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Entertainment and Education intertwined. Could Soap Operas do more?

February 25, 2016

Poppy Hasted's avatarPoppy's Place

Interesting.

I have been watching ‘This Morning’ on TV and they were doing a phone-in about a storyline that’s coming up on Corrie and it got me thinking. Given that many people could get help with their issues by seeing characters in their favourite soap operas going through the same thing, could this be exploited in some way? I know that, quite often, we get the helpful message at the end of a programme giving a phone number that people can ring if they have been affected by any of the issues they have just seem, but could more be done?

I think it could.

Soap operas are supposed to represent a dramatised view of everyday life, but do they? As far as I am concerned, we are supposed to relate to various characters because they are going through the same life challenges as us. Sure, most of the time…

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G4S are employing Cognitive Behavioural Therapists to deliver “get to work therapy”

February 25, 2016

jaynel62's avatarjaynelinney

Here we have a Terrifying Tale of #G4 now employing people who “have experience of delivering #CBT”. Note there are NOT seeking to employ Qualified Therapists, so anyone whose read a comic on the topic and tried it on their 3 year old could then be paid to ‘Re-train the Brain of People without a job!! WTF

Background Last April, more than 400 psychologists, counsellors and academics signed an open letter condemning the profoundly disturbing psychological implications of the  government’s austerity an…

Source: G4S are employing Cognitive Behavioural Therapists to deliver “get to work therapy”

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Fightback’s Michelle Shares An Experience With A Tribunal Judge

February 25, 2016

WARNING: DWP Tactics To Avoid Backdating ESA Payments

February 25, 2016

PGR Restaurant Coventry Turns Away Guide Dog Owner Holly Scott-Gardner, Saying They Are Unaware Of The Law

February 24, 2016

A restaurant turned away a diner registered blind after claiming they cannot permit her guide dog.

Holly Scott-Gardner, 22, filmed the staff at PGR Restaurant in Coventry and uploaded the video online, where it has been shared over 70,000 times within 24-hours.

Despite the university student insisting it was illegal to turn her away, the staff refused service.

PGR Restaurant says they were unaware of the law around guide dogs.

More on this and other Coventry and Warwickshire stories

Ms Scott-Gardner, from Coventry, had gone to the restaurant for her birthday lunch with a friend on Monday.

She was told by a staff member (seen in the video standing behind the bar) that her dog was not allowed in.


The owner of the restaurant, Majed Bahgozen, was called and Ms Scott-Gardner was asked to leave the guide dog outside, dine outdoors or go elsewhere.


Guide dogs law

Guide dogs, or assistant dogs, are highly trained and instantly identified by their harness or coat they are wearing.

They are trained to sit quietly with their owner and go to the toilet on command.

The Equality Act 2010 was updated with changes to indirect discrimination, which now applies to disability.

It is illegal if a person with a disability is treated unfavourably because of something connected with their disability, such as a guide dog, and this treatment is unjustified.

Treatment can be justified if it is proven to meet a legitimate objective in a fair and reasonable way.

Initially, Ameena Slaviskus from PGR, who was not there at the time, claimed they “didn’t know she [Ms Scott-Gardner] was blind because she didn’t have a card on her neck”.

Ms Slaviskus also said a training staff member was working on Monday who was unaware of “what guide dogs mean”.

However, the restaurant later back-tracked and said the female staff member seen in the video is not a trainee.

Mr Bahgozen apologised on Facebook saying “we truly didn’t understand what guide dogs purposes were and for that we accept all the blame”.

guide dogs
Restaurant owner, Majed Bahgozen, admitted he was unaware of the policy around guide dogs

Ms Scott-Gardner was told they had a no-dogs policy to avoid disruption to other customers.

“It shows that they value their able customers more than their disabled ones,” said Ms Scott-Gardner.

“It really concerns me that businesses are not aware of the law, because if you’re not aware of discrimination laws, what other laws are businesses not aware of?” questioned the student.

The Full List Of MPs Who Voted FOR The £30 A Week WRAG Cut #NoESACut

February 24, 2016

Same Difference sends many thanks to Sheffield Uncut for taking the time to put together the list above.

Our editor notes with deep disappointment that the list includes two MPs with Cerebral Palsy, Paul Maynard and Robert Halfon.

Same Difference is not surprised to see Paul Maynard’s name on the list. He has betrayed the disability community too many times before.

However, we were hoping for so much better from Robert Halfon. We’re feeling deeply betrayed by him today.

We couldn’t immediately spot any other disabled MPs on the list. If you do, readers, please leave their names in the comments below.

Meanwhile, please share this post as widely as possible so that we can name and shame ALL those who voted for this deeply cruel cut.

JobCentre Advisor To Claimant: “You ARE Appealing This WCA?”

February 24, 2016

Lord Blunkett unveils report that finds disabled children are missing out on play opportunities vital to their development

February 24, 2016

A press release:

Nine out of ten parents of disabled children say their child does not have the same opportunities to access play, compared to non-disabled children. One in two disabled children have been turned away from play settings and activities.

 

Negative attitudes towards disability a major barrier highlighted

Lord Blunkett is to reveal detailed findings of the inquiry and recommendations at Parliament on Wednesday 24 February

(London, UK – 24 February 2016) – A report by the national deafblind charity, Sense, today reveals the severe restrictions facing disabled children in accessing play. The report identifies failings at every level that result in disabled children missing out on play opportunities that are vital to their emotional, social and physical  development. A lack of attention by government, insufficient funding at a local level and negative attitudes towards disabled children and their families are all barriers highlighted in the report.

The report calls for urgent action to address these inequalities and to enable the Prime Minister to deliver on his recent call to improve the “life chances” of all children.

Due to be launched in Parliament this afternoon, the report follows a three month public inquiry into the provision of play opportunities for disabled children aged 0-5 with multiple needs in England and Wales. Chaired by former Secretary of State for Education and Employment, Lord Blunkett, the inquiry was established in response to parents’ concern that they had fewer opportunities to access play services and settings than families with non-disabled children.

Chair of the Play Inquiry, Lord Blunkett, said:

“We know that play is vitally important for children with multiple needs and their families, bringing a wide range of developmental and emotional benefits. However, our inquiry found that all too often the parents of children with multiple-needs point to barriers they face in accessing and enjoying play. It means that disabled children don’t have the same chance to form friendships, and parents are prevented from taking a break from caring. Both disabled children and their parents are excluded from their own communities.

“I know that there is strong support across the political spectrum for addressing the findings of this report, and I look forward to working with colleagues from all parties to achieve real change for parents and families across the nation.”

Key findings from the report:

 

  • 92% of parents felt that their child did not have the same opportunities to play as their non-disabled peers, and 81% of parents reported difficulties in accessing mainstream play groups and local play opportunities.

·        51% of children had been turned away from play settings by providers, failing to meet their legal duties under the Equality Act 2010.

·        95% of parents said that parents of children with multiple-needs require support to find ways to play with their children.

  • Majority of parents had experienced negative attitudes towards their child from other parents and most considered this to be the most significant barrier to accessing mainstream play.

 

·        40% of parents said that additional financial costs was a major barrier to accessing play opportunities

  • 63% of parents said they didn’t have enough information on accessible play opportunities in their area, and word of mouth is commonly used in place of official sources of information.

  • Families feel there is a lack of specialist support that can be accessed locally, and many make long journeys to access play settings.

 

  • There is a lack of strategic approach to funding play for children with multiple needs at local and national levels across England, with no notional funding for special educational needs and provision in the early years

 

Key recommendations from the report:

National policy:

 

·        Greater investment in play as part of early years funding to support play in the home and in mainstream services.

·        Developmental play services such as Portage should become a statutory service for disabled children under the age of two, with an increased emphasis on children with multiple needs.

·        Play should be a key strand of the Government’s policy on parenting and should be an explicit part of government-funded parenting classes.

·        The Equality and Human Rights Commission should investigate the exclusion of children with multiple needs from mainstream play settings, and take action to enforce the Equality Act 2010.

 

 

Local policy:

 

·        Local authorities should be required to take action, as necessary, against settings which intentionally exclude disabled children and fail to meet their legal duties under the Equality Act 2010.

·        Local authorities should take a lead on increasing awareness and understanding of the general public and other parents about disabled children. This could be centrally funded but locally delivered.

·        Local authorities should consider whether there could be a modest retraining of existing health professionals to enable them to provide the support needed to help families of children with multiple needs to play.

·        Local authorities should provide easily-accessible information for parents to help them to find out about existing play and support services.

Play settings:

 

  • Settings should ensure that play staff have received training on disability to help improve the way they support children and families.  This should include responding to medical needs and communicating with children with specialist communication needs.  The training should also enable them to create an environment and ethos which is inclusive and developmentally appropriate.

·        Every play setting should have a play policy statement which stresses the inclusion of every child.

·        Settings should plan carefully prior to the admission of every child in order to ensure their needs are met and that they will be welcomed and understood by other parents and their children.

·        Voluntary sector organisations should do more to share their significant experience of supporting children with specific impairments and multiple needs with public and private play settings.  This could include offering training and toolkits on inclusive play.

 

Sense Deputy CEO, Richard Kramer, said:

“Play is critical in giving children the best start in life and improving outcomes for children and their families. The report makes clear, however, that where a child has multiple needs, the barriers they face to accessing play settings and activities are also multiplied. We hope that local and national policymakers, as well as play professionals, reflect on today’s recommendations, and make the necessary changes that will make access to play a reality for all children.”

Sense will use the inquiry findings to campaign for changes to the way play services are designed and delivered. They plan to produce a series of toolkits for parents, providers and commissioners of play.

The full report can be downloaded at: www.sense.org.uk/play

Some Of The Conditions Covered By The Tories’ ‘Sickness Penalty’

February 24, 2016

With sadness and fear for people like herself, our editor would add mild Cerebral Palsy to the list of conditions above.

DPAC suggest the name ‘sickness penalty’ for the cut of £30 a week. Same Difference thought up ‘Disability Tax’ and we said so to DPAC.

For a bit of fun, readers, please tell us which you prefer. Because we all need a bit of fun, especially after a day like yesterday.

Debbie Abrahams’ Speech On #NoESACut From 23/2/15

February 24, 2016

I’m proud to say I met her yesterday.

This is a speech in support of disabled people and common sense. Well worth a listen.

 

BREAKING: MPs Vote To Cut ESA By £30 A Week

February 23, 2016

Same Difference joined Disabled People Against Cuts in Parliament today. We are sad, but not surprised, to see the results of the hard work of so many in fighting this unfair cut.

 

Brave Tory MP Heidi Allen’s ‘Warning Shot To Government’ On #NoESACuts

February 23, 2016

 

A furious Tory MP today fired a “warning shot to government” as she vowed to fight her own party’s welfare cuts.

Heidi Allen hit out at the Tory vow to press on with £30-a-week cuts to disability benefit Employment and Support Allowance (ESA) despite the move being defeated in the House of Lords .

In a blistering speech she made an 11th-hour plea to her own party to find “the compassion to look after the little man”.

And she said a white paper to be published later this year on the “disability employment gap”, which Tory ministers announced today, was too little too late.

“I do not believe mentoring and support alone will heat the home of someone recovering from chemotherapy,” she fumed.

“Nor help out the man with Parkinson’s who needs a little bit of extra help.”

She blasted the Department for Work and Pensions’ claim that people were “incentivised” to stay on disability benefits because they pay more than jobseekers’ allowance.

“If they’re stuck there, that to me says more about DWP processes failing rather than an active choice of the claimant,” she said.

“Anyone who has beaten cancer must surely burst with desire to return to a normal life.”

To cries of “hear, hear” from Labour MPs, Ms Allen – who was one of the few Tories to publicly oppose tax credit cuts – said: “This is my warning shot to government.

“Today I will not support them. Today I may abstain, but only for today.

“Let’s get the detail right,” she continued. “Let’s be a government of sweeping strategic change, but let’s be one with the compassion and the dexterity to look after the little man too.”

Tory ministers want to cut ESA for sick and disabled people from £102.15 to £73.10 if they are deemed fit for “work-related activity”.

Nearly half a million people – including more than 3,000 cancer survivors – are in the group that will be hit by the cut from April 2017. Those in the more severe “support group” will not be affected.

David Cameron said the move would only affect new claimants or those who interrupted their claims, and it would equalise work-related ESA with jobseekers’ allowance.

The cut was voted down by the House of Lords – along with plans to scrap child poverty targets – after an outcry from charities including Macmillan, Mencap and Parkinson’s UK.

But today the Tories mounted a bid to reverse both decisions and stick with their original plans in the House of Commons.

 

Labour accused Tory welfare minister Priti Patel of a “total lack of compassion” after she made an argumentative 29-minute speech defending the cuts.

And she sparked an outcry after she tried to claim Macmillan backed aspects of the government’s policy – despite the cancer charity warning ESA cut victims could lose their homes.

She told MPs: “Macmillan have also said that many people who are working when they’re diagnosed with cancer would prefer to work or return to their jobs during or after treatment.”

Shadow Work and Pensions Secretary Owen Smith interrupted, saying: “Could she confirm that Macmillan are OPPOSED to the reduction by £30 a week for members of the ESA wrag group?”

But she sidestepped the question, saying: “I think Macmillan alongside the government will recognise that I’ve already said that those that are on the support group will rightly not be affected and will be supported obviously because they are in the support group because they are ill.”

I’m uncomfortable in agreeing to these cuts until I know what the new world will look like for these people.

I do not believe mentoring and support alone will heat the home of someone recovering from chemotherapy.

Nor help out the man with Parkinson’s who needs a little bit of extra help.

I remain unconvinced that these people do not also have financial needs.

The DWP’s site states that many people stay stuck in the WRAG (Work-Related Activity) group for too long, up to two years.

I would question the DWP’s conclusion that they are financial incentivised to stay there.

If they’re stuck there, that to me says more about DWP processes failing rather than an active choice of the claimant.

People in that group do not have an easy time of it.

They must demonstrate an appetite to transition towards work and can be sanctioned if they do not.

Anyone who has beaten cancer must surely burst with desire to return to a normal life, and is unlikely to want to be labelled as a cancer sufferer for any longer than they absolutely must be.

From 2017, in the region of 270 disabled people alone in my constituency of South Cambridgeshire would stand to lost £30 – or 29% of their weekly income – if we accept this bill in its original form and ignore the Lords.

For these people I need to see more detail of the contents of the white paper and hear about the financial support too.

If we don’t get this right we will damage not just the employment prospects and wellbeing of these vulnerable claimants, but also our reputation and our trust amongst the electorate.

And to secure my trust I need to believe in that white paper and that £100million is going to go some way towards those people.

This is my warning shot to government.

Today I will not support them. Today I may abstain, but only for today.

Let’s get the detail right. Let’s be a government of sweeping strategic change, but let’s be one with the compassion and the dexterity to look after the little man too.

 

Scrap The Support Group, Says Reform Thinktank

February 23, 2016

Photos From DPAC Trip To Parliament #NoESACut

February 23, 2016

 

Those pain in the arse disabled people … er

February 23, 2016

joehalewoodhsg's avatarJoe Halewood

MAXIMUS – those really, really nice people who do the hard work assessing all those disabled fraudsters who are scrounging off all the hardworking taxpayers ……. Er…sorry about that people for some reason I turned into IDS for a moment!

I was saying?  Oh yes Maximus the private company who do all the work capability assessments and who are incentivised to take as many genuinely disabled persons off disability benefits have released a you tube video here on what assessed persons can expect from such an assessment … which has prompted one welfare rights officer to comment as below!!

In short if you really want an idea what the fcuk goes on with the assessment and re-assessment and further re-assessment of disabled persons, then the following comments give you a bit of an idea…. Enjoy!

Behave. That video is shocking tokenistic drivel.  Only an MP could find any merit in…

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Being Disabled And Dating On Tinder

February 22, 2016

I cut my wheelchair out of any photo I put on Tinder,” says Courtney Hall, a 19-year-old sixth-form student in Banbury, Oxfordshire. “It’s like, then they can get to know me for me.”

The swipe function of Tinder may have become synonymous with criticisms of a more shallow, disposable take on dating but, for Hall – who has cerebral palsy and epilepsy – downloading the app last year was a chance to free herself from the snap judgments she has had to deal with offline.

“I never get approached in bars when I’m out with friends, where a guy can see me in person,” she says. “I feel as if they look at me and just see the wheelchair. Online, I [can] speak to them for a day or so before revealing anything.”

Last month, Tinder users took to social media to expose the discrepancy between their Tinder photos and what they really look like – think flattering angles, body-con dresses and blow-dries, versus double chins, coffee-stained T-shirts and bed hair. Unknowingly, a fleeting trend pointed to the dilemma that disabled online daters routinely find themselves in: do I show my disability in the photo? And, if not, or for the many people whose disability isn’t visible: when do I tell someone I’m disabled?

Michelle Middleton, 26, from Liverpool, has cerebral palsy and walks with a limp – but, as she rarely uses a wheelchair, there’s no obvious “giveaway” in a photo.

Unlike Hall, Middleton – who has been on Tinder for a little under a year but hasn’t logged in for a month – seems to miss the simplicity of meeting someone face to face in a bar.

“Then, as soon as they see me walk, they know. Online, because they can’t see you, you have to force it,” she says. “You never really know how to get it into conversation.”

Middleton, who is currently setting up a disability awareness business, speaks with a straight-talking confidence but, online, she found herself trying various methods to broach the subject. When she first joined, she opted for trying to “get to know them first” – messaging someone for about a week before talking about her disability – but after one man responded by accusing her of lying, she felt she had to “get it in” quicker.

She says she’ll always remember the first guy she told. “It was so awkward,” she laughs. “I’d never been in that situation where I had to try to sell myself and cerebral palsy to someone who hadn’t met me. His first question was: ‘Oh, right. Does it affect you sexually?’”

Google the phrase “Tinder sex messages” and it’s clear that you don’t have to be disabled to get this particular kind of attention. But being a disabled woman often means facing men who have a particular fixation on disabled sexuality – whether they’re on or offline.

Hall tells me one reason she tried online dating was that men in bars kept buying her drinks “only so they could ask about her disability”. Now, on Tinder, she finds that, after she tells men she’s disabled, they often reply to ask if she can have sex.

“That’s the first thing that pops in their minds,” she says. “Would you ask that if I didn’t use a wheelchair?”

Middleton tells me she thinks she has now received “every awkward and patronising question” online. Do you have sex? Do you look really bad when you walk? Would you have to bring your wheelchair on our date?

“My best was: ‘Ah, so that’s why you’re single then?’”

But Hall remembers the positive responses just as much. “There was a great guy from Tinder I dated last March. We went to see Jurassic Park on a date and I had a fit in the cinema. I vomited on myself and him!” she laughs.

