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Disabled Man Seeking Accessible Family Home

September 1, 2014

For anyone who was following this post, sadly that flat fell through. The guy has recently emailed me again asking me to publicise their search for an accessible family home.

If you can help, please leave your comments below and I’ll pass them on.

Looking for a 3/4 bedroom bungalow in the Goole or Howden areas of the East Riding of Yorkshire, for myself, my wife, and 3 children.

Alternatively, a house could be possible if it has a downstairs w/c or bathroom and a room downstairs that can be used for a bedroom.

I’m disabled with peroneal muscular atrophy and a number of other problems. My wife is my full-time carer. I’m no longer able to work. We have three sons. Our second son also has a disability, and type 1 diabetes.

We’ve been given notice as the owners of this property want to sell.

I have very specific requirements due to my disability, and this is hard to match up the housing market.

I need flat, level access and flat, level off-road parking with plenty of space around the car. I need something that’s flat inside and either a bathroom I can use with my aids , or a wet room or suitably adapted shower. I also need plenty of room in a bathroom and w/c.

Thank you,

This Morning To Discuss Issues Raised By Ashya King Case

September 1, 2014

Ashya’s Brother Naveed King: Ashya Was Not Neglected

September 1, 2014

Brett King Explains Ashya’s Family’s Actions

August 31, 2014

They simply sound like loving parents, unhappy with the NHS, willing to literally go to the ends of the Earth to help their child with the system they think is best.

I am proud to say I have parents like them myself. What can we do, except thank goodness Ashya is alive and wish the family all the very best?

Ashya King Found In Spain!!!

August 31, 2014

I’ve just found out this very, very good news.

A five-year-old boy with a brain tumour whose parents removed him from hospital against medical advice has been found.

Ashya King was found in Spain where his parents were arrested and are being questioned, Hampshire Police confirmed.

They said Ashya showed no visible signs of distress and was taken to hospital.

Brett and Naghemeh King took Ashya from hospital in Southampton on Thursday. In a video posted on YouTube, Mr King said they took him to seek a cancer treatment not available on the NHS.

He said the five-year-old was doing well and while there had been “a lot of talk” about a machine used to feed him, Mr King indicated it was operating normally.

It is not yet clear when the video, which shows Mr King sitting on a bed with Ashya, was recorded.

Situation ‘very serious’

The family had been last seen boarding a ferry to France.

In a press conference, Hampshire Assistant Chief Constable Chris Shead said Ashya and his parents were located near Malaga.

“We don’t have many details on Ashya’s condition at this point in time, but what we do know is he was showing no visible signs of distress,” Mr Shead said.

He confirmed Mr and Mrs King were arrested and taken to a police station.

“There are no winners in this situation,” he said.

“We’ve said all along this must be a terribly distressing time for Ashya’s family and I stand by that now. I think it’s been a dreadful period for them.”

A European arrest warrant had been issued for Mr and Mrs King after they took Ashya from Southampton General Hospital.

Concerns for his health had grown because he is fed through a complex unit and its batteries, designed only for temporary use and not easily replaced, might have run out.

Police had said it was unclear whether Ashya’s parents had spare batteries.

Ashya King ‘May Be In Spain’ Say Police

August 30, 2014

Please please please share widely readers.

 

A five-year-old boy with a brain tumour, missing since being taken out of hospital by his parents against medical advice, may be in Spain.

Hampshire Police said Ashya King’s family have “strong links to the Marbella area” and believe they may be travelling there.

Ashya was last seen on a ferry to France after being taken from Southampton General Hospital.

Police described the need to find him as “desperate”.

Hampshire Assistant Chief Constable Chris Shead urged people to remain vigilant

Hampshire Assistant Chief Constable Chris Shead said: “It is really important that we find him and ensure he receives medical attention at the earliest opportunity.”

He also cautioned it was possible the family could be somewhere other than Spain and asked people across the continent to remain vigilant.

Police fear the battery on the feeding system he uses has run out.

ACC Shead said it was unclear whether his parents had spare batteries, or knew how to recharge them.

“Without properly administered food Ashya’s situation is very serious,” he said.

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Becky Kelly, BBC News

According to Ian Pople, a consultant neurosurgeon, the battery in the feeding machine used by Ashya can’t be changed easily.

It is integrated within the machine, much like an iPhone, and it means the machine has to be taken apart to replace the battery.

It’s also not designed to be run on batteries for a long period and is usually plugged into mains.

In other words, it’s only battery-reliant for short periods, such as going to the toilet, or moving between wards.

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Ashya’s paternal grandmother, Patricia King, said the couple were “wonderful” and had been left beside themselves at their child’s illness.

Ms King, who lives in Southsea, described her son as “the most caring and wonderful father you could ever have.”

She also praised her daughter-in-law, saying she had kept a bedside vigil while Ashya was in hospital.

“We are a very close family,” she said.

Police in Marbella have been liaising with officers in Hampshire and will now go to a judge to request the search is spread across Spain.

ACC Shead said the latest information was “positive”, adding: “There have been widespread media alerts across Europe. We would now encourage anyone with links to Spain particularly, to also help us spread the appeal via social media.”

Interpol has issued a missing persons alert to all 190 of its member countries and said it was treating all information on the case as “high priority”.

Brett King, 51, and Naghemeh King, 45, removed Ashya from the ward on Thursday.

A spokesman for the hospital, which contacted police six hours after the family left, said on Friday: “Ashya was a long-term patient who was permitted to leave the ward under the supervision of his parents as part of his ongoing rehabilitation.

“When the length of time he had been absent became a cause of concern to staff yesterday afternoon they contacted police after a search of the site and attempts to contact the family were unsuccessful.”

ACC Shead said they were told by the hospital the child was missing at 20:35 BST on Thursday – more than six hours after he had been taken by his parents.

On why the hospital did not alert police sooner, he said: “That is something that we need to look at.”

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Clive Coleman, BBC legal correspondent

Parents have the right to remove their children from hospital unless they are prevented from doing so by a court order – it has not been confirmed whether Ashya was subject to an order.

If doctors are concerned that parents intend to remove a child, deny it the medical treatment it needs, and expose it to the risk of serious harm, they can seek a court order.

This will normally involve CAFCASS (the Children and Family Court Advisory and Support Service), the non-departmental public body which provides guardians to represent the best interests of children in family court proceedings.

Once an order is in place, any parent who removes their child in breach of the order is committing a contempt of court for which they could be imprisoned.

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Hampshire Police confirmed the family are Jehovah’s Witnesses, but there is no suggestion this is why he was taken.

Officers were keeping an “open mind” on the motives, ACC Shead said.

The Office of Public Information for Jehovah’s Witnesses said in a statement: “There is absolutely no indication, as far as we are aware, that their decision is in any way motivated by any religious convictions.”

Jehovah’s Witnesses say they refuse blood transfusions on the basis of Biblical teaching. Their website says the Old and New Testaments “clearly command us to abstain from blood”.

The family, from Southsea, Hampshire, were travelling in a grey coloured Hyundai I800 Style CRDI, registration KP60 HWK. Officers have asked for anyone who sees the vehicle to contact them.

Downs Man Facing Beirut Deportation Because Parents Died

August 30, 2014

A Down’s syndrome man who has lived in Britain for 17 years faces being deported – because his parents died.

Wadih Chourey, 44, moved from Lebanon with his family in 1997 after suffering abuse by gangs in Beirut.

He now lives with one of his two brothers Camil, 42, in East Twickenham.

MP Vince Cable said the move by the Home Office to have him kicked out was “disgraceful”.

He said: “This is a man who cannot cook for himself, who cannot operate a washing machine or use a computer. 

“His welfare is completely dependent on his brothers, who clearly provide a loving and caring home for him yet Home Office lawyers suggest there is nothing compelling or exceptional about the case and assume that Mr Chourey could seamlessly reintegrate into Lebanese life as if he never left.”

Colin Marsh, chairman of the local residents’ association, said: “Wadih and Camil are very much part of our community and Camil and his brother Joseph are both respected and admired for their love and care of their brother Wadih.

The Home Office said: “He has appealed so it would be inappropriate to comment .”

Have You Seen Ashya King? #FindAshya

August 29, 2014

Readers, this needs to go absolutely viral. Today.

Sorry but I just don’t know how to stress this enough. A five year old disabled child’s life is in danger.

The health of a five-year-old boy snatched from hospital without consent by his parents will deteriorate rapidly as the battery on his feeding system runs out later, police said.

Ashya King was taken from Southampton General Hospital and is now believed to be in France with his family.

Police said they had “serious concerns” for his life.

The family are believed to be Jehovah’s Witnesses, but it is not clear if this has influenced the child being taken.

Brett King, 51, and Naghemeh King, 45, removed him from the ward on Thursday.

Speaking at a news conference, Assistant Chief Constable Chris Shead said “time was running out” for Ashya.

“It is vital that we find Ashya today, his health will deteriorate,” he said.

Mr Shead said Ashya was in a wheelchair and needed to be fed through a tube which is battery operated and will run out today if not charged or changed.

“If he doesn’t receive urgent medical care, or the wrong treatment is given, his condition will become life-threatening.

“If Naghemeh or Brett or any of their children see or hear this appeal please take Ashya to the nearest hospital.”

Mr Shead said they were told by the hospital the youngster was missing at 20:35 BST on Thursday – more than six hours after he had been taken by his parents.

On why it took six hours for the hospital to alert police, he said: “That is something that we need to look at.”

Officers were keeping an “open mind” on the motives behind Ashya being taken, Mr Shead said.

It is believed Ashya’s parents and six siblings boarded a cross-Channel ferry from Portsmouth to Cherbourg at 16:00 BST and arrived at 20:00.

Police said Ashya, who recently had surgery, cannot communicate verbally and is immobile. He is likely to be in a wheelchair or buggy.

Cherbourg Police has confirmed it is searching locally for Ashya, checking hotels and CCTV.

An image of Ashya being wheeled out of the hospital by his father has been released by police.

The force said it was working with police in France to activate emergency child rescue alert procedures.

The family, from Southsea, Portsmouth, were travelling in a grey coloured Hyundai I800 Style CRDI, registration KP60 HWK.

Det Supt Dick Pearson, of Hampshire Constabulary, said: “If we do not locate Ashya today there are serious concerns for his life.

“He is receiving constant medical care within the UK due to recent surgery and ongoing medical issues. Without this specialist 24 hour care, Ashya is at risk of additional health complications which place him at substantial risk.

“He needs to be taken to a medical facility for his urgent health requirements as soon as he is located.”

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Clive Coleman BBC legal correspondent

Parents have the right to remove their children from hospital unless they are prevented from doing so by a court order.

If doctors are concerned that parents intend to remove a child, deny it the medical treatment it needs, and expose it to the risk of serious harm, they can seek a court order.

This will normally involve CAFCASS (the Children and Family Court Advisory and Support Service), the non-departmental public body which provides guardians to represent the best interests of children in family court proceedings.

Once an order is in place, any parent who removes their child in breach of the order is committing a contempt of court for which they could be imprisoned.

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Police have launched a social media appeal and are urging people to share it, particularly with friends or relatives in France and bordering countries.

Ashya’s brother Naveed King posted a YouTube video on 23 July speaking about the five-year-old’s illness.

He said: “I haven’t slept anything really, I’ve been awake all night worrying.

“Everyone is sending their love now. We love you so much and we want to see you very soon and I love you so much and can’t wait to see you.

“No kid at the age of five deserves to have a brain tumour.”

 

Disability Rights Campaigner’s Life Threatening Family Crisis

August 29, 2014

From GoFundMe:

This is an emergency fund to help a well-loved Disability Rights Campaigner.  In helping so many others, we often forget that this lady is herself severely disabled and her experience often comes from having to endure the things she helps so many with.  

 

Now, GW is dealing with a life-threatening family crisis which has stretched her limited income to breaking point.  She has incurred massive bills on her phones and now has no money for petrol or food.  This crisis situation, brought about by her selfless care of another, is only adding to her own health worries creating stress and is putting her life at risk.  

 

Can you please spare even £1 to help her out?  As they say, every little helps.  Show you CARE for her by donating.

 

Thank you

Tisme’s Cares

A JobCentre Worker’s Experience Of Working For A Failing Service

August 29, 2014
From yesterday’s Guardian:

I used to work for the Department for Work and Pensions, and before that the Benefits Agency, before that the Employment Service, and yes, before that, the Unemployment Benefit Office (UBO). Oh, and for a short while in the late 70s, the Jobcentre.

When I first worked at the Jobcentre in 1979, it was just that. You had to register with there to be able to sign on for your unemployment benefit or supplementary benefit. In those days jobcentres worked closely with employers to find out what they needed and matched potential employees on behalf of the employer.

Jobs were also advertised on boards in jobcentres, but potential applicants had to apply via an adviser. (Now, if an employer advertises with Jobcentre Plus, they leave themselves open to receiving thousands of applications from not remotely qualified, suitable candidates who were often not even genuinely interested. Why bother advertising?)

Jobcentres used to offer real training with a proper, recognised qualification provided through colleges or skill centres. But proper training is costly, so eventually it was scrapped. The replacement schemes tend to offer poor training from inadequate trainers with a worthless piece of paper at the end: just another example of government wanting something for nothing.

Eventually it was decided it would be a good idea to amalgamate jobcentres with unemployment benefit offices (UBO), and the Employment Service was born. The Department of Health and Social Security (DHSS) became the Benefits Agency. I never did understand why those in charge thought joining up the Jobcentre with the UBO was a good idea. Surely it would have been more sensible to join the two benefit departments: UBO and DHSS.

Finally, in 2002, Jobcentre Plus was born, joining the Employment Service with the Benefits Agency. Those of us who had specialised in benefit processing always felt we were the poor relations in this partnership. Many experienced and dedicated staff were ousted, either by being squeezed by the new senior management or through voluntary redundancy taken by staff who felt they could not work for new managers who didn’t care about either the staff or the service users.

Separating benefits assessments and jobcentre services is the most sensible thing that could happen now. But this will only work if real money is spent on helping people into work with proper support and training, and benefits are managed by people who care and understand. Most people who claim benefits are genuine. There will always be those who abuse the system but this does not mean it should be diminished to the point where genuine people are penalised and children in the 21st century are forced into poverty through no fault of their own.

I currently work as a welfare benefit adviser, fighting the broken system on behalf of vulnerable people who are left without money for food, gas and electricity and face rent arrears and eviction. This all costs so much more than paying the benefits in the first place to genuine people in need of support. This government has caused our broken society and is heading this country back to Victorian Britain.

Teen Arthiritis Didn’t Stop Pulp’s Candida Doyle

August 28, 2014

Candida Doyle has been the keyboard player for the band Pulp since 1984 and is responsible for well-known riffs like the rising-falling sound at the start of Common People.

At 16 she began to notice her joints were getting stiff and painful. A few months later she was diagnosed with rheumatoid arthritis and told that either she could fight for her health or she would be in a wheelchair by the time she was 20.

Instead, at 20, Doyle joined the little-known local band which became huge in the 1990s.

Keeping her arthritis quiet from everyone around her including her band mates, she refused to be treated differently, carried heavy equipment, walked miles to venues and partied until the early hours just like the rest of the band.

It was only when Pulp split up when she was 40, that Candida started to get proper treatment for her arthritis.

Candida spoke to BBC News about why she never let her condition get in the way of her pop dream.

To watch a subtitled version of this video, click here.

Empowering Independent Short Film ‘Cancer Hair’ Set To Premiere at Cambridge Film Festival

August 28, 2014

A press release:

A moving and empowering new film is set to premiere at the Cambridge and Isle of Man Film Festivals over the coming weeks, broaching the tough topic of life after cancer. Cancer Hair is an ambitious nine-minute short which was self-funded entirely by independent film maker Gail Hackston, and offers a snapshot of a young woman going on her first date, having just finished exhausting chemotherapy treatment.

The Cambridge Film Festival is set to host the premiere of the film, with screenings on the 2nd and 5th September. The Isle of Man Film Festival is set to take place a week later and will also feature a screening of Cancer Hair, on the morning of 14th September.

Ms Hackston, Director of Cancer Hair, says, “We’re thrilled that the Cambridge Film Festival is hosting the premiere of Cancer Hair – there are many shorts and films created that touch on the experience of having cancer or losing someone to the illness, but the survivors’ stories can sometimes fly under the radar. We wanted to create this non-romantic comedy and add a light-hearted twist to what can be a traumatic time.”

She adds, “Cancer Hair aims to be a hopeful and thought-provoking piece, combining moments of high comedy with drama, tension and that all-too-human feeling that we are not enough – as well as that terribly British habit of carrying on regardless of how awful something becomes!”

The film focuses on Claire Ferris, who has been cajoled into going on her first date since she finished cancer treatment. The chemotherapy she underwent caused Claire to lose her hair, denting her confidence severely – Claire was always ‘the pretty one’ in her group of friends, and was, for better or worse, defined by her appearance. Now, having to resort to a wig, Claire is dreading the thought of getting back on the dating scene in her mid-thirties, but she relents when her friend Sandra sets her up with a friend from work, Andrew.

The date goes terribly – there are embarrassing waitresses, awkward silences and nervous moments, until Claire and Andrew realise that they have more in common than they initially thought. They begin to enjoy the night, both realising that, though there is definitely a connection between them, it will never be fully realised.

Laura Aikman brings her exceptional talent to the role of Claire. Laura has over one hundred TV and film credits to her name, having starred in Casualty, Not Going Out, Citizen Khan and the critically-acclaimed Pramface. David McCusker stars opposite Laura as Andrew – his recent screen work includes sitcom pilot Call Girls, as well as a whole host of advertisements for brands such as Samsung and Freeview.

After the run of screenings at various film festivals, Ms Hackston intends for her film to be used for philanthropic purposes. She says, “Once the Cancer Hair screenings are over, we would like to offer the film to a cancer charity, who could perhaps make use of it in a fundraising or awareness campaign, to draw attention to the support service for women who lose their hair to chemotherapy.  Please get in contact if you think you could make good use of my work.”

Catch Cancer Hair at the Cambridge Film Festival screenings; 11am on 2nd September and 10.15pm on 5th September.

To find out more about Cancer Hair, visit the website: http://www.cancerhairfilm.com/

For more information about the film’s director Gail Hackston, visit http://www.gailhackston.com/

Liverpool Police Investigating After Youths Pour Ice Bucket Over Homeless Man In Wheelchair

August 28, 2014

You can watch the ten second video here.

A gang of youths posted a video of themselves chasing a homeless wheelchair user and pouring a bucket of ice water over his head.

The video, which has since been removed from YouTube, depicts one of the gang talking to the camera, declaring “I nominate a smack head in a wheelchair” before another youth chases the man down an alleyway and pours the ice water over his head when he is unable to escape.

It follows one of the internet’s latest crazes – the Ice Bucket Challenge – which sees people douse themselves with icy water in exchange for a donation to charity.

Many celebrities have taken part in the challenge which aims to raise money and awareness for motor neurone disease charities.

The man doused in the prank video is a well known rough sleeper.  Some online comments suggested he may have agreed to take part in the video.

Police are looking into the incident.

He said he was making his way through the Grizedale estate in Everton on Saturday when he was cornered by the gang and trapped in an alleyway.

He spoke to the ECHO but did not want to reveal his name amid concerns for his safety.

He said: “What can I say? I’ve been living on the streets for 17 years and I’ve never had unkindness like that. The people of Liverpool have been keeping me alive for 17 years so it was a shock.”

With nowhere to go that night he said he was left to sleep out in the cold in his damp clothes.

He said: “One minute I was just cutting through the estate and the next minute I saw a giant bucket of water. They came from every angle.

I tried to get away as quick as I could.

“I didn’t have a room for the night, I can’t get anywhere that’s wheelchair accessible and I couldn’t dry off so I was really cold. I didn’t know what to say so I just turned around and said ‘aren’t you good?’.”

He said he did not mind people having a laugh for charity but that the prank was anything but funny.

“I thought charity began at home but where’s the charity in that? I’m homeless, it was not good. I was even more cold.

“I feel like everyone has seen it but everyone has been supportive. No one’s made fun of me, I’ve only had good comments.”

A Merseyside police spokesman said: “We can confirm that we are making enquiries into the incident.”

James is now destitute following a sanction: ‘It’s bully boy tactics’, he says.

August 27, 2014

Ann McGauran's avatarAnn McGauran

James Dearsley, 60, receives a three-month sanction while on the Work Programme James Dearsley, 60, receives a three-month sanction while on the Work Programme
A vulnerable 60-year-old has been left penniless and dependent on food bank support after his Jobseeker’s Allowance (JSA) was sanctioned at the end of July while on the Work Programme. South-east Londoner James Dearsley received a letter from the Department for Work and Pensions (below) telling him that he had been sanctioned from July 29 and that his JSA would not be reinstated until October 29. James, who is already in arrears with his council tax, has spent more than three weeks without social security. This withdrawal of money means that he’s already been forced to use Greenwich food bank twice.

He says the local job centre told him he was being sanctioned because on three consecutive occasions he had failed to turn up for his Work Programme appointment with a Seetec job search support club. The letter…

View original post 411 more words

Quarter Of London Guide Dogs Hit By Cyclists, Finds Survey

August 27, 2014

A quarter of guide dogs working in London have been hit by a bike, according to the organisation Guide Dogs.

A survey involving a fifth of guide dog owners in the city also found 70% had experienced a near miss with cyclists on pavements or jumping red lights.

Rob Harris from Guide Dogs said some visually impaired people were “fearful” about going out which was “worrying”.

The London Cycling Campaign said every cyclist had a “duty of care”.

Charlie Lloyd from the organisation said: “Any crash or a close pass which frightens or intimidates a pedestrian is unacceptable.

Cyclist reminders

“Far worse when that person is blind, partially sighted or in any way less able than we are.”

Guide dog owner Deborah Persaud said she was involved in a collision with a cyclist on the pavement while she was walking home in Islington.

She said: “My dress was torn, the contents of my handbag damaged and I was left with damage to my shoulder and hip.”

