Military Amputees Will Get ‘Bionic Legs’
Injured military personnel who have legs amputated are to be given the most up-to-date prosthetic limbs after the government set aside £6.5m for them.
The latest micro-processor limbs, known as “bionic legs”, will be available to service personnel who have been wounded in Iraq or Afghanistan.
The move is expected to benefit about 160 members of the armed forces.
Defence Secretary Philip Hammond said it was a top priority to give troops the best possible care and support.
Chancellor George Osborne, who is making the money available from the Treasury’s Special Reserve, said: “Our troops are heroes who have and continue to give absolutely everything for their country and it is only right that we do everything possible to help them, especially when they suffer injury.
“I am delighted, therefore, that we have been able to make funding available for this cutting edge prosthetic technology, which will go a long way to improving the lives of people who have done so much for the UK.”
Experts say the “bionic legs” – the same as those used by Paralympics discus thrower Derek Derenalagi, a former soldier – will significantly improve the quality of life for rehabilitation amputees.
The new technology provides better stability and greater mobility, as well as improvements in the ability to step over obstacles, negotiate stairs and walk backwards safely.
The artificial legs are said to improve dramatically the quality of life and the speed of rehabilitation for troops and veterans.
The limbs will be fitted where clinically appropriate at the Headley Court military rehabilitation centre in Surrey.
Mr Hammond said: “There is no greater example of this than Headley Court, which provides world class medical care and rehabilitation for personnel that have been injured while serving their country.
“Last year we spent £22m improving the facilities at Headley Court and I am delighted to announce that we will now spend £6.5m to ensure UK servicemen and veterans injured in Afghanistan or Iraq will have the opportunity to upgrade to the most technologically advanced prosthetics currently available.”
Paralympic rower Captain Nick Beighton, who lost both legs in an explosion during a foot patrol in Afghanistan in 2009, welcomed the micro processor limbs as a “big step up in technology”.
“To have the opportunity to try it and to use it and get the latest technology is fabulous for us because it just gives us that freedom to get out and do more things and have greater functionality and more independence,” said the 31-year-old London 2012 competitor.
Surgeon General Air Marshal Paul Evans said: “The next generation of micro processor knee is a fantastic prosthetic development and now seen to have proven benefits for certain amputees. It will improve the quality of life and rehabilitation for our patients, where it is clinically suitable.
“Not only does it provide better stability and improved mobility but will also help reduce back pain and aid rehabilitation generally.”
Jessica Cox Revisited
I first covered her five years ago. She’s still flying, but now she’s also a motivational speaker.
Jessica Cox was born without arms as a result of a rare birth defect.
That has not stopped her from living her life to the fullest. In fact, Ms Cox has experienced and achieved more than most people do in a lifetime.
She can drive a car, fly a plane and play piano – all with her feet.
In 2012 she married Patrick, her former Taekwondo instructor (she has two black belts). They live in Tucson in the US state of Arizona.
Ms Cox, 30, travels around the world as a motivational speaker, using her own life as an example of what one can achieve if one wants it enough. This month she visits Ethiopia to help promote disability rights.
When Assisted Dying Is Legal
Assisted dying is controversial the world over but there are a handful of countries which allow it. Liz Carr visits all five in a new documentary series for radio.
All countries do it differently depending on legal history. In Europe four countries have legalised the medical practice of assisted dying; the country that we perhaps most associate it with in recent years is Switzerland.
Here, one of the organisations which “assists” is called Exit. Carr visits their offices and is allowed inside the room where people can take the medicine that will kill them.
She paints a picture of the space in words, explaining it’s smaller than she imagined: “It’s a cold room next to the kitchen and someone had died there the previous night. There was still an empty coffee cup on the bedside table and the dirty laundry on a chair.”
For the Swiss, it’s likely to be a volunteer who helps them to die rather than a medic. That’s because it’s an old law dating back to 1873 which allows someone to help a suicide if the assistant didn’t stand to gain from the death. It was updated in the 1970s to include medical assistance to those who are ill or dying, thanks to lobbying from Exit.
Allowing someone to die, or assisting them to do so, seems to go against what we’ve always been taught socially, ethically and via religion. But ideas about dignity and an end to suffering through a comfortable death have some popular appeal. Many believe that assisting someone to die if they are unable to do it for themselves could make us more human, not less.
The disabled Silent Witness actress and broadcaster Liz Carr admits on the programmes that she doesn’t agree with the idea and sides with disability campaigners who believe assisted death could be a “slippery slope” to easy euthanasia and a devaluing of life. She fears especially for disabled and vulnerable people but is taking this journey to try and understand the full picture.
In Switzerland, a volunteer for the Exit organisation, Giancarlo Zucco, explains his side of the story to Carr. He says: “I have a feeling of solidarity for people who suffer and also for animals. I am convinced that every one of us has the right to decide about his life and about his death – how and when he wants, or she wants, to die.”
Over 12 years, Zucco has assisted a lot of people towards death but is not sure of the exact figure. He says: “I don’t know because I never counted it. But out of a feeling I can say over 200, something like that.”
Zucco is keen to tell Carr that care is taken in the process and that only a third of the applications they receive, end in help from his organisation.
The five countries that Liz Carr visits in this two-part documentary, are: Switzerland, Belgium, Luxembourg, the Netherlands, and two states in the US (Oregon and Washington state). Each has a different story of how assisted dying happens, and why.
In part one, Carr also travels to Belgium where she meets a doctor who admits to performing euthanasia before it was legal; and in Luxembourg, she finds out
why the law on assisted suicide nearly caused a constitutional crisis.
• When Assisted Death is Legal begins on the BBC World Service on Tuesday 19 Feb at the following times: 09:05, 13:05, 16:05, and 20:05 (GMT). Follow the link for other opportunities to listen. Part two airs the next day.
Andrew Solomon On Parents Who Are Different To Their Children
How do gay children of straight parents build their gay identity? It’s not possible for it to be passed down to them, like ethnicity, and Andrew Solomon knows from personal experience that such ‘horizontal identities’ often instead come under attack from the older generation. In researching his book, Far from the Tree, he learned about the difficulties parents face when raising children who are different to them. He uses the example of deaf children and cochlear implants to illustrate how the line between what should be fixed and what shouldn’t is often far from clear.
Schools Accused Of Locking Autistic Children In ‘Punishment Rooms’
Investigations have been ordered into allegations that schools have been locking severely autistic children away in rooms as a way of dealing with their behaviour.
Children’s Minister Edward Timpson launched the investigation following a number of allegations of children being locked up in ‘punishment rooms’, for behaviour including being disruptive in class.
A teacher at a school in Newham, east London, has told of students who were locked in a room for being disruptive during lessons, as well as a ten-year-old girl who put her head and fist through a glass-panelled door after being locked away.
He said another child was placed in a tent in the room after jostling others in the playground, the Sunday Express has reported.
Mr Timpson has now said: ‘These allegations are deeply concerning. No child should be treated in this shocking way. I have asked officials to ensure that all appropriate investigations are taking place.
‘Our immediate concern is with the welfare of the children. Anyone who believes that children may be at risk should immediately contact the police and the local children’s social services department.’
According to the report, Newham Council has investigated the claims and denied the allegations. The report says Ofsted is investigating the alleged incidents.
In a separate case, Aeddan Parry, now 16, has spoken of how he was pushed into a small dark room with padded walls.
The teenager, who was diagnosed with mild autism and sent to a special school in Neyland, South Wales, at the age of 12, said he would get angry and lash out at people, sometimes for no reason.
He said: ‘I was left in there for a whole day once. They put food in for me through the door. They did it to most of the kids, it was something you had to get used to.’
CCTV footage of Aeddan being thrown into the room has prompted an apology from Pembrokeshire Council.
And in 2011 a family won a high court battle agaist charity Scope after their son repeatedly butted the room of a padded wall and tried to claw his way out after being put in the room several times a day. A judge ruled his human rights were breached by locking him away at Beech Tree School, Lancashire.
IDS Says ‘Shelf Stacking Is More Important Than Geology’
Dear IDS,
Sir, earlier this week, geology graduate Cait Reilly won a court case against your government because your government made her work at Poundland for free.
Sir, this morning on national television, you said shelf stacking is more important than geology.
Sir, many people physically can’t shelf stack. But they can work at desks. They can sing, which controls their physical disability at the same time as allowing them to earn from a talent. They can write books, which hopefully provide some support to people in a similar situation. They can perform hilarious stand-up comedy which provides laughter and entertainment, made even more hilarious by the fact they’re sitting down.
And, Sir, what about Paralympians? Eleanor Simmonds couldn’t reach a supermarket shelf to stack it, but she’s a swimming star. Sir, your best friend, our Prime Minister, presented her with a gold medal himself last year to prove it.
Sir, you have a point. Shelf stacking in a supermarket is a very important job. When you go to a supermarket, shelf stackers do answer your questions. But, Sir, when your children are walking around a museum on a school trip asking questions about the history of our planet, wouldn’t you want someone to be there to answer their questions, too? I would, if they were my children, Sir. And who will answer those questions, Sir? Cait Reilly.
Sir, every job is different. Every job is important, for different reasons, at different times. Have you ever heard the story of the animals at school, Sir? Maybe you should read it before you open your mouth on national television again.
Regards,
Samedifference1
The Harlem Shake: The Wheelchair Edition
I saw the Harlem Shake last night on The Last Leg for the first time and have been amusing myself this afternoon looking at different editions on Youtube.
Same Difference prides itself on finding the disability link in absolutely everything possible that the mainstream world is doing. So it will come as no surprise to regular readers that, for a bit of Saturday fun, I did a quick search and found you a wheelchair user doing the Harlem Shake:
If you know of any more disability-related Harlem Shake editions, please do share the links with us!
Helen Goodman MP To Live On £18 A Week For Food From Monday
Madam, thank you very much from a disabled person who is against the Bedroom Tax!
Make Britain’s Cash Machines More Accessible To The Visually Impaired!
I have just signed this petition. Please take a minute to do the same. It’s a very good cause.
- Target: Mr. Brian Robertson, HSBC; Ms. Ana Patricia Botin, Santander
- Sponsored by: Royal National Institute of Blind People – RNIB UK
Major banks in the UK have not enabled the “talking” facilities that have been offered by banks in the USA, Australia and India for years. RNIB launched the “Make Money Talk” campaign to rectify this situation.
Barclays recently became the first major UK bank to provide its blind and partially sighted customers with accessible talking ATMs. “It’s amazing and yet such an ordinary thing” was the verdict of many at the launch event in London.
But it’s now two years since campaigners started calling for action and it’s proving really tough to get some banks to commit. This is where you can help.
Show your support for blind and partially sighted people by telling each uncommitted bank that they need to enable talking facilities on their cash machines.
Thanks for your support!
Gail Briggs
Readers, if you’re in the UK, many of you will probably have already seen this somewhere. A writer and blogger called Gail Briggs who is deaf and on Jobseekers Allowance has written her story at her personal site.
Everyone should read it, so I’m sharing it here in the hope that it might reach someone it has not yet reached and they might, somehow, be able to help.
Readers, you all probably know by now that Oscar Pistorius has this morning been formally charged in court with the murder of Reeva Steenkamp, his girlfriend. His bail hearing has been postponed until Tuesday and he remains in custody at a police station.
BBC News has the latest on the story here.
Meanwhile, Independent Voices has published a very good article by a South African writer who describes the shock and anger that was felt yesterday throughout the nation at the fall of a national treasure.
I’m not South African, but I have to say, the piece took many of the thoughts out of my mind.
Disabled myself, I have been a fan of Oscar Pistorius since 2008, when I first became interested in Paralympic sport. Over the last five years, I have closely followed his fight to compete in the Olympics as well.
When he was cleared to compete in the Olympics at London 2012, I was thrilled for him.
To me, he hasn’t just been any celebrity. He has also been a disabled person who didn’t allow his disability to stop him living his dreams- firstly, to be a famous athlete, and secondly, to compete with able bodied athletes.
He has been a disabled person who has broken down barriers for disabled people worldwide in sport. Before he tried to compete in the Olympics, many dreamed of doing what he achieved, but few would have thought it would ever be possible. He proved them wrong- and disabled people everywhere thanked him for it.
He’s the Usain Bolt of Paralympic sport. When Channel 4 were talking about which Paralympians to look out for during London 2012, they listed eight or nine people from Team GB, and Oscar Pistorius.
The first time I saw a glimpse of his temper, during the Paralympics when he had the disagreement with Brazillian athlete Alan Oliviera over the length of his running blades, I smiled to myself and thanked Pistorius for showing the world that Paralympians, too, are passionate, professional sportspeople who play to win. I saw the incident as a sign that the Paralympics were finally coming of age as a serious event.
Yesterday, in the most tragic circumstances, I realised Pistorius has a dark side that goes much deeper than a flash of professional passion on the track. And I do feel let down- as a fan who admired him, but also as a disabled person who was proud of another disabled person’s amazing achievements.
Now, the brightest of modern Paralympic stars, who broke down the most difficult of barriers, is in police custody, charged with the most terrible of crimes. Whatever happens in the case, no one, anywhere, will ever look at him in the same way again.
Game Of Thrones Actor Peter Dinklage Signs Up For Next X-Men Movie
Game of Thrones actor Peter Dinklage has joined the cast of the latest X-Men movie Days of Future Past.
Director Bryan Singer tweeted: “Officially like to welcome PeterDinklage from GameOfThrones to XMEN DaysofFuturePast. Very very excited!”
Singer is returning to direct the next film, having previously stepped aside to co-write and produce.
Matthew Vaughan, who directed the last X-Men, is co-writing the new film.
Dinklage, who has a form of dwarfism, came to prominence in the 2003 independent film The Station Agent.
In 2012 he won a best supporting actor Golden Globe for his role as Tyrion Lannister in the HBO hit series Game of Thrones.
The X-Men franchise, developed from the Marvel comic, has spawned five films so far, including the 2009 Wolverine spin-off.
A follow-up, The Wolverine, is due out this summer. The film will follow Hugh Jackman’s character as he travels to Japan to train with a Samurai warrior.
X-Men: First Class, released in 2011, took the X-Men storyline back to when Professor X and Magneto were young men and the origin of the group of mutants known as the X-Men and the Brotherhood of the Mutants.
It starred James McAvoy and Michael Fassbender as the two characters who would later become Professor X and Magneto. Jennifer Lawrence, Kevin Bacon, Nicholas Hoult and January Jones also starred.
Sir Ian McKellen and Sir Patrick Stewart will return for Days of Future Past, which will time travel between different eras, more than 13 years after first taking on the roles of mutant adversaries.
The film is expected to be released in 2014.
A midwife who called a dementia patient “an animal” while working as a healthcare assistant at Stafford Hospital has been struck off.
The Nursing and Midwifery Council (NMC) found Bonka Kostova had also pulled the man, 73, out of a toilet cubicle by his pyjama top.
Ms Kostova did not attend the hearing where all charges against her were proven.
Two nurses intervened after seeing the incident in July 2010.
Pushed patient
Ms Kostova, who trained as a midwife in Bulgaria, was working the night shift as a healthcare assistant when the incident happened.
She was found to have pushed the man, named as patient A, into his wheelchair when he stood up and pushed him into a bathroom and onto a toilet.
The patient had been at Stafford Hospital for just over a month and was receiving treatment for kidney stones, the tribunal heard.
He was said to be aggressive in his speech or manner about 80% of the time and normally had a one-to-one carer, who was on a break at the time of the incident, leaving Ms Kostova in charge.
She was struck off the NMC register after all charges against were found proved “and as a result her fitness to practise was found to be impaired”, a spokeswoman for the council said.
Robert Courtney Harris, medical director of Mid Staffs Trust, said Ms Kostova was suspended following the incident and “never returned to work at our trust”.
As the incident happened in July 2010, it was after the period covered by last week’s Francis inquiry into Stafford Hospital.
Welfare Cash Card Bill Withdrawn!
Some good news I’ve just heard. A victory for common sense.
ATOS Assessments Can Continue At Luton Centre
Disability benefit tests can continue on the sixth floor of a Luton office despite concerns about accessibility, the government has ruled.
The assessment centre in Cresta House, Alma Street, is run by Atos Healthcare for the Department for Work and Pensions (DWP) and served by a lift.
However, there is no emergency exit other than the stairs.
The DWP said it complies with the Equality Act, as other plans can be made for those with limited mobility.
In November, the DWP said it was looking for an alternative building.
It has now decided an additional site is not required as “alternate arrangements can be made for those claimants who are identified as being unable to attend”.
In a letter to Bedfordshire South West MP Andrew Selous in February, the DWP said that when scheduling appointments, Atos tried to identify customers who should not go to centres without ground floor assessment rooms.
‘Reasonable adjustments’
Instead, a home visit would be arranged or they would be asked to travel to another centre and it was these “reasonable adjustments” that made the centre compliant with the 2010 Equality Act.
Mick Dillon from the Disability Resource Centre in Dunstable, which offered its building as an additional site free of charge, said the DWP “clearly do not understand the needs of disabled people”.
“There is just no human angle of understanding,” he said.
“Having to go through the [assessment] process is bad enough, having to go through it in your own home with strangers coming into your house, people don’t want that,” he said.
“The nearest other centres are Milton Keynes and Cambridge, and they are a good hour-long journey away – whether you drive or not.”
Met Police Lose ZH Appeal
Some good news. Readers, consider this campaign now put to archives. The case has had a happy ending of a sort.
Appeal judges have rejected a bid to overturn a damages award made to an autistic teenager restrained by police after jumping into a swimming pool.
Last year a judge said Metropolitan Police officers had falsely imprisoned and discriminated against the boy, and awarded him £28,250.
He was placed in handcuffs and leg restraints and put in a police van.
The Met appealed last month saying the ruling could affect operational effectiveness.
The Court of Appeal had been told it would lead to officers being advised to be “wary and defensive” when attending emergencies involving people with a disability or mental illness.
‘Upset child’
The case arose in 2008 after the boy, known in court as ZH, jumped full-clothed into Acton Baths, west London.
He was lifted out and put in handcuffs and leg restraints and held in the back of a police van before being handed over to carers.
He has severe autism and epilepsy and can react adversely if touched or approached by someone he does not know.
ZH won a High Court claim for trespass to the person, assault and battery and false imprisonment under the Disability Discrimination Act and the Human Rights Act, last March.
‘Wholly inappropriate’
He sued through his father, GH, who told the High Court his son had changed since the incident from a “loveable little kid into an upset child” who did not want to bathe, shower or go into water.
Sir Robert Nelson, sitting in London, awarded damages and said although the officers were genuinely doing what they thought best, matters escalated to the point where there was a “wholly inappropriate” restraint of ZH.
Anne Studd QC, representing the police, told the appeal court Sir Robert had failed to understand “the bigger policing picture” and had come to a “flawed and unworkable conclusion”.
The judge had failed to build in any operational discretion when officers genuinely believed they were in an emergency situation that required them to act at once, she argued.
ZH’s father said: “The thousands of pounds of public money being spent by the commissioner defending the indefensible would be much better spent ensuring his officers treat people with disabilities humanely.”
Oscar Pistorius Shoots Girlfriend Dead
This is very very sad news, readers. Reportedly, he thought his girlfriend was a burglar. Very very sadly, she has lost her life. I sense that he has also lost his career, and the reputation he worked so hard to build in both worlds of sport.
All in a split second, all because of a gun and what seems to be a very tragic accident.
South African Paralympic athlete Oscar Pistorius has been arrested over the fatal shooting of his girlfriend at his home in Pretoria, local media say.
Police said a 26-year-old man, who they have not named, was in custody and a case of murder was being investigated.
The precise circumstances surrounding the incident are unclear. Reports say he may have mistaken her for a burglar.
Pistorius, 26, is known as the “blade runner”, and was the first double amputee to run in the Olympics.
