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Tim Renkow- Laughing At Life With Cerebral Palsy

September 5, 2016

As long as there’s still a taboo attached to talking about disability issues, laughing about them seems pretty unthinkable. But comedian Tim Renkow does just that.

His semi-autobiographical comedy ‘A Brief History of Tim’ pokes fun at what he describes as, ‘the darker side of life’ for someone with a disability.

Tim has cerebral palsy, a neurological condition that affects the part of the brain responsible for controlling muscles. Diagnosed with the condition when he was six months old, Tim grew up in America until 2011 when he moved to London to pursue comedy. “I did comedy because it’s the only thing physically I can do, all I can do is talk”, he explains.

He pushes the boundaries from the very opening scene of his film, when he plays a prank on an unsuspecting guy using the disabled toilet in a pub. Hands up… We’ve all done it!

And that’s just the beginning – Tim wickedly plays on these realities throughout. One scene, he told us, is an almost word-for-word replay of something that happened to him at a bus stop.

Tim confesses, “things like that happen all the time, people feel like they can tell you about their relatives, people are like ‘my son died from that’ and it’s like no he didn’t.”

The life expectancy of someone with cerebral palsy is unaffected, as the problem in the brain doesn’t get worse with age. But the physical and emotional strains of living with a long-term condition like this can put stress on the body and cause other problems later in life.

That’s just one of the common misconceptions about cerebral palsy. Tim says, “mainly people think that you’re about to die, or I get people who think I’m mentally retarded, yeah, people think I’m retarded a lot, I get treated like I’m very dumb a lot.”

But these misconceptions have provided a gateway for Renkow to find a plethora of jokes.

“I want people to know that I know what they are thinking and use that to my advantage. And because I’m a comic I want to show this in a funny way. The flip side is when someone gets me and calls me out on what I’m doing I respect that immensely. I like to be called out on it or I’ll keep doing it until I’m caught.”

In response to those who say his comedy, for that very reason, can be quite dark, Tim has a refreshing response, “I don’t think it’s dark at all, I feel like I need to laugh at the darker side of life, that’s why I go after that side, because it’s what makes life funny, life is just silly to me. I try to laugh at and work with that and make it ridiculous because it is ridiculous, I try not to think too seriously.”

But when he does stop and think Tim reveals that it’s not all fun and laughter. “Obviously things are harder, I have to think about where I live more carefully. I was homeless for about eight months because no one wanted to rent to a disabled guy. That’s been the biggest negative experience and now I say that out loud it’s kind of important. I had friends I could crash with, but it feels s**t when you know you’re not being rented to for any good reason except people just don’t want to live with you, you get sick of it after a while. There’s definitely a ‘Tiny Tim’ aspect, people expect you to be like that, and when you’re not it takes people by surprise. I have a very good relationship with a woman I’ve loved for three years now and if it makes people uncomfortable then I don’t want to be around them.”

The biggest piece of advice he’d give is something we perhaps can all learn from, he says; “you can’t take no for an answer, but people are going to be saying it all the time. Disability is the one thing where it’s acceptable to give up, people will let you give up if you want to, but you just can’t, you have to be extremely self-motivated, that’s the most important thing, just know you can do it. I mean, within reason – I’m never going to be Usain Bolt. And if you want to get into comedy just know that the first two years are going to be the most painful experience of your life, but you will get there, if you know you can do something, do it. Who gives a s**t, what have you got to lose?!”

Unpacking PIP

September 2, 2016

With many thanks to Bob Williams-Findlay.

PERSONAL INDEPENDENCE PAYMENT is a welfare benefit introduced by the Tory led Coalition government and designed to replace the DISABLED LIVING ALLOWANCE. Like DLA, it has been packaged to help with the extra costs of living with a long-term health condition or a disability. I want to offer a quotation to hang my post on. The PIP Assessment Guide (Updated on 1 May 2016) states:

‘It would not be practical for the assessment to take account of the impact of a health condition or impairment on all everyday activities, nor to seek to include all possible areas where extra costs may be generated.’

This, in my opinion, confirms my view that Lord David Freud is a complete and utter liar! He claimed PIP would have a social approach, then swiftly altered that to saying ‘a bio-psycho-social’ one however this quotation shows neither approach is used. PIP uses a ‘functional loss’ reductionist approach which the UK developed from the Woods’ World Health Organisation ICIDH – long since replaced by the ICF (THE bio-psycho-social approach). PIP’s assessment methodology has been flawed from the start and sticks two fingers up to the approach found with the UN Convention on the Rights of Disabled People. It therefore means, like DLA, PIP has a focus on the impact of a health condition or impairment on ‘daily living’ and ‘mobility’ – In other words, individuals may be entitled to the daily living component if they need help with things like preparing or eating food, dressing and undressing, or making decisions about money. And individuals may be entitled to the mobility component if they need help going out or moving around.

To fully understand the full oppressive nature of PIP it is necessary to unpack its historical, social and political context; understanding why it was introduced and the consequences – at both macro and micro levels of society. One could simply focus upon thousands of individual stories or as I often do, talk about the supposed purpose and methodology of PIP, both things are important, but doing so wouldn’t adequately address the whole picture.

Historical

Alf Morris first Minister of Disabled People introduced the Mobility Allowance – the forerunner of DLA.

Despite overseeing the introduction of the Disability Living Allowance (DLA) in 1992, Nicolas Scott ultimately became the target for significant criticism from disability campaigners, including his own daughter.

When DLA was introduced in 1992, it covered 1.1 million people, at a cost of around £3 billion. That has since risen to more than £12 billion a year. LCD recently argued Disabled people face costs of an extra 24% on top of normal expenditure.

There were issues with DLA, but the Tories didn’t address these.
Methodology was inadequate with DLA, but PIP’s totally oppressive.
The system began for new claimants in April as Iain Duncan Smith, the work and pensions secretary, pledged to end a “ridiculous” system that gives people lifetime awards. My impairment is for life, so I’d assume the extra cost of living with it and the social consequences would be as well.

Esther McVey, the Conservative Minister for Disabled People, said: “Disability Living Allowance is an outdated benefit introduced over 20 years ago and was very much a product of its time.
“The Personal Independence Payment has been designed to better reflect today’s understanding of disability, particularly to update our thinking on mental health and fluctuating conditions.

“We are introducing a new face-to-face assessment and regular reviews – something missing in the current system. This will ensure the billions we spend on the benefit give more targeted support to those who need it most.”

Mark Lever, Chief Executive of The National Autistic Society, said: “Before anyone had even walked through the door to take the new test, the Department for Work and Pensions had already suggested that successful claimants would drop by 600,000 and spending would fall by a fifth. It smacks of a cost-saving exercise, when it should be a genuine drive to make the system fairer and deliver support to everyone who needs it.

DPAC based upon research argued this was a under-estimation.

Material reality

By October 25, 2013, 92,000 PIP claims outstanding with assessment providers – Atos Healthcare and Capita Health and Wellbeing – almost three times the number expected by the DWP at this stage. The National Audit Office blamed the backlog on the assessment process taking longer than expected.

Frances Ryan said: “Without PIP a disabled person can’t access anything from carer’s allowance to severe disability premium. If that isn’t enough, anyone who is rejected – or bumped down to the standard rate – is also barred from the Motability scheme for an accessible car or powered wheelchair.

According to Motability, who lease cars and powered wheelchairs to the disabled, 3,000 out of 8,000 of their customers who have so far been reassessed have lost their eligibility for the scheme and have therefore had to give up their vehicles. And this could rise to more than 100,000. [March 2015]

Between 400 and 500 adapted cars, powered wheelchairs, and scooters are being taken away from disabled people every week. Independence gone – with a maximum of seven weeks to hand your lifeline back. As an insight into the logic, let alone empathy, in this system, that’s notably less time than it takes to go to appeal or even to get the results of mandatory reconsideration – meaning the DWP’s ruling can be overturned, but the disabled person’s car or wheelchair will already have been taken. (At the last count, 60% of appeals against PIP were successful).

Ideological

PIP is part of the neoliberal agenda – it’s ideological, not about cost-saving in the first instance – redefinition of ‘in need’, new contours around who is ‘deserving’ and forced labour. UNUM, James Parnell, ATOS CAPITA and Maximus are as guilty as Duncan Smith, Freud and Miller et al.

March 2016 there was overwhelming public opposition to the disability benefit cuts put forward by George Osborne in the Budget, a series of polls has revealed.

Cuts to the Personal Independence Payment (PIP) confirmed by the Chancellor would have raised £4.4 billion by 2020, by stripping people who use specially adapted appliances of payments. Justin Tomlinson said at the announcement of the cuts that they would make PIP work better – the bog standard ‘double-speak’. It was a small victory when overturned, but the continuation of PIP means Disabled people are being shafted on a massive scale.

New PIP Assessors Guide From Sept 1st

September 2, 2016

With many thank to Gail Ward for sharing this on Facebook:

New PIP Assessors Guide From Sept 1st

Only major changes are Activities 4 and 5.

Activity 4 – need to consider both a bath and a shower and more people will score as you need to be able to access a bath even if you don’t have one.

Activity 5 – back to previous guidance – stomas, catheters and pads are aids and will attract 5B even if the claimant can use them independently.

People In ESA WRAG Being Told To Register For Universal Jobsmatch

September 1, 2016

Disabled Emmerdale Character Nicola King Makes Joke About Her Own Disability- And Fans Are Outraged

August 31, 2016

When our editor, who has Cerebral Palsy, saw an article at Digital Spy with the headline: “Emmerdale responds to fan outrage over Nicola King’s cerebral palsy joke, she got ready to share the outrage of these fans, and write about it!

However, after she read the piece at Digital Spy, she changed her mind.

Why?

An Emmerdale character, Nicola King, recently told her friend Dan Spencer in a drunken conversation that he was so drunk, he looked like he had hemiplegia, a form of Cerebral Palsy.

Our editor knows better than most that people with any form of Cerebral Palsy are not drunk. She knows it so well, in fact, that she’s got the T-shirt. Unfortunately, she also knows that many non-disabled people often think that people with Cerebral Palsy who can walk are drunk.

The latter, sadly, is a well known fact in the CP community. Far too many people with CP, and other disabilities that cause similar irregular patterns of walking, have been mistakenly labelled drunk by non-disabled people walking down the street.

If a non-disabled character on any soap opera had made the comment that Nicola King made, our editor would have been furious. However, Nicola King has hemiplegia herself. So, the ‘joke’ she made was about her own condition.

Our editor strongly believes that it is perfectly acceptable for disabled people to make jokes about disability, especially their own condition. She believes that  when disabled people laugh at themselves and each other, they know how far to take their jokes. They have experienced the situations they are making jokes about, and so they know how to make the jokes funny, rather than offensive.

Many disabled comedians base very funny comedy shows on making jokes about their lives with their own conditions. It is a way of reclaiming the words and situations that non-disabled people use to insult or upset us. Just like black people call themselves and each other the ‘N-word.’ It happens all the time.

Far from being criticised, our editor believes that Emmerdale should be thanked for showing a disabled person making light of their own condition. Emmerdale should, however, keep in mind its own popularity, and its power to influence viewers. Our editor would particularly like to see it continuing to use its popularity and power to represent all minority groups positively.

Capita Sacks Nurse For Facebook Posts Against Claimants

August 31, 2016

A disability benefits assessor who was suspended after allegedly posting abusive comments about disabled claimants on Facebook has been sacked.

Capita – which assesses claimants for the government – confirmed the nurse was dismissed two weeks ago.

The Facebook posts were found by Sarah Goldstein, 24, who had been turned down for personal independence payments (PIPs) by the nurse.

Husband Jay Goldstein said he was glad “the right thing” had been done.

Mrs Goldstein, who has fibromyalgia, Raynaud’s phenomenon, and suffers with chronic anxiety, migraines and depression, claimed Employment and Support Allowance (ESA) and first applied for PIPs in October 2014.