As part of the campaign, Guide Dogs said it was reminding riders to use a bell or call out to owners waiting to cross the road to let them know they were on the road and to remind cyclists not to ride up behind a guide dog in case it startles them.

It added that cyclists should always dismount if using the pavement.

There are 41,060 people registered blind or partially sighted in London with just over 320 using guide dogs in the city.

Mother Will Go To Court For Cancer Girl’s ‘Unauthorised Absence’

August 27, 2014

Madness!

ESA Backlogg Causes Disruption and Fear to Vulnerable Lives.

August 27, 2014

ravenswyrd1's avatarRamblings of a Fibro Fogged Mind

A few nights ago after six pm, I received an urgent cry for help and advice from a lady I know, who has herself faced major health issues with her son and is disabled herself. When completely out of the blue her brother who is also a vulnerable adult with health problems received a accelerated eviction notice from his landlord stating he had to leave the property the next day.

She desperately needed advice on whether the landlord could do this. Having had issues with private renting, I advised her about his rights re his section 21notice and googled some info on accelerated evictions, as well as who else might be able to advice such as Shelter and her local councils housing department. As well as advising that she spoke to a solicitor first thing in the morning…

This has seriously stressed two vulnerable disabled adults trying to sort this…

View original post 206 more words

Blind Woman Wants To ‘Raise Awareness’ Of Abuse

August 27, 2014

A woman from Bristol says she has been mugged, punched and threatened since going blind a year ago following a stroke.

Kathy Baxter say she wants to raise awareness of the verbal and physical abuse disabled people suffer in society.

The BBC’s Scott Ellis reports.

Transport Services “A Disaster Waiting To Happen” Says Mother

August 26, 2014

I was a user of similar services in my schooldays. I didn’t like the experience much, but thankfully, it was never this bad.

When Fiona Mylchreest stood up at a council meeting and described how she believed a disastrous,and avoidable, mix-up on a new, cut-price specialist school bus service had left her severely autistic teenage son Finn traumatised, bleeding and seriously ill, it crystalised the huge risks taken by local authorities as they juggle with extreme spending cuts.

Mylchreest was one of several people at the meeting, last month, to raise serious concerns about the new home-transport service for children with special educational needs. The service was introduced earlier this year across three London boroughs, Hammersmith and Fulham, Westminster, and Kensington and Chelsea, after the contract was re-let at half the original, £1m cost. Mylchreest told how on one occasion Finn’s new driver and escort were instructed to take him home from his after-school club. When they reached his street, they realised they had no idea which house Finn lived in: they were new to the route and tried phoning the head office of their private transport company for guidance, but couldn’t get through. So they set off on foot down the street, Mylchreest recalls “He [Finn] has no language, he had no way of communicating and they just took him from house to house saying: ‘Do you know this kid?’. Finally the driver came to my door holding a piece of paper with Finn’s name on it and said: ‘Do you know this guy?’ I could have been anyone.”

Finn was bleeding from one ear where he’d bashed his head (something he does when he is upset), and was sweaty and “a bit dazed”, she told the meeting. A minute after he entered the house Finn – who had never previously experienced a fit – had a seizure, and started to turn blue. A paramedic was called, and it took 45 minutes to stabilise him.

What would it take for the council to manage the new contract properly, Mylchreest asked officials. “Is this shocking enough? … Will it take another blue child?”

The 731 children transported by this service have a range of conditions: some are on the autistic spectrum, or have profound and multiple learning disabilities. A number have complex medical needs and require tube-feeding and oxygen-supply equipment. The majority are non-verbal, and some display challenging behaviour.

Since April, hundreds of complaints have been made by parents about the new cut-price service. They say it is often late; children spend long periods on the bus, arriving at school unfit to learn; the drivers don’t have emergency phones; some speak such poor English that there are concerns about their ability to deal with emergency situations; buses lack vital equipment such as harnesses; some drivers don’t have specialist care training, and there is a high staff turnover.

According to Jude Ragan, the headteacher of Queensmill school, there have been three incidents where autisic, non-verbal children have got off buses unsupervised. “It is going to end up in a tragedy,” she warns. “I feel that we’re just waiting for a disaster to happen.”

Cathy Welsh, headteacher at nearby Jack Tizard school, says at least two children have arrived at school “in potentially critical medical conditions because of the time they have been on the bus.” She warns of children who have been inappropriately managed in a way that could be perceived as “potentially abusive”. It was, she told the meeting, the “kind of culture that ends up with scandals around children with learning disabilities”.

“I think … some of my parents must gulp every time they put their child on that bus,” she said.

The home-school contract is now operated by seven private contractors. Although some existing staff transferred over to the new arrangements under Tupe (transfer of undertakings) law, parents and unions say some experienced staff have since left because of changes to their shifts and overtime. The councils, which are part of a much-vaunted tri-borough experiment in west London to make huge savings by sharing services, have admitted “a number of things have gone wrong”.

Conservative-run Westminster council, which was responsible for negotiating the new transport contracts, issued a statement from Andrew Christie, the executive director of children’s services across the three councils, in which he admitted there had been “teething problems”. He added: “We will continue to work intensively with providers throughout the summer to ensure that all providers are ready for the start of the new school term in September.”

Last month, the borough of Kensington and Chelsea formally apologised to parents at a council meeting called by Labour opposition councillors. The council told parents that it was “driving very hard to bring things up to the expected standard and nothing short of that will be acceptable”.

However, there is concern that the contract, which chopped £500,000 (54%) off the cost of the old contract without any decrease in service demand was a cut too far. Official council papers show that the contract bids were “evaluated on the most economically advantageous” basis, with evaluation criteria weighted 70% for price and 30% for quality.

The political stakes were raised with the arrival of a new Labour administration in Hammersmith and Fulham, following May’s council elections. Privately, some senior political figures in the council are appalled at the design and management of the home-school transport contract and would like to scrap it and start again. But to do so could open the council to legal action from contractors and even its partners, putting the entire tri-borough deal under pressure.

Hammersmith and Fulham leader Stephen Cowan told the Guardian: “We are horrified and disgusted to have inherited this problem. There is no higher priority than protecting vulnerable children and we will leave no stone unturned in making sure there is a service that parents can have faith in.”

But parents contacted by the Guardian said they were not confident that the councils had done enough to stem what they see as a rapid deterioration in the quality of the service. Many await the new school term with trepidation. “The councils have got a huge amount of work to do to rebuild trust,” says parent Sue Redmond: “They have been in denial and people have been outraged. You have to hope it is going to work, but I’m absolutely dreading it.”

British Surrogate Mother Told: “I Don’t Want A Cabbage”

August 26, 2014

It’s been years since anything shocked me, readers. But I am lost for words– except to say that I flatly refuse to refer to the couple as parents. They don’t know what parents are.

A BRITISH surrogate mum of twins has kept one of the babies after the intended mother rejected the child because she was disabled.

The woman referred to the baby as “a dribbling cabbage”.

The surrogate mum said: “I couldn’t believe what I was hearing.”

The child, one of twins the mum gave birth to for a couple in a £12,000 agreement, was born with the severe muscular condition Congenital Myotonic Dystrophy.

The couple took the healthy boy and rejected his poorly sister — after an astonishingly callous phone conversation.

The surrogate mum, who we are calling Jenny to protect her anonymity, said: “I’ll never forget what she said on the phone.

“I remember her saying to me, ‘She’d be a f****** dribbling cabbage! Who would want to adopt her? No one would want to adopt a disabled child’.

“I was shocked.

“She had basically told me that she didn’t want a disabled child.”

Jenny and her partner are now bringing up the girl, who we are referring to as Amy, with their other children.

She said: “I got into surrogacy because I wanted to help a mother who couldn’t have children.

“But I feel very angry because of what they’ve done to her.

“I’m glad they are miles away and I will never see her in the street.

“I hate them for what they did.”

Jenny has decided to speak out in the wake of the baby Gammy case, which caused global outrage.

He was kept by Thai surrogate mum Pattaramon Chanbua when an Australian couple are said to have abandoned him because he had Down’s syndrome.

Jenny said: “We and Amy are living proof what happened with Gammy in Thailand can happen here in Britain.”

Jenny and her partner, who we are calling Mark, got involved with a surrogacy organisation to help childless couples.

Prospective parents were introduced by email and they chose a couple with whom they identified.

After an initial meeting and talks Jenny and Mark signed a surrogacy agreement with the couple in return for £12,000 expenses.

Two embryos were implanted into Jenny’s womb. A few weeks after becoming pregnant she learned she was carrying twins.

The couple were told they were going to have a boy and a girl.

Six weeks before her due date Jenny was at an antenatal appointment when a doctor said she needed an emergency caesarean.

She said: “When I had the epidural I was gone. I came round and they were both there.

“When I saw Amy she was silvery grey and her legs were just dangling. I wondered if she was alive.

“I was in a bit of a state by then. I thought something was wrong and at that time I blamed myself.”

In some surrogacy cases the host couple say goodbye almost immediately after birth and the child goes to its intended parents.

But because Amy and her twin were so premature they needed special hospital care and doctors asked Jenny to stay on and help with feeding.

After a month Amy’s brother was allowed to go home with the couple who were paying Jenny.

Amy stayed in hospital for further treatment. It was then she was diagnosed with Congenital Myotonic Dystrophy. Babies with the rare muscular condition need help with breathing.

Muscles are initially flabby but can improve as the child grows.

Often young sufferers have a lack of facial expression and can be intellectually a few years behind their peers.

When Jenny and Mark learned of Amy’s condition they contacted the couple. It was during that phone conversation the intended mother made her shocking comment about Amy’s condition.

Jenny said: “I was stunned when I heard her reject Amy.

“I was in such a bad way I put the phone down — I had to.

“I felt very angry, not so much at what they were doing to me but to Amy. I am an adult and I can take this, but she will find out one day what went on.”

Mark and Jenny decided they had to keep Amy.

Mark said: “How could we possibly sign over to somebody showing a disregard of the child’s health?”

The two couples subsequently attended mediation meetings with the Children and Family Court Advisory and Support Service.

It gives an independent assessment to help judges hearing child custody and care cases.

Although those hearings are confidential, The Sun understands the intended parents expressed concerns about Amy’s disability and their desire to take her on.

The couples agreed Jenny and Mark would keep Amy and the boy would stay with the intended parents. They brought Amy home and she lives happily with them.

Jenny said: “Amy is 100 per cent our daughter. I love her as much as my other children.

“I wouldn’t change anything. It’s been an absolute rollercoaster but I’d do it again in a second.”

Caring for Amy has been an upheaval financially.

Mark changed jobs so he could be home more to help with Amy and they moved to a bigger house with a larger mortgage.

Mark said: “One of the biggest concerns was I was the only one earning because Jenny is her full-time carer.

“I retrained and took a pay cut at first, it was a gamble I thought was right at the time. It gave me flexibility on my hours so I could support my family more.

“We used to have a lovely house, we had to change that to support our bigger family.

“It’s affected us financially and I had to make sure that if something happened to me, in terms of if I couldn’t work or died, they would be provided for.

“There is a lot of money we spend every month on insurance.”

Jenny added: “We did not set out to have another child so it was a big decision to make.

“We just wanted to help another family. That’s why we got into this.”

Law backs the parent

ALL surrogates in the UK have the legal right to keep the child as contracts are not binding and cannot be enforced.

If the child is to be handed over, then the would-be mum and dad can adopt them or get a parental order.

Commercial surrogacy is illegal here and women cannot advertise themselves.

Direct payment is banned and only “expenses” are allowed to be paid.

Favourite of celebs

 

A STRING of celebs have gone for surrogacy — including Sir Elton John and partner David Furnish.

The pair have two kids, Elijah and Zachary, who were both born to the same woman from California.

Sir Elton previously described her as a “wonderful” woman and said they kept in constant contact while she was pregnant.

In 2011 actress Nicole Kidman and musician hubby Keith Urban had daughter Faith Margaret via a surrogate in US city Nashville.

Nicole said: “We just decided this was our thing together.”

Sex and the City’s Sarah Jessica Parker and actor Matthew Broderick had twins Marion Loretta Elwell and Tabitha Hodge through a surrogate in 2009. They used Sarah’s eggs and Broderick’s sperm.

Sarah said of the experience: “We had explored lots of options.”

Sad plight of Thai tot

BABY Gammy was allegedly abandoned in Thailand by Australians David and Wendy Farnell for having Down’s syndrome.

His healthy twin sister Pipah was taken by the couple Down Under. David Farnell — exposed as a sex offender — claimed they wanted both babies.

Let’s look at rule review

RULES on surrogacy now need to be debated and reviewed, said Louisa Ghevaert, an expert in fertility and family law.

She added: “It’s incredibly rare for surrogate babies to be split up.

“This case raises challenging legal issues for everyone concerned.”

 

Advice For Powerchair Users Wanting To Do The #IceBucketChallenge

August 26, 2014

If any disabled people are willing to send in videos of themselves doing the challenge, I’ll happily publish them!

RIP Jan, Another Victim Of Welfare Reforms

August 26, 2014

Another sad, sad story made worse by ATOS and DWP. Just one of the many who don’t go to the papers, so whose stories we never hear.

#DWP Apologies for the Delay in Your Payment, IDS Does Not Care … (#JSA and #ESA Payment Systems Going Into Meltdown for Existing Recipients)

August 25, 2014

John's avatarThe ramblings of a former DWP Civil Servant ...

Understandably, there has been a lot lately about Universal Credit, but UC is currently only being paid to a very small number of people with the easiest type of claim to administer. If UC is affecting anyone then it is actually those not receiving it.

Let me explain, UC is, amongst other things, meant to replace the payment systems for Income Based JSA and ESA, but not Contribution Based. As a result, the existing systems will, all other things being equal, not be needed as current claims go over to UC. Such a process, given the high rate of turnover amongst people on JSA and ESA, would not I think take very long, in comparison with, for example, the original, pre IDS timetable for moving people from IB to ESA.

Blind Optimism

In the spirit of the blind optimism, associated with UC, the care and maintenance of the current computer…

View original post 1,207 more words

Man Attacked With Brick In Northwood Park- To Bring On Epileptic Fit

August 25, 2014

EPILEPTIC Tony Cartlidge was left with a fractured skull after yobs attacked him with a brick – in an attempt to trigger a fit, he believes.

Now the 23-year-old claims the incident in Northwood Park has left him fearful of leaving his house.

Prior to the vicious attack Tony says he has been taunted by a group he claims have launched a nasty bullying campaign against him because of his condition.

And following the traumatic incident Tony also claims to have been chased by a man wielding a machete.

Police have confirmed one 48-year-old man was arrested following the ordeal on suspicion of affray. He has since been bailed.

Unemployed Tony, of Eastbourne Road in Northwood, says he was left in agony after the brick was allegedly hurled over a fence by a teenager.

He said: “I felt something hit my head and when I looked down a brick was on the floor.

“There was blood all over me. They want me to have a fit.”

Tony, who lives with his mother, claims yobs are determined to make him suffer an epileptic fit after learning of the consequences. I’m constantly getting called a ‘smackhead’ because I shake on the floor when I have a fit,” he said.

“They found out that epileptic people can wet themselves when they have fits and that’s what they’ve been trying to do.”

The alleged incident on August 15 left Tony spending two nights in hospital for treatment to a fractured skull.

He said: “Every time I put on my trainers I’m reminded of what happened because they’re still covered in my blood.”

Tony claims he is targeted by the same group of youths in the neighbourhood.

“Two weeks ago I was hit in the back of the head with a pair of knuckle dusters and then challenged to a fight,” he said.

Residents have also spoken of their shock over the alleged attack.

Treasurer of the Northwood Residents’ Association, Alan Wrench, said: “It is a surprise to hear about something like this.”

In April police were called to Northwood Park following reports of a man walking around the area with a rifle.

Police crime figures for June have revealed two incidents of anti-social behaviour, two violent crimes and a public order offence were reported close to the park.

Pensioner Madge Morris, aged 81, of Botany Bay Road, said: “There are people knocking about and I’ve seen youngsters coming down here late at night when they should be in bed.

“If they are old enough to do the crime, they are old enough to be disciplined.”

Park user Peter Johnson, aged 80, of Shelton, added: “I think it’s terrible. It makes you wonder what the law is doing about it.

“You wouldn’t expect that to happen round here. I think teenagers now have nothing else to do.”

The police investigation is still ongoing and anyone with any information should contact 101, quoting incident number 607.

Lord Richard Attenborough Dies Aged 90

August 25, 2014

Sad news this Bank Holiday, readers. This is relevant to Same Difference because Lord Attenborough was Honorary Life President of the Muscular Dystrophy Campaign.

Acclaimed actor, director and producer, Lord Richard Attenborough is one of this country’s most distinguished citizens. He was appointed a CBE in 1967, knighted in 1976 and created a life peer in 1993. Lord Attenborough first found out about the Muscular Dystrophy Campaign when visiting a local hospital fetee in 1962 where he was greatly affected by the plight of the boys living with Duchenne muscular dystrophy.

From that very day he offered his support to us, contributing greatly to raising the profile of the charity and generating hundreds of thousands of pounds. He served as President for 30 years, from 1972 until 2002, when he became an Honorary Life President. Lord Attenborough remains an inspirational supporter of the Muscular Dystrophy Campaign. The Richard Attenborough Fellowship Fund was established in 2012 to honor Lord Attenborough’s committment to world-class research by offering research fellowships.

RIP Sir. Many, many thanks for using your fame and fortune for doing so much to improve the lives of disabled people.

 

Calling Wheelchair Users! A Quick Survey

August 24, 2014

From an email I recieved today:

 

Quick Survey (Active Travel)
 
Dear all,
 
We are conducting research into perception of comfort by current and potential users on mixed use paths. Your participation is crucial in order to improve the quality of walking and cycling infrastructure and enhance the experience of users.
 
To help with this study please complete a questionnaire, which will take about 5 minutes of your time. By filling it out you can enter a prize draw for one of three £50 Marks&Spencer or Amazon gift cards.
 
The survey and further information can be found here: https://opinio.ucl.ac.uk/s?s=28472 

Any personal information you provide will be treated as strictly confidential and handled in accordance with the provisions of the Data Protection Act 1998.

Should you have any questions about this study, please feel free to contact Pola Berent (research engineer at University College London) at p.berent@ucl.ac.uk. 

Many thanks!
 
Best wishes,
Pola 

 

Richard Dawkins’ Apology For Downs Abortion Tweet

August 22, 2014

In full, from his website.

Those intrepid enough to venture onto my Twitter feed will have noticed a new feeding frenzy yesterday (20th August 2014), for which I apologise. The issue is the morality of abortion following screening for Down syndrome.

Down Syndrome, or Trisomy 21, results from the presence of an extra copy (or partial copy) of Chromosome 21. Symptoms vary but usually include characteristic facial features especially eye shape, abnormal growth patterns, and moderate mental disability. Life expectancy is reduced, and those who survive through adulthood often need special care as though they are children. Parents who care for their children with Down Syndrome usually form strong bonds of affection with them, as they would with any child. These feelings are sincere and mutual, and probably account for some of the hate tweets I have been experiencing (see below).

Screening for the chromosomal abnormality is normally offered, especially to older mothers who are more likely to have a child with the condition. When Down Syndrome is detected, most couples opt for abortion and most doctors recommend it.\

Yesterday a woman on Twitter, one of our respected regulars on RichardDawkins.net, said she would be unsure what to do if she found a fetus she was carrying had Down Syndrome. I replied to her, beginning my reply with @ which – or so I thought (I’m told Twitter’s policy on this might recently have changed) – meant it would not go to all my million followers but only to the minority of people who follow both her and me. That was my intention. However, it doesn’t stop people who go out of their way to find such tweets, even if they don’t automatically pop up on their Twitter feeds. Many did so, and the whole affair blew up into the feeding frenzy I mentioned.

Here is what I would have said in my reply to this woman, given more than 140 characters:

“Obviously the choice would be yours. For what it’s worth, my own choice would be to abort the Down fetus and, assuming you want a baby at all, try again. Given a free choice of having an early abortion or deliberately bringing a Down child into the world, I think the moral and sensible choice would be to abort. And, indeed, that is what the great majority of women, in America and especially in Europe, actually do.  I personally would go further and say that, if your morality is based, as mine is, on a desire to increase the sum of happiness and reduce suffering, the decision to deliberately give birth to a Down baby, when you have the choice to abort it early in the pregnancy, might actually be immoral from the point of view of the child’s own welfare. I agree that that personal opinion is contentious and needs to be argued further, possibly to be withdrawn. In any case, you would probably be condemning yourself as a mother (or yourselves as a couple) to a lifetime of caring for an adult with the needs of a child. Your child would probably have a short life expectancy but, if she did outlive you, you would have the worry of who would care for her after you are gone. No wonder most people choose abortion when offered the choice. Having said that, the choice would be entirely yours and I would never dream of trying to impose my views on you or anyone else.”

That’s what I would have said, if a woman were to ask my advice. As you might notice, it takes a lot more than 140 characters! I condensed it down to a tweet, and the result was understandably seen in some quarters as rather heartless and callous: “Abort it and try again. It would be immoral to bring it into the world if you have the choice.” Of course I regret using abbreviated phraseology which caused so much upset. I never wanted to “cry havoc”!