The incident is said to have taken place between 04:00 and 05:00 local time (02:00-03:00 GMT).
A police statement said that a 30-year-old woman was “fatally wounded” in the early hours of Thursday morning at a home in the Silverlakes complex in the Boschkop area of the capital.
The woman had been wounded in her head and upper body. Paramedics were at the house when police arrived, but she died at the scene. A 9mm pistol was recovered.
South Africa has among the highest rates of crime in the world and many residents keep weapons to protect themselves against intruders.
But the country also has a careful vetting process before awarding gun licenses, Erika Gibson of Beeld newspaper told the BBC.
Pistorius races wearing carbon fibre prosthetic blades after he was born without a fibula in both legs.
He reached the 400m semi-finals in the London 2012 Olympics. At the Paralympics he won silver in the T44 200m, gold in the 4×100 relay and gold in the T44 400m, setting a Paralympic record.
For years he dominated in his category at successive Paralympic Games.
The news that he may have killed his girlfriend will shock the country as Pistorius is regarded as one of South Africa’s national icons, reports the BBC’s Peter Biles from Capetown.
Chris P Bacon- The Pig In The Wheelchair
Just for fun, because he’s already gone viral and because the week ends tomorrow.
A FORMER charity volunteer has won a legal battle with a Government contracted disability assessor after they failed to provide him with letters he could read.
Controversial assessor Atos initially contacted Dan Glue, from Redland, demanding his Multiple Sclerosis was assessed with a view to getting him back into work.
But because of his condition, which affects how images are sent to his brain, 44-year-old Mr Glue found the print in the letters too small to read and requested a larger print size.
The “curt” response from Atos and their subsequent failure to provide Mr Glue with the adequate documents led to a lengthy legal battle where Mr Glue was finally awarded £1,000 as a form of an apology.
Mr Glue said the string of letters from Atos left him in fear of losing his Disability Living Allowance.
He told The Post: “They were sending me letters which I knew were trying to take me off Disability Living Allowance. They wanted to analyse me to see if they could make me work.
“So I phoned them up and told them I can’t see the letter and at first they said to me ‘well you can read the number’. They then told me I had to write to them.”
Mr Glue, who worked as a volunteer for Age UK before his MS set in in April 2009, said he requested again and again that the company resend letters so he could see them – a legal obligation under the Disability Discrimination Act.
“They never even assessed me but every time I contacted them they made me feel like I was going to lose out. They weren’t expecting I had a real disability,” Mr Glue said.
“They were trying their best to make it seem like I was going to pay in the long term,” he added.
Eventually, through a chance encounter, Mr Glue was put in touch with the Avon Law Centre, where discrimination lawyer Will Stone took up the case.
Mr Stone threatened to take Atos to court for damages over Mr Glue’s unfair treatment, but before a date was set the assessor agreed to pay out and avoid court costs.
Mr Stone criticised the reaction from Atos when Mr Glue asked for letters to be resent with larger print.
“The response he got was quite curt: ‘Well if you can read the phone number you can read the letter’,” said Mr Stone.
He added: “Atos, although they are a private company, they are carrying out a public duty and function and they have specific requirements to follow.
“What we were saying is they were failing to do that in quite an appalling way really.”
He added: “It’s a very worrying and stressful situation to be in when you think you are going to have your benefits taken away.”
MPs on the Public Accounts Committee last week criticised tests being used to see whether people claiming disability benefits are fit to work.
Atos was paid £112.4m to carry out 738,000 assessments in 2011 and 2012.
Atos chose not to comment on Mr Glue’s case.
Carers Set To Lose Benefits When PIP Comes In
Thousands of carers in England, Wales and Scotland are set to lose benefits when new disability-claim rules start.
The Department for Work and Pensions (DWP) says 5,000 carers currently eligible for a £58.45 a week allowance will no longer be when personal independence payments replace the disability living allowance this April.
It says the changes are necessary and 20,000 additional carers should gain.
Charity Carers UK says this is “cold comfort” to those who will miss out.
New system
More than a million people receive carer’s allowance. And for about 270,000 of them, this entitlement is dependent on the eligibility for the disability living allowance (DLA) of someone of working age for whom they care.
When DLA is replaced by the personal independence payment (PIP), there will be new rules and assessments to judge who can claim assistance to help them lead an independent life.
If fewer disabled people can claim PIP than are currently receiving DLA, this would have a knock-on effect for their carers.
The DWP says about 76,000 disabled people with carers will be reassessed for PIP.
It believes 25,000 of these people will no longer be entitled to DLA as a result, and their carer will also lose their allowance.
At the same time, another 20,000 carers will be newly awarded an allowance as a result of the PIP reassessment – meaning a net total of 5,000 carers who will miss out.
But Carers UK says this estimate is too low. It says about 10,000 carers – 5,000 carers currently eligible under DLA and 5,000 “future” carers who would also have qualified under the DLA system – stand to lose.
Chief executive Helena Herklots said those families affected by these changes faced a double loss.
“The government is now cutting financial support for carers by £31m – meaning that thousands of families now face the devastating double blow of disability and carers’ benefits.
“This comes on top of cuts to social care services, cuts to housing benefit support for carers who need a separate room to sleep in, forthcoming reductions in support with council tax and thousands of carers who will have their benefits capped – a perfect storm of cuts to families already struggling to care for loved ones
The DWP said that it was investing more than before in carer’s allowance – about £2bn.
A spokesman said: “We’ve also protected the link between carer’s allowance and PIP entitlements, which has been welcomed by charities.
“Furthermore, the universal credit will ensure that those carers on low incomes receive the support they need by allowing them to keep more of their own money as they move into work.
“It will also give carers more flexibility if they need carers breaks.”
Home Care ‘Shocking’ Says CQC
A quarter of home-care services provided to the elderly in England are failing to meet quality and safety standards, inspectors say.
More than 700,000 people above the age of 65 rely on home help for activities such as washing, dressing and eating.
But the Care Quality Commission found evidence of rushed appointments and botched assessments during its review of 250 services.
Campaigners said it was a sign of how much pressure the system was under.
On Monday, ministers announced plans for a £75,000 cap on the amount the elderly will have to pay for social care in England – only the poorest get it free.
The proposal aims to stop the elderly having to sell their homes to pay for care.
But the move will do nothing to get extra money into the system, something the sector believes is vital if the quality of services is going to be improved.
‘Significant impact’
Home help services are considered essential in keeping people out of more expensive care homes.
The numbers getting help is pretty evenly split between self-funders and those who get council-funded care.
This review looked at the support being provided to both – and found too many were struggling to maintain standards.
“Start Quote
There must be a zero tolerance attitude to poor, neglectful care”
Michelle Mitchell Age UK
A total of 26% failed on at least one standard.
One of the most common issues identified related to late, rushed or missed visits.
The regulator also highlighted assessments that had missed vital information, such as a diagnosis of diabetes, and care records that were incomplete, meaning problems such as pressure ulcers could be missed by carers.
Concerns were also raised about the way services were monitored and complaints handled.
The regulator said home care providers, many of which are private companies, needed to work closely with local authorities to remedy the problems.
It warned the problems identified could have a “significant impact” on the elderly, many of whom did not complain because of a fear of reprisals or loyalty to their carer.
The findings come after reports by both the consumer group Which? and the Equality and Human Rights Commission have criticised home care in the past 18 months.
Michelle Mitchell, of Age UK, said: “There must be a zero-tolerance attitude to poor, neglectful care.”
The UK Homecare Association said it was pleasing the majority were meeting all the standards but said the sector was “not complacent” about the minority that were not.
A spokesman said some of the problems related to councils squeezing the amount of time they were willing to fund for visits.
Esther Vergeer Retires From Wheelchair Tennis
Wheelchair tennis champion Esther Vergeer has retired after going over 10 years unbeaten.
The last time she lost was to Daniele di Toro in Sydney on 30 January 2003, winning the next 470 matches.
The 31-year-old Dutchwoman, who won her fourth consecutive Paralympic singles gold in London, tweeted on Tuesday she had “officially stopped tennis”.
Vergeer took the number one spot in her sport in 1999 and only lost it after missing January’s Australian Open.
Although possibly less well known than sportsmen with a fraction of her achievements Vergeer is described by Rafael Nadal as ‘amazing’ for her will and ability and lauded as showing, ‘true love and passion’ for her sport by Maria Sharapova on her website.
Earlier this month, she told BBC Sport: “If I’m going to continue playing, I’ll play because I want to be better than before. I enjoy tennis, and if one day I feel I am not enjoying it as much, I’ll retire and start doing other things.”
Vergeer won the first of her four first gold medals in Sydney in 2000 and her record of victories had been compared to the squash legend Jahangir Khan’s 555 consecutive wins between 1981 and 1986 – a target many thought she would try to emulate.
What they say about Vergeer
Richard Krajicek: “Maybe the most successful athlete of all time.”
Maria Sharapova: “She shows true love and passion.”
Rafael Nadal: “Amazing for her will and ability.”
She took a break from the sport last year to consider her future after the 6-0 6-3 victory over compatriot Aniek van Koot in the Paralympics final.
“This is an amazing life still so why quit while I’m still winning? But it’s not like I’m aiming for the 500 unbeaten record, 600 or whatever,” she said.
Vergeer was just a “little girl” when she started playing wheelchair tennis after losing the use of her legs aged eight following spinal surgery, and she has seen the sport gain greater attention during her career.
Last year she reflected: “It’s so amazing that I can spread the message to the world that if you have a disability there’s so much that you can still do, and a lot of people in the world still don’t know that.”
Always grounded during her success, Vergeer said: “Everybody expected me to win gold [in London], but I still had to be at the top of my game. A lot of people forget that.”
Vergeer has been tipped as a possible sports administrator for the Dutch Olympic Committee.
A Template Letter To Send To MPs About The Welfare Cash Card
Do you remember the Welfare Cash Card, readers?
The Social Welfare Union have published a template letter that you can send to your MP or Lord, asking them to vote against the Bill.
The Wish For A World Where Disabled People Are Valid Sexual Partners
Dispatches: Britain On Benefits
Monday 18 Feb, 8pm, Channel 4.
The Disability Living Allowance helps more than three million people lead useful lives. It pays for transport and carers, meaning that disabled people can work and lead independent lives.
But the benefit bill has to be cut, and the government plans to take more than half a million claimants off DLA. What will that mean for those who depend on it?
Talking to fellow Paralympians, disabled army veterans and disabled people in work, wheelchair basketball ace Ade Adepitan goes in search of answers, and asks if this hugely ambitious and expensive plan to reassess disabled people has been properly thought through.
Updated 13 Feb 6pm: This programme has been postponed in favour of one on the Horsemeat Scandal. I’ll update this post again as soon as I know the new date.
Stafford Hospital: Carer Called Dementia Patient An Animal
A Stafford Hospital carer pulled a dementia patient around by his pyjamas with his genitals exposed and said he was “like an animal”, a tribunal heard.
Bonka Kostova pushed the 73-year-old man into the bathroom and on to the toilet before shouting at him, the Nursing and Midwifery Council heard.
Her colleague said Ms Kostova shouted that she “hated” the patient.
A report into failings at the hospital found “appalling and unnecessary suffering” of hundreds of patients.
The man had been in the hospital for just over a month having treatment for kidney stones when the incident happened just after 03:00 BST on 22 July 2010, the tribunal heard.
‘Losing it’
The patient could become aggressive and needed a one-to-one carer, sometimes with the assistance of a second nurse.
On the night of the incident, the second carer went for a break, leaving healthcare assistant Ms Kostova in charge.
Jane Wilkinson, a staff nurse, said she witnessed the incident.
She said Ms Kostova described the patient as being “like an animal”.
She said: “I have been a nurse for a long time and I have never witnessed anybody saying anything like that at all and she did appear to be almost losing it really.”
Mrs Wilkinson said Ms Kostova was hard-working and could sometimes be abrupt with other members of staff, but that it was to do with her Bulgarian accent and demeanour.
KIDS launches free suite of resources to support families with disabled children who will use personal budgets, commissioners and others in children’s services.
A press release from Kids:
Today KIDS launches a new suite of resources to support families and carers of disabled children who will be using the new personal budgets.
KIDS is a national charity that works with disabled children, young people and their families.
As part of the ‘Making it Personal’ project, sponsored by the Department for Education, KIDS has worked with a number of partners to develop a new suite of resources to explore how personal budgets can be used to their best advantage.
OPM, Disability Rights UK, In Control, NAFIS and the Daycare Trust have worked together with KIDS to develop guidance for commissioners and others in children’s services on how to commission for personalisation, along with a handbook for parents and carers of disabled children on what personal budgets are and how they can be used.
This work was developed in response to the Department for Education’s Green Paper Support and Aspiration: A new approach to special educational needs and disability (DfE 2011)
“To give parents confidence by giving them more control over the support their family receives, we will introduce more transparency in the provision of services for children and young people who are disabled or who have SEN. Parents will have real choice over their child’s education and the opportunity for direct control over support for their family.We propose the option of a personal budget by 2014 for all families with children with a statement of SEN or a new ‘Education, Health and Care Plan’, many of whom will have complex support needs. Key workers will be trained to advise families and help them navigate the range of help available across health, education and social care.”
Anyone wishing to access the Commissioner’s Guidance can download it here: http://www.kids.org.uk/information/100347/106207/106214/106216/for_commissioners/
Parents and carers of disabled children can download the Parent’s Handbook here: http://www.kids.org.uk/information/100347/106207/106214/106217/for_parents_and_carers/
An eLearning package for parents and carers is under development and will be released during March 2013, supported by regional events.
For more information on this please email coe@kids.org.uk
If you want to find out more about the ’Making it Personal’ project, you can find more information here: http://www.kids.org.uk/mip
Back To Work Schemes Breached Laws On Forced Labour
The government’s back-to-work schemes have suffered a setback after Appeal Court judges agreed with a university graduate’s claim that unpaid schemes were legally flawed.
Cait Reilly, 24, claimed that requiring her to work for free at a Poundland store breached laws on forced labour.
Judges quashed the regulations underpinning the work schemes.
But Miss Reilly’s solicitors and the government have clashed on the implications of the ruling.
The government said it was seeking permission to appeal to the Supreme Court.
It will also bring new, more precise, regulations to Parliament later in the day, but the case will be seen as a setback for the Department of Work and Pensions’ flagship back-to-work schemes.
Benefit withdrawal
Miss Reilly, University of Birmingham geology graduate, and 40-year-old unemployed HGV driver Jamie Wilson, from Nottingham, both succeeded in their claims that the unpaid schemes were legally flawed. They had lost their original case, but part of this decision has now been reversed by the Appeal Court.
Miss Reilly said that in November 2011 she had to leave her voluntary work at a local museum and work unpaid at the Poundland store in Kings Heath, Birmingham, under a scheme known as the “sector-based work academy”.
She was told that if she did not carry out the work placement – which, she said, involved stacking shelves and cleaning floors – she would lose her Jobseeker’s Allowance.
Mr Wilson was told that his Jobseeker’s Allowance would be stopped after he refused to take part in the Community Action Programme, which his lawyers said would have involved him working unpaid for 30 hours per week for six months.
Solicitor Tessa Gregory, of Public Interest Lawyers, which represented the duo, said: “This judgment sends Iain Duncan Smith back to the drawing board to make fresh regulations which are fair and comply with the court’s ruling.
“Until that time, nobody can be lawfully forced to participate in schemes affected such as the Work Programme and the Community Action Programme.
“All of those who have been stripped of their benefits have a right to claim the money back that has been unlawfully taken away from them.”
However, the government pointed out that the Appeal Court judges backed the High Court’s view that requiring jobseekers to participate in the scheme did not breach their human rights.
It said that it would bring new regulations forward straight away, allowing these schemes to continue.
“The court has backed our right to require people to take part in programmes which will help get them into work. It is ridiculous to say this is forced labour. This ruling ensures we can continue with these important schemes,” said Employment Minister Mark Hoban.
“We are, however, disappointed and surprised at the court’s decision on our regulations. There needed to be flexibility, so we could give people the right support to meet their needs and get them into a job. We do not agree with the court’s judgement and are seeking permission to appeal, but new regulations will be tabled to avoid any uncertainty.
“Ultimately, the judgement confirms that it is right that we expect people to take getting into work seriously if they want to claim benefits.”
‘Rethink needed’
Miss Reilly said she was delighted with the ruling, claiming that making her give up her voluntary work and sending her to Poundland was wrong.
“Those two weeks were a complete waste of my time, as the experience did not help me get a job,” she said.
“I was not given any training and I was left with no time to do my voluntary work or search for other jobs.
“The only beneficiary was Poundland, a multimillion-pound company. Later I found out that I should never have been told the placement was compulsory.
“I don’t think I am above working in shops like Poundland. I now work part-time in a supermarket. It is just that I expect to get paid for working.”
She said she hoped the government would “rethink” how it tackled long-term unemployment.
“I agree we need to get people back to work, but the best way of doing that is by helping them, not punishing them.”
Disability And The Dentist
A link from BBC Ouch that some disabled people and parents/carers might find useful.
I love famous people who use their fame for the right reasons.
Comedians Jo Brand and Meera Syal have signed up to become two of England’s first ‘dementia friends’, in an initiative launched by the Alzheimer’s Society.
The organisation aims to give one million people across the UK more information about what it is like to live with dementia through free volunteer-led information sessions.
Groups take part in “dementia fact bingo” and are asked to imagine what it might be like to face everyday situations with the condition.
Meera Syal says she was compelled to join the project after close family members developed the condition.
Jo Brand says her previous experience as a psychiatric nurse made her realise how isolated people with dementia can be if not given appropriate support.
Some Good News! Campaigner Christos Palmer Wins ESA Appeal At Tribunal
Readers, I’ve just had some good news from disability campaigner Christos Palmer. Yesterday, he won his appeal against being in the Work Related Activity Group for Employment Support Allowance. He’s now in the support group.
https://twitter.com/ChristosPalmer/status/301118833081589760
Congratulations Christos. This is very well deserved.
SEN Pupils Being Taught Away From The Classroom
Children with special needs are spending too much time being taught out of their classroom according to the Institute of Education.
It says teaching assistants are spending more time with those children than teachers and that being isolated from their classmates has a knock on effect on both their social and educational development.
BBC Radio 5 live’s Victoria Derbyshire got the reaction of two parents of children with special needs who are taught in main stream schools. Jane Myers’ daughter Jess, 16, has septo-optic-dysplasia and Jo Yarnell’s daughter Hannah, 10, has Down’s Syndrome.
MPs and Peers to investigate social care crisis for disabled people
A press release from Scope.
The Government’s ‘social care solution’ will fall short unless it tackles the crisis in care and support for disabled people warns the disability charity Scope.
The warning comes as two important groups of MPs and Peers join forces to investigate a system that is failing to ensure disabled people have the support to meet basic needs including eating, washing, dressing or getting out of the house.
The Government today outlined plans for reforming social care. The cap on costs and the raising of the means-testing threshold will provide many with peace of mind.
But disabled people – who represent a third of social care users – are telling Scope they are more concerned with getting support in the first place.
Last month Scope – along with four other leading disability charities – lifted the lid on scale of social care crisis for disabled people.
The charities’ report showed there’s a £1.2bn funding gap in social care for disabled people and as a result some 40% of disabled people do not get enough social care support to meet basic needs including eating, washing, dressing or getting out of the house.
In a bid to focus the debate on the social care crisis for disabled people, the Local Government All Party Parliamentary Group and the All Party Parliamentary Disability Group are today launching an inquiry into adult social care for working age disabled people.
Scope, which is supporting the work, is inviting organisations to submit written evidence to the inquiry.
Heather Wheeler MP, Chair, Local Government APPG said:
“The Government recognises there is a need for reform in social care, we have already had some key developments including the funding discussions following the Dilnot Commission and also the Draft Care and Support Bill.