Mr Goldstein said she had been assessed last year but turned down for PIPs because it was felt she was “making everything up”.

Mrs Goldstein reapplied for PIPs at the end of 2015 and was assessed at her home in Ilkeston, Derbyshire, in March by the nurse.

But the couple’s suspicions were aroused when they found they had been turned down by the nurse on the basis of a number of “falsehoods” in an accompanying report, which has been seen by the BBC.

These included claims that Mrs Goldstein had given birth to 13-month-old daughter AJ naturally. In fact, Mrs Goldstein had a Caesarean and said she was never asked about the birth.

Mrs Goldstein saw the nurse’s name on the report and looked her up on social media “to make sure everything was above board” and discovered the posts.

One, written in July 2014, appears to attack a claimant who had lost two legs as a child and had appeared on a programme about benefits.

The post said he should “get a job fitting carpets” and that she “would like to catapult the scrounger back to…[where] he came from”.

It is believed the nurse started working for Capita a few months before the July post.

In a statement, a spokeswoman for the outsourcing firm said: “We can confirm that the individual in question no longer works for Capita.”

Mr Goldstein, 25, said his wife has had a new assessment and is awaiting the result.

“We are glad that Capita has done the right thing and sacked the nurse,” he said.

“We feel a tiny bit of justice has been done.”

Recent ESA Case Finds Falling Asleep Is Not ‘Lost Or Altered Consciousness’

August 31, 2016

Short Film “Intimacy” Seeking Blind And Deaf Actors

August 30, 2016

How A Pig Changed An Autistic Boy’s Life

August 30, 2016

A mother has told BBC 5 live Daily’s Adrian Chiles how a pet pig transformed their autistic son’s life.

Jo Bailey-Merritt said her son Samuel’s autism was making him increasingly isolated and lonely, until one day the family visited a local farm.

“Working For Maximus, Our Targets Were Severe”

August 30, 2016

The DWP takes a rather sinister stance on disabled claimants. Provision of Research Lab Facilities for DWP.

August 26, 2016

Charlotte Hughes's avatarThe poor side of life

Being a disabled claimant is hard enough, the whole rigmarole of trying to ensure that you get money to live on, money that you deserve is unbelievably hard. Not happy with the methods that they already use to stigmatise ill and disabled claimants they have decided to go one step further.

At first I read this and couldn’t quite believe it. In essence they have recruited an agency to take part, alongside the DWP in what can only be seen as interrogation tactics, or methods used in police stations when interviewing possible criminals.

A claimant will be told to attend an office for an interview, as we know these interviews aren’t voluntary. If you don’t attend then it gives them the option of punishing you, usually by stopping your only source of income.

From what I have read a claimant will be asked to enter a room which consists of…

View original post 277 more words

BFI funds accessible workshops for deafblind filmmakers

August 26, 2016

A press release:

Sense, the national deafblind charity, has been awarded £31,000 by the BFI (British Film Institute), to enable deafblind people to take part in a series of accessible filmmaking workshops.

The Accessible Filmmaking Project, delivered in collaboration with Kate Dangerfield from the University of Roehampton, will see ten weekly workshops take place across the country, each focusing on exploration and experimentation of film as a form of communication and expression. The project will provide creative opportunities for people with sensory impairments to experiment with filmmaking techniques, test equipment for accessibility and improve access to low-budget film production and audio-visual media.

A reportage ‘documentary’ will explain the process involved and will follow the journey of workshop participants. Participants will use the new skills developed in the workshops to work alongside as part of the filmmaking crew and advise on media and digital accessibility throughout the process.

Kara Jarrold, Head of Arts & Wellbeing at Sense, said:

 

“Film is such a powerful medium for expression and is a new area of development for Sense participants with sensory impairments. This is an incredibly exciting opportunity for us to explore new ways of communicating using new technologies and creative skills. We are really excited to experience the end result – a series of short films which will provide new first-hand insights into the experiences of those we work with.  We are grateful to the BFI for recognising the value of this work and enabling us to deliver a series of innovative accessible workshops for people with sensory impairments to engage in the arts. “

DPAC Back Corbyn With 1000 Name Letter

August 26, 2016

 

Benefit Assessment Failed- For Having A Firm Handshake

August 25, 2016

Another response to this, through Facebook.

When I went down the road of the dwp assesment I was turned down as he said I had a firm hand shake! It’s not my hands ……… It’s my legs!!!!! My body my involuntary movements the pain the dizziness the memory loss what more do they want should I be paralysed from the neck down before I am deemed disabled this just makes me want to cry I can’t bear the thought of having to go through the whole thing again with even more non medical incompitant fools another tribunal is iminant I am sure this discrimination! This is what was ruled against in the rights of disabled people how dare these people who have no idea about what we go through each day even try to assess us we should be assessing their qualifications to do the assessment in the first place !!!!

Disabled Daredevils

August 25, 2016

It was bloody scary on the water,” Barry West admits. Then he lets out a chuckle, as he spots the opportunity for a joke. “Well, I can’t swim, can I?” It’s a self-deprecating way for the 40-year-old to highlight just how extreme extreme sports can be, when you are paralysed from the neck down.

One of the stars of new documentary Disabled Daredevils, Bazza – as he likes to be known – is no stranger to taking risks. A veteran adrenaline junkie, he has racked up an impressive array of high-energy experiences, from scuba diving to skydiving and paragliding, in the 20 years since a car accident left him tetraplegic.

Now, along with seven other daredevils with disabilities, the father of one from Eastbourne is taking on five high-risk challenges in five days. From bungee jumping to hanging off a giant swing, it’s heart-racing stuff. But with the added difficulties of chronic pain, catheter bags and hips that pop out of their sockets, the danger itself becomes more acute. For Bazza, water-skiing was made more perilous because his lung capacity is only 20%: “I thought, ‘If I fall it will take them 10-15 seconds to help me, and if I am face down, I will drown.”

Despite the adrenaline overload, it’s the personalities that make the biggest impact. They are all outsized characters who are as rowdy as they are brave. At first it can seem like the programme-makers are intent on showing the group at their most outspoken to avoid any earnestness. So, we have Jenna, born with small arms, describing herself as a T rex – “tiny arms, big legs, the fucker you don’t mess about with” – and showing off her party trick of pulling her top off with her big toe. And Paula, a ballroom dancer, saying that what is weird about being in a wheelchair is that “people stare at your tits”.

Yet there’s a sweetness that tempers the high jinks, with the group offering each other support, and discussing their attitudes towards their physical challenges. Barry is the show’s emotional heart. Upbeat and wise, he offers enthusiastic cheerleading and gentle words of advice. And when I meet him at Eastbourne hospital – where he has spent the past six months battling infections and struggling to breathe unaided – he is just as charming. Thanks to a series of tracheotomies, his voice is down to a whisper, but the tattoos across his body mark his adventures, including the three-peak challenge (climbing the highest mountains in Scotland, England and Wales) and canoeing trips, as well as his motto: “One life, live it”. Nestled on the hospital bed, between his feet, is his most important achievement: his six-month-old son, Harrison – born two weeks before Bazza was admitted to hospital.

 

Just 19 when he crashed his car, swerving to avoid a badger (typically, he jokes about it: “It’s nuts isn’t it? A bloody badger. I still killed it”), his life changed completely. The teenager had started his own landscape-gardening business, and, according to his now-partner, Loraine, “quite fancied himself” as he strutted around with his top off, “whistling at the ladies”. A keen rugby player and boxer, he had so little experience of disability that he thought everyone who used wheelchairs had been paralysed from birth.

Despite his cheerful nature, he struggled with his situation until a friend who had been paralysed told him he had been skydiving. After that – with help from the Back Up Trust – he became an extreme-sports enthusiast. Along with a team of friends whom he dubbed “Westy’s warriors”, he was pushed and pulled up Ben Nevis in the snow, apparently becoming the first person with such a severe disability to reach the summit, and the first wheelchair user to do it in the snow. He climbed Snowdon several times, became a qualified scuba diver and went on skiing holidays. As a volunteer instructor with Back Up, he led adventure weekends. He even did a skydive – although the first doctor he asked for a medical release form told him that he would be dead before he reached the ground. “I just hoped [he] wasn’t right – all my family were there in case he was!” he explains in the film.

But when his body had been through so much already, why take such risks? For a start, he says, it’s the adrenaline rush. “The first thing I did was abseiling – and it was terrifying. They lowered me over the cliff in my chair, head first. I was saying: ‘My God!’ Don’t let go!’” But, he says, “doing stuff I did not think I could do” boosted his confidence in all parts of his life, making even everyday chores such as getting dressed easier for him. In the film, he says happily: “When you feel the adrenaline in your head and heart, you begin to think you can do anything.”

Now, he says he has more or less “retired” from extreme sports to concentrate on his family and his art. He has recently become one of just 36 registered mouth-and-foot-painting artists in the UK and is hoping to earn a living through his pictures. But, he says, he could not resist joining the group to encourage others. “I wanted to show other people that you just need confidence and self-esteem – and you can do it. We all need a boot up the backside sometimes, whether you are disabled or not.”

 

Looking back, he says, his physical problems have changed his character for the better. “I think it has made me more patient and more thoughtful. I care more about other people’s feelings now. If I see someone succeed, I feel more excited for them. I was really willing the group on.”

For Gemma, a 31-year-old from Liverpool, who contracted Guillain-Barré syndrome in 2011 and now uses a wheelchair, West made a big impression. In the film, we meet her first as she is cheerfully refusing to let anyone help her push her wheelchair on the beach, or later to help her get on to her modified water ski, admitting to the camera: “I hate asking for help.”

The former cabin-crew worker tells me she decided to take part because “I had had taken away from me all the things I loved doing – being cabin crew and dancing. I wanted to flip things on my body to see what I could do.”

But, she says, she was soon struggling to cope alone during the week away from her family, despite her physical confidence growing with each challenge. Looking back, she says it was the crisis she needed to confront the changes in her life. Through spending time with a group of fearless, funny people with disabilities, she realised relying on others did not have to be a sign of weakness or a cause for embarrassment.

 

“I didn’t realise it before I went on the trip, but although I had got on with my life, I had just pushed [my disability] to the back of my mind.

“I used to talk about the ‘old’ me and the ‘new’ me – as though I had two lives. I didn’t feel like they properly merged, until last year. People said I was brave, but I actually hadn’t dealt with any of it. In fact, I opened up to the camera more than I had opened up to my family.”

In a particularly poignant moment, Gemma explains to the group that, because she insisted on relying on crutches rather than using her wheelchair, she had damaged her spine and permanently injured herself further.

Now, she says, in spite of being in constant pain and having problems with walking, she has never been happier. Despite being fit and healthy before her illness, she struggled with body image issues. “I was very superficial,” she says. “It’s hard to admit that about yourself. I wasn’t content.”

Since her illness, she has met and moved in with her partner. She is proud to model for a diverse modelling agency and no longer focuses on her perceived imperfections. “Before this happened I was always trying to be skinny; now I have lumps and bumps, but I am proud of my body and what it has got me through. I am happy.”

Disabled Daredevils is on Tuesday 30 August at 11.05pm on Channel 4

The DWP Expect You To Be An ‘Immobile Smelly Potato’

August 25, 2016

When we shared this post on Facebook yesterday, this was one of the responses.

 

I was turned down on a DLA renewal because (a) I still had make up on from work (b) I was clean and didn’t smell (c) I managed to answer the door and (d) I had flown to America for work recently, which obviously you couldn’t possibly do if you were disabled in any way.
All over turned at tribunal 13 months later but the DWP even then seemed to think that these things meant I had no mobility problems or any other health problems. The tribunal panel pointed out clearly that all of them were consistent with my claim form, consistent with my condition and possible even with severe disabilities. This sort of thing is truly ridiculous. They expect you to be some sort of immobile smelly potato, it seems.

Online Appeals And Unlicenced GPs On Tribunals

August 25, 2016

With many thanks to Benefits And Work.