Now to the upset itself. The haters came from various directions:-

  1. Those who are against abortion under any circumstances. The majority fell into this category. I’m not going to get into that old debate. My position, which I would guess is shared by most people reading this, is that a woman has a right to early abortion, and I personally would not condemn her for choosing it. If you disagree, fair enough; many do, often on religious grounds. But then your quarrel is not just with me but with prevailing medical opinion and with the decision actually taken by most people who are faced with the choice.
  2. Those who thought I was bossily telling a woman what to do rather than let her choose. Of course this was absolutely not my intention and I apologise if brevity made it look that way. My true intention was, as stated at length above, simply to say what I personally would do, based upon my own assessment of the pragmatics of the case, and my own moral philosophy which in turn is based on a desire to increase happiness and reduce suffering.
  3. Those who thought I was advocating a kind of mob rule, when I pointed out that a majority of women, when facing this dilemma, as a matter of fact do choose abortion. Wasn’t that like saying “Hanging is right because if you took a plebiscite most people would bring back hanging.”? No, I was not advocating mob rule. I was simply suggesting that those hurling accusations of Nazism, vile, monstrous fascistic callousness etc., should reflect that their fireballs of hatred might as well be aimed directly at the great majority of the women who have actually faced the dilemma. Might that not give you pause before you accuse one individual of being a brute simply because he spells out the thinking behind the majority choice?
  4. Those who thought I was advocating a eugenic policy and who therefore compared me to Hitler. That never entered my head, nor should it have. Down Syndrome has almost zero heritability. That means that, although it is a congenital condition – a chromosomal abnormality that babies are born with – there is very little tendency for susceptibility to trisomy to be inherited genetically. If you were eugenically inclined, you’d be wasting your time screening for Down syndrome. You’d screen for genuinely heritable conditions where your screening would make a difference to future generations.
  5. Those who took offence because they know and love a person with Down Syndrome, and who thought I was saying that their loved one had no right to exist. I have sympathy for this emotional point, but it is an emotional one not a logical one. It is one of a common family of errors, one that frequently arises in the abortion debate. Another version of it is “The Great Beethoven Fallacy” discussed in Chapter 8 of The God Delusion. I combated it in a tweet as follows: “There’s a profound moral difference between ‘This fetus should now be aborted’ and ‘This person should have been aborted long ago’.” I would never dream of saying to any person, “You should have been aborted before you were born.” But that reluctance is fully compatible with a belief that, at a time before a fetus becomes a “person”, the decision to abort can be a moral one. If you think about it, you pretty much have to agree with that unless you are against all abortion in principle.The definition of “personhood” is much debated among moral philosophers and this is not the place to go into it at length. Briefly, I support those philosophers who say that, for moral purposes, an adult, a child and a baby should all be granted the rights of a person. An early fetus, before it develops a nervous system, should not.  As embryonic development proceeds towards term, the morality of abortion becomes progressively more difficult to assess. There is no hard and fast dividing line. As I have argued in “The Tyranny of the Discontinuous Mind”, the definition of personhood is a gradual, “fading in / fading out” definition. In any case, this is a problem that faces anybody on the pro-choice side of the general abortion debate.

To conclude, what I was saying simply follows logically from the ordinary pro-choice stance that most us, I presume, espouse. My phraseology may have been tactlessly vulnerable to misunderstanding, but I can’t help feeling that at least half the problem lies in a wanton eagerness to misunderstand.

He appears to be more sorry that he caused a ‘Twitterwar’ than for what he actually said. Not that an apology makes any difference to me, anyway. Eeryone knows what a public place the Internet has become. When you reveal outdated opinions in public places, you should get what you deserve.

I’m sure Hayley Goleniowska and Jamie McCallum agree with me, as, no doubt, does Caroline White.

The Blind Comedian

August 22, 2014

Blind comedian Jamie MacDonald tells BBC Ouch how he makes jokes about losing his sight and the sticky situations he finds himself in.

“I was in a supermarket buying fruit and the stall dividers were mirrors. I saw a hand reaching for the same apple as me and said sorry.”

Apologising to his own hand was Jamie MacDonald’s first clue that his eyesight had almost gone. The 34-year-old Glaswegian has the degenerative eye condition Retinitis Pigmentosa, which became aggressive in his mid-to-late teens. It was a hard time, he says, but doesn’t like to dwell on the negative moments. He sees a funny side to it and prefers to focus on that.

By way of example, MacDonald recalls a skiing trip: “The instructor made me put on a lot of high-visibility clothing and then, rather than shouting directions like I expected him to, put reins on me and guided me with those. We skied down that mountain like a high-visibility advert for triumph over adversity.”

MacDonald was not always comfortable with his disability, though. It wasn’t until his early 20s, while studying law at Aberdeen, that he realised he should use a “stick” or white cane. “It was probably the best thing I ever did,” he says. “Life became easier and the reactions from my friends and family, which I feared, were all amazing.” Their general feeling was that it was about time, he says.

MacDonald has always been something of the “funny man”. Before studying law, he read history at the University of St Andrew’s. There he founded a radio station where, on air, he made prank calls. “I would call up Oxford University,” he says, “and ask if I could get on to their catering course.”

After university, MacDonald headed for the City, and became a corporate financier, just before the credit crunch hit. Eventually redundancy gave him the excuse he needed to follow his comedy dream.

He is now happy to carry a cane and can be seen using it as a comedy prop on stage. While waving it about in the air during his stand-up show, MacDonald recreates being attacked by a wasp in the crockery isle of a department store.

Good prop it may be, but he says he has had no formal training on how to use it correctly.

Blind people are taught to sweep from left to right in front of them, making sure they are fully protected from all sides. “I don’t sweep it,” he says. “I poke and spin it around. I’m pretty lethal in a crowd.”

MacDonald’s comedy is described as anecdotal, character-driven and, he laughs, “observational”.

His routine is peppered with stories about the encounters he has as a young, single blind guy at large. Instead of beer goggles, he talks of “ear goggles”, where someone’s voice sounds better after alcohol.

He tells his audiences that when you are blind, people can quickly slip from helpful to patronising. “I got chased down the street once by a man making a considerable effort to stop me. When he did, it was just to tell me that my lace was undone. He asked ‘Do you want me to tie it for you?’ When I said no, he attempted to high-five me.”

Jamie MacDonald: That Funny Blind Guy 2 – The Good, the Stag and the Ugly is at Assembly George Square Studios until 25 August 2014 as part of the Edinburgh Fringe.

Nicholas Russell Obituary

August 22, 2014

From yesterday’s Guardian:

My brother-in-law, Nicholas Russell, the sixth Earl Russell, who has died of a heart attack aged 45, was a tireless campaigner for disability rights. Perhaps his greatest achievement, while he was campaigns officer for the Royal National Institute for the Blind, was to campaign successfully for guide dogs to be permitted in taxis, and the resulting legislation, Private Hire Vehicles (Carriage of Guide Dogs etc) Act 2002, was due, in large part, to his effective campaigning and his well-known, meticulous eye for detail.

Nicholas, like his grandfather, Bertrand Russell, was an active member of the Campaign for Nuclear Disarmament and like his father, Conrad Russell, the historian and Liberal Democrat peer, took a great interest in politics: Nicholas was a lifelong member of the Labour party.

Born in Wimbledon, south-west London, Nicholas was the elder son of Conrad and Elizabeth (nee Sanders). He spent time during his childhood years in California and Connecticut before returning to London, this time moving to Kilburn. He was educated in Hampstead and studied industrial relations at Leicester University. He dedicated his working life to a combination of his favourite passions: disability rights and politics. He worked for a variety of disability rights organisations including the RNIB and Guide Dogs for the Blind, and he was politically active in not just the Labour party but also the Co-operative Group, where he was on the board, as well as the Socialist Environment and Resources Association and Transport 2000.

Having been elected as Labour councillor for Cann Ward, Waltham Forest, in 2010, he held the position for four years until May this year. In local politics, Nicholas’s forte was as a grassroots, old-fashioned, community councillor.

The qualities that made Nicholas a brilliant campaigner, a persistent and focused determination, were, perhaps, not ones which were best suited to climbing the greasy pole of modern politics, but they were borne from an unusual purity of intention: he was not a party apparatchik; he was a caring, community-focused, sometimes gloriously uncompromising, individual.

Nicholas had a difficult start in life but eventually found love and happiness with his fiancee, Georgina, with whom he lived in a close-knit community in Leytonstone, east London, with their two cats. He was happiest when sitting at the kitchen tables of his neighbours, talking intensely about politics with his cat, Moo, sitting on his chest.

Nicholas was styled Viscount Amberley between 1987 and 2004 and succeeded as Earl Russell on his father’s death in 2004.

Nicholas is survived by Georgina and by his brother, John.

A Tribute Post For Bedroom Tax Campaigner Susan McLaughlin

August 21, 2014

Readers, I have very sad news to share with you today. The news of Bedroom Tax campaigner Susan McLaughlin’s death comes from reader, and her best friend, Maureen Anne Fitzsimmonds.

My thoughts at this very sad time are with all who knew Susan McLaughlin. In the disability community, the loss of one of our own always touches all of us- that’s just the way we are.

 

New disability aids available in Boots stores across the UK

August 21, 2014

 

A press release:

 

 

 

 

A business that makes stylish wallets for disabled parking permits will soon stock its products in Boots stores across the UK.

 

 

Blue Badge Company has confirmed that Boots UK, the UK’s leading health and beauty retailer, will stock the blue badge holder designs in around 2,000 Boots stores across the UK and on boots.com.

 

 

Blue Badge Company, formerly White Space Designs, launched in 2011 when director Ellen Green decided it was time to scale up the concept which was dreamt up between two friends in the back bedroom of their shared house.

 

 

Started at a time when the only wallets available were clinical, dull and surprisingly difficult to use, Blue Badge Company set out to give people with disabilities choice and control when it came to buying and using assistive products.

 

 

The company was the first in the world to offer uniquely styled blue badge holders and remains the only company in the UK.

 

 

Ellen Green, director of Blue Badge Company, said: “We have been overwhelmed by the response to the display wallets and we’re absolutely delighted that Boots UK will now be stocking our product, made here in Bristol, in stores across the UK.

 

 

“We want to provide disabled people the opportunity to style their life, their way by offering consumers living aids that match their personality. By having our blue badge holders available so widely will allow us to reach more people, giving them access to our products and ultimately increase the choice available when it comes to buying and using assistive products.”

 

 

The beautiful handmade wallets are made by a team of highly skilled individuals in Bristol– some of whom are registered disabled themselves – providing jobs and training for those with limited work options.

 

 

The full range of display wallets now includes fifty different designs, with more being added on a regular basis. Aimed at both women and men, the products can be bought from most Boots UK stores, boots.com, directly from the Blue Badge company website, independent retailers and in a number of high street shops.

 

 

Nearly 12 million people in the UK have a disability, of which 2.58 million are blue badge holders. The ambitious company, which will be extending its product offering later this year, wants to create attractive living aids and assistive products that improve people’s experience of everyday life.

 

 

With new products already in production, Blue Badge Company hopes to be the biggest supplier and manufacturer of modern living aids in the next three to five years, with big plans to expand and diversify its product range in new territories. In Europe alone, there are more than 17 million blue badge holders and in early 2015 the company will start promoting its products in Ireland, France, Germany, Holland and Belgium.

 

 

On 1 January 2015, new legislation means the current disabled parking permit will become invalid. These compact and easy-to-use wallets have been specially designed to fit the new permit, which will become compulsory in the New Year.

 

 

Each wallet comes with a free timer clock that can be dialled without being removed from its case. The exclusive ‘hologram safe’ feature, which ensures the hologram on the badge isn’t covered, complies with Department of Transport guidelines and the wallet guarantees that permits can be displayed legally, protected from damage and easily removed.

 

 

For more information, visit www.bluebadgecompany.co.uk

 

Family Claims Woman With Severe LD Received ‘Inhumane’ Treatment At Walsall Manor Hospital

August 21, 2014

The family of a woman with severe learning disabilities is threatening legal action against health chiefs over alleged poor care and a claim that nurses deliberately damaged her life-like doll which she believed to be her own baby.

Walsall Healthcare NHS Trust has apologised for the distress caused and launched an internal investigation.

Susan Hearsey, aged 64, was admitted to Walsall Manor Hospital in September last year following a fall whilst being cared for in a residential home.

During a seven-week stay it is claimed a nurse stuck her fingers up Susan’s nose, causing it to bleed, when she wouldn’t take her medication, that staff lacked an understanding of her special needs and were continually distracted by their mobile phones.

On one visit her family found her air mattress fully deflated and said that on another occasion she was lying in a soiled bed. They also claimed she was not regularly washed and described her hair as matted and dirty.

But the situation came to a head on September 15 when Susan’s sisters Jane Dunn and Jennifer Walker heard her screaming in distress as they arrived on Ward 14 where she was staying.

When they asked her what was wrong she said that a nurse had cut off her doll’s arm because she would not ‘lie down and shut up’. Earlier staff had been throwing the doll, named Rachel, to each other like a ball.

The family described how she believed the doll to be her own real baby and treated it as such. The toy was found on the floor with its arm detached, some clothes missing, the legs damaged and a chunk of its hair cut off.

Susan, who lived with her parents on the Beechdale Estate until their death 15 years ago, was transferred to a care home the next day.

Mrs Dunn, aged 57, of Chepstow Road, Bloxwich, said: “Susan is still traumatised by her ordeal. We’re really angry. Before this happened she was always laughing and joking, now we can’t interest her in anything.

“She’s lost several stone in weight and insists on having the light on in her room at night. It feels like all the love and care we’ve given her has been undone.”

The family’s case has been taken up by legal firm Leigh Day’s human rights expert Merry Varney. She said: “This is a terribly sad case involving not only allegations of poor nursing care but also serious allegations of cruel and inhumane treatment. We believe that owing to the seriousness of this matter, a full independent investigation should be undertaken.”

In a statement Walsall Healthcare NHS Trust said: “We would like to repeat our sincere apologies for the distress that Susan and her family have experienced following Susan’s stay at Walsall Manor Hospital last year.

“We have taken the concerns raised extremely seriously and have undertaken a full and detailed investigation into the issues which were highlighted.”

Katie Hopkins Could Face Legal Action Over Dee ‘Benefit Cheat’ Tweet

August 21, 2014

Loudmouth Katie Hopkins could face legal action after falsely accusing  Celebrity Big Brother’s White Dee of being a benefits cheat.

The controversial tabloid newspaper columnist made the potentially defamatory outburst on Twitter after the Benefits Street star entered the TV house on Sunday night.

She tweeted: “I’m sorry I am not in there – but I can’t live in a house with a benefit cheat from Birmingham. I have standards darlings.”

On Tuesday, White Dee’s agent Barry Tomes said she would consider legal action against Hopkins and other public figures who have also made false allegations against her time on welfare, when she was suffering from depression.

He fumed: “Two or three people have written some very nasty things about Dee and we will be looking at taking action when she leaves the  celebrity Big Brother  house. Katie Hopkins is top of that list.           

“We will want a complete apology or compensation because it has gone past a joke. Dee is not a benefits cheat and we have the P60 from the Department of Works and Pension to prove this.

“People like Katie Hopkins and others have a duty to be accurate. All Dee wants to do is build a future for her and her kids. She has turned down offers worth a lot of money because she cares too much for her children.

“It is very hurtful when these people make these false allegations. We will be taking action to rectify this.”

White Dee, real name Deirdre Kelly, was first into the  CBB  house last night but was whisked away by producers to be made up as the ‘Duchess of Solihull’ in the show’s first task.

A Video That Will Show You Why The #IceBucketChallenge Matters

August 21, 2014

Richard Dawkins Recommends Aborting Downs Babies Because Their Birth Would Be ‘Immoral’

August 21, 2014

Thanks to Francesca Martinez. I’ve linked to her sharing of the article on Facebook because I couldn’t find the Tweets it mentions.

I did however see him trying to justify the comments on Twitter. I won’t link to those Tweets because I believe that when you’re in the public eye, you can never justify revealing outdated opinions which are offensive to so many in public places. And the web has become a very public place.

What the ***!? indeed.

Follow the dig – i – tal road from the Swizzard of Boss

August 20, 2014

Mark unravels after sanctions: “The process left me feeling suicidal.”

August 20, 2014

Ann McGauran's avatarAnn McGauran

Mark Bothwell is now recovering from his sanctions trauma Mark Bothwell is now recovering from his sanctions trauma

According to Vox Political  and the Disability News Service, the UK government seems to have become the first country to face a high-level inquiry by the United Nation’s Committee on the Rights of Persons With Disabilities (CRPD). The committee has the power to do this if it receives what it calls “reliable information of grave or systemic violations” of the rights of disabled people by a country signed up to the UN Convention on the Rights of Persons with Disabilities (UNCRPD) and its optional protocol.

The committee conducts its investigations “confidentially”, so it has refused to confirm or deny that the UK is being investigated. Disability News Service has reported that CRPD appeared to have put off its public examination of the UK’s approach to implementing the disability convention until after next year’s general election. According to Vox Political, it…

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Nick (@mylegalforum) Takes on IDS ………

August 20, 2014

leonc1963's avatarDiary of an SAH Stroke Survivor

I am sure my readers will agree, for too long Iain Duncan Smith has been allowed off the hook in all manner of Press and Media we the people, we the social security claimants now have a chance to try and address that and try and bring some balance with the truth being told.

How do we do that? by putting IDS up against a very worthy contender some one who knows the truth someone who has worked tirelessly to bust the lies and deceit that this man spill almost daily and that man is Nick Dilworth who runs the excellent blog My Legal Forum and is Co-Founder of #newapproach who bring you the below message:

Nick is our USP. He’s the only campaigner who has first had experience on the front line dealing, on a daily basis, with the horror of the failed #WCA trying to pick up the…

View original post 553 more words

Cancer Sufferer And Disabled Grieving Mother Told They Were ‘Fit For Work’

August 20, 2014

Chris Smith lay in a hospital bed, dying of cancer.

He should have been helped by the system, the welfare state which was established to help people like Chris.

Instead, the bombarded him with texts telling him he had to apply for jobs, and letters urging him to come to ‘job workshops.’

Lee Marlow reports.

It’s hard to know exactly where to start with the tragic story of Chris Smith, a plumber from Leicester who died last month. You could begin with the disease which claimed his life. Chris had cancer; lung cancer, skin cancer and a cancer that spread to his spine. He was diagnosed in April. Although Chris refused to believe it, he was dying.

As he was dying, Chris, 59, and his partner, Maggie, were embroiled in an unnecessary row with the Work and Pensions department.

Chris, a qualified plumber, had been ill. A poorly knee had kept him off work and then he began to feel sick.

He was called in for health tests. Government assessors told him he wasn’t ill enough. They deemed him fit for work. His benefits were stopped. Chris didn’t think it was right, but he didn’t complain, either. He started to look for work.

Chris didn’t know it, but he already had cancer. He was diagnosed with terminal lung cancer a few weeks later.

And, by rights, this is where the story should end. A man with terminal lung cancer should not be ordered to find work. He shouldn’t have his benefits stopped. This is what the Welfare State was created for, the safety net which cares for the sick and the poorly.

Chris Smith slipped through this safety net.

His partner, Maggie Black, told the job centre about Chris’s cancer. They nodded and made all the right noises. They agreed Chris was not fit for work.

But nothing changed. His benefits were not reinstated.

And then came the texts. One a week usually, sometimes more, imploring Chris to get on his bike to find work, to apply for this plumbing job or that one.

Chris, meanwhile, was in hospital, having chemotherapy, whiling away his days vomiting as the cancer ate away at him, from his lungs to his skin and into his spine.

And then, after the texts, there was the letter. The letter from the job centre informing Chris he needed to report to the benefits office for a special meeting to step up his efforts to find work.

The letter arrived the day after Chris died. It was opened by his grieving partner.

“I stood by the front door and read it and had to reread it, again and again,” says Maggie. “I couldn’t believe it. How could they be so insensitive? How could they get something like this so wrong?”

No-one from the job centre, no-one from the Department of Work and Pensions, apologised. Instead, they carried on texting Chris job vacancies.

Another letter, inviting him to apply for more jobs, landed on their doormat this week, along with letters from the council informing Maggie her housing benefits had been stopped. “This is what happens,” she said. “One thing goes wrong and it’s like a domino effect – everything else tumbles, too.”

Maggie didn’t know where to turn. Now, the Citizen’s Advice Bureau and her MP are helping out.

Leicester West MP Liz Kendall says she is “appalled” by the case and has promised the family she will send “a strongly-worded letter” to Secretary of State Iain-Duncan Smith.

The real tragedy here, though, is that what happened to Chris and Maggie is not an isolated incident.

“I see it a lot,” said Margot Wood, the Macmillan welfare benefits case worker supervisor at Leicester’s CAB office.

“We investigate many complaints from people about Employment Support Allowance and the way it is administered.

“The Government is supposedly streamlining the benefits system, stripping away the bureaucracy and making it easier for both claimants and administrators.”

They haven’t, says Mrs Wood. “It’s a complicated, cumbersome system – and quite often, as you can see in this case, one part of the system doesn’t know what the other part is doing. And that leads to the kind of error we’ve seen here. It should never happen.”

It didn’t just happen to Chris and Maggie. It happened to Sarah, too.

Sarah is a single mum from Leicester. She lives in a safe house after she fled a violent relationship. We’ve agreed not to reveal her real identity.

A mother of a three-year-old child, Sarah recently gave birth to another daughter. Tragically, her baby died a few days later.

A grief-stricken Sarah received a letter, telling her to report for a meeting to help her find a job. The meeting was two days before her daughter’s funeral.

Still, she made it. She showed up. She sat in their office and answered their questions.

And then they wrote to her and said, because she managed to make it for the meeting, she was fit for work. Her Employment Support Allowance was cancelled.

Advisers at the CAB say it was a “cruel and heartless” decision and are helping Sarah to appeal against it.

So why is this happening?

You have to go back, back to October 2008, when Employment Support Allowance was introduced by Gordon Brown’s Labour Government.

The benefit replaced Incapacity Benefit and Income Support and was paid to disabled or long-term ill people who cannot work.

Initially, the benefit was paid only to new claimants. Under the coalition Government, a huge programme began to migrate existing claimants to the new system. It has led to many complaints, according to Leicester CAB’s Margot. “It takes up a lot of our time.

“The set up is very complicated, with various departments involved and a lot of bureaucracy.”

Inevitably, mistakes are being made – as was the case with Maggie and Chris.

Maggie and Chris lived together in Beaumont Leys, with their daughter, Jodie, aged eight.