“For the All Party Parliamentary Group for Local Government social care is a major concern, ultimately it is still local authorities who commission and manage care at the local level. We have already contributed to the debate on social care for older people and now, through this inquiry with the expertise of Scope, we are working to answer key questions on how local authorities can provide high quality and personalised support for working disabled people.
“Our inquiry will hear from a range of social care users, charities, experts and local authorities and I hope will make a valuable contribution to the debate on how to best deliver social care to meet the needs of working disabled people in England.
Richard Hawkes, Chief Executive of the disability charity Scope, said:
“There is a crisis in social care for disabled people. The consequences of not addressing are it are stark. More and more disabled people will not get the support they need to get up, get dressed, eat properly or go out to work.
“I am delighted that two very important APPGs have joined forces to shine a light on this issue.
“We need a social care solution that ensures disabled people can live with the basic dignity that everyone else takes for granted. In 2013 we should not accept anything less.”
The APPG inquiry
Scope is working alongside both All Party Parliamentary groups to gather a broad range of evidence from organisations and disabled people that have an interest in social care for working age disabled adults.
The four main areas of inquiry will be:
1. The right to independent living: Article 19 of the UN Convention on the Rights of Disabled People states that all disabled people should be supported to live independently in the home of their choosing, and to be included in their community. However working age disabled people overwhelmingly find that their social care packages do not allow them choice and control, and hold them back in terms of employment, volunteering and leisure activities – meaning they are often excluded from their local communities.
2. Impact of changes to eligibility: By 2014/2015, local authority budgets will have shrunk by 28 per cent. Shrinking budgets means that local authorities have been raising the threshold at which disabled people become eligible for support. In 2005, 50 per cent of local authorities set their eligibility criteria at ‘moderate’ needs. But in 2011 the figure fell to 18 per cent. Recent research shows that the raising of thresholds in many local authorities has meant that disabled people are failing to have their basic needs met, are withdrawing from society and are increasingly dependent upon their family.
3. The value of preventative care: The 2012 White Paper had a clear focus on preventative care. Early intervention and proper integration of services can have a significant impact in reducing the need for more expensive social care interventions at a later date. In 2011, the Audit Commission found that 70 per cent of councils reported efficiencies by using preventative services for adult social care. At the same time a recent British Red Cross/ComRes poll found almost two thirds (64 per cent) of councillors across England have seen funding for preventative and low-level social care cut or frozen since the last local election.
4. Dilnot Funding Proposals and Working Age Disabled People: In 2011 the Dilnot Commission made recommendations for a new funding system for social care which aimed to make the system sustainable, fairer and easier to understand. However the needs and interests of working aged disabled people must be fully incorporated into funding reforms for these aims to be fully realised.
The deadline for written evidence is 19 March 2013. More information is online at: http://www.scope.org.uk/campaigns/social-care-and-support/appg-inquiry-social-care
Willow Stars To Reunite In Life’s Too Short Special
Fans of 1988 fantasy adventure film Willow will be pleased to see the title’s dwarf farmer and swordsman Madmartigan reunited on our television screens.
Hollywood actor Val Kilmer will appear in a one-off special of TV comedy Life’s Too Short nearly 25 years after he and Warick Davis last worked together.
The special hour-long episode created by Ricky Gervais and Stephen Merchant will be released in lieu of the second series.
Merchant said: “I think fans of Willow are going be really surprised to see Warwick Davis and Val Kilmer reunited on screen. Almost as surprised as Val will be when he finds out what we’re paying him.”
Also returning to the mockumentary – which picks up where the series ended – will be Les Dennis, Keith Chegwin and former EastEnders actor Shaun Williamson, who will again play themselves.
In the new film Davis takes each of them under his wing in the hope of rebooting their careers.
Davis said: “Ricky and Stephen’s scripts are always a gift to play and the inclusion of Val Kilmer is nothing short of genius.”
Life’s Too Short – which will also include on-screen roles for Gervais and Merchant – will be screened on BBC2 in the spring.
Social Care Plans: The Statement
Jeremy Hunt has big plans for social care. He announced them today in the Commons. If you missed the statement, you can listen to it here.
There’s a lot in it about disabled people- children and adults. It doesn’t sound at all bad to me.
Do you have any thoughts, readers?
Call The Midwife: Series 2, Episode 4
I’m pleased to be able to say that popular BBC drama Call The Midwife, which I watch regularly and really enjoy, finally covered disability in the episode screened last night (Sunday 10 February):
Returning from her stint at the London Hospital, Jenny needs all her skill as a midwife when she and Sister Evangelina assist at the birth of the Roberts’ baby, who is born with spina bifida. The parents, Doug and Ruby, struggle to understand and accept their son’s life-limiting condition. Jenny has never delivered a disabled child and she too struggles to accept the implications the illness could have for the child’s future – abandonment and institutionalisation.
Seeing the programme made me thank goodness I grew up so long after the time when it took place. I won’t spoil the full storyline, but I will say that if you missed it, it will be available on Iplayer here for the next five weeks.
Giles Duley- Walking Wounded: Return To The Frontline
They were probably not the words my sister expected to hear but in the early weeks following the blast, as my body was gripped by infection and my organs started to give up one by one, the only words I managed, whispered into her ear, were: “I’m still a photographer.” They may seem ridiculous but they were my failing, broken body attempting to retain its identity, to grasp on to that which still defined me, beyond my injuries, my blurred consciousness and impending induced coma.
A few months earlier, I sat in the searing heat of Sudan with Gino Strada, the charismatic chainsmoking surgeon who set up the Italian NGO Emergency, discussing the plight of civilians caught in the Afghan conflict. I was visiting their project in Khartoum, documenting their groundbreaking Salam Cardiac Centre. Over dinner, Gino told me about the work Emergency was doing in Kabul. I had shied away from Afghanistan because I felt so many great photographers were already working there. I’ve always said that if I get somewhere and there’s another photographer there already, I’m in the wrong place. My main interest has been the untold stories of human suffering around the world. However, as Gino explained, with his typical Italian passion, about the plight of civilians caught up in the years of conflict, I realised it was a story I had heard little of. So I resolved at that point to go and document Emergency’s work there, and I made that promise to Gino.
A few months later, I found myself in Afghanistan. In the period before I was due to start my work in the Emergency hospital I was embedded with the American 101st Airborne. I was setting up Document – my own publication for documentary photography – and as part of that had decided I would do a story on the impact of war on a small unit of soldiers. To create a fuller picture I wanted to try to document all sides of the conflict, to show that in many ways all those involved in a war can become victims. It’s an amazing statistic that last year more US servicemen killed themselves than were killed in Afghanistan.
While on this embed, one cold morning in February 2011, I stepped on an IED (improvised explosive device), which had me fighting for my life in intensive care for the next two months and left me a triple amputee with only one arm intact. As I regained consciousness in the Queen Elizabeth hospital, Birmingham in the months that followed, I started to become fully aware of my situation, and one thing became quickly apparent; it seemed highly unlikely that I would work as a photographer again. In fact, during those early stages I was told I’d probably never live independently. It felt as if my life was over. And in many ways, guilty as I feel to say it, I wished I hadn’t made it.
Yet those around me, my family and my partner, Jen, encouraged me and rekindled my fight. Stubbornness – which as a child I was told would be the end of me – was starting to become my greatest asset. Lying in the hospital bed, I resolved that I would not only walk again but would have my life back as it had been before I stepped on the bomb.
Three months later, when I sat up unaided in my bed for the first time, that seemingly simple task felt like the greatest victory. And from that point I knew I could make it. To push myself, I set goals: to walk unaided by Christmas; to have a drink in my local, the Hastings Arms; to walk with Jen in Soho, the place where we’d had our last date; and within a year to have had all my operations and to be living in my own place. Each goal was reached and ticked off until there was just one left; the most important and the most challenging. I was determined to keep my promise to Gino; to return to Afghanistan and finish the project I had started.
As the plane lands on the tarmac of Kabul airport I am filled with a nervousness I’ve never experienced. I’ve been thinking of this moment for two years. I’ve worked tirelessly to achieve this goal, and now it’s here I am, quite frankly, shitting myself. I’m wondering, “Why did I do this? Why did I come back to the place that took my limbs and so nearly took my life?” Nobody would have thought less of me for not coming back. My family and partner hoped I wouldn’t. My body hardly helps, and for weeks I’ve been unable to sleep at the thought of it. Yet here I am back in Afghanistan.
This time I’m not alone. Right from the moment I arrived at the QEH just days after the explosion, while still in intensive care, people wanted to tell my story and record my recovery. I wasn’t particularly interested – telling my story didn’t seem that important. As time went on, though, I realised that because of what had happened to me the work that I did would get more attention. One of the hardest aspects of the work I’ve done for 10 years, documenting lesser-known humanitarian issues, is getting people to actually see it. It became clear to me that my story could be used as a way to tell other people’s stories. The way I see it, what I’m doing hasn’t changed but my voice has got a lot louder.
The offers to make a documentary ranged from Jamie Oliver’s company to South Korean TV but for me it was important to find a team who were as interested in the current affairs angle, in the stories I was documenting, as much as my story. I didn’t want it to be about me. So when I was approached by the team at Channel 4 responsible for Dispatches and Unreported World, two of the documentary strands I really admire, I jumped at the opportunity. I knew I could trust them to do it right. Now they are in Afghanistan with me and the reality of making the film is upon us all.
As we leave customs and sit by the exit waiting to be picked up, I’m filled with overwhelming dread. I’m convinced there is about to be an explosion. My logic is telling me it’s unlikely but something inside reminds me that that’s what I thought last time. My battered mind is conjuring an imaginary blast so real I can physically feel the heat. I have never been a brave man but I’ve never felt fear like this. As we drive through Kabul my fear grows. At each checkpoint, each traffic jam, every obstacle, I think I’m going to be sick. I put my one good arm between my prosthetic legs with the ridiculous logic that, if there were a blast, it at least would be protected.
After 20 minutes we reach the Emergency hospital in the city centre. The hospital was set up in 2000 when the Taliban bequeathed a former kindergarten to Emergency as its first hospital in Afghanistan. At the time it was the only intensive care unit in the country. In the grounds, playground slides and swings remain, eerie reminders of the hospital’s more innocent past. When we park the car I am greeted by Lucy, a British nurse I became friends with the last time I worked at Emergency’s hospital in Sudan. We feel relieved to have a moment of familiarity in a foreign place. Out of respect for local custom, I resist the urge to put my arms around her until we are in private. “My God Lucy, it’s so good to see you. I promised I’d be here.” And at that moment the tears take over. Two years of fighting for this moment overwhelm me. I have really made it.
One of the things I learned about Emergency in Sudan was the care given to the grounds of the hospital. It is part of their ethos that a hospital should be an oasis of calm as much as a centre for medical treatment. While most hospitals in conflict areas are naturally chaotic, Emergency hospitals always have a sense of peace. The hospital in here is no exception. As Lucy takes me on a tour through the manicured gardens where patients relax in the sun, it is hard to believe I am in the centre of Kabul.
But the appearance belies the reality. Each day the hospital deals with up to 30 civilians injured, often horrifically, by conflict in Kabul or nearby provinces. It has a policy of treating only war-wounded – only those with injuries from bomb, gun or knife are admitted. Before I arrived Lucy had sent me several emails which gave me a sense of the place. In the staff room I ask her about some of the stories she’d told me. During the summer, she says, the casualty rate was so high they had patients in the laundry room. A couple of months ago, they had six patients from the same family. They’d been in a bus that had driven over a landmine. Several died at the scene. They had a grandmother, her daughter and her grandchild all in the same ward. The mother had lost her legs. She tells me of the boy who prays each night after losing his sight when his brother detonated a landmine. They asked his family, “What is he praying for?” The family replied: “He prays to forget because the last thing he saw was his brother being killed.”
The conversation is interrupted as her walkie-talkie crackles into life. She jumps up and leaves the room, explaining that it’s another casualty and that she’ll meet us all later in the staff house. She had been talking nonstop until this point, as if the process of recounting so many stories is somehow cathartic.
There is one particular benefit of working with an Italian NGO – the staff all live as one big familia. On that first evening we are treated to a group meal that belongs more in Naples than Kabul. With laughter, hugs, Parmesan and pasta, the only thing missing is red wine. Throughout my career I have always had the deepest respect for those nurses, doctors, surgeons, logisticians and administrators that give up their lives to work in hospitals such as these around the world. They sacrifice families, their freedom, risk their lives, put their careers on hold but rarely to any fanfares. Despite the laughter tonight, I can see the strain. Confined to the hospital grounds, working seven days a week, on call 24 hours a day, they have grown used to the sound of suicide attacks and gunshots and dealing every day with horrendous, needless casualties. I only wish they more regularly received the praise they deserve.
I go to bed exhausted but unable to sleep. All I can think of is how I will cope tomorrow and if I will be able to do my work. The reality has struck home. This is no longer about me ticking off my final goal; I am now here to do my job.
The following morning we drive across town to the International Committee of the Red Cross limb-fitting centre. As well as showing those recently injured, I want to document the long process of rehab and the lifelong impact of many war wounds, especially amputation. While wars come and go, their legacies remain. In hospital in Birmingham I’d learnt about Alberto Cairo, who runs this centre. “Mr Alberto”, as he is known, gave up his career as a lawyer in his native Italy and retrained as a physiotherapist to dedicate his life to helping others. Somebody had played me his TED talk, Scraps of Men, where he explained the value of not just getting someone to walk again but in helping them rebuild their lives. What is the use of a person who walks again but has no future? Alberto has run the centre for more than 20 years, supplying prosthetic limbs for the war-injured, even under Taliban rule. He truly is an inspirational man and I am excited about meeting him. As our vehicle pulls up into the compound, he greets me, a tall, spindly figure who, despite being in his early 60s, has the energy and cheeky glint of a teenager. Before I’ve even taken my first steps with him he is examining my legs and commenting on my imperfect gait. “Have you been on a bicycle yet?” I laugh. He looks back quizzically. “No, I’m serious. Why haven’t you been on a bicycle yet?” Very quickly it becomes apparent that Alberto is not a man who accepts the word impossible.
He shows me around the hospital, an amazing facility that has become virtually self-sufficient. Once amputees have finished their rehab, many are given opportunities and training in the workshops to produce limbs for the next generation of amputees. They produce a staggering 15,000 legs a year, largely made from recycled materials. It’s a fantastic approach that creates a sense of solidarity and refuses to see those injured as disabled. Very early on, they are taught that they have worth. One of the great problems for those who lose limbs in less developed countries is that while they may recover from their injuries and achieve some mobility, the difficulties of access to facilities and prejudice means many find it impossible to work. We haven’t gone far when we come across a young man having his first casts made. He has lost both legs, one above the knee and one below, exactly the same as myself. The technician is preparing the plaster to take the mould of his legs. Those around me comment that it must be such an amazing time when you finally get your legs. My heart drops at the memory though. While I understand that for an outsider it may seem a positive step – you’re finally on the road to getting your prostheses – what struck me when I was first measured for my legs was the reality of my situation. Most of the time when I was in hospital, while the recovery was slow and arduous, I noticed day-by-day improvements in strength and ability and movement towards a full recovery. However, sitting there on the prosthetist’s chair was the first time that I truly grasped the reality that I would have to live my life without legs.
I ask the young man if I can take his photograph. He nods. In the tight space I manage to lean against the wall so I can lower my angle and take my first frames. I am struck by the blankness in his eyes. I stand up and turn to walk out of the room. Alberto puts his arm around my shoulder. “Congratulations,” he says, “you’ve taken your first photo.” There is a small sense of pride but it is overwhelmed by a terrible guilt that once again my work means I am intruding during the hardest moments of people’s lives. I feel more ashamed than victorious. As we are leaving, Alberto introduces us to his cat, Rita, a stray who one day walked through the gates and into his office. Now she never leaves his side. She is missing a leg. In Kabul, even the cats know where to go.
Over the following days I slowly get back into my stride. For two weeks I am based at the Emergency hospital, documenting the patients there. I discover new challenges, the greatest being how to balance. The average person uses three mechanisms to control their balance; their feet, the inner ear and eyesight. The bomb has robbed me of my feet and damaged my inner ear, and I discover that when I close my eye to look through the camera’s viewfinder, I lose my balance. On top of this, I am learning how to hold my heavy camera, balancing the lens on my left stump. My greatest fear is that my photographs will not be of the same standard as before my accident. And the first few days do little to assuage that fear. Each night I look through the day’s photos with a heavy heart. I seem incapable of capturing the stories of those I meet. However, I am also aware that on many assignments the first few days or weeks are always the hardest as I settle into my groove. Every place you photograph has its own rhythm that you need to understand before you can truly capture it. In the past I’d always prided myself on how boring I was. No matter where I was in the world, people rapidly forgot I was there and I could drift into the background, giving me the opportunity to take photographs that did not seem staged. With my shiny new legs and one arm, being anonymous is proving much harder. On the plus side, my new condition is creating a connection I have never experienced before. I find myself in long discussions with those who have recently lost limbs or are about to, relaying my own experiences.
One day I talk to a young boy, Sediqullah, and his father, a sturdy man from the Panjshir valley. Sediqullah’s hands are bandaged and his face pitted by shrapnel as a result of an explosion. They explain how he, as has happened to many curious boys, found an unexploded fuse that exploded in his hands. His father also shows me the wounds he received during the Russian occupation. A missile landed near him, shrapnel embedding itself in his neck and body. Those around him assumed he was dead and he was put in a coffin, only to regain consciousness at the last moment. I look at him and joke, “Well, I guess there are two empty coffins waiting for us.” He laughs and puts his arms around me in a bear hug.
Over the following days I grow closer to Sediqullah and his father, and when it comes to his next operation Sediqullah asks if I will be in the operating theatre. The men from the Panjshir valley in northern Afghanistan are famous for their strength and tenacity, and pride themselves as being the only valley in Afghanistan that has never been conquered by the British, the Russians or the Taliban. As they wheel Sediqullah into the theatre you can see that same pride and dignity in his face. He looks at me and smiles. As he is put on the operating table, they lay his injured arms out, and although I can tell he is scared and in pain, he stares at the ceiling with a sense of defiance. I raise my camera and take a few frames before giving him a thumbs-up and a smile while the anaesthetic takes effect. I watch most of the operation and then leave to talk to his father. He wants to know how bad the hand injuries are. I am possibly one of the few people in the world who is in a position to say, “It’s OK. He’s just lost the ends of a few fingers. It’s nothing.”
Once more his father roars with laughter and puts his arm around me. That evening, once I get back to la familia, I nervously edit that day’s photographs. Instantly, the photograph of Sediqullah with his arms outstretched, his eyes defiant yet somehow innocent, jumps out at me. I’d got it. Lucy looks over my shoulder and smiles. “You see, you never lost it. I knew you could do it. I’m proud of you.”
As my confidence grows and I become more familiar to the patients, I start once more to blend into the background, focused on telling the stories of those I meet. The hospital can be a heartbreaking place. Each day we rush to the ICU as new patients arrive, all with horrendous injuries. Many of them won’t make it. Many have terrible stories of how long it has taken to get to the hospital. A boy appears who had been hiding in his aunt’s house during the night as a gun battle took place between American forces and the Taliban. A bullet came through the wall of the mud house and entered his shoulder before shattering his jaw. For 10 hours, all he could do was lie there with his screaming aunts, waiting for a lull in the fighting. Eventually his father was able to get to him and drive him for a further 10 hours to Kabul. This story is typical of so many. Yet one becomes aware that, for every person that survives such a journey, many cannot make it. I reflect back on the story Lucy told me, of the three generations of one family all injured at the same time in a neighbouring province. It took them 17 hours to reach the hospital. It took me less than 30 minutes to get to one after the explosion yet it seemed like the longest time in my life. I imagine what must have gone through that mother’s mind throughout that journey, not only her own suffering but having to bear the suffering of her daughter and mother, unable to help.
