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Government Independent Review Into #BedroomTax

October 15, 2013

This looks like good news, I wonder why there hasn’t been more coverage of it?

The government are undertaking an independent review into the impact of the “bedroom tax” amid criticism from MPs and the public that a thorough impact assessment was not conducted before the sweeping benefit changes come into force.

 

Deputy Prime Minister Nick Clegg said the review, which was announced by Iain Duncan Smith in March, would help to understand the “impact” of what the government calls the spare room subsidy:

 

I have seen lots of widely different figures being cited about the impact of this policy – that is why we are commissioning independent research to exactly understand the impact of this.

I suspect it varies enormously between one part of the country and another, and one local authority and another. That is why we are trebling, as I say, the resources we are making available to local authorities.

The Touch Art Fair

October 15, 2013

The first art exhibition for visually impaired people in the UK. Full information here.

#JusticeForJames Oxfordshire County Council: Don’t Make James And Others With LD Homeless

October 15, 2013

An email from Change.org:

My brother James is 25 years old and has Down’s Syndrome.  He lives in a normal house with another person who also has learning disabilities.  They are able to live there because they receive support that allows them to live as independent and fulfilling lives as possible.  James is finally settled and has a home that is his.  Now all this is being taken away from him.

This month James was served with an eviction notice.  My parents have been informed that due to budget cuts to the care agency that look after him, James will no longer get the support he needs to live in his home and will have to leave.

James struggles to deal with change.  He has been living in his current house for 15 months and it has taken him almost this length of time to settle in and call it his home.  James will never be able to live completely independently as he would not be safe to do so.  He requires help on a daily basis to take medication and assist him to do basic things like washing clothes and cooking his food.  If there was a fire or an accident James would not know how to cope.  He needs the 24-hour support.

He also likes his own space in a quiet environment, anything too noisy makes him very anxious.  This means that living with another person with learning disabilities while being supported through the day and overnight allows him a good balance between living independently and living a healthy life.  He is happy, secure and safe.

However the council are now cutting the budgets given to care services and the agency that gives James the 24-hour support he needs is being forced to take it away.  It means that as of 1 December my brother James is going to be made homeless.

His needs have not changed but Oxfordshire County Council has to make £61m of budget cuts and this means that the most vulnerable people in society are beginning to suffer.  Yet about £7m of Oxfordshire’s public money is still tied up in Icelandic banks almost five years after they collapsed.

This is not just about James; it’s about all those vulnerable people in society who cannot stand up for themselves and make their voices heard.  James is just one of many who will be affected by this callous change in funding.  

We know of other people with learning disabilities who have no parents or close families that can help them fight to stay in the only place they know as home.  These people will be forced into services that may not suit their needs, where they don’t feel safe and secure, where they feel unsettled and anxious and out of place but these places are cheaper for the council to sustain.

No-one deserves this but this is what we are pushing our most vulnerable members of society towards.  We are not making progress for those people who in past generations would have been placed in institutions; their plight is still just as hidden as councils brush these changes under the carpet under the guise of “saving money while at the same time creating better outcomes for service users”.  My brother is not a “service user”; he is a person who has a home that he loves and wants to stay in.

James has not had a choice and has not been in control as to what happens to him.

Sign this petition and tell Oxfordshire County Council not to make people with learning disabilities homeless.

CQC Could Use Hidden Cameras

October 15, 2013

Any thoughts on this, readers?

Hidden cameras and mystery-shopper exercises may form part of a revamped inspection regime for care homes and domiciliary care in England next year.

 

New adult social care chief inspector Andrea Sutcliffe said she wanted to explore the role such techniques could play in uncovering abuse and neglect.

 

But she admitted their use would have to be balanced against the need for privacy and dignity in such settings.

 

The move will be considered ahead of the launch of a new system next year.

 

From next autumn, services will be given an Ofsted-style rating of outstanding, good, requires improvement or inadequate to mirror the system being rolled out for hospitals.

 

The new Care Quality Commission (CQC) inspections will determine whether services are:

 

  • safe
  • caring
  • effective
  • well led
  • responsive to people’s needs

 

This replaces the current system, which relies on 16 core standards with which services are either compliant or non-compliant.

 

The make-up of the inspection teams are also being changed to ensure they include experts in the care sector – to date the CQC has relied on general inspectors – and members of the public with first-hand experience of the system.

 

The inspections will start in autumn 2014 with the aim that each of the 25,000 care homes, nursing homes and domiciliary care agencies will be inspected by March 2016.

‘Fresh start’

Ms Sutcliffe – who is one of three new CQC chief inspectors following the appointments of similar posts covering GPs and hospitals – also warned she was prepared to use the powers at her disposal more than they have been to date.

 

The CQC can issue warning notices, fines and even close down services if they are failing.

 

 

She added: “This is a fresh start for how care homes, home care and other adult social care services are inspected and regulated across the country.”

 

She said she would be discussing the option of using hidden cameras and mystery shoppers – where people posed as individuals looking for care for a loved one – in the coming months, with providers, councils and the public.

 

She acknowledged the potential of secret filming had already been demonstrated by the way the BBC’s Panorama programme in 2011 exposed the abuse at Winterbourne View, a care home near Bristol for people with learning disabilities.

 

 

But she added: “We have to consider the privacy and dignity and how we can balance these.”

 

Simon Wood, who installed his own CCTV cameras to check on the care his mother-in-law was getting, told the BBC what filming uncovered.

 

“Mum getting sworn act, threatened, hit, medication being poured down the sink, not being given to Mum, it was quite upsetting and quite horrendous to see what she was going through,” he said.

 

“The final thing was when the two carers… dragged her out of a chair and threw her on the bed and threatened to smash her face in.”

 

Care and Support Minister Norman Lamb said there were “serious flaws” in the current system that needed addressing.

 

“Confidence in the regulation regime has been shaken, but we have turned a corner. I welcome the chief inspector’s new commitment to protecting people vulnerable to abuse and neglect,” he added.

 

But Steve Sollars, the parent of a former resident at Winterbourne View, said he was worried the move was too little, too late.

 

“It’s too slow to what’s happening,” he said.

 

“Winterbourne View happened two-and-a-half to three years ago. Things should be happening now.”

If you think Labour took a wrong turn, here’s Iain Duncan Smith

October 15, 2013

Mike Sivier's avatarMike Sivier's blog

Even after Rachel Reeves’ recent lurch to the Right, Labour’s behaviour remains beyond saintly in comparison with the gutter-vermin who describes himself as the Secretary of State for Work and Pensions.

I read the following altercation, copied verbatim from today’s Hansard (the record of Parliamentary events) on Facebook and almost despaired. The following took place during Work and Pensions Questions.

Andy Sawford (Corby) (Lab/Co-op): “Will the Secretary of State confirm whether benefits officers been have told not to sanction people when the only job offered is on a zero-hours contract? Do Ministers recognise that the new claimant commitments mean that people will not actually be able to sign zero-hours contracts without risking losing their in-work benefits?

Mr Duncan Smith: “The claimant commitment is about people’s obligations under the existing terms. They will have to seek work, attend interviews and try to get a job, and once they are offered a…

View original post 202 more words

The On Benefits And (Not) Proud Open Thread

October 15, 2013

Readers, what did you think of Channel 5’s On Benefits And Proud?

Personally I was very upset by the fact that they chose to leave it to the last possible moment before revealing that Heather Frost has  a child who gets DLA.

However, at the same time, I was upset that they showed a mother telling her daughter of 20 that doing the job she had just landed with pride would not be worth as much to her as a life on benefits. Revealing that view gives out a very wrong idea about all those of us who would love to work, but just can’t.

After reading this short review on ATOS Miracles, I thought I would have an open thread for discussion of the programme.

New benefits tool launched to help more people through difficult times

October 14, 2013

A guest post from Turn2Us.

 

 

2013 has seen the start of some of the biggest ever changes to the welfare benefits system, affecting millions of people across the UK. This includes the introduction of: Universal Credit replacing six means-tested benefits for working age people; Personal Independence Payment replacing Disability Allowance; and a cap on how much money people can receive in benefits.

 

Our own research has found that nine out of ten people are worried about these changes, and we know that many people are confused about how their entitlements may be affected. At the same time as this huge benefits shake-up, the cost of food, energy and other everyday essentials has continued to rise, and many people have had their incomes frozen or reduced.

 

It’s more important than ever that people in need are aware of the financial support available to them, and we are working to help them access the funds that could make all the difference to their situation.

 

That’s why we’ve just launched our new online Benefits Calculator. It’s a free and easy-to-use tool that helps anyone to find out what welfare benefits they are entitled to, how much they should receive and how to make a claim. With welfare reform taking effect, and personal finances being increasingly stretched, the new calculator will help more people to check and access the support they may be entitled to.

 

The calculator includes an estimate for Universal Credit entitlement and how this compares to current benefit rates, to give people an idea of how their benefits may change when this new benefit rolls out nationally from next year. In addition, people can use the tool, which is mobile-friendly, to calculate their future benefit entitlement as their personal circumstances change. The calculator also links to our Grants Search tool to help people find other sources of financial help and support from charitable funds.

 

Anyone could experience financial hardship at any time in their lives, due to illness, job loss, caring for someone, and many other different circumstances. For example, Graham and his wife were living on a comfortable household income until Graham suffered a serious fall and broke both his legs, leaving him unable to run his business. He had to sell his company and his wife gave up her job to look after him.

 

Graham had never claimed benefits before so went to seek some advice and was recommended to try Turn2us. Using our service, Graham found he could claim Employment and Support Allowance because of his condition following the accident. He now receives £144 in ESA every fortnight, which he says has kept him ticking along and helped him to budget for the weeks ahead.

 

We hope our new tool will help even more people like Graham to boost their income and urge anyone who is struggling to check what they might be able to claim today.

Spanish Thalidomiders Taking Manufacturer To Court Today

October 14, 2013

New scientific research appears to suggest the drug Thalidomide may have caused a wider range of deformities than previously thought. A new group of “Thalidomiders” now believe they should get compensation for their disabilities.

 

Gary Grayson, from Ipswich, shows me the very first pair of wooden legs he had to wear as a child. They are painted pink, but are heavy and ungainly.

 

The feet are not hinged and there is a complicated harness of steel and leather.

 

“They used to call me peg leg and wooden leg. They didn’t have a lot of imagination!” he says about some of his former schoolmates.

 

He was born in 1961 with extensive deformities to his lower limbs. His mother says that staff at the hospital reacted with horror.

 

“When I was born she heard the nurse gasp and leave the room.”

 

Before he was two years old he was admitted to hospital and had both his lower legs amputated. He was walking on artificial limbs within months.

 

His mother has signed an affidavit stating that she took Thalidomide, but he has never received any compensation for his injuries.

Morning sickness

Thalidomide was originally marketed as a sedative, but from the late 1950s was prescribed to women around the world to combat morning sickness.

 

By 1961 it was clear that it was causing serious birth defects and by late 1961 it was withdrawn in the UK.

 

Ten thousand children were born worldwide with terrible disabilities. It is thought many more died in the womb.

 

After a 10-year legal battle in 1973 the British distributors Distillers agreed to pay compensation in the UK.

 

The Thalidomide Trust was set up and more than 400 children were admitted to the group as beneficiaries.

 

The German manufacturers Grunenthal have never admitted liability to the British victims nor have they contributed to the Thalidomide Trust.

 

A statement from Grunenthal said: “Thalidomide is part of our history and always will be and we have accepted a responsibility to offer help. We have no legal responsibility to compensate individuals affected.

 

Gary Grayson’s parents applied to the Thalidomide Trust but doctors said his injuries weren’t typical of Thalidomide.

 

He did not let his disability hold him back and did well at school before joining the Ministry of Defence.

 

The 52-year-old’s work took him around the world, he rode motorbikes, married and had children. He’s now an information security specialist.

 

“In my younger years I did not see myself as a victim,” he says.

 

But now he has researched deeper into his own medical history and believes the proof is there.

 

He said: “Compensation in today’s world, must naturally follow.”

Legal action

His case has been taken up by several law firms under the banner of the Thalidomiders legal group, which is representing a number of other clients in the UK.

 

The legal action has temporarily stalled over funding and insurance, but elsewhere in the world other cases continue.

 

As those affected get older, their health is failing.

 

Today in Spain 185 people affected by Thalidomide are taking Grunenthal to court. They have never received compensation from the German company and are now seeking more than £175m in damages.

 

In Australia last year the distributors of the drug agreed to pay damages to fifty-year-old Lynette Rowe. More cases are expected to be settled later this year.

 

In Britain the legal picture is complex.

 

The Thalidomide Trust receives money from both the UK Government and Diageo the company which acquired Distillers. Since 2006 Diageo has put in an average of £7.5 million per year and has committed to do so until 2037.

 

The Trust has only admitted one new beneficiary in the last year and applies strict criteria for inclusion.

 

Those who feel they were harmed by the drug, but do not qualify for the Trust turn to legal action in the hope of getting compensation.

New research

Their cases may be assisted by new research being carried out at the University of Aberdeen by Dr Neil Vargesson.

 

His work involves observing the effect of Thalidomide on the development of chick and fish embryos.

 

He has in the past written expert reports for two of the solicitors acting for the new cases.

 

 

In the 1960s, experts decided that babies were damaged by the drug during a very short period in pregnancy – between 20 and 36 days after conception.

 

Dr Vargesson says questions can be raised about this time-sensitive window and the way the medicine reacted on each individual.

 

“The time-sensitive window was based on interviews with parents of severely affected children and relates to outward damage and severe internal damage.”

 

He concludes that: “Given the range of damage in Thalidomide survivors and given animal studies that show in one litter each foetus is damaged differently it’s clear to me the drug acts differently in each individual and embryo.”

 

That would mean that it is possible Thalidomide caused a wider range of damage than was first thought.

 

But he admits that: “We will never know the true range, it’s so difficult to go back 55 years and say well let’s have a look at these people, because most of them, we don’t even know who those people are.”

 

His work though is highly controversial. Other experts in the field disagree with his conclusions.

 

Gary Grayson is busy with his career in IT and does all his own DIY.

 

But he can see a time in the future when his health may deteriorate and he’ll need more help.

 

For that reason he is determined to continue with his legal action, but also for a much more personal reason too.

 

“It would mean the world to me, to be able to ring my mother and say they’ve admitted they’ve made a mistake.”

‘My Hearing Dog Is My Ears’

October 14, 2013

Steven Taylor has no memory of the accident that changed his life. One day, he was driving on a dual carriageway with his girlfriend Lydia, when a car undertook them. They went off the road and collided head-on with a tree. Lydia died and Steven was cut out of the car, having sustained severe head injuries and broken bones in his head and neck.

When he came out of hospital three months later, Steven had balance problems, poor short-term memory and found it difficult to process information. “My life had completely changed,” he says, “as I was totally reliant on other people for everything.” The accident also left him profoundly deaf. “At home I was very lonely and isolated, as I couldn’t hear what anyone was saying, so I didn’t go out at all.”

Things began to improve the day one of the staff who cared for Steven told him about the charity Hearing Dogs for Deaf People. Steven still remembers the first day he met his dog, called Echo, at their training centre. “I sat on the floor and she came up to me and put her head on my lap, and it was love!” he says. “Having Echo has given me the confidence to go out again. I’ve now done things that I never would have thought of doing and am back enjoying life again.”

Echo alerts Steven when the doorbell goes, or when the phone rings, and when his alarm clock goes off. “She is my ears when I’m out and about,” he says. “I couldn’t live independently without Echo, that’s how much she means to me.”

When Patricia Davies’ husband Fred died 18 years ago, she started to experience severe depression. She had been growing gradually more deaf since her 20s, and had also been diagnosed with macular degeneration. Now Davies, 82, has her dog, Wilma, who arrived 18 months ago, and says: “I go everywhere I did some years ago, as I know I have a partner with me to help me to manage my everyday life again.”

The biggest benefit John Wilson, 59, gets from his hearing dog is from the way it enhances his visibility as a deaf person. “No one who sees me knows that I am deaf unless I am with a dog wearing a hearing dogs jacket,” he says. “When they see the dog, people are not surprised that I don’t respond when spoken to!”

Hearing Dogs for Deaf People was launched in 1982. It aims to give deaf people greater independence and confidence by providing dogs trained to alert them to everyday sounds. Last year, statistics showed that 95% of recipients felt more confident after getting a hearing dog.

The charity has placed more than 1,750 dogs with deaf people: the oldest recipient a 96-year-old, the youngest a girl of eight. The training of a hearing dog lasts 18 months and the dogs typically work for seven to 10 years before retiring (when the recipient can decide to keep the dog as a pet if they wish).

The benefits of hearing dogs are clear, but despite people with assistance dogs having the same right to access services and buildings as everyone else under the Equality Act, the charity was recently forced to launch a campaign titled Let Us In after finding that 80% of hearing dog recipients had been refused entry to a shop, hotel or restaurant.

Wilson has been turned away from buildings and public transport, and thinks there is less awareness in bigger cities. “I was not let on to many London buses in the old days, which was humiliating and annoying. Taxi drivers were just as bad.” He adds that it happens rarely now he lives in a smaller community in Farnham, Surrey.

Although there are occasional barriers for hearing dog recipients, there are lighter moments too. Gareth Foulkes, who works on the Isle of Man, has had a hearing dog for 20 years, and currently has a dog called Derfel. He says there is a unique downside to having a hearing dog: when they break wind. “I was once in a meeting and my dog, Derfel, let rip. I turned to the woman sitting next to me and whispered: ‘I’m so terribly sorry.’ ‘Oh dear me Mr Foulkes,’ she said, ‘I thought it was your dog!'”

Taylor relates a question he was asked when he visited a school to raise awareness of hearing dogs. “One pupil asked how Echo alerted me to the door – did she bark?” He explained that Echo “alerts me with her paw, then leads me to the sound”.

Although Taylor still has problems with his balance and processing information following his accident, he says that, ultimately, it gave him a new outlook on life, and having a hearing dog made a crucial difference. “I now lead a full and active life,” he says. “I’ve met a beautiful girlfriend, I have built the home of my dreams, and I have also become confident when travelling. Echo has made such a difference to my life. I can’t thank Hearing Dogs enough.”

NextGen- F*** The Tories

October 14, 2013

Veronica Kenning’s #BedroomTax Protest- From Her Deathbed

October 13, 2013

I was sent this yesterday. If you haven’t seen it, please do watch and share.

Children’s Commissioner: ‘I Would Like DWP To Meet Some Of These Young People’

October 13, 2013

Ministers are being urged to review care provided for children with disabilities following research into the adequacy of support for families.

 

Children’s commissioner for England Maggie Atkinson called the findings “heart-rending” and “disturbing”.

 

The report suggested some families were unable to afford basic necessities for “a dignified life”.

 

The Department for Work and Pensions said the report contained “a small sample, presenting a partial picture”.

 

The study, carried out by the University of Central Lancashire (UCLan) for the children’s commissioner, found evidence that poverty meant some disabled children were not living lives that met international human rights standards.

 

Ms Atkinson said the research findings were “not an easy read”.

 

“This is about voicelessness and powerlessness, as well as about making ends meet,” she said. “It’s very poignant and very difficult to hear the stories.

 

“Money issues are very real and very challenging, but parents are equally saying they have little or no say in the ways services are planned and provided, from transport to access to youth, or play or leisure which is properly adapted for one’s disability.”

‘World leader’

 

The research was based on interviews and group discussions with 78 disabled children and young people and 17 parents.

 

It was co-led by a team of 11 disabled children and young people working with the university.

 

A spokesman for the Department of Work and Pensions rejected some of the conclusions.

 

“In fact, independent reports show how we are world leaders in support for disabled people with the UK’s spending on disability-related benefits a fifth higher than the EU average.

 

“The UK is also acknowledged as a world leader in supporting independent living for disabled people, having the best overall rating of 55 countries.

 

“We continue to spend around £50bn a year on disabled people and their services and our reforms will make sure the billions spent give more targeted support to those who need it most.”

 

Ms Atkinson acknowledged the government’s response, but stressed some of the “personal stories” she had heard painted a different picture.

 

She said: “I would like some of the officials who have no doubt written that statement to come and meet some of the young people, who will tell the very true story of living with a disability on a very low income, and then I would ask them to say that again.

‘Not human rights’

“There is a mum quoted in the survey, who because her child needs an adapted home, including a multi-sensory environment… was persuaded to make sure that was available.

 

“She will be paying for it until November 2022.

 

“There is also a young woman going through everything that adolescence brings with it, who needs incontinence pads.

 

“The benefits pay for four-a-day, she needs 10. That is not human dignity and it is not human rights either.”

 

Despite the criticism, researchers found “many examples” of disabled children receiving good care and services which they said “demonstrate how low income does not have to be a barrier”.

 

But evidence was also found of inadequate services, compounding the problems of some low income families.

 

The authors said that although families with disabled children often have rights to welfare payments and practical support, their basic incomes often do not cover the extra costs of raising and caring for a disabled child.

 

The team analysed three United Nations treaty documents: the Convention on the Rights of the Child, the Convention on Persons with Disabilities and the International Covenant on Economic and Social Rights.

 

Between them these treaties specify individuals’ rights to food, clothes and heating, to live independently, to be able to decide where to live, to live in their local communities and to the support and services they need to be able to do that.

 

The researchers found the lives lived by some disabled children and young people did not meet these basic rights.

 

“There were accounts of some disabled children, young people and their parents not being able to heat their homes properly or afford adequate clothing and food,” said the paper.

 

“Some were not informed or involved in decisions about changes to where they lived.

 

“Some experienced delays in adaptations being made to their homes and some did not have enough space nor support for independent living.”

Court Orders Sisters To Have MMR Jab

October 12, 2013

A judge has ruled that sisters aged 15 and 11 must have the MMR vaccine even though they and their mother do not want it, BBC Newsnight has learned.

 

The High Court decision, made last month, came after the girls’ father brought a case seeking vaccination.

 

The parents, now divorced, had agreed when married not to vaccinate the girls in the wake of the MMR controversy.

 

But the discrediting of concerns about an MMR autism link and recent measles outbreaks changed the father’s view.

 

This is the third time this issue has come before the court.

 

In 2003 a mother was ordered to have her child immunised against measles, mumps and rubella after the court ruled the benefits of vaccination outweighed the risks. In 2011, children in care were ordered to have the MMR jab against the wishes of their parents.

‘End of MMR debate’

When outlining her decision in the latest case, Mrs Justice Theis emphasised it was a specific case “only concerned with the welfare needs of these children”, but lawyers say as one of a series it confirms there is no longer any debate about the benefits of the vaccine.

 

Measles is a highly contagious disease characterised by a high fever and a rash.

 

In one in 15 cases it can lead to severe complications, such as pneumonia, and in a very small number of cases it can cause encephalitis – inflammation of the brain – which can cause brain damage or even death.

 

MMR is a combined vaccine against measles, mumps and rubella, three common infectious diseases of childhood. It was introduced in the UK in 1988 to replace single vaccines for each disease.

 

The first MMR vaccine is given as a single injection to babies as part of their routine vaccination schedule, usually within a month of their first birthday, then a second injection of the vaccine, known as the MMR booster, is given before starting school.

 

The first gives about 95% protection against measles, while two doses give 99-100% protection.

Vegan concerns

In 1998, a study by Dr Andrew Wakefield was published in the respected medical journal The Lancet raising the possibility that the MMR jab was linked to autism and bowel disease.