Chris was a fully-qualified plumber. A divorced father of four, he worked all through his 20s and 30s until a knee injury forced him to work part-time.

“His knee injury was such that, if he walked too far, or if he put too much pressure on his knee, it would swell up like a balloon,” says Maggie.

For the past few years, it didn’t seem to matter much, says Maggie. Chris stayed at home and looked after their daughter, Jodie, while Maggie worked full-time as an adult carer. “It just seemed to be the best way to do things for us,” she says.

And then at the end of last year, he received a letter.

There were new rules, new guidelines, new tests to determine who could work, who could receive benefits – and who couldn’t.

Chris had to go for tests. They booked him into a test centre in Halford Street, Leicester. “But, ridiculously, it was at a first floor office and he couldn’t manage the stairs,” says Maggie.

She wonders how many other people, called for eligibility tests in Leicester, had to go to Nottingham instead, because they couldn’t manage the stairs at the Leicester test centre.

And that’s when it started. The official ruling that Chris was fit for work, the stopping of his benefits, the cancer, the arguments, the upset.

MP and shadow care minister Ms Kendall says the mistakes – obvious and insensitive mistakes – need to stop.

“This is not the first time we have heard of problems like this,” she said.

“Macmillan Cancer Support have highlighted countless cases across the UK.

“My opinion is simple – anyone with a terminal illness should be taken out of this continual assessment for ESA.

“If you can work, you should work. I am a firm believer in that and the Government should provide help and support to get as many people back into work as possible.

“But these cases are not about that. I think it’s appalling someone like Chris Smith, a man with terminal cancer, who has faced such problems, should then be treated in this way.

“When you have cancer, you should be free to focus on that. The current system does not recognise that.”

There are an estimated 45,000 people in the UK claiming ESA who have cancer.

“We need to find out how many of those 45,000 people have a terminal cancer and make sure they are not asked to apply for jobs and not asked to be assessed for work,” said Ms Kendall

“In Chris’s case, to be sent texts, as he lay in a hospital bed, saying he should be applying for jobs is unacceptable.

“To receive a letter, the day after he died, a letter opened by his grieving widow, saying he had to come to a meeting to find a job, is even worse.

“I will be writing to Ian Duncan Smith on behalf of Maggie Black to express my outrage at how she and her late partner have been treated and I will be demanding action so this kind of needless error does not happen again.”

A spokeswoman for the Department of Work and Pensions apologised for the mistakes in the way Chris’s case was handled.

“We have apologised to Mr Smith’s family for any distress caused by sending a letter and text messages in error,” she said. “We have since reviewed our processes to make sure this doesn’t happen again.”

But is Chris’s case the tip of the iceberg? The spokeswoman insisted it wasn’t. Rigorous procedures were in place to eliminate mistakes, she said.

“A decision on whether someone is well enough to work is taken following a thorough assessment and after consideration of all the supporting medical evidence provided by the claimant.

“Anyone who disagrees with a decision has the right to appeal.”

Justice For Lucy Fisher

August 19, 2014

As Mark Neary says on Facebook- another young person in an unsuitable situation. Please join this Facebook group to keep up with Lucy’s family’s campaign.

Lucy is 24 and has cerebral palsy, epilepsy and learning disabilities. She has minimum speech but is able to communicate her feelings with her behaviour. Lucy is my cousin and I want to share her story to let as many people know the frightening control the council have to make decisions on your behalf when you live under their care. Lucy currently lives in a home that she has been conditioned to thinking is acceptable. I and her family know that she could have a much better life living elsewhere, and she deserves it. The problem is, as Lucy lives in a care home, her parents have no say or control over matters concerning their daughters life. Lucy has been deemed incapable of making such a decision for herself so the council have full control. I am 34 and always look to my parents and family for help with problems or everyday life and Lucy is being denied this. Please join this group if you believe this is wrong to show support for Lucy and all other people with disabilities who are having decisions made for them without the support of their families.

Benefits Street Star ‘White Dee’ And Kellie Maloney Enter Celebrity Big Brother House

August 19, 2014

Oh God. Readers, this is almost enough to make me want to watch CBB this year. Almost, but not quite!

Benefits Street’s White Dee has been transformed into the Duchess of Solihull as she became the first contestant to enter the Celebrity Big Brother house. Dee, real name Deirdre Kelly, rose to notoriety in the Channel 4 documentary series Benefits Street.

She was booed by some of the crowd as she made her entrance and revealed she felt “very nervous, very apprehensive” about signing on for the series. The single mother was given a shock when she has handed the first task of the new series – to live like a royal.

Big Brother told her: “You will become Dee, the Duchess of Solihull, 21st in line to the throne.” Dee replied sarcastically: “That sounds absolutely amazing.” She added: “I hate it when people use my real name. I think I’m in trouble.”

The former Birmingham City Council employee will have to “walk, talk, behave and wave like a royal” – I bet the real ones are laughing at the notion (if they’re watching).

If she can convince the final three contestants who entered the house that she is a duchess, everyone will dine on champagne and caviar, but if she fails – they will live like paupers.

The odds appear stacked against her – she quickly reverted to White Dee before the transmission ended. Let’s see how long she can keep this up.

Other news from the launch night includes the presence of Kellie Maloney – who is favourite to win the show, according to bookmaker William Hill. She had success handling the career of Lennox Lewis among others; it emerged earlier this month that she has been undergoing hormone therapy and now lives as a woman.

She had the best reception, but the less said about the entrance of a certain Hollywood star, the better.

Video Game For Blind Players

August 19, 2014

I think this is a great idea.

Creating a video game bereft of any actual video might seem like an unusual idea.

But the concept is being adopted by some games developers to help make the industry more accessible to blind and visually-impaired people.

“Video-less” games rely on binaural technology to build 3D worlds made solely of sound, where users must rely on their aural senses to navigate through levels.

The latest game of this kind has been launched in France by digital studio Dowino.

They asked a number of blind and visually impaired people to try out their “Blind Legend” game, which is due for release worldwide next year.

Young People With Disabilities Campaign For Post-16 Education

August 19, 2014

In June, my daughter attended a demonstration outside the houses of parliament. Sarah, who has Down’s syndrome, travelled by coach from Somerset with fellow students and staff from her college, where she met 80 other young people to launch a campaign highlighting the need for educational equality for people with disabilities.

Sarah has been lucky. Having been well supported by the London borough of Haringey, she attended a mainstream school, a sixth-form college and recently graduated from Foxes Academy – a residential catering college and training hotel for young people with learning disabilities. She hopes to become a waitress. But not every young person with physical or learning disabilities is so fortunate; many face a postcode lottery, particularly when it comes to post-16 education.

There are about 70 specialist further education colleges in the UK – most offering residential care – but places can cost more than £30,000 a year, and over £150,000 for students with complex needs. Many young people and their families face a long battle to secure funding for their child to attend such a college – particularly (as is often the case) when the one that best serves their needs is in another local authority.

Young people with physical or learning disabilities face particular challenges and difficulties with education and employment. While it may be possible for them to work and live independently, they sometimes take longer to learn new skills and need support in doing so. Specialist colleges do a huge amount of work in helping young people to prepare for the next steps in their lives.

During her three years as a student at Foxes Academy, Sarah worked in the training hotel, learning skills such as food hygiene, housekeeping and cooking, while living independently in supported housing with seven other “learners”. She is aware she has been lucky, and now wants to help other young people in her situation.

That is why Sarah and her friends are supporting the A Right Not a Fight campaign, which calls for students with a physical or learning disability to have the choices most young people take for granted – such as choosing a further education college that best meets their needs. The idea for the campaign was developed by a group of student representatives who attend specialist colleges, with the support of NatSpec (The National Association of Specialist Colleges), and has been launched ahead of the new Children and Families Act, due to come into effect next month.

While the aspirations of the Children and Families Act – greater educational choice for students with a learning difficulty or disability, encouragement of education, up to the age of 25, and closer working between health, education and social care professionals – are spot on, those working in the sector fear recent changes to funding arrangements for school-leavers with high levels of need will prevent young people and their families from making the most of the opportunities promised.

While young people and their families have always had to jump through hoops to get funded places at specialist colleges, the situation has been made much worse by new funding arrangements introduced last year. Local authorities no longer have to “ringfence” money for school-leavers with high levels of need (those identified as needing financial support for their education that is likely to exceed around £10,000 a year). Instead, they have a budget for all children and young people with high levels of need up to the age of 25 – and every local authority seems to have a different way of assessing and meeting need.

Many now insist that young people consider every possible local option before they can look at a specialist provider. Some local authorities have introduced blanket policies of not placing young adults in colleges outside the area. Others only offer short-term financial support and will not agree, in advance, to fund the total length of some courses.

I recently heard of one student with complex physical and learning difficulties who was turned down by five local providers, before being allowed to look around a specialist college. His mother says: “He ended up feeling like a second-class citizen.” Another parent, who was initially told the local authority would only fund a place for her son locally, and fought for two years to get her son a place at National Star College in Cheltenham, said she felt like her son had been made to feel like a “prisoner in his own county”.

The result is often short-term economies, at the expense of long-term savings to the public purse. A 2011 National Audit Office report showed that equipping a young person with moderate learning difficulties with the skills to live semi-independently, rather than in fully supported housing, could reduce their lifetime support costs by about £1m.

Sarah and her friends do not want to be reliant on benefits. They want, like everyone else, to be given the chance to prove themselves in the workplace. And this is deeply embedded in the ethos of Foxes Academy, where 88% of learners have found employment on leaving and 85% are living semi-independently (based on learners from the past five years).

Like Foxes, which is focused on catering and hospitality, many specialist colleges have distinct areas of expertise – the Royal National College for the Blind in Hereford is working with young people with visual impairments and National Star College in Cheltenham supporting those with physical disabilities, for example. These colleges also have the resources to support young people with complex physical and learning disabilities to do GCSEs, A-levels and gain other academic qualifications.

We have come a long way from the days when children with Down’s syndrome were written off at birth, denied an education when children and deprived of some medical interventions as adults. As Sarah’s experience has shown, there is now the opportunity of a life fulfilled, and specialist colleges have a vital role to play. They empower young people with learning difficulties or disabilities to take control of their lives – particularly in the residential setting where living away from home prepares them for life beyond the family home. This arrangement is, after all, the norm for most university students in halls of residence and shared houses.

Apart from the experience of living communally and making many friends, Sarah has also found love at Foxes – her long-term boyfriend, Daniel, who has autism, is a delightful young man and a true athlete. He has been selected for the Great Britain’s Special Olympic cycling team to go to Los Angeles in 2015, and Sarah has supported him in various competitions.

It was impossible not to be moved by the dignity, confidence and earnestness of the students outside Westminster as they talked proudly of their achievements and their hopes for the future. Sarah is now on the brink of a new life, about to move into supported accommodation with three other young women, in a house about half an hour away. I recently told her that we would always be there to help her, we all loved her dearly and she could ring us any time if she needed us. She looked at me quizzically and replied: “I know that, Dad … I love you too, but I don’t need you.”

Public Accounts Committee Accuses DWP Of Hiding UC Failings

August 19, 2014

Parliament’s public spending watchdog has today accused ministers in the Department for Work and Pensions of hiding the failings of the coalition’s troubled universal credit scheme.

The public accounts committee said the decision to devise a new category of “resetting” projects could have been a way of preventing scrutiny and obscuring problems.

Universal credit is the £2.4bn centrepiece of Iain Duncan Smith‘s reform programme and involves merging six different benefits, with the claimant receiving a single monthly household payment.

Ministers started implementing it three years ago, but have been criticised by successive watchdogs for failing to come clean about the problems the DWP has experienced with the technology.

The assessment comes in a report by MPs on the Major Projects Authority, the government watchdog responsible for assessing the scheme’s implementation.

According to the report, the DWP, in consultation with the MPA, published their delivery confidence assessment of the universal credit project as “reset” in September 2013. It was a new term that appeared to have been devised specifically for the the new programme, committee members said.

“We are particularly concerned that the decision to award a ‘reset’ rating to the universal credit project was an attempt to keep information secret and prevent scrutiny,” the report said.

“The ‘reset’ category was introduced for the 2013-14 report and was only applied to this one project. The MPA confirmed that the decision to give universal credit a reset rating was ultimately made by ministers,” it added.

The decision to devise a new rating for the project meant that it was not given a rating by the MPA on its five-tier traffic light system, running from green to red, in this year’s annual report and that there will be no assessment of its progress until after next May.

“This is a long time to wait for an update on a project as important as universal credit,” the report conlcuded.

Margaret Hodge, the chair of the committee, said that the problems within universal credit could have been exposed if the MPA had published data showing how much money had been spent and on what as the process continued.

“The MPA should publish more information on each project, including the amount spent to date, even if this means reviewing the government’s transparency policy. We are particularly concerned that the decision to award a ‘reset’ rating to the universal credit project may have been an attempt to keep information secret and prevent scrutiny,” she said.

In evidence to the committee, John Manzoni, chief executive of the MPA was asked why the new category of “reset” had been invented for the purposes of assessing universal credit. He replied: “I would say we do not invent new categories lightly or willy-nilly. In fact, this one of course had significant ministerial discussion and in fact was ultimately a ministerial and a government agreement to say, ‘That is what we are going to call it’.”

The IT challenge of creating universal credit is considerable. It requires different payments to landlords, more online claims, and merges in-work and out-of-work benefits, requiring new definitions of benefit conditions for those in work. It also requires close co-operation between the DWP systems and tax officials at HM Revenue & Customs.

In the original business case for the project, the DWP estimated substantial savings – a net benefit of £38bn by 2023.

Asked last week whether the project had been signed off, Duncan Smith told the Guardian that Treasury officials were now assessing the project in incremental stages, and that this will process continue over many months. “They are signing it off, section by section … It is back on track,” he said.

The report is also critical of the powers that the MPA has been given by the government, saying that it is not being allowed to protect the interests of taxpayers.

The MPs said the MPA’s chief executive should have a formal mechanism available to set out his position if a project proceeds contrary to the authority’s advice to cancel or change.

The committee said the Treasury should take responsibility for overseeing the £488 bn portfolio of major projects, including programmes such as HS2 and the new aircraft carriers, rather than treating them as individual schemes.

It also recommended the MPA should focus on departments such as health and defence, where there were a number of risky projects.

A DWP spokeswoman said that universal credit is being rolled out in a careful and controlled way. “It is already transforming people’s lives and is available in a growing number of areas, including 39 Jobcentres, and we have started taking claims from couples too. By the end of this year, around 1 in 8 Jobcentres will offer universal credit,” she said.

Disabled Man Seeking Guarantor For Accessible Family Home

August 18, 2014

I’ve received an email from a disabled man who is seeking a guarantor in work for an accessible family home.

He doesn’t want his contact details revealed to the whole Internet. However, he is genuine. If you are able to help please leave a comment below with your best contact details. If you don’t wish to leave a link to your email address please use the format (address at provider dot com).

I’m disabled with peroneal muscular atrophy and a number of other problems. My wife is my full-time carer. I’m no longer able to work. We have three sons. Our second son also has a disability, and type 1 diabetes.

We’ve been given notice as the owners of this property want to sell.

We’ve been looking for something suitable for well over a year, but the one’s we have found have always been much more than the housing benefit.

This one is ideal though.

I have very specific requirements due to my disability, and this is hard to match up the housing market.

I need flat, level access and flat, level off-road parking with plenty of space around the car. I need something that’s flat inside and either a wet room or suitably adapted shower. I also need plenty of room in a bathroom and w/c.

We need a 3 or 4 bedroom home. This bungalow ticks all the boxes, and is a long term let. It even has a room where I can store various things I need due to my disability. We’ve been accepted, but the landlord wants a guarantor in work because he’s had his hands burnt in the past with tenants on housing benefit.

I maybe should add that even an adapted house would probably be no good in the near future, so a bungalow is absolutely ideal.

DWP Home Visits

August 18, 2014

Following on from this post from yesterday, reader Neil Vaughn sent me this information about DWP home visits, which he has allowed me to share with you all.

An unexpected knock at the door. Someone standing there with an ID card claiming they have come to check if you are getting the correct benefits and could they please come in?

What do you do?

You don’t have to be guilty of anything to find the possibility of such a visit very alarming – especially if you have a mental health condition made worse by stress and anxiety.

Earlier this year there was a lot of concern about just such visits, prompted by a change to a page on the DWP website which stated:

You may get a visit from a Department for Work and Pensions (DWP) officer to check that your benefits payments are correct.
A Performance Measurement review officer may visit you if you’re claiming:
Employment and Support Allowance
Housing Benefit
Income Support
Jobseeker’s Allowance
Pension Credit
Your name is selected at random to be checked. You won’t always get a letter in advance telling you about the visit.

The concern was the addition of the sentence:

You won’t always get a letter in advance telling you about the visit.

Worries about how to deal with such a visit were posted on various blogs and forums and we received numerous requests from members for guidance on how to deal with these visits.

A Freedom of Information request was made.

As a result of that request it can now be revealed that, in reality, the vast majority of people who get a visit do not get a letter in advance – surprise visits are the rule, not the exception. There’s more on this below.

However,
you don’t have to let them in; and
• you can insist on being given proper notice;
• you can insist on having the interview at a DWP office instead of in your home.

And doing so won’t affect your benefits, though refusing to take part in an interview at all may leave you open to a fraud investigation.
Only a tiny percentage of claimants receive one of these visits. But the majority who do get one are not given any warning.

In fact, far from ‘You won’t always get a letter,’ DWP staff are actually told:
‘You must make an un-notified visit to each customer, apart from the exceptions detailed in the subsequent paragraphs. If this is ineffective a second un-notified visit must be made.’

If two un-notified visits are made on the same day then another un-notified visit must be made on another day.
After that a letter has to be sent giving you at least 48 hours’ notice of a visit or 24 hours where the letter is hand delivered.

There are also certain classes of claimant who should never receive an unannounced visit, including:

“customers suffering from depression or a medically defined mental illness
customers with an alcohol or drug-related dependency
disabled customers where there is evidence from the preview information that they may be distressed if an MRO calls unannounced. “

However, where the visiting officer suspects, on the basis of your files, that you may be committing fraud they can still carry out an un-notified visit even if you are in one of the categories above.

And it’s important to be aware that one of the things visiting officers will do is look out for any difference between the details given in your work capability assessment medical report and your behaviour at home. The rather bizarre example given is that of a claimant who is up a ladder washing windows when visited, but their incapacity is listed as vertigo.

So, if your condition is a variable one and you’re having a better day, make that very clear – even if you aren’t asked.

“I Was Glad When I Was Diagnosed With Autism”

August 18, 2014

From yesterday’s Guardian:

 

Here’s a secret: I was glad when I was diagnosed with autism.

It’s not about wanting to be autistic. It’s about that moment of sharp relief, feeling vindicated, almost.

The diagnosis is a scrap of paper in the world that tells you: “This is not your fault. You are not lazy, you are not spoiled or incompetent, you are not simply difficult. Dropping out of school: not your fault. Extreme food restrictions: not your fault. Weird movements, easily overloaded, going mute when stressed: not your fault. Over-the-top obsessions, being an outsider, desperately needing structure and predictability: not your fault.”

When you’re 14 years old and depressed, wracked with guilt because you’ve always been the smart one: those three words are powerful. Black and white. Official letterhead. A team of psychologists. Not your fault.

There’s relief. There’s freedom. There’s the sense of things clicking into place, a reason for all that’s plagued you. But what comes after?

On the one hand, I clearly remember thinking that I wouldn’t be like those people I’d heard about, who either denied or celebrated their disabilities. I would be Rational, and Realistic and Reasonable. I’d never claim I wasn’t broken – because I was.

On the other hand, as much as I rejected all the disability rights talk as a teenager, a lot of it evolved naturally without my realizing it. When people asked me to stop flapping my hands during dinner, I challenged them: Why should I? This makes me comfortable, and it doesn’t hurt you, so what’s the purpose in stopping? So I’ll appear normal? I’m at home; I shouldn’t have to pretend.

When people told me to adapt and learn and overcome, I asked: Why? Why should the person struggles with change be the one who adapts, when it’s supposed to come so naturally to the rest of you? Can’t I just be who I am?

Those years of pushing, adapting, trying, then failing before my diagnosis had been hell. I refused to go back. Instead, I got to know myself; slowly, at my own pace.
 
I’d always been a reader. Stories and characters offered a glimpse into what people were like and how I ought to act, even if I never consciously realized it. Now, I took up the keyboard myself. I wrote about superheroes, vampires, space smugglers, awkward teenagers, jewel thieves, take-no-shit policewomen. Slipping into these characters’ skins taught me even more about people — and about me.

It’s difficult being comfortable with yourself, but it is even more difficult when you’re disabled. It means knowing your limits intimately. It means running into a brick wall for your efforts and licking your wounds in the wake of your failure.

For me, it means learning what acceptance truly means. I’ve pinpointed my struggles; I’ve explored ways around them. But the more I embrace both my talents and my limitations, the more people latch onto only one or the other. Some have an image of who I should be — this smart, talented, enthusiastic girl — and when I tell them I couldn’t always be that girl, they call it a waste. They call me a waste.

Others wax rhapsodic about how I prove autism is no excuse for laziness or failure. I’m an inspiration, they say; that I overcame my disability. Me? I just gape. After all my years of difficulty, the last thing I want is for people to use my experiences to put down others who struggle. What is so inspirational about accepting your limitations? When did I overcome anything? I never overcame. I incorporated.

It’s been over 10 years since my diagnosis. I’ve cursed and hated it. Other times, I’m as glad as I was the day I received it. Autism has opened worlds to me. Even the drawbacks have taught me countless skills: from coping to empathy, from clear communication to self-care. I learned that limitations do not equal broken. I came to understand that disability is simply another facet of human experience. I embraced the disability movement, and all that comes with it. Community. Ingenuity. Advocacy. Connection.

