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Eight Percent Of BBC Stars To Be Either LGBT Or Disabled By 2020

April 25, 2016

New diversity rules set out by the BBC outline plans to have 8 percent of those on screen, on air and in leadership roles to be LGBT and 8 percent disabled by 2020.

The BBC will also announce that half of the roles will be filled by women by 2020, reports the Press Association.

The broadcaster is to “pledge to go further than ever before on targets for the representation of women, disabled people, ethnic minorities and LGBT people on and off air.”

The BBC went on to say that it wants to either meet “or better” other broadcasters’ diversity targets in terms of representation.

A BBC spokesman said: ” We are making good progress in our work to make the BBC a truly diverse organisation, but there’s more to do and we’re always keen to improve.

“Almost half of our workforce is made up of women and the proportion of our workforce who are black, Asian and other ethnic minority is at an all-time high.

“We’ll continue doing what works but also develop new and innovative ideas to do even better, and we’ll set this out in our new diversity strategy shortly.”

According to PA, 48.4 percent of employees at the BBC are women but only 41.3 percent in leadership roles.

As well as increasing numbers of disabled, LGBT and female people in on and off screen roles, it will also aim to have 15 percent of its workforce from black, Asian and minority ethnic backgrounds.

A BBC source said: “The BBC is a diverse organisation, whichever way you look at it, with the proportion of staff from ethnic minorities at an all-time high and content from Undercover and The A-Word to Employable Me and The Victoria Derbyshire Show.”

The source went on to say that the BBC will “undertake to deliver more”, and won’t become complacent.

Adding that “diversity is more than any single characteristic.”

“We are the BBC and must be held to a higher standard. The range of the BBC’s programme and services, and the fact that we will make sure that our approach to diversity is hardwired in everything we do, make these targets even more ambitious and impactful.

“Everyone at the BBC has a stake in diversity, it’s a key purpose for us, and everyone who makes programmes for us commits to supporting our ambitions.”

The targets will apply to all genres of programming.

Sanctioned For Being Unshaven

April 25, 2016

It seems benefit claimants can’t grow beards now.

What next? Sanctioned for wearing white trainers?

P’s Story

April 24, 2016

markneary's avatar7 Days of Action

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Our post on the final day of 7 Days of Action brings two very harsh truths about the current state of social care into focus.

This story has been anonymised. We won’t get to know the young dude’s name. We won’t get to see what he looks like. The family have received a lot of pressure not to reveal his identity. This is common. Like a court judgment, we will refer to the dude at the heart of the story as P.

Secondly, it is important to note in the story that the family weren’t having any problems at all with their dude prior to him going into the ATU. The mother asked for respite because SHE was ill. Family members’ illness is a common passport to detention in an ATU.

Here is our young dude’s story in his mother’s words:

My son is 17 years old.  He is locked…

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From Bromley to Devon via Stoke

April 23, 2016

markneary's avatar7 Days of Action

FB_IMG_1451136578639 (1)

I am writing on behalf of my son Robert who is currently being held under a DOLS at Ashley House in Stoke on Trent.

Robert is a 28 year old young man with severe learning disabilities and autism. His needs are complex and he requires specialist care.

We found Robert a lovely residential home which was perfect for him when he was 18. Unfortunately it was in Dorset, a long trek for us to visit so seeing him regularly was restricted but overshadowed by the fact that he was so well placed there.

Unfortunately the family run home was taken over by ACH homes (now in partnership with Regard group) and too many changes took place. Staff left, routines changed and it became less and less of a home and more and more like a business.

The last 2 years Robert became depressed and very anxious and naturally his way…

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The Iron Gate

April 22, 2016

markneary's avatar7 Days of Action

Here’s Stephen Andrade’s story, written by his mother, Leo.

image3

Just before he was 16, Stephen went to a residential school in Norfolk. Two years. It did not work as it did not have the services to provide for Stephen’s needs.

After two years, a multi disciplinary team comprising the doctors, the school and  Islington social services decided Stephen should go to the dreadful hospital St. Andrews. In Northampton. He was there two years. Steven became withdrawn and became a shell of the boy that we knew and love.

Then after much campaigning he was moved to a lower secure hospital in Clacton on sea, Colchester.

He has been at the Clacton Unit for almost 15 months. It was only meant to be a short term measure for assessment.

Here is a film I took on my camera last year when I took Stephen’s younger brother to visit him at the Unit. he wasn’t…

View original post 636 more words

Guide Dog Owner, Desperate To Work, Ordered To Leave Milton Keynes JobCentre

April 22, 2016

A blind woman desperate to work was forced to leave the Jobcentre because her guide dog was not allowed in the building.

Elaine Maries walked into the CMK Jobcentre with retriever-cross Inca sporting her official yellow Guide Dogs harness.

They had only walked a few metres into the doorway when a member of staff asked them to leave, said Elaine, who is 48.

“He said no dogs were allowed in the building. I pointed out that Inca was a fully-trained assistance dog and even showed him documentation to prove I am registered blind.

“But it made no difference at all. He actually said: ‘That doesn’t mean anything to me’ and still insisted I left.”

Elaine, who is worked all her life and has a string of qualifications, was so shocked that she retreated quietly with Inca.

“Afterwards I was fuming. What this man did was against the law and I knew I had to complain,” she said.

A qualified counsellor who is training to be a psychotherapist through the city’s Convergence College, Elaine was fully sighted until she contracted the rare Meibonian gland disease three years ago.

She now has no vision in her right eye and severely limited sight in her left.

Until she was paired with Inca almost four months ago she was reliant upon a white stick – but says it made her a target for muggers.

“I was mugged three times in three years. Criminals see a white stick and think you’re easy prey. The last time, last August, I was stabbed in the hand by robbers who took my purse.

“With Inca I feel safe and she’s given me the confidence to look for a job. I am really keen to work.”

Senior staff at the Jobcentre have since apologised to Elaine about Friday’s incident and they have promised to help her find employment.

A spokesman for the Department of Work and Pensions said; “All people with assistance dogs are welcome in our Jobcentres.”

But the Guide Dogs charity is still outraged at the treatment. A spokesman said;

Meanwhile plucky Elaine, who lives on Brooklands estate, has appealed for help in solving another problem – finding a taxi driver willing to take Inca in their cab.

“I’ve lost count of the times I’ve booked a cab, then the driver has turned up, taken one look at Inca, and driven off saying dogs are not allowed in his vehicle,” she said.

 

UK SMES NEED BETTER ADVICE TO CATER FOR DISABLED CUSTOMERS

April 22, 2016

A press release from Barclays:

·

  Majority of UK SMEs aren’t currently catering for disabled customers – a market worth £212billion

·         There are 11million disabled people in UK – comprising 17% of population

·         77% of UK SME business owners would seek advice on how to make their business more accessible

·         Barclays launches new portal to help businesses become accessibility confident

From lifts and loos, to signs and websites, UK businesses could be missing out by not providing basic services to meet the needs of disabled people, research from Barclays Business reveals1 – a market worth up to £212billion2.

Nine out of ten (91%) UK SME business owners say their business does not currently have a lift if there is more than one floor, while four fifths (83%) say their products and services are not designed to be accessible to all customers, including those with sensory or mobility disabilities. A further 81% of UK SME business owners say they do not have car parking spaces for people with disabilities, while 74% do not have a ramp, and a further 74% do not have toilets that are easily accessible1.

Barclays’ research also found that only one in ten UK SME businesses currently provides written communications in braille (10%), and one in ten in audio (11%), while only a third (31%) have signs that are easy to read – in high-contrast and in large type1.  This is despite the fact that provision of accessible formats is required under the Equality Act (2010).

At 11 million³ and with a spending power estimated to be worth £212 billion2, people with disabilities make up a significant proportion of UK consumers and their number is predicted to grow over the coming years4. Yet almost one in five (18%) SME business owners are not sure what the benefit of making their business more inclusive would be, while a similar number (17%) say they would not know where to start or what adjustments would need to be made.

For 23%, the costs of making their company accessible is too high, and 8% say it would be too much hassle. However, while the majority of UK companies are not currently applying ‘inclusive design’ – the process of making something more accessible and inclusive – to their business, over three quarters (77%) of SME business owners would seek advice on how to make their business more accessible if they had the right guidance. To help businesses with this, Barclays has created a new website specifically for businesses with information on how they can become more accessible based on its own experience of creating products and services to meet a broad audience with a spectrum of needs.

Using Barclays’ own experience, along with other companies leading the way, the new website provides businesses with insight on how they can become more accessibility confident. SMEs can access a range of resources including training for frontline staff and guidance on how to create products and services that are inclusive in design and thus suitable for people with different abilities. 

 

Adam Rowse, Head of Business Banking at Barclays, commented: “We want to help businesses become more confident on the topic of disability. The research demonstrates a large gap exists in educating and equipping businesses with the right tools and guidance on accessibility and in catering for disabled customers. It also shows the business SMEs could be turning away, simply by not knowing where to start. We have therefore launched a new portal providing helpful tips and practical steps for UK SMEs on how to become more inclusive.

 

“We are proud to be making strides in supporting our own customers with disabilities and impairments. From high-visibility debit cards to talking ATMs, we have worked to ensure that everyone can bank with us if they wish and we want to help others to follow this path. Living in a diverse society, the business that caters for the needs of all customers will be the one not only most likely survive, but to flourish.” 

 

Minister for Disabled People, Justin Tomlinson, commented: “Supporting disabled people into work, improving accessibility and unlocking the potential of the purple pound are all priorities for this Government. That’s why it’s great to see businesses like Barclays creating shared resources that will help to increase understanding and support among employers and service providers, ultimately creating more accessible opportunities for disabled people.”

 

Tony Adamson, Managing Director, Enterprise and Innovation at Leonard Cheshire Disability, commented: “At Leonard Cheshire Disability we work to ensure disabled people are treated fairly and offered the same opportunities as everyone else. With that in mind, we are delighted Barclays has produced this resource as a demonstration of their commitment to supporting businesses to help them become inclusive and accessible to all.”

An Open Letter From An Anonymous Benefit Claimant

April 21, 2016

You might not remember now, but just before Brexit kicked into gear and the Panama Papers landed, Iain Duncan Smith resigned as work and pensions secretary because the most vulnerable were being hit too hard by austerity. Let’s go back to that for a moment.

It’s not true to suggest we’re failing the disabled; we’ve not even tried in the first place. I’m choosing to write this piece from a position of anonymity. Among my peers, I’m considered the success story, with many a glittering accolade on my CV. I have walked and advised at the highest levels, associated with the most prestigious awards, have unique associates, am a regular in media circles, and have roles which come with the a lot of responsibility. I’m often reminded of the Michael J Fox film, The Secret of My Success – by night a high flyer, sitting at the top tables, by day, a mailroom worker who simply masquerades to earn his big break. This has become my tale, except that I can’t even work in the mailroom.

We’ve come to define disability with basic iconography. The disabled parking symbol denotes what it’s like to be adequately disabled. We have also created a near Victorian class system of deserving and underserving disabled. Disability hate rhetoric, as anyone with a disability will attest, has certainly risen over the last six years.

It’s also worth noting the language. No longer do we have disability payments, we have Employment Support Allowance (ESA) and Personal Independence Payments (PIP). These, on the face of it, sound more conducive to an inclusive society, but far from it. Between the DWP, ATOS and Maximus assessment systems, and the fact all disabled people are now rolled into the Job Centre, we have in fact wiped out the notion of disability. We’ve stacked the criteria into numerical health conditions and how worthy each person is. And we’ve stripped people of dignity along the way, by forcing them to open up with their most personal symptoms to people with little-to-no medical background.

The Institute for Fiscal Studies said the proposed cuts to PIP which IDS resigned over would have seen 370,000 disabled people lose an average of £3,500 a year. We just can’t take this any longer. We really need help.

The cold numbers barely tell the full story of what it’s like having the stick wielded at you in trying to find work. Most disabled people don’t need an incentive to work – they need provisions and safety nets.

It’s disheartening to learn that some people view benefits as a life of luxury. I personally receive £6,000 a year. This has been the case my entire adult life and is not set to change for the better anytime soon. And with each cut that hits, we find that less and less is in place to help with disability employment and occupational health. Now that disabled people are treated as a normal job seeker, the by-product is a culture of sanctioning and a constant fear of reprisal.

 

I feel I’ve proved I am capable of achievement. My own job adviser even said to me that I was more qualified and of a higher education than they were, which is ironic given a lifetime of severe bad health prevented me from even attending school – I walked away with nothing in the way of qualifications. Due to the strict guidelines and number-shifting that the Job Centre employees have to undertake, I was informed that my CV, no matter how good it looked, didn’t actually count for anything. I needed to play the DWP’s game.

I was told my writing work counted for nothing either. With a pretty decent list of bylines to my name, I’d hoped I could potentially prop myself up in the world of journalism, which would suit my very specific health requirements. I was once again met with a wall. So I followed the path that I was forcibly guided towards. The current system is all or nothing. You can earn £20 a week without sanction. Anything over that and you’re looking at, essentially, reassessment. In the world of freelance journalism – and freelance with no health –
this is like trying to fit a square peg into no hole. It’s another roadblock on the path to independence.

I, like thousands of others, am expected to sign up to the Job Centre’s Universal Jobs Match system, where my unique customer number will be linked to my activity. If I don’t jump enough hoops in applying for work, then sanctions come into play. Living up to my fear and expectation, the Jobs Match site is in no way, shape or form tailored to even the slightest bit of disability. It is an able-bodied website for an able-bodied system. Disability simply doesn’t exist in the matrix.

At every single turn there’s an accusatory tone to being disabled. We have to be ‘striving’ for employment opportunities that suit extremely complex lives, but for many of us, a day’s achievement can be a simple task of keeping personal hygiene in check, or the basic and literal thrill of seeing your own foot tread upon new ground. Being disabled isn’t just about being set in a certain pattern, it is chaos theory personified. It’s like being a window shopper on the world.

I make a personal plea to the UK, to the private sector, to the public sector, to employers and managers, and to anyone who likes a puzzle. We have to rethink the workplace and start creating flexible conditions for those of us who are capable of achievement – even if we’re not remotely capable of normality. We need an intelligent welfare system which has safety nets and malleable placements of security and buffers. And we need new thinking on how we can utilise a great number of professionally-minded people who are not afforded the luxury of normality.

 

Our current approach is not only broken. Anyone who’s been subjected to experiences that I’ve outlined can certainly see the routes to an early grave. Make no mistake – and without grandstanding – it really is this bad. Building up a CV of achievement is voluntary – and often at great expense to the individual. One has to crawl, scratch and leave oneself in a pretty bad state of health and agony just to receive a few personal ticks in the productivity column.

You really don’t want to see what it takes to achieve a modicum of personal success and pride, so please get involved in this conversation and help stop the government’s approach in stripping the disabled of everything. We need nothing short of a revolution in the workplace.

Imagining Home

April 21, 2016

markneary's avatar7 Days of Action

Tianze Ni has been detained in ATUs since May 2014. Here is his mother’s story of that time:

tianze on leave

My 18 year old son Tianze has autism, a learning disability and sometimes behaviour issues.

We used to live happily in Fife, Scotland with Tianze, but in May 2014 when Tianze was 16 years old ,he was moved to a hospital in Middlesbrough, England, over 200 miles away from home to have an assessment. It was only supposed to be for maximum 6 week assessment,

The professionals told us that in order to carry out this short term assessment, Tianze needs to be sectioned. However, two years later, Tianze is still there and we still don’t have his discharge plan yet.  We have followed Tianze to  Middlesbrough by selling our house in Scotland. Tianze has developed self harming behaviour in hospital. Tianze has developed bedsores in hospital ,Tianze has been subject to prone restraint regularly in hospital. Since May…

View original post 1,609 more words

Revealed: The Secret DWP Plan To Charge Disabled People To Appeal Benefit Decisions

April 21, 2016

Whitehall officials secretly plotted to charge disabled people for the right to appeal cruel benefit decisions, the Mirror can reveal today.

An internal Department for Work and Pensions (DWP) paper seen by the Mirror shows the Government also considered stopping people’s benefits altogether pending the outcome of an appeal.

Other plans drawn up by the DWP included slashing appeal times from 12 months to just three, and narrowing the scope of appeal tribunals so that fewer are successful.

The proposals are laid bare in a secret DWP document drawn up last year titled ‘Appeals Strategy – post-election planning 2015’.

The document appears to have been a response to the huge number of adverse benefit decisions which are overturned on appeal.

The DWP tried to stop the report being made public – but bungling officials failed to properly redact its contents.

Labour’s shadow work and pensions secretary Owen Smith said: “This secret document shows the inner workings of a department that seems determined to make life harder for disabled people and low-wage working families.

“No wonder they wanted to charge disabled people for appealing against decisions to cut their support, when more than 50 per cent of those appeal are successful.

The document sets out eight ‘policy options’ under consideration for a planned clampdown on benefits appeals after the May 2015 election.

Options listed include ‘charging for appeals’, ‘narrowing the scope of the tribunal’, ‘reducing appeal time length from 12 months to three’ and ‘remove payment of ESA (Employment Support Allowance) pending appeal’.

The officials note many of the options would be ‘controversial’ and ‘attract criticisms’ – while some could include wholesale rewriting of the law.

Last night disability charities erupted in fury at the revelations officials even considered such a clampdown.

Dan Scorer, head of policy at the learning disability charity Mencap, said: “It’s deeply concerning that anyone in the DWP thought these policies were acceptable.

“If introduced they would block disabled people’s ability to seek justice and challenge benefit decisions made against them, taking away the support they desperately rely on to find work and to maintain their independence and health.

“The assessments system for people with a learning disability is already broken, with over half of Fit for Work decisions being overturned by tribunal.”

Mark Atkinson, chief executive at disability charity Scope added: “The best way to reduce the number of appeals is to improve assessments – not make it more difficult to for disabled people to challenge incorrect decisions.”

And Child Poverty Action Group chief Alison Garnham said: “A benefit system that focuses on people has to be accountable and have fair and accessible mechanisms for appealing benefit decision.

“We hope that charges for appeals, cursory paper-based reviews, or any change that would restrict access to justice will not see the light of the day. “

A DWP spokeswoman insisted the proposals were not taken forward by the Government as actual policies.

“These ideas were drafted by staff before the last election. They do not represent Government policy and have never been sent to Ministers,” she said.

How Frozen’s Elsa Normalised A Little Girl’s Albinism

April 20, 2016

Elsa from Frozen is recognisable the world over, but for one family she is more than just a Disney character. Canadian folklorist and journalist Emily Urquhart explains how the Queen of Arendelle became a positive role model for her daughter’s albinism.

It is my daughter’s first day at school and I nestle Sadie into line amongst her kindergarten classmates. Despite her many layers, strands of white hair poke out from beneath her hat and over the neck of her scarf. The little boy standing behind her leans in for a better look and shouts out “Hey, you have hair just like Elsa!”

For the uninitiated, Elsa, is the popular protagonist of the animated box office hit, Frozen. As a princess she is able to conjure up ice castles with her fingers and when her powers get out of control, locks herself away to protect her court. For my daughter, the comparison is positive.

Princess culture makes me cringe for all its misogynistic old-fashioned values, and yet, I’m alright with Elsa, who first appeared in 2013 when Sadie was three. Not because she’s a strong female lead without a prince-driven narrative, but because she has white hair like my daughter.

The difference is, Elsa’s hair is a manifestation of her icy prowess and Sadie has albinism – meaning she has little to no pigment in her hair, skin and eyes and wears glasses to correct what she can of her low vision.

The little boy who noticed my daughter’s hair is just one of thousands of people who have remarked on her ivory locks. It began in the delivery room as half the hospital came to “see the white-haired baby” – only the janitor suggested she might have a genetic condition. On average we hear up to five comments a day – from “wow, her hair is really white” to “did you bleach her hair? or “are you Swedish?”.

Now, I am so accustomed to hearing comments I barely register them, but then, as a new mother, those remarks emphasized my concerns for her future.

A few years later and strangers began likening Sadie to Elsa and it was as if this ubiquitous Disney character somehow normalised my daughter’s difference.

For now, my daughter is a Frozen fan, so this works and gives people a positive hook to hang their comments on, although I do worry when Elsa is jettisoned in favour of other, new, characters.

Traditionally however, Hollywood has not been so kind. Characters who resembled people with albinism have been the villain, an evil other who is frightening and strange. Films like The Matrix Reloaded with Keanu Reeves and TV series Doctor Who have all used evil or strange “albino” tropes, but this is just one strand of mythology that surrounds this condition.

Sadie was born when I was studying for my PhD in folklore at Memorial University, Newfoundland and I found myself drifting away to research albinism and other cases of human differences in folklore.


What is Albinism?

  • Genetically inherited group of conditions which results in a reduction or complete lack of pigment (colour) in the skin, hair and eyes
  • Can result in pale skin which burns easily in the sun, virtually white hair, very severe short-sight and a severe sensitivity to light

Source: Albinism Fellowship


I discovered that among the indigenous people of Panama, the Kuna, those with albinism were revered, tasked with defending the moon from a hungry dragon and earning them the poetic moniker “children of the moon,” but other reports suggest they were an ostracized group and not permitted to inter-marry.

During the 1950s in England an article appeared in the British Medical Journal spawning the rumour that Noah, of the Bible, was the first recorded case of albinism.

A version of Noah’s birth had been discovered on scrolls in a cave east of Jerusalem and prompted English ophthalmologist, Arnold Sorsby, to draw parallels between Noah and a baby born with albinism.

The document described the child as having flesh as white as snow, hair as white as wool and eyes that illuminated the room. Sorsby’s article was done in jest but its impact was long-lasting. The North American albinism group that I belong to is called the National Organization of Albinism and Hypopigmentation—that’s NOAH for short.

In North America there are contemporary legends about colonies of people with albinism who lived on the fringes of society. These were exaggerations or simply untrue, although in one case I traced a legend back to the Pittsleys, a Massachusetts family with a high rate of albinism who lived at the turn of the last century.

Newspaper articles from the time suggest they were part of a clan of 200 and that they lived in the “lonely part of the woods or out of the way end of a township.” The principal group changes – people with mental illness, people with dwarfism or whatever difference is currently taking hold – but the telltale signs are the same. They live cloistered together and away from society in a rural, somewhat deserted space on the edge of town.

Today, 100 years later, locals refer to the hamlet where the Pittsleys once lived as Pink-Eye Village. I imagine this refers to the rumour that people with albinism have red eyes which is not exactly true. Most have light blue, hazel or violet irises, but certain lighting and a camera’s flash can make them appear red.

While these mythologies can be psychologically cruel, there remain dangerous beliefs about people with albinism in Tanzania and other parts of East Africa. In some areas body parts are used by witch doctors in potions that purportedly bring good luck in health, love and business. The witch doctor’s henchmen prey on the most vulnerable – often women and children – as part of a disturbing practice rooted in cultural beliefs that people with albinism are not human.

The potions created are outrageously expensive and available only to wealthy, powerful members of society, like businesspeople and politicians, making life particularly dangerous for albinos during an election period.

I travelled to Tanzania to learn more about these heinous human rights crimes. While much of this research broke my heart, the people I met were survivors, not victims. They were activists, journalists, and athletes and they were all standing up to this practice and working tirelessly for change.

Why, you might wonder, would a mother seek out these kinds of tales? I’m a folklorist, and I study the stories people tell to explain their worlds. Tales centred on human differences tend to be born of fear and dissecting them seems to help strip them of their power.

At first I took some comfort in the more benign magic stories. But, Peter Ash, the founder and director of the Canada-Tanzania albinism advocacy group Under The Same Sun, who has albinism, explained it to me this way: “The same culture that can elevate me to a god can turn me into a demon.” The belief that people with albinism are magical, whether good or bad, suggests they are different from the rest of the population.

I can assure you they are not different. My daughter is very much a five-year-old girl – she prefers pink, won’t eat brussels sprouts, and acts up if she feels her baby brother is getting too much attention.

She knows she has albinism and can advocate for herself when she’s unable to see a picture book or the school’s chalk board. She doesn’t know about the cultural beliefs surrounding her genetic condition, but when she encounters these stories I’ll be prepared to dispel and explain.

For now, however, we’ll stick with Frozen.

Terminally Ill Woman Has PIP Appeal Refused

April 20, 2016

A terminally ill cancer patient who was refused a disability benefit by the Government has had her appeal turned down though her GP provided a lengthy description of her illness.

Jane Windle, from Parkwood Street, St James, was first diagnosed with a carcinoid form of cancer in 2001 and has tumours in her lungs and pelvis.

But last month it was revealed the 52-year-old would not be entitled to receive the Personal Independent Payment (PIP) even though she has been receiving the Disability Living Allowance, which PIP is phasing out, since she got ill.

Mrs Windle has a stent fitted and has difficulty, breathing, moving and even struggles to stand up unaided.

The couple appealed the decision at the start of April and supplied the Department for Work and Pensions with a DS1500 form from her GP explaining the extent her cancer affects her, listing a range of other debilitating conditions including Chronic Obstructive Pulmonary Disease.

But they have now learned their appeal has been refused.

Mrs Windle says the decision has left the couple desperate.

She said: “It is so stressful.

“Now that money has stopped it is just crazy.

“We just think, how are we going to manage?

“I will have to get rid of all sorts of things – my phone will have to go, there is no way I can afford that.”

Mrs Windle and husband William have met with Northampton South MP David Mackintosh, to see if he can get their assessment overturned.

They are also looking to take the DWP to a tribunal to contest the decision – a process that can take months.

Mrs Windle says there is no way she can go out and find work.

“I just can’t,” she said. “I can go to sleep for two to three days at a time.”

“What if I am at work for a couple of hours and need to sleep? What are they going to do, roll out a bed?

Mr and Mrs Windle can apply for Jobseekers’ Allowance, but that would mean both would actively need to seek employment, even though Mrs Windle has regular doctors’ appointments and needs her husband for assistance.

Mr Windle said he will not stop fighting the decision.

“Jane’s assessment simply isn’t true.

“If these assessors were working in a hospital we would be looking at a complete misdiagnosis.”

 

“Natural Causes”

April 20, 2016

markneary's avatar7 Days of Action

Thomas Rawnsley died on the 4th February 2015. He was 20 years old. Thomas had a diagnosis of downs syndrome and autism. He was just 4ft 10″ in height. Thomas had been in three different ATUs, leading up to his death.

Here are the words of Thomas’s mother, Paula:

Thomas1

Someone told me at my sons funeral that time would heal. That I would never forget him but it would get easier. I don’t want to talk about his unspeakable, cruel death he suffered alone and away from me. I don’t want to think about the horror he faced in those final hours away from me. I hurt for him and me more and more every day. I fought so hard for my boy. They were always so powerful and Thomas was special to me.

I didn’t know how I was going to cope with him when I found out he…

View original post 902 more words

Nicky Clark Had To Declare Daughter Emily Homeless To Get Her Appropriate Support

April 20, 2016

The mother of a severely autistic young woman has been forced to declare her daughter homeless in a desperate attempt to secure her accommodation after a specialist school was no longer able to care for her.

Nicky Clark, 49, from Shrewsbury, first contacted Shropshire council for help in January when she was told her then 18-year-old daughter Emily could not continue at the boarding school she had attended since 2012.

Clark told BuzzFeed News she was initially given just 12 weeks to find an alternative home for Emily, who has the cognitive ability of a 5-year-old child, but was able to negotiate an extension with the school until June.

Four months later, the family claimed they had still “heard nothing” from the council. “It is an extreme measure to put your child on the homeless list but that is the reality that we are facing,” Clark said.

She began tweeting about Emily’s situation and “eventually” got a response: “I said to them, ‘It has been four months… Can nobody speak to me?’”

Emily, who also has learning disabilities, epilepsy, and cognitive impairment, needs 24-hour care, something Clark and her husband cannot safely provide themselves. “She can’t just come home,” Clark said. “It’s heartbreaking, but [that’s] just the case.”

Clark wants her daughter to be placed into a single occupancy unit, with a full-time carer on-hand. She won’t let Emily go into a treatment unit, explaining: “The shadow of Winterbourne is very long.”

Private hospital Winterbourne View, near Bristol, was shut down in 2011 after BBC Panorama exposed evidence of abuse at the facility, which cared for people with learning difficulties and challenging behaviour.

Although Clark is now in touch with the council and speaking to housing officers about Emily’s case, she still feels the future remains uncertain.

“I am scared,” she said. “I’m scared for a time when we are not here to fight for her and I am also scared that there are no guarantees. [The council has responded] but I don’t think it would have happened without pressure. And I don’t think it would have happened without publicity.

“We are frightened. What Emily needs is the permanency of a let-for-life. She needs the permanency of a home.”

Clark is still trying to find somewhere for Emily, who turned 19 two weeks ago, to live with a full-time carer.

And while the local Care Commissioning Group has agreed to fund Emily’s care package, Clark says she has no way to pay for her daughter’s basic living costs, including food and utility bills.

Although she has applied for Emily to receive personal independence payments and employment support allowance, she is waiting with trepidation for Emily’s next assessment in three months.

“These are the reality of [public spending] cuts,” she said, “they are affecting people like Emily, they are not affecting frauds or people playing the system.”

Clark, who is also a disabilities campaigner, added: “We can advocate for Emily and we can fight for Emily, but there are so many Emilys who don’t have this.”

Sarah Lambert, head of policy at the National Autistic Society, said it had heard of “too many” incidents where parents were forced into action to get the care their children needed and were legally entitled to receive.

“Nicky and her daughter’s story is shocking and shows the extremes that parents feel they have to go to in order to get basic support for their autistic son or daughter,” Lambert told BuzzFeed News.

“Lack of government funding of adult social care is putting pressure on local councils. But councils must follow the law and ensure that they plan for appropriate care for children, teenagers, and adults. And in the long term this will save them money by preventing the development of further problems.”

Shropshire councillor Malcolm Price, cabinet member for housing, told BuzzFeed News in a statement that the local authority was helping Clark “directly” with her inquiries.

People Who Were Assessed For PIP By Alan Barnham Are Calling For Capita To Review Their Claims

April 19, 2016

People who were denied disability benefits in Northampton by a man who was later caught on camera admitting he judged claimants before he had even “walked through the door” want their original assessments thrown out.

Last week Channel Four’s Dispatches programme sent an undercover reporter into the Northampton offices of Capita – a firm contracted to carry out disability assessments on behalf of the Government.

The shocking footage showed one assessor, Alan Barham, talking openly about making £20,000 a month, branding one claimant “fat” and admitting that he refused a man the Personal Independence Payment before even meeting with him.

Now some of those who were also turned down for PIP by former paramedic Mr Barham – who has now been sacked – believe their assessments should be voided.

Jacqueline Nicholls, of Murray Avenue, Kingsley, was turned down for the payment, even though she had been claiming the Disability Living Allowance for 10 years.

A brain tumour she had when she was 11 years old has left her with severe mobility and communication problems.

After seeing the documentary, her husband of 24 years, David, has written to the Welfare secretary Stephen Crabb MP, asking that all those assessed by Mr Barham get the chance for a re-assessment.

He said: “All I wanted was a fair assessment because I know that I need to be with Jacqui all the time.

“She needs me to be safe.”

Mr Barham found that Jacqui could plan and follow routes, understand complex written information unaided and make budgeting decisions.

Former BT engineer Mr Nicholls says Jacqui has limited memory and struggles to even turn the television on.

When he and Jacqui went for the assessment at Capita’s Derngate offices on March 11, he brought with him medical records showing Jacqui suffered from complex seizures.

But now the couple will have to make do with £300 less a month.

“When we found out it was just horror,” Mr Nicholls said.

“Can she work? Of course not. How is she going to get there? She cannot communicate on the phone, she has problems with her mobility and understanding people.

“Overall I don’t know what she can do.”

Former pub manager Nikki Johnston, has retrograde amnesia after she hit her head on a metal pole in October 2014.

It means the Wellingborough mum-of-one she wakes up every day thinking she is still in 2014 and 27 years old.

But she was refused PIP after being assessed by Mr Barham last year, even though her short-term memory means she would effectively need to be re-trained every day were she to hold down a job.

Her appeal was lodged in May 2015 and a tribunal to is expected to resume later this year. All the while the family are having to live on £400 less a month.

Her husband Chris has backed Mr Nicholls call to throw out the assessments by Mr Barham.

He said: “I totally agree, how can anything that he deemed to have failed, be accurate?

“Nikki cannot work, she does not know what year it is. Her assessment said she could do complex budgeting – but she doesn’t even know about the 5p bag tax.

“How can she budget for anything?

A spokesperson for Capita, said: “Capita is engaged by the Department for Work & Pensions (DWP) to deliver only one part of the PIP claims process in certain areas in the UK.

“Assessments are taken into consideration by the DWP alongside all other evidence submitted by a claimant.

“The DWP, not Capita, makes the decisions on whether to award a benefit or not and the level and length of those awards. If any claimant is unhappy with the DWPs decision they can they can appeal against it.”

 

Blogging Against Disablism Day Will Be Sunday, 1st May 2016

April 19, 2016

Readers, if you would like to participate in BADD, here are some of our editor’s previous entries for inspiration.

Life In A Conservatory

April 19, 2016

markneary's avatar7 Days of Action

Jack1

Jack was born with ATRX syndrome, which on its own has its difficulties. He attended a special school and had no issues there at all until it was time to leave at 16.

Jack’s anxieties were heightened more and more on the transition from school to college. He only visited the college once and on starting there, he found things very difficult. By this time he was known to CLDT team and was put on antipsychotic drugs.

Jack managed 18 months of college before they eventually excluded him because they could no longer support him. The next 18 months support came under the social care umbrella where they threw all kinds of support charities at him. It was inconsistent, which is the worst type of support when you have needs like Jack’s.

He hated it and his difficulties got worse to the point where he would go into town alone (as he…

View original post 778 more words

Joe Sanderson, 80, Is Oldest Person In UK- And Possibly World- With Downs Syndrome

April 19, 2016


Did you know the oldest person in the country and possibly the world with Down’s Syndrome lives in Saltburn?

Joe Sanderson celebrated his 80th birthday last month, surrounded by family and friends with a huge bash thrown by his carehome.

Lifespan for those with the condition is usually shorter, but Joe has defied the odds and still enjoys hobbies such as sewing and watching horse racing.

Sir David Mackay Has Died Aged 48

April 18, 2016

Sir David Mackay, who sadly passed away on Thursday from cancer aged 48, is known in academic circles for writing a book titled Sustainable Energy: Without The Hot Air.

He was a professor at Cambridge University and was knighted in this year’s New Years Honours.

His Guardian obituary, however, reveals a lesser known fact about him:

David’s interest in human-machine interfaces led to his 1999 invention of Dasher, a keyboard-free text-inputting program that uses a predictive language model to allow users to write efficiently using eye movements, head movements or even breathing. In appearance, Dasher resembles a video game: the user navigates Star Wars-style by zooming through an expanding galaxy of letters. Now available in over 100 languages, Dasher has been downloaded 140,000 times, and has transformed the lives of many people with impaired mobility. One Dasher user with cerebral palsy has even used it to write his master’s thesis.

It is this that is most relevant to Same Difference. In tribute, we thank him for the difference he has made to the lives of countless disabled people. His invention of one small computer programme has allowed giant steps to be taken by so many who wouldn’t have had voices without it.

RIP Sir.

WCA should have been a ‘can’t do’ test

April 18, 2016

km's avatarPat's Petition

There has been so much discussion of the ‘can do’ approach to sickness and disability that the ‘can’t do’ narrative has been completely overwhelmed. ESA swept in on a wave of ‘can do’. And crashed.

The discussion amongst campaigners around the Dead Parrot campaign has shown – the ‘can do’ and ‘can’t do’ narratives appear to be in opposition – between different disability campaigners, between different sick and disabled people, and perhaps within each person too.

But they aren’t in opposition. They are both part of the same story. They are both valid. So why not let each person own both their narratives and let the two narratives exist side by side?

When we are discussing gateway entitlement to an income replacement benefit like ESA, we need to look at ‘can’t do’. Income replacement benefits in our welfare system are awarded to people who can’t work. This is where WCA…

View original post 307 more words

Calling Actors And Extras With Autism!

April 18, 2016

Below are the details of this Facebook event:

Calling all actors & extras!
Andrew Dobosz is directing a unique biopic drama for a charity this summer based on Kevin Healey’s book “Twin Brothers Worlds Apart” We will be auditioning for the film on Tuesday 17th May from 12 midday until 7pm at the Queens Theatre, Burslem, Stoke-on-Trent, Staffordshire, ST6 4JH

The film will be based on a biography book about autism campaigner Kevin Healey. It is set in the early 1980s and will focus on Kevin as a child growing up with Aspergers syndrome. Including his obsessions, bullying he received at school and his struggles with understanding the world. It will also feature his twin brother Shaun who has autism.

Actors, actresses and extras required:
We are looking to cast young male actors aged around 7 – 12 years old to play Kevin and Shaun. Adult male and female actors of various ages. Boys and girls around 7 – 12 as extras for a classsroom scene.

Attend on the day and let us know if you need a certain time slot and we’ll schedule you in. Be part of this new exciting autism biopic!

All positions are voluntary as the film is being made for Staffordshire Adults Autistic Society (No expenses or travel paid)

Updates will be at www.twinbrothersworldsapart.com
For more information email the producer: dobosz@live.com

“Mum. I Can’t Get The Words Out”

April 18, 2016

markneary's avatar7 Days of Action

IMG_0319

The first post tells the story of Eden Norris. We chose this story to begin the seven days of action because Eden has been in ATUs for the last seven years of his life. This is way beyond the national average for time spent in ATUs.

Eden is 24. He has a moderate learning disability and autism.

Eden has been in 2 units. Eden was admitted to the first unit aged 17 and remained there for 5 years and 4 months. It was an adult medium forensic unit – which the family didn’t realise until after he had gone there. He had no criminal history. His parents agreed to him going there for an assessment as things had reached crisis point due to lack of the right support. Though Eden was admitted as a voluntary patient he was later sectioned under the Mental Health Act (section 37) following staff pressing charges…

View original post 1,623 more words

Criticism Of Liverpool Football Fans In Wheelchairs Is Disappointing, Say Charities

April 18, 2016

Leading disability charities have criticised comments on social media that wheelchair-using Liverpool FC fans are “benefits cheats”.

The accusations started after a clip was circulated online which appears to show fans in wheelchairs leaping to their feet in celebration.

People on social media described the sight as a “miracle”.

“It’s disappointing to see assumptions being made about these fans,” Elliot Dunster from the charity Scope says.

“Sadly it’s all too common – a third of disabled people tell us that they have been accused of not really being disabled.

“This shows we still have a long way to go to change attitudes towards disability and ensure people better understand the issues disabled peop face.”

Some people have pointed out that wheelchair are often accompanied by friends and family who may not have a physical disability.

“It’s exactly this sort of response that fuels misconceptions about disability,” a spokesperson for Whizz-Kidz, which supports disabled children and young people, tells Newsbeat.

“Being a wheelchair user doesn’t mean that a person is ‘paralysed’, and many people live with conditions that mean they need a wheelchair to get around, but they can stand or walk short distances,” a spokesperson for Whizz-Kidz, says.

“Disabled people have the same rights as anyone else to enjoy sport – whether as a participant or a spectator – without coming under scrutiny for how they are able to celebrate when their team is successful.”

Liverpool FC have yet to respond to a request for a comment.

Anfield was playing host to Borussia Dortmund for the Europa League quarter-final match when the clip was picked up.

Liverpool secured a dramatic 4-3 victory, with the final goal scored during injury time sending them through to the semi-finals, where they will meet Villarreal.

People With Parkinsons Hide Symptoms Finds Study

April 18, 2016

More than a third of people in the UK with Parkinson’s disease feel the need to hide their symptoms or lie about having the condition, a survey for a charity suggests.

They feel the symptoms are not socially acceptable and may embarrass those close to them, Parkinson’s UK said.

It added it was concerned that too many people were struggling alone with their diagnosis, affecting emotional health.

The disease affects 127,000 people in the UK – about one in 500 people.

The main symptoms are tremor, slowness of movement and rigidity.

The charity surveyed 1,868 people with the disease to find out how they dealt with their diagnosis.

Fear of stigma

One in three with the condition said they had delayed telling friends and family about their diagnosis with some of the main reasons including the fear of being stigmatised.

The charity said the findings also revealed a worrying level of emotional repercussions for people diagnosed with Parkinson’s.

Younger people reported being hardest hit by the diagnosis to the extent that many said they felt “like their world had ended” and said “they didn’t know who to turn to”.

Steve Ford, chief executive at Parkinson’s UK, said not getting help for the degenerative neurological condition was having a devastating impact on people’s emotional health.

“We are determined that each and every person with Parkinson’s is aware of the support available so they can feel equipped to have these difficult conversations.

“We know that the right support, whether through family, friends or Parkinson’s UK, is vital for those with the condition, to help them come to terms with their diagnosis and know that they’re not alone.”

He added: “We are here to help people find the support they need, when they need it.”

Foodbank Use Highest In Areas With Most Sickness Or Disability Shows Trussell Trust Report

April 16, 2016

A new report by the Trussell Trust today shows that foodbank use is highest in areas where there are the greatest numbers of people who are unable to work because of long-term illness or disability.

The University of Hull has helped the Trussell Trust to map use of foodbanks against census data. The result has shown an increasing correlation between foodbank use and benefits issues.

Data shows that benefits delays and changes cause 42% of all referrals.. As well as PIP, ESA and JSA issues, delays and arrears in universal credit payments are now causing problems as well.

As one data scientist explained:

“This chart shows the strong correlations emerging at an electoral ward level between foodbank use and the percentage of the population with long term health problems or disabilities or in skilled, manual work.”

You can read the full report from the Trussell Trust here.

“Apparently I’ve Lived Too Long For The DWP”

April 16, 2016

A terminally ill pensioner and lifelong supporter of the Conservatives has hit out at the Government for slashing her disability payment by £80 a week.

Cancer sufferer Susan Whitby’s financial support from the state has plummetted by more than half – from £135 to £55 a week – after she was reassessed for the controversial new Personal Independence Payment (PIP).

The ‘stressed, upset and extremely bitter’ Woolbrook Close resident, told by doctors she could have months or years left, feels she has ‘lived too long’ for the Department for Work and Pensions.

Mrs Whitby, 64, said she has paid more into her pension than she will ever live to take out and, with the cash instead going ‘overseas or to the wealthy’, she will never vote for the Tories again.

She has sent an open letter to Prime Minister David Cameron and East Devon MP Hugo Swire speaking out for herself and the thousands of others she says must be affected.

“The money I was on was just about enough,” said Mrs Whitby. “I’m going to be in treatment indefinitely. Apparently I’ve lived too long for the Department for Work and Pensions (DWP).

“I’m sure there are thousands and thousands of others who don’t know what their life expectancy is.

“The Government will benefit from my pension – I won’t be here in my 80s. After all I have paid in, I deserve a little support now.”

Mrs Whitby was diagnosed with breast cancer aged 40 and was successfully treated with radiotherapy. Three years ago she was ‘shattered’ when doctors said the cancer had returned and spread to her lungs and brain, just months before she was due to retire.

“My oncologist said I could live six months or several years,” said the former legal practice manager. “I just don’t know, but it’s a terminal diagnosis.”

Surgery on her brain meant Mrs Whitby’s driving licence was suspended. She was assessed for the Disability Living Allowance (DLA), put on the ‘enhanced’ rate and later allowed to join the Motability scheme to rent a car when her licence was returned. Mrs Whitby, who has been divorced for 25 years, moved to Sidmouth after her treatment in Rugby to be nearer to her two sons and three grandchildren.

She rented a home in Woolbrook Close assuming she would stay on the higher rate allowance – but in February she was reassessed by the DWP for the new Personal Independence Payment (PIP). She lost her car and saw her benefit slashed by £80 a week to £55.

The rate of PIP depends on how conditions affect individuals, rather than the conditions themselves. It is made up of two components – daily living and mobility – each set at a standard or enhanced rate. It requires a face-to-face interview rather than the self-assessment form for the DLA.

Only those who are not expected to live longer than six months qualify for the higher rate daily living component. It has not been explained to Susan why her allowance was cut.

“I’m loathe to leave this house, but I can’t keep losing the money I have,” said Mrs Whitby. “It would have been better not to be on the higher rate in the first place.

“I’m eating into my savings. They’ll probably last 12 months at the most.

“I can’t treat my grandchildren and I daren’t spend anything. I feel like a second class citizen.

“I rely on lifts because I can’t use public transport. My big outing a couple of times a week is to hospital appointments.”

Mrs Whitby said she got involved with the Conservatives in her 40s, raised thousands of pounds and supported Jeremy Wright’s campaign to become an MP.

“I had always voted Conservative, same as my parents did,” said Mrs Whitby. “I suppose it was the natural thing. I wouldn’t vote for them again unless they can see the big mistake they have made.

“I’m speaking out for everyone suffering the way I am.”

A DWP spokesman said: “Decisions on eligibility for PIP are made after consideration of all the evidence, including evidence from the claimant and their GP.

“If a claimant does not agree with a decision on their benefits, they can ask for us to look at it again.”

Being Deaf Doesn’t Stop Me Cycling

April 15, 2016

From today’s Guardian:

 

I was about 12 years old when I was told I had a significant hearing loss. I have worn hearing aids since I was a teenager, and was profoundly deaf by 21.

Around the time of my diagnosis, I watched my dad, who is hearing, take on incredible charity cycling challenges – cycling across America, Australia and Canada. I didn’t really understand the magnitude of his achievements back then but as I’ve matured, it makes me immensely proud and I feel cycling is something which is in my blood.

The idea of following in my father’s tyre tracks came to me at university and this year I have signed up to the RideLondon 100-mile cycle ride across London and through the hills of Surrey in July. Then in September, I’m tackling a mammoth 3,200 miles across America, both for charities Action on Hearing Loss and Clic Sargent.

Since I’ve started my training, I often get asked by hearing people how I manage, as it’s frequently said many cyclists “see” with their ears.

 

As my hearing aids are not waterproof, I ride without them as sweat or rain could damage them and at over £2,000 a piece it’s really not worth it, so I hear absolutely nothing while on the road.

I’ve been deaf for a number of years so a silent world is something that I am used to, though it feels quite surreal taking out my hearing aids, like somebody pushed a mute button – there are people around me but absolutely no sound.

Naturally, my observation skills have improved tenfold, particularly with lip reading and facial expressions, and I’m constantly aware of my surroundings. On the bike, observation is paramount, as without it, I’m much more exposed to an accident than a hearing person would be.

The biggest obstacle to overcome is trying to maintain safe positioning on the road, as I don’t know when someone is behind me or about to pass. The shock of seeing a vehicle passing closely without hearing means it’s easy to start wobbling and potentially crash into an unsuspecting vehicle – another reason drivers should consider how much space they give cyclists on the road.

I’m constantly looking around when I’m cycling, so much so that my neck and back often ache after a few hours in the saddle. I never take risks when I’m not 100% certain that it’s safe.

A few times I’ve been on small country lanes, looked around and found three or four cars stuck behind me. I have no doubt they’d been blasting their horns because when I move over to let them pass, I often get the finger.

When I first started training, I went out with my local club. As much as I loved the feeling of being part of a group, the experience was quite frustrating.

In a group, you usually ride in a line, taking turns at the front then dropping to the back to break the wind for each other. I was nervous about my turn as I wouldn’t be able to hear the leader barking instructions from behind.

I’m pretty sure I missed a turn a few miles in and this prompted the leader to swap tactics, making those at the back accelerate to the front. I appreciated that he adjusted the ride, but at the same time it made me feel bad for the group having to adjust their social events to accommodate me.

I didn’t go to another ride after that as I figured it was easier to train on my own, and I feel more comfortable that way.

Some people might think that deaf people cycling or driving is dangerous, but what I lack in hearing, I more than make up for in other ways. I question whether a hearing person cycling or driving with music is actually more dangerous as they usually will unconsciously rely on hearing.

Deaf cycling is incredibly tranquil. It allows you to think clearly and having cycled both with and without sound, I definitely prefer the latter.

I’m incredibly excited about the challenging year ahead. I hope that I prove deafness is no barrier to life, and doesn’t prevent people from embracing their passions.

How MS Ended An England Footballer’s Career

April 14, 2016

England batsman James Taylor this week announced his retirement from cricket at the age of 26 owing to a serious heart condition. One person who knows how it feels to have a successful sporting career ended suddenly by a medical condition is England footballer Ashleigh Mills.

Ashleigh Mills played football for Doncaster Rovers Belles and was a rising star for England, but last month, a day after she turned 20, she was diagnosed with multiple sclerosis (MS) and forced to retire from the game.

“It came out of the blue,” she says of the first symptoms. “It was match day last year and I woke up and couldn’t feel my right foot.

“I went to see the club’s physio and he said I looked alright. I probably should have told him the feeling was spreading up my legs but I played for 60 minutes. By the end I didn’t have any feeling from my hips all the way down to my feet.”

The numbness was the first indication of MS. The non-hereditary neurological disease is the result of the protective layer surrounding nerve fibres – known as myelin – becoming damaged. The immune system them mistakenly attacks it, causing scarring or sclerosis.

Symptoms include sight loss, fatigue, mobility issues and memory and cognitive problems. The pattern of MS varies between individuals and changes over time making it difficult to predict the course of the disease.

For Mills it was an unexpected shock and an end to the professional football career she had been dreaming of since childhood.

She was signed to the Women’s Super League One side at the age of 17 and received her call-up from the England U19 squad within weeks. Her debut for the national side came in 2014 at the age-group European Championships in Norway. England were knocked out in the group stages but it left Mills with the drive and ambition to make it in the game.

During the first bout of the disease the numbness in her foot and heaviness in her legs persisted and after several days she visited her GP, heralding the start of a year-long road to diagnosis. In March 2016 – almost a year to the day after the symptoms emerged – she was told she had relapsing and remitting MS. In other words, the condition comes and goes, with the body repairing itself before another attack.

“Me and my parents were shocked and upset when they first mentioned it could be MS, but by the time they said it actually was that, we’d accepted it. By then I knew all the symptoms so I was sort of expecting it, but I couldn’t really believe I’d have to retire, because football is all I know.”

There are several strains of MS – 85% of people are initially diagnosed with relapsing and remitting MS while many go on to develop secondary progressive MS where the condition continues to deteriorate.

Dr Emma Gray, head of clinical trials for the MS Society says: “Genes and environmental factors combine in a complex interaction to cause MS. We’ve discovered over 100 genes which increase your risk, but don’t mean you’re going to get it, and environmental factors can include vitamin D deficiency – but we don’t currently know what the formula between the two is.”

The majority of those diagnosed are in their 20s or 30s. At 19, Mills was on the younger side, although cases have been seen in two-year-olds. On average it is thought to reduce life expectancy by seven years, although the quality of life is greatly impacted as people deteriorate.

While awaiting her diagnosis, the remissive nature of Mills’ strain meant she had periods of good health.

“I got back into playing and they offered me another contract,” she says. “I felt much better, but I also knew, while I was trying my best, I wasn’t getting any fitter. Sometimes I’d be fine. One week I was with the U19s and had a tournament and played every game and then it happened again. I just couldn’t feel my feet and couldn’t stand anyone touching my legs, it felt like something was constantly wrapped around them. I couldn’t walk without holding on to Mum – I just couldn’t believe it had happened again.”

She says regular training became more difficult, more exhausting, and after speaking with her parents she called a meeting with the club manager who agreed she wasn’t progressing. With a “heavy heart” the club announced her retirement which she says was a “terrible” moment.

“This past couple of months has been so frustrating,” she says. “I had been working really hard in pre-season to get back to top level fitness but this disease won’t let me and retiring was terrible.

“I’ve been training a few times because they say exercise can help but the elite level fitness is just too much. I would do one sprint and I just couldn’t run back to the start again because I was so tired.”

Mills is not the first England footballer to retire prematurely.

In 1996 Danny Wallace hung up his boots after it was found the number of injuries he had sustained and his loss of form was down to MS. He also reported pain and numbness in his feet and following one match said “kicking the ball was like kicking a balloon full of water”.

Both Mills and Wallace remain positive in the face of this challenge. Wallace set up the The Danny Wallace Foundation to raise money and awareness, while Mills is studying for a degree in sports coaching. There has also been interest from other disability sports teams who want to harness her skills.

There is a choice of 11 approved treatments for patients to choose from to help manage their condition, which are delivered through injections, infusions or tablets and prevent the immune system attacking the myelin. Mills also has weekly oxygen treatment at Sheffield’s hyperbaric chamber which she, and many others, find eases the discomfort, although it is not currently a recognised therapy.

“It helps return the feeling at the bottom of my feet,” she says. “When I’ve missed it I can tell, because when I drive and my key-ring touches my leg it feels like a bullet, it hurts because it’s so cold, but when I have the oxygen it doesn’t hurt. Despite treatment my right foot isn’t the same and I don’t think it will ever come back.”

As well as the physical change to her life she’s facing, there is also the emotional upheaval. The MS Society says about 66% of people diagnosed experience anxiety or depression and it offers a helpline staffed by several counsellors.

Mills has started coming to terms with the end of her career but says while she wants to be there for her teammates, it often does nothing but reinforce her absence from the pitch.

“I’ve been to see them play Chelsea twice so far,” she says. “The second time it wasn’t nice as I knew I couldn’t play again and it hit me and I just wished I could be on the pitch. I could see some of my younger friends who were on the bench and I just wished that could be me playing out there.

“But I’m quite positive, you’ve got to be.”

Redefining Juliet

April 14, 2016

An email I’ve just received:

Redefining Juliet

 BBC4 May 1st at 10.00PM

Redefining Juliet Tim Bowie & Storme Toolis as Romeo & Juliet. MRF 2016.jpg

Creative Director Storme Toolis and Tim Bowie as Romeo & Juliet

 

Think you know who can play Juliet? Well think again.

 

Redefining Juliet is a unique re-telling of Romeo & Juliet using a diverse group of actors – all with disabilities or differences. Tall, small, large, deaf, bald and wheelchair using but each owning the iconic Shakespearean character of Juliet for themselves.

 

Creative Director and wheelchair user Storme Toolis says: ‘Shakespeare never defined who could play Juliet. Or that she had to be blonde, size 8, or if she could walk. We are bringing Juliet into the 21st Century and recasting her for today’s diverse society using a combination of  witty verbatim theatre and the Shakespearean text. We are Redefining Juliet.’

 

Redefining Juliet will be broadcast on BBC4 on MAY 1st at 10.00PM and is part of the BBC Shakespeare Festival.

Disability Assessors Must Be Properly Trained Says BPS Following Monday’s Dispatches Programme

April 14, 2016

Following the airing of Channel 4’s Dispatches programme The Great Benefits Row on Monday 11 April 2016, the BPS is extremely concerned about the appropriateness of the training, behaviour and outcome goals of some disability assessors employed by Capita as depicted on the programme.

As the professional body for psychologists in the UK, the British Psychological Society (BPS) is concerned that the contributions of psychological theory and practice are not being used to best effect within the benefits system. We are committed to ensuring that psychological assessments are valid and enable individuals to receive tailored guidance and support.

With specific reference to the face-to-face disability assessment for Personal Independence Payments from the Department for Work and Pensions, we strongly emphasise the following:

  • The outcome of assessments should be to establish a full picture of a person’s physical, psychological and neuropsychological functioning. Assessments should be timely, accurate and fair.
  • Standardised assessments should only be carried out in the way they were developed and tested to be. Any variation in practice may result in the assessment producing invalid and unreliable outcomes.
  • The development and testing of assessments should involve the expert input of health and social care professionals regarding the assessment physical, mental, neurological and cognitive functioning.
  • Assessors should be appropriately trained, acting within the bounds of their professional competence, and should receive regular reflective supervision and training from expert health and social care professionals.
  • Mental health problems and disabilities are highly individualised. The training of assessors should ensure that staff are sensitive to the specific needs of those presenting with complex conditions and understand the tailored support provisions that may need to be made for those individuals to ensure sufficient comprehension and understanding of the process and what is being asked of them, at every stage. Psychologists are well placed to ensure that training is appropriately informed and structured to enable staff to tailor the assessment process to the needs of the individual whilst ensuring that the assessment is conducted as consistently, fairly and inclusively as possible.
  • The assessment of the impact of physical and mental health disabilities may have adverse consequences on an individual’s understanding of themselves, their attitudes, behaviour and psychological wellbeing. Any process that is designed to support those in need must uphold or improve the psychological wellbeing of those individuals.
  • Ensuring that the assessment is accurate and valid is vital, not least because of the possible negative impact on psychological wellbeing that may arise from having to undergo the assessment, but also because of the potential adverse consequences of outcomes which may not reflect the extent or complexity of an individual’s mental health condition and which may, in turn, result in significant distress and an exacerbation of their condition.
  • The fundamental purpose of the system should be to ensure the provision of appropriate support to improve the psychological wellbeing of vulnerable individuals and to prevent further psychological harm.
  • Assessments must not be carried out in a covert manner and the individual being assessed should be fully informed as to the nature and the purpose of the assessment.
  • Psychologists have an ethical and professional responsibility to ensure they have gained fully informed consent for any assessments they conduct.

Professor Jamie Hacker Hughes, President of the British Psychological Society, said:

“Throughout the past year the British Psychological Society has been calling for attention to the inadequacy of the assessments currently being used by the Department of Work and Pensions for Work Capability Assessments and assessments for Personal Independence Payments.

“This week’s Dispatches programme has highlighted the urgent need for the contributions of psychological theory and practice to be used to best effect within the Benefits System. We therefore make a number of strong recommendations for ways in which the assessment system should be improved.”

STONEWALL AND REGARD DISCUSS EQUALITY FOR LGBT DISABLED PEOPLE

April 14, 2016

A press release:

·         Sessions on specific barriers including access to the LGBT scene for disabled people

·         Speakers include experts from Attitude is Everything, Social Care Institute for Excellence and Independent Lives

·         New study launched to understand the challenges faced by LGBT disabled people

An event to explore the barriers faced by lesbian, gay, bi and trans disabled people was joint-hosted by Stonewall, the leading LGBT equality charity and Regard, the LGBT Disabled People’s Organisation. The conference at Coin Street, London on Wednesday 13 April was an opportunity for people to share ideas on how to achieve equality for all.

Sessions explored the unique experiences of LGBT disabled people, including some of the barriers they face. During one session, attendees discussed the difficulties LGBT disabled people can encounter when trying to access the LGBT scene.  The group also explored how to tackle hate crime when you have multiple minority identities and the role of volunteering and community support.

Sessions also investigated what best practice looks like in social care. Stonewall’s recent research report Unhealthy Attitudes uncovered some worrying findings for LGBT people. Almost six in ten (57 per cent) health and social care practitioners with direct responsibility for patient care didn’t consider sexual orientation to be relevant to someone’s health needs. It also found that a quarter of patient-facing staff have heard their colleagues make negative remarks about lesbian, gay or bi people, while one in five have heard similar disparaging comments about trans people.

A new study to understand more about the challenges LGBT disabled people face was also launched at the conference. It is funded by the NIHR School for Social Care Research and is a collaboration between the Norah Fry Research Centre (University of Bristol), the Social Care Institute for Excellence (SCIE), Regard and Stonewall.

Following the research, a range of online resources will be produced to support LGBT disabled people, their supporters and social care providers.  LGBT disabled adults who use social care in England will be surveyed and interviewed along with study groups of personal assistance and support workers who support disabled people.

Ruth Hunt, Chief Executive of Stonewall, said: ‘We can only say we have achieved true equality when all LGBT people are accepted without exception. For LGBT people who are also disabled, or who have another marginalised identity, there are still far too many barriers to equality. We know from our research that experiences in health and social care for LGBT people can be extremely poor, and for those disabled LGBT people who have regular contact with health and social care services, this can be extremely distressing. There is also the fact that LGBT disabled people face barriers when accessing the community support which other LGBT people take for granted – such as local Pride marches, bars and clubs or social meet ups. It was vital we explore practical solutions together so that everyone, everywhere can be free to be themselves.’

Dr Ju Gosling, Co Chair of Regard, said: ‘Regard was delighted to work with Stonewall to deliver this very important event. LGBT people are significantly more likely to be disabled than the population as a whole, for a variety of reasons. However, this is rarely recognised, and very little provision is made for us. This in turn causes social isolation and increases vulnerability to hate crime as well as impacting on wellbeing. With the support of Stonewall we want to achieve a cultural shift, so that disabled people are included on equal terms within LGBT communities in the future.’

If you are an LGBT disabled person living in England and organise some or all of your own social care support and would be interested in taking part in the new study, please contact David Abbott at d.abbott@bristol.ac.uk or on 011733 10972.

 

Further information about the NIHR School for Social Care Research: http://www.sscr.nihr.ac.uk/

Lisa’s Emergency Bereavement Fund

April 13, 2016

Readers, please do what you can to help Lisa through this difficult time. Even if you can’t donate, please share this link wherever possible.

Lisa’s Dad, Terry Egan died on the 9th April 2016. It falls upon Lisa to put Terry’s things in order, to arrange his funeral, sort out his possessions and get his house in a suitable condition for sale. There are debts and no savings to pay for these things until the house is sold, which is likely to take many months.

Lisa has osteogenesis imperfecta and a collection of chronic health problems which prevent her from working. Because of Lisa’s impairments and ill health, together with the fact she is dealing with this entirely on her own, staying in her father’s empty house two hours away from her own home, she faces a particularly mammoth and distressing task.

She needs money to pay for Terry’s funeral and to help put his house in order. The interior of the house is in a poor state with some damage to the walls caused by wheelchairs, hoists and an electric adjustable bed. There is a quantity of old disability equipment and household items which would not be worth any money, but which Lisa hopes will prove invaluable to those who can make use of them.

Lisa can’t reach high shelves or access the building’s loft, nor can she lift or carry heavy objects. At the moment, her ill health prevents her from driving, so the process of organising and clearing out the house is likely to prove very expensive, with Lisa needing to hire in people who can do perform these tasks. Although Lisa has many friends, we are geographically distant and almost all of us have either heavy work commitments or our own health problems which prevent us providing practical support.

Without financial help, Lisa will face taking on massive debts at the most difficult time of her life.

Lisa gives a lot in time and energy to her friends and community. She is a popular and passionate disability rights campaigner who blogs at Lisybabe’s Blog  and Where’s the Benefit? A former stand-up comedian, she has been on the Independent on Sunday Rainbow List of the most influential LGBT people in the UK for three years running.

Politicians Who Bully Disabled People Through Welfare Cuts Can’t Complain About Publishing Tax Returns Says Welfare Weekly Editor

April 13, 2016

Review: Wendy Hoose

April 13, 2016

Johnny Mcknight’s Wendy Hoose is, quite simply, a hilarious piece of writing. Two young people, Jake (James Young) and Laura (Amy Conachan), have recently met online and have been ‘sexting.’ The audience gets to read their messages, word for word, as part of animated subtitles that flash above the main stage, as they are read out by an audio describer (Julie Brown) who hilariously inserts her personal opinions into the script whenever she feels like doing so!

Jake and Laura have arranged a one-night stand, late on a Friday night, at Laura’s flat in Cumbernauld, Scotland. Jake enters through the open door of Laura’s red bedroom- with “crap” on the shelves, in the opinion of the audio describer- to find Laura already tucked up in bed. She’s in her nightgown, with her very large, “nice tits” on display (in the opinion of Jake).

And so begins the one-night stand- until Jake, to his great shock, discovers that Laura is physically disabled. Jake makes no attempt to hide his shock, or the fact that he prefers  sexual partners who are very different to Laura!

Jake calls a taxi home to Paisley. A private taxi- not a black cab. In the forty minutes it takes the taxi to arrive at Laura’s home- which Jake calls a “Wendy Hoose” because of the size of her kitchen, which he visits twice to bring them both red wine, (sure to give her heartburn later, says our audio describer as Laura gulps it down), the audience learn that these two young people who started out thinking they wanted the same thing are actually complete opposites.

Laura has a physical disability, but there is much more to her than being disabled and living in an adapted home. She’s a feminist who thinks that women can and should be equal to men- Jake makes no secret of the fact that he disagrees. She’s a mother of a one year old daughter- who does not share her disability. Jake makes no secret of his opinion that this is a good thing. She keeps her vibrator- which she uses while Jake uses her toilet- in the same drawer as her baby monitor- yet another thing Jake cannot understand. Laura also teases Jake for the lack of English grammar in his texts and his use of ‘text speak.’ “R- one letter- not three. U- one letter- not three.”

Best of all, Laura displays a great deal of humour when Jake, insensitively, tries to ask her about the reason for her disability. First, she tells him that it was the result of a shark attack. Then she admits that that was a joke, but makes up an absolutely hilarious, sarcastic story to try to explain it instead! The audience never learns the real reason why Laura has her disability. She clearly doesn’t want to discuss it with Jake, a total stranger. But as we watch her doing things most young people usually do on a Friday night at home- listening to music and drinking chilled red wine (which Jake says is best served “warmish”) we realise that this doesn’t really matter. At all.

Jake, meanwhile, reveals that as well as being completely insensitive to disability, and able to afford Diesel underwear, the only things he likes in life are Tomb Raider, Lara Croft, porn and his X-box- which is definitely an X box and not a Playstation!

The play ends leaving the characters- and the audience- with one question on their minds- is online dating really easier than meeting someone in person from the start?

Between them, audio describer Julie Brown and Amy Conachan as Laura steal this show, which is directed by Robert Softley Gale and is currently running at London’s Soho Theatre until May 7th.

Overall, it is very highly recommended. Jake might be the last person most would let into their home unless they know him very well, but not even his shallow personality will stop you laughing out loud throughout the show’s 65 minutes.

Tommi Miller Has Died Aged 8- And John Terry Is Paying For His Funeral

April 12, 2016

I’m very sad to have just read that Tommi Miller died last month aged 8. John Terry reportedly met him last year, and is paying for his funeral.

Footballer John Terry has paid for the funeral of an eight-year-old Chelsea fan, who recently died from leukaemia.

The former England captain donated £1,600 to the family of Tommi Miller, who he met last year.

He told the Cambridge News he was “totally devastated” to hear he had died.

Tommi’s mother Ruth Miller said she was “overwhelmed” by the gesture and is also planning to buy a “special headstone” with the money.

She said the family, who live in Thorpe Way, Cambridge, were “very proud” the footballer remembered him.

 

“When we visited the stadium, you could tell John Terry was really taken by him and his cheekiness but it was still a shock when we heard.

“Tommi obviously made a big impression on him and he was one of his favourite players so it’s very special to us,” she said.

Tommi, who was diagnosed with leukaemia aged three, died last month after an unsuccessful attempt was made to carry out a bone marrow transplant.

A family friend contacted Terry on Instagram to ask if he would like to contribute to the costs and he replied saying he would “love to help.”

When he was told it was £1,600, Terry phoned up the funeral director to arrange the payment.

He said it was a “pleasure” to meet the youngster, adding: “I’m sure his family and friends will give him the send off he deserves.”

The funeral will take place on Thursday, with those attending wearing either Chelsea shirts or the Cambridge United strip.

National Deafblind Charity, Sense, Responds To Channel 4 Dispatches Programme- The Great Benefits Row

April 12, 2016

A press release:

 

(12 April 2016 – London, UK) – Sense has responded to the Channel 4 programme ‘Dispatches’ that aired last night,  investigating the planned changes to Disability Living Allowance (DLA) which in two years will disappear to be replaced by the new Personal Independence Payment (PIP).

The programme revealed the PIP system being abused and private contract ‘assessors’ acting unprofessionally and making disparaging remarks about claimants.

Richard Kramer, Deputy CEO of Sense, said:

“We’re deeply concerned by what we have seen in tonight’s episode of Dispatches. The sight of “fitness for work” assessors ridiculing claimants will cause distress for disabled people that already fear the assessments are geared towards saving money, rather than ensuring they receive sufficient benefit to live their lives.

The Government must focus its efforts on improving the life chances for disabled people and making a long term commitment to protecting the dignity and independence of some of the most vulnerable people in this country.”

Owen Smith MP Comments Ahead Of Stephen Crabb MP’s First Speech Today

April 12, 2016

With many thanks to reader Maureen Anne Fitzsimmons.

Panorama- I’m Broken Inside: Sara’s Story

April 12, 2016

Sara Green was a teenager betrayed by a mental health system designed to protect her. Using Sara’s own words taken from her diary, Panorama reveals the failings of a Priory hospital where she was an inpatient and where she took her own life in a misjudged cry for help. Peter Marshall asks what lessons can be drawn from Sara’s story and what can be done to fix the country’s broken child and adolescent mental health system.

Astonishing: Working Benefit Claimants To Face Financial Penalties If Their Boss Files Tax Information Late

April 11, 2016

johnny void's avatarthe void

Real-time-information-boss OOB refers to the requirement that payroll data is submitted On Or Before the date employees get paid.

Chaos is on the way for the lowest paid workers as new rules come into force which link payment of vital in-work benefits to employer’s compliance with providing tax information on time.

From this month almost all employers will finally be expected to provide payroll data to HMRC every month as part of the Real Time Information (RTI) system. This change has already been introduced for larger employers but businesses with nine or less employees had been given a 12 month ‘easement period’. That ran out on April 6th this year.

For those on low incomes this payroll data will be used to calculate their entitlement to Universal Credit.  If this information is not filed on time then bosses are warned by the DWP that their workers may: “receive too much or…

View original post 755 more words

Sanctioned For Being In A Coma- So She Stole Scrap Metal

April 11, 2016

 

A woman whose benefits were sanctioned while she was in a life threatening coma claims she had to resort to stealing scrap metal when released from hospital – because she had no money to survive. 

She is just one of thousands needlessly persecuted under the government’s vicious sanctions regime, even after the parliamentary work and pensions committee labelled them “unfair and punitive” and called for an independent review into their usage.

 

Lisa Hartley, 46, appeared in front of Hull Magistrates’ Court after being caught stealing copper pipe, door handles and a letter box from a derelict council house in the city on March 7.

 

Hartley, who woke from the coma despite doctors not expecting her to live, told the police at the scene she stole the metal because she “needed a bit of money.”

 

Solicitor Ed Cunnah, who was defending Hartley, said, “I’m sure you have seen details of the sad situation that led to her losing her benefits for a couple of months.

 

“I’m absolutely shocked someone who was in a coma in hospital, and was not expected to survive, lost their benefits for nine weeks through no fault of their own.”

 

After ordering Hartley to pay £85 costs and a £15 surcharge, chairman of the bench, Steven Larard, said to Cunnah, “We are quite surprised this matter came to court.

“I would have thought this could have been dealt with by a police warning or caution.”

There’s A Spanish Film Called Yes, We F**K

April 11, 2016

And Same Difference hopes it screens in England. Because Same Difference knows that there is a lot of truth in its title!

Capita Assessors Mock The Disabled While Earning Twenty Grand A Month

April 11, 2016

A fitness for work assessor for Government contractor Capita boasted he “flew through” vital welfare disability tests – earning himself £20,000 a month.

And another derided a disabled claimant as needing “help to wipe her a*** because she’s too f****** fat to do it herself”.

The footage was filmed for Channel 4’s Dispatches programme by a reporter who went undercover to expose the hated tests, which have seen thousands of disabled people wrongly stripped of benefits.

In the documentary, to be broadcast at 8pm on Monday, one Capita employee named Alan crows about raking in vast sums.

He told the stunned reporter, who was taken on as an assessor: “It was ridiculous, I was getting around 20 grand a month, most months.

“We was flying through them because of that money.”

Alan, who was tasked to show the new recruit the ropes, told how he would sometimes complete assessments before meeting a claimant.

He said of one, who had lost a leg: “When it gets to the nuts and bolts, he does everything really don’t he?

“I’d literally finished his assessment before I’d walked through the door.”

The documentary is presented by ­Paralympian basketball player Ade Adepitan, 43, who won bronze for Team GB in Athens in 2004.

Capita said it has seen transcripts from the programme and apologised for the conduct of the assessor in question.

But a spokeswoman said the firm “does not recognise” claims of £20,000-a-month fees.

Changes For Terminally Ill Claimants Transferring From DLA To PIP

April 11, 2016

As seen here.

Background

 Currently there is a requirement for all claimants who are transferring from Disability Living Allowance (DLA) to Personal Independence Payment (PIP) to wait 28 days starting with the first pay after the decision to award PIP (‘the 28 day run on’).

 To ensure that the system delivers vital support as quickly as possible for claimants who are terminally ill, the 28 day rule is being modified.

 This requires a change in legislation.

 Regulations have been drafted and are due to come into effect on 4 April 2016.

 The change will only apply to PIP claimants transferring from DLA who meet the SRTI criteria and are awarded a greater weekly rate than their current DLA weekly rate.

 For the small number of people who receive less under PIP, the 28 day run on will remain to ensure there are no losers as a result of this change.

 Entitlement to PIP will start at the earliest opportunity, between 1 and 8 days following the decision to award PIP taking into account the different payment cycles of DLA.

Questions and Answers

1: What is being changed and why?

On 1 February 2016 the Minister announced that the 28 day rule for terminally ill claimants who are moving from DLA to PIP is being changed. This is to ensure that the system delivers vital support as quickly as possible.

2: When does this new rule come into effect?

New Regulations have been drafted and are due to come into effect on 4 April 2016.

3: Who will benefit from this change?

This change will apply to claimants who meet the Special Rules for the Terminally Ill (SRTI) criteria, are awarded a greater weekly rate than their DLA weekly rate and our decision on the PIP claim is made on or after 4 April 2016, the date the new Regulations came into effect

4: I am terminally ill and was awarded PIP which is more money than I was getting on DLA. I had to wait 28 days before PIP could be paid. Can I get backdated payments for the difference for this period?

There are no provisions to backdate payment. If the decision on the PIP claim was made before 4 April 2016, then the previous rules will apply.

PIP will start as usual after the end of the 28 day period.

5: I have been awarded PIP because I am terminally ill but I’m going to get less than I did on DLA because I don’t qualify for the mobility component. Will I lose out on the DLA payments for 28 days until PIP starts?

No. The 28 day rule will apply to everyone whose PIP decision took place before 4 April 2016. This will continue to apply from 4 April 2016 and beyond if a terminally ill claimant is awarded PIP at a weekly rate which is less than their current DLA weekly rate.

6: Why is PIP not paid immediately once a claimant notifies the Department they are terminally ill?

Entitlement to PIP will start at the earliest opportunity following the decision to award PIP under SRTI. We don’t expect this to be more than eight days for any claimant and in the vast majority of cases it will be less. It is determined according to the current payment cycle. This is significantly less than the current minimum of 28 days.

7: Why are you only removing the 28 day rule for terminally ill claimants?

The 28 day rule was introduced to help claimants manage their money where the amount of PIP awarded is less than they were getting for DLA.

We’ve removed this rule for terminally ill claimants to allow people who are terminally ill to get help quickly when they claim PIP. This is in line with the fast track process which was introduced for all people claiming under the special rules for terminally ill people.

The Day A Wife Made A Difference

April 8, 2016

From today’s Guardian:

My husband’s body is slowly failing him. He has a rare progressive form of Motor Neurone Disease called Kennedy’s disease and has gone from being physically active to depending on crutches and a wheelchair to get around. At night he breathes with the help of a machine that supports his weakened chest muscles.

Few people have heard of Mark’s disease, let alone understand what it is like to live with it. We wanted to change that, so Mark and I decided to volunteer for the charity Motor Neurone Disease Association as campaigners. We raise awareness of the disease and try to create change at a local and national level.

In November last year Mark and I were asked to speak to the All Party Parliamentary Group (APPG) on Motor Neurone Disease, when the welfare reform and work bill was being debated. Like many others, we were worried about the impact of the bill on disabled people and their carers. We know how important it is to have sufficient financial support when living with an increasingly expensive condition, and what it would mean if this support was cut.

So, we told the MPs our story. We told them about how we were once two professionals and how our lives had been devastated by Mark’s condition. I explained that as a teacher I had earned £150 a day and now I receive £62.10 a week in carer’s allowance for providing never ending care and support for my husband.

Mark explained how he was forced to retire at 46, that our income had fallen off a cliff, but our bills continued to increase. He told the group about how we travel miles and miles to receive care and how we had to make adaptions to our home which were paid for with savings that we will never be able to replace.

As we continued to speak, I realised that the number of MPs in room was growing. We had been warned that they would come and go due to their busy diaries, but it became clear that they were staying to hear all of our testimony. You could see it in their faces that they were thinking about how they might cope in similar circumstances and as they sat there some were emailing and texting their ministers to meet and discuss what we had said. Some were even tweeting.

A few weeks later Madeleine Moon, chair of the group, spoke about our visit during a Westminster Hall debate on neurological conditions. She mentioned us by name and our experiences with Kennedy’s Disease. We realised that this was the first time Kennedy’s Disease had ever been mentioned in a parliamentary debate and the first time it has been recorded in Hansard. This is some legacy. It proved to us the power of a personal story and how you can make a difference using your own words.

We still have work to do. The Welfare Reform and Work Act is now law, which means that people with Motor Neurone Disease who claim Employment Support Allowance will lose out as a result of the four-year benefit freeze. But people who get carer’s allowance will no longer have their benefits capped. There are wins and losses. Our campaigning work continues.

Three In Five Claimants Winning PIP Appeals

April 7, 2016

Huge numbers of disabled people are being wrongly denied Personal Independence Payments (PIP), tribunals are ruling.

A staggering 61% of rejected claims for the benefit are overturned on appeal – inflicting unnecessary stress and extra expense on people, say campaigners.

The number of successful appeals has mushroomed to around 82 every day, figures slipped out by the Department of Work and Pensions (DWP) show.

One case raised by a Labour MP involved a man with such severe heart pounding during an assessment that paramedics had to be called.

But his claim was rejected – a decision which was reversed later.

Read more: Law students overturn 95% of ESA ‘fit for work’ judgements

A multiple sclerosis sufferer had her PIP payment slashed despite being unable to drive and able to walk only short distances, with the aid of a stick.

Disabled people have also protested at having to wait many months before they are allowed to appeal, suggesting the figures are the tip of the iceberg.

The figures come after George Osborne was forced to abandon cuts to PIP after a backbench revolt, leaving a £4.4bn black hole in last month’s Budget.

The row sparked the resignation of Work and pensions Secretary Iain Duncan Smith, who branded the Government’s approach to welfare cuts as “deeply unfair”.

Paralympian Tanni Grey-Thompson, a campaigner for disabled people, said the rate of successful appeals exposed a system that “isn’t working”.

Lady Grey-Thompson said: “There must be so much money wasted – I want the Government to look at this urgently.

“It is very stressful to go to an appeal. It can take a lot of time and you may not have very much money while it is going on.”

And Liz Sayce, chief executive of the charity Disability Rights UK, said: “Appeals can take a year to be heard – that’s a year that people might have to make do with a significant drop of income when they have the additional costs of disability.

‘Many disabled people simply give up. They can’t face the stress and grief of going through a further process to try and get benefit, even when they’re entitled to it.”

The tests are carried out by controversial French firm Atos – the company which lost its contract to carry out separate assessments for sickness benefits – and rival outsourcing company Capita.

The figures show that 24% of rejections were being overturned by tribunals in early 2013, soon after PIP was introduced to replace Disability Living Allowance.

That proportion had risen to 51% by the end of 2014 and to 57 per cent by last Spring – reaching 61% by the last three months of 2015, the most recent figures.

In that October to December period, no fewer than 7,510 appeals were successful – or 578 every week.

It means that even more wrong decisions are being made for PIP than for sickness benefits, known as Employment and Support Allowance (58%).

A DWP spokesperson said: “The truth is the vast majority of PIP decisions do not go to appeal and just 2% of initial decisions are overturned.

“Overturned decisions are often the result of additional evidence being provided. This does not mean the original decision was wrong.”

Sony Employee Builds Adapted Controller For Peter Byrne, PS4 Gamer With CP

April 7, 2016

Disability benefit cuts, the Met Police – and the terror threat

April 7, 2016

I don’t have words to tell you how ridiculous I find this idea, readers. PIP claimants potential terrorists? Whatever next!!

Chaminda Jayanetti's avatarSentinel News

  • Official training course highlights terror threat from man with mental illness angry at benefit cuts
  • Designed to enable frontline staff to prevent people becoming terrorists
  • Training relates to Channel programme, which has seen hundreds of children referred to it

By Chaminda Jayanetti

A bizarre online anti-terror training course from the College of Policing and the Metropolitan Police warns of the terror threat posed by someone who blames the British government and “the greed of the bankers” for losing his disability benefit.

The training module covers the Channel programme, part of the government’s controversial anti-extremism strategy called Prevent.

The course – called “Channel General Awareness” – has been created by the National Centre for Applied Learning Technologies, a joint initiative of the College of Policing and the Metropolitan Police that delivers online training.

“Vulnerable to radicalisation”

One of the aims of the course is to enable participants to “identify factors that…

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The Two Deaf Women In The White House

April 6, 2016

Two women who are deaf have risen to prominent positions alongside Barack Obama in the White House.

Leah Katz-Hernandez, 28, is one of the first people visitors encounter when they enter the White House. Informally known as the Receptionist of the United States – or Rotus – she is the first ever deaf person to hold that position. Her desk is just steps away from the Oval Office.

“My job involves welcoming people into the West Wing on a daily basis,” she says. “Those people include the president, along with his guests and senior staff. I also welcome world leaders from other countries.”

She also oversees the White House guest book and the West Wing’s main meeting space, the Roosevelt Room, among other roles and communicates with people who don’t understand sign language through an American sign-language interpreter. Phone calls are also translated in this way.

She has a background in politics, having studied government at Gallaudet University in Washington and got her first introduction to the White House as an intern.

Determined to be part of the Obama administration, she travelled to his headquarters in Chicago during the mid-term elections in 2012, and got a job working on his re-election campaign. After Obama won, she was appointed as the First Lady’s press assistant and research associate.

Her boss, Barack Obama, recently told a packed news conference that “her smiling face is one of the first things people see when they come into the White House”.

Katz-Hernandez reveals: “He knows a little bit of sign language, not only because of me, but because of his relationship with other deaf Americans. It’s not a lot of sign language – he is a busy man.”

A colleague of Katz-Hernandez is Claudia Gordon, the first deaf African-American female attorney in the United States. She works at the Office of Federal Contract Compliance Programs and has held a previous post as a policy adviser for the Department of Homeland Security.

Her journey to Washington started in Jamaica where she spent her early childhood. At the age of eight she lost her hearing and, unable to afford an education in Jamaica, her mother took her to New York where she went to a school for the deaf and learned sign language for the first time.

Lack of deaf education was not unusual then and can still be a problem today. According to the World Federation of the Deaf, approximately 80% of the world’s 70 million deaf people do not have any access to education and less than 2% of deaf children have access to learning sign language.

She says the discrimination she experienced in Jamaica inspired her to become a lawyer.

“It did cause me to recognise injustice that exists in society towards people who happen to be different – deaf, blind, physically disabled or have a mental disability. I realised then that society does not treat people right, including myself. So from that experience I realised I wanted to be able to make change, make things better for people like myself.”

Katz-Hernandez and Gordon praise the Obama administration for its progressive philosophy and values – they aren’t the only deaf people working in the White House.

“I want to see the deaf community become more involved with the government because it has a vital impact on the lives of deaf people,” Katz-Hernandez says. “It’s important that they are included. I hope to see many more people like me in the future.”

For many deaf people barriers and stereotypes remain. But some are facing up to the discrimination they see and are working hard to break down those barriers.

But what do Gordon and Katz-Hernandez think their futures will hold when the Obama administration hands over the reins of government next January?

“I do know for a fact that I will continue to strive to make a difference to better society for people with disabilities and other under-served groups,” Gordon says. “What that job title will be, what organisation or governmental body that will be I don’t know but I will continue to follow my passion.”

Katz-Hernandez adds: “My boss [President Obama] said to me: ‘The White House is not the top of your career, it’s the beginning of your future.’ It is true, it is only the beginning, really I want to work to better the future and rights of deaf people and other minority communities.”

Carly Tait On The Loss Of Her Motability Car

April 6, 2016

Carly Tait, a sprint wheelchair racer, is four months away from trials to represent Great Britain at this summer’s Paralympics in Rio – but she now finds herself at the sharp end of the government’s controversial cuts to disability benefits. The 30-year-old from Wythenshawe, south Manchester, who has cerebral palsy, received a lifetime award of disability living allowance (DLA) when she was 18 and for the last 12 years has used part of the benefit to lease an accessible car.

Tait describes the car as her “lifeline”. She says it has allowed her to attend university, have a job, get to two training sessions a day in Stockport, about 10 miles from home, and compete in track events around the country. But after being assessed in February for personal independence payments (PIP) – the government’s “points-based” benefit introduced to replace DLA – Tait has been told she will lose her car, which is provided by the Motability charity scheme.

Under the new rules, to be eligible for the Motability scheme, a disabled person needs to score 12 assessment points. Tait scored 10. “I had training half an hour after I opened the letter [from the Department for Work and Pensions],” she recalls. “I spent the entire time crying as I went round the track. My coach rushed over asking what’s wrong. There I was sobbing, ‘I’ve lost my car. They’re taking my car.’”

What is happening to Tait is only the tip of the iceberg. Despite the government’s much-publicised climbdown over one PIP cut to disability aids in the home, there is still wide-scale reassessment going on, which is seeing disabled people losing their cars. Since 2013, more than 17,000 disabled people have had their mobility cars, powered wheelchairs, or scooters taken away after being reassessed, according to Motability. By 2018, the DWP will have retested some two million disabled people and it is predicted that 90,000 motability vehicles will be repossessed.

Tait says when she was called for her PIP interview she was sure she would still qualify for her car. “[I thought,] I’m going to my assessment in a wheelchair. What more evidence do they need?” But within a few minutes of the test, Tait says she began to feel the examiner wasn’t there to support her but rather “to catch me out”. This only increased, she says, when she told him she was training for the Paralympics. “He alluded to the fact someone like me – who can go wheelchair racing – shouldn’t get the same support as someone who can’t … It was like ‘you can do sport, you don’t need help,’” she recalls.

As well as limited sight and hearing, Tait’s disability affects both her legs severely – she uses a wheelchair and crutches – and leaves her with coordination problems. Despite this, she was judged as being able to walk more than 20m – a highly controversial but key factor used to judge whether a disabled person is awarded the enhanced mobility rate of PIP to qualify for a vehicle.

“Even things like rain and wind upset me. I fell over last summer and broke my foot because I tripped on the pavement. I had to crawl to the bathroom,” says Tait. “It’s almost as if they think if you can walk in your own house, you don’t need a car.”

Tait’s case highlights whether there is any sense in reassessing people with unchangeable or incurable conditions, such as hers. The justification by former work and pensions secretary, Iain Duncan Smith, was that around 70% of people who got a lifetime award were “just allowed to fester”. People on lifetime awards began to be assessed for PIP from July. Over the next two years, waves of severely disabled people who had previously been told their DLA was for life could see their awards reduced or removed entirely.

“When I asked the assessor why I had to be tested again, he said ‘there might be medical advances’,” says Tait. “There’s no cure for cerebral palsy. I’m never going to get any better. I’ve been on a lifetime award since I was a teenager. And now someone who’s never met me before can take that away.”

Tait says the London Paralympics inspired her to take up wheelchair racing. “Until I watched the 2012 Paralympics I didn’t even know people with cerebral palsy could do sport, let alone be successful at it. Since then I’ve dedicated my life to being on the start line in Rio.”

In 2014, Tait represented Great Britain in the T34 wheelchair sprint at the Diamond League in Hampden Park, Glasgow and at the IPC Grand Prix Final in Birmingham, alongside Paralympic champion Hannah Cockroft. She took part in last year’s Sainsbury’s Anniversary Games at the Olympic Park in Stratford and this year, she has taken a 12-month sabbatical from work – as a digital marketer for the Co-op – to train for Paralympic qualification.

In December, Tait ordered a new car from Motability, specifically for her training needs. In addition to being suitable for her poor coordination, her racing wheelchair is 6ft long – it won’t fit in a manual car with the gearstick in the way – the car also had to have room for her everyday wheelchair. As she waited for her new car to be made, Tait had been using a hire car from Motability (her previous car was damaged in an accident). A few hours before she opened the DWP letter informing her she had lost her eligibility, the garage called to say her new car was ready. “It’s sat in the garage now, waiting for me,” she says.

Tait’s eligibility officially ends next week, but Motability have given her a three-week extension for her hire car to 3 May “as an act of goodwill”. Tait is appealing against the DWP decision. If successful, Motability has told her that she would have to reorder her new car, which could be another three or four months. To buy, her car would cost £29,500. “I can’t afford it without my benefits, not even to lease,” she says.
Take another look at the disability debate. Who’s missing?
Frances Ryan
Read more

On 24 April, competition season begins and, in addition to regular training, Tait needs to get to Stoke Mandeville and Coventry to compete. She says she has no idea how she will.

“This is Rio year,” she says. “This whole year has been about getting myself into a medal position. It’s a once in a lifetime opportunity. They made all this effort in London 2012 to showcase disability. But now the government is making us housebound.”
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A DWP spokeswoman says: “Decisions on eligibility for PIP are made after consideration of all the evidence, including an assessment and information provided by the claimant and their GP. The majority of people leaving the Motability scheme will be eligible for a one-off payment of £2,000 [from Motability], which will help ensure their mobility needs continue to be met.”

Motability says it has already paid out £20m in transitional support and research shows it has helped customers to remain mobile without their Motability car, in many cases by purchasing a used car. This isn’t an option for Tait. She says: “I’m representing a country called ‘Great’. It’s not that great [for disabled people], is it? People need to know this is happening.”

Happy New Tax Year! No Payrise On ESA Or DLA

April 6, 2016

Remember when they told us disability benefits wouldn’t be frozen for three years, like other working age benefits?

Well, it seems they weren’t telling us the truth.

The Huffington Post reports:

While the government has committed to ensure the most vulnerable people in society are not adversely affected, Citizens Advice warns sick and disabled Employment Support Allowance (ESA) claimants will still be hit. 

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Clients with issues related to benefits included in freeze, by health condition or disability. (Source: Citizens Advice)

The majority of the benefit is formed by the ‘basic rate’ of ESA, which will be subject to the freeze, they say. 

“This wider effect is significant, given all who receive the benefit have been assessed to have a disability or health condition that limits their ability to find and retain work.

“If those with work-limiting health conditions are classed as vulnerable, there is a failure to apply this principle consistently to those receiving ESA.”

The article says that disability-related benefits that are now frozen are ESA, the ESA WRAG, and the corresponding element of Universal Credit.

Our editor, a claimant of DLA with an indefinite award, was excited by reports that DLA would not be affected by the freeze. As she does every year on the 6th of April, she awaited her annual payrise. However she is sad to report that this year on the 6th of April, her payrise never came. This morning, she has received written confirmation that her DLA Award amount will not increase, in this tax year at least.

So it appears that DLA will be frozen.

Same Difference would be very interested to find out whether Carers’ Allowance has been frozen. Can any carers let us know in the comments below?

 

Chesterfield Restaurant Turns Away Blind Friends

April 6, 2016

Two friends have spoke of their shock after being turned away from a Indian restaurant in Chesterfield because they are blind.

Liam Kemble-Young, 27, and Kyle Jones, 25, from Mastin Moor, went to Zahid Indian, on Chatsworth Road, on March 24 following a recommendation from a friend, but when they asked for a table they were turned away because the restaurant was upstairs.

Liam, who has been blind since birth and uses a cane, said: “We asked the member of staff for a table for two. He started talking to the manager and came back and said ‘the manager doesn’t want to serve you because we have stairs. He said ‘Sorry, we are not going to serve you.

“I have stairs at home and it has never been a issue.”

He said he believed what they did was illegal.

“They didn’t want to take any responsibility. I have never experienced anything like this before. I asked to speak to the manager but they said I couldn’t.”

Kyle, who had come to visit Liam from London, said it was ‘ludicrous’.

He said: “I live in a first floor flat and got here on the train and London underground. I have never been refused service anywhere because there are stairs. There was no feasible reason for that to happen. I have no problem getting up stairs at all.”

Shipon Rahman, a member of staff at the restaurant, told the Derbyshire Times that the men were turned away for their own safety because the restaurant is upstairs. He said: “If anything goes wrong we would get the blame for it. If they had a guide with them that would have been fine.”