 

The report and the media furore that followed prompted many parents to decide against having their children vaccinated with the three-in-one injection, including the parents of the two girls at the heart of this case.

 

The elder daughter was given the first injection, but not the booster vaccine; the younger daughter did not receive any vaccinations at all – decisions made jointly by both parents at the time.

 

However, in 2010 Dr Wakefield’s research was found by the General Medical Council to have been “dishonest” and has since been entirely dismissed.

 

The father of the two girls says that this change, combined with an outbreak of measles in Swansea late last year, changed his mind in January 2013 about whether his daughters should be given the MMR jab. He says he was worried these diseases could have serious consequences.

 

According to the text of the court decision, seen by BBC Newsnight, the father’s solicitor wrote to the girls’ mother in January seeking her agreement that they should now be vaccinated, and saying that if she did not agree he would take the matter to court.

 

The mother did not agree and the matter eventually came before the Family Division of the High Court.

‘Children’s understanding’

A court-appointed welfare officer who spoke extensively to the girls said that neither of them wanted the vaccination.

 

The children were particularly concerned about the ingredients in the vaccine, which include animal-based materials; one of the girls is a vegan.

 

However, the officer said that when she asked them what would happen if they became ill with measles, mumps or rubella and needed medicine, they clearly had not thought about what the ingredients in that medicine might be.

 

The welfare officer said both children had been strongly influenced by their mother, who was very anxious about the jab.

 

Mrs Justice Theis decided that it was in the best interests of the children that they were vaccinated.

 

“I am aware that this is against the girls’ wishes but that that it is not the only factor,” she wrote. “The court also has to consider their level of understanding of the issues involved and what factors have influenced their views. I do not consider there is a balanced level of understanding by them of the issues involved.”

 

The mother’s lawyer Philippa Dolan told Newsnight that the girls had not yet been vaccinated despite the deadline to do so having passed on Thursday.

 

She said: “There are practical difficulties in enforcing the order and that is at the moment an ongoing issue. There’s not a legal deadline that’s a serious issue the parents are in discussion and everyone hopes it will be resolved without any more litigation.”

‘Crisis Meetings’ Over ATOS Doctor Shortage

October 11, 2013

From Disability News Service.

Crisis meetings have taken place across the country because the government contractor Atos Healthcare has a serious shortage of doctors able to carry out disability benefits assessments, Disability News Service (DNS) has been told.

The meetings came as the government prepares to begin a lengthy programme to reassess hundreds of thousands of disability living allowance (DLA) recipients for the new personal independence payment (PIP).

Atos has won two of four contracts to carry out PIP assessments, with nearly 140,000 of the tests to be carried out by Atos and its fellow outsourcing giant Capita in 2013-14.

But Atos is already performing more than 10,000 work capability assessments (WCAs) a week to reassess claimants of incapacity benefit for employment and support allowance (ESA), as well as assessing thousands of new ESA claimants every week.

Now DNS has learned that crisis meetings have been taking place across the country between Atos executives and civil servants, who have been sworn to secrecy about the reason for those meetings.

The Atos executives have been admitting that the company has a drastic shortage of doctors on its books.

The latest revelations will only add to the sense of doom surrounding the beleaguered outsourcing giant, which has faced repeated protests from disabled activists over the way it performs the assessments.

The public spending watchdog is already investigating concerns over the award of at least one of the PIP contracts to Atos – following a DNS investigation – as part of a major “value for money” study into the new benefit and its implementation.

And in July, the government announced that it was bringing in new companies to carry out WCAs, in addition to Atos.

The Department for Work and Pensions (DWP) said at the time that the move was needed to provide extra capacity and “drive down waiting times” because of a huge WCA backlog, but it was seen by many as a sign of government frustration with the company’s performance.

An Atos spokeswoman said in a statement: “We do not comment on internal contract meetings.

“Atos Healthcare does not need to recruit huge numbers of health professionals as our partner organisations already employ appropriately trained clinical staff.

“We do not only use doctors for PIP assessments but also nurses, physiotherapists and occupational therapists.”

A DWP spokesman added: “Meetings are held regularly with Atos to monitor their performance but we do not comment on the content of these.

“Assessments are carried out by a broad range of health professionals, including doctors, nurses, occupational therapists and physiotherapists.

“The Atos sub-contractors have their own large network of [healthcare professionals] working for them which Atos can use for PIP assessments. This has built flexibility into the system.”

Veronica Kenning- Wheelchair User, Dying Of Cancer, And Facing #BedroomTax Eviction

October 11, 2013

 

 

 

A wheelchair-bound mum dying of cancer is facing eviction from her council house in a bedroom tax row .

Veronica Kenning could lose the only home she has ever known after refusing to pay the £23.57-a-week demanded by Birmingham City Council .

The 57-year-old said she would fight her case in court – but admitted any hearing would have to be quick as she was given a year to live last August.

Veronica, who has also suffered from ME for 26 years, said: “I told the council I was never going to pay because I’m dying.

“They shouldn’t be asking for it. It’s disgraceful.

“I told them they could take me to court – but they would have to be quick.”

Veronica was told in February that she faced paying out under the bedroom tax after her daughter moved out of their three-bedroom home in Brook Meadow Road, Shard End.

The controversial benefits shake-up, which cuts payouts for those with spare rooms, came into force on April 1.

It was blamed for causing the death of Solihull grandmother Stephanie Bottrill, who was hit by a lorry on the M6 on May 4.

Veronica, who has cancer of the oesophagus, has already received a letter warning the council intended to seek possession of the home where she has spent her entire life.

The document told her: “Your rent debt is now at an unacceptable level and we are serving you with a notice of seeking possession. This is a legal notice and should not be ignored.”

Veronica admitted she had rebuffed the council’s attempts to encourage her to apply for cash to help her pay her way.

She said: “I haven’t got enough time left to waste it filling out forms.

“I might not even qualify. I’m making a stand.”

A spokesman for Birmingham City Council said: “We have been in regular contact with Mrs Kenning, urging her to apply for discretionary housing payment, which we feel, in her circumstances, she would qualify for.

“Indeed, we have told her we will take a telephone application to make things easier for her.

“Unfortunately she has refused on every occasion to make a claim.

“We are deeply sympathetic to Mrs Kenning’s plight and have written, phoned and visited her property in order to try to help her get the assistance available to her.

“However, her consistent refusal to allow us to help her has left us with little option as she has made it clear to us that she does not want to apply for discretionary housing payment.”

Should People Be On Reality TV If They Have Mental Health Issues?

October 11, 2013

Any thoughts, readers?

Charities have asked TV bosses whether people with mental health problems should take part in reality shows.

 

The anti-stigma campaign Time To Change, run by mental health charities Mind and Rethink, asked the question as part of their online forum.

 

Commissioning editors for BBC Three and Channel 4 said it depended on the contributors, contestants and show.

 

Ex-reality contestants, who took part in the discussion, said everyone involved in the show should be open.

 

Justin Gorman, the head of entertainment at Channel 4, said broadcasters are responsible for making sure everyone is safe.

 

 

“All of those people who appear in those shows, regardless of their backgrounds, and indeed their mental health, the most important thing to us is their welfare and our duty of care to them to ensure that they’re looked after through the process and indeed, at the end.

 

“I think everyone should be allowed the possibility of being on the show, but ultimately it is our job to ensure that no-one is put in a position where they’re going to come into harm.”

 

The commissioning editor of BBC Three, Elliot Reed agreed with Justin Gorman, saying they involve as many people in the production process as possible.

 

“We talk to family and friends, we talk to employers, we talk to doctors and we build up a picture around this person in order to assess whether they can cope with the filming process.”

Nikki Graham was a Big Brother housemate in 2006. The 31-year-old suffered from anorexia for 23 years and said she was happy to speak publically about her mental health issues.

 

She also admitted she wasn’t truthful about her mental health issues the first time she auditioned.

 

 

“I knew that it would hinder my chances of getting in if I told them the fact that I suffered from a mental health illness.

 

“I mean the first time I applied, it did jeopardise my role as a housemate after getting quite far in the audition process. So I realised that the second time I auditioned not to tell them.”

 

She said she wanted to turn her experience into a positive thing and wrote a book documenting her struggles with anorexia.

 

“I’ve had so much feedback, positive feedback, saying that my experiences, speaking about them has helped people.”

Shirlena Johnson auditioned for The X Factor in 2010 and said she was completely honest about her history of mental health issues when she filled out her application details.

 

“I lost my dad so it was bi-polar and depression.”

 

Johnson was dropped from the show despite making it to the judges’ houses.

 

“They just told me in person in the office and that was it really. The doctor also said I wasn’t fit to do it, when I was.

 

“By actually doing that can make it worse for the individual, they don’t take that into consideration.”

ATOS Miracles Want YOUR Stories

October 11, 2013

From the Welfare News Service:

Across Britain there is a wave of anger spreading at the lengthy and intricate bureaucracy of the Department of Works and Pensions (D.W.P), ATOS Healthcare and the Tribunals who assess people claiming sickness benefits.

Tens of thousands of people with substantial health problems such as cancer, multiple sclerosis, cerebral palsy, spinal problems and other physical or mental health problems are expected to ‘prove’ that they are unfit for work, which might sound like an easy enough task- such as obtaining hospital and doctor letters and medical results, and then submitting the medical results to the Department of Works and Pensions.

The truth is that medical results and recommendations from the medical profession to abstain from work are greatly ignored by the Department of Works and Pensions, and as you read further into this article you will learn about the way that three separate departments, (two of which are Government run) collaborate and use very unfair assessment procedures to cut genuinely ill people off sickness benefits.

1. In the year 2010 I was assessed by an ATOS Healthcare practitioner for the first time. I provided the ATOS Healthcare practitioner with my C.T and M.R.I spinal scan results. Most of my main physical problems and other medical reports were correctly noted by the ATOS Healthcare practitioner in 2010, and acknowledged by the Department of Works and Pensions. I won my first Tribunals appeal and sickness benefits were reinstated.

In the year 2011 however, my mental health conditions and some physical problems were not noted by the ATOS medical practitioner during the work-capabilty-assessment (WCA) medical examination. I later compared an audio recording of that ATOS medical examination with the written ATOS report, and noticed that during the interview I emotionally broke down, but the ATOS medical examiner wrote that I had ‘coped well during interview’.

2. A person is not able to read their ATOS Healthcare medical report until the Department of Works and Pensions (D.W.P) has read the report and made a decision on benefit entitlement. Therefore, it was impossible to verify if the ATOS medical examiner had included my main supporting arguments in the medical report before the Department of Works and Pensions made a decision on my benefit.

3. The Tribunals (now part of H.M Courts) are the Government body responsible for benefits appeals. A person will often have to wait many months before a Tribunals hearing is scheduled. The lower-Tribunals Judge and Tribunals-appointed doctor receive the ATOS Healthcare medical report and decide whether to overturn the Department of Works and Pensions decision. If the Tribunals turn down the appeal then the second option is to appeal to the Upper Tribunal.

A district Judge decides whether to allow the appeal to continue to the Upper tribunal and in my case the district Judge decided that I was not allowed to appeal to the Upper Tribunal, which means I have no other options available but private legal action, which I cannot afford. A person’s ATOS Healthcare medical report is pointless if a person is blocked from challenging their appeal in the Upper Tribunal by a district Judge.

4. The physical actions of bending or kneeling were removed from the Department of Works and Pensions assessment scoring procedure in the year 2012. ATOS Healthcare work-capability-assessments are pointless until all disabilities are recognized within the work-capability-assessment, and a person with spinal, hip or knee problems who cannot bend, crouch or kneel will not receive a fair assessment from the Tribunals because of the removal of consideration for bending/crouching or kneeling.

5. In the year 2013 the Government removed free legal aid funding for the unemployed, and thus many people cut off benefits will not be able to seek free legal help to fight the Tribunals appeal. Many people are physically or mentally unable to prepare for a Court-style Tribunals appeal hearing. The Tribunals appeal procedure can carry on for many months, with the benefit recipient enduring the prospect of losing their income during those months.

6. I lost my Tribunals appeal of 2012, and my sickness benefits were stopped. I could not re-apply for the same sickness benefit due to a D.W.P ruling which states that a person cannot apply for sickness benefits for the same condition if the person has lost a Tribunals appeal, but the person can re-apply for sickness benefits if the condition has worsened or if the person has developed a new medical problem, but only after one month has passed from losing a Tribunals appeal.

Under these rules I was allowed to re-apply for ESA benefits after 4 weeks because I was diagnosed with a hip problem, which means I will have to be ‘assessed’ by ATOS Healthcare again. The ATOS/DWP/Tribunals assessment and appeals process repeats itself at this point.

Conclusion:

It’s time for truth at the tables. It means all cards must be shown. No lies. No corrupt trickery should be allowed, but the DWP, ATOS Healthcare and [Social Security] Tribunals try every trick in the book to cut that person off sickness benefits, by ignoring the medical truth and opinions or advice of the claimant’s usual doctor. I trust that my doctor’s diagnosis and hospital results are correct. I do not trust opinions of the Department of Works and Pensions or the Tribunals in regards to my ability to perform work, because of the lack of credibility those parties have in the medical profession.

Less than one percent of sickness benefits are fraudulent, so why does Britain have three departments assessing just one person with such a lengthy and scrutinising claim process?

People have become puppets for the DWP, ATOS Healthcare and the Tribunals to push around – behind closed doors.

The D.W.P and the Tribunals should not have the ability to supersede the opinions or advice of the benefit claimant’s general practitioner or medical professional who have often had many years of consultations with the benefit claimant.

People are suffering or dying of serious illnesses while fighting for benefits, and the odds are stacked against them.

Prime Minister David Cameron said recently that his party ‘stands for the hard-working people in society’. Perhaps now people in the Conservative political party should stand against the bloated and bureaucratic mess of the sickness benefits assessment process?

The United Nations & Welfare Cuts in Britain:

A division of the United Nations has now been given the task of addressing the welfare cuts in Britain, and how it is affecting people. If you have lost some or all of your ESA/DLA benefits then this is your chance to say how it affects you.

 

A Facebook group called ‘ATOS MIRACLES’ is currently asking people to send letters of experiences with ATOS Healthcare to the following email address : atosmiracles@outlook.com

Your letters will be sent to the United Nations department who will assess your complaints and opinions.

**Facebook Groups for ESA/DLA claimants in Britain**

‘ATOS MIRACLES’ on Facebook

http://www.facebook.com/ATOSM

‘The People Vs The Government, DWP and Atos’ on Facebook

http://www.facebook.com/pages/The-People-Vs-The-Government-DWP-and-Atos/430588573684275

Disabled Child And Parent Carers Called Scroungers By Tabloid Newspaper Because He Has 11 Siblings

October 10, 2013

There’s a headline an’ a half for you, Sunshine!

Readers, the real headline is:

sun front page 10 oct

The article is:

A JOBLESS couple expecting their 13th child are to have their taxpayer-funded home doubled in size, after council chiefs agreed to knock through into the house next door.

The £6,000 plan to create a six-bedroom “superhome” for Tim Fisk and Mandy Ball — who receive more than £52,500 a year in taxpayer handouts — has enraged neighbours on their estate in Ipswich.

Ninety-one locals have signed a petition opposing the scheme to cater for the growing family.

‘If I want to have 50 kids that’s my decision’ … jobless Tim Fisk has to look after his partner and teenage son
Albanpix.com.

But Tim, 44 — who with Mandy receives more than £52,500 a year in taxpayer handouts — called the work “the right thing” for his growing family. He said: “We love our kids and they love us. How many we have is up to us and no one else’s business.

“Everyone has the right to decide how many children they can have. If I wanted 50 children, that is my decision.

“We’re sick of living cramped up in this little house. Having them knock it through to next door is better than us having to move.

“It’s the right thing for us. I can’t see any other answer. Who has got the right to tell me what to do? Why should anyone stick their noses into other people’s business?”

The move will convert the pair of terraced council houses, each worth around £125,000, into a single giant six-bedroom residence — complete with two bathrooms.

The operation to knock down the internal walls separating the properties is expected to be finished by Christmas. Tim claimed he and 41-year-old Mandy kept having babies as it helped with her DEPRESSION.

He explained: “She’s got an emotional hole that can only be filled with more children.”

Tim said he was previously a security guard and fencing contractor, but can no longer work as he is a full-time carer for Mandy and son Daniel, 14, who is blind in one eye and has learning difficulties.

Also sharing their Ipswich home are Sadie, 16, Lauren, 13, Callum, 12, Kyle, ten, Elektra-Mae, five, Serenity, four, Jayden, three, Starlight, two, and Neatheus, 11 months. Daughter Charlie, 21, now lives with her boyfriend and has two children of her own. The couple’s remaining child, daughter Ashleigh, 18, no longer lives at home.

Daniel does not go to school and the authorities are now battling to get him back into education.

Tim said: “People round here say he’s a thug and a vandal, but I know he’s not like that. He can’t go to school because he’ll be bullied. All my kids get bullied by people round here. The neighbours call them skanks and scumbags.

“We don’t socialise with anyone outside the family. We don’t need to. We keep the curtains closed to stop Peeping Toms looking in — and I’ve put up CCTV cameras.”

Tim branded neighbours who criticised the conversion “jealous”.

Speaking about his benefit income, he said: “We struggle to make ends meet, but we get by.”

When The Sun visited the Fisk home yesterday, we found a 42in plasma telly in the living room, complete with sound system, satellite TV, two Xbox 360s, two computers, designer clothes and numerous smartphones and tablets.

Tim said he allows his children to have mobiles as a treat. Lauren had an iPhone 4S until recently when she dropped it down the loo.

Labour-run Ipswich Borough Council suggested enlarging the family’s home after their neighbours left three months ago.

A spokesman said: “This is a very unusual situation and not something we’d normally contemplate.

“But, having reviewed all the options, we believe that this is the most cost-effective option to find a solution to this family’s needs.

“The alterations can be reversed. We have only one six-bedroom house in our stock. We have completed structural surveys and will start work soon.”

But one fuming neighbour said he and others were “fed up” with the family and the plans.

The man, who asked not to be named, said: “They’ve been here seven years and had a new child every year.

“Imagine the amount of benefits they must be on — and now they’re giving them a mansion. It’s disgusting.

“The language that comes out of that garden in the summer is unbelievable, the parents shouting at the kids, and kids shouting back.

“It’s horrendous. This plan is a total waste of taxpayers’ money. She walks round like she’s the Queen of England, so God knows what she’ll be like when it’s done.”

Ipswich Tory MP Ben Gummer said the decision would “concern” taxpayers. He said: “It shows why we must continue with benefit reforms to ensure people only take on responsibilities they can afford.

“The people who are paying these bills are taxpayers.”

Yet Councillor Jim Powell, who represents the local Bridge council ward, backed the council plan.

He said: “They would have looked at the situation very carefully before coming to that decision.”

Last night the woman who organised the petition claimed she had nothing against the family.

She said: “The petition was just against the principle of the council knocking two homes into one and depriving another family of council accommodation. It was nothing personal.”

What a habit they’re making of sensationalist headlines about us lot!!

Sarah Ewart

October 10, 2013

A woman from Northern Ireland has been speaking about how she had to travel to London to have an abortion after being told her baby was not going to live.

Sarah Ewart was speaking to BBC Radio Ulster’s Stephen Nolan before having a termination in London.

BBC Northern Ireland health correspondent Marie-Louise Connolly reports.

This is such a difficult case for me to hear and write about. Personally, speaking as a person disabled since birth, I am usually strongly against abortion on grounds of disability.

However, in this case, it seems that there was no chance of survival to term. Had she miscarried naturally, it could have endangered her life. Surely it was better to abort the pregnancy before things got to that stage. Had she delivered the baby, had it been stillborn or died very soon after birth, she and her family would have felt unnecessary emotional pain.

So, in this case, surely abortion was the best option for all concerned.

What are your thoughts, readers?

Edward Jacques- A Name We Must Never Forget

October 10, 2013

One of so many.  Stephanie Bottrill was not the first ATOS-related suicide. Only God knows who will be the last. But we cannot forget any of them.

A 47-YEAR-OLD man overdosed on a cocktail of drugs after he had his benefits stopped because he was not given a proper medical assessment by the Department for Work and Pensions, an inquest heard.

 

Edward Jacques was found dead in his house in Loughborough Avenue, Sneinton, on September 25 last year. He had a history of self harm and depression, which stemmed from physical and emotional abuse as a child, the inquest was told.

 

Mr Jacques’ family told the Post they considered the decision to stop his benefits was a “major trigger” in a spiral which led him to overdose on heroin, cocaine and alcohol.

 

Mr Jacques was told his benefits of £90-a-week would be stopped on September 18 last year, the same day he took to social networking site Facebook to vent his frustration at Prime Minister David Cameron and Atos – the company which carries out medical assessments on behalf of the Department for Work and Pensions.

 

The assessments determine whether a person is eligible for employment and support allowance.

 

After writing of his disapproval of the system he wrote on Facebook: “It’s time to say goodbye, goodbye.”

 

At his inquest, which lasted two days, the court heard that Mr Jacques’ medical assessment took just 23 minutes and his allowance was stopped despite him suffering from HIV, hepatitis C, sciatica, severe depression, insomnia and dental pain. The Nottinghamshire coroner, Miss Mairin Casey, branded it a “crude assessment”. She said: “I find the assessment process in Edward’s case did not fully or properly reflect Edward’s physical and mental health at that time.

 

“It is conceded by those involved in the [assessment] process that if the information as to Edward’s physical and mental health as shared by his GP had been known at the time of the assessment, the outcome would have been very different. It is desperately sad that such evidence was not available either to the nurse or to the decision maker.”

 

Mr Jacques’s GP at Sneinton Dale Surgery, Dr Prit Chahal, said that the assessor arrived at a conclusion which was “not in line with his professional view” of his patient.

 

Giving evidence on behalf of the Department for Work and Pensions, Jag Sanghera, said: “The more evidence that is sought the easier the decision maker’s job.”

 

Mr Jacques’s elder brother, Richard Jacques, 58, and his twin sister Margaret Hudson, 48, said: “We have no doubt that the decision to stop his allowance was a major trigger which led him on to a severe depression and desperate action.

 

“We do not believe that Edward is an isolated case and we think thousands of assessments have been made like this across the country.”

 

Miss Casey recorded a narrative verdict.

 

She said: “Edward Jacques died as a result of central nervous system depression following a drug overdose and alcohol consumption. It is not possible for me to say if he intended that this action would result in his death.”

 

A DWP spokesman said: “Our sympathy goes out to the family of Mr Jacques. A decision on whether someone is well enough to work is taken following a thorough assessment and after consideration of all supporting medical evidence from the claimant’s GP or medical specialist. The percentage of people entitled to employment and support allowance is now at its highest level with over half of people completing a work capability assessment eligible for the benefit.”

Brigend LEA: Let Ashley Go To School

October 10, 2013

I’ve just signed this. Please add your signature if you agree with me that Ashley, and all disabled children, should have appropriate care and support at school.

Ashley is only six years old and all she wants is to go to school to learn and play with her friends. However, local authority cuts mean that vital care and support at school for Ashley has been withdrawn by the council.

I am a full-time carer of my daughter Ashley, who has has spina bifida & Hydrocephalus, and her disabled brother.

Due to Ashley’s intense needs she requires a teaching assistant to support her throughout the day. The cuts mean that the support assistant at her Primary School would no longer be helping her with catheters or regularly lifting her out of her chair to take part in lessons and prevent pressure sores. All of this means that we have no choice but to withdraw Ashley from school to ensure she will be properly looked after.