Autism has let me dive headfirst into all of my talents — my art, my writing, my reading and all my silly-serious obsessions. It let me smear charcoal across paper and form portraits so spot-on they brought people to tears. It let me race my fingers across the keyboard and create words and worlds that ended up on bookshelves worldwide. Autism let me explore me. So why shouldn’t I be glad?

‘Welfare Squads’ To Target ‘Problem Families’

August 18, 2014

These government policies just get worse every day. This will have such scary consequences for the sick and disabled and carers.

DWP Compliance Officer Comes To Man’s Door

August 17, 2014

Description from Youtube- background to incident:

The Jobcentre have been harassing me since the 20th of June 2014 and today sent round a DWP compliance officer and gave no reason for the visit other than to supposedly check documents which they have already had or have access to. Due to the police being involved in the investigation of harassment, along with a high level internal investigation at my local Jobcentre, Crossfield House, I decided to show the documents to the officer at the door as my four year old son was staying with me and I didn’t want him feeling intimidated by the person they sent round as he was already wary of her for how she was acting. Needless to say, she was aggressive and condescending and apparently unaware of the law! She didn’t like it one bit and ran off with her tail between her legs. Fraud my arse! Inform the police if you suspect me of fraud and stop f***ing harassing me!

ESA – URGENT Call for HELP??

August 17, 2014

jaynel62's avatarjaynelinney

A comment left on my recent PIP post really needs answering; I’m copying it here in the hope someone can help Julie:

I am so confused. I had my pip form and have filled it in,waiting for my CPN care plan. Went to look at my ESA payment in the bank, and to pay a bill,I get it every two weeks(I am in the support group)It wasn’t there??????????? I have had no letter to say that they are stopping it. I thought they could only stop your payment,if you were in the WRAG..I just don’t know what to do now. I cannot phone them,as I have only got a mobile and can’t phone their Bull@@@@ 0800 number.

Has anyone else had this happen?

I’m sure this isn’t an isolated  incident and if anyone has any productive ideas for Julie PLEASE leave them here – I’ll forward them on

On a…

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UK becomes the first country to face a UN inquiry into disability rights violations

August 16, 2014

Kitty S Jones's avatarPolitics and Insights

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We ought to be very concerned about the government’s declaration that they intend to withdraw from the European Convention on Human Rights, (ECHR)  and to repeal our own Human Rights Act, (HRA). One has to wonder what Cameron’s discomfort with the HRA is. he Act, after all, goes towards protecting the vulnerable from neglect of duty and abuse of power. The rights protected by the HRA are drawn from the 1950 European convention on human rights, which was a way of ensuring that we never again witness the full horrors of the second world war, and overwhelmingly, one of the greatest stains on the conscience of humanity – the Holocaust.

Human Rights establish a simple set of minimum standards of decency for humankind to hold onto for the future. The European Convention on Human Rights and Fundamental Freedoms was drafted as a lasting legacy of the struggle against fascism and…

View original post 2,245 more words

Tourist Venues ‘Must Improve’ Disability Access

August 16, 2014

British tourist venues are being urged to provide better access for disabled visitors by the minister for disabled people.

A survey of 52 of Britain’s 100 most visited attractions by charity Vitalise found 63% were not fully wheelchair-accessible.

It also found that many did not train staff in disability awareness.

Mark Harper MP said businesses were “missing a trick” by not actively attracting this group of visitors.

Vitalise surveyed the venues that were recorded as the 100 most popular tourist attractions in the UK during 2013 by the Association of Leading Visitor Attractions and 52 responded.

The survey said:

  • 63% of attractions said they were not fully wheelchair accessible
  • Of the 27 venues that charged for entry, 44% offered no discount at all for disabled people
  • Hoists were available in 19% of places, a facility which Vitalise describe as “an indispensable item for some disabled guests”
  • 25% did not have fully accessible approaches to their doors, including from parking areas
  • 13% of Britain’s most popular tourist attractions said all their staff had disability awareness training
  • 26% of attractions did not have accessibility information available on their websites

‘No-brainer’

The Disability Holiday Directory, Britain’s biggest disabled holiday company, says it is unable to accommodate 20% of clients looking to have a holiday in the UK because of a shortage of accessible accommodation.

Mr Harper said: “Everyone needs and deserves to enjoy a summer holiday – and people with disabilities are no exception.

“I’m calling on everyone in the British tourist industry to look at what more they can do to better cater for disabled travellers.

Nicki Shepherd says he was prevented from going on a ride at Blackpool Pleasure Beach

“Businesses are missing a trick by not doing more to tap into this market. There are 11 million people with a disability in Britain.

“Britain is also visited by 32 million people from abroad every year. So, as part of our long-term economic plan, improving the accessibility of hotels and self-catering apartments and tourist attractions for disabled travellers is a no-brainer.”

Vitalise’s chief executive, Chris Simmonds, said its survey showed that many of Britain’s tourist attractions are not taking accessibility seriously.

“That has got to improve,” he added. “But, just as importantly, these venues need to work just as hard on how they communicate essential accessibility information to people with disabilities.

“Our own research shows two-thirds of disabled people decide against visiting attractions because of a lack of clear information about how accessible it is.”

Blackpool complaint

Paul Nadine, managing director of the Disabled Holiday Directory, said: “The situation is quite bad at the moment.

“It’s often easier to arrange a holiday for someone abroad than it is here in Britain. Many will want to go abroad, but for those with more serious disabilities or who prefer to enjoy what Britain has to offer, it’s become more and more difficult.”

Nicki Shepherd, 14, from Burnley has cerebral palsy and says he was turned away from Blackpool Pleasure Beach because of his disability.

“A staff member said if you can’t walk unaided then you can’t go on a ride.

“Putting a ramp up to a ride and saying it’s accessible is not right. It’s only accessible if you let people in wheelchairs actually go on the ride.

“Everybody in society should be able to access everything that is there.”

A spokesman for Blackpool Pleasure Beach said: “We are extremely sorry to hear about Nicki Shepherd’s experience during his visit and we are communication with Nicki and his family regarding his comments received.

“We are taking Nicki’s comments very seriously and have launched a comprehensive review with external assistance.

“Blackpool Pleasure Beach has a duty of care to its guests and takes the health and safety of its guests and staff to be of paramount importance, and working within such will try and ensure inclusivity.”

NHS In Wales To Fund Cannabis Based Sativex For MS Patients

August 16, 2014

The NHS in Wales will be the first in the UK to fund a cannabis-based medicine for people with multiple sclerosis.

Sativex is taken as an oral spray and has been approved by the All Wales Medicines Strategy Group (AWMSG).

It will be available on prescription to treat muscle spasms for MS patients who have not responded to other medicine.

The MS Society said Wales was leading the way in the treatment.

Its programme director for policy, Sally Hughes, added: “Muscle spasms and stiffness in MS can be painful and distressing and so the availability of a treatment that can potentially alleviate these symptoms is good news.

“We particularly welcome this decision considering the draft NICE (National Institute for Health and Care Excellence) clinical guideline, published in April, rejected this treatment for use on the NHS in Wales and England based on a flawed assessment of the drug’s cost effectiveness.

‘Ease suffering’

“For some time we’ve been aware of people in Wales paying privately for this licensed treatment; this decision should make life a lot easier for them.”

Sativex is the first cannabis-based medicine to be licensed in the UK.

Tony Wiggins, chairman of the Cardiff and Vale MS Society, has trialled Sativex and called it a “tremendous step forward”.

“It’s good for spasms and other effects of MS – and it does work,” he said.

“And if a treatment works then it should be made available.”

Wales Health Minister Mark Drakeford said: “Following the appraisal of Sativex by the All Wales Medicines Strategy Group, I am pleased to announce we will be making the medicine available on the Welsh NHS to those who need it.

“I hope this decision will help ease the suffering of some of those who have to live with the reality of MS everyday.”

Director of service development at the Multiple Sclerosis Trust, Amy Bowen, said: “We are extremely pleased that people with MS in Wales will finally have better access to Sativex.

“As a charity we have campaigned over a long period for Sativex to be widely available because of the significant impact that MS spasticity can have on daily activities.

“We just hope that this recommendation will now lead to Sativex being more easily accessible in the rest of the UK.”

Tribunal Rules ‘Absent Parents’ Can Have Spare Bedrooms For Visiting Children

August 16, 2014

Well known Bedroom Tax blogger SPeye Joe has some very good news.

He goes into a lot of legal detail, which you can read from his site if you wish.

However, this is such an important ruling that I thought I’d summarise it for those who have less of an interest in the full legal background.

Basically, readers, the case the post reports on is this:

A father has two sons. One son lives in Scotland with his mother but goes to his father in England for one weekend a month and school holidays.

The father was hit with a 14% Bedroom Tax for his one spare bedroom, where his son who also lives in Scotland stays, until the tribunal found that  the Right to Respect for a Private And Family Life section of the European Convention Of Human Rights required it to rule that  a ‘home’ includes a place at which a child has “regular staying-over contact with their parent.”

That means that a child is entitled to have a bedroom, that they are considered to live in, with the parent that they don’t live with permanently.

There are many disabled children who don’t live permanently with both parents. There are also many disabled parents who don’t live permanently with their children.

Reader, if you are a separated parent carer, or a separated disabled parent, who has until now been affected by the Bedroom Tax, please keep this case in mind, take some hope from this victory and get appealing!

 

 

 

 

DWP Figures Show Benefit Sanctions ‘Postcode Lottery’

August 15, 2014

Steven Preece of the Welfare News Service has created this very interesting graph which shows that disabled people on ESA are facing a ‘postcode lottery’ for sanctioning.

The Purge: Anarchy Applied To Britain

August 15, 2014

Earlier this week, I saw The Purge: Anarchy. When I stopped shivering at the sight of the ‘God’ mask and jumping at the sound of gunshots, I started really thinking about the storyline.

The movie is set in America in 2023, where people are living under the Government of the New Founding Fathers. I understood this to be a strange kind of Communism.

The NFF believes that the population doesn’t kill enough, so, for twelve hours every year, every crime on Earth is legal. Emergency services are shut down. If you want to be safe out on the street, you have to be armed. So far, this all sounds like the stuff of fantasy.

However, stay with me on this, readers. The wealthy throw ‘purge parties’ on purge night, at which they get dressed up and sign up to ‘purge’ the poor- to  harm or even kill them.

But here’s the part that most concerned me. An old man, who was, as he said himself, dying anyway, whose daughter could no longer afford his medicine, sacrificed himself. As he explained in a note to his family, he had been paid $100000 by a wealthy family who wanted to commit a crime on purge night. Those rich people who don’t go to purge parties pay the poor, the elderly and the sick for the right to kill them in a safe place, in secret.

Through all this I was thinking- how long before this becomes England? Will it even wait until the 2020s? Could it happen in 2015 if the Tories remain in power?

How long before the poor start committing serious crimes in revenge at government policies? Not by choice, readers, but simply to be noticed, listened to, to have their problems heard?

How long before the elderly, the terminally ill, the sick and the disabled start ‘sacrificing’ their lives to the promise of money for those they love from the wealthy? Could this start happening if the Assisted Dying Bill becomes an Act?

Like many of us, readers, I’ve heard this week about the ‘yellow card’ system of ‘final warning’ the Lib Dems want to bring in for benefit claimants before they are sanctioned. I don’t know what to think about it. I wonder how the ‘yellow cards’ will work. If they are a mark on a piece of paper hidden in a JobCentre for your advisor and you to know about and no one else to find out, then that sounds better than the system we have at the moment.

However, if benefit claimants who are on warning will actually have to carry a yellow piece of card around for a period of time, then the system worries me. If that is the plan, the system could lead to hate crime against people on ‘yellow card.’ (“You’ve broken the rules of benefits once, have you? I pay for your benefits, you don’t deserve them…”)

Readers, even if we accept that the Lib Dems don’t plan to introduce physical yellow cards at the moment, I have to wonder what might happen if the Tories win in 2015. Could they take on board the system of fair warning, but turn it into a physical yellow (or blue) card or paper? Could they introduce a system of making claimants carry a card or paper of some colour or design that will simply show the rest of the world at a glance that they are claiming benefits?

Readers, the question is: how long before ‘yellow card’ becomes ‘blue star?’ How long before the British Government starts encouraging crimes against the bearers of said chosen symbol because ‘they don’t die fast enough?’ They may not set aside twelve hours a year for this purpose- but what worries me even more is that they may start encouraging it at all times.

If the Tories, or even UKIP, come into Government, could we one day be living in a thriller?

Robin Williams ‘Had Parkinsons’ At Time Of Death, Reveals Wife

August 15, 2014

Robin Williams was suffering from the early stages of Parkinson’s disease at the time of his death, his wife has said.

Susan Schneider said her husband had been sober but “not yet ready to share publicly” his struggles with Parkinson’s.

She added that he had also been suffering from anxiety and depression.

The 63-year-old actor was found dead in an apparent suicide in his home on Monday.

Police said he died of asphyxia due to hanging.

“His greatest legacy, besides his three children, is the joy and happiness he offered to others, particularly to those fighting personal battles,” Ms Schneider said in a statement, adding her husband’s sobriety was “intact”.

Susan Schneider (left) said the family hoped “others will find the strength” to seek care for their own battles

“It is our hope in the wake of Robin’s tragic passing, that others will find the strength to seek the care and support they need to treat whatever battles they are facing so they may feel less afraid.”

Parkinson’s is a degenerative neurological disorder.

It is believed that the disease is brought on by a mixture of genetic and environmental factors, but the exact cause is still unknown.

line

Zelda Williams remembers her father:

Dad was, is and always will be one of the kindest, most generous, gentlest souls I’ve ever known, and while there are few things I know for certain right now, one of them is that not just my world, but the entire world is forever a little darker, less colourful and less full of laughter in his absence.

We’ll just have to work twice as hard to fill it back up again.

Read all the family tributes in full

line

Its symptoms can include tremors and other uncontrollable movements, impaired balance and co-ordination, stiffness, slowness of movement, loss of smell, a decline in intellectual functioning, depression and speech and swallowing problems.

It is estimated to affect about five million people worldwide and usually, but not always, occurs in old age. The statement did not specify when Williams had been diagnosed.

In the past, Williams had talked and even joked about his struggles with alcohol and drugs and had returned to rehab to “fine tune” his sobriety earlier in the year.

Tributes have poured in across the world for the comedic actor and on Wednesday evening the marquees of New York City’s Broadway theatres were dimmed in his memory.

Williams will also be remembered at the Primetime Emmy Awards on 25 August.

Williams was famous for films such as Good Morning Vietnam and The Fisher King, and won an Oscar for his role in Good Will Hunting. His break-out role was as an alien on the 1970s TV show Mork and Mindy.

George Takei Apologises For THAT Meme

August 14, 2014

Personally, I am a part time wheelchair user who can walk. I found the picture hilarious. I shared it on my personal social media, intended as a joke.

However, maybe George Takei’s many fans would have been less offended without the ‘Holy Spirits’ caption.

Or maybe, what people find funny is simply a matter of taste.

Anyway, I’ve just seen that George Takei has now apologised.

Accessible Chopsticks For Disabled People In Japan

August 14, 2014

My disability means I’ve always known I wouldn’t do very well if I tried to use chopsticks. Luckily, as this article says, in the UK that doesn’t really matter. However, Japan is a different story- but a sensitive inventor has come up with a brilliant solution. Custom made chopsticks for disabled people!

A Letter A Day To No 10: Number 830

August 14, 2014

IDS Doubts Figures That Show Two Thirds Affected By #BedroomTax Are Disabled

August 14, 2014

Iain Duncan Smith has cast doubt on statistics showing two-thirds of people hit by the so-called ‘bedroom tax’ are disabled, saying they are based on tenants’ “self-declaration”.

The Work and Pensions Secretary said there is no “check” on the figures which appear to show almost two-in-three council houses affected by the policy are occupied by someone with a disability.

Tenants deemed to have spare rooms see their housing benefit cut by an average of £14 a week, under the most controversial of all the Coalition’s welfare reforms.

The two-in-three figure is drawn from a DWP equality impact assessment on the policy, which has been cited by the Labour Party and campaigners as evidence that the policy is hitting disabled people the hardest.

Some 63 per cent of those affected have a disability, the study suggests, compared with 66 per cent of all social housing benefit claimants.

However, Mr Duncan Smith said that only a third of those affected receive the Disability Living Allowance.

“The figures you use are figures used for people’s self-declaration of their disability under the Disability Discrimination Act,” he told LBC Radio.

“The fact is all social housing has exactly the same figures. This isn’t just people with spare rooms. The whole of the social housing network, two-thirds of them declare as having some form of disability.”

“I’m not saying they’re right or they’re wrong. I simply say that’s their declaration. There’s no ongoing check. About a third are in receipt of something like DLA, which of itself is a payment to support housing costs.”

Under the Act, the definition of disability covers conditions including dyslexia, heart disease, cancer and stroke. It obliges public bodies to monitor and treat those with disabilities fairly.

The public “very rarely hear the case” for people who are living three to a bedroom and are “desperate” for the under-occupied homes that the policy is intended to free up, Mr Duncan Smith said.

Mr Duncan Smith said he was a “little surprised” to learn that the Liberal Democrats plan to oppose the policy as it stands the 2015 election.

“We were fully engaged in this one for three years, and I didn’t hear anything from them in that time, so I was a little surprised to hear them say they had apparently discovered the secret to this programme, when we had discussed it in depth and detail.”

Separately, Mr Duncan Smith welcomed remarks from Mark Carney, the Governor of the Bank of England, suggesting that tighter benefit sanctions were behind dramatic falls in unemployment. Much of the growth in jobs was among unskilled work, pushing unemployment rates down to 6.4 per cent, the lowest since 2008.

The change “might partly stem from recent reforms to retirement and benefit rules, as well as concerns of households about the need to service debts and provide for pensions,” Mr Carney said.

ESA Sanctions Rise By 580%

August 13, 2014

Many thanks to Benefits And Work.

The coalition’s war against sick and disabled claimants is becoming ever more intense. The latest statistics show that sanctions against employment and support allowance (ESA) claimants have risen from 1,104 in the month of March 2103 to 7507 in March 2014, an increase of 580%.

The massive increase in sanctions is even more marked when looking just at the first three months of 2014, the most recent dates for which statistics are available:

January 3,750

February 4,698

March 7,507

The figures show that sanctions against the sick and disabled have doubled in the space of just three months.

Sanctions are only applied to claimants in the work-related activity group of ESA and the vast majority are aimed at sick and disabled claimants who have been forced onto the work programme and then failed to carry out a mandatory work-related activity.

In March 2014 7,108 claimants were sanctioned for failure to participate in work-related activity and 395 for failure to attend an interview.

Very often the reason for failure to participate in work-related activity is that the claimant was too unwell to carry out the activity or had not had it clearly explained in the first place. More than 60% of ESA claimants who are sanctioned have a mental health condition or learning difficulty.

There has been no explanation from the DWP for this massive rise in sanctions, but given that sanctions against ESA claimants are an easy way to cut benefits costs when the coalition is already in danger of breaching its self-imposed welfare cap, it’s not hard to understand what is driving the increase.

You can download the latest sanctions statistics from this link.

Janette Warburton

August 13, 2014

Janette Warburton suffered from Trigeminal Neuralgia – a condition in the face which affects the nerves and has been described as a stabbing pain, or like an electric shock. She took her own life in March.

Her husband, David, spoke exclusively to 5 live Breakfast, in an effort to raise awareness of the condition. He told Rachel Burden that Janette said the constant pain was “worse than having children”. He believes she should have been kept in hospital and sectioned.

A statement from Preston Hospital, where Janette Warburton was treated said: “Firstly we wish to express our sincere condolences to the husband and family of Janette Warburton.

“Following a full assessment, Mrs Warburton was discharged from Royal Preston as her condition did not require that she be treated as an inpatient. Instead she was referred to our outpatient clinic where her treatment was due to continue.”

Disabled Man attacked by G4S Security at Newcastle Jobcentre

August 13, 2014

BlueAnnoyed's avatarblueannoyed

g4s guard newcastle

The culprit!

A sick & disabled man attends Newcastle JCP to use the phones to make an enquiry when he was attacked by G4S guard for using his mobile when they refused his request. How is that acceptable?  The JCP’s are now removing telephones which is another obstruction claimants now face, not every person has a mobile or a landline. It is now policy that you are intimidated BY G4S security to turn off your mobiles after many used them to film maladministration of JCP staff. So how are they supposed to get the information they require, when JCP staff are too busy to deal with a basic inquiry?  They are supposed to be there to assist claimants with their enquiries and help them seek work. This should outrage most people and this man should apologise to the complainant and the claimant should be compensated. At the time of writing this blog a…

View original post 164 more words

Welfare News Service Submits FOI To DWP And ONS

August 13, 2014

Finding Work When You’re Disabled Is A Postcode Lottery Finds Survey

August 13, 2014

This very interesting article has full details.

“I didn’t want my first #JSA meeting to be in a group session with a G4S guard.”

August 13, 2014
With many thanks to Kate Belgrave.

I’d be keen to hear back from anyone who has experience of this:

I spent a couple of hours today talking with someone who is a new JSA claimant in North London. This man started his JSA claim a couple of weeks ago. It’s the first claim he’s made. He filled in an application form online and then was sent a text by the DWP some days later which called him to a meeting at a London jobcentre in the first week of August.

He assumed that the meeting would be one-to-one with a jobcentre advisor – a meeting where an advisor goes through the application in detail with the claimant and jobsearch requirements are set – but instead found that the meeting was a group session with about ten other new claimants and one G4S security guard who sat in the room the whole time. This man was shocked to find that this first meeting wasn’t private. He found the experience confusing and worrying, and wasn’t sure what he agreed to in it.

He said that he was certainly concerned about asking questions and sharing personal details and financial information in front of a group of strangers. He wasn’t the only one. He said that “a couple of the people there looked very nervous and anxious at the prospect of a group meeting,” and that people were worried about confidentiality.

