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Professor David Nutt: People will die unless medical cannabis is legalised

June 20, 2018

A press release from Left Foot Forward.

 

The UK’s former chief drug policy adviser has restated his support for legalising cannabis – and backed those who break the law for medical use. 

Prof Nutt recently worked on the Liberal Democrats’ recent review of drug legislation, which led the party to call for a ‘regulated market’ in cannabis.

In an interview with Left Foot Forward, Prof Nutt discusses Britain’s drugs laws, after the Home Office seized cannabis oil from Billy Caldwell – a boy with epilepsy who uses it to control his seizures.

The ensuing uproar has led to Sajid Javid launching a review into medicinal cannabis.

‘Bad law’

LFF asked Professor David Nutt – who now helps run the organisation DrugScience – if he backed Charlotte Caldwell and other parents in her situation. “Of course I do,” he says. Billy ‘would be dead if [his mother] didn’t break the law’.

“She made the law look absolutely ridiculous. And that’s why she won.”

Yet the current law is based on almost ‘religious belief’ about cannabis – making for ‘very bad law’, Prof Nutt claims.

Instead, we are witnessing “a revolution in patients directing treatments – it’s the parents who are changing medical practice. The doctors will never do it because they are far too part of the establishment. Except people like me who’ve been sacked…”

He points to examples across the world of policy changing: “The German government last year approved 57 separate applications for cannabis medicine, in conditions that haven’t responded to other treatments…and insisted German health insurers must reimburse.

“If it’s good enough for Germany, it’s good enough for us. Let it be – let’s just use it,” he said.

But the problem isn’t just confined to medical cannabis use. Does he still back full legalisation? “Totally.”

“There’d be significantly less harm from alcohol – in US states, people have a choice [between the two], so alcohol deaths are going down…a lot of people would prefer to be stoned than drunk,” he says.

“The big harms at present are driven by skunk – a regulated market would reduce skunk.”

‘Big pharma’

Prof Nutt said there are powerful voices against the move towards legalisation. ”There’s big resistance” he says. When Chief Medical Officer Sally Davis starts her review, she will have to apply a ‘completely inappropriate model’ for collecting evidence: huge multi-centre trials that will be too expensive to fund.

Prof Nutt claims the pharma companies will never do it: “It’s a scam by the anti-cannabis people to delay decision making…There will never be those multi centre trials…There is no profit in it.”

It’s a chicken or egg problem – calls for huge studies but no funding for it. “It would be 10 years [before we get results] – another 100 kids will be dead.

“We have to guard against a purist view.” There are ‘huge amounts of evidence’ for legalisation, he says.

Why is there such resistance from the industry?

“The pharma industry sees [cannabis] as competition – it will reduce the use of opioids. The anti-cannabis campaign will dig in their heels as hard as possible and keep saying ‘there’s no evidence’.

On Javid’s review

LFF asked Prof Nutt if, despite concerns, he welcomed Javid’s announcement of a review into medical cannabis use.

“There was a review by the Royal College of Physicians, and in the 2000s by the House of Lords which was brilliant and still relevant. We don’t need another review.”

He’s concerned that “it’s just a way of postponing decision making for another few years. Just get on and do it.”

He points to a new study showing magic mushrooms have huge therapeutic potential, potentially ‘revolutionising’ the treatment of depression.

Prof Nutt and colleagues will soon start the first UK study into MDMA surrounding the treatment of alcohol abuse.

There is significant anecdotal evidence that MDMA can help treat those who drink to ‘drown out’ trauma. But MDMA is currently a ‘Schedule 1’ drug – meaning no medical use is currently permitted.

The difficulty in getting permission to research these issues raises a bizarre contradiction: doctors can prescribe heroin (diamorphine) – but not, for example, cannabis or mushrooms.

His comments come after the Police Federation unanimously stated that the UK’s current drugs laws are not working, while a coalition of world-leading clinicians and academics is urging the government to change their policies.

“The police must hate it – arresting people for smoking a spliff is not what they want to do.

“What we have now is equivalent of the gin epidemic: cheap, powerful gin. We’ve got to get back to the old days of ‘beer’ – much less dangerous/toxic. If people were using hash instead of skunk, we’d have a lot less psychosis.”

Labour’s position

This week, Shadow Home Secretary Diane Abbott announced that Labour would legalise medicinal cannabis use. But could they go further?

“I would dearly love if Labour were to say they’ll have proper review of drug policy.”

And what if Labour invited him back?

“Even if Alan Johnson invited me back, I’d come back” for a Labour policy review, he says.

“That was the saddest thing, as a socialist all my life to be sacked by Labour. But they weren’t Labour, they were new Tory really!”

Government Planning To Ask Job Applicants About Their Social Class

June 20, 2018

Facebook And Twitter Admit They Could Do More To Protect Disabled People

June 20, 2018

Facebook and Twitter have admitted they could do more to protect disabled people from online abuse, following criticism from the model and TV personality Katie Price, whose son Harvey has been victimised online.

The social media giants told MPs they could make the risks of abuse clearer to vulnerable people, and make the terms and conditions of using social media platforms easier for people with learning difficulties to understand.

Google, which runs the YouTube video platform, said it did not know whether it had consulted disabled people about making its terms and conditions clear to them. All three companies said they did not have any staff in the UK checking posts for abuse; their teams were based in Dublin.

The hearing in front of the Commons petitions committee came after Price launched a petition to make online bullying a criminal offence and to create a register of offenders.

“It’s got worse and worse,” she told the committee in February. “You name it [the form of abuse], Harvey’s got it.”

Price told the committee the complaints mechanism did not work properly because she did not receive a response when she flagged up abuse.

Twitter’s head of public policy and government, Nick Pickles, said on Tuesday: “This is something we need to look at more.”

However, he said: “One of the things we struggle with a lot is that it is possible to be offensive without breaking our rules. One of the biggest challenges with offence is it is subjective … where something has happened on national television and then that is shared on social media it is very difficult for us to act on something that is made very public given that content is in the public domain.”

Karim Palant, Facebook’s UK public policy manager, said disabled people were considered a “protected group” under its protocols, and that the company would have 20,000 people worldwide checking posts by the end of this year.

He said artificial intelligence software was able to pick up almost a third of the abuse, and Facebook took down 2.5m pieces of hate speech in the first quarter of this year.

The Labour MP Catherine McKinnell asked the companies what action they were taking on “mate crime”, saying “there are disabled people that have been befriended specifically with the intention of exploiting them”.

Palant said: “It’s a very challenging problem to solve using tools and technology. It looks like a genuine friendship. A lot of these are pre-existing relationships that may have started offline and are being carried on online.

“Realistically, we will make the reporting functions easier to access to people who are particularly vulnerable to some of these issues. Some of this is going to be about offline support and education … that we can provide.”

Medicinal Cannabis Use To Be Reviewed By UK Government

June 19, 2018

The use of medicinal cannabis is to be reviewed, which could lead to more prescriptions of drugs made from the plant, the home secretary has said.

The decision was prompted by recent high-profile cases of children with severe epilepsy being denied access to cannabis oil to control seizures.

But Sajid Javid stressed the drug would remain banned for recreational use.

Charlotte Caldwell, whose son Billy has severe epilepsy, welcomed the decision after campaigning for change.

Speaking to the House of Commons, Mr Javid said the position “we find ourselves in currently is not satisfactory”.

He said the cases of Alfie Dingley and Billy Caldwell had made him conclude it was time to review the use of cannabis for medicinal purposes.

The review would be held in two parts, Mr Javid told MPs. The first will make recommendations on which cannabis-based medicines might offer real medical and therapeutic benefits to patients.

In the second part, the Advisory Council on the Misuse of Drugs will consider whether changes should be made to the classification of these products after assessing “the balance of harms and public health needs”.

He said: “If the review identifies significant medical benefits, then we do intend to reschedule [change the rules].”

He also announced that Alfie, from Kenilworth in Warwickshire, was being issued with a licence to receive cannabis-based drugs. The six-year-old has a very rare form of epilepsy that causes up to 150 seizures per month,

His family had originally applied to the government in April, saying his condition improved after using cannabis oil in the Netherlands.

Meanwhile, Billy, 12, from County Tyrone, was granted a 20-day licence for the drug last week after doctors made clear it was a medical emergency.

He was admitted to hospital after his seizures “intensified” following his supply being confiscated at Heathrow Airport.

His mother Charlotte, speaking after Mr Javid’s statement, said: “Common sense and the power of mothers and fathers of sick children has bust the political process wide open and is on the verge of changing thousands of lives by bringing our medicinal cannabis laws in line with many other countries.”

But she added that while it was a “clearly largely positive” announcement, “we still want to hear the details”.

Ms Caldwell also revealed that she has been asked to be on the panel of experts set up on Monday by the government to assess individual applications for cannabis oil.

Currently, anyone wishing to use a drug containing a controlled cannabis-based substance must apply to the Home Office for a licence – a process that Labour MP Andy McDonald, whose son died as a result of epilepsy, has described as “tortuous” and “painful”. Each application is considered on its merits.

Shadow home secretary Diane Abbott welcomed Mr Javid’s statement, telling MPs that it was “long overdue”.

Lady Meacher, who chairs the all-party parliamentary group for drug policy reform – which two years ago called for cannabis-based drugs to be legalised – said the move was a “no brainer” which could benefit many people.

She said: “About one million people, probably, could benefit from medical cannabis – people with severe pain, obviously children with terrible epilepsy.

“There are 200,000 people in this country with uncontrolled epileptic seizures; MS sufferers, people with Parkinson’s, people with cancer.

“So there are just so many people who must be celebrating today, and I’m celebrating with them.”

She compared cannabis with morphine, and said it was “much, much safer, less addictive and has much, much less in the way of side effects”.

Analysis: ‘Javid’s own stamp’

By Chris Mason, political correspondent

Amid the noise of politics, this row is a reminder of the power of desperate human stories and the power of a new arrival at the Home Office who has repeatedly shown his willingness to do the job his own way.

Imagine, for a moment, the anguish of the families of Alfie Dingley and Billy Caldwell. The pain of a parent seeing their son suffer.

And then having to walk outside the hospital door and front a political campaign.

A matter of months ago, there was no prospect of a shift in the law.

On the Windrush saga, on immigration, and now on medicinal cannabis, Sajid Javid is a home secretary putting his own stamp on the role.

The UK’s drugs regulations currently divide drugs into five “schedules”, each specifying in what circumstances it is lawful to possess, supply, produce, export and import them.

Cannabis is currently a Schedule 1, meaning it is thought to have no therapeutic value and therefore cannot be lawfully possessed or prescribed, but can be used for the purposes of research with a Home Office licence.

Drugs in Schedules 2 and 3, such as methadone, can be prescribed and therefore legally possessed and supplied by pharmacists and doctors.

One cannabis-based drug called Sativex, containing CBD and the banned THC – has been licensed in the UK to treat MS and is a Schedule 4.

But Mr Javid added that the move to review medicinal cannabis use was “in no way a first step to the legalisation of cannabis for recreational use”. Patients prescribed Sativex, who resupply it to other people, face prosecution.

That followed calls from former Conservative leader Lord Hague, who said the government should consider legalising the recreational use of cannabis.

But NHS England chief executive Simon Stevens said it was important not to confuse the debate “without at the same time reminding ourselves that there are some genuine health risks” associated with smoking cannabis.

Does cannabis have medicinal benefits?

By Michelle Roberts, BBC News online health editor

Cannabis contains different active ingredients and experts say some of them might be therapeutic for certain patients.

THC or tetrahydrocannabinol is the part that makes people feel “high”, but CBD or cannabidiol is another component found in cannabis that scientists are interested in understanding more about as medical treatments.

CBD-based treatments have shown some promising results for reducing seizures in children with severe epilepsies.

Medical trials of cannabis-based medicines have largely focused on pharmacological preparations, but some parents of children with epilepsy have been buying oils containing CBD and THC.

There is currently little scientific evidence on the safety and effectiveness of these oils as a treatment for epilepsy, although they do contain the same active ingredients.

Some health food shops sell CBD oils as food supplements. These have low levels of active ingredient and are legal to buy in the UK.

It is vital that you talk to your doctor or health professional before making any changes to your epilepsy medication.

NHS70: SPLISH SPLASH

June 19, 2018

A press release:

NHS70: SPLISH SPLASH
National Theatre Wales & Oily Cart
Written & Directed by Tim Webb
Designed by Jens Cole
Music direction by Max Reinhardt
Music composed by Max Reinhardt and arranged by George Panda
Hydrotherapy pools in schools, hospices and hospitals across Wales
Throughout July
A multi-sensory, underwater, touring production created with theatre
company Oily Cart, performed exclusively for young people aged 3-19 in hydrotherapy pools in schools, hospices and hospitals.
This immersive, interactive floating show ignites and delights every sense. Hydrotherapy pools will be transformed into watery wonderlands by underwater lighting, clouds of bubbles drifting from below, curtains of spray, and live music played on floating instruments, with a sound that can be felt as much as heard.
There will be three, distinct versions of Splish Splash:
• one for those with profound and multiple learning disabilities;
• one for those on the autism spectrum; and
• one for the deafblind, with or without any cognitive impairment.
It will be director Tim Webb’s final work as Artistic Director of Oily Cart, after 30 years at the helm.
Since 1981 Oily Cart has been taking its unique blend of theatre to children and young people in schools and venues across the UK.
Challenging accepted definitions of theatre and audience, they create innovative, multi-sensory and highly interactive productions for the very young and for young people with profound and multiple learning disabilities. By transforming everyday environments into colourful, tactile ‘wonderlands’, Oily Cart invite audiences to join them in a world of the imagination. Using hydrotherapy pools and trampolines, aromatherapy, video projection, and puppetry together with a vast array of multi-sensory techniques, they create original and highly specialised theatre for young audiences.

‘Uneccessary’ PIP Reassessments To End

June 19, 2018

With many thanks to Benefits And Work.

The government has claimed it is going to put an end to “unnecessary” PIP reviews later this summer, Minister for Disabled People, Health and Work, Sarah Newton announced today.

Newton claimed:

“We’ve listened to feedback from organisations and the public, and this common-sense change will ensure that the right protections are in place while minimising any unnecessary stress or bureaucracy.”

The DWP says it will issue new guidance which will mean that people who are:

  • awarded the highest level of support under PIP; and
  • whose needs are expected to stay the same or increase

will receive an ongoing award of PIP with a “light touch” review every 10 years.

According to the DWP:

“The government will be working with stakeholders to design the light touch review process so that it adds value for both our claimants and the department – for example, by providing information on services available and ensuring that contact or bank details have not changed.”

It sounds like the change will affect claimants who have an award of the enhanced rates of both the mobility and daily living component and whose condition is either very unlikley to change or where their condition is a progressive one which is only likely to become more severe over time.  However, we won’t know for sure until the DWP publish their detailed guidance.  We’ll give more details as soon as they become available.

You can read the full statement here

If the DWP sticks to this, it will be a big piece of progress that Same Difference has been calling for for quite some time. We have never agreed with regular reassessments for severely disabled people, for any benefit. We will follow this closely and hope for a victory when full details are published.

Motability Calls Police When Disabled Woman Fails To Return Car After PIP Reassessment

June 18, 2018

ATOS Assessor Told Gay Man He Needed To Be Cured By God

June 18, 2018

Government Pilot Project To Video Record PIP Assessments

June 18, 2018

With many thanks to Benefits And Work.

In a statement made earlier this month the government announced that it was extending the contracts for Capita and Atos to carry out PIP assessments for a further two years, in spite of widespread anger at the standard of those assessments. As a concession to the level of disquiet the government also announced a pilot project to video record PIP assessments.

In her statement, Sarah Newton, Minister of State for Disabled People, said:

“A key part of our efforts to improve the assessment process will be making video recording of the PIP assessment a standard part of the process. We will be piloting videoing the assessment with a view to then rolling this out across Great Britain.”

However, until now recording of benefits assessments has always been audio only.

Video recordings may have some advantages over audio in terms of evidence. For example, it might make it clearer whether claimants were able to carry out any movements that the assessor asked them to.

However, some people may feel considerable disquiet at being video-taped whilst taking part in what can be a very intrusive process.

They may also have concerns about how secure those videos may be and how long they will be kept by the DWP.

Frida Kahlo- Making Her Self Up

June 18, 2018

If you’re anything like me, I bet I know what you do with those few fleeting moments of spare time you have (between watching episodes of Love Island or World Cup matches).

You reach deep into your bookcase and pull out your much-thumbed 1990 edition of The Concise Oxford Dictionary of Art & Artists. Because why wouldn’t you?

It’s a terrific read, packed with expertly abridged biographies of Old Masters and pithy explanations for arcane techniques like encaustic painting (a favourite of Jasper Johns).

No wonder we keep going back to it.

But, like all things, it is not faultless. There is one surprising and glaring omission. Open it up at page 239, look under K, and you will discover there is no entry for Frida Kahlo beyond the words: “see RIVERA, DIEGO”.

Rivera, who was Kahlo’s husband, is afforded a lengthy entry in which he is described as a …most celebrated figure” and “leading artist”, who made art “glorifying the history and people of the country [Mexico]…”.

It is not until you reach the bits-and-pieces information right at the end that we learn, “He had numerous love affairs and was three times married, his second wife being a painter, Frida Kahlo (1907-54).”

Not “the” painter, or “fellow artist”, but simply a glib dismissal as “painter“.

Given Kahlo’s current status as one of the most famous and revered artists of the 20th Century, it seems like the most extraordinary oversight. And so it is, but it is also instructive. We learn at least three things about the art establishment from the omission:

  • The tendency by (predominately male) art historians to erase female artists from the accepted canon.
  • Frida Kahlo has only relatively recently been anointed by establishment curators in Europe.
  • The art world’s limitless talent for post-hoc myth making.

The idea that any reputable art history directory would omit Frida Kahlo today is laughable.

Indeed, the current edition of The Concise Oxford Dictionary of Art & Artists boasts a reasonably lengthy entry under her name. But, once again, it is revealing.

The Rivera entry begins with his art credentials: “Mexican painter, the most celebrated figure in…fresco painting that is Mexico’s most distinctive contribution to modern art.”

Whereas Kahlo’s entry begins: “Mexican painter. In 1929, when she was still at school, she suffered appalling injuries in a traffic accident, leaving her a permanent semi-invalid, often in severe pain.”

It is her personal story, the bolstering of her myth that is deemed the most important thing to say about her, not the nature or style of the paintings she produced, which is surely the reason for the entry in the first place.

So, here we are, more than 60 years after her death aged 47, totally fixated by the cult of Kahlo: a packaged personality that all but obscures what we should really care about, which is her work.

The exhibition at the V&A is a typical case in point. To their credit, the curators are not trying to hide the fact that they are selling a show based on the artist’s iconic image rather than her paintings, by giving it the title: Frida Kahlo, Making Herself Up.

To be honest, my heart sank when I was told the premise of the show was to look at how she constructed her personality and why. Here we go again, yet more myth making. Couldn’t we examine how she made her work and why instead? Wouldn’t that be more interesting?

But as I walked around the show, the vast majority of which is made up of objects that were locked away in the bathroom of her house in Mexico for half a century (more myth making), it became increasingly apparent that in Kahlo’s case there is no separation between art and artist: they are one and the same.

It turns out the show isn’t a hackneyed hagiography at all, but a revelation.

From the early family photograph in which an androgynous-looking Frida is wearing a three-piece suit, to the image of her sitting on a Manhattan rooftop dressed in her spectacular Mexican clothes and smoking a cigarette, it becomes crystal clear that from her late teens onwards, Frida Kahlo was essentially a performance artist.

The image we have of her, the public image she developed (even when pictured in “private”), the Frida on show here, is as much an artwork by her as one of her paintings.

The traditional Mexican clothes she wore, the indigenous jewellery she collected, the photographs for which she posed, the monobrow, the moustache, her attitude: every detail was meticulously considered and curated by the artist to communicate to us her ideas, ideals, and feelings.

There is clearly also a performative aspect to her paintings; in so much as she is usually the main protagonist acting out the picture’s narrative. The sense of her using her body as a canvas is most explicit in the way she decorated the plaster corsets and prosthetic leg on display in a gallery full of her medicines and medical equipment.

And so the more this exhibition seeks to unmask the ‘real’ Frida the further she disappears behind her defiant façade.

By the time you emerge from the theatrical last room of dresses and shoes, you know for sure that you have absolutely no idea who the real Frida Kahlo was.

You only know what she wanted to show: what pain looks like, what Mexico looks like, what gender looks like; what love looks like.

It is her agenda, not ours.

We can mythologise her all we like, but to do so is to miss the point. As this exhibition makes abundantly clear, maybe not entirely intentionally, Frida Kahlo only ever revealed one thing to us: art – in all her guises.

 


Disabled Men On Universal Credit Discriminated Against, High Court Rules

June 15, 2018

Two severely disabled men experienced unlawful discrimination when their benefits were significantly reduced after moving on to the government’s controversial universal credit scheme, the high court has declared.

The ruling is a blow to the Department for Work and Pensions (DWP) and its rollout of the new payments system. Both individuals were left unable to meet many of their basic needs, the court had been told.

Delivering the judgment, Mr Justice Lewis said: “There appears to have been no consideration of the desirability or justification for requiring [the men] to assume the entirety of the difference between income-related benefits under the former system and universal credit when their housing circumstances change and it is an appropriate moment to transfer them to universal credit.

“That is all the more striking given the government’s own statements over a number of years that such persons may need assistance and that there was a need to define with precision the circumstances in which they would not receive such assistance.

“The implementing arrangements do at present give rise to unlawful discrimination [contrary to the European convention on human rights].”

The claimants, identified only as TP and AR, had previously been in receipt of the severe disability premium (SDP) and the enhanced disability premium (EDP), which were specifically aimed at meeting the additional care needs of severely disabled people living alone with no carer.

TP is a Cambridge graduate who worked in the financial sector in the City of London and abroad. In 2016 he was diagnosed with a terminal illness, non-Hodgkin lymphoma and Castleman disease.

When he became sick, he moved temporarily from London to his parents’ home in Dorset, but after a few months he returned to the London borough of Hammersmith and Fulham, a universal credit full-service area, on the advice of his clinicians in order to access specialist healthcare.

AR, who is 36, has severe mental health problems. In 2017 he moved from Middlesbrough to Hartlepool, a universal credit full-service area, because he could no longer afford the property he was living in, owing to the imposition of the bedroom tax.

Both men were required to make a claim for universal credit, as they had moved into local authority areas where the controversial benefit was being rolled out. They said they were advised by DWP staff that their benefit entitlement would not change. However, they experienced a monthly income drop of £178 under universal credit.

Tessa Gregory, a solicitor at the London law firm Leigh Day who represented the men, said: “Nothing about either of the claimants’ disability or care needs changed, they were simply unfortunate enough to need to move local authorities into a universal credit full-service area.

“The government needs to halt the rollout and completely overhaul the system to meet peoples’ needs, not condemn them to destitution. If this doesn’t happen, further legal challenges will inevitably follow.”

Last week Esther McVey, the work and pensions secretary, committed the government to ensuring that no severely disabled person in receipt of the SDP would be made to move on to universal credit until transitional protection was in place. She also promised compensation.

TP said: “To add to the stress of being seriously ill and undergoing very arduous treatments that have left me unable to work, I have had to take time off convalescing to fight in the courts for subsistence-level benefits. In being compelled to migrate to universal credit, where I lost the severe disability premium, I was deprived of a key mainstay of support for a disabled person living alone with no carer. The financial strain from the cutting of the SDP has made it so much harder for me to cope, as it has been an additional daily stress. It has been detrimental to my health.”

AR said: “I know it is a time of austerity, but I do not understand why the government are trying to penny-pinch with what is a relatively small and very vulnerable group – namely, severely disabled people without a carer. I thought we lived in a society where as a vulnerable group we would be protected, not unlawfully discriminated against.”