When asked if this was the first time they had turned people away who were blind he said it was. He said ‘if they came in with a guide it would not be a problem, but if anything goes wrong we would get the blame so it’s a risk for us.”

Hugh Huddy, RNIB Policy Manager, said: “It is against the law to refuse a blind or partially sighted person service in a restaurant or pub just because they have sight loss.

“Blind and partially sighted people are best placed to decide what is accessible to them and what isn’t, rather than other people making these decisions for them. Under the Equality Act employers can be held responsible if their staff unlawfully discriminate against a customer.”

 

Brace Yourselves- DWP Could Come After The Support Group Too

April 5, 2016

Worrying reports this evening from respected blog Vox Political:

Rumours from the Department for Work and Pensions suggest that new secretary of state Stephen Crabb is likely to announce renewed plans to change the descriptors to PIP for aids and adaptations in August or September.

It seems they are part of proposals from the think tank Reform that have already been partly implemented with the cut in Employment and Support Allowance for people in the Work-Related Activity Group.

The Reform paper – written and published in February this year by people who are all former members of Conservative Party support staff who now claim to be politically neutral – claims that the amount of money paid to people on sickness and disability benefits adversely affects their likelihood of moving into work. So it states:

The Government should therefore set a single rate for out-of-work benefit. The savings from this rate reduction should be reinvested into Personal Independence Payment – which contributes to the additional costs incurred by someone with a long-term condition – and into support services.

…

The document also recommends the end of the Work Capability Assessment in its current form. This has been trailed in the media – most notably by The Sunday Times, which has reported that Mr Crabb wants to end the involvement of private firms in disability benefit assessment.

What that newspaper didn’t say is that the plan is to abolish Employment and Support Allowance altogether and roll sickness benefits into Universal Credit with “a single online application for the benefit, including a ‘Proximity to the Labour Market Diagnostic’ to determine a claimant’s distance from work and a health questionnaire”. The paper states:

This questionnaire should determine whether a separate occupational health assessment is needed. If it is, this should be carried out by an appropriate health professional, with oversight from an occupational health specialist. Unlike the ‘pass/fail’ WCA model, the assessment should take a broad view of a claimant’s multiple health-related barriers to work, including ‘biopsychosocial’ factors. The claimant and health adviser should, where appropriate, jointly produce a rehabilitation plan, and this should come with a personal budget. Those with mild or moderate health conditions that, with support, could be managed should be expected to take reasonable rehabilitative steps – some level of conditionality should therefore be applied. Employment advisers must be appropriately trained to support those claimants, and given a high degree of discretion in how they apply that conditionality.

So the plan is to continue using the discredited perversion of ‘biopsychosocial’ theories (that claim illness is a personal choice and is all in the mind) as the basis for any assessment of a claimant’s illness; to put anyone with “mild or moderate” health conditions such as cancer or Parkinson’s on the welfare-to-work treadmill, with sanctions applied if they fail to participate (even if that failure is due to their illness); and to have all sickness benefit reduced to the same level as Jobseekers’ Allowance.

That’s right. Cutting ESA for people in the Work-Related Activity Group was only part of it. If the plan to roll sickness benefits into Universal Credit is implemented, then people in the Support Group – those with serious conditions that are not expected to improve within the foreseeable future – will also lose a huge amount of their weekly income.

All this from the Conservative Government that has claimed it has no further plans to attack benefit claimants.

Here’s the icing on the cake: The Reform paper recommends that savings from the ESA rate reduction could be reinvested in PIP and in support services – but there is absolutely no evidence to suggest that Mr Crabb is planning to do so. Quite the opposite, in fact. It seems he is cherry-picking the recommendations that suit him and abandoning the rest.

It seems clear he is also planning to abandon the sick and disabled to an uncertain and desperate future.


Margate Deaf School Closed Due To Abuse Of Residents, Reveals CQC

April 5, 2016

The sudden closure of a college for vulnerable people was due to the serious abuse of residents by staff, the health and social care regulator has revealed.

The Care Quality Commission (CQC) detailed a number of shocking allegations at Westgate college for deaf people and the Road Project, in Margate, Kent, including residents being pushed, hit and humiliated. In one case a resident allegedly had a hot cup of tea placed on their arm.

The service was run by the John Townsend Trust. As well as deaf people it also provided for those with communication, physical or learning disabilities. It closed with immediate effect last December.

The CQC said on Tuesday that it took legal action the same month requiring residents to be moved for their own protection but – due to legal reasons – can only now reveal what it did and why.

Andrea Sutcliffe, chief inspector of adult social care at the CQC, said: “What we saw at Westgate college for deaf people and the Road Project – and what was reported to us – were shocking examples of institutionalised failings and abuse.

“Residents were physically harmed by the very people who should have been caring for them and the leadership within the John Townsend Trust did not take sufficient steps to prevent this, or to tackle a culture where people in vulnerable circumstances were not protected.”

The regulator said it first received safeguarding alerts about the service in June 2014. Sutcliffe said the CQC had to balance closing the service with “the difficulties involved in finding alternative placements for them at short notice”. At an unannounced inspection in October 2014, it was reported that, after a resident ripped their T-shirt, a member of staff hit the resident with it and told them that their activities would be withdrawn.

Another unannounced inspection the following month uncovered more abuse, including residents being ridiculed for their physical and learning disabilities. As a result, a number of staff members were suspended, some of whom were later dismissed.

Further serious concerns were raised in July 2015, including an allegation that a resident had had a hot cup of tea placed on their arm and was then goaded by a staff member. There was a separate allegation that a staff member had grabbed a resident around the neck and pushed their head down.

On a later visit inspectors found serious medication errors and that vulnerable residents were left unsupervised in a swimming pool with no lifeguard on duty. In some cases, police were notified but no charges were brought due to insufficient evidence.

Dan Scorer, head of policy at the learning disability charity Mencap, said: “These failings should never have been allowed to happen. We must find out immediately the role that all agencies played and whether the failings at this service could have been identified, acted on earlier and stopped.”

Labour said it was deeply concerning that such abuse was happening five years after the Winterbourne View scandal.

Barbara Keeley, shadow minister for care, carers and older people said: “

“Ministers need to provide urgent assurances that this kind of abuse is not widespread and that action is being taken to protect the welfare of vulnerable people who receive care.”

A Department of Health spokesman said: “This report uncovers shocking abuse and it is absolutely right that our tough new inspection has stepped in to put an end to it.

“We want care in this country to be the safest and most compassionate in the world – the CQC has once again proved the vital role it plays in making this a reality.”

New Facebook Feature Lets Blind And VI Users ‘See’ Photos

April 5, 2016

As the internet becomes dominated by images, Facebook is launching a system which can “read” photos and tell visually impaired people what appears in them.

The internet is changing. From a medium based almost entirely on text, it is now becoming increasingly picture-led. An estimated 1.8 billion images are uploaded every day to social networks such as Twitter, Instagram and Facebook.

Good news for aspiring photographers, bad news for blind or partially sighted users who often have no way of telling what is in an image – despite the available modern assistive technologies.

But a new service from Facebook, being launched on Tuesday, is attempting to remedy that.

Blind people use sophisticated navigation software called screenreaders to make computers usable. They turn the contents of the screen into speech output or braille. But they can only read text and can’t “read” pictures.

Using artificial intelligence (AI), Facebook’s servers can now decode and describe images uploaded to the site and provide them in a form that can be read out by a screenreader.

The man behind the development is Matt King, a Facebook engineer who lost his sight as a result of retinitis pigmentosa – a condition which destroys the light sensitive cells in the retina.

“On Facebook, a lot of what happens is extremely visual,” King says. “And, as somebody who’s blind, you can really feel like you’re left out of the conversation, like you’re on the outside.”

The technology that King and his team have developed uses Facebook’s in-house object-recognition software to decipher what an image contains. It has been trained to recognise items such as food and vehicles.

“Our artificial intelligence has advanced to the point where it’s practical for us to try to get computers to describe pictures in a meaningful way,” King says.

“This is in its very early stages, but it’s helping us move in the direction of that goal of including every single person who wants to participate in the conversation.”

The system currently describes images in fairly basic terms such as: “There are two people in this image and they are smiling.”

However, Facebook says it has now trained its software to recognise about 80 familiar objects, from cars and trains, to food and settings such as mountain, water and beach, and sports such as tennis, swimming and golf. It adds the descriptions as alternative text, or alt text, on each photo. The more images it scans, the more sophisticated the software will become.

Last month, Twitter added a similar function which enables users to manually add their own descriptive text to images. Although the descriptions may be better, it requires users to actively choose to do it, whereas Facebook’s new system automatically tags every photo.

King and Facebook would like the system to go one step further and use face recognition to identify people in a picture by name with help from their database of users, but others are resisting the idea on privacy grounds.

For King, it is a matter of principle – he says sighted and visually-impaired people should have equal access to the content posted online. Sighted people know who is in many of the photos they see, so blind people should also be allowed that same privilege, he believes.

“I feel I have a right to that information,” he says. “I am asking for information that is already available to other people to be revealed to me. So I see it as a matter of fairness.”

Jeff Wieland, head of the Facebook accessibility team, says the social networking site is investing in accessibility and devising strategies for different communities, to allow them to engage with it.

He says the site is “going to have dedicated teams thinking about how to get all these different communities on-board and connecting with each other. That is the chance for us to be equalisers and to really empower the world”.

“I Don’t Have A Disability. Why Does The DWP Want To Send Me To Remploy?”

April 5, 2016

PIP Is Another DWP Failure As Savings Are Forecast To Be 5% Not 20%

April 5, 2016

With many thanks to Benefits And Work.

Personal independence payment (PIP) has turned out to be yet another failure for the DWP, as promised cuts of 20% have been reduced to a forecast 5%. The failure to cut costs mirrors the transfer from incapacity benefit (IB) to employment and support allowance (ESA), which also did not produce the promised savings.

Conflicting claims
Ministers and shadow ministers have been making conflicting claims about whether the government is set to pay out more or less in benefits to sick and disabled claimants over the rest of this parliament.

As Full Facts reports, neither side have been accurate in their use of statistics.

The Conservatives have claimed that spending on the main disability benefits will increase over the course of this parliament.

This is true to the extent that spending on DLA, AA and PIP will increase very slightly from £21.7 billion to £21.8 billion a year between 2015 and 2020. But these are far from the only benefits that most disabled people rely on.

Labour have claimed that benefits spending on people with disabilities will fall by £1.2 billion a year across this parliament. However, according to Full Fact:

“Spending on all disability, incapacity, industrial injuries and carer’s benefits, including related housing benefit, is expected to fall by £1.2 billion by the end of this parliament. Spending won’t fall by this amount every year—it will fall by £295 million each year on average.”

PIP spending
When it comes to spending on PIP, however, the Office for Budget Responsibility (OBR) are forecasting that, without the now abandoned changes to PIP eligibility rules announced in the budget, spending on PIP will only reduce by 5% compared to what would have been spent on DLA.

According to the OBR, they have had to revise the expected success rate for DLA to PIP reassessments up from the DWP’s original estimate of 80%. The OBR now expect 83% of reassessments to result in an award of PIP after mandatory reconsiderations and appeals are taken into account.

In addition, the DWP had originally claimed that the average PIP award would work out at £86 a week. However, significantly more people are being awarded the enhanced rate of the daily living component and the mobility component of PIP than the DWP expected. The result is that the average award is now expected to be worth £100 a week.

Tiny savings
So, like the IB to ESA transfer before it, the change from DLA to PIP looks like it will heap an enormous amounts of misery on disabled claimants without any significant savings for the taxpayer.

In fact, given that the saving is only expected to be 5% rather than 20%, when you add in the massive additional costs of the PIP assessment regime and the huge increase in appeals, the savings may be very tiny indeed.

You can read more on this at Full Fact

Albinism And Perceptions Of Beauty

April 4, 2016

South African photographer Justin Dingwall’s portrait series Albus explores the aesthetics of albinism and perceptions of beauty.

Albinism is an inherited condition that results in the absence, or near absence, of pigmentation in the eyes, skin and hair.

Many people living with albinism are subject to negative public attitudes, persecution and violence.

Dingwall’s project began with portraits of Thando Hopa, a legal prosecutor using her visibility to address the negative perceptions surrounding albinism.

More recent work features Sanele Xaba, a young model with albinism, and uses specific elements to create symbolic meanings.

“They are not about race or fashion, but about perception, and what we subjectively perceive as beautiful,” says Dingwall.

“I wanted to create a series of images that resonate with humanity and make people question what is beautiful.

“To me diversity is what makes humanity interesting and beautiful.”

Drawing on elements from nature, Dingwall aims to alter the viewer’s perspective.

“The butterfly unquestioningly embraces the changes of their environment and their body,” says the photographer.

“For this reason, butterflies have become symbols of growth, surrender, transition, celebration, resurrection and fragility.”

Albinism is particularly prevalent in Tanzania, with one in 1,400 affected, according to a 2006 BMC Public Health report.

This compares with one in 20,000 in Western countries.

Since 2000, at least 75 people with albinism have been killed in targeted attacks in Tanzania.

Many are killed because potions made from their body parts are believed to bring good luck and wealth.

 

‘Yardley ESA Challenge’ JobCentre Poster Didn’t Target ESA Claimants Insists Justin Tomlinson

April 4, 2016

Same Difference hopes this was an April Fool, but considering it was Tweeted on March 31st we have our doubts. Have you seen a similar poster at another JobCentre?

 

A Tory minister last night ordered a Jobcentre to take down a ‘dehumanising’ Space Invaders poster which appeared to target disability benefit claimants.

The huge poster, hung on the wall of a staff office depicts the classic arcade game, with alien enemies being picked off one-by-one by a spaceship, under the heading “Yardley ESA Challenge”.

Disability minister Justin Tomlinson said the poster would be taken down as it’s not “presented in the best way.”

The Department for Work and Pensions today insisted the department do not set targets for getting people off Employment Support Allowance (ESA).

But they were unable to explain what the poster was supposed to represent, or what the ‘Yardley ESA Challenge’ was.

https://twitter.com/jessphillips/status/715566991441076225?ref_src=twsrc^tfw

A picture of the poster was tweeted by Labour MP Jess Phillips after it was sent to her by a constituent who took it in her local Job Centre in Yardley, Birmingham.

Mrs Phillips is set to meet the manager of the Job Centre today, and said she assumed it was “to get people off ESA.”

Mr Tomlinson replied later, saying: “This will be taken down. Definitely right to help sick and disabled into work, but this not presented in best way.”

Mrs Phillips said: “There is a feeling amongst the disabled that they are being dehumanised. Unfortunately this picture proves their point.

“People on ESA include people with cancer, Parkinson’s or people with crippling mental health problems. It’s not OK to depict them as aliens to be eliminated, however innocent it may have seemed to staff in the centre.”

A DWP spokesperson insisted the poster was an “isolated incident”, but declined to add further comment in addition to the Minister’s tweet.

The Mirror asked the DWP spokesperson if the department was speaking to Jobcentre staff to find out what the poster was supposed to represent, but they again declined to comment.

Nonsuch Primary School Excluded ‘Up To 30 Disabled Children’ Last Year In ‘Rush’ To Become Academy

April 4, 2016

Same Difference has been aware for some time that academies do not easily accept disabled children. Our editor passionately supports inclusive education, so we strongly oppose academies.

We were unpleasantly surprised by the recent calls for all schools to become academies.

However, we have never heard a story like this before. This story has shocked us and made us fear even more for the future of inclusive education.

A primary school that excluded ‘up to thirty disabled children’ ‘in a rush to become an academy’ has rejected education chiefs’ calls to rescind some of the expulsions.

Nonsuch Primary School in Woodgate Valley, Birmingham, has been accused of ‘bullying, intimidation, secrecy and dishonesty’ after children as young as four were kicked out.

There were 193 pupils at the school in a 2012 Osted inspection, meaning a staggering one in seven pupils were excluded in 12 months.

Tory councillor John Lines has claimed the ‘unusually high’ exclusion rate was part of a ploy to improve behaviour figures in a ‘rush to become an academy’.

Nonsuch Primary School in Woodgate Valley, Birmingham, has been accused of ‘bullying, intimidation, secrecy and dishonesty’ after children as young as four were kicked out. There were 193 pupils at the school in a 2012 Osted inspection, meaning a staggering one in seven pupils were excluded in 12 months

He also likened the situation to the Trojan Horse controversy, an alleged plot by hardline Muslims to Islamise schools in Birmingham.

Speaking today, the councillor who represents Bartley Green ward, said: ‘To become an academy one needs to ensure the records of the school and behaviour are at a reasonable standard.

‘So in the rush to become an academy it seems they excluded 30 pupils in around 12 months to get that status.’

Nonsuch Primary School became an academy at the start of the year, and the trust that now runs the school launched its own independent inquiry into the spate of expulsions.

But Mr Lines has demanded more action, having written to the Department of Education about the scandal calling for action over the ‘appalling reports of discrimination of our very young, vulnerable citizens, some of whom are still without formal schooling’.

He has also held two public meetings in Birmingham where he said: ‘The mood was anger and frustration coupled with the usual concerns.’

He added: ‘When I originally wrote to the Department of Education, they said 30 pupils in 12 months was unusually high. But now they are going back on that.

‘Their attitude seems to be complete denial, which is disgraceful. The headmistress, Jo Walkley, has been on “sick leave” for months.

Tory councillor John Lines (pictured) has claimed the ‘unusually high’ exclusion rate was part of a ploy to improve behavior figures in a ‘rush to become an academy’

‘Most of the children who have been excluded are disabled, it really is sickening.

‘I am giving my support to parents and misrepresented children and I will continue to do that. No one will stop me doing that.

‘There is someone, somewhere accountable for this appalling behaviour.

‘There has been a large number of people that have said nothing and watched from the sidelines as parents and children have been subjected to this appalling behaviour.

‘The powers that be, those who should be responsible, have just turned a blind eye. These difficulties have taken place while Nonsuch was under the authority of the council.

‘It appears to me the dash for academy status may be a serious concern, although I support the academy process. The dash towards academy status was made with undue haste.

‘I have called for an investigation into the school. We need to probe what is going on for the sake of other children. The only failing I can see is the school’s, not the children’s.

‘Frankly, I find it hard to understand how a child of four and five can be so unruly, so uncontrollable, that they merit exclusion.’

In February, an independent review found that nine-year-old pupil Josh Long, who was permanently excluded in October last year, should have his expulsion rescinded.

But astonishingly the school has rejected this finding and barred Josh, who is believed to have Tourette’s, from coming back to school.

A report following the February meeting states: ‘The panel agrees that, on the evidence available to them, the governing committee was wrong to conclude the headteacher had exhausted all possible alternative means of supporting Joshua.

‘The panel members decided that the governing committee was wrong to draw their own inference from Joshua’s early school reports.

‘The panel decided it would be appropriate to recommend that the discipline committee of Nonsuch School reconsider the decision not to reinstate Joshua.’

However, following a meeting of Nonsuch governors and trust members last month, Josh’s mother Louise was informed the ban stands.

The letter states: ‘After full consideration, the governors decided to uphold the decision by the school to permanently exclude Josh for persistent disruptive behaviour.’

Louise, 28, said: ‘It is outrageous. I believe Josh has been victimised. He is a boy and boys will be boys.

‘If you don’t talk to a child with respect, you are not going to get it back. I don’t think it has been done fairly at all. It is organised chaos.’

She denies her son is overly disruptive, but admits he is a youngster with some issues. He is currently being assessed for possible Tourette Syndrome.

Another pupil, Mason Dunbar, 10, who suffers from cerebral palsy, was kicked out of Nonsuch Primary School on November 19 last year for ‘defiance’.

The exclusion was rescinded following an appeal in January and the youngster – who suffers from behavioural issues including Attention Deficit Hyperactive and Oppositional Defiance Disorder – is now back at school.

But his father, Tony, 41, said: ‘The school just cannot deal with disabled children, so they get rid of them.

‘I think they were hoping they could hide their record if they became an academy.

‘It’s like when a business goes bankrupt and gets a new name, they can erase their past. That’s what they’re trying to do now.

‘Mason’s now getting the care he needs, but they really had no idea. It took months fighting to allow him to have the right carers in.

‘They didn’t know what he was entitled to, or what forms they had to fill in, it’s shocking.’

A Birmingham City Council spokesperson said: ‘We take these claims very seriously and are working closely with Nonsuch Primary School, its academy trust and the Regional Schools Commissioner, to review the inclusion processes and procedures for all pupils.

‘The academy trust which runs Nonsuch Primary School has launched an independent inquiry into exclusions at the school.’ 

Stephen Crabb Has Put Maximus ‘Under Scrutiny’

April 3, 2016

STEPHEN CRABB, the new work and pensions secretary, is seeking to tear up government contracts with private “welfare to work” contractors as part of a radical overhaul of Iain Duncan Smith’s benefits revolution.

In the first sign that Crabb will make changes to the government’s flagship reforms, he held a crisis meeting about the troubled universal credit on Thursday and ordered officials to come clean with him and the public about the problems.

Whitehall sources say one of Crabb’s first moves will be to “get out of” problematic government contracts.

One firm under scrutiny is Maximus, which replaced Atos in providing health assessments for claimants of the employment and support allowance, the new benefit for the disabled.

The National Audit Office (NAO) reported in January that since Maximus took on the contract for fitness-for- work tests in March last year the cost to the taxpayer had doubled to £579m. It also said that one in 10 reports is rejected by the government as below standard, compared with one in 25 under Atos.

Maximus did not respond to a request for comment but at the time of the NAO report a spokesman said the company had brought in new staff “to meet the requirements of the contract going forward. We are confident about the future and remain fully committed to delivering a high quality service.”

A senior Whitehall source said: “Stephen [Crabb] is a sceptic of throwing ever-more millions [at private companies]. One contract in particular — Fit for Work — he will be looking to get out of that contract pretty quick. Fit for Work is an early candidate for some serious reworking.”

During Thursday’s meeting, which lasted for six hours, Crabb “lifted the bonnet” on universal credit.

Only 200,000 people have claimed the benefit despite forecasts that 1m would have enrolled by 2014.

Crabb ordered weekly updates on the programme, which merges six benefits into one, and told officials to stop blocking freedom of information requests.

From next month five jobcentres a month will begin operating the full universal credit system for whole families, not just servicing single claimants.

The source said: “We need much greater transparency. This is such a public-facing project, we have nothing to fear from public scrutiny.”

Crabb will lay out his approach to welfare in a speech on April 12, saying he wants “work coaches” who are delivering universal credit to be held in the same esteem as nurses are in the NHS.

Meet @TheLennoxP, The Welfare-To-Work Parasites Caught Fining Unemployed People For ‘Tutting’

April 3, 2016

johnny void's avatarthe void

The list of potential fines first The list of potential fines first revealed in the Ardossan Herald.

A story so astonishing many assumed it was an April Fool is breaking in Scotland after sleazy welfare-to-work parasites the Lennox Partnership were caught fining unemployed people for looking at their phones or having their hands in their pockets.