To make matters worse, my daughter’s welfare and education is being risked because of a long-running dispute between the unions and council about job remits and pay. Key staff have now left the school as a result meaning the school no longer has the capacity to provide the support my daughter needs. 

Before I can return my daughter to this school we need proper support in place and written assurance that this won’t happen again as it has done in the past.

The council should be putting measures in place to ensure that children like Ashley are not caught up in employment rows.

Please help us to get our girl back to school.

Love Super Mario? Hate The Government?

October 9, 2013

If you answered yes to both of the above, you’ll love Super Tory Boy. Play it!

Busting Downs Syndrome Myths

October 9, 2013

 

At School With A Guide Dog

October 9, 2013

To those who don’t need guide dogs, do you have any guide dogs in your mainstream school? How would you feel if you did?

Personally, I prefer cats, but to me, guide dogs are always the exception, and I would have been very happy to have a guide dog in my classroom.

Three years ago, the Guide Dogs charity changed its rules so children with visual impairments could get assistance dogs. So what do pupils gain from a dog – and can this partnership work in a hectic school environment?

Hannah Burgess is 15. She attends Stantonbury Campus in Milton Keynes which, with almost 3,000 students, is the second largest comprehensive school in the UK. She has been taking her guide dog Rory into school since qualifying as a young handler two years ago. Previously she had used a white cane.

“The first day [with Rory] was quite scary, I didn’t know what to expect,” she says.

“I had only been out on training routes with him on streets – I didn’t think he’d just flop on the floor and sleep for ages in my classes like he does. His first day at school showed me how good he was going to be.”

Everyone on campus seems to know Hannah’s dog. Two young lads walk past pointedly singing the theme tune to Roary the Racing Car.

“Now, I don’t think he’s a racing car, do you?” replies Gerry O’Neill, head of inclusion at the school.

Hannah ignores it. “Most people have got over a dog being there now. I get a bit of grief but it’s not too bad. Some people start screaming and run away because they think it’s funny to. It gets better, then a new lot of year sevens come in September and I get it all over again. But it’s OK.”

Hannah is not completely blind, but has albinism and associated nystagmus, which severely affects her focus. Rory helps locate kerbs, avoid lampposts and Hannah no longer mistakes staircases for slopes with the dog’s help. And Rory has stopped her from walking out in front of many cars: “I put full trust in him.”

But he has also helped her to connect with those around her.

“I actually have friends now,” Hannah laughs. “He’s given me confidence to go up and talk to people – he’s a great conversation starter.

“Before Rory I was friendly with people in school but I didn’t ever want to go out. I wouldn’t go to the cinema with them, for instance. I didn’t want to be seen with my cane or holding my mum’s arm.”

At break time, she has special dispensation to remain in one of the halls so Rory doesn’t have to go on the noisy and crowded playground.

Hannah’s friends benefit from having a pal with a dog because they are also allowed to stay indoors at break with her so they can all hang out together, after Rory has been “spent” – guide dog lingo for a toilet stop.

But, no matter how well trained, dogs will be dogs.

“The first day I brought him here he was sick on the floor and my English teacher walked in it,” says Hannah. “Also, I took him out to spend, there was fox poo on the floor, and he rolled in it and I had to go back into class with him.”

Her friends, all present, groaned at the memory. “I think people put up with it quite well actually,” says Alice, also 15.

O’Neill says he’s never heard anybody say the dog shouldn’t be at school but has helped advise on issues of safety. Rory doesn’t attend science lessons, food practicals or PE lessons because they would give him “unfair distractions”.

“Most teachers are excited by the idea of a dog in class,” says O’Neill. “There’s a feeling that it adds something. And most teachers report that he calms the room.”

Any problems that arise tend to be easily surmountable.

Graham Kensett, Coventry mobility team manager for Guide Dogs, has been involved in the organisation’s projects with children and young people. He says teachers always worry that a dog may make pupils more excitable, but then find the opposite.

But are all schools as welcoming of dogs as Hannah’s school has been?

Kensett says there have been challenges but the majority of schools have been willing to work with them to allow a dog in.

“Children with allergies are sometimes raised as a concern but we have to encourage the school to make reasonable adjustments – maybe a dog could go into the admin office for that period. But allergies are fairly rare.”


In the past, school children weren’t allowed guide dogs because it was felt that they were not mature enough to be in charge of an animal with routines such as feeding, walking, toileting important for its welfare.

Hannah says a dog is a big responsibility, and she realised early on she’d need to sharpen up if she wanted to keep Rory. She believes it forced her to be more mature.

“He keeps me in a routine, he keeps me from being late all the time, he keeps me from forgetting things. Because I have to do everything for him, it reminds me of doing things for myself.”

Twice a week Hannah goes to army cadets where she learns new skills, shoots at (enlarged) targets and teaches younger cadets to march – all whilst accompanied by her dog.

On the last two Remembrance Sundays, Rory has paraded with his young owner down Newport Pagnell High Street. “He steps off on his left foot and he’s always in time, so it looks really good,” Hannah says.

She would like to join the Army as her career, but with her sight loss that’s not possible. So she wants to pursue her second love and qualify as a pastry chef.

O’Neill is pleased at the outcome for Hannah and says that you have to look at the holistic effect of having a dog.

“The difference he’s made to Hannah’s life outside of school has transformed her as a student. She’s going to get better grades because she is a more self-confident young woman with self-esteem and social skills and that will translate into the quality of her work.”

Hannah is now out all the time, doing what she wants to be doing – things that a girl her age would normally do. “It’s changed so much for me that my mum has recently given me the lecture about treating her house like a hotel.”

Her friends say they’re so used to Hannah walking independently alongside them now that it can be easy to forget she sometimes needs a bit of help.

“We’ve left her behind once or twice when she’s not got Rory with her,” says friend Megan, laughing. “And when we realise, we’ve gone ‘OMG, we’ve lost the blind girl!'”

Petition To Stop Channel 5 Airing ‘On Benefits And Proud’

October 9, 2013

I was very worried yesterday, when I read the details of Channel 5’s planned documentary, On Benefits And Proud. So I signed this petition, to stop it airing as planned on 14 October, with great pleasure. I hope that, if you agree with me that this programme sounds as if it will be deeply and unfairly critical of benefit claimants, you will join me in adding your signature.

Profile: Mike Penning MP, Minister For Disabled People, Oct 2013-

October 8, 2013

As of yesterday, for the first time since I’ve been following politics, the Minister For Us Lot is a man, Mike Penning MP.

The profile on his official website says:

Mike Penning is the Member of Parliament for the Hemel Hempstead constituency. He was first elected in May 2005. After the May 2010 election he was appointed as Parliamentary Under Secretary of State for Transport and in September 2012 he was promoted to Minister of State for Northern Ireland. In the reshuffle in October 2013 he was appointed as one of the two Ministers of State for Work and Pensions.

He has previously served on the Health Select Committee and as executive member of the Conservative 1922 Committee. He was a Shadow Minister for Health from 2007 to 2010.

Mike was born in North London in 1957 and educated in Essex at Appleton and King Edmund Comprehensive Schools. He is married to Angela and has two daughters Adele and Abby. They live in the Old Town in Hemel.

Mike joined the Army as a boy soldier and served with the Grenadier Guards in Northern Ireland, Kenya and Germany; he also undertook ceremonial duties in London including Trooping of the Colour. On leaving the Army Mike served as a full time fireman in Essex for many years before going into the family business and later, after several career changes, into political journalism.

Mike won the Hemel Hempstead seat in 2005 having previously stood in Thurrock. In 2010 he increased his majority from 499 to 13,406 despite boundary changes that reduced the size of the constituency. He achieved the largest Lab-Con swing in the country.

Mike has many interests outside of politics. Along with being a dedicated family man, he is passionate about sport, especially Rugby Union and Football.

Has he previously said anything/done anything on Disability Issues?

 

Incredible Tool For Jobseekers

October 8, 2013

Thank you Sue Marsh. Readers, please share with everyone who needs a job.

Last night, one of those rare moments of campaigning joy popped up on my timeline. A guy sanctioned onto a work programme scheme was asked to give a presentation. And BOY does he do us proud!!!

This is the most simple, easy to understand accessible report into just how it feels to be unemployed in this current, toxic climate. I’ve never read anything so helpful or empowering or which busts the governmnets dreadful myths so clearly.

Copied across from http://virtualgherkin.blogspot.co.uk/2013/10/jsa-lambasted-by-this-govt.html?m=1 who as so often was first with the news, read this story, be astounded and CLICK IN THE LINK! Be amazed, then share it with absolutely EVERYONE you know who is searching for work or helping others to.

“Theres a massive focus on tiny sections of expenditure by this govt.

And then this happens……

A fella on JSA goes to Jobcentre
Is put on a course.
The course says “Research a subject, and do a presentation to the people on the course”
Now this sounds all fair. However the presentation chosen by Benjamin here was RESEARCH on JSA and Jobcentres. Ironic. No. Brilliant? Yes.

The following I got from Benjamin:
=====================
(Dear Jules, Via email )
In June I was forced to go on a course by the Jobcentre as I’d been unemployed for six months. I say forced because if I hadn’t gone on the course, they would have sanctioned my benefits. The course wasn’t as painful, embarrassing, and demeaning as I expected it to be.. A constituent part of the course was that I had to do a presentation. I decided, given the resources and audience that I’d research the true impact of Job Seekers allowance on society. It busted myths and made people feel a lot better about their situation. When questions pop up, ask yourself those questions. Share it, and ask and show others. The presentation makes a compelling case.

I was happy to keep the presentation to myself and put it away having only shown it to the group. That changed though. The myths need busting, and I’ll tell you why. Every time I hear about a bedroom tax suicide, I realise as many people as possible need to see this, to debunk myths. Every time I hear about yet another person dying after being found “fit for work” I realise it needs to be seen. We need to be heard, that’s why I need people to see it.

Benjamin
====================
Did I tell you also he showed me MSM emails not wanting to particularly extract info from slides 40ish onward? No? Ah. Thats what they did.they didnt wanna show anyone.

The presentation is in powerpoint.I’ve hyperlinked it to microsoft on line. There should be no compatibility / viewing problems.

< Click here to see the presentation >

A bit of myth busting eh?

Nice one Benjamin.”

AND SO SAY ALL OF US!!!!
Please, share this with all of your networks, MPs, work providers, benefit advisors. You can use the buttons below to RT and share on Facebook or Google.

Are You Disabled? Do You Love Cooking?

October 8, 2013
NATIONAL SUPERMARKET CHAIN SEEKS PASSIONATE FOODIES
Do you love to cook? Do you love showing others how to cook?
A major supermarket chain is looking for great home cooks to take part in a new PAID TV and online advertising campaign
For more information please contact Richard Grisman – rjgfilms@hotmail.com

A Petition To The Sun Over Monday’s Headline

October 8, 2013

An email from Change.org:

@TheSunNewspaper: Correct the sensationalism in your mental illness story and donate the profits from it

By Rhiannon Lockley
Brierley Hill

This week Sun Newspaper front page carried the headline: 1200 killed by mental patients. This was a dangerously selective way to lead on the research covered, reinforcing the public perception of the mentally ill as a risk to society.

I work as a Psychology teacher, in particular working to develop understanding of mental health issues. I also have a history of long term mental illness in my family. I was therefore horrified to see that the Sun were misrepresenting complex research in such a harmful way, which is why I want to encourage others in responding to these misrepresentations.

In reality people with mental illnesses are at greater risk of many forms of violence and assault from general society than those without, as well as having a long history of experiencing abusive treatment from the state.  By focusing on stats relating to acts of violence carried out by the mentally ill the Sun Newspaper are increasing the risk to patients by dehumanising and demonising them. The SPJ code of ethics states that Journalists should:

“Make certain that headlines, news teases and promotional material, photos, video, audio, graphics, sound bites and quotations do not misrepresent. They should not oversimplify or highlight incidents out of context.

 and

..treat sources, subjects and colleagues as human beings deserving of respect.”

The Sun need to review the processes by which editorial decisions are taken about this to include a recognition of their responsibility as a big media player towards protecting the safety of the mentally ill.

We are calling on them to

1) Recognise that they have acted unethically in misrepresenting information about the mentally ill in this harmful way, and to print a full correction to this effect.

2) Make a donation to mental health charities to cover any profit made from this story and to apologise to those misrepresented

David Weir Can’t Get Accessible Council House

October 8, 2013

Paralympic legacy, anyone?

PARALYMPIC hero David Weir has to drag himself upstairs by his arms to the toilet — because housing chiefs won’t give him a home with a downstairs loo.

 

David, who won four golds at London 2012, believes he did not get a better home over fears of “favouritism”.

 

 

 

Yesterday, the star’s mum Jacqueline said it was a national disgrace the 34-year-old wheelchair-bound athlete — a CBE who has won a total of six golds at London 2012 and Beijing 2008 — is being treated in such a callous way.

 

She added: “He’s a national hero but he can’t find a decent house and the council aren’t helping.

 

 

 

“He’s simply too good to have a nice house. He’s not a jailbird or a junkie so as far as they’re concerned he just has to make do with what he’s got.”

 

David’s fiancée Emily Thorne said: “We are not asking for a mansion, we just want somewhere with three bedrooms and a downstairs toilet.

 

 

 

“With David getting a bit older he could do without the trips up the stairs on his arms, risking a recurring shoulder injury.”

 

Emily said the housing association that allocates council homes on the Roundshaw Estate in Wallington, South London, told them they could not have a better place for fear of favouritism.

 

 

 

She added: “I understand there is a huge demand for housing and there are others who need a three-bed home more.

 

“But after the Games, Roundshaw said they had a three-bedroom house going — but then told us we couldn’t have it because they did not want to look like they were showing favouritism towards David.”

 

 

 

David, who was born with a severed spinal cord and cannot use his legs, won four golds at 2012.

 

He won two at Beijing, six at the Athletics World Championships in 2006 and 2011 and has won six London Marathons.

 

David was made a Freeman of the City of London in 2012. His local leisure centre is named after him and his nearest postbox was painted gold in his honour.

 

 

 

He has lived in his modest house for years and grew up on the estate. He and Emily have two children Mason, two, and Tillie, one. David’s other daughter Ronie, ten, often stays with them.

 

David, nicknamed Weirwolf, cannot get a mortgage because sponsorship deals and appearance fees are not a reliable source of income.

 

A neighbour said: “He is a hero to all of us and has been an inspiration. He needs a larger home that meets his physical needs because he has to drag himself upstairs to use the toilet.”

 

Roundshaw Homes said it could not comment on individual cases.

Work Programme Failing Disabled People, Says Liz Sayce

October 8, 2013

Ministers should rethink the expensive support given to disabled people to find paid work as flagship employment schemes are failing the most vulnerable in society, according to a government adviser on disability.

Liz Sayce, the head of Disability Rights UK, says schemes such as the Work Programme, which cost hundreds of millions of pounds each year, are failing disabled people. Sayce argues that they should be replaced by more bespoke approaches “shaped by disabled people and employers, to achieve better career outcomes”.

According to the data released last month, more than 93% of disabled people on the Work Programme are failing to find long-term work. Just 6.8% of those referred to the programme in the latest three months have found long-term work.

Sayce, author of a key report to ministers that controversially advocated the closure of Remploy factories, which provided work for disabled people, described the Work Programme as “a non-work programme – at best it is heading for an 88% failure rate with people on out-of-work disability benefits. Some providers do very good work, but perverse incentives stop them spreading it. Disabled people want to play a more central role, working with employers, to secure job and career opportunities and use their talents, to the benefit of everyone.”

The charity also produced a report which surveyed 500 disabled people and found a gap between disabled people’s needs and the response from the Work Programme. For example, having a mentor who faces similar barriers can be invaluable but only 12% had been offered this, while 46% of respondents would like it.

The report, entitled Taking Control of Employment Support, calls for disabled people to have far more opportunities to gain experience and skills through work, “rather than endless ‘work preparation’. This could include work trials, work placements, traineeships, internships and apprenticeships”. The charity says placements could be paid for through personalised budgets – in essence taking disabled claimants out of the Work Programme and using the cash to fund disability employment advisers, employers and disabled people planning the support needed for the individual to get and keep the job.

“The Work Programme is projected to cost £3-5bn over five years, yet is not working for a core group: people living with disability or long-term health conditions. It is time to cut out the middleman, releasing the money that is presently being wasted and transferring control of employment support to those who know how it can be used best – disabled people and employers.”

A Department for Work and Pensions spokesperson said: “Previous schemes didn’t do enough for disabled people and those on sickness benefits, which is why we introduced the Work Programme to give tailored support to address individual barriers to work. Thousands of the hardest to help people have already found lasting work through the scheme.

“More generally we have protected the budget for disability employment services and recently kickstarted a two-year advertising campaign to support business to become more confident at recruiting disabled people as sometimes employer attitudes can be a barrier to work.”

Ed’s Experiences With ATOS

October 8, 2013

I’ve just found this. I’m watching it as I type and thought it was worth sharing.

LEGAL ACTION: Has your GP refused to provide you with Further Medical Evidence for your DWP appeal? Please Get in Touch with Black Triangle Now

October 8, 2013

Seen at Black Triangle. Sharing in solidarity for publicity.

As all of you will no doubt be aware, Black Triangle and our sister organisation Disabled People Against Cuts have assembled a first-class legal team to take forward legal action against Local Medical Committees and individual GPs who have launched a disgraceful ‘Just Say No’ to providing Further Medical Evidence Campaign.

This campaign seeks to persuade GPs to deny sick and/or disabled patients the Further Medical Evidence (FME) required to support their ESA applications and achieve justice before First-Tier Social Security Appeals Tribunals.

We have already identified a number of cases with “standing”.

Our law requires that the party, or parties bringing a case before the courts must demonstrate:

“sufficient interest in the matter to which the application relates”

i.e.

“an individual who is directly affected by a decision or other measure” who will on that basis have a “sufficient interest”.

In our case, this means anyone who has requested FME from their GP to support their case with the DWP and has been refused (Their refusal to provide FME is the matter to which our legal action relates).

We now invite as many of you as possible who have been refused FME under this policy to make contact with us immediately so we can progress our case further, in the most legally watertight manner achievable, without further delay.

Sick and/or disabled people deserve and have an absolute right to expect better than this from our medical professionals.

The LMCs ‘Just Say No’ Campaign is a a disgraceful betrayal of patients by LMCs from across Britain.

It is, quite frankly, mercenary behaviour that is both morally repugnant and, as we shall fully demonstrate, unlawful.

We are going to put a stop to it.

In the initial stage, please text John McArdle at 07778316875 with ‘Refused FME by my GP’ in the line. We will then phone you back to discuss your case and take it from there.

Yours in solidarity

John McArdle

Co-Founder

Black Triangle Campaign

Edinburgh, 7th October 2013

110 People Killed By Mentally Ill In London Since 2004 Finds Study

October 8, 2013

Some 110 people have been killed by mental health patients in London in nine years, figures show.

From 2004 to 2012, an average of 12 people every year were killed in the capital.

South London and Maudsley NHS Trust had the highest number of deaths, with 31 people being convicted.

But separate research released on Monday found people with mental illnesses were three times more likely to be victims of crime than others.

Number of people killed in London by people with mental illness

  • 2004: 13
  • 2005: 8
  • 2006: 20
  • 2007: 11
  • 2008: 10
  • 2009: 8
  • 2010: 12
  • 2011: 13
  • 2012: 14

Across Britain, 615 people convicted of homicide were found to have contact with mental health services between 2001-11.

Researchers at Manchester University, who have analysed the data, also said rates have decreased since a peak in 2006.

‘Long heartbreak’

The latest figures for London, which were obtained by the BBC under the Freedom of Information Act, support this trend.

Chief executive of mental health charity Sane, Marjorie Wallace, said: “These alarming figures do such damage to the majority of mentally ill people who are never, ever, violent and are more likely to be the victims of violence.”

She said although homicides were relatively rare, more could be done to prevent further deaths.

“We’ve done an analysis which showed at least a third could be prevented and possibly more, so it’s quite unforgiveable that we are not learning the lessons.”

She said more inpatient beds were needed, as well as crisis centres. Psychiatric services also had to listen to warnings from families and friends of someone who is mentally ill, she stressed.

“If this was a physical problem, we wouldn’t be facing these kind of crisis and the long, long heartbreak of all the families involved,” she said.

‘Tragedies happen’

Martin Baggaley, medical director of South London and Maudsley NHS Trust, said although the trust had the highest number of people who had killed, the figures were not disproportionate to other trusts.

He said this was because his was a large organisation which covered more than one million people. The area also has high rates of crime and depravation.

“Of the 31 – of course is 31 too many – only 11 were felt that the actual homicide was related to their mental illness so there were some that were in contact (with the Trust), for example with alcohol addiction or depression, who carried out the homicide but the courts determined that it wasn’t related to the mental health problem,” he said.

“Nevertheless, that’s 11 too many and we take it very seriously, and we investigate all cases.”

He added: “Psychiatrists cannot control all aspects of behaviour, it’s unrealistic.

“These are difficult people sometimes to keep track of, and I don’t think we really want to live in a society where we’re going to build vast numbers of asylums and lock everybody away forever.

“So if you have people in the community, sometimes, unfortunately, tragedies are going to happen. What we have to do is really minimise those.”

Mentally Ill People Three Times More Likely To Experience Crime Finds Study

October 7, 2013

People with mental illnesses are three times more likely to be victims of crime than the general population, new research suggests.

 

The study found victims saying that their reports to the police were often dismissed or disbelieved.

 

Many of the 361 people questioned said they were often disbelieved when they sought help after a crime.

 

The findings come from a three-year study involving academics and the charities Victim Support and Mind.

 

The report, co-authored by Kings College London, Kingston University and St George’s University of London – in collaboration with University College London – is the first British survey into crime victims which compared those with mental illness against the general population.

 

The study said that almost half of people with some form of mental illness had experienced a crime in the last year.

 

It said people with severe mental illness were five times more likely to experience assault, while severely mentally ill women were 10 times more likely to be assaulted.

 

Six out of 10 women in this group reported being victims of sexual violence as adults, the study said.

 

But interviewees said that when they sought help, they often found they were treated unfairly by the police and other agencies. Victims said they found it difficult to convince police to take their reports seriously.

 

In the worst examples, victims said police left them with the impression that they themselves were to blame. Others refused to report crimes out of fear of being detained under mental health legislation.

 

Victims whose cases went to court reported a range of problems which had an impact on their mental health. One interviewee reported meeting the offender while at court, an incident which triggered an episode of self-harming.

 

The authors called for police and other agencies to be better trained to help mentally-ill victims of crime and said responses to incidents should be properly monitored and assessed.

‘Equal right to justice’

Javed Khan, chief executive of Victim Support, said: “It is nothing short of a national scandal that some of the most vulnerable people in our society become victims of crime so often and yet when they seek help they are met with disbelief or even blame.

 

Paul Farmer, Mind: “This is a real concern for some people who are really very marginalised by society”

 

“It is unacceptable that the criminal justice system fails to meet the needs of people with mental health problems when this report shows all too clearly the terrible impact of crime on them.”

 

And Paul Farmer, Mind’s chief executive, said: “Being a victim of crime is a horrible experience for anyone to cope with but when you have a mental health problem the impact on your life can be even worse.

 

“People with mental health problems have an equal right to justice, yet this report reveals that this is not the reality for far too many of us.”