Each patient I meet has a heartbreaking story – at times they are almost impossible to comprehend and digest. One man looks after his paralysed brother, Najibullah, daily; Najibullah was in a bus when a US missile struck nearby. Shrapnel lodged in his spine. He is growing weaker by the day and the doctors confide to us that he doesn’t have long to live. Yet each day his brother tirelessly cares for him. Never without a smile, he strokes his hair, lifts his spirits with jokes and gently cuts fruit, which he feeds him. He tells us his brother was the smart one at university and was always the baby of the family, which is why he looks after him. Without fail, every day, the older brother greets me with a smile and hands me a piece of apple he’s just cut. I find it unbearable to see the love yet know the fate. It’s so easy for us to hear stories of wars on the news and not relate, because of cultural or religious differences, to those who have to live through them. Yet, at the end of the day, across the world, I have always found people are just the same; the same dreams, the same hopes and the same desire for their loved ones to live in safety.
One thing that strikes me throughout the visit is the lack of medical facilities in this country. The Emergency hospital in Kabul and its outlying stations are one of the few free medical facilities available to Afghans and the only hospitals truly catering for those caught up in the war. After more than 10 years of being in Afghanistan, during a so-called “nation building process”, we are yet to build one functioning hospital. Whatever the rights and wrongs of this war, I can’t help feeling that if we prosecute a war in another country, we have a duty of care to civilians caught up in it. Whether it is our weapons or the weapons of the Taliban that cause the injuries, for us to claim the moral high ground, and to win “hearts and minds”, we must care for civilians. Beyond that, though, simply as humans it must be our duty to help those in need.
The Afghan people have never ceased to amaze me with their tenacity and strength. Most of those I meet on this trip have only known war. Most have grown up in an environment of violence and death. Emergency has treated 3 million Afghans, and that in a country whose population is only 28 million. It’s an amazing statistic but despite these hardships people are positive, and in all my travels I have never seen such compassion for others. What also strikes me is the way I am welcomed. Every day both patients and staff throw their arms around me and thank me for coming back. Afghans are a proud people and don’t want the world to associate them with the Taliban. On more than one occasion I am confronted by somebody in tears, saying, “This was not the Afghan people that did this to you.” For what it is worth, I never thought it was either.
As the days go on, my photographic story comes together. I have always struggled with the quality of my own work but despite my misgivings about the photos I am taking I can’t honestly say they would have been any better two years ago. On the penultimate day we return to the ICRC for a final day’s photograph. I don’t feel the need to take many more photographs. However, as we are preparing to leave, we meet a boy, Ataqullah, and his father. They have come in so that Ataqullah can have a new leg fitted and try a prosthetic arm for the first time. Just over a year ago, while walking to school, he stepped on a landmine. His brother and nephew were the first to reach him and raced him to his father who then drove him eight hours to the Emergency hospital in Kabul. He never lost consciousness during the journey. People always ask me if I ever cry taking photographs, if there’s ever a point where it just becomes emotionally too much. The reality is that, no matter how difficult the situation, I somehow have always managed to take the photograph. It’s as if the camera acts as a barrier, a shield, protecting me from the horrors I’ve encountered; a man blinded by acid in Bangladesh, a child shot in the stomach in Sudan, a woman injured by a mine in Angola. To me, taking a photograph has always seemed an act of professionalism born out of a desire to take the best picture possible, to tell the subject’s story as honestly as I can. It’s when I get home that the photographs really hit me. Seeing the faces in my dark room or on my laptop screen brings back the hidden emotions and memories, often leaving me in tears and unable to carry on with my work. As a photographer, I’ve always felt I was doing the right thing; as a man, I’ve often been left feeling like a vulture, guilty for doing my work. Yet I’ve always persevered, somehow able to detach myself.
But today is different. Through my viewfinder I am watching Ataqullah clumsily struggling to take his first steps on the new plastic leg while his shattered arm swings beside him. As we follow him into the limb-fitting area he is engulfed by prosthetists and doctors. All I can see is a small, lost child, bewildered in a sea of adults. They poke and prod, attaching straps and plastic limbs while Ataqullah stares blankly. I raise my camera, trying to capture the scene in front of me, but all I can think of is everything I have been through in the last two years, and how, as a 40-year-old man, that had nearly broken me. All I can think is that no seven year old should have to go through what I went through. That no seven year old should be maimed in such a way, left with a legacy of pain and disability, blown up when walking to school. I can’t take my eyes away from his glazed, lost expression, his eyes, as big as saucers, staring blankly back at my camera. For once, I can’t take it any more. I put the camera down, my vision blurred with emotion, and I leave the room.
Before coming back to Afghanistan I was worried I would not be able to take photographs again in the way I used to, that my injuries would leave me incapable of the movement and guile needed to be a good photographer. I never wanted this to be a vanity project. I didn’t want to come here just to prove I can take a photograph, I just wanted to do my job. Photographing injured people is intrusive and difficult, and comes with a responsibility. Now, though, I’m discovering that it is maybe not my physical abilities that are hampering me but my emotions. I take my last frames and know my work in Afghanistan is done. I just want to get home to be with Jen and my family.
Since returning from Afghanistan I’ve had time to reflect on my trip and whether it was worth it. People ask me: “Don’t you regret going there the first time? Is any one photograph worth losing your legs for?” It’s a stupid question because of course no one image is worth that cost; but I’ve always believed that the principle is. Ironically, I believe that stepping on a bomb, and the suffering that continues, confirmed to me that going to these places to tell these stories was and is the right thing to do. Each day I cope with my injuries; they act as a reminder that in the world there are thousands suffering from similar injuries yet without the medical and emotional support I have. They suffer without voices, and, thankfully, despite everything that’s happened to me, I remain capable of telling their stories. How could I not carry on with that work? More than that, I honestly believe this whole experience has made me not just a better photographer – more considered, passionate and with greater empathy – but also a better man. I will forever be in the debt of those who made this journey possible; the medics, nurses, surgeons, physios, friends, family and Jen.
Recently Jen and I were asked what we wished for in the year ahead. We both said we hoped for the most boring year of our lives! I dream of Saturday nights watching TV and eating takeaways with a glass of wine. More than that though, now that I have done this film and am once more telling stories, I hope I can draw a line under this stage of my life and move on from being the story. As every injured civilian in Afghanistan deserves, I want to be defined not by what I’ve lost or what has changed but instead by who I still am. One day, if they write an epitaph for me, I hope it will not say I was a triple-amputee, instead just say that Giles Duley was a photographer. For that is what I am.
Walking Wounded: Return to the Frontline will be shown on Channel 4 at 10pm on 21 February
Disability At The BAFTAs
Readers, you probably know this already, but there’s a lot of disability in the BAFTA nominations this year!
- Untouchable is up for Film Not In The English Language.
- Helen Hunt is up for Supporting Actress for The Sessions.
- Silver Linings Playbook is up for Adapted Screenplay and Bradley Cooper for Leading Actor for his role in the same movie.
Sadly Untouchable and The Sessions were unsuccessful, but many congratulations to Sliver Linings Playbook which won the Adapted Screenplay award!
While watching the show I realised that Jennifer Lawrence was also nominated for Best Actress for her role in this movie, though unfortunately she was also unsuccessful.
It’s Autism Sunday!
I’ve only just learnt that Autism Sunday exists. Thanks for this very useful information must go to Ekklesia, who have also published full details.
As I understand it, the day is meant to celebrate Autism through prayer in a church setting. However, if you are not Christian, please celebrate Autism through your own method of prayer today.
If you are not religious, please find a positive way to celebrate Autism today to mark the day.
Julia Jones’ Bedroom Tax Letter To David Cameron
UK readers, do you want to do one bit of campaigning today? Then please share this letter everywhere. Send it to family, friends, followers, celebrities, the press. Anywhere. Everywhere. Everyone must read.
This heart-wrenching letter shames David Cameron and the Coalition Government over their wicked bedroom tax.
In it, widow Julia Jones, 59, pleads with the PM to consider her plight, the Sunday People reports.
Julia, who will have to live on just £53 a week, faces losing the home and garden where she scattered her husband’s ashes.
The malicious and divisive tax will punish 660,000 ordinary men and women come April and is rapidly becoming David Cameron’s poll tax.
“Please think again,” Julia begs the PM.
Today everyone should read Julia’s letter.
Dear Mr Cameron
I heard you in Prime Minister’s Questions say you would look at individual cases on the bedroom tax.
I am 59 years old, David (my husband) and I have both worked since we were 15, paid taxes, did our bit.
We have never been well off but we both did worthwhile jobs.
Five years ago David got melanoma.
He had excruciating treatment and, although still not well, returned to work as he thought it was his duty.
Four years ago he got bowel cancer; he had an irreversible colostomy.
Six months later he returned to work. Two years ago he got brain cancer. Seven weeks later he died.
Throughout all this I was advised I could get care allowance, but I rejected this: he was my husband, it was my duty to care for him.
We lived off the little savings we had until we could return to work.
When he had the colostomy we were allocated this home as David could not climb stairs any more and I struggled.
His ashes are buried in the garden under the rose bushes that friends gave me instead of wreaths.
Mr Cameron, my husband and I were the hard workers you claim to support, we never asked for anything.
I would give everything if this had not happened to us.
Because we were on benefit and sick, you and your government said hateful words against us.
Words that made acquaintances look at us with contempt.
The most powerful men in the country imply we are scum so we must be scum.
You and your government call us scroungers, next door go to work while our bedroom curtains are still drawn.
My curtains were still drawn at 11am as the light made David scream with pain.
Do you not consider that I would give everything for my husband to be alive, me to not have incapacitating pain and we could both be the hard workers we once were?
I live in small 1 1/2 bed bungalow that was built for older people.
It is supported elderly living so I feel safe. It could not house a family as under 55s are not allowed.
You now want to take my home from me. The home that literally made my fingers bleed cleaning as it had been neglected for 20 years when we moved here.
You want me to leave my husband’s ashes, my neighbours who take me shopping and give me some form of social life? I have no family, we could not have children.
I am living without heating at present so how can I pay what I do not have to stay in my home?
Have you any idea how that affects my fibromyalgia?
I eat one meal a day and am in constant pain which is exacerbated by the cold.
I may get Discretionary Housing Benefit. But we both know that is only for 13 weeks at a time and when the pot is empty, it is empty.
I have considered moving but the only property available is far from shops and bus stops and costs £98 per month more than where I am at present. I would be living in isolation.
You say you are building more social housing, but it is too little too late for many of us.
You may blame the Labour policies, but it was your government who introduced this law so I have to hold you responsible.
Mr Cameron, I do not believe you or your MPs are evil men at heart, I believe this is an ill-thought-out plan and you did not understand the consequence of your action.
I ask you to take a step back and look at this again.
THE ABOVE IS JUST PLAIN CRUEL…I AM ASHAMED TO BE BRITISH.
Yours, Julia Jones
Calling Friends, Fans And Followers In America And Canada
Dear Readers,
News reports tell me that you’re snowed in by a serious storm. Please, please be safe. I’ll say to you what I always say to readers in England when we have heavy snow- whatever your wheels are attached to, please don’t use them!
I’ve spotted these winter tips for wheelchair users, which you might find useful:
Those not yet disabled, if you have neighbours who are disabled or elderly, please help them in any way possible.
Best wishes, as always
Samedifference1
Scotland Theological Debate To Examine Assisted Dying Law
A theological debate is being held in Glasgow on moves to change the law on physician-assisted suicide.
It comes as work continues at Holyrood by independent MSP Margo MacDonald to bring forward another bill to allow assisted suicide.
She insists her call to allow assisted suicide for those suffering terminal conditions is not a moral issue.
The Friends At The End (Fate) conference features Church of Scotland speakers on both sides of the argument.
Ms MacDonald’s first bill before Holyrood fell foul of what she said was knee-jerk reaction from religious organisations.
Saturday’s conference debate will include Reverend Scott McKenna, a minister from Edinburgh who believes assisted suicide does not contravene Christian teaching, and the Reverend Sally Foster-Fulton, convener of the Kirk’s Church and Society Council, who will put forward the opposite view.
Ms MacDonald, who has Parkinson’s disease, has claimed there is public support for a change in the law.
Nigeria’s Blind Music Producer Cobhams Asuquo
Nigeria’s Cobhams Asuquo is one of his country’s leading music producers and has helped propel to stardom singers like Asa, whose 2007 debut album became an international hit.
In addition to producing the album, he wrote and co-wrote several of its songs.
Blind from birth, he says he always had a keen ear for music and would coax a tune from anything he could get his hands on.
“My love for music began to manifest itself from when I was about age six or so, when I started to puff my cheeks and play the 12-bar blues,” he told the BBC’s series African Dream.
“I moved on from there to locking myself up in the bathroom which was, you know, the average child’s nightmare, but I would do it just because of the reverberating effect I got whenever I whistled from the bathroom
“I just enjoyed the sound. I literally would come into the living room and beat on anything I found, from the dining table to other things in the kitchen to barrels that we used for storing water, all kinds of stuff,” he added.
Although nobody in his family played an instrument, a friend who noticed his musical inclination gave him a toy piano.
“I pretty much figured out tone and movement and all of that, and I guess music just began to take form in my life from then on.”
His eclectic taste, he says, was partially influenced by his father who had a varied collection of records which ranged from R&B and soul to Nigerian and Caribbean music.
Nurturing talent
Mr Asuquo was studying law at the University of Lagos but decided to leave it and branch into music full-time.
In 2005, he signed on to Sony ATV London as a songwriter and a year later, after working as head of audio productions for Nigerian label Questionmark Entertainment, he set up his own recording facility.
He had no capital, just a computer and ideas that he took to different companies offering advertising and begging for work.
He is now the CEO and head of productions of Cobhams Asuquo Music Productions (Camp) which, according to him, is an all-encompassing entertainment firm.
It employs five people and outsources whatever they cannot do, depending on the project he is working on.
“Part of what we do is to discover, to nurture, and to grow and develop, and to expose talent. As a business, as a label we’ve been doing this since 2008,” he told the BBC’s Tomi Oladipo.
Today, at 32, he is as much in demand in his native Nigeria as he is in other parts of the world.
“There is the expectation, you know, from me to share the African perspective, to bring the ‘Africanness’ to the sound which, to be honest, I’m very very proud [of].
“I always see it as my opportunity to lend my voice to the rest of the world, to tell an African story, to bring out the African culture, the African drum, the African sound.”
Like his hero Stevie Wonder, the musician has never let his lack of sight hold him back.
“It’s assumed there are many things you can’t do because you’re blind. And so, for me I had to prove that there are many things I can do because I’m blind, and that there are many things I have done because I’m blind,” he said.
“People have come to trust me with their music and with their sound, and with the fact that I’d be patient to search for their sound, obviously because I’m not distracted by many other things,” he added.
Creating magic
Mr Asuquo says that he is determined to help others taste the success that he has enjoyed.
He is a judge on the Nigerian talent television show Project Fame and, according to him, his own production company is always looking for the stars of the future.
But he points out that he is not interested in working with people whose only drive is the potential financial rewards the industry offers.
“I am excited to work with an artist as long as I feel that such an artist desires more than just the commercial or the financial benefits of music. I like to work with people who want to create magic, people who want to go a little afield, go a little off the usual path.”
He also warns that success in the music business does not come easy.
“I’ve slept on many studio floors in Lagos and outside of Lagos just, you know, for a chance to make music, to show that I can do this. I guess it’s paying off. Here we are in our own establishment, just doing our own thing.”
However, he believes that there is still plenty more to achieve.
“We are not where we want to be. We are aware that we are not where we started but there is so much to do, so much work to be done, so much further to go from where we are. We’re on our way,” he said.
And what advice would he give to people who want to succeed in the music industry?
“Try, as much as possible, to be honest with yourself and let the people who are around you be honest with you. Is it something you can do? Is it something you’re gifted to do?
“And, if truly it is, I’d say, keep at the back of your mind that your gift or the talent to do it is not enough. There is work, there is persistence, there is consistency, and you’ve gotta keep just pushing, keep doing it.”
He also believes that people should strive to be themselves and not ‘a carbon copy’ of others who may have influenced them.
“You’ve got to have something unique, whether it’s your story, it’s your voice or it’s your lyrics, it’s the sound of your instrument or it’s the combination of all of these different factors.
“I just believe that everything depends on everything and so whenever I have an opportunity I give it my very best shot.”
African Dream is broadcast on the BBC Focus on Africa radio programme every Thursday afternoon, and on BBC World News throughout the day on Fridays
Every week, one successful business man or woman will explain how they started off and what others could learn from them.
Police Face Investigation Over Restraint Of Disabled Girl, 11
The police watchdog has launched an investigation into a complaint about the treatment of a disabled 11-year-old girl who was restrained by officers.
The girl, who has Smith-Magenis syndrome, a genetic disability, appeared to be physically restrained with handcuffs and leg restraints by officers on five occasions in and around Horsham, West Sussex.
On four of the occasions that she came into contact with Sussex police officers she was arrested and taken to police stations, and she was held overnight twice.
The girl’s mother complained to the Independent Police Complaints Commission (IPCC) about the way police managed the incidents between 2 February and 2 March last year. She also complained about the methods of restraint used on her daughter, and the decisions to hold her in police station cells overnight.
The IPCC commissioner, Mike Franklin, said: “The IPCC investigation is examining the nature and circumstances of the officers’ interaction with the girl on five separate occasions in February and March 2012 to determine whether the degree of force and method of restraint used by officers was appropriate and in accordance with the law, the officers’ training and force policy and procedure.
“The investigation is also looking at the appropriateness of the decision to place the girl in police cells on four occasions and to refer her to the Crown Prosecution Service for charging on one occasion.
“These are very serious complaints about the treatment of an 11-year-old girl suffering from Smith-Magenis syndrome and I will ensure that they are investigated thoroughly.”
A Sussex police spokesman said: “We take our responsibility for any use of force very seriously, particularly when it involves young people or those who are disabled.
“Given the unusual circumstances of the case and that it is being independently investigated, we cannot go into full detail until the conclusion of the investigation. We welcome the IPCC’s scrutiny and we fully support its investigation.”
According to the Smith-Magenis Syndrome Foundation UK, its major features include mild to moderate intellectual disability, delayed speech and language skills, distinctive facial features, sleep disturbances, and behavioural problems.
Daniel Roque Hall Wins Appeal!
Great news readers!
Disabled prisoner Daniel Roque Hall has won his appeal and can finally go home from prison!
As regular readers will know I have been following this case for quite a while. I’m thrilled at this news and will post full details and reactions as soon as I can.
Updated 8.15pm: Full details at the Guardian.
MPs Blame DWP For WCA ‘Fiasco’
The government should accept much of the blame for distressing and expensive fitness-to-work tests that have caused “misery and hardship” to thousands of benefit claimants, according to a report by MPs released on Friday.
The public accounts committee said there had been much criticism of Atos, the firm contracted to conduct so-called work capability assessments (WCA), but it warned that most of the problems lay with the Department for Work and Pensions.
The tests on claimants were introduced in 2008 to assess entitlement to employment and support allowance. Atos was paid £112.4m to carry out 738,000 assessments in 2011-12.
The MPs’ report said: “The Work Capability Assessment process is designed to support a fair and objective decision by the department about whether a claimant is fit for work, but in far too many cases the department is getting these decisions wrong at considerable cost to both the taxpayer and the claimant.
“The department’s decisions were overturned in 38% of appeals, casting doubt on the accuracy of its decision-making.
“Poor decision-making causes claimants considerable distress, and the position appears to be getting worse, with Citizens Advice reporting an 83% increase in the number of people asking for support on appeals in the last year alone.
“We found the department to be unduly complacent about the number of decisions upheld by the tribunal and believe that the department should ensure that its processes are delivering accurate decision-making and minimising distress to claimants,” the report said.