“His reaction wasn’t: ‘Oh, my God, that’s disgusting.’ It was: ‘Oh, my God, how can I help her?’ You don’t expect that, but it’s nice when it happens.”

They broke up a few months later but Hall is confident that the relationship didn’t break down because of her disability.

She adds that she had waited two weeks to tell him she was disabled. “That’s the longest I’ve left it, actually,” she says. “I really liked him. I thought: will this change things?”

That fear is understandable. Last October, after being on Tinder for eight months, Middleton got to know someone who wasn’t bothered when she told him about her disability. But once they got offline – meeting in a pub one evening – things seemed to change.

“The date seemed to be going well until he asked me why I’d said I had a mild disability,” she says. “I asked what he meant. He said: ‘Oh, come on, babe, you said you limped and it was mild, but that’s a lot more than a limp and definitely not mild. There’s no getting away from that!’ He saw nothing wrong in what he’d said. I was so shocked that I immediately left. You wouldn’t say to a fat person, Oh, you didn’t say you were that fat.”

As with any form of dating – for disabled or non-disabled people – there’s a large element of searching for gems while trawling through a sea of human beings who are best avoided. But many of the negative reactions stem from ignorance or awkwardness around disability – or simply unfamiliarity with even speaking to a disabled person.

This month, the disability charity Scope ran a poll of 500 people in the UK asking: Have you ever been on a date with a disabled person who you met through a dating website or app? A little more than 5% of people said “yes”. Previous research also showed almost eight out of 10 people in Britain have never invited a disabled person to any social occasion. Add dating and sex into that equation and the belief that disability equates to being sexless, different – or inferior, even – can feel a powerful prejudice to tackle.

Andy Trollope, 43, was paralysed from the chest down in 2009 after a motorcycle accident. He says he had a lot of “good sexual relationships since becoming disabled” but, in 2012, after being single for a while, he decided to try online dating. He didn’t want there to be any doubt that he was disabled.
Andy Trollope’s Tinder profile picture.

“I always make sure my first picture makes it abundantly clear I use a wheelchair – a full front shot,” he tells me. “Me in a pub or playing sport or whatever, but where you can see the chair.”

Unlike Hall and Middleton, he signed up to Plenty of Fish and Match.com as well as Tinder. He says he found each as frustrating as the other. “I could see loads of people had viewed my profile, then I’d message and get no reply. I was spending literally hours on the sites – for two years – and I got two dates out of it. It must be because of the wheelchair.”

Trollope stopped using the sites after meeting someone on a night out, but, by the end of his time on dating sites, he had put up a line on his profiles that said: “Yes, I’m in a wheelchair. Yes, I’ve dealt with it.”

“I wanted to make clear that, yes, I enjoy my life,” he says. “I actually messaged people back [after they’d viewed my profile] and asked: ‘Can you be honest, is it because I use a wheelchair?’ I got no replies.”

Hall similarly craves honesty. “Something I find annoying is when I ask if they’re OK with disability they say ‘yes’, but further down the line, when talking about actual dates, they say they just felt guilty. They didn’t want to say the reason they didn’t want to date me was because I use a wheelchair,” she says. “They think they can’t handle it – which is fine, because disability can have an impact. But they’ve just wasted my time.”

“Sometimes you think, ‘Why am I on here?’ But then you meet a nice guy,” she says, smiling. She has been talking to someone new on Tinder. “I told him after we’d been speaking for a day,” she says. “He told me his sister has cerebral palsy. I wasn’t expecting that.”

Mother Tries To Challenge Downs Misconceptions

February 22, 2016

A mother is trying to challenge misconceptions about Down’s syndrome, as government ministers debate whether to offer pregnant women a new, and more accurate, test to detect the condition.

It has been suggested the new test may lead to an increase in abortions, although this has been questioned by the doctor who led trials.

Author and campaigner Hayley Goleniowska, from Cornwall, challenges assumptions about Down’s, and admits that until her daughter Natty was born, she had misconceptions of her own.

The full story will be shown on BBC Inside Out South West on Monday at 19:30 and will be available on BBC iPlayer.

DLA/PIP Claimants Rise as IB/ESA Claimants Fall, Show DWP Stats

February 22, 2016

With many thanks to Benefits And Work.

The number of claimants receiving employment and support allowance (ESA) or incapacity benefit (IB) has fallen again, statistics released by the DWP this week reveal. However, the combined total of disability living allowance (DLA) and personal independence payment (PIP) claimants is at an all-time high.

ESA claims
The number of claimants in receipt of ESA/IB at August 2015 was 2,512,090. This represents a fall of just 9,000 since the last quarter.

The forced transfer of IB claimants to ESA, intended to greatly reduce the number of claimants, began in October 2010, when claimant totals stood at around 2,586,000. It is now almost complete.

This means that the reduction in the number of claims following the forced transfer is just 74,000 – or less than 3%. The process has almost certainly cost a great deal more than it saved.

PIP/DLA claims
Meanwhile, the DWP’s attempts to cut the number of people receiving disability benefits by replacing DLA with PIP for working age claimants is failing so far.

The combined number of claimants getting DLA/PIP now stands 3.57 million, an increase of 231,000 (7%) on the same quarter last year.

Although the number of DLA/PIP claims in payment dipped very slightly after PIP was introduced nationally in June 2013, it has been rising again since August 2014 and is now at an all-time high.

Little wonder that the DWP are now seeking to change the PIP rules on aids and appliances to try to get the numbers to start falling again.

You can download the DWP quarterly statistical summary from this link.

Are Disabled People’s Sex Lives Being Ignored?

February 22, 2016

Sex and disability was once regarded as a taboo subject, but is now being spoken of more often. Comedian Romina Puma, who has muscular dystrophy, says disabled people’s right to sex should not be ignored.

When I was diagnosed with muscular dystrophy 10 years ago, at the age of 29, my life was pretty normal. Like many women, I enjoyed going out to meet new guys and would often have a boyfriend.

But as my condition has become progressively worse, and I have begun using a wheelchair, people no longer see me in the same light.

It doesn’t mean having a sex life isn’t important, or that my private parts don’t work properly. Most men I meet, however, can’t see past the chair, and exchanges often don’t progress beyond sympathetic looks.

Sex and disability may sound like a pornographic remake of Sense and Sensibility, but to many it is an issue that matters.

I went to meet Shital, a counsellor specialising in working with disability and chronic illness. She was born with juvenile hyaline fibromatosis – a rare genetic condition that causes tumours to grow on the body as a result of trauma and often leads to severe physical impairment.

It meant that as she was growing up, and her friends were having sex, she felt “ugly and undesirable”

“I had the same thoughts and needs as my friends, but our experiences were not the same – I always found myself as the friend, not the lover,” she explains.

“I knew how sex worked, I knew I wanted it one day, but didn’t really feel I ever would. It was a very lonely life and I became very isolated. The worse I got, the more I started to lose touch with my social group in my 20s.”

Shital began looking for a relationship online, but had negative experiences. “The first question some men asked was, ‘Can you have sex?’ My response would be, ‘Well you’ll never get to find out!'”

Worries about body image also affected her ability to meet people. “All my life I’ve had people pointing, staring, calling me names like elephant woman. That destroyed my confidence – and if you have no confidence, how are you ever going to have a sexual relationship?”

But with the help of the Outsiders Club – a social and dating club for people with disabilities – she has since met Jamie, who is also disabled, and the pair have been in a relationship for nine years.

“As we got together, and developed our relationship, we had sexual confidence together,” she explains.

“There’s no way I’m ever going to do all the positions in the Kama Sutra,” she jokes, “but, hey, show me a person that can. Its about intimacy, not gymnastics.”

Damian, 49, was diagnosed with multiple sclerosis aged 23. He says at the time it had become a “race” to be as sexually active as possible before he needed a wheelchair.

I ask him if this had made him something of a playboy. “Yes,” he replies, with a cheeky smile across his face.

Damian’s mobility is now severely limited, and he has decided to pay for sex workers to visit him around once a month, saying they have become “essential to meeting my needs”.

It is a feeling I can sympathise with, even if I have not gone down this avenue myself – sometimes you really need human contact.

Encounters such as Damian’s can be arranged through the TLC Trust, an organisation that helps disabled people to legally hire sex workers – such as sexual surrogates and escorts.

Sue Newsome, a sex therapist, sees her role as “helping physically disabled people acknowledge and explore their sexual pleasure”.

“Healthcare professionals don’t talk about sex, they often act as if people with disability don’t need it,” she adds.

But she does believe the situation is improving. “A few years ago, sex was not included as part of the rehabilitation process after an accident, but that is changing thankfully,” she says, although other experts disagree.

Any progression there has been, however, came too soon for Andy. A former professional motocross racer, he says his relationship changed when he was injured and broke his back, leaving him unable to feel or move anything from the chest down.

Following the accident he proposed to the woman who would become his wife, but the marriage broke down because he would avoid sex.

“The sex was hard to start off with because we were experimenting. Basically [healthcare professionals] will give you some Viagra and just say, ‘Right, go away and try that.’

“We never had any counselling on how it was going to work, to the point that… we didn’t even consummate the marriage.”

Andy says over time he has discovered more about his body and how he can enjoy sexual pleasure without penetrative sex. He has been with girlfriend Helen for over a year now, and says his disability has changed the way he looks at sex – enabling him to focus more on intimacy.

“To use a cliche, you’re actually making love rather than having sex,” he explains.

What came across from Andy, as well as Shital and Damian, was that – disabled or not – everyone has the right to enjoy sex.

Yet only 5% of non-disabled people have ever been asked out or been on a date with a disabled person, according to the charity Scope.

Sex can be a real challenge for some – but there is always a way to overcome those obstacles. And perhaps the main place to start is by talking about the issue openly.

Texts From The DWP

February 22, 2016

Derek Scott shared this on Facebook on Friday:

I received a text from DWP earlier today detailing that my income support had been suspended and to call DWP. I telephoned DWP and they lied about not receiving an IS10. I had filled in the form on January 2016, and kept a photocopy and sent it back to DWP by 1st Class Recorded Signed for and informed the lady at DWP of this who said that my income support would be restored following discussing the questions on the IS10 form. I had previously called welfare rights who said that I didn’t have to send the form back because I wasn’t entitled to Severe Disability Premium, but I sent it back anyway. I just wanted to warn people of the DWP scam of lying about not receiving forms and suspending benefits claiming that they had been unable to contact people. Keep photocopies of benefit forms and send them back by recorded delivery.

To The DWP, A Smile Is Proof You’re Not Disabled

February 17, 2016

Apparently the DWP doesn’t care that the most severely disabled people smile more than most non-disabled people, even through unimaginable amounts of physical pain.

This status makes me very, very sad because I have spent my life seeing that happen.

IDS’s Full Letter To Frank Field

February 17, 2016

Readers, remember the letter IDS wrote to Frank Field a couple of weeks ago?

John McArdle of Black Triangle has very kindly shared a PDF of the full text.

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Edinburgh Tribunal Courts Expected Claimant To Lie On Floor During DLA Hearing

February 17, 2016

A Story Of Kindness By Pizza Express

February 16, 2016

Thank you Pizza Express! Massive pat on the back and sincere thanks from Same Difference too!

My Baby, Psychosis And Me

February 16, 2016

BBC One, tonight, 10.45pm:

An intimate documentary that reveals the frightening rollercoaster journey of two mums for whom childbirth triggers postpartum psychosis, one of the most severe forms of mental illness.

It is a condition most expectant mothers and their families have never heard of, but around one in every five hundred births can lead to the sudden onset of a psychotic episode. New mothers are overwhelmed by extreme low or high moods, strange and dangerous thoughts, paranoia and delusions – such as the belief that they have given birth to Jesus or the devil.

This is the untold story of what it means to battle this terrifying condition. Filmed over six months, we closely follow the intense experiences of two women, Jenny and Hannah, and their families, as they are cared for at Winchester’s Mother and Baby Unit.

Behind the closed doors of this specialist psychiatric ward, Dr Alain Gregoire and his expert team give women the care and intensive treatment needed to bring them back to recovery. While it is the most severe form of mental distress psychiatrists see, with the right medication and psychological support most women can return home within six weeks. And round the clock support with childcare enables mums and their babies to stay together, rather than face a damaging separation.

From the bedroom to the nursery, the hospital theatre to the psychiatrist’s chair – we watch the most personal moments of motherhood and mental illness play out for Jenny and Hannah, as Dr Gregoire and his team face two of the most challenging cases they’ve experienced. But in one respect Jenny and Hannah are fortunate; they have access to the expert treatment they desperately need. With a severe shortage of specialist psychiatric care for mums-to-be and new mothers, it’s a postcode lottery that determines whether women get the expert help they urgently need – over 80% in the UK don’t.

ATOS Nurse Writes That PIP Claimant Can Take Nutrition Independently Because They “Looked Overweight”

February 16, 2016

There are some dangerous, disablist attitudes in these assessment offices, readers. This is mainstream madness at its best!

  I just got the medical report from my ATOS PIP assessment and the nurse who wrote it has written in the section for taking nutrition, “She looked overweight therefore it is reasonable to assume that she can take nutrition independently,”. as it happens I can and I did expect to get points on this, but I am thinking that a nurse should know better than to write this since i could easily need help to take nutrition and still be overweight. I thought it to be medically incompetient and demeaning and am I thinking about a complaint to the professional body.

 

 

Air France Refuses To Take Disability Campaigner Gordon Aikman On Paris Honeymoon Because Wheelchair Is Too Big

February 16, 2016

A prominent disability campaigner flying out to Paris for his honeymoon was told by Air France he could not take his electric wheelchair on board because it was “too big”.

Gordon Aikman, who suffers with Motor Neurone Disease, was forced to cancel his flight and rebook with another airline at the last minute or else risk missing out on celebrating the special holiday with husband Joe Pike.

The activist, who is paralysed and has raised more than £400,000 for MND research through his charity Gordon’s Fightback , prompted a Twitter storm when he shared his ordeal on social media.

The 30-year-old from Edinburgh tried to get in touch with Air France for days, only to be told on Friday, two days before he was due to fly today, he could not take his wheelchair on board.

Speaking to the Mirror Online, he said he was “disgusted” with the way he had been treated by the airline, adding that since he could no longer walk or move his hands, life was “not worth living” without his wheelchair.

He said: “It took more than a week calling a rip off a premium number and spending a fortune asking whether I could take the wheelchair on board before I finally got an answer.

“Finally they got back to me and told me I could not take my wheelchair with me because it was too big for the hold.

“I am paralysed. Life without my chair would not be worth living. It is my legs. No one would say to an able-bodied passenger ‘Your legs are too big’.

“There was no attempt to resolve the situation, and I was not offered a refund. I was forced to cancel the flight and rebook with easyjet, or my husband and I would not have been able to go on our honeymoon today.

“Air France needs to change the way it treats disabled people. It is disgusting they should be treating people like this in 2016.

“No one should be treated like this. It does not matter who they are, this sort of behaviour can’t go on. If there really is no space on the aeroplane, airline should be upfront about it.”

On Friday Mr Aikman tweeted a picture of the letter rejecting his appeal to fly, saying: “‘Sorry sir, you can’t take your legs on this @AirFranceUK flight’ Thanks guys!”

The message drew calls for the airline to accommodate him from other Twitter users, including Scottish Labour leader Kezia Dugdale, who sent a message saying: “Hey, @AirFranceUK, all this guy wants to do is go on his honeymoon. What can you do to make that happen?”

Before his diagnosis, Mr Aikman was the director of research for the pro-Union Better Together campaign ahead of the Scottish referendum and a Scottish Labour party press officer.

As well as raising hundreds of thousands for MND research, his charity Gordon’s Fightback has united Scottish politicians across the party spectrum to secure the promise of better legislation for sufferers.

Mr Aikman said he wanted an apology from the highest level of Air France for the unacceptable way he had been treated.

He said: “I deserve a full refund and an apology from the Chief Executive himself. If they want to turn this into a good news story, Air France could also donate to Gordon’s Fightback.”

MND is a progressive, terminal disease involving degeneration of the motor neurons and wasting of the muscles.

Mr Aikman, who managed to walk down the aisle in March last year, now relies on his husband and on carers to feed, wash and dress him.

Air France has been approached for comment.

#Match4Zara Campaign Aims To Find Bone Marrow For Zara, 13

February 15, 2016

The family of a 13-year-old girl urgently seeking a blood stem cell donor are “amazed” by the response they have received on social media.

Zara Al Shaikh, who has acute myeloid leukaemia, opened a Twitter account with her father to appeal for help.

Her second tweet has been shared more than 8,000 times.

They were inspired by the #MatchForLara campaign that went viral and helped find a donor for another young woman from a mixed-race background.

Zara, from Winchester, Hampshire, opened the Match4Zara account with her father Loua Al Shaikh last week.

He told BBC News: “We thought we had nothing to lose by giving this a try. We put the first tweet out and the notifications on my mobile phone haven’t stopped.

“I had a Twitter account but I’ve never used it. I was amazed at the response we’ve had from all over the world.”

Among those who retweeted the appeal were Sherlock actors Mark Gatiss and Louise Brealey as well as American author Rainbow Rowell.

People have started replying saying they will register to see if they could be a donor, including people from mixed heritage.

“It gives us hope and shows Zara that she is not alone.”

Zara faces the problem highlighted by the viral #Match4Lara campaign, started by 24-year-old Lara Casalotti who is of Thai and Italian heritage.

It is harder for people with mixed-race backgrounds to find donors because they have rarer tissue types and there are relatively few people of ethnic minority backgrounds registered as donors.

This is partly because of a lack of awareness, says Loua Al Shaikh – who is also a doctor. There is also a myth that the procedure for donation is complicated, when in fact it is quite simple, he says.

As well as the Twitter account, there is a Facebook account called Saving Zara and other family members are setting up a campaign website.

Dr Al Shaikh says he hopes he can get more people registering as possible donors, whatever background they have.

“The more people who register, the higher chance for all waiting for a transplant to find their donor match.

“It’s sad to say, but no-one knows when you or someone you love might need that help.”

Zara first went through chemotherapy in 2014 and completed four courses of the treatment – but after 15 months in remission developed acute myeloid leukaemia.

She is currently at Southampton University Hospital after going through another round of chemotherapy which will leave her weak and prone to infection over the next few weeks.

But she is a fighter, her father says. She dyed her hair blue just before her latest round of treatment as a way of taking control of the situation.

“She is also very arty and occupies herself by drawing. She’s big on Manga-style cartoons,” Dr Al Shaikh says. “She even learnt some Japanese during her first stay in hospital.”

Charity Anthony Nolan says a shortage of registered donors means only 20% of people from ethnic minority backgrounds who need a stem cell transplant will find a perfect match.