He also said that the two jobcentre staff who ran the meeting “said that the new claimant meetings were now ‘unfortunately’ group meetings rather than individual meetings.” He has another meeting coming up soon and thinks the new meeting is a one-to-one, so he wasn’t sure if the group session was a direct replacement for a new claimant one-to-one. He was hoping that his claim would be finalised at the upcoming meeting. He was concerned about papers that he signed at the group session though. He was worried that he may have agreed to a claimant commitment without properly talking about it, or having time to think things through. He wasn’t sure if that had happened and hoped to find out at the upcoming one-to-one. He didn’t want to make a fuss and not sign papers at the group session. He also didn’t want to ask many questions or reveal his financial situation in a room full of strangers.

I’ve put a transcript of our discussion below. I’ve found some evidence of these new claimant group meetings online and a woman I know told me today that she’d accompanied someone to another London jobcentre where new claimant group meetings were held. The woman she was with was excused from that group meeting, because she didn’t speak English well. She was given a one-to-one session with an advisor instead that day.

The man I spoke to today said:

“Beyond the complete lack of confidentiality and privacy in a group meeting, it proved highly impractical and inefficient to address questions of ten different claimants. New claimants obviously have very different and unique cases. I can’t imagine how anyone would want to talk about sensitive or difficult issues in that environment.”

People were also told to put their identifying documents and bank statements into a box for photocopying and had their names read out for all to hear when the documents were returned.

I’ve asked the DWP for more on this and I’d be interested to hear from anyone who knows about these meetings. You can contact me here. People I’ve spoken to about this have real concerns about confidentiality and also about the appropriateness of a group environment for people who need to discuss sensitive personal information. I’m also interested to know why these meetings are held at all and why a G4S security guard gets to sit in listening to people’s personal stories.

Transcript from today

“When I went in to sign on, the guy at the jobcentre said you have to sign on online now. He said “we’ve only got one computer here, so if you’ve got a computer at home, use that.” So I went home, and filled in the online form and all the details there. Then got my text message from the DWP saying “come to this meeting to complete your application. It was a “do not reply” message.

“I had no idea what the process was [when I got to the jobcentre on the meeting date]. I told the guy I was there for my first signon. I had no idea what the process was. He had my name and it was like being in a waiting-room. There was quite a few people sat down when I got there.

“Then someone came around and said – “who is here for the group?”

“Everyone had the same sort of reaction. You could see that people were genuinely uncomfortable with that [group] situation. They thought they were coming to have a personal discussion. I thought that I was. It was an office room like a seminar class with all the chairs in a semicircle and people wondering what was going to happen.

“There was a woman who was obviously was in charge and then [someone] junior. The woman [in charge] kept saying that she was dissatisfied with the situation. Like – unfortunately, we don’t have individual meetings for claimants. We have to do group meetings. We don’t have any telephones here any more. So – she was obviously expressing that she was not happy with that situation. It doesn’t give you much confidence that things are going well in that centre. If they’re not happy, it’s not going to translate well.

“So, they said this is a new claimants’ meeting, and they came around with a printout of the [online] registrations [we’d done] so we saw that and then they gave us [a piece of paper with our next meeting date on it]. They gave us the printout and then they said they needed our documents and proof of ID. This is why it seemed like a problem to do this for a group meeting. Like – some people had been out of the country for a while and were returning. People had to prove their right to remain, so there’s all people with all sorts of different problems.

“Then, the woman comes out with a grey box [to collect documents from people in the group], so I put my driving licence and my bank statement and housing tenancy agreement into the box and then she went and left the room and photocopied all of our stuff, I suppose. I was quite careful. I put my stuff in folded up together, because one of my bank statements could have come out and someone could have taken that and gone home and gone Oh I’ve got his bank statement here.

“So – when they came out with all that stuff, they had all people’s documents like driving licences and passports. The woman handing them out wasn’t entirely sure who everyone was. She was looking at the passports and then saying the name on the passport [out loud], because she couldn’t identify the person. She did it to me. She read my name out. That was a real confidentiality issue.

“In the meantime, we had the other person explaining that we had to fill out all these forms – and then they gave us that form that says “I agree to search this many jobs” and that kind of thing. I think.

“I wasn’t sure if I should have signed it. We didn’t fill it out. I was thinking – did she actually mean for us to sign that form? If you have ten people in a room and one person makes a mistake and they fill it out when they’re not supposed to fill it out – how is she going to know if she’s got to deal with ten people at once?

“You get used to signing stuff. And you think – “we’ll, I like to think that they’re not going to screw me over here. I’m at their mercy in that situation.”

URGENT for ALL DLA recipients awaiting PIP

August 12, 2014

jaynel62's avatarjaynelinney

URGENT Information to ALL DLA recipients awaiting PIP

Back in March I received a notice from DWP, informing me of two thing:

  • I needed to claim PIP
  • My DLA award (ending this month) would continue until PIP assessment was complete

I duly completed and returned my PIP form; today I phoned DWP DLA section, requesting how to  manage the imminent renewal of blue badge/bus pass & car tax given the above; further I received a letter yesterday from the DWP office dealing with my Carer’s allowance informing this award was also ending at the end of August.

I was pleasantly surprised to be informed that due to the delays with PIP my DLA had automatically been extended for a YEAR – to Aug 2015 (subject of course to a possible PIP assessment in this time).

This is great news, but here is further evidence the DWP is not only failing claimants, but is in…

View original post 84 more words

Inquest Delivers Suicide Verdict In Stephanie Bottrill Case- Government Should Get Blame

August 12, 2014

Vox Political has requested that this be shared everywhere. Sharing as requested.

It’s official – stress and pressure caused by the Bedroom Tax pushed grandmother Stephanie Bottrill into taking her own life.

Zafar Siddique, coroner for Birmingham and Solihull, said he was “satisfied she intended to take her own life” after hearing evidence that Mrs Bottrill had blamed the government’s Bedroom Tax policy for pushing her to suicide in a note she left at her Meriden Drive, Kingshurst, home before walking across the M6 motorway into a collision with a lorry early on May 4, 2013.

The coroner also heard evidence from Dr Bindu Nair, who saw the former postal worker the day before her death after Mrs Bottrill’s daughter-in-law, concerned for her safety, made an appointment.

Dr Nair said Mrs Bottrill had “expressed unhappiness at being pushed by the housing department to make a decision, in half an hour, in reference to being made to move into a smaller property”.

He added that Ms Bottrill was “happy to move but it was the way in which she was forced to make a decision” which had caused her “considerable anxiety and stress”.

Unmentioned in the report is the fact that Mrs Bottrill was found to be exempt from the Bedroom Tax (also called the State Under-Occupation Charge) under the Housing Benefit and Council Tax Benefit (Consequential Provisions) Regulations 2006, because she had been living at her address since before January 1996.

The implications for the government are enormous.

A British court has accepted that a government policy pushed a UK citizen into ending her life.

Organisations including government departments are guilty of corporate manslaughter if the way in which their activities are managed or organised causes a person’s death, and amounts to a gross breach of a relevant duty of care owed by the organisation to the deceased.

An organisation is guilty of an offence if the way in which its activities are managed or organised by its senior management is a substantial element in the breach.

The pressure placed on Mrs Bottrill, according to the evidence of her own doctor, caused “considerable anxiety and stress” that contributed to her decision to commit suicide.

It seems clear that the Department for Work and Pensions – as the organisation responsible for both the Bedroom Tax and the pressure placed on Mrs Bottrill by housing officers – must now face criminal charges under the Corporate Manslaughter and Corporate Homicide Act 2007.

As far as this blog is concerned, responsibility for this woman’s death lies firmly with Iain Duncan Smith.

Jess Thom Says She Is Not Here To Inspire

August 12, 2014

Disabled performers are often put in the “inspirational performance” category whenever they get up on stage, but for this year’s crop of disabled comics at the Edinburgh Fringe, they couldn’t care less about that particular moniker.

Self-proclaimed “Tourettes Hero” Jess Thom is enjoying sold out performances of her first ever Edinburgh show Backstage In Biscuit Land.

“Humour is an incredible way of encouraging people to think differently about something,” she says. But she knows that she is first and foremost a performer – changing attitudes is secondary.

Veteran Edinburgh stand up comic, Laurence Clark feels similarly. “I’m not here to inspire people, I’m here to make them laugh. If I’ve made them laugh then I’ve done my job.”

To watch a subtitled version of this video, click here

Video journalist: Kate Monaghan

Robin Williams, 63, Dies By Suicide, Had Severe Depression

August 12, 2014

Readers, I’m listening to the news as I type, with shock and sadness.

I loved Mrs Doutfire as a teenager. There was a sequel in the works, which I would have loved to see. Very, very sadly, that will not happen now.

Reportedly, Robin Williams had been experiencing severe depression in recent months. Readers, today the world of showbiz has lost a great, lasting and special talent, to severe mental health issues.

The very, very sad death of Robin Williams reminds us of something yet again. Mental health issues, which are recognised disabilities, can strike anyone at any time- no matter how rich, talented or world famous they are.

Many, many people experience these issues daily. If Robin Williams’ very, very sad death raises some awareness of how common these issues are, if Robin Williams’ very, very sad death encourages one fan to seek support for these issues, it will not be in vain.

If Robin Williams’ very, very, sad death saves one life of one depressed fan who seeks support, it will not be in vain.

In tribute, I post the Mrs Doubtfire trailer:

 

 

And the Happy Days theme tune:

And the Jack trailer, because in that he played a boy with a disability:

 

Robin Williams, Sir, you brought so much laughter and fun to the world. I hope your life wasn’t always dark and sad- I hope you got some fun out of your amazing talent and your career.

RIP Sir, and thank you so much for the laughs.

Benefits Street’s White Dee To Speak At Conservative Party Conference

August 12, 2014

White Dee, the star of controversial Channel 4 series Benefits Street, has been invited to speak at this year’s Conservative Party Conference alongside David Cameron and Iain Duncan Smith.

Dee, or Deirdre Kelly, will give her views on the welfare system in a debate organised by the Policy Exchange think tank.

It comes after Dee revealed she is toying with the idea of becoming an MP – but at £70,000-a-year, it doesn’t pay enough.

The final annual conference ahead of the general election will take place in Birmingham from September 28 to October 1.

Last year saw Work and Pensions Secretary Iain Duncan Smith debate with former editor of ConservativeHome Tim Montgomerie.

But this year, the Policy Exchange has decided to pair a representative with 47-year-old Ms Kelly in a debate chaired by Newsnight presenter Allegra Stratton.

Ms Kelly insists she has been waiting for an opportunity to lend her own voice to the serious arena of policy-making. She hopes to take David Cameron out for a drink afterwards.

Her agent Barry Tomes told MailOnline: “Dee is very excited. She has lots of ideas about how to improve benefits.

“She agrees that the benefits system is totally abused in the UK.

“She wants to address how it is so easy to get on them but so hard to get off them.

“In classic Dee style, she said she won’t think about what she wants to say until the actual debate.

“She shoots from the hip, Dee, and that’s what everyone likes about her.

“This will be a great way for her to get her ideas out – and hopefully she will get to go for a drink with David Cameron.”

It is a dramatic career turn for Ms Kelly, who shot to fame on the Channel 4 documentary in January.

Since, she has done a string of media appearances across the UK and in Magaluf, hosting bar crawls and pool parties.

She has even filmed her own cooking programme, which is due to screen later this year.

But according to her representatives, she has been approached by all three major parties to run for a seat in Birmingham.

‘She is tempted by the idea, but there just isn’t enough money in it,’ Mr Tomes added.

“Nick Clegg has invited her to go on his show and all the parties have approached her to represent them.

“She is a Lib Dem at heart but if she ran she would probably go independent.

“But she could do so well out of her media appearances, I think she should leave it for at least 10 years.”

A Policy Exchange spokesman said: “We’re very glad she’s doing it. It is always good to have a balance of people on the panel.”

Benefits Street, which portrayed the lives of people living on a Birmingham street, had been criticised for its portrayal of benefits claimants, with an estimated 90 per cent of residents claiming between £500 and £900 a month.

Complainants voiced concerns about the treatment of under 18s featured in the show and the portrayal of what appeared to be criminal activities.

Ofcom launched an investigation into the complaints, and has now rules the broadcaster did not breach any of its responsibilities.

The programme, filmed on Birmingham’s James Turner Street, was met with public outrage when it was screened and prompted discussion in Parliament as well as public meetings in the area.

The series was a ratings hit for Channel 4 but drew criticism for allegedly demonising those living on the breadline.

DWP To Amputee Veteran: ‘Get A Job. Doesn’t Matter How You Travel.’

August 11, 2014

This is how we treat our veterans- 100 years since World War 1.

GET a job – but it does not matter if you cannot travel there.

That’s what amputee Gordon Lang has been told by the Department of Work and Pensions.

Mr Lang appealed against a decision to stop his Employment Support Allowance after he was told he should be able to work.

But that was rejected and he has now lost his ESA. The DWP said it looked at if he could work, not how he might travel to and from a job.

The government department said he might work at home or an employer could supply transport.

The former Royal Marine, who served in the Falklands conflict said: ‘There probably are (jobs that come with transport) but certainly not in Gosport.

‘I’m absolutely gutted. I did 25 years in the services. I took about a year after that.

‘The only reason I had to stop working is because my amputation means I could not do the job I was doing.’

Mr Lang, 62, was assessed at his home by Atos but said he was not asked to carry out any tasks with or without his prosthetic or outside.

He claims that if he had been asked to do so, his mobility issues would be clear.

Councillor Roger Allen is the armed forces champion at Gosport Borough Council.

The council signed an armed forces covenant agreeing it would support ex-servicemen and women in education, housing and health.

Cllr Allen said: ‘It sounds a bit ridiculous to me. If the guy is not able to get around obviously you can’t go to work.’

In 2012 Mr Lang, of Chilworth Grove, had his leg amputated after suffering from peripheral vascular disease, which had stopped blood flow.

He said his difficulty lies in travelling to a workplace as he has to battle with uneven and sloping pavements to get to a bus stop.

He added he would need somewhere secure to leave his wheelchair while at work as well.

Cllr Peter Chegwyn represents Leesland ward, where Mr Lang lives, at Gosport Borough Council.

He said: ‘It sounds extremely harsh and sadly I’m getting more and more similar cases.

‘They seem to regard everyone as benefit scrounger.

‘There are really decent people that are struggling.

‘For someone who is clearly disabled they should show a little more care and compassion.’

In a letter to the DWP it said the minimum a person is required to be able to get about is 200m.

‘The (assessment) is not to establish how you would get to a work place as the (assessment) is not job specific,’ the letter added.

The Campaign To #saveclairedyer Now Has An Official Website

August 11, 2014

I have been following the campaign to save Claire Dyer closely for quite a while now.

I’ve just found out that the campaign now has a website.

This has full details of the campaign and Claire’s story, and new ways to help save Claire.

Duncan Smith reckons cutting welfare for cancer patients is “creating jobs”

August 11, 2014

Tom Pride's avatarPride's Purge

(not satire – it’s Iain Duncan Smith!)

Secretary of State for Work and Pensions Iain Duncan Smith is claiming that his welfare reforms are creating jobs.

Quite how cutting welfare payments to terminally ill cancer sufferers – for example – is supposed to create jobs, he doesn’t quite explain:

Deadly delay for cancer patients as thousands are waiting months to get benefits

Perhaps he’s referring to an uptick in jobs being created in the greetings card, flower delivery and undertaking sectors?

And to be fair to Duncan Smith, dying probably is quite a good way to get you off the unemployment figures.

Sometimes I think trying to satirise this government is getting to be almost impossible.

They satirise themselves so much better than I ever could.

.

Related articles by Tom Pride:

UK today: 40% of cancer patients can’t afford to heat their home properly

Dad deported from UK for having cancer

View original post 108 more words

A Letter A Day To No 10- No 826

August 11, 2014

IDS To Signal MORE Welfare Reforms

August 11, 2014

Iain Duncan Smith will signal his determination to intensify welfare reforms, arguing that the crackdown on benefits is cutting unemployment.

The work and pensions secretary will use a speech in central London on Monday to insist the Government is “delivering” after Labour left “whole sections of society on the sidelines”.

The comments come amid speculation that the Tory general election manifesto could pledge to lower the benefit cap of £26,000 to closer to the average take home pay of £18,000 or extend other tough measures.

Under the previous Labour government , he will claim, “the number of households where nobody had ever worked doubled” and the welfare bill rose by twice as much as average earnings.

“More than half of the rise in employment that we saw was accounted for by foreign nationals. And not just in London – three-quarters of Eastern European migrants in employment live outside London.”

Duncan Smith will argue that immigration into the UK has been a “supply and demand issue”.

Businesses needed the labour, he will say, but because of the way the benefit system was constructed, too few British unemployed people took the jobs on offer.

“When we took office, there were nearly five million people on out-of-work benefits. It was clear to me that in large part this situation was the product of a dysfunctional welfare system that often trapped those it was supposed to help in cycles of worklessness and dependency.

“My one aim as work and pensions secretary has been to change this culture – and everything we have done, every programme we have introduced, has been about supporting everyone who is able to into work.

“The scale of the change has been enormous – but we are delivering, and it is changing our country for the better.

“Fixing society at the same time as the economy, matching a firm economic settlement to a firm social settlement; and in so doing putting this country on a path to a more productive, more dynamic, and ultimately a more contented, future.”

Threatened With Sanctioning- For A Spelling Mistake

August 11, 2014

Caroline Gooding Obituary

August 10, 2014

The lawyer and campaigner Caroline Gooding, who has died aged 55 of breast cancer, played a crucial role in bringing about the Disability Discrimination Act 1995 (DDA) and, four years later, the Disability Rights Commission. The act established for the first time powerful, wide-ranging rights for disabled people across virtually all sectors of British society, and the commission aimed to help ensure those rights in practice.

Caroline had a stroke in her early 20s, after which she became active in the disabled people’s movement. She was working for Radar, the Royal Association for Disability and Rehabilitation, now Disability Rights UK, when the Conservative government introduced the Disability Discrimination bill, and worked closely on it with government officials and parliamentarians, and with the disability movement, employers and unions.

In 1996 she wrote Blackstone’s Guide to the DDA, and subsequently worked with the government to produce the first statutory code of practice on its employment provisions, effectively setting the standards for courts and tribunals to apply. She gained a reputation for combining principle, realism and approachability to good effect.

While campaigning for a statutory commission, Caroline recognised the need for test cases. In 1997 she co-founded and directed the DDA Representation and Advice Project, which selected cases for leading pro-bono lawyers to take up, and provided an information exchange for disability law experts.

In 2000 Caroline joined the newly created commission as a special adviser. As the DDA progressively came into force, Caroline led the drafting of statutory codes to explain the law and campaigns to publicise it and encourage good practice. At the same time she joined the advisory cabinet of the mayor of London, Ken Livingstone, and helped ensure groundbreaking disability equality steps were taken in London’s public sector. She was also active throughout in promoting feminist, lesbian and gay and anti-racist causes.

Born in Glasgow, Caroline was the daughter of Keith Gooding, a GP, and his wife Jessie (nee Strange). Her parents moved to London before she was two, and she went to St Paul’s School for Girls. After gaining a first in history and social and political science from Cambridge in 1982, Caroline trained as a solicitor at the College of Law in London and joined a firm in Newcastle, qualifying in 1986.

Caroline undertook an LLM at the University of California, Berkeley (1990-91), with a thesis on the impact of the Americans with Disabilities Act. This led to her trailblazing book Disabling Laws, Enabling Acts (1994), which argued for a rights-based approach to disability in Britain. It added intellectual heft to the disability movement’s campaign for anti-discrimination legislation, which had existed for 20 years on race and gender.

She played a significant role in drafting the further DDA passed in 2005 and championed a new obligation on public bodies to promote disability equality, including a statutory code. Throughout this period she continued to identify key legal cases to be taken forward, now by the DRC.

Caroline disagreed with the Labour government’s decision to wind up the DRC in 2007 and subsume its functions into the Equality and Human Rights Commission. However, this led to the next phase of her career, as a highly respected equality consultant, assisting the commission in drafting statutory codes and other guidance on the Equality Act 2010.

A lifelong socialist and activist, she chaired the Trade Union Disability Alliance for many years. She also remained involved in the Discrimination Law Association, of which she was vice-chair, and the Business Disability Forum. In 2011 she took up part-time work with the Department for Work and Pensions on data-protection issues.

She continued to work with the Academic Network of European Disability Experts. In 2005 she co-edited a book on disability rights in Europe and at the time of her death was co-editing another on the impact of equality commissions around the world.

Always good company, Caroline – known to her friends as “Cabs” – was gregarious, optimistic and unpretentious. She enjoyed good food, life in London, walking her dog, adventurous holidays, the arts, the music of Bob Dylan and performing karaoke.

She is survived by her partner of 25 years, Anne Kane, her sister, Mel, and two nephews, Sam and Louis.

Caroline Gillian Gooding, disability rights lawyer and campaigner, born 7 March 1959; died 19 July 2014

DWP Pays Aspergers Woman £70000

August 10, 2014

The Department for Work and Pensions (DWP) has been ordered to pay a woman with Asperger’s syndrome a total of £70,000 after an employment tribunal found the DWP to be guilty of disability discrimination.

The tribunal, which was held in Dundee, initially awarded damages to the claimant of £54,000 as ?compensation for constructive unfair ?dismissal and disability discrimination. But in a further hearing, another £17,500 was ordered to be paid by the DWP for not complying ?with a re-employment ruling, the Courier reports.

At a hearing in February of this year, the tribunal heard how the woman was asked to return to work but felt that a breakdown in trust and confidence led to high levels of anxiety which she was unable to overcome.

The DWP was found by the tribunal to have subjected the claimant to harassment due to her Asperger’s. The syndrome, which is a form of autism, shows no outward signs but can cause difficulties in social communication and interaction.

Judge Ian McFatridge said that the DWP “had treated the claimant extremely badly”.

“We required to take into account the fact that the claimant ?is psychologically unable to return to work with the respondents and that this is something which has been brought on by the respondents’ treatment of her,” he said.