The men brought the case against the legality of the benefit cuts on three grounds. First, that the DWP breached the Equality Act 2010 in failing to fully consider the impact of removing premiums on severely disabled people. Second, that the 2013 benefit regulations discriminate against severely disabled people living alone with no carer. Third, that the implementation of universal credit and the absence of “top-up” payments for this vulnerable group in comparison to others constitute discrimination contrary to the European convention on human rights.

They lost the first two claims, but won on their third legal argument.

A DWP spokeswoman said: “We will be applying to appeal on the one point the court found against the department.

“This government is committed to ensuring a strong system of support is in place for vulnerable people who are unable to work.

“Last week, the secretary of state announced that we will be providing greater support for severely disabled people as they move on to universal credit. And we have gone even further, by providing an additional payment to those who have already moved on to the benefit.”

Grenfell One Year On: Mental Health Support

June 14, 2018

The thoughts and best wishes of all at Same Difference are with the survivors and bereaved families of the Grenfell Tower fire on this first anniversary.

In tribute, support and with all our thoughts, we publish this film from the Victoria Derbyshire show.

Mental health support for survivors is expected to take much longer than previously thought.

Ashley-John Baptiste meets one woman who says she is still in shock.

NHS To Hire Job Coaches

June 13, 2018

The NHS is set to roll out mental health employment specialists across the country, as a new analysis of services shows that 2,300 patients have been helped into work in the last year.

As part of patients’ care and support package, employment specialists in NHS Individual Placement and Support (IPS) services, offer advice about finding a job, help them to prepare for an interview and can speak with potential employers about how someone’s condition can be managed so that they can work effectively whilst staying in good health.

The trained specialists also improve the health of people with severe mental illness, reducing the need for urgent hospital admissions and GP appointments. Research shows that type of support can free up as much as £6,000 per patient, which can be invested in other frontline care.

Claire Murdoch, NHS England national mental health director, said: “Helping people with mental ill health to find and keep a job is good for individual wellbeing and good for the health of our economy. Tackling severe mental illness is not just about getting medication and treatment right, but ensuring people can recover to live independently with their condition, including the reward and satisfaction of getting and keeping a job.

“In our 70th year, mental health is one of the NHS’ top priorities, and ensuring services are integrated, so people get whole-person care, means our patients get better outcomes and taxpayers are rewarded as treatment is more efficient. One in seven of us will go through mental ill health whilst at work, so delivering a safety net, to help people back in to work when they fall ill, will minimise harm and make our country’s workforce more productive.”

Nicola Oliver, from Northamptonshire Healthcare NHS Foundation Trust, said: “Employment support linked to mental health means people can live the life they want to lead.

“If you help someone into a job they really like – which means they are inspired to get up in the morning and want to manage their symptoms – they’re likely to say to their clinician ‘This is what I want to do, help me to overcome these barriers.’ In this way, you’re motivating the person to manage their own condition.”

Mental health employment specialists in the IPS service are part of community mental health teams. They currently operate in parts of the country including Sussex, Bradford, Northampton and some London boroughs, which have seen 9,000 people in the past twelve months.

NHS England will be providing £10 million funding to expand access over the next two years, with further investment to follow. By 2021, NHS England anticipates that 20,000 people with severe mental illness will receive tailored care and employment advice via the NHS, suggesting that around 5,000 people with mental ill health avoid unemployment thanks to better health care.

Research by the Mental Health Foundation last year suggested that people’s mental ill health costs UK employers £35 billion. Investment in improving employment prospects via health services like IPS can increase productivity and reduce demand for employment and disability support payments like Jobseeker’s Allowance and Employment Support Allowance.

IPS is one of a number of integrated mental health services which are being introduced or expanded across England, as part of NHS England’s Five Year Forward View for Mental Health, a transformation and investment programme to improve care between 2016 and 2021.

In Cambridge, early results of integrating mental health treatments with other services has resulted in a 75 per cent reduction in people with long-term conditions like diabetes requiring emergency hospital admissions.

Reece Cattermole: UK’s Only Deaf Professional Boxer

June 12, 2018

Ding, ding, ding – the three rings of a bell which signal the start of a boxing match are synonymous with the sport.

But what if you cannot hear the sound – or instructions from the referee and your corner?

Reece Cattermole was diagnosed with a genetic, degenerative hearing condition at the age of three and is expected to be completely deaf by the age of 40.

Despite that, the 21-year-old from Ipswich is the UK’s first registered deaf boxer to be granted a professional licence since the 1970s, and won his four-round debut contest last month.

“Before boxing I had little understanding of hearing, how it works, what it is,” he told BBC Sport.

“I never quite knew how to deal with situations before they happened. Boxing also helped me learn how different people communicate.”

Anger, frustration and isolation

Middleweight Cattermole was introduced to the sport at the age of 11, when a taster group came into his school.

By that point he had started anger management to deal with the frustration his disability was causing.

“It started off back in high school when I was struggling to come to terms with my hearing,” he adds.

“It was a mental thing where I felt quite isolated, not being able to hear or understand people.”

Six years later he had his first bout in the amateur ranks, where his high work-rate made him stand out from the crowd.

“I can understand some people can be in the same position I was, feeling low,” he said. “Knowing I’ve overcome those obstacles, if I can inspire people to do the same I get that good feeling.

Boxing takes your mind off a lot of things. Whatever you personally feel – anger, confusion, excitement – you can take it out on a bag without feeling any guilt.”

A fight to reach the ring

Since last September, the Suffolk fighter has worked with trainer Rob Ottley, who accompanied Cattermole through his first training camp and for most of his extended 10-month wait for a professional licence from the British Boxing Board of Control.

Their records show David Cave, a boxer in the mid-1970s from Cambridgeshire, as the only other deaf pro from the UK.

“It was a scary thought, not knowing if I’d get the licence,” he said.

“What got me it was when they referred me to a top hearing surgeon. They requested his opinion as my hearing will eventually get worse through time, but he had a fair point – it’s no different to someone getting hit in the ear.

Ottley continued: “Some days he was worried all the training would all be for nothing.

“It was quite a progressive move for the board to grant a licence – it’s not a sport which you’d normally associate with a disability.

“You know some of the bad publicity boxing gets, this is a positive story. It shows despite disability you can still achieve what your dreams are.”

Cattermole’s anxiety about being able to box for a living was in stark contrast to his feelings about the day when he will lose his hearing altogether.

“That doesn’t get to me in any way at all,” he said. “I’ve got family, friends, everything around me I need – that’s actually the least of my worries.”

Cattermole wears a hearing aid, which he has to take off for sparring and fights, and lip-reads interview questions via video call.

“People make the mistake that just because he’s deaf, he’s stupid. He’s a very switched on young lad,” said Ottley.

The man himself is nonplussed.

“That’s just one of the natural things – my girlfriend calls me deaf and dumb,” he joked. “It’s what people think the first time they see you’re deaf. I just let them think that and take advantage.”

Several subtle adaptations are made by his trainer to make the relationship work.

“If I need to start or stop something, I have to tap him on the shoulder,” Ottley told BBC Sport.

“We have little signals and I have to make sure I’m facing him.

“If he’s in the ring I try getting him to glance over once in a while – I bang the canvas even though I’m not meant to – three times means ‘pick the pace up’, one time means ‘steady on’.

“It’s against the rules as a trainer but, in the circumstances, I’d take a telling off from the ref.”

‘He can climb the ranks quite quickly’

His points victory over experienced Italian Victor Edagha has raised expectations, but Cattermole has two clear objectives in the sport.

“Our main aim is to go for title fights at British level, but for me personally inspiring others is one of the main goals,” he said.

“I’ve been asked to do a talk about my story to youngsters and put on a training camp – that’s another good thing, being able to help.”

He and partner Bella are expecting their first child in August, something Cattermole says “will change me entirely, how I view things”.

However, that is unlikely to temper his endeavours in the ring, with Ottley planning at least one more fight for him this year – possibly as soon as July.

“I think he can do very well and I don’t want to jinx it but he can climb the ranks quite quickly,” he said.

More Than Half Of Diabetics Have Been Treated For Mental Health Problems, According To A New Study

June 12, 2018

A press release:

An independent study of people living with type 1 and 2 diabetes, by Censuswide, commissioned by Ieso Digital Health, the UK’s leading provider of online therapy highlights the scale of mental health problems affecting those living with this chronic condition.

  • Around 700 people get diagnosed with diabetes every day in the UK. That’s the equivalent of one person every two minutes[i].
  • Three quarters (75%) of young adults (16-34) believe that their mental health has been negatively affected by their diabetes.
  • Almost half (46%) say that more awareness of diabetes-specific mental health issues would help prevent high levels of stress, anxiety and depression and other mental health problems, associated with having diabetes.
  • 43% say mental health education and assessment should be integrated into on-going diabetes health care.

This study, compiled by Ieso Digital Health, the UK’s largest provider of online CBT, shows that people living with diabetes are more likely to experience mental health problems compared with the general population. About one in four adults in the UK will suffer from a mental health condition each year ii; however, the Ieso study found that over half of patients with diabetes (51%) have sought treatment for stress, anxiety, depression or other mental health problems. Three quarters (75%) of young adults (16-34) believe their mental health has been negatively affected by their diabetes.

According to Sarah Bateup, Chief Clinical Officer, Ieso Digital Health Mental health should be considered an integral part of on-going diabetes care.  We need to ensure a multifaceted approach including comprehensive assessment for mental health problems, educating patients to recognise stress and mental health problems and encouraging selfcare. Providing effective mental health interventions such as cognitive behavioural therapy (CBT) can help patients to address the emotional and behavioural aspects of living with a life-long condition such as diabetes.”

Mental health issues can make it more difficult for diabetes sufferers to alter their diet and lifestyle to comply with medical treatment programmes.

Mental health issues linked to diabetes include feelings of loss, stress, anger, panic attacks, mood disorders, depression, anxiety and eating disordersi[ii]. A depressed person is less likely to adhere to their diabetes medication or monitoring regimens which are necessary for effective management of diabetes, resulting in poor glycaemic control. Phobic symptoms or anxieties related to self-injection of insulin and self-monitoring of blood glucose are common, resulting in further emotional distress. Stress and depression are known to elevate blood glucose levels, even if medication is taken regularly iv.

Diagnosed with diabetes? Call to treat the whole patient, not just the physical symptoms.

Almost half (46%) of people believe that better awareness would help detect stress and mental health issues, while 43% think discussions of mental health within diabetes-specific appointments would help and that clearer advice from medical bodies would help.

All Together Now- Series 2

June 12, 2018

Same Difference has been asked to publicise the following:

I’m contacting from the second series of BBC One’s singing competition programme, All Together Now as we’re looking for outstanding vocalists to take part. Our show is hosted by former spice girl Geri Horner and TV presenter Rob Beckett, there’s also a £50, 000 prize up for grabs which the winner can use however they want – whether it’s to promote their music or simply book a holiday is up to them! Inclusivity is very important to us and we’d like to make sure that all talented singers across the UK have the chance to apply.

There are some clips online from our first series, which your artists can watch to get a feel of the show…

https://www.youtube.com/watch?v=pKdP_oxG1lY

https://www.youtube.com/watch?v=mKd60Fn9T-w

https://www.youtube.com/watch?v=0ZHEhjlqHiQ

Anyone interested can send over their cover songs  to sola.ogunsola@remarkable.tv along with their contact details.

 

Deaf Patients Being Left Behind By NHS

June 11, 2018

A very important feature from the brilliant Victoria Derbyshire show.

 

A lack of face-to-face interpreters is meaning deaf patients are missing key operations and being informed of serious medical issues – such as a miscarriage – via a tablet computer, we’ve learned.

Many of those affected say they want to be treated as equals by the NHS.

Anna Collinson reports.

Lost Voice Guy Gets Second Series Of Radio Sitcom Ability

June 11, 2018

A second series of Lost Voice Guy’s sitcom Ability is coming to Radio 4, following his Britain’s Got Talent win.

The comedian, real name Lee Ridley, said he’s “delighted” to return with his semi-autobiographical show.

Ability, co-written by Katherine Jakeaways, follows the life of 25-year-old Matt who has cerebral palsy and is moving into his best friend’s flat.

The first series was broadcast last month, ahead of Ridley’s victory on the ITV talent show.

In the next instalment, Matt’s new carer Bob – to be played by Bafta-nominated Allan Mustafa – will be joining the cast.

“I’m delighted to get the opportunity to write another series of Ability,” said Ridley. “I really enjoyed writing the first series, and it was a joy to have Katherine Jakeaways as a writing partner.

“The process of writing and recording the show was fun from start to finish. I’m glad we’ll be hearing more from Matt, Bob and Jess!”

Meanwhile, the 37-year-old from Newcastle has already had one of his comedy dreams realised.

After winning Britain’s Got Talent on Sunday, Ridley said his goal was to have a sold-out gig in his home town of Newcastle.

And now, his performance at the 300-capacity The Stand in the city has sold out in a matter of hours, having gone on sale the day after his talent show performance.

He’s announced two tour dates, the other being in Salford, and is also doing other stand-up shows. And he will perform his Inspiration Porn show at the Edinburgh Festival Fringe in August.

Ridley, who won the BBC New Comedy award in 2014, is thought to be the first stand-up comedian in the UK to use a communication aid during his act.

Jane Berthoud, producer of Ability, said: “It’s been brilliant seeing Lee’s well-deserved success over the last few weeks, though it’s not surprising how much he has touched people’s hearts.

“Everyone who heard the first series of Ability will know just how funny, clever, self-deprecating and, at times, poignant Lee’s comedy can be.”

In A Wheelchair? Want Benefits? Take The Stairs

June 11, 2018

Three weeks ago, Linda received a letter from the Department for Work and Pensions (DWP) calling her in for “reassessment” of her disability benefits. Linda is not her real name; she wants to speak out but says she fears any “comeback” from the DWP.

Talk to Linda for two minutes and it’s clear that forcing her to prove she’s not “fit for work” is brutal in itself. Sat in her wheelchair with a calliper holding two metal rods along her leg, the 59-year-old has spinal cysts that cause total numbness down her right side. Malformation of the brain – in short, part of her brain has come out of her skull and presses on her spine – leads to regular blackouts. Spinal damage explains the rigid collar brace around her neck, attached to an alarm pendant to call for help if she falls.

Nerve damage has left Linda largely deaf and we communicate via email. Even this is hard for her: the numbness down one side means she can only type with one hand and a splint stabilises the other.

But it’s one detail in the assessment letter that’s the real kicker: Linda’s test will take place “on the first floor”. The building in Birmingham has a lift, but it cannot be used in the event of fire. The letter states, underlined and in bold, that in order to attend their assessment, claimants have to be able to negotiate the “44 steps” down to safety. In other words, if they are unable to walk 44 steps they are not allowed to come to the assessment centre.

Linda can’t get her head around the logic. “Why does the DWP, knowing most people going for a medical will be disabled like me, think it’s right to have the office on the first floor [with] 44 steps?” she asks.

This is Britain’s benefit system in a nutshell: a wheelchair user is told to negotiate 44 steps to get her benefits. Linda’s letter informs her that if she thinks she’ll “have difficulty” using the stairs, she should “ring the helpdesk”, so they can “make alternative arrangements for you”. Calling a helpline is little use when you’re deaf; panicked, Linda had to ask a friend over to contact the DWP for her.

I ask Linda what alternative the DWP officials told her she could have. “None at all,” she says, “despite my friend, a MP and my doctor all saying I can’t get up or down any steps.”

The DWP told me that, contrary to the letter it had sent out, wheelchair accessible facilities are available on the ground floor of the Birmingham centre and that “customers are contacted prior to their interview to ensure the correct room is booked”. Yet Linda says she was told clearly by the DWP that only the first floor could be used for assessments.

Her benefit test is scheduled for the week after next and she dreads what’s coming. “I’ll once again be asked if I can walk down the 44 steps and because I really can’t they will put me down as a ‘no show’ and my money will get stopped.”

This is not a far-fetched fear. What’s happening to Linda comes in light of my report last month on Jaki – a mobility scooter user in Essex who’s gone almost a year without her disability benefits because her local test centre has no ramp. There’s growing evidence that the government is sending disabled people to multiple inaccessible benefit centres to test them for disability benefits. At minimum, this is causing distress and pain to people who are already struggling with their health. In the worst cases, this is leading to them being denied vital benefits simply because they can’t get in the building. The DWP tells me that: “While all assessment centres meet accessibility standards, where access to assessment rooms is via a lift there are health and safety implications in the event of a fire if claimants cannot use stairs.” It adds: “Providers make every effort to identify those claimants who may have problems in accessing these sites.” Such claimants are offered an appointment at another centre or a home visit.

“Home visit” is the default DWP response when challenged over the inaccessibility of benefit centres. But poke a bit more and it seems little more than smoke and mirrors: disabled people and welfare advice workers report it’s common for even seriously ill people to be turned down for a home visit, while doctors’ surgeries, increasingly swamped by benefit evidence requests, are charging anything from £25 to £100 for the privilege, in effect pricing many sick and disabled people out of the chance of an assessment in their own home.

Even if the centre were accessible, Linda couldn’t get out of the house to get there. She’s been housebound for three years; sickness and social care cuts have trapped her inside. It’s been “impossible” for her to get support from her cash-strapped local council – “To even have one day a week [to have] a carer to come out with me would be a dream come true,” she says – and the only way she can get washed and dressed is if a neighbour comes over to help her.

When Linda’s friend called the DWP for her, she was informed she “didn’t meet the criteria for a home visit”. The large cardboard box of heavy-duty meds that sits in her bungalow is her only way to get through a normal day: steroids, epilepsy tablets, antidepressants, an inhaler, and morphine tablets for the pain. If Linda doesn’t qualify for a home assessment, it’s hard to imagine who does.

She worked from the age of 15 – for the army in the 1970s and then as an NHS nurse – until she fell ill in her 40s, which she asks me repeatedly to mention in anything I write. Nowadays, some people believe the myths spread by certain MPs, she explains – “that every single disabled or poor person is a scrounger”.

Linda is grateful – “I know there are people out there probably a lot worse off than me,” she says – and talks of the small things that keep her going (her cat knows she’s upset and won’t leave her side), but it’s hard to play down the impact on her. She had to be seen by a mental health worker last week, “for a breakdown”, when the stress of the assessment got too much. In the last few days, Linda has received an official doctor’s note to try to “prove” her disability but says she’s been told by officials that this is “no guarantee” she’ll be granted one. “It’s catch 22,” she says. “I can’t walk to negotiate the 44 steps but don’t meet the DWP’s criteria [to have an assessment at home].”

This week, Linda emailed to tell me that – out of the blue – the DWP had cancelled her appointment with no explanation. She has no way of knowing if this means it’s being rescheduled or what will happen with her benefits. “So more waiting and worrying,” she says.

It’s tough to comprehend why exactly the government won’t commit to a common-sense solution: pledging to only hold benefit assessments in centres disabled people such as Linda can fully access.

“I think the DWP just want every disabled person to fail, no matter how bad their illnesses are,” she says. “I worked hard all my life but now I can’t … I’m not worth anything to the government any more.”

Lost Voice Guy: Is Geordie The Funniest Accent?

June 11, 2018

Comedian and Lost Voice Guy Lee Ridley doesn’t like the voice on his tablet computer that he uses to speak, as it makes him sound like a posh Robocop.

So he travels to Newcastle – home of Cheryl, Ant & Dec and Geordie Shore – to see if he should adopt the Geordie accent.

Coronation Street Actors Launch A Networking Event For Disabled Performers

June 8, 2018

Coronation Street actors Cherylee Houston and Melissa Johns have launched a new networking initiative for disabled artists and performers in the north-west of England.

Disabled Artist Network Community (DANC) aims to “encourage change” by opening up dialogue with TV companies, music producers, arts venues and film-makers.

DWP advisor, I take tablets and I can work so you can too. Doctors refusing to issue sicknotes after recieving a letter from the DWP. This weeks blog.

June 7, 2018

Charlotte Hughes's avatarThe poor side of life

Dear readers, today didn’t start too well. I had been unwell all night so ended up being awake for most of it listening to podcasts, but no fear I arrived at our weekly demo as usual. For anyone disputing my dedication to the cause I’d like to dispute their claims. As well as helping people, we raise awareness and I work very hard on this, its near enough a full time job.

Anyway enough about me, let’s talk about the important stuff, the people that are suffering at the hands of a cruel, uncaring government. For those thinking that the government actually does care, you are sadly mistaken. Years of experience tells me that they don’t have a caring bone in their bodies. It’s simply about persecuting the poor in as many ways as is possible.  Below are a few examples.

The first man that I spoke to is a…

View original post 1,451 more words

Seatplan Helps Find Accessible Theatre Seats

June 7, 2018

This is a guest post by Laura Kressly.

People from all sorts of backgrounds and demographics enjoy going to the theatre, and theatre tries hard to bring in audiences from all sorts of backgrounds and demographics. But sometimes all the good intentions in the world are thwarted by theatre buildings.

Most of London’s West End theatres date to the Victorian or Edwardian era, and some are even older – Theatre Royal Drury Lane was completed in 1812, which is 7 years before Queen Victoria was born. Attitudes towards disabilities were very different back then, and access was not something architects considered. Now many of these buildings are listed, with measures that would more easily facilitate access unable to be carried out due to planning regulations.

That said, the theatre industry is waking up to the need for improved access. Companies are increasing their access provisions, including access performances, outreach and staff trained in Disability Awareness. Buildings are adding portable ramps, additional entrances, induction loops and low-level service counters at their box offices and bars.

This isn’t always good enough, though. Theatres may have brought in access measures, but not all of them are very good about making this information available. A survey conducted by charity VocalEyes found last year that 72% of UK theatre websites they surveyed had access information, but this varied from a few sentences to detailed descriptions of their provisions. That means 28% of theatres had no information displayed at all. This just isn’t good enough.

Though some owners have several theatres in their property portfolios, others are independent. This means there’s a lack of an industry standard for what access content is published online. There are also few third party sites that provide information for the whole of London’s West End theatres.

Luckily, SeatPlan.com goes some way in filling that gap. This theatre website contains individual pages for each of the major West End theatres, complete with accessibility pages. On these pages you will find details about things like the number of stairs, wheelchair spaces and most importantly, contact information for each theatre’s access team.

These theatre staff will be able to provide up-to-date details about access performances and provisions that may not be advertised, answer any questions customers may have, assist them in booking suitable tickets and services. They will also be able to advise theatregoers of all the information they will need for their visit, including arrival times, entrances and who will be on hand to assist them.

Though it’s clear that the commercial theatre industry is trying to change in the face of financial and architectural restrictions, there’s still more to be done. Sites like SeatPlan go some way in making the process of going to the theatre as a disabled person easier, but theatres need to do more to up their game. Luckily, change is coming even if it’s slow to be implemented.

Petition: Allow Disabled People Freedom To Travel On Trains

June 7, 2018

Please join us in signing this:

 

Last week Govia Thameslink Railway instructed their staff not to help people with disabilities to access their trains if there is a possibility offering assistance will make the service late. Apparently this is part of company policy.

As a wheelchair user I am appalled by this decision. I use this train service, it’s one of the main things that enables me to lead a ‘normal life’. But with this decision Govia has made me feel like an inconvenience, rather than as a human being or a paying customer.

I’m worried I will end up missing train after train, or become unable to use the service all together, because it takes “too much time to help people like me.” It can take a little more time to deploy a ramp or to help someone onto a train. And in the past I’ve had experiences where the person meant to assist me is late. I’m concerned if staff decide these adjustments run the “possibility” of making the train late then they will not provide them. These tiny amounts of time shouldn’t mean people like me loose out of traveling on the train.

Govia is one of the biggest train operators in the country, there are hundreds if not thousands of disabled people that threaten to be affected by this.

If they are struggling to get their trains to run on time they need to find solutions that don’t punish disabled people. We have the same rights as any other passenger to travel on the train and we deserve to be treated with dignity.