Dr Al Shaikh says he is hopeful because Zara’s condition was picked up early – but she cannot keep having chemotherapy. Her only hope for a cure is a bone-marrow transplant.

How Disabled Voters Could Swing The 2016 US Election

February 15, 2016

In an election where gender and race are both popular topics of discussion, there’s a silent but formidable group of voters that no one’s talking about: disabled voters.

At last census, roughly 20% of the US population identified with some degree of disability, spanning a huge range of impairments across race, gender, age and class. Disabled people represent a huge electoral bloc, one Jim Dickson, the co-chair of the National Council on Independent Living’s voting rights subcomittee, contends is as formidable as other minority bloc voters.

But disabled voters don’t get much media attention – and substantial barriers lie between them and the polls. Some organizers want to change that, and are looking at ways to mobilize the disability vote.

Lisa Schur and Doug Cruse, researchers at Rutgers, have studied disability and voting extensively to explore the statistics of the disability vote and find out more about who is participating – and who isn’t.

“General predictors of voting include income, education and social isolation,” Cruse explains, noting that these are all common issues in the disability community. Schur adds that only 30% of polling places in the US are completely accessible, and voters struggle with issues like transportation, photo ID laws and polling place hours, all problems also encountered by other minority groups.

These, she says, could be a profound argument for organizing alongside groups like the black and Latino community, who are also being disenfranchised by voter suppression measures.

Across the disability spectrum, she has also witnessed bipartisan behaviors, which should encourage engagement from Democrats and Republicans alike, because they are both missing votes as a result of excluding disabled people from the electoral process.

Organizing as a bloc could be tough, she admits, because not everyone with an impairment identifies as disabled, and people experience such varying degrees of disability. Blind voters are different from wheelchair users or deaf voters, she says, with their own interests.

Dixon disagrees, though, arguing that disabled voters all have something in common: the experience of disability. His comments are in line with those of other disability rights activists, who acknowledge that disability is quite varied, but the priorities of disabled people remain extremely consistent.

Dixon, along with disability rights organizers Alice Wong and Andrew Pulrang, identified jobs as a key priority for disabled people, something that should be perking up the ears of the Sanders campaign. Economic inequality is a huge problem for disabled voters, who struggle with what’s known as the “benefits penalty” – disabled people who go to work risk losing benefits, so even in cases where people want to work, they are forced to stay home or lose healthcare, personal assistants and other supports that keep them living in their communities.

Community-based living is another concern, as disabled people still struggle to access care that allows them to stay out of institutions, and government funding, Dixon says, tends to funnel people towards nursing homes. Paradoxically, this is much more expensive, with institutionalization costing $40,000 to $80,000 annually, in contrast with a few thousand for a personal aide to help out around the house.

Disabled people are also very worried about police violence, says Pulrang. “The police killings that have garnered so much attention in the last few years include people with disabilities, who were killed in part because of poor understanding of how to communicate with people who have various kinds of disabilities.” That could be another point of collaborative organizing, as the black community is similarly concerned with the issue – notably, many victims of police violence are both disabled and black, in an intersection of injustice.
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RespectAbility is one group that’s hoping to promote voting in the disability community with outreach on these issues. The group is surveying and educating candidates on disability issues and conveying responses to disabled voters and other interested parties. Their hope, as with other disability activists, is to increase voter participation and push candidates to do better on disability issues – ultimately, that may include promoting bloc voting, with initiatives like #CriptheVote and RevUp! doing voter outreach as well. Wong is cautious about turning the disability community into a monolith, though, preferring to focus on uniting people behind common issues like social services.

It’s not enough to mobilize as a group, Pulrang, Schur, Cruse and Dickson all argue: We need more data on disabled voters to learn more about barriers to voting access, how people are voting, and which sectors of the disability community should be targeted to increase political engagement. Pulrang and Schur point to poor Americans with Disabilities Act (ADA) enforcement at polling places as an obstacle, for example, while Dickson notes that key provisions of the Help America Vote Act are still not being enforced, making it hard for disabled people to hit the polls.

This election could be a tipping point for disabled voters, akin to the mass youth mobilization in 2008 with the Obama campaign. A smart candidate could tap that, and promote the development of a large bloc with differing experiences, but common interests, like jobs or better mental health policy.

The candidate who proactively courts disabled voters could take key primaries – or perhaps even the general.

Rachel Starritt- First Blind Pupil At Royal Welsh College Of Music And Drama.

February 15, 2016

Despite being blind from birth, Rachel Starritt recently took centre stage in a festival on Beethoven’s music.

After receiving specialist training for the last 10 years, Ms Starritt is a second year pupil at the Royal Welsh College of Music and Drama.

She is the first blind pupil to have ever studied at the Cardiff college.

Ms Starritt from Brackla, Bridgend, says being blind means she has needed to develop a “greater sense of hearing and choreography”.

Nick Palit reports.

Terminally Ill Man Left ‘Totally Broken’ By DLA-PIP Transfer

February 15, 2016

A terminally ill man from Southcote says he feels “totally broken” after the Government decided to slash the benefits which he depends on.

After eight years of suffering from an mysterious illness Jason Henry, of Granville Road, was diagnosed with Castleman’s lymphoma at Royal Berkshire Hospital in 2013.

He was then granted a disability living allowance by the Department for Work and Pensions (DWP) to help him retain his independence while undergoing aggressive chemotherapy.

But according to Jason, after months of intensive treatment he was told that his condition is terminal and on Wednesday, February 3 the DWP announced that his disability living allowance would be cut.

The 44-year-old, who is known as Jake by his friends, was then granted personal independence payments (PIP), but he sees these smaller payments as insufficient and insists he cannot remain independent or mobile.

He said: “I just feel totally broken, that money enabled me to get out of my flat, be mobile and be part of my community. Without it I am stuck inside and can’t see my friends or be part of society.

“It’s like taking someone’s legs away when you’re asking them to walk. It was devastating when they took it away, it compounded my whole situation.

“They (DWP) have taken my allowance away because they are saying that I can do things which I can’t because of an Atos medical where I got interviewed by doctors who don’t even know me.

“They don’t know that after I have my chemotherapy I have to have my meals made, my tablets sorted and I need help getting around.”

Jason says the DWP is reviewing his case and it may reconsider its decision, but in the meantime he is relying on generous donations from his friends.

“My friends have been supporting me and my friend Rachel Kelly set up this go fund page,” said Jason, “I really don’t know what I would do without them.”

This isn’t the first time Atos healthcare has come under attack – the firm which carries out medical assessments on behalf of the Government has been heavily criticised by thousands of disabled people.

And at the beginning of February bosses from the outsourcing giant were forced to apologise after they were hauled before MPs to explain missed assessment targets.

He added: “But this isn’t only about me, there are other people out there in the same situation who have had their money taken away which they need to live.

“The Government just takes it and doesn’t realise how much heartache it causes, I have read about people committing suicide because their money has been taken away.”

A DWP spokesperson said: “Decisions on eligibility for personal independence payment are made after consideration of all the evidence, including an assessment and information provided by the claimant and their GP.

“The majority of people leaving the motability scheme will be eligible for a one-off payment of £2,000, which will help ensure their mobility needs continue to be met.

“Claimants who are unhappy with the decision can appeal.”

 

Stop it now, before it’s too late

February 15, 2016

Poppy Hasted's avatarPoppy's Place

One of the things I have seen online today that has made me think is an article about one of the 7/7 survivors who is having to go through the humiliating experience of applying for Employment Support Allowance. This man is a double amputee who has lost an eye and his spleen and is now a wheelchair user. The article is concerned with how awful it is that someone, who was so severely injured due to a terrorist act, and whose injuries are a matter of record, has to prove he is disabled in order to receive support.

I agree, it is horrible and disgusting that he is having to do this but, in my opinion, he is not being asked to do anything, that is in any way, unusual. For so many disabled people this is a normal part of applying for the minute dregs we are entitled to…

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A Message To Junior Doctors And Nurses From Disability Campaigner Paula Peters

February 15, 2016

MISSING: David Whyte, 14, Severe Autism

February 15, 2016

A vulnerable 14-year-old boy with severe autism who police say is not streetwise and has no sense of risk or danger, has gone missing.

David Whyte was last seen at around 2am this morning at his home in Bridge Road, Hounslow.

He is unable to speak because of his autism, so he communicates through mobile phone apps.

David is described as black, approximately 5ft 5in and with black hair.

Police said he likes travelling on the transport network and when he has previously gone missing, has been found on buses and trains.

He was last seen wearing blue jeans and a red hooded top.

Anyone who has seen David or knows where he is should call police on 101 or Missing People on 116000.

Updated Mon 15 Feb: Police have just issued a second appeal for him. Please share this post widely.

Updated Mon 15 Feb 5pm: David Whyte has been found safe and well in Westminster.

Disabled People Should ‘Have Their Own Airline’ Writes Man To His Local Newspaper

February 15, 2016

Same Difference believes that blogging is about expressing opinions. So we publish all sorts of opinions on many disability issues.

However, sometimes, like this, it is very important for us to stress that publication does not equal agreement!

A letter which states disabled people should have their own airline to avoid “holding people up” has been received by the Visiter from a Southport resident.

The vile letter which starts on the subject of the possible loss of the direct link between Southport and Manchester Airport, soon descends into a hate-filled rant about disabled people and that they are “the people who are complaining the most”

The writer then turns his attention to overweight people saying “I wouldn’t travel on a plane if I was fat either, I would be too embarrassed.”

The full page rant as a whole reads:

” I don’t know why people keep lamenting the loss of a direct rail link between Southport and Manchester Airport.

“If it is cut, all people have to do is change at Salford Crescent, it is no big deal and the inconvenience is minimal.

“And Victoria station is much nearer to the shops than Manchester Piccadilly station is.

“I suppose the people who are complaining the most are the disabled, but they shouldn’t be going to airports at all.

“If I was disabled and I couldn’t walk properly and quickly I wouldn’t dream of attempting to get on a plane.

“I would be too ashamed and racked with guilt in the knowledge that I am holding everybody up and getting in their way.

“I wouldn’t travel on a plane if I was fat either, I would be too embarrassed .

“Air travel is supposed to speed things up, not slow everybody down.

“If the disabled insist on travelling by plane they should have their own airline, just like the Paralympics compliments the Olympics.”

Simon Baron Cohen’s Tribute To His Special Sister Suzie

February 13, 2016

I have read very few articles more beautiful than this one.

Valentine’s Competition

February 12, 2016

This Valentine’s Day, Same Difference has teamed up with Abletoloveyou, a leading online dating website for disabled singles, to offer you the chance to win a free full 6 month VIP membership to their site!

 

Abletoloveyou provides a safe and easy way to get back into dating, allowing you to fill out an honest profile and search for other disabled singles with similar interests, values, looking for something meaningful.

 

Abletoloveyou are giving the chance for 3 lucky readers to win a 6 month VIP membership, which would save a total of £240pp. The membership benefits include:

 

  • Get all-in-one benefits

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  • Send, read and reply to an unlimited number of emails

For the chance to win this exclusive giveaway, and find love this Valentine’s, please email kerry.evans@jargonpr.com with the subject line: Same Difference: Abletoloveyou.

The competition will run for two weeks.

DWP Sends ESA Work Capability Questionnaire To Terminally Ill Former Soldier

February 12, 2016

A Southport woman has spoken of her shock after her terminally ill Dad was sent a Capability For Work questionnaire.

Libby Howells revealed the distress the government’s Department for Work and Pensions has caused her family as they struggle to care for Desmond O’Toole, who served his country in the Army.

Libby said: “I’m beyond being shocked, or saddened. I’m angry. I’m fed up.

“Today my mum received a Capability For Work questionnaire for my terminally ill dad.

“He’s pictured here, because dementia doesn’t make you lose your marbles like you all think, this is what dementia does to you.

“Look. Look hard. My dad is 63, has served his country, as a Royal Engineer, has worked his whole life, he is now bed ridden and suffers from Alzheimer’s.”

Desmond O’Toole is currently being cared for at the Birch Abbey care home on Alexandra Road in Southport, where Libby says he is receiving “fantastic care”.

The proud Sandgrounder was born and bred in Southport, going to school at Stanley High.

Married to Barbara, he is a doting grandfather to George, age six, and Ella, age one.

But while the former soldier is being cared for by his family, he is being shown little care by the DWP.

Libby is now asking people to share her story so people can see just how badly her Dad, and his family, are being treated.

She said: “He has had the disease for 10 years. He’s in the end stages, he cannot do anything for himself.

“He cannot talk, walk, remember his family, chew food, wash himself. Nothing. He is cared for 24/7 in a NURSING HOME.

“The DWP have on file and know he has Alzheimer’s, they’ve been told on numerous occasions.

“However yet again they must think that somehow his brain has miraculously healed itself.

“I’m sick to death of The DWP and Iain Duncan Smith and his fat cat Tory cronies treating our terminally ill population like fraudsters.

“So yet again my Mum has to fill in another 20 page form so my Dad can get the benefits he needs.

“Please share. Please get this out there. Something needs to change. It needs to change now.”

A Department for Work and Pensions spokesman said: “We owe the men and women who have served their country a huge debt of gratitude and will do everything we can to support them.

“It’s important that people claiming Employment Support Allowance receive all the support and benefits they are entitled to, which is why on occasion we ask for questionnaires to be completed by the claimant or their next of kin.”

Iain Duncan Smith is bleating about valid criticisms of his draconian policies on social media and in the mainstream media

February 12, 2016

Kitty S Jones's avatarPolitics and Insights

36626_217452248405831_532419169_nThe Work and Pensions Select Committee has just published some letters between Frank Field, the chair and Iain Duncan Smith. Duncan Smith responds to questions about the correlation between benefit assessments and suicide.

Mr Field had asked what data the Department for Work and Pensions collects on the deaths of benefit claimants.

The issue had been raised in research by Oxford University and Liverpool University in a research report entitledFirst Do No Harm , which I also reported on last year

The letter addressed to Frank Field MP, features a barely legible hand-written footnote warning against listening to those “in the media and on social media” who “accuse the Government of outrageous actions.”

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An office full of nurses and no antiseptic wipe

February 11, 2016

suwn's avatarscottish unemployed workers' network

Maximus hanging figures

Yesterday I accompanied someone to his Work Capability Assessment. Let’s call him Jack. Jack had one of those lists of ailments that spill off the form onto further pieces of paper, and quite clearly should never have been called in at all. And he already had serious mobility problems before having a toe amputated four days earlier. He arrived by taxi with his mother and had to walk slowly, leaning on a stick and steadying himself on her arm. Although there is parking in front of the assessment centre, this is only for the people who work in the building and it is protected by a barrier. The taxi had to stop the other side of the barrier, and Jack had to make his way slowly across the parking area. To someone in good health, the distance from barrier to door, across the outer lobby and down the corridor might…

View original post 289 more words

BREAKING: George Osborne’s Brother Adam Osborne Struck Off Medical Register For Affair With Patient Who Had Chronic Fatigue

February 11, 2016

Psychiatrist Adam Osborne has been struck off the medical register after having a two-year affair with a vulnerable patient.

It follows a Medical Practitioners Tribunal Service ruling that his fitness to practise had been impaired.

The married 39-year-old, who is the brother of Chancellor George Osborne, had admitted an inappropriate relationship with a patient.

The tribunal ruled his behaviour was “profoundly unacceptable”.

Suicide attempt

Mr Osborne had been treating the woman, described as Patient A, for depression, anxiety and chronic fatigue at his private clinic in London between 2011 and 2014.

She also had problems with substance abuse and self-harm.

He ended the two-year affair by email in February last year but after Patient A reported him to the General Medical Council he sent her a “number of inappropriate emails”, the tone of which grew more threatening, the tribunal was told.

He did not attend the four-day disciplinary hearing in Manchester, which heard how the woman had tried to take her own life two days after he broke off the relationship.

Dr Nigel Callaghan, the tribunal chairman, said Mr Osborne’s behaviour “undermines the public’s confidence in the medical profession”.

Scope’s Romance Classics #EndTheAwkward

February 11, 2016

The Mirror Has Collected Tweets About How To Die: Simon’s Choice

February 11, 2016

Here.

They are also running a poll on assisted dying.

They say the programme left viewers in tears. It left me in tears too. My tears were for Debbie Binner, the loving wife and mother who was not given a choice in losing her daughter, whose life ended naturally because of cancer. Who then eventually sacrificed her personal beliefs to let the husband she so clearly loved use his own mind on this extremely serious issue.

My tears were for Simon Binner- the man who had such a loving wife and family to live for, who still decided to end his own life because he feared severe disability.

The same severe disability that Stephen Hawking, one of the most intelligent men on Earth, has lived with for over 50 years.

He feared using nappies. He feared losing his ability to write. He feared that when he could no longer write he would lose his ability to communicate.

He didn’t know the beauty of nonverbal communication. He said he could speak four languages, verbally. But he didn’t know that he could have made himself understood so clearly through facial expressions and reactions, if he had only tried. He didn’t see me understanding his reaction to his wife’s pain when she was being interviewed about why she didn’t want him to have an assisted death.

The life he faced, the life he feared, is the life my friends with Cerebral Palsy have lived for the best part of 30 years. That is how I know the beauty of nonverbal communication.

The life he faced, the life he feared, is the life I have lived, with Cerebral Palsy, for the best part of 30 years. That is how I know that the need for support with personal care is not a negative thing- unless you make it one.

Regular readers will know that I am personally very strongly against assisted dying. The reasons why are listed above. I have lived with severe disability. I have valued others living with severe disability. I have been valued and I have been taught to value my own life.

At one point he compared himself to his beautiful, beloved pet dog. Yet he was not an animal. He was a human, and I strongly believe, as much as I love my own pets, that human lives are worth far more than animal lives.

Most people who are born with their disability, as my friends and I were, never know any different. I wish people who become disabled later in life would be told strongly that their lives are still very valuable and given support to live full lives while accepting the limits of disability.

The wish for a right to die comes from how mainstream society views disability and disabled people- as negative, worth less and less than human.

I wish that would change so that disabled and terminally ill people would not need to wish to die sooner than they have to.

 

 

Hannah Simpson: The Dance Teacher With Downs Syndrome

February 11, 2016

Becoming a professional dancer was always 22-year-old Hannah Sampson’s dream. Having Down’s Syndrome, though, she imagined there would be too many barriers in the way.

After her mum heard about a dance group for disabled and non-disabled dancers, Hannah, who was still at school at the time, went along to try it out.

“She immediately threw herself into it, and her talent was apparent from the start” says Siobhan Hayes, Hannah’s teacher.

As she progressed, Hannah not only became a full-time member of Stopgap Dance Company, but also started to teach classes. She is one of only a handful of dance teachers in the UK who have a learning disability.