Charities have expressed anger at the number of people with long-term, incurable conditions who are being forced on repeated occasions to prove that they are not able to work, despite supplying medical evidence that indicates that their condition is permanent and will not improve.
Margaret Hodge, who chairs the committee, said the DWP was getting “far too many” decisions wrong on claimants’ ability to work.
“This poor decision-making is damaging public confidence and generating a lot of criticism of the department’s contractor for medical assessments, Atos Healthcare – but most of the problems lie firmly within the DWP.
“The department is too often just accepting what Atos tells it. It seems reluctant to challenge the contractor,” she said.
“It has failed to withhold payment for poor performance and rarely checked that it is being correctly charged. The department also cannot explain how the profits being made by Atos reflect the limited risk that it bears.
“There needs to be a substantial shake-up in how the department manages this contract and in its processes for improving the quality of decision-making,” she added.
The committee said the DWP’s evidence during its hearings was not always consistent with views of other witnesses, with different interpretations of statistics.
The MPs said they could not arrive at a clear conclusion about whether performance was improving and recommended that the National Audit Office should provide up-to-date data on the department.
Mark Hoban, the employment minister, dismissed the report as incomplete and failing to take into account the mess that was inherited from the last government.
“This report completely fails to recognise the considerable improvements we have made to the Work Capability Assessment since coming to power in 2010, having inherited a system from the last government that was not fit for purpose,” he said.
Down’s Man Dreams Of Meeting Sean Penn
Can we be the ones to make this reach Sean Penn and make a DisAbled man’s dream come true? I’m posting this because as the video says, nothing is impossible!
An email I’ve just received from campaigner Linda Burnip:
Do You Have A Child With Autism Who Likes Theatre? Autism Friendly Disney Production In London And Spiderman On Broadway
Readers, do you have a child with Autism who likes theatre and Disney?
First, there were Autism friendly films.
Now, I’ve just read that there will be an Autism friendly theatre production of Disney’s The Lon King in London in April, and one of Spiderman on Broadway, New York in the Spring:
I think it’s brilliant that so much effort is being made to make the classics all children love accessible to children with Autism.
Husband Caring For Wife Criticises Bedroom Tax
A man who gave up work to care for his sick wife is “disgusted” at the so-called “bedroom tax” which may see him lose £60 a month in housing benefit.
Tony Sharman, 60, of Towcester, sleeps in a second bedroom in their home as his wife Anne, 57, has in a special bed which is too small for them both.
But changes to housing benefit will penalise people with a “spare bed”.
The government claims it is unfair for people to live in council-run homes that are too big for their needs.
The new rules will affect housing benefit, which is paid to less well-off tenants to help with rent. Typically claimants receive between £50 and £100 a week.
But from April families deemed to have too much living space by their local authorities will receive a reduced payment. Under the government’s so-called “size criteria”, families will be assessed for the number of bedrooms they actually need.
Mr Sharman, who started caring for his wife after a second brain haemorrhage in 2006 left her unable to walk or speak, has been told that under the proposals he will lose about £15 a week.
‘Genuine need’
“We genuinely need separate bedrooms,” he said. “But they say I’m a husband, not a carer. I look after my wife 24 hours a day, seven days a week.”
He said he struggles to “make ends meet” at present and the extra loss of benefit will mean he has to cut his food bill.
He said he would be applying to the discretionary fund to help people in hardship.
Wheelchair user Steve Cooper, of Wellingborough, lives in a two bedroom house that has been specially adapted for his use.
He is concerned that he will be penalised by these changes to the housing benefit.
‘Waiting lists’
“I think it is unfair with the all the work the housing people have done to adapt my house. If I move they will have to do it all again,” he said.
The Department for Work and Pensions (DWP) argued the changes will help cut the £23bn annual bill for housing benefit, free up more living space for overcrowded families, and encourage people to get jobs.
A DWP spokesman said: “It’s not fair for people to continue to live in homes that are too large for their needs when in England alone there are about five million people on social housing waiting lists and over a quarter of a million tenants are living in overcrowded conditions.
“We are giving local authorities an extra £155m this year so that they can help their vulnerable tenants through the housing benefit reform and a further £30m a year will be targeted to disabled people with an adapted property and foster carers.”
Councillor Ian McCord, portfolio holder for resources at South Northamptonshire Council, which covers Towcester, said: “We are sympathetic to Mr and Mrs Sharman’s situation and will do everything we can to help and support them.
“Although there are some exceptions to the new regulations which have been set by central government, including those for disabled tenants with a non-resident carers, unfortunately in the case of the Sharman’s these do not apply.”
A Wellingborough Council spokeswoman said anyone with concerns about housing benefit should contact them as soon as possible.
She added that a hardship fund could help some of those affected but it would not cover all the cuts in housing benefit in the borough.
Cross posted from here in solidarity.
If you can act on this information, we need to hear from you QUICKLY
On Tuesday 5 February, the Social Security (Personal Independence Payment) Regulations 2013 were passed by the House of Commons Eleventh Delegated Legislation Committee. The debate lasted just a little over an hour, very few members of the committee contributed and all voted along party lines. And that was it. Regulations which determine the independence and well-being of almost 2 million disabled people were dealt with quickly and quietly, like some routine to be got out of the way.
But this is NOT routine for disabled people. Across the length and breadth of the UK disabled people’s lives will change immeasurably as a result of the vote this afternoon. Many will find the long term support provided by Disability Living Allowance stripped away by the application of a rigid and limited set of activities and descriptors. In particular, people with mobility impairments who can walk more than 20 metres but not more than about 50 metres may lose their vital Motability vehicle (or other independent mobility solution funded by their higher rate mobility component DLA) and, with it, their independence.
But the fight is not yet completely lost. Our lawyers (Leigh Day solicitors and human rights barristers from Doughty Street Chambers) advise that this lowering of the distance criteria from 50 metres to 20 metres could be unlawful and are considering how we can challenge the regulations. But to do so, of course, we need claimants whose circumstances make them suitable candidates to participate in such a challenge. For the best prospect of success, the barristers have set the following criteria (some essential, some desirable):
Essential criteria
These are the essential attributes of a suitable claimant for judicial review of the 20-metre walking distance criteria for enhanced mobility component of PIP:
- Eligible for legal aid – check your eligibility at http://legalaidcalculator.justice.gov.uk
- Currently have a DLA award including Higher Rate Mobility component
- DLA award NOT due to expire until after October 2013
- On re-assessment under PIP, whenever that occurs, is at risk of losing out on the enhanced mobility component of PIP because they can walk over 20 metres or so but cannot walk up to 50 metres. This probably means their mobility is stable – either until the expiry date of their current award (if it is time limited), or until at least 2015 (if their current award is indefinite).
- Does NOT have any difficulty planning or following a journey (eg due to mental health, cognitive or sensory impairment)
Desirable criteria
These additional criteria are desirable (but NOT essential) attributes of a suitable claimant:
- DLA award expires/due for renewal soon after October 2013
- Has a car or wheelchair accessible vehicle under the Motability scheme
- Has some evidence of the basis on which they were awarded DLA, eg a Tribunal Statement of Reasons, a DWP award letter referring to 50 metres (the figure is in the standard letters), or medical evidence
If you think you satisfy at least the essential criteria…
Contact me IMMEDIATELY using the contact form at http://janeyoung.me.uk/contact/, explaining that you wish to be considered to take part in a legal challenge to the PIP regulations.
There’s no time to lose… please share this post everywhere so we have the best chance of challenging the PIP regulations. Thanks!
Richard III: Fit For Work Joke Made At PMQ’s
Labour’s Michael McCann teased the prime minister about the private firm carrying out assessments for welfare-to-work when he claimed Atos had declared Richard lll was “fit to work”.
If you follow blogger Tom Pride, you’ll know where that joke came from.
Fleet Street Fox: Casual Disablism On Twitter
I’m sad to say that I’ve just seen respected Tweeter @fleetstreetfox using some casual disablism on Twitter.
She was live Tweeting Prime Minister’s Questions today for The Sunday People and she wrote:
I responded:
I will let you know if she responds to me.
UPDATED 5. 15 PM:
A regular reader Tweeted me to clarify:
https://twitter.com/dinogoldie/status/299181214613508099
I responded:
Just in case Fleet Street Fox should read this post, I would like to say that I now realise that her disablism was unintentional.
Government Have U-Turned On Improving The Lives Of Families With Disabled Children, Says Labour MP
Dawn Keim: The Deaf Mother Who Heard Her Son, 8, For The First Time
A heartwarming clip from American programme The Doctors, due to screen tomorrow in America.
Children And Families Bill: Three Responses
Work Programme Fails Again
David Millward, £100,000 DLA Fraud Man, Jailed For 18 Months
A livestock trader who claimed £100,000 in disability benefits when he said he had walking problems has been jailed, after being secretly filmed working.
David Millward, 55, of Oak Road, Brewood, Staffordshire, was filmed moving bales of hay and livestock, Wolverhampton Crown Court heard.
Millward, who pleaded guilty, has been jailed for 18 months.
He falsely claimed £100,225 in Disability Living Allowance and Income Support.
My Lover, My Carer
A BBC Radio 4 documentary on today at 4pm about life, love and becoming disabled.
What happens to long-term relationships when a lover becomes a carer? Julie Fernandez talks to four couples where one partner has a severe disability about the challenges of being the carer – and the cared-for.
Natalie Burr was a world-class trampolinist, training for the Olympics. In a split second her life was turned upside-down: she misjudged a triple summersault and crashed onto the mat. She lay there, unable to feel her legs, knowing she had broken her neck. Being handed her phone, she rang her husband Shane and asked “Will you leave me?”.
Many couples don’t survive sudden disability – the pressures are just too great. But Shane didn’t leave, and he is still together with Natalie and they have gone on to have a baby. How have they made it work? For those who do manage to stay together, how do they negotiate the sudden shift of roles?
The four couples whose lives have been transformed by disability, talk frankly and movingly about how their relationship has changed and how power has shifted between them. They talk about adjusting to a different life: all the daily stuff – making tea, mowing the grass, cuddles in a wheelchair, what to do about sex. When a lover becomes a carer it can distort intimacy in ways which can be difficult to discuss.
Julie has brittle bone disease from birth, while her husband Andrew is not disabled. She brings her own experience of disability to those for whom this is a new and sometimes devastating experience. She’s both challenging and sensitive in probing taboo areas – from attitudes towards sex to feelings of guilt and exhaustion.
Sample PIP Claim Forms On DWP Website
I thought you might like to know about/see these, readers.
Maddison Gill- The Baby Who Cannot Cry
A Somerset baby has a condition that is so rare doctors have been unable to diagnose it.
Maddison Gill, who cannot cry, swallow or suck, has now been allowed home after spending the first 14 months of her life in hospital.
Fiona Lamdin reports.
Autism Awareness T-Shirts- Raising Awareness Or Labelling Children?
Readers, I’ve just found out that Autism Awareness T-shirts exist.
I saw this Tweet:
https://twitter.com/talkaboutautism/status/298461581761732608
And it got me thinking about the question of these T-shirts and others.
I have no doubt the T-shirts were originally created to raise awareness of autism. I guess the answer to the question depends on who is wearing the shirt.
If a parent or family member of a child with autism was to wear these shirts, they would be trying to raise awareness.
However, if a child with autism was to wear one, it could be seen by some as a parent’s attempt to label their child. If it was to be looked at in a more positive way, it could be seen as a parent’s attempt to make the outside world aware that their child cannot help being naughty/disruptive/unusual.
***
Would I, as a child with Cerebral Palsy, wear a T-shirt that says “I HAVE CEREBRAL PALSY?” Erm, well, it would depend on my age and where I was going.
At 17, I once went to mainstream college wearing a sweatshirt with the Bobath Centre logo on it. Someone in my class innocently, politely, without a hint of disablism, asked me what it was. I was instantly embarrassed and never wore the shirt outside my house again. Why? I didn’t want to have to answer that question in a mainstream setting.
Had I worn it to a place related to disability, I would have answered that question with pleasure and confidence and maybe even some pride.
Ten years later, I would wear such a shirt anywhere with pleasure. And if one of my parents or family members was to wear one of these shirts today, I would feel proud to be out with them.
Ten years ago, there are probably some places where I would have been embarrassed to know that someone I know was wearing that shirt.
The same applies to an “I Have Cerebral Palsy” shirt.
***
Parents, every child is different. So I would say, buy these shirts, by all means, to raise money for your chosen charity. Just ask your disabled child before they, or you, wear them!
Heavy Load: The Movie
A new documentary following Heavy Load, the band with some learning disabled members, as they record their first album and try to find out whether they can make it in the mainstream.
The Punk Syndrome
New documentary The Punk Syndrome follows Finnish punk band Pertti Kurikan Nimipäivät, a group of middle-aged men with learning disabilities, as they write and perform songs raging against the government’s attitude towards their conditions. Here’s a clip of the band performing. The Punk Syndrome is out in the UK now.
Help For Victims Of Bedroom Tax: The E-Petition
I’ve just signed this e-petition on the Government website. It’s titled Help For Victims Of Bedroom Tax.
A statistic that scared me, for those who don’t already know it: Three quarters of those hit hardest are disabled.
So, readers, if you live in the UK, please make signing this petition your bit of campaigning for today.
Parents Want Welsh Signer In School For Deaf Daughter
The parents of a profoundly deaf girl are threatening a council with legal action for failing to recruit a Welsh-medium sign language tutor.
John and Caryl Clarke withdrew their daughter Hafwen from Penrhyncoch Primary School, near Aberystwyth, last October when her signer left.
Ceredigion council said it had advertised for a replacement without success, but was still trying.
The family claims the authority is breaching several laws.
The parents have given the council until 29 March to recruit a replacement.
They claim the authority is breaching the Education Act, Hafwen’s statement of needs and the Welsh Language Act, adding that their daughter was entitled to be educated in Welsh at the school of her choice.
Hafwen started signing through Welsh when she was aged three and has been a pupil at Welsh-medium Penrhyncoch school for more than four years.
Her learning support assistant (LSA) left the school in October last year, and shortly afterwards Hafwen left too.
“When Hafwen’s LSA left no-one could communicate with her, so we withdrew her from the school,” said Mr Clarke, 45.
“Her respite carer went to the school before Christmas to sign for Hafwen, but she could only spare two weeks.
“Hafwen started at Plascrug (primary school in Aberystwyth) this week on a temporary basis.
“There is an LSA there signing for another deaf pupil and the LSA is helping Hafwen too, but this is only a short-term measure because an LSA can only serve one pupil, as we understand it.”
Mr Clarke said his daughter could sign and lip read in Welsh and English, but he and his wife wanted her educated in Welsh and at Penrhyncoch where Mrs Clarke, her grandmother, father and brother all went to school.
“Hafwen has a right to be educated in Welsh, and she should have the same rights as able-bodied children,” added Mr Clarke, who is a taxi driver.
‘Brick wall’
“We’re trying to do our best for our daughter, but it seems we are banging our heads against a brick wall.”
Mr Clarke said many of the patterns used in British sign language were the same in Welsh, but there were differences in the way certain patterns were structured when adapted for use in the Welsh language.
Ceredigion council said Penrhyncoch was a Welsh-medium school and it was essential for Hafwen’s teaching assistant to be able to communicate both through Welsh and British sign language.
“Despite advertising the post twice, including an advert in the local press, no one suitable was found to support the pupil in Penrhyncoch school,” said a council spokeswoman.
The spokeswoman said the school had kept the Clarkes fully informed, and all were aware of the recruitment difficulties.
“The authority welcomes and supports the parents’ suggestion that the pupil should attend Plascrug school until it is appropriate for the pupil to return to Penrhyncoch school,” she added.
“The authority has always maintained that it is willing to support the parents’ choice of school which is Penrhyncoch and will continue to work with the school to find a suitably qualified teaching assistant.”
The Last Leg Episode 2- Is It OK For Disabled People To Have ‘Basic Human Urges’ Satisfied?
Last night, readers, the team on The Last Leg were discussing a disability issue, I’m pleased to say.
It was one on which my opinion has changed over time. You see, I’ve been disabled since birth. I grew up in the 90s and at the time, there was very little recognition that the answer to the question above is a loud and clear Yes!
The question above was raised because the team received a Tweet asking it as part of their ever-popular hashtag, #isitok.
The discussion on this topic started about 8 minutes in. As a result of this question, The Sessions was also mentioned.
They were also discussing ‘enablers,’ people who help disabled couples to erm, enjoy the physical side of their relationship.
Adam Hills also mentioned that he has read that people with CP who normally have no speech can talk for a few minutes after sex! Hmmm, readers, what do you think of that? The thought made me smile as I know several people with CP who have no speech!
The team ran a poll on the topic, revealing at the end of the show that 70% of people agree with my opinion on it. #isitok for me to be thrilled about that?
For anyone who missed the show, or just wants to watch that part again, it will be on 4od for a month.
Comments, as always, very welcome below.
Can Silver Linings Playbook Ease Bipolar Prejudice?
One of the films in the running for Best Picture at the Oscars this year is Silver Linings Playbook.
The film features a character who has bipolar disorder – the condition that affects people’s moods.
It is being seen as another important step towards getting us all to understand and accept the fact that mental illness is a part of many people’s lives
Shea Wong, who has bipolar herself, told the Today programme: “In the past, people with bi-polar disorder were often treated as walking comedy and tragedy masks. They were either always up, or always down.
“It is systemic, it is a cultural systemic stigma. But we have to think of it in terms of getting passed that. The mental health community is moving through a stage where we do have to educate the public and take that fear away. Once you can implant education, the fear is very quickly removed.”
James Delingpole
Readers, my Twitter timeline is on fire tonight. Why? James Delingpole is going to be on Question Time.
I must admit, I heard of this man about five minutes ago. But I wish I hadn’t. Why? Because he has recently had these little gems to say about disabled people:
Is it just me – or do the most warped, bitter people on Twitter all have ‘Spartacus’ embroidered across their picture. What’s it about?”
For those of you who don’t know, this is the Spartacus Report. The campaigners who started it are neither warped nor bitter- they are just trying hard to get their points out to the world. It was such a viral success that we never removed our Twibbons of support. Personally, I don’t think we ever will, now that a campaign group has grown out of it.
When Delingpole was informed on Twitter that the original Spartacus led a slave revolt, he responded with the second of these ‘gems:’
“Ah. That’ll be it. They’re angry about being enslaved by the injustice of free taxpayers’ money. Who wouldn’t, eh?”
It’s not free, Sir. We pay a high price for it. The price of permanent ill health. The price of lives that end far too soon. We would give all the ‘free taxpayers’ money’ in the universe not to be disabled. But people like you will never understand that.
The next day, the third ‘gem:’
“My timeline is full of froth-mouthed disability rights activists spitting blood. Wow! They make animal rights Nazis look almost reasonable”
Sir, that is the magic of our community. When you Tweet nonsense about one of us, we all get insulted. It’s called friendship, Sir. Do you have any friends? Meet Katie Hopkins and Claire Khaw. I think you’ll like them.
And then last Friday, he wrote a post at his personal blog titled “The Dangerous Disability Rights Mob.”
The title basically says it all. Except, Sir, we’re not dangerous, nor are we a mob. We Tweet and blog from our beds- we simply express and discuss opinions and try to explain to those lucky enough to be able to Tweet or blog from somewhere other than a bedroom what our lives are like.
As for Question Time, I quite like it. But I don’t like the fact that it’s giving air time to someone who dislikes my friends- and by extension, all disabled people, so strongly. I will be watching, and I wonder what little ‘gems’ he’ll have to say about us next.
MPs And Lords Launch Inquiry Into Disability Abortions
MPs and peers are to investigate whether too many disabled babies are being terminated under current abortion laws.
A cross-party commission will seek to “establish whether there is room for a review of this legislation bearing in mind both medical advances and advances in our attitudes to disability over recent years”, Fiona Bruce, the Tory MP who will chair the inquiry, said yesterday.