A DWP spokesperson said that it acknowledged the tribunal’s findings and it works hard to ensure the department achieves its commitments to good practice in employing and working with disabled people.

Many people with Asperger’s syndrome have a variety of skills that enable them to thrive in a variety of roles. However, they are often disadvantaged when it comes to securing employment because of their difficulties with social skills.

The National Autistic Society says that many employers do not realise that people with some autism spectrum disorders, such as Asperger syndrome, can be highly skilled and qualified as well as being extremely employable.

The charity also believes that employing someone with an autism spectrum disorder demonstrates commitment to equality and diversity, and a positive attitude to disabled people.

Having a diverse workforce brings benefits to staff and business alike, and managers and colleagues often describe working with someone with an autism spectrum disorder as an enriching experience, it says.ADNFCR-1716-ID-801547967-ADNFCR

Biological Parents ‘Wanted’ Baby Gammy

August 10, 2014

The Australian couple accused of abandoning a baby born with Down’s syndrome to a Thai surrogate mother say they wanted to take him home.

David and Wendy Farnell, speaking publicly for the first time, insisted the Thai mother would not hand over Gammy, the seven-month-old baby boy.

They did take his twin sister. They say they will fight to get Gammy back.

The surrogate mother says the couple deliberately left Gammy behind because of his disabilities.

The couple, which denies this, had earlier told Australian media they did not know of his existence, and that Pattharamon Chanbua, 21, was lying.

In an exclusive interview on Australia’s Channel Nine on Sunday, David Farnell said: “We did not abandon our son.

“The surrogate mother – it is her choice if she wants to give you the baby or not give you the baby. Although you have a surrogacy agreement, it really doesn’t mean anything. It is her decision, and our surrogate mother said that she wanted to keep the baby boy.”

David Farnell was also rigorously questioned during the TV interview about his criminal past, and he insisted he was no longer a danger to young girls, says the BBC’s Phil Mercer in Sydney.

Farnell was jailed in the 1990s for a series of offences against children.

Officials say they have now managed to reach the couple, but have no major concerns at present.

Ms Chanbua said the couple had asked her to have an abortion when she was told of the child’s condition four months after becoming pregnant.

She said she refused, as it was against her Buddhist beliefs. Abortion on the grounds of foetal impairment is illegal in Thailand.

Besides Down’s syndrome, Gammy has a congenital heart condition and a lung infection.

Ganesh Vs The Third Reich: A Review

August 10, 2014

At the end of this remarkable meta-theatrical spectacle created by Australia’s Back to Back Theatre, an ensemble of learning-disabled actors, one of the performers, Mark Deans, is encouraged by the director to play a game of hide and seek. Mark joyfully hides under a table. We hear him giggling long after the director has abandoned him in an empty theatre, leaving him quite, quite alone as the lights fade to black.

It’s but one of many startling images and devastating moments in this multi-layered, often funny and confrontational piece exploring disability, representation and authenticity. In the process, the cast questions who has the right to tell a story and who has the right to be heard: on stage and in every day life.

It would be interesting to see this in tandem with Dead Centre’s Lippy, which is playing around the corner at the Traverse and employs similar layered meta-theatrical techniques. Or with Exhibit B at the Playfair Library, which confronts how we look and what we are prepared to really see. There’s a moment here echoing that searing installation, when the director – played by Ridiculusmus’s David Woods, the only non-disabled member of the cast – points to the audience and suggests that we are only here for the “freak porn”, as day trippers to see the animals in the theatrical zoo.

The debate is charged here too, touching as it does on the sensitive subjects of disability and the Holocaust. There are many undercurrents and stories being waved in front of us, but at its heart this is the tale of the elephant-headed deity, Ganesh, who in order to stop his father destroying the universe travels to Hitler’s Germany in order to reclaim the ancient Sanskrit symbol of wellbeing that has been appropriated as the Nazi swastika. Here, he is befriended by a young disabled Jewish boy, who has been singled out by Josef Mengele for his experiments. Ironically, it may be his disability that saves the boy’s life.

Entwined with this story is another about a theatre company making a show in which relationships between the cast and the director become increasingly fraught. Questions around the creative process are raised, and tensions rise around just who has the right to say what about whom – including whether or not Mark has the mind of a goldfish. Fascinating, often oddly beautiful, and in one sequence where the director – wearing a Nazi uniform – turns violently upon one of his actors, seriously alarming too.

• Until 12 August. Box office: 0131-473 2000. Venue: Royal Lyceum.

 

Barry Roux: Pistorius Had A ‘Slow Burn’ Reaction To Living His Life With A Disability

August 9, 2014

Readers, I have said from very early on that I would not cover the Oscar Pistorius trial until the verdict is revealed. However, today, this has really upset me. Today, in court, during the closing arguments of Oscar Pistorius’ trial, Barry Roux:

 said the athlete’s disability meant he could not be expected to respond like an able-bodied person to the fear associated with an intrusion.

He said Pistorius had developed an “exaggerated fight response” over time, because fleeing was not an option.

Pistorius, a double-amputee, spent his whole life “knowing he couldn’t run away,” Mr Roux said.

He referenced a number of experts who testified that Pistorius had what he called a “slow burn reaction” to having lived his life with the disability, which had left him vulnerable and anxious.

He said that culminated in the moment he was startled by a noise and reacted, using the analogy of an abused woman who shoots her husband after years of violence.

 

I am very upset at the comparison to an abused woman. An abused woman has experienced torture, at the hands of another human being. The pain of that can build up and result in violence. Disability is never, ever easy- but it seems more than a little strange to suggest that after over 20 years, a person who has found fame and fortune because he is disabled could have ‘reacted’ to his lifelong disability by committing such awful actions because he is disabled.

That argument might have made some sense had he become disabled later in life. However, having always lived with his disability, and having been encouraged, by all reports, to accept it and get on with things, the argument just doesn’t make sense. Pistorius hasn’t had an easy life, but his disability has directly brought him so many positives- surely the very opposite of torture?

The defense of ‘slow burn’ reaction upsets me deeply for another reason. In that defense there is a suggestion, however subtle, that his disability can be used as an excuse for his terrible, terrible action.

Readers, disability is never an excuse to commit any crime. But to suggest that Pistorius carried out actions which led to the death of another human being because he is disabled?

As a disabled person, readers, I find that suggestion deeply offensive to the most important part of my identity. I wouldn’t be at all surprised, readers, if other disabled people shared my view.

 

 

 

Woman Wakes From Severe Seizure To Find Two Men Laughing And Filming Her

August 8, 2014

A young woman woke from a severe epileptic fit to find two laughing men filming her ordeal on their mobile phones.

Maggie O’Connor, 26, was walking her dog Dillion in the grounds of a priory when she felt a seizure coming on.

As she came round from the fit she realised two strangers were standing over her. Instead of offering her help the men were laughing because Maggie had bitten her tongue and was bleeding.

One of the pair took a close-up shot – coming within inches of her face – before running away shouting “she fking p**d herself, ha.”

Maggie said: “With a seizure, you can wet yourself and bite your tongue and these were the two facts that they seemed to find most hilarious as I had wet myself and I had blood down my front.

“They continued filming whilst I was awake and conscious but because of the seizure I was in a really vulnerable position.

“There was nothing I could do – my legs were too jelly to move and I could not string a proper sentence together. So I just had to sit there whilst they tried to humiliate me by videoing me.

“I could hear them saying “look at her face. I can’t believe she’s p**d herself – she’s all wet.

“Looking back I feel really cross but at the time I was too confused to feel anything. It scares me to think what they would have done if my dog wasn’t there.”

Maggie, who has had epilepsy since she was 16, suffered the fit while walking in the grounds of St Botolph’s Priory in Colchester, Essex.

She says several passers-by failed to come to her aid and the men only left when Staffordshire Bull Terrier Dillion started growling.

Maggie has seizures approximately every two weeks and is left almost completely incapacitated for around four to five minutes.

She had to wait 15 minutes before her memory returned fully and she could contact her family for help. The hairdresser, of Colchester, bravely wrote about her experience on Facebook in a bid to name and shame the two men.

She says the pair were both white, aged in their early 20s and wore skinny jeans and T-shirts. Maggie says one of the pair was tanned and had his hair in a bun or topknot, with the sides shaved.

The appeal has been shared more than 3,000 times but Essex Police say they won’t be investigating the unsavoury incident on Saturday morning. A spokeswoman said: “No criminal offence has been committed.”

Maggie added: “Although it’s a disgusting thing they have done I understand why it’s not illegal. I originally wanted to find their names so they could be publicly shamed.

“But now I’m not really that fussed because I think they will definitely have seen the story on the news. They will feel ashamed and probably regret what they have done. That’s punishment enough for me.”

Maggie, who lives with partner Nathan Skipper, 24, is hoping to use her ordeal to raise awareness about epilepsy.

Stacey Rennard, spokeswoman for charity Epilepsy Action, said about 600,000 people in the UK gave the .

There are about 40 different kinds of seizures and ‘some are easier to recognise than others’.

Ms Rennard added: “In Maggie’s case, it was very upsetting to hear she was in a vulnerable position and sustained an injury and still people didn’t stop and help her.”

She said the charity hears about a wide variety of experiences.

“Some good, and some bad, like in this horrible case. But we do hear from people who’ve come across the good Samaritans who’ve sat and waited with them while they recover.”

Maggie added: “I want to tell people with epilepsy, don’t be afraid to live your life.

“Just because you have seizures doesn’t mean you can’t be who you are. To people who don’t have epilepsy, if you see someone having a fit don’t be afraid to approach them.

“Just call an ambulance and put something underneath their head. They are not going to be aggressive and they are not going to hurt you.”

Sophie Woolley: I Can Hear After 20 Years- But My Heart Is Still Deaf

August 8, 2014

My teenage sister Hannah was opening her heart to me, and I was listening carefully and nervously. We barely knew each other. My husband cleared the plates from dinner and left us to it. Hannah said: “It’s so good to be able to talk to you about all this! We could never talk like this before, could we?”

I had had similar exchanges with relatives and friends over the past six months. “It’s like having a new daughter,” my dad laughed, after our first “normal” phone call in 10 years. I felt unsettled and weirdly guilty: I was finding this explosion of human intimacy rather disturbing.

I lost my hearing the whole time my sister was growing up. As I went progressively deaf from my teens onwards, I spent more time with the deaf side of my family: on my mum’s side, progressive hearing loss is hereditary and we communicate with speech and British Sign Language. Not being able to understand or bond with my youngest, hearing sister was just one of many isolating facets that I simply accepted. By the time I became deaf, I had cut right down on sharing personal intimacy with almost everyone.

My boyfriend Tom learned to sign early on, around the same time I started wearing hearing aids consistently, 10 years ago. By the time we got married five years later, I was profoundly deaf and his voice was unrecognisable. He communicated so well, intimacy was not a problem. When it came to friends, he helped a bit but there was only so much he could do without me becoming overly dependent.

Then suddenly, after 20 years of going deaf, my situation was reversed. At 39, I “went hearing”: I had cochlear implant surgery. Once my Advanced Bionics implant was switched on, my hearing rehabilitation was astonishingly speedy. It was incredibly moving to be able to hear Tom’s voice sound the way I remembered it.

Such a successful outcome was by no means guaranteed. Some types of deafness cannot be helped by an implant. This is how it works. An electronic device bypasses the damaged part of the inner ear; I wear an external processor behind my ear and a little magnetised headpiece. The implant delivers sound to my hearing nerve via an array of electrodes. The world sounds how I remember it, but when I take the headpiece off at night, I remain almost totally deaf.

So the world is suddenly a warmer, friendlier place. All my paranoid feelings of social exclusion were, I now feel, completely true. I was missing so much information, all the time. Strangers spontaneously chat to each other, even in big cities – mainly they gripe about the weather, or the queue, but it’s a start. When I was deaf, a man came up to me on a tube station platform and asked something I didn’t understand. I said, “I’m deaf, I have to lip-read you” and he turned away abruptly and spoke to someone else.

In my social life, when I was going deaf, I initially liked to butterfly and bluff. I became more extrovert as a performer, yet more avoidant of social intimacy. Through most of my 20s, I pretended my hearing wasn’t getting worse, and eventually the years of denial plunged me into a depressed, doomy fug. I told one friend I couldn’t remember how to “do” my personality any more.

I finally gave up going to dinner parties with hearing friends after one get-together where I couldn’t understand a thing. I got a lump in my throat, and lip-reading when upset is nigh on impossible. You need calm focus. Being deaf in a crowd of hearing people is not like being abroad and not understanding the language; I could never truly learn this distorted babble language, and I could never come home.

I didn’t get organised about my hearing loss or wear hearing aids until I was 31. I improved my sign language and employed interpreters at work. My career would have hit a wall without Access to Work. Following recent changes to this scheme, which helps deaf and disabled people in work, a parliamentary select committee is conducting an inquiry.

Using an interpreter is an oddly intimate relationship, looking at one face all day, often a stranger’s. It sometimes unnerved colleagues. I can see how my looking away from a speaker at my interpreter might seem a bit passive-aggressive or rude, but these professionals allowed me to be more a part of the world. In a way, I trusted interpreters more than other hearing people. Trusting others involves more risk of being hurt by communication failures.

As a deaf person, I became cautious, less spontaneous, and learned how to enjoy my own company more. I also acquired deaf friends. At first I was nervous about telling some of them about my implant. I needn’t have worried; so many of us now have implants that it’s become less divisive.

My in-laws were always lovely, but on the way to family gatherings I had often asked Tom: “How long will we have to stay?” I felt guilty for my lack of enthusiasm because they were all so nice. My brother-in-law and his fiancee had even done a basic sign language course. And yet in the chaotic crossfire conversation, I’d have to zone out to avoid becoming exhausted from lip-reading.

After my implant switch-on, I was able to bond properly with my hearing in-laws. And yet rehabilitation is also bittersweet. Everyone could bring me up to speed with what had been happening in their lives for – well, their entire lives.

After a dinner party I was clearing up in the kitchen and another guest came in and said: “It is a miracle that you can join in the conversation now. I knew you could never follow us all before and I would have felt bad saying it then. But I can tell you now – it was very sad.”

That night was the first time we’d got beyond the small talk. I suddenly knew so much more about her. The unspoken knowledge that I was once a bored-looking lump of sad vibe at the table could now be said out loud with no offence, and none taken. I was back in the hearing gang.

But I’m still not one of them. I’m only just back from the deaf wars. I haven’t decommissioned my defensive weapons. If someone says: “It’s so good to be able to finally speak,” I agree, and in that same moment, the hurt of everything I missed knocks me sideways. I liken it to coming out of prison after a long stretch and finding everyone has moved on. I’m still angry. They couldn’t be bothered to include you before, so why should you bother listening now? What gives them the right to enjoy the benefits of your new hearing?

If I am resentful about my treatment in the past, I have to remind myself I also played a big part in being a stranger to people. For example, in my deaf days, people would ask me: “How are you?” and I’d reply at length, they’d listen politely and then I wouldn’t return the favour, or else not be able to hear a reply. And now, I am not sure how much I’m allowed to talk. I’m not sure how much other people are allowed to talk. They talk a lot. Are you allowed to stop them? Sometimes I listen so much that I don’t talk at all and I can feel myself disappearing.

When it gets a bit too much, I can zone out by using a device that transmits audio from my iPod to my implant without headphones. I’m like my own wireless hi-fi. Tom spotted me doing this. He used to do things we could enjoy together, so he didn’t live a life that excluded me. Now I was shutting myself off again. I promised not to do it any more.

My equipment allows me to zoom in on speech in certain noisy environments – but what use is this if I don’t know how to respond to the new intimates in my life? It is well known that hearing loss causes people to become withdrawn. I did suspect over the years that people seemed to confuse my self-protectiveness for what they call “cool”. But of course most people who get called cool are just afraid to show their feelings.

Writing this reminds me of a conversation relayed to me (after the fact) by a friend, about 18 years ago.

Friend A: Why do you like Sophie?

Friend B: Because, well, she’s an enigma.

Friend A: She’s not an enigma! She’s deaf!

I was still hard of hearing then. But on reflection, maybe there was a grain of truth in those remarks.

My heart is still deaf, and my allegiance is with the deaf community. After years of guardedness, my access to others and their easy intimacy unmasks me, and I don’t always like it. Leaving my private world behind gives me what I call identity vertigo. I have to engage more, take more responsibility, and I’m out of practice. But now I’ve regained spontaneity in my life, I’ll do as the hearing do and make it up as I go along.

Will Ian Birrell’s Disabled Daughter Have A Place In Our Genetic Wonderland?

August 8, 2014

That is the question asked in this brilliant CIF article.

BBC News Yesterday Covered ILF Closure

August 8, 2014

Annette Francis Overdosed In ‘Cry For Help’ Because Of PIP Backlog

August 8, 2014

Is Annette Francis the first known person to die as a result of the PIP backlog?

Readers, we must share her story as widely as we can. No one else can die for this reason.

A woman overdosed in a ‘cry for help’ after a Government backlog saw her deprived of benefits for six months, an inquest heard.

Annette Francis, 30, struggled to survive on the bread line and was potentially owed hundreds of pounds in welfare payments when she died.

She filed for disability living allowance (DLA) last September only to be told by the Department for Work and Pensions that benefit had been overhauled and was now called PIP – Personal Independence Payment.

Promises were made to pay Annette, but the money never arrived.

Eleanor, who suffered from depression and had a personality disorder, took the overdose while publishing on Facebook about how miserable she was, in a ‘cry for help’, a coroner ruled.

Her aunt, Ann Sorotos, 61, said: “Annette was really struggling. She was asking the job centre what the hold up was, but they kept talking of a backlog.

“I hate this Government and what they are doing to this country. I hate they’ve done to my niece. They are partly to blame.

“We don’t want this to happen to other people. Let’s hope Annette is the last person to die in this situation.

“People with mental health issues should be made a priority by the Department for Work and Pensions. They can’t cope with daily life let alone pages after page of forms.

“Annette was begging for help. There needs to be better communication from this Government to help people in need. Not just one letter and then telling us there’s a backlog.

“That’s not good enough.”

The inquest heard police were contacted by a friend of Annette’s on May 22 after she sent him text messages which caused him concern.

Coroner Andre Rebello said: “Clearly Annette was making no secret as to what she was doing.

“I think it is more likely than not that she has taken this medication because of problems she lived with and her taking the medication was some way of perhaps exaggerating her pain and internal suffering to try and communicate that to others with regard to being some, clearly inappropriate, but some cry for help.”

But the DWP said it was the applicant’s responsibility to make a claim and money could not be backdated.

Annette, who was receiving Employment Support Allowance payments, was found in her bedsit in Garston, Liverpool, in May.

Her MP, Maria Eagle said: “The DWP should get their act together on PIP as soon as possible because frequently people like Annette are in no position to look after their own interests as well as those in good health may be able to.”

A DWP spokesman said: “We are committed to getting PIP claims processed as quickly as possible.”

Trailer- Stephen Hawking, The Theory Of Everything

August 7, 2014

Justice For Harry Procko- The E-petition

August 7, 2014

Improvement of medical care towards children with autism and other disabilities within the hospital system – Justice for Harry Procko

Responsible department: Department of Health

Improvement in care towards disabled children within the hospital system.

Harry Procko was severely let down after being kept waiting for 9 hours at Nottingham QMC for blood tests and an ECG test. His parents made the difficult decision to return home with him for the evening due to his distress at being kept waiting in unfamiliar surroundings for 9 hours. On returning the next day these tests which may have saved a 4 year olds life were again not carried out. Harry died within 48 hours of being discharged from Nottingham QMC without medical aid.

The anguish these parents have been through should never be repeated.

Mistakes may be made in the system, but to fail not once but twice to carry out basic tests and levels of care is deplorable. Safeguards for these vunerable children should be put in place.

Parkinsons Drug Gave Woman, 42, Spontaneous Orgasms

August 7, 2014

Erm… yes readers, so it’s a slow news day… and the week is ending… and…

In all seriousness, this is the most original and interesting side effect to disability medication I’ve ever heard of!

A drug prescribed to treat the symptoms of Parkinson’s disease caused one woman to experience unwanted, spontaneous orgasms, scientists have reported.

The 42-year-old woman took Rasagiline, a drug commonly used by people with Parkinson’s, for seven days when she began experiencing hyperarousal and an increased libido.

She was then admitted to hospital after she began experiencing between three and five orgasms daily, each of which would last up to 20 seconds, according to Live Science.

Her case was presented by a team who treated her from the department of neurology at Necmettin Erbakan University in Konya, Turkey.

In their report, they said it is the first time such an adverse effect of the drug has been reported, with more typical reactions usually ranging from flu-like symptoms to gastric problems.

“Here we report a patient with early-onset PD [Parkinson’s disease] who experienced spontaneous orgasms when taking Rasagiline; these were unwelcome and occurred in the absence of hypersexual behaviour,” the report said.

The woman took a two-week break from taking Rasagiline but the spontaneous orgasms reappeared as soon as she resumed treatment.

She was not taking any other medication at the time.

Researchers are not sure what caused the response but say her unusual reaction may have been triggered by an increase in dopamine caused by taking rasagline.

Dopamine can help regulate feelings of pleasure, and Parkinson’s has been related to the loss of neurons that secrete dopamine.

Barry Komisaruk, a distinguished professor at Rutgers University in New Jersey said other drugs, such as some anti-depressants, that activate dopamine can induce a sexual response. He said dopamine is also released during orgasm.

The case is due to be published the journal Parkinsonism and Related Disorders.

Fourteen Things Not to Say to an Autistic Adult

August 7, 2014

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Last night somebody shared an article on Facebook. The article was called “Things never to say to parents of a child with autism.” A comment on the article asked why there wasn’t one about things not to say to an autistic adult. I decided to write that article. It’s based on not only my experience, but also the experiences of my autistic friends.

1) “You don’t look autistic.”