BBC Made Last Minute Changes To Simon Binner Documentary After Samaritans Complaint

February 11, 2016

Samaritans put pressure on the ​BBC to make last minute changes to documentary showing a man taking his own life.

How to Die: Simon’s Choice, which aired on BBC Two last night, followed the final months of Simon Binner, a Cambridge graduate who suffered from motor neurone disease, and his eventual decision to kill himself, on October 19 last year.

An early version of the deeply moving documentary, which was made available to journalists last month, contained scenes in which Mr Binner’s lifeless body was glimpsed lying on a bed. Other footage included a description by a member of staff at the Eternal Spirit clinic, in Basel, of how the anaesthetic used to end Mr Binner’s life affected the human body.

The footage of Mr Binner’s corpse was removed from the final version of the programme, and the scenes involving the drug were edited, although not removed entirely, after an executive from the Samaritans raised concerns that the corporation may fall foul of guidelines that prevent broadcasters from giving detailed guidance about suicide methods.

A BBC source said: “We do not name the drug plus it is clear that the drug used is not one that is accessible by the general public. Therefore we are not showing a detailed demonstration of means and methods that would result in copycat suicides.”

Mr Binner made headlines last year, when he announced on LinkedIn that he planned to kill himself. Care Not Killing, the anti-assisted suicide group, said that the corporation was acting as a “cheerleader for suicide” by showing the documentary, but Rowan Deacon, one of the film-makers, insisted that the programme was “not a campaign film”.

IDS Demands That Benefit Claimants Should Be Removed From The Electoral Register

February 10, 2016

Updated: As we hoped (see below) it’s satire. Reader Steph Miller very helpfully posted this in the comments:

Its not true, the link is to a satire blog which states none of their stories are true: ABOUT NEWS CRASHER
News Crasher is run by a collective of left-leaning bloggers, who aim to poke fun at public figures and satirise current events. None of our stories are true, and any similarities to actual events are purely coincidental.

However, this is why the story will stay published (Bolding mine):

We also want to make a rather more serious point:- The Tories are so incredibly awful that a great many people find our fake news stories all too believable.
For example, would Iain Duncan Smith REALLY try to privatise food banks? Quite a lot of people are ready to believe so…

 

If this is not satire, as we hope it is but fear it isn’t, it is very worrying. Human beings living in a democracy in the 21st century, of working age, should all have the vote. To remove the vote from any group who are of working age in a democracy, these days, suggests at the very least that the word democracy would lose its meaning.

 

 

Iain Duncan Smith has reportedly demanded that those in receipt of benefits be removed from the electoral register, according to a letter leaked to the press today.

The Work and Pensions Secretary justified his request by arguing that it is unfair that people not currently paying into the system, either through working or by being high net wealth individuals, should be allowed to have a say in how public money is spent.

His letter to the Prime Minister went on to suggest that withdrawing the right to vote in this way, would provide a “much needed incentive for the workshy, ill and disabled to find work”, and for those in work to stay “in work and off benefits”. The letter also questioned whether those under the age of 25, who tend to be “more prone to idealism”, ought to be permitted to vote, albeit with a possible exception “for members of the Young Conservatives.”

There is speculation in Westminster that the timing of this letter is related to the upcoming referendum on whether the UK should leave the EU, and a possible snap general election that some are predicting to take place thereafter. In this context, barring  voters who are the least likely to vote for ‘Brexit’ or for the Conservative Party, may be seen by some as a useful measure.

A DWP spokeswoman refused to comment directly on the leaked letter, but told reporters: “Iain Duncan Smith believes that in a perfect world everybody would be able to enjoy a full suite of human rights, but with rights come responsibilities, and some rights should only be granted to those who have paid-in.”

Look what we have here…. The Jobcentre Plus column and here’s my version. 

February 10, 2016

Charlotte Hughes's avatarThe poor side of life

After a long afternoon campaigning outside Ashton Under Lyne Jobcentre I was in great need of cheering up. It’s cold out there at the moment and some of the claimants stories were particularly hard.

We decided to go for a well earned cuppa. Whilst we were sat having a chat, my comrade reached into his folder and asked me if I had seen this column in our local newspaper.

I hadn’t, I don’t buy the newspaper but sometimes you can get a free copy. So I had a look. I was that incensed that I actually spilt my cuppa.

I do believe that Ashton Under Lyne Jobcentre are trying to promote themselves and their schemes as being helpful. No mention of the heartache and desperation that they cause to claimants everyday. I wasn’t surprised though. Our protest has been continuous every Thursday for 15 months now, and as a result…

View original post 148 more words

Bus Driver To Woman In Wheelchair: For F*** Sake Can’t You Get The Next One?

February 10, 2016

A bus driver left a disabled woman in tears after allegedly shouting and swearing at her boyfriend when he asked for the ramp to be lowered to help her get on board.

Robert Greenwood, the partner of wheelchair-bound Karen McDonald, claimed that the 289 driver in Croydon, South, London, told them: ‘For f**** sake, can’t you get the next one?’

Mr Greenwood, 49, said that he had told the driver he was going to report him, before he got out of his booth and screamed at the couple.

The father-of-two said: ‘My partner was discriminated against just because of her disability. We travel on buses all the time and the staff are usually fantastic with us – we’ve never experienced anything like this before.

‘When I asked for the ramp to be lowered for me to wheel her on, he muttered “for f***’s sake, can’t you get the next one?”

‘Once we were in our seats, I went up to the driver’s booth and told him “I’m not happy with you, and I want your badge number so I can report you”.

‘He then pulled the bus over, got out of his seat and became aggressive with me – he was in a rage. He was extremely intimidating and my partner was shaken up by this.’

Mr Greenwood, who was a bus driver himself for 12 years before becoming a full-time carer for Miss McDonald, said they were originally taking the bus to an Ikea store – but needed to get the same one back to get home.

However, the couple were so fearful of coming face-to-face with the same driver that they took a taxi home – which cost them more than £30.

Mr Greenwood, who also cares for his autistic son, added: ‘It was probably him knowing that I was a former bus driver which gave him the hump. Even his driving showed that he was in a temper.

Even his driving showed that he was in a temper. We were so glad to get off the bus and Karen was crying
Robert Greenwood

‘We were so glad to get off the bus and Karen was crying. We would usually get the 289 back to Croydon but got a cab home instead because we didn’t want to get on the same bus with the same driver. It cost us £32. 

‘My wife suffers from fibromyalgia and she has fractures in her spine, as well. She can barely walk so why couldn’t he just press a button to accommodate her like a normal person would?’

Tony Akers, Transport for London’s head of bus operations, said: ‘We are concerned to hear of this incident and are investigating it with Arriva, the operator of the 289 bus route. We expect the highest standard of public service from bus drivers.’

Motability Car Losses Under PIP: Meet Denise

February 10, 2016

denise

And last week, she was interviewed on the BBC.

Twitter Announces Trust And Safety Council

February 10, 2016

Twitter have announced their Trust And Safety Council- 40 organisations which will work to help them “ensure that people feel safe expressing themselves on Twitter.”

The list includes LGBT Rights organisations and domestic violence helplines, as well as an Australian mental health organisation, Beyond Blue.

Anything that improves Internet safety for anyone is a very positive thing in this 21st century where the Internet controls everything most people do. These days, Twitter is taken more seriously than most mainstream media organisations. So Same Difference welcomes the introduction of their Trust and Safety Council, as a whole.

However, while we are pleased to see Beyond Blue included, we are slightly disappointed that there does not appear to be any specific Disability Rights organisation on the Council as yet.

It is to be hoped that the Council will be a success and continue to grow. In future, Same Difference would welcome the addition of an organisation like Disability Rights UK, Sense or Scope.

In particular, given the problems faced on Twitter by Autism campaigner Kevin Healey, it is to be hoped that the Council will grow to include an organisation specific to Autism, such as the UK’s National Autistic Society or American organisation ASAN.

Twitter notes in its own blog post that it has 320 million users. That number includes a large and universal community of disabled people who have their own specific needs.

Many of them cannot leave their homes. Many of them have very limited interaction with people offline. So for many of them, Twitter is a library and Facebook is a pub.

Same Difference will try hard to follow the progress of Twitter’s Trust and Safety Council and will keep readers updated as we become aware that it has grown.

Manchester Airport Dismisses Need For Hoists

February 9, 2016

WheelPower launch national survey – #TalkAboutTakingPart

February 9, 2016

A press release:
WheelPower, the national organisation for wheelchair sport today, Tuesday 9 February 2016, launch the ‘Talk About Taking Part’ survey to find out what can be done to help more wheelchair users live lead healthy active lives and take part in sport.

Disabled people who use a wheelchair in everyday life, or who would use one for sport, are urged to complete the survey.  We are keen to find the views of those who don’t take part in any sport as well as people who already lead active lives. The survey aims to find to what extent wheelchair users are involved in sports and physical activities, and to understand any barriers to participation. It will guide WheelPower’s strategy and put access and inclusion as a priority for national sporting bodies.

WheelPower’s National Sport Director Chris Turner said “We’re looking forward to finding out what wheelchair users want from their sports or physical activities. Every response will help WheelPower work towards making wheelchair sport more accessible. This research will also be important in challenging sports bodies and retailers to provide more facilities for disabled people in the future. If you’re a wheelchair user, now’s the chance for you to talk about taking part and make your voice heard.”

Sport England’s Senior Disability Manager, Thomas Smith said, “This survey is a great opportunity for WheelPower to check in with its audience, and hear their views on sport and being active.  Its findings will help WheelPower continue to offer its invaluable service and respond to new trends and behaviour.  The more completed surveys it receives, the more informed it will be, and I would encourage people to promote and complete the survey.”

Take part in the WheelPower survey here: www.rica.org.uk/wheelpowersurvey               Closing date: Friday 6th May 2016

Starbucks Employee Wins Dyslexia Discrimination Case

February 9, 2016

A woman with dyslexia has won a disability discrimination case against her employer Starbucks after she was accused of falsifying documents.

A tribunal found Meseret Kumulchew had been discriminated against after making mistakes due to her difficulties with reading, writing and telling the time.

She was given lesser duties at her branch in London and told to retrain, which left her feeling suicidal.

Starbucks said it was in discussions about providing more workplace support.

The judgement against Starbucks was made in mid-December, and there will now be a separate hearing to determine any compensation.

As a supervisor at Starbucks in Clapham, south-west London, Ms Kumulchew was responsible for taking the temperature of fridges and water at specific times and entering the results in a duty roster.

She was accused of falsifying the documents after mistakenly entering wrong information.

‘Not a fraud’

She took Starbucks to an employment tribunal alleging disability discrimination saying she had always made it known to her employer that she was dyslexic, which means she has difficulties with words and numbers, and has to be shown how to do tasks visually.

The case does not set a legal precedent, but the British Dyslexia Association said it should be a wake-up call for employers.

It estimates that one in 10 people has dyslexia to some degree, although many have not been formally diagnosed.

Speaking exclusively to the BBC, Ms Kumulchew said: “I am not a fraud. The name fraud itself shouldn’t exist for me.

“It’s quite serious. I nearly ended my life. But I had to think of my kids. I know I’m not a fraud. I just made a mistake.”

The tribunal found Starbucks had failed to make reasonable adjustments for Ms Kumulchew’s disability and had discriminated against her because of the effects of her dyslexia.

It also found she had been victimised by her employer and there appeared to be little or no knowledge or understanding of equality issues.

‘Anxiety’

In a statement, Starbucks said: “We are in ongoing discussions with this Starbucks partner (employee) around specific workplace support and we are not able to comment on a case that has not yet been completed.”

The company said it was committed to having a “diverse and inclusive workforce” that “feel welcome and comfortable in our stores”.

Ms Kumulchew said she wanted help – for example, more time to fully understand and become familiar with a task, and someone to check her work for mistakes.

“I’ll struggle, but don’t worry, help me and I’ll get there in my own time,” she continued.

“I’m not going to affect your business, because for every customer I’ll roll out the red carpet.

“I love my job. Giving them a coffee may not be a big deal, but I’m making their life, for the day at least, happy.”

Dr Kate Saunders, CEO of the British Dyslexia Association, said: “Many dyslexics are struggling in the work place with very high levels of anxiety, because employers do not have the training or the awareness to make adjustments for them.”

Deaf Actress Marlee Matlin Also Performed At Superbowl- But She Was Almost Hidden

February 9, 2016

Disability Benefits Consortium Response To PIP Aids And Appliances Descriptors Consultation

February 9, 2016

The Disability Benefits Consortium (DBC) has responded to this consultation, which sought views on changing the way that aids and appliances are taken into account when determining entitlement to the daily living component of Personal Independence Payment (PIP).

The DBC is a national coalition of over 60 different charities committed to working towards a fair benefits system. Using its knowledge, experience and direct contact with disabled people, family and carers, it seeks to ensure Government policy reflects and meets the needs of all disabled people. Disability Rights UK is a member of the DBC

View DBC consultation response

View original consultation

The review asked for comments on the following options for reform, all of which would result in less PIP being awarded:

Option one

A lump sum payment for claimants who meet or exceed the eligibility point threshold for the daily living component but score all of their points from aids and appliances. The value of this lump sum could be less than the cumulative value of the equivalent monthly payments. It could be discretionary and could be restricted, for example through the use of vouchers. It would not act as a passport to any other benefit or benefit premia and would not exempt claimants from the benefit cap. Claimants scoring at least some points from other descriptors would be paid at the relevant weekly rate, as now.

Option two

A monthly payment below the equivalent weekly rate for claimants who meet or exceed the eligibility point threshold for the daily living component, at either rate, but score all of their points from aids and appliances. This payment would not act as a passport to any other benefit or benefit premia and would not exempt claimants from the benefit cap. Claimants scoring at least some points from other descriptors would be paid at the existing weekly rate.

Option three

A new condition of entitlement that claimants must score some points from a descriptor that does not relate to aids and appliances. This would mean claimants would not be entitled to the daily living component if they scored all of their points from aids and appliances irrespective of whether they met or exceeded the point threshold for either rate. Claimants scoring at least some points from other descriptors would be paid at the relevant weekly rate, as now.

Option four

To change the definition of aids and appliances in relation to the relevant daily living activities to exclude items that are a poor indicator of additional cost and need. These items could be distinguished by reference to whether they are available at low or no cost and/or whether they are commonly used by non-disabled people for the same purpose. Claimants who used aids and appliances that were a good indicator of extra costs would be paid at the relevant weekly rate, as now.

Option five

Halving the number of points awarded from 2 to 1 for the use of aids and appliances in relation to some or all daily living activities. Claimants scoring at least some of their points from aids and appliances could lose entitlement to their current award rate. Claimants scoring all of their points from other descriptors would be paid at the relevant weekly rate, as now.

Our view on the consultation

This consultation is prompted in part by comments made by PIP independent reviewer Paul Grey.

“For most activities, the use of an aid or appliance scores two points. This is the lowest level. This reflects the fact that many aids and appliances are: widely available, relatively low cost and easy to use. Individuals who rely on them are likely to encounter lower barriers and costs than individuals unable to complete activities at all, or who require help from other people to do so.

As highlighted by the first independent review of the PIP assessment by Paul Gray, this policy does not appear to be working as intended. DWP doctors therefore reviewed a sample of 105 cases were claimants scored all, or the majority, of their points due to aids and appliances, to assess the extent to which the award may reflect extra costs.

The results of this review suggest that significant numbers of people who are likely to have low or minimal additional costs are being awarded the daily living component of the benefit solely because they may benefit from aids and appliances across a number of the activities, despite the relatively low point score awarded for them.

In addition to this, recent judicial decisions, based on the current legislation, have broadened the scope of aids and appliances to include articles, such as beds and chairs, which are unlikely to be a reliable indicator of extra costs.

These developments are inconsistent with the original policy intent of awarding the benefit to claimants with the greatest need. We have therefore decided to consult on how aids and appliances are taken into account when determining entitlement to the daily living component.”

Benefits Assessor: How Long Are You Likely To Have Parkinson’s?

February 8, 2016

This paragraph from Frances Ryan’s latest article- an interview with a claimant called Phil Brehaut- just says it all.

“It was very daunting, like being in court,” he says. “The lady on the panel actually asked me, ‘How long are you likely to have Parkinson’s?’” He pauses. “The person next to her quickly whispered in her ear … You would think they’d know a little bit about it.”

 

ESA Assessor: How Long Will You Have Downs Syndrome? And Other JC+ Madness

February 8, 2016

 

 

 

 

31,500 Scots In Line To Lose Motability Cars Under PIP

February 8, 2016

MORE than 30,000 disabled Scots face losing specially adapted vehicles as Iain Duncan Smith steps up his agenda to cut back on welfare provisions.

Last year a total of 70,000 people north of the Border used the Motability scheme – which allows participants to lease out a car, scooter or powered wheelchair using an allowance provided by the Department for Work and Pensions (DWP).

But a new reassessment process being brought in as claimants move from Disability Living Allowance (DLA) to Personal Independence Payments (PIP) has led to almost 14,000 people across the UK having their vehicles taken from them.

Dr Eilidh Whiteford MP, SNP spokeswoman for social justice and welfare, said that if the reassessment rate continued some 31,500 people on the scheme in Scotland would lose their vehicles. “Almost 14,000 disabled people have already had their specialist cars taken away from them following reassessment, and if the current rate continues it would mean that 31,500 people in Scotland would no longer be able to access this vital scheme,” she said.

“This would leave those in rural areas, where public transport isn’t always accessible or very regular, without any options whatsoever.”

She added: “I am extremely concerned that taking away a disabled person’s means of transport will make it impossible for them to travel to and from work – which flies in the face of the Tory Government’s aim of getting more people in to work.

“And while there is an appeals process, it fails to protect disabled people. Apart from an appeals process putting undue stress on a disabled person, the latest figures show that 60 per cent of decisions to remove mobility allowance were later overturned on appeal, which suggests that the system just isn’t working.”

John McArdle, co-founder of the Black Triangle disability rights campaign, said: “This is a despicable move which targets the disabled. It is nothing to do with supporting vulnerable people and everything to do with reducing the Conservative Government’s welfare bill. Thousands of disabled people rely on these vehicles, and without them many will become prisoners in their own homes.”

Until recently, anyone receiving the highest rate of the “mobility component” of DLA was eligible for the scheme. However, as part of DWP’s welfare changes, PIP began replacing DLA from April 2013.

Under DLA, most people completed their own application form and did not have to reapply once entered into the scheme. With PIP, everyone – new applicants and those already in receipt of DLA – have to attend a face-to-face assessment by Government-hired private companies, and only those scoring 12 points or more will qualify for support – currently £57.45 per week.