It will review how the law works and how the legislation could be developed in the future.
At present, an abortion can take place as late as necessary if tests indicate that the child may be disabled when born.
There is a legal limit of 24 weeks for abortions on other grounds.
The inquiry will also assess whether the differentiation between abortion on the grounds of disability and non-disability is discriminatory following the passing of the Equality Act 2010, MPs said. Figures showed that there were 146 abortions after the 24-week limit in 2011 in England and Wales out of a total of almost 190,000. More than 500 abortions followed screening for Down’s syndrome.
Experts on the panel include Virendra Sharma, the Labour MP for Ealing Southall, and Baroness Hollins, a cross-bench peer and president of the British Medical Association.
This month the Government was urged to open a separate inquiry over fears that illegal abortion on the grounds of gender may be taking place within immigrant communities.
Officials found signs that birth rates for girls and boys varied noticeably according to where their mothers were born.
Earl Howe, a health minister, said that these differences in births among mothers of certain nationalities may “fall outside the range considered possible without intervention”.
It was the first official statistical evidence potentially backing up concerns that sex-selection abortions are being carried out in Britain. Andrew Lansley, the former health secretary, last year criticised the “illegal and morally wrong” practice following a Daily Telegraph investigation into the issue.
After this newspaper received information that the procedures were becoming increasingly common for cultural and social reasons, undercover reporters filmed doctors offering women terminations based on gender.
As a result of the investigation, the Crown Prosecution Service is considering criminal charges against doctors in three cases.
The practice of aborting unborn babies on the basis of sex has long been considered a problem in areas of India and China, where boys are sometimes considered favourable for cultural or economic reasons.
Abortions for non-medical reasons are legal until 24 weeks, but terminations on grounds of sex of the foetus are illegal under the 1967 Abortion Act.
In 2010 there were 189,574 terminations in England and Wales, up eight per cent in a decade.
My Review Of The New Last Leg At Disability Horizons
Disability Horizons asked me for my thoughts on the new series of The Last Leg, which started last Friday. Here’s what I said.
Millions Face Rise In Council Tax, Suggests New Research
Millions of the poorest households face council tax rises because most councils in England will pass on a 10% benefit funding cut, research suggests.
A typical bill will rise from April by between £100 and £250 a year, but some could rise as much as £600, the Resolution Foundation think tank says.
Its report coincides with the deadline for local authorities to submit their plans for changing council tax benefit.
Councils say they have not been given enough freedom to manage the changes.
Responsibility for the benefit is being moved from the government to councils.
At the same time, the total spent on the benefit, which is to become known as council tax support, is being cut by 10%.
In Wales, the cut is being absorbed by the government, and not passed on to local authorities.
‘Poll tax’
In Scotland, the cost is being shared between councils and the Scottish government, maintaining support for low-income residents.
But the 326 councils in England could be left with a shortfall if they intend to maintain the level of existing payments.
Some are finding savings from elsewhere in their budgets, in order to protect the incomes of the poorest households.
At least 40 local authorities have decided to maintain current levels of support. Durham County Council and Tower Hamlets are amongst those which will absorb the costs of CTS into their budgets.
The government has also put forward £100m of support for those councils that limit the council tax increase for those on benefits or low pay to 8.5%.
Ministers say the total paid out in council tax benefit doubled under the last government and welfare “reform” is vital to tackle the budget deficit.
They say the changes will give councils the incentive to help people off benefits and into work.
Council tax benefit is currently claimed by about five million households in England – about half get 100% support, meaning they currently pay no council tax at all.
But the Resolution Foundation says that three-quarters of authorities in England are planning to demand a new or higher payment from the lowest income households.
This comes at a time when other benefits may also rise more slowly than the cost of living, and the government introduces an overall cap on benefits.
Because pensioners are fully protected, those of working age are, in many areas, being asked to shoulder a much greater burden.
“Millions of England’s poorest households, both in and out of work, are already very close to the edge,” said Gavin Kelly of the Resolution Foundation. “They are going to find it very hard to cope.”
Some campaigners have likened the change to the “poll tax”, in that people are asked for a contribution regardless of their ability to pay.
‘Low priority’
The Labour Party says the policy is deeply unfair, and will cause havoc with hundreds of thousands of people unable to pay the bills.
Many in local government fear that councils will be left with a financial black hole, as the cost of pursuing those who do not pay through the courts could be higher than the revenue the authorities will raise from them in tax.
Peter Fleming from the Local Government Association, which represents local authorities, told BBC Radio 5 Live the government had not given councils enough control over the scope of cuts they could pass on.
“The problem is we’ve been handed the cut, but not given the flexibility to design schemes… that would have actually protected the people who are most vulnerable.
“Give us the freedoms and flexibilities to actually devise the schemes that work best for the communities that we serve,” he added.
He also predicted there would now “be people who are literally unable to pay” their taxes, and the “difficulty for us as local authorities is do we take people to court for very small amounts of money?”
Local Government Minister Brandon Lewis said: “Under the last administration, more taxpayers’ money was being spent on benefits than on defence, education and health combined.
“We are cutting council tax in real terms for hard-working families and pensioners, and we are on the side of people who work hard and want to get on.”
Downing Street has risked causing widespread offence by claiming there should be no need for food banks because benefit payments are high enough to pay for such essentials.
Sources at No 10 made their comments after the prime minister, David Cameron, told MPs he was planning to visit a food bank in his constituency – a move almost forced on him by weeks of Labour taunting on the issue.
Speaking after Cameron’s announcement at the weekly prime minister’s questions session in the House of Commons, a source said food banks were to be welcomed as an example of “the big society”.
But she added: “Benefit levels are set at a level where people can afford to eat. If people have short-term shortages, where they feel they need a bit of extra food, then of course food banks are the right place for that. But benefits are not set at such a low level that people can’t eat.”
The comments are likely to provoke outrage among opposition MPs and poverty campaigners, especially with the government undertaking widespread benefit cuts at a time when prices are rising faster than the economy.
The Trussell Trust, the UK’s leading food bank distribution charity, estimates that in the year 2011-12 food banks fed 128,687 people in the UK and it forecasts that will rise to more than 230,000 during this year.
“Every day people in the UK go hungry for reasons ranging from redundancy to receiving an unexpected bill on a low income,” says the charity’s website. “Rising costs of food and fuel combined with static income, high unemployment and changes to benefits are causing more and more people to come to food banks for help.”
The Labour leader, Ed Miliband, used his questions at PMQs to attack the government’s economic record after figures this week showed that following a return to growth last summer the economy shrank again in the final three months of last year, by 0.3%. If there is another quarter of falling growth, the UK economy will have entered a triple-dip recession.
“On his watch, because of his decisions, we have the slowest recovery for 100 years,” said Miliband, who claimed UK economic growth was the 18th slowest of the 20 biggest world economies, and again urged the coalition to rethink its cuts and austerity programme.
Cameron countered that the government was cutting corporation tax, investing in enterprise zones, and had presided over the creation of 1m apprenticeships and 1m new private sector jobs, adding: “But do we need to do more to get banks lending and business investing? Of course we do, and under this government we will.”
He added: “If you listen to the EU, the OECD or the IMF, they will point out Britain will have the fastest growth of the major European economies this year.”
The prime minister criticised Labour for not regulating the banks and building up debt during its time in office.
Disabled Soldier Wins Carers Allowance Tribunal
An injured soldier left suicidal after being falsely accused of benefit fraud has won an appeal against a decision to cut a £70-a-month carers‘ allowance for his wife.
Former lance corporal Adam Douglas, who nearly died in a grenade attack in Iraq in 2003, had spent two years fighting the Department for Work and Pensions to keep the funding.
He said after the judgment on Tuesday: “I have been completely vindicated after being accused of one of the worst social crimes possible. Every time I presented the DWP with medical evidence, they ignored me.
“This battle left me feeling suicidal, made me doubt my own injuries and even made me question whether I had been in Iraq at all. It has been a complete waste of time and taxpayers’ money pursing me.”
He added that the case, previously highlighted by the Guardian, has caused him to suffer from post-traumatic stress disorder and left him unable to work since last year.
Douglas was part of the East and West Riding regiment in Iraq in 2003 and was on the front line of a major firefight when he was shot at with a rocket propelled grenade. He sustained severe spleen and spinal injuries and was evacuated to the UK where he has undergone several operations, leaving him unable to bathe, dress and go to the toilet by himself.
However, the DWP stopped the allowance after heavily edited undercover surveillance showed Douglas helping friends as he moved house.
A Leeds tribunal heard that the footage, supplied by Scottish Widows in relation to an insurance claim, had had time and date stamps changed and that Douglas’s efforts led to him being hospitalised.
He told the tribunal he had only helped out of extreme circumstances because removal workers cancelled, leaving him at risk of large legal fees if there was a delay in moving to his new, more disabled-friendly home.
Douglas said he now wants to focus on running his charity, the Forgotten Heroes, which helps former soldiers and their carers appeal similar DWP decisions.
Last year it was revealed nearly 40% of appeals against the government over stopped disability payments were upheld.
A DWP spokesperson said: “A decision on benefit entitlement is taken after consideration of the claim form and any supporting medical evidence.
“Individuals have a right to appeal and if someone comes forward with further evidence then a claim may be reconsidered.
“From April the government is simplifying the financial support for members of the armed forces who have been seriously injured, recognising the considerable sacrifice they have made to keep the country safe.”
Brendan Marrocco- Former US Soldier Who Survived Losing All Four Limbs In Iraq- Gets Double Arm Transplant
The first US soldier to survive losing four limbs in Iraq has said he is looking forward to swimming and driving after having a double arm transplant.
Brendan Marrocco, 26, was injured by a roadside bomb in 2009.
He also received bone marrow from the deceased donor of his arms, a therapy intended to help his body accept the new limbs with minimal medication.
His surgeon says it will take more than a year to know how fully Mr Marrocco will be able to use the new arms.
“The maximum speed is an inch a month for nerve regeneration,” Dr W P Andrew Lee, who led the 13-hour surgery last month at Johns Hopkins Hospital in Baltimore, Maryland, told a news conference on Tuesday.
Four other soldiers have lost all four limbs and survived since Mr Marrocco.
‘Sky’s the limit’
He said he did not know much about the donor but was “humbled by their gift”.
His surgery was only the seventh double-hand or double-arm transplant ever done in the US.
On Tuesday Mr Marrocco said he was looking forward to returning to driving and swimming after the transplant.
“I just want to get the most out of these arms, and just as goals come up, knock them down and take it absolutely as far as I can,” Mr Marrocco said on Tuesday.
While he has used prosthetic legs, the former soldier said he hated not having hands.
“You talk with your hands. You do everything with your hands, basically, and when you don’t have that, you’re kind of lost for a while,” he said.
Arm and hands prosthetics are generally not as advanced as those for feet and legs.
While he continues physical therapy at Johns Hopkins and later at Walter Reed National Military Medical Center, doctors are giving Mr Marrocco a good prognosis on the ultimate ability to use his new hands.
“He’s a young man with a tremendous amount of hope, and he’s stubborn – stubborn in a good way,” said Dr Jaimie Shores, the hospital’s clinical director of hand transplantation.
“I think the sky’s the limit.”
Mr Marrocco had been living in a specially outfitted home in Staten Island, but it was heavily damaged as the cyclone Sandy hit the New York City borough last year.
Disabled film-maker hopes to “rewrite boundaries” for severely disabled young people
A press release from the Muscular Dystrophy Campaign.
A disabled film-maker who travelled the length of the country to interview men living with the same muscle-wasting condition he was born with tells how he hopes the resulting documentary will “rewrite boundaries” for severely disabled young people.
Dr Jon Hastie (32) from Shoreham-by-Sea, West Sussex set out in 2011 to meet with productive, creative and fulfilled men living with Duchenne muscular dystrophy, including a poet, an author, a graphic designer, an artist, two campaigners and a concert organiser. He captured his experiences for his first documentary, A Life Worth Living, released on DVD this week.
Jon himself has been left with little mobility, using a ventilator at night and requiring around the clock care owing to Duchenne muscular dystrophy, which causes muscles throughout the body to weaken and waste over time. He resolved to undertake the project, which he describes as the most “intense challenge” of his life, to encourage the ambitions of children and teenagers with Duchenne and other severe disabilities.
The film sees Jon travel to locations including Manchester, Edinburgh and Abercynonto interview each man in person, discussing life-style, overcoming difficulties, aspirations and personal attitudes to disability. Amongst those Jon met were 43-year-old JohnLinde, who now lives in Holland and has made a career organising pop concerts, and 42-year-old Mark Chapman, a graphic designer from Edinburgh, whose severe disability has not prevented him from living independently. Jon tells how his meeting with Mark challenged his own views on what was achievable, and was responsible for him taking the decision to move out of his family home last year.
The film also includes, the hardest, most poignant encounter during the project, as Jon meets with the parents of a young boy recently diagnosed with Duchenne muscular dystrophy, who were struggling to come to terms with the future impact of the condition on their son’s life.
DVD copies of a Life Worth Living are now being stocked by muscular dystrophy charities, the Muscular Dystrophy Campaign and Action Duchenne, which contributed funding for the making of the film. All sales made through the Muscular Dystrophy Campaign will help fund its award-winning 450-strong Trailblazers young disabled campaigners group, of which Jon is a member. Trailblazers was set up to empower young disabled people to challenge social issues that affect them.
Of making the film, Jon said:
“This project has been all about demonstrating just what can be achieved by people living with Duchenne Muscular Dystrophy – and other severely disabling and life-limiting conditions. There are so many remarkable, spirited people out there who have so much to offer. Disability presents both physical and mental barriers. We need to be showing the younger generation what can be done with tenacity and encouraging them to aim high.
“At 32, making this film has forced me to rewrite my own boundaries, from fulfilling a dream of becoming a film-maker, to making such an intense journey, and ultimately, to having my own home for the first time. It has always been my hope that it will do the same for others, and assure them that theirs is a life worth living to the full.”
Tanvi Vyas, Campaigns Officer for the Muscular Dystrophy Campaign Trailblazers, said:
“The representation of disability in the media and in film so often focuses on the barriers it creates, with young disabled people constantly reminded of the challenges that stand in the way of our ambitions. A Life Worth Living offers something quite different. It is a snapshot of people who have excelled in doing the things that they love, crucially, caught by a film-maker who is going through this same process himself. We are proud that Jon has decided to use sales of this film to help Trailblazers, which also sets out to encourage young people to challenge themselves and to remind them what is possible with determination.”
“We sincerely hope that people will support this powerful film and help it reach the many young disabled people for who it is intended.”
BBC Ouch carries a guest article by Kate Ansell, a TV producer who has CP and helped to make Panorama: The Great Disability Scam. She explains some of the findings that didn’t make it in to the programme.
Earlier today, I asked Sue Marsh for her reaction to last night’s Panorama. Here’s what she told me:
“Many thanks to the makers of last night’s Panorama for exposing some of the horrific assault facing sick and disabled people here in the UK in 2013. Sadly, a half hour show could only ever scratch the surface of the true extent of the horrors we are facing. We are leaving sick and disabled people hungry, unable to wash or leave their homes, unemployed, unable to find housing and isolated. We should be ashamed and it’s only by making honest programmes like this one, with bravery, that we will stop this national disgrace.”
Panorama: The Great Disability Scam- Scope Responds
Readers, pasted below is Scope’s response to last night’s Panorama.
I’ll be putting up more similar posts throughout today as more charities respond to the programme. So if you spot any responses, please Tweet or email links to me.
Responding to a Panorama expose on the Work Programme, Richard Hawkes, Chief Executive of disability charity Scope, said:
“The Government’s fitness for work test is utterly broken. Now we see the same toxic approach applied to disabled people in the Work Programme, the Governments flagship approach to moving disabled people off benefits and into work.
“Referring to disabled people as LTBs – lying, thieving bastards, is completely unacceptable, yet sadly demonstrates just how the benefit scrounger rhetoric has influenced attitudes towards disability, even amongst those employed to help them.
“The fact is the Work Programme is failing to deliver for disabled people.
“We know disabled people want to work but face multiple barriers such as a lack of skills and experience, confidence and even negative attitudes from some employers.
“The group of disabled people who are furthest from a job – those claiming Employment and Support Allowance – are receiving the least support and therefore least likely to be referred to the disability specialists.
“Disabled people account for only 1 in 5 of the total number of people who’ve found work through the Work Programme.
“Disabled people need tailored and targeted support to find a job and the Work Programme just doesn’t offer them this.
“We desperately need the Government to re-think its approach if we want to see more disabled people in work in the future.”
Meet the Real LTBs
Rugby Commentator Stuart Barnes Calls England Players ‘Retards’
Former England rugby star and Sky Sports commentator Stuart Barnes has been slammed for accusing England of playing like “retards”.
Barnes, 51, was taking part in a “round table” preview of the Six Nations tournament alongside ex-players Jeremy Guscott, Lawrence Dallaglio and Sean Fitzpatrick, when he made the insensitive remark.
He said of England in the Sunday Times piece: “I hate to say it but I utterly agree with Jerry (Guscott): since 2003, we’ve been retards at the breakdown.”
The chief executive of the London Centre For Children With Cerebral Palsy yesterday criticised Barnes’ “offensive” language.
Marc Crank said: “It’s very unfortunate. Barnes is young enough to know that retard is an offensive term.
“It really isn’t appropriate to use and I think it sends out the wrong message.
“If you’re in your 80s, you can be a little more tolerant of this while not actually approving of it. But there’s no excuse here.
“He has a responsibility not only as a commentator but as someone out there in the public eye making comments that people are going to take on board.
“It’s not about being politically correct, it’s about being sensitive and mature.”
Ciara Evans, campaigns assistant at Mencap, who has a learning disability, said: “I am sure he wasn’t trying to upset disabled people or their families but it is one of the most insulting things you can say.
“People sometimes use words like this, but they don’t realise that just like racist or sexist language, it is really offensive.”
Barnes played fly-half for Newport, Bristol and Bath and won 10 caps and a place on the 1993 Lions tour to New Zealand.
He made his England debut at Twickenham versus Australia in 1984, with his last test against Ireland in 1993.
He isn’t the first sportsman to come under fire for using the phrase.
In 2011, former Queens Park Rangers footballer Joey Barton was blasted for describing The Only Way Is Essex cast as “retards” after they mocked the size of his manhood.
Last night Barnes said: “In an interview I used a word I shouldn’t have.
“It was a mistake, I regret it and I wish to apologise for any offence caused.”
BMA Calls On Government To End WCA
Taxing The Bedrooms Of Dead Children
This is heartbreaking.
Heard Whilst Disabled #heardwhilstdisabled
This hashtag is all the rage today if you’re a DisAbled Tweeter, readers.
Research Gives New Hope To People With Tourettes
Young people with Tourette’s Syndrome have been given new hope as a result of pioneering work by scientists at the University of Nottingham.
There are around 300,000 people living with Tourette’s in the UK, a neurological condition which can lead to verbal outbursts or physical tics.
Tourette’s affects one in 100 children, some of whom will grow out of their tics by adulthood.
Scientists involved in the new study believe they can help patients by using brain imaging to diagnose the disorder and predict outcomes.
Professor Stephen Jackson and his team are building a ‘brain atlas’ to map the neurological development of people with Tourette’s and help to suggest treatments.
Inside Out talks to Hannah Prentice from Birmingham and Spencer Forbes from Nottinghamshire who have volunteered to take part in the study.
Inside Out West Midlands and East Midlands is broadcast on Monday, 28 January on BBC One at 19:30 and nationwide on the iPlayer for seven days thereafter.
‘Lying, Thieving Bastards’ Unemployment Company’s Insulting Staffroom Label For Jobless, Disabled People
Yes readers, I know there’s a swearword in this post, but this is the exception to the rule.