 

Commander Christine Jones of the Association of Chief Police Officers said it had supported the research because senior officers recognised that the experiences of people with mental illnesses were not widely understood.

 

“Anyone reporting a crime against them expects to be listened to, taken seriously and treated with respect,” she said.

 

“Policing and mental health is high on the agenda for chief constables. We support the recommendations in this report, which will further that work.”

 

The research team interviewed a random sample of 361 people in London who have severe mental illness and the results were compared with official data in the Crime Survey for England and Wales. Further in-depth interviews were conducted with 81 people with mental health problems who had been victims of crime during the last three years.

BREAKING NEWS: Cabinet Reshuffle 2013

October 7, 2013

Esther McVey is no longer Minister For Us.

Many are very happy about this, but the question is, who is going to replace her?

Also affecting Us are the roles of Health Secretary and Work and Pensions Secretary. We all hope IDS  will piss off but I’m not holding my breath.

Updated 2.30pm: I’m reading reports that Mike Penning MP is our new Minister. I will profile him as soon as this is confirmed.

LCD Attacks ‘Flying’ Care Visits

October 7, 2013

Short care visits to elderly and disabled people are “disgraceful” and on the rise, a charity has claimed.

 

In England, 60% of councils use 15-minute visits, which are not long enough to provide adequate care Leonard Cheshire Disability says.

 

The charity says such visits can “force disabled people to choose whether to go thirsty or to go to the toilet”.

 

The government said the Care Bill would prevent “inappropriate” short visits but would not outlaw 15-minute visits.

 

Leonard Cheshire wants a ban on what it calls the “scandal of flying 15-minute visits”, lobbying the government to prevent the practice in England.

‘Ridiculous split’

Care minister Norman Lamb said the government “can’t ban these short visits completely” because they are useful in some circumstances, such as when a carer visits to give someone medicine.

 

But he told the BBC a 15-minute visit was “completely inappropriate” when people needed things like feeding or bathing.

 

“We’re actually introducing an amendment to the Care Bill this week which will require councils to focus on an individual’s wellbeing when they’re organising care on their behalf, and so this sort of very short visit for personal care would not meet that standard,” he said.

 

He also said the government plans to “force” the NHS and local government to work better together and end the “ridiculous split” between health and social care.

 

A report published by Leonard Cheshire said short visits “simply do not allow enough time to deliver good-quality care”.

 

It said data from 63 local authorities pointed to a 15% rise in such visits in the last five years, and said some in councils more than 75% of care visits were carried out in less than 15 minutes.

 

The charity’s latest research looks at England alone, but in August Unison accused many councils in Scotland of providing “care on the cheap” by arranging 15-minute home visits, and in June the union said 83% of Welsh councils were doing the same.

 

Research by the UK Homecare Association published last year suggested 87% of home visits in Northern Ireland lasted 30 minutes or less, the highest proportion in the UK (73% in England and 42% in both Scotland and Wales).

 

Separate care bills are currently going through the Scottish Parliament and the Welsh Assembly.

 

Chief executive Clare Pelham said visits should be at least 30 minutes long.

 

“It is disgraceful to force disabled people to choose whether to go thirsty or to go to the toilet by providing care visits as short as 15 minutes long,” she said.

 

Ms Pelham said most people need 40 minutes to get up, washed, dressed and have breakfast.

 

“We are treating disabled and older people as if they are robots to be serviced, rather than real people who deserve to be treated with kindness and consideration,” she added.

 

But the Association of Directors of Adult Social Services (Adass), which represents care managers, argued it was “totally wrong” to suggest all caring tasks require more than 15 minutes.

 

Sandie Keene, the association’s president, said some short visits were “fully justified and fully adequate”.

 

It was “frankly naive to believe that simply by abolishing 15-minute slots a magic wand will have been waved, and improvements automatically achieved in our care services,” she added.

 

Ms Keene said social workers and their managers had to make “horrendously difficult choices” every day to give the best possible care with limited resources.

 

Leonard Cheshire wants peers to back a ban on short visits by amending the government’s Care Bill when it is debated in the House of Lords on Wednesday.

 

Time pressure

Speaking to BBC Radio 5 live, Rosaleen, a Thames Valley care worker who gave only her first name, said 15-minute visits usually overrun.

 

But she said the short time available still forced carers to make choices such as whether to leave someone alone with a hot drink which they might spill on themselves, or sit with them while they drink but fail to get them ready for bed.

 

Asked if people’s safety was being compromised by visits being too short, she replied: “Their safety, their independence, their dignity.”

 

Another care worker told the BBC that travel time was not included in her pay, so she would work unpaid time every day travelling between appointments.

 

Sally Lubanov, 83, who is house-bound, said even in 30-minute visits “nothing got done” because carers would take some time booking in, checking what the previous visitor had done and preparing for whatever tasks needed doing.

 

She said 15-minute visits might be fine for giving someone medicine, but for people living alone it was “wonderful to see someone” and short visits allowed no time for conversation.

 

The Local Government Association (LGA), said social care was “substantially underfunded” and councils were under increasing pressure.

 

“Significant cuts to council funding mean local authorities are struggling to meet the rising demand for home care visits,” said Katie Hall, chairwoman of the LGA’s community and wellbeing board.

 

She said 15-minute visits “should never be the sole basis for care”, but added: “In some circumstances such as administering medication they can be appropriate, but only as part of a wider comprehensive care plan involving longer one-to-one visits.”

 

Leonard Cheshire Disability said a survey of 2,025 people found 93% of those who expressed an opinion agreed 15 minutes was “not long enough to support a disabled or older person to do everyday things like wash, dress and get out of bed in the morning”.

PARALYMPIC ATHLETE LIBBY CLEGG TO TAKE ON AMBASSADOR ROLE FOR CHARITY ROYAL BLIND

October 7, 2013

A press release:

Paralympic athlete Libby Clegg, who was recently selected to compete in the Glasgow 2014 Commonwealth Games, has taken on a role as brand ambassador for charity Royal Blind.

23 year old Libby Clegg is a former pupil of the Royal Blind School who took up athletics at the age of 10. At age 16 she won a silver medal in the T12 200m at the 2006 World Championships in the Netherlands. She continued her athletic career by winning a silver medal in Beijing in 2008 and another in London 2012.

Libby’s role as brand ambassador will involve helping to market Royal Blind’s services and supporting fundraising campaigns.

Her first engagement will be this week during National Braille Week. Libby will be hosting an exhibition about Braille and alternative formats taking place at the Royal Blind School on World Sight Day, 10 October.

Libby will also be the face of Royal Blind Week, a fundraising week taking place from 24 February – 2 March 2014.

Libby Clegg said:

“I was so excited to be asked to do this,” she says. “If it wasn’t for the Royal Blind School I don’t think I’d be the person I am now. The school has taught me so much and the staff did so much more than teach me.

“I didn’t come to the Royal Blind School until I was 12. I was a really shy person with very low self-esteem. I had not had the best experience at mainstream secondary school and felt very isolated and different. At mainstream, they tried to cater for my needs and I wasn’t the only visually impaired person at the school, but they didn’t have the facilities or staff. I often ended up with the naughty kids. When we moved and I came to the Royal Blind School, they taught me to value myself and never to be embarrassed by my disability.”

Davina Shiell, Marketing and Fundraising Manager at Royal Blind said:

“We are delighted to have Libby on board to represent Royal Blind and the services that we provide to blind and visually impaired people of all ages. Through Libby’s experience of studying at the Royal Blind School, we will be able to reach wider audiences to communicate the difference that attending our services can make to the lives of blind and visually impaired people.

“Libby will be a great asset to promote Royal Blind Week in February 2014, when we will be reaching out to companies and individuals across Scotland to fundraise for Royal Blind.”

In her ambassador role, Libby will represent all of Royal Blind’s services, which include the Scottish Braille Press, Braeside House, Kidscene, and Forward Vision as well as the Royal Blind School, providing support for blind and visually impaired people throughout their lives.

Libby continued:

“I know how important it is to be a part of Royal Blind after going to the school and although I don’t know too much yet about the other aspects of the charity, I am already finding out,” says Libby. “I have visited the Braille Press and seen all the amazing things that happen there.”

Keith Duffy’s Daughter Mia Gets First Film Break

October 7, 2013

I remember her! I wish her all the best.

A DWP Worker’s Story

October 7, 2013

Spotted on Facebook. They are not all bad!

Hi,
can you post this anon please. I work for the DWP I am going through a divorce caused by my depression at what i am doing each day. I am in a written warning for being off sick despite Atos saying on my OHS that i need time and less focus on my targets. My wife just can’t take anymore.
I can’t actually believe that I am working for these people- that I am partially to blame and part of what is being done to innocent people. I feel like a piece of shit and can see no way out I have worked for DWP since I left school 15 years ago and until two years ago I got a letter every year for having no sick time. Since then I have had a total of four weeks off each time signed off by my gp with work related stress depression and anxiety and now if I have more than 5 more days between now and next August I will be considered for dismissal. So many of us are ourselves becoming ill with what is happening but they want to use any excuse to get rid of us.
Your readers are not without support from a lot of us we are in this together. We all know we are easily replaced by outsourcing companies and we know that they won’t care. So many of us could have gone to better paid jobs in the private sector but we took pride in helping our customers who are often so vulnerable. Now the pressure is unbearable. We know its going to get much worse as this government push ahead with plans that colleagues who worked through the thatcher years say even she didn’t even consider.
All we can do your readers and us alike is hang in in there..

New Guinness Advert Features Wheelchair Basketball Team

October 7, 2013

I’ve just seen this. I’m thrilled. Are these real wheelchair users?

Severely Disabled Teenager’s Family In #BedroomTax Legal Review

October 7, 2013

The family of a severely disabled teenager are to challenge the so-called “Bedroom Tax” in a judicial review at the High Court .

The Child Poverty Action Group (CPAG) has taken up the case on behalf of Paul and Susan Rutherford, who, though disabled themselves, are full-time carers to their grandson, Warren.

The case concerns the housing benefit restrictions for social tenants introduced in April, which the family argues discriminate unlawfully against disabled children who need overnight care.

Warren, 13, has a rare chromosome disorder, Potocki-Schaffer Syndrome. He is the only known sufferer in the UK, and one of only 40 in the world. It means he is unable to walk or talk, cannot feed himself, and is doubly incontinent.

Their house in Clunderwen, Pembrokeshire, is purpose-built for his needs, with ceiling hoists, wide doorways, a wet room and a third bedroom that allows a carer to stay at weekends when Paul and Sue need respite.

The family were deemed to be “under-occupying” the third bedroom, and their housing benefit was reduced.

The regulations currently allow for an additional bedroom if the claimant or their partner “require overnight care”, following a previous decision of the Court of Appeal (in Burnip v Secretary of State for Work and Pensions). However, there is no provision for children who need an overnight care.

Mr Rutherford, who has a lung condition and was this week diagnosed with lymphedema, said the policy has been poorly drawn up.

“This policy does not account for any child who might need overnight care.” he said.

“We’ve already approached the Secretary of State on work and pensions to change the wording of the policy to include three words ‘or a child’ but he has refused to do this.

“The child’s main carer is expected by the Government to provide the overnight care, the policy doesn’t make any exception for if the carers are disabled themselves.”

The court battle comes after an appeal to Pembrokeshire council, after the family was initially refused a Discretionary Housing Payment (DHP) last June. The family were rejected for a DHP because the county council judged they had excess income of £99 a week. It meant they fell into arrears with their rent and were threatened with eviction.

Pembrokeshire council has since overturned its decision and awarded the DHP, but 56-year-old Mr Rutherford said hundreds of others are in a similar boat.

The CPAG said the policy “discriminates against disabled children contrary to Article 14 of the European Convention on Human Rights, and that there is no rational justification for the exclusion of children”.

Chief executive Alison Garnham said: “We’re hoping common sense and decency prevail over the cold hand of inflexible bureaucracy.

“It would be crazy for the law to recognise where a disabled adult needs an overnight carer, but not recognise it for a disabled child. Parents and carers of disabled children have a difficult enough time as it is, but the love, personal care and medical care they provide is so important and we really need to be doing our best to support them in this.

“We’re not talking about large numbers of cases so the cost to the Government would be minimal, but the benefit to the disabled children affected and their families would be priceless.”

Mr Rutherford said the overnight carer is needed to give him and Susan, who has depression, vital respite.

He said: “Warren is used to go away for respite and would be away from Tuesday morning to Friday afternoon. Now he is at home with us all the time apart from Tuesday nights. We get the direct payments from the council to spend on the care that we require, as and when we need it. But there is no consideration of this.”

He said “We have a letter from Lord Freud saying, while it is regrettable that cases like ours fall into the category of having to pay bedroom tax, ‘the policy makers were unable to consider the wide number of different types of cases there may be’. I think this is rubbish. This is an ill thought out policiy that is purely an attack on working age people wh the government are trying to say are making work pay.”

The policy, introduced under the Welfare Reform Act 2012, penalises council housing and housing association tenants if they have a “spare” bedroom by reducing their housing benefit by 14 % or 25 %, depending on the number of spare bedrooms.

A Department for Works and Pensions spokesperson said: “The removal of the spare room subsidy is a necessary reform to return fairness to housing benefit. Even after the reform we pay over 80% of most claimants’ housing benefit – but the taxpayer can no longer afford to pay for people to live in properties larger than they need.

“It is right that people contribute to these costs, just as private renters do. It is just wrong to suggest the early stages of the policy – as people start to adjust to the changes – represent long-term trends in any way whatsoever or that a self-selecting poll of a small minority of landlords provides a clear picture of the reform.”

Terrible Real #ATOS Experiences

October 6, 2013

This is old, but very important. It is long, but well worth a watch. Do watch it, please.

The Queen Gets Involved In #BedroonTax ‘Fiasco’

October 6, 2013

The Queen has been drawn into the coalition’s Bedroom Tax fiasco by passing on a victim’s complaint letter to David Cameron, the Sunday People can reveal.

Dad-of-three Roger Davis, 50, fighting eviction from his three-bedroom home, wrote in ­desperation to Her Majesty ­after No10 ignored him.

Roger, who fears going out because of agoraphobia, faces losing his home of 20 years after the tax added nearly £100 a month to his rent and pushed him into arrears.

He turned to the Queen after the Prime Minister failed to reply to his two letters.

He then got a letter from Buckingham Palace vowing his request for help would be passed on to Downing Street.

Following that he received a letter from the PM’s office saying his plea would be passed to the communities ­department run by Tory minister Eric Pickles.

 

Response: Letter from The Queen’s office

 

The Palace said Her Majesty could not personally ­intervene in Roger’s case but there is hope he may keep his home as his council is assessing if he is due other benefits.

Last week a poll in the Sunday People found 60 per cent of ­voters back Labour’s plans to abolish the Bedroom Tax, which has hit 660,000 British households.

The ComRes survey found fewer than one in four supports the tax.

Roger said: “I wrote to Downing Street but they ignored me. I didn’t know who else to turn to so in ­desperation I tried the Queen.

“When I got a letter back it really lifted me. It meant a lot that ­someone in authority actually replied and acknowledged me. I wanted to make the Queen aware of the situation people are facing. I know she can’t personally act for me but it made me feel better.”

 


The letter from the Palace said: “The Queen has asked me to thank you for your letter from which Her Majesty has taken careful note of your ­comments about your current housing situation.

“However, this is not a matter in which the Queen would personally intervene. Nevertheless as a ­constitutional sovereign Her Majesty acts on the advice of ministers and I have been instructed to send your letter to the Prime Minister so that he may know of your approach to the Queen on this matter and may consider the points you raise.”

 

Ex-Age Concern carer Roger, off work for nine years since he had a nervous breakdown, faces losing his home in Herne Bay, Kent, because he has two empty bedrooms and the under-occupancy rules added £23.55 a week to his rent.

Canterbury County Court heard Roger fell £558 into ­arrears since the tax was introduced. He said: “I knew I couldn’t afford it. The only benefit I receive is employment support allowance. Home is my safe place, where I ­retreated to after my breakdown.”

Keith Cane, head of housing for East Kent Housing, said: “Taking a case like this to court is our only option if people refuse our offers of help and still don’t pay their rent. We have now been able to help Mr Davis make a claim for discretionary housing payment. If this is successful he should be able to pay the rent he currently owes.

“As this payment is generally only available for a temporary period we hope we’ll be able to continue to work with Mr Davis to find a longer-term solution, which could include moving to a smaller property.

We would encourage anyone having problems paying their rent to find out what local help and advice is available to them.”

Face Blindness- Seeing Without Recognising

October 6, 2013

Imagine that suddenly you cannot recognise your mother, your partner, your child. You can see them but your brain cannot process the information – you don’t know whether they are smiling, or understand their emotions.

 

That is what happened to David Bromley, after he suffered a brain injury that left him with face blindness.

 

David has prosopagnosia. People with this condition can see the eyes, the nose, and the mouth, what is known as the context – but they cannot see them as a whole. They do not recognise gestures or emotions.

 

“I can even recognise my wife if I walk into the house and know that she is there,” says David.

 

“But if I’m in the street and she passes by and I don’t know that she is going to be there, I wouldn’t recognise her.”

 

David, who lives in Essex, had unknowingly been living with eye damage since birth – the arteries and veins were mixed up. This eventually caused a partial loss of sight and damage in the brain which caused the prosopagnosia.

 

Perhaps the most difficult aspect of this condition is that people do not notice right away that something is wrong with them.

‘Social embarrassment’

He remembers when he realised there was a problem.

 

“I went to a reunion where I saw friends that I hadn’t seen for 30 years. We were pretty close but we went our separate ways.”

 

On the way home, he told his brother-in-law: “‘Fran and Mickey haven’t changed a bit, they are exactly the same!’. And then I said ‘hold on, were they wearing tank tops?'”

 

What David was seeing was his memory of their friends back then. “My brain was telling me that there they were and what they looked like, but that wasn’t the reality”.

 

After that, he discovered he was face blind.

 

There are two main forms of prosopagnosia; developmental – where people fail to develop face processing abilities which is thought to affect around 2% of the population, and acquired, which develops after some form of brain injury and is much rarer.

 

Dr Ashok Jansari, a cognitive neuropsychology expert from the University of East London said: “Acquired prosopagnosia is extremely rare because the type of brain damage is very specific,.

 

“It can be caused by damage to the back of the brain on the right-hand side in an area known generally as the right occipito-temporal region.”

 

David said: “I don’t know what’s worse – not being able to ever recognise people or at 56 years old – as it happened to me – suddenly not being able to recognise anybody”.

 

He added that the worst part is the social embarrassment.

 

“We were on holiday in Cuba and I’d been snorkelling in the sea. I was talking with this guy from Denmark, when this woman swam up and said ‘buenos dias’ and I went ‘hello, pleased to meet you’, thinking it was his wife, but it was actually my wife and I hadn’t recognised her.”

 

David can see people perfectly well – but 10 or 15 minutes later he cannot recognise them.

 

He now tells clients: “If I ignore you, I’m not being rude, it is just that I can’t recognise you.”

Job fears

Sandra, from London, who only wants to give her first name, is also afraid of social embarrassment.

 

She had encephalitis – inflammation of the brain – 14 years ago, which left her with face blindness.

 

Even though her prosopagnosia is mild – she can recognise people she knew before her illness – she would rather not let people know because she does not want anyone to think she has some sort of incapacity.

 

“Life with prosopagnosia is very shameful,” she says.

 

 

She is teacher and at work almost nobody knows that she is face blind.

 

“If I see someone every day, I can recognise them. But if one of the children says hi to me on the street, I would know it is a student from the school, but I wouldn’t know who.

 

“I don’t say anything to the children, I just work every day to learn their faces.”

 

But she says: “Perhaps the reason why I don’t mention it is because I don’t want them to think that I cannot do my job, because that’s not true. I don’t want to feel ashamed or that people think that there is something wrong with me.”

 

Dr Jansari understands the feelings and fears of David and Sandra.

 

He knows of cases in which people have lost their jobs because of the condition – including a teacher who had difficulty recognising pupils, causing problems when parents came to pick up their children at the end of the day,

 

Even though prosopagnosia is not recognised as a disability, Dr Jansari thinks it should be treated as such in some cases.

 

This condition has no cure. “In the case of acquired prosopagnosia, once a part of the brain is damaged it is not going to ‘grow’ back, so it is impossible to fix the problem,” he said.

 

“With developmental prosopagnosia, we don’t know what causes it, but hypothetically in the future if they find that there is a genetic cause, that could be corrected – but that would be a very long way off.”

 

Even though people develop strategies to cope – because people change their appearance, they are not foolproof.

 

Dr Jansari says: “Once David thought that a photograph he saw was of George Michael but it was of me, from a time when I used to have a goatee beard and a gold earring!”

Manchester Learning Disabled Man’s Benefits Cut Over The Phone

October 6, 2013

The family of a man with severe learning disabilities say the funding for his care was  cut by more than £400 a week without him even being seen by assessors.

Ruth Holland, 54, from Burnage, has been told the weekly allowance she receives from Manchester council for her son Paul, 33, is being cut from more than £500 to just £79.

Paul has a rare genetic disorder called Wolf-Hirschhorn Syndrome, which has left him unable to speak or dress himself and needing 24-hour care.

She says the cuts mean he will no longer be able to go to the Heathfields day centre in Newton Heath, which he attends five days a week. Other parents have spoken about their fears for the future of their adult children if their funding is cut. They said agencies have been carrying out some assessments without even seeing the disabled person whose needs are being assessed.

Mrs Holland says she was asked by an assessor if they could speak to her son on the phone.

She said: “I’m so angry. It’s like he is a bag of trash to them that can just be thrown out. If he can’t go to the centre, he won’t be Paul any more. It will stop him from having even any quality of life.

“He will have nothing. They are doing it to all of them and it’s not fair. Paul cannot speak, but he has got a voice and they are people at the end of the day. At the moment, I am my son’s voice and I don’t intend to stop until I get somewhere.”

Mrs Holland has launched an appeal against the proposed changes to her son’s funding.

Volunteers at the Talbot House parents’ support group in Newton Heath say at least 30 parents have contacted them with concerns about reassessments in recent days.

Bernie Wood, general manager of Talbot House parents’ support group, said: “The cuts are absolutely brutal. We’re  very concerned about the health and welfare of elderly parents especially.  We need to ask, is this a cutting society or a caring society.”

Manchester council has slashed £40m from adult services over the last two years.

Coun Paul Andrews, executive member for families, health and well-being, said: “Manchester has had severe funding cuts and it’s impossible to lose that magnitude of money without changing services.”

He added: “Our priority of protecting the most vulnerable remains the same – and always will.”

Miley Cyrus Tweets To Sinead O’Connor Referring To Her Bipolar Disorder

October 6, 2013

Whatever O’Connor may have said to Cyrus, whether or not O’Connor had a point, there is just no excuse for this.

Here’s the screenshot of O’Connor’s old Tweets about her bipolar.

Maisie Harris To Leave GOSH

October 5, 2013

A two-year-old girl born with a condition which means her brain forgets to tell her to breathe is about to leave hospital for the first time.

 

Maisie Harris from Gillingham, Kent has been at Great Ormond Street Hospital in London since being transferred from Medway Maritime at three months old.

 

She has congenital central hypoventilation syndrome (CCHS), also known as Ondine’s Curse.

 

A new, portable ventilator has enabled Maisie to go home.