To date, about 51,200 people have joined the Motability scheme using PIP. Of those previously on higher-rate DLA, 31,200 have so far been reassessed for PIP, and of those, 55 per cent – or 17,300 – have kept their vehicle. But the remaining 45 per cent – 13,900 people – have lost the higher rate and therefore their vehicle as well.

Some 360,000 people across the UK will eventually undergo PIP reassessments, including those currently on an “indefinite” or “lifetime” DLA award. Disabled children will continue to receive DLA until they reach the age of 16, and those who were aged 65 or over on 8 April 2013 are also unaffected.

A DWP spokesman said: “Decisions on eligibility for Personal Independence Payment are made after consideration of all the evidence, including an assessment and information provided by the claimant and their GP. The majority of people leaving the Motability scheme will be eligible for a one-off payment of £2,000, which will help ensure their mobility needs continue to be met.”

The ‘Working Welfare’ Report By Reform Got Its Percentages Wrong

February 8, 2016

 

Spotted here.
The report “Working welfare: a radically new approach to sickness and disability benefits” was prepared by Reform which claims to be ‘politically independent’ and is led by Andrew Haldenby, former head of the political section in the Conservative party’s research department.  The report is seen by many disability groups as being based on nothing more than the ideological aims of the Conservative party.  Report writer Charlotte Pickles, senior research director at Reform, was Iain Duncan – Smith’s DWP ‘Expert adviser’ for two years after her appointment in May 2010 at the time of the General Election, she also worked for over 3 years as Policy Director for the Centre for Social Justice (CSJ) between 2007 and 2010.  The CSJ was co – founded by Duncan Smith and Tim Montgomerie in 2004.

Fellow senior researcher, Ed Holmes, worked as a consultant for 4 months with the highly controversial firm Maximus, recently slated by the National Audit office for ongoing problems in assessing Employment & Support Allowance claimants for their fitness to work.  Since Maximus took over, the cost of assessments has escalated by an estimated 65% with costs rising £115 to £190 per assessment.  Holme’s background also includes 5 years with ‘Policy Exchange‘, once described as Cameron’s favourite think tank.    

Remaining researchers, Hannah Titley and Ben Dobson, appear to lack the necessary experience and credentials to get to grips with the reality; namely Iain Duncan Smith’s catastrophic mismanagement of sickness benefit reforms which have done so little to help sick people back in to work.

With such a strong lean to the right, it is hardly any surprise that the report zealously over defends the IDS ideology, the writers appear unaware of the root cause of 5 long years of IDS chaos, it’s been a sea of 1.1 million sick people having to appeal for their benefits, over 1 million having to claim the same benefit more than once because there’s no prospect of employing people who are profoundly unwell.   

Perhaps if the researchers had paid a little less attention to their ideologically driven assumptions, they wouldn’t have drawn the following misguided conclusion:
“In the quarter to May 2015, just 1 per cent of claimants in the ESA Work Related Activity Group (WRAG) – those deemed able to carry out activity to help them move towards work – left the benefit.”

What the researchers have (incorrectly) done is assume that 16,940 claimants have come off Employment & Support Allowance in Work Related Activity Group by simply looking at the DWP’s ‘off flow’ figures for the May 2015 quarter.  The 1% figure would relate to the 177,010 claimants who came off Employment & Support Allowance in the same quarter (16,940 being approximately 1%) rather than the 476,500 claimants actually in the Work Related Activity Group as of the May 2015 quarter, making the percentage 3% rather than 1%.

Getting the percentages wrong is a poor start,  how about the rest of it?   

It’s duff research, the researchers haven’t done their home work.  
Wrong on several counts.  In the first instance the researchers have paid no attention to 31,240 Employment & Support Allowance designated ‘unknown’ in the same May 2015.  The DWP annotation is clear “where the claimant is not in receipt of any benefit payment then the stage of benefit is shown as unknown“.  This means that where the claimant, whatever phase they are in, is not in receipt of a payment (some only being credited with National Insurance contributions), they will be shown as ‘unknown’.  The researchers have no way of ascertaining how many of the 31,240 claimants marked ‘unknown’ in the May 2015 quarter were in fact in the Work Related Activity Group.

Secondly, they make an incorrect assumption over claimants shown as an ‘off – flow’ in the ‘Work Related Activity Group’ as always having been in the group. The group or ‘phase’ is only shown relative to the payment the claimant was in receipt of at the time they ‘off – flowed’ from Employment & Support Allowance.

Thus a claimant who was initially in the Assessment Phase, then placed in the Support Group before being reassessed in to the Work Related Activity Group, then leaves ESA, will ‘off flow’ in the group or phase they were in relative to the end of their claim (the example I’ve just cited would be a Work Related Activity Group off flow).  The phase statistics provide no indication of the history of the claimant prior to their claim ending.
Reform incorrectly associate off – flowing Employment & Support Allowance claimants in the Work Capability Group with claimants who have consistently been in the group by their failure to acknowledge an adverse appeal exit.  Let’s say we had an ex – incapacity claimant who qualified for Employment & Support Allowance and is then subsequently placed in the Work Related Activity Group.  Assuming he or she goes through the appeals process and is found fit for work by the appeal tribunal.  The same claimant will show as an off flow in the Work Related Activity Group because that would be their last payment before their claim ends due to the adverse appeal finding.

Reform put very little in relevant context.  What the full figures show, save for what I’ve already pointed out on the Work Related Activity Group off flow figures, is that between December 2011 and May 2015, the following off flow figures are recorded by the DWP:

  • A total of 2,180,0130 claimants ended claims for Employment & Support Allowance; of which:
  • 466,430 were designated as ‘unknown’ status.
  • 1,275,940 were in the Assessment Phase
  • 236,090 were in the Work Related Activity Group
  • 201,540 were in the Support Group

A substantial number of claimants do come off Employment & Support Allowance, the vast majority in the Assessment Phase. Equally, the figures show 236,090 to have exited their claims when in receipt of a Work Related Activity Group payment.

Reform mention the static number in the Work Related Activity Group (476,500 as of the May 2015 quarter) without looking at the numbers assessed in the group via a Work Capability Assessment.

Disabled DWP Staff Report Increase In Disability Discrimination At Work

February 6, 2016

The Department for Work and Pensions has been criticised for an increase in the number of its own staff reporting discrimination on the grounds of disability. 

More than 1,400 civil servants working for the DWP said they had experienced discrimination, harassment or bullying on the grounds of a disability, according to the department’s latest staff survey – up from just over 1,000 reported in the same survey in 2014. 

The survey shows a 23 per cent increase in one year in the proportion of staff reporting such discrimination and have led to calls for the department, which leads government efforts to tackle discrimination at work, to “sort out its own housekeeping”. 

The minister for disabled people, Justin Tomlinson, has not responded to the findings, and DWP officials have played them down, pointing out that the percentage of all respondents to the DWP staff survey who reported discrimination on grounds of disability has risen from 1.91 per cent in 2014 and 2.36 per cent in 2015.  

A DWP spokesperson said it would be “overly simplistic” to interpret the survey as “reflecting an increase in these incidents”. “The figures are in part a reflection of the work we have been doing to encourage more people to come forward and raise awareness in this important area,” the spokesperson said. 

But Mark Serwotka, general secretary of the Public and Commercial Services Union, which represents civil servants, warned against complacency, and Baroness Campbell, the disabled crossbench peer, said the findings were “very worrying”.

Although more people – 61,019 – responded to 2015’s survey than in 2014, when 54,426 responded, the proportion reporting disability discrimination was higher. There were also more reports of discrimination on the grounds of disability than for gender, ethnic background or age.  

The DWP is currently encouraging employers to increase their understanding of disability and to remove barriers to disabled people getting promoted at work, through the Disability Confident campaign. 

Baroness Campbell told the Disability News Service that the Government needed to dig into figures on its own staff to “understand more about the complexities that prevent disabled people entering employment”.

“The DWP needs to sort out its own housekeeping, otherwise how can they possibly lead by example on the Disability Confident campaign?” she said

Mr Serwotka said: “It is shocking that the DWP, which is responsible for promoting disability awareness and inclusion in employment, treats its own staff so badly. One of our key concerns about the staff survey in previous years has been that findings are all too often ignored, but ministers and senior officials must act on these results.”

Iain Duncan Smith’s department is already under fire for plans to cut the benefits of thousands of disabled and long-term ill people receiving employment support allowance. Disabled people in the “work-related activity group” – those classified by assessors as being likely to be able to work in the future – will lose £120 a month in support, in proposed cuts expected to save £640m by 2020-21.

A DWP spokesperson said: “Any form of bullying, harassment or discrimination is unacceptable and where formally reported it will be dealt with in the strongest possible way.

“It would be overly simplistic to interpret the People Survey findings as reflecting an increase in these incidents.”

‘Bed Blocker’ Poppy Hasted’s Powerful Letter To David Cameron

February 6, 2016

A powerful piece from today’s Mirror.

Poppy Hasted, 55, from Lambeth, South London, has suffered from multiple sclerosis since 1985.

She was admitted to King’s College Hospital in December 2014 after a pressure sore caused by her wheelchair got infected.

She was fit to be discharged after three weeks but was stuck in hospital for a further four weeks because social services could not arrange appropriate home care.

Here she writes an open letter to David Cameron about the “bed-blocking” crisis…

Dear Mr Cameron,

Yesterday Lord Carter published a review saying hospitals need to find a solution to “bed-blocking” because there are 8,500 patients trapped in hospital per day, taking up beds when they are fit to go home.

The solution is very simple: sort out social care. How do I know? Because I was a bed-blocker.

Last winter I became very ill. I have multiple sclerosis and use a wheelchair. In December 2014 I developed a pressure sore from sitting in my wheelchair. It got infected and I was taken to hospital.

To begin with, hospital was undoubtedly the best place for me.

I needed specialist care and intravenous antibiotics. My dressings needed to be changed three times every day.

But I spent seven weeks there and I was ready to go home three or four weeks before it actually happened.

The tube the doctors used to get the antibiotics into me was removed and I was given tablets instead.

My dressings only needed changing once a day and the district nurses could have visited me at home to do that.

But I continued to lie on the hospital ward, taking up a bed.

I couldn’t be discharged until social services had organised a home care package, so carers could visit me at home every day to help wash and feed me and do some cleaning for me.

Before I went into hospital my two adult daughters were my carers. They had looked after me since they were 12 but the doctors could see it had reached the stage where I needed some professional help.

I needed three visits each day, with two carers each time – a total of 31.5 hours every week – but social services found it nigh-on impossible to arrange for an agency to provide the carers.

So I stayed in hospital and, although it wasn’t my fault, I felt guilty about being there.

I knew I was taking up a bed I didn’t need any more and there was someone else lying on a trolley downstairs in A&E, or at home waiting for an operation, who needed it a lot more than I did.

I wasn’t the only one. During my stay in hospital I met three or four other people who spent longer than they needed on the wards.

One lady was admitted to the same ward just before Christmas and she was definitely there longer than she needed to be because it took them so long to arrange the home help she needed.

I tried to keep my spirits up by chatting to the other patients and making friends.

Read more: Four times David Cameron misled MPs in just 15 minutes

I paid for television and internet access, which was very expensive.

As the weeks crept by I became increasingly bored and twitchy. Hospital is not the best place for someone to recover once they no longer require constant care.

I missed the outside world and the life I had there. I use the internet to keep in touch with my friends on Facebook and had just started blogging but the internet access in hospital was awful.

I couldn’t go to my favourite coffee shop, or attend the creative writing group I had set up.

Spending Christmas and New Year in hospital was particularly awful. I didn’t feel like I had much to celebrate that year.

When my daughters came to see me I became tearful and told them I couldn’t do this any more.

Luckily for me I am friends with a local councillor so I started ringing him to grumble.

He must have pulled some strings, because within three or four days I finally started to see some progress.

People began coming to see me every other day and I kept on badgering them until they finally made the necessary arrangements and I could be discharged.

It was such a relief to be home but after seven weeks in hospital I had started to feel institutionalised. I found I was hungry at the same time I was used to receiving my hospital meals.

It made me realise there are a lot of people trapped in hospital far longer than I was, people who are old, frail or vulnerable.

Spending so much time in there and becoming institutionalised must make it so much more difficult for them to resume their lives when they finally go home.

I have nothing but praise for the doctors and nurses. They were so nice to me that whenever I go back for an outpatient appointment I always pop up to say hello.

They were dedicated professionals doing their best to help patients but if thousands of beds are being blocked the medics don’t have the tools they need.

It’s all very well for the Government to say it is ring-fencing NHS budgets but the NHS is just one piece of the jigsaw.

If the Government keeps slashing social care budgets, more healthy people will be left in hospital for weeks – or months – longer than needed, while others who are in urgent need of treatment will have nowhere to go. The problem is only going to get worse as our population ages.

The Government needs to stop penny-pinching and start investing. Bed-blocking shouldn’t be allowed to happen any longer.

Danielle Jacobs, Who Shared Viral Assistance Dog Video, Shot Dead By Police In Arizona

February 6, 2016

An American woman with Asperger’s syndrome, who took the internet by storm with a video of her dog comforting her, has been shot dead by police.

After officers were called to her flat in Arizona for a suicide call, Danielle Jacobs reportedly tried to attack them with a knife.

Speaking to AZ Family, Detective Esteban Flores said the 24-year-old was transported to hospital to undergo surgery after officers shot her but died later that evening.

Talking to The Daily News, her mother, Stacia, expressed shock at the death.

“I talked to her last night and the night before and she seemed fine.

“Before the police arrived she wasn’t posing a threat to the community at all. And the police came into her own place.

“They shot and killed a 24-year-old autistic, mentally ill individual whom they had been familiar with and were aware of her special needs.’

Last year Jacobs gained attention after she posted a video where she tries to punch herself and her Rottweiler comforts her.

“This is what having Asperger’s like,” she wrote alongside the video.

Speaking to The Huffington Post last year she spoke candidly about her disability. 

“When I have a meltdown, I often have self-injurious behaviour and I often self-harm.”

Although this video was later made private, Jacobs continued to post other videos of the dog consoling her up until three days before she died.

Speaking to AZ Family, Detective Esteban Flores from the Mesa Police Department in Arizona said the police had received multiple calls about a suicidal woman that day.

“She had one knife that we know of, she had something else we’re not sure what it was, the officers said it was dark inside the room. 

“When she made contact with them she approached them with the knife, extended it out, and they felt threatened.”

Living With Microcephaly In The UK

February 5, 2016

More than 4,000 babies in Brazil have been born with microcephaly since October. The condition causes a baby to be born with a small head and can lead to the brain not developing properly.

Health experts believe the rise in cases is due to the Zika virus, which is spreading rapidly through South America.

But what is it like to live with microcephaly and what does it mean for those babies as they grow up?

Breakfast’s Graham Satchell has been finding out.

Reform Think Tank Report Proposes Cutting Disability Benefits In Half

February 5, 2016

The government should radically overhaul the welfare system for sick and disabled people by slashing weekly benefits by nearly half, a top think tank has said.

In a new report out today, the right-wing Reform research group said the existing employment and support allowance has “failed to encourage sick and disabled people to work”.

“The government will fail to reach its target of a higher employment rate for disabled people without root-and-branch change,” researchers added.

 

Reform wants the government to cut the weekly benefit paid to 1.3m sick and disabled people from £131 to £73 – the same amount of basic pay that Jobseeker’s Allowance claimants receive. The report’s authors said that having a higher rate of weekly benefit for sick and disabled people “encourages people to stay on sickness benefits rather than move into work”.

“Too many people with health conditions are being left stranded on incapacity benefits,” said report co-author Charlotte Pickles. “Employment not only provides a source of income, but improves social inclusion, builds self-esteem and improves an individual’s physical and mental health.”

Reform’s proposals have faced sharp criticisms, however, from charities, including Mencap, which works with people with learning disabilities.

“Cutting their benefits, of which almost 7 in 10 disabled people say will cause their health to suffer, will do nothing to improve their employment chances and would instead push them closer to poverty and further from employment,” said Mencap policy head Dan Scorer, citing a survey of people claiming disability benefits from last October.

“Disabled people were hit by £18bn of benefit cuts in the last parliament. Targeting them again will do nothing to help the Government achieve its desire to halve the disability employment gap,” Scorer added.

Oxford University Study Finds 600 Deaths Between 2010-2013 Linked To WCA

February 5, 2016

Josh Hadfield Gets £120,000 Compensation After Swine Flu Vaccine Led To Narcolepsy

February 4, 2016

The mother of a 10-year-old boy has told the Victoria Derbyshire how she feels guilty about allowing her son to have a vaccination that led to narcolepsy.

Josh Hadfield, from Frome in Somerset, has won £120,000 in damages after receiving the Pandemrix vaccine six years ago.

Caroline Hadfield said getting the compensation was a “huge relief”.

Motability Cars Lost By 45% Of DLA To PIP Claimants

February 4, 2016

Benefits And Work have very helpfully summarized yesterday’s BBC story. Same Difference publishes their summary with many thanks.

 

The BBC has obtained figures which show that 45% of disability living allowance (DLA) claimants with a Motability car lost it when they were assessed for personal independence payment (PIP).

According to the BBC, 31,200 Motability car users on the higher rate of the mobility component of DLA have been assessed for PIP. Of those, 17,300 people – 55% – have kept their car, but 13,900 – 45% – have had their car taken away because they no longer qualify.

Motability say they provide a support package, including a £2,000 grant to anyone who has their car taken away because of a PIP reassessment.

Meanwhile, Justin Tomlinson, the Minister for Disabled People, told the BBC that people’s circumstances changed over time and it was right they should be reassessed.

“But rightly we have a system that allows for an appeal, a mandatory reconsideration and then if they’re not satisfied with that they can go for an independent appeal, so there are lots of opportunities if a claimant thinks a decision is wrong to have that looked at again.”

You can read the full story on the BBC website

Aspire’s research examining the lives of spinal cord injured people living in adapted and unadapted homes

February 4, 2016

A press release:

Aspire, a national charity that provides practical help to people who have been paralysed by Spinal Cord Injury, has today released the findings of an independent study undertaken by Loughborough University: “The health and wellbeing of spinal cord injured adults and the family: examining lives in adapted and unadapted homes.”
No one can ever be prepared for how a spinal cord injury (SCI) will change their life. There are many factors to be considered when someone leaves hospital, a main priority being where they are going to live. Very few people’s homes are suitable for a wheelchair without needing any adaptations, such as a ramp so they can simply get to the front door.

Due to a lack of available accessible housing in the UK, 86% of people with SCI are likely to be discharged into a home that doesn’t meet their physical needs. On leaving hospital many spinal cord injured people are forced to live in a care home or an unadapted property, often having to live in just one room downstairs which can make them feel like they are living in a prison.