According to the local press, the Lennox Partnership are contracted to run training services for unemployed people by the SNP controlled North Ayrshire Council.  This training involved participants being fined for often trivial reasons such as ‘tutting’, swearing or answering their phones.  Whilst the lowest level of fine was just 10p, those on the course could be fined as much as £5 if their phone rang outside of designated break times.  After all it’s not like people looking for a job might have a good reason to take a phone call in the middle of day.

Even the…

View original post 318 more words

Simplyhealth supports information line for those affected by autism

April 2, 2016

A press release, published to mark World Autism Day.

 

A vital information service to help people living with, or caring for someone with autism, will benefit from a donation of £12,820 from the UK’s leading cash plan provider Simplyhealth.

Research Autism, a charity dedicated to research into interventions in autism, runs an Information Service which provides unbiased, trustworthy information to help people living with autism. The funds will support the next stage of developing practical and accessible information resources, to enable autistic people and their families to make informed, safe decisions around treatments, approaches and therapies. The charity works closely with the autism community and is passionate about its aim to address real issues and improve the quality of life for people on the autism spectrum.

Richard Mills, Research Director from Research Autism comments: “Following diagnosis of autism, parents face an enormous struggle to know how to best help their child. There is so much information out there but much of it is trying to sell or promote particular approaches, often without sufficient evidence to support claims made or regard for the highly individual nature of each child. False or misleading claims are common and some treatments can even be hazardous. We work hard to ensure our impartiality and integrity of our service.

“This generous donation from Simplyhealth will allow us to invest in strengthening the Information Service and growing our reach and accessibility, empowering the autism community and informing professionals.”

Mark Hamson, Chairman of Simplyhealth Charitable Committee adds: “It’s clear that people living with, or caring for someone with autism need practical solutions to help with the everyday problems they face, and not knowing where to go to receive information and guidance which they can trust can be a reality for many. Research Autism’s one point of call for these individuals will make a significant difference to their lives, and we’re very proud to support them on that journey.”

Autism is a condition which affects how a person communicates with, and relates to other people and also how they make sense of the world around them, and is estimated to affect one in every 100 people . Research Autism is the only UK charity exclusively dedicated to research into interventions in autism. Its website is accredited with the NHS Information Standard (currently the only autism charity in the UK to have achieved this), and receives over 40,000 visits each month.

The Information Service provides information on a wide array of interventions and techniques available to people on the autistic spectrum such as animal therapies, dietary supplements and social skills group. It evaluates the effectiveness of these interventions based on scientific research and evidence. The Information and Advice Service also hosts Online Q&A sessions with leading experts, giving people the opportunity to have questions answered on issues that really matter to them.

To find out more information, visit http://researchautism.net/

Student Nurse Describes Her Experience With DWP After Heart Attack

April 1, 2016

This is unbelievable. Please share it as widely as you can, readers. We think it needs to go viral.

 

MPs Condemn PIP And ESA Processes

April 1, 2016

With many thanks to Benefits And Work.

MPs on the public accounts committee (PAC) have issued a report which concludes that companies carrying out personal independence payment (PIP) and employment and support allowance (ESA) assessments are still failing to meet acceptable performance standards.

Quality
The committee found that too many PIP and ESA assessments do not meet the required standards, especially for claimants with fluctuating conditions or mental health conditions.

The quality of assessments is also very variable. Between 7% and 20% of assessments sampled by contractors do not meet the required standards. Yet the DWP return only 1% to the privatised companies as unusable, claiming that telephone calls resolve the issues with the rest.

Waiting times
The committee found that there are “unacceptable local and regional variations” in the performance of assessments. The DWP has admitted that, while waiting times for assessments have fallen, there are strong regional variations. The DWP collect figures on these and the PAC have said that they should start publishing quarterly results by the autumn.

There is also a huge difference between the average time it takes to return an assessment. For PIP, Atos and Capita take an average of four weeks, whilst Maximus take 23 weeks to return an ESA assessment.

Costs
Strong doubts were also raised about the value for money of an increase in the cost of assessments, with the PAC saying that “there has been no noticeable benefit for claimants or taxpayers”. Costs are expected to double, with a staggering £579 million going into the pockets of private contractors in 2016-17.

The cost of ESA assessments, in particular, have risen from £115 per assessment to £190 under the new contract with Maximus. Yet witnesses told the PAC that there has been no noticeable improvement under Maximus.

You can download a pdf copy of the PAC committee report ‘Contracted out health and disability assessments’ from this link.

News Headlines: Friday, April 1st 2016

April 1, 2016

Driverless Manual Wheelchair Invented Disability Now

Are you unable to self-propel your manual wheelchair? Have you ever wished that your manual wheelchair could propel itself? Well, now it can, because sensitive technology students at the University of Nottingham have invented the driverless manual wheelchair. These chairs will have tiny microchips attached to one of their wheels, and will move themselves as soon as anyone sits in them. Parents whose disabled children have siblings are advised not to leave these siblings alone with driverless manual wheelchairs- just in case they decide to take a ride at an inconvenient time!

Chocolate Fingers- With A Difference Able Magazine

We’ve all heard of Cadbury’s chocolate finger biscuits. But now the inventors of chocolate eyeballs, ears, noses and lips have invented chocolate pieces shaped like fingers. These sweet treats, when eaten once a day, are said to restore finger function to people who have lost the use of their hands through an acquired disability. Sadly, they are not thought to work for people who have lacked the use of their hands since birth.

Carrots Cure Cerebral Palsy-  Bobath News

Dear parents and patients, we have recently discovered a miraculous cure for Cerebral Palsy. Carrots. Eating a carrot a day for six months will permanently keep disability away for your child. We invite you to join us at the Centre from midday on Friday, April 1st when we will hold a closing down lunch made up of carrot soup, carrot pie and carrot cake. We will then provide each family with a year’s free supply of carrots before we all retire from physiotherapy. But never fear, we will still spend the rest of our lives treating Cerebral Palsy- by growing and selling our own carrots.

Wheelchair Shaped Carrots To Go On Sale Tesco Magazine

A mother recently cut a carrot into the shape of a wheelchair in an effort to get her disabled child to eat it. The child’s father was so impressed that he Tweeted us a photo of her creation, which we have asked to sell. From midnight on Friday, April 1st, you will be able to buy wheelchair shaped carrots at your local Tesco store. If these are a hit, we may ask her to create carrots shaped like other pieces of disability equipment by this time next year, following recent reports that eating carrots can cure some disabilities.

Respected Disability Blog, Same Difference, Goes Offline

Respected disability blog, Same Difference, today carries reports that it is to go offline from midnight on Saturday, April 2nd. Editor Samedifference1 reports that after hearing recent reports that carrots cure her disability, Cerebral Palsy, her parents refuse to allow her to eat anything else. In 2017, she plans to go to Treloar college to learn to grow her own carrots. First, however, she plans to spend the rest of 2016 supporting Donald Trump’s campaign to become the next President of the United States of America.

 

 

Jess Phillips MP’s Simple Act Of Kindness To Constituent Too Much For PIP Tribunal

March 31, 2016

Jess Phillips MP, the PIP tribunal may dislike you, but Same Difference sends you sincere thanks for writing this to Michael Gove:

https://pbs.twimg.com/media/CezsmpKXEAEqzTF.jpg

Jess Phillips MP, Same Difference asks you to please keep treating your constituents like the human beings they are. Sadly, in your profession, people are disliked for doing what you did in this case.  But please remember that what you did in this case is exactly what we all need our MPs to do for us, in every case, always.

DWP Admits Disabled People May Have To Wait Longer For Disability Benefits

March 31, 2016

In a written question on Monday, Cat Smith MP asked:

 

To ask the Secretary of State for Work and Pensions, if he will make an assessment of the role of personal independence payment assessment providers in the increase in processing time between the case referral to assessment provider to return from the assessment provider to the government office since July 2015.

To which Justin Tomlinson responded:

 Following a controlled start from July 2015, full Personal Independence Payment (PIP) roll-out commenced in October 2015, with an increase in the numbers of existing Disability Living Allowance claimants being asked to claim PIP.

In addition and in order to improve the customer journey, the Department has made some changes to the way in which it monitors Assessment Provider performance. These changes mean that Providers now have more time in which to complete assessments and return reports to the Department and also gives them greater flexibility to obtain further evidence to support claims: this therefore allows more time for scheduling appointments that better suit claimants and Assessment Providers, increases accuracy in assessments and reports and ensures opportunities for paper based reviews are maximised thereby reducing the demand for face-to-face appointments. Although these changes may see slightly longer average clearance times, they remain within expected levels.

This means that disabled people may have to wait longer for a decision on their claims, and as a result, for benefits.

Call for submissions – inquiry launched into employment support for disabled people

March 31, 2016

Kitty S Jones's avatarPolitics and Insights

disability-employment-gap

Disability Employment Gap 2015. Source: UK Parliament.

Inquiry background

The Work and Pensions Committee has launched an inquiry into the Government’s commitment to halve the “disability employment gap.” According to the most recent data, 46.7% of disabled people were in work at the end of 2015 compared to 80.3% of non-disabled people. In order to close this gap, the Committee says an extra 1.2 million disabled people would need to be supported into work.

The Committee’s welfare to workreport, published in October 2015, raised concerns about the lack of success of existing employment programmes in supporting disabled people into sustained employment.

The Government has since announced:

  • A new Work and Health Programme to replace the current generalist Work Programme and specialist disability Work Choice programmes
  • A real terms increase in spending on the Access to Work Programme, which provides practical support for disabled people, beyond the “reasonable adjustments”…

View original post 608 more words

Wendy Hoose Coming To Soho Theatre This April/May

March 31, 2016

A press release:

 

BIRDS OF PARADISE AND RANDOM ACCOMPLICE IN ASSOCIATION WITH SOHO THEATRE PRESENT

WENDY HOOSE

BY JOHNNY MCKNIGHT

Co-directed by Johnny McKnight and Robert Softley Gale

Tues 12 Apr – Sat 7 May 2016, 7.30pm, Thu & Sat matinees 3pm

Soho Theatre

Press night: Thu 14 April

Tickets: £10 – £20

Two twenty-somethings looking for love in all the wrong places.

The creative forces of leading Scottish theatre companies Birds of Paradise and Random Accomplice come together to bring their award-winning and brilliantly funny sex comedy, Wendy Hoose, to Soho Theatre.

“rude, ribald and hilariously off-colour.” ★★★★ The Guardian

A contemporary comedy starring James Young and Amy Conachan, Wendy Hoose explores the dilemmas of body image, disability, sex and love in the fickle and flirty world of online dating. The story of two young people looking for love in all the wrong places, Wendy Hoose follows Laura and Jake’s late night quest for sex; Friday night drunken sex with no strings attached. Narrated by a volley of sexting and deadpan commentary from a satirical audio-describer, Wendy Hoose is a romantic-comedy navigating the twists and turns of true love, or in this case just sex, in the modern age of dating.

“unstintingly well acted, totally on the mark and painfully funny” ★★★★ The Herald

Placing disabled artists and underrepresented actors on Soho Theatre’s largest stage, Wendy Hoose presents the realities of disability from a modern and honest perspective. Co-directed by Johnny McKnight of Random Accomplice and Birds of Paradise’s Artistic Director Robert Softley Gale, this frank production paves the way for Gale’s new co-leadership of the company at its first visit to Soho Theatre and sees the return of Random Accomplice for a second time since Promises Promises in 2010. Following performances on tour across Scotland and at the Edinburgh Festival Fringe last year, the production comes to Soho Theatre before touring across Spain, Brazil and China.

The production is presented as part of A Nation’s Theatre Festival and celebrates the breadth and variety of theatre being made across the UK.

All performances include audio description, BSL and animated surtitles in the comedic style of the production. Wendy Hoose contains strong language and scenes of a sexual nature.

Watch the trailer here: https://www.youtube.com/watch?v=Y_ZuaKJW-gs

Awards

Winner of the Edinburgh49 Certificate of Distinctive & Memorable Theatre 2014

Nominated for the Critics Award for Theatre in Scotland – Best Technical Presentation 2014

Runner-Up for the Edinburgh Fringe Award to Promote Disabled Access 2015

FOR FURTHER INFORMATION:

Laura Steele / lauras@sohotheatre.com / 020 7478 0128

Lornette Harley / lornette@sohotheatre.com / 020 7478 0142

A Warning For People on Medication for Depression

March 30, 2016

beastrabban's avatarBeastrabban\'s Weblog

This is a warning based on my personal experience. Like many people, I suffer from depression, for which I am, thankfully, on medication. However, the government, David Cameron, George Osborne, the head of the health service, Jeremy Hunt, and their corporate paymasters seem to resent the fact that so many people in Britain now are on medicine to treat this condition. So they’re doing their best to throw people off it. About a year or so I had to go to my doctor again for an examination after I had a repeat prescription turned down. I was told that because the government was concerned about the mental wellbeing of sufferers like myself, they were stopping automatic repeat conditions in order to make people see their doctors. It is, I was told, a condition that can get worse, and so it had been decided that sufferers like myself had to be…

View original post 385 more words

Zac Goldsmith Defended Voting For ESA WRAG Cut By Saying It Is Not Simply A Cut

March 30, 2016

This is slightly old, readers, but sometimes, old is gold.

Zac Goldsmith has defended his decision to vote for cuts to disability benefit, after being forced to step down as patron of a Richmond charity.

The Richmond Park MP was asked to resign from his role of patron to Richmond Advice and Information on Disability (Richmond AID) after voting for cuts which could mean £1,500 less a year for those claiming the benefits.

…

Mr Goldsmith said the philosophy behind the Employment and Support Allowance (ESA) was that people are best helped by being enabled to get back into work.

The Conservative mayoral candidate said: “It is not just simply a cut, there is a new government fund which will be up to £100m which is specifically to help people get back to work.

Readers, Same Difference has to wonder: If such a fund has been set up, how hard will it be to successfully apply for support from it? As hard as the current system of hardship payments, which JobCentre advisers are told in training not to mention?

Even more worryingly, Zac Goldsmith seems to be among the group of MPs who were told that people in the WRAG can work.

People with these conditions.

HSBC AND FIRST DIRECT ANNOUNCE LAUNCH OF BRITISH SIGN LANGUAGE SERVICE

March 30, 2016

A press release:

Nearly a third of deaf or hard of hearing adults surveyed say a lack of access puts them off using day-to-day service providers

30th March 2016: HSBC and first direct are launching a British Sign Language Video Relay Service (VRS) in the UK. The move will make it easier for the deaf community who use British Sign Language (BSL) to communicate with the banks through their telephone banking service.  This comes as new research shows a significant number of deaf and hard of hearing adults are put off from using service providers, like banks, building societies and utility companies, due to a lack of access (29%).

VRS is an online video interpreting service which from today can be accessed through the HSBC and first direct websites. It enables deaf BSL users to contact their bank via an on-screen interpreter who communicates using BSL with the customer and then relays the conversation to the customer service adviser in spoken English.

HSBC’s UK head of customer contact, Joe Gordon said: “Research has shown that many members of the deaf community are put off from using essential day-to-day service providers due to a lack of access and some believe they have even been financially disadvantaged as a result. Financial inclusion is extremely important to us and we believe everyone should have the tools they need to help them take control of their finances. This roll-out of the BSL Video Relay Service will make it much easier for deaf BSL users to contact us directly, manage their money and communicate with us.

 

“Digital innovations allow us to improve every aspect of the customer experience and this launch is no exception. It is another example of technology being introduced to make sure customers can access their finances more easily, safely and securely.”

 

Tracy Garrad, chief executive of first direct, said: “At first direct we always want to provide the best possible service for all our customers. We are investing heavily in digital innovation and while we already provide Text Phone and Text Relay services, introducing BSL Video Relay Service means we are going one step further and making it easier for BSL users to talk to us.”

The launch of VRS is supported by new consumer online research findings from YouGov, commissioned by HSBC, which reveal that the telephone is the least accessible mode of communication, of those listed, for deaf or hard of hearing consumers, with 44% agreeing it is a difficult channel for communication. Nearly one third (29%) are also put off from using service providers (e.g. banks and utilities companies) due to a lack of access. 

Paul Breckell, chief executive at Action on Hearing Loss said: “It is great to see that the banking industry is giving attention to inclusion and accessibility among its customers with hearing loss, which affects 11 million people in the UK. Accessibility influences customers’ purchasing decisions and if a customer feels they are not able to get the experience they want and need, they are likely to vote with their feet. The launch of this Video Relay Service is a step in the right direction for HSBC.”

Encouragingly, almost one quarter of those surveyed (23%) believe that progress is being made by companies to improve accessibility for the deaf and hard of hearing communities.

For more information about the service and a demonstration of how it works please visit HSBC.co.uk/accessibility  or firstdirect.com/contact-us.

There Are No Toilet Facilities In Jobcentres

March 29, 2016

Same Difference has been aware for some time that it is difficult for claimants to use the toilet at the JobCentre. We have never agreed with the policy.

But we didn’t realise, until reading respected blog Vox Political this afternoon, that there are actually  no public toilets in Job Centres.

Nor is there a private area for benefit claimants who have to inject medication.

So, readers, we ask you, what does someone with diabetes do when they won’t make it home from the JobCentre in time to inject their insulin?

Pay for a public toilet near the jobcentre, if they can find one? Inject in public, trying to ignore the stares of people who think they are injecting drugs of another kind in a public place?

Or delay their dose to avoid embarrassment, leading to potentially life threatening situations?

Vox Political continues:

A response to a Freedom of Information request, dated March 2 last year, states that “Public toilet facilities are not provided in Jobcentres. However, where there is a medical need, our Jobcentre managers have discretion to make judgments on allowing claimants to use toilet facilities in our Jobcentres. These decisions are subject to constraints in certain locations caused by the layout of the building and keeping people safe. If toilet facilities are not in the public area, use of them is only provided if they can be effectively managed with suitable control measures – for example, controlling access by escorting claimants to and from those areas.”

When people with Crohn’s are being refused toilet use, as you will see if you click the first link above, how can we be sure that staff are really using their discretion?

It’s toilet use, readers. Toilet use. It is the most basic human right on Earth. The most basic right on Earth for any living thing. Most people with any sense wouldn’t deny toilet use to their pets.

Vox Political suggests that by denying toilet use in JobCentres, the DWP is in breach of the Human Rights Act and its prohibition of torture and inhuman or degrading treatment.

Same Difference could not agree more. Yet apart from occasional coverage of individual cases by a few blogs and newspapers, this is being ignored.

Why?

We could say that it is because benefit claimants are somehow considered less than human.

Yet, readers, if pet owners were denying toilet use to their pets, and  they got found out, it wouldn’t be surprising  if every media organisation with the slightest reputation broke down front doors to free said pets and caused a national outrage.

 

Martin Tolley’s Power Wheelchair Fund

March 29, 2016
Our editor recently met Martin Tolley. We request you to give what you can and if you can’t donate, to please share this post with someone you think might be able to.
Hello I’m Martin Tolley,
I need your help to carry on living an Independent life.

I’ve had an active life until 1996 when I was diagnosed with A/S (Ankylosing Spondylitis).

I had worked in Archaeology for around 20 years until my condition became too much for me to carry on working full time.

I worked  full time up and till 1996 when I was diagnosed with A/S (Ankylosing Spondylitis).

 I was told my condition had started twenty years earlier.

My spine fused in forward bent position which compresses my ribcage so breathing can be hard. I have lateral twisting of the spine, deformed vertebrae and a long history of back problems. For short distances I use a walking stick and when I’m in town I like to use my stroller if I can. All other journeys I now completely rely on using my wheelchair with the assistance of a P/A (personal assisstant) friends, family or neighbours.

I’m a campaigner for disability rights (as and when I’m able) and have been for around four years. I am also a member of several disability campaign groups.

 

My Condition/disability: Ankylosing Spondylitis.

 Ankylosing  Spondylitis  is an Insidious Chronic Inflammatory condition attacking the joint tissues and ligaments in close proximity to the joints. This results in excess bony growths (syndesmophytes). Which cause increasing joint stiffness and eventually fusion (ankylosis) of the effected joints. This most commonly occurs in the Spine, Sacroiliac joints, Hips and Shoulders, but can affect many other joints.

 

The symptoms of this disease in my case are constant Cervical, Thoracic, Lumbar, buttock, leg pain and Fatigue.

 My lifestyle is severely limited by this condition due to the irritability of my neck, back, hips. In short my lifestyle is dictated by my condition. I also use a walking stick to aid me to walk as I can no longer stand upright due to fusion of my spine, which has caused a forward stoop so I’m off balance and prone to falls,  I’m also reliant on my manual wheelchair to get around when my condition flairs up and for traveling outside of my home town.

 

I’m now dependant on a lifetime prescription of anti-inflammatories, pain killers and TNF (Tumour  Necrosis Factor) blocking injections.

 When attempting to walk short distances with the aid of a stick I have to take frequent rests, as this activity is painful due to pain in lower back and hips.
Also because of my stoop, my ribcage is compressed which makes me short of breath when attempting walking with my stick or stroller.

 However, adverse effects of my disease such as Ulcerative Colitis, Respiratory disease and Fractures due to falls can result in mortality (Death).

I have been forced to rely on public transport and help from my P/A (personal assisstant) friends and relatives as my only means of travel. (I only travel within the Ipswich area unless it is with someone who knows how travel affects me). Unfortunately the journeys themselves prove to be an aggravating factor.

 When weather conditions become dangerous (snow/ice), I do not go out until it has cleared.

All money raised will go towards the purchase of a powered wheelchair which will give me more freedom to carry on living an independent life and campaigning for disabled peoples rights here in the UK.

Thankyou for taking the time to read this and thankyou for donating to make this possible.

Martin Tolley. (Disability Rights Campaigner)

People With Dwarfism Deserve Respect, Not Ridicule

March 29, 2016

A brilliant piece by the brilliant Kiruna Stamell in today’s Guardian.

Most people will never meet someone with dwarfism – dwarfing conditions are very rare – and so their frame of reference is likely to be just what they’ve seen on television and film, or some other arena. They will never understand the amount of public scrutiny and ridicule a person with dwarfism deals with on a daily basis. They can’t know what it is like to be filmed in public or photographed without permission, and how common it is to be shouted at from cars.

They can’t know how sad and lonely it feels to be having a great day and then to be made to feel like a freak for sale. To be minding your own business, feeling part of the world and a valued member of the community, only to feel cast out again. To discover, for example, that a nightclub has decided to whip up trade by offering customers “free midgets”.

If you were lucky enough to miss that story, a Manchester club has been marketing an £850 VIP package that includes a “Tweedledee” or “Tweedledum” character who will not just wait on your table but dance on demand.

Many average-height people don’t even realise that most people with dwarfism find the word “midget” offensive. It has never been a medical term, unlike “dwarf” or “dwarfism”, which refers to people under about 4ft 10in. The M-word was invented in the 1800s by the freak-shows of the time. It derives from the word “midge”, meaning a small fly. Not very nice connotations.

People with dwarfism – my preferred term – know far more than they should about “othering”. What do I mean by that? I mean when someone says or does something that makes you feel isolated. When people, either as individuals or as a group, identify you as “not one of us”. When society, either subtly or obviously, treats you differently and stigmatises you. Everyone has experienced “otherness” at some point. Maybe you have been a different social class to everyone else in the room; maybe you have a disability or have felt different because you looked different. It can be a little exclusion or a big one.