 

The Tribunals Service is working towards an online appeal system in which appeals hearings could last for weeks, according to Judge John Aitken, president of the social entitlement chamber which deals with benefits appeals.

The revelation came in a series of email exchanges between a Benefits and Work member and the Tribunals Service.

Our member is challenging the practice of the Tribunals Service of allowing GPs who are registered, but who no longer have a licence to practice, to sit on appeal tribunal panels.

GPs, who are often retired, sit as medical members on tribunals for appeals dealing with benefits including ESA, PIP and DLA.

Our member has had to appeal their ESA decision repeatedly and, on each occasion, has discovered that the doctor on the panel did not hold a licence to practice.

The law allows a ‘registered medical practitioner’ to sit on First-tier and Upper Tribunal panels. The Tribunals Service believes that there is no requirement for such a person to also hold a licence to practice.

They argue that:

“The assessment of appellants is carried out as part of the process of the Tribunal reaching its decision and is not medical practice; there is no diagnosis, prescription of prescribed drugs or delivery of treatment.”

Our member, however, points out that the General Medical Council website includes a detailed guide to The privileges and duties of doctors: UK statutes. The introductory page plainly states:

“Please be aware that, in this context, the terms used to refer to a ‘doctor’ or ‘practitioner’, and in particular, the term ‘registered medical practitioner’, all refer to a doctor who is registered with a licence to practise with the GMC.”

The GMC guide includes sitting on benefits tribunals as one of the privileges that only a registered medical practitioner is allowed.

One of the concerns about allowing GPs without a licence to practise to sit on tribunals is that they are not required to undertake regular training, continuing professional development, in the way that practising doctors are. GPs are required to undertake 50 hours of CPD a year in an effort to ensure that their knowledge remains up-to-date.

Doctors who do not undertake CPD may have very outdated beliefs about many conditions, which may be especially problematic for claimants with conditions such as ME, fibromyalgia or a range of mental health issues.

The correspondence with our member has reached all the way to the top, with a contribution from Social Entitlement President Judge Aitken.

In the course of this correspondence, Judge Aitken revealed that the Tribunals Service is planning to make the appeals process much more “user friendly” by having appeals conducted online over a period of weeks.

The Tribunals Service believes that this will leave claimants feeling less apprehensive and give them the opportunity to raise all the points they wish to, as well as meaning that no travelling will be requited.

The judge acknowledged that many people will need help to use an online system but believes that the experience need be “no more intimidating than shopping online”.

Our member is continuing their battle against the use of GPs without a licence to practice. Meanwhile, we’d be interested to know what you think about the idea of online appeal hearings.

PIP Turned Down- Because Claimant Carried A Handbag

August 24, 2016

When we shared this post on Facebook,  we received this comment:

The mind boggles. One of the reasons I got turned down was that I carried a handbag And can read a newspaper. Anyone going for assessment don’t carry a bag and if you can walk go extremely slowly and make the assessor wait and whatever you do. Do not move the chair in the room. Sit on it wherever it is placed and if need moving ask the assessor to do it. These were some of the points they made for refusing.

We’re scared, readers, very scared.

PIP Turned Down- Because Claimant Answered The Door

August 24, 2016

ATOS Home Visits: One Reader’s Experience

August 24, 2016

Many thanks go to reader Alan Philips who shared his wife’s experience with ATOS in our comments. He has kindly allowed us to publish his comment as a post in itself.

Alan Phillips
My wife was called on the afternoon of Friday 5 August. To Inform her that she would be seen by a home visit officer at 10:15 the following Monday (8) August. My wife explained we did have an appointment at 11;00 at the local hospital but the caller stated it wouldn’t be a problem the visit would take around 15 minutes. Monday came 10:15 came, and went. As did 10.:30. Visitor from ATOS no show! At 10:50 left home for hospital, 11:00 my wife’s phone rings – Its ATOS!! Where are you? We make appointments between 10 and 12. They don’t make appointments on the quarter hour. Basically calling my wife Kim, a liar!! We said we would leave the hospital and come straight back, she said she would wait. Eight minutes to return home – nobody there! Called ATOS said they would call her find out what was happening and call back – no call back( Phoned ATOS again they said records had now been sent to DWP because WE didn’t attend???
Rang DWP they treated it as though it was an every day occurrence and said another appointment will be out soon and they would log my feelings of dissatisfaction with ATOS at which is said no it’s not a feeling of dissatisfaction it’s a full blown complaint! At which he tutted and said I have to send a complaint pack.oit to you.then. I await both the new appointment and the complaint pack.

Woman Who Missed Two DWP Appointments While In Hospital For Open Heart Surgery Loses PIP

August 23, 2016

A woman who missed two appointments because she was in hospital for open heart surgery has been stripped of her benefits.

Lyn Wright, who has a heart condition, says she has been left feeling suicidal as a result of the effect of the decision made by Capita, on behalf of the Department for Work and Pensions, to stop her Personal Independence Payments (PIP) which will see her lose almost £140 a week.

After rearranging one appointment because she was due to undergo life-saving surgery in May, she did so again after the surgery was brought forward to earlier that month.

Lyn’s mother Margaret Unsworth informed Capita she was unable to make a third appointment after she collapsed during her recuperation and was rushed to Ysbyty Gwynedd, Bangor in June.

On August 3, the DWP informed Lyn that she had lost her PIP payments due to her “refusal” to make the assessment appointments.

The 48-year-old from Colwyn Bay says she is now on anti-depressants because the affair has affected her so badly and it made her feel suicidal.

A tearful Lyn said: “I never refused the appointments. I was in hospital in May having a mechanical valve put in my main aorta in my heart and I told them about it. I have been suffering for years and I finally found I had two valves missing from my main aorta. I was born with it apparently.

“Then I was rushed back into Ysbyty Gwynedd on June 20 after I collapsed and I got a letter while I was there asking to meet me at home for assessment on June 22.

Is it right that Lyn Wright was stripped of her benefits?

She tried to discharge herself from hospital

“My mother called Capita on June 21 and told them the situation and asked if they could do the interview while I was in hospital but they said they couldn’t and it would be classed as my third ‘refusal’ and passed back to the DWP.”

Lyn, who has also been diagnosed with Lupus, tried to discharge herself from Ysbyty Gwynedd because she was worried about losing the payments but doctors persuaded her to stay and called in a clinical psychologist because she was so upset.

Lyn’s mother called the DWP a week later, offering to send proof of her admissions, operation and discharge dates but she says the DWP said that would not be necessary.

After being discharged from hospital on July 5 she received a letter from the DWP on August 3 saying her PIP payments had been stopped, effective from August 1.

She will now have to wait a further six to eight weeks to see if her payments will be reinstated.

Lyn added: “I’ve lost £139.75 a week and had to stop my carers and my cleaner who helped me while I was recovering. I don’t want to run up bills… because I’ve worked all my life.
‘It’s the injustice of it that eats you up’

“I had a good enough reason. I tried everything to offer to send them the proof I was going in hospital. Then I get the letter saying I didn’t provide a good enough reason and my benefit is stopped.

“It’s the injustice of it that eats you up. If having open heart surgery isn’t a good enough reason for not attending an interview what can you do?

“I asked them to come and see me in hospital and they wouldn’t. I did everything I could.”

A DWP spokesperson said: “Decisions on PIP are made based on the information provided by the claimant and their GP.

“We expect the highest standards from the contractors who carry out assessments on our behalf.”

A Capita spokesperson said: “In line with the agreed operating guidelines, where people are unable to attend two PIP assessments Capita refers their case back to the DWP. We are working with the DWP to investigate this case.”

Tips For Your Initial ESA Claim Phonecall

August 23, 2016

ATOS Falsifying DWP Records Over Claimant’s Assessment

August 23, 2016

Readers, if you think this is bad, this seems worse to us. It was left at Fightback’s Facebook page yesterday.

Atos told the DWP that i attended an appointment that i never ever received a letter about, and that i refused to engage before walking out.  Surely falsifying government records is illegal?

Two scarily similar stories in one day. It seems that more and more people are being blamed for not receiving DWP letters. Take note, readers.

How Can I Attend A Medical I Never Knew I Had?

August 23, 2016

ESA Tip: Claimants Now Being Asked To Explain ‘Best Day’

August 22, 2016

A Horrible Experience On A DWP Home Visit For PIP Form Support

August 22, 2016

This was recently left as a comment on Fightback’s facebook page.

We had a horrible experience with some one from the DWP who came to my home to help fill in PIP form ,,,he was just awful ,,,called me a liar when i told he he was filling the forms in wrong ,,,when i said that you have to be able to do things reliably ,safely and in a timely manor ,,,he said that was not true ,,,he did not have a clue what he was doing ,,,crossed out that my son did not have a support worker ,when his support worker was sitting right next to him ,,,he really was awful ,,,in every section of the form he put a line through as not applicable ,even when my sons support worker said it was ,,,i think he managed to write about 3 line through out the whole PIP form ,and his writing was so bad ,you could not make out what he had put down ,,,i said to him ,you do know that this will fail my son ,,,he said yes ,but when he fails he can write a letter and send evidence ,,,unbelievable ,,,i have kept the form ,,,you really would not believe it if you saw it,,,i phoned to make a complaint ,the lady was very nice and said they need to know if they are having DWP workers going to peoples homes and doing this ,,,these are people that are supposed to help people fill these forms out because they are unable to do them ,themselves ,,i think the man that came here was from connect first ,,,it is terrifying to think that he is still going this job as he did not have a clue how to fill the forms in and treated people like they were fools ,,,he talked over you ,,,and only asked my son part of each question ,and he also decided what questions to ask him ,,,when he was here he had a phone call from a man in tears ,saying he had lost his award after this chap had filled in his form ,,,i said no wonder and asked him to leave ,,,in all my life i have never meet any one so inaproprate for the job that they are doing ,,,it brakes my heart to think that people phone for help and support and believing that is what they will get and they end up with people like him ,,,if they were on their own with him and very unwell like my son with a mental health illness they would not stand a chance.

One Claimant’s Experience On The Phone To The DWP

August 22, 2016

This comment was left recently at Fightback’s facebook page:

I put in a formal complaint about the way I was spoken to by a dwp worker on the phone. He said if I wanted to waste his time and my time explaining my illness then that was up to me but he wasn’t interested. Spoke over me at every occasion he could. Left me in tears but I was so angry I put in the complaint and he was made to write me a letter of apology and he was put on extra training after a full apology from his manager after her listening to the phone call. And funnily enough my appeal was quashed and was awarded what I was entitled to. Always be polite and they don’t have a leg to stand on when the calls are listened to and always put in a complaint. No one has the right to talk to anyone this way. They are disgusting individuals some of them.

Same Difference would urge anyone who experiences a similar phone call with the DWP to follow the advice given above!

“I’m A DWP Call Handler And I Only Have 23 Minutes”

August 22, 2016

This morning I spoke to a cancer patient, a woman with kidney failure, and a young man who had just lost the mother of his children. Each of them thought I was trying to help them. I wasn’t really though, because helping them would take longer than 23 minutes.

Twenty three minutes is how long it should take me to help you make a benefit claim, according to my bosses. I work in a Department for Work and Pensions contact centre and take calls from people who are at their lowest point.

These are people who need my help to navigate the complex claims system so that they can get a meagre payout. They’re often vulnerable and desperate by the time they reach me. My job is to fill in a new claim form for employment and support allowance based on the information people give me and then send that form off to the benefit centre where the claim is processed.

The headset beeps and I launch into my scripted greeting. The caller wants to tell me about her recent cancer diagnosis, what type it is, what the treatment will be, the reasons her employer has given for not offering sick pay. But I don’t have time to listen to her story. “I’m afraid we need to stick to yes or no answers” I say, and I feel horrible because this poor woman wants to tell someone about this huge awful thing that’s happening to her, she wants a friendly listener to make her feel reassured that she will at least get financial help.

But for me, the only thing that’s really important is how long each call takes. We are measured on our average handling time (known as AHT) and if this slips beyond 23 minutes per call we face performance management, which is code for “you’ll get in trouble”. This involves anything from stern words and increased micro-management from your line manager right up to written warnings and dismissal.