 

 

The machine knows when she is able to take her own breaths and when she is likely to have a CCHS episode and require support.

Ward party

It has batteries and a carry case, so Maisie, who is three on 23 October, will be able to go on outings with her family and go to school when she is older.

 

Staff on Great Ormond Street’s Miffy Ward held a party for her on Friday, before she leaves hospital on Monday.

 

“We cannot wait to bring Maisie home and enjoy being a normal family,” said her mother Rachel Bridger, 23.

 

“It’s felt as though we have been in hospital for a lifetime.

 

“Everyone here has become like a second family to us – they know Maisie inside out.

 

“She knows her own mind but she is a really happy little girl – she’s hardly ever upset.

 

“I don’t think it will take her long to get used to playing with her toys at home and sleeping in her own bed for the first time.”

‘Make new friends’

Maisie, who featured in BBC2’s Great Ormond Street series last year, also has malacia of the airways, so her airways are floppy like the top of a balloon and do not hold their shape properly.

 

Consultant Colin Wallis said: “We have been working on ways to allow a greater number of long-term ventilated children to go home.

 

“The family home is the best place for a young child to grow and develop, and Maisie will now be able to go out and about with her family, make new friends and experience everything the outside world has to offer.”

 

Dr Wallis treated Ms Bridger when she was younger. She also has CCHS, although her condition is less complex.

 

She and Maisie’s father Andrew Harris, 26, have been trained on how to use her ventilator and will be supported by a team of local carers.

MP Who Once Called Speaker A Dwarf Now Running For Deputy Speaker

October 5, 2013

Remember this, readers? I had almost forgotten it, until just now, when I read this, which you couldn’t make up.

I suppose it could be worse. I’d rather he wins than Nadine Dorries, who I dislike much more strongly.

Mr Quiet

October 4, 2013

paulbernal64's avatarPaul Bernal's Blog

MR QUIET COVER copy small

Mr Quiet was angry.

Quietly angry, because he was A Quiet Man, but very angry.

He was angry that people laughed at him. They shouldn’t laugh at him. He was important. He had once been the Leader.

MR QUIET close 1

And now, these two young whippersnappers had taken his place. And they laughed at him. They bullied him. They laughed at him because he was too old. They laughed at him because he didn’t go to the Right School – though he’d been tempted to write that he went to the Right School on his CV. They even said that he wasn’t clever enough. It wasn’t fair!

And who were they? Yes, they went to the Right Schools, and the Right Universities. Yes, they had shiny dark hair. Lots of it. Much more than Mr Quiet. They were like those two young comedians, Dick and Dom, was it? No, Ant and Dec. That…

View original post 465 more words

Teesside Woman Wins #BedroomTax Tribunal

October 4, 2013

A disabled woman, who is unable to share a bedroom with her husband, has won an appeal against the government’s under-occupancy charge.

 

A housing benefit tribunal said Redcar and Cleveland Council had not fully taken into account the woman’s “reasonable requirements.”

 

The council cut the Redcar couple’s benefit, arguing they were under-occupying their three-bedroom home.

 

The government said the ruling did not set a precedent for similar appeals.

 

The woman, a tenant of Coast and Country Housing, who has chosen to remain anonymous, suffers from various health conditions and this year had a stroke, which resulted in her having to use a wheelchair and require a stair lift.

 

Along with her husband, she argued that due to her condition they required one bedroom each.

‘Medical needs’

The couple have now had the subsidy reduced to 14%, down from 25%.

 

Households deemed to have one extra bedroom have their housing benefit cut by 14%. That rises to 25% for people who have two or more spare bedrooms.

 

The tribunal, which was held in Middlesbrough, concluded that: “In considering whether there is under-occupation of the appellant’s property, the local authority have not taken into consideration her disabilities and her reasonable requirements, as a result of these, to sleep in a bedroom of her own.”

 

The woman’s husband said in a statement: “We took on the government on the spare room subsidy and won.

 

“The tribunal concluded that although we are a couple, my wife’s particular circumstances, the extent and effect of her disabling medical conditions and her resulting needs due to her disabilities, mean that we reasonably require one bedroom each and should therefore be assessed for housing benefit on this basis.”

 

A spokesman for the Department for Work and Pensions said: “Tribunal decisions at this level do not set a precedent.

 

“We will need to look at this particular decision in detail, but in July the Divisional Court ruled that the department had fulfilled its equality duties to disabled people who are affected by the policy.

 

“We are giving local authorities £190m extra funding this year so vulnerable claimants get the help they need during the welfare reforms, with £25m specifically aimed to help disabled people who live in specially adapted accommodation.

 

“The taxpayer can no longer pay for spare bedrooms in the social housing sector.”

‘Contentious area’

Iain Sim, chief executive of Coast and Country, which owns the property, said: “The bedroom tax is abhorrent, because it is affecting some of the poorest people in society, who through no fault of their own are living in homes that are classed as too big for them.”

 

A spokesman for disability charity Scope said: “This could be a really important ruling, coming on the back of similar cases in Glasgow and London. Once again it shows these are not spare bedrooms, these are essential rooms.”

 

The leader of Redcar and Cleveland Borough Council, George Dunning, said: “The council welcomes this clarification of the law in this difficult and contentious area.

 

“As a local authority we have no option but to apply the Department of Work and Pension’s guidance and this judgement will undoubtedly assist many people with disabilities across the country.”

Health Related Consequences Of The US Shutdown

October 4, 2013

I’ve been looking for at least one for a while. This wasn’t the one I expected to find.

Cancer drug trials on hold

The National Institutes of Health will turn away roughly 200 patients each week from its clinical research centre in Maryland, including children with cancer, one of its directors has said.

Trials at the centre are usually for people who have tried other treatments without success. While existing treatments will continue, it will not take on new patients until Congress agrees a budget and government reopens.

Other trials have also been affected. In Massachusetts, father-of-three Leo Finn, who has a rare bile duct cancer, was told a clinical trial he was due to start next week had been put on hold.

The reason, he was told, was that the trial was unable to be correctly registered during the shutdown – but late on Thursday he was relieved to hear that the Food and Drug Administration had found a solution.

Are you in America? Are you, or is the person you care for, sick or disabled? How is the shutdown affecting this?

 

Martyn Sibley Completes John ‘O’ Groats To Land’s End By Wheelchair!

October 4, 2013

He’s done it, readers! Not forgetting his girlfriend Kasia who followed on a bicycle.

Massive congratulations to them both from Same Difference!

Stephen Knight Obituary

October 3, 2013

Stage actor with Downs Syndrome who has sadly died suddenly aged 47.

Black Bone Disease

October 3, 2013

A father who gave up his job three years ago to find a cure for the world’s first genetic disease – which affects both his sons – has discovered a treatment for it.

Nick Sireau, 40, discovered his sons Julien and Daniel had alkaptonuria, known as black bone disease, when they were babies. The disease affects just 60 people in the UK.

Mr Sireau left his job as a charity boss in 2010 in order to research potential cures with medical specialists, and they consequently discovered that the drug nitisinone was a “very, very effective treatment.”

He told BBC Radio 5 live’s Victoria Derbyshire: “They said there is no treatment and we should basically go home and try not to think about it… but we went home and thought ‘we need to do something about this.'”

Disabled Uni Students Need More Help

October 3, 2013

Disabled students are calling on UK universities to do more to help them take part fully in campus life.

A study by the Muscular Dystrophy Campaign’s Trailblazers suggests many students are unable to access areas such as lecture theatres and libraries.

It says many institutions are failing to signpost key information such as details of accessible accommodation.

The Equality Challenge Unit said many universities were working hard to be as accessible and welcoming as possible.

The Disability Discrimination Act 2005 means it is illegal for education providers to treat disabled students less favourably because of their disability.

Accessibility

A Trailblazers’ survey of 100 UK universities found only half of those questioned confirmed that all teaching rooms, study rooms and libraries were fully accessible for students with mobility difficulties.

The research found half of universities questioned said that not all inter-campus transport was accessible.

TRAILBLAZERS’ TOP TIPS FOR SUPPORT

  • Make contact with the disability support advisors at the first opportunity
  • Make the most of opportunities to take guided tours of the facilities
  • Don’t be afraid to ask questions
  • Ask what services are available for you, eg note-taking in lectures.

Only a quarter of the universities surveyed had considered disabled students when planning freshers’ week information and only a third had a society representing disabled students in the student union.

Tanvi Vyas, manager of Trailblazers, said: “We continue to hear about how many universities are still missing the mark when it comes to helping people planning on entering higher education – and helping them to complete their time there.

“There are plenty of simple measures that universities can take. Providing inclusive freshers’ guides, handy information on accessible transport and buildings and support networks can all make a huge difference to students adapting to campus life.

“We also need the government and local authorities to examine the issue of relocating care packages, which continues to be an enormous struggle for many students studying away from home.”

Chris Brill, senior policy adviser for the Equality Challenge Unit, which helps universities ensure equality for staff and students, said: “Trailblazers’ audit highlights a number of small changes that would make big improvements for students.

“For example, making sure information is clearly signposted on websites, and ensuring the needs of disabled students are reflected in freshers’ week programmes.

“Students’ unions, often a conduit between universities and students, could also be encouraged to consider how they involve disabled students in the democratic structures.

“Through this, we may see an increase in societies representing disabled students, and better involvement of disabled people in higher education.”

Disabled MP Worries About Food Bank ‘Habit’

October 3, 2013

Paul Maynard and I share a disability, Cerebral Palsy. It seems we have similar levels of impairment and, I would like to think, similar levels of intelligence.

I would love to be an MP, so it seems we have similar ambitions and hopes, too.

So I was so proud when Maynard entered the House of Commons, especially when I found out that he is the first MP with CP.

When he was mocked in the House of Commons as a result of his disability, I was horrified. I fully supported and defended him at the time.

He made it very clear when he entered Parliament that he was representing his constituents, not disabled people. I understood and supported that too.

However, I never thought that he would take it this far.

He may have been, as I have, lucky enough never to have needed a food bank. But, in spite of all our similarities, there are several differences between Paul Maynard and I.

One of these differences is that while I have been very lucky in life and have not experienced poverty, I realise that many people have not been as lucky as I have. If I was lucky enough to be in Paul Maynard’s position of power, I would not reveal opinions that would offend so many of the very people I was representing who have not had my luck in life.

Especially when so many of those people are disabled, like himself, or carers, like his parents once were and possibly still are.

Paul Maynard, you are not in Parliament to represent disabled people. However, public attention’s a strange thing, innit? Because you have public attention, disabled people are watching your every move. Some of us are watching you with pride. Some of us consider you an inspiration and a role model.

And as a direct result of this, some of us feel deeply hurt and let down when you prove to have opinions no better than those of Government Ministers.

 

IDS: Realistic Unemployent Simulator

October 3, 2013

This game’s been going around online for a couple of days. I’m a bit rubbish at it as you can see from my score!

On Twitter? In The UK? Hate The Daily Mail?

October 3, 2013

On Twitter? In the UK? Hate the Daily Fail? If you answered yes to all of the above, please do this. 

If you agree with Same Difference that the Milibands deserve an apology from the Mail for the awful article on their father, please click the link above to Tweet all their advertisers asking them to withdraw advertising until that apology is made.

Sincere thanks go out from Same Difference  to Political Scrapbook for having the idea and making it possible.

PS. The Fail also hates us lot and is known for scribbling general nonsense about disability and benefits. Which is just another reason for us to support this boycott.

Transsexual Helped To Die In Belgium After 3 Failed Operations

October 3, 2013

This case scares me. By covering it, I am not suggesting that being transsexual, in itself, is in any way a disability. However, I personally think that the case is a sign of how any law for assisted death could be misused, if there was to be any such law introduced in Britain.

Even if this man  was depressed, and this seems, from the story, quite possible, I personally have to wonder whether depression requires someone to opt for assisted death, I have to wonder whether this man, or any depressed person, would not be physically able to end their own life without assistance.

This is a point that should, in my personal opinion, be considered very seriously before the introduction of any law supporting assisted death in Britain.

Teenager Planned Terror Attacks

October 2, 2013

A 17-year-old boy planned terrorist attacks on a mosque and two colleges in Leicestershire, a jury has heard.

The teenager was one of three arrested in February when their homes in Loughborough were raided by counter terrorism officers.

Two other 17-year-olds have admitted possessing petrol bombs and pipe bombs.

The third boy has gone on trial at the Old Bailey accused of two terrorism offences. He denies the charges. The hearing continues.

None of the teenagers can be named for legal reasons.

The BBC are also reporting that this boy has Aspergers, which is why I’m covering the case. I’ll update this post when I find a link confirming this info.

ECHR #BedroomTax Victory For Severely Disabled Woman

October 2, 2013

Progress! Please share widely.

A Tribunal Judge in Glasgow has set-aside an under-occupancy decision against a severely disabled woman on the grounds that it was incompatible with the appellants rights under Article 14 of the European Convention on Human Rights, read with Article 1 of the First Protocol. GLC believes this may be the first reported successful UK challenge on Human Rights grounds against the bedroom tax.

The woman, with Primary Progressive Multiple Sclerosis, was expected to share a specially adapted bedroom with her husband. The imposition of the bedroom tax had placed the couple in arrears of rent with their housing association landord. Tribunal Judge Boyd held that:

“In terms of section 3(1) of the Human Rights Act 1998 regulation B13(5)(a) of the Housing Benefit Regulations 2006 can and should be read as follows:  “(a) a couple (within the meaning of Part 7 of the Act) (or one member of a couple who cannot share a bedroom because of severe disability).”  Not to so read it would be incompatible with the appellant’s rights under Article 14 of the European Convention of Human Rights read with Article 1 of the First Protocol of the European Convention of Human Rights”.

“Applying regulation B13(5)(a) as so read, the appellant is entitled to two bedrooms.  Accordingly there should not be an under occupancy reduction of 14% in her housing benefit entitlement from 1 April 2013.”

The Tribunal judge distinguished the present case from the recent unsuccessful judgment of the English High Court in MA, and supported the appellent’s position that the English Court of Appeal’s decision in Gorry was in point with the facts and circumstances of the appellant:

“The judgement in MA, at paragraph 88, distinguished the ten cases before the High Court under judicial review procedure from the decision in Gorry on the basis that Gorry related to a discrete group; families with children who could not share a bedroom by reason of their disabilities.  This approach was not applied in MA as it was considered that there was no discrete group.  As explained above, the Tribunal considers that the appellant is a member of a discrete group very similar to the group considered in Gorry – a person who cannot share a bedroom by reason of her severe disabilities – and as a result Gorry is the case most in point.  The judgement in Gorry was made by a higher Court that the judgment in MA.  It related to a statutory appeal, as is the case here, rather than a judicial review.  It is noted that there will be no appeal against the decision in Gorry but that permission has been granted for an appeal to be made against the decision in MA, and this appeal is being expedited”.

The appellant’s solicitor, GLC’s Mike Dailly, said: “We are delighted for our client, and believe that this judgment is very robust as there was no dispute on the facts that the appellant was severely disabled and could not share her specially adapted bedroom with her husband. She did not have a spare or extra bedroom, she required her own bedroom to meet her needs as a severely disabled person. We think this decision – which we understand may be the first reported success in using unlawful discrimination and human rights law to challenge a bedroom tax decision in the UK – will be of great significance to other severely disabled people in similar circumstances to our client”.

The judgment of Tribunal Judge LD Boyd is published here (with some personal data redacted to preserve our client’s right of confidentiality).

World Cerebral Palsy Day 2013

October 2, 2013

It’s that time of year again. World Cerebral Palsy Day 2013 is today.

world cp day 2013

I hope you will all join me in using today to raise awareness of CP in a small way, or to celebrate the people you know who have or had CP.

For more details of the event, you can check out the Facebook page here.

I’ll be celebrating myself by bringing you all the best in blog posts and Tweets, as usual!

Motability Support If You Fail PIP Assessment

October 2, 2013

This is a statement by Lord Sterling – Chairman, Motability Board of Governors. It describes the transitional support available to Motability customers who lose DLA and fail to qualify for support under PIP.

Motability Scheme to provide one-off transitional support to customers who, following their initial reassessment by Government for the new PIP benefit, lose their eligibility to remain on the Motability Scheme

In April 2013, the Government introduced a new benefit – Personal Independence Payment (PIP) – which will gradually replace Disability Living Allowance (DLA) for disabled people aged between 16 and 64.  Motability acknowledges that there are positive aspects of PIP compared to DLA in the longer term.  However, over the last two years, the Governors of Motability have considered how PIP will affect Motability Scheme customers and, in particular, the degree to which we can assist those customers who lose their eligibility to remain on the Scheme when they are first reassessed for the new benefit.

Between October 2013 and 2018, the Department for Work and Pensions (DWP) will reassess some two million disabled people aged between 16 and 64, who currently receive DLA, for the new PIP benefit.  This reassessment process will include approximately 360,000 of the 620,000 disabled people who currently lease a vehicle through the Motability Scheme.  Because PIP is a new benefit with different criteria to DLA, some disabled people may not qualify for mobility support under PIP or may do so at a lower level than they had under DLA.  As a consequence, they will no longer be eligible to use the Motability Scheme.  

Since its inception over 35 years ago, the standard of service and support provided by the Scheme has always reflected the very special needs of our customers. Some two years ago when the Government initially proposed the adoption of PIP, we decided that we wanted to help those customers who can no longer use the Scheme to retain their mobility outside of it.  Therefore, over the next five years as PIP is introduced, the Motability Scheme plans to provide a one-off transitional package of support and advice regarding alternative mobility arrangements to these former customers.

Background on Disability Living Allowance (DLA) and Motability:

Disability Living Allowance (DLA) is a Government benefit to help with the extra costs arising from disability.  DLA is not means-tested or taxable, and is paid whether the disabled person is working or not.  The Department for Work and Pensions (DWP) determines who is eligible for DLA, based on an application completed by a disabled person, supporting evidence provided by the applicant and, in some cases, a medical assessment carried out on behalf of DWP. 

Motability was formed as an independent charity with all-party Parliamentary support in 1977.  Since then, the Motability Scheme has supplied over 3.5 million vehicles to disabled people and currently has over 620,000 customers.  Although we have always worked closely with DWP on issues related to the Scheme, Motability has never of course had any role in determining who should receive DLA; that is solely the responsibility of the DWP. 

Once in receipt of the Higher Rate Mobility Component of DLA, a disabled person is eligible to join the Motability Scheme.  It is entirely up to the recipient whether they wish to spend their allowance joining the Motability Scheme or in some other way.  Approximately one third of eligible recipients choose to use their allowance to lease a vehicle through the Motability Scheme.  Customers today benefit from a wide choice of manufacturers and vehicles available through the Scheme, including specialised adaptations and wheelchair accessible conversions.  Through its relationships with manufacturers, dealers and other service providers, the Scheme also supports customers with a high level of personal care, expertise and service appropriate to their needs. 

Once an eligible disabled person decides to join the Motability Scheme, they ask the DWP to pay the Higher Rate Mobility Component of their DLA directly to Motability Operations (who operate the Scheme under contract to Motability) irrevocably for the duration of their lease agreement.  The Scheme buys over 200,000 cars each year, accounting for some 10% of the UK new car market and enabling Scheme customers to benefit both from the discounts which it can negotiate with motor manufacturers and also from the very close and helpful relationships we have with manufacturers and dealers.  At the end of the lease, which is usually three years, the customer returns the car for resale by Motability Operations.

However, we cannot extend the Scheme to disabled people not in receipt of the Higher Rate Mobility Component of DLA.  For more than 35 years, the availability of the mobility allowance from Government (most recently, the Higher Rate Mobility Component of DLA) has provided a sound financial basis for the Scheme and this linkage remains fundamental to the Scheme’s viability.

Introduction of Personal Independence Payment (PIP):

The Motability Scheme will work with PIP in exactly the same way as it does with DLA; disabled people who receive the Enhanced Rate of the Mobility Component of PIP will be eligible to use the Motability Scheme, if they choose to do so, in the same way as people who receive the Higher Rate Mobility Component of DLA.

Today, the Motability Scheme supports over 620,000 disabled people and their families across the United Kingdom, for whom an affordable and suitable vehicle provides levels of freedom and independence that would otherwise be beyond their reach.  However, PIP is a new benefit with different eligibility criteria to DLA.  As the DWP reassesses current DLA recipients aged between 16 and 64 for PIP, those who are Motability Scheme customers may qualify for the Enhanced Rate of the Mobility Component of PIP, in which case they should enjoy a seamless service as they move from DLA to PIP.  Some customers, however, may not qualify for mobility support under PIP or may do so at a lower level than they had under DLA and, as a consequence, they cannot continue to lease a vehicle from the Scheme.  Although they had properly claimed and received DLA, these changes are the result of a new benefit being introduced by the Government with different eligibility criteria. 

As a consequence, some disabled people may have enjoyed the benefits of the Motability Scheme for many years but find that they can no longer use it as they are no longer in receipt of the relevant mobility component of DLA or PIP.  While we cannot replicate the benefits of the Motability Scheme for them on an on-going basis, because we have a long history of offering a unique service to disabled people, we aim to provide a one-off package of support and advice to help such customers through this difficult transition. 

One-off transitional support for customers who lose eligibility to remain on the Motability Scheme:

Since 2010, Motability has maintained a close dialogue with DWP as they developed their plans for the introduction of PIP through a number of public consultations.  Over the last two years, Motability has also consulted disability organisations including Disability Rights UK, Disabled Motoring UK and groups representing customers with specific impairments, as well as undertaking considerable research with our own customers, to discuss what help would be most useful for those customers who are no longer eligible to use the Scheme.  We are very grateful to all of the organisations and individuals who have helped us in developing and prioritising proposals for how we support these customers.

In order to ensure that the Motability Scheme is sustainable for the long term to continue to help the disabled community for at least another 35 years, we have the responsibility to identify risks, long term as well as short term, especially in these uncertain times. Taking account of these considerations as well as of our customers’ needs, Motability and Motability Operations have concluded that the following support can be provided to customers leaving the Car Scheme as a result of a PIP reassessment:

  • DWP has already announced that they will allow DLA payments to continue for four weeks after they make their decision regarding PIP.  In addition to this, the Scheme will allow customers to retain their vehicle for up to a further 3 weeks from the date the DLA payments end.  The customer will therefore be able to retain their vehicle for close to two months after the DWP decision is made.

Customers will need to return the car to the dealership in good condition and within the agreed timeframe in order to qualify for the following transitional support:

  • For customers who entered into their first lease agreement with the Scheme before January 2013 and therefore could not have been aware of PIP and the associated risks when they joined (the vast majority of customers), we will provide transitional support of £2,000.  For many customers, this will enable them to continue to have mobility by purchasing a used car.
  • For customers who entered into their first lease agreement with the Scheme with an awareness of PIP being introduced and of the risk that they could lose eligibility following a future PIP reassessment i.e. after January 2013 and up to December 2013, we will nonetheless provide transitional support of £1,000.

We will review these levels of transitional support during 2015 to take account of economic conditions and of any possible changes the Government may be making to PIP at that time.