This is an opinion piece, so I suppose I should be giving my opinion – but this time I want to ask the questions. If I asked you, “Is someone with dwarfism disabled?” what would you think? Is someone disabled if door handles are too high to reach and doors are too heavy for them to open? Is someone disabled if walking makes them very tired, because they have to take so many little steps to get anywhere? Are you disabled if you can’t make a cup of tea safely in a standard kitchen? Or if the majority of housing available to rent is inaccessible to you? If you can’t reach the locks to open the doors, the taps in the bathroom, or get in and out of the bathtub? What about not being mobile enough to manage stairs? Or if you can’t drive a standard vehicle without modification?

Should people with dwarfism – or other disabled people – be objects of ridicule or titillation? Or should we be accepted as people who are worthy of dignity and respect, with access to society, work opportunities, transport and housing?

What I’ve just outlined is a very simplified version of the social model of disability. It may be the first time you have thought about a person with dwarfism as being disabled. But the model says – and I believe – that I am disabled not by dwarfism but by the barriers that society creates. Ideological barriers, such as the idea that I should be a novelty entertainment in a nightclub and that’s all I can hope to achieve; and physical barriers, such as the failure to adjust the built environment, from housing and transport, to schools and post offices.

I work as an actor, and have appeared in three productions for the National Theatre, as well as in the West End and on television and film. Like Peter Dinklage, Lisa Hammond and Meredith Eaton, to name but a few actors with dwarfism who I admire, I have avoided stereotyped roles for my whole career. My selectivity has been made possible because I was afforded an education and can confidently walk away from acting and into other work, if necessary. A reporter recently pointed out that I “always play a character with dwarfism” which is like saying Chiwetel Ejiofor only ever plays black characters. I always play a character with dwarfism because I have dwarfism and even if the character was written to be of average height, if you cast me, she suddenly shrinks to Kiruna size. But I won’t conform to preconceptions.

The dwarf tropes I choose to sidestep include Christmas elves, leprechauns, garden gnomes – basically, roles that reduce a character to a one-dimensional gag. This isn’t always so simple to define. I was once offered an elf role, which I would have considered, if they would also consider allowing me to double as an average-height character. They could have used the same CGI they use to shrink tall actors to play the dwarfs in films such as The Huntsman. I don’t think they ever really considered my suggestion. But my issues are about the landscape of representation, not just the politics of individual casting choices.

I understand why some people accept the sort of work I don’t want to take. Some average-height women find stripping or working in the porn industry empowering for example. In the same way, some people with dwarfism, I imagine, can find taking on a stereotypical role empowering. It enables them to own the objectification.
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This isn’t for me and I don’t think it helps us socially, but I would never suggest they can’t do it. Ultimately, it is their choice, but it doesn’t stop me campaigning for positive and more normalising roles for disabled actors. Because whether I am a customer in that nightclub or a member of an audience watching an actor in a demeaning role, I am also reduced to being a “midget” and become as objectified as the performer – and that wasn’t my choice.

If I ever do “sell out”, I hope it is because the character is an interesting, three-dimensional one, who explores the dynamics of the human condition. Also – and I do always include this as a clause – we all have our price. I have just never been offered mine yet.

I believe all the work we do, whatever our profession, should feed positively into the world, rather than cheapen our value as people. We need to foster kindness and humanity, not encourage dehumanisation. If a nightclub wants to pull in more punters, let’s see them offer free cocktails, not free “midgets”. If they do employ someone with dwarfism as a waiter, it should be because they are good at their job – not for a cheap gimmick.

Universal Credit : In work, part time claimants sanctioned for taking holidays and …… for working!

March 29, 2016

maggieZed's avatarTelling it as it is

Unlike Zac and Sarah, Helen is a real person.

A Lone Parent working hard and doing the right thing.

This is Helen’s Story!

Helens storyShe also says: I had a phone call last week saying that there is a new rule coming in and that even though I am working 30hours a week I have to start going to the job centre weekly again to “help” me find a second job to get me off credits altogether  if I don’t attend these meetings I will be sanctioned and penalised again! I have lost around £300 per month since I got swapped over to UC already and just feel like the government just don’t care about the stress they are putting on working families

Figures published in Nov 2105 show that 144000 claimants are now signed onto Universal Credit. 32.5 % are in work, that’s some 45827 people who are at risk…

View original post 1,219 more words

On Universal Credit? No Allowances For Holidays

March 29, 2016

According to this FOI.
Dear Mr Dutton, 

Thank you for your Freedom of Information request of 23 October 2015. You asked: 

 
I wish to ask what approach the DWP will take as and when a claimant on Universal Credit
requests to take any kind of holiday.

There are provisions in the existing Jobseeker’s Allowance Regulations in which a person may
be treated as actively seeking employment but there appears to be no such provision in the
Universal Credit Regulations.

How does DWP propose to deal with exactly the same issue under UC? What variations will
be allowed in conditionality, under what circumstances and for how long?

If someone is working but still subject to work conditionality, will the leave provision in their
contract of employment be taken as a basis for allowing time off?
 
Under JSA rules, a claimant can go away within the UK for up to two weeks but cannot usually 
leave the UK or their claim will be closed. The claimant still needs to comply with the rules of 
JSA and can be asked to look for work whilst they are away.  
 
Under Universal Credit a claimant can go abroad for a period of a month for any reason, a 
longer period of up to six months temporary absence abroad is also allowable for reasons of 
medical treatment. However, if a claimant chooses to go on holiday in Great Britain or abroad 
they must continue to carry out the work-related requirements as set out on their Claimant 
Commitment. 
 
No allowances are made within the conditionality regime for claimants going on holiday.  For 
example claimants within the All Work-Related Requirements Group with no restrictions on 
their availability will still be expected to be immediately available to attend a job interview or 
take up an offer of employment, even if this means cutting short a holiday. They are also 
required to attend their normal appointments and failure to do so will incur a sanction.   
 
Being on holiday would not be considered by a DWP Decision Maker as good reason for not 
carrying out any work search or availability requirements. 
 
Regulation 11 of the Universal Credit regulations 2013 sets out that a person on Universal 
Credit is able to leave the UK for a period not exceeding a month (or not expected to exceed a 


month). This can be extended in certain exceptional circumstances. However, this provision 
does not exempt a claimant from work related requirements as set out on the Claimant 
Commitment  Here is a link to the regulation: 
http://www.legislation.gov.uk/uksi/2013/376/regulation/11  
If you have any queries about this letter please contact me quoting the reference number 
above.   
Yours sincerely,  
 
 
DWP Strategy FoI Team 

Disabled Artistic Director talks about his work and the importance of inclusion

March 28, 2016

Marxist Blogger Max Edwards Dies Aged 16 From Terminal Cancer

March 27, 2016

A 16-year-old blogger who wrote candidly about having terminal cancer has died.

Max Edwards penned a blog called The Anonymous Revolutionary centred on modern Marxism, which later formed the basis of a book of the same name.

Last week, in a moving, bluntly honest article for the Guardian he wrote about how he had been diagnosed with terminal cancer five months ago, observing: “It doesn’t really change anything important.” On Saturday, a week after the article was published, he died.

On Sunday, his parents, Dan and Jenny, posted a tribute on their son’s blog. It read: “Writer, Philosopher, Thinker, Musician, Artist. The Anonymous Revolutionary – Max Edwards, our son – died on 26th March 2016, age 16. He loved writing this blog and sharing his ideas with you. In the later months of his life in particular it was a great source of comfort to him. Thank you all for your support. Thank you all for making a young revolutionary very happy. Dan & Jenny x”

Max, who lived in York, began writing his blog in January last year to discuss revolutionary socialism more than two decades after the fall of the Berlin Wall, at a time when when capitalism more or less dominates worldwide.

In the article Max wrote for the Guardian, he wrote about how the news of his illness squared with his beliefs and lack of religious faith. “I am told that many people are praying for me and I have prayed myself, though I never thought it would make a difference (I only did it on the off chance that something positive might happen – what’s to lose?),” he said. “I don’t believe in God; I didn’t before my diagnosis and I don’t now … They say death is the worst single thing that can happen to you, and given that I can’t trick myself into believing there is an afterlife, I imagine it leads only to an empty void, but I’ve found ways to accept such an idea.”
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In his last self-penned post on his blog, he wrote a “confession” that he had taken a flight in a private jet and discussed how it fitted with his left-leaning politics.

“Does that make me a hypocrite? Possibly … But I’m going to at least acknowledge this irony. If I live in a capitalist country, I lead a capitalist lifestyle, and as a beneficiary of this system, that means I lead a very privileged one. I’m not saying that there’s nothing I can do about it, I’m saying that I’m too lazy/ignorant/selfish/all of the above to break out of the mould that’s been cast around me. So I think that this acceptance is at least something; I’m not pretending I’m exploited; I’m not claiming to be a victim of capitalism; I know very well that I don’t represent the revolutionary cause, but I’ll continue to serve it in this way all the same.”

Underneath his parents’ blogpost others paid tribute. Sophie Weston wrote: “I’m lost for words and moved to tears at this sad news. You were an inspiring young man; I wish I’d had the chance to meet you and I shall miss reading your blog. My thoughts are with you and your family. x”

Ryanair Told Amputee To Crawl To Plane

March 26, 2016

A dad who had both legs amputated claims he was told to CRAWL to a plane by staff working for Ryanair.

Matthew Parkes, 38, says he was instructed by gate staff to drag himself down two ramps, a set of stairs, across tarmac and up the steps of the Manchester -bound plane.

When he refused, he says they carried him the full length of the plane on a stretcher chair – in front of hundreds of seated passengers.

Ryanair say Mr Parkes was provided with the correct assistance for a passenger with reduced mobility and said ‘as far as they can tell there is no truth to the claims’.

They said none of the three passengers complained – even though one was Mr Parkes’ four-year-old daughter

But Mr Parkes’ wife Pamela, who works in marketing, said she complained to ground staff and cabin crew on the day and now plans to submit an official formal complaint.

Matthew, who lost both legs and part of a hand last November after suffering deadly sepsis on holiday , told the M.E.N: “Ryanair made me feel humiliated and like I didn’t matter.

 

“I felt like a second-class citizen and was so embarrassed when this is so fresh and I’m still getting used to people staring at me. Total humiliation.”

Matthew, from Cheadle , is still struggling with pain which means he can’t wear prosthetics.

Despite this, he bravely agreed to go on holiday to Malaga with wife Pamela, 40, and their daughter Sophia, four.

But after a smooth flight out with Monarch and four days away, he claims that on the return journey, a staff member advised he crawl despite having informed Ryanair in advance of his needs and arriving an hour early at the gate.

When he refused and asked to be boarded first on a stretcher seat – as Monarch had done – he says they made him wait for all the other passengers.

He said: “Then they dragged me backwards from the front to the back of the plane, knocking into people. Everyone was staring at me.”

Pamela had also asked that Matthew be given a sandwich early in the flight to aid his medication. But she claims attendants started at the front and served him last.

On arrival at Manchester, Matthew says he waited 30 minutes to be taken off the plane – where a 10-year-old boy in a wheelchair was waiting outside in the rain in a queue of passengers ready to board.

Pamela, 40, who works in marketing, said: “We had such a fantastic holiday. Matthew was terrified, understandably, but enjoyed it.

“On the way out, Monarch were amazing. They boarded him first on a narrow stretcher, there was an air bridge, and they gave him a hot sandwich.

“Then Ryanair treated him like an animal on the way back – he wasn’t recognised as a person, and I had to see my husband be humiliated.

“I’m absolutely disgusted. They need to change their policy for disabled people.”

Flick Harris of Manchester Disabled People’s Access Group said: “Ryanair has a history of discriminating against disabled people.

“It’s really shocking that this should take place after so many years of the equality act and other anti-discrimination law.

“It shows a lack of commitment to anti-discrimination by Ryanair – and also a lack of basic humanity because everyone has a right to dignity.”

She said there was plenty of guidance to help them change their policies and train staff – and that the government needs to enforce anti-discrimination legislation.

A Ryanair spokesman said: “This passenger ordered, and was provided with, PRM (passenger with reduced mobility) assistance at Malaga Airport. This service is provided to all airlines by the airport operator AENA.

“We have received no reports from either the cabin crew or the PRM provider of any issues in assisting this passenger to his seat. As far as we can tell there is no truth to these claims and no complaints were made by this passenger or his two travelling companions to either our cabin crew or the PRM assistance provider.”

Speaking of the airline’s denial Mrs Parkes added: “I’m not surprised they’ve denied it because it’s Ryanair.

“I didn’t expect them to admit it – they expect my four-year-old daughter to put a complaint in!”

We don’t want anything from them, we wouldn’t travel with Ryanair again even if they paid us.

“What we do want is for them to change their disability policies.”

Sminoff Advert 2016- We’re Open- Chris Fonseca #deafdancers

March 26, 2016

Same Difference loves the latest Smirnoff advert:

Ekklesia’s Open Letter To Stephen Crabb MP

March 24, 2016

Ekklesia have written a brilliant open letter to Stephen Crabb MP, at the approach of Easter, about what they would like to see him do for welfare reforms and disabled people.

Same Difference links to its PDF, in an effort to send it viral, because we believe it should be seen by as many people as possible.

We sincerely thank Ekklesia for their support, through this letter, of disabled people and our fight against the cuts.

Mencap Refusing To Consider Removing Stephen Crabb MP As Patron

March 24, 2016

Following on from our coverage of this petition, Same Difference has been sent the following by reader Chris Lawton:

 

 

 

Same Difference fully agrees with Chris Lawton’s comment sent to Mencap. We are unpleasantly surprised by Mencap’s decision and ask you, readers, to contact Mencap through Facebook to share your thoughts with them if you agree with us.

Snoring children or those with Down’s syndrome sought for sleep and learning study

March 24, 2016

A press release:

A researcher at Coventry University wants to recruit young children who snore or who have Down’s syndrome for a new study exploring the effect that disruptive sleep has on early years learning.

Dr Anna Joyce from the University’s Centre for Research in Psychology, Behaviour and Achievement is seeking children aged two to four years old who are typically developing and snore, or who have Down’s syndrome, to take part in the study.

Parents and carers interested in participating with their children will be invited to attend a session lasting around an hour and a half at Coventry University or the UCL Institute of Education in London (whichever is most convenient for them) where their young ones will play games that will test their motor, visual and language skills.

Parents will also be shown how to use specialist equipment to monitor their child’s breathing during sleep, which they will then take home with them. After recording a night of sleep, they will return the equipment to Dr Joyce, who will assess whether breathing difficulties are apparent. Volunteers will be given a £40 shopping voucher in return for their taking part in the study.

As a psychological scientist specialising in sleep problems and how they affect people’s lives, Dr Joyce is keen to gain further insight into how disruptive sleeping patterns – particularly those related to breathing difficulties – contribute to delays in early cognitive abilities.

Breathing issues experienced during bedtime, like heavy snoring or gasping for air, may be a sign of obstructive sleep apnoea syndrome (OSAS), which is a disorder where the airway becomes blocked during sleep. For a number of reasons, such as low muscle tone and narrow airways, OSAS is particularly common in people with Down’s syndrome.

Although scientists know that OSAS is a particular culprit for causing cognitive difficulties in typically developing individuals, there is barely any research looking at people with Down’s syndrome, which is where Dr Joyce’s project comes in.

Dr Anna Joyce explained:

“Sleep is a vital process that supports a number of physical and psychological functions. We all need good sleep to perform at our best and those with sleep problems find it more difficult to learn, pay attention and remember things — so it’s not surprising that any child with poor sleep will do worse than their classmates at school.

 

“What’s more, those with neurodevelopmental disorders like Down’s syndrome often have sleep problems – actually around six in ten people with the condition experience some kind of difficulty sleeping – and this could be partly responsible for some of their other cognitive and behavioural difficulties.

 

“My research aims to help in a very practical way by improving education and quality of life for these children and their families. I’m determined get the message across to health services that all children should be screened and treated for sleep problems so that they have the best chance to be healthy and happy. “

 

Volunteers wishing to take part in Dr Joyce’s research should contact her on or email anna.joyce@coventry.ac.uk. Participants need to attend Coventry University or UCL Institute of Education for one session between now and July 2016 when testing will be taking place, and will need to be able to return the equipment that they will be using at home within one week.

LORDS TO REPORT ON THE IMPACT OF THE EQUALITY ACT 2010 ON DISABLED PEOPLE

March 24, 2016

A press release:

The House of Lords Committee on the Equality Act 2010 and Disability will publish its report on Thursday 24 March.

The Equality Act 2010 was intended to harmonise all discrimination law and to strengthen the law to support progress on equality.

Over the past nine months the Committee has been examining the Equality Act 2010 and in particular its impact on disabled people, looking at areas such as:

·    Implementation
·    Enforcement
·    Reasonable adjustment
·    Transport
·    Communication
·    The Equality and Human Rights Commission
·    Discrimination and the judicial process

During the course of the inquiry the Committee received nearly 180 pieces of written evidence and heard from more than 50 witnesses, among them the Government Equalities Office, the Office for Disability Issues, Disability Rights UK, RNIB, Scope, MIND, British Deaf Association, the Bar Council, Law Society, Discrimination Law Association, Law Centres Network, People First Advocacy, Business Disability Forum, Association of Convenience Stores, Trade Unions Congress, Disabled Persons Transport Advisory Committee, campaign group Transport for All, NHS England, Care Quality Commission, Ofsted, the Independent Parental Special Educational Advice, Association of Train Operating Companies, Confederation of Passenger Transport, Housing Law Practitioners Association, Lewisham Shopmobility Scheme, National Association of Licensing and Enforcement Officers, the Parliamentary and Health Service Ombudsman, Carers UK, and officials from the Department for Transport, Department for Education, Department of Health, Department for Communities and Local Government, and Department for Work and Pensions.

The Committee took evidence from Government ministers Rt Hon Nicky Morgan MP, Secretary of State for Education and Minister for Women and Equalities, Department for Education; Justin Tomlinson MP, Parliamentary Under Secretary of State for Disabled People, Department for Work and Pensions; and Andrew Jones MP, Parliamentary Under Secretary of State, Department for Transport. 

The Committee also heard first-hand testimonies from disabled people as well as visiting a user-led support organisation for disabled people, Real.

 

 

 

 

Photos And Links From DPAC Trip To House Of Commons

March 23, 2016

Same Difference joined DPAC in the House of Commons today.

Pictures, videos and links are below:

Did The Tories Cut The ESA WRAG Because Of A Lie?

March 23, 2016

Respected blogger Mike Sivier asks readers of his respected blog, Vox Political:

Remember when the new Work and Pensions secretary, Stephen Crabb, wrote on his Facebook page, “A decision was taken by MPs to change the benefit awarded to a specific group of people who receive Employment Support Allowance. These people are in the Work Related Activity Group (WRAG) and they do have a disability or illness but are able to work”?

Same Difference remembers it well as we covered it two days ago.

Vox Political’s article goes on to say that after Stephen Crabb wrote the relevant post on Facebook, Sir Alan Haselhurst justified his decision to support the ESA  WRAG cut with this: “It’s motivated by the desire to get more people back into work who are capable of doing some form of work. We should be making a more active effort to make sure that there’s something they are able to do.”

Since then, adds Vox Political, two other Conservative MPs have revealed similar opinions about reasons for the ESA WRAG cuts.

Mike Sivier shares his opinion that it seems as if Conservative MPs were given a briefing in which they were told people in the WRAG were able to work. If this is true, he rightly adds, it is an outrage.

It would be contempt of Parliament, deliberately misleading MPs, not just on a point of information, but with an intention that they would support a cut of nearly one-third to the income of some of the UK’s most vulnerable citizens.

Vox Political continues:

People on ESA are, by definition, not capable of work.

They aren’t on the benefit because their illness or disability is making it hard for them to find a job; they’re on it because they are too unwell to work. Many of them never return to work – because the mortality rate is three times the national average.

The rules are perfectly clear. Being in the WRAG means the claimant is expected to be well enough to work within a year of their claim starting – but it doesn’t mean they can work now.

If that was possible, they would be on Jobseeker’s Allowance, not ESA.

These facts are well known to everybody who works at the DWP – including the Tory Secretary of State who runs it (Iain Duncan Smith, at the time).

So, asks Vox Political, where did all these MPs get their information that people in the WRAG can work?

Were they briefed to this effect, by DWP ministers committing contempt of Parliament?

Or, worse still, did they simply not care and assumed it, because the group’s title includes the word ‘work’? This can only mean they never bothered to look into the facts of the matter and simply saw this as a chance to inflict grave suffering on the sick and disabled.

Those are the choices.

Vox Political asks Tory MPs a question:

Did you cut ESA by a third because you were misinformed, or did you do it because you hate the sick and disabled?

And, if you were misinformed, will the culprits be prosecuted for contempt of Parliament and another vote taken – with the correct information made available to MPs?

Same Difference, like Vox Political, would be very interested to know the answer.

BREAKING: Government Responds To E-Petition To Reserse ESA WRAG Cuts, Refuses To Debate Issue

March 23, 2016

Same Difference has just received the following email:

 

The Government has responded to the petition you signed – “Reverse the ESA disability benefit cut”.

Government responded:

We are committed to providing the right support to those with health conditions and disabilities. This change only affects new claims from April 2017 and no current claimants will be cash losers.

In the Summer Budget 2015, we announced that, from April 2017, new Employment Support Allowance (ESA) claimants who are placed in the work-related activity group (WRAG) will receive the same rate of benefit as those claiming Jobseeker’s Allowance (JSA).

This change only affects new claims made after that date and there will be no cash losers among those who are already in receipt of ESA. This reform affects those with limited capability for work. Those with the most severe work-limiting health conditions and disabilities, who are placed in the Support Group, will be completely unaffected by these changes.

The reason for implementing this reform is clear. The current system fails to provide the right support to help those with health conditions and disabilities towards and into work, and acts to trap people on welfare. We are committed to ensuring that people have the best support possible, and that is what these changes are about.

The recent record employment levels have benefitted many but have yet to reach those on ESA. It is important to remember that whilst 1 in 5 JSA claimants move off benefit every month, only 1 in 100 of ESA WRAG claimants does so. Those with health conditions and disabilities deserve better than this.

In addition to providing financial security for individuals, work often has a profound effect on people’s life chances and it is right that this Government does everything it can to provide better support to get people into work. More than three-fifths (61 per cent) of those in the ESA WRAG say they want to work – and there is a large body of evidence showing that work is generally good for physical and mental wellbeing.

This change enables us to recycle money into providing practical support that will make a significant difference to the life chances of those in the WRAG. This new funding will be worth £60 million in 2017/18 rising to £100 million in 2020/21 and will support those with limited capability for work to move towards and into suitable employment.

As set out in the Budget 2016, the nature of this support is being influenced by a Taskforce of disability charities, employers, think tanks, provider representatives and local authorities. Furthermore, we are providing a further £15 million for the Jobcentre Plus Flexible Support Fund in 2017-18 to help claimants who have limited capability for work with the extra costs that can be involved in moving closer to the labour market and into work.

These changes are part of a wider reform to help support more disabled people and those with health conditions work and to remain in work. Over the coming year we will build the progress we have made in partnership with disabled people, their representatives, and healthcare professionals, using their insights to understand how the welfare system can work better with the health and social care systems.