I have a script I read from, over and over again, the same for every customer. Some of the questions are opaque at best: “has your doctor told you that special rules apply to your condition?” is one which flummoxed the woman this morning who has cancer; the script specifies that I should not offer an explanation of the term unless I’m asked. She did ask, so I read the follow-up line “special rules means your doctor has told you that your condition has a life expectancy of less than six months.” No, she said, not yet, and I breathed a silent sigh of relief that I wouldn’t need to ask another series of questions about this, pushing the call-handling time up further.

In the DWP’s modern-day version of a sweatshop, we staff are singularly ill-equipped to actually offer any help or support. I have had absolutely no training in how sickness benefits work. I don’t know what happens when I send a claim to be processed, so I can’t answer any questions about what will happen next or when somebody will get a payment.

Quality checking is done but it’s about whether we are reading every word of the script, there is no measure of how good a service we provide or whether or not people are able to make a successful claim with our help.

The woman with cancer has answered all of my scripted questions and I am reading her a list of instructions about what to do next. I doubt she is taking it all in; at this point she’s been listening to me for 45 minutes. I’ve already failed to hit the AHT target; she has children and it takes a long time to input all their names and dates of birth, plus she took ages to find her tax credits award notice to read me the figures. I decide I will take an extra couple of minutes to explain to her the importance of sending in fit notes signed by her doctor on a regular basis.

This isn’t in my script despite being absolutely key information and a major stumbling block for many new claimants. If the call is listened to by my line manager this will be flagged up as an area where I’m missing time targets, as will the three minutes earlier in the call where I let her cry quietly down the phone because her life is imploding and she’s frightened of what the future will bring and this is all too much for her. A more motivated call-handler would have got her back on track quickly, today I am not that person.

I feel like crying too after this call, because I know I have failed this woman in so many ways. No time for me to cry though, there is no break between calls, the headset beeps again immediately and this time it’s a woman with kidney failure. I’m failing her too, and afterwards I will fail the bereaved young father, and this afternoon there will be more and more people I fail to help. And this will continue presumably until the government finally finds a way to do away with benefits entirely, at which point our sick and disabled people will be left with nothing, not even my hurried 23 minutes of script.

Mencap President Lord Brian Rix Dies Aged 92

August 20, 2016

Actor and disability campaigner Lord Rix has died aged 92, his family said.

The president of the learning disability charity Mencap had been terminally ill and urged Parliament to change the law on assisted dying.

He had previously opposed an assisted dying law, but said his illness had left him “like a beached whale” and in constant discomfort.

As Brian Rix, he performed on stage and TV, specialising in a series of post-war “Whitehall farce” comedies.

For more than 30 years his farces, which starred the likes of comic greats Tommy Cooper and Sid James, were hits on TV and stage, and earned Rix the reputation for his trousers always falling down.

Reforms

It was after his eldest daughter was born in 1951 with Down’s syndrome that he began campaigning for people with learning disabilities.

From 1980 to 1988 he was secretary general of Mencap, becoming chairman in 1988 and then president 10 years later – a role he occupied until his death.

In 2006 short breaks for carers became Law – an issue he had been lobbying on for 12 years. In the same year he introduced amendments to the Childcare Bill, which extended childcare provision for disabled children from 16 to 18.

His work on the 2006 Electoral Administration Bill also led to people with a learning disability being able to vote.

The crossbench peer voted against an Assisted Dying Bill in 2006 because of concerns that people with learning disabilities might become the unwilling victims of euthanasia. But his own experience of dying led him to change his position.

Obituary: A master of farce and leading disability campaigner

Rix quit performing in 1977, bowing out during an emotional evening at the Whitehall where he ended a period of 26 years of live performances, both at the Whitehall and at the Garrick to which he had transferred his productions in 1967.

He was still a partner in a production company which put on a number of hit shows in the West End.

But… an increasing amount of his time was being spent campaigning on behalf of people with learning difficulties, something that had started with the arrival of his eldest daughter, Shelley, in 1951 who was born with Down’s syndrome.

Rix was appalled to discover that there was no support for children with this condition other than a place in an institution where there was little or no attempt to provide any stimulus, let alone education.

Brian Rix: full obituary

‘Unique charm’

Jan Tregelles, chief executive of Mencap, who described Lord Rix as an “extraordinary man”, said: “When Lord Rix’s daughter, Shelley, was born with a learning disability he and his wife Elspet were told to put her away, and forget about her.

“This started a quest lasting over 60 years to make the world a better place for all those with a learning disability.

“His unique charm, personality and passion have been invaluable in helping Mencap grow.”

Peter Jenkins, campaigns director at the charity Leonard Cheshire Disability, said Lord Rix “made an immense contribution to the cause of disability rights in this country” and would be “greatly missed”.

‘Slip away peacefully’

Lord Rix, who died on Saturday morning, wrote to the speaker of the House of Lords earlier this month, explaining why he wanted legislation pushed through to allow those in his situation to be helped to die.

“Unhappily, my body seems to be constructed in such a way that it keeps me alive in great discomfort when all I want is to be allowed to slip into a sleep, peacefully, legally and without any threat to the medical or nursing profession,” he wrote.

“I am sure there are many others like me who having finished with life wish their life to finish.

“Only with a legal euthanasia Bill on the statute books will the many people who find themselves in the same situation as me be able to slip away peacefully in their sleep instead of dreading the night.”

PIP Computer System Crashes Again

August 19, 2016

A Claimant’s Good Experience At Birmingham Assessment Centre

August 19, 2016

Appeal Tip: If You Think A Letter’s Late, Contact DWP

August 18, 2016

Horizon: Adam Pearson- My Amazing Twin

August 18, 2016

I’ll be watching this with interest, next Thursday on BBC Two at 9pm:

The acerbically witty and severely facially disfigured broadcaster Adam Pearson presents a personal film about genetics. He and his twin brother Neil are genetically identical and both share the same genetic disease, Neurofibromatosis 1 (Nf1) – yet they are completely different. Adam’s face is covered with growths, whereas Neil has none. Neil has short term memory loss, whereas Adam is razor sharp.

How can the same genetic disease affect identical twins so differently?

Adam is on the cusp of a successful film and television career, but the disease has left tumours on his face that are growing out of control and he could lose his sight. For years, everyone thought Adam’s brother Neil had escaped symptoms, but today his life is governed by epilepsy and a mysterious memory loss that suddenly came on during his teens.

Determined to save their future, Adam tries to find out why the disease affects the twins so differently and see if there is anything he can do to stop it from tearing their lives apart.

PIP process is broken……

August 18, 2016

wendy7713's avatarWhich me am I today?

A few weeks ago I was called to attend a PIP (Personal Independence Payment) re-assessment. I remember at the time saying that the person conducting the interview didn’t appear to ask me as many questions and expected me to remember lots of detail🙄……….
Well last week, I had the devastating news that I was no longer applicable to receive any payment, which is very strange since I was before and I have more challenges now than I did 18 months ago at the first assessment…..😏

They gave some really bizarre reasons as to why I no longer qualified, including the fact that I can prepare a meal – I can’t – I can talk normally – I can’t – and I can walk normally – which again, I can’t…….I even have an adequate memory…😳 well that’s real news to me and I only wish I had…….

They must have asked…

View original post 215 more words

ESA Tip: New Rules On Regulation 35

August 17, 2016

4 Wheel City- New York Rappers On Wheels

August 17, 2016

I’ve just discovered this New York rapping duo, both paralysed by guns but turning their experiences into positivity and rap music!

My daughter was thrown out of a pub for being disabled

August 17, 2016

A Mother’s Message To The Lady On The Plane

August 17, 2016

Self Cathertrization Means You Don’t Need A Toilet Aid Finds Mandatory Reconsideration

August 16, 2016

More information on this story from yesterday. Readers, take note, this is scary stuff.

What prompted my “when is a toilet aid not an aid” comment was result of my mandatory reconsideration. I am currently 2pts short of pip  low rate care award. They refuse to accept that intermittant self cathertrization (ISC) involves the use of a toilet aid. Without using a catheter i can not urinate at all. Although if i am unable to perform ISC when required i do loose control of my bladder & have accidents. ISC also increases risk of UTI’s of which i am already very susceptible so must only be performed in hygenic conditions, therefore it is 1 of reasons i rarely leave the house. Due to other health conditions the most relevant being degenerative disc diease & other spinal issues & a recent spinal fracture, I am not always able to successfully perform ISC but as my 18yr old son is my main carer i would never ask his assistance with something so intimate. DWP decision maker i spoke to yesterday says that because i use the catheters myself they do not impact on day to day living & therefore do not constitute a toilet aid! 

kirsty fraser

Alton Towers Amputee Vicky Balch Hits Back As Trolls Mock Lingerie Photos

August 16, 2016

Brave Alton Towers rollercoaster crash amputee Vicky Balch has come out fighting after trolls mocked her for posing for a lingerie shoot.

The 21-year-old beauty, who lost her right leg in last year’s horror theme park accident, has blasted their attacks as a hate crime against the disabled.

And today she’s defiantly hitting back at her critics with another set of knockout pictures – this time at a boxing gym.

But it’s gloves off for Vicky when it comes to taking on social media bullies hiding behind their screens.

Vicky was left reeling after taking the difficult decision to pose for the tasteful boudoir photoshoot – a birthday present from a friend – as part of her bid to rebuild her ­confidence in her body.

The pictures, published in the Sunday Mirror last month, prompted a huge outpouring of affection and respect for her, and also sparked dozens of offers of dates and even two proposals.

But soon she was reduced to tears as Twitter trolls weighed in, calling her vile names and suggested she was “milking” her accident.

She says she has no regrets about sharing her lingerie images with the world. “I’m only human and the negative comments about the shoot did upset me,” she says.

“But even at my lowest points I haven’t regretted it for a second.

“The attacks on me have made me realise people who target the disabled online are just as bad as people who are racist or ­homophobic. They should be treated in the same way – even if it means them being sent to jail.

“I’m sure they’d think twice about slagging someone off based on the colour of their skin or their sexuality, knowing they could get into trouble – yet they think I’m fair game because I’ve lost a leg.

“Since the accident, I’ve had some awful comments even before I did the photoshoot. Barely a month after it happened, one person told me I should die.”

Vicky was seriously injured when the Smiler rollercoaster at the ­Staffordshire theme park crashed into a stationary carriage last June.

Both she and another passenger, 19-year-old Leah Washington , were so badly crushed they lost a leg. Another 15 people were injured.

Since then, Vicky has spoken candidly about the accident and her bid to adjust to her new life – but trolls have blasted her relentlessly. One even took to YouTube to make a video claiming the crash was a hoax and she was an actress.

Vicky, of Grismargh near Preston, Lancs, says: “I was broken then but now I’m the strongest I’ve ever been and I’ve learned not to let bullies win or stoop to their level.

“If someone said that to me now, I’d call the police because it’s a hate crime. Yet I’ve also been moved to tears by the positive comments.

“A woman with terminal cancer emailed to tell me I’d shown her she could feel sexy despite losing her hair. I was asked on dozens of dates and two men even proposed.

“But it hasn’t just made me feel sexy again. It’s inspired others who have struggled to feel confident in their own skin.”

Vicky was given the boudoir shoot as a 21st present from her best pal Hanna. She came close to cancelling when she had a crisis of confidence in the changing rooms at Ann Summers as she tried on sexy lingerie for the first time since her accident.

But when staff at the store reassured her she looked wonderful, she decided to go ahead – spontaneously removing her ­prosthetic leg for some of the most daring shots.

Vicky was so thrilled with the pictures she cried when she first saw them and courageously decided to share them.

She says: “It wasn’t easy. I knew there was a chance I’d get some backlash from people with nothing better to do than sit behind a keyboard and slag others off.