Aspire commissioned research with Loughborough University to examine the impact on spinal cord injured adults and their families of living in adapted and unadapted homes. The research found that people living in unadapted properties are less likely to be employed or see their friends, will have poor health and are more likely to suffer from depression and have suicidal thoughts.

A research participant said: “My flat used to be nice but now it’s turned into a prison because it’s not adapted. I feel really trapped. It’s just a horrible feeling.”

The research found that many spinal cord injured people talked about having to “battle” and “fight” with the local authorities when trying to get the adaptations they so desperately need.
One participant said:

“At the moment I think if I have to describe myself in one word it would be a ‘battler’ because that’ what my life has turned into; a battle in many directions. The process started as soon as I came out of hospital and it’s a year and 3 months on and I’m only still at the application stage. The thing is it’s very tiring battling, it’s really exhausting. I feel really frustrated and a bit defeated by it. It’s making me more depressed. Why put me through this? Are people who work in housing trying to make my life more miserable?”

Another participant said:

“Mentally we’re quite strong people – and they’ve brought us down quite low, but they haven’t broke us yet – we’ve still got that little bit of fight left. But it does bring you right down – you actually lose the will to fight, and then you end up struggling. Why does this happen. Do people want to make us struggle? Our life isn’t great, it’s not. A house, with adaptions, is all we ask. That would give us the start we need and we could move forward.”

Aspire is calling for:

• Government, nationally and locally, to start taking this issue seriously and end the misery of domestic incarceration for a population equivalent in size to the Prime Minister’s own constituency. We want a new duty to be included in the Housing and Planning bill 2015, currently going through Parliament; to require all local authorities to accurately assess the level of need for wheelchair accessible homes, and set appropriate targets in their local development plans.

• We acknowledge that new wheelchair accessible homes aren’t the whole answer. It is also vital that local housing authorities make much more efficient and effective use of existing adapted and accessible accommodation.

• Local authorities, in implementing The Care Act 2014, should recognise the essential role that housing plays in health and wellbeing, and incorporate housing into local integrated care strategies and services. For people with SCI, this would mean being discharged from rehabilitation into an adapted property which supports their right to independent living, if it is not possible to make adaptations in their previous home.

• To enable spinal cord injured people to remain in their own homes whenever practicable, by improving the processes to enable them to obtain grants and have adaptations approved much more quickly.

• The lack of suitable housing results in more spinal cord injured patients unnecessarily spending additional weeks in hospital waiting for adaptations to their own home, or for a wheelchair accessible home to be found. It costs the NHS £960 per day for a bed in a Spinal Injury Centre. This avoidable cost is also incurred when spinal cord injured people are readmitted for treatment for bladder infections, pressure sores or falls brought about by living in unadapted housing.

• Providing more adapted housing for disabled people will also benefit the increasing ageing population and is therefore an investment that will significantly help the current and future UK population.

Brian Carlin, Chief Executive of Aspire, comments: “Every eight hours in the UK someone is paralysed by a spinal cord injury. It can happen to anyone at any time and no one is prepared for how it will change their life. When leaving hospital, housing is a key concern for spinal cord injured people because most people’s homes are not suitable for a wheelchair. This results in many people having to go into a care home or unadapted housing. Previous research by Loughborough University found that having to live in a care home has a devastating impact on the lives of people paralysed by spinal cord injury, with their lives being put at risk. This new research brings to light the negative impacts of living in unadapted accommodation.

The Aspire Housing Programme offers short-term adapted accommodation whilst a permanent housing solution is found, but more wheelchair accessible homes are needed throughout the country, which is why we are calling for the amendment to the Housing and Planning bill 2015.”

Read Jochem’s story at http://www.aspire.org.uk/jochems-story

David Cameron Rules Out Scrapping £30 A Week Cut To ESA

February 4, 2016

More details here.

Tactile/Scented Valentines Cards Available

February 3, 2016

Are you looking for a Valentine’s card suitable for a visually impaired person?

Living With Microcephaly

February 3, 2016

This morning on the Victoria Derbyshire show Joanna Gosling spoke to Robin Freeman, who has microcephaly, and his mother.

 

Let’s keep the job centre out of GP surgeries and the DWP out of our confidential medical records

February 3, 2016

Kitty S Jones's avatarPolitics and Insights

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Last year I wrote a critical article about the government’s newWork and Health Programme, I flagged up concerns regarding government plans to enlist GPs in prescribing work coaches for people who are sick and disabled, and providing advice on job-seeking. The private and confidential patient-doctor relationship ought to be about addressing medical health problems, and supporting people who are ill, not about creating yet another space for an overextension of the coercive arm of the state to “help people into work”, regardless of whether or not they are actually well enough to cope with working.

I also posted my article on the Pulse site for medical professionals last October, raising my concerns. I proposed that the government may use the “intervention” as an opportunity for sanctioning sick and disabled people for “non-compliance”, and I proposed that this would conflict with the ethics and role of a doctor…

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Blind Journalist Lee Kumutat On Skyping At Her Grandmother’s Deathbed

February 3, 2016

What’s it like to be at someone’s deathbed – by Skype? Lee Kumutat, who’s blind, discovered an unexpected comfort when she was faced with the death of a loved one half a world away.

My grandmother was dying. Her breath was becoming more and more laboured. I comforted Mum, as nurses came in regularly to check on them both, and say hello to me. We laughed and cried.

But I was not in the room. I was at home in London, 13,000 miles away from her care home in Sydney.

My grandmother was 94 when she died. She had dementia and my mother had been her sole carer for over 10 years. My family is of German background, so she was always “Oma” to us.

Oma’s health deteriorated rapidly in those last weeks and she was taken to the respite home which, fortuitously, was equipped with fast and stable wifi. My mother and I had discovered this and we’d shared a number of virtual visits in the weeks before she died.

So, it seemed quite natural for Mum to Skype me when she learned that Oma’s death was likely to come in the next few hours. She ask me to stay and talk with her. From 13,000 miles away, I could hear the gentle hum of a well-run facility – people were respectfully getting on with their duties while somebody’s well-lived life was coming to an end behind a curtain.

We talked about her, sharing memories of her quirks, how she’d driven us both crazy at times, and how she’d always been the same, never moody, never changing. I felt honoured when Mum asked me to write the eulogy for her funeral, although sadly distance and work would prevent me from attending.

Mum placed her tablet device on the bed next to Oma so she could hear me through its speaker. We told her it was OK, it was time for her to let go, and that we loved her.

I suggested that although I was on the line, Mum should call some other family members to be with her physically for when the moment came. She agreed.

I heard Oma’s final breath and remember the music that was playing on the television of the person in the neighbouring bed. It was somebody singing James Taylor’s Fire And Rain as performed on one of those talent shows.

It was an incredibly powerful and difficult moment.

I remained connected while phone calls and preparations were made, only hanging up when the family was ready to leave the hospital. As I tried to absorb the information that Oma was no longer part of my world, I became aware of a spreading sense of further poignancy.

Before I moved from Australia to England, I was witness to my mother’s careful ministrations – she was efficient and practical – and I never felt like I was able to do any more than perhaps a 12-year-old child could – I might fetch a walking stick, or make a cup of tea here and there.

I would stand by while Mum washed and dressed Oma, only being able to offer an ear and the occasional bit of advice to Mum about how she could best look after herself during this difficult time. I know of many blind people who are carers for others who are ill or infirm, and that it’s often my perception that sighted must equal faster and more efficient that can sometimes hold me back.

For the first time ever, I felt I’d been able to take part in events as much as possible considering there were two computers, thousands of miles of fibre-optics and a couple of satellites between us. And that maybe, for everybody involved, those limitations were easier to accept and deal with than those placed on me, and on others, by my blindness.

In similar situations in the past, I have sat by a bedside holding a hand and not heard a soft-footed nurse coming in to check observations and immediately felt I was in the way. Or I’ve found myself standing awkwardly in a cramped hospital room, too frightened to move in case I knocked out a vital line or set off an alarm. I was always wanting to help more, but I didn’t know how to talk about it – because none of this was about me, and nor should it be.

And yet, from my room in north London, I had participated in a momentous and sad event within the heart of my family.

I couldn’t get in the way, I couldn’t offer a clumsy hug just as the person stepped away to shift a pillow. I had been useful and had contributed fully. Perhaps next time I am faced with a similar situation, I will better understand my limitations, accept them and feel sure that my individual contribution is important and appreciated.

Further Info From ATOS Assessor Sally Jones

February 3, 2016

See this post, readers.

Sense International Calls For Global Commitment To Those Affected By The Zika Virus

February 3, 2016

A press release:

 

Global deafblind charity welcomes WHO’s declaration of a public health emergency

 

–         International community encouraged to plan long-term to support those affected by Zika virus–

 

–         Sense International has expertise in working with children with deafblindness and other associated disabilities linked to microcephaly –

Sense International today responded to the announcement from The World Health Organization that the recent cluster of microcephaly and other neurological abnormalities linked to the Zika virus outbreak, predominately in Latin America, constitutes a “public health emergency of international concern.”

Yesterday, WHO Director General, Margaret Chan, called Zika an “extraordinary event” that required a global co-ordinated response.  Sense International supports the WHO’s declaration as a call to action that will mobilise the necessary resources and international focus to prevent the further spread of the Zika virus.

Sense International encourages the WHO, Governments and donors to not forget in their response to this public health emergency, that long term measures and resources will also need to be put into place to ensure the rights of the children born with microcephaly can access the early intervention, education, life and vocational training that they will need to reach their full potential.

Gill Morbey OBE, Chief Executive of Sense and Sense International, said:

 

“We welcome the World Health Organisation’s commitment to addressing the growing numbers of babies being born with microcephaly and other associated neurological abnormalities, through its focus on containing and eliminating the Zika virus.”

“Sense was founded by families of those born with congenital rubella syndrome during the Rubella outbreak of the 1950s and 60s in Britain. We know from experience that the right support is crucial to helping a deadfblind person develop to their full potential.

“We encourage the international community to develop the measures and resources that will be required to ensure that the children and families affected by the virus receive the support they will need.”

“Sense International will focus on providing advice and support to those countries most affected.”

Zika Virus: Brazillian Journalist Born With Microcephaly Speaks Out About The Condition

February 2, 2016

Brazilian journalist Ana Carolina Caceres, 24, was born with microcephaly, a congenital malformation that means babies are born with abnormally small heads and may suffer from delayed brain development. The condition is suspected to be linked to the Zika virus, which has been spreading through the Americas.

Dismayed by recent comments about microcephaly, Ms Caceres decided to tell her story.


On the day I was born, the doctor said I had no chance of survival. “She will not walk, she will not talk and, over time, she will enter a vegetative state until she dies,” he said.

But he – like many others – was wrong.

I grew up, went to school, went to university. Today I am a journalist and I write a blog.

I chose journalism to give a voice to people like me, who do not feel represented. I wanted to be a spokesperson for microcephaly and, as a final course project, I wrote a book about my life and the lives of others with this syndrome.

I can say that today I am a fulfilled, happy woman.

With the spike of microcephaly cases in Brazil, the need for information is more important than ever. People need to put their prejudices aside and learn about this syndrome.

Including the health minister. He said that Brazil would have a “damaged generation” because of microcephaly. If I could speak to him, I would say: “What is damaged is your statement, sir.”

Microcephaly is a box of surprises. You may suffer from serious problems or you may not. So I believe that those who have abortions are not giving their children a chance to succeed.

I survived, as do many others with microcephaly. Our mothers did not abort. That is why we exist.

It’s not easy, of course. Life was hard for me and my family. My dad is a lab technician and was unemployed when I was born. My mother was a nursing assistant.

Health insurance covered a few things, such as labour expenses. But other tests were not covered and were very expensive.

The whole family got together – uncles, aunts and others. Everyone gave what they could to cover the costs.

I had five operations, the first just nine days after I was born, because I was not breathing properly.

I also had seizures. Apparently it’s something that all people suffering from microcephaly will have. But it’s not a big deal – there are drugs to keep it under control.

I took medication until I was 12, then never needed it again. Now I am even able to play the violin!

So when I read that activists in Brazil were urging the Supreme Court to allow abortion in cases of microcephaly, I felt offended and attacked.

I believe that abortion is a short-sighted attempt to tackle the problem. The most important thing is access to treatment: counselling for parents and older sufferers, and physiotherapy and neurological treatment for those born with microcephaly.

I certainly know that microcephaly can have more serious consequences than the ones I experienced and I am aware that not everyone with microcephaly will be lucky enough to have a life like mine.

But what I recommend to mothers or pregnant women is that they remain calm. Microcephaly is an ugly name but it’s not an evil monster.

Have your prenatal tests done sooner rather than later and seek the advice of a neurologist, preferably before your baby is born.

Also, get to know mothers of children with microcephaly. There are groups of women on Facebook with two or three children with the syndrome who can tell you about their lives.

If there are still parents who choose to abort, I cannot say anything. I think the choice is theirs. But they need to make that decision knowing all the facts.

As told to BBC Brasil’s Ricardo Senra.

Sickness worsening? Beware following DWP rules

February 2, 2016

jaynel62's avatarjaynelinney

Before Christmas I attended an emergency interim appointment with my psychotherapist, (I’m still waiting regular appointments 2 years after referral); this was due to my continuous depression and dissociation becoming dangerous, I was constantly fighting thoughts of suicide . Because the S word was used, my therapist was obliged to write to my GP, which then led to my carer being compelled to inform the DWP of a change in my circumstances; what amazed me was, this reported change resulted in me having to complete a new claim!

Why the DWP feel a deterioration in mental health would be helped by having to go through the process of a new claim I’ve no idea? Anyway my carer duly filled in the form, and on page 31, other information, he stated HE was both my full time carer and would be acting as my representative, this was then sent off along with the…

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Victoria Derbyshire Coverage Of ‘Unacceptable’ Waits For Autism Diagnosis

February 2, 2016

 

 

 

 

https://twitter.com/Saint_Odo/status/694451912612118528

Study Shows That LGBT Pupils Are More Likely To Be Bullied If They Are Disabled

February 2, 2016

Pupils who are disabled or have learning difficulties are significantly more likely to experience homophobic bullying than their mainstream classmates, according to a charity which has produced a guide for teachers on tackling the problem.

The Anti-Bullying Alliance cites data showing that 55 per cent of lesbian, gay, bisexual or transgender (LGBT) children are likely to be bullied at school about their sexuality or gender. Among LGBT pupils with learning difficulties or disabilities, however, that figure rises to 66 per cent.

The alliance also conducted its own research, speaking to 33 LGBT teenagers with disabilities or special needs. “How are we supposed to tell [teachers about incidents of bullying], if teachers don’t understand LGBT or disability?” one pupil said.

Another spoke of feeling marginalised, particularly during PSHE lessons: “People think disabled people are asexual as it is, so they don’t talk to you about any relationships, let alone about being or acknowledging that you are LGBT.”

The charity’s new guide – being published to mark the start of LGBT History Month in February – recommends that:

  • teachers must take reports of bullying seriously. Pupils often say that they are not believed when they report bullying;
  • teachers deliver sex and relationships education that mentions both homosexual sex and also sex among disabled people;  
  • teachers discuss being LGBT in school, as well as being LGBT and disabled.

Lauren Seager-Smith, of the Anti-Bullying Alliance, said that reports of dual discrimination were cause for concern. “We must listen to disabled young people in our schools and act on their recommendations,” she said.

The guide is available here.

Decision Maker Tells Mother Her Daughter’s Terminal Organ Failure Is ‘Your Opinion’

February 2, 2016

I found this heartbreaking story on the ATOS Miracles Facebook page. I usually share the links to Facebook statuses directly from Facebook, but this story is so heartbreaking that I don’t want to take the chance of anyone not being able to read it. Please share as widely as possible.

This mother talked to the Decision Maker last week and told him, “my daughter is dying from organ failure”. He said ‘that’s your opinion’. Her daughter had just been turned down for PIP for the third time. She has had a lifetime of health problems which have spread to many other illnesses. Aged 28 she now has end stage organ failure and will die without transplants. Whether a donor comes or not she is living the quality of life of someone at the end of their life. No PIP.

To anyone terminally ill your claim should get fast-tracked with a DS1500 form which your doctor fills in, not you.

Here’s the family’s entire heartbreaking story. Should be read and shared to all politicians, all dwp managers, etc. This is moral bankruptcy and cruelty of the highest order:

Louise Hughes: My beautiful daughter was diagnosed with Type 1 diabetes at the tender age of 4, the diagnosis was traumatic, made more so by a ham fisted retired Army doctor stabbing away at her little arm, shouting at her to sit still because he couldn’t find a vein. She was sitting in my lap screaming as blood spurted all over her yellow t-shirt. A week later she collapsed and was rushed to the Cambridge Military Hospital in Aldershot where they found her blood sugars were sky high and subjected her to a series of blood tests. I’ll never forget her screaming “no more needles mummy, no more needles!!”. As a result she has a deep rooted needle phobia, how tragically ironic is that? Anyway, years passed, she grew up, went to university and enjoyed life like any other young person, got a good job and met a wonderful young man.

But then 2 years ago life kicked her where it hurts, as her health slowly started to deteriorate. She’s had Type 1 diabetes for 24 of her 28 years on this planet and has no cognitive memory of life before diabetes. To cut a long story short, she was diagnosed with Stage 4 diabetic kidney disease in the spring of 2015, her kidney function was about 14% and getting progressively worse. Just before Christmas she was told she is now in End Stage, her kidneys are working at 8% capacity, she is dying of organ failure. She’s had 3 applications for PIP turned down, the last one being a week ago, I’d supplied additional medical evidence from her consultant surgeon and specialist renal nurse outlining the enormous impact her condition is having on her physical and mental health. She’s had 2 fistula surgeries, where an artery is attached to the nearest vein to create a larger blood vessel to facilitate dialysis treatment, they both failed because her veins are too fragile, the surgeon is going to make another attempt further up her arm next week. If that fails she will have a canula permanently fitted into her abdomen into which the dialysis chemicals are poured. She is on the active transplant list for a pancreas/kidney transplant at the John Radcliffe Hospital in Oxford which is positive in a way, but she is struggling to comes to terms with the fact that someone has to die in order for her to have a chance at prolonging her life.

She’s had 3 diabetic retinopathy surgeries, involving cutting into the cornea and lasering the retina at the back of the eye. One of the surgeries bled out and she had to go back to theatre to have the eyeball removed, cleaned and put back into the socket …. not for the faint hearted. This has weakened her eyesight and left her sensitive to harsh or bright light. She also undergoes monthly iron transfusions as her blood count is so low, coupled with regular blood/tissue matching tests for possible donors. Given her acute needle phobia, her bravery is humbling.
She is now so sick that people literally stop and stare at her in the street, she is in constant debilitating pain and walks (when she is able) with a stick. As her kidneys are barely working she is on a protein restrict diet, but her condition and medication have robbed her of her appetite. She’s too weak to lift a kettle, chop vegetables and most of the time she can’t face food without feeling nauseous. She vomits copiously for hours every morning and has urine and bowel problems. Basically her life sucks.