My response to this would be something along the lines of what Gloria Steinem said when people told her she “looked good for 50.” She said, “This is what 50 looks like.” I say, “This is what autism looks like.” However, what I’d like to say is: “I don’t look autistic, and you don’t look ignorant. I guess we’re both wrong.”

I don’t know what people who say this mean when they say I don’t look autistic. What does autism look like?…

View original post 1,459 more words

MPs Lying About Lack Of Sanction Targets, Whistleblower Confirms

August 6, 2014

With many thanks to the Welfare News Service.

Dear Sir/Madam,

Following the recent/continuous denials from Central Government about there never having been targets imposed in Jobcentre Plus offices for Advisers and sanctions, I wish to strongly disagree with the official line.

I have spent over twenty years working in the Civil Service and for the last two years (contracted staff), I was working as an Adviser based in North Shields office. I worked for eighteen months as a New Deal Adviser and for the remaining six months I was (for the vast majority of the time) carrying out interviews for (again mostly) where there was a doubt on a customer’s job seeking records. This is classed as ASE or Actively Seeking Employment and could lead to an initial loss of benefit of two weeks (JSA is paid two weeks in arrears).

What I can confirm is that every Wednesday morning, the office would not open until 10am as we would have an open office meeting and during this various topics were covered: changes to policy/procedures etc, and also raised was the District League Table.

This was a table that listed all of the offices in the District (Wallsend/Blyth/Whitley Bay/North Shields amongst others) and has usually headed up by S Smith the most senior manager in the office.

We were originally informed that we had to reach a target of 1 sanction a week and once it was realised that this could be reached by lunchtime on the Monday, this was increased to four a week.

This was submitted sanctions – not those sanctions that actually took effect after a decision maker had made their judgement. So the stupidity was that you could suspend a customers benefit at your desk (with them in front of you), submit the paperwork to the Decision Maker, who could then either decide to implement the sanction to decide that there was no case to answer.

The end result was that Advisers were suspending benefit on the flimsiest of reasons – simply to hit targets. Never mind the fact that this annoyed the customer – thus raising the risk level to staff and security staff and also wasting the advisers time, the decision makers time, the customers time.

So to summarise – whichever MP is stating that targets were never implemented, is either:

A) Lying – to keep on message and protect their career.
B) Has been misled by those who are there to support him/her – to protect their careers they say whatever the MP wants to hear.

Regards,

Mr P Black

Former Capita Worker Describes Their Training Practises

August 6, 2014

Readers, this is from an email I received today.

I’m afraid this must be anonymous as I signed a declaration not to discuss specifics at Capita, yet I’m happy to share generalist as long as I am not named.

The main issue with Capita was the job itself, many of us were confused as to the nature of the job “Opportunities and Development” many are still none the wiser, the training for the role was 13 weeks full time, 13 of us were initially recruited (I was the 1st to leave) we were from all walks of life, it turns out the role was an experimental one, the idea was to have generic decision makers for all issues regarding Housing benefit from A-Z.

My background caused issues from the off (ex CAB) on one occasion I was called a c**t by one of the trainers during a 1-1 appraisal.

The training was intense-although later it was found to be lacking in many areas, we were trained “by the book” when it comes to Housing and Council tax, unfortunately many councils have their own little rules that can differ vastly, e.g. one council does not invite benefit applications, by that I mean, if you have hours reduced or lose your job, they will not tell you to apply for HB the onus is on you to request. The saying “not knowing is not an excuse” is frequently quoted.

Now as I said this was a generic role yet covered numerous local authorities over the country, hence the issues with training, we were in the classroom for the 1st 10 weeks (after 8 we were told we had to sign an agreement whereby if we left then we would have to reimburse the training up to £2500) and if we didn’t sign we would be fired.

Well we were let loose in the office(now this office was huge, as I said they cover most of the countries LA’s) so the problems start, one day you could be on Westminster the next London, yet each have their own rules and ways of working, the LA I worked on had a policy of “If in doubt suspend” something I found difficult. I have no problem using this as a last resort but not as the main option. As I understood it, this was the instructions from the LA as they are the client, this is where my morality kicked in, when suspending a generic letter is sent, I used to add more to mine explaining why this was happening and what the claimant could do, many ex colleagues I meet have told me they have seen my letters and now understood my conflict, we found the training had let us down badly, so we all needed help from experienced workers who admitted we had been given a vast project (they admitted it took them years to reach their level we had 6 months with a possible extension if needed, and the most frightening bit was often the ones training us had to ask the ones supporting us what to do, so who was training? Often very heated discussions were heard).

During this we were introduced to the dreaded Spare Room subsidy “Bedroom Tax” and it’s so vague it’s ridiculous “a room is a room” that’s it, when I raised issues during training, I was told basically to shut up because the client wanted this, there is little in HB regulations that actually defines a “bedroom” I have seen box rooms defined as a bedroom and because of this appeals have to be done on an individual basis, no precedent is really set, so it is all down to either your or the LA’s definition of a bedroom.

Back to suspending, one of my last cases was a recently widowed person over 70 her bank statements had been requested and it turned out that she was getting a small (and I mean small pension from her late husband) a person helping us came over and said that she knew how I felt about suspending, but I had to I just couldn’t especially as the pension was £7 a month.

Towards the end many of us didn’t know if we were coming or going, we were constantly being audited and let’s just say depending on who did the auditing errors were pointed out in a less than understanding way.
Add it all together and I just couldn’t do it, so I left immediately.

Since finding out Capita are doing the PIP assessments and fully expecting them to be offered the WCA, I have written offering to proof read assessments (I am a WCA expert over 100 appeals and yet to lose so I see where they go wrong) I am yet to receive an answer however I guess if you are paid per assessment and it is possibly quantity over quality I won’t get one.

‘Jobcentres Exist To Ration Access To Benefits’

August 6, 2014

The Guardian had such a large response to the case of David Clapson that they have today published a selection of readers’ comments as an article.

Readers, maybe, just maybe, the mainstream press are starting to listen.

“Staff make you run around in circles”

With hardship payments, it isn’t just that people don’t know, but even when you do know they exist, staff make you run around in circles to get them.

I was sanctioned over Christmas 2013 for 4 weeks. The way DWP did it in my case was my claim was suspended for two weeks (the time they said it took to come to a decision on the sanction) and sanctioned for a further two weeks. During the suspension Jobcentre staff told me I could not apply for hardship, although after a quite tense conversation a staff member gave me the forms. I was told I could not apply until I was actually sanctioned. However, nobody would tell me when that happened despite phoning them every day.

It took me so long to find out if I had been sanctioned that when I eventually was told I could claim, I was turned down because DWP said I was not now in hardship because my JSA had been reinstated.

It’s also worth mentioning letters.

The letters from DWP are sent second class and in my case, take 6-10 working days to arrive. In one example Jobcentre advisers sent me on a one-day course that started on the same day as the letter arrived. It was only by sheer luck that I caught the postman early and was able to attend. The letter was dated eight days before I received it, so as far as my adviser was concerned if I hadn’t turned up it would have been my fault.

From what I am told from other claimants the exact same thing happens to them with some saying they have missed appointments because letters arrive so late. I have heard that too many times for it to be an excuse. Andy Mitchell

“It is very counterproductive with regards to actually finding work”

I have just been sanctioned for 3 weeks for missing an appointment. Although they say missing, I was actually there, but five minutes late. You get a letter asking you to explain your reasons: obviously mine wasn’t a good enough one so I got sanctioned.

Ironically the past few days I have spent far less time actually looking for work, as I am frantically calling up energy suppliers and those I have payment plans with , asking if I can delay payment for a month. As my housing benefit only covers 60% of my rent (no property in the area can be paid in full with housing benefit alone, or even up to 70%), much of my jobseekers’ allowance is used to pay that off.

It is very counterproductive with regards to actually finding work, and just places those living on their own in further debt. Icarusty

“For the crime of being unemployed, you can be sentenced to 780hrs of work punishment”

Around two years ago, when the new harsher sanctions were announced, I read in a local paper of a court case involving grievous bodily harm. For repeatedly sticking a glass in someone’s face, a man was fined £200 and given a community service order of 100 hours. For the crime of being 10 minutes late for an appointment, you can be fined £1,000+. For the crime of being unemployed, you can be sentenced to 780hrs of work punishment. Welcome to ToryWorld. alternative3

“When I saw what was happening, I was horrified”

I worked in advice for five years on the frontline, dealing with people who were claiming benefits and helping people to move forwards. In all that time I never had a single person come to me about sanctioning until after this government was elected. When I saw what was happening, I was horrified because the Tories also removed a lot of the free schemes to help people, while sanctioning them. The Conservatives also prioritised giving advice contracts to private companies, over FE, community and charity organisations, and the system became fake target- and profit-driven over actual results.

Labour were tough too, but they put in place a lot of support and free training and access to education. changetherecord

“My nephew was initially too proud to tell anyone what had happened”

My nephew got sanctioned for turning up seven minutes early for his appointment. He was, apparently, supposed to turn up 15 minutes early, but he hadn’t understood that. He tried arguing with them, pointing out that he was still easily in time for his appointment, but they called the heavies over and made him leave. He’s got a wife and child, and none of us knew a hardship payment even existed, so the rest of the family just had to stump up cash for the next month to make sure they were OK. My nephew was initially too proud to tell anyone what had happened, we only found out when my mum found his wife crying. They had been trying to live without food, in order to feed their child with what little was left in the house. Arumme

“People with more money than most people can dream of, making up rules to take those with nothing into minus nothing”

A friend of mine was sanctioned last year. She had applied for everything she could and was one job short of her weekly quota. Shamefully, if the government hadn’t moved the goalposts on retirement age she wouldn’t even have been searching for work.

Sanctioning never works – people with more money than most people can dream of, making up rules to take those with nothing into minus nothing. I don’t for one moment believe the DWP’s talking head that says people are informed that they are being sanctioned. Everything I have read points the other way.

Central government, with its city blinkers on, has no idea how expensive it is to get to one of the ever diminishing jobcentres. If you live in a rural location, the bus fares are exorbitant.

I also have never understood forcing people to apply for jobs they have no experience or hope of getting. It is demoralising for them and makes the search all the more difficult. DebsHeacham

“There’s some good people in the system”

[Having been threatened with sanctions twice] the only advice I can give is as soon as your adviser informs you that your claim will be looked at, ask what the process is, and before leaving the jobcentre, go to to the front desk and pick up a hardship payment form. Assume you’ll be sanctioned and ring up before the letter arrives to confirm it, ask for a mandatory reconsideration and explain why you think it’s unfair. Someone called me back the next day and overturned it. There’s some good people in the system. If the worst happens, make sure your hardship form is completed and filled in ASAP and hand it in to the jobcentre, so you get at least some money to live on. It’s a percentage of what you’d normally get and it may take two to three weeks, but at least you’ll have something at some point. Also ask about being referred to a foodbank in the meantime HeathCardwell

“We got him a lift to the hospital pronto and he came back voluntarily”

Last year, I taught a course where some learners were mandated to attend. One guy was clearly not happy with the ground rule of turning mobile phones off so I took him aside to talk to him. Turned out that his son was having surgery that day and the jobcentre had refused him permission to attend the course on a later date so that he could be with his son while he was put under and brought round. He wanted to keep his phone on in case there was news from the hospital. Needless to say, the official record shows that he attended the course, which he did because we got him a lift to the hospital pronto and he came back voluntarily to do the course the following week. DebW

“The thought of JSA sanctions makes my stress go through the roof”

I’m going on to jobseeker’s allowance soon and I’m very scared of sanctions. I’ve been on employment support allowance and my medical issues have been improving. I’m really happy about this, looking forward to being classified as “normal” again, looking forward to hopefully finding work.

Stress has been a problem for me, in addition to other physical medical issues and just the thought of JSA sanctions makes my stress go through the roof. I know how easily it can happen. I phoned up the jobcentre this year, wanting to know when my next ESA appointment was. I was told it had been that morning. But I’d never received the letter. The woman I spoke to was pleasant and believed me that I’d never got the letter but said that if I’d been on JSA instead of ESA, I would have been sanctioned. Lianna

“He’s applied for 500+ jobs and has had not a sniff”

In a day centre now. Fifteen people in now. At least half of them have been sanctioned in the past two years. It’s crazy. Guys come in for some grub who are on government-sponsored back-to-work schemes. Steve has been spending four hours a day, three days a week filling in application forms for jobs. For 18 months. He’s applied for 500+ and has had not a sniff. He’s been sanctioned. Lorna missed an appointment – removed from JSA, her benefits cancelled. She is 18 years old, both parents dead and a 16-year-old brother in tow. Mark: three heart attacks, a couple of strokes, a big drink problem, yet expected to be able to work, apply for work or face penury. Ststst

“Then started the Kafkaesque battle with the system”

The jobcentre has always been an incompetent joke. When I was unemployed they wanted to sanction me for missing an appointment. Fair enough, except the jobcentre had told me to stay at home while an investigator came to my house.

They thought I had some hidden bank account, this turned out to be complete rubbish, but they stopped my payments anyway for missing my signing on. Then started the Kafkaesque battle with the system. The department that told me stay at home – despite me telling them I was signing on at that time – refused to contact my jobcentre to explain the situation.

I tried ringing the jobcentre, but of course you can only contact the national call centre, who gave me the wrong number. I ended up talking to a rather confused shop assistant. Eventually got through, was told to come in that afternoon.

Eventually, they gave in after I argued with them face-to-face. Since I was polite, refused to shout, swear or get violent, just sat there in a kind of defiant middle-class way, the poor sod at the jobcentre couldn’t find an excuse to get rid of me and simply gave in. bartelbe

“Even the sight of a CV would give me an anxiety attack”

I was once sanctioned for attending a job interview and moving my signing to another day. I didn’t bother appealing because I got the job. Not long after, the job came to an end unexpectedly. A few months down the line, I was sanctioned for turning up on my signing day, rather than for an inexplicable appointment the day before, this time for much longer because of the previous sanction never having been appealed.

I fell into depression. I felt persecuted and unable to make sense of the world. My ability to job search suffered because even the sight of a CV would give me an anxiety attack. To try and appease the Jobcentre and to gain free bus travel out of my village, I asked them to put me on an unpaid work placement. Through people I met there, I managed to get a job (through my own initiative).

I have now been in that job one year next month, but some of the financial issues caused by my sanctions followed me for months and if it weren’t for my family and friends I’m not even sure I would be here today. Sofya Harrison

“To have the threat of sanctions hanging over you for so long is frightening”

Not entirely true that you aren’t told about sanctions, at least I was in my current situation. Four months ago due to a mix up I missed a Friday appointment. I managed to contact direct the Jobcentre on the Monday, saw my advisor an hour later and we sent a statement to DWP although he did say that I could be sanctioned for up to four weeks. What was worrying was that it took the DWP five weeks to write to me saying they accepted my explanation. To have the threat of sanctions hanging over you for so long is frightening.

These sanctions are designed to scare people and save the Government money and will get harsher as Universal Credit is introduced. I have been told by my advisor that the new rules are four weeks sanction for a first “offfence”, two months for a 2nd and six months for a 3rd with no right of appeal. Also under the new rules you will have to have internet access to even claim Universal Credit. flyingdagger

“Even getting a CV printed becomes a monumental task if you have absolutely no resources”

In 2011 I was starting my life over, again, with what little I could carry, again. Complicated by an intensified bout of depression, bereavement and other things. Having gone from the upper end of the games industry to washing cars was bracing, but I managed for a few months and even enjoyed it. But I felt the itch and left that job to try and pursue a few projects which had been forming in my mind during this time.

Unfortunately, they didn’t work out. As I lost steadily more ground I wound up entirely homeless, between periods of decorating guest houses in exchange for lodging.

When I came to sign on, I found it particularly difficult during 2012, as the rules were changing almost fortnightly.

As an example, job search criteria changed regularly, adding to the list of punishable offences. Keeping meeting appointments became difficult as their frequency proliferated, although these meetings served no purpose and the topics discussed seemed arbitrary from session to session. Living out of a borrowed rucksack was difficult, you have to carry it every where you go. Often, to find somewhere I could sleep without being punched or kicked awake, I’d walk miles outside the city and have miles to walk back in the morning in order to attend a purposeless meeting the next day. Being without food or sleep, often for several days at a time is disorienting. Some periods I had maybe a few hours sleep in the space of two weeks. Often the only food I could find was windfall, but I had already learned where the fruit trees were within a wide radius around the city. Which doesn’t help before season.

My first sanction came when I missed an appointment because I’d mistakenly tucked the notification letter in the bottom of my rucksack. Everything had to be meticulously packed, rolled up, jammed in precisely, in order to fit, and unpacking it is no small pain in the ass, especially if it’s cold, wet and raining. But generally I didn’t know date it was anyway. So I took to frequently asking people what day it was to be sure I wouldn’t miss a meeting.

But all of that was after I’d spent the best part of a year existing without signing on, because I felt like a scrounger, but also without work. I’ll be frank, eventually I was too despairing to give a shit. After constant petty fogging rule changes and pointless obligatory activities. Now I’d have to sign on until the last judgement, jumping through all the hoops, before I’d be be eligible for any kind of payment.

Atos recently disqualified me too, I’d been claiming Employment and Support Allowance (ESA) after my doctor diagnosed depression, so I am entirely out of the system, and ineligible for benefits.

There are no longer any phones in the job centre. If you don’t have phone credit, several services – which you have to be pushy to even discover – require non-free phone numbers. Even if the most vulnerable can find out what they need to know, and what is required of them, they can’t always make the call. Especially if too confused, weakened or despairing to make use of the Citizens Advice Bureau.

The increasing load of obligations actually gets in the way of finding work. The help aspects have been dramatically scaled back: clothing allowance for interviews, travel allowance etc. Even getting a CV printed becomes a monumental task if you have absolutely no resources, and the job centre doesn’t even provide for that.

If the government were serious about helping people back to work, there are dozens of small, relatively cost effective things they could do to help the most vulnerable. But that isn’t the purpose of job centres. The truth is, they exist to ration access to benefits, despite the best efforts of staff. JRRHartley

Something Terrible Happened In The UK On Thursday, July 31st

August 6, 2014

Readers, there is a very small disability link in this story, but the link exists. Mark Harper, Isabella Acevedo’s former employer, is now Minister For Disabled People.

Personally, I don’t only care about Disability Rights, even though Disability Rights are the area in which I live my professional life. In my peersonal life, I care about Human Rights.

No matter what your personal views on immigration, think for one minute about whether you would like to be treated in this way. Would you like your mother, daughter or close family member or friend to be treated in this way?

Readers, I am a disabled person. I’ve just found out that the Minister responsible for the issues affecting me, who is now on the Government’s front bench, stood by and did nothing, or at very least nothing that has been revealed, while his former employee was treated like this.

 

Readers, if that is how he allows his employees to be treated, with all his political powers- I have to wonder- what does he think about the people he is now responsible for?

I am one of those people. My closest friends, and, readers, most of you, are some of those people.

I care very, very much about the people Mark Harper is now responsible for, readers. I hope with all my heart that he will use wisely the power he now has to improve our lives.

Our lives, at the moment, are pretty terrible, readers. I hope with all my heart that Mark Harper will not stand by and watch our lives get worse, as he seems to have done with Isabella Acevedo.

Disability Benefit Adviser Using Facebook To Look For Work

August 5, 2014

Readers, I’ve just seen this on Facebook.

I think using Facebook to look for work is a great idea. I would like to see this go viral.

 

Landmark Bedroom Tax Ruling On Overnight Carers

August 5, 2014

Readers, do note this case and share it, please.

A tribunal has overturned a decision on the bedroom tax, setting a precedent that could force some councils to rethink how they decide who needs a room for an overnight carer.

Solicitor Giles Peaker said he would not be surprised if ‘a fair number of councils’ had calculated who needs a spare room for overnight care in the same way as Eastleigh Council did.

The ruling, the first by an upper tribunal setting a precedent, overturned a first-tier tribunal decision that had upheld a housing benefit cut by Eastleigh Borough Council.

The Hampshire local authority reduced the benefit of a woman who lives in a three-bedroom house with her daughter and was therefore deemed to have a spare room. The woman contended that she required a room for an overnight carer because she suffered from severe asthma and eczema.

The council said in a letter dated 18 October 2012 that because her disability living allowance was calculated on her day needs rather than night she did not have a regular need of carer. The housing benefit regulations allow a room for carers who ‘regularly’ stay overnight.

The unnamed claimant, however, contended that she does need a spare room, and produced a doctor’s letter saying the ‘unpredictability’ of her asthma means ‘she may well need and often does have someone staying over night to look after her’.

In the ruling dated 9 July, upper tribunal Judge Mark Rowland said: ‘A bedroom may be required even if the help is required only on a minority of nights.’

Giles Peaker, partner at Anthony Gold Solicitors, said he would not be surprised if ‘a fair number of councils’ had calculated who needs a spare room for overnight care in the same way as Eastleigh council.

He said: ‘Anybody who has been rejected on the basis of overnight care should have a look at this.’

Sam Lister, policy and practice officer at the Chartered Institute of Housing, said the numbers of people likely to benefit from the ruling are small.

Dawn Faizey Webster Completes Degree After Six Years- By Blinking

August 5, 2014

A Staffordshire mother with locked-in syndrome has passed her university degree – even though every exam took three weeks to finish.

Dawn Faizey Webster, 42, was left unable to move after a stroke in 2003 and can now only communicate by blinking.

With a top writing speed of 50 words an hour, it took her six years to pass her ancient history degree.

However, her dad, Alec Faizey, told BBC Radio 5 live’s Victoria Derbyshire that she was now eager to start a masters degree.

Andrex ‘Gold Pants’ Advert Stars Disabled Boy

August 5, 2014

Readers, I found out today that the boy who screams ‘as clean as gold pants!’ at the end of the latest Andrex advert has CP.

I’m writing this post to thank Andrex for including a disabled child in one of their adverts. Most of all, I thank them for not making his disability obvious, since he is sitting down when he says his line.

I thank them also for giving him what appears to be the most important line in the advert!

 

See for yourselves: