which include six swords, spare blades, Team GB-branded tracksuits, a wheelchair battery, wheels and coaching aids used to teach disabled children, are estimated to be valued at £20,000-£30,000. His wheelchair was damaged in the raid. The equipment was specially tailored to his requirements.

Derbyshire believes the burglars broke into his garage with the sole intention of stealing his fencing gear. “I’m devastated,” he said in a phone interview on Monday. “This could be a career-ending burglary for me. Already I’m missing competitions because of it. There was a competition this week against the French I wanted to compete in and I can’t now. They’ve wiped me clean out.”

Detective Superintendent Clare Ellis from Warrington police said: “While some of the items have been recovered, there are still some outstanding. Without it Adrian won’t be able to train and as it is specifically tailored to his needs, it is only of use to him.

“We would urge anyone who is offered such equipment, or comes across such equipment to contact police.”

A 33-year-old man from Old Hall in Warrington and a 34-year-old man from Great Sankey were arrested the same day and charged with burglary. They will appear at magistrates court this week.

A third man, aged 35, was released on police bail pending further inquiries.

Derbyshire has been disabled since 20 August 2008 when he woke up in hospital to be told by doctors he had suffered a brain haemorrhage due to an inoperable Dermoid tumour in his brain. The haemorrhage had caused chemical meningitis that left him with speech, balance, and stroke-like issues.

Determined to get his life back on track, he began going to the gym and in June 2009 attended a talent transition day at Brunel University, attended by scouts from the GB Paralympics team.

He tried 14 Paralympic sports including basketball, tennis and shooting before settling on wheelchair fencing. A year and a half after taking up the sport, he had won a total of two gold and three silver medals and had become both national champion and Great Britain’s sabre champion.

An injury prevented him from competing at the London Paralympics last year, but he wants to carry on competing at the top level of the sport. He said: “I was unable to compete at London 2012 because I injured my rotator cuff during training six weeks before the competition. That was devastating enough, and this year was supposed to be me getting back on track, looking ahead to Rio in 2016.

“I want to compete at the highest level on the international stage and I can’t do it without my equipment. I need to get it back. I’ve worked too hard to have this taken from me.”

Warwick Davis and Ellie Simmonds On The Great British Bake-Off

January 21, 2013

If the Great British Bake-Off interests you, and you’ve heard of these two, you’ll like this:

Actor Warwick Davis is competing in a celebrity version of the Great British Bake Off for Comic Relief.

The ‘ Life’s too Short’ star will join the likes of Claudia Winkleman, Ellie Simmonds and Duncan Bannatyne in the kitchen to try and create a winning cake.

The Great British Bake-Off will run between January 21 and 24 and see the contestants perform signature bakes, technical bakes and showstopper bakes.

Newsnight Looking For A Woman Facing Benefit Cuts To Be Interviewed

January 21, 2013

Just seen on Facebook. Please share wherever possible.

Liz McKean, journalist working on Newsnight, is eager to get hold of someone, preferably a woman, who is facing benefit cuts or problems with housing as a result of the welfare reforms. The person she was due to interview can’t get into London so
she was trying to find someone else who could do this. Do you know anyone who may face HB cap or has lost an important benefit and is facing hardship? Would they be up for being interviewed for Newsnight?We need to know before the end of the day so if you know someone who is interested please call Sue Scott at Westminster Mind on 020 7259 8109

HoC Work And Pensions Committee Meeting To Discuss Personal Independence Payment

January 21, 2013

You’ll be able to watch the meeting live from here at 4.30pm today if you are interested.

If Paralympians Begged You For Help, Would You Still Look Away?

January 21, 2013

That’s what Sue Marsh is asking in this very moving piece at her site. She wants it shared wherever possible.

Panorama: The Great Disability Scam

January 19, 2013

Monday 28th January, 8.30pm, BBC1:

Sam Poling investigates whether one of the Government’s most ambitious welfare reforms can solve the problem of disability unemployment. She reveals that some private companies are benefiting financially from the new reforms despite only being able to get a small number of disabled people back to work, and speaks to charities that feel the most vulnerable in society are being failed.

#uksnow #disabilitysnow It’s Beginning To Look A Lot Like Christmas…

January 18, 2013

It’s beginning to look a lot like Christmas,

Outside my front door

Take a look outside yours once again,

But please don’t fall on the floor.

 

It’s beginning to look a lot like Chistmas,

Snow falls to the floor

But the prettiest sight to see is the white stuff greeting me,

Outside my own front door.

 

A pair of hopalong boots and a sled that will slide,

Is the wish of every small child

Parents will talk and go for a walk

As their kids, home from school, will run wild.

And disabled people can hardly wait till their carers come again.

 

It’s beginning to look a lot like Christmas,

Outside my front door

Trees are covered in white stuff that’s not very hard

And looks lovely on the front of a Christmas card.

 

It’s beginning to look a lot like Christmas,

Outside my front door

So sit by a fire with a very hot drink,

Don’t use the car, the wheelchair or the kitchen sink,

And please, dear readers, don’t fall on the floor.

A Review Of Way To Go

January 18, 2013

Readers, this is my initial review of Way To Go on BBC Three.

I’ve never agreed with assisted suicide, as regular readers will know. I spoke to two people today about this comedy. One of them is not against assisted suicide but she said that she would not make a comedy out of it.

The other (my mum) watched it with me and said it was not about assisted suicide, but assisted suicide is only part of it.

I wasn’t expecting to find it the least bit funny, so I was very surprised to find myself smiling in places, when the programme reminded me of teen drama Skins.

Yet the very serious subject matter was handled with great sensitivity by the young man who was asked to end the disabled man’s life.

As long as they keep handling assisted suicide with this level of sensitivity, I expect to enjoy the series. I hope it will be educational to people who have not, so far, had reason to think about disability.

Becky Adams Plans To Open ‘Accessible Brothel’ For Disabled In 2014

January 17, 2013

Any thoughts on this, readers? My thoughts are that there is definite progress in the realisation that it is needed.

Becky Adams, a former madam, hopes to open a brothel which is strictly dedicated to providing services for disabled people. She has already established a free service which connects disabled people with women who work as prostitutes.

Ms Adams told BBC Radio 2’s Jeremy Vine that she had received as many emails from people seeking to work with her as people looking to use the service.

The Jeremy Vine Show is broadcast Monday to Friday at 12:00 BST on BBC Radio 2. Or listen again via the link.

Read more on the BBC Ouch blog

And read yet more about my thoughts on sex, love and DisAbility here.

‘Emotional’ Commons Debate On ATOS And WCA

January 17, 2013

The private contractor Atos, which administers the government’s work capability assessments, has come under sustained criticism from MPs as they described constituents who had died shortly after being ruled fit for work by the firm.

During a powerful Commons debate which united politicians from all parties, MPs gave emotional accounts of how very sick individuals had been incorrectly assessed and told to return to work. Some of them later died of their health conditions, and MPs told of others who had killed themselves or become suicidal in the aftermath of the decision.

The Labour MP Michael Meacher described the death of a young man with epilepsy shortly after he was classified fit for work and saw his benefit cut by £70 a week.

“He became agitated and depressed and lost weight, fearing that he could not pay his rent or buy food. Three months later, he had a major seizure that killed him,” Meacher said.

“A month after he died, the DWP rang his parents to say that it had made a mistake and his benefit was being restored.”

The government’s own figures revealed that 1,300 people had died after being told they should start preparing to go back to work, and another 2,200 died before their assessment was complete, he said.

“Is it reasonable to pressurise seriously disabled persons into work so ruthlessly when there are 2.5 million unemployed, and when on average eight persons chase every vacancy, unless they are provided with the active and extensive support they obviously need to get and hold down work, which is certainly not the case currently?” Meacher asked.

He reminded MPs that Atos was paid £110m a year to carry out the assessments for the DWP but that because so many decisions were appealed, a further £60m of public money was being spent on administering appeals and that the British Medical Association had described the current work capability assessment as “not fit for purpose”.

Labour’s Steve Rotheram described a case he had heard about from a constituent, Janine, in Liverpool. “Her dad was thrown off sickness benefit in November after an Atos work capability assessment and was declared fit for work despite suffering from chronic obstructive pulmonary disease. Six weeks later, on Christmas Day, Janine’s father died,” he said.

The Conservative MP Heather Wheeler asked whether Atos reviewed the cases of those people who dropped “down dead within three months of being told they are fit for work”. “At what point do we say that this isn’t working?”

Caroline Lucas, the Green party MP, condemned the “humiliating and demeaning” process which “makes sick people even sicker”.

Labour’s Pamela Nash said: “Nothing has shocked me more as an MP … than the sheer scale of anxiety and hardship caused by the flawed work capability assessments,” and described seeing constituents developing mental health problems as a result of the stress of going through the process.

Madeleine Moon, also Labour, said her constituency phones were often “clogged with crying people” distressed by the process, and described a constituent who was driven to attempt suicide by her experience of going through the assessment.

The Conservative MP Jeremy Lefroy said Atos should be placed in the “last chance saloon” by the government.

There was concern from Labour’s Sheila Gilmour about the fact that 43% of people who were found fit for work were not working the following year and were not receiving benefits. “Where are they?” she asked.

Helen Goodman, a Labour MP, told of a district nurse who broke her back at work who was found fit for work and a man who had been completely blind for 16 years and forced to give up work who was told he must go back to work after an assessment.

Labour’s Iain Wright described the distress of a female constituent with Crohn’s disease who was told she could wear a nappy to work. “The government is treating my constituents like dirt,” he said.

There was unease about the language that was increasingly used to describe benefit claimants, and one MP said claimants were “made to feel like they are on trial for benefit fraud at their assessments”.

Most speakers agreed that it was sensible to have a system in place that made sure that those capable of work were helped into work. Stephen Timms, shadow minister of state for employment, said: “The architecture of employment and support allowance is sound. The assessment system, however, is clearly not up to the load it is being asked to bear.” The current system needed “fast and fundamental reform”.

The employment minister Mark Hoban said considerable progress had been made in improving a process which was originally introduced by Labour. He said it was unhelpful to “demonise” the system with “adverse media coverage”.

An Atos Healthcare spokeswoman said: “We know that this can be a difficult process for people and we do all we can to make sure the service we provide is as professional and compassionate as possible.

“[Our workers] strictly follow the guidelines given to them by the government when conducting assessments and make no decisions on a person’s eligibility for benefits.

“We have worked with the department on improving the part of the process we carry out and continually ask for feedback from the department and those claiming benefit.”

Lord Freud Announces ATOS For Every Worker

January 17, 2013

A press release from the DWP website:

British businesses will be helped to tackle long-term sickness absence in the workplace thanks to a new independent assessment and advisory service aimed at getting people back to work and away from long-term sickness benefits, the Minister for Welfare Reform Lord Freud announced today.

The scheme will save employers up to £160 million a year in statutory sick pay and increase economic output by up to £900 million a year.

Currently, only 10 per cent of employees of small firms have access to an occupational health service, compared with more than half of staff in larger firms. The new service will enable employers of all sizes to access expert advice to help them manage sickness absence in the workplace.

This new initiative will ensure employers receive bespoke, independent advice for cases of sickness absence lasting more than four weeks. Experts agree this approach will help to stop thousands of people falling out of work and onto long-term sickness benefits.

The Minister for Welfare Reform Lord Freud said:

“Long-term sickness absence is a burden to business, to the taxpayer and to the thousands of people who get trapped on benefits when they could actually work.

“So for the first time, all employers, big or small, will have access to a service that offers the early support they need to keep people in work and fulfil their aspirations.

“It’s further proof that this Government is confronting all the challenges facing Britain and making sure we compete and thrive in the global race.”

The lack of advice or support is one of the main barriers faced by employers tackling sickness absence in the workplace. Under the current system, the vast majority of fit notes declare employees to be unfit for work.

The new service is part of a series of measures announced today by the Government to help employers support their staff and prevent employees needlessly going onto sickness benefits, and it is part of the Government’s response to the recommendations of health and business experts Dame Carol Black and David Frost.

Dame Carol Black said:

“I very much welcome the Government’s decision to press ahead with the new independent assessment and advisory service which David and I recommended in our Review.

“A new independent assessment and advice service will address the sicknote culture and offer people the best possible support to get back to work quickly.

“What David and I found in our Review is that far too many people with potentially manageable conditions – like stress or back pain – are effectively being signed off work for life, sliding from a short spell of sickness absence to a life of long-term benefit dependency.

“The changes being made by the government today will begin to change that. They will ensure that employers and employees get the best possible access to occupational health advice and support. And the new service will also provide much-needed support for GPs too, so they can spend more time helping their patients and less time having to police the benefit system.”

David Frost said:

“Employers consistently report that the current system does not provide their employees with enough support to enable a smooth and planned return to work.

“The proposed advisory and assessment service will give clear advice on which a business can make a judgement about when and on what circumstances their employee will return after a period of absence.

“Overall, the measures proposed will reduce costs to business and prevent people needlessly going onto sickness benefits.”

The independent occupational health assessment and advice service is expected to be up and running in 2014.

#esaSOS #spartacus Your Help Needed URGENTLY

January 17, 2013

Cross posted by request of Sue Marsh.

#esaSOS: YOUR HELP NEEDED URGENTLY!

On January 28th 2013 the UK government is due to make a set of changes to the Work Capability Assessment (WCA). The WCA is the flawed ‘fitness to work’ test which assesses whether sick and disabled people can get Employment and Support Allowance (ESA): a benefit designed to help and support very unwell or profoundly disabled people into work.
Although these changes have been advertised as small ‘amendments’, they will in fact have a huge impact on the way people’s illnesses and disabilities are assessed. Many vulnerable people’s needs will suddenly be able to be overlooked or ignored, meaning they could end up losing the support they desperately need to manage their conditions.
Hundreds of thousands of sick and disabled people across Britain need your help to fight these changes!

PROBLEM 1: FALSE ASSUMPTIONS

In the fitness to work test, your needs are assessed by a ‘healthcare professional’ employed by the French private company ATOS. This assessor doesn’t just need to look at your current difficulties. For example, they can also imagine how using an aid (e.g. a wheelchair) might improve your ability to work and make a judgement based on that – without even asking your opinion!
However, soon this “imaginary test” will be able to be used for many more aids (including guide dogs and false limbs!). This means that soon thousands more people could be judged as fit to work, without being asked about why the assessor’s “imaginary aid” might not be appropriate for them.
It gets worse. Even if returning to work may clearly put you at risk, these changes will mean you can still lose your disability benefit – as long as the assessor believes that trying a new therapy or treatment might reduce that risk. In other words: yet another guessing game, with your health at stake!
>>> Imagine Bert, who suffers from severe schizophrenia, but is found fit to work because a behavioural therapy may help improve his condition. Yet, in making that decision, the assessor would not have to look at several vital questions: how hard it would be for Bert to get that therapy? How long would an NHS appointment take to organize? Are there private options in his area – and could he afford them if so? What if the therapy doesn’t work, or takes a long time to adjust to? <<<
If the government’s rule changes go through, people like Bert who are desperate to work will find it nearly impossible to get an accurate assessment, affecting the quality of their support and even preventing their efforts to get back into work.

PROBLEM 2: SEPARATING PHYSICAL AND MENTAL HEALTH

The government is also trying to change the way people’s conditions are assessed by dividing health problems into two separate boxes: ‘physical’ and ‘mental’. When looking at what tasks people can do, only the ‘physical half’ of the test will apply to those with physical disabilities. The same goes for the effects of treatment: for e.g., if you’re taking mental health medication, only mental health side-effects will be looked at.
This completely fails to understand the way that many disabilities and illnesses can lead to both physical and mental effects. This is also the case for many common treatments: such as those for schizophrenia, Parkinson’s disease and multiple sclerosis.
>>> Think of Emily, who suffers severe, chronic pain because of nerve damage to her leg. Emily is among the 49% of chronic painsuffers who also suffer depression as a result of continuous pain. An assessor may see Emily as able to do some work as long as she takes strong painkillers for the rest of her life, meaning she could pass the ‘fitness’ test. Yet the painkillers may not deal with the depression caused by her condition. Painkillers have also often been shown to affect people’s wakefulness and decision-making. So taking the medication may affect Emily’s ability to do a job in a completely new way – yet these new problems would not need to be looked at by the assessor when making their decision! <<<
Pretending the effects of illnesses and disabilities can be separated in this way goes against all medical practice. Going even further, and using this method to ignore sick and disabled people’s needs, is at best hopeless policy, and at worst deliberate cruelty. We cannot let the government treat some of the most vulnerable people in British society in this way.
 

HOW YOU CAN HELP

The main way you can help is by spreading the message about these changes to ESA. The government have tried to sneak them under the radar – the last thing they will want is people talking about them!
Here are some great ways you can raise awareness:
1) Email your MP (you can search by name or constituency at http://www.parliament.uk/mps-lords-and-offices/mps/);
2) Share this blog post on twitter (using the hashtag #esaSOS), Facebook and other social media; CLICK ON THE BUTTONS BELOW THIS POST TO SHARE ON TWITTER AND FACEBOOK
3) Email your friends and family a link to this post – or simply talk to them about it!
Again, the main way we can get the government to reconsider is by getting people to talk about the injustice of these changes. So please spread the word as far and wide as you can!

 

Thank you so much for reading this far. Now let’s make sure these unwanted, damaging benefit changes never see the light of day!

If you want to do more, please sign WOW petition and call on the government to think again. 
Sign here http://wowpetition.com and ask all of your friends to sign too

#freethe100k New research exposes a £1.2bn funding gap in social care for disabled people that leaves them in crisis – struggling to eat, wash or leave their homes

January 17, 2013

A press release from Scope.

  • Almost 40% of disabled people receiving social care support are not having their basic needs met including eating, washing, dressing or getting out of the house.
  • To make matters worse, Government proposals risk up to 105,000 disabled people failing to get basic support for their day-to-day lives.
  • A £1.2billion funding gap in social care support for disabled people under age of 65 has been exposed
  • Five leading disability charities have come together to urge the Government to guarantee vital support for disabled people to end this crisis.

 

New research published today exposes the true scale of the Government’s social care crisis for disabled people, which has left thousands without access to basic care to help them eat, wash properly and leave their homes.

 

The report ‘The Other Care Crisis’ is today published by Scope, Mencap, The National Autistic Society, Sense and Leonard Cheshire Disability. The leading disability charities are concerned that the debate about social care reform has focused on the needs of an ageing population and side-lined the thousands of disabled people under the age of 65 who rely on care in everyday life.

 

One third of the people who receive on social care are disabled, yet Emma from Cambridge says “Not getting the support I need has meant my life is on hold. I have no routine, I feel socially isolated, lonely and of no value to society. I’m only 24 I feel 84.”

 

The charities are urging the Government to put disabled people at the heart of reforms by setting eligibility for state funded social care at ‘moderate needs’[i] in order to guarantee the most vulnerable people in society basic support in their day to day lives.

 

The report, the first comprehensive analysis of how the social care crisis affects disabled people, brings together three new pieces of evidence:

 

  1. An extensive study of 600 disabled people’s experiences of the social care system[ii] shows almost 40% of disabled people currently receiving some social care support are not having basic needs met including eating properly, washing, dressing or getting out the house.
  2. Leading academics at the Personal Social Services Research Unit (PSSRU) within the London School of Economics, the same team commissioned by Andrew Dilnot in his review of social care funding,[iii] reveal in a new technical report,[iv] that up to 105,000 disabled people are at risk of not receiving any basic support for their day to day lives as a direct result of the Government’s proposals for social care reform.
  3. The team at LSE also exposes £1.2billion funding gap when it comes to social care support for disabled people under the age of 65.

 

The combination of these findings presents clear and compelling evidence of a social care system that is failing disabled people under the age of 65, at a time when Government reforms through the Care and Support Bill, are being scrutinised by a Joint Committee of MPs and Peers.

 

The charities warn of a social care system on the brink of collapse as a result of years of chronic underfunding by successive Governments. They argue that councils are in an impossible position of wanting to provide more support to the growing numbers of disabled people who require care, at a time when they are facing unprecedented cuts to their budgets.

 

Of the 600 disabled people the charities spoke to:

  • Over a third (36%) said they were unable to eat, wash or leave their homes due to underfunding
  • 47% of disabled people said a lack of social care support prevented them from taking part in community life
  • 34% said it prevented them from working or volunteering
  • 53% of disabled people reporting significant anxiety, isolation and deteriorating mental health as a result of not getting the care they needed.

 

In the Draft Care and Support Bill, the Government committed to introducing a new national eligibility threshold to end the postcode lottery when it comes to determining who qualifies for state funded social care support, a move supported by the charities. However as a result, it is widely anticipated that the Government will drastically limit the number of disabled people who will continue to receive this support by setting eligibility at ‘substantial needs’.[v]

 

The analysis undertaken by the team at LSE and commissioned by Scope[vi], reveals for the first time:

  • 105,000 disabled people are at risk of not getting the basic support they need to help them eat, get washed and leave their homes if Government sets eligibility at ‘substantial needs’. This figure comprises:
    • 36,000 disabled people who have ‘moderate needs’ and currently receive some care may lose this basic support.
    • An additional 69,000 disabled people with ‘moderate needs’ who are not receiving any basic support, meaning they are likely to struggle with day to day life.

 

The charities urge the Government to address the £1.2billion funding gap, the equivalent of 0.17% of public spending[vii], into social care support for disabled people and argue that this is the price the Government must pay to guarantee basic support for the most vulnerable people in our society and prevent this crisis from escalating even further.[viii]

 

Richard Hawkes, Chief Executive of disability charity Scope said: “This is shocking evidence of a system that has failed disabled people, effectively condemning them to a life without basic dignity and invisible to society.  “Times are tough for everyone but being able to eat, wash and leave your home is not a luxury. It is absolutely appalling that this is the sad reality of life for thousands of Britain’s disabled people. “Enough is enough. We cannot bury our heads in the sand any longer and ignore the desperate situation disabled people find themselves in without help in their day to day lives. “We need an urgent and long term solution from the Government to lift disabled people out of a life without basic support for the day to day tasks that everyone else takes for granted.” ENDS

 

Mark Goldring, Chief Executive of learning disability charity Mencap said: “Imagine not being able to eat, wash or dress yourself. It is unforgiveable that there are disabled people in England today who aren’t given support for these basic needs, because the social care system has failed them. “Because of proposed new rules on eligibility, the Government’s planned social care reform may well result in 100,000 disabled people not having their basic needs met. “The Government cannot ignore this damning evidence and must commit to long term funding which will support disabled people to live a life with dignity.” ENDS

 

Mark Lever, Chief Executive of The National Autistic Society (NAS) added: “For less than 0.2% of public expenditure the Government could ensure that over 100,000 vulnerable people have access to support that meets their basic human needs. “Failing to provide this care for adults with autism can have a profound and sometimes devastating effect, resulting in people developing more serious mental health problems that will ultimately be at greater cost to the public purse. “The social and communication difficulties that people with autism face are often misunderstood by social care assessors, leading to people with the condition being deemed ineligible for support. It is therefore vital that the Government also ensures that all assessors are trained in autism. “Where this does not happen there is a real danger that people will miss out on essential care and consequently find themselves living lives of hardship and misery.” ENDS

 

“Supporting disabled people with moderate needs can prevent those needs from escalating. It may sound like we are calling for a lot of money, but if it helps keep people in work and out of hospital it could make savings to the public purse over time,” said Sir Paul Ennals, Director of Strategy for deafblind charity Sense.

 

Clare Pelham, Chief Executive of Leonard Cheshire Disability added: “There should be no ‘take it or leave it’ mentality in providing care for disabled people. When money is tight, it should go to those who need it most. No-one in this day and age should be left without the help they need to take a bath or dress in the morning, and live an everyday life just like everyone else. This new research reveals for the first time how many people are living in the care ‘gap’ and it is a disgrace. No Government and no right-thinking person should allow this to continue in their street, their town, their country.”

http://bit.ly/freethe100k

 

 

 

Way To Go- A New Comedy About Assisted Suicide

January 16, 2013

The thorny issue of assisted suicide doesn’t seem to be fertile, or even appropriate, ground for a television comedy. Not so, says Bob Kushell, a writer for The Simpsons and Anger Management.

Way To Go, which debuts on BBC Three this week, stars The Inbetweeners’ Blake Harrison as a cash-strapped young man who sets up an assisted suicide business with his friends.

It is an unlikely, not to mention controversial, plot for a comedy, but writer Bob Kushell insists there’s “pretty much no subject” that can’t be looked at humorously.

“With Way To Go, assisted suicide is portrayed with great warmth and care and sensitivity, but it’s not the main focus of the show.”

“Even war has been seen through a comedic lens,” he adds, making specific mention of MASH, the 1970s US sitcom set against the backdrop of the Korean War.

That show opened with a theme tune called Suicide Is Painless and frequently ended on a sombre note – most notably the death of Henry Blake, who was shot down after receiving his discharge papers at the end of season three.

But Way To Go has other, more unlikely, televisual inspirations. Specifically, The Wonder Years – the Fred Savage-starring comedy about a young boy’s growing pains at the tail end of the 70s.

“Ninety percent of the show you’d be laughing, and the other ten percent you’d end up inexplicably wiping the tears away. I think there is a chance – in many ways – that will be the same with Way To Go.”

‘Saving grace’

Kushell says the comedy mainly comes from the interaction between the three main characters – Scott, his brother Joey (Ben Heathcote) and their friend Cozzo (Marc Wootton).

Stuck in a dead end job with a “go-nowhere life”, Scott is continuously “conflicted”. Meanwhile, Cozzo has a baby on the way and is seeking ways to support his burgeoning family.

“Scott dreams of being a doctor, but had to drop out of college because he couldn’t afford it and didn’t want to rely on the government. He [wants] to do good but finds himself miserable,” says Kushell.

Moved by a terminally ill neighbour’s request to die, and faced with paying off his brother’s gambling debts, Scott and the recently unemployed Cozzo, illegally buy an assisted suicide machine.

“They find that this job, this business they get into, is their own saving grace,” Kushell explains.

Born and raised in the US, Kushell nonetheless grew up plugged in to the dark and surreal comedy of the UK.

“Me and my friends who were writing, or wanted to be writers, would watch those shows and drool over the comedy, Monty Python particularly,” he recalls.

“The subject matter that they dealt with – particularly in their movies, The Life of Brian and certain segments of The Meaning of Life – was very, very dark and very controversial.

“I have always thought that they handled it with great grace and aplomb and were terrific at what they did.”

Way To Go is his first programme for a British broadcaster, however.

BBC Three controller Zai Bennett has called Kushell’s scripts “dark, poignant, absurd, moving and brilliant”. The writer says he is inspired by life and his own daily observations.

“You write what you know, what you see around you.

“[Way To Go] started from a conversation I had with my brother-in-law about assisted suicide. We got into a vigorous argument about it and saw each other’s side, but that’s where the germ of the idea came from.

Challenging

“It was also greatly inspired by wanting to write something that was challenging and would touch people and make them think.

“Specifically, I wanted to write about something that had not been tackled before, as a comedy. And it is a comedy, a dark comedy and I think that the process ended up being very successful.”

The subject matter is a departure for Kushell, who made his name on broad, family-friendly shows like Malcolm In the Middle and Third Rock From The Sun – where he learned his trade.

“It was like a master course in television writing,” he says, “working with Bonnie and Terry Turner (That 70s Show, Saturday Night Live), who were very successful writers prior to that with movies and TV.

“Ever since then it’s been spectacular and I’ve been able to work with fantastic people, including Bruce Helford right now on Anger Management, who also created the Drew Carey show. He is an incredible mentor.”

Despite working in television for more than 20 years, Kushell claims he has “never been as impressed with the cast and crew” as he has on Way To Go.

“It was a tremendous experience. I think that we have a spectacular, seamless cast and some great character actors on this show. It feels like these three guys have known each other forever.

“It feels very authentic from the second the show starts.”

And is he expecting a backlash?

“I certainly hope not. I don’t shy away from controversy. If I did, I wouldn’t have written a show like this.

“I knew it would stir up some controversy, but at the same time I knew that ultimately when people watch the show, it’s not the only thing they will take away from it.”

Way To Go airs on BBC Three on 17 January at 22:00 GMT.

Jane Raca: Standing Up For James

January 16, 2013

A book by a mother about her son with CP.

Children May Grow Out Of Autism, Finds Small US Study

January 16, 2013

What do those of you who know people with autism think of this?

Some young children accurately diagnosed as autistic lose their symptoms and their diagnosis as they get older, say US researchers.

The findings of the National Institutes of Health study of 112 children appears to challenge the widely held belief that autism is a lifelong condition.

While not conclusive, the study, in the Journal of Child Psychology and Psychiatry, suggests some children might possibly outgrow autism.

But experts urge caution.

Much more work is needed to find out what might explain the findings.

Dr Deborah Fein and her team at the University of Connecticut studied 34 children who had been diagnosed with autism in early childhood but went on to function as well as 34 other children in their classes at school.

On tests – cognitive and observational, as well as reports from the children’s parents and school – they were indistinguishable from their classroom peers. They now showed no sign of problems with language, face recognition, communication or social interaction.

For comparison, the researchers also studied another 44 children of the same age, sex and non-verbal IQ level who had had a diagnosis of “high-functioning” autism – meaning they were deemed to be less severely affected by their condition.

It became clear that the children in the optimal outcome group – the ones who no longer had recognisable signs of autism – had had milder social deficits than the high-functioning autism group in early childhood, although they did have other autism symptoms, like repetitive behaviours and communication problems, that were as severe.

The researchers went back and checked the accuracy of the children’s original diagnosis, but found no reason to suspect that they had been inaccurate.

Label for life?

The researchers say there are a number of possible explanations for their findings.

It might be that some children genuinely outgrow their condition. Or perhaps some can compensate for autism-related difficulties.

Dr Thomas Insel, director of the National Institute of Mental Health, said: “Although the diagnosis of autism is not usually lost over time, the findings suggest that there is a very wide range of possible outcomes.

“Subsequent reports from this study should tell us more about the nature of autism and the role of therapy and other factors in the long term outcome for these children.”

It could be that autism cannot always be accurately defined or diagnosed, particularly since the condition affects people in different ways.

Indeed, experts have disagreed about what autism is.

The American Psychiatric Association is currently revising its diagnostic manual – the “bible” for doctors that lists every psychiatric disorder and their symptoms.

Its new version proposes changes he UK’s National Autistic Society says could affect the way diagnoses will be given to people on the autism spectrum.

Instead of using the current terms of autistic disorder, Asperger’s disorder, childhood disintegrative disorder and PDD-NOS (pervasive developmental disorder not otherwise specified), people will be given an umbrella diagnosis of “autism spectrum disorder”.

And their impairments will be reduced to two main areas – social communication/interaction and restricted, repetitive patterns of behaviour, interests, or activities.

Most diagnoses in the UK are based on the International Classification of Diseases (ICD), published by the World Health Organization, which is up for revision in 2015.

According to the National Autistic Society, more than one in every 100 people, more than 500,000 people in all, in the UK have autism.

About a fifth, an estimated 106,000, are school-aged children.

Dr Judith Gould, director of the National Autistic Society’s Lorna Wing Centre for Autism, said: “Autism is a lifelong disability affecting the way that people communicate and interact with others.

“This study is looking at a small sample of high functioning people with autism and we would urge people not to jump to conclusions about the nature and complexity of autism, as well its longevity.

“With intensive therapy and support, it’s possible for a small sub-group of high functioning individuals with autism to learn coping behaviours and strategies which would ‘mask’ their underlying condition and change their scoring in the diagnostic tests used to determine their condition in this research.

“This research acknowledges that a diagnosis of autism is not usually lost over time and it is important to recognise the support that people with autism need in order to live the lives of their choosing.”

She said getting a diagnosis could be a critical milestone for children with autism and their families, often helping parents to understand their children better and helping them to support their children in reaching their full potential.

Olympian calls for epilepsy champions to come forward across the UK

January 16, 2013

A press release from Young Epilepsy:

UK charity Young Epilepsy is seeking nominations from all over the UK for its first ever Champions Awards 2013.

The awards will recognise the contribution made by individuals and organisations towards improving the lives of young people living with the condition. Anyone can nominate an Epilepsy Champion and the charity is encouraging the people of everyone to take part.

Epilepsy is the most common serious neurological condition in childhood affecting 112,000 people aged 25 and under in the UK. On average one child at every primary school in the UK and five at every secondary school will have been diagnosed with epilepsy.

2012 Olympic captain of the Great British Athletics Team, Dai Greene, said: “Young Epilepsy Champions Awards will recognise the outstanding contribution that many individuals and organisations from the UK make towards improving the lives of young people living with epilepsy.

“Epilepsy can have far reaching consequences, not just for the young person that has it, but also their families and carers. Everyone living with epilepsy is supported by at least one Epilepsy Champion; it may be a family member, a nurse, a doctor, a teacher or a business and they deserve our recognition and thanks.”

Nominating someone for a Young Epilepsy Champion Award is easy and can be done online at youngepilepsy.org.uk/champions-awards. All nominations must be received by 11 January, 2013 and the ceremony will take place on 26 March 2013 at City Hall in London.

For further information, please visit youngepilepsy.org.uk or follow Young Epilepsy on Twitter @Youngepilepsy, Facebook/YoungEpilepsy or Youtube/YoungEpilepsy.

 

You can also download our free app, just search for Young Epilepsy in your app store.

The Disabled Journalist Who Doesn’t Want DLA

January 15, 2013

It’s not me, readers. It’s a guide dog owner called Sean.

 

Blind Girl’s Open Letter To Russian President Over US Adoption Laws

January 15, 2013

A blind girl has become a political sensation in Russia after criticising the Kremlin for a controversial new law that bans Americans from adopting Russian children.

Tim Allman reports.

#wowpetition On BBC Breakfast Today

January 15, 2013

Can I use this post to say something I haven’t said here yet- this petition has my full support.

Well, Francesca Martinez didn’t mention the petition, but she did say some other very sensible funny stuff.

#uksnow #disabilitysnow 2013

January 14, 2013

Readers, as I watch the white stuff fall outside my bedroom window in London, I am thinking of each of you.

My usual ‘snow speak’ applies- please be very careful. Please don’t drive cars, or wheelchairs/scooters, unless you absolutely have to.

Those not yet disabled- please check on the disabled or elderly person in your life and help them in any way possible.

If the snow has affected your plans, or stopped your carers getting to work or your children getting to school, do share your experiences in the comments below.

We Are Spartacus’ Motability Report Gets BBC Coverage

January 14, 2013

At long last, the mainstream will start to hear of these capaigners who have given so much to our cause over the last year.

Thousands of disabled people could lose some benefits because of last-minute changes to the new system of Personal Independence Payments, campaigners say.

The group, We Are Spartacus, said tougher rules to assess how far people can walk mean many claimants will lose help with transport from April.

Under the rules, those unable to walk more than 20m would qualify, rather than the previous distance of 50m.

Ministers said the benefit will be targeted at those who need it most.

Baroness Tanni Grey-Thompson, a crossbench peer and member of the all-party parliamentary disability group, said the government needed to “think again”.

About 3.2 million people receive Disability Living Allowance (DLA), a payment of between £20.55 and £131.50 a week to assist them in leading independent lives.

The Department of Work and Pensions maintains it is making an out-dated benefit much clearer. And that broadly the same number of people will be entitled to extra mobility help.

The government hopes to save £2bn as a result of the switch from DLA to PIPs.

‘Ghettoised and excluded’

We Are Spartacus, an online campaign group about disabled people’s views on the welfare system, analysed figures from the Department for Work and Pensions and Motability, the organisation that supplies lease cars and specialist converted vehicles to disabled people claiming the highest mobility rate of Disability Living Allowance.

With an estimated 428,000 fewer working-age disabled people would qualifying for the higher PIP rate by 2018, report co-author Jane Young said: “This not only condemns thousands more disabled people to the worry of losing out under the new benefit and the isolation this will bring. It also highlights the lie that the government’s reforms are targeted to support those in need.”

She said that of the 173 consultation responses from organisations on the new PIP “only one suggested the qualifying distance for those who have the most difficulty getting around should be changed.”

Baroness Grey-Thompson said at her local supermarket she could not get from a blue badge parking space to the doors – 20m is not that far, she said.

The former Paralympian said she had a “real fear” that disabled people would be “ghettoised and excluded from society”, under the new rules.

“I’d really like the government to think again. Not just about changing the distance but about actually what the regulations say to ensure that disabled people are really protected,” she told BBC Breakfast.

“It could be that over 400,000 disabled people won’t get support – and that means they won’t get help with transport, maybe getting their children to school or to getting work, and this really radically changes how disabled people are able to integrate into society.”

Baroness Grey-Thompson said there would many appeals in response to the move, which would “clog up the system”.

“Appeals cost far more than actually just giving disabled people the benefit in the first place,” she said.

Fewer qualifying people would mean 160,000 fewer Motability cars on the road, the analysis suggested, which in other research has been linked to economic losses such as fewer jobs in the Motability-related industries, and lower GDP contributions.

Ms Young said: “Disabled people will be less independent, less likely to be able to get or keep a job, more likely to give up self-employment and less able to care for their children or support other family members.”

 

Silver Linings Playbook Wins Best Actress Golden Globe!

January 14, 2013

Sadly, The Sessions didn’t win either of the two Golden Globes it was nominated for. But another disability related movie, Silver Lingings Playbook, won the award for Best Actress in a musical or comedy.

The Sessions- Official Trailer

January 14, 2013

This is the official trailer of The Sessions– the movie nominated for two Golden Globes. It is based on the true story of a man paralysed by polio and desparate to have a sexual experience.

Alice Pyne Died Yesterday Aged 17

January 13, 2013

Readers, I have just read that Alice Pyne, the teenage girl who created a bucket list when she discovered her cancer was terminal and gained worldwide fame, very sadly passed away yesterday, January 12th, aged just 17.

In her short life, as well as campaigning for bone marrow donation, she set up a charity and was honoured by the Queen.

My thoughts are with her family, friends and all who knew her.

Aaron Swartz, Reddit Co-Founder, Dies At 26

January 13, 2013

Very sadly, Aaron Swartz, one of the early developers of Reddit, ended his life yesterday aged 26.

He had a great talent for computer programming among several other related things.

He had written, several years ago, on his own blog about his depression. This may or may not have been the reason he chose to end his life, but it makes him disabled and so makes this little tribute post relevant to this site.

My thoughts are with his family, friends and all who knew him.

Top Scientist Calls Stephen Hawking ‘A Brain In A Vat’

January 12, 2013

Dear readers, what words come to mind when you think of scientist Stephen Hawking?

When I think of him, the word ‘genius’ is never far from my thoughts.

He was a genius before becoming disabled. He has continued to be a genius long after becoming disabled. He’s one of the most famous people in Britain, and the world, with or without his disability.

His voicebox does sound a bit futuristic, if I’m very honest. However, that’s what makes him recognisable.

I certainly don’t doubt for a second that he is much, much more than ‘a brain in a vat,‘ which is what I’ve just found out another top scientist, Helene Mialet, called him in ‘celebration’ of the 71st birthday he reached four days ago.

Gary Presley, whose post I’ve linked above, points out quite rightly that ‘Hawking is more than the sum of his defective parts.’

Personally I wouldn’t even call those parts defective. His intelligence more than makes up for the fact his legs don’t work, or the fact his voice is generated by a computer.

His wheelchair and his voicebox don’t cause his defects, they fix them. Without these machines, he would never have been able to give the mainstream world access to his incredible academic abilities, theories and thoughts.

I, for one, certainly think that would have been a great loss to the world as a whole. For to disabled children, and to adults who become disabled, Stephen Hawking is an inspiration. And to the rest of the world, Stephen Hawking may just, sometimes, make them stop, think and realise that disabled people are intelligent, too, and they can prove it with a little help from modern technology.

Carphone Warehouse Charges Deaf Customer £80 For Voice Call

January 12, 2013

Sadly, readers, this is not a joke.

Madeliene Moon MP Pays Tribute To Husband’s Carers

January 12, 2013

A Welsh MP has paid tribute to the carers looking after her husband, who has dementia, and says they allow her to continue doing her job.

Madeleine Moon, Labour MP for Bridgend, gave a personal account of living with somebody with the condition to MPs in the House of Commons.

She described how the carers took him to the theatre, out for walks and made him laugh.

Mrs Moon said she had turned her home into a mini hospital.

“I have wonderful carers who look after my husband, absolutely amazing,” she said.

“I have two people who work only for me and they look after my husband full time, they have allowed me to carry on with my job and they have allowed me to carry on having a life.”

Mrs Moon said it was important to allow her husband, who has Pick’s disease, the freedom to make his own decisions.

“We communicate with him in all sorts of ways, we draw things, we write questions down and his capacity for movement is now extremely limited but he finds a way to at least say yes or no,” she said.

“We still insist that he makes decisions, that we don’t make the decisions for him.”

She said it drove her crazy when nurses and other professionals did not take the time to do that.

“Even for someone with quite profound dementia there is often a way in, there is still a person in there and it is our jobs as professionals to find that person and to get in there and just find some way,” she told MPs.

Mrs Moon said the worst thing for those looking after people with dementia was the isolation, because people did not how to talk to those with dementia.

‘Brutally honest’

She also underlined the importance of research and greater understanding among GPs.

“GPs need to ask very early on and talk to carers. How do you two want to play this? Do you want me always to be brutally honest with you or do you want some protection from what’s happening?” she said.

“We have to find a way of being more honest and more mature and not patronise people with dementia.

“We have to keep that person in their life and central to their life, central to their family for as long as it is possible.

“It is only then that I think we can hold our heads high as a decent society, as a caring and a compassionate society, and actually make dementia something that we are no longer afraid of, that’s something that we fight.”

Ashley Gill-Webb Has Bipolar Disorder

January 11, 2013

I don’t think this is the best-written article I’ve seen about him, or the fairest, but it does mention that he has bipolar, while others I’ve seen don’t.

A man who got into the Olympic Stadium without a ticket then threw a beer bottle at competitors lining up for the men’s 100m final has been found guilty of public disorder.

Ashley Gill-Webb, 34, was suffering a “manic episode” when he used an old ticket to get into the Olympic Park and then the stadium, where he hurled abuse at Jamaican sprinter Usain Bolt and threw a plastic beer bottle on to the track before the race on August 5.

Gill-Webb, from South Milford, near Leeds, was found guilty at Stratford Magistrates’ Court, east London, of intending to cause 100m finalists harassment, alarm or distress by using threatening, abusive or disorderly behaviour, contrary to Section 4 of the Public Order Act as well as an alternative charge contrary to Section 5 of the Act.

Gill-Webb, who suffers from bipolar affective disorder, pushed his way to the front of an exclusive seating area at the stadium and started shouting: “Usain, I want you to lose. Usain, you are bad…,” Stratford Magistrates’ Court heard last week.

He then threw the plastic beer bottle as the race – which Bolt won in 9.63 seconds – started on August 5 last year. The 34-year-old was confronted by Dutch judo champion Edith Bosch, then escorted from the stadium and arrested.

Gill-Webb was suffering from a manic episode at the time, with an urge to be “involved” in the Olympics, the court heard. His lawyers argued his mental state meant he could not have intended to cause harassment, alarm or distress, but the Crown said that, although he was unwell, he knew what he was doing.

The court heard Gill-Webb pushed his way to the front of the exclusive seating area after getting into the stadium. Prosecutor Neil King described him mingling with members of the Dutch Olympic team, but his “shouting and jostling”, then throwing the bottle, led to a confrontation with judoka Ms Bosch.

After the incident, Gill-Webb – who the court heard has since lost his job – was escorted from the stadium and then arrested. His behaviour in police custody was said to be “somewhat unusual”, and he told officers that he was Scottish actor Alan Cumming, signing a statement with the star’s name.

Gill-Webb, who did not give evidence during his trial, originally denied throwing the bottle, but his DNA was later found on it. He later said he could not remember the incident. The court heard he has two previous convictions of criminal damage.

The case was adjourned until February 4 at Thames Magistrates’ Court for a pre-sentence report to be completed.

Can Disabled People Work In Forensics Like In Silent Witness?

January 11, 2013

Asks BBC Ouch ahead of their regular Liz Carr’s first episode tonight.

Silver Linings Playbook Brings Disability To This Year’s Oscar Nominations

January 11, 2013

Unless you’re in the Celebrity Big Brother house, you must know by now that the nominations for the 2013 Oscar nominations were revealed today.

As with all good things, there is a disability link here. Much is being made of the fact that Silver Linings Playbook is the first film in 31 years to be nominated in all four acting categories. Almost nothing, sadly, is being said about the fact that it also features a character with bipolar disorder.

 

Learning Disabled Woman Should Not Have Forced Abortion, Rules High Court

January 10, 2013

A pregnant woman with severe learning difficulties must not be forced to have an abortion, the High Court ruled today.

Doctors applied for an order to allow them to terminate her pregnancy claiming the child is endangering her life – but the judge found the mother must still have the right to decide – despite her disability.

The woman, whose identity is kept secret for legal reasons but is described as having ‘significant learning impairment’, has had a series of strokes because she suffers from sickle cell disease.

Medics said she does not have the ability to make the decision herself and have described the need for an abortion as ‘urgent’.

But Mr Justice Hedley, sitting in the Court of Protection at London’s High Court, said it was ‘in her best interests’ if the woman, who is 18 weeks pregnant and from the south of England, was ‘to continue with the pregnancy’.

There was a belief that the alleged father was known but it would not be right for the court to make any observations about that, he added.

 The judge went on that it was very important to bear in mind that people with severe learning difficulties ‘may very well retain the capacity to make deeply personal decisions about how they conduct their lives’.

These could include decisions about choice of partners, the extent of sexual activity, making permanent relationships ‘and decisions about their own medical care including, as in this case, the continuation or termination of pregnancy,’ he said.

The judge decided this after independent expert in psychiatry, Dr Stephen Tyrer, expressed the view that she did have capacity ‘to decide whether or not to continue with, or terminate, pregnancy’.

Despite this she ‘manifestly lacked capacity’ to participate in legal proceedings today, the judge said.

The woman’s sickle cell disease is very serious and the baby must be terminated very soon to reduce the risk of her losing her life, doctors claimed.

Her condition means that her red blood cells develop abnormally, preventing oxygen being supplied around the body properly.

The cells’ shape can also clog blood vessels, affecting breathing and leading to anaemia, severe respiratory problems, strokes and in some cases death.

Around 250,000 people in the UK are believed to have it, and it is more prevalent among ethnic minorities.

The case to force the abortion was argued by an NHS trust in southern England, in the Court of Protection, sitting at the High Court in London today.

Until recently the Court of Protection sat in secret and is charged with ruling on ‘life and death’ cases where patients are deemed incapable of making a decision themselves.

But it has also been criticised for some of the rulings it has made.

The authorities have previously stopped a dementia patient going on the holiday of a lifetime because it was deemed too dangerous and forced another individual to use contraception.

MindTunes

January 10, 2013

From an email I have just received:

Dear Music Lover,
For the production of our next big and very interestingfilm project, we are looking for tetraplegic people to help us.
People who are paralysed have to face many obstacles in life. A lot of everyday things are hard to do. But that doesn’t mean they are less creative. It’s just harder for them to express it. We want to distil this creativity. And new technologies can help us to do so.
We want to use brain activity registration to let them create music. Instead of physicly stroking the strings of a guitar or hitting the skin of a drum, they can use their mind to generate sounds.
We will bring 4 paralysed people and a famous producer of electronic music together in a studio. They will make one or more songs and then perform live as a band with their mind generated music.
The music will be available on iTunes and the money they make will be invested in research on brain waves that help tetraplegic people.
This project is completely based in the UK.
Are you interested in this kind of challenge?
Or do you know somebody that could be up for this interesting experience?
Don’t hesitate to contact me straight away to discuss and inform where it’s all about.
We’ll have to move fast – so please find my contact details below.
Looking very forward hearing from you.
My kindest regards,
Thomas Landeloos.
TRS-Producer
+32 494 66 02 70
thomas@wearetrs.com
www.wearetrs.com
More details: pres Mindtunes_Artist

Charlie Scott

January 10, 2013

A teenage boy who was left brain-damaged at birth has been awarded £7.1m damages after a 14-year legal battle by his mother against the hospital responsible.

Clare Scott, 36, launched a legal action against the Royal Bournemouth hospital trust in Dorset after her son Charlie was starved of oxygen and born with a serious form of cerebral palsy that has left him unable to walk, talk, sit up or drink without assistance.

It is believed that the umbilical cord was wrapped around his shoulders for more than 20 minutes in the womb before midwives noticed.

Once they spotted the problem, his mother could have been given an emergency caesarean section. Instead Charlie was starved of oxygen and it took 55 minutes before he could breathe on his own.

He was diagnosed with spastic quadriplegic hemiplegic athetoid cerebral palsy at six months and will require lifelong care.

The trust spent 12 years denying clinical negligence, then two years ago Scott’s legal team proved the midwives were at fault and that Charlie’s brain injury would have been avoided had she received proper care during labour.

The settlement will be given in annual payouts to help Charlie for the rest of his life. Scott, from Bournemouth, who has four other sons, said: “No amount of compensation makes up for the disability, but it’s security. I adore Charlie but life is very hard – he needs constant care and attention.”

Scott, who had a normal and healthy pregnancy until she went to the Royal Bournemouth hospital in 1998 after going into labour, condemned the NHS trust for failing to admit liability sooner.

“I felt angry against the hospital. If they had done their job properly we would have a normal and healthy child.

“They should have admitted it a lot sooner because they had been in the wrong and not have me battling this for most of my adult life.”

“They had procedures in place for emergencies but basically none of it ever happened.”

Paula Shobbrook, director of nursing and midwifery at the Royal Bournemouth hospital, said: “We apologise sincerely to Charles and his family for his injuries and [this money should] provide him with some security and the care he requires for the future.”

UK Disabled Latest Victims Of Austerity

January 10, 2013

Andrew Marr In Hospital After Stroke

January 10, 2013

I like him and his Sunday morning show. I wish him well.

Broadcaster Andrew Marr is recovering in hospital after suffering a stroke, the BBC has confirmed.

The journalist and television presenter was taken ill on Tuesday, the corporation said in a statement.

“The hospital confirmed he has had a stroke. His doctors say he is responding to treatment,” it said.

His programmes, The Andrew Marr Show and Radio 4’s Start The Week, will continue to be broadcast with guest presenters in his absence.

The statement added: “His family have asked for their privacy to be respected as he recovers.

“His colleagues and the whole BBC wish him a speedy recovery.”

Born in Glasgow, Marr, 53, began his career in journalism on The Scotsman newspaper in 1981, later moving to London to become its political correspondent.

He was part of the team which launched The Independent in 1986, later becoming its editor.

He joined the BBC as political editor, in May 2000.

Marr has also presented a number of history programmes along with his politics show and has had five books published.

Marr is married to journalist Jackie Ashley and has three children.

The BBC said that James Landale will present The Andrew Marr Show this Sunday.

Many of Marr’s colleagues and guests have expressed concern on Twitter, including Labour leader Ed Miliband ‏who said: “My thoughts are with Andrew and his family. Hope he gets well soon.”

Fellow BBC politics presenter Andrew Neil wrote: “Very distressed to hear news about Andrew Marr. Best wishes for full and speedy recovery.”

Guardian columnist Polly Toynbee tweeted: “Andrew Marr, renaissance man, polymath, wise commentator, painter, runner, brilliant cook – and ace editor. Get well soon. Needed in public life.”

Eddie Kidd’s Wife Denies Charge Of Assaulting Him

January 9, 2013

The estranged wife of motorcycle stuntman Eddie Kidd has denied beating her husband six times in four months.

Samantha Kidd, 44, of High Street, Seaford, pleaded not guilty to six counts of assault between July and October 2012.

Brighton Magistrates’ Court was told the assaults are alleged to have taken place in Cumbria, Peacehaven in East Sussex, and Southampton.

Mrs Kidd was bailed to appear at the same court for trial on 9 and 10 July.

She was bailed on condition she does not contact Mr Kidd or visit the area where he lives apart from one occasion when she will collect her belongings accompanied by police officer.

Young DPAC Group Launches

January 9, 2013

I’ve just spotted a link to something, through Facebook, that might interest those of you who have young children in your lives.

 

The Undateables Series 2 Starts Tonight

January 8, 2013

At 9pm on Channel 4

The second series of The Undateables follows the journeys of several extraordinary singletons as they enter the dating circuit in pursuit of love. From a doctor of psychology with dwarfism to a young man with Tourette’s, to an office worker with Down’s Syndrome, the show follows them as they enter the world of blind dates, matchmaking and speed-dating.

Phoebe Bruce, 17, Gets EDS Treatment

January 8, 2013

A teenager with a rare condition which causes her limbs to dislocate is starting specialist treatment.

Phoebe Bruce, 17, from Hawarden, Flintshire, has Ehlers-Danlos syndrome, a genetic condition caused by a defect in the body’s protein collagen.

She was given an appointment with a specialist at hospital in London after the Welsh government agreed funding for her care.

Her father Richard said: “This is what we have been fighting for”.

The family won funding for specialist consultations for the sixth-former after they made a public appeal in August.

Then, Phoebe was experiencing up to 18 painful dislocations a day and she had to go to A&E about 60 times for treatment.

But now, with intensive physiotherapy at the Countess of Chester hospital twice a week, Mr Bruce said that Phoebe suffered far fewer dislocations.

They are down to one or two a day and she is managing to a large extent to put them back herself, he explained.

“At the moment she seems to be improving slowly but surely. She is aching quite a lot but when her joints do dislocate she is managing to put then back in.”

On Monday she had an appointment with a rheumatologist who specialises in Ehlers-Danlos syndrome at Royal National Orthopaedic Hospital in Stanmore.

Mr Bruce said as well as learning more about the condition, they are hoping that this will lead to a longer stay at the hospital to help Phoebe manage it even better.

It is the second consultation her family have had since they won the funding for private treatment from the Welsh government.

Dizziness and fatigue

 But he said although they have been given what seems a large sum of money for Phoebe’s private treatment, they are not sure how much private treatment that will pay for.

Before Christmas Phoebe saw an expert at the St John and St Elizabeth hospital in London who also diagnosed her as suffering from another condition called Pots – postural orthostatic tachycardia syndrome.

Pots causes her heart rate to increase when she sits up, leading to dizziness and fatigue.

Phoebe, who turns 18 in July, has had to temporarily abandon her studies at Hawarden High School because of her illness.

But her father said with her improved health she plans to return to sixth form next year and has ambitions to study psychology at university.

He said the appointment at Royal National Orthopaedic Hospital in Stanmore was a “massive step” for her.

Obituary Of The Welfare State, 1942-2013

January 8, 2013

For much of its short but celebrated life, the Welfare State was cherished by Britons. Instant public affection greeted its birth and even as it passed away peacefully yesterday morning, government ministers swore they would do all they could to keep it alive.

The Welfare State’s huge appeal lay in its combination of simplicity and assurance. A safety net to catch those fallen on hard times, come rain or shine, boom or bust, it would be there for all those who had paid in.

Such universality allowed people to project on to it whatever they wished. Welfare State’s father, the Liberal William Beveridge, described his offspring as “an attack on Want”, one of the five evil giants that had to be slain in postwar Britain. But for future Labour prime minister Clement Attlee, “Social security to us can only mean socialism”.

Yet there were critics. Indeed, it is thought that as late as yesterday, an unnamed twentysomething PPE graduate at Policy Exchange was revising a document entitled “What’s Wrong with Welfare?” In the end, however, it was not a rightwing think tank that killed Welfare. The proximate cause of death was a change in child benefit from being available to all to a means-tested entitlement. That marked the end of one of the last remaining universal benefits, in turn causing a fatal injury to Welfare.

It is a testimony to Welfare’s powerful charm that few immediately accepted its passing. Hours after its official death, bloggers continued to talk as if it were still alive, albeit under grave threat from the perfidious Tories.

But analysts later confirmed that the change to child benefit did indeed mark the death of the Welfare State as originally envisaged by Beveridge: a “contributory” system, where those who paid in during their working lives could count on financial help from the government when in need.

It expired peacefully on Monday, 7 January, just weeks after marking its 70th birthday.

The system had suffered many attacks over the years, from politicians talking of a “welfare trap”, government means-testing, and frothy-mouthed journalists reporting isolated cases of benefit fraud.

For many would-be claimants, Welfare had become a ragged system where, however deserving or needy, they weren’t poor enough to qualify for benefits, or the cash involved was too small to bother claiming.

Though David Cameron spoke of a “something for nothing” culture, the opposite was closer to the truth: Welfare had become a “nothing for something” system where taxpayers chipped in but got very little back.

This was very different from the scenes that greeted Welfare’s birth in 1942. Then, the BBC broadcast in 22 different languages the details of Beveridge’s social insurance scheme and the Manchester Guardian repeatedly acclaimed it as a “great plan” and a “big and fine thing”. The public was enthusiastic, buying more than 635,000 copies of what was formally titled the “Report of the Inter-Departmental Committee on Social Insurance and Allied Services”.

Yet the golden period of Welfare really came in the 60s and 70s as, thanks to the work of Barbara Castle, Jeff Rooker, Audrey Wise and others, pensions and allowances were made more generous and tied to typical earnings.

“If you were poor, you were far less behind than at any other time in contemporary British history,” according to Richard Exell, a senior policy officer at the TUC and a campaigner on welfare issues for more than 30 years. “It produced a Britain that was one of the most equal societies in western Europe.”

Just before Margaret Thatcher came to power, a single person out of work would get unemployment benefit worth almost 21% of average earnings; last year, jobseeker’s allowance was nearly half that, amounting to just over 11%.

Welfare’s big decline came in the 1980s, as the Conservatives moved more benefits from available to all to on offer only to the poor. This was justified as making public spending more efficient.

But, according to a famous and much quoted study by Walter Korpi and Joakim Palme, such means-testing is far less effective and more expensive than universal benefits. In a study of 18 rich countries, the academics found that targetting benefits at the poorest usually generated resentment among those just above – and led to smaller entitlements.

This “paradox of redistribution” was certainly observable in Britain, where Welfare retained its status as one of the 20th century’s most exalted creations, even while those claiming benefits were treated with ever greater contempt.

“If you look at unemployment and sickness benefit as a proportion of average earnings, then Britain has one of the meanest welfare systems in Europe,” says Palme. “Worse than Greece, Bulgaria or Romania.”

Some of that same meanness can be seen in the way Welfare was discussed as it moved into its sixth and seventh decades. It was no longer about social security but benefits. Those who received them were no longer unfortunate but “slackers“, as Iain Duncan Smith referred to them. A recent study by Declan Gaffney, Ben Baumberg and Kate Bell of 6,600 national newspaper articles on Welfare published between 1995 and 2011 found 29% referred to benefit fraud. The government’s own estimate of fraud is that it is less than 1% across all benefit cases.

The death of Welfare does not mean an end to all benefit spending. Instead, it is outlived by its predecessor, Poor Relief, in which only the very poorest will receive government cash. Analysts are unsure about the repercussions.

“I’m not aware of any country that’s ever had a combination of Victorian-style poor laws and parliamentary democracy,” says Gaffney.

Instead of a book of condolences, there will be a special edition of the Guardian’s letters page. In separate tributes, BBC4 will air some respectful but little-watched documentaries; there will also be a truly unbearable edition of The Moral Maze.

Disabled Girl Must Spend One Night A Month In New Zealand For Compensation

January 7, 2013

 A girl with severe disabilities is having to fly from Essex to the other side of the world every month in order to qualify for medical compensation.

Paige Carpenter, 14, suffered brain-damage during her birth in New Zealand and was awarded money for her care.

When the family came back to live in Great Bentley, they learned Paige would have to spend one day a month in New Zealand to qualify for payments.

The authorities there said they could not sanction overseas care payments.

Paige was starved of oxygen during her birth, leaving her with epilepsy and cerebral palsy and she has a twisted spine. She uses a wheelchair and can only speak a few words.

She was awarded compensation for life-long care.

‘Heart-breaking’

When family circumstances forced her British mother, Donna Carpenter, 43, back to the UK with Paige and her five siblings in 2010, the payments ended.

But a loophole in legislation meant that if Paige was in New Zealand for 24 hours once a month she was entitled to reduced compensation.

This has been £1,000 a week since October last year.

The payment is less than half what Paige was receiving when the family was in New Zealand, as financial support is restricted once beneficiaries leave the country.

Mrs Carpenter wants to continue the journeys to New Zealand in order to highlight Paige’s plight in the hope that the authorities will reconsider the case.

The flight can take up to 26 hours with one stopover, and costs about £3,500 for Paige, her mother and her stepfather.

“We don’t get much sleep on the plane,” said Mrs Carpenter.

“Paige cat-nap sleeps anyway, but we get very, very exhausted.

“She didn’t ask for this.

“It’s a strain on the whole family, but it’s the kids that are saying ‘you’ve got to do it Mum, you’ve got to do it for Paige’.”

Paige’s stepfather Stephen Barnett, 47, said: “The only thing we want to do is improve Paige’s life and to have the family as a family.”

The Accident Compensation Corporation (ACC) in New Zealand provides the assistance to Paige and is governed by the Accident Compensation Act.

In a statement the corporation said it had used its discretion to approve overseas attendant care payments for Paige and wanted to extend the discretionary payments beyond February.

“Legislation does not enable us to approve overseas attendant care on a permanent basis,” the statement said.

“However, ACC is committed to working with Paige’s family to consider ongoing solutions that will provide the family with peace of mind regarding the duration of overseas care approved.”

Gangnam Policeman- Falmouth Police Fundraise For Disabled Boy #SuperJosh

January 7, 2013

From Youtube:

Members of Devon and Cornwall Police have hit the streets of Falmouth ‘Gangnam Style’ to help raise funds for a young boy left with disabilities after suffering a brain tumour.

Sergeant Gary Watts ‘persuaded’ colleagues from the town station to join him in a public re-creation of the cult music video by South Korean rapper Psy.

Officers and PCSOs put their dancing skills to the test to film the parody at various locations in the town, including Falmouth Quay.

The tongue-in-cheek charity video has been made for a serious purpose — to raise money for 12-year-old Josh Wilson, who was diagnosed with a brain tumour in 2004.

Following treatment the youngster, from Bury, now has severe neuromuscular disabilities that require a fully-adapted home; his family needs to raise £25,000 to pay for a ceiling track hoist, a special medical bath, building work and other basic equipment.

Anyone wanting to donate to Joshua’s Journey fund can do so via: http://www.superjosh.co.uk

The video was recorded, edited and produced at no cost by Pete Appleyard and the team from Roseland Media, and the officers completed the video in their own time.

Julia Roberts To Star As Dr Emma Brookner In TV Adaptation Of The Normal Heart

January 7, 2013

Julia Roberts is to star in a new HBO screen adaptation of the Tony award-winning stage show The Normal Heart.

Glee creator Ryan Murphy is directing the film, which is set for broadcast on the US cable channel in 2014.

The Oscar-winning actress will play the paraplegic physician, Dr Emma Brookner, who treats patients in 1980s New York during the early Aids epidemic.

“We couldn’t be more thrilled to bring this important film to HBO,” said the network’s Michael Lombardo.

The film version has been adapted by Larry Kramer, who wrote the play and was an early advocate for Aids prevention and care.

The story is seen through the eyes of Ned Weeks, a gay Jewish-American writer, activist and founder of a prominent HIV advocacy group.

The role will be played by Mark Ruffalo, whose recent credits include a lead role as Bruce Banner in Marvel’s The Avengers and Shutter Island. He was Academy Award-nominated for best supporting actor in The Kids Are All Right in 2010.

White Collar star Matt Bomer will play Felix Turner, a reporter who becomes Ned’s lover.

“Ryan has assembled an extraordinary cast to bring Larry Kramer’s landmark theatrical achievement to the screen for the first time,” added Lombardo, in his role as HBO president of programming.

The Normal Heart was premiered on stage in 1985 in New York and revived on Broadway in 2011, when it garnered the Tony for best revival.

This Is National Braille Week 2013!

January 7, 2013

What Is Life Really Like On Disability Benefits?

January 7, 2013

A piece by Frances Ryan from the New Statesman which might be interesting for some of you.

The Music Conductor With Bipolar Disorder

January 7, 2013

Ronald Braunstein began his music career at New York’s prestigious Juilliard School and went on to apprentice at the Berlin Philharmonic.

His career as a conductor, however, has endured both high notes and low.

Braunstein’s professional track was derailed by bipolar disorder. He says his colleagues in the music business seemed little to understand his condition and that he suffered discrimination as a result.

Now he hopes to use his talent to help others. He conducts the ME2 orchestra in Vermont where amateur musicians coping with mental illness come together to create music without worrying about the stigma.

Cineworld tries to force autistic boy to leave kids film for laughing too loudly‏

January 7, 2013

From an email I have just received from Kate Linke:

 

On New Year’s Eve we decided to take our two sons, the elder of whom is severely autistic, to the midday viewing of the children’s movie Rise of the Guardians at the Cineworld O2 in Greenwich.

 

Noah (our autistic son) attends a special residential school so family outings of this type are very rare and special to us and to our other son Oliver, age 6. Over the years we have taken Noah to the cinema a number of times and have developed a good strategy for minimizing any disruption to other members of the audience, including sitting on the back row and having two adults present at all times in the unlikely event that Noah needs to be taken out.

 

The whole family was enjoying the film immensely so we were amazed when 15 minutes into the screening we were approached by an usher and asked to leave the theatre because Noah – who like most of the children in the audience was laughing loudly – was “making too much noise”. When we explained that he was autistic we were told that this was irrelevant. Two other families who were sitting near us became aware of the situation and pleaded on our behalf, but their requests were disregarded by the usher.

 

My husband asked to see the manager outside.  When he eventually arrived he initially supported the usher but after a further 10 minutes’ discussion agreed to come and see for himself what Noah was doing. At this point he conceded that Noah was making no more noise than any other child in the theatre and agreed to let us stay. The whole process took over 30 minutes, causing great distress to us all as well as meaning that my husband missed one-third of the film.

 

Ironically Cineworld promotes a ‘Movies for All’ policy and even prides itself on having run “special autism screenings” (whatever these are) in 14 of its 79 cinemas.  It also claims to have put over 2000 staff – a group which clearly didn’t include this particular manager or usher – through special “Disability Awareness and Welcoming Disabled Customers” training.

 

Even more ironically, this particular incident happened on the final day of 2012 – of Britain celebrating a year of being more accessible than ever before. One might hope that the incredible achievements of our Paralympic athletes might have permeated the minds of even the most lowly of leisure industry employees.

The New 2013 Go Compare Ad Featuring Stephen Hawking

January 6, 2013

Con-Dem Love By Kevin Robins: The Official DPAC Song For 2013

January 6, 2013

Brilliant!

Colleen Rooney’s Sister Rosie McLoughlin, 14, Dies From Rett Syndrome

January 5, 2013

Some tragic breaking news, readers.

The teenage sister of Coleen Rooney has died after a lifelong battle with a rare genetic disorder.

Rosie McLoughlin, 14, who had Rett syndrome, died at her home in Liverpool in the early hours surrounded by her relatives, a family spokesman said.

In a statement, Coleen, her husband, Manchester United and England star Wayne, and the rest of Rosie’s family, said they had been left “heartbroken”.

“She was such a strong little girl and an inspiration to us all,” it said.

“We shall cherish forever the memories we have shared and the love she showed us each and every day of her life.”

The family thanked staff at Liverpool’s Alder Hey Hospital and Claire House Children’s Hospice in Wirral, Merseyside, where Rosie was treated and asked for privacy at this “sad and difficult time”.

Rett syndrome is a neurological disorder that affects just one in 12,000 females, according to the NHS. It causes severe physical and mental disability that begins in early childhood.

Rosie’s illness inspired adopted sister Coleen and her husband Wayne, the Manchester United and England footballer, to help raise funds for sick, disadvantaged and disabled children.

Mark Cahill, 51, First British Man To Have Hand Transplant

January 4, 2013

A 51-year-old man has become the first person in Britain to have a full hand transplant after a donor was found on Boxing Day.

Mark Cahill spent eight hours in surgery at Leeds General Infirmary during which doctors replaced his disabled right hand with the donor’s limb.

A spokesman for the surgical team said the operation went well and, if the limb continues to survive, the patient is expected to gain feeling and movement in the transplanted hand. Cahill’s hand became disabled as a result of an infection following a severe case of gout.

Cahill, from Greetland, near Halifax in West Yorkshire, said: “It feels great to look at this hand I haven’t seen move for five years and see it move. I would say to other people, absolutely, go for it. Anything is better than what I had before this operation.

“I’m hoping to eventually go back to work. I’m already moving my fingers, the doctors say I’m making quicker progress than they expected.

“Before the operation I couldn’t tie my own shoes, do up my shift buttons, cut my dinner or play with my grandson’s toys with him. Hopefully I’ll be able to do all these things now.”

The surgical team said they used a new technique that involved amputating Cahill’s non-functioning hand during the same operation as the donor hand was transplanted.

In the operating theatre, the surgeons worked in two teams alongside each other. One team removed the donor’s hand, while the other removed the patient’s. The arrangement allowed them to map the nerves and blood vessels in intricate detail before transplanting. The doctors reattached eight blood vessels, three nerves, tendons and bone in the complex procedure.

This procedure allowed very accurate restoration of nerve structures and is believed to be the first time this approach has been used, surgeons said.

Simon Kay, professor of hand surgery, and a member of the team, added: “He’s pleased to have come through this and have a hand, but he’ll take it one day at a time, as we all will.

“The donor’s family made this decision in the midst of their grief at Christmas time and that is an extraordinary act. It brought it home to me, how I would have felt. It plucks something positive from something awful.”

The team has been working closely with NHS Blood and Transplant and also colleagues in Lyon, France, where hand transplants were pioneered in 1998.

Surgeons at the hospital began looking for suitable donors for the operation more than two years ago. The team had been on standby since November, and heard late on Boxing Day that a suitable donor had been found.

Hand transplants have been controversial because patients must take drugs to suppress their immune systems, which can be harmful and even shorten their lives.

With common transplants, such as hearts and livers, the decision is quite straightforward, because the patients will not survive without the new organ.

Doctors assessed several patients medically and psychologically before choosing Cahill as the first to undergo the operation. He had lost all function in his hand and was due to have it replaced with an artificial hand. It may take six months to a year for the nerves to heal and for him to gain feeling and movement in the transplanted hand.

Kay said the operation was not suitable for all of the people the team assessed. Cahill was selected because he was the best tissue match. “We looked at a lot of patients and the majority, for one reason or another, were not suitable. This is only going to be one of a number of ways to help people with lost limbs,” he said.

The first-ever recipient of a hand transplant was New Zealander Clint Hallam, who had his operation in France. Hallam lost his original hand in a circular saw accident in prison in 1984. He eventually decided he could not live with his new hand, which was taken from a motorcyclist who died in an accident. He said it felt like a dead man’s hand. It was removed two years later. Doctors said Hallam had not stuck to the correct drugs and exercise regime.

The Sessions- Disability, Sex And Two Golden Globe Nominations

January 4, 2013

Four years ago, Ben Lewin was surfing online for disabled sex. The survivor of boyhood polio who had worked as, variously, a jeweller, a barrister and a movie director, Lewin found himself hitting 60 and with his career on the skids. His agent had a suggestion: write a sitcom, vaguely based on his own life, about a man who trades the use of his disabled parking badge for erotic favours.

Lewin agreed it had potential. “I’d just look in the mirror and say: ‘Well, there’s a funny idea'”. He began the research, and devised a working title (Gimp). Was it really autobiographical? Lewin looks coy, in an Aussie fashion. “Well, ask my wife if she has enjoyed the benefits of privileged parking. I’m sure she doesn’t complain.” He sighs agreeably. Do we all trade things for sex? “Oh yes. For me, it depended on what stage I was at and how desperate I was feeling.”

But what Lewin stumbled across put Gimp permanently on the backburner. It was an article by Mark O’Brien, a poet who lived in Berkeley in the 1970s, forced to spend most of his days in an iron lung – again, as the result of polio. Though prone to falling in love with his carers, at 38, O’Brien found himself still a virgin – so he employed the services of a professional sex surrogate (more medical worker than prostitute). Reading his piece, says Lewin, was “a burning-bush moment”.

“I had the self-awareness to know I’m very hard to reach emotionally and that if something could do that as effectively, there was a powerful story inside it. I was worried at first that I had too special a point of view. But then I was persuaded that it was a universal kind of story, and I used my specialness to persuade people that I was the right guy for the job.”

He was. Fox Searchlight splashed out $6m for distribution rights following The Sessions’s premiere at Sundance last year. Next Sunday it’s up for two Golden Globes, for John Hawkes (as O’Brien) and Helen Hunt (as the surrogate).

Yet despite this acclaim for its cast, what distinguishes the film is its tone: the light touch and sly wrongfooting. For all the frank chat and full-frontal nudity, this is a romance, the chirpiest weepy you’ll see. Like his film’s hero, Lewin is a charmer, sweet and circumspect, who speaks of his disability in terms of comedy, not struggle.

He feels the deepest kinship with O’Brien, who died in 1999, over their ability to connect with the opposite sex. “Mark had a special knack of being able to tell a woman what she wanted, to use the power of language and imagination – which resonates more for women, I think. While I don’t want to underplay what a shitty hand of cards Mark got dealt, he probably still had some really high-quality ladies in his life. And there are a lot of able-bodied guys who go through life without experiencing that.”

Lewin is an unabashed natterer, socially polished behind that larky exterior. I first met him in Toronto, at the TV junket for The Sessions, in the hospitality area where journalists scribble out questions and stock up on sandwiches. Lewin, wife and daughter in tow, sat down at my table for their own lunch and started talking, without reference to the movie nor his part in it.

“I have always enjoyed the company of women,” he says in London a month later. “I feel that there is a way of reaching their sensibilities other than through brute force.” Part of the knack is knowing your target. “I see givers and takers. Some women have a much more nurturing quality. And being a taker myself I would gravitate towards that. There are men who are the opposite, who are really more attracted to bad girls. The ability to recognise what pushes certain people’s buttons is crucial.”

And it is studying others that appears to tickle Lewin. In a sense, then, the necessity of talking about his physical affinity with The Sessions’s subject matter must be frustrating. Here is a man whose mantra had always been to write about that which you don’t know. He plays down the extent to which his condition affected his childhood (“I am more connected to the world of the imagination, but you don’t have to have polio to do that”), expresses disgust at what he sees as a mushrooming trend for egocentrism.

“I remember when our oldest daughter was going to college we were looking at these sample essays that people write for their applications. They were all very self-centred. I thought: this is wrong. Why don’t they treat writing the essay as a learning experience rather than a navel-gazing experience?” He looks unusually upset. “Particularly with middle-class people, self-absorption is a struggle.”

Lewin’s own history is one of the benevolent eavesdrop. Born in Poland in 1946, to parents whom he says stayed together unhappily for the sake of their children, the family decamped to Australia when he was a toddler. There, they opened a corner shop. “It was almost like the Rovers Return. Everyone came and spilled their guts and vented about their neighbours. I still felt we were aliens in that community, but we were accepted. In retrospect it did stimulate me creatively.”

After ditching a legal career, Lewin moved to London in the late 70s, where he was all set to do an adult education class in gilding. But the man next to him in the queue cautioned against it. “He said: ‘The teacher’s a real bastard. Do continental patisserie.’ I changed lines and it was one of the most pleasant years I ever spent. I so looked forward to my classes. I was the only guy, apart from the teacher, who was the pastry chef at Fortnum and Mason’s.”

His fellow students were all middle-aged women. “They would talk about their husbands in this conspiratorial, criminal way. I thought the following day I was going to read about some grisly murder in the paper. They would enrol year after year just to get away from their dreadful marriages. That was one of the fascinating parts of it, learning – my God, is this what happens to marriage after so long?”

Lewin moved to Hollywood in the 80s, and was sure to always take cake to pitch meetings. “If I called a couple of weeks later I’d mention the food and they’d say: ‘Oh, it was delicious! Who’s your agent again?'”

What was his speciality? “I’m very good at florentines; really top class Florentines. And lemon tarts in a very traditional French style, very complex apple cakes. I tend not to go for the multilayered cream disasters. Too fatty. You feel awful afterwards. I like things where you just have a little taste and you’ve got it. You don’t need to gorge.”

The Sessions follows a similar recipe: no fat, little treacle, weighing in at a slimline 88 minutes. And although Lewin’s previous movie career isn’t half as chequered as legend might like to suggest (a Judy Davis thriller, a Jeff Goldblum farce, an Anthony LaPaglia romcom, an episode of Ally McBeal), he agrees that had he shot it 30 years ago, he’d have been likely to overegg the pudding.

“I might be tempted to do sex scenes in a more conventional way, as if they were the pages of Playboy coming alive. When I was younger I would just stress myself out like crazy. These days I take my crossword to the set with me and I’ll nap every now and then and get involved in trivial conversation. The result is so unpredictable you’ve got to learn to love the process. That might be the only thing you get to enjoy.”

And there’s the rub. For all Lewin’s happiness at this late career revival, – “I feel in some ways that we’ve won the lottery after buying tickets for 40 years” – you sense the shadows snapping at his ankles. Being the oldest Sundance kid in town has its drawbacks. Perspective isn’t always a blessing. “I’m used to having really nice stuff spaced out. I’m a little bit worried about the idea that this time next year it will all be over. Nobody will want to rush up and talk to me any more.”

Adam Hills Stands Up Live For Channel 4

January 3, 2013

Slightly old, surely gold, Adult Humour from a DisAbled comedian.

Jane Nicklinson To Continue Right To Die Fight

January 3, 2013

The family of a man who lost a legal battle for the right-to-die has won permission to continue his campaign in an appeal against a High Court ruling.

Tony Nicklinson, 58, died at his home in Melksham, Wiltshire, in August 2012, a week after he failed in his bid to end his life with a doctor’s help.

He was paralysed by a stroke in 2005 and suffered from locked-in syndrome.

His family’s test case is over whether medical help can legally be provided to those seeking the right to die.

Mr Nicklinson’s widow Jane pledged in September to continue her husband’s fight but the High Court refused to make her a party to the proceedings.

The Court of Appeal has now given permission for her to bring an appeal against the decision.

Mrs Nicklinson has admitted it is likely to be a long campaign, fraught with legal technicalities, but said the family was determined to continue.

On her Twitter account she said it was “good news indeed”.

‘Terrible predicament’

Father-of-two Mr Nicklinson, who was paralysed from the neck down, had been refusing food and contracted pneumonia after he was left “crestfallen” by the court’s decision.

His family had vowed to continue his campaign after he died on 22 August but the High Court refused to allow the case to proceed further.

The judges said they were “deeply conscious of Mrs Nicklinson’s suffering” but did “not consider that the proposed appeal has any real prospect of success”.

Turning down Mr Nicklinson’s bid in August, the court referred to his “terrible predicament” and described his case as “deeply moving and tragic”.

But Lord Justice Toulson, Mr Justice Royce and Mrs Justice Macur unanimously agreed it would be wrong to depart from the long-established legal position that “voluntary euthanasia is murder, however understandable the motives may be”.

The judges also heard that a second applicant known as “Martin” needed assistance to end his life after a stroke.

But they ruled that the current law did not breach human rights and it was for Parliament, not the courts, to decide whether it should be changed.

Obese People Could Lose Benefits Says Council

January 3, 2013

Readers, this is shocking and almost unbelievable. It is one of those policies that  could almost be put under the ‘whatever next’ category. Yet, coming as it does from a Tory-run council, Westminster, it is almost not surprising.

According to today’s Guardian, obese or other ‘unhealthy’ people could be monitored to check whether they are exercising. If they fail to exercise, they risk having their benefits cut.

Westminster council are reportedly due to publish the proposals today, along with a local government thinktank, the Local Government Information Unit.

According to this article from the Financial Times, some local authorities have introduced schemes allowing GPs to prescribe physical activities at their swimming pools, gyms, and similar leisure facilities.

The Guardian says new technologies, such as ‘smart cards’ could be used to track benefit claimants’ use of leisure facilities. This would allow local authorities to cut housing and council tax benefit payments for those who refuse to carry out exercise prescribed by their GP.

The report says “Where an exercise package is prescribed to a resident, housing and council tax benefit payments could be varied to reward or incentivise residents.”

There is one major thing wrong with this proposal. It could affect wheelchair users who are claiming benefits. This may also affect the families or family carers of such people, as it would reduce household income.

Wheelchair users sit for long periods of time through absolutely no fault of their own. This would, naturally, be likely to make them obese. They may be completely unable to take even a single footstep. Exercise of the sort suggested by these proposals would, for any such benefit claimants, be completely impossible, through absolutely no fault of their own.

Before such proposals are seriously considered by any council, they need to be made aware of this. They would need to seriously consider making wheelchair users exempt from any such proposals, and to clarify this for the public.

Daniel Roque Hall Wins Injunction Preventing Prison Return

January 2, 2013

This is good news.

A severely disabled convicted prisoner who requires round-the-clock treatment has won an injunction preventing the prison service from returning him to jail.

Daniel Roque Hall, 30, was sentenced to three years’ imprisonment last July after admitting smuggling 2.5kg of cocaine in his wheelchair back from a holiday in Peru.

He suffers from Friedreich’s ataxia, a degenerative disease that affects co-ordination of the whole body. It causes a heart defect, which requires constant monitoring, and diabetes, and shortens life expectancy: Hall is not expected to live beyond 40.

A former prison governor told the Guardian it would be “virtually impossible” to manage the condition in prison.

On 23 August, Hall was rushed to University College Hospital (UCH) in London and placed on a life support machine when his condition worsened.

A consultant at UCH said Hall’s heart had been “stunned” by his treatment at the prison. Hall’s family said the two constant carers Hall needed were not supplied and he had been denied vital medication and stretching exercises during his time in prison. This had resulted in severe spasms, which affected his heart. They fear the same will happen if he is returned to prison.

Hall’s mother Anne said: “Doctors at UCH say Daniel is more medically frail and his needs are greater than last July. He needs vigilant continuous care, which he received in the community. The seven weeks he spent in Wormwood Scrubs almost cost him his life. Last July, Ataxia UK said Daniel’s three-year jail term amounted to a death sentence. They are right.”

The Guardian was unable to speak to Hall because we are not on his prison’s approved contact list. When prisoners are in a community hospital, prison rules still apply.

He has remained at UCH since August, though not in intensive care. Throughout his stay in hospital, Hall has been guarded around the clock by two, sometimes three, prison officers.

A week ago, the prison service told Hall he would be returned to Wormwood Scrubs in west London on Wednesday. Last Sunday, a protest against a return was held outside the prison.

Late on Tuesday night, Hall’s lawyers obtained a high court injunction preventing his return to prison. His legal team now has seven days before they must return to court to argue he should remain in hospital.

When Hall was sentenced last year, the trial judge accepted he had been manipulated and groomed by drug dealers. Knowing his medical history, the judge sought assurances from the prison service that Hall’s complex needs would be met in jail. The governor of Wormwood Scrubs told the court the prison would provide the 24-hour monitoring Hall required.

John Podmore, former governor of Brixton prison, said on Wednesday: “Managing somebody with chronic, advanced ataxia disease in a prison setting would be virtually impossible without bringing in considerable resources or diverting them from somewhere else, and the pressures on a prison hospital in London are considerable and not conducive to an environment required by someone with such a disability.

“Ironically, severely disabled prisoners can only access appropriate healthcare in prisons offering expensive and high levels of security they do not require.”

A 2011 prisons inspectorate report on the healthcare department of Wormwood Scrubs found “little progress in support of men with disabilities” and expressed concern at the “lack of systematic identification and help for prisoners with disabilities”. Inspectors described the unit where Hall was held as an unsuitable environment for those recovering from physical illness.

A spokesman for UCH saidthe hospital was unable to comment because of patient confidentiality. A prison service spokeswoman said: “We do not comment on individual cases.”

Callout For Deaf/Disabled LGBTQ People Living In Scotland

January 2, 2013

If that’s you, please read this.

I’m On A List Of Most Followed Political Tweeters!

January 2, 2013

I’ve just had a very pleasant surprise to start off the working year…

 

How Welfare Reform Will Take Away Jane Young’s Independence

January 1, 2013

Petition To Strip Professor Simon Wessely Of His Knighthood

December 31, 2012

Controversial professor Simon Wessely has been given a knighthood. Considering his opinions on ME, which I have covered here before, the ME community are understandably upset by this.

A petition has been started to strip him of this honour.  I have signed, please do the same if you agree.

My E-book, Listen To The Silence, Is Now Available On Amazon

December 31, 2012

Dear Readers,

Some of you may have already read my e-book of original poetry which has been available to download from here for the last 2 years.

Today, I’m very pleased to be able to tell you that a bigger and hopefully better version of the e-book is now available on Amazon from here for £3. This will download to your Kindle, Kindle for PC, Iphone, Ipad and similar devices.

If you read the original, I hope you enjoy the new additions. If you haven’t yet read any of the poems, I do hope you’ll enjoy them all!

 

Christian Care Home Worker Loses Sunday Work Case

December 31, 2012

This is a guest post by Matthew Smith. Thanks to Matthew. It was originally posted here earlier today.

Christians have no right to refuse to work on Sundays, rules judge – Telegraph

This is the latest appeal in the case of Celestine Mba, a former carer for children with learning disabilities in south-west London, who had resigned from her job when the management refused to allow her every Sunday off to go to her Baptist church. (She claims they initially did, then changed their minds.) She has now lost the appeal, with the judges citing the fact that most Christians did not demand to have every Sunday off and thus there was no reason for her to. The Telegraph’s report, which seems to rely heavily on material from various “Christian rights” campaigners including the “Christian Legal Centre” which brought this case, alleges that various other faith groups have secured accommodations, such as the right to wear a bangle for Sikh women or the right for Muslims to attend prayers or wear the hijab, a standard plank of the Christian persecution campaigners’ case.

For one thing, as a Muslim, it is not always possible for Muslims to attend prayers, including Friday prayers, which are compulsory for Muslim men to attend if they live near somewhere they are held, and Muslims only require the hour or so on a Friday afternoon to attend, not the whole day. Muslims do not always get Eid off, and do not always get the dress accommodations they require, as Shabina Begum found out when she challenged her removal from a school in Luton in 2006 (she lost her final appeal that year). The “hijab” uniform allowed by some schools does not match Muslim dress requirements, which include not only covering the hair but covering the whole body, including the legs, loosely, which a knee-length skirt does not do (I have seen girls wearing this kind of uniform in London). The rules differ from school to school, and schools are under no obligation to allow what many parents regard as proper hijab. So, the claim that Muslims always get allowances for hijab is not true. This organisation does not actually support such accommodations for minority faiths, as shown in their Twitter feed which contains numerous references to a so-called mega-mosque in east London. What they appear to support is Christian dominance, not equality.

The Telegraph’s report also does not mention the particular circumstances other than that her employer was a care home. As anyone with a disability will tell you, the impairment does not go away on a Sunday, on Eid, on Easter Sunday or any other religion’s holy day, whether it’s a learning disability (in the case of these children), a spinal cord injury, ME, a mental health condition or anything else. If you work in a caring profession, you accept that you will be required to care on a varying shift basis including on weekends and some holidays. In my family there are people who work in caring professions, including (currently student) nurses and a mental health support worker, and I have personal friends both who are disabled and who are carers (and in one case, both). All the care workers have had to work on holidays because the people they care for cannot go home. The consequences when they cannot, or will not, can be devastating for disabled people and their families: there was one particularly awful incident in Dublin a couple of years ago, where people in an open psychiatric ward were moved to a locked ward for Christmas because staff could not be found to cover them. I also know a lady who is disabled herself and who cares for a severely disabled daughter (she has severe cerebral palsy, is blind and has autistic traits) who was refused care over the Christmas holiday. She and her husband had to do it all between them.

There are times when I have found some sympathy for Christian public employees who found the rules changed in ways their religion could not tolerate: public registrars, for example, suddenly finding they had to register gay marriages, which was not on the agenda when they took the job (and certainly for a Muslim, witnessing an unlawful contract, whether it is gay marriage or usury, is also unlawful). In many cases the plaintiffs are Christians from Africa where fashions have not changed as they have here. It was, of course, British missionaries who exported Christianity to those parts of the world, and we cannot export a religion and then expect converts, or their descendants, to abandon it at will just because we do. However, care workers have always worked on Sundays in this country as they do in Church-run schools and hospitals in Africa, for the obvious reasons stated above. This group of evangelicals cannot be allowed to use malicious lawsuits, ostensibly in pursuit of unattainable goals, to intimidate society. Costs should be awarded against the organisation which brought this case, so as to reduce the possibility of any further harassment from them.

Same Difference Review Of 2012

December 31, 2012

As usual, in the form of original poetry. Happy New Year!

In January #Spartacusreport hit Twitter

But in the mainstream media’s spotlight, it did not glitter

In February the UK was hit by snow so cold and bitter

Stuck in the white stuff, I wished I was fitter

In March Channel 4 decided DisAbled meant Undateable

The programme was quite interesting, the title still debateable

In April some actors made a work of Shakespeare

Accessible to an audience who   could not hear

In May we celebrated BADD

Blogged against disablism, something that drives us mad

In June the British Paraorchestra first came to my attention

Making music to my ears with accessible inventions

In July a campaigner took a European road trip

A longtime dream on which he kept a firm grip

In August the Paralympics arrived,

Disabled athletes succeeded and strived

In September Liam Barker hit the news

My post on him got thousands of views

In October the Winterbourne workers were sentenced

For crimes too terrible to mention

In November three Paralympians were nominated

For a mainstream sports award, in excitement I waited

In December an MP said we couldn’t watch TV

While claiming benefits, what kind of life would that be?

Paralympians Should Have Received More Honours, Says Former Minister

December 30, 2012

I don’t know how I feel about this. I listed all honoured Paralympians here yesterday and I was pleasantly surprised by how long the list was. However, compared to Olympians there were less Paralympians honoured so when you look at that, maybe Mr Sutcliffe does have a point.

What do you think, readers?

Former Sports minister Gerry Sutcliffe says members of the New Year honours committee made a “big mistake” in not recognising more Paralympic athletes.

He said Paralympians were not put on an equal footing with Olympic medallists and that was a “missed opportunity”.

Wheelchair athlete David Weir, who received a CBE after winning four gold medals, has suggested Paralympians have to work harder to earn recognition.

Cyclist Sarah Storey became a dame, the top award to a Paralympian this year.

Olympic cyclist Bradley Wiggins and sailor Ben Ainslie were knighted

Cycling and rowing performance directors Dave Brailsford and David Tanner were knighted for their services to both Olympic and Paralympic Games.

One Paralympian, David Weir was awarded the CBE, with four Olympians receiving the same award.

In total, 29 athletes from ParalympicsGB were recognised following their achievements in the summer.

‘Inspire a generation’

Mr Sutcliffe told BBC Radio 4’s The World This Weekend: “If you remember, at the start of the year there was confusion over whether the Olympians and Paralympians would get honours; the committee said it was unlikely. We managed to get them to change their mind and have a separate category for Olympians and Paralympians.”

Saying they had had made a “big mistake” in not awarding the highest honour to Paralympians like Weir, he said: “There was an opportunity to be consistent and if you look at his record over several Olympics I think the least he should have got is a knighthood.

“Because the whole purpose of the Games was to inspire a generation – and how better to inspire a generation of Paralympians than to give somebody a knighthood?”

Honour Paralympians Olympians
Knight/Dame 1 2
CBE 1 4
OBE 2 4
MBE 25 28

Six-time Paralympic gold medallist Weir told the Daily Telegraph he would have been disappointed if Storey had not been made a dame, which she had deserved after winning 11 gold medals.

“It’s a weird one, how they choose it. Sometimes it seems that Paralympians have to win lots and lots of medals to get a damehood or a knighthood.

“Kelly Holmes was made a dame when she won two gold medals, but it seems we have to get into double figures to get it. Sarah Storey should have been awarded this years ago, and I just feel that sometimes we are left out, perhaps because we are not in the public eye.

“It is a bit strange, but I am just honoured to get anything from the Queen for doing a sport I love.”

On his Twitter account, Weir later emphasised that he was “extremely happy” with his CBE, and had been saying he was surprised that Storey had been overlooked in the past.

Dressage rider Lee Pearson OBE told The Independent on Sunday he was “disappointed” not to get a knighthood after winning his 10th gold medal at the Paralympics this summer.

Pearson said: “Obviously, 10 gold, one silver and one bronze just isn’t enough. I’m disappointed because I do feel I’ve given a lot to Paralympic sport and equestrianism. I think 10 gold medals is quite an achievement.”

Sophie Christiansen, who won a gold medal in the individual dressage test in London to add to her two gold medals from earlier games said she was delighted to be given an OBE.

“It’s amazing. Aged 25 to be recognised in such a way, I really am honoured so I’m not complaining.”

Congratulations Paralympians!

December 29, 2012

Same Difference congratulates the following Paralympians, who are on The Queen’s Olympic And Paralympic Honours List 2013:

  • Dame Sarah Storey
  • David Weir CBE
  • Sophie Christiansen OBE
  • Eleanor Simmonds OBE
  • Jessica-Jane Applegate MBE
  • Natasha Baker MBE
  • Danielle Brown MBE
  • Michael Bushell MBE
  • Hannah Cockroft MBE
  • Josef Craig MBE
  • Deborah Criddle MBE
  • Aled Davies MBE
  • Neil Fachie MBE
  • Jonathan Fox MBE
  • Heather Frederiksen MBE
  • Oliver Hynd MBE
  • Nigel Murray MBE
  • Jonnie Peacock MBE
  • Josie Pearson MBE
  • Lily Van Den Broecke MBE
  • Sophie Wells MBE
  • Richard Whitehead MBE

They are all extremely talented and truly DisAbled. Their honours prove yet again just how far Paralympic sport has come this year.

Other disabled people from all fields have also recieved honours. Obviously these congratulations extend to them as well. If you know who they are, do leave their names in the comments below.

Margaret Thatcher Government Planned To Dismantle NHS, Documents Reveal

December 28, 2012

Margaret Thatcher and her chancellor Sir Geoffrey Howe were behind a politically toxic plan in 1982 to dismantle the welfare state, newly released Downing Street documents show. She later attempted to distance herself from the plans after what was described as a “riot” in her cabinet.

The proposals considered by her cabinet included compulsory charges for schooling and a massive scaling back of other public services. “This would of course mean the end of the National Health Service,” declared a confidential cabinet memorandum by the Central Policy Review Staff in September 1982, released by the National Archives on Friday under the 30-year rule.

Nigel Lawson, then the energy secretary, said the report by the official thinktank on long-term public spending options caused “the nearest thing to a cabinet riot in the history of the Thatcher administration”.

In her memoirs, Thatcher said: “I was horrified when I saw this paper. I pointed out that it would almost certainly be leaked and give a totally false impression … It was all a total nonsense,” claiming the proposals were never seriously considered by her or her ministers.

But the 1982 cabinet papers show the politically explosive paper was discussed at a special half-day extended cabinet discussion on 9 September that year. They show that Thatcher and Howe had been encouraging the CPRS thinktank to come up with such long-term radical options since February that year and that Howe continued to defend them even after the cabinet “riot” described by Lawson.

As part of that revolt a watered-down version of the CPRS paper was leaked to the press, provoking Labour accusations that Thatcher had a secret agenda to dismantle the postwar welfare state – a charge that continues to echo down the years.

Thatcher responded by famously promising in her 1982 Conservative party conference speech in Brighton that the NHS was “safe with us” – a claim that every Conservative leader since has felt compelled to repeat.

But the papers show the revised version of the CPRS paper that was leaked was mild in comparison with the original set of proposals – and that Thatcher’s horror had more to do with the prospect of a leak than with the nature of its contents.

The leaked version proposed introducing education vouchers, ending the state funding of higher education, freezing welfare benefits and an insurance-based health service.

But as John Sparrow, the merchant banker Thatcher had appointed to head the CPRS, complained to her when she demanded a more circumspect version, the revised paper “loses a large part of its punch”.

The original version went a lot further, including compulsory charges for schooling alongside a “drastic reduction in resources going to the public sector”, full-cost university tuition fees and breaking the link that then existed between welfare benefits and prices.

But the earlier version’s most controversial privatisation proposal concerned the health service: “It is therefore worth considering aiming over a period to end the state provision of healthcare for the bulk of the population, so that medical facilities would be privately owned and run, and those seeking healthcare would be required to pay for it.

“Those who could not afford to pay would then have their charges met by the state, via some form of rebating or reimbursement.”

The only exceptions might be the long-term institutional care of the “mentally handicapped, elderly” who “clearly could not afford to pay”.

One of those who worked on the CPRS paper was David Cameron’s current advisor on crime and policing, Lord Wasserman. The cabinet papers show Gordon Wasserman, who was on the thinktank’s staff from 1981-83, proposed cutting 25% of state school teachers in a background paper for the education section.

The cabinet papers show that far from being some kind of surprise freelance operation, the CPRS report was encouraged and commissioned by Thatcher and Howe. As early as February, Howe was pressing for a wide-ranging discussion on the future size and shape of the public sector. On 28 July, the Downing Street papers show that he told Thatcher: “We should not be inhibited at this stage by such considerations as … the alleged impossibility of change. A discussion of this kind would pave the way for some major strategic decisions affecting our programmes as a government for the next parliament.”

Howe proposed a Treasury paper also be discussed at the special cabinet meeting on 9 September: “The PM agrees too that it would be useful if there were a CPRS paper pointing up some of the longer-term options open to us.” Thatcher said they should be “vigorously explored”.

On the eve of the meeting, the cabinet secretary, Sir Robert Armstrong, told Thatcher that Howe had suggested “and you agreed” that the CPRS should be asked to prepare a paper outlining possible ways of making significant changes to the scale and pattern of public expenditure.

Armstrong said the value of the meeting lay in the chance for the cabinet to “lift its eyes from current preoccupations and to focus on what they like the shape of things in this country to be at the end of the decade.

“At the extreme end, some may argue that any of the radical proposals discussed by the CPRS would be even more unacceptable than the prospect of unchanged policies. But the meeting will have failed in its purpose if ministers are not willing at least to contemplate the possibility of radical action,” said Armstrong, who went on to recommend that all options should be remitted for further study.

Weir Wants 7th Marathon Win Next Year

December 27, 2012

Four-time London 2012 Paralympic gold medallist David Weir wants to break Baroness Tanni Grey-Thompson’s London Marathon record in 2013.

Weir won this year’s race to move level on six wins with Grey-Thompson.

And he told the 11-times Paralympic gold medal winner on BBC Radio 5 live he wants the record to himself.

“I want to win London for the seventh time but it will be a tough ask because I won’t be back in my racing chair until after Christmas,” he said.

“I don’t like being equal,” he joked with Grey-Thompson, during an interview for “Tanni and Marc’s Paralympic Feast” which she co-hosts with fellow BBC pundit and former Paralympian Marc Woods on 5 Live on Sunday, 30 December.

Weir went on: “Before London I thought I would retire after the Games but I enjoyed the last phase of training so much and what I did in London was special and there are still a few challenges for me.

“I also want to compete in the Commonwealth Games in Glasgow in 2014, because I’ve never had the chance to represent England, and I would also love to compete in the Boston Marathon and try to win another New York Marathon.”

Weir is one of a host of British Paralympic stars who are reliving the Games in the programme along with the likes of cyclists Sarah Storey and Jody Cundy, swimmers Ellie Simmonds and Josef Craig and equestrian star Sophie Christiansen.

Grey-Thompson also believes that the International Paralympic Committee need to look at the issue of blades after the controversy surrounding Oscar Pistorius and Alan Oliveira at the Games.

Pistorius suffered a shock defeat to the Brazilian in the T44 200m final and afterwards claimed that he wasn’t in a fair race because of the length of Oliveira’s racing blades, although the South African later apologised for the timing of his remarks.

“Because of Oscar’s desire to run at the Olympics, it made it much harder for him to run in the Paralympics,” she explained.

“He basically had to limit the height of his blades so he could compete at the Olympics and what Oliveira did was run at the maximum height he could.

“It has been said that Oscar could have been running eight inches taller in the Paralympics but between the Olympics and Paralympics he couldn’t change blade length because it would have meant completely changing his stride length and pattern and how he reacts to leg movements.

“Athletes are saying more work needs to be done and as technology advances it changes how they run but the IPC need to look at the rules for the credibility of the particular event.”

Meanwhile, British Paralympic Association chief executive Tim Hollingsworth says that although 2012 has been a defining year for the Paralympic movement in the UK, much more needs to be achieved to ensure lasting impact.

“We cannot be complacent and there is still much to be done to maintain the momentum coming out of the Games,” he said.

“We have already turned our attention to Sochi and Rio and are working hard to ensure that we do everything possible to enable the athletes to deliver their personal best performances that will lead to medals and just as importantly, help inspire disabled people to get active and non-disabled people to re-frame their attitudes towards disabled people.

“Whilst a home Games have brought a really positive image of disabled people to the fore, we recognise that there is still much to be done if we are to achieve our vision of ‘through sport, inspire a better world for disabled people’.”

Tanni and Marc’s Paralympic Feast will be on BBC Radio 5 Live on Sunday, 30 December at 11:00 GMT and repeated at 05:00 on Monday, 31 December.

The Queen’s Christmas Speech 2012: Paraorchestras, Paralympians And Pageants

December 25, 2012

What a pleasant surprise it was to see the amazing British Paraorchestra playing in the ballroom at Buckingham Palace as part of The Queen’s Christmas speech today!

Our equally amazing Paralympians were also given the equal credit they have always deserved when London 2012 was mentioned.

This really was the year when the UK recognised the talents of disabled people more than ever before and the Queen’s Christmas speech was no exception.

Sincere thanks go out to The Queen and the team behind her Christmas Speech for making this disabled person feel truly included this Christmas.

Eye Test May Be Fast And Easy Way To Monitor MS Finds Study

December 25, 2012

A simple eye test may offer a fast and easy way to monitor patients with multiple sclerosis (MS), medical experts say in the journal Neurology.

Optical Coherence Tomography (OCT) is a scan that measures the thickness of the lining at the back of the eye – the retina.

It takes a few minutes per eye and can be performed in a doctor’s surgery.

In a trial involving 164 people with MS, those with thinning of their retina had earlier and more active MS.

The team of researchers from the Johns Hopkins University School of Medicine say larger trials with a long follow up are needed to judge how useful the test might be in everyday practice.

The latest study tracked the patients’ disease progression over a two-year period.

Unpredictable disease

Multiple sclerosis is an illness that affects the nerves in the brain and spinal cord causing problems with muscle movement, balance and vision. In MS, the protective sheath or layer around nerves, called myelin, comes under attack which, in turn, leaves the nerves open to damaged.

There are different types of MS – most people with the condition have the relapsing remitting type where the symptoms come and go over days, weeks or months.

Usually after a decade or so, half of patients with this type of MS will develop secondary progressive disease where the symptoms get gradually worse and there are no or very few periods of remission.

Another type of MS is primary progressive disease where symptoms get worse from the outset.

There is no cure but treatments can help slow disease progression.

It can be difficult for doctors to monitor MS because it has a varied course and can be unpredictable.

Brain scans can reveal inflammation and scarring, but it is not clear how early these changes might occur in the disease and whether they accurately reflect ongoing damage.

Scientists have been looking for additional ways to track MS, and believe OCT may be a contender.

OCT measures the thickness of nerve fibres housed in the retina at the back of the eye.

Unlike nerve cells in the rest of the brain which are covered with protective myelin, the nerve cells in the retina are bare with no myelin coat.

Experts suspect that this means the nerves here will show the earliest signs of MS damage.

The study at Johns Hopkins found that people with MS relapses had much faster thinning of their retina than people with MS who had no relapses. So too did those whose level of disability worsened.

Similarly, people with MS who had inflammatory lesions that were visible on brain scans also had faster retinal thinning than those without visible brain lesions.

Study author Dr Peter Calabresi said OCT may show how fast MS is progressing.

“As more therapies are developed to slow the progression of MS, testing retinal thinning in the eyes may be helpful in evaluating how effective those therapies are,” he added.

In an accompanying editorial in the same medical journal that the research is published in, MS experts Drs Robert Bermel and Matilde Inglese say OCT “holds promise” as an MS test.

Chris Chapman, 20, On Bone Cancer, Wheelchair Basketball And Paralympic Dreams

December 25, 2012

“I thought I was going to die,” says 20-year-old Chris Chapman, as he recalls the day he was told he had osteosarcoma, a form of bone cancer.

“But they caught it at an early stage so I knew I had a fighting chance.”

That fighting spirit has seen Chris through eight months of chemotherapy and a year of operations – first to amputate his left leg above the knee and then to remove tumours from his lungs.

But learning to live with one leg at the age of 15 has not been enough of a challenge for this young man.

Now he has set his sights on being part of the GB wheelchair basketball team at the 2016 Paralympics in Rio after being inspired by this summer’s events in London.

“I can’t describe how it felt. It made me want to go and achieve my goals. I thought ‘one day I want to do that’. I want to get to Rio.”

‘Sports mad’

Chris took up the sport just two years ago and quickly discovered he was pretty good at it.

“I was always sports mad as a youngster but when I first had my amputation I didn’t think about sport for a good two years.”

It was only an invitation to attend a regional wheelchair basketball game and then a training camp which convinced him to embrace sport again – and focus on an even bigger goal.

Chris could be forgiven for being pessimistic about his survival chances at the outset.

Osteosarcoma, the most common form of primary bone cancer, has a five-year survival rate of just 42% – worse than for leukaemia, ovarian cancer and bladder cancer.

According to a recent report from the National Cancer Intelligence Network, over half of those with the disease are aged under 24.

It is also a rare cancer. Around 400 people in the UK are diagnosed with primary bone cancer each year and 150 with osteosarcoma, says the Bone Cancer Research Trust.

Scientists do not yet fully understand what causes a normal bone cell to become cancerous. Ongoing worldwide research to understand the difference between normal bone cells and osteosarcoma cells should enable experts to find treatments which target the abnormal cells in time.

Best option

Chris discovered he had bone cancer soon after he was injured playing football at school. The searing pain that developed in his leg would not go away and his parents took him to the GP, who found a lump on his knee and sent him straight for an X-ray.

The next day he was referred to the Royal Orthopaedic Hospital in Birmingham for a bone scan.

There was a chance that the tumour and diseased bone could be removed and replaced with a prosthetic bone, but the tumour was discovered to be very close to Chris’s knee and entwined with muscle, nerves and blood vessels.

“It was then I decided the best option would be to have my leg off above the knee.”

Chris does not regret that decision for one moment.

Road to Rio

He owns a prosthetic leg and although he can’t run with it yet, it is comfortable for walking short distances. But it is in a wheelchair, playing basketball alongside friends and team mates, where Chris has really found his comfort zone.

“It’s improved me a lot, confidence-wise. I got very shy during my treatment.”

Chris is now fiendishly busy and very focused on the next four years. He currently plays for Sheffield Steelers and will compete in the Euro Cup in Germany next year and in the Under-22 world championships in Turkey with Great Britain, if everything goes to plan.

Although his week is packed full of training sessions, gym sessions and matches, he does have a sales admin job – and a girlfriend “who I fit in when I can”.

He has now been clear of cancer for two-and-a-half years – but it is the next four that really matter to him.

“It’s going to be very competitive. If I put all my effort and strength into it, I think I can get to Rio.

“But it’s going to be a long, hard four years.”

Who would bet against him getting there?

The Disability Blogger’s Prayer

December 25, 2012

This was written in fun and comes with Season’s Greetings from Same Difference!

The Disability Blogger’s Prayer

Dear readers, who are on the Internet,
Welcome to my blog.
I’m glad you’ve come,
I hope you’ll find something useful on this blog,
As you do in the newspapers.
Give me this day my daily hits,
And forgive any unintentional disablism,
As I forgive those who are disablist against me.
Please lead me not into low hit counts,
But deliver me many comments.
For this blog is yours to comment on, this Christmas and next,
And for ever and ever
Amen.

A Christmas Carol: The Ghost Of Christmas Yet To Come

December 24, 2012

Disability Now carries a piece that shows us what Scrooge might say about Tiny Tim today to the Ghost of Christmas Yet To Come.

The Most Evil Despicable Vile Person Of 2012

December 24, 2012

According to the Artist Taxi Driver. And I have to say, I agree!

Action Alert: Daniel Roque Hall

December 23, 2012

From an email I have just received:

ACTION ALERT: DANIEL ROQUE HALL

Wormwood Scrubs are planning to take Daniel back to prison on 2 January!       But he nearly died after just seven weeks there and has only partially recovered after four months of specialist care in hospital.

1351198132-dont-sentence-daniel-roque-hall-to-death-protest-in-london_1548793.jpg
John McDonnell MP, Sue Millman (Ataxia UK), Anne Hall, Bruce Kent and Claire Glasman (WinVisible) present petition to Ministry of Justice on 25 October 2012.

  Daniel’s mother Anne Hall is leading the campaign to save his life:

“UCLH saved my son’s life and I will be eternally grateful to all the wonderful staff who have provided dedicated and expert care to Daniel, day and night.  They could not have done more.  No UK prison can meet his complex care needs. To send him back would amount to a death sentence – he has already been punished far in excess of the three years he was given.”

What you can do:

Write now to Professor Tony Mundy at UCLH tony.mundy@uclh.nhs.uk and Sir Robert Naylor at UCLH NHS Foundation Trust Robert.naylor@uclh.nhs.uk to urge them not to discharge Daniel back to prison for the sake of his health and his life.

Write to Prison Minister Jeremy Wright  MP askinghim to let Daniel serve his sentence at home: abigail.culank@justice.gsi.gov.uk

Ask your MP to sign EDM 631 – see below. 18 have signed so far; we need more.

Sign the petition– Justice for Daniel Roque Hall.

MENSA Member And BBC Apologise For Live ‘Carrot’ Comments

December 22, 2012

The BBC and Mensa have both apologised after a leading member of the society called anyone with an IQ below 60 a “carrot” live on air.

Peter Baimbridge, a Mensa member, made the comments during an interview with BBC Breakfast.

He was being asked about the effectiveness of IQ tests at judging intelligence.

“So most IQ tests will have Mr and Mrs Average scoring 100 and the higher you get, the brighter you are. And if your IQ is somewhere around 60 then you are probably a carrot,” Mr Baimbridge said.

A number of viewers contacted the programme to voice concerns over the remarks, which they said insulted people with learning difficulties.

The hosts, Louise Minchin and Charlie Stayt apologised at the end of the programme and read out an apology from Mr Baimbridge.

The presenters also read out some of the complaints on air. British Mensa apologised for the comment, saying it was: “totally inappropriate and does not represent the society’s official position or view”.

One viewer, an employee of learning disability charity Mencap, said she was “shocked” and “disgusted” by the comments.

Ciara Evans, who has a learning disability, urged Mr Baimbridge to “engage his brain before his mouth”.

One of the complaints read out on air came from a Dr Sullivan who said: “As a clinical psychologist who has worked with many people who have an IQ below 60, I find these comments to be offensive and completely incorrect. Such comments perpetuate the stigma around an individual with learning difficulties.”

A BBC spokeswoman said: “A number of viewers contacted BBC Breakfast this morning, who were offended by comments made by a contributor during a live interview on the programme.

“Following the initial item, we broadcast a selection of the complaints on-air a short time later in the programme, and both presenters apologised at the end of the programme and read out a personal apology from the contributor.

“Clearly we do not condone the comments that were made in any way and sincerely apologise for the offence caused.”

John Stevenage, Mensa chief executive said: “We would like to apologise for any offence caused by Peter Baimbridge’s remark. It most certainly does not reflect the views of the society or of our members.

“The society looks at levels of IQ. However, it fully recognises that it is not what level of mental ability someone has but what they do with it that is the real achievement in life.

“Peter himself very much regrets the comment and would like to offer sincere apologies to those people offended by the remark.”

According to Mencap, 1.5 million people in the UK have a learning disability.

Ms Evans, a campaigns assistant with the charity, said: “As a person with a learning disability, I am shocked that someone has described people like me as carrots.

“We can achieve a lot in life: I live independently, have a full-time job and I’m getting married next year.”

A number of parents and carers called and emailed the charity’s helpline saying they found Mr Baimbridge’s comment “deeply offensive”.

Ms Evans said: “I am disgusted that he made this comment and on behalf of all the people who have tweeted, rung and emailed Mencap to say how upset they are, I think Mensa should apologise and he should engage his brain before his mouth. It seems that having a high IQ doesn’t make you a sensitive or caring human being.”

Mensa was founded in England in 1946 by Roland Berrill, a barrister, and Lance Ware, a scientist and lawyer, who wanted to form a society for people with a high IQ.

Josh Wills’ Father Phillip Campaigns For Speciallist Hospital Unit Closer To Home #Joshuasjourney

December 21, 2012

Eddie Kidd’s Wife Accused Of Assault On Him

December 21, 2012

The estranged wife of paralysed motorbike stunt rider Eddie Kidd has been charged with assaulting him, police said.

Samantha Kidd, 44, is due to appear in court next month accused of assaulting Mr Kidd, 53, six times in four months.

There have been reports that the couple’s five-year marriage was in trouble after Kidd left the marital home in Seaford, East Sussex.

In a statement, Sussex Police said: “After a prompt and thorough investigation into allegations of domestic abuse made on 11 December, a woman has been charged with six offences.

“44-year-old Samantha Kidd, unemployed of High Street, Seaford, was charged with six counts of assault by beating between July and October this year.

“She has been bailed with stringent conditions not to contact the male victim, who was known to her, or to visit the area where he lives.”

Kidd will appear at Brighton Magistrates’ Court on January 9.

Mr Kidd was left paralysed and brain damaged in a motorbike accident 16 years ago, but last year he completed the London Marathon in 50 days.

More Magic Physiotherapy- For Hemiplegia

December 21, 2012

Ten children in cloaks and hats are tying knots in rope, seemingly at the flick of a wrist.

They are taking part in a series of pilot experiments conjured up by magicians, therapists and researchers at Guy’s Hospital London.

All the children have hemiplegia – a weakening or paralysis of one side of their body.

And they are hoping to pick up tricks from magicians of the world renowned Magic Circle to help refine the movement of their hands.

The Breathe Magic camp involves 60 hours of intensive training over ten days.

Lara Bradley is one of the trainee magicians. She is 11 and about to start secondary school.

She is keen to be able to pick up healthy snacks from the top shelves at the shop on her way home – something she had difficulty doing independently before camp started.

Red ball trick

But now she finds it much easier to reach up and grip even heavy objects and put them in her shopping basket.

The magic involved was a red ball trick which she demonstrates with the flourish of an accomplished magician.

She plucks a ball seemingly out of thin air, and then rolling it around in her palm it appears to multiply.

Practising this by turning the ball around in her hand over and over again, has helped her build up strength in her hand and made it easier to grip things, she says.

And the stretching movements involved in a rope trick have helped her use her arm to get things from high shelves.

Jack, aged 8, is now able to pick up his friend’s bike.

He said: “One of the things that magic camp helped me with was my grasp…. If I hold a really big ball like a football I can hold it fantastically…. like a guy who has a a normal hand.”

‘Using both hands’

Breathe Magic Camps are put together by Breathe Arts Health Research and Guy’s and St Thomas’ Charity, designed in collaboration with Magic Circle magicians, therapists, clinicians and researchers.

Working together, magicians and occupational therapists came up with specially adapted tricks which incorporate within them the rehabilitation exercises therapists often ask children with hemiplegia to do.

“Breathe Magic camp is about learning to use two hands, because a lot of the things we do in everyday life need two hands.

“An example is using a knife and fork – it may be quite acceptable to ask someone to help you with that as a child with hemiplegia.

“But if you are a little bit older and on your first date, you are not going to want to ask your date to cut up your food for you,” says Amarlie Moore, occupational therapist at the Evelina Children’s Hospital, London.

Many children are born with hemiplegia, so for children who are 11 years old repeating the same exercises for years over and over again can become a little boring, she says.

Jack’s dad, Will Cardwell, agrees. “As a parent you can get your children to do exercises… but it is boring and it is very difficult for them to stay motivated over a prolonged time.

“Magic camp is just fantastic because it is fun to do.”

Dr Dido Green, reader in rehabilitation at Oxford Brookes University is looking at the evidence behind the project.

She would like to see if the 60 hours of training at the camp lead the children to move their hands with better synchrony.

In this pilot study she is looking at the speed at which information from the nerves gets to the muscles in the hands then combining this with data on the timing of the movement of both hands, by using brain imaging techniques and movement studies.

‘Impressing people’

Data collected before the first camps in 2010 show that before magic therapy, the children were only able to perform 25% of daily activities, such as opening a bottle, using their two hands.

“At the end of the camp they were able to perform 93% of activities independently, using two hands,” says Dr Green, who used a standard list of everyday tasks in her measurements.

The team are now collating the data they have collected on 43 children and will be studying the outcomes in detail.

Karin Bishop from the College of Occupational Therapists says: “Using magic as occupational therapy has real potential to benefit children with a range of motor conditions such as cerebral palsy.

“It is the perfect medium to improve children’s motor skills, functional ability and confidence. It is important that there will be clear measurable outcomes from this work and we look forward to seeing it progress.”

For Lara, the camp also allowed her to meet other people with hemiplegia.

And when her training finished she had some unexpected tricks up her sleeve.

“The thing I enjoyed most after magic camp was going back to school and impressing people. Before I found it difficult. I would show them something I could do and they would say ‘oh I can already do that’.

“Now I show them a magic trick and they are like, ‘wow, how did you do that?!’ And I’ve never felt that kind of pride..”