We need to speak out and hold Govia to account now. If they are allowed to get away with it, other train companies might follow. This could have a disastrous effect on disabled people’s travel and independence.

This is a disgrace and a step backwards. This policy takes away choice and freedom for many disabled travellers.

We CANNOT let this policy continue! Please sign my petition calling on Govia Thameslink to scrap this policy.

DWP’s secret watch-list of who on Social Media it monitors – like @Dis_PPL_Protest

June 7, 2018

mrfrankzola's avatarFrank Zola

Today the DWP released it’s secret list of campaigners, journalists and individuals it keeps a close eye on.

Disabled People Against Cuts (@Dis_PPL_Protest) are amongst those the DWP likes to monitor.

Extract of list

Name – Handle 
Adam Boulton – adamboultonSKY
Alan Jones AlanJonesPA
Alex Cunningham MP ACunninghamMP
Alex Spence alexGspence
Alison Holt AlisonHolt1
Allegra Stratton BBCAllegra
Alok Sharma AlokSharma_RDG
Andrew Gregory andrewgregory
Andrew Neil afneil
Andrew Sparrow AndrewSparrow
Andrew Verity andyverity
Angela Rayner AngelaRayner
Arj Singh singharj
Asa Bennett asabenn
BBC Daily Politics daily_politics
BBC Question Time bbcquestiontime
BBC Radio 4 Today BBCr4today
Ben Riley-Smith benrileysmith
Carl Dinnen carldinnen
CCHQ Press Office CCHQPress
Charlie Cooper CharlieCooper8
Chris Mason ChrisMasonBBC
Chris Ship chrisshipitv
Christoper Hope christopherhope
Coffee House SpecCoffeeHouse
Craig Mackinlay MP cmackinlay
Craig Woodhouse craigawoodhouse
Dan Hyde DanTLHyde
Daniel Boffey DanielBoffey
Darren McCaffrey DMcCaffreySKY
David Budworth DavidBudworth1
David Wooding DavidWooding
Debbie Abrahams Debbie_abrahams
DPAC  Dis_PPL_Protest 
Ed Conway EdConwaySky
Emily Ashton elashton
Emily Dugan emilydugan
Emma Lewell-Buck MP EmmaLewellBuck
Emma Revie emmarevie


Esther McVey EstherMcVey1
Faisal Islam faisalislam
Francis Elliott elliotttimes
Frank Field MP frankfieldteam
FT Westminster ftwestminster
George Eaton georgeeaton
George Osborne George_Osborne
George Parker GeorgeWParker
Gerri Peev GerriPeev
Gingerbread Policy…

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Ten Thousand Posts!!!

June 6, 2018

Yes, readers, another milestone has been reached today by Same Difference.

Just before our 11th birthday in a couple of weeks, this tiny little article is our 10,000th published post.

It’s a tiny fraction of the massive World Wide Web. The World Wide Web will forget it tomorrow. But we will remember it forever, because to us, it means the world.

We often use our milestone posts to thank you, readers. This one is no exception.

THANK YOU ALL. If we had no readers, we wouldn’t have written ten posts- 10,000 would never have even crossed our minds.

We’ve covered so many topics in our 10,000 posts. Love, loss, romance, rants, progress (and the lack of it) the arts, politics, and so much more. Disability is everywhere. We hope you see that when you look through our growing archives.

When we wrote our first post, Tony Blair was Prime Minister. Our focus has been forced to change as Governments and Prime Ministers have come and gone, and made policies that have directly affected our lives as disabled people and carers. We didn’t start out to be a political site, but now our focus is firmly on politics, especially welfare reforms.

But, readers, that is only because we always track the kinds of posts you read the most. That is only because our statistics and your discussions in our comments tell us that those are the topics you want to read about, and the ones that you care about the most.

However, we still do what we started out to do 10,000 posts ago. We still celebrate the amazing achievements of disabled people. Just three days ago, the final of Britain’s Got Talent showed the mainstream world what we have been trying to show them from our very beginning.

Given a chance, and the right support, disabled people can do anything they find interesting. Sometimes, we might just win the final, but even if we don’t, we all deserve the chance to try to do anything we like.

So, we use this post of celebration to say- please don’t give up. Disabled people, try your best to do anything you like. Carers, families, friends- please support us in our dreams. Your support means more than you realise- and you never know what your support might enable the disabled person in your life to do.

We hope we’ll have much more to celebrate over our next 10,000 posts!!

 

 

Frank Field Puts ATOS And Capita On Notice To ‘Start Delivering, Or Else’

June 6, 2018

A press release:

The DWP today announced in a written statement that it was intending to extend Atos and Capita’s contracts to provide Personal Independence Payment (PIP) functional assessments for a further two years to “allow for a stable transition to any new provision”, over which period it would develop in-house IT capacity.

Rt Hon Frank Field MP, Chair of the Work and Pensions Committee, said:

“This is the most the Committee could have asked for at this stage and is further credit to the thousands of disabled people who sent evidence to us. The Government is making the important first steps to enable it to get out of a hole of its own making. Having the capacity to bring assessments back in house will put it in a far stronger position to turn the screws on its hitherto failing contractors, in the interests of claimants and all taxpayers. This should serve as notice for Atos and Capita to start delivering, or else.”

The Committee published its policy report on PIP and Employment and Support Allowance (ESA) assessments in February 2018, which found “a pervasive culture of mistrust” around assessment processes. The Committee also published a report on claimant experiences alongside it, setting out some of the stories of the 4,000 claimants who made written submission to the inquiry, an unprecedented public response to a departmental committee.

 

DWP agrees to video recording of assessments as standard

In its formal response to the report, published in April 2018, the Government agreed to the Committee’s key recommendation of recording PIP assessments as standard. Today, it has announced that it will pilot video recording with a view to making it a standard part of the assessment process across Great Britain. This was a further recommendation of the Committee.

With regards to contractors, the Committee [44.%20Successive%20evidence-based%20reviews%20conducted%20on%20behalf%20of%20the%20Department]concluded:

94. The PIP and ESA contracts are drawing to a close. In both cases, the decision to contract out assessments in the first instance was driven by a perceived need to introduce efficient, consistent and objective tests for benefit eligibility. It is hard to see how these objectives have been met. None of the providers has ever hit the quality performance targets required of them, and many claimants experience a great deal of anxiety over assessments. The Department will need to consider whether the market is capable of delivering assessments at the required level and of rebuilding claimant trust. If it cannot—as already floundering market interest may suggest—the Department may well conclude assessments are better delivered in house.

With regard to recording of assessments, the Committee [44.%20Successive%20evidence-based%20reviews%20conducted%20on%20behalf%20of%20the%20Department]concluded:

44. Successive evidence-based reviews conducted on behalf of the Department have identified a pervasive culture of mistrust around PIP and ESA processes. This culminates in fear of the face-to-face assessments. This has implications far beyond the minority of claimants who directly experience poor decision making. It can add to claimant anxiety even among those for whom the process works fairly. While that culture prevails, assessors risk being viewed as, at best lacking in competence and at worst, actively deceitful. Addressing this is a vital step in restoring confidence in PIP and ESA. The case for improving trust through implementing default audio recording of assessments has been strongly made. We recommend the Department implement this measure for both benefits without delay. In the longer term, the Department should look to provide video recording for all assessments.

Was Lost Voice Guy’s BGT Win A Watershed Moment For Disability?

June 5, 2018

On Sunday evening, Britain’s Got Talent drew to a close and this year’s winner was crowned. Nothing unusual there.

But Lost Voice Guy’s victory wasn’t just notable because he was the first comedian to win in the show’s history – but also because he has cerebral palsy.

Furthermore, the runner-up, another comedian named Robert White, has Asperger syndrome.

The pair helped the show attract its biggest audience since 2015 – an average of 8.7 million viewers tuned into the final, according to overnight figures.

Both acts made light of their own disability in their acts. So is this a watershed moment for disability on TV?

“No,” says broadcaster Mik Scarlet, who is now an inclusion and equality trainer. “I think it’s just another one of those moments that happens throughout the history of media.

“The media has always believed that the public can’t cope with disability, but that’s just never been my experience.

“I was discovered in a similar, not quite so dramatic, hail of praise and glory in 1989, and I went on to become one of the most famous disabled presenters.”

Mik, who uses a wheelchair, became a familiar face to viewers as the presenter of Channel 4 kids TV show Beat That, and went on to acting roles in The Bill and Brookside.

“Everywhere I went, all the people I met were fine with [my disability], they genuinely didn’t care,” he says.

“What this actually needs to be is a watershed moment where the media wakes up to the fact that, actually, the general public are absolutely fine with disability.”

He adds: “Hopefully what might happen is now the media will stop making it such a terrible tragedy story.

“It’s very easy for them to shine a light on the public and go ‘Oh look the public voted, they must have changed,’ when actually this is the first time the public have been given the chance to vote.”

Viewers may not have had many opportunities to vote for acts like Robert White and Lost Voice Guy – whose real name is Lee Ridley – in talent shows before, but disabled people have been represented on screen in a variety of other ways in recent years.

Noughties comedy series Little Britain (which starred David Walliams – now a Britain’s Got Talent judge), saw Matt Lucas play a disabled character who was secretly able-bodied.

The sketches poked fun at the idea that disabled people fake their condition in order to claim benefits, and the show was hugely popular with viewers.

But now the comedy is coming from disabled performers themselves.

Dean Chaffer, a comedy fan who also has cerebral palsy, has been following Lost Voice Guy’s career for a number of years.

“Watching Lee around various comedy clubs and places around the north-east over the years, how he supported Ross Noble in the early days of his career, that was really good,” he recalls.

“And hopefully he can go as far as he wants to doing comedy, and challenging people’s perceptions of disability and getting laughs along the way.”

He adds: “The first rule of comedy is just to be funny and I think that’s what Lee does really well.

“Disabled people have a sense of humour, just like everyone else… we’re just like normal people, and I think it needs to be highlighted that Lee and Robert were up there because they were the funniest people.”

Tim Renkow, another comedian with cerebral palsy, told BBC News: “[The audience] can get super uncomfortable when you get on stage but once you’ve done three jokes, they just don’t care and they want you to be funny.”

One of the factors key to both White and Ridley’s success, Mik thinks, is the fact that they actively made their disability the subject of some of their comedy.

“There are a few people now who work in the media who are disabled but never really mention it. The thing about Lost Voice Guy is he goes on about it, it’s his set,” he says.

“And I think it’d be really nice if disabled people could finally be allowed to talk about it again, and be considered something other than a contributor. At the moment, if you want to talk about disability on television you tend to be a contributor, and not anything else.

“And I think that might be a really important change; that we see comedy where disability is in it and it’s done well.

“Hopefully soon you’ll have a really funny comedy about disability, which makes disabled people laugh, but also makes non-disabled people laugh not at us, but with us.”

Mik adds that he hopes Lost Voice Guy’s win will open doors for a new generation of disabled performers.

“Recently there’s been a very unhealthy attitude that the only way for a disabled person to follow a dream is to become a Paralympian.

“And I hope that what this does is say to the next generation of kids, ‘Do anything, do what you like, do what you’re good at’.”

Another comedian Francesca Martinez, who also has cerebral palsy, has often made light of her disability in her comedy routines – including during an appearance on the BBC’s Live At The Apollo.

Channel 4 comedy show The Last Leg is now in its 13th series, despite it initially only being commissioned for a brief run during the London Paralympics in 2012.

The show, which stars Josh Widdicombe, Adam Hills and Alex Brooker sees Hills and Brooker regularly make fun of their own disabilities – Hill was born without a right foot and Brooker’s right leg was amputated when he was a baby. He also has hand and arm deformities.

“I think we need disability to be normalised on screen,” says Dean.

“The BBC has had Silent Witness (which earlier this year featured an episode with three disabled actors) and we just need to see disabled people going about their everyday lives.”

“There will be things that a disabled person finds funny and it’s often about things that have happened to you. Sometimes as a disabled person you go through things, and you think, if I don’t laugh about it, what would I do?

“And I think that’s the reason shows like The Last Leg are there, because it enables everyone to have a conversation about disability, and it’s no longer taboo.

He continues: “Now that we have platforms like YouTube, disabled people are able to present themselves in the way that they want to and say this is my life that I’m living, rather than somebody who’s controlling or producing the show, looking at having a version of them on screen.

“Disabled people now have much more control in representing themselves and challenging people.”

Facebook Criticised For ‘R Word’ Ads

June 5, 2018

Facebook has been criticised by disability charities for hosting adverts across the platform featuring the word “retard”.

The adverts for the game Hustle Castle: Medieval Life featured characters with the heading “Level 1 Retard”, reported digital content site Digiday.

The adverts also featured on the social network Instagram, which is owned by Facebook.

The social media giant has yet to comment.

The game which caries a 9+ age rating on Apple’s App store, allows players to run a castle and start battles. It is developed by the Dutch company My.com, which is owned by the Russian internet company Mail.Ru.

Charity frustration

“It’s pretty surprising that in 2018 the creators of a game for children are using such antiquated language in their advertising materials,” said Richard Lane, spokesman for the disability charity Scope.

Leroy Binns, who has a learning disability and works for the charity Mencap, told the BBC about his own experiences with the word.

“I have been called this and it is one of the most hurtful things someone with a learning disability can be called. It makes us feel like we are worthless and people think less of us,” he said.

“This company should take the word down and Facebook and Instagram should know better and make it clear this language is not allowed.”

A spokesman for My.com has apologised for the advert, which he said was created in Russia.

“This was a poor judgement call without the proper knowledge of the language and disconnected from the local market. We apologise for the offence and will take steps to improve our advertisement choices.” he said.

The company confirmed it had pulled the adverts from both Facebook and Instagram.

DWP Admits To Getting PIP Law Wrong On Managing Therapy And Monitoring A Health Condition

June 4, 2018

With many thanks to Benefits And Work.

The DWP have abandoned a court case after admitting to getting the law relating to personal independence payment (PIP) wrong again for years, meaning that many thousands of PIP claims will have to be reviewed and claimants given back-payments. However, the DWP are refusing to concede that they are still applying the law wrongly now, meaning another legal challenge is likely.

In March 2017, the DWP made two major changes to PIP legislation. One of these related to the mobility component and severe psychological distress, the other related to ‘Managing therapy or monitoring a health condition’. Both changes were made so that the law matched the guidance that the DWP had been using to make decisions for years, but which the courts had found to be incorrect.

The result of both changes was that fewer claimants would be entitled to PIP.

Mobility component
In January of this year the DWP admitted that the changes relating to the mobility component were unlawful and stated that they would now the law as the courts had interpreted it before it the DWP altered the regulations on 16 March 2017.

Not only that, but the DWP also agreed to go back through old PIP decisions and correct any that had been made by applying the law wrongly.

As a result, significantly more claimants with mental health conditions are entitled to the mobility component and the DWP have begun a massive review of all past PIP decisions to try to identify hundreds of thousands of claimants who may have wrongly missed out on an award, or a higher award, of the PIP mobility component.

Managing therapy or monitoring a health condition
The changes to the ‘Managing therapy or monitoring a health condition’ activity in March 2017 were intended to prevent claimants who needed help in the form of supervision, prompting or assistance with taking medication or monitoring a health condition from scoring more than one point. The changes stated that help with taking medication, or with monitoring a health condition, did not count as help with therapy for which up to 8 points can be scored.

In two cases where the initial decision was made before March 2017, the DWP appealed to the upper tribunal after the first tier tribunal had decided that claimants were entitled to score points for help with therapy because they needed someone to monitor their health condition adnd administer medication.

According to Garden Court Chambers, who are representing the claimants:

“The government had been arguing that ‘therapy’ excluded treatment which consisted of the monitoring of health and administration of medication. For example, one of the claimants in these cases was a person with type 1 diabetes and unusual sleep patterns, who needed someone to watch over him at night, sometimes administering insulin or glucose while he slept, to avoid diabetic coma and death. The FTT had decided he qualified for PIP. The government had argued in the appeal that he should be awarded only 1 of the minimum 8 points necessary to qualify for PIP.”

The DWP have also withdrawn an appeal in a separate case that was due to be heard in the Court of appeal. In CPIP 721 2016 the Upper Tribunal had held that where a claimant needed help with both managing medication and monitoring a health condition then they should score more than one point.

The judge also ruled that where supervision was needed for “elements of what would ordinarily be regarded as therapy that go beyond either managing medication or monitoring a health condition” then the higher scoring descriptors would apply. In addition, the time taken for managing medication and for monitoring a health condition as part of the therapy could then also be taken into account.

Where the law stands now
For decisions made before 16 March 2017 the DWP have said that they will now have to look again at claims relating to this activity.

According to Garden Court Chambers:

“As a result of withdrawing her appeals, the SSWP [Secretary of State for Work and Pensions] has accepted that, as with the case of her error relating to the mobility element of PIP, she will now need to review past claims relating to this descriptor, to identify other claimants who may have been underpaid. The government has not yet given any details of when or how that process will be carried out, or how many claimants it expects to be affected.”

However, the DWP is arguing that none of this applies from the date when they changed the law. So for cases from 16 March 2017 the DWP claims its decisions are correct.

But it isn’t that simple.

By withdrawing their appeals the DWP are admitting that they were applying the law incorrectly.

So, the changes they made to the law in March 2017 were not just to clarify the existing law, as they argued at the time. Instead they were a material change in the law which removed entitlement to PIP, or a higher rate of PIP, from many thousands of claimants.

In this case the DWP were under a duty to consult before making changes to the law.

They didn’t do this and it is now open to a court to decide that, because there was no consultation, the changes were unlawful and, as with changes to the mobility component, the law must go back to how it was before.

It looks like the DWP are not going to concede this easily, but there’s no doubt that a case will be brought to court to try to overturn the changes to the regulations.

What you should do
If you think you may have been affected by this issue, then make sure you keep subscribing to the Benefits and Work fortnightly newsletter and we’ll keep you informed about what’s happening.

If the decision in your case was made before 16 March 2017 and relates in part to this issue then, in theory, the DWP should be contacting you. More details of how the review will be carried out and when you should be contacted should be made available soon. At that point you can consider whether to wait to be contacted or raise the issue with the DWP yourself.

If the decision in your case was after the cut-off date then keep reading the newsletter and we’ll let you know when a hearing is to be held to decide whether the changes to the regulations were unlawful.

If you’re currently making a claim, then include as much information as you can about the help you need with managing your condition. If you are unhappy with the decision in your case, you can get advice in order to consider whether to appeal on the grounds that the changes to the regulations were unlawful or whether to wait for clarification of the law.

If you are not already a subscriber, you can sign up to the Benefits and Work free fortnightly newsletter using the two boxes near the top- left of any page on this site.

You can download CPIP 721 2016 from this link.

You can download SI 2017 No. 194 from this link.

You can read more about the DWP decision to drop the appeal on the Garden Court Chambers website

Jobcentre On List Of Organisations That Will Be Allowed To View Your Entire Internet History

June 4, 2018

Lost Voice Guy WINS Britain’s Got Talent 2018

June 4, 2018

Same Difference is thrilled to report that one of our editor’s favourite DisAbled comedians, Lost Voice Guy (Lee Ridley) has just won Britain’s Got Talent 2018.

This is the moment we have been wishing for for the last two months, ever since we heard he was on the show. But, he’s not a singer, and everyone knows singers usually win BGT- unless dancers are lucky- so we didn’t dare to hope it might actually happen!!

Yet happen it has. Here’s his winning routine:

And here’s his winner’s speech- with a joke thrown in, of course:

Same Difference wouldn’t be Same Difference unless we also gave a shout out and sincere well done to the runner up, Robert White, who has Asperger’s. Here is his final routine:

How Do You Learn Trapeze Without Sight?

June 1, 2018

Amelia Cavallo has mastered the art of aerial performance on silks and trapeze at great heights above the floor.

As someone who is registered blind, how does she know how high up she is and where the silk or trapeze will be when she lets go as part of a trick? And how often does she end up on the crash mat?

Cavallo is performing as part of new circus show, What Am I Worth? It’s a collaboration between disabled performers and musicians and asks society a very pertinent question.

DWP To Keep ESA Repayments As Small As Legally Possible

May 31, 2018

With many thanks to Benefits And Work.

The DWP confirmed to the Public Accounts Committee (PAC) last week that they will pay the minimum amount they can legally get away with to claimants who were underpaid ESA as a result of DWP errors. This means that they will not backdate all the way to the date of the error in many cases and also will not pay any consequential losses, such as prescription charges claimants should have been exempt from.

In March of this year we reported that the DWP failed to award income-related ESA to around 70,000 claimants who were transferred from incapacity benefit to contribution-based ESA from 2011 onwards.

Affected claimants are owed between £2,500 and £20,000 each.

However, the DWP are insisting that they are only legally obliged to repay underpayments from 21 October 2014, when the upper tribunal first ruled that contribution-based and income-based ESA are a single benefit and that the DWP has a duty to assess claimants for eligibility to both types of ESA when a claim is made.

This means that underpayments from before this date all the way back to 2011 can simply be ignored by the DWP. Child Poverty Action Group are currently mounting a legal challenge to this decision by the DWP.

In evidence to the PAC, Peter Schofield, DWP Permanent Secretary, insisted that compensation would not be paid to claimants who had lost out:

“We don’t pay blanket compensation in situations where the courts have told us to interpret a piece of legislation in a particular way. We don’t do that . . . I have a responsibility, as accounting officer, and I have looked carefully at this in the context of “Managing public money”. The key point here is not to create precedents that put the taxpayer at risk.”

Schofield was then pressed by the Chair of the committee:

“Just to be clear, if you were paying prescription charges or something—the passported benefits—would people individually be able to get those refunded, if they can prove that they had to pay them?”

Schofield responded that prescription charges would not be refunded:

“We are not introducing a blanket compensation scheme . . . No. I have assessed this from the point of view of an accounting officer, and I don’t believe that is consistent with “Managing public money”.

Schofield also revealed that the DWP intend to have processed all repayments by next April and that “hopefully” they would begin processing repayments in June to the next-of-kin of claimants who have died.

The PAC also praised the welfare rights website Rightsnet for first highlighting the issue. The chair suggested that the welfare rights worker (Andrew Dutton from Derbyshire Welfare Rights Service) who spotted the problem and first wrote to the DWP about the underpayments, should be bought a pint.

You can read the PAC meeting minutes here.

Legal Changes To Tribunals

May 31, 2018

With many thanks to Benefits And Work.

The government is making legal changes to allow tribunal staff to carry out some of the functions which are currently the role of judges. In addition, the President of the Tribunals Service will have the power to decide on the composition of tribunals, including the number of people sitting on them.

The Courts and Tribunals (Judiciary and Functions of Staff) Bill had its first reading last week. It has two main effects.

It will “increase the routine judicial work undertaken by ‘case officers’to enable judges to concentrate on more complex matters.”.

In other words, clerks will be able to undertake functions currently exercised by judges. That could, for example, relate to issues such as whether to postpone a hearing or require the DWP to provide specific evidence about a case.

It will also “enable greater cross-deployment of staff between jurisdictions according to need.” So a clerk from say employment appeals could be transferred across to social security appeals where they would, without necessarily a great deal of knowledge, be able to undertake judicial functions, as above.

Whilst this will undoubtedly lead to savings and efficiencies, there are real dangers that staff from one jurisdiction will not be fully aware of how other jurisdictions work. Employment tribunals, for example, tend to put a great deal more pressure on the parties to settle prior to the hearing and are much more likely to issue onerous directions to either party to the appeal.

The First-tier Tribunal and Upper Tribunal (Composition of Tribunal) (Amendment) Order 2018 also came into force this month.

New regulations allow the Senior President of Tribunals to decide how many people are required to sit on appeal panels without the need to have regard to how such panels were constituted in the past.

At present, PIP appeals always require a three person tribunal, but it would be possible for the Senior President to decide that in some circumstances only two, or even one person is required.