“But I discussed with my family and some close friends and they were right behind me. We all agreed that I needed to show the world you can still be sexy after life-changing injuries – for my own sake, but also for all the other people in the same position.”

As soon as we published the pictures, messages flooded in for Vicky. Most were positive, with both men and women complimenting her body and telling her she was inspirational for posing without her prosthetic leg.

But then the trolls started up. One branded her a “famewh**e” and another said she was a “slag”.

Others accused her of being a “narcissist” and an “attention seeker”. She admits: “I did cry. It hurts to think people would suggest that I released the images as a cheap publicity stunt when the exact opposite is true.

“As I cried, I wished these trolls could understand how much courage it took to share these pictures. They don’t realise how much pain I’m still in, and how each day I struggle to do things we all take for granted.

“Every morning, I wake up and when I see my stump I’m reminded of what I’ve lost. It takes me a long time to put my prosthetic leg on and often I’m very sore. Some days, I can’t even make a cup of tea because standing is so painful.

“And as well as the physical pain, there is the emotional struggle. I’ve been in tears looking at my ­reflection in the mirror, fearing like I’d never feel attractive again.

“I’ve also turned down dates because I’m scared men will be embarrassed by my disability, or see me as a burden.

“How would the trolls feel if they lived my life for just one day? I try not to respond to negative comments, but I was just so frustrated and angry. I went on Twitter and wrote a post saying I wasn’t milking my accident but trying to make disability less of a taboo.”

Vicky has become a poster girl for strength and survival thanks to the remarkable way she has dealt with the aftermath of the crash.

She says: “I like to think I’ve developed a thick skin but the nasty comments do still get to me when I’m having a bad day.

“But I have wonderful family and friends around me who can pick me up when I’m down. They soon help me to see that the opinions of these people don’t matter.

“They remind me no one is forcing them to look at my pictures or listen to what has happened to me – and that they obviously don’t have anything better to do.

“Yet I dread to think how different it could be for a disabled person who doesn’t have the support network I do.

“Not everyone would be able to cope with the abuse, and that’s frightening.”

While Vicky sometimes longs for her old life, she believes the accident has made her a better person.

She says: “There are days when I’d give anything to have my leg back, but what I’ve been through has made me the woman I am today. It’s made me so grateful for the people I have around me and it’s taught me that you should never judge a book by its cover.

“You don’t have a clue what someone is going through behind closed doors, no matter how things appear from the outside.

“Maybe the trolls would prefer it if I hid away in a room, ashamed of my new body. But I won’t do that.

“I’m stronger than ever – and no one sitting behind a keyboard will knock me down.”

Disabled People In US Are Trying To #cripthevote

August 16, 2016

Tip: PIP Will Destroy Your Original Documents

August 15, 2016

Amelia Bailey: The Full Judgement

August 15, 2016

For those who are interested.

When Is A Toilet Aid Not A Toilet Aid?

August 15, 2016

Same Difference has asked for more information from reader Kirsty Fraser. Meanwhile we feel that you, readers, need to be aware of this scary opinion of ATOS. So please take note.

Pupils With Disabilities And SEN Lack Support, Finds Poll

August 15, 2016

Too many pupils with special educational needs and disabilities in England lack crucial support, a poll of education staff suggests.

More than 80% of almost 600 staff, who responded to an Association of Teachers and Lecturers poll, said some pupils were being failed.

Ministers should provide “significant and immediate” extra cash, said ATL General Secretary Dr Mary Bousted.

The government said it wanted all children to reach their potential.

Of the 585 staff in English state schools who responded to the poll:

  • 70.7% believed the system was failing to identify all children with special needs quickly enough
  • 58.4% believed pupils officially identified as having special needs did not receive the help they need to achieve their potential
  • Almost half (48.6%) said they had been unable to access the support and training they needed to meet their pupils’ needs.

The survey follows a debate at the union’s annual conference in April this year where delegates expressed fears that the identification and support of special needs pupils was being compromised.

Overhaul

A new special educational needs and disabilities code of practice came into force in England’s schools two years ago.

Previously, the parents of special needs children had to ask for a local authority assessment, with the most severely affected children receiving “special needs statements”.

At the time the government described the change as “a landmark moment”, with “a simpler and more joined up system” stretching from birth to the age of 25, allowing education, health and care plans to replace special needs statements.

But many children with special educational needs or disabilities are now no longer eligible for government funding or support, according to 43% of those polled.

The union says new criteria mean that while pupils with complex or severe needs are eligible for high needs funding support, those with less complex needs such as dyslexia or dyspraxia do not automatically receive support.

As many as 200,000 previously identified as having special needs were not transferred into the new system, says the union.

Too many children “are slipping through the net completely,” one primary teacher told the researchers.

“It’s frustrating and heartbreaking,” said another.

And a staff member at a secondary school said lack of funding meant they had halved the amount of support for children recognised as needing special support next year.

‘More deterioration’

The 2014 changes were “an ambitious and well intentioned reform”, said Dr Bousted.

But “unless the government provides significant and immediate additional funding the worrying situation we see now is likely to deteriorate further”, she added.

The Department for Education said the “biggest changes to special needs provision in a generation” meant it had “increased high needs funding by over £90m this year and given councils £35.8m to help implement our changes effectively as well as improving support for families”.

“Ensuring teachers are trained to have an understanding of the needs of pupils with special educational needs and disabilities is a key part of our drive to give all children access to the education they deserve,” added a spokeswoman, who said this training would in future be a key part of initial teacher training.

DWP Are Continuously Lowering The Length Of PIP Awards

August 15, 2016

ATOS Nurse Amelia Bailey Struck Off Over PIP Lies

August 12, 2016

Wheelchair User Turned Away From Croydon Benefit Assessment Centre

August 12, 2016

A woman was left “humiliated and disgusted” when she was turned away from Croydon’s only disability assessment centre – because wheelchair users are banned from using the lifts under health-and-safety rules.

The bizarre state of affairs, at a centre run by a private contractor that carries out fitness-to-work tests for the Government, has forced claimants to make a 14-mile round trip to Balham for an assessment.

The assessment service, run by Maximus, is on the first floor of Stephenson House, near East Croydon station.

Although there are lifts in the centre, anyone who cannot climb the stairs to the first floor is banned from using them.

Sandra Hall, 37, who suffers from rheumatoid arthritis and cannot walk unaided, was turned away from a fitness-to-work evaluation appointment of July 4.

She is required to attend yearly assessments to prove she is not able to work and is therefore entitled to benefits.

Despite giving Maximus prior notice she is wheelchair-bound, Mrs Hall was turned away from the meeting after being told the building was unsuitable for her.

Staff said that in the event of an evacuation she would be expected to use the stairs to leave the building and, since she cannot climb them, it would be a health-and-safety risk to allow her access to the first floor.

Mrs Hall, who lives in the town centre, said: “I was absolutely fuming. I was crying because I thought they would stop my money because I couldn’t come, it was really upsetting.

“It is very difficult [to move] – my hips, my knees, joints are in constant agony.

“To get down the stairs when I’m at home I have to shuffle on my bottom, so if there is a fire how can I shuffle down the stairs on my bottom?

“I have never felt so humiliated and upset and disgusted in all my life.”

She added: “For a place that is meant to be for disabled people it is not really disabled-friendly.”

Mrs Hall’s appointment was rescheduled to Balham last week, forcing her husband Geoff to take another day off work and putting more financial strain on the couple.

In 2011 the Croydon Guardian reported that Atos Healthcare, which provided the assessments until Maximus took over in March last year, was turning wheelchair users away from Stephenson House because they were unable to use the stairs.

Maximus is performing worse in key areas since it took over running the assessment contact from Atos.

In January a National Audit Office report found the average cost of assessments had risen from £115 to £190, meaning a total cost of £595m for the 3.4 million assessments required by 2018/19 – a rise in costs of 65 per cent for the Department for Work and Pensions (DWP).

It also found that while the department had reduced the number of outstanding assessments there was still a backlog of 280,000 employment and support allowance assessments in August last year, and the number of claimants rejected had risen from one in 25 to one in 10 under Maximus’s watch.

A spokesman for Maximus said the company would investigate why Mrs Hall was booked to be assessed in Croydon.

He added: “Whenever a customer informs us that they have mobility issues we arrange for them to be seen at another local centre that has assessment rooms on the ground floor”.

He said any changes to wheelchair access at the centre was the responsibility of the DWP.

A spokeswoman for the DWP said: “Access guidance is included in appointment letters so that alternative arrangements can be made if needed, and anyone unable to travel as a result of their condition is offered a home visit.

“If claimants are unable to use the stairs at Croydon Assessment Centre, they can be booked into centres in nearby Wimbledon or Balham instead, and a taxi is offered if required.”

Birmingham Council Wants Nicholas, 4, To Get The Public Bus To School

August 11, 2016

A few miles from his home in south Birmingham, four-year-old Nicholas Bolton is due to start a special needs school for autistic children in September. His mum, Rosalind, and dad, Francis, not only love the school but knew he’d be safe getting there: funded by Birmingham city council, the school minibus has special seats, harnesses and trained guides.

But as an insight into what parents of disabled children are currently experiencing up and down the country, last month Rosalind was informed that Nicholas – who is non-verbal, incontinent, struggles to control his body and can’t understand instructions – would not be granted specialist transport to school. Instead, the council would assist with travel by offering a free bus pass.

“It took me a while to process it,” Rosalind admits. “I wasn’t sure they could actually be suggesting it.”

But they were. The council wanted Nicholas to use a regular bus: not only a standard school bus unsafe for disabled children but – for a little boy who becomes distressed near strangers – a public bus alongside commuters, shoppers and students. Because there’s no bus that goes directly to Nicholas’s school, he’d have to take two separate buses, changing midway. Morning and afternoon, an hour there and back in normal traffic. “That journey would be overwhelming agony for him,” Rosalind says.

It’s like the council saying they haven’t got the money so they’re going to stop collecting the rubbish

Talking to other parents, Rosalind quickly discovered that Nicholas wasn’t alone. Every other disabled child starting at his school this year was being refused specialist transport too. And the more she dug, she found this was happening all over Birmingham.

One friend with an autistic child at another school across the city has just been told the entire reception class won’t have specialist transport, Rosalind says. The council, she explains, are “trying to dress this up” to parents as a way to help their children be independent.

“We’d love them to go to the local school on their scooters and when they’re older get the bus to senior school with their mates. That is never going to happen, and the council knows it,” she says. “By ‘independent’, they mean independent of the council.”
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In the current climate, independence for severely disabled children is a budget cut by another name. Travel Assist, the part of Birmingham city council that provides transport services, has been told it must find £2.8m, a local councillor informed parents, according to Rosalind. When approached for comment, Colin Diamond, director for education at Birmingham city council, tells me the council has received “significant grant cuts from central government and these have affected all parts of the council, including Travel Assist”.

“It’s like them saying they haven’t got the money so they’re going to stop collecting the rubbish,” Rosalind says.

The law states that a child with a disability that would prevent them walking to their nearest suitable school must get free transport help regardless of distance (non-disabled children must live more than three miles from their school to be eligible). But Contact a Family, a charity that supports families with disabled children, tells me some local authorities are now trying to cut corners to save money. They regularly hear from families whose child is clearly eligible for school transport but have been refused help.

The result is parents who are already exhausted, faced with shrinking services, left living in a logistical nightmare. Without safe transport for Nicholas, Rosalind, who works in utility regulation, would need to drive her son to school in the morning, get to the office, leave to collect Nicholas in the afternoon, and get his 18-month-old sister to and from childcare.

“My husband has epilepsy so he can’t drive,” she says. “I’ve worked out I’d be left with about four and half hours at work. I’d have to quit my job.”

Childminders or after-school clubs – typically untrained to look after disabled children – aren’t an option for families like Nicholas’s. There used to be a specialist after-school club at Nicholas’s school. “That funding’s been withdrawn now,” Rosalind says.