  • For customers who have made an Advance Payment (an additional upfront payment to lease a larger or more complex vehicle on the Scheme), the Scheme will continue to refund any Advance Payment on a pro-rata basis.  No further costs will be applied to customers whose leases end early as a result of a PIP reassessment.
  • We will work with our Scheme suppliers, including RSA and RAC, to provide general information on motoring, insurance and other motoring services outside of the Scheme.  This will include information, for example, on buying a new or used car, and arranging insurance and other services such as breakdown cover.  In particular, we are working with a leading UK insurance broker who will offer insurance quotes to former Scheme customers that will recognise their no-claims history on the Scheme.  We are also working with manufacturers and dealers to ensure that they are aware of the issues faced by these customers and are able to discuss possible alternatives to maintain their mobility once they have left the Scheme.
  • The Scheme will offer customers an opportunity to purchase their vehicle following the end of the lease.  The payments that they would otherwise have received upon returning the vehicle can be directed towards the purchase price.
  • We will work with customers who have wheelchair accessible vehicles on the Scheme on a case by case basis to understand and assist with their future mobility arrangements including, where appropriate, enabling them to retain their current vehicle.
  • For customers with adaptations, we will help them with the costs of fitting the same adaptations to a non-Scheme vehicle.

The Motability Scheme will also provide a package of support and advice to customers currently leasing a scooter or powered wheelchair, with the objective of allowing them to retain their current product wherever possible.

As the DWP plans to begin reassessments of existing DLA recipients in October 2013 and each reassessment will take several months to complete, we do not expect any Scheme customers to become eligible for this support until early 2014.  We will monitor customers’ feedback on the support and advice we provide and we may make changes to it based on experience.  We will also formally review all aspects of our support package in Autumn 2015, to take account of economic circumstances and any possible changes the Government may be making to PIP at that time.   

In the years to come, the Motability Scheme will receive applications from recipients of PIP as well as from recipients of DLA and we will continue to meet the needs of disabled people, as we have done since 1977.

Lord Sterling

Chairman, Motability Board of Governors

September 2013

George Osborne’s Workfare Plans ‘Sick’

October 2, 2013

George Osborne’s workfare policy threatens to lump all claimants together, just as Iain Duncan Smith’s universal credit takes the same broad brush to those in need of benefits. Of the 200,000 people who are long-term unemployed, how many sick and disabled people will be forced to undertake community work, attend a jobcentre every day or go on an intensive training programme?

The rally in London on Saturday commemorating the 10,000-plus sick and disabled people who have died since the Atos-administered work capability assessments began is a straw in the wind. Figures from the Department for Work and Pensions show that between January and November 2011 10,600 people died during, or within six weeks, of being put through the work capability assessment (WCA). The WCA decides people’s entitlement to benefit based on a tick-box system that is unable to assess complex impairments and mental health issues. According to the British Medical Association 40% of assessments are overturned on appeal, rising to 70% for those who manage to get legal representation.

Nor does the welfare reform bill look like making life any easier for sick and disabled people. Those on employment and support allowance who want to appeal against a decision will be forced to claim jobseeker’s allowance or go without benefits, possibly for months, under section 102 and schedule 11 of the Welfare Reform Act 2012. Their claims used to continue until the appeal was heard. Not any more.

OK, maybe the Tories have got a point, you think. All of these people on benefits – it can’t be good for the economy, can it? Surely the sick and disabled should be encouraged to work? Surely simplifying benefits and treating all claimants the same will save the taxpayer millions? But at what cost?

Last week saw the grotesque “mental patient” Halloween costumes go on sale at Asda and Tesco, then their rapid withdrawal after an outcry on social media. Perhaps Jack Dee summed up the outrage and incredulity felt by the “mental patients” themselves: “Just bought my Halloween costume. Going as managing director of Asda.” All of this takes place against increasing hostility towards the sick and disabled: 1,942 disability hate crimes were recorded by police forces in England, Wales and Northern Ireland one year after the coalition started governing “in the national interest”, and disability hate crime has doubled since the start of the financial crisis.

Last year the Glasgow Media Trust found the public believed that between 50% and 70% of those on disability benefits were fraudulent. The actual number is likely to be between 1% and 2%. The same report found that there has been a tripling in the use of words such as “scrounger”, “cheat” and “skiver” in tabloid stories on disability in the past five years.

And then there’s Eric Pickles. The communities and local government minister has been caught on tape telling his constituent Teresa Cooper to “adjust your medication”. Cooper claims she was abused at the Kendall House care home in Kent in the late 1970s and early 1980s. Is Pickles qualified to pronounce on medication?

On The Andrew Marr Show on Sunday David Cameron said he didn’t want to get into an argument with the “mental health lobby”. Too late, Dave. If you’re going to herd the sick and disabled on to jobseeker’s allowance so that they have to sign on every day, to create a climate in which supermarket chains think nothing of flogging “mental patient” Halloween outfits, where your ministers tell their constituents to “adjust their medication”, and you attack your opponents for being “fruitcakes” and “nuts” then you’re going to get very little sympathy from the one in four people who have had mental health problems and the sick and disabled in general. You may think picking on the most vulnerable people in society is a vote-winner – think again.

I’m reminded of Margaret Thatcher’s speech to the 1922 Committee as the miners’ strike escalated. “We had to fight the enemy without in the Falklands. We always have to be aware of the enemy within, which is much more difficult to fight and more dangerous to liberty.” As the Tories commemorate “Our Maggie” what about commemorating the 10,000 people Saturday’s rally gathered to remember? Labour said last week, “We’re better than this”. The Conservatives seem to be saying, “We’re better than you”.

Enable Holidays Launches Accessible Tour of India‏

October 1, 2013

A press release:

Helen Dolphin, Director of Policy and Campaigns at Disabled Motoring UK, has visited India for the very first time on a trip organised by Enable Holidays.

To celebrate the launch of its Golden Triangle Tour, which will be available to book from January 2014, the disabled holidays specialist invited Helen (38) to travel around the country and blog about her experiences.

Helen contracted meningococcal septicaemia when she was 22 and had her hands and legs amputated. During the 11-day trip she visited Delhi, the Taj Mahal, Agra Fort, Jaipur and Sikandra.

“My trip to India has been absolutely amazing,” said Helen. “The people could not have been friendlier or more helpful and it seems that India is one of the most accessible places I’ve ever visited – not just because they have ramps but because wherever I want to go there will be someone there ready to help.

“Visiting somewhere like India may seem a bit of a step into the unknown but I cannot recommend it enough.”

Enable Holidays was established in 2004 and was the first UK tour operator to be accredited for its competence in auditing the accessibility and grading the suitability of accommodation abroad for people with mobility impairments.

It has since become the UK’s leading accessible holiday specialist and offers a range of over 250 accessible hotels and apartments for disabled people with limited mobility, wheelchair-users and slow walkers as well as their families and friends.

Managing Director Lynne Kirby said there’s a growing demand for more exciting and adventurous destinations.

“As the UK’s leading tour operator of accessible overseas holidays we are constantly sourcing new opportunities to satisfy our customers’ desires for something different and captivating.

“We have been working in conjunction with the Indian Tourist Board on the Golden Triangle Tour which we’re delighted to be able to offer to our customers from January 2014. We’ve also assessed extreme activities in the Catalan and we will shortly be planning a Kenyan safari to check out its suitability for disabled tourists.”

To ensure the suitability of all the holidays offered by Enable Holidays each one is personally visited by a qualified in-house auditor who undertakes a unique 150-point check list.

Although Lynne personally assessed the Golden Triangle Tour she was keen for Helen, a leading campaigner for disabled people, to experience this extraordinary holiday for herself.

“Helen is a truly inspirational woman who, amongst other things, is a highly respected freelance journalist,” explained Lynne. “Despite having no hands and no legs she trained as a journalist with Anglia TV where she worked as a news reporter for seven years before joining Disabled Motoring UK.

“She also swims with East Anglian Swallow Tails and The City of Norwich Swimming Club five times a week and narrowly missed out on competing in the Paralympics.

“I was delighted when she accepted our invitation as I think reading her reports, which have been posted on the DMUK website, will reassure other disabled people who would like to travel further afield but up until now haven’t had the confidence to do so.”

Lynne arranged for Helen to fly to India with Virgin Atlantic while Travel World Experiences (TWX) provided all of the ground arrangements including transfers to and from the airport and sightseeing tours.

The airline’s Passenger Disability Adviser Geraldine Lundy, said: “We were delighted to help Lynne arrange this trip. We work with many individuals and organisations to enable all our customers with disabilities to travel as safely and comfortably as possible.

“We are so glad that Helen enjoyed her experience in India and hope it inspires many more disabled people to travel. Virgin Atlantic has a team of staff dedicated to looking after passengers with accessibility needs and we encourage anyone that needs help to contact us in advance of their flight so we can make their journey as easy and comfortable as possible.”

To read Helen’s reports from her trip to India please visit the Disabled Motoring UK website http://www.disabledmotoring.org

LIBBY CLEGG CELEBRATES THE HISTORY OF BRAILLE IN EDINBURGH’S ICONIC ROYAL BLIND SCHOOL

October 1, 2013

A press release:

London 2012 Paralympic Silver Medalist Libby Clegg will host a unique exhibition about Braille in celebration of National Braille Week.

Edinburgh’s iconic Royal Blind School is opening its doors on Thursday 10th October for a special exhibition showcasing the fascinating history of Braille, in celebration of National Braille Week. Libby Clegg, who is a former pupil at the Royal Blind School and who was recently selected to take part in the Glasgow 2014 Commonwealth Games, will be speaking at the event about her experience of using Braille and other alternative formats.

The unique exhibition, from 6pm – 8pm, is a free event and will feature displays of the innovative ways Scottish charity Royal Blind has used Braille to communicate through the years. There will be an exclusive photographic exhibition and historic Braille equipment on display.

Libby Clegg said:

“It’s National Braille Week in October and I’m trying to brush up on my Braille. I don’t think me and my brothers were the best Braille students, it’s so hard! I am trying to get better though. I hope people in Edinburgh will be able to join us on 10th October to learn more about Braille and other alternative formats for blind and visually impaired people.”

Davina Shiell, Royal Blind’s Marketing Manager, said:

“National Braille Week is focused on raising awareness about the use of Braille, and this exhibition is the perfect way to find out how important it is to the lives of blind and visually impaired people. Royal Blind invite anyone who is interested to join us for what promises to be a really interesting evening”.

Numbers for the exhibition are limited so if you would like to attend please RSVP as soon as possible by telephoning the Royal Blind Marketing Department on 0131 229 1456 or booking online at http://bit.ly/NBW2013

National Braille Week takes place from 7-13 October 2013.

For more information please contact:

Davina Shiell, Marketing and Fundraising Manager, Royal Blind

Tel: 0131 229 1456, Mobile: 07713 987797, Email: davina.shiell@royalblind.org

The Day I Got My Sight Back

October 1, 2013

A man who started to lose his sight in 2002 has been speaking about the joy of seeing his twin boys again.

Ian Tibbetts underwent radical surgery which involved implanting part of one of his teeth into his eye.

His journey is described in a new BBC One documentary, The Day I Got My Sight Back, on 8 October 2013.

Brent Worst For Type 2 Diabetes

October 1, 2013

Brent in north-west London has the highest rate of diabetes in England with more than one in 10 people over 16 living with the disease, figures show.

London boroughs Newham, Harrow and Redbridge also have among the highest rates in England.

A Brent GP said the high rate was partly due to the high level of diagnosis as well as the ethnic mix and other factors.

He said money was being spent on detection and education.

The figures have been analysed by Diabetes UK and have come from Yorkshire and Humber Health Intelligence, which runs the National Diabetes Information Service.

Seems ‘normal’

People from the Afro-Caribbean and South Asian communities are most at risk of diabetes, said Diabetes UK, with people of Indian, Bangladeshi or Pakistani origin six times more likely to develop it than white people.

The 2011 census showed Brent had the highest proportion of non-UK born residents in London.

Mavle Carby, 62, was diagnosed 40 years ago with type 2 diabetes, which means her body does not produce enough insulin to function properly.

She has eyesight and kidney problems as a result.

She said: “I know the changes I had to make if I want to live a normal and healthy life.

“My mum did not accept [her diabetes] for a long while. She could not comprehend it.

“By the time she did it was too late.”

‘Biggest threat’

Dr Anjit Shah runs a GP practice in Kenton Road in Brent where the diabetes rate among patients is even higher than the borough’s at 12.4%.

Asked why the prevalence of diabetes is so high, he said it was partly because the borough had been proactive in diagnosing cases but also because of the ethnic mix of the population, diet, lack of exercise and obesity.

He said: “It has an impact on general health. Diabetics are more at risk of developing heart disease, strokes, blindness and kidney disease.”

He said Brent’s clinical commissioning group for which he is a clinical director is planning to invest more in detection, diagnostics and education.

Diabetes UK believes there are about 80,000 people living in London with undiagnosed type 2 diabetes.

Roz Rosenblatt of Diabetes UK said: “The problem is that within communities, if everyone you know has diabetes, then it becomes almost normal for that community.”

She added: “It’s probably the biggest public health threat that we have in the 21st Century.”

Are Manchester ATOS Trying To ‘Help’ You Fail Assessments?

October 1, 2013

Spotted on Facebook. As they ask, I am wondering if someone in Manchester can confirm. So please share share share.

Paul Somethingtobe Barnard
ATOS Latest:
This is a possible ploy to help you fail the ATOS medical: At Manchester assessment centre Albert Square, just outside the car park at the fronot of the ATOS building there is a man who has been reported to be asking people for directions, he seems to be asking those with crutches etc who clearly are going into the building for a medical assessment. When he asks, he appears to be watching you for eye contact etc. We suggest that this MAY be a ploy to get you to chat to a stranger, and therefore fail the descriptors 6 & 7 on communication and understanding others. We may be wrong but we do know that in the Manchester ATOS waiting room theres a 50p stuck to floor to trick you to see if you can bend down and pick it up ok therefore showing your manual dexterity. Doing these things once in our opinion, by no means mean you are fit for work but thats the assumption ATOS make and we know the tests are flawed and not fit for purpose as 70% of the assessors decisions are turned over in court.

Also the assessors are receiving incentives to find you fit for work which are not removed if you appeal their decision, so its in their best interest to fail as many as possible. The government revealed that the quality of reports written by Atos assessors had fallen to “unacceptably poor” levels. so there is a major recognised problem, yet STILL they are using these dirty tricks, its entrapment gone crazy! Michelle CAN ANYONE FROM THE MANCHESTER AREA SHED ANY LIGHT ON THE ABOVE… (Posted by Paul Somethingtobe Bernard)

DPAC, Black Triangle And Wow Campaign Holding ‘Tweetout’ Tomorrow

October 1, 2013

There will be a ‘Mass Tweetout’ Tomorrow from 11.45am-12.30pm. I assume that will be during IDS’s Conference Speech or just before it.

Full details of the event are here. Please spread the word and join in if you can.

When Will University Drama Departments Be More Open To Disabled Students?

October 1, 2013

Storme Toolis, the star, on her experiences at uni.

The lecturer looked slightly perplexed. “Can I help you? Do you know this is the drama department?” He thought he was being helpful because he presumed we were lost. He couldn’t imagine we’d intentionally come to his department on the university’s open day. We must have wandered in by accident, trying to find somewhere else. It was another department we were after.

But it wasn’t. My daughter, Storme Toolis, wanted to study drama at university. And the reason lecturer after lecturer, at more than 15 different open days, was incredulous when she zoomed into their introductory talk is because she uses a wheelchair. At nearly every campus we visited, she was met with the same startled looks. She couldn’t want to come to the drama department. They’d never had anyone who looked like her before. “I found they always questioned the choice I’d made,” says Storme. “But it’s not up to them. It’s up to me to choose what I wanted to do.”

More disabled young people will, over the next few weeks, experience the same reception. It’s now open day season at Britain’s universities, and throughout the country candidates are being given an insight into academic options and student life. But if you’re disabled, like my daughter, open days at Britain’s drama departments are largely closed to you. “It’s supposed to be a big important moment – choosing a university. But for me it ended up being a catalogue of ‘this isn’t working’, ‘you can’t do that,'” says Storme.

It’s not that they don’t let you in; they just can’t imagine you staying there. “Some years ago it might have been like this for a black student,” says Lois Keith, equality and diversity manager at the Conservatoire for Dance and Drama. “They look at these candidates and presume they can’t be an actor. But drama departments can’t continue to be endlessly surprised by people they haven’t seen before wanting to do practical drama.”

Storme’s own acting career began at Oval House Theatre in south London, where she joined the youth theatre. The team at Oval House prides itself on attracting diverse and often very challenging young people. But even they were stumped when Storme wheeled in, their first wheelchair user. Due to their commitment to inclusion in the broadest sense, they accepted her. Although she flourished there, she was dissuaded by her school from doing dance A-level and instead she joined inclusive dance company Candoco’s youth group. Now she’s about to enter the third year of her drama and English literature degree course at the University of Kent, one of only two universities that didn’t look startled when she turned up (the other was Warwick, which had already had a student who used a wheelchair in the drama department). She has also had a successful acting career, starring in The Inbetweeners Movie and recently landing a main cast part in the BBC series New Tricks, playing Nicholas Lyndhurst’s daughter Holly Griffin.

“I didn’t realise how challenging it would be to even make inquiries about studying drama,” says Storme. “The arts is supposed to be one of the more liberal minded faculties, but it isn’t. You’re more likely to find an accessible economics department than drama department.”

At the open day introductory talk at a London university – one that prides itself on being avant-garde – the head of drama was clearly surprised to see Storme in the room. Queueing to speak to him afterwards, she asked if the department was accessible. He answered: “You could join drama but would, of course …” – at this point he shook his head as if sad – “you would have to sit out and watch in movement classes.” I pointed out as gently as I could that it would be very difficult to get my teenager to sit out and watch anything. I also mentioned that she was already the member of a youth dance group.

Storme remembers being met at open days by a barrage of questions about how she would cope. “They always asked me how I was going to participate in things,” she says. “But I’ve been very used to adapting all my life. I’m used to trying to do things differently, so it’s not a hard thing for me to do.”

Instead of seeing Storme as a potential problem, the University of Kent was rare in seeing her as a potential asset. Its drama department had never had a student who used a wheelchair before, but saw Storme as a chance to change all that. “Drama departments should look for people who bring interesting experiences with them,” says Sian Stevenson, senior lecturer in drama and theatre studies at Kent. “If we bring together a diverse population with a variety of life experiences, we have much better discussions and opportunities in reinterpreting contemporary and classical work, as well as developing new work relevant to now.”

For one class, they studied Romeo and Juliet. “The students were working on the balcony scene,” says Stevenson. “Storme pressed the button and raised her electric wheelchair right up to its full height and gave a fantastic rendition of the Juliet balcony speech. It wowed everybody. It made the students she was working with think: ‘Oh my God, if she can do that, I can.’

“If you have had certain experiences and have the confidence to share them, then you immediately have something richer.” But this hadn’t just happened. “The teacher had led long discussions and given confidence to the whole class. So Storme and other students felt confident to take risks with their own bodies,” says Stevenson.

The Kent drama department is unusual in being open to these radical reinterpretations. Although many drama departments consider themselves to be at the cutting edge of creativity, on the open days we attended they exhibited very blinkered attitudes. At the introductory lecture at one university, we were told about “disability arts” on the curriculum. This sounded promising. But when we went to visit the drama department itself, Storme couldn’t get in. There were no accessible facilities, no accessible dressing rooms, no accessible places to wash. No one seemed to see the irony except us.

It didn’t seem to make much difference what sort of university Storme thought of applying to. We tried Russell Group, redbrick and former polytechnics. But even those with a more diverse intake didn’t seem to include disability in that diversity. When we visited another university and made our way towards the room where the drama talk was taking place, the lift was broken so Storme couldn’t reach it. I went off to find a member of staff. They took us to the second lift. But it had been used as a storage cupboard and was packed to the ceiling with cleaning materials, buckets and mops. By the time we had emptied it, the talk would have ended.

Yet somehow this was all Storme’s fault. The first thing a member of staff said was: ‘You should have let us know you were coming,’ which we had. We always contacted the university’s disability officer in advance. But even when we did, it was somehow our responsibility to make sure the university was prepared for us, never the responsibility of the university itself.

Lois Keith says the most important thing is for universities to recognise it’s for them to take responsibility for being accessible, not the potential student. “The most fundamental thing you have to do is understand that it’s your job – the university’s job. It’s about looking at the barriers, both physical and attitudinal. The university should take responsibility to identify these barriers and remove them. If you’re in a building where the lift doesn’t work, it’s your responsibility to find a building where it does. Even if that’s not where you’ve always done things.”

Keith believes that it goes further than simply meeting needs as they arise. A university should predict and plan for them. “You’ll get a disabled applicant who says they’ll be fine, that they don’t need any help,” she says. “They come along and it’s clear that it would have been better if adjustments had been made. The applicant will not always know what they need in an audition, for example, as they will never have been to one before. That’s why it’s the department’s job. They know about auditions.”

After we left University X without seeing the department or hearing the talk, they contacted me. Could Storme advise them on how to become more accessible, perhaps join their access steering group? But it’s not up to my teenage daughter to design a drama department that can accommodate her. It’s up to the department itself. No other candidate is asked to do all this extra work, in addition to getting their A-level grades, just to get in.

A university might not have the expertise, but should be prepared to look for it and be open to drawing upon it. Keith says: “The key is to develop a confidence in your organisation – have a disability-confident department. You do that by staff training and by making sure you employ staff who have worked with disabled actors or companies. You should have these people to call on.”

That’s what they were prepared to do at Kent. “You have to start from the baseline of not being experts, of knowing nothing. Then bring in the experts, people who know what they’re talking about,” says Stevenson. “You have to be prepared for them to say: ‘That’s not good enough!’ And you have to be prepared to say: ‘OK, we’re going to learn with you and we’re going to change this.'”

No drama department can predict who’s going to come to its open day. But for it to be truly open, the prediction can’t be that only a certain sort of candidate will turn up. “We mustn’t be complacent,” says Stevenson. “We have got a huge responsibility. We should be constantly asking: does this include every student?”

 

The Contract Between The DWP And Atos

September 30, 2013

The link says it’s uncopyrighted and free to copy. Many thanks to Mr B who got it through an FOI request and made it available for all.

DWP And Government Breaking Human Rights Act

September 30, 2013

Spotted on Facebook:

Chris Turner
ATOS THE GOVERNMENT AND DWP are all breaking the HUMAN RIGHTS ACT (Article 4.
No one shall be held in slavery or servitude; slavery and the slave trade shall be prohibited in all their forms.)(Article 5.
No one shall be subjected to torture or to cruel, inhuman or degrading treatment or punishment.)(Article 22.
Everyone, as a member of society, has the right to social security and is entitled to realization, through national effort and international co-operation and in accordance with the organization and resources of each State, of the economic, social and cultural rights indispensable for his dignity and the free development of his personality.)(Article 25.
• (1) Everyone has the right to a standard of living adequate for the health and well-being of himself and of his family, including food, clothing, housing and medical care and necessary social services, and the right to security in the event of unemployment, sickness, disability, widowhood, old age or other lack of livelihood in circumstances beyond his control.) so how are they gettint away with starving people

Cumbrian Families Faking Food Bank Referrals

September 30, 2013

 

Blackpool Benefits: Family Sharing Bath Water To Save Money

September 30, 2013

The Government should read this.

At this time of year, Blackpool’s illuminated mile sparkles with neon self-confidence.

 

But take in the view from the 19th floor of a council tower block in the Queen’s Park district, and the town takes on a decidedly monochrome quality.

 

For parts of this town appear to be stuck in an earlier era.

 

A myriad of bed and breakfast hotels still display “no vacancies” signs between lacy net curtains, advertise rooms “en suite”, and promise the delights of “colour” television.