The government have said that they will not go ahead with their original proposal to introduce a single member panel as the default position in the unified tribunals. But that does not prevent them introducing one or two person tribunals where they consider that the matter is not sufficiently complex to require more members.

You can download the Courts and Tribunals (Judiciary and Functions of Staff) Bill from this link.

You can download the First-tier Tribunal and Upper Tribunal (Composition of Tribunal) (Amendment) Order 2018 from this link.

Tribunals Service Struggles With Flood Of PIP Appeals

May 31, 2018

With many thanks to Benefits And Work.

The Tribunals Service is struggling to recruit and train an extra 700 panel members after being hit by a flood of personal independence payment (PIP) appeals, the President of the Service revealed in his latest annual report last week. The result is longer waiting times for claimants to have their appeals heard.

According to judge John Aitken “The rapid rise in appeal numbers has outstripped our ability to recruit and train sufficient numbers of panel members to keep pace.”

Social security hearings reached their height in 2012-13, when there were 507,000 appeals. However, the introduction of the mandatory reconsideration before appeal system brought these numbers crashing down to 112,000 in 2014-15.

But the mass reassessment of working age claimants for PIP has clearly had a huge effect on appeal numbers. In the year to the end of March 2016 they had gone up to 157,000 but, warns Aitken, “The trend is now upwards and provisional figures indicate much larger increases over 2017.”

The problems for the Tribunals service are made worse by the fact that PIP appeals require three person tribunals, rather than the two needed for ESA appeals or a judge sitting alone for many other types of social security hearing.

Having got rid of many staff members when the number of appeals plummeted, the Tribunals Service is now having to start recruiting again:

“In September 2017 we recruited 62 Disability Qualified Members from the Employment Tribunal who have now been hearing cases for several months. The process was streamlined and the quality of applicants very high.

“We are presently engaged in a competition via the Judicial Appointments Commission to recruit up to 150 further disability qualified members by open competition, the results of which will be known by the summer. We recently concluded recruitment of 250 medical members who are undergoing training and initial observations and will commence sitting soon.

“A number of salaried Judges were recruited in open competition, 17 have already been appointed and it is hoped that another 10 will soon join them significantly strengthening our salaried team. A streamlined internal assignment process has commenced to recruit fee paid Judges in tandem with an open competition, and it is hoped that around 200 fee paid Judges will be recruited in this way.

Aitken revealed the massive scale of the recruitment process in his report:

“In total within 12 months around 700 new judicial office holders will sit in the jurisdiction. They are required because of rapid rise in appeal numbers has outstripped our ability to list cases as quickly as we would have liked.”

For claimants, what this means is longer waiting times whilst the new members are recruited, trained and begin work. It may also mean more appeals having to go to the upper tribunal as new panels make errors that more experienced ones would not have made.

You can download a full copy of the report from this page

The DWP And Sainsbury’s Are Spying On Disabled People

May 30, 2018

Lost Voice Guy Makes Britain’s Got Talent Final

May 29, 2018

Here’s his semi final performance. Same Difference would love to see him win the show!

Twins With Same Condition Judged Differently For PIP

May 29, 2018

On Holiday Again

May 19, 2018

Same Difference will be offline next week as our editor will be on holiday again. We will return on Tuesday, May 29th with our usual mix of benefits news, progress, fun and lifestyle stories.

In the meantime, enjoy the Royal Wedding!

Best wishes

Samedifference1

Cancer Means I Can’t Smile

May 18, 2018

My cancer, an aggressive tumour on the salivary glands, was diagnosed in early 2015. I’d first noticed the lump the previous summer, but tests proved inconclusive. It took a deep-tissue biopsy in January to confirm that it was cancerous. Because of where it was – and because it had been there for about 18 months – there was a good chance the cancer would be embedded in the nerves. The surgeon said he might need to cut those to remove the lump, in effect paralysing that side of my face. He wouldn’t know until I was under the knife.

I didn’t really understand the impact of this. From the outset, I wasn’t interested in my prognosis, because it didn’t help me cope with my illness; trying to imagine life without facial movement was pointless. When I woke up, after a five-hour operation, I was told they’d had to sever those nerves to root out the entire tumour. I couldn’t move the right side of my face or make any facial gestures, and could open my mouth just wide enough to eat a piece of toast.

It’s only when you can’t smile that you realise how central it is to nonverbal communication. Soon after coming out of hospital, I passed someone in the chemist and did that whole “after you” pantomime, giving her a little smile. Except it wasn’t a real smile – it was a sort of one-sided grimace. She gave me a confused and slightly mistrusting look.

I asked my consultant how I could get my smile back. I’m a project manager for an IT company, and I perform in a band, so nonverbal communication is really important for me. Plus I have a 10-year-old daughter, Mia. “How are you going to get a girlfriend if you can’t smile?” was her burning question. I was told it wasn’t an option yet; the remaining nerves were being blasted by radiotherapy and there was a lot of scar tissue. I had my treatment and saw a speech therapist about facial physiotherapy. She referred me to another hospital, which specialises in facial palsies such as mine.

My kind of facial paralysis isn’t temporary, like Bell’s palsy – this situation was for ever, unless I went for it. So, in November 2016, I had a 14-hour operation. It was a complicated procedure, but I was determined to come out smiling. The surgeons took a nerve from my thigh and attached it to the cut nerves in my face, connecting them to my jugular vein. They put a deep layer of fat on top of the affected area, which kept the nerves warm and helped the blood supply from the jugular. After the operation, I kept haemorrhaging. They used leeches to control the bleeding. I lay in bed, covered in leeches, watching Trump win the election and thinking life was pretty bad. The next morning they operated again to stop the bleeding.

I knew the lump would look ghastly, then settle down, but I cried as hard as I’d ever cried after seeing myself in the mirror. It looked like a massive tumour. I’d told Mia I was going to hospital to restore my smile, and that it wouldn’t come back straight away. But this was awful. When I got home, she sat on my right, but asked to swap because she couldn’t cope with how I looked.

A year and a half on, I still can’t smile. My doctors originally said it could take up to two years to see movement. Now they say it might take up to three. Of course I miss smiling with Mia, but there’s a level of communication with someone intimate that is intuitive – we hug and laugh a lot, and she knows when I’m smiling inside. She’ll sometimes say she wished this had never happened, but our relationship is probably stronger than ever. She’s shown empathy and intelligence, and understands that there’s no such thing as normal or weird – just different.

Now I choose my words carefully, talk more slowly and use more eye contact. It’s interesting to see how other people cope when they meet me. I think there’s a fear – of looking at me and not offending me. Everything I say is delivered with the same face, so you have to really listen to the words to work out what I’m saying.

While I’m waiting to see if the nerves start working again, I’d like an operation to help my face look more symmetrical. But I’m pragmatic; I’m alive, back at work, recording and performing my music, and raising awareness of facial cancers for Cancer Research UK. And, to Mia’s delight, I’ve got a girlfriend. She didn’t know me before all this happened. It’s good to know she wants me as I am.

Xbox Launches Disability Friendly Xbox Controller

May 17, 2018

Microsoft is launching a new Xbox controller, developed to meet the needs of people with disabilities.

Set for release later this year, the Xbox adaptive controller is a customisable device intended to support a wide range of needs and disabilities, making video games more accessible. It will retail for $99 (£73.50) and will be sold worldwide via Microsoft digital stores.

“We think the traditional Xbox controller is an industry-leading design, but it’s not accessible to gamers with limited mobility,” said Gabi Michel, the senior Xbox hardware programme manager. “They usually require custom solutions which can cost thousands of dollars and a lot of technical expertise to set up; you often have to go to a non-profit organisation to get them made and there are waiting lists. We wanted to solve all those problems; we created the Xbox adaptive controller to be accessible and affordable.”

The controller features two large buttons on the face, which can be operated with hands, elbows or feet. It is designed to be placed on the player’s lap, on a table, or on the floor, allowing for a number of control options.

The main feature is the row of 3.5mm ports along the rear of the pad, representing each of the inputs and buttons on the standard controller. Using these 19 ports, players can plug in a range of add-on devices such as bite switches, foot pedals, touch-sensitive pads and other accessibility products that are either already available or have been developed specifically for the controller by third-party manufacturers. These will also be on sale via Microsoft stores. In this way, control setups can be highly personalised: players use a dedicated app to create controller configurations, and can quickly switch between three preconfigured profiles using a button on the face of the controller.

The device is wireless and powered by an internal battery, charged via USB-C connection. However, it also comes with its own optional power supply so that devices that draw a lot of power – such as mouth-operated quadsticks, controllers designed for quadriplegic players that use a “sip and puff” tube for inputs – can be supported more easily. There is a headphone socket and, on the base, a set of mounting ports, allowing players to fix the controller to a tripod.

During a demo event at Microsoft’s campus in Redmond, Washington, learning specialist Solomon Romney showed how he could control the racing simulation Forza Motorsport with one hand, utilising a specially designed joystick add-on developed by peripherals firm PDP, resembling a Nintendo Wii nunchuck. Plugging the nunchuck, which will retail at $20, into the Xbox adaptive controller’s left USB port, he used the analogue stick and two buttons to steer, brake and accelerate.

According to Microsoft, the adaptive controller, which is also compatible with Windows 10 PCs, is completely plug and play – users are able to repeatedly swap out add-on components while playing.

“As I’m going through various games, I’m trying different configurations, testing how it feels without ever having to quit out and start again,” said Romney. “It makes it much easier to iterate and find the ideal setup very quickly. I can now play whatever game I want, however I want to play it.”

The device originated with a small group of staff from the company’s accessibility team, who developed an early prototype for a Microsoft hackathon event in 2015. They worked closely with Warfighter Engaged, a charity seeking to rehabilitate injured military veterans, to design a customisable controller that met a range of needs but still had the build quality and look of a traditional controller.

The following year, the team was back at the hackathon, this time with the support of Leo Del Castillo, Microsoft’s general manager of Xbox hardware, who committed a group of electrical and mechanical engineers to the project to help improve the design. A year – and several prototypes – later it was officially greenlit.

“The traditional Xbox controller makes a lot of assumptions,” said Bryce Johnson, Microsoft’s senior inclusive designer, who was part of the original development team. “It assumes I have two hands to hold it, two thumbs to hit the analogue sticks, and the fine motor control to get at all the buttons. It also assumes I have the endurance to hold it for a long gaming session. That’s a barrier. Throughout the design process of this device, we spoke to charities like the Cerebral Palsy Foundation, AbleGamers and SpecialEffect and to countless gamers with disabilities. We’ve designed a device that we think will empower them.”

The design team has also worked with occupational therapists including Erin Muston-Firsch, an assistive technology specialist at Craig hospital, Denver, which treats people who’ve had spinal chord or traumatic brain injuries. Muston-Firsch and her patients tested and fed back on prototypes as they were developed. “I have a patient named Reece. She has 15 brothers and sisters, and she used to teach her younger siblings how to play – it was the way they related to each other,” said Muston-Firsch.

“Then she had a spinal injury, a major trauma, and she couldn’t do that anymore. She came to me for rehab and I sat her up with the Xbox adaptive controller and within five minutes she was playing Call of Duty, co-piloting with her brother – he was controlling the right analogue stick but she was doing everything else. It was awesome. Her mother was crying because it was such a powerful moment.”

The prices of add-ons for the adaptive controller range from $65 for an AbleNet Big Red Switch to $399 for a QuadStick. It’s likely some users will require several to build a workable control setup. However, the device also supports the Xbox One co-pilot feature, which allows two controllers to be used as one input. Consequently, many players will be able to create a useable setup with just the adaptive controller and a traditional pad.

Evelyn Thomas, Microsoft’s accessibility programme manager for Xbox, said the new controller is a major hardware launch, and the company will support it with further updates in the future. “There are millions of gamers out there with a wide variety of disabilities. That’s why we feel this device is so important,” said Thomas. “This is not a niche product.”

Deaf Rave: The Fight For Access To Music

May 17, 2018

Growing up among the reggae soundsystems and pirate radio stations of 1980s Hackney, Troi Lee was surrounded by music, “speakers on the street corners blaring”. After getting a Walkman for his 14th birthday, he would wander through his neighbourhood playing songs by Public Enemy on repeat: “It was pure joy,” he says. This passion led Lee to follow in the footsteps of his cousin John and become a DJ. It’s a common enough path – except that Lee was born severely deaf.

With his hearing aids on the telecoil setting, he could hear certain frequencies of his Walkman – the bass vibrations from the percussion and glimpses of lyrics – through a magnetic wireless signal. When DJing, Lee, now 44, uses digital software to visualise the instrumental elements that he mixes together. “We need to reverse the myth that deaf people can’t enjoy music,” Lee says. “I don’t let my deafness affect me. I want to show the world that deaf people can play music just as well as our hearing peers.”

The idea that deafness impedes the appreciation of music is gradually being debunked. In 2013, sign language interpreter Amber Galloway Gallego went viral in the US for her animated performance for rapper Kendrick Lamar at the Lollapalooza festival. Rather than merely signing the words, she embodies musical textures with her face and movements, showcasing a unique technique that she describes as “showing the density of sounds visually”. To represent bass, she places her arms in front of the lower part of her body and inflates her face, replicating the sign for “fat”, while higher frequencies are placed at head height and above. After her performance, US talk show host Jimmy Kimmel took notice, inviting her and fellow interpreters Holly Maniatty and JoAnn Benfield on his show for a “sign language rap battle” in 2014.

Despite some progress, a report by accessibility charity Attitude Is Everything recently stated that in the UK over 80% of deaf and disabled music fans have experienced problems when booking tickets to live music events. The UK’s live music census in February also found that only 30% of surveyed venues have dedicated disabled-access areas and only 7% of surveyed promoters have a policy to provide PA (personal assistant for deaf and disabled customers) tickets as standard. Yet it’s estimated that more than 3.3m deaf and disabled fans attend live music events every year, with a 70% rise in disabled-access ticket sales reported in 2016.

With one in six people suffering from hearing loss in the UK and around one in 1,000 children born profoundly deaf, the lack of accessibility to live music for deaf people is a significant challenge, and deaf fans believe too little is being done to serve their needs. “I don’t go to live shows very often as they’re not that accessible,” says writer Rebecca Withey, who is profoundly deaf. “There is absolutely not enough provision for us, and ironically when some venues do host accessible shows, they don’t promote them well enough for us to find out about them.”

For some fans, difficulties around access can put an end to nights out altogether. “Being ignored by the music industry has made me disengage from live music,” says deaf journalist and film-maker Charlie Swinbourne. Fans say specialist provisions are crucial: interpreting should be as readily available in the UK as it appears to be in the US, says student Liam O’Dell, while Lee believes that “all promoters should allocate a certain number of tickets for deaf and disabled people”.

Small steps are being made towards inclusivity: festivals such as Glastonbury and Festival Republic events Reading, Leeds and Latitude all provide BSL interpreting on request. Still, the provision can face obstacles. “When access is permitted it is often done so reluctantly – it is not widely advertised, left unregulated and is often of an inadequate standard,” says Marie Pascall, director of Performance Interpreting, which provides the service for Festival Republic. She describes one instance where “an act refused to have the interpreter on stage, and then refused for the interpreter to sign any of their performance”.

Troi Lee has taken matters into his own hands. In 2003 he founded Deaf Rave, a quarterly event in London designed specifically for deaf clubbers. The inspiration came from his experiences at illegal warehouse parties in the early 1990s, where the speakers amplified the vibrations he had once enjoyed through his Walkman. “It’s something I can’t quite describe,” he says, “the lasers blazing up the place and the biggest soundsystems I have ever seen or felt, shaking the entire warehouse.” From that moment in 1991, he set out to convince the deaf community that clubbing was as much a part of their culture as the hearing world’s. Through heightened bass levels and the use of new technology such as SubPac – a wearable speaker that intensifies vibrations – Lee can make his events immersive.

The organisation celebrates its 15th anniversary this year, but Lee says there is still much to be done. Deaf people are twice as likely to suffer from depression as hearing people. Withey says: “There’s still a huge stigma attached to being a deaf music fan.” Says Lee: “We are one of the most marginalised groups in society, owing to our isolation, unemployment, lack of BSL in mainstream schools and the daily frustrations of communication barriers. We organised Deaf Rave because we have empathy for our community.”

DWP ‘Find a job’ is mandatory for claimants? However, “DWP staff will not have access to view jobseeker accounts, CVs or activity/application history”

May 16, 2018

mrfrankzola's avatarFrank Zola

DWP has released internal documents on it’s new Find a job (FaJ) website, that replaced Universal Jobmatch.

Jobcentre Work ‘Coaches’, just like with Jobmatch, can mandate a Universal Credit (UC) claimant via their Claimant Commitment to create a FaJ account and upload their CV, or face benefit sanctions. Jobseeker Allowance (JSA) claimants, can also be mandated, through use of a Jobseeker Direction.

However, the UC and JSA guidance both discuss mandating claimants to create accounts in “other” and “more appropriate” jobsites. It is unclear whether this just means claimants will be mandated not only to FaJ but other sites, or that a claimant would be able to avoid being mandated to FaJ by registering with and uploading their CV to “other” and “more appropriate” jobsites?

“Find a job or other jobsites
1. As part of making use of the resources available to them to look for work, we can
reasonably…

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ATOS Assessors Get £50 Bonuses For Extra Assessments

May 16, 2018

https://twitter.com/danbloom1/status/996094791124488192

Twenty Per Cent Of UC Claims Fail Due To ‘Non-Compliance’

May 15, 2018

With many thanks to Benefits And Work.

 

20% of universal claimant (UC) claimants never receive a payment because they have failed to follow the complex rules, the Guardian has revealed. One MP with specialist knowledge of the system said that he had failed to make a claim for UC himself, because of the complexity of the system.

According to figures released by the DWP under the Freedom of Information Act large numbers of claimants are missing out because they didn’t follow the correct process for claiming.

Around 10% failed to book an interview within one week of making their claim. To do so, claimants need first to be aware of the strict time limit for booking an interview and then be able to get through to a helpline to arrange an appointment.

Another 6% had their claim ended because they did not sign a claimant commitment, agreeing what they have to do in order to receive UC.

Another 4% of claims were closed because they did not attend an interview at a jobcentre.

Frank Field, who chairs the work and pensions committee told the Guardian that the complexity of the system was a “mega issue” and that “I have tried to enrol myself [for universal credit] and failed, I wonder if the ministerial team have tried.”

You can read the full story in the Guardian.

Amputee Climber Makes Everest History

May 15, 2018

A Chinese climber who was crippled by frostbite on Everest more than 40 years ago has scaled the summit at the start of this year’s climbing season.

In 1975, Xia Boyu lost his feet after giving his sleeping bag to a sick teammate during a high-altitude storm.

Now aged 69, he became the second double amputee to scale Everest – and the first ever from the Nepalese side.

Australian Steve Plain, meanwhile, set the record for the fastest climb of the highest mountains on seven continents.

Plain’s achievement also features a story of overcoming physical challenge, coming four years after he broke his neck in a surfing accident.

‘A challenge of fate’

The storm that caused Xia’s frostbite struck in the “death zone” above 8,000m (26,200ft) and stranded his team for three nights, not far from the summit.

As a result, he needed to have his feet amputated. Then, in 1996, his legs were amputated above the knee as he battled lymphoma.

Despite his injuries, he never abandoned the notion of reaching the summit.

“Climbing Mount Everest is my dream,” he told AFP news agency in April. “I have to realise it. It also represents a personal challenge, a challenge of fate.”

After the disastrous 1975 climb, he made three more attempts, in 2014, 2015 and 2016. The 2016 attempt brought him close to the summit before a blizzard set in.

However, a ban on climbers like Xia almost ended his attempts.

Nepalese authorities moved last year to ban double amputees – along with blind and solo climbers – from attempting to reach the summit.

The authorities said the new rules were a safety measure but they were struck down by the courts earlier this year as discriminatory.

On Monday, supported by a team of Sherpa guides, Xia reached the summit in what the Himalayan Times says is the first successful double amputee climb from the Nepal side.

It also makes him only the second double-amputee to ever reach the summit of the world’s highest mountain. Mark Inglis, of New Zealand, became the first when he reached the summit in 2006.

Inglis also lost his limbs to frostbite in a climbing accident, after spending two weeks in an ice cave sheltering from a mountain storm.

‘Hangman’s fracture’

Steve Plain also took advantage of the first day possible to reach the summit, setting his four-month speed record for the seven continents.

Both Plain and Xia’s teams had already begun their climb when Sherpa guides affixed ropes to the summit, opening the final leg of the route for the climbing season.

That meant that Plain could reach his seventh mountain peak on his seventh continent in just 117 days – shaving nine days off the previous record.

The seven summits Mr Plain scaled are, in order of completion:

  • Vinson, Antarctica (4,892m/16,066ft)
  • Aconcagua, South America, (6,962m/22,840ft)
  • Kilimanjaro, Africa (5895m/19,340ft)
  • Carstensz Pyramid, Australasia (4884m/16,020ft)
  • Elbrus, Europe (5642m/18,510 ft)
  • Denali, North America (6,190m/20,310ft)
  • Everest, Asia (8,848m/29,030ft)

Plain was surfing in Western Australia in the summer of 2014 when a wave dumped him, head first, into the sand. He suffered a broken neck or “hangman’s fracture” and said doctors had told him they were not sure if he would ever walk again.

“Three and a half years ago I was lying in hospital with a broken neck and at that time set myself the goal,” he wrote on Facebook after reaching the summit.

Plain has also been using his record attempt to raise money for charities the Surf Life Saving Association and SpinalCure Australia – two groups he has close associations with after his own injuries.

Delay Over Fund For Disabled Election Candidates

May 14, 2018

Labour has expressed alarm after the government missed its own deadline to decide whether to reinstate a grant intended to help people with disabilities stand for election as councillors and MPs or for other public office.

Ministers had said they would confirm by 11 May plans for the access to elected office (AEO) fund, which offered grants of between £250 and £40,000 to help cover the additional costs incurred by disabled people in England seeking election.

It was set up in 2012 under the coalition government in an attempt to increase diversity on elected bodies, but suspended by the Conservatives after the 2015 general election.

A cross-party group of MPs wrote to the government in January urging it to follow a recommendation by the Equality and Human Rights Commission (EHRC) and reinstate the AEO fund as a matter of urgency.

In a letter to the international development secretary, Penny Mordaunt, who took on the equalities brief in cabinet after the resignation of Amber Rudd as home secretary, Labour’s Cat Smith said that in last week’s local elections “many talented disabled people were denied the opportunity to stand for public office” due to the suspension of the fund.

“Disabled people make up less than 1% of MPs, despite 16% of the working-age adult population having a disability,” wrote Smith, the shadow minister for voter engagement. “It is our duty as parliamentarians to increase the representation of under-represented groups in parliament and at every level of politics.”

Noting the 11 May deadline, Smith added: “Although this is about fairness, this is also about what sort of politics we want to see. I hope you will restore this important fund as a matter of urgency.”

In September last year, in a submission to an inquiry by the UN special rapporteur on disabilities, the EHRC said: “The UK government should reopen the AEO fund in England and work with the Scottish and Welsh governments to explore options for making the scheme, or similar funds, available across Great Britain.”

After the 2017 general election, in which five MPs with disabilities were elected to the Commons, 91 MPs signed an early day motion calling on the government to reinstate the fund “without further delay”.

A spokeswoman for the Government Equalities Office gave no timetable for when the matter would be decided or what decision might be taken. She said: “The access to elected office fund evaluation report will be published in due course.”

The Big Bang Throry’s Stephen Hawking Tribute

May 11, 2018

We’re not sure if you’ve noticed, but there’s a pretty big wedding taking place this month.

(Not Harry and Meghan.)

Viewers of The Big Bang Theory finally saw Amy (Mayim Bialik) marry Sheldon (Jim Parsons) in Thursday night’s season finale.

But for timing reasons, producers had to cut a scene which paid tribute to Stephen Hawking, who died in March.