A few days after we last spoke, Rosalind emails with good news: following an official appeal to the council, Nicholas has been told he’s eligible for a place on the specialist minibus. Rosalind is relieved but hesitant. “I feel like it’s a battle we’re going to have every year,” she says. “And there’s all these other parents who are still going through this now.”

She tells me about a single mum at Nicholas’s school who’s already struggling with money but, without transport for her autistic child, would have to give up her one remaining job. Another friend with two autistic children was planning to get back into nursing part time, she says, but now doesn’t think she’ll ever be able to work again.

Diamond says the council will “always endeavour to ensure support for getting children to school is safe and cost effective, and enables children to be as independent as possible. Any parent or carer who feels the assistance provided is not appropriate is able to appeal.”

But with only a few weeks until the start of term, Rosalind worries other families won’t have time to appeal before their child needs to start school. “The council is seeing disabled children as an easy target,” she says. “It’s just horrible.”

The Edinburgh Fringe Still Has A Way To Go On Access

August 10, 2016

Canadian Comic Mike Ward Cheapens Free Speech Fight

August 10, 2016

Mike Ward appears on his poster in a muzzle. Freedom of Speech Isn’t Free runs his show title. Ward is the Canadian comic who’s just been ordered to pay $42,000 by the Quebec Human Rights Tribunal for making jokes about Jérémy Gabriel, a disabled Canadian who made a name for himself after being given the opportunity to sing for the Pope. In his Edinburgh festival show, Ward tells us the offending joke, and protests against being taken to court for having cracked it.

It’s not a well-argued defence – although, I guess, it doesn’t need to be. As David Mitchell wrote recently in the Observer, it’s very difficult to justify banning jokes about disabled people (or anyone else), unless they’re explicitly inciting hatred or violence. The court case appears to have been over a series of jokes targeting Gabriel, although here he suggests there was only one offending quip, which asked why Gabriel – who Ward wrongly described as having a terminal illness – wasn’t dead yet.

The whole case has, unsurprisingly, become a free-speech cause celebre, a rallying point for comedians justifiably anxious at our ever more censorious culture. I was interested to see that Ward was making it the explicit subject of his show. Comedians giving us their version of one-day-wonder “offence” controversies is becoming a staple of standup acts: one thinks of Katherine Ryan’s 2015 show, in which she told of the storm that broke when she made a joke concerning Filipino children on Mock the Week. Of course, she has every right to make what was, in fact, a fairly innocuous remark. But I’m sometimes uneasy seeing the standup stage become, if not quite a bully pulpit, at least an uneven playing field where comedians cite their partisan version of some recent row to claim free-speech martyr status.

 

Would that be the case with Ward? Not quite. He never pretends he’s anything other than a bad-taste merchant, nor that his joke was any better than “mean”. The show – which runs at only 45 minutes – is full of gags that’d curdle milk, from the Gabriel-related ones mocking deaf people who can’t sing to the paedophile jokes in which Ward tries to make his eight-year-old girlfriend orgasm. He makes a pretty spurious moral distinction between “inside” and “outside” jokes, blaming the media for making public and hurtful what was harmless between consenting adults.

But he doesn’t have to mount a stout defence: the joke’s legality shouldn’t be at issue, and I sympathise with his being singled out and heavily fined. But morality is a different question. The best bad-taste jokers allow us to laugh at their twisted ideas by making themselves the butt of the joke. Jerry Sadowitz portrays himself as a self-hating sociopath; he’s not claiming any legitimacy whatsoever for his despicable worldview. Ward might call that hypocritical, or morally evasive – after all, we’re still laughing at the jokes. In his act, there’s no buffer between us and the abuse: we’re complicit. He delivers unpleasant gags as if it’s cool or rebellious to do so, as if we should all be perfectly happy with ourselves for laughing at “retards” and people with Aids. The legal judgment against him will presumably shore up his sense that that’s a freedom-fighting thing to do.

Maybe it is, for some. Others – myself included – will acknowledge Ward’s joke-writing skill, but find the content, and the demeanour, a bit grubby, self-satisfied and, well, diminishing of one’s joie de vivre. In one routine, he tells us how a mother of a child with learning disabilities complained to him post-show about his use of “the r-word” – by which she means “retard”. That coinage, says Ward, is truly offensive, because it cheapens the historical struggle of African Americans. By the same token, muzzle-wearing Ward could be said to cheapen the historical struggle for free speech by using it, not to challenge the powerful, but to bad-mouth anyone different from himself.

Two Tips For PIP And ESA Assessments

August 10, 2016

Sanctioned For Being Honest About Health Problems

August 9, 2016

Disabled People Living In Poorer Areas More Likely To Fail WCA Finds Study

August 9, 2016

“Fit for work” tests are “significantly biased” against claimants in poor areas of the country, new research seen exclusively by the Guardian shows.

Analysis of more than a million incapacity benefit claimants who have been re-assessed for employment and support allowance (ESA), the benefit for people too disabled or ill to work, shows the controversial work capability assessment is disproportionately removing benefits from people in more deprived regions.

At the same time, it found claimants in wealthier areas are more likely not only to retain their sickness benefits – and avoid being declared fit for work – but to be placed in the support group of ESA, in which claimants are not required to undertake any form of work preparation and receive the highest benefit rate.

The study analyses government data from over 300 local authorities between 2007 and 2015 and is published next week in the journal Radical Statistics. It further shows that, counterintuitively, healthier areas found claimants fit for work less often, and placed claimants into the support group more frequently, than areas with higher rates of disability and illness.

“With an accurate test of disability, it would be expected that areas with lower disability and ill health would find more people fit for work,” Jonathan Hume, the author of the research, says. “As it stands, areas where people have the most need for ESA – so higher poverty, higher disability – are the ones removing it at a higher rate.”

Such findings are consistent with the idea that, as part of wider reduction in support for disabled people, the “fit for work” test was designed to cut support rather than better target it to those who “truly need it” as the government has repeatedly claimed, Hume adds.

There have been widespread concerns about the validity of this test in recent years, with critics saying it is inaccurate, discriminates against mentally ill people and those with fluctuating illnesses, and causes widespread stress and even suicidal feelings among claimants.

Ministers pressed ahead with the rapid expansion of the test to reassess 1.5 million existing incapacity benefit claimants in May 2011, despite warnings from their own adviser, Professor Malcolm Harrington, that the rollout should be delayed until the test could be improved.

The fact that this latest research analyses people previously on the benefit is significant because it shows that they were all assessed as meeting a minimum level of disability. As such, anyone subsequently found fit for work by a work capability assessment had been previously identified as having a significant health problem.

In order to determine the causes and extent of any bias in the test, it would be necessary to have access to data about individual claimants – for example, their disability, income and background – which is currently unfeasible due to confidentiality concerns. Still, the research has established a significant relationship between work capability assessment outcomes and local educational attainment. In areas where children finish school with more GCSEs, claimants were placed into the support group more frequently rather than being placed in the work-related activity group – the group in which disabled people must undertake preparation for a return for work or risk having their benefits sanctioned.

Hume says that a possible explanation of this is that people with more qualifications might be more able to complete the significant paperwork required to claim ESA, or are better at seeking appropriate evidence and assistance.

“Ultimately the DWP [Department for Work and Pensions] is making decisions that seem to be influenced by factors other than the health of the claimant,” he adds.

A Department for Work and Pensions spokeswoman criticised the report and said it makes a huge leap in attributing local variation in work capability assessment outcomes to “bias”. She said: “The report is entirely misleading and we don’t recognise the findings. The fact is eligibility for employment and support allowance is not dependent on the area where a claimant lives, but rather on the effect a person’s health condition or disability has on their ability to work.”

The Spartacus Network, a group of disabled campaigners who have previously undertaken influential research into ESA, says the study offers disturbing findings in an area that has so far been seriously overlooked. “The lack of previous analysis in this area is indicative of successive governments’ disregard for the effectiveness of ESA and the work capability assessment, compounded by indifference to the rights and concerns of sick and disabled people,” says the Spartacus researcher Caroline Richardson.

The findings are particularly relevant in light of the government’s impending cut of £30 a week for many new ESA claimants, due to take effect next year.

With the UN investigation into the UK’s alleged violations of disabled people’s rights due to be published in 2017, all eyes are on whether fit for work tests – and the wider disability benefit system – are themselves fit for purpose.

IMPORTANT: People Who Have Answered Calls From This Number Have Lost Their Benefits

August 9, 2016

Mencap President Lord Rix Changes Position On Assisted Suicide

August 9, 2016

Terminally ill actor and disability campaigner Brian Rix, 92, has said the law on assisted dying needs changing.

Mencap president Lord Rix urged the speaker of the House of Lords to push through legislation allowing those in his situation to be assisted to die.

He had previously opposed an assisted dying law, but said his illness has left him “like a beached whale” and in constant discomfort.

“My position has changed,” he wrote to Baroness D’Souza.

Stage and TV actor Lord Rix, who specialised in post-war “Whitehall farce” comedies, is receiving 24-hour care in a retirement home.

Extract from Lord Rix’s letter

“My position has changed. As a dying man, who has been dying now for several weeks, I am only too conscious that the laws of this country make it impossible for people like me to be helped on their way, even though the family is supportive of this position and everything that needs to be done has been dealt with.

“Unhappily, my body seems to be constructed in such a way that it keeps me alive in great discomfort when all I want is to be allowed to slip into a sleep, peacefully, legally and without any threat to the medical or nursing profession.

“I am sure there are many others like me who having finished with life wish their life to finish.

“Only with a legal euthanasia Bill on the statute books will the many people who find themselves in the same situation as me be able to slip away peacefully in their sleep instead of dreading the night.”

The crossbench peer voted against an Assisted Dying Bill in 2006 because of concerns that people with learning disabilities might become the unwilling victims of euthanasia. He has been a prominent campaigner for people with learning disabilities after his daughter was born with Down’s syndrome.

He said his children were “absolutely supportive” of his decision and that he has “wrapped up” his affairs and was “ready to go” to “put an end to this misery, pain and discomfort”.

“I can’t do anything but lie here thinking ‘Oh Christ, why am I still here?’ They won’t let me die and that’s all I want to do,” he said.

He added the doctors and nurses “do their best for me” but that it was “not good enough because what I want is to die, and the law stops them from helping me with that”.

He had discussed with his children the possibility of travelling to the Dignitas clinic in Switzerland, but felt it would be “unfair to them to push them into a situation where they are helping me to die”.

Lord Rix said he had not been given an estimate from doctors as to how long he will live, adding: “I think it’s wrong that people like me are stranded like this.

“I’m not looking for something that helps me only, I’m thinking of all the other people who must be in the same dreadful position.”

Harry Potter And The Cursed Child To Get Accessible Editions

August 8, 2016

Harry Potter and the Cursed Child, the eighth part in JK Rowling’s wizarding series, has been made accessible to a whole new wave of readers thanks to two innovative publishers.

First, The Royal National Institute of Blind People (RNIB) have teamed up with Little, Brown to release both braille and giant print editions of the book (both now released), with an audiobook version coming “very soon”.

Steve Tyler of RNIB said in a press release: “Books open up a whole new world for blind and partially sighted people, transforming lives, ending isolation and expanding horizons.

“It’s wonderful that today we can thank Little, Brown for ensuring that people with sight loss can read the latest Harry Potter story at the same time as everyone else.” 

Little, Brown also published the original version of The Cursed Child which itself is not a novel but the script of the West End production currently showing at the Palace Theatre, London.

Meanwhile, W F Howes are working with University of South Wales and the British Dyslexia Association to publish an edition of the book for dyslexic readers in September.

According to The Times, the Dyslexic Readers’ Edition of Harry Potter and the Cursed Child features blue text printed on a beige, slightly thicker paper, with larger letters, wider margins and a simple sans-serif font throughout.

Dominic White, Head of Publishing at the publishers, said: “We’re immensely proud to be making Harry Potter available for the first time to the huge percentage of the population with Dyslexia, and to be involved in making J K Rowling’s work more accessible than ever before.”