 

But this year, for once, Blackpool is in the vanguard of social change.

 

According to experts from Sheffield Hallam University, the government’s welfare changes have hit harder here than anywhere else in Britain.

 

When those changes came in six months ago, their report predicted that, on average, adults of working age in the town would lose £910 a year.

 

That compares with an average loss across the country of £470.

 

The government also forecast that more people would be affected by the housing benefits changes in the North West than anywhere else.

‘Diabolical’

“Those figures don’t surprise me at all,” says Melvyn Holmes, a former miner who now cares for his disabled wife in a Blackpool council house.

 

Because their two children have left home, they have lost £80 a month from their housing benefit, as a result of the end of the spare room subsidy.

 

For the first time they also have to pay £20 a month towards their council tax, making them at least £1,200 a year worse off.

 

“We were all right until the bedroom tax started,” he says.

 

Struggling to cope with debts of up to £5,000, they have now applied for a smaller house, just as the government had hoped.

 

“It’s diabolical,” says Melvyn.

 

“They’re trying to force people out of their homes. We’ve been here for 20 years, but now we’re being forced out.”

Evictions

The changes to council tax benefit have also hit Blackpool particularly hard, as the council decided to pass on most of the 10% shortfall in government grant to its residents.

 

Mike Clague, a former RAF chef whose 19th floor flat has such a spectacular view, is having to find £15 a month extra.

 

“It doesn’t sound much,” he says. “But on top of all the other bills, it’s a lot.”

 

 

He has had to cut back on food as a result. Chocolate has become a once-a-week treat.

 

In Blackpool even those on jobseeker’s allowance (JSA) have to find an extra £206 a year.

 

Many people have not yet paid anything.

 

“We recently had a huge influx of clients for non-payment of that money,” says Julia Hannaford of Blackpool Citizens Advice.

 

“In one week we saw 40 people.”

 

For those that are paying, the extra outgoings have stretched household budgets. Half the council tenants in Blackpool are behind with their rent.

 

In two or three cases, the local housing association has now obtained suspended possession orders, the first stage in the eviction process.

Sanctions

Elsewhere in the North West there are already some striking memorials to the first six months of the benefits changes: the houses that no one wants.

 

In Sefton, on an estate once known as Beirut, there are roads where dozens of people have moved out.

 

One resident of Daley Road points out 10 empty houses in her street.

 

 

“They don’t even bother to board them up anymore,” she tells me.

 

“It’s all because of the bedroom tax. Nobody wants a three bedroom place anymore.”

 

On this part of Merseyside, community workers also report that, since April, more people are having their benefits temporarily stopped.

 

JSA claimants, for example, now have to prove that they are job hunting, by applying online.

 

But not all are computer literate.

 

Ann Morris, a development worker in Litherland, says that as a result many parents can no longer afford to buy school uniforms.

 

She and her colleagues have set up a uniform bank to help.

 

“They all want their kids to go back to school with new uniforms. But some have benefit sanctions, so they just don’t have the money,” she says.

 

‘Blind Scouse’

Carol Wilson, a carer from the Tuebrook area of Liverpool, was herself sanctioned earlier in the year.

 

She lost one week’s Employment and Support Allowance (ESA), as a result of being in hospital.

 

Since April she has also had to find £80 a month as a result of having a spare room, and £9 a month extra for council tax.

 

Along with all claimants, she has also been affected by the 1% cap on annual benefits increases.

 

She, her partner, and her son now share their bath-water to try to economise.

 

“I never thought I’d see the day that we’d all get in and share a bath. A treat is getting in the bath first.”

 

And she stretches a pot of stew, known as scouse, so that it lasts for three days.

 

“You just add potatoes each day. When the meat runs out, it’s known as “blind scouse”.

 

Blind scouse is certainly making a comeback in Liverpool at the moment, she says.

Coping

All along the Department for Work and Pensions (DWP) has insisted that the changes are not about saving money, but about encouraging more people into work.

 

Indeed since claimants were warned about the cap on total benefits back in April, the DWP says more than 15,000 have been helped to find jobs.

 

“Since April we have made great strides delivering our reforms,” a DWP spokesman told the BBC.

 

“The rollout of universal credit and personal independence payments have begun, reforms to housing benefit are making the system fairer and the benefit cap is now in place across the country.”

 

The government also says it has cut income tax for 25 million people, saving a typical taxpayer £700 a year.

 

It claims the typical household will also save £600 as a result of council tax being frozen for five years.

 

And even among those hit by benefit cuts, there are those who support the principles of the reforms.

 

“I do think it’s right that people should be in work if they can be,” says Carol Wilson.

 

“And I don’t think being on benefits should be too comfortable.

 

“Whilst I would like more, the country is in a crisis. And I cope with what I have,” she says.

Greatwithdisability.com- A New Recruitment Website For Disabled Students

September 30, 2013

In the UK, nearly one in 10 university students classes themselves as having a disability, but in 2012 only 2% of graduate job applications came from those with disabilities.

Greatwithdisability.com is a new website aimed at closing that gap, by offering advice and support to students, and a recruitment platform to employers.

“A website like this is a one stop shop to answer all of a disabled graduate’s questions,” says Dan Smith, who lost his vision 15 months ago over the course of two weeks. “Questions as simple as: ‘I’ve got the job now, can I have an orientation around the building?’ That was something I asked for in my current job.”

At the launch of the website, held at Barclays HQ in London, students shared their experiences and had the opportunity to meet graduate recruiters from top companies.

The site offers practical advice to students – how do you describe your disability? at what point in the application process is it suitable to do so? – and provides a platform for disability-aware recruiters to meet talented students.

It was founded by Helen Cooke, who thought the gap between students identifying themselves as having a disability and those going for jobs was “not good enough”.

She says: “It’s not only an utter waste of an individual’s talent, but firms are also missing out on talented individuals who could make a difference to their organisation. We want to be to disabled students and employers what Ebay is to buyers and sellers.”

The website is sponsored by Barclays, EY and EDF Energy, as well as Cooke’s own company, My Plus Consulting.

Rosie Mackay, a student recruitment officer at EY, says: “[Working on the website] has helped us to become much more disability-confident. It has made us understand what students perceptions are of employers, and that we need to be shouting louder about the support we offer for applicants with disabilities.”

Robin Spurrell, a graduate in international relations and politics with a masters in dispute and conflict resolution, says that his visual impairment has not been an issue in his job applications.

“No one has really said anything and I’ve always been very open and confident about it.”

For students who may not be so confident about their disability, or who may be going through a recent diagnosis, Spurrell advises: “Just keep trying. A lot of people might perceive that you can’t do something, or can’t apply to a certain job, whereas in reality there is often a lot of support available.”

If you’re a student thinking about applying for graduate jobs, Greatwithdisability.com is a source for inspiring stories. James Gower, a BSc graduate in mathematics, now works as a consultant IT adviser at EY.

“I have cerebral palsy and went through the recruitment process a few years ago. I think it’s important to be positive in your application – a disability can be a strength, but a lot of people with a disability don’t see it as such.

“As recruiters we want people to showcase what they can bring to an organisation, and that can be a disability. A disability allows you to view the world in a slightly different way.”

Philip Quinn, director of student support services at the University of York, says: “We need role models in organisations, but we need to be authentic. You’ve got to give real examples.

“Students I have talked to over the past 15 years say they don’t want a free pass, they don’t want to be let in on the diversity card, they just want to be let in on the talent they can bring to an organisation.”

IDS Looking At Ways To Make It Harder For ESA Claimants To Get Benefits

September 30, 2013

Who is worse, readers? IDS or George Osborne?

Iain Duncan Smith is examining how to make it harder for sick and disabled people to claim benefits, according to leaked documents from the Department of Work and Pensions.

The documents show civil servants advised the work and pensions secretary that he would not legally be able to introduce secondary legislation – which does not need a parliamentary vote – in order to give jobcentre staff more powers to make employment and support allowance (ESA) claimants undergo further tasks to prove they are trying as hard as possible to get back into work.

The powers being discussed in the seven pages of official guidance – addressed to Duncan Smith – also include forcing sick and disabled people to take up offers of work. If those with serious but time-limited health conditions refuse the offer, DWP staff would then have the power to strip them of their benefits.

The revelation comes as the DWP told the Guardian it had indefinitely postponed a week-long staff “celebration” of a new, tougher sanctions regime for more than a million job seekers.

In a separate memo also leaked to the Guardian, staff and organisations involved in delivering the failing Work Programme, were due to start “conditionality week” on Monday. The event, according to the memo , is “about celebrating how far we have come since new tougher sanction levels were introduced last year … and about helping us smooth the way for universal credit, working better together and making sure we apply the rules consistently and fairly”.

Mark Serwotka, the general secretary of the PCS union, which represents thousands of DWP staff, said: “It is distasteful in the extreme and grossly offensive that the DWP would even consider talking about celebrating cutting people’s benefits.”

In the seven pages of frank official advice dated 29 August, civil servants admit that reforms to the old incapacity benefits system had delivered some gains but there were still “several significant problems”.

They say that still only half of claimants on the newly introduced category of ESA work-related activity group (WRAG) were coming off the benefit by three years.

The DWP says hundreds of millions of pounds are being tied up in administration of the benefit including the work capability assessments and appeals process. The document admits that ESA changes were attracting a lot of negative attention.

The paper says the DWP can get sick and disabled people to undertake “CV writing, attend a training course or do work experience”.

The document warns Duncan Smith that he cannot simply issue a ministerial order to make those who have been found unfit for work to look for, or take up work. Fresh primary legislation would be needed, but he fears parliament does not have time for that process before the 2015 general election.

Part of the solution to getting the temporarily sick back into work lies with employers doing their bit to retain sick staff, the document says, but it acknowledges that envisaged ESA reform is unlikely to achieve this goal.

“The short answer therefore is that there is nothing we can do with secondary legislation to increase conditionality requirements on an ESA WRAG claimant,” the document says.

Paul Farmer, the chief executive of the mental health charity Mind, said: “As people with mental health problems continue to struggle to access the support they need, the repeated response from the government is to crank up the pressure and potential punishments for those being supported by benefits.

“People with mental health problems face significant barriers to finding and staying in work. The government should be ensuring that people are supported to overcome these barriers rather than threatening people with a loss of income. This pressure often exacerbates people’s mental health problems and pushes them further from work rather than closer to it.”

The DWP said it would not comment on leaks. “Officials give advice to ministers all the time – some of which is acted upon, and some of which isn’t,” a spokesperson said. “It is only right that benefits come with conditions to ensure that people do all they can to move off benefits and into work if they are able.

“Our primary aim is to help people into jobs, while supporting those who are too ill to work, so it is important that staff and external providers are able to share best practice and ensure rules are applied consistently and fairly.”

Dementia At 29

September 30, 2013

When Louise was three, her mother Zoe, who was then 29, was diagnosed with dementia. She is now 42, and living in a care home unable to walk or talk.

 

Zoe is one of the 17,000 people in the UK living with “early-onset dementia”, which is defined as cases diagnosed before the age of 65.

 

For Zoe’s family, the first signs something was wrong came when Louise and her sister were on holiday with their grandmother.

 

While they were away, another relative noticed Zoe – clearly confused – out in the park searching for her children.

 

Louise’s grandmother, Julie, says she still misses the everyday moments she can no longer share with her daughter – going shopping or a day at the beach.

 

“It’s one of the worst diseases going,” she says. “It’s all been wiped away.”

 

After being in and out of hospital for some time, Zoe was eventually diagnosed with early onset dementia.

 

Doctors could not say why it had happened to someone so young.

 

“Right at the outset, when she was first diagnosed, they said unfortunately sometimes these things happen,” says Julie.

 

“They’re like a one-off and Zoe’s the one-off.”

 

Zoe managed to live with her daughters at the start of her illness, but soon became too ill to cope.

 

 

She now lives in a care home in Ashford, and is on a special early onset ward, where she is by far the youngest person.

 

Louise was only a baby when Zoe became ill, so has few memories of living with her mother.

 

But she now raises funds for the Alzheimer’s Society, and recently took part in one of the charity’s Memory Walks. She hopes research will help prevent the same thing happening to another family.

 

“I can’t help my mum now it’s too late – there’s nothing anybody can do to help her. But if it means I can help other people then it’s worth it.

 

“It’s also to raise awareness. When I meet new people and I tell them how my life is, and I explain my mum’s got dementia, no-one I’ve met has ever really known what it is and how it affects people.”

 

The family is also having to cope with dementia striking again.

 

Julie’s mother Ruby, 85, was found to have Alzheimer’s five years ago, and is now in a care home.

 

She was diagnosed after slipping out of the house at night and walking several miles along the local canal.

 

Julie – who has therefore seen both her daughter and her mother battle the disease – now focuses on supporting her granddaughters.

 

“The miracle we’ve been waiting for, hoping to happen hasn’t happened,” says Julie.

 

“When the girls were little and asking, ‘Why is mum ill and when will she get better?’ we just had to say, ‘We’re hoping for a miracle’.

 

“We haven’t got our miracle, so perhaps we can help in other ways.”

 

A Video Of 10000 Cuts And Counting

September 30, 2013

Watch this. Please.

Independent Front Page: 30 Sept 2013

September 30, 2013

I looked for the full article… then I realised the headline says it all. And the headline is more than scary enough, dear readers.

indy20130930

How disabled people would manage to go to the job centre every day, I have no idea. And as for those lucky enough to be able to look for work- when would this idea ever leave time for them to do that?

Update 5pm: According to this, the scheme will not apply to ESA claimants. But there are many disabled people who don’t claim ESA who will be affected.

Conservatives: For Hard Working People

September 29, 2013

I saw this video on Friday, but couldn’t quite understand what it meant. That is until I just saw the poster with the Conservative slogan on the news.

The Downing Street Demand

September 29, 2013

A letter urging Prime Minister David Cameron to get rid of work assessments for the disabled has been signed by the dean of St Paul’s Cathedral.

 

The Very Rev Dr David Ison was among campaigners to claim the tests could “cut short” disabled people’s lives.

 

The letter also called on ministers to address the “shameful offences” of austerity measures.

 

The government said the assessments had been improved and could help disabled people get into employment.

‘Heaviest burden’

The letter, titled The Downing Street Demand, called for an end to work capability assessments (WCA) which “demean and distress” disabled people.

 

It stated that government policies forced some of the most deprived members of society to “shoulder the heaviest burden of national debt created by the super-rich”.

The letter to the prime minister said: “In 2010 you said ‘I’m going to make sure no-one is left behind; that we protect the poorest and most vulnerable in our society’.

 

“The reality of the austerity programme is the opposite.

 

“Since your government came to power, cuts have meant that disabled people are paying back nine times more than non-disabled people and those with the highest support needs are paying back 19 times more.”

‘Dignity and security’

The campaigners were particularly critical of work capability assessments, changes to housing benefit – the so-called bedroom tax – and benefits changes including the disability living allowance (DLA) and personal independence payment (PIP).

 

Work capability assessments were introduced in 2008 to assess entitlement to employment and support allowance (ESA).

 

“The support needs of complex disabilities and mental health issues cannot be assessed by a tick-box system,” the letter continued.

 

It suggested WCA should be replaced with a “rigorous and safe system that does not cause unavoidable harm”.

 

Dr Ison, who presided over the funeral of Baroness Thatcher, said: “It’s right to stand in solidarity with people from many different organisations to draw attention to the needs of some of the most deprived members of our society.

 

“Many disabled people feel desperate facing possible cuts in support, the bedroom tax, and in particular an inflexible and failing work capability assessment scheme which can blight and even cut short their lives.

 

“The government needs to respond by enabling disabled people to live with dignity and security.”

‘Fairer process’

Campaigners said 56,000 people had signed a petition supporting an end to the “degrading” assessments.

 

A Department for Work and Pensions spokesman said: “It is important we don’t simply write-off people who have a health condition or disability.

 

“The old incapacity benefits system condemned too many people to a life on benefits with little hope of moving back to work.

 

“Now people who can work will be given help to find a job while those who need unconditional support will get it.

 

“Through a series of independent reviews and by working with medical experts and charities, we have considerably improved the WCA process since 2010 to make it fairer and more accurate.

 

“The percentage of people entitled to employment and support allowance is now at its highest level with over half of people completing a WCA eligible for the benefit.”

Why IOS7 Is Making Some People Sick

September 28, 2013

It hasn’t affected my disability in any way, though I don’t really like the look of it. But now I realise it’s worth asking the question here- does IOS7 work for you?

Apple‘s new mobile operating system for the iPhone and iPad, iOS 7, is stark and minimal, yet dynamic. It makes frequent use of zoom and slide animations; the home screen boasts parallax, with icons apparently floating above subtly animating wallpaper. And it’s making people sick.

Triggers and symptoms vary, but TidePool mobile app developer Jenni Leder’s experience is not uncommon. A self-professed power-user, she frequently switches apps; but on iOS 7, this has caused headaches and feelings associated with motion sickness. “I now have to close my eyes or cover the screen during transitions, which is ridiculous,” she told The Guardian, adding that there’s nowhere to hide: “It’s not apps that affect me, but accessing them. Tap a folder and the view zooms in. Tap an app and it’s like flying through the icon and landing in that app’s micro world — and I’m getting dizzy on the journey there.”

This wasn’t the case under iOS 6. That system wasn’t devoid of triggers (full-screen slide transitions being fairly common), but zooming was minimal and parallax was absent, as were gamified animation effects such as subtly shifting and sliding balloons in Messages.

The same minimal effect is true of stock Android and Windows Phone, which lack triggering animations and effects as dynamic and aggressive as those in iOS 7.

Jump up

The severity of the jump from iOS 6 to iOS 7 means some organisations dealing with such motion-sickness problems are recommending that people with such conditions don’t upgrade their iOS devices. A number of affected users have reportedly switched iPhones that had already been upgraded to iOS 7 for models running iOS 6.

Reactions to screen-based systems — especially those utilising 3D effects — aren’t new. Cynthia Ryan, executive director of the Vestibular Disorders Association, says 3D effects can cause “intense nausea, dizziness and vertigo”, sometimes from general vision problems, but also from visual-vestibular conflict. She added symptoms “manifest more severely if a viewer already has a disorder of the vestibular system”.

The vestibular system is what gives us our sense of balance and sense of spatial awareness; it’s dependent on three mutually orthogonal fluid-filled canals in the inner ear. But when the vestibular system and visual system come into conflict, the effect can be distressing.

John Golding, professor of applied psychology at the University of Westminster, says visually-induced motion-sickness often arises from “the induction of perceived self-motion while at the same time the vestibular system and somatosensory systems signal that the body is in fact static”.

Dizzying change

Similar symptoms can also arise from neurological conditions that cause central dizziness. Matt Gemmell, an independent iOS developer, thought it made sense that those with such conditions “would find some parts of the new iOS 7 interface uncomfortable or disorienting,” because it “makes more extensive use of animations — and those animations are more pronounced”.

The problem for those suffering is twofold: first, many other people refuse to believe a problem exists; secondly, there’s no fix. “We’re often contacted by people affected by moving images on screens, but people are affected in different ways — what’s a problem for one person may not be for another,” explained Natasha Harrington-Benton, director of the Ménière’s Society, a UK charity for peopel with disorders causing dizziness or balance disorders. “But these disorders can be extremely debilitating, despite there being no visible symptoms”.

Marissa Christina, a podcaster and writer about hidden disabilities, suggests there was a “lack of awareness” about such issues: “The words ‘dizziness’ and ‘vertigo’ don’t strike fear into people, but those living with severe cases are in ongoing angst awaiting the next unwarranted attack”.

The lack of a solution is the bigger problem. Apple provides a “Reduce Motion” option within the iOS 7 Settings app, but it is poorly labelled; it merely disables the parallax effect, but doesn’t stop zooming or sliding. Apple did not respond to requests for comment for this article. Which for now, leaves affected people on their own.

Golding’s suggestions to those affected include to “rest often”, avoid situations which reduce peripheral visual clues which give the correct information the person is static (in other words, don’t hold your iPad to your nose), or “just not use the device”. Those might suit some, but aren’t practical if you’re reliant on mobile devices.

Blind spot

What’s surprising is Apple’s apparent blind spot regarding balance and related concerns. Gemmell said: “Apple is more committed to accessibility than any other platform provider I know of.” This is borne out by the software‘s otherwise plentiful aids for people with vision, hearing and motor-control issues.

However, technology writer Kirk McElhearn quesions whether Apple is ignoring people with vision and balance problems. He told the Guardian: “If Apple wants to truly cater to users with disabilities, it must look more closely at which features cause difficulties, make more effort to listen to users who find them hard to use, and enable them to be more comfortable”.

Christina said Apple should start by acknowledging the issue and “initiating an open dialog with those affected, developers, and Apple’s own accessibility team”. The company must, she said, “narrow in on what’s adversely affecting people and ensure features can be disabled”.

Gemmell says he is “sure suitable options to more comprehensively disable motion will be forthcoming”. In the meantime, he recommended those affected send an email to accessibility@apple.com, succinctly stating which animations are problematic and requesting the means to disable them.

Playing a part

In the meantime, developers can also do their part. With app creators often following Apple’s lead, it’s perhaps inevitable the short-term will see yet more animation in iOS 7. Gemmell urges developers to “consider all categories and ability levels of user, and design interfaces judiciously”; they should enable users to disable anything that “could be annoying or intrusive”, and UI effects should “have a useful function, such as showing context, hinting about functionality, or demonstrating transition, rather than being purely decorative”.

With the latest update to the popular calculator app PCalc, developer James Thomson has recognised the accessibility concerns, and provided the option to “remove full-screen transitions throughout the app”.

But he says= he’d sooner see Apple add this at system level, :so individual developers don’t have to”. Gemmell hopes Apple and developers alike would react accordingly regarding animations and transitions, simply because it’s the right thing to do: “Accessibility affects everyone, and devices should be usable in all situations, by as many people as possible. Designing for accessibility levels the playing field, and increases the utility of devices for everybody.”

DATES OF NATIONAL BRAILLE WEEK ARE CHANGING

September 27, 2013

Royal Blind Press Release

For Immediate Release

27 September 2013

The dates of National Braille Week are changing. The celebration of the use of Braille and other alternative formats for blind and visually impaired people will now take place during the week that World Sight Day falls, from 7-13 October 2013.

National Braille Week, which is run by the charity Royal Blind, celebrates the tactile Braille system for reading and writing, which provides literacy, opportunity and independence to visually impaired and blind people all over the world. The dates are being changed from 4th-10th January to enable more people to get involved.

This year to celebrate National Braille Week Royal Blind is organising an exhibition on the history of Braille and the Scottish Braille Press at the iconic Royal Blind School in Edinburgh on 10th October. The exhibition will also be featured online at www.nationalbrailleweek.org

In previous years National Braille Week has seen a host of celebrity support including Stephen Fry, Susan Boyle, Michael Ball and Ian Rankin. Exhibitions have been created by blind artists, books have been transcribed into Braille and a Braille app was made.

This year National Braille Week is being supported by former Royal Blind School pupil andLondon 2012 Paralympic Silver Medalist Libby Clegg.

Davina Shiell, Marketing Manager at Royal Blind said:

“National Braille Week aims to raise awareness of Braille and other alternative formats. With the use of Braille, blind and visually impaired people are able to learn spelling, punctuation and paragraphing, allowing them to read books, exam papers and other important documents that need to be understood to get through life and the working world. These days, many blind and visually impaired people use large print and audio formats as well.