She lost her job as a result of her poor health and now relies on her fiancé, and me, for financial help. But hey, we’ve got our marvellous benefit system haven’t we, designed to help people in their time of greatest need? Not a cat in hells chance!!
She’s not entitled to a single penny in benefits, not one bean. The PIP application process is cruel beyond words, the ATOS interview was demeaning, humiliating and inhumane. Someone with spurious medical knowledge gives their opinion after an hour of meeting the applicant?!! I accompanied my daughter to the ATOS interview and requested a written transcript, it took 6 weeks to arrive and was almost laughable, were it not so vitally important, in its lack of detail. It barely correlated at alł with what was said on the day and I have challenged everything.

SORRY THIS IS SO LONG. 😕

Last Monday 25th Jan, I posted by recorded delivery, all the additional medical evidence to the DWP to be looked at again. On Friday 29th Jan I rang the DWP to confirm that they had received the envelope and was told ‘yes’ they had and it had been scanned onto the system on Wed 27th. I was then informed that a decision letter had been sent out on the same day! She had been turned down again. I asked how that was possible, I’d sent in quite a pile of documents for consideration, surely there had been a mistake? Nope. I’ve submitted written evidence to the Public Accounts Committee inquiry into outsourced health care companies, so I rang the petitions clerk to update her, she was horrified. Half an later a Case Manager phoned me and we had a long chat, she was very apologetic and said she would ask the Decision Maker to phone me, which he did. My word, what a pompous, self opinionated man. He told me that he had taken into consideration the ATOS report findings, he obviously hadn’t bothered to read any of the additional evidence. I asked him if he had any medical knowledge or expertise and he replied ‘no, but I am trained in interpreting medical evidence relating to benefit claims’ …. whoopie doo!
I told him my daughter is dying from organ failure, he said ‘that’s your opinion’ and when I said that people stand and stare at her in the street because she looks so ill, he said ‘that’s nine of my concern and doesn’t affect my decision’. He constantly interrupted me and spoke over me when I was talking, which I found incredibly rude.
I was shaking and felt physically sick when I put the phone down.

Now, I’m a tough old bird and not a lot upsets me, but I am beyond livid by the heartless way in which sick and disabled people are being treated in 21st century Britain. It’s almost akin to the Nazi persecution of the sick and disabled in World War Two. How on earth do those poor people with nobody to help and support them through the PIP application process manage?!

So, Mr David Haley, Client Executive of ATOS …. ‘Client Executive’??!!! – what sort of job description is THAT?? – I will see you at the evidence session on Wednesday 3rd February. I’ll be listening to every word you utter and watching you, look me in the eye if you can.

Disabled Passenger Claims She Was Forced To Crawl Off Flight With Air India-Run Airline Alliance Air

February 1, 2016

A disabled passenger claims she was forced to crawl off a plane and onto the tarmac at India’s busiest airport after no one provided a wheelchair.

Anita Ghai said she was left shocked and embarrassed by the way she was treated by Alliance Air, a regional carrier operated by Air India, at New Delhi’s Indira Gandhi International Airport.

The 53-year-old claims she had to crawl off the plane and onto a bus that took her to the terminal after she waited half an hour for a wheelchair that never arrived.

Anita Ghai claims she had to crawl down the stairs and onto a bus that took her to a terminal (file photo)

Ghai, who uses a wheelchair after suffering polio as a child, told DNA India she stayed behind after the other passengers had disembarked.

She said: ‘They [the flight attendants] told me that the wheelchair will come, but it did not. The door of the plane is narrow so I knew the chair could not be brought inside, but they did not even have an aisle chair.

‘I can’t stand as I have polio, so I crawled down the steps waiting for the chair.’

Ghai, a disability rights advocate and associate professor at Delhi University, said a wheelchair was provided once she reached the arrival hall after the bus ride.

She said the incident occurred after she arrived in New Delhi from Dehradun on Saturday night. She said she told staff before arriving that she would need a wheelchair.

MailOnline Travel has contacted Air India for comment.

In a statement given to India’s national press, Air India denied the woman’s claims.

The airline said: ‘Since the flight was parked at a distant bay it took some time to bring the wheelchair. Since passengers were getting down from the aircraft, our support staff actively helped the passenger to come out of the aircraft ensuring any inconvenience and the wheelchair was provided at aircraft doorstep.

‘We deeply regret any inconvenience caused to the passenger. However, we strongly deny the statement appearing in media.

‘We at Air India give utmost importance to passenger safety and comfort.’

Ghai shot back at the airline, telling DNA India that it was ‘blatantly lying’ and she is considering legal action.

PIP Assessor Speaks Out About Targets And Descriptors

February 1, 2016

Disabled People Being Left Behind In Employment Drive Finds New Report

February 1, 2016

The government has been accused of “leaving the disabled behind” in its drive for greater employment, after it emerged that more than half of the households in which nobody works contain at least one adult with a disability.

A major report by the Resolution Foundation thinktank, whose executive chair is the former Tory minister David Willetts, suggests that the government must offer the same level of focus to people with disabilities that it has given to helping single parents overcome obstacles to work.

The report congratulates ministers of all political persuasions on reducing the total proportion of households where nobody works from 20.5% in 1996 to 15.4% in 2015 – a reduction of a quarter. The proportion of children in such households has fallen faster, dropping from 17.6% to 11.4%, the report says. The report adds that the rise in employment since 2010 has been “exceptional”, with more 18-to-69-year-olds in employment than ever before (71.2% in the third quarter of 2015). However, authors Paul Gregg and David Finch warn that more than half (54%) of the remaining households where nobody works contain at least one disabled adult – amounting to 1.6m families. This compares to just over one in 10 (11%) workless households being single parents (without disability), of which 64% have at least one child under five. Less than one in 30 (3%) are parents who are without disability.

The report suggests that the drive to get parents into work through tax credit incentives – which apply to people who work 16 hours or more – and improved maternity leave, must be replicated for those households where someone has a disability if the government is to achieve its goal of full employment.

“For disabled people, the extent to which the tax credit system provides a incentive to work may be outweighed by the barrier to work that disability can create,” the report says. “A person may struggle to meet the 16 hours requirement due to the nature of their disability, or in the case of a couple, caring responsibilities. The success of policy measures to boost parental employment provide something of a template when designing support for disabled people, although it is clear that the support in place has not been effective enough and a significant shift in thinking about the barriers faced by disabled people is required.”

The report, Workless Households, Children and Disability, based on an analysis of the Labour Force Survey and Office for National Statistics data, notes that, although the employment gap between individuals with a disability and those without narrowed by 10 percentage points between 1998 and 2009, in 2015 it is still 33 percentage points wide (46% to 79%).

It says: “There is still catching up to do. Unlike broader gains in employment, the increase in working among the disabled has not been evenly distributed across different household types. Worklessness has fallen most among couples where only one partner is disabled. Although the workless rate has fallen among households – single and couples – where all adults are disabled, the fall has been slower and largely reflects an improvement in the aggregate level of employment.”

Within households where both members have a disability the report finds that, where one member works, it is often the case that the other works as well. It found a particularly high level of worklessness among single disabled people: 59% in 2015.

David Finch, senior economic analyst at the Resolution Foundation, said: “In order to progress towards full employment – and to make further significant inroads in reducing worklessness – the government must now focus its attention on helping out-of-work disabled people.

“This will require a fundamental shift in policy, and should be a key focus of the upcoming disability white paper.”

Claimant With MS Denied PIP For Probably Being Able To Make A Sandwich

February 1, 2016

From Friday’s New Statesman:

 I allegedly didn’t look tired enough at my assessment to convince them that my Multiple Sclerosis-induced fatigue is real.

It’s probably time for me to give up on Personal Independence Payment (PIP) – the non-means-tested benefit designed to support individuals with disabilities and long-term health conditions. I was deemed unentitled to PIP, despite having Multiple Sclerosis (MS), after a ten-month process, from initial application to the court appeal at which I represented myself, and lost.

The PIP benefit is renowned for being difficult to claim, and many applicants have waited much longer than I did, and faced extreme financial hardship as a result.

Which is why I contacted my local MP regarding my experience of the PIP assessment, and the impact it’s had on my life as a person with a serious health condition. My local MP, Andrew Turner, was very polite, and promptly secured a written response for me from his colleague, the Minister for Disabled People, Justin Tomlinson.

    While most people might feel excited to receive a fancy envelope with the House of Commons portcullis printed on it, I felt like burying myself in the garden (if only I didn’t have muscle weakness and ridiculous fatigue, right?). Unfortunately, the capability you might have to bury yourself in the garden isn’t one of the questions on the PIP application form, though it may as well be. And, spoiler alert, the letter didn’t give me any hope of claiming PIP, nor did it provide me with a cure for my incurable disease.

I’m grateful that Turner passed on my query to the Minister. Turner included a more personal note to accompany Tomlinson’s generic response that, “clarified the government’s position on the introduction of Personal Independence Payment”.

However, at Jeremy Corbyn’s first PMQs in September 2015, my local MP quickly became infamous by asking the Prime Minister to intervene in a struggle the Isle of Wight Zoo had faced in trying to import a tiger to the UK. David Cameron laughed at the request, though considered it serious enough to do something about it (Simi now lives on the Isle of Wight).

The same day “Tigergate” went down, I was in Parliament, at a private reception hosted by the MS Society. My MP was invited to this reception, launching the MS: Enough campaign, which asks the government to revise the PIP benefit, though he didn’t attend.

While I’m all for animal rights, I’m saddened that the rights of disabled people are not taken seriously at present. And the response from Tomlinson only makes me sadder.

The letter from the House of Commons is, by and large, a copy and paste job that staunchly defends the PIP benefit. It justifies the abolition of Disability Living Allowance (DLA), the benefit that previously supported the disabled and sick, praises the newly-designed PIP assessment process and face-to-face tests carried out by contractors Atos, and hints at the so-called elimination of benefit fraud believed to have taken place.

However, as the public has heard again and again, though still not often enough in my opinion, individuals with genuine illnesses and disabilities are regularly being found ineligible for the benefit.

The MS Society evaluated this change from DLA to PIP and commented:

“Since the introduction of PIP, the proportion of people with MS receiving the highest rate of mobility support has fallen significantly. While under DLA, 94 per cent of claimants with MS received the higher rate of the mobility component of the benefits, so far this has only been awarded to 42 per cent of PIP claimants with MS.”

(Calculated from Department of Work and Pensions Statistics: Tables Disability Living Allowance – cases in payment Caseload [Thousands]: Main Disabling Condition by Mobility Award Type and Stat XPlore tables for PIP awards).

This is a huge shift in financial support for a high percentage of individuals, yet the response from the Minister for Disabled People fails to address this fact.

Instead of being a reply to my query, the letter is defensive, and a little condescending, as it states: “I can assure you that we have considered the needs of people with Multiple Sclerosis in developing the assessment.”

However, as the response has failed to consider my needs as a person with MS, I’m sceptical.

No one likes to appear weak, particularly when their baby is being scrutinised. I feel the exact same way when anyone denigrates the Kardashian name. The thing is, though, that the PIP benefit is already being called into question, and has been since its inception. Even the UN has launched an investigation into Britain’s current benefits system, and charities have long been outspoken about the negative effect PIP has had on the disabled.

But, presumably, in the eyes of the government, they all be hating. As Justin Tomlinson’s letter claims, PIP “provides an opportunity to better target support for disabled people and to enable them to lead full, active and independent lives.”

The PIP benefit could absolutely do this, if those with disabilities and long-term health conditions actually qualified for the benefit, and did so without having to ask for mandatory reconsiderations, or take their claims to appeal.

As Michelle Mitchell, chief executive of the MS Society, said of a survey carried out on those attempting to claim PIP:

“More than a third of those who have undergone face to face assessments reported that the experience had caused their MS to deteriorate or relapse. It’s clear that people with MS are having to navigate an unforgiving system of confusing and stressful processes to prove their entitlement to the disability benefits they need.”

A benefits system that negatively impacts on, and even worsens, the health of an individual, has not been designed with all illnesses in mind. Though, naturally, Justin Tomlinson would beg to differ:

“Eligibility . . . is based on the functional effects of an individual’s condition, rather than the condition itself. As two people with the same condition can be affected in different ways, there is no condition-based entitlement to Personal Independence Payment.”

Certainly a relief to have that explained to me.

Perhaps the letter makes some good points. For one, that “Disability Living Allowance had not been fundamentally reformed since it was introduced over 20 years ago and it lacked some of the basic checks and reviews that are integral to most other State-funded support.”

Maybe DLA was long overdue an overhaul – as great as the Nineties were, no-one wants to be stuck there forever.

Though Tomlinson’s (or his secretary’s) argument is ruined somewhat when the letter says, “Those with short-term conditions could find themselves being treated the same way as those with lifelong disabilities,” which is little more than tabloid propaganda, intent on convincing the general public that most people claiming benefits are scroungers.

I hate to break it you, but MS doesn’t get better. One of the worst symptoms, fatigue, makes me incapable of most of the descriptors for PIP at some point each day but, as my Atos assessor noted, I could probably make myself a sandwich, and I allegedly didn’t look tired enough at my assessment to convince her that #fatigueisreal.

If the letter’s claims are true, and the PIP “assessment is designed to treat all health conditions and impairments fairly”, then why is there no mention of fluctuating conditions? I specifically, and repeatedly, have questioned the fact that my Atos assessor didn’t take into account the length of time a person’s health should be considered for when they have a fluctuating condition like MS.

While there are guidelines for Atos to consider fluctuating conditions, these were ignored in both my assessment and at my appeal, and now (finally?) in my über-personal reply from Justin Tomlinson. As the Atos guidelines state, “Where an activity cannot be performed for part of a day it is deemed that it cannot be done at all on that day.” I can definitively tell you that this guideline is not always adhered to.

Receiving a letter from the Minister for Disabled People that doesn’t address my very real concerns about the PIP benefit, and completely ignores my personal account of how the process has impacted on my life, is frustrating. To quote Adele, “Hello, can you hear me?” Maybe, like in the video, Justin Tomlinson has no signal on his flip phone.

App That Helps Spot Parkinson’s Symptoms

January 31, 2016

Analysing data collected on our mobile phones could give insights into our health.

Up to 10 million people around the world are living with Parkinson’s disease, which causes symptoms such as a shuffling walk and tremor in the hands.

But researchers in the UK hope that a phone app, which records a patient’s movement and voice patterns, could help their doctor to monitor their progress more accurately.

The app includes seven different tests – for tremor, walking gait, reaction times and voice.

Dr Fahd Baig, clinical researcher at the Oxford Parkinson’s Disease Centre, says that there are tell-tale signs in the voice of a Parkinson’s patient.

Results from one of his pilot studies indicate that simply getting a patient to say “ahhh” into a phone means the app can spot this with 99% sensitivity.

Lorna Stewart reports.

The First British Man To Win A Singles Title At The Australian Open 2016 Is Wheelchair Player Gordon Reid

January 30, 2016

Gordon Reid has won his first Grand Slam singles title by beating Joachim Gerard 7-6 (9-7) 6-4 in the wheelchair final at the Australian Open.

Scotland’s Reid was backed by a vocal group of friends and he said he would be “buying them drinks all night”.

He added: “It’s amazing to showcase our sport and I want to thank everyone.”

Unfortunately, Same Difference can now report that Reid and his doubles partner have just lost their doubles final.

As tennis fans, we at Same Difference send sincere congratulations to Angelique Kerber, who has just won the women’s singles title.

We also send our best wishes to Jamie Murray for his doubles final and Andy Murray for tomorrow’s men’s singles final.

 

Cecelia Turk, Boccia Player With CP, Told To Leave Cinema Because Wheelchair A Fire Hazard

January 30, 2016

DISABLED athlete Cecilia Turk says she was left embarrassed and humiliated and claims she was thrown out of a cinema for being a ‘fire hazard’.

The 32-year-old boccia star, from Waterloovile, has cerebral palsy and uses a wheelchair.

She went to see film In the Heart of the Sea at the new nine-screen Cineworld multiplex at Whiteley Shopping Centre, which opened in November.

But Cecilia was outraged to be thrown out 30 minutes into the film for blocking the fire exit.

She said: ‘They asked me to leave because I was a fire hazard. Everyone was looking at me.

‘The incident made me feel intimidated and discriminated against.’

Cecilia, who has a masters degree in accessibility and law, had made sure the film had space for her when she bought her ticket for the 6pm showing on January 9.

She was in a bay at the front, but after 15 minutes her neck began to hurt so she moved back in the aisle, with her personal assistant.

She says 15 minutes after that, an usher pulled her assistant out of the film and asked them both to leave.

Upset, and offended at how the staff had handled the situation, Cecilia asked to speak to the manager, who came to see her and gave her a refund.

But she says the incident has been made worse by what she calls a series of errors with the handling of her complaint.

Now she is calling for an overhaul of Cineworld’s staff training and she’s questioning why a new building was allowed with what, in her view, is poor access.

She said: ‘I’d like to see Cineworld made fully accessible and legal like all of the other cinemas.’

A Cineworld spokeswoman said they had made changes to its nine screens.

She said: ‘We were really sorry to hear that Ms Turk wasn’t happy with her experience at our cinema and we have been in regular contact to apologise and address her concerns.

‘We take matters of equal access very seriously.

‘We have made changes so that all screens are fully accessible.

‘We meet standards and guidelines from the Disability Working Group of the cinema industry body the UKCA.

‘We welcome feedback on how we can improve our accessibility and we’ll continue to make changes wherever possible to improve the experience of our customers with additional needs.’

 

Second Disabled Everton Fan, Chris Howgate, 22, Left Traumatised After Verbal Abuse At Man City Match

January 30, 2016

A disabled Everton fan said he was left traumatised after fans verbally abused him at the match.

Chris Howgate, 22, who has Down’s Syndrome and needs the use of a wheelchair, was at the Capital One Cup semi-final with his full-time carer and dad, Dean, 43.

The avid Blues fans left early to “avoid trouble” but, as they reached outside, they said they were met with shouts of “Scouse b*****d” and had to turn back.

Dean told the ECHO: “I could hear the calls from behind, as we approached the exit.

“I realised we were surrounded by Man City fans, all shouting and falling over Chris – only one person apologised.”

Security staff held them in a separate section and told the men to turn their backs to hide their Everton scarves.