The theatre production of The Cursed Child received overtly positives reviews from critics while the book version has had a mixed reception from fans of the series, many of whom noted inconsistencies with the main books.

*TW- Mentions Suicide* ESA Stopped- For Having PIP Assessment On Same Day As WCA

August 8, 2016

Disabled Woman Loses Benefits- For Missing The Bus

August 8, 2016

Rio 2016: Russian Paralympians Banned After Doping Scandal

August 8, 2016

Russian athletes have been banned from competing at the Rio 2016 Paralympics following the country’s doping scandal.

The International Paralympic Committee (IPC) had opened suspension proceedings following the McLaren report, and has now confirmed the ban.

That report, published last month, detailed a state-sponsored doping programme operated by Russia.

The Russian Paralympic Committee will reportedly appeal against the decision to the Court of Arbitration for Sport.

In contrast to the IPC, the International Olympic Committee (IOC) chose not to hand Russia a blanket ban from the Olympic Games.

The Rio 2016 Paralympics begin in 31 days’ time, on 7 September, and 267 Russian athletes across 18 sports will now miss the Games.

“The anti-doping system in Russia is broken, corrupted and entirely compromised,” said IPC president Sir Philip Craven at a news conference on Sunday.

“The Russian Paralympic Committee are unable to ensure compliance with and enforcement of the IPC anti-doping code and the world anti-doping code within their own national jurisdiction and they can not fulfil its fundamental obligation as an IPC member.

“As a result, the Russian Paralympic Committee is suspended with immediate effect.”

Craven’s damning words

He added: “Tragically this situation is not about athletes cheating a system, but about a state-run system that is cheating the athletes. The doping culture that is polluting Russian sport stems from the Russian government.

“The Russian government has catastrophically failed its para-athletes. Their ‘medals over morals’ mentality disgusts me. The complete corruption of the anti-doping system is contrary to the rules and strikes at the very heart of the spirit of Paralympic sport.

“It shows a blatant disregard for the health and wellbeing of athletes and, quite simply, has no place in Paralympic sport. Their thirst for glory at all costs has severely damaged the integrity and image of all sport, and has certainly resulted in a devastating outcome for the Russian Paralympic Committee and para-athletes.”

Why was Russia banned?

Canadian law professor Richard McLaren’s report found that Russia’s sports ministry manipulated urine samples provided by its athletes between 2011 and 2015.

The report identified 27 samples relating to eight para-sports, five of which are summer sports, including some governed by the IPC.

The IPC has also found evidence that samples were swapped during the Sochi 2014 Paralympic Games and it planned to reanalyse every Russian sample from Sochi.

The IPC allowed the Russian Paralympic Committee to present its case before it decided on the ban.

Paralympics takes a stand

The IOC was widely criticised for ignoring the World Anti-Doping Agency (Wada) recommendation to ban Russia from the Rio Olympics.

Instead, each individual sporting federation was given the power to decide if Russian competitors were clean to compete.

A three-person IOC panel then had the final say.

In the end, more than 270 Russian athletes were cleared to compete at the Olympics.

Reaction

US Anti-Doping Agency (Usada) chief executive Travis Tygart said the IPC’s decision was “inspiring”.

“The IPC showed strong leadership today in holding Russia’s state-organised doping accountable,” said Tygart. “Their unanimous decision goes a long way towards inspiring us all – most importantly clean athletes – and upholding the Paralympic values we admire.”

Wada said it supported the decision, adding it was “is in the interest of clean athletes and the clean sport movement”.

The British Paralympic Association said the IPC had taken a bold decision and congratulated it for taking a “clear stand”.

“It is crucial for the integrity of our sport that those involved, as well as the public, feel confident that all necessary measures are in place to tackle doping and the playing field is level”, a statement read.

Britain’s Paralympic gold medallist and world champion Richard Whitehead told the BBC’s World Service: “I feel that Paralympic sport will move forward and will be the shining light of what needs to happen within sport. Let’s hope that other sporting governing bodies also take the same light. “

But the International Federation for Equestrian Sports (FEI) said it was “disappointed” and “troubled” by the IPC’s decision.

FEI President Ingmar De Vos said: “We believe the individual International Federations should be given the opportunity to defend the rights of their clean athletes.”

Analysis

BBC Sport’s Chris McLaughlin: “It’s the decision the IOC resisted – a blanket ban and a hardline approach from the Paralympic movement. Its head Sir Philip Craven said it was a decision that had given him sleepless nights but one that had to be taken in the interests of sport, going on to say the Russian sporting system was broken and corrupt.

“It may not be the end of the matter though, the Russians have already indicated they will appeal to the Court of Arbitration for Sport. But, as it stands, there will be no Russian athletes at the Paralympic Games here in Rio.”

Yesterday’s Vigil For Sagamihara Victims

August 5, 2016

Yesterday, Same Difference attended a vigil for the victims of Sagamihara, Japan, in London.

This is the Facebook event page, where you’ll find links to photos and news coverage of the day.

It was a chance for disability campaigners in London to meet up and remember those they never knew, with those they know well and like.

 

Tanzania’s Tongue Typist

August 5, 2016

Wakonta Kapunda, 25, from Tanzania was hit by a car on her high-school graduation day four years ago.

After months of treatment, her whole body was left paralysed, but not her hopes of being a screenwriter.

She now uses her tongue to write film scripts, respond to phone calls and send texts.

Wakonta recently took part in a screen-writing class in Zanzibar, where the BBC caught up with her.

Disabled Man Without Arms Told He Can Walk Up To 50M With Walking Aids

August 4, 2016

We are absolutely shocked!

Bromley Jobcentre Worker Ann Goode Leaves Voicemail For Claimant Saying “I Resent Doing This For Some Scrounging Bastard That’s Popping Out Kids Like Pigs”

August 4, 2016

Readers, please share this everywhere. Name and shame her widely so that no one ever does this again!

A Beckenham mum-of-three has been left reeling after two women working at Bromley Jobcentre accidentally left her a voicemail bad-mouthing jobseekers with “foreign-sounding” names.

Cecilia Garcia, 44, has been getting help to support her and her children during a tough separation.

Last Friday (July 29) Mrs Garcia checked her messages and found that Ann Goode, a member of staff at the Bromley branch, had left her a message asking her to call back on Monday.

However, when Ms Goode finished leaving the message, she didn’t hang up properly and continued to have an “offensive” conversation with a colleague, starting off with a discussion of how much she receives in benefits.

Unaware that they are being recorded, the women are heard saying: “That’s almost a thousand pounds a month – 12,000 a year.

“This is Cecilia Garcia.

“None of them are English names.”

After a pause, the conversation continues.

“I don’t … I just don’t … why are we running around for these people?

“Do you know I resent even doing this work because if I had a person who said I really want a job, I want to go on your case load, yes, all the time, every day of the week.

“But not some scrounging bastard that’s popping out kids like pigs.”

Laughing, she adds to her colleague: “I’m going to get very politically incorrect this afternoon.”

The second voice can be heard saying: “You are, aren’t you? And I don’t blame you one bit.”

Mrs Garcia says the shock of hearing government employees speak about her this way made her physically ill.

She told News Shopper: “I got sick, I was so upset over the weekend.

“It is really offensive all the things that she says on the voicemail.

“And it sounds like the other person totally agrees with her.

“The fact that they say things like ‘oh they aren’t even English names’ – this goes beyond everything, saying I pop out kids like pigs.

“I have dual nationality, we did everything right, I’m not illegal.

“She shouldn’t express this about people from other backgrounds.”

Mrs Garcia, a dual Mexican-British citizen, separated from her husband in November and has had to turn to the benefits system to keep herself afloat, even though she does have a job, albeit not in her field.

“I wish I never had to – I never imagined I would find myself in this situation.

“I have three children who are eight, six and four.

“They are all British citizens and all born here.”

Mrs Garcia says she has never felt scared living in England before but has noticed a change in the general mood since the EU referendum.

She said: “We could speak Spanish on the bus or train with no problems but now I tell my children not to speak Spanish in public places because I feel people looking at us like ‘what are they doing here?’”

Mrs Garcia has no choice but to return to the Jobcentre, but says the comments have really shaken her.

She told News Shopper: “[The voicemail] wasn’t the first time but it was the worst.

“Living on benefits you live on the edge. I study, I have a finance degree. I am trying to go back to work but I had to stop working because I have three children.

“I understand people say that a lot of people are taking benefits but not every single case is the same.”

A Department of Work and Pensions spokesperson said: “We are taking this incident extremely seriously, and we have launched an investigation.”

A Video Response To Sagamihara

August 3, 2016

There’s also this that encourages people to Say Their Names.

Disabled Man Arrested Under Victorian Law- For Trying To Order A McDonalds

August 3, 2016

This is the bizarre moment a disabled man was arrested by police at a McDonald’s drive-thru on suspicion of being drunk in charge of a mobility scooter .

The man was arrested under a Victorian drink-driving law when he was stopped on Monday after he tried to order a takeaway meal.

Security guard Jack Solomon, 25, took a series of pictures of the man as he was breathalysed at the McDonald’s restaurant on Grand Parade, Skegness, Lincs, at 3.30pm.

He said: “I was working opposite the restaurant and saw a load of police so went over to see what was happening.

“I was shocked to see an officer talking to a fella on a mobility scooter.
Jack Solomon/SWNS

image: http://i1.mirror.co.uk/incoming/article8546162.ece/ALTERNATES/s615b/PAY-The-abandoned-wheelchair-after-the-man-was-taken-away.jpg
The abandoned wheelchair after the man was taken away
The abandoned wheelchair after the man was taken away

“Another one of them breathalysed him before taking him off the scooter and putting him the police car and taking him away.

“He didn’t seem too bothered and didn’t struggle.

“I went back a few hours later and the scooter was still there in the drive-thru. It was bizarre to say the least.

It is believed the man had tried to place an order but was refused by staff as the drive-thru was for “roadworthy vehicles” only.

The man is then thought to have refused to leave, causing a delay to other customers for up to an hour as well as attracting a large crowd of onlookers.

A McDonald’s spokesman said: “Following advice taken from independent parties and company safety risk assessments, it is our policy only road worthy motor vehicles should be served in our drive-thru lanes.

“This takes into account a number of considerations including space available in the lanes and the heights of ordering points and service hatches.

“Mobility scooter users are invited to enter into our restaurants and order food at service points which are more convenient for them, and most importantly, safer for the customer and crew when selling food.”

Michael Ernest Green, 62, of Skegness, was charged with being drunk in charge of a carriage – an offence under the 1872 Licensing Act.

The law was originally brought in to crack down on anyone caught drunk in charge of a carriage, steam engine, bicycle a horse or a cow.

Mobility scooters are classed as a carriage and are not covered by current drink-driving laws.

The crime has a maximum penalty of £200 or 51 weeks in prison.

A spokesman for Lincolnshire police said: “Officers were called to McDonald’s on Grand Parade, Skegness, around 3.30pm on Monday afternoon in response to a report that a man in a mobility scooter was blocking the drive-thru and refusing to leave.

“The man was arrested and has since been charged with being drunk in charge of a carriage (1872 Licencing Act).

“He will appear before Skegness Magistrates’ on August 30.”

 

Actions, Articles, and Statements on Sagamihara, Japan

August 3, 2016

kpagination's avatarPaginated Thoughts

This is a compilation of actions to take, such as vigil-attending, articles, and statements on the murder of 19 disabled residents and injury of 26 more at an institution for people with intellectual and developmental disabilities (Tsukui Yamayuri En) in Sagamihara, Kanagawa, Japan. We do not know their names because there is a refusal to release them. The reasoning behind this is that families do not want to have them named as people with disabilities.

Filed under eugenics as well as ableism and disability because killer held eugenics ideals.

VIGILS FOR SAGAMIHARA

(upcoming. I only found two in the past that had already occurred and three upcoming globally. The ones that occurred already were in Philadelphia, PA, USA, and one was in New Zealand. This is quite distressing, though it could have to do with using a search engine/searching Facebook while in the United States and in English?)