On paper, Linda Smith’s job with an Aberdeen company was straightforward – she was meant to be helping the long-term unemployed – many of them disabled – to find jobs and move off benefits.
The reality, she said, was a corporate culture that saw staff in training sessions referring to those same people as LTBs – code for “lying, thieving bastards”.
“That is how they are referred to,” she said of the clients of Triage, which is a key player in the government’s ambitious plan to pay private companies to move people from benefit into work.
There are 2.5m long-term sick and disabled unemployed people in the UK. The cost to the taxpayer is £13bn a year.
The government’s £5bn Work Programme has identified 68,000 disabled people in receipt of incapacity benefit who it believes can work.
‘Bucks, ker-ching’
To achieve that, 18 main providers have been contracted to do the work and are paid in stages when the clients are referred and when they find jobs. A further payment is made if they stay in work for two years. It is called payment by results.
Mrs Smith said her time working at Triage – a sub-contractor to two of those main providers – was an eye-opener. She said the nature of the scheme is that the firms earn more money from taking on the disabled as clients.
“These people were probably more difficult to place in employment for us as employment workers, but for them (the company) these people were bigger money… these people were the bucks, the ker-ching.”
But once those people were on the company’s books, and an initial fee paid, Mrs Smith said the company – which operates in Scotland and northern England – told its staff to spend as little time and effort as possible on helping them find jobs.
She said the practice is known as “parking”. Four other former Triage employees told the BBC similar stories of being told to “park” clients rather than actively help them find work. They also confirmed the use of the term “LTBs” to describe their clients.
“They would be put on telephone interviews… just to make sure that there was this contact made so they could tick a box to say, ‘Yeah, they’re still on the Work Programme’,” Mrs Smith said.
‘Frequency of contact’
Tony Wilson, 34, from Middlesbrough, had been unemployed and receiving incapacity benefit for almost nine years before being referred to the Work Programme through Triage in February 2012.
Mr Wilson said he suffers from depression, anxiety disorder and borderline personality disorder and he believes he has been “parked”.
He said he has met his adviser only three times, some of the courses he was told he would be sent on have not happened and he has not even been asked to produce a CV. He said his contact with Triage has been reduced to occasional phone calls.
“They haven’t done a single thing to help me in any way.”
When told of the LTB label given to those on long-term benefits, he said: : “That’s offensive. It’s unprofessional. It’s – so many words I could say about that. It’s just wrong. “
In response to the allegations about parking, Triage said in a statement: “It is standard practice, particularly for those clients that are sick or who have otherwise been unable to attend, to telephone them to check on their progress and maintain contact. Triage’s delivery structure of the Work Programme does not allow for ‘parking’.
“The compliance requirements of the programme demand a frequency of contact and this together with our own commitment to excellence and meeting client needs means that ‘parking’ is not an option.”
Triage also said the term LTB was referring to an isolated incident, adding: “This is not a phraseology used or accepted by Triage.”
Left behind
Mrs Smith’s concerns about the attitude of some Triage staff comes as a survey of charities and other organisations recruited to back up the 18 main providers conducted by the BBC found that many do not feel the Work Programme is delivering.
In the survey of 348 organisations listed with the Department for Work and Pensions, so-called Third Party providers, 184 answered a series of questions about their involvement in helping the long term sick and disabled to find work.
The survey found:
- 77% of organisations with specialist expertise to support disabled people believe that expertise has not been correctly utilised by the main provider
- 80% of organisations which responded had fewer referrals than they expected
- 40% of respondents have had no referrals at all
And 40% of those which responded said they were not actually part of the Work Programme, therefore should not be on the DWP’s list.
The RNIB Group (Royal National Institute of Blind People) was one of the organisations that did sign on to help big companies to get the visually impaired into work.
Steve Winyard, head of policy at the RNIB Group, said the programme has failed to deliver the promised support to help people move into paid employment.
“It is a disaster. The latest data that has come from DWP (Department for Work and Pensions) shows that there have been zero successful placements in work for blind and partially sighted people. That’s meant to be the core outcome and it is just not delivering.”
Justin Urquhart Stewart is a financial analyst who examined the Work Programme’s payment-by-results financial model. He said it was designed in a way that encourages companies to cherry-pick the people who are fairly easy to move into jobs.
“Sadly, if you do not have the experience, if you do not have any training and maybe you are disabled, then you’re going to be left behind.”
Mark Hoban, Minister for Employment, said he was confident the Work Programme could deliver.
“It is early days… but what we’ve seen is that 200,000 people have got work through the Work Programme. That’s a good start, but clearly we know there’s more that needs to be done.”
Panorama: The Great Disability Scam? is on BBC One, Monday, 28 January at 20:30 GMT and then available in the UK via the BBC iPlayer.
For viewers in Scotland, BBC Scotland Investigates Parking the Disabled, BBC One at 20:30 GMT.
Deaf Kids Doing Worse At GCSE
A breakdown of last summer’s GCSE results suggests that deaf pupils in England are doing a lot worse in their exams than those who can hear.
The research by the National Deaf Children’s Society shows that 37% of deaf children achieved five A* to C grades at GCSE compared to 69% of their hearing peers.
Paralympic sprinter Ben Rushgrove, who won a bronze medal at London 2012, told BBC Radio 5 live Breakfast that the education of young deaf children “is the minimum they can expect from us as a society”.
January Schofield- The Six Year Old Girl With Schizophrenia
Yes, readers, you did read that right. The full story is here.
Holocaust Memorial Day
This is a guest post by Andrew Bradford. It was originally posted here on Friday. I am cross posting it today to mark Holocaust Memorial Day in a way relevant to this site. Thanks to Andrew.
Nazi persecution of people with disabilities and what this means for us today
Almost two years ago, on a bitterly cold, snowy day in March I visited Auschwitz-Birkenau. We were on a short break in Cracow at the time. I was in two minds whether to go or not; one part of me said that this not a tourist attraction, and treating is as such devalues the horrors that went on there. But another part of me said that I should see what went on; If we don’t try to understand what happened, it can happen again.
All Auschwitz visits are guided. Joachim, our guide told us about the history of this terrible place with sympathy and conviction. In particular he told us that many of the officers who ran the camp were never prosecuted; after the war they went back to Germany and resumed their civilian lives as though nothing had happened. The obituary of one camp medical officer describes him as one of the most eminent, and most caring gynaecologists in Stuttgart.
The Museum gets over a million visitors each year, so there are several different routes that an individual guided tour can take to avoid congestion. On the route our group took, one of the very first things that you see is the Museum’s collection of over 400 false legs, false arms, crutches, leg-irons and other surgical appliances. I hadn’t expected this. One of my childhood memories as a very small boy is going into my parents bedroom early in the morning when they were still in bed and seeing their crutches and leg irons and my father’s leather and steel spinal corset by their bedside. Now I was looking at hundreds of these appliances, all looted from those who had been exterminated. I took a deep intake of breath.

This picture is provided by courtesy of the Aushwitz-Birkenau Memorial and Museum; http://www.aushwitz.org
My mother and father, both of whom were seriously disabled by polio when they were toddlers, were twenty seven and thirty three in 1939 – just the right age group to have ended their lives in this hellish place if they had they been born in another European country or if the Nazis had invaded Great Britain. It is estimated that close to 250,000 disabled people were murdered under the Nazi regime. Persecution of people with disabilities began in 1933, but mass murder commenced in 1939. In 1933 the ‘Law for the Prevention of Hereditarily Diseased Offspring’ allowed for the forced sterilisation of those regarded as ‘unfit’. This definition included people with conditions such as epilepsy, schizophrenia and alcoholism. Prisons, nursing homes, asylums, care homes and special schools were targeted to select people for sterilisation. It has been estimated that between 1933 and 1939, 360,000 individuals were forcibly sterilised.

Andrew Bradford with his parents, Charlie and Kathy Bradford in 1953
The organised killing of disabled children began in August 1939 when the Interior Ministry required doctors and midwives to report all cases of newborns with severe disabilities. All children under the age of three who were suffering from conditions such as Down’s syndrome, hydrocephaly, cerebral palsy or ‘suspected idiocy’, were targeted. A panel of medical experts were required to give their approval for the ‘euthanasia’ of each child. In the first few months of the program this was usually achieved either by lethal injection or by starving the child to death.
Many parents were unaware of the fate of their children, instead being told that they were being sent for improved care. After a period of time parents were told their children had died of pneumonia and that their bodies had been cremated to stop the spread of disease.
Not everyone who was selected for euthanasia died. Robert Wagemann and his family were Jehovah’s Witnesses. The Nazis regarded Jehovah’s Witnesses as enemies of the state for their refusal to take an oath of loyalty to Hitler, or to serve in the army. Robert’s family continued its religious activities despite Nazi persecution. Because of this Robert was born in gaol where his mother was imprisoned briefly for distributing religious materials. His hip was injured during delivery, leaving him with a disability. When Robert was five he was ordered to report for a physical in Schlierheim. His mother overheard staff comments about putting Robert “to sleep.” Fearing they intended to kill him, Robert’s mother grabbed him and ran from the clinic. The family was hidden by relatives until the allied victory. You can hear Robert talking about his experiences here.
Following the outbreak of war the programme expanded. Disabled and chronically sick adults were now included in the programme. A more efficient method of extermination was now needed as the previous methods of killing by lethal injection or starvation were too slow to cope with larger numbers. The first experimental gassings took place at the killing centre in Brandenberg and thousands of disabled patients were killed in gas chambers disguised as shower rooms. Now that a fast and effective method of mass-murder had been developed it could of course be used to exterminate gays, Gypsies, political opponents and of course over six million Jews.
*****
But the Nazis weren’t alone in thinking that the lives of people with disabilities had no value. they drew some of their thinking from the ideas of the Eugenics movement, which had its followers all over the world, including the United Kingdom. In 1930, Julian Huxley, secretary of the London Zoological Society and chairman of the Eugenics Society wrote:
‘What are we going to do? Every defective man, woman and child is a burden. Every defective is an extra body for the nation to feed and clothe, but produces little or nothing in return.’
In the early 20th century, many public figures, including political leaders such as Winston Churchill and Theodore Roosevelt; birth control pioneers Margaret Sanger and Marie Stopes, and intellectuals such as H. G. Wells, George Bernard Shaw, John Maynard Keynes, Linus Pauling and Sidney Webb supported the idea of eugenics.
They believed that anyone disabled or ‘deficient’ was a threat to the ‘health of the nation’. The aim of eugenics was to eliminate human physical and mental defects altogether, in order to build a stronger society. People with disabilities would be segregated from everyone else in the name of ‘perfecting’ the human race. Between 1920 and 1940 compulsory sterilisation programs in mental asylums took place on a number of countries including Belgium, Brazil, Canada and Sweden.
Eugenics was discredited in most of the world by the revelation of what had happened in the German camps, but Sweden only stopped the sterilisation of asylum inmates in 1975. But many people will have forgotten just how discredited these ideas became by 1945. Worryingly, in 2012 in Great Britain, Geoffrey Clark, a local government candidate for the UK Independence Party in a by-election in Gravesham, Kent posted this on his website:
“Consider compulsory abortion when the foetus is detected as having Downs, Spina Bifida or similar syndrome which, if it is born, will render the child a burden on the state as well as on the family.”
Although UKIP suspended Clark’s party membership when this hit the news, it was too late to cancel his candidacy. He came second to the conservatives with almost 27% of the vote.
*****
Our guided tour ended on the bleak plain of Birkenau, where hundreds of wooden buildings that housed those queued up for the gas chambers once stood. At the end of the tour Joachim, our guide told us how to get back to our coaches. I was standing next to him when we began to walk back and we struck up a conversation.
Joachim told me that Auschwitz guides are sometimes heckled. Most of the hecklers deny that anybody was ever killed at Auschwitz or any of the camps. Guides are trained in how to respond to hecklers, and he wasn’t too worried about putting the deniers down – the evidence to contradict them was all around them. The hecklers that he and his colleagues found really difficult to deal with were those who agreed that this was indeed a death camp, but that Hitler was right.
I’m going to finish this piece with pastor Martin Niemöller’s Holocaust poem, which although it doesn’t specifically mention disabled people, reminds me of the reason why I did decide to visit Auschwitz and why we all need to be consistently vigilant in our opposition to holocaust deniers and politicians like Geoffrey Clark. If ideas like his become acceptable in mainstream politics the future looks very bleak for vulnerable people.
First They Came – Martin Niemöller
First they came for the Communists
And I did not speak out
Because I was not a Communist
Then they came for the Socialists
And I did not speak out
Because I was not a Socialist
Then they came for the trade unionists
And I did not speak out
Because I was not a trade unionist
Then they came for the Jews
And I did not speak out
Because I was not a Jew
Then they came for me
And there was no one left
To speak out for me
Poem (c) United States Holocaust Memorial Museum. “The Holocaust.” Holocaust Encyclopaedia: http://www.ushmm.org/wlc/en/article.php?ModuleId=10007392
The Sessions- A Review
I’ve just seen The Sessions. I’m disabled and I write poetry, among other things, so let me just say first of all that I completely ‘got’ the character of Mark O’Brien- a disabled poet and writer.
How did Mark O’Brien become disabled? He got polio aged 6 and it left him in an iron lung.
The movie starts in 1988 in Berkeley, California. Mark O’Brien is asked by a newspaper to write a series on disability and sexuality. This starts him off thinking about his own life experiences- and he starts wanting to experience a physical relationship himself. Think American Pie, add severe disability to the recipe and basically, readers, that’s The Sessions in a nutshell. Except The Sessions includes the very funny moment when Mark O’Brien’s priest tells him ‘I think God would give you a free pass on this one.’ I think that is going to become a classic movie quote!
In his life, Mark O’Brien met and romantically loved ‘three beautiful women, who all showed up at my funeral.’
The first of these was Amanda, one of his carers. Theirs was what I like to call ‘the classic disabled person’s love story.’ Severely disabled man meets carer. Man falls in love with carer. Carer cannot, or in this case, does not, do anything about it- usually because he is her client and it’s wrong. Every disabled man from Christy Brown to the lead character in Inside I’m Dancing has been there. In this case, Amanda leaves her job when Mark asks her to marry him. She later comes back into his life and tells him ‘I love you, but I’m not in love with you.’ Haven’t we all heard that somewhere before?
So then Mark meets Cheryl. She’s a ‘sex surrogate’ who tries to teach him how to experience a physical relationship- while meeting all of his medical needs and throwing in some psychological counselling along the way. And, of course, Mark falls in love with Cheryl. The difference here is that Cheryl genuinely returns his feelings- but she stops the sessions when she realises this, because he is her client and it’s wrong.
His time with Cheryl gives Mark a new confidence and he later meets Susan. They enjoy a romantic relationship which lasts for the final five years of Mark’s life.
The only negative thing I would say was that the movie went into too much detail for its 15 rating.
Overall, though, I would highly recommend The Sessions to anyone with an interest in a story that will make you smile, laugh out loud, and cry, all at the same time.
The Last Leg Returns Tonight
Yes, dear readers, that Last Leg. C4, 9.30pm with Adam Hills & friends. I can’t wait!
How The ‘Bedroom Tax’ Will Affect One Autistic Boy And His Family
The Holden family live on the end of a terraced street in the middle of Hartlepool. There are six of them: Stuart, 36, his wife Lorna, 33, and four kids: Faith, 8, Noah, 6, Elijah, 2, and Sam, 4.
You’d think of them as a thoroughly ordinary family, finding their way through the kind of trying circumstances that now seem to define the national condition, were it not for one detail: Sam, is autistic, and just starting to talk. “He was very non-verbal: shut off,” Lorna tells me. “Now, he’s starting to communicate what he wants. But it’s still only one or two words at a time.”
Stuart works a 9.30am-2.30pm shift at the HQ of Student Finance England in nearby Darlington, so as to be around for the more trying parts of the day. Though she aims to return to paid work once she’s somehow got round the steep cost of childcare, Lorna – a native of Cambridge, who came to Hartlepool due to a past relationship – has recently been suffering from stress-related illness, as well as gall bladder problems. The family are entitled to £114 a week in housing benefit, which covers their five-bedroom home, rented from the Endeavour Housing Association. All the bedrooms are used: the smallest, they tell me, is a “sensory room” for Sam, where he can let off steam and be free of the overstimulation that can make autistic people extremely distraught.
Their house is sparsely-furnished and slowly being redecorated, with some laminate flooring paid for by Stuart’s mum. It’s eye-wateringly expensive to heat, they tell me – but since they moved here a few months ago from their previous three-bedroom home, Sam is apparently transformed: “He’s like a different kid. He wants to be with you more, he brings you things to read or to look at,” says Lorna. But there’s a big problem looming. In April, the housing benefit paid to families like the Holdens will be changed by a new set of rules, outlined in last year’s Welfare Reform Act.
What’s about to arrive is widely known as the “spare bedroom tax”, and is a central part of the government’s radical changes to social security (which also include a planned real-terms cut in most working-age benefits). It’s targeted at what officialspeak terms “under-occupation”: if you live in social housing and are deemed to be one bedroom over, your housing benefit will be docked by 14%; if it’s two or more, 25%. As a result, hundreds of thousands of people who live on very tight incomes are faced with a choice: either stay in their homes and somehow find the money, or move somewhere else.
For the Holdens, all this is very bad news indeed. With Sam and Elijah sleeping in the same room, and the other two kids each given a bedroom of their own, our initial conversation revolves around the assumption that they’ll get a special dispensation for the sensory room – but the new rules still mean that, until daughter Faith turns 10, they’ll be “under-occupying” by one bedroom, and therefore in line for a £16 a week hit. To some, that will not sound like much, but like so many families, they count every penny – and the extra money, Lorna tells me, will have to come out of their food budget, which currently runs to around £80 a week, and is largely spent on the budget lines Lorna calls “value food”.
“Sam has very specific needs: there are lots of things that he needs – like nappies,” says Lorna. “And we can’t cut it from fuel, or electricity, or petrol. So when you lay that budget out over a month, with your council tax and water, and all your bills, there’s nowhere else it can come from: the only place we can cut from is our food budget. And we’re already having the cheapest food you can buy.
“I try and budget each day, like a daily allowance,” she says. “So it’ll just mean that when the yoghurt’s gone, it’s gone, and when the fruit’s gone, it’s gone. We’ll just have to go without things: that’s just the way it’s going to have to be.”
Towards the end of our conversation, there comes a grim twist. Contrary to their belief that they will only be penalised for one bedroom, the PR from the housing association raises the possibility that Sam’s dedicated sensory room might be deemed to be “spare”, meaning that the Holdens will be two bedrooms over their threshold, and faced with a hit of £28 a week.
Suddenly, Lorna looks panicked. How, I wonder, will they be able afford a cut of that size? “I don’t think we could,” she says.
The government’s official blurb says the spare bedroom tax is intended to “contain growing housing benefit expenditure, encourage greater mobility within the social rented sector, make better use of available social housing stock, and improve work incentives for working-age claimants”. It makes rules on housing let by councils and housing associations even tighter than similar regulations covering privately rented accommodation – and in that sense, drastically weakens the “social” aspect of so-called social housing.
The new regime is exacting, to say the least. If you’re a separated or divorced couple who share the care of your children, only one of you will be allowed extra rooms; if the other keeps a bedroom for the kids, it’ll still be deemed “spare”. If a family contains two children of the same sex under 16, they must share, and the same will apply to mixed-sex children under 10. As the Holdens have discovered, whether a disabled child is entitled to a room of their own is a matter of some uncertainty, apparently being left to local authorities.
There will be no exceptions for foster carers, who might need extra space for children they look after. Even if a family or couple has had a house or flat kitted out with must-have facilities for someone who’s disabled, if they’re deemed to be under-occupying, they’ll still be penalised (to help such people pay the rent, the government has set aside an extra £30m a year for discretionary payments, though help will be given on a temporary basis, with no kind of hard entitlement – and besides, next year’s extra funding set aside to deal with the fall-out from housing benefit cuts amounts to just 6% of what the government intends to save).