“We hope that many people will be able to join us in celebrating National Braille Week this year by organising their own activities, coming along to our exhibition or viewing it online.”

Places for the exhibition at the Royal Blind School on 10 October can be booked at bit.ly/NBW2013

For more information please contact:

Davina Shiell, Marketing and Fundraising Manager, Royal Blind

Tel: 0131 229 1456

Email: davina.shiell@royalblind.org

Disabled Man Sues Council Over #BedroomTax

September 27, 2013

Share share share.

 

 

A tenant is suing the council after being hit by the bedroom tax – because an extra room was added without his permission.

Chris Burton, of Gunson Street, Miles Platting , has been racking up debt ever since the benefits shake-up and is now more than £200 in arrears.

He says he never wanted the ‘useless’ second room and reckons 35 other tenants will have lost out after their homes were upgraded in 2009.

Now he is appealing to a tribunal judge to rule that his benefits should be based his original tenancy agreement, which says he has only bedroom.

Mr Burton, who suffers with mobility problems and is registered disabled, said he believed the case could be a landmark for thousands of others in his situation.

He said: “It is unjust that I’m having to pay as if I have a two rooms, when my tenancy says that I have one. The extra room has been of absolutely no benefit to me.”

Mr Burton’s flat is run by social housing group Adactus on behalf of the council.

The bedroom tax – which the government calls the ‘spare room subsidy’ – means tenants lose up to 25 per cent of their housing benefit if they have unoccupied bedrooms.

Manchester council are responsible for administering the deduction but say they have no power to re-interpret the strict government guidelines.

However, housing bosses say they sympathise with the situation and have promised to cover the arrears until a solution is found. But Mr Burton, 41, says the council was wrong for lumping him in with those liable for the deduction and is also suing the council for £1,500 for the ‘stress and inconvenience’.

He added: “There are other people out there in the same situation and hopefully this will set a precedent. It could have far-reaching implications.”

The hearing will take place at the Manchester Civil Justice Centre on October 21.

A council spokesperson said: “Mr Burton has submitted an appeal against his housing benefit after his claim was reassessed due the introduction of the government’s spare room subsidy.

“We felt the circumstances that found Mr Burton at the brunt of the bedroom tax were out of his control and unfair – and we remain committed to absorbing the shortfall in his housing benefit regardless of the outcome of his appeal.”

‘Work For Your Benefits’

September 27, 2013

It looks like they’re going to listen to this. I’m scared, readers, I’m very scared.

The long-term unemployed are to be told they must do an unpaid full-time job or be stripped of their benefits.

A dramatic extension of the conditions attached to unemployment handouts  will be unveiled at the Conservative party conference next week, according to well-placed sources.

Ministers are convinced a new US-style ‘work for the dole’ scheme will help to reduce  Britain’s vast benefits bill and curb the something-for-nothing culture.

It is expected that claimants who go through the Government’s main back-to-work scheme, the Work Programme, but fail to find a job, will be required to take part in unpaid community activities or work experience.

Those who refuse to do so face losing their welfare payments.

Work and Pensions Secretary Iain Duncan Smith told the Daily Mail: ‘It’s not acceptable for people to expect to live a life on benefits if they’re able to work.’ 

A poll today finds overwhelming support for stricter conditions for the long-term unemployed.

The YouGov survey shows most voters believe jobseekers should carry out work experience or community work in order to receive their benefits.

By a margin of nearly five to one – 56 per cent to 12 per cent – they support the introduction of ‘workfare’ for the long-term unemployed compared to the status quo.

Two thirds of those questioned – 67 per cent –  felt workless mothers with children under four should be excluded from doing community work in return for benefits.

But only one in four – 25 per cent – thought those with mental health conditions who are capable of work should be excluded from workfare, and only one in five – 22 per cent – thought those with physical disabilities who are capable of working should be exempt.

 

 

 

However, the centre-Right think tank Policy Exchange, which commissioned the survey of 1,930 people, warned that forcing those with physical and mental health problems to work would be counterproductive.

 

 

 

 

 

 

In a report published today, it says the Government should pilot workfare schemes for specific groups of jobseekers, including those who leave the Work Programme without finding a job after at least two years of support, either through lack of effort or experience.

THE CITY WHERE WORKERS ‘JUMP QUEUE FOR COUNCIL HOUSES’

Those who work will be allowed to jump the queue for a council house in one city.

Would-be tenants with a job of more than 12 hours a week and voluntary workers will get priority in Stoke-on-Trent, along with members of the forces and foster carers. 

The city council wants to reward those who demonstrate a ‘community contribution’.

Council house tenants helped draw up the proposed rules.

 

It also suggests that the scheme should cover under-25s with little or no work experience and older jobseekers who have been out of work for at least six months.

 

 

The Government has already carried out pilot schemes which suggest significant numbers of jobless claimants would rather lose their handouts than get out of bed and do a stint of unpaid work.

Officials suspect many of those who stop claiming are working in the black economy and would rather lose their welfare than give up their undeclared earnings.

Mr Duncan Smith said: ‘The welfare state rightly provides a safety net for those out of work. But in return, jobseekers must do everything they can to get into work, that’s only fair.’

Ed Holmes, senior economics fellow at Policy Exchange, said: ‘Making people work in return for their benefits is clearly popular with the public but workfare is not suitable for everyone.

‘These findings underline that fact that the public feel it shouldn’t be the responsibility of government to prop people up and find them work.’

Figures yesterday showed an increasing number of long-term jobless have found employment under the Government’s flagship back-to-work scheme.

More than 168,000 have been helped into a lasting job through the Work Programme to the end of June.

The figure is an increase of 37,000 in the three months to June, said the Department for Work and Pensions.

Interview With Organisers Of 10000 Cuts And Counting

September 27, 2013

#BedroomTax Challenge Set For High Court

September 26, 2013

The legality of housing benefit changes is to be challenged after lawyers for 10 adults and children with disabilities won the right to take their cases to the Court of Appeal.

Since April, social tenants deemed to have too many rooms have had benefit payments cut. Critics call it a “bedroom tax” but the government says it is ending a “spare room subsidy”.

The appeal is against a High Court ruling in July that upheld the legality of the benefit changes. Ministers say the change will save £500m.

The cases are said to illustrate the serious impact of the regulations on disabled people up and down the country in social housing with critics saying the changes unlawfully discriminate against weak and vulnerable people.

Under new “size criteria”, tenants with one spare bedroom have had a payment reduction of 14% and those deemed to have two or more spare rooms, a reduction of 25%.

The Department for Work and Pensions says local councils are being given discretionary housing payment funding so they can help vulnerable residents with all the welfare housing changes, including disabled people affected by the removal of the spare room subsidy.

DWP lawyers argue that the reduction of rising housing benefit expenditure is a legitimate and “integral aspect” of the government’s deficit reduction programme.

The government says the changes should ensure that people are in suitably sized accommodation and release larger accommodation for people who need it.

Ugo Hayter, a lawyer from legal firm Leigh Day, who is representing two cases of adults with disabilities, said: “We are extremely pleased to be able to take our fight to the Court of Appeal. We remain confident that this unfair – and we believe unlawful – bedroom tax will be repealed.”

Unemployed Man Set Fire To Job Centre- To Get Food In Police Cell

September 26, 2013
 

An unemployed man who hadn’t eaten for three days tried to set fire to the job centre – so he could have a meal in police custody.

Bee O’Brien, 49, flew into a rage after a row over his benefits payments and set fire to the customer telephones at Moss Side job centre.

O’Brien had not eaten for three days after his benefits had been stopped.

He told police: “I will commit a crime and get arrested. I need some food.”

O’Brien, of Camelford Close, Hulme, admitted criminal damage, attempted arson, and using threatening words and behaviour when he appeared before Manchester magistrates.

 Gina Clayton, defending, said: “His benefits had been stopped for some reason and he hadn’t eaten for three days. He was simply desperate for some food. He went to the job centre to get his payments and lost his temper.

“He was aware that if he was arrested he would have been given food at the police station.”

Helen Veitch, prosecuting, told the court: “A member of staff at the job centre noticed he was arguing on the customer services advice telephone. He was noted to be aggressive and abusive.

“He was asked to leave the job centre, and was told the staff would phone police.”

She said the member of staff then ‘heard a clicking noise’ and saw O’Brien with a cigarette lighter.

She said: “He tried to set fire to the phone cable, then went to another phone and repeated the action. He said – ‘Yes, I’m setting fire to this to get arrested’.”

When police arrived he said: “If you don’t get my money I will commit a crime and get arrested. I need some food.”

He was detained but carried on being abusive in custody and hurled hot chocolate all over his cell.

He was given a 12 month community order and ordered to do 40 hours unpaid work.

Polio Could Return To Europe

September 26, 2013

 

The Enrico Charles Humanitarian Organisation (E-C.H.O) Literary and Music Awards

September 26, 2013

The awards use disabled people’s personal stories to inspire other disabled people to be successful, but also to celebrate their talents and achievements, diversity, promote inclusion, dismantle barriers, and improve disability awareness among non-disabled people.

The entries also provide information and enlighten the public about some of the barriers faced by disabled people in their daily lives.

The awards are a result of the personal experiences of the awards’ founder, Charlotte Wingfield, the mother of Enrico-Charles, an extraordinary child born with the neuro-muscular condition SMA [Spinal Muscular Atrophy] Type 1, otherwise known as Werdnig Hoffman disease, and more often referred to as a terminal condition.

Enrico-Charles was quadriplegic, and needed constant night-time ventilator support, with occasional daytime treatment, requiring constant physiotherapy, physical assistance and enteral feeding via a gastrostomy tube.

The doctors told her he would not live to experience his first birthday, but Enrico’s extraordinary spirit, humour and affability convinced her of his will to live.

She travelled the world with him in search of doctors and specialists, and his bright and loveable personality captured hearts and minds from London to New York and Paris.

Charlotte Wingfield said:

“Regardless of the crises that beset him, he remained so content and cheerful, and this convinced me that his life and death must mean something. I decided to find a way to honour his memory and somehow put my experiences and knowledge to good use, and help others.

“I launched a national literary and music award that would allow disabled people to tell their own stories in a way that would celebrate life… and show that they can be smart, sexy, fun and successful.”

While Enrico was alive I initiated two clinical trials in the UK and began to put together a project for a palliative care hospice in Paris, training nearly 200 healthcare professionals in a groundbreaking, non-invasive respiratory management program developed by Professor John R Bach from the University of Medicine and Dentistry, New Jersey (one of the medical professionals who took care of the late Christopher Reeves).

The E-C.H.O Awards have two categories, Music and Literature, and will be presented to the winners in October 2013.

The organisers are now looking for sponsors who can help to roll them out across the country, and support the development of an associated online radio station and magazine.

This year, the awards will be promoted and publicised mainly in Shropshire, but will roll out across the country in 2014. They have been running since 2010 in the UK, where they were administered by a large literary festival. From 2013, they are being run independently.

For further information, or if you would like to be a part of the awards, contact: Charlotte Wingfield, Director/Founder, mobile: 07586 870904.

Write to the organisation (charity number pending) at: E-C.H.O Awards, Curzon House, 64 Clifton Street, London EC2A 4HB, email: info@ec-humanitarian.org

Asda Withdraws ‘Mental Patient’ Halloween Costume

September 26, 2013
 
I’m glad it was withdrawn fast. The question is why was it ever on sale in the first place?
Asda product page

Supermarket chain Asda has apologised and withdrawn a Halloween outfit it was selling online as a “mental patient fancy dress costume”, after criticism.

The £20 item included clothing, fake blood, a mask and a fake meat cleaver.

Following criticism, including from one “stunned” mental health charity, the store offered “sincere apologies for the offence it has caused”.

It would be making a “very sizeable donation” to mental health charity Mind, Asda added.

In a statement on Wednesday evening, Asda, which is owned by US retail giant Walmart, said the sale had been a “completely unacceptable error”.

“[The costume] should never have been sold and it was withdrawn as soon as it was brought to our attention.”

Asda added: “We’re deeply sorry one of our fancy dress costumes has upset people.”

It is understood the costume had been on sale through Asda’s clothing outlet George for two days, before being withdrawn from sale on Wednesday morning after being spotted internally.

Asda said the product had been removed from the website in the afternoon but the relevant page remained visible for a few hours.

It disappeared after the criticism on Twitter started to emerge.

‘Frightened of stigma’

Katie Dalton, of Welsh mental health charity Gofal, wrote on Twitter: “Dear @asda, how on earth did you come to the conclusion that this is an appropriate fancy dress costume? Disgraceful.”

And former Downing Street director of communications, Alastair Campbell, who has written about his experiences with mental health issues, tweeted: “Look what Asda’s selling… what possesses these people?”

Former footballer Stan Collymore, who has had a well-documented battle with depression, also criticised Asda for using a “stereotype”.

“Do you actually realise how many people are hanging themselves because of being frightened of the stigma?” he tweeted.

The charity Rethink Mental Illness also took to Twitter to say it was “stunned” by the costume’s description, but later thanked Asda “for responding” to the “concerns”.

‘Terrifying Halloween option’

Sue Baker from Mind told BBC Radio 5 live breakfast that the worst thing about the costume was it reinforced outdated stigmas about people with mental health illness.

“Some of the worst myths that fuel this stigma is the assumption that we’re going to be dangerous, knife-wielding maniacs and that is simply not the case.”

She added: “The stigma can be life limiting and life threatening because people don’t think they can talk to anybody and sadly for some people they take the option of not being with us anymore.”

The internet link to the website page where the costume was being sold used the words “zombie fancy dress costume”.

But the product was titled “mental patient fancy dress costume” on the page itself.

The product details read: “Everyone will be running away from you in fear in this mental patient fancy dress costume…. it’s a terrifying Halloween option.”

Ms Baker also called for retail giants Tesco and Amazon to withdraw from their websites a Halloween outfit of an orange boiler suit with “Psycho Ward” written across the front and back, along with a “committed” stamp below. It also has a plastic low jaw restraint.

According to this, Tesco, Amazon and some online retailers also had similar costumes.

Too Young For Arthritis

September 26, 2013

Arthritis is a condition most people associate with the elderly.

 

But more than 2,000 children and young people in Scotland suffer from the disease.

 

Lucy is four. Since she was little more than a year old, she’s had arthritis.

 

To watch her playing on the slide in her garden near Dundee, you might not know it.

 

Arthritis, a swelling of the joints, is not immediately visible – and most people think it is a disease that only comes with age.

 

 

But an estimated 15,000 children and young people in the UK suffer from arthritis.

 

Lucy’s mum Jane Lyall first noticed there was a problem one Christmas when they were decorating the tree.

 

“Any normal baby of that age would be trying to take the decorations off, but she just sat down,” she said.

 

Too young

 

“She went from being a normal happy baby to a little girl who couldn’t move her neck. Her fingers were swollen. She went from crawling to not being able to move.

 

“She couldn’t roll over in bed, we had to physically turn her over in bed at night, and she couldn’t sit up by herself.

 

“My initial reaction [when she was diagnosed with arthritis] was that, ‘oh, that’s fine, we’ll just give her some ibuprofen and she’ll be ok’, not realising how complex the condition was.

 

 

“Little did we know what journey we had in front of us.”

 

Lucy was lucky. Her condition was caught early. Medication – including breakthrough ‘biological’ drugs – help control it, and her toys are specially designed to help with her physiotherapy.

 

One is a special type of play dough known as theraputty, which exercises the joints in her hands.

 

But juvenile arthritis is relatively rare, making it difficult to spot. Some children go years without being diagnosed.

 

Paul McAlpine, from Edinburgh, first got symptoms when he was six-years-old. It took until he was eight for him to be diagnosed.

 

“I’d gone to five different hospitals all over Scotland,” he said.

 

“Nobody could tell me what it was, until I went to Yorkhill Hospital, and they knew exactly what it was as soon as they saw it.

 

“So there was a large lack of knowledge about what arthritis was in young people until recently.”

 

 

Paul is one of a group of teenagers from across Scotland who have come together through the charity Arthritis Care to form a group called Joint Potential.

 

Together they have made a film, Too Young for Arthritis, about living with the condition.

 

It has been specially screened for doctors, healthcare staff and politicians in the hope of raising awareness.

 

Years undiagnosed

 

Among them is Carrie Thornber from Leven. Now in her twenties, she has already had several joint replacements and uses a wheelchair.

 

She first noticed symptoms when she was 11.

 

“I remember it being around the end of my first year in high school. I wasn’t really diagnosed until a year later,” she said.

 

“I remember being in and out really quickly with the GP. They didn’t really spend much time.

 

“This was about to be something that was going to dramatically change my life, and I was in and out in five minutes, and all I was given was a wee pamphlet.”

 

 

Nicole Guemar, from Glasgow, was a baby when she first got symptoms. Her mum took her to the doctor, concerned that she cried constantly.

 

She was told that Nicole was probably just a “difficult child”.

 

“They thought that was normal because I was a baby, but [my mum] was like no, this is not normal, she’s crying far too much.

 

“Eventually my knee cap had actually turned 90 degrees, and they knew then that that wasn’t normal, so they started running tests. That’s when they found out I had juvenile arthritis.”

 

The youngsters hope by sharing their stories, they will alert more people to the condition.

 

But medical specialists insist things are already much improved in Scotland.

 

‘Aggressive treatment’

 

Dr Jo Walsh, a consultant paediatric rheumatologist, says strides are being made.

 

“This is a really exciting time for paediatric rheumatology and for young people and their families.

 

“Nationally we have a network that allows us specialist teams throughout Scotland with expertise in the recognition and early diagnosis of young people with arthritis,” she said.

 

“Early recognition of a young person with arthritis in the past perhaps has been difficult, because the public’s perception is that children don’t get arthritis, and that’s clearly not the case.

 

“Secondly, health care professionals have perhaps not had the same education and training that we’ve been able to provide through our network.

 

“Early recognition and prompt treatment that is aggressive will lead to better treatment for our young patients.

 

While the future for children like Lucy is uncertain, with new drugs and better training, treatment is getting better all the time.

 

But dealing with the physical symptoms isn’t the only issue. Deni Munro says being a young person with arthritis can be an isolating experience.

 

“I don’t think that people outwith my friends and family understand at all, and sometimes I don’t even think my friends and family understand it.

 

“Raising awareness that young people have this, it’s not an old person’s disease, would help. It has to change, the perception has to change.”

 

And change is what these young people hope sharing their stories on camera will help bring about.

Engineer Designs And Prints 3D Bionic Hand In Childhood Bedroom

September 26, 2013

A young engineer based near Bristol has designed and built a prototype bionic hand in his bedroom.

Roboticist Joel Gibbard, 23, developed the prosthetic using parts made on a home 3D printer.

He hopes the project, details of which will be made freely available online, could lead to a low-cost bionic hand for amputees.

Mike Newman Breaks Metin Senturk’s Record

September 25, 2013

I remember covering Metin Senturk as well.

An ex bank manager has claimed to have broken the blind land speed record by driving at an average speed of 186mph.

 

Mike Newman, from Manchester, reclaimed the record from Turkish pop singer Metin Senturk, who achieved 182mph in April 2010.

 

Mr Newman, 52, was driving at Bruntingthorpe Proving Ground, in Leicestershire.

 

He and his Speed of Sight team now intend to get the blind water speed record in the same year.

 

This would make Mr Newman the first blind person to hold both records simultaneously.

 

Mr Newman said he felt “ecstatic” to have broken the land record.

 

“I’ve worked hard today and I’ve enjoyed driving the car,” he said.

 

“This was challenging because the surface is very bumpy and you don’t realise how bumpy it is until you are going over it at such a speed.”

Charity work

He drove with the help of a navigator who gave information over a radio link, and he did several test runs during the day.

 

“I knew I had got it on the last one,” said Mr Newman.

 

“Everything worked right and when I was in sixth gear I knew I was going quick enough.”

 

Mr Newman, who was born blind, used to be a business manager with Barclays but now runs his Speed of Sight charity full-time.

 

He hopes to encourage disabled people to get involved in motor sport.

 

His charity has designed and built the first of ten specially adapted track cars fitted with dual controls, twin steering wheels, hand controls and a hoist to assist people in and out of the car if required.

 

Mr Newman said he hoped to “give other people the excitement I’ve enjoyed today with the cars we’re building”.

 

Experts verified the speed using a laptop linked up to satellites. The data will be sent to the Guinness Book of Records to authenticate.

Tinsel Girl

September 25, 2013

Maz has just turned thirty only to become all too aware that not only is she single, but also disabled. Her degenerative disease means she now has to use a motorised wheelchair, which isn’t exactly the sexiest accessory a girl can have! Maz had been cool about the wheelchair, but the prospect of finding a date through the modern minefield of online dating makes her reassess her situation and other people’s perceptions of her – can a man really find a woman in a wheelchair attractive? Is she even a pullable commodity?

Cherylee Houston stars in this comic take on online dating, which has been adapted from her diaries by Lou Ramsden.

Urgent Bulletin: DWP To Appeal Fife #BedroomTax Rulings

September 24, 2013

The DWP has issued an urgent bulletin – HB U6/2013 – announcing its intention to appeal two recent First-tier Tribunal cases held in Fife

These decisions were decided in the claimant’s favour because tribunals attempted to apply their own size definitions. For more on this see http://www.disabilityrightsuk.org/news/2013/september/bedroom-tax-rulings-concern-dwp

HB U6/2013 says:

“It has recently been reported that two First-tier Tribunal cases resulted in findings that rooms designated by the landlord as bedrooms were not capable of being such for the purposes of the Removal of the Spare Room Subsidy (RSRS) regulations. This is because the judge determined that the rooms did not satisfy the “space standard” as set out in section 326 of the Housing Act 1985 and section 137 of the Housing (Scotland) Act 1987 which is used to assess statutory overcrowding.

The Department for Work and Pensions will seek permission to appeal against the decisions given in these particular cases as space standards do not relate to the Removal of the Spare Room Subsidy, nor should a dining or living room be classified as a bedroom notwithstanding that the relevant Housing Act provisions would class them as such (see paragraph 3 below).”

Richie Parker

September 24, 2013

Amnesty International Are Listening!

September 24, 2013

Spotted on Facebook. Written by Julia Smith.

Another well respected organisation supoorting us….

THIS IS WHAT AMNESTY INTERNATIONAL UK HAVE TO SAY ABOUT THE COALITION’S ATTACK ON THE SICK & DISABLED…..after promising to support us with our campaigns for justice…

“For disabled people, this represents a significant step forward. For three years they have been experiencing a relentless attack from government, being hit by one cut after another. Their security and peace of mind has been steadily eroded, as Government ministers and their allies in the media have shamelessly misused statistics to convince the public that many disabled people are fraudsters and those who receive benefits are living in the lap of luxury. This has led to a steep increase in disability hate crimes.

When an organisation with the gravitas of Amnesty International recognises that the human rights of disabled people in the UK are being attacked by their own government, and feels it has to act in their defence, perhaps we have reached something of a watershed. Disabled people are no longer struggling alone. An internationally respected and very effective body has come to their assistance, and that is a relief and an encouragement. The government can no longer bully disabled people, confident that they cannot easily defend themselves. Sick and disabled people now have protection.

It will be interesting to see what happens next. Personally I believe that when people look back at this time, and see things clearly, unclouded by propaganda, they will be appalled, and many politicians will be shamed. They have used their power to attack the weakest in society, and sacrificed the vulnerable to their own political ends.”