United Kingdom

View original post 741 more words

Online Vigil For The Disabled People Of Sagamihara

August 3, 2016

No Help For Fred When He Lost DLA And Became Homeless

August 2, 2016

Doctor Who To Cast Disabled Actor In Major Role In 2017

August 2, 2016

‘Doctor Who’ producers are set to cast a disabled actor.

In an attempt by BBC bosses to “reflect the world we live in”, the show’s casting director is making a concerted effort to nab an actor with an impairment to play a major role in the forthcoming series of the popular sci-fi series.

Speaking to the Daily Star newspaper, the show’s casting director Andy Pryor said: “The area where I haven’t pushed hard enough is disability.

“That’s something I want to address in the 2017 series.”

And he isn’t the only one who wants to have a disabled character in the show as the head writer Steven Moffat, who will step down as producer next year, is also on board.

He said: “He’s very much on board with that.”

Andy’s new plan comes just a few weeks after it was revealed that only black actresses were auditioned for the Doctor’s (Peter Capaldi) new companion Bill (Pearl Mackie).

He said: “I wholeheartedly approved of the decision to only audition non-white actresses. You don’t do it for the sake of it. You do it because it’s the right thing to do. Most actors in this country are white. Unless you are conscious about not always going in that direction you’re going to end up with the same cast all the time. And that’s not OK.

“I always want to cast the best actors but I want the show to be interesting, to be attractive to a diverse audience and to reflect the world we live in.”

Is it just that it happened in Japan?

August 1, 2016

Michael Gillan Peckitt's avatarThe Limping Philosopher

It is now six days since Satoshi Uematsu killed 19 people, and injured 26 others at the Tsukui Yamayuri-en care home for the intellectually disabled in Sagamihara, Kanagawa Prefecture. The last few days has been emotional time for me since I live in Japan, have cerebral palsy and am married to a Japanese woman who also has cerebral palsy. We are both academics who write about disability.

It is difficult to know how to respond Uematsu’s killing of disabled people, and I feel that any response is inadequate. What can you say when so many disabled people have been killed or injured. I am not capable of writing anything meaningful that can somehow explain what Uematsu did.

However, a day or so after July 26th – the day of the attack – several friends of mine, friends who are part of the disability community both in the UK…

View original post 365 more words

Daniel Roque Hall Receives £5000 Payout After Being Handcuffed In Hospital As A Prisoner

August 1, 2016

A severely disabled man has been paid £5,000 in compensation after being handcuffed when taken to and from hospital appointments and placed under constant supervision while in intensive care.

Daniel Roque Hall, who received a three-year sentence for smuggling £300,000 worth of cocaine in his wheelchair on his return from a holiday in Peru, has Friedreich’s ataxia, a degenerative disease that affects co-ordination of the whole body.

His condition causes a heart defect and diabetes, and shortens life expectancy. Hall, 33, requires round-the-clock care and is not expected to live beyond 40.

In August 2012, when his condition worsened at Wormwood Scrubs, he was taken to University College hospital in London and placed on a life support machine.

Hall spent the next six months in hospital, and in February 2013 the appeal court ruled that he should be released from prison early after lawyers argued that the Prison Service could not meet his medical needs.

In 2013, a civil claim was issued on Hall’s behalf under articles 3 (the prohibition of torture, inhuman or degrading treatment) and 8 (right to a private and family life) of the European convention on human rights. It was argued that there had been an assault and trespass to Hall’s person on the basis that there was no lawful justification for the use of force against him through handcuffing.

The Ministry of Justice resisted the claim for more than two years, until Hall and the MoJ agreed a £5,000 settlement in what is known as a “part 36” offer – a settlement without admission of liability. Settlements for unlawful handcuffing are extremely rare, and this is believed to be the largest of its kind.

The settlement comes as the prisons and probation ombudsman, Nigel Newcomen, issued a report saying elderly and infirm prisoners are often restrained inappropriately when travelling to and from hospitals for appointments and treatment.

The handcuffing of ill prisoners in hospital has long been criticised by the prisons ombudsman. In 2013, it was revealed that more than 50 dying prisoners over a five-year period had been wrongly chained or handcuffed in the final days of their lives, including a cancer patient who died handcuffed to a prison officer and a prisoner who remained chained to his escort after being put into a medically induced coma.

Newcomen said: “The majority had been restrained while in hospital and it was identified in 51 investigations that the level of restraints used had been inappropriate.”

In the same year the Guardian revealed that 22-year-old Kyal Gaffney, sentenced to 21 months for careless driving under the influence, was handcuffed to a guard when clinically brain dead after having suffered a cerebral haemorrhage. In May this year, Newcomen highlighted the failure of HMP Altcourse for the “degrading” and “inhumane” use of escort chains when two dying inmates were taken to hospital.

The Prison Service is supposed to carry out a risk assessment before cuffing or chaining a sick prisoner on their way to or in hospital but has historically failed to do so, as was the case with Hall. Anne Hall, his mother, challenged the Prison Service at the time, claiming it was cruel and unjustified to handcuff her son.

She said: “The pursuit of this case and the victory we have won shows that it possible to make prisons and [the] MoJ accountable for any mistreatment or lack of compliance with proper procedure.”

Hall said: “The settlement means for me that we proved Wormwood Scrubs abused human rights and ignored Ministry of Justice policy and procedure on assessing who should be handcuffed and who shouldn’t be, even though it won’t admit wrongdoing. That’s an important precedent for other cases and I hope it helps prisoners to be treated like human beings and makes prison governors accountable for how they treat sick and dying and disabled people in prison and when they are in hospital.

“Putting a handcuff and chain on me was bizarre and cruel and stupid, and made me feel like I was not a human being, not worthy of any kind of dignity or respect, whatever my circumstances were, which I can only assume was the point.”

Hall’s lawyer, Andrew Sperling, said: “Daniel cannot stand up or walk by himself. He cannot pick up or hold anything without help. The idea that he posed any kind of escape risk or risk to the public was frankly ridiculous. He was handcuffed during an invasive medical procedure and subjected to constant supervision in his hospital room. The Prison Service must not allow a blanket preoccupation with security to interfere with basic standards of decency and humanity.”

The MoJ said: “We do not comment on individuals. The Prison Service is committed to treating all prisoners with dignity and respect but public safety remains our priority.”

Disability Wales Says The Effects Of PIP Are Devastating

August 1, 2016

Disability Wales says the UK government’s Personal Independence Payment scheme is having a devastating effect on those with disabilities.

The not for profit organisation says it is receiving pleas of help from disabled people from around Wales who say that under the new Personal Independent Payments, they are losing out financially and facing hardship.

Recipients of PIP are assessed using a points system to determine what level of help they receive -claiming between £21.80 and £139.75 per week.

Neil Fabbeni has severe sight problems, and says he will lose around £500 a month from the change.

It’s putting a lot of stress on me, because I’m wondering how I’m going to manage if for some reason I don’t get PIP awarded after going through the reconsideration and the appeal.

I think my health is suffering already because I’m not sleeping, I’m worrying basically everyday of the week as to what can I do.

The Department for Work and Pensions says more people receive the highest possible payment under the scheme, compared to those under the old Disability Allowance.

PIP targets support where it is needed most with more than 20% of people getting PIP now receiving the highest possible payments, compared to 15% under DLA.

We have worked with disabled people, carers and health professionals to make the PIP assessment process as simple as possible and since April 2013 only 2% of all PIP decisions have been overturned at appeal.

– Department for Work & Pensions

Being A Blind Dad

August 1, 2016

As his daughter prepares to celebrate her 21st birthday, Mike Lambert reflects on the challenges of being a blind parent.

Most parents worry about how good a job they’ve done bringing up their children. But having a profound disability gives me some additional pause for thought. My only child Caitlin is at university now and during a recent trip home, we had a very frank discussion about what it’s been like having a blind dad.

She admits she still finds it difficult telling new friends that her dad can’t see. “It doesn’t matter how many times they hear the one about the blind man who climbed Everest,” she says, “people still ask the most basic questions about how you get dressed and get around. I can’t explain, it makes you sound like you’re…”

“Helpless?” I suggest.

“Yes – and then I think they must consider me unusual as well, because I’m your daughter.”

One thing she commonly gets asked is, “Who cares for who?” It’s an upsetting question which raises doubts about my effectiveness as a parent. I don’t feel like my daughter has been a carer though she has pitched in to the wider family effort.

We’ve all heard stories about young carers whose development has been negatively affected by the needs of a sick or disabled family member. And there is research to show that taking on a carer role too early can lead to lower exam results, fewer job opportunities, through to depression and anxiety in adulthood.

Caitlin appears to be happy, however, and she’s a conscientious student, but I sometimes wonder about the psychological consequences of the many ways I relied on her from an early age. “Cait, could you help me find the ketchup?” “Cait, can you help me find the keys I dropped on the floor?” Did these small but constant demands foster an early but helpful sense of responsibility, or were they an ongoing anxiety hanging over her childhood?

Together we tried to remember the first time I held her arm and she took charge of guiding me. We’re both surprised when we realise it may have been as early as six or seven. But Caitlin insists that being an occasional guide always felt natural, never a chore. “It’s like you’re an extension of me and I have a sense of the space we’re taking up,” she explains.

I remember when she was very young, those roles were in reverse. I protected her and it felt like it was she who could be described as a natural extension of me. Before Caitlin got too big, I could simply strap her into the baby-carrier and head out, wherever I wanted, using my white cane to walk. If you can’t see, a backpack is far more manageable than a pushchair and, with it on, I loved collecting Caitlin from her childminder every evening. I felt so proud carrying her while, over my shoulder, she chattered on about her day. I was in charge, like dads are supposed to be.

So it saddened me when I discovered one of the other mums had been discussing with the childminder how dangerous it was for me to be crossing busy roads with Caitlin. I tried talking to that mother but she just couldn’t get it. And it rankled with me all the more because I knew she was an intelligent and sensitive person.

When thinking about care, it’s been important that Caitlin has had a non-disabled mum who’s been able to fill any gaps. And I’m lucky I always had a job to support us all, as well as a network of friends who would help when the going got tough.

As Caitlin got older and started to move through school, I wanted to make sure I didn’t cause her any undue embarrassment and that her school friends didn’t make assumptions about her dad.

When she was nine, I presented a session to her class about Braille. It was well received, and each child left the room with a Braille alphabet card, a secret message to decode later and, so I hoped, the impression that Caitlin’s dad, whilst different, was also an interesting and articulate man.

As a teenager, she became more self-conscious, insisting I should never bring my white cane to school. At 17, she invited her first serious boyfriend back to the house when her Mum and I were at the theatre. She recalls: “I hadn’t told Tom you were blind because I didn’t think you’d meet. But you came back early and I remember us all standing round the island in the kitchen, feeling extremely awkward. Then, when Tom reached out to shake your hand, I had to look away because I couldn’t bear seeing what would happen next.”

In our recent chat, Caitlin brought up an incident she remembered from when she was six. She recalls standing by the window one evening, and seeing me come in from work with blood streaming down my face. Her mum explained I was okay and that I’d had a collision with a carelessly constructed display outside a shop. I’d reported the matter to the police and, when they arrived at the house, Caitlin’s anxieties began to peak.

She says: “I remember sitting there, feeling distraught, wondering what I could do to help. And then it came to me – I must write to the Queen.” We still have a copy of her letter:

Dear Ma’am

This is me, Caitlin. I’m six. I want to tell you about something really important to me. It’s about my Dad he is blind. Every day when my Dad comes home from work, quite often he has bumped into a signpost and it proves that people don’t care about other people who are blind. The last time I saw him bleeding he had got into an argument with a shopkeeper because he had bumped the sign over and my Dad called the plies. Do you have any ideas?

Love from

Caitlin Lambert

Re-reading Caitlin’s letter, I feel sorry for the anxiety I caused her. But, more than anything, I’m impressed at this early example of her tenacity and search for a solution.

So, aside from spawning a royalist, how have