The spare bedroom tax will affect around 670,000 people. Because of the large numbers of elderly people who’ll be affected, it’s estimated that around two thirds will be disabled. In general, one thing seems beyond doubt: the huge national housing shortage means that the government’s imagined spurt of mass downsizing simply cannot happen – the Holdens, for example, have asked their housing association to look into the availability of four-bedroom places, only to be told that there’s a very long waiting list.
The changes will hit the north far more than the south, chiefly because social housing in the UK’s old industrial centres is often synonymous with bigger properties, and there has never been big demand for one- and two-bedroom flats. In that sense, the spare bedroom tax chimes with rising resentment about how disproportionately the government’s mixture of cuts and “reform” are hitting different parts of the country. The north/south factor also explains why this most remarkable of stories has barely broken through into the national media – which, according to those who are having to spread the word, means plenty of the people who’ll be directly affected seem to be barely aware of what’s about to happen.
Five minutes from the Holdens’ house, I meet 24-year-old Jason Gaffney. He’s unemployed, and on the government’s work programme. His flat has two bedrooms, one of which he uses as a compact studio: he’s a talented artist and sculptor with A-levels in art and fine art, who says he wants to become self-employed and sell his work – fantasy-based stuff full of psychedelic elements redolent of Grateful Dead albums – online.
His jobseeker’s allowance brings in around £100 a fortnight, and housing benefit covers his £300-a-month rent. But he’s deemed to be one bedroom over, and must therefore find an extra £56 a month. “They’re telling me to budget, saying I’m going to have to tighten my belt,” he says. “What belt? We’ve already tightened our belts.
“If I’m going to get even less now, where’s that going to leave me? ” he says. “What will I have to cut back on? Food. And heating. I hate paying for heat. I’ve run up debts on heat. And water.”
The government’s essential idea, I remind him, is that he should move to a one-bedroom flat. “What one bedroom flat?” he shoots back. “There are no one-bedroom flats, that’s the thing. They haven’t been built. I’ve asked the housing association that. They don’t exist.” He could conceivably find a one-bedroom place on the local private rental market, but a quick trawl online suggests that it would cost a minimum of £350 a month, which would actually put his housing benefit up.
Such is the mess of contradiction and impossibility the spare bedroom tax has kicked up. In Manchester, a call to a local councillor leads me to the Mosscare Housing Association, and Tola Adesemowo, their housing services director: she tells me she’s taking on extra staff to deal with the fallout from the bedroom tax, and that most of her affected tenants either can’t or don’t want to move – so, to enable them to take the financial hit, the association has been referring some to food banks.
In Leeds, a spokesperson for the city’s Tenants Federation tells me about one particularly remarkable aspect of the spare bedroom tax’s consequences: the fact that the city council long ago decided that flats in the upper reaches of tower blocks were ill-suited to families, and let them to single people and couples – who moved in good faith, but are now being hit by the spare bedroom tax en masse. The whole thing, he tells me, is “time bomb waiting to go off”.
Talking to people who are anxiously awaiting the spare bedroom tax’s effects, questions extend into the distance. What, some wonder, is to stop people claiming a bedroom is a study or home office? “We are not defining a bedroom,” says a statement sent my way by the Department of Work and Pensions. “A tenancy agreement normally states the numbers of bedrooms within a property, and the rent will reflect this.”
How will people’s use of bedrooms be monitored? “It is a responsibility of the claimant to inform us of the size of a property and those living in it,” the same text goes on. And what of the chronic shortage of smaller properties in such places as Hartlepool? In response to this question, I get a remarkable reply: despite the fact that the same statement bemoans people living “in homes that are too large for their needs”, it also acknowledges that “most people will not move” and claims that “there are other options available such as taking up employment, increasing hours worked or taking in a lodger”.
As the other cuts to benefits are also on the way, there’s high anxiety among councils and housing associations about massive increases in rent arrears, which will have one simple upshot: fewer houses will be built. And underneath just about everything you hear about the spare bedroom tax lies one rather chilling augury of the UK’s future: the fact that, for a swathe of Britons, the certainty of a stable and enduring home is now apparently out of bounds, and family life will in future take place against a backdrop of uncertainty, anxiety and the heavy hand of government.
Back in Hartlepool, Stuart and Lorna Holden tell me there’s a lot of local talk about how to beat the spare bedroom tax using the simplest of expedients: human reproduction. “My personal opinion is that if you start adding bedroom taxes on and saying, ‘You’re under-occupying’, people are just going to occupy that space by having more kids,” says Lorna.
“I’ve heard people saying that,” says Stuart. “‘We’ll just have more kids then. We’ll fill the bedroom.'”
“And then they get more benefit from the government because they’ve got more kids,” says Lorna. “So what they’re really doing is punishing people who are trying to work, and bring up a family, and who need that extra bit of support to make ends meet. I just don’t see how it’s going to work.”
Newsflash! Claire Khaw Arrested, Apparently For Blog Post Accusing Jessica Thom Of Putting On Tourettes
Readers, I’ve just seen a post on Facebook from last night saying:
The creator of this page Claire Khaw has been arrested this morning! – Apparently it is with regards to a blog entry she wrote suggesting a woman called Jessica Thom who has tourettes might be faking the condition. No further details are available at this moment in time!
Regular readers will know I dislike Claire Khaw with a strength I usually reserve for… well… members of the BNP. Which is exactly what she used to be.
Regular readers will also know that I post about Jessica Thom whenever I possibly can. I may not yet have written this anywhere on this site, but let me put it on the record here. I love Jessica Thom to bits!
Jessica Thom, if you or anyone who knows you personally should happen to read this post, please know that I know you are not faking Tourettes.
As for the original post, it has been removed ‘for legal reasons.’
However, wonderful hub site Politicus have a record of its full title which was:
How many people think Jessica Thom the biscuit woman is putting it on to avoid her responsibilities of being a normal person?
The Facebook group where I first read this information has just confirmed that Claire Khaw has been arrested and bailed until March and her computer has been siezed.
Disabled Soldier Taking DWP To Tribunal Over Carers Allowance Cut
A seriously disabled British soldier injured in Iraq is taking the Department for Work and Pensions to a tribunal next week after they cut his carer’s allowance.
Adam Douglas, 45, a former lance corporal with the East and West Riding Regiment (now the Yorkshire Regiment), was wounded in a grenade attack in 2003 and then hurt in an accident in Basra in 2006. He has had more than 20 operations on his spleen and spine but doctors say there is no more they can do. Though he regained some independence after being fitted with a device to help him better control his bowel and bladder functions, he says he still needs help washing and going to the toilet, and regularly uses a wheelchair.
He says that six successive doctors, including three appointed by the DWP, have agreed his injuries are serious.
But assessors from the department have stopped a £70 monthly allowance to Douglas’s wife, Maria, for help with his “bathing and toileting difficulties” after in effect accusing him, he says, of “faking” his injuries. The DWP said he had failed to inform them of a “change in circumstances”, essentially that his health had improved.
It’s a decision described by Douglas’s former platoon sergeant, Andrew “Jock” Henderson, as “an absolute disgrace”. He said: “British soldiers are thrown on the slagheap when they return from combat – we give this country freedom and look how the government treats us.”
Henderson wrote to the tribunal: “Corporal Douglas was considered for a serious commendation for gallantry. His actions were directly responsible for the saving of large loss of life or injuries to others by preventing the tanks and infantry to cross undetected into friendly forces’ rear areas.”
On Monday, Douglas will attempt to overturn the decision at a tribunal in Leeds. He believes he is being punished for getting his life on track: he founded the Forgotten Heroes, a charity for the carers of wounded service personnel, and got a job. “What’s the point of having these medicals done if a decision-maker can simply overrule them?” he said.
“They couldn’t have picked on a more honest man: I work full-time, I am the chairman of the only forces charity that is dedicated to solely the carers, I am a school governor for children with special needs and I am a prospective candidate in mainstream politics and I stand as a candidate as a prospective Leeds city councillor.”
He added: “Just because I have these injuries, why can’t I maintain what I do? Why do I have to be labelled with ‘I must have to stay at home and do nothing’? Why can’t I still be productive and contribute? I don’t want to stay at home and cry into my spilt milk, it won’t get me anywhere. Finally I have a mortgage to pay and even with Maria working full-time and me claiming everything that I could possibly claim, we would still be left with no cash to spare each month or possibly not enough income to pay for a mortgage and daily living.”
Alan Taylor, a vicar and Liberal Democrat councillor in Leeds who was until recently the city’s lord mayor, said in a letter to the tribunal: “I have known Adam for the past four years as a political colleague and during that time I have had no reason to doubt his integrity or honesty.”
Douglas says five tribunals found in his favour when he challenged DWP decisions involving other benefits. However, the DWP cut the care allowance and demanded repayment of £351. His life insurance provider Scottish Widows had carried out a covert investigation into him after he tried to cash in a policy that would mean his £28,500 mortgage was paid off if he could prove he was either dead or critically injured.
Scottish Widows said his injuries did not meet its criteria for “total permanent disability“. He appealed to the Financial Ombudsman Service (FOS), arguing that the occupational therapist commissioned by the insurers was unqualified to assess many of his disabilities, particularly those associated with his toileting problems.
The Guardian has seen the occupational therapist’s report, which assessed him on five criteria: washing and bathing, dressing and undressing, eating, toileting and moving from bed to chair or wheelchair. She says she would expect Douglas to be able to do many tasks but reported no evidence of seeing him do them – for example, being able to getout of the bath unaided.
The FOS dismissed Douglas’s complaint, he said, on the basis that the financial procedures followed by Scottish Widows were correct. The FOS cannot rule on medical matters.
Despite his failed appeal, Douglas continued to pursue his case with Scottish Widows. It then put him under surveillance, apparently suspicious after learning he had set up the charity and was working as an administrator at a local primary care trust.
He says he was recorded apparently offering help to removal men when he was moving to a more disabled-friendly home but Douglas insists he did not and could not have carried anything heavy into the house and that the video merely showed him directing friends who were helping him move.
A joint police and DWP fraud investigation was opened. But last March the Ministry of Defence police told Douglas the case had been discontinued.
He used the Freedom of Information Act to get copies of the three medical reports carried out during the DWP investigation. The DWP uses a scoring range from one to three, three being the greatest level of impediment. Douglas says he scored three on all the back, leg and spinal examinations.
Helen Barson, who has worked with Douglas for three years at NHS Leeds, has submitted a statement to the tribunal which reads: “I can honestly say Adam manages his disabilities with incredible discretion but there have been occasions when his catheterisation equipment has let him down and I have had to give him help so that he can get to the toilet to sort himself out.”
A spokesman for Scottish Widows said: “We have reviewed this case in detail and the situation remains that Mr Douglas’s disability does not meet our total permanent disability claim criteria. Mr Douglas took his case to the Financial Ombudsman Service in 2009 who advised that his complaint would not be upheld.”
The DWP said: “We owe the men and women who have served their country a huge debt of gratitude and will do everything we can to help them to find work and make sure they get all the benefits they are entitled to if they are injured.
“We agree that the current DLA [disability living allowance] system is confusing and can result in inconsistent awards. That is exactly why we’re reforming the benefit, so that seriously injured members of the armed forces will automatically get the support they need to help them with the additional costs associated with their injuries and won’t have to do a separate assessment.”
Minister To Review PIP Assessment Regulations
Ministers are reviewing how disability assessments are carried out following criticism of changes to Personal Independence Payments.
Only those who cannot walk for more than 20m – rather than the previous 50m distance – will qualify for PIPs.
But peers said the regulations did not include the requirement that tasks could be done “reliably, safely, repeatedly and in a timely manner”.
Welfare Minister Lord Freud said he was looking “very actively” at the issue.
Lord Freud came under fire over the new system of Personal Independence Payments, which replaces Disability Living Allowance, during question time in the Lords.
Legal challenge
Ministers say the new benefit will be targeted at those who need it most.
Independent crossbench peer Lord Alton of Liverpool said the new regulations failed to include the phrase “reliably, safely, repeatedly and in a timely manner” – used as the criteria to decide whether people can carry out essential tasks such as walking and dressing.
Lord Alton said one third of disabled people lived in poverty and it was estimated 42% fewer people would be eligible for mobility allowance.
The revelation that some people “will have their specially adapted vehicles taken away from them or offered to them to buy” had caused “widespread disbelief and considerable distress”, he added.
Liberal Democrat Baroness Thomas of Winchester said: “If these words were not made statutory in some way or another, the number of appeals would rocket so much and there would be such a period of uncertainty in so many ways for so many people that it is not worth not putting them in.”
Lord Freud said he recognised the strength of feeling and the government was “very actively” looking at putting the words into the regulations “in a way that works legally”.
He said he hoped to present peers with a “definitive” approach in a week’s time.
‘Inadequate discussion’
Crossbencher Baroness Grey-Thompson, a Paralympic gold medallist, hit out at a “lack of consultation” on the changes, stating that the 20m walking rule for eligibility for the ehanced rate of PIPs should have been included in consultation documents.
She told Lord Freud there was a “real risk that this is open to judicial review”.
Conservative Lord Sterling of Plaistow, chairman and co-founder of Motability – which provides more than 620,000 vehicles for disabled people – also criticised the proposals.
He warned: “There is concern amongst disabled people at the recent change from the 50m to the 20m as the distance specified in the regulations for high rate mobility (allowance).”
Lord Freud responded: “I have to accept that there was not adequate discussion on this and there is not adequate understanding, just from the concerns I am hearing today about this.”
The Department of Work and Pensions maintains it is making an out-dated benefit much clearer, and that broadly the same number of people will be entitled to extra mobility help.
Stanbridge Earls School Trustees Agree Safeguarding Plan
Trustees of a school criticised in a tribunal for excluding a girl after she said she was raped twice by students have agreed a safeguarding plan.
Stanbridge Earls School for children with special educational needs in Romsey, Hampshire, was found to have discriminated against the girl.
The tribunal said it had cause for “grave concerns” about safeguarding.
The trustees agreed to appoint an independent expert and provide specialist training to staff.
The First-tier Tribunal Special Educational Needs and Disability found the school failed to protect a vulnerable disabled pupil who was a victim of grooming and sexual abuse by male pupils at the school.
Tony Knight, chairman of the trustees, said they were “taking comprehensive and immediate action to ensure that safeguarding needs at the school are properly met”.
“The tribunal’s requirements will be met as a matter of urgency.
“Independent advisers will be engaged to ensure the process of reform is transparent and benefits from a wide range of expertise.
“While the school has consistently been highly rated for its standards of education and safeguarding, this episode – a highly regrettable and unique case which does not reflect the way the school normally meets the needs of its pupils – shows there is always more that can be done.”
The tribunal heard the girl visited the school nurse and said she had had a sexual encounter, but the school did not contact her parents, believing she had consented to the encounter.
She later told her mother that she had had sex in a separate incident and she contacted the school.
The claim was reported to the police via Hampshire Social Services when her parents were told about the previous sexual encounter.
The following term the girl says she was raped again and the school said she would have to be excluded because she had broken rules by having sex on school grounds.
The tribunal branded the failure “inexcusable”.
The girl, who cannot be identified for legal reasons, no longer attends the boarding school.
Housing Benefit To Be Paid Directly To Tenants From October
Readers, what do you think about this? How will it affect disabled people who can’t manage money well?
Changes to housing benefit later this year could lead to a rise in evictions, a key housing body has warned.
From October, the benefit will be paid to the tenant once a month instead of directly to the landlord.
The National Housing Federation said it expected rent arrears to increase by £245m a year as a result.
The government said tenants should have the responsibility for paying their rent, rather than the money going directly to housing providers.
‘Roof at risk’
In a survey by the federation, which represents housing associations including some of Britain’s biggest landlords, the majority of tenants said they would struggle to prioritise saving money for rent over food and other day-to-day costs.
The increase in arrears suggested by the research would represent a 60% rise.
Federation chief executive David Orr said: “Within a few short months, hundreds of thousands of low-income families will see their housing benefit cut as a result of the Welfare Reform Act.
“Many could fall behind on their rents, putting at risk the roof over their heads.
“Housing associations are doing their best in tough circumstances to cushion the blow for their residents. But there is still a lot of uncertainty, including in government, as to the full impact of its reforms.
“We need more time to understand and prepare for the impact of these massive changes to the welfare system.”
The study, involving 232 housing associations in England, found that 15% of these organisations thought their rent arrears could double.
Falling behind
Mike Doran, of the Plus Dane Housing Association in north Liverpool, said: “If our arrears go up that affects the credibility of our business in terms of how we borrow money to build new houses, about how we provide support to vulnerable people, how we repair and maintain our homes.”
BBC home editor Mark Easton said government pilots of the changes had found many more social housing tenants falling behind with their payments than before.
However, Work and Pensions Minister Steve Webb said: “Where people are in work or renting privately they have to budget out of the money they have coming in to pay their rent.
“We’re extending that principle, treating social tenants the same, so that they learn the same budgeting skills and if they move into work it’s not a great shock.
“We recognise a minority will struggle to budget, and they will need special support, but the norm will be that people have an income coming in and they budget out of it. That will be the normal thing to do.”
Our correspondent said that some vulnerable tenants would be allowed to switch back to the old system.
But many in the housing sector feared that would not be enough and it would see many people losing their home, he added.
Thomas Williams, Man With CP, On Disability, Sex And Sex Workers
Max Munday, a radio journalist from Sheffield, read my blog at Independent Voices today about Becky Adams’ plans for an accessible ‘brothel’ for physically disabled clients.
He then contacted me and sent me a link to his own blog post on the topic. His post includes an interview, recorded last year, with a man who has CP, Thomas Williams. Thomas Williams was giving his views on disability, sex and sex workers, based on a movie about these subjects called Scarlet Road.
I found the interview very good and I think it raises some interesting points. Max Munday kindly agreed to let me share it with you below.
UK Rapper With Spina Bifida Goes From Bedroom To Big Apple
Man of the Street, is the title song from the debut album by Kray-z Legz, a new UK rapper with spina bifida.
Mixed in New York by well known hip-hop producer Anno Domini, the autobiographical track is about the rapper’s childhood. During this time, Kray-Z Legz had over 30 painful operations. It includes personal lyrics like: “U had to be the man, who had to stand strong. Always stood by my side, Every time time every op.”
The 24 year-old wheelchair user comes from Street in Somerset, which is arguably a little less “street” than New York and California where established disabled rappers Four Wheel City and Krip-Hop Nation, can be found.
Music has always been important to Kray-z Legz, aka Mark Humphries, who started playing the violin aged four. In his teens he became known locally as a drum and bass MC, working with acts such as Grooverider, and Drumsound & Bassline Smith.
Other words from the track: “Still I love u dad, Even now I’m a man. I’m a make things right, take ya hand from the can” Refer to this period of Mark’s young life, spent living with his then alcoholic father.
Mark was failing English before he started writing songs. Penning lyrics led him to study poetry which helped him pass his exams. He went on to do a catering qualification before focusing completely on his first love, music.
All the lyrics are written and recorded in the home studio Mark and his best friend Gavin saved for years to create. They plan to release Man of the Street on their new record label, Lost4tz. But Mark has yet to make any money from his musical endeavours.
Sought-after US producer Anno Domini mixed the album for Kray-z Legz; he has also produced tracks for top artists Wu-Tang Clan and D12. He did the work for a nominal fee of 150 dollars because, in Mark’s words: “He knows that I am in a wheelchair and live on benefits and would otherwise have been unable to afford to do it.”
We’ll play Man of the Street, by Kray-z Legz, on the next Ouch! talk show which you can download here from early February.
The album of the same name is due for release as a download next month.
I’ve been sent this video by email- an interview with an actor currently playing a disabled character in a new American comedy.