Producers revealed the scene featured Sheldon receiving a gift of a pocket watch from Hawking that was sent before his death.

The footage instead will instead be posted online later on Friday.

Showrunner Steve Holland told The Hollywood Reporter: “When we heard of Hawking’s passing, we wanted to do something to honour him but we had already shot the next three episodes.

“It’s hard for us to be super timely because we shoot ahead of our airdates so this seemed like a really nice opportunity.

“The wedding was a big episode and it seemed like a good chance to pay some tribute to him. Steve Molaro had this idea that Hawking could have sent a gift before he passed.

“He had had the idea for the gift and for the inscription and we contacted Professor Hawking’s family to get their blessing. They were very nice and excited for us to do it. I’m glad it will be somewhere.”

Hawking was famed for his work with black holes and relativity, and wrote several popular science books including A Brief History of Time.

The British scientist, who also made cameos in The Simpsons and Star Trek – had appeared in The Big Bang Theory before.

Thursday night’s episode marked the end of the show’s 11th season.

The finale also featured cameos from Laurie Metcalf, who plays Sheldon’s mother, and Mark Hamill, who appeared as himself.

The show is one of the most popular programmes in the US, where it has attracted more than 18 million viewers every year since its sixth season aired in 2012.

The Big Bang Theory has also spawned a spinoff called Young Sheldon.

Dame Barbara Windsor Has Alzheimer’s

May 10, 2018

The actress Dame Barbara Windsor has been diagnosed with Alzheimer’s, her husband has said.

Scott Mitchell, 55, confirmed to the BBC that his 80-year-old wife had been given the news in April 2014.

He said the EastEnders star had been taking medication to manage her condition but that symptoms had worsened in recent weeks.

The veteran of film and TV was made an MBE in 2000 and a dame in 2015 for services to drama.

In an interview with The Sun, Mr Mitchell said: “Since her 80th birthday last August, a definite continual confusion has set in, so it’s becoming a lot more difficult for us to hide.

“I’m doing this because I want us to be able to go out and, if something isn’t quite right, it will be OK because people will now know that she has Alzheimer’s and will accept it for what it is.”

“I hope speaking out will help other families dealing with loved ones who have this cruel disease. Secondly, I want the public to know because they are naturally very drawn to Barb­ara and she loves talking to them,” he added.

Mr Mitchell said his wife was aware that he was making her diagnosis public.

“She often asks me, ‘Do the public know that I’m not well?’ And she asked me again this morning,” he said.

“I said they didn’t yet, but we were going to have to let them know because so many people are talking now. But if she forgets that she gave me her blessing, well, I’ll just have to deal with that.”

Ross Kemp, who played Dame Barbara’s on-screen son Grant Mitchell in EastEnders, spoke of his love for the actress and her husband on Twitter.

Kemp said he hoped that talking about the condition openly “will make it easier for others” to do so.

Mr Mitchell said he noticed his wife found it difficult to learn her lines in 2009, just before she left EastEnders for the first time, but they didn’t think anything of it.

By early 2012, she had started repeating certain sentences and stories, he said.

Following a series of mental agility tests and a brain scan, he said, she was diagnosed.

He recalls that on hearing the news, his wife mouthed the words “I’m so sorry” to her husband.

“I squeezed her hand back and said, ‘Don’t worry, we’ll be OK'”, he told the newspaper.

‘Wonderful and brave’

Carey Mulligan, who is an ambassador for the Alzheimer’s Society and spoke about the disease at the UN last year, praised Dame Barbara’s family’s decision.

Speaking at the Cannes film festival, she told the BBC: “I think it’s really wonderful and brave for the family and Dame Barbara Windsor to come out publicly and speak about Alzheimer’s.

“It’s so important as a society that we become more aware of dementia and we become more accepting as a community.

“For so many years there’s been such a misunderstanding about what it is – that it’s not a natural part of ageing, that it is a disease of the brain.”

Mulligan became a spokesperson for the organisation because her late grandmother had Alzheimer’s for the last 16 years of her life.

She added that education was important “so society can become more dementia-friendly”, saying: “Whenever a public figure speaks out, it’s a great advantage for everyone.”

Dame Barbara appeared in nine Carry On films and played the pub landlord Peggy Mitchell in EastEnders.

The actress first appeared on stage at the age of 13 in a pantomime and was soon performing in the West End musical Love From Judy.

In 1964 she worked on her first Carry On film – Carry on Spying.

She was also in sitcoms including Dad’s Army and One Foot in the Grave.

In 2009 she was given a Lifetime Achievement Award at The British Soap Awards.

Tim Parry, director at Alzheimer’s Research UK, said: “We are saddened to hear of Dame Barbara’s diagnosis with Alzheimer’s. It’s to be congratulated that Scott is speaking out to encourage other affected individuals and families to do the same when it’s right for them.

“It’s important to bring the disease out into the open as a crucial step towards us tackling it. Alzheimer’s is a physical disease, in the same way that cancer or heart disease are, and there shouldn’t be stigma in being open about it.”

He described Dame Barbara as a “much-loved figure on our screens and in public life”, adding: “Our hearts go out to her and her family. We hope she is able to maintain and enjoy her quality of life for as long as possible.”

Alzheimer’s disease is the most common cause of dementia – a syndrome associated with an ongoing decline of brain functioning.

There are currently around 850,000 people in the UK with dementia.

Symptoms of Alzheimer’s disease include memory loss, confusion and problems with speech, but the disease can start years before patients display such symptoms.

None of the treatments currently available can stop the disease, however they can help to temporarily reduce the symptoms.

David Goodall’s Reasons For Going To Dignitas

May 10, 2018

The Australian scientist, 104, sets out his reasons for travelling to Switzerland to voluntarily end his life.

At a press conference in Basel, Mr Goodall added that he was “surprised at the wide interest” in his case.

Scandal Of Positive PIP Feedback

May 9, 2018

With many thanks to Benefits And Work.

The DWP has been claiming extremely high levels of claimant satisfaction for PIP assessments, based on fewer than 1% of claimants being asked a single question in surveys carried out by Atos (IAS) and Capita themselves, Benefits and Work can reveal. The surveys are not anonymous and take place before claimants know what the assessor has written about them.

FoI request
Benefits and Work first became concerned about claimed satisfaction rates when the commons Work and Pensions Committee was investigating PIP and ESA medical assessments. The committee found that: ‘The PIP and ESA assessment processes function satisfactorily for the majority of claimants’.

This conclusion was based on figures provided by the DWP that “all three contracted providers consistently exceed their customer satisfaction targets of 90% for PIP and 91% for ESA.”

Such high levels of satisfaction are hugely at odds with our own members experiences.

In order to try to find out more about the feedback process, Benefits and Work asked a range of questions using the Freedom of Information Act. The questions were, unsurprisingly, only partially answered by the DWP.

However, we learnt a lot from the answers we did receive.

No anonymity
4,305 feedback surveys were carried out for ESA in the year 2017/18. This means that fewer than half of one percent of ESA claimants are asked to give feedback.

For PIP the figure was 11,012 feedback surveys carried out in 2017/18. This is around 1% of PIP claimants.

Neither the PIP or ESA survey is anonymous.

Both rely primarily on a telephone survey which involves claimants being called and asked questions by a representative of the company which carried out the assessment.

The DWP says that in cases where no telephone number is available a postal survey is sent. Again this is unlikely to be anonymous.

Only for ESA is an online version available.

The DWP failed to answer our question about when the surveys take place – before or after the decision. But the anecdotal evidence strongly suggests that most are carried out whilst the claimant is still waiting for a decision. This means that the claimant will have obvious concerns about upsetting the company which holds their fate in its hands.

It also means that the claimant has no way of knowing how accurately, and in what detail, the assessor took down evidence. Or whether the assessor took into account any additional evidence the claimant may have brought along.

Only one question
For ESA there are a set of five questions, four for claimants who had a home visit.

“How would you rate the way in which your appointment was arranged?

Overall, how did you feel you were dealt with by the receptionist at the assessment centre? (this question is not asked of claimants who had a domiciliary visit)

How would you rate the health care professional for courtesy/politeness?

How would you rate the health care professional for professionalism?

How would you rate the health care professional for gentleness of the assessment?”

According to the DWP:

“The overall satisfaction score is based on the 5 questions above, or 4 questions for domiciliary visits. It is calculated by taking all positive answers to these questions (very good and quite good) as a percentage of all those answering.”

For PIP assessments, on the other hand, there is one single question asked:

“How satisfied were you with your overall experience with Capita / Independent Assessment Service’.”

The DWP say that:

“The overall satisfaction score is based on this question. It is calculated by taking all positive answers to these questions (satisfied and very satisfied) as a percentage of all those answering.”

Objections
There is so much wrong with this method of getting feedback that it is hard to know where to start detailing it.

But, these are some of the objections we have.

The feedback is collected by the company that undertook the assessment and is not anonymous. , This means that the claimant is likely to be very wary of criticising the health professional, for fear that it may result in a more negative assessment.

The assessment companies have targets to meet for positive feedback. This gives them a strong incentive to try to ensure that they only collect feedback that they believe is likely to be positive.

The feedback questions do not deal with the accuracy of the report or whether any additional evidence provided was taken into account. Yet it is failings in these areas that cause a great deal of dissatisfaction amongst claimants.

The sample sizes are very small and there is now way of knowing if they are representative. For example, what proportion of those sampled have physical health conditions and what proportion mental health conditions? It may be that people with some conditions have a much better or worse experience than others. We also don’t know how many were home visits and how many took place at assessment centres.

Entirely worthless
The DWP use the very high customer satisfaction rates as a shield against criticism. So far the Work and Pensions committee and many other agencies have accepted these figures at face value.

It is time that those with a responsibility for holding the DWP to account looked more closely at the quality of the feedback the DWP relies upon.

Until anonymous feedback is collected by an independent agency after the claimant has had their decision, these customer satisfaction figures should be given the value they deserve: they are entirely worthless.

DWP Deliberately Inflicting Hardship On ESA Appeals Claimants

May 9, 2018

With many thanks to Benefits And Work.

The DWP are deliberately inflicting hardship on claimants who appeal against ESA decisions by misleading GPs into refusing to issue sick notes. The shock finding was published last week by the legal advice charity Zacchaeus 2000 Trust (Z2K).

ESA claimants who challenge a decision that they are capable of work cannot claim ESA whilst they are waiting for a mandatory reconsideration decision. They may be able to claim JSA, but many claimants are reluctant to do so for fear that they may be unable to meet any jobseeking requirements and then be subject to a sanction.

However, if the mandatory reconsideration is unsuccessful, as the overwhelming majority are, claimants can then lodge an appeal and reclaim ESA whilst waiting for their appeal to be heard.

But in order to reclaim ESA, they have to produce a fit note from their GP.

Until recently the information given to GPs in form ESA65B, issued when a claimant is found fit for work, made it clear that no further fit notes should be issued to that patient except in certain circumstances. It explained that the patient had been found fit for work and :

“This means you do not have to give your patient any more medical statements for Employment and Support Allowance purposes. But you may have to give your patient new medical statements if

they decide to appeal against our decision

their condition gets significantly worse

they have a new medical condition.”

However, the new letter being sent to GPs states:

“As a result of this decision, [Title] [Surname] is not entitled to ESA from and you do not need to provide any more fit notes to [select] relating to [select] disability/health condition for ESA purposes.”

No mention of any circumstances in which fit notes should be issued is made at all.

Z2K first became aware of the issue because of difficulties experienced by their client Louis, who had lodged an appeal against an ESAS decision. Louis’ GP refused absolutely to start issuing fit notes again because, he said, had received a letter from the DWP instructing him not to do so, no matter how mill his patient was.

According to Z2K:

“The decision to omit mention of ESA pending appeal in the current ESA65B is irresponsible to the point of spreading misinformation to GPs. Louis had to register at a different practice, in order to find a GP willing to write him a fit note, despite there being no question that it was medically appropriate to do so. Louis did not have enough money to buy food while this was being resolved.”

The DWP have offered no explanation whatsoever for the change in the wording of the letter, except that it was altered as a result of a ‘ministerial requirement’.

That it is a ministerial requirement that claimants be caused as much suffering as possible, regardless of the law, will probably come as no surprise to our readers.

You can read the full story from Z2K here.

How Universal Credit Rules Force Women Into Abortions

May 8, 2018

Benefits ‘Spy Squad’ Order MS Man To Repay £20,000

May 2, 2018

A YOUNG man with multiple sclerosis has told of his shock after being accused of lying about his condition and ordered to hand back almost £20,000 of benefits.

Michael Forsyth was diagnosed with the debilitating condition just a week before his 21st birthday and started claiming the Personal Independence Payments, which replaced the Disability Living Allowance.

But he has now been ordered to pay the money back after he was covertly followed by a surveillance team from the Fraud and Error Service.

His mobility car was also taken away last week and Michael, 26, says he now suffers regular panic attacks and is paranoid about going outdoors for fear of being spied on.

Medication for his anxiety and depression has been doubled as a result and the stress has worsened the symptoms of his MS.

Michael, who lives in Lanark, said: “When the surveillance team came to my house and showed me the DVD footage they had taken of me I felt violated. They made me feel as if I had never had an illness.”

He says when he was evaluated for PIP in March 2015 his MS was particularly bad and he was in a wheelchair during the assessment.

But last June the surveillance team recorded Michael regularly walking his dog without any type of aid, exercising and cleaning his car. They also looked through his Facebook history and saw pictures of him at T in the Park, on the pitch at a charity football match and building a cabinet.

But Michael says he was with the MS Society, which he had joined to help raise awareness, at the music festival and at the football match, when, he says, he only kicked the ball a few times.

He said: “And yes, I did clean my car but what they didn’t see was me having to go to bed for hours afterwards because I was exhausted.

“The nature of the illness means I can’t say what I’ll be able to do from day to day.”

He has been to his GP surgery 38 times in the last year for a variety of complaints related to his MS such as fainting, depression, tonsillitis, migraines, insomnia and falls.

Because his PIP has been stopped, Michael’s Employment and Support Allowance has also been affected and he has also been ordered to pay back £1,436.35, which will be taken from his weekly payment of £125.55 for the next four years.

Although he has yet to be told how he is expected to pay back the £17,881.82 PIP sum, he expects it will also be taken from his weekly ESA.

The Department for Work and Pensions have shared their findings from the surveillance operation, including the revised scores for the 12 activities used to determine whether someone should get PIP and how much.

Activities include eating and drinking, washing, going to the toilet, communicating and getting around.

Michael’s revised scores, based on the evidence gathered, were zero for all 12 activities. He has now appealed the decision.

As part of his appeal he received a letter from his neurologist at Queen Elizabeth University Hospital in Glasgow, who confirmed that following the diagnosis of MS, Michael developed “further significant symptoms with worsening leg weakness, arm weakness, dysarthria (speech problems) and double vision.”

He added: “Michael has been left with significant on-going symptoms.”

But the response from the DWP insisted this was just an “opinion” and didn’t give the full picture.

The letter stated: “Sometimes a medical professional can only give their best guess about what a person is able to do based on what the patient has told them and based on their knowledge and experience … any opinion about walking ability, or ability to manage self care, expressed by a medical professional is trumped by actual observations.”

They added that Michael’s initial assessment was a “clear and blatant exaggeration” adding that he had “deliberately misrepresented his needs.”

According to the DWP, nearly 3.1 million PIP decisions have been made, and of these 9% have been appealed and 4% have been overturned.

 

Opinion: Niall Sommerville MS Society Scotland

“Once again, we have a case highlighting how the current welfare system doesn’t work for people living with MS.

“The fluctuating nature of MS means current benefits assessments aren’t suitable.

“MS is a lifelong condition with a range of hidden and unpredictable symptoms – something the current benefit system seems incapable of understanding.

“Since the introduction of PIP, one in three people with MS on the highest disability benefit have seen their award reduced after reassessment.

“The UK Government urgently needs to fix this broken system.

“Having MS is hard enough.

“It should not be made harder by a welfare system that doesn’t make sense.”

 

Critics: PIP isn’t working

PIP benefits have been dogged by controversy for five years.

A survey by the Disability Benefits Consortium found 79% of respondents said assessments had made their health worse, due to stress.

Although parts of the benefits system is being devolved, it is thought it may be 2021 before the Scottish Government is in full control.

Scotland has one of the highest rates of MS in the world, with more than 11,000 people living with it in the country.

MS stays with you for life, but treatments can help manage the condition and its symptoms.

MS affects almost three times as many women as men.

To receive support or for information on benefits and MS, contact the free MS helpline on 0808 800 8000 or visit the website at mssociety.org.uk

Woman With Asperger’s Removed From BFI For Laughing

May 1, 2018

A woman who has Asperger’s syndrome was “forcibly removed” from a screening of her favourite film by cinema security staff for “laughing too much”.

Tamsin Parker, 25, had been watching western The Good, The Bad and The Ugly at the British Film Institute (BFI) on London’s Southbank on Sunday.

Many cinema-goers walked out in protest at the “disgusting” way she was treated by some audience members and staff.

The BFI has apologised and said it “must do better”.

Lydia Parker, Tamsin’s mother, said her daughter – who was celebrating her 25th birthday – was in “floods of tears” when she picked her up from the security office.

She said she was “shocked and disgusted” about the way Tamsin was “humiliated”.

“There’s clearly a huge lack of awareness about people with autism,” Mrs Parker added.

She said her daughter, who is an animator, had been “so excited” about the screening.

The 1966 film means a lot because, as Ms Parker explained in a video she produced, she identifies with one of the characters.

Lloyd Shepherd, 51, who was at the screening with his son, said Ms Parker laughed very loudly at the “amusing bits” of the film but that it was never “inappropriate”.

The novelist said some audience members began getting “uptight” about the noise and spoke to staff.

He said one man then shouted abuse at Ms Parker, who was with two friends.

Mr Shepherd said security staff “dragged” Ms Parker out, as she told the audience: “I’m sorry, I’ve got Asperger’s.”

Asperger’s is a form of autism and people with the syndrome can find social relationships and communication difficult.

Ms Parker, from Cricklewood, north-west London, was “incredibly upset”, Mr Shepherd said.

He added: “People were applauding the guy who abused her, and they applauded when security took her out.

“Those people need to take a long hard look at themselves in the mirror.”

The BFI said it was “sincerely sorry” and would look into training staff to be more sensitive.

In a statement, it added: “In what was a challenging and complex situation, we got it wrong.

“We can and must do better in accommodating all the needs of our customers.”

Mrs Parker said security staff were “sympathetic” once they realised her daughter had Asperger’s.

But she said her daughter “shouldn’t have to check in” with staff in order to avoid such a “horrible experience”.

Jane Harris, from the National Autistic Society, said she was “shocked”, adding: “With over 700,000 autistic people in the UK, it’s vital that they are able to enjoy going to the cinema just like everyone else.”

Hollyoaks’ Talia Grant Will Be Soap’s First Autistic Actress As Brooke Hathaway

April 30, 2018

More good news we heard while we were offline that we thought was worth sharing:

New character Brooke will arrive on screen this summer, when she’s fostered by the Osborne family. Brooke is autistic and Talia, who identifies as having high-functioning autism, is the first female actress who is autistic to land a mainstream role on British television.

Talia commented: “I am so excited to be joining Hollyoaks. I have met some of the cast and being on set was fun and everyone was super-nice and made me feel welcome.

“For a long while there has been no representation on screen of autistic women, especially autistic women of colour, so I am really looking forward to developing the character of Brooke and representing something that perhaps people are unaware of.”

Lee Ridley- Quickfire Questions For BGT

April 30, 2018

Lee Ridley’s First BGT Audition

April 30, 2018

While Same Difference was offline for most of April, we found out that a comedian our editor loves, Lee Ridley, is participating in the current series of Britain’s Got Talent.

We thought we would share his first audition, just to give you a laugh this Monday morning.

We wish him well for the competition.

On Holiday

April 12, 2018

Same Difference will now be offline for the rest of April as our editor takes a holiday.

The site will return with light posting in early May. Full service will resume in June.

Best wishes

Samedifference1

Claimants Losing Benefits Because Assessors Say There Was Nobody Home

April 11, 2018

After this story was revealed, Benefits And Work members reported some worrying similar experiences:

One poster told us that they had waited in for an assessment with a friend present, but no-one turned up. Our member informed Capita by phone after 15 minutes and was told that the assessor’s phone was switched off.

But Capita subsequently claimed that the assessor had arrived on time, knocked repeatedly and waited 15 minutes before leaving. The assessor also claimed to have phoned the claimants landline twice but had been unable to leave a message, though our member says they have an answerphone. The assessor was able to say what colour the window sills and the front door were.

However, our member was able to obtain CCTV footage from a neighbour which they say shows that no-one knocked on their door at the stated time.

After three months the DWP sent our member’s file back to Capita and an assessment took place at a Capita centre instead.

Another member had a similar experience of an assessor not appearing, but was told by Capita that the assessor had turned up and was able to describe the car on their drive and the colour of their front door.

This member has CCTV footage of the outside their house which they say showed someone driving into their cul-de-sac at the time of the assessment and then reversing straight out again.

These may be isolated incidents based on genuine misunderstandings and mix-ups about times or addresses. Or they may be evidence of something more disturbing: assessors under time pressure doing a drive-by of a claimant’s home and then claiming to have called.

At this point we have no way of knowing, but we would be interested to hear of other readers’ experiences.

DWP Advise Failed PIP Claimants To Try Again, But Admit They Will Still Unlawfully Turn Them Down

April 10, 2018

With many thanks to Benefits And Work.

The DWP is advising claimants who were refused PIP before 28 November 2016 to consider claiming again if they experience overwhelming psychological distress in relation to planning and following journeys. However, in the same document the DWP also admit that they will still unlawfully refuse an award to those who claim again, though they may put right the mistake at a later date.

MH decision

Back in January of this year, we revealed that the DWP had abandoned their attempts to discriminate against claimants with mental health conditions and instead undertaken to abide by the judgement made in a case known as MH.

In MH, the court ruled that changes to the law made by the DWP in March 2017 were unlawful. The changes had been designed to make it it much harder for claimants who have difficulty going out because of overwhelming psychological distress to claim the PIP mobility component.

However, although the DWP withdrew their appeal, they are still not applying the MH judgement at all.

The result is that claimants who are currently making a claim for PIP and who believe that they should get an award, or higher award, of the mobility component because of psychological distress will either have to appeal or wait for the DWP to do their review of 1.6 million claims and hope they are spotted.

The DWP have now issued a set of FAQs dealing with the MH judgement in which they admit that they are still acting unlawfully.

In it, they advise:

“Anyone who was disallowed PIP before 28th November 2016 and has overwhelming psychological distress that they think affects their ability to plan and follow a journey should consider making a new claim.”

However, the DWP say in the same document that they still haven’t written new guidance that takes into account the decision in MH and so they will still be unlawfully refusing PIP mobility to many claimants who suffer from overwhelming psychological distress.

The DWP say that:

“The Government is working to quickly implement the MH Upper Tribunal judgment for new claims. However, if a decision is made on your claim before this new guidance is established and you are affected by the change then your claim will subsequently be identified by the Department and payments will be backdated.”

In fact, far from working quickly, the DWP do not expect the new guidance to be completed until ‘early’ summer and they will not make any awards using the new guidance until summer of this year.

The DWP’s excuse for taking such an extraordinarily long time to rewrite a few pages of guidance is that:

We are currently engaging with a range of stakeholders on the required changes, to ensure this process is dealt with as efficiently and sensitively as possible.

“Whilst this work is being taken forward at pace, it is important that all procedures are followed and necessary steps are taken so the changes can be implemented safely and effectively.”

What this means in reality is that the DWP will continue making decisions that they know and freely admit are wrong, with the intention of looking at all the decisions again and putting them right at a later date.

Perhaps the most important FAQ from our members’ point of view is:

Do previous claimants or current PIP award holders need to do anything? Or should they simply wait for a letter?