Waiting for the pandemonium to calm down, they spoke to several members of City staff and were escorted out to the sound of jeers, with police horses clearing the way.

Dean said: “It was really scary for Chris, he has tunnel vision so it seemed like everyone was around him – luckily he couldn’t see behind.

“I was fearful that they would try it with me – I didn’t know where to run.”

Told to get into coaches as quickly as possible, Chris was in floods of tears on their way back to their home in Tranmere .

Chris, who “has been everywhere with Everton”, was left distraught and told his dad that he never wants to go back to City’s ground, the Etihad.

Dean said: “He’s the type of boy who watches his shirts in the tumble-dryer, waiting to put it on.

“It will take a bit for him to overcome what happened – hopefully he will want to go to Goodison on Wednesday.”

Chris is well-known by Goodison fans and the club, with the stadium and official coaches catering for his disabilities.

Dean said the trouble at the game was worse than in Lyon, where Blues fans were caught up in trouble last year.

He said: “We were at Lyon and that was scary but not as scary as Wednesday night.

“We didn’t antagonise and the atmosphere was threatening.

“There was no compassion whatsoever.”

This follows further reports that another disabled Everton fan, eight-year-old James Ireland , was told by fans that he ‘should have been drowned at birth’.

Manchester City were approached for comment.

Claimant Faces Choice Between CBT Appointment And PIP Assessment

January 30, 2016

Everton Football Fan, 8, With CP, Told By Manchester City Fans That He Should Have Been Drowned At Birth

January 29, 2016

A disabled eight-year-old ‘true Blue’ Everton fan who was allocated seats in the Manchester City side of the clubs’ Capital One Cup semi-final clash was told by fans he ‘should have been drowned at birth’.

Everton fan James Ireland, fondly known as ‘JJ’, was taken to the match by his dad James, 35, having seats allocated through his season ticket.

The Garston boy was shown by stewards to the south-side, to what were apparently the wrong seats, only to become the victim of horrific verbal abuse.

JJ, who has has cerebral palsy, was told by Man City fans that he ‘should have been drowned at birth’ along with other abuse.

His dad said the stewards ‘did nothing’ – and at one point, a fan tried to climb over the barrier to get to the father and son and was merely placed back in his seat by stewards.

JJ was the only disabled child in the area and wearing all of his Everton gear, including an Everton blanket for his wheelchair, but now he never wants to go to another away match.

James said he struggled to keep his mouth shut while his vulnerable son was being abused, adding: “I knew I couldn’t defend himself or JJ against the fans.”

When they were asked to leave, to join the Everton side, they were led through the hostile crowd instead of out and away from the offensive slurs.

The only boy in the family, with three sisters, ‘true Blue’ JJ loves going to matches with his dad.

His concerned and upset mother works as his carer and expressed her shock after the incident.

Helen Ireland, 32, said: “This was JJ’s first night away match, he was only allowed because it was the cup and he begged us.

“He was made up, so excited to see the ground.

“We bought the tickets through Everton, it was all above board, but Man City allocated the seats – they should have been safe, especially for a disabled child.

“Even if it was with the Man City fans, he should have been safe, nobody should have to hear those words – they got to him and sunk in.”

JJ was shaken up after the match, according to Helen,

She said: “The experience Everton fans had from Man City fans was disgusting – grown adults should know better.”

Manchester City have been approached for comment.

The Tech Giving People Power To Deal With Disability

January 29, 2016

Worldwide, around a billion people have a disability, says the World Health Organisation.

In Europe and America, this is one in five people. And since they are less likely to be in work, their poverty rate is about twice as high.

So technologies that could help disabled people contribute more in the workplace – and improve their quality of life – are surely welcome.

And it also makes good business sense.

If a million more disabled people could work, the UK economy alone would grow 1.7%, or £45bn ($64bn), says disability charity Scope.

The eyes have it

Motor neuron disease affects 400,000 people worldwide, including renowned scientist Professor Stephen Hawking. Multiple sclerosis affects 2.3 million.

But neurons controlling eye movement are more resistant to degenerative diseases. This is also true of other parts of the face, like the cheek, which Prof Hawking uses to communicate.

US company LC Technologies has invented a device that enables people to control a computer using just their eyes.

Eyegaze Edge is the latest invention of the company, which was founded in 1988 by a group of engineers in a basement.

It solved the basic scientific problems then, but the early device was cumbersome and very expensive.

“We crammed it in back of a single-engine plane and took it around to towns where there was a need,” says medical director Nancy Cleveland.

“Now, it fits in a suitcase in a commercial aircraft.”

The technology behind Eyegaze is called Pupil Centre/Corneal Reflection, or PCCR. A tablet is set up in front of the user, with a small video camera underneath. A near-infrared LED (light-emitting diode) light illuminates the user’s eye.

The camera then measures the distance between the centre of your pupil and the reflection of LED light on your cornea – the transparent bit of your eye at the front.

This tiny distance shifts as your gaze changes, and this enables a computer to work out exactly where you’re looking.

“People have done all kinds of interesting jobs,” says Ms Cleveland, “and all they had was the ability to move their eyes.”

She says about 12 books have been written using the device.

Head control

A similar device is the HeadMouse Nano, recently developed by Texas-based Origin Instruments.

A camera tracks the movements of a reflective dot stuck to the user’s forehead, and these motions control a computer cursor.

Selections are made using a “sip-puff” switch in the mouth, or by dwell time – how long the head stays in a certain position.

It requires slightly more motor ability in its users, but is cheaper.

“Lately, we’ve reduced size and power consumption,” says Origin’s vice president Mel Dashner, who worked on tracking devices for aircraft during the Cold War. “We’re mainly riding the wave of cell phone technology like everybody else.”

‘Smart glasses’

There are about 39 million blind people in the world, according to the World Health Organisation. But 90% have at least some level of light perception.

So Stephen Hicks, a neuroscientist at Oxford University, has developed “smart glasses” that accentuate the contrast between light and dark objects.

“We try to represent the world in simple and unambiguous real-time images,” he says.

The nearest image is bright, whereas the rest of the field is black, and the the contrast between them is cranked up to maximum.

Mr Hicks started working on the glasses in 2010, with tech firm Epson providing the see-through computer displays.

He has since had additional help from the Royal National Institute for the Blind, and prize money from a Google Impact Challenge award.

The biggest challenge for him has been in keeping the weight down – if the glasses weigh more than 120g (4.2oz) wearers get headaches, he says.

So he has put the battery and processing unit into a handset, connected to the glasses by a small cable.

Talking hands

Technology can even help the 1.5 million people in the world who are deaf and blind. Helen Keller, most famously, was the first deafblind person to earn a bachelor of arts degree in 1904.

Deafblind people can communicate using tactical alphabets – pressing or pinching different parts of the hand represents different letters.

Now Nicholas Caporusso, from Bari in southern Italy, has developed a way of turning these movements and touches into electronic signals via a special glove.

Sensors in his dbGLOVE turn these alphabet tracings into computer text, and actuators trace the letters back onto the hand. This will enable deafblind people to operate computers and smartphones.

Mr Caporusso hopes the final device, which was developed with two partners from Finland – where Nokia has left a legacy of mobile phone inventiveness – will be ready early this year.

“The perfect match of Italian design and Finnish technology,” Mr Caporusso calls it.

The biggest challenge was size, he says, as it is with many of these assistive technologies: “All these cables, actuators, and sensors are in a very small space.”

‘Reliable signals’

Advances in 3D printing and bio-electronics are also helping replace missing limbs with prosthetics and give disabled people extra functionality.

For example, in 2014, Ontario-based Thalmic Labs released an armband called the Myo. It enables a person to control computer devices by reading the electricity produced by their skeletal muscles and then sending these signals wirelessly via Bluetooth to the device.

In December 2015, researchers at Johns Hopkins University in Baltimore adapted this armband to control a prosthetic limb.

Thalmic’s chief executive, Stephen Lake, says Myo “slides right on the arm, with no surgery or skin prep, and provides much more reliable signals than you can get with electrodes.”

The technology was originally developed to facilitate gesture-controlled presentations and has been used by DJs to control lighting displays.

And if such assistive technology can be used by non-disabled people, too, it can be made more cheaply to the benefit of all.

The Spartacus Report Into The PIP Aids And Appliances Consultation

January 29, 2016

The Spartacus Network have compiled a report into the consultation on PIP for people using aids and appliances.

 

Hand Transplants To Be Made Available On The NHS

January 29, 2016

There was very interesting coverage of hand transplants this morning on the excellent Victoria Derbyshire programme, which interviewed a surgeon who explained the process and a quadruple amputee who is waiting for the operation.

 

Macclesfield’s Grosvenor Shopping Centre Has Banned Customers In Wheelchairs And Mobility Scooters

January 28, 2016

This is unbelievable. It is blatant disability discrimination. Turn the lifts off if you have to but make other access arrangements or adjustments. There is absolutely no excuse for banning disabled customers. If the centre is not safe for wheelchair users, it’s not safe for anyone and should be closed to everyone until it is safe again.

Please, readers, please, share this post as widely as possible. I’ll be sharing it with every media outlet I can think of.

 

Wheelchair users have been banned from entering the Grosvenor shopping centre after orders from fire chiefs.

On Thursday security guards are stopping people in wheelchairs and mobility scooters from entering the premises.

And those accessing the ground-level indoor market have been given escorts to prevent them entering shops.

It follows a safety inspection by Cheshire Fire and Rescue Service.

But the move has provoked upset and anger from bewildered customers.

Diane Parton, 51, has staged a protest by the outdoor market, refusing to leave.

She said: “We are being told by staff that the centre failed a fire safety inspection because in an emergency anyone in a wheelchair or scooter in one of the shopping units cannot get out without having to go up or down stairs.

“I don’t know what has changed, but I’ve been coming here for years without any problem.

“The disabled and elderly are being discriminated against. It’s outrageous.”

Nora Leigh, 93, was also escorted from the building when she entered the centre.

She said: “This place is our lives. We come here for shopping, for company. It’s hopeless.”

One woman, who didn’t want to be named, remonstrated with security staff after her grandmother was asked to leave.

She said: “I’m fuming. She’s an 85-year-old woman and she has been told to leave. She’s very upset.”

A sign posted outside the centre said: “Following instruction from Cheshire Fire Authority, we regret that we are currently unable to allow access to the Grosvenor Centre for disabled or mobility impaired persons.

“We are working with our tenants and the Fire Authority to resolve this matter as quickly as possible.”

Eskmuir Securities, which owns the shopping centre, and Cheshire Fire Service, have yet to comment on the incident.

Meet Nano From Norway- The Woman Who Claims She Was Born The Wrong Species And Is Really A Cat

January 28, 2016

I’ve just discovered this video, readers. An interview by a Norwegian journalist with a 20 year old Norwegian woman called Nano- who claims she was born the wrong species and is really a cat. She claims to have a ‘genetic defect.’

Readers, most of us have heard of people who are transgender. I recently heard a trans woman campaigner on the news explaining being trans as a birth defect. That is an interesting idea which needs more study and more publicity.

However, readers, I have never heard of anyone claiming to be transspecies before. Personally, I see this as a severe mental health issue.

The video is fully subtitled in English, so please see for yourselves:

Sense Responds To Last Night’s Lords Vote On ESA Cuts

January 28, 2016

A press release:

 

National deafblind charity, Sense, has welcomed the news the government have been defeated in the Lords over plans to cut the benefits of people with illness and disabilities.

Ministers want to cut Employment Support Allowance by £30 a week to spur some new claimants to return to work. However Sense has argued it would make it harder for those affected to pay for the support that might allow them to find work. Yesterday, Labour, Lib Dem and independent peers joined forces to block the move.

The government may try to overturn it at a later date in the Commons.

Richard Kramer, Deputy Chief Executive at Sense, said:

“Yesterday, members of the House of Lords listened and responded to the concerns of disabled people.  Instead of cutting financial support to people looking for work, the government should now reflect on the Lord’s vote and concentrate on dismantling the real barriers preventing them from finding a job, such as negative attitudes from employers, failure to make reasonable adjustments in the workplace and inaccessible transport.”

‘World First’ Pancreas Transplant Because Of Diabetic Woman’s Needle Phobia

January 28, 2016

A British woman has become the first person in the world to have a pancreas transplant because of a severe needle phobia, her doctors have said.

Sue York – who has had type-1 diabetes since she was seven – would shake uncontrollably and vomit when injecting herself with insulin.

Ms York told the BBC’s Victoria Derbyshire programme the operation had “completely altered my life”.

Doctors said her life expectancy had now doubled.

‘Full of energy’

Ms York, 55, from Lincoln, told the programme that, following the operation, at Manchester Royal Infirmary, she felt “incredible” and full of energy.

“No longer am I struggling to walk up a flight of stairs, getting breathless walking into the wind. No longer is my skin yellow or grey. No longer do I look constantly exhausted,” she said.

“I’ve had to get new glasses because my eyesight has improved and feeling has returned to areas on my feet where I’d begun to lose sensation.”

Ms York said her phobia had reached a critical point in 2012, when the DVLA had changed its regulations in relation to diabetic drivers, insisting they checked blood glucose levels – requiring her to prick her skin – before driving and once every two hours behind the wheel.

“It was just too many needles, too many invasions into the flesh,” she said.

Ms York had decided to give up driving, she said, but her body had been too weak to walk long distances – leaving her at risk of becoming housebound.

She had tried hypnotherapy and cognitive behavioural therapy in an attempt to cure her phobia, but without success.

And injecting herself with insulin would frequently take 20 minutes.

Questions raised

It took more than two years for Ms York to be placed on a waiting list for the transplant, during which time she said she appeared in front of a panel three times to discuss her eligibility.

She said questions had been raised over her need for the transplant, given that she did not have any kidney complications, and over whether her phobia was a strong enough reason to undergo major surgery.

Surgeon Dr Raman Dhanda said guidelines were currently in place nationally and internationally to ensure those with the greatest need received transplants.

In Ms York’s instance, he added: “It was a very hard decision to make, because [her] case was clearly very exceptional.”

Ms York, who said a phobia of needles was common among long-term diabetics, believes her story could give hope to others.

“I don’t know who my donor is, but I thank them and their family from the bottom of my heart,” she said.

The Last Leg Goes Down Under

January 28, 2016

This will start on Channel 4 tomorrow at 10pm:

Channel 4 have commissioned a 2 x 60 series that will take some of our favourite Friday night faces well out of their comfort zone as they leave behind their live studio audience to travel into the wild and harsh terrain of the Australian Outback.
The award-winning gang from ‘The Last Leg’ have been sent to the wilderness of Australia for the ultimate extreme road trip. They will be guided through their adventures by Amar Latif, a charming and thrill seeking Scottish travel agent who also happens to be blind, and who decides to give them a difficult and dangerous road trip as far from their expectations as he can.
How will self-professed Neighbours addict Josh, beer and BBQ aficionado Alex, and Sydney native Adam cope as their fantasies of beaches and sunshine are replaced with hunting crocodiles and feral pigs, facing off with hard faced biker gangs and embracing a real life Crocodile Dundee experience?
Plus, as Adam starts to embrace the trip and his Aussie roots, Josh and Alex wonder if a nervous breakdown looms – and “Is it OK?” becomes “Are you OK?” Could this trip be the last straw for the Last Leg comrades?
The boys learn a great deal about the other side of Australia, a nation with a steadfast optimism and a dark underbelly. But the three will find out a few things about each other too, whilst turning each encounter into an exciting, poignant and most of all, richly comedic journey.
Channel 4 commissioner Syeda Irtizaali said: “We wanted to see what would happen when the gang were pushed from their comfy sofas and into extreme situations in a place that Adam believes he knows intimately. The results are as hilarious, hazardous and heart-warming as we could have hoped. It makes Crocodile Dundee look like an episode of In the Night Garden.”
Adam Hills said: “I’m not saying they were nervous travellers, but when Alex checked under the toilet seats at Sydney Airport, I knew we were in for an interesting trip. When Josh arrived with two suitcases, one for his clothes and another for his pillow, I wasn’t sure how long he would last. In the end, I saw a side of Australia I’ve never never come across, while Josh and Alex saw parts of me they wish they could forget.”
Josh Widdicombe said: “I am delighted that Channel 4 gave me the opportunity to confirm my suspicions that Australia is nowhere near as good as the UK”
Alex Brooker said: “I’ve always wanted to go to Australia to have barbecues, visit Ramsay Street and drink Fosters on Bondi Beach. Just been there and did absolutely none of those things. Instead it was 3 weeks of swatting flies away from my face and checking under toilet seats for spiders and snakes. You know you’re in the wrong place when you can’t even relax on the toilet. I’m not happy.”
Director Gavin Searle said: “From terrible flies to terrible cuisine this is journey as surprising as it is hilarious. Never before has a continent received such bad press.”
Executive producer Ben Wicks said: “We were politely asked by Channel 4 not to kill Adam, Josh or Alex whilst making this programme and that is just about the only indignity not to befall them during their road-trip.”

 

BREAKING: House Of Lords Votes Against £30 A Week Cut To ESA

January 27, 2016

Same Difference warmly welcomes this victory for disability campaigners and ESA claimants.

It is now to be hoped that the Commons will not reject the Lords’ decision on this matter before the Welfare Reform and Work Bill becomes an Act of Law.

 

Man Sentenced To Six Weeks’ Imprisonment For Using Social Media To Harrass Man Because Of Disability

January 27, 2016

A press release from the CPS:

A 25 year old man who used social media to harass a man because of his disability has been sentenced to six weeks imprisonment.

Saul Nyland, from Whitworth in Rochdale, pleaded guilty to two counts of harassment of the 31 year old victim.

Liverpool Magistrates’ Court heard that between December 2014 and July 2015 the defendant harassed the victim on social media and by phone. The victim has a severe speech impediment and some physical difficulties caused by an accident in childhood. The CPS prosecuted this case as a disability hate crime and his sentence was extended from four weeks to six weeks.

In a personal statement to the Court, the victim said that the abuse was “destroying his life” and affecting his relationship. He said he had stopped going out.

Lionel Cope from Mersey-Cheshire Crown Prosecution Service said:

“Nyland targeted the victim and harassed him because of his disability. Nyland subjected the victim to a tirade of abuse online including posting a number of photo-shopped images of the victim which were hugely upsetting to both the victim and his partner.

“When the victim blocked Nyland online, he began ringing the victim on a nightly basis, mocking him for his disability and threatening to harm him. He also started to post abusive messages on the Facebook site of the victim’s partner.

“Hate crimes will not be tolerated – they are malicious, create fear and ruin lives. Nobody should be subjected to this abuse, online or offline, and the Crown Prosecution Service does everything in its power to bring these offenders to justice.”