Our reforms are aimed at improving the quality of life of those in greatest need. Again, it is worth noting that we spend around £50 billion every year on benefits to support people with disabilities or health conditions, which represents over 6 per cent of all Government spending. We are proud of that commitment and we are determined to ensure that those most in need continue to receive the support they require.

Department of Work and Pensions

 

As well as an email informing us that in spite of having over 130,000 signatures, MPs have decided not to debate this very important issue:

 

The Petitions Committee decided not to debate the petition you signed – “Reverse the ESA disability benefit cut”

The House of Commons Petitions Committee has decided not to schedule a debate on this petition, because this subject has already been discussed and voted on in the House of Commons.

The changes to ESA were proposed in the Welfare Reform and Work Bill, which has been debated in both Houses of Parliament. In particular, on 2 March MPs debated and voted on House of Lords amendments to the Welfare Reform and Work Bill. This included an amendment on Employment Support Allowance, which was rejected. On 7 March the bill cleared its final parliamentary stage and it is now waiting to be signed into law.

You can read the debates at every stage of the Bill here:

http://services.parliament.uk/bills/2015-16/welfarereformandwork.html

You can read the debate on 2 March here:

http://www.publications.parliament.uk/pa/cm201516/cmhansrd/cm160302/debtext/160302-0003.htm#16030293000001

The Petitions Committee is not the only way of getting a House of Commons debate on the subject of a petition. MPs could still try to get time for a further debate on this subject, if they wish to do so. There are many ways in which MPs can seek time for debates: individual MPs can apply for debates at the end of the day in the main Chamber, or for debates in Westminster Hall (the second debating Chamber of the House of
Commons).

Groups of backbenchers can ask the Backbench Business Committee for time for debate, either in the main Chamber of the House of Commons or in Westminster Hall. The Government and the Opposition parties also have the power to schedule debates.

If you want a debate on this subject, you could write to your local MP to let him or her know. You can use this page to find out how to contact your MP: http://www.parliament.uk/mps-lords-and-offices/mps/

Same Difference urges readers to contact their MP using the link above, to request that they organise a debate on this issue in any way possible, as soon as possible.

 

Parents Go Wild as Disney Tinkerbelle Doll With Hot Pink Cochlear Implant Goes Viral

March 23, 2016

A press release:

Images of a kitchen table production line of Disney Tinkerbelle Fairy dolls wearing hot pink cochlear implants have gone viral on Facebook after being shared thousands of times since being posted yesterday. Hundreds of parents of deaf children are asking where they can buy the toy.

The dolls have been created by #ToyLikeMe as rewards for people who backed the group’s recent crowd fund to build a website celebrating disability representation in toys.

http://www.crowdfunder.co.uk/toylikeme-celebrating-disability-in-toys

#ToyLikeMe is the brain child of British journalist Rebecca Atkinson who in partnership with former Ragdoll Play Consultant, Karen Newell established the movement in April 2015 to call on the global toy industry to end the cultural marginalisation of 150 million disabled children who currently never see themselves positively reflected in the toy box.

The campaign has already received a growing following amassing over 33k followers in less than year and attracting the support of celebrities including comedy genius Stephen Merchant and Gruffello author, Julia Donaldson.

“The Tinkerbelle doll s have particularly resonated with parents,” explains Guardian journalist Rebecca Atkinson,

“ When you marry a mainstream figure such as Tinkerbelle with the minority experience of wearing a cochlear implant, you create a very powerful image that speak volumes to children about inclusion. The fact that something as simple as creating a model cochlear implant for a Disney figure shows the depth of the need for this kids to be included in the mainstream . These consumers are hungry because the toy market has never fed them before. ”

Whist this batch of Tinkerbelle dolls is not for sale and will soon be fluttering off to crowd fund backers who helped #ToyLikeMe raise over 16k in February this year, #ToyLikeMe are planning to create further toy makeovers of Tinkerbelle which will go on auction to the public in the coming months.

 

Quadriplegics Fit For Work Says Stephen Crabb

March 22, 2016

Following on from this post yesterday, respected blogger Joe Halewood says at SPEye Joe:

The new Secretary of State for Work & Pensions Stephen Crabb says people with Quadriplegia, Brain Haemorrhage, Brain Tumours, Motor Neurone Disease, Parkinsons Disease and scores of other conditions are ‘able to work!’

He said so on his own Facebook page (see here) as he believes those placed in the Employment and Support Allowance Work Related Activities Group, or ESA WRAG are all fit and able for work!

He goes on to say:

Stephen Crabb believes that a quadriplegic does not have any additional costs each week than the able bodied person seeking work even though (a) the benefit they receive is called Employment AND SUPPORT Allowance, and (b) if they are fit for work they are unable to claim ESA and would receive Job Seekers Allowance.

And adds that since his article yesterday morning, he has been sent a Freedom of Information Act response from the DWP that lists all of the conditions which require a doctor or physiotherapist to assess as part of the Work Capability Assessment for ESA.

The FOI Response:esafoip1

esafoip2

 

Halewood concludes:

While the question asked what incapacitating issues require a Doctor or Physiotherapist to assess (rather than say a paramedic or nurse) for ESA purposes, the same list of conditions mean that all of the above ARE conditions of people in the ESA WRAG and whom Stephen Crabb says are able to work!!

DWP Recruits Staff To Reduce ESA And PIP Appeal Success Rates

March 22, 2016

The DWP has been given £22 million to recruit presenting officers in an effort to reduce the number of claimants winning their personal independence payment (PIP) and employment and support allowance (ESA) appeals.

The Office for Budget Responsibility’s (OBR) “Economic and Fiscal Outlook” document lists the following amount:

“£22 million to DWP to recruit presenting officers across 2016-17 to 2017-18 to support the department in personal independent payments and employment and support allowance tribunals.”

Buzzfeed is reporting that the money will pay for 180 new presenting officers.

The number of PIP appeals is expected to skyrocket over the coming two years as the forced move from DLA to PIP takes place.

In addition, the proportion of successful PIP appeals has increased with every quarter since the benefit was introduced. PIP claimants won in 60% of cases from July to September 2015, up from 56% in the previous quarter.

58% of ESA cases are also won by the claimant.

The DWP is also concerned by the way that tribunal judges have been interpreting the very badly drafted PIP legislation in favour of claimants. In particular, the widening of what counts as aids and appliances for PIP activities by judges is what led to the disastrous attempt to change the point scores for PIP.

In theory, presenting officers should act a s a ‘friend of the court’, helping judges to reach a fair decision. In reality, they will be sent by the DWP to try to discredit claimants and argue as forcibly as possible for the DWP’s interpretation of the law to be accepted.

Attending an appeal tribunal is likely to be an even more gruelling process for claimants over the next few years.

“Fantastic year” Getting To Know Gay Hate Cult Says New DWP Boss Stephen Crabb

March 22, 2016

Same Difference wishes to add that we know of many disabled people who are also LGBT. Many of these disabled people claim many of the benefits that Crabb and his DWP are responsible for.

However we are very well aware that being LGBT is NOT a sickness or disability. We strongly disagree with the views of CARE.

johnny void's avatarthe void

crabb-care

New Work and Pensions Secretary Stephen Crabb may have air-brushed his relationship with Christian gay hate cult CARE from his website but they didn’t return the favour.  Crabb’s glowing endorsement of the organisation is still proudly featured on their graduates page despite the 2012 scandal when MPs distanced themselves from the group after their involvement in a gay cure conference was revealed.

CARE, or to use their full name Christian Action Research and Education, helped to fund the Sex in the City conference in 2009 along with evangelical group Mainstream Anglican who still offer a run down of conference which included  discussions on “mentoring the sexually broken” and gay cure therapies.

care-conference

This was not the first gay hate event funded by CARE.  They also sponsored a conference in 2007 which asked the question “The Time for Truth, Is Gay Real?”.  Which is a bit rich coming from people who worship…

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Call for evidence – Future of Jobcentre Plus inquiry launched

March 22, 2016

Kitty S Jones's avatarPolitics and Insights

equality+act+image
The Work and Pensions Committee has launched an inquiry into the future of Jobcentre Plus (JCP), the public employment service arm of the Department for Work and Pensions (DWP).

Changes affecting Jobcentre Plus services

A number of important changes will affect the services offered by JCP over the next few years, including:

  • The full implementation of Universal Credit (UC), which, particularly once a fully-functioning digital service is developed, will be a largely online process and have implications for digital inclusion
  • More frequent interviews at the Jobcentre for unemployed claimants in the early stages of benefit claims
  • Delayed referral of long-term unemployed claimants to externally-contracted employment services (welfare-to-work) providers, meaning that JCP will support people who remain out of work for two years
  • The development of a support offer for UC claimants who are in work but on very low incomes
  • Plans for greater co-location of JCP offices with other local services…

View original post 383 more words

Terminally Ill Dad Fails PIP Assessment- For Hugging His Daughter

March 22, 2016

A dying dad has told how his disability benefit was axed – after he lovingly reached out to hug his four-year-old daughter.

Father-of-five Mark Roberts, 45, has just two years to live after surviving a massive heart attack.

But he says he scored zero on a test of his mobility and daily living after an assessor watched him embrace his little girl Saffron, who was suffering from chicken pox.

“It’s so shocking,” said Mr Roberts.

“I would rather risk my own health by leaning forward to hug my daughter than see her struggle. I don’t know what that’s got to do with anything.”

His furious wife Anne, 49, added: “I think there should be a warning to all the other people out there who are dying.

“Don’t cuddle your kids or your benefits will be stopped.”

Mr Roberts from Wrexham, north Wales, was assessed for his benefits earlier this month when a woman came to the house to ask a list of questions – including whether he could make a basic sandwich and how many ‘bus lengths’ he could walk.

He has now been told that as of April 12 he will no longer qualify for Personal Independence Payments (PIP) – which replace the Disability Living Allowance – worth £559 a month.

The devastating letter informing him his money had been cut claims he can wash and bathe himself without help.

But it also includes the line: “You were able to sit forward on the sofa on one occasion in order to cuddle your daughter.”

Mr Roberts, who has just 50 per cent heart function, also suffers from fatigue, shortness of breath, coughing and chest pains and says he is unable to work.

He uses his benefits for essentials but also to buy Christmas vouchers for the family, including Liam, 16, Jasmin, 14, Rhys, 11, and Rhiannon, seven.

“I want to give them good memories of me,” he said.

He told how doctors at Wrexham Maelor Hospital gave him about five years to live three years ago after suffering the biggest heart attack they had ever seen anyone survive.

Mrs Roberts said his condition would gradually worsen and the money would be needed for care costs, such as adaptions to their home.

But she said that the woman who carried out the assessment did not even know her husband was terminally ill and branded the decision not to grant him PIP “disgusting”.

“He can’t work because he’s only got 50 per cent of his heart going. He’s suffered heart attacks in the past,” she said “I’m just disgusted. What has he got to do to get benefits?

“We’re not scroungers. We’re not making this up.

“The whole thing has been very upsetting. The questions the woman asked had nothing to do with what’s wrong with him. They were just awful.

“She was heartless and she showed no compassion. It was appalling. When Mark hugged Saffron she was watching him like a hawk and typing away like mad.”

Read more: How did my MP vote on cuts to ESA disability benefit?

Mr Roberts added: “I’m not crippled. I never said I was incapable of hugging my child, but I do find things difficult.

“When you have got a heart that pumps at 50 per cent, it’s hard to explain how it makes you feel. Just walking upstairs to the toilet puts you out of breath.”

He said his condition worsened after the visit and his assessor was told but this had not been reflected in the final decision.

“It’s like they just don’t believe you,” he said. “They haven’t even seen my medical records.”

The former forklift truck driver and warehouse worker is now waiting to hear how the decision will affect his £280 fortnight income support benefits- and if he is entitled to any other form of benefit.

The couple are also forwarding a letter from the heart failure team at Wrexham Maelor Hospital hoping to challenge the ruling.

Mr Roberts added that he welcomed Iain Duncan-Smith ’s resignation as Work and Pensions’ Secretary over disability payments.

“I think it’s a great thing when someone is willing to stand up for what they believe in and I admire him for it,” he said.

A Department of Work and Pensions spokesman said: “Decisions on eligibility for Personal Independence Payment are made after consideration of all the evidence, including an assessment and information provided by the claimant and their GP.

“Claimants can appeal their decisions during which they can submit more evidence.”

Sense welcomes Government U-turn on disability cuts

March 21, 2016

A press release:

National deafblind charity, Sense, welcomes the news that the Government has listened to the concerns of parliamentarians and the public about the fairness of the Budget and the potential impact of Personal Independence Payment [PIP] cuts, by halting the progression of reforms to this essential benefit.

The charity is calling on the Government to refocus on increasing life chances for disabled people with a co-ordinated approach that addresses needs across social care, benefits, housing and employment.

Richard Kramer, Deputy CEO of Sense, said:

“’Disabled people will be relieved that Government has backed down, as the proposed cuts would have resulted in much greater hardship for disabled people.

In the last fortnight, the Government were forced to listen to disabled people, disability charities and the public who were bewildered that the Budget contained unfair proposals to cut disability benefits.

The debate has shone a spotlight on how important benefits are for disabled people to meet their additional costs of disability, be more independent, and contribute as part of their community.

But we now need a much a broader debate on how we can we improve disabled people’s lives given that people don’t just need support from benefits but a co-ordinated approach that recognises peoples’ needs across social care, benefits housing and employment. We look forward to starting that conversation with the Government. “

BREAKING: Stephen Crabb MP Statement On PIP Cuts

March 21, 2016

As I type, Stephen Crabb MP is making a statement in the House of Commons.

On the proposed PIP cuts, he said:

“Personal Independence Payments were introduced to be a more modern and dynamic benefit to help cover the extra costs faced by disabled people, something its predecessor benefit DLA didn’t do. PIP is designed to focus support on those with the greatest need.”

And he said this works-  22% PIP claimants getting highest level of support compared to 16% DLA claimants.

“Before Christmas the Government held a consultation on how part of the PIP assessment works in relation to aids and appliances. As the Prime Minister indicated on Friday, I can tell the House that we will not be going ahead with the changes to PIP that had been put forward.”

“Behind every statistic there is a human being.”

“We have no further plans to make welfare savings” beyond those approved by Parliament two weeks ago.

Same Difference Editor Shortlisted For Diversity Award

March 21, 2016

We are very honoured to publish the following press release:

The Excellence in Diversity Awards Announce 2016 Shortlist!

Diversity Champions and Inclusive Employers shortlisted for Pioneering Diversity Awards

Throughout the year, there are some individuals who work tirelessly to remove barriers and put diversity at the very heart of everything they do.

This year, on May 12th, The Excellence in Diversity Awards will once again celebrate those who go above and beyond the call of duty to improve the lives of others in their communities and workplaces around them.

Thomson Reuters are just one of the brands supporting a sky fall of inclusive talent – diversity champions, inclusive employers and pioneering campaigns from all aspects of diversity have been shortlisted for this year’s ceremony.
An overwhelming amount of nominations were received paying tribute to inspirational individuals and diverse companies nationwide, that have showcased their incredible achievements to the equality agenda.

This elite pick and mix of diversity ambassadors will gather in Leeds at The Queens Hotel – reuniting a spectacular array of equality leaders.

A panel of judges including Andy woodfield PwC, Miranda Wayland ITV, and Dianah Worman OBE gathered to finalise the widely anticipated shortlist. The full list of finalists are as follows:

Diverse Company Charity: Touchstone, Action for Children, St Mungo’s Broadway, Disability Equality North West, Family Mosaic

Diverse Company Education: The University of Manchester, The University of East London, The University of Aberdeen, Royal Holloway, University of London, Manchester Metropolitan University

Diverse Company Housing: Orbit Group, Merlin Housing, London & Quadrant Housing Trust, RCT Homes, Trust Housing Association

Diverse Company Private: British Airways, Simmons & Simmons, Allianz, Connect Group, Asda, Thomson Reuters

Diverse Company Public: Leeds & York Partnership NHS Foundation Trust, Royal Air Force, Transport for London, South Wales Police, Avon & Wiltshire Mental Health Partnership NHS Trust

Diversity Champion Charity: Wendy O’Carroll – Ups and Downs, Sarah Ismail – Same Difference, Maurice Ostro OBE – Collaboration House, Christine Locke – Diversity House, Mohammed Zafran – All 4 Youth & Community CIC

Diversity Champion Education: Benjamin Ackim – Sports City London Ltd , Neil Coad – Weston College, Shaun Dellenty – Inclusion for All, Anna Kennedy OBE – AnnaKennedyOnline, Rev. Chris Howson – The University of Sunderland

Diversity Champion Housing: Tim Seward – Circle Housing Group, Brenda Metcalfe – Anchor, Tim Sigsworth – The Albert Kennedy Trust, Graham Welch – London and Quadrant Housing Trust, Paul Doyle – London Housing Trust

Diversity Champion Private: Dean Ridgewell – Empiric, Joanna Abeyie – Shine Media, Claudine Adeyemi – Mishcon de Reya LLP, Victoria Silverman – Thomson Reuters, Fay Sharpe – Zibrant

Diversity Champion Public: Shirley Farthing – St Andrew’s Healthcare, Megan Key – National Probation Service, Ellie Ablett MBE – Royal Navy, Tara Hewitt – University Hospital South Manchester NHS Foundation Trust, Chief Superintendent Kerrin Smith – Durham Constabulary

Head of Diversity & Inclusion: Marcel Vige – Mind, Siobhan Corria – Action for Children, Janet Hill CBE – UK Civil Service, Jiten Patel – The Open University, Sarah Maskell MBE – Royal Air Force

Employee of the Year: Emma Jones – Big Lottery Fund, Modupe Adefala – Mitie, Katie Shaw – Asda, Gary Zetter – Mitie, Katie Whittam – Big Lottery Fund

Diverse Marketing Campaign of the Year: Transport for London – 100 Years of Women in Transport, Freedom ToDonate Campaign, Bolton CVS – Breastfeeding Friendly Bolton Campaign, EDF Energy – Pretty Curious Campaign,Scope – End The Awkward Campaign

Best Diversity Resource: PwC, Aspiring Solicitors, Talent Media, HMRC, Bernard Matthews

Outstanding Diversity Network: Mott MacDonald Advance Network, L&Q Spectrum Network, Dell’s MARC (Men Advocating Real Change) Network, Legal Aid Agency Diversity Champions Network, Warwickshire Police & West Mercia Police Diversity Delivery Group

Lifetime Achiever: Professor Uduak Archibong MBE, Karin Woodley, Ann Norris, Brenda King MBE, Kevin Bowsher

The exclusive awards ceremony will applaud the extraordinary contributions of those that have gone above and beyond their corporate social responsibility, tackling issues internally and externally to influence change in the field of equality and diversity.

Paul Sesay, Founder and CEO of the Excellence in Diversity Awards said “There is still so much to change and fight for, but the Excellence in Diversity Awards continue to be an exceptional way to celebrate the courageous actions of individuals, companies and organisations, who are already striving for inclusion. Let’s celebrate the tremendous feats of our incredible shortlisted nominees, Congratulations to all!”

The event is definitely one to mark down on your calendar and provides recognition for excellence regardless of age, disability, gender identity, sexual orientation, race, faith, religion and culture.

ITV News Presenter Charlene White will take to the stage to host the evening, stating “It’s an absolute pleasure to be presenting The Excellence in Diversity Awards this year. I’ve worked alongside many organisations over the years with the aim of improving the level of diverse faces and talent in our workplaces. So it’s great to be part of the awards. Congratulations to all of this year’s shortlisted nominees, I look forward to meeting and celebrating you on the night!”

CIPD, PwC and ITV are amongst those supporting the campaign to reward organisations that operate across all aspects of diversity.

There is no doubt that the impact made by this prominent array of diversity patrons is unprecedented. Winners will be announced at The Queens Hotel Leeds on May 12th 2016.

To view a full list of nominees please visit http://excellenceindiversity.co.uk/2016-shortlist/

If you have read to the end, you will know that our very own Editor has been shortlisted for the Diversity Champion: Charity Award.

What Stephen Crabb Wrote On Facebook After His Office Was Spray Painted Last Week

March 21, 2016

Respected blogger Joe Halewood of SPeye Joe shares this Facebook post from Stephen Crabb after the new Minister’s office was spray painted last week (before he became a Minister):

stephen crabb facebook

Halewood goes on to say:

Miscommunication Stephen Crabb? Is that self-criticism or irony?  Actually as one of your constituents replies you are way off the mark

No they are not able to work. If they were they would have been ineligible for ESA altogether and been told to claim JSA. The people in the WRAG have been assessed as currently unable to work but they may be able to work at some point in the future. The option to find a job to make up the lost income from the cut to WRAG payments is not currently available to them.

Those in the ESA WRAG are able to work … at some time in the future and the idea is that they are able to work within to years IF they get support.  Can you please explain how you envision this support which is undefined and glossed over is better tailored?  Does the £29.05 per week you are taking from them better enable them to take a taxi to constant assessments as they are incapable of using public transport or to take a taxi to a hospital appointment for chemotherapy for their medically diagnosed cancer?

Your gratuitous patronising bullshit and ideological faux indignation in inferring that receipt of ESA somehow prevents those recipients from working and labelling any recipient as benefit-dependent perhaps explains why ESA recipients in the WRAG are so angry.

If it is not bad enough that a faux assessment by paramedics  overrides the qualified medical opinion of a cancer specialist or autism or other highly qualified medical professional and deems then ‘fit for work’ you are determined to label them as scroungers and benefit-dependent – and your support (sic) runs to taking away a key aspect of enabling them to get genuinely fit for work and attending the many hospital appointments they need in order to actually save their lives.

What part of being dead makes the ESA recipient fit for work Minister?

Many tens of thousands on ESA and in the WRAG have degenerative conditions, they are genuinely incapacitated and genuinely need help and support and you only seek to score cheap and bloody offensive political points that they are scroungers and receipt of ESA somehow prevents them working!!

Minister, when you look at your new departments classifications of welfare benefits you will find that ESA is not deemed a disability benefit such as DLA or PIP or Attendance Allowance, you will find that it comes under the ‘Incapacity’ benefit tag as DWP figures clearly show.  You will also find it does not come under the ‘(un)employment” benefit classification either – Yet you discuss it only in terms of disability and employment when it is an INCAPACITY benefit.

 

 

Stephen Crabb’s Constituents Spray Painted His Office Last Week

March 21, 2016

This is what Stephen Crabb’s constituents spray painted on his office last week:

stephen crabbs office

Petition To Get Stephen Crabb MP To Resign As Mencap Patron

March 21, 2016

Same Difference signed this last night.

 

Stephen Crabb, MP for Preseli Pembrokeshire and Secretary of State for Work and Pensions, we the undersigned demand that you resign your post as Patron of Pembrokeshire Mencap with immediate effect. Your recent vote in the House of Commons for disabled people to lose £30 per week of Employment Support Allowance (ESA) shows that you have absolutely no compassion or understanding for the needs of our most vulnerable and disabled members of society. You should hang your head in shame. As citizens of Pembrokeshire and elsewhere we feel that it is highly inappropriate that you continue as a patron for Mencap after voting for such inhumane and damaging cuts to ESA. Cuts that will cause further suffering, poverty and desperation for disabled people and increase the already horrific effect that your Government’s cruel policies are having on our society.