“We will write to everyone we identify who is affected by the change. Claimants do not need to contact DWP at this stage.

“If you were disallowed PIP before the 28th November 2016 you should consider making a new claim.”

Whether you trust the DWP to correctly identify everyone who should receive a higher award is another matter.

We will let readers know as soon as the new guidance is published.

You can download the complete set of FAQs from this link.

Many thanks to Daphne for posting them on the Rightsnet forum

ICE Taking Almost 18 Months To Even Begin Investigating Complaints Against DWP

April 10, 2018

With many thanks to Benefits And Work.

Complaints made to the Independent Case Examiner (ICE) about the DWP will not be looked into for almost 18 months, a Benefits and Work member has discovered.

Our member’s complaint against the DWP dates back to the summer of 2016.

Having exhausted the DWP’s complaints procedure our member then lodged a complaint with ICE in January 2018.

However, he was informed in a letter from ICE last month that they are currently only just beginning work on complaints lodged with them in November 2016.

This means that it is likely to be almost a year and a half before our member’s complaint begins to be investigated by ICE. And it could be well over four years since the original complaint to the DWP before a ruling by ICE is made.

The extraordinarily long wait sits uneasily with the latest statistics from ICE, released in January 2018. These claim that in the last quarter of 2018, 72% of complaints were resolved within 8 weeks of accepting them for examination.

However, figures given by Penny Mordaunt last October suggest a massive rise in complaints to the DWP about PIP assessments. They rose from 142 in the year from April 2015 up to 1,391 in the year from April 2016.

A proportion of these complaints may now be working their way through the ICE complaints system, causing an increasing backlog.

We’d be very interested to hear about other members experience of making complaints against the DWP. Please post your comments below.

Ticketing Barriers For Deaf And Disabled Music Fans Highlighted

April 10, 2018

More than 80% of deaf and disabled music fans have experienced problems when booking tickets to live music events, with one in 10 considering legal action over the difficulty of accessing concerts and festivals.

The fourth annual report by Attitude Is Everything, a charity dedicated to improving deaf and disabled people’s access to live music, included the results of their access booking survey, which received 349 responses. Almost 80% of respondents said they had been put off buying tickets due to non-accessible booking systems, with more than 70% saying they felt discriminated against. Thirty-seven per cent said they felt that access to booking had improved over the past four years.

In response to the findings, AIE has formed the Ticketing Without Barriers coalition, comprising more than 130 venues and festivals, over 30 trade bodies, leading ticketing agencies including Ticketmaster and See Tickets, and event promoters such as Live Nation, Festival Republic and AEG Events.

The organisation has identified five key areas where action is required to improve the experience of disabled customers. In order to acquire a complimentary carer’s ticket, disabled patrons are required to produce “proof of disability”, for which there is currently no single system. AIE recommend the creation of a universal policy adopted across the UK music industry.

Disabled fans have reported losing out on tickets to in-demand events – such as Ed Sheeran’s forthcoming arena tour – due to insufficient booking systems only accessible by phone. Fans require all venues and events to provide comprehensive access information online, and the adoption of uniform terminology and disability awareness and inclusive communication training for sales staff, say AIE, while accessibility requirements should be integrated into standard online booking systems.

The organisation also addressed the need for disabled fans to be able to access pre-sales, VIP areas and artist “meet-and-greet” events, and for gift cards to apply to access bookings.

Suzanne Bull MBE, chief executive officer for Attitude Is Everything and a disability sector Champion for Music said: “In 2018, every large-scale music event should be all-inclusive. Disabled customers should be able to buy a ticket online, they should be encouraged to attend shows with their friends, and not have to jump through undignified hoops when things go wrong. As a disabled music fan myself, I’d urge ticket sellers, venues and festivals to understand that all disabled people must enjoy the same experiences as any other fan.”

The report has drawn support from Sarah Newton, the minister for disabled people, health and work, industry bodies UK Music and PRS for Music, the Society of Ticket Agents and Retailers, and musicians including Leeds five-piece Hookworms, who commented: “As we grow as a band and depend more on larger venues and ticketing agencies, it’s essential that our shows remain as inclusive and accessible for disabled fans as we have tried to make them on a smaller scale ourselves. No one should feel discriminated against or face barriers when attending gigs or playing music, and we call on our peers and the music industry to help realise Attitude Is Everything’s vision for ticketing without barriers.”

AIE’s survey highlighted the contribution that disabled audiences make to Britain’s live music industry – worth £1bn a year according to 2017 UK Music figures – with the respondents attending an average of nine performances per year, and spending an estimated £250,000 on tickets, food, drinks and merchandise. Government data suggests that 3.3m disabled adults attend at least one live music event per year.

The report also highlighted disabled fans’ difficulties when accessing tickets across other cultural sectors. AIE intends to convene a new cross-sector group bringing together representatives from music, cinema, theatre, heritage and sport. Arts Council England, UK Theatre and the Disability Co-operative Network for Museums have pledged their support.

DWP Took Photos From Disabled Employee’s Facebook

April 9, 2018

A disabled DWP employee has won a £26,000 payout after his bosses called him a “whinger” and gave him a warning after he ‘nearly died’ at work.

An employment tribunal awarded compensation after finding Barrie Caulcutt had been treated unfairly by his bosses at the Department for Work and Pensions.

The 55-year-old, of Caernarfon, North Wales, cried at the hearing, saying his life and health were ruined by bosses who said he didn’t deserve to be treated nicely.

The father-of-two, who suffers from anxiety, chronic asthma and eczema, had to be rushed to hospital after he suffered an asthma attack at work, the Daily Post reports.

He said felt “relieved and pleased” after the tribunal unanimously found the DWP had discriminated against him by failing to make reasonable adjustments for his disability.

Mr Caulcutt had worked for the DWP for 35 years with an “exemplary” attendance record.

Problems started after he was moved from a backroom finance office to work on the “frontline” in Caernarfon facing claimants who were angry because their benefits were being sanctioned.

Mr Caulcutt said he felt his treatment had been “merciless”, adding: “My life was made hell.”

He was awarded over £26,000 compensation but further claims of harassment and victimisation were dismissed.

Mr Caulcutt, who still works for the DWP and has had successful surgery for prostate cancer, said he was asked to deal with customers despite his deteriorating health and against the advice of his GP and the DWP’s occupational health assessors.

In March 2014, Mr Caulcutt asked to be excused from a training seminar held in a small room because it made him anxious. He had an asthma attack and was rushed to hospital.

“I thought I was dead,” he said.

On his return, he was given a first written warning for taking 2.5 more sick days than allowed, marked down as “could improve” and pressurised to move to work at the Bangor DWP office.

An email sent by DWP manager Bev Lovatt to Caernarfon JobCentre manager Eiddwen Borland in September 2014 said: “Let him whinge like crap and raise it in his ET (Employment Tribunal). He doesn’t deserve us to be nice to him.”

It emerged that DWP bosses had taken photos of Mr Caulcutt and his disabled daughter at Tom Jones and Jessie J concerts in Colwyn Bay from his Facebook page, but DWP barrister David Tinkler denied there had been any “snooping”.

Mr Caulcutt’s wife Ceri said: “It’s been a nightmare. It’s made us all ill; anxious – everybody were really worried about him; what was to become of Barrie. At home, we’ve got children and a disabled daughter who needs looking after. It was one big stress. We’ve all been very upset.”

PCS union representative Peter Doughty, said: “It was callous and cruel to give a written warning to someone who nearly lost his life. I’m pleased for Barrie that he has stood up for his rights and that the tribunal found in his favour.

“It is, however, a sad reflection on the DWP that this case ever went all the way to a tribunal. The costs are a huge amount in comparison to the award. This is taxpayers money.”

A DWP spokesperson said: “We take the welfare of our staff extremely seriously and also expect the highest standards of behaviour from all employees. We will be reviewing the tribunal’s findings.”

Claimant Loses PIP- Because Assessor Didn’t Turn Up To Home Visit

April 9, 2018

A mentally ill woman has had her disability benefits stopped because her assessor failed to turn up to a home visit, leaving her unable to buy basic groceries and suffering high levels of anxiety.

Michelle Moloney, 40, was left hundreds of pounds down after she was informed by the Department for Work and Pensions (DWP) that because she “didn’t go” the assessment her Disability Living Allowance (DLA) would stop and her Personal Independent Payment (PIP) had been refused.

Capita, the company sub-contracted by the government to carry out disability benefit assessments, has since said the assessor arrived at the wrong time and apologised to Ms Moloney that their service “fell short of its high standards”.

Ms Moloney, who lives in Nottinghamshire and suffers from bipolar disorder type 2, severe anxiety, and has a history of self-harm, received a letter from the DWP on 28 February stating that her PIP claim had been refused. 

It went on to state: “This is because you didn’t go to the assessment on 14 February 2018 and we don’t think you’ve given us a good reason for this.”

When Ms Moloney sent a letter of complaint to Capita with the help of a friend, they responded on 14 March saying that based on information they had received from the assessor (“a description of her house”) meant they were “unable to uphold” the complaint.

But after being contacted by The Independent, Capita sent Ms Moloney another email on 28 March stating: “Following a further review of your appointment on 14 February 2018 it became apparent the Disability Assessor attended your property earlier than the scheduled appointment time.

“DWP agreed to send the case back to Capita for a new appointment. I can confirm an appointment has been scheduled for 9.15am on Monday 16 April 2018 at your home address.”

As a result of the error, Ms Moloney missed out on £685 last month, which left her unable to eat properly and suffering from high levels of anxiety.

“I’ve not done my usual online shop. I’ve been living off bread and cheese rather than getting proper food to cook. I’ve been scared to spend money. I cancelled everything that wasn’t a must be paid direct debit,” she told The Independent.

“It’s increased my anxiety levels too, worrying about it and what I was going to do without that money and how long it would take for an appeal to get to a tribunal.

“It has really upset me, more so because they messed up and stopped all my ESA instead of just the severe disability premium on it and I didn’t have any idea what was going on with that. 

“Just losing the DLA, being refused PIP and having to figure out what I needed to do to start the process of appealing was stressful. My mood has dropped a lot.”

Charity Disability Rights UK said they routinely see poor practice in the way disability assessments are carried out, saying it was “unacceptable” that private companies are paid large sums of money to provide this service.

Ken Butler, welfare benefits advisor at the charity, told The Independent: “Time and time again we hear of poor assessment practices when it comes to disability benefits. This has a massive impact on people who qualify but are turned down for benefits because of bad administration and decision making.

“It’s unacceptable that companies like Capita, Atos and Maximus are paid hundreds of millions of pounds every year to provide a service to the public and are allowed to continue with their poor practices. 

“The government should be doing more to hold them to account, and penalising them when they fail to deliver.”

He urged the government to “seriously consider” transferring responsibility for assessments to the public sector, rather than allowing them to be used as a “profit-making exercise”.

“In the meantime, disabled people must fully compensated for any extra costs they’ve incurred as a result of a poor assessment,” he added.

A Capita spokesperson, said: “We apologise to the individual that our service fell short of our high standards. On the rare occasion that this does happen, we investigate thoroughly and work with the person directly to address their issue.”

They added that they had been advised by DWP that her benefits have been reinstated. 

It emerged last month that Capita and Independent Assessment Services (formerly known as Atos) – another private firm contracted by the government to carry out disability assessments – received a £40m increase in funding last year despite widespread concerns with the system.

A freedom of information request by The Independent found the DWP paid the companies nearly £255m last year to perform PIP assessments – the highest amount spent on the scheme since its launch in 2013.

It came after the High Court ruled the system was “blatantly discriminatory” against people with mental health conditions, prompting the Government to announce it will review 1.6 million disability benefit claims. It could see up to 220,000 claimants receive higher payments.

The DWP came under fire last week after an investigation by the National Audit Office revealed the department had underpaid an estimated 70,000 people who transferred to ESA from other benefits over the past seven years.

Tribunals Go Digital- And May Just Be Judgements

April 6, 2018

With many thanks to Benefits And Work.

The cost-cutting agenda behind moving tribunal hearings online has been further exposed in new regulations which will to allow ministers and senior judges to cut the number of people sitting on panels, including social security appeal tribunals.

The First-tier Tribunal and Upper Tribunal (Composition of Tribunal) (Amendment) Order 2018 allows the Senior President of Tribunals (SPT) to decide on the number of panel members for any type of tribunal.

In addition, in the future the SPT has to first consult with a government minister before making any decision.

The government claim that the aim is to make “the use of tribunal panel members should be more tailored and flexible”.

The fear is that the aim is simply to cut costs by ensuring that the vast majority of tribunals have only a judge sitting alone.

At present ESA tribunals have a medical member as well as a judge. PIP and DLA tribunals have a judge, a medical member and a person with specialist knowledge of disability issues.

Under the new rules the SPT could decide that all social security hearings would be heard by a judge sitting alone, with a medical member only in special cases. The use of a disability specialist could be dropped altogether.

Many Benefits and Work readers will be able to tell tales of medical members, and even disability members, of panels who behaved in a distrustful and even hostile manner, whilst the judge appeared to be fair and sympathetic.

But it is equally the case that it is often the medical member who points out flaws in the evidence collected in the face-to-face assessment.

And disability members frequently ask questions touching on the daily lives of claimants which help to make clear the real difficulties they face with everyday activities.

A judge sitting alone may have no lived experience of disability and lack any knowledge of the medical condition at issue.

It is hard to see how there can be any advantage to claimants in reducing the number or range of people sitting on PIP, ESA or DLA appeal panels. But the cost advantages to the government are clear.

More details about the changes to the regulations can be found on the parliament website.

Three strokes, blood clots, fluid on the brain… Declared fit for work, being given the run-around by the DWP. Welcome to DWP hell.

April 6, 2018

Charlotte Hughes's avatarThe poor side of life

Hi readers, for once the blog is relatively on time so I don’t need to apologise this week. Its the school holidays so there’s no need  for me to hang around waiting to collect my daughter.

Huzzah! We had sunshine albeit still cold, which was far more welcoming than the awful rain that keeps coming our way. We were still low on numbers this week which was a massive shame. Its hard work but the appearance of comrades from Shaw cheered me up. If you are local to Ashton Under Lyne please come and say hello!

A bit of good news, our latest run of leaflets should be with me next week, I’m running extremely low on these and today was a close call.

We also handed out six food parcels to everyone that needed one plus four extra from our Shaw comrades.

As usual I will go through in…

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DWP is facing investigation following the suicide of 42-year-old mum of ninee

April 5, 2018

Kitty S Jones's avatarPolitics and Insights

Jodey Whiting’s mother, Joy Dove, with Jodey’s daughter Emma Bell (Image: Ian McIntyre)

The Department for Work and Pensions (DWP) is facing a legal investigation after a mother of nine took her own life “because the DWP stopped her benefits”. 

Jodey Whiting, who suffered severely disabling medical conditions, ended her own life in February 2017, shortly after the DWP stopped her disability support payments. The payments stopped because was claimed by the DWP that Jodey failed to attend a work capability assessment (WCA).

However, her family claims that she never received the appointment letter and is blaming the Government for her suicide.

The 42-year-old grandmother was diagnosed with a brain cyst and curvature of the spine and could barely walk to her own front door, but an inquest has heard that despite her  disabilities, Jodey Whiting faced a distressing battle with the DWP for lifeline benefits.

Supported by volunteers from…

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Disabled Passengers: Don’t Even Think About Using The Toilet

April 5, 2018

Wheelchair user Jemma Collins recalls how her dream holiday ended in bruises and humiliation when she was manhandled off a plane.

Campaigner Christopher Wood, who has two disabled children, is lobbying airlines to create a wheelchair space on aircraft.

Ministers outline plan for disabled people’s air travel

YOU Can Prevent The DWP Interfering In The Patient/Doctor Relationship

April 5, 2018

Staff Have 15 Minutes To Read Medical Histories Before PIP Interviews Says Whistleblower

April 5, 2018

A former benefits assessor today exposes the grim world of the Tories’ “unfair” and “ethically questionable” disability regime.

Staff have just 15 minutes to read claimants’ medical history before interviewing them for vital Personal Independence Payment (PIP), the whistleblower said.

And the process is such a “relentless conveyer belt” that they skip toilet and lunch breaks – just to get “10 seconds” back in the day.

PIP, worth £22 to £141 a week, is meant to be a fairer way for 1.6million disabled people meet everyday costs.

But in a Mirror interview, the healthcare professional said they saw vulnerable people through “two worlds – the real world and the PIP world.”

Rigid and “uneven” rules meant some people who obviously needed help were denied the benefit, the assessor claimed.

And some staff were reluctant to score claimants higher – because they could be “told to change” their decision by bosses.

“For staff it’s probably relentless, for claimants it’s probably unfair, and as a professional I think it just needs improving,” the expert told us.

“I think the process was questionable from a clinical point of view.

“If I got my code of ethics out, there were things I was having difficulty reasoning in my head.”

Our source worked for a number of years for outsourcing giant Atos, which the government has paid more than £480million to assess people for PIP since 2013.

PIP is replacing the old Disability Living Allowance – but campaigners say assessments for the new benefit are unfit for purpose.

Of 947,000 people moving from DLA to PIP, almost half (46%) had their payments downgraded or stopped.

Our source, who resigned amid concerns over the “unpleasant” system, told us the “intense” and “frustrating” daily routine for staff had an effect on claimants.

They said: “You’re basically given four slots a day and those slots are fixed. You don’t organise your own diary.”

That left 15 to 30 minutes to read claimants’ medical history before starting an assessment, the source said – if the centre was not overbooked that day.

Some claimants had just an application form and GP’s letter. But sometimes “you think great, I’ve got 15, 20, 80 bits – I’ve had 80 bits of evidence before – how am I going to read through that?

“Atos won’t say ‘we give them 15 minutes or half an hour to read through’, they would just say ‘we’ll give them as long as they need’.

“But in reality, if I’ve got a 9am appointment, I know at 11am I’ve got somebody [else] coming in.”

Our expert said appointments last 45 minutes to an hour, and guidance was to spend 105 minutes on each claimant’s case.

But if someone needed an interpreter or had complications, “booking times go out the window”.

“I could have somebody come in with arthritis on their big toe and somebody come in with multiple mental health conditions,” the source said.

“You generally get the same slot.”

The assessor claimed staff were so pressed for the time that they would skip lunch and toilet breaks.

“You look for 10 seconds, anything you can grab, because you know you’re going to be pushed,” they added.

The second problem was the rigid criteria to decide if people were disabled enough.

“We’ll have two worlds – there’s the real world and the PIP world,” the assessor said.

“In the real world, you think right, I know they will find it difficult to get dressed.

“But because the definitions are so specific, it’s sometimes difficult to award them a higher level.”

Shocking blunders in the past have led to questions over assessors’ competence.

One claimant with no dog who couldn’t walk was told they regularly walked their dog. Another was asked: “When did you catch Down’s syndrome?”

Our source insisted staff were highly-trained as nurses, paramedics, physiotherapists or occupational therapists, with pay starting around £30,000.

Instead the assessor blamed the scoring system – and audits that check it’s being followed.

Atos assessors give people ‘points’ for everyday tasks they can’t do. If someone scores below eight, the Department for Work and Pensions (DWP) denies them the benefit.

But assessors can have their reports “amended” by superiors – and if it happens too often, they are put on a performance review.

The assessor agreed it was right to check reports but said the process was “uneven”.

“It goes both ways,” our source said. “I’ve had reports back where auditors have told me to score higher. But I’ve also had reports where they’ve told me to score lower.

“What I’ve found is, more often than not, it’s more difficult to score people higher. I think it’s uneven.”

Our source added: “You’re getting this stuff sent back and you’re thinking God, I really know this person needs assistance. No way they can do it.

“And it will be sent back and an auditor will basically be telling you ‘no, that’s not the case’.

“What they’ll do is they’ll pick some other evidence in the report that supports their point.

“In my opinion that evidence is sometimes weaker. But you’re essentially told to change it.”

They said it took a toll on staff saying: “It’s led to so many colleagues leaving. On a daily basis it drives people nuts.”

A spokesman for Atos’ PIP arm Independent Assessment Services said: “We listen carefully to all feedback provided by those being assessed, and continually adjust our service to help deliver an enhanced experience for all involved.

“Our Health Professionals (HPs) are able to take as long as they need to understand a claimant’s health condition or disability.

“All assessments are conducted in accordance with DWP policy, and there is no incentive or encouragement given to HPs to conduct an assessment in any way that would lead to a certain outcome.”

A DWP spokeswoman said: “Assessments work for the majority of people, with 87% of PIPclaimants telling us that they’re happy with their overall experience.

“But one person’s poor experience of PIP is one too many, and we’re committed to continuously improving the process for claimants.

“We expect the highest standards from our assessment providers, and we work closely with them to ensure that all claimants receive objective, accurate and high quality assessments.”

“The stress of it froze me to the spot and I cried”

Janet Roberts burst into tears when she opened the letter that slashed her benefits in 2016.

The gran-of-two had been unable to work for four years after being diagnosed with Parkinson’s aged 44.

But after an hour-long assessment for PIP at her St Albans home, her mobility payments were cut – from the full rate under the old DLA benefit to zero.

Janet faced losing her adapted Motability car on her 30th wedding anniversary to husband Aubrey, 76.

But to her relief a DWP internal appeal restored her benefits with days to spare.

The former NHS microbiologist, now 57, told the Mirror: “I just couldn’t believe it.

“The stress of it froze me to the spot and I cried, because it was going to make such a difference to my quality of life.

“I had been living with this condition for 10 years. It is a rotten condition that greatly takes away all sorts of bits of your body and relationships.

“To decide it was nothing felt like a real insult.”

Janet claimed the assessment was “not fit for purpose” because it didn’t account properly for her condition changing from one hour to the next.

She said: “They ask how far you can walk. When my medication’s working I can walk reasonably far – but there’s six or seven times a day when I basically can’t move.”

She added: “I had taken my medication at the right time so I was in my optimum physical state when I was there.

“I said ‘if you wait ten minutes you will see me in the off state’ but the reply was ‘I don’t need to’.”

PIP is paid in two parts, ‘mobility’ and ‘daily living’, and following her appeal Janet now gets both.

But she feared she had lost her mobility payments for around four months while the appeal went through. Thousands wait longer because they appeal to an independent tribunal.

Janet helped charity Parkinson’s UK hand a 33,000-strong petition to Downing Street last month calling for reform to the assessment process m.

She said the system can be “brutal”, adding: “There needs to be a certain amount of individualism.

“It’s almost like disabled people sometimes are [treated] like a different species – but we’re human beings with real struggles.”

Disabled British Man Held In Immigration Removal Centre For Four Months

April 5, 2018

A 53-year-old disabled British man who was born in the UK and says he has never travelled abroad has been held in an immigration removal centre for the past four months, the Guardian has learned.

Paul Tate is in a wheelchair after a stroke and has diabetes, asthma and high blood pressure. He applied for bail last week but the judge who considered his application refused to free him, saying: “He says he is a British citizen but has done nothing to prove it.”

Tate’s solicitor has begun legal proceedings aDogainst the Home Office for unlawful detention and says his client is desperate to be released.

The Guardian has recently reported on cases of people born overseas who have lived most of their lives in the UK but are facing removal because their immigration status was not formalised decades ago.

However, Tate insists he was born in Bangor, north Wales, and that he has never left the UK. Human rights campaigners and lawyers have expressed concern that British citizens who may not have a passport are being targeted for removal by immigration officials.

Home Office sources say Tate told them he was a US citizen, but he denies ever saying this. According to his lawyers, the Home Office made a request to US authorities for an emergency travel document for him in December 2017.

In January the US refused to provide one, saying it had no record of Tate being a US citizen. However, more than two months later Tate is still locked up.

He is being held at Morton Hall in Lincolnshire, a 392-unit immigration removal centre run by the prison service for the Home Office, after serving a 12-month prison sentence for grievous bodily harm.