Sierra Leone’s First Disabled Police Officers

December 21, 2012

After a campaign of terror in the 1990s, in which civilians had their limbs cut off by rebels, Sierra Leone has thousands of disabled people. They are generally marginalised by the rest of society but now, the police force has recruited its first ever disabled officers, as Martin Davies reports from the capital, Freetown.

Four men have been taken into the force – a decision welcomed by rights activists who have longed campaigned for an end to the discrimination that disabled people face in Sierra Leone.

About two-thirds of disabled people are unemployed, forcing many of them to turn to begging on the streets, the activist says.

So, it is not surprising to find one of the recruits, PC Shecka Conteh, beaming as he peaks out from his over-sized brand new officers hat alongside fellow recruit PC Paul Diabate.

Both men contracted polio when they were children. It left them with weakened legs causing them to limp.

PC Conteh remembers the day he read a list of candidates recruited into the force.

“I saw my name and address and I was a very happy man. The lecturers [at a police college where he trained] and my colleagues have welcomed me with open arms,” he says.

For now, the new officers will not be seen on the beat. They work at the Police Communications Centre in the capital, Freetown, where they are deployed on the force’s new telephone system, taking calls from the public, as well as undertaking other desk jobs.

Cyber crime

The recruits were helped in attaining their jobs by organisations working with disabled people.

One of these groups is the Leonard Cheshire Foundation (LCF).

In a survey carried out mainly in urban areas in 2009, LCF found that 70% of disabled people had no access to income and a similar number were without jobs.

LCF regional programme manager Osman Bah said he was delighted the organisation’s prodigies were now in the police force.

“These disabled officers are the first in the history of Sierra Leone and perhaps the first in West Africa,” he said.

The officers joined the police after qualifying with professional IT and computing skills. 

The scheme was created by Abs Dumbuya, who contracted polio as a young man in Sierra Leone, left to study in the UK and then returned to create opportunities for disabled young people, through his organisation, the Dorothy Springer Trust.

“As IT specialists they [the recruits] are serving a purpose in the force,” he says.

“We are telling Sierra Leonean society that it doesn’t matter if you are disabled or not. If you have got the qualifications and the ability and the competency, then disability shouldn’t matter.”

It was an argument that Mr Dumbuya used on Sierra Leone’s police chief, Inspector-General Francis Aliou Munu.

Attracting attention

The force has more than 11,000 policemen and its senior officers acknowledge that not all of them need to be on the streets, especially when a good deal of modern crime concerns computer-based fraud and security.

Inspector-General Munu says disabled policemen will help the force win public trust.

“When you see a disabled officer you do not have a perception of any immediate threat. The police should be looked at as not only using force but using persuasive and other non-confrontational methods,” he said.

The recruitment of disabled officers also owes something to the fact that a Disability Act was passed in Sierra Leone last year.

Police acknowledge that the law helps create a climate in which disability rights are considered more favourably.

“Since the passage of the Disability Act, we wanted to put into practice what the Act seeks to achieve on behalf of disabled people,” Inspector-General Munu says.

Since so many disabled people are on the streets – begging and living in squalor, we wanted to make a U-turn for them and give them a purpose.”

The Act also calls for the creation of a national commission on disability.

It is still to come into effect and is designed to collect information about discrimination and abuse faced by disabled people, and to hold the perpetrators to account. 

When it was put to him that recruiting disabled officers could be construed as a public relations exercise, Inspector-General Manu said that his was a modernising force and that, along with every member of staff, the disabled officers’ performance would be managed to ensure they were assisting the force in achieving its aims.

The disabled officers might not be on the beat but when out and about they are attracting attention and challenging perceptions.

PC Conteh says he was stopped on the street by the minister of defence who wanted to engage him in conversation.

PC Diabate also finds that his presence as a disabled man in a uniform, with a walking stick, is provoking interest.

“When I am in my uniform on the streets, people – disabled and able-bodied people – ask me questions and I explain how, as a disabled person, I have managed.”

IDS Agrees With Alec Shelbrooke MP- And Reveals Government’s Compulsory Jobseeking Site

December 20, 2012

Jobseekers in England, Scotland and Wales will have to use a new government website that can automatically tell jobcentres about their applications – or risk losing their benefit payments.

The Welfare Secretary Iain Duncan Smith told political correspondent Ross Hawkins on Radio 4’s The World at One programme, that the new site can automatically send people vacancies – and demand explanations from them if they do not apply.

Iain Duncan Smith explained that if a job adviser thinks the reasons that you have given for not applying for a job are “specious” then “he may call you in and say I really think that you ought to be applying for these jobs.”

When asked about issuing electronic cards that would restrict claimants in spending their benefits payments, he said that “giving people cash sometimes can actually lead to further problems”.

He stressed that the scheme would only affect specific claimants.

The #Scroungercard Cartoon

December 20, 2012

This response to Alec Shelbrooke MP made me laugh, so I thought I’d share it here. A picture speaks a thousand words!

Thanks to Dr Eoin Clarke for the info and @DocHackenbush for the design.

scroungercard

England Thalidomiders Get £80M Government Grant

December 20, 2012

An £80 million grant has been put aside for over 300 Thalidomide victims in England, the government has announced.

The money will help meet their health needs over the next 10 years as they approach old age, Health Minster Norman Lamb said.

The drug was used by expectant mothers to combat morning sickness between 1958 and 1961 but it led to many babies being born with physical disabilities.

The Thalidomide Trust welcomed the announcement.

The £80m sum will be paid to the Thalidomide Trust through an annual grant.

This means that England’s 325 Thalidomide survivors, many of who are unable to work, will receive financial assistance with adapting their homes and cars as they grow older and their health is expected to worsen. The average age of the survivors is 50.

The survivors had previously received some compensation from the company – Distillers – that distributed the drug.

But the government admitted a history of being at fault over the drug in 2010, and agreed to a three-year pilot project which distributed more than £25m in grants.

Much of this money has been spent by survivors on adapting their houses, buying wheelchairs and funding personal care.

The government says this new funding recognises the increasing complex health needs of Thalidomide survivors more than 50 years after they were born.

Health minister Norman Lamb said he had “deep sympathy” for all those affected by the drug.

“This deal represents our clear acknowledgment that ‘thalidomiders’ should be supported and helped to live as independent lives as possible, and we hope that this grant will aid that cause and provide an element of long term financial security.”

This funding affects Thalidomide survivors living in England only.

The Scottish Government has pledged £14.2m over the next ten years to help the 58 Thalidomide survivors in Scotland as they grow older.

The Thalidomide Trust will report back annually to the Department of Health about how the money is being distributed and controlled.

Want To Get £130 Off Your Winter Electricity Bill?

December 20, 2012

Bus And Tube Access To Improve

December 20, 2012

Up to £18m is to be invested in step-free access at 70% of London’s bus stops by the spring of 2013, it is claimed.

Transport for London (TfL) said within four years 95% of stops will have such access, while another £50m will be spent on training drivers and staff.

Another 28 stations on the Tube and London Overground will become step-free over the next decade.

Disability charities said the upgrades will make “a real difference”.

More than 1.3 million journeys in London are made by disabled people every day.

In addition to increasing the number of accessible stations and bus stops, TfL will also keep the manual boarding ramps at 16 stations – to bridge the gap between platforms and trains.

TfL said it is also working towards creating a combined Tube and mainline map showing step-free access stations in London and will review its signage across the network.

‘Travel independently’

By 2014 all 53 trains on the Hammersmith and City Line will be made accessible and by 2016 the District line will see 80 new trains with dedicated wheelchair space, low floors and wider doors.

London Mayor Boris Johnson, said the city had “the most accessible transport network in the country”.

“But it’s not perfect and we must go further,” he said.

More needed to be done to make “thousands more bus stops in London accessible” while “lobbying for more money from the government to help us deliver a network where every Londoner feels that the transport network is their network”, said the Mayor.

Fazilet Hadi, of the Royal National Institute of Blind People, said: “Initiatives such as practical disability awareness training for staff, audio and visual announcements on buses, passenger assistance on the tube and travel mentoring, are a necessity for disabled people to travel independently.”

Faryal Velmi, director of Transport for All, said “involving disabled and older people in the training of transport staff and investment to make 95% of bus stops accessible will make a real difference to our ability to get out and about with freedom and independence”.

A Special Parent’s Open Letter To Geoffrey Clarke

December 20, 2012

Elaine Kennedy, 42, Fights PCT’s Attempt To Put Her In Nursing Home Because Of MS

December 20, 2012

Readers, I’ve heard lots of terrible stories of the cuts ‘getting personal’ over the last few years. This one is one of the worst. I am a disabled young adult and if I was in this situation, I would have exactly the same feelings that Mrs Kennedy has.

I have known for years that councils and PCTs rarely think of the social needs of disabled people in their care. I wish, however, that they could realise that quite apart from her very natural feelings of not wanting to leave her daughter, Mrs Kennedy would probably be the youngest person at any nursing home she went to, and would have no one to properly socialise with.

She deserves to stay in her own home, with the daughter she clearly loves. She is a person like anyone else who does not deserve to be taken to a place where she would be lonely and, quite frankly, bored, simply to save money.

A 42-year-old MS sufferer has said she is shocked at attempts by her health trust to put her into a nursing home.

Elaine Kennedy needs a significant amount of care in her home, but the agency that provides it says they can no longer do it.

Until last week the Bluebird Care agency – based in Coleraine – supplied carers four times a day.

When Elaine tried to get the time they spent with her increased they cancelled altogether.

Elaine said the Northern Health Trust – which has overall responsibility for her care – then suggested she go into a nursing home.

“I’m just too young to go into a care home. My illness doesn’t dictate that I’m at that stage – and even if it’s just temporary we’re so close to Christmas and I have my children at home. How can I leave them? I just don’t want to be in a nursing facility,” she said.

Elaine Kennedy was diagnosed with MS in 2004 and unfortunately her condition has deteriorated leaving her in a wheelchair.

Her 18-year-old daughter lives with her in their rented bungalow – and any move to a nursing home would also leave her daughter homeless.

“They’re saying they have no care. The interim care for the past few days was a nursing facility which can’t continue,” she said.

“They are looking to provide a tea time call for tonight but, I may have to go to bed when they call because they don’t know if they have anyone on Wednesday or from tomorrow morning onwards – they can’t tell me that yet.

“They’re continuing to look but they’ve been looking for three weeks.

“I feel stranded and stressed, the toll it’s taking.”

The BBC contacted the Bluebird Agency but it said it had no comment to make.

Care package

We also asked the Northern Health Trust for a statement.

“Mrs Kennedy has an extensive and wide ranging package of care in place. A range of care agencies have provided care to Mrs Kennedy over the last eight years unfortunately some of these arrangements have broken down and the care providers have withdrawn,” the statement said.

“Most recently this has affected the final evening call. We understand Mrs Kennedy does not consider the overall package acceptable. We will continue to work with Mrs Kennedy to provide a necessary level of support and care.”

Mrs Kennedy’s mother Helen Sloan said the stress is putting enormous pressure on the rest of the family – in particular 18-year-old Lucy.

“She gets a lot of it now, especially since her brother is at university. She’s at college and she’s trying to hold down a part-time job, but I find that very often Lucy will have to go to bed in tears. She talks to me about things and she asks ‘what’s going to happen to Mummy’ and that’s just unfair.”

Elaine is angry that it has come this.

“The health minister is proposing transforming care for people in their own homes, to allow people to remain at home for longer. And for people with long-term illnesses – not to have to go into care homes,” she said.

“But the care is not available on the ground to support that. And yet the trust mission statement is to provide the quality of care for everyone that they would expect for their own families and I feel very let down that I’m not receiving that care.”

London’s Olympic Park To Host IPC Athletics Event In 2017

December 19, 2012

London has been named as the host city for the 2017 IPC Athletics World Championships, the Mayor of London Boris Johnson has announced.

The Championships, organised by the International Paralympic Committee, will be held at the Olympic Stadium in July, one month before the same venue stages the IAAF World Athletics Championships.

“By bringing the IPC Championships to our wonderful Queen Elizabeth Olympic Park just a month before the World Championships, the capital is poised to recreate the magic of London 2012,” Johnson said.

It will be the first time one city has hosted the two Championships side-by-side after it was argued during the bidding process that London 2012 justifies the return of international Paralympic competition to the capital.

“This year London just staged the best spectacle of sport the world has seen,” said Johnson, who is chairman of the London Legacy Development Corporation.

“London’s Paralympic Games were the first ever to sell out and these Championships provide a perfect chance to build on that enthusiasm for disabled sport, bringing back the world’s greatest Paralympians to the Olympic Stadium, and at the same time providing a major economic boost to the capital.”

IPC President Sir Philip Craven hailed London 2012 as the “best Games” in history with 1,134 athletes taking part in track and field events, setting 102 world and 139 Paralympic records. The athletics at the Paralympics drew sold-out crowds of 80,000 for every session and attracted more than a billion cumulated television viewers worldwide.

“The UK’s capital city has already demonstrated its ability to provide an excellent experience for athletes and spectators alike,” said Ed Warner, IPC Athletics Sport Technical Committee Chairperson and Chair of UK Athletics.

“London 2017 will bring record crowds for an IPC World Championships, creating an ideal backdrop for athletes to break records, further raising the profile of sport for people with an impairment in the process.”

The IPC Athletics World Championships are the largest single-sport competition for athletes with an impairment in the world and take place on a bi-annual basis.

Girls Aloud Design Their Own Pudsey Bears

December 19, 2012

Readers, I’ve just seen Girls Aloud’s personal collection of Pudsey Bears, called POP Pudsey Bears.

pop pudsey bears

 

Aren’t they beautiful? Much nicer than the original I say!

And since Pudsey has an eye patch (and no fingers and toes) I think that makes him disabled. 

So, I think one of these POP Pudsey’s would make the perfect Christmas present for the young child in your life who needs to learn about disability!

Independent Living Fund Closure Confirmed

December 19, 2012

A fund to help disabled people live independently is to close, the Government has confirmed.

Work and Pensions Minister Esther McVey said the Independent Living Fund was “unsustainable”, telling MPs she understood the “anxiety” of disabled people who received direct payments from the scheme.

In a written ministerial statement, she said the Government had received about 2,000 responses to its consultation on the future of the fund but had decided to close it nevertheless.

The Government will continue to honour current payments until 2015. From then, responsibility for funding will pass to local authorities, she said.

Ms McVey told MPs: “We have considered all views carefully and, while I do understand user concerns, I do not think the current situation is sustainable.”

Peter Pan Panto- In Audio Description

December 19, 2012

A trip to see a pantomime is a regular festive treat for many families, especially when it features some famous faces.

So it is not surprising that theatres are increasingly keen to ensure that everyone can enjoy the experience, including those with visual or hearing impairments.

Russell Grant is currently starring in Aylesbury Waterside Theatre‘s production of Peter Pan. In addition to the regular shows, the theatre is also running special performances for children with autism, signed performances for deaf people and audio description and touch tours for visually impaired members of the audience.

BBC News went behind the scenes to find out how audio description and touch tours work.

Benefit Claimants Should Be Banned From Buying Alcohol Or Cigarrettes Or Watching Sky TV Says Tory MP

December 18, 2012

Benefits claimants should be banned from spending their state handouts on cigarettes and booze, a Tory MP has controversially claimed.

Alec Shelbrooke told the Commons those receiving payments should be given a welfare card which would work like a chip and pin debit card. But crucially it would not work if claimants tried to use it buy alcohol and cigarettes, he said.

Mr Shelbrooke, the MP for Elmet and Rothwell, said the plan would end the “damaging perception” that those who claimed benefits were scroungers, sponging off the state.

Proposing his Welfare Cash Card Bill in the Commons, Mr Shelbrooke said the changes would “encourage responsible spending” among claimants, adding it would ensure taxpayers’ money was spent “wisely” and “for the purpose for which it was intended”.

He said: “This would alter the spending habits of a minority, who prefer to take advantage of the system, getting something for nothing.

“The something for nothing culture encouraged by the previous Labour government created a two-tier benefits system where striving low-paid workers have been penalised for the idleness of the shirkers.

“This Bill works alongside the Government’s welfare reforms to support those hard-working families who strive to be self-supporting by ending the something-for-nothing stigma of the welfare system.

“Introducing a welfare cash card on which benefits will be paid, claimants will only be able to make priority payments such as food, clothing, energy, travel and housing. The purchase of luxury goods such as cigarettes, alcohol, Sky television and gambling will be prohibited.

“When hard-working families up and down the country are forced to cut back on such non-essential, desirable, or neg items as I have called them, it is right that taxpayer benefits be only used for essential purposes.”

These political types do talk some rubbish, don’t they readers? I’d be lost without Sky TV! How would he feel if someone asked him to live the way he is proposing we should?

I’d like to remind him that some benefit claimants claim through absolutely no fault of their own. Benefit claimants are human, too, and every human being deserves some pleasure in their life. If that pleasure comes from Sky TV, then so be it.

When I told my mum about this moment of madness, she reminded me that carers are also benefit claimants. Carers work very hard 24/7. As I’ve said before, I think their benefit is too low, if anything. Why should they not use Carer’s Allowance for anything they wish?