During last week’s bail hearing by videolink, Tate said: “I will die in here.” Had he not been held in an immigration removal centre after completing his sentence, Tate would have been able to access support from the probation service to reintegrate into society and reduce his risk of reoffending.

Tate’s name was changed from that on his birth certificate when he was adopted as a child. His solicitor is working with members of Tate’s family to obtain documents to prove he is a British citizen.

The human rights lawyer Shoaib Khan asked the Home Office how many cases it had of British nationals being detained in immigration removal centres. The Home Office told Khan that although British nationals were not subject to immigration control, there may be some cases where they were detained while their identity was established, but it could not provide a number of these cases because the information was not recorded centrally.

Tate’s solicitor, Hamish Arnott, of Bhatt Murphy solicitors, said his client insisted he was a British citizen with no connection to any other country and had never left the UK.

“The notion of him being removable is fanciful. He is taking legal proceedings to obtain his release,” Arnott said.

Celia Clarke, the director of the charity Bail for Immigration Detainees, said: “The complete lack of oversight of decisions to detain and to maintain detention, coupled with the avowedly hostile environment, means that anyone with any perceived connection with any other country, be they long-term residents or even British citizens, is now fair game for detention and deportation. This is completely scandalous and the only way to stop it is to end detention completely.”

A Home Office spokesperson said: “We expect those with no basis of stay to leave voluntarily. Where they do not we will enforce their removal – this includes foreign criminals of whom we returned almost 6,000 last year.”

Terminally Ill People Lose Their Benefits Because They Haven’t Died Quickly Enough

April 4, 2018

UC Claimant Sanctioned For Taking Annual Leave

April 3, 2018

DWP Questions Left Man With CP Feeling Less Than Human

April 3, 2018

This letter was recently sent to the Guardian. It is well worth a read for anyone who follows benefit related stories.

BREAKING NEWS: Sunday, April 1st 2018

April 1, 2018

Eggs Cure Cerebral Palsy- Bobath News

 

Dear parents and patients, we interrupt your Easter weekend with this very special edition of Bobath News to bring you a very special newsflash. Today being Easter Sunday, we felt it would be a very appropriate time to inform you all of our latest amazing discovery. Eggs cure Cerebral Palsy!

Our excellent team of Bobath Tutors have discovered this amazing fact after a year of interviews with patients and their families, who report that eating one full egg every day for a year leads all symptoms of Cerebral Palsy to miraculously and completely disappear. Have no fear- every type of egg appears to have the same effect, so whether you like them boiled, scrambled or fried, this will be one cure every patient will enjoy the taste of!

So, at midday on this Easter Sunday, April 1st, the staff of The Bobath Centre will be doing something we have never done before. We’ll be hosting an Easter Mass in the Centre’s garden, led by our local Catholic priest, Father Harry Potter. Afterwards, we will hand out a year’s supply of free eggs to every family that attends Mass. Please feel free to bring along any non-disabled younger siblings, as we will be happy to provide them with free chocolate Easter eggs. We advise against giving these to your disabled child, however, as they sadly won’t contribute to curing Cerebral Palsy.

After Mass, we will be providing all our guests with a closing down lunch made up of egg fried rice, egg sandwiches, boiled eggs, fried eggs and scrambled eggs.  All our staff will then retire from physiotherapy and prepare to start new lives on farms around the world, where we’ll be collecting eggs and selling them at reduced prices to families of people with Cerebral Palsy. This will allow us to continue our lifelong mission of treatment, without too much hard work!

Rachael Monk Wins Refund From British Airways

March 30, 2018

This is good news, but it’s not enough. Policies and customer services do need to change at all airlines.

A disabled woman who was told she would have to buy a new airline ticket after one of her carers resigned has been given a refund by British Airways.

The airline was contacted by the BBC’s Victoria Derbyshire show before Rachel Monk, from Annan, Dumfries and Galloway, shared her story.

Ms Monk, who has cerebral palsy, was unable to change the name on the ticket despite having cancellation insurance.

Shortly before her TV appearance BA confirmed it would issue a £780 refund.

She booked the tickets for a trip to Canada to see her best friend in advance, in order to save money.

However, Ms Monk’s plans were thrown into disarray when one of her two carers resigned at short notice.

She was then told the cancellation insurance she had purchased did not cover her specific situation.

‘Dark cloud’

Ms Monk told the programme: “It would appear that BA are set out to get as much money from their passengers as they can despite the circumstances.

“I require help with all aspects of my life, including feeding, communication and personal care – absolutely everything, even scratching my nose.”

As the prices started to increase Ms Monk bought another ticket for her new carer.

That has has now been refunded by the airline but Ms Monk said it was “more than a coincidence” BA announced the “goodwill gesture” shortly before she was due to appear on TV to discuss the situation.

She said: “BA have cast a very dark cloud over a holiday that I have saved hard for.

“This fight is no longer about the money – it’s about the principle of the matter and the problems that are faced by people who are disabled.”

BA said in a statement: “We have offered Ms Monk a full refund so she is not out of pocket.

“Over a million customers with disabilities chose to fly with us every year and we take our responsibilities to them seriously.

“We seek feedback from customers and disability advisory groups…and offer a range of refundable options.”

YouGov Have Updated Their Question On Voting

March 29, 2018

They have removed benefit claimants from the list of options:

https://twitter.com/1_D_Ded/status/979051965941469184

This means a lot to our editor. It is proof that campaigning can be successful, and it is proof of the power of social media.

CP Won’t Stop Daniel Becoming A Lawyer

March 28, 2018

Daniel Holt has a law degree, an ambition to be a barrister – and cerebral palsy.

He says his speech impediment has been seen by some in the UK as an issue but that he will fight to work in the only career that has ever interested him.

We spent the day with him as he waited for the results of a crucial exam.

YouGov Response To The Question About Whether Benefit Claimants Should Be Allowed To Vote

March 28, 2018

Yesterday, our story about YouGov’s poll question about whether benefit claimants should be allowed to vote was picked up by two well respected political websites, Evolve Politics and The Canary.

As part of their excellent article on the subject, The Canary managed to get a response from a YouGov spokesperson who said:

 

This question was asked for an academic client for use in an academic study. Our job is to measure public opinion and this includes asking questions about things that some people will be uncomfortable with. These tend to be for academic and pressure group clients who are looking to explore and counter the views they are asking about. This is the case in this instance.

 

Same Difference fully agrees with The Canary who go on to say:

In the UK, we have mainstream media peddling stereotypes that people on benefits are scroungers. Now, YouGov has included benefit claimants in a poll asking who should be denied the vote. Even if it’s for “academic study”, this could further fuel stigma against people who use the welfare system.

 Academic study or not, Same Difference is outraged by the question. It should never have been asked in the first place. We would like to add that, considering that YouGov keep records on each person who takes their emailed surveys, we feel that the fact that they sent the question to someone who has previously told them she claims benefits, our editor, only makes the situation worse.

 

 

Concerns Raised About DWP’s Mandatory Reconsideration Forms

March 27, 2018

With many thanks to Benefits And Work.

Concerns have been raised by a welfare benefits specialist about misleading information in a DWP form.

Earlier this month we wrote about the DWP mandatory reconsideration form they don’t want you to use.

The 7 page form can be downloaded to your computer, filled in and then printed off, signed and sent to the DWP.

However, the form also tries to encourage people to phone and make a verbal request rather than complete the form. This is something we would strongly advise people not to do as it means you have no evidence of what you said or even of whether you asked for a reconsideration at all.

Since publishing the article we’ve been contacted by Neil Bateman, a specialist adviser in welfare rights and social policy.

He points out another troubling aspect of the form. On page three it encourages people to ask for an explanation before challenging a decision, because “This can be much quicker and if we find a mistake, we will look at our decision again.”

The next section goes on to say:

“If you’ve had the decision explained to you but still don’t agree with it, you can ask for a Mandatory Reconsideration.”

In fact, we have always advised people not to ask for an explanation because it can be used by the DWP as an opportunity to try to talk claimants out of challenging their decision.

But Neil is concerned that the form gives the impression that you can only ask for a reconsideration after you’ve had an explanation.

And indeed, in the past, claimants have wrongly been told by the DWP that they will cannot accept a mandatory reconsideration request unless the claimant has had an explanation of the decision first.

Neil told us:

“I thought we had killed off this bit of unlawful, obstructive behaviour a few years ago, but like an insidious virus, it recurs.

“It has been raised very recently with DWP via one of the policy fora and a response is awaited, but I thought you and your readers might be interested.”

So, please do be aware that there is no legal requirement to ask for an explanation prior to asking for a mandatory reconsideration, no matter how much the DWP would like you to believe otherwise.

Petition To YouGov Against Their Question On Whether Benefit Claimants Should Be Allowed To Vote

March 27, 2018

Following on from our post yesterday  which appears to have gone viral worldwide, reader Maria Tracey started the following petition:

You Gov recently published a poll calling into question the right of benefit claimants to vote.

We demand You Gov retract and apologise for this poll.

Further clarity :
Same Difference (samedifference1.com) shared a poll from You Gov market research stating the following ..

“Please say whether you think each of the following groups should or should not be allowed to vote in General Elections in the UK (Should be allowed to vote / Should NOT be allowed to vote / Don’t know)

Non-British citizens living in the UK ;

British citizens currently serving jail sentences;

British citizens aged 16 and 17;

British citizens who receive more money from welfare benefits than they pay in taxes”.

Why is this important?

Benefit claimants are the largest section in society to be living in, or at risk of, poverty. This group of people are more likely to vote Labour.

Calling into question their right to vote undermines democracy and normalises the view held by many that they are separate underclass who simply do not count. This is an outrageous affront to free speech and would set a worryingly dangerous precedent, as other societal groups could then be denied a voice as a result.

We discovered the petition late last night, and immediately signed it with great pleasure.

We would like to thank Maria Tracey very much for starting it. Here’s hoping her petition goes as viral as our post.

 

Ben Gleeson, 11, Wins £42000 From Scouts After Autism Discrimination Claim

March 27, 2018

An 11-year-old boy has received £42,000 in compensation after his family said his cub scout group discriminated against him for having autism.

Ben Gleeson joined a group in Hertfordshire in 2015, but was later told he could not go to camps or take part in athletics without supervision.

His family sued the group – saying it amounted to a ban – and the dispute was settled out of court last year.

The Scout Association said it had apologised and started an inquiry.

Ben joined the 10th Harpenden Scout Group in January 2015, having previously been a member of the beavers.

His parents said they explained his autism to the scout leaders and suggested strategies to help calm and distract him, should he get upset.

They said his autism manifested as anxiety to change and that he needed to know plans in advance.

They said that although few people would realise he was autistic on first meeting him, if something unpredictable happened he could become distressed.

‘Complete overreaction’

In March 2016, Ben had a short episode at a cub scout camp in which he became distressed. He tried to run a short distance from the rest of the group at an indoor venue after he was asked to change into a pair of shoes he could not find.

Later, he said he did not want to join an egg-and-spoon race because of a phobia of spoons.

Soon afterwards, the pack leaders said Ben could not travel with the rest of the group on a bus to events or participate in athletics. They also said he had to have one-to-one supervision at other events.

The scout group said the decision had been made for the health and safety of the whole pack.

However, Ben’s parents – who are both lawyers – argued the decision effectively amounted to a ban.

While she accepted her son needed some extra support, Ben’s mum, Beverly Gleeson, told the BBC the decision was a “complete overreaction”.

She said: “Pretty much every event had to be supervised on a one-to-one basis, which I felt wasn’t inclusive.”

She said the decision would “single Ben out” and that she feared it would make him “feel different”.

“I felt he didn’t need it. He didn’t have this level of supervision at school. He’d made one mistake and then that was it, they wanted to make the rules and regulations. It was supposed to be a dialogue,” she added.

Ben, who said he enjoyed being with his friends and taking part in the activities, added: “It was quite upsetting, my friends were there and I quite enjoyed it.”

“I don’t like the idea of someone following me all the time,” he added.

The family’s solicitor, Chris Fry of Fry Law, said: “I am pretty sure no one goes into scouting looking to exclude anyone. Those giving up their time need to know that they are properly trained and that they are protected by the organisation that they love and serve.

“The organisation needs to anticipate that scouts with autism need reasonable adjustments so they can access activities in the same way as other children.”

The family eventually sued under the Equality Act, as well as for breach of privacy and under data protection legislation – claiming emails and a briefing to parents had identified them.

Insurers for the Scout Association settled the case out of court, paying the Gleeson family £42,000 plus costs.

The Gleesons have donated some of the money to a local autism charity, while Ben’s portion is being held in a trust.

The 10th Harpenden Scout Group disputed some of the family’s claims.

Ms Gleeson said it was only after the BBC had become involved that the Scout’s national headquarters apologised to them.

In a statement, the Scout Association said: “The handling of Ben’s case was completely unacceptable.

“We are very sorry that Ben and his family were not supported as they should have been by their cub scout pack, and we have made a personal apology to them.

“While cases like this are very unusual, we know that action must be taken. We have established an inquiry to investigate what went wrong in this case.”

The association said it was also looking at plans for mandatory training for all adult volunteers on “how to make reasonable adjustments for young people with developmental disabilities”.

Heathrow Rules Out Compensation For Disabled Passengers

March 27, 2018

Disabled passengers who are stranded on planes at Heathrow airport will not be compensated, its chief executive says.

The BBC’s Frank Gardner criticised the airport after he was left waiting for 100 minutes because his wheelchair had been misplaced by ground staff.

CEO John Holland-Kaye said: “I don’t think it’s reasonable that we should take financial responsibility.”

He said Heathrow would aim to help disabled passengers off the plane within 20 minutes of landing.

On Saturday, the BBC’s security correspondent said that airports would only listen to disabled passengers if there was a financial penalty.

He has used a wheelchair since being shot six times by militants while reporting in Saudi Arabia, in 2004.

Mr Gardner told BBC Radio 4’s Today programme that Heathrow was not the only UK airport where he had experienced problems disembarking.

He described one “extreme case” where a captain and first officer had to carry him off a plane because, after an hour of waiting, the only exit was via a staircase.

20-minute target

In an exclusive interview with Stephen Nolan on BBC Radio 5 live, Mr Holland-Kaye committed to a new target for disabled people to be disembarked from aircraft.

He said Heathrow will now be working to a standard of “20 minutes”, after taking advice from Mr Gardner.

He clarified this would be “20 minutes after everybody else has got off” the aircraft.

Speaking to the Today programme, Mr Holland-Kaye added: “We have invested significantly over the past 12 months to improve the service [for people with disabilities].

“[The airport has] over 250 new people to support them, new equipment but also training better in how to support people, not just with physical disabilities but with hidden disabilities.”

He added: “We are not perfect yet. We are much, much better than we were 12 months ago but we have a long way to go.”

Roberto Castiglioni, chair of the Heathrow Access Advisory Group, which was established by the airport to help improve accessibility and inclusion, said the “simple solution” was to introduce legislation to ensure correct procedures are in place at airports.

He added that airlines needed to share responsibility for failings.

“Some airlines do it better than others,” said Mr Castiglioni.

“[Mr Gardner] clearly mentioned that when he travels [with] British Airways he doesn’t have this problem, so it’s a matter of getting all airlines at the same level.”

On Saturday the Stephen Nolan programme was inundated with calls, texts and emails from listeners who reported major problems when travelling through airports across the UK.

One caller, Anne, highlighted that wheelchairs went missing for her and a group of six companions. Adam spoke of his mother being forced to walk from an aircraft, resulting in her being hospitalised.

Mr Holland-Kaye compared his job to that of the “mayor of a city” and promised to fix flaws in Heathrow’s provision for disabled passengers.

‘Best airport in the world’

He said the airport needed to make sure it had the right information on passengers, to ensure the correct help was available once a plane had landed.

He explained that, in the case of the BBC journalist, the wheelchair had been mislabelled and therefore did not go to the correct gate.

Mr Holland-Kaye said he would be using Heathrow’s influence to help airlines and their handlers improve their service and prevent such situations occurring in the future.

He apologised to any other passengers who have had a poor experience, and encouraged those affected to get in touch.

He said Heathrow Airport is “committed to making sure that any passengers travelling through Heathrow will have a good experience, and will be treated with dignity and respect.”

“We want to be seen as the best airport in the world for passenger service. We’ve made huge improvements, but clearly we have more to do, and I’m committed to doing that.”

 

YouGov Are Asking Whether Benefit Claimants Should Be Allowed To Vote

March 26, 2018

Same Difference is deeply upset by this YouGov poll question. Of course, we answered that benefit claimants should be allowed to vote.

A Disabled Woman’s Experience With British Airways

March 26, 2018

The story of reader Alex Thorburn, reader Rachael Monk and British Airways.

I have had the privilege of being friend, advocate and advisor to Rachael Monk for just over 20 years and during that time we have fought and won many battles together.

Rachael was born with Cerebral Palsy and as a result she cannot control any of her limbs and has no verbal speech.

However, Rachael uses a talker to aid communication.

Rachael’s experience with British Airways:

Steph has been her great friend and confidante for as long as I can remember, and it was really difficult when Steph moved to Canada to begin family life over there.

However, Rachael flies over to Calgary as often as she can financially manage to do so, and Steph has also come back to visit Rachael.

They have a bond and love that will never diminish with time.

So, early in 2017, Rachael began to make plans to visit Steph and her family in Canada.

She began to save for the trip because the costs are substantially higher than would be the case if Rachael was not a disabled person.

Travelling as a disabled person who requires support in order to fly as well as being hugely expensive also takes a massive amount of forethought and planning.

As airline tickets are often cheaper if purchased well in advance, Rachael first discussed this with her PAs.

Two of the PAs agreed to travel with Rachael to provide support during the journeys and when she was in Canada.

Dates for the journey were discussed with the two PAs and they finally settled on 30th April 2018 as their departure date.

So, in July 2017, Rachael bought the 3 tickets for herself and her two PAs that had promised to be available to provide her with the support that she required.

The total sum that Rachael had to pay was therefore £460 x 3 = £1,380.

Further planning and preparation could then go ahead as they knew the timescales involved.  All was well until without warning and without providing any notice, one of the two PAs that had promised to fly with Rachael to give the necessary support left Rachael’s employ.

This left Rachael feeling very betrayed and abandoned.  However, with almost 4 months still to go before the trip to Canada it should be a simple task for British Airways to change the name on the ticket to allow another of her PAs to take the place of the one that left.

Rachael’s Senior PA – Michelle, (who had agreed to travel) called British Airways Customer Service to have them simply change the name on the flight ticket to another PA who had agreed to step in and replace the PA who so abruptly left Rachael and for Rachael to pick up the pieces.

However, that was where Rachael’s problems with British Airways began in earnest.

BA refused to change the name on the ticket to allow the substitute PA to fly with Rachael and they told her that Rachael would have to buy a new ticket for the substitute PA.

This meant that Rachael would lose the £460 that she had paid for the ticket to take the PA who left her employ.

That was when Rachael contacted me. I immediately wrote to all 5 of the senior Executives at British Airways HQ, explaining this problem and how it had impacted on Rachael.   No reply came from BA to those 5 letters.

By this time, Rachael was very stressed and worried that due to the intransigence of BA she may not be able to visit her best friend Steph in Canada.

Rachael was also very concerned that if she had fallen into this trap of a discriminatory policy in BA that many other disabled people who require support to fly with BA could also fall into this same trap.

This was why I was asked by Rachael to publicise the fact that others could be negatively affected by BA’s discriminatory policies.

So, I posted to the Facebook page “British Airways Complaints” and with a picture of Rachael and Steph I told the story of how someone who requires 24 hours support from 2 PAs is set to lose £460 simply because BA would not make a basic administrative action by changing the name on a ticket.

It was at this point that Michelle (Rachael’s senior PA) looked at the cost of Rachael having to purchase yet another ticket for the substitute PA and was shocked to discover that the price had rocketed upwards to £670.

This meant that the trip to Canada that was already in severe jeopardy was now critical and Rachael was left in a complete “Catch 22” situation – should she buy another ticket now, in case the cost increased yet further, or wait and hope that the price would fall.

When Michelle checked the cost 2 days later, the price had again increased to £780.

Rachael was now pressured into buying a ticket at £780 or risk losing everything!

This in effect meant that Rachael had lost the cost of the original ticket at a cost of £460 and now had another £780 to add to that amount.

The price comparison between what a non-disabled person would pay for the same flight to Canada is nothing short of perverse.

Non-disabled customer of BA                                           £460

Rachael who requires support of 2 PAs                          £2,160

So, despite already having to pay 3 times the amount of a non-disabled person for the same flight, Rachael is to be further penalised simply because one of her PAs left her and BA refuse to undertake a simple name change on a flight ticket.

Rachael was once an advisor to the Disability Rights Commission and has now helped to advise the Scottish Government and will always fight discrimination against disabled people in all of its forms.

She now believes that BA has made no “reasonable adjustment” for her as a disabled person and is currently investigating the possibility of a test court case to decide on whether or not BA is being discriminatory in be so inflexible with its strict adherence to a policy that can so negatively impact upon disabled customers who require support to enable them to travel.

One week after I posted on the Facebook British Airways Complaints page, my post about Rachael’s treatment by BA had been shared almost 8,000 times.

AviRate is a company that monitors everything related to airlines throughout the world and rate them for safety and quality.  When they read of Rachael’s experience at the hands of British Airways, they downrated BA for quality to a one star carrier and overall if BA lose further points, they will be downgraded from a 3-star to a 2-star carrier.

The supportive messages for Rachael have really helped cheer her up a bit but they have also strengthened her resolve to have this presented in a court for a final judgement.

With the support of the press, we contacted the Equality and Human Rights Commission (EHRC) regarding Rachael and her problems with BA.

The CEO of EHRC stated that it would seem that in Rachael’s case BA has made no attempt at a “reasonable adjustment” under the terms of the Equality Act 2010 and would like to see her take this forward for a decision in court.

Offers of help for Rachael have poured in via many electronic routes and many of those offers will be extremely useful as Rachael moves towards a definitive court decision on this matter.

Apparently, this is much bigger than just British Airways as all of the major airlines employ an identically inflexible policy and therefore the numbers of disabled people involved world-wide will be quite significant.

Of course, this would also mean that Rachael is not taking on just BA but all of the major carriers.

This does not faze Rachael in any way as she has fought and won numerous battles over the years against discrimination in all its pernicious forms.

Even if Rachael can manage to come to an agreed settlement with BA, she will still be pressing forward for this to apply to all of her disabled peers.

Finally, Rachael wishes to let all of the people who have wished her well, supported her and offered other assistance, know that she is extremely grateful for everyone’s interest and any actions that they can take to spread this information throughout the world.

Alex and Rachael have the support and best wishes of Same Difference in their battle with British Airways.

Make Scoliosis Screening Compulsory In All UK Schools

March 26, 2018

Same Difference has been asked to publicise the following petition. This is an important cause, please join us in signing.

It is estimated 4 out of every 1000 children in the UK have scoliosis. Once a curve reaches 40 degrees, spinal fusion surgery is the only option for treatment. Introducing a screening program into schools would reduce the number of patients undergoing major, invasive, life changing surgery.

 

More details

Around half of US States have compulsory screening in schools, the program is FREE other than a small cost to train a member of staff to be able to carry out the basic “Forward Bend” test. This is a simple solution to a massive, and growing, problem in our society. By catching scoliosis early, the options for treatment is wider and the life of the affected child would be less impacted. The overall cost on the NHS would be lower as each operation for the surgery alone costs in excess of £10,000.

 

 

Ruqsana Begum- British Asian Disabled Female Kickboxer

March 23, 2018

A British Bangladeshi woman who tackled a strict religious upbringing, escaped a disastrous arranged marriage, and was then diagnosed with a debilitating health condition – all before becoming a kickboxing world champion.

This is not script from a Hollywood movie, it is the real-life story of Londoner Ruqsana Begum.

Despite standing just 5ft 2in, Begum has punched, elbowed and kicked down cultural barriers and personal adversity to reach the pinnacle of her sport – and is not finished yet.

“I had a very a strict Muslim upbringing,” she said. “My family were very protective of me. So I felt like I couldn’t tell them I was training in combat sports, because I thought they wouldn’t allow me to. I was worried I would have to choose either the sport I fell in love with or my family.”

Fifteen years ago, while studying architecture at Westminster University, Begum found a way to express herself – with Thai boxing, a form of kickboxing.

By the time she was 19, she had won her first competitive event. But, despite her passion for the sport growing, she kept it secret from her family for five years.

She said: “When I was younger I used to get up extra early on a Sunday morning, make sure all the house chores were done, keep my mum super happy and then ask her, really politely: ‘Mum can I go to the gym for an hour?’

“Then I’d rush to the gym, get my training in Muay Thai done and run back home. My family didn’t know what I was doing there.

“I just fell in love with the sport, I had such a confined upbringing that I finally found an outlet to express myself, but I was definitely leading a double life.

“When I started competing, I wanted my family’s blessing. I didn’t want to go behind their back any more. I wanted my mum’s prayers”

But the journey to acceptance was to be far more difficult then she imagined. For many British Asian women the early twenties spawn marriage pressure, and her situation was no different.

“Once I finished university I had an arranged marriage which failed miserably,” she said. “That led me to a low patch in my life and at that point I felt like I lost my identity.”

Her fighting career suffered a further setback in 2010 when she was diagnosed with ME (Myalgic Encephalomyelitis), an illness she says she has been able to manage with a strict diet and training regime.

“My coach told me to see a specialist when we realised after one good training session I’d be in bed for a month,” she said. “I knew I was not a lazy person, so something had to be wrong.”

Barriers that my have stopped many in their tracks were smashed to pieces by the determined fighter who dreamed of world honours.

“After my arranged marriage ended, I decided to take my parents to the gym without telling them where I was taking them,” she said.

“Once they saw what I was doing at the gym, they took a step back and gave me their silent consent. They just wanted their daughter back. They felt guilty about what happened to me in my marriage. From there, I continued my journey as a Muay Thai kickboxer.”

Not only did she continue, in 2016 she made history, defeating Sweden’s Susanna Salmijarvi to become the first British Muslim woman to win a kickboxing world title.

Now aged 34, she has overcome every challenge she has faced. But instead of being content with that, she has decided to make the switch to professional boxing.

After signing with former heavyweight champion David Haye’s Hayemaker Promotions, Begum makes her professional debut on Saturday, in a fight to be screened on Channel 5.

The profile of women’s professional boxing has risen lately, with stars such as Olympic gold medallist Nicola Adams and Ireland’s Katie Taylor.

Begum says she wants to be a part of it so she can continue to inspire a new generation of young British Muslim women fighters.

“I didn’t have any doors open to me, it was a hard, long struggle over 10-15 years to receive approval from my parents, my community, my coaches,” she said.

“As a female, being able to do something and give others hope that nothing is set in stone and you can get through anything.”

Plastic Straw Ban Disadvantages Disabled People

March 23, 2018

Businesses ditching plastic drinking straws for eco-friendly alternatives is having unforeseen consequences for disabled people, a Welsh Paralympian has said.

Baroness Tanni Grey-Thompson said plastic straws meant many disabled people could drink independently.

She said paper or glass alternatives were not always suitable or safe.

A growing number of businesses have stopped using plastic straws in a bid to reduce single-use plastic waste.

Last month, the UK Environment Secretary Michael Gove suggested plastic straws could be banned.

Baroness Grey-Thompson said she supported green initiatives but said disabled people could be “seriously disadvantaged if we can’t find a proper alternative”.

She said: “I’ve got lots of friends who have to have a straw to drink.”

“It could be tens of thousands of people affected by this in a very negative way.”

The Marine Conservation Society estimates the UK uses 8.5 billion straws every year and it found they were among the top 10 items found in beach clean-ups last year.

A major report on Wednesday said the amount of plastic in the ocean could treble in a decade unless litter was curbed.

Rosaleen Moriarty-Simmonds was born without arms and legs after her mother was prescribed the drug Thalidomide during pregnancy.

She said: “The anti-plastic straw debate has enraged me because it has been one-sided. No-one has consulted disabled people.

“A significant number of us rely on the humble plastic straw to be able to drink a glass of water, wine or a cup of coffee.

“It’s a fundamental human right to be able to have a drink and to be able to drink it as and when you need to drink it, and to do it independently.”

Mrs Moriarty-Simmonds said she would support environmentally-friendly alternatives, but said the current options, such as biodegradable, wheat, glass and stainless steel straws, were unsuitable for use with hot drinks because they either disintegrate or conduct heat.

SA Brain is one of many companies looking to reduce its reliance on single-use plastic products.

In November, the brewer and hospitality company launched #strawssuck – a campaign which means straws are only available to customers on request.

Natasha Williams, senior operations manager at the company, said it had gone down well with customers, adding: “It’s extremely important to ensure that our guests always have the choice to have the straw if they need it.”

Will The ESA Backpayments Take People Off Benefits?

March 22, 2018

A reader raised a good point in the comments of our recent post about the ESA backpayment blunder.

That point is:

So when people do get this money it will effectively take them off benefits until they reach the savings limit does this also mean they’ll automatically be placed on Universal Credit because it’s a change of circumstances they will be reassessed for ESA etc and will then have no choice but be reassessed every year have I got that right?

Under Universal Credit, a broader span of claimants are required to look for work than under Jobseeker’s Allowance. This has the effect of increasing the number of unemployed claimants
http://researchbriefings.parliament.uk/ResearchBriefing/Summary/CBP-8262

Our editor doesn’t yet know the answer to the question. However, the Government needs to clarify, at the earliest opportunity, whether the ESA backpayments will count towards the savings limit. Same Difference hopes that, since the money will be a backpayment from the DWP itself, caused by their own error, it will not count.

With the DWP, though, anything is possible.

Now we have to ask- could that be the whole point of these backpayments? We certainly hope not.

 

 

Coronation Street’s David Platt Story And Make Mental Health

March 22, 2018

This week Coronation Street aired its first male rape storyline, proving to be one of its most controversial topics to date.

The scenes, which see newcomer Josh Tucker drug and sexually assault hairdresser David Platt, have generated over 100 complaints to Ofcom.

It has also caused a debate on social media about the place of difficult real-life issues on light entertainment programmes.

David’s storyline has gone some way to highlight how seriously soaps take issue-based storylines and how much work goes into them.

Ryan Clayton – who plays Josh – tells the BBC he “can’t stress the importance enough” of why stories like this need to be aired and brought to a wider audience.

“The great thing, with whatever soap is covering it, is you’ve got millions of people tuning into a programme,” he says.

The story of male rape is not new to soaps and Hollyoaks was the first to cover it – first in 2000 with Luke Morgan and in 2015 with John Paul McQueen.

Clayton says the reason the David Platt story has caused such a stir is because “Corrie targets an older generation” who he says can be “naive” about such issues, in comparison to the younger audience of Hollyoaks.

He also hopes that the difficult scenes could encourage viewers who have been victims of sexual assault to speak out for the first time.

‘I wanted it to be like real life’

Clayton worked with Duncan Craig, who used his own experience of rape and sexual assault to advise on every part of the story – from the moment the idea was discussed to the day it was filmed and edited.

His charity, Survivors Manchester, has also been involved in offering advice to victims off the back of the show.

“I wanted it to be like real life,” Craig tells the BBC.

“Not the rape on Friday, telling the police on Monday and punishing the perpetrator on Tuesday.”

He says that the team at Coronation Street, headed up by executive producer Kate Oakes, listened to his ideas throughout the entire process.

Craig – who has waived his right to anonymity – was involved in script-writing, filming scenes and working with actors on the show to make sure everything felt like an accurate portrayal.

He first got involved in advising soaps on rape storylines by working on the John Paul scripts with a team of Hollyoaks writers.

“When I found out the character was David Platt, I knew this was so vitally important as he’s someone viewers have grown up with – it feels like he’s part of their family,” says Craig.

“Corrie is an institution and a national treasure and I thought we had a real opportunity to show that rape can happen to anyone.”

He highlights certain aspects of the story as being significant, including the fact that David is straight and raped by a man whose sexuality is unknown – adding that in many instances, it is assumed that the rapist is gay.

“It was important that David was not raped by a stranger because that story’s been told in drama a few times – victims are more likely to know the perpetrator,” Craig adds.

Something both Craig and Clayton also mention is the importance in the story of accurately portraying male mental health.

“David’s never had a positive relationship with men. Recently his half-brother has disappeared and he’s never really known his dad,” Craig adds.

‘It was a night of fun’

Clayton says he made sure to correctly portray the most sensitive aspects of the story – including grooming David and slipping the drug GHB into his drink – when playing Josh.

“Every bit of information from David’s past, Josh laps up and takes to his advantage,” says Clayton.

“He’s very manipulative and takes an opportunity – David needs a new male role model.

“In Josh’s mind he won’t accept that he’s raped David – he sees it as a night of fun, [that] David is the one with a troubled past.”

The storyline also brought a new element to the soap – looking at the idea of male vulnerability.

“Maybe there’s a crisis in masculinity,” Craig adds, when asked why some people are reacting negatively to the plot.

“Men don’t know what it means to be a man or how they should be and this is a huge story to talk about.

“It’s about shame, guilt, anxiety and depression, sense of self and worthlessness, not being able to be a ‘man’ and is connected to psychological wellbeing.

“Rape and sexual assault is about power and control and when someone’s had this asserted over them, you’re left with a sense of nothingness.”

Clayton adds: “If you look at the figures for male rape, on average it takes men 20 years to open up.

“When you think about the way men deal with it, some will take it to the grave.”

Grieving daughter handed her mother’s ashes to ESA assessor to prove she wasn’t ‘fit for work’

March 21, 2018

Kitty S Jones's avatarPolitics and Insights

A grieving daughter furiously handed an urn containing her mother’s ashes to a benefit health care professional who turned up to assess if the dead woman was fit for work, following an inexcusable and heartless blunder by the Department for Work and Pensions. 

Louise Broxton had suffered a host of neurological problems for which she received welfare support. She tragically died from lung cancer at the age of just 47 in August.

Her daughter, Hatti, immediately informed the authorities of her mother’s death and all her benefits were cancelled. After initially saying the information had been placed on file, however, some seven months later the Department for Work and Pensions sent an assessor to the door of her home in Wolverhampton to see if Louise was “fit for work.”

Hatti, a prison administrator, said: “I’m so upset and angry about what’s happened.

“It’s our government that has done this…

View original post 643 more words

Three Hundred Thousand ESA Claims To Be Reviewed After Latest DWP Error

March 21, 2018

Tens of thousands of severely disabled and ill claimants are set to receive backdated payments of up to £20,000 after being wrongly underpaid for years by social security officials, the government spending watchdog has revealed.

An estimated 70,000 claimants were underpaid about £340m between 2011 and 2014 after being transferred from older benefits on to employment and support allowance (ESA) during a government overhaul of incapacity benefits, the National Audit Office (NAO) said.

The error occurred when officials at the Department for Work and Pensions (DWP) failed to follow their own legal guidelines governing the transfer process, meaning that in many cases they failed to properly check claimants’ full entitlements.

Meg Hillier, the chair of the Commons public accounts committee, said: “The government’s shoddy administration of ESA has resulted in vulnerable people being deprived of thousands of pounds they were legally entitled to. The NAO’s report shows the DWP was unacceptably slow to act on early signs something was wrong.”

The DWP “failed to get a grip” on the problem for several years despite being alerted to it by staff as early as 2013, the NAO said. Even when it recognised its error as systemic in 2014 it ignored the issue of repayments for a further 18 months.

Although in May 2016 the DWP’s fraud and error team identified an ongoing and significant issue with underpayments, officials prevaricated for a further year before accepting the department had a legal duty to identify and repay affected claimants.

An estimated 45,000 claimants are owed about £2,500, a further 20,000 stand to receive £11,500, with a small number owed as much as £20,000. The size of the repayments varies depending on an individual’s entitlements and the length of their claim.

 

The DWP has promised to make repayments by April 2019. They will be backdated to 21 October 2014, the date of a court ruling confirming the error. An estimated £150m of underpayments relating to the period before the court ruling cannot legally be paid, the DWP says.

It is the second time in recent months that the DWP has agreed to repay disability benefits. In January it began moves to backdate payments to 164,000 personal independence payment recipients after the high court found that a rule change blocking enhanced payments for people with mental health conditions was discriminatory.

The administrative cost of correcting the latest error is estimated at £14m. The DWP plans to hire 250 more staff as it sifts through an estimated 300,000 ESA assessments to identify affected claimants. Fixing the problem will add about £700m to the ESA bill by April 2023 as ongoing claims are uprated.

Frank Field, chair of the work and pensions committee, said: “This is a damning report. The department is quick to act in cases of overpayment, quick to sanction claimants for any breach of its rules – but when the shoe is on the other foot, has shown it will take years to recognise and get to grips with its own mistakes.”

A DWP spokesperson said: “We’re well under way with our plan to identify and repay people affected by this issue, and payments have already started. We’re committed to ensuring people get what they are entitled to receive as quickly as possible. Everyone who could be affected will be contacted directly by the department.”

There are two forms of ESA: income-related ESA and contribution-based ESA. The DWP error related to claimants who were placed on the latter form of the benefit only, when they may also have been entitled to the former. As a result they may have missed out on premium payments.

ESA is a form of unemployment benefit paid to people with limited capability to work because of disability or illness. About 2.4 million Britons receive ESA, and in 2016-17 the total expenditure was £15bn.

Amyas Morse, the head of the National Audit Office, said: “The facts of this case are that tens of thousands of people, most of whom have severely limiting disabilities and illnesses, have been underpaid by thousands of pounds each, while the department for several years failed to get a proper grip on the problem.”

Ken Butler, a welfare benefits adviser at Disability Rights UK, said: “The National Audit Office report makes for sorry reading. It shows a shambolic catalogue of mistakes which have had a massive impact on tens of thousands of disabled people who qualified for benefits they were denied.”

Genevieve Edwards, the director of external affairs at the MS Society, said the failure was inexcusable. “Around a quarter of all people with MS access ESA as they can no longer work due to ill health. Many have told us the support they receive isn’t enough to pay for the basics and so any underpayment would obviously have a huge impact on their lives.”

Using The Spoon Theory to Explain Chronic Illness

March 21, 2018

This is a guest post submitted by Victoria Abbott-Fleming from CRPS awareness charity Burning Nights (https://www.burningnightscrps.org/crps-rsd-forum/).

Aside from the substantial physical challenges faced by people with chronic illnesses, one of the most difficult things about living with arthritis, lupus, fibromyalgia or something similar is the lack of understanding and empathy from able-bodied people. Illnesses like those I just mentioned are often invisible to the naked eye, so when a person with arthritis parks in a disabled spot, they unfortunately are sometimes castigated by observers who don’t realise that the person is genuinely entitled to be there.

In an attempt to convey to an able-bodied friend what it is like to live every day with a chronic illness, lupus sufferer Christine Miserandino explained it by taking 12 spoons from tables at a café and equating them to her daily energy levels. She then handed the spoons to her friend and asked her to describe a typical day, taking spoons from her for activities such as getting up, showering and cooking breakfast. It was only upon completion of this exercise that Christine’s friend had an accurate picture of the struggles of living with a chronic illness.

People with chronic illnesses begin each day with 12 spoons and need to use these carefully throughout the day. If they do too much before lunchtime, they’ll be exhausted by the evening. They can exert an additional effort to use more than 12 metaphorical spoons in a day, but the excess would then be taken from the following day, which is likely to be an enormous struggle. Christine Miserandino deserves huge credit for being able to vividly communicate to the world at large what it is like to endure chronic illness.

 

 

Inclusion London Responds To Government Announcement Of ATW Cap

March 21, 2018

A press release:

Ellen Clifford, Campaigns and Policy Manager for Inclusion London said: “While we welcome the news that the Access to Work cap is to be increased, we remain opposed to the imposition of any form of cap. Capping the amount of support that an individual can receive through Access to Work discriminates against those with the highest support needs, effectively penalising those with certain impairments for being Deaf or disabled. Though the cap is now higher, it is still set at an arbitrary, fixed limit whereas costs for highly specialised equipment and good quality professional interpreters tailored to an individual’s needs can exceed this amount or vary from year to year. There is also no financial reason for a cap, given that investment in Access to Work makes a return on investment to the Treasury through taxes, without even taking into account the added cost benefits of savings to the NHS or social care budgets.

“The cap is also just one issue within a whole range of problems that Deaf and Disabled people are experiencing with Access to Work. These include administrative and financial errors on a scale that is making employment unviable for many, alongside cuts and restrictions to individual support packages that are placing intolerable strain on Deaf and Disabled people doing their best to stay in work. An urgent review of the scheme in consultation with Deaf and Disabled people is well over due.”

Assessor Asked Suicidal Claimant For Details Of How They Would Act On Their Feelings

March 20, 2018

TRIGGER WARNING. But please share widely. This can’t be allowed.

AMD Treatment Could Be Available Within Five Years After Small Trial

March 19, 2018

A treatment for the commonest cause of blindness could be available within five years, scientists believe, after revealing the first two patients given a revolutionary stem cell therapy have regained enough vision to be able to read.

The two patients have advanced AMD – age-related macular degeneration – which destroys the central vision. Both were losing their sight. They were, said their surgeon, unable to see a book, let alone the printed letters.

But an implanted “patch” of stem cells over the damage at the back of the eye has restored the central vision enough not only for reading but to see faces that used to be a grey blur.

In the future, the scientists behind the breakthrough anticipate the procedure could be as common as cataract surgery, helping large numbers of the 600,000 to 700,000 people in the UK who are losing their sight because of AMD.

The breakthrough comes from the London Project to Cure Blindness, a collaboration between Prof Pete Coffey of University College London and Prof Lyndon da Cruz, a retinal surgeon at Moorfields Eye Hospital.

They aimed to treat 10 people who had the “wet” form of AMD, caused by sudden leakage from blood vessels in the eye that can destroy the macula, a key part of the retina. The retinal pigment epithelial (RPE) cells in the macula are crucial to the functioning of the light sensitive photoreceptor cells, which die without RPE support.

The two patients, a woman in her 60s and man in his 80s, are the first in the UK to have the treatment, and were chosen because of their advanced disease – they would have gone blind within six weeks of the blood vessel leakage. Each had one eye implanted with the patch, which consisted of a membrane covered with human embryonic stem cells engineered to differentiate into RPE cells. The results are published in the journal Nature Biotechnology.

Coffey said the improvement in vision – often measured in lines on a reading chart – was much greater than they had hoped for: “We said we’d get three [out of the proposed 10] patients with vision recovery of three lines. They probably wouldn’t get reading vision back.

“The first patient has got six lines improvement, which is astounding, and the second has five lines and he seems to be getting better as the months go by. They are both really reading. At best [the woman] could read about one word a minute with magnification. She is now reading 80 words a minute and [the man] is reading 50.”

The male patient was Douglas Waters, 86, from Croydon. His case was severe and the doctors were not especially hopeful when they gave him the treatment in autumn 2015. But the results have been remarkable.

“In the months before the operation my sight was really poor and I couldn’t see anything out of my right eye,” he said. “I was struggling to see things clearly, even when up close.

“After the surgery my eyesight improved to the point where I can now read the newspaper and help my wife out with the gardening. It’s brilliant what the team have done and I feel so lucky to have been given my sight back.”

Coffey and da Cruz intend to operate on one more patient to ensure the safety of the procedure. One of the successes of the trial has been showing that there was no need for drugs to suppress the patient’s entire immune system to avoid rejection of the stem cells. The eye is self-contained, so they were able just to inject pellets that release immunosuppressant drugs into the eye over the course of two to three years.

Coffey thinks they can have an off-the-shelf treatment available for NHS surgeons to use within five years, at the moment just for the 10% of AMD patients with the wet form of AMD. Dry AMD develops more slowly and there is no treatment for it. Coffey says, however, that there is no reason why the patch would not work for them too.

In due course, the team hopes the treatment could become as common and eventually as cheap as cataract surgery.

Dr Carmel Toomes, associate professor at the Leeds Institutes of Molecular Medicine, said: “These results give the many patients out there who suffer from AMD and other retinal degenerations real hope that stem cells replacement therapy may be a reality in the near future. While this is only a very early clinical trial, the results are positive and show that the technology is moving along. In the right direction.”

World Downs Syndrome Day Video- 50 Mums 50 Kids

March 19, 2018

We’re a little late to the party- it’s already gone viral, but we love it anyway. World Downs Syndrome Day is on Wednesday. We hope you’ll use it to celebrate Downs Syndrome!

Stem Cell Treatment ‘Game Changer’ For MS Finds International Study

March 19, 2018

Doctors say a stem cell transplant could be a “game changer” for many patients with multiple sclerosis.

Results from an international trial show that it was able to stop the disease and improve symptoms.

It involves wiping out a patient’s immune system using cancer drugs and then rebooting it with a stem cell transplant.

Louise Willetts, 36, from Rotherham, is now symptom-free and told me: “It feels like a miracle.”

A total of 100,000 people in the UK have MS, which attacks nerves in the brain and spinal cord.

Just over 100 patients took part in the trial, in hospitals in Chicago, Sheffield, Uppsala in Sweden and Sao Paolo in Brazil.

They all had relapsing remitting MS – where attacks or relapses are followed by periods of remission.

The interim results were released at the annual meeting of the European Society for Bone and Marrow Transplantation in Lisbon.

The patients received either haematopoietic stem cell transplantation (HSCT) or drug treatment.

After one year, only one relapse occurred among the stem cell group compared with 39 in the drug group.

After an average follow-up of three years, the transplants had failed in three out of 52 patients (6%), compared with 30 of 50 (60%) in the control group.

Those in the transplant group experienced a reduction in disability, whereas symptoms worsened in the drug group.

Prof Richard Burt, lead investigator, Northwestern University Chicago, told me: “The data is stunningly in favour of transplant against the best available drugs – the neurological community has been sceptical about this treatment, but these results will change that.”

The treatment uses chemotherapy to destroy the faulty immune system.

Stem cells taken from the patient’s blood and bone marrow are then re-infused.

These are unaffected by MS and they rebuild the immune system.

Prof John Snowden, director of blood and bone marrow transplantation at Sheffield’s Royal Hallamshire Hospital, told me: “We are thrilled with the results – they are a game changer for patients with drug resistant and disabling multiple sclerosis”.

Prof Basil Sharrack, neurologist at Royal Hallamshire Hospital, told me: “This is interim analysis, but with that caveat, this is the best result I have seen in any trial for multiple sclerosis.”

‘Lived in fear’

Louise was diagnosed with MS in 2010 when she was only 28.

She told me: “MS ruled my life and I lived in fear of the next relapse.

“The worst time was not being able to get out of bed because I had no stability in my body – I struggled to walk and even spent time in a wheelchair.

“It also affected my cognition – it was like a brain fog and I misread words and struggled to keep up with conversations.”

The BBC’s Panorama filmed her undergoing her transplant in October 2015 and she is now back to full health.

She got married to her partner Steve, on the first anniversary of her transplant, and their baby daughter Joy is now a month old.

“I feel like my diagnosis was just a bad dream. I live every day as I want to, rather than planning my life around my MS.”

The transplant costs around £30,000, about the same as the annual price of some MS drugs.

Doctors stress it is not suitable for all MS patients and the process can be gruelling, involving chemotherapy and a few weeks in isolation in hospital.

Dr Susan Kohlhaas, director of research at the MS Society, said the stem cell transplant HSCT “will soon be recognised as an established treatment in England – and when that happens our priority will be making sure those who could benefit can actually get it”.

She added: “We’ve seen life-changing results for some people and having that opportunity can’t depend on your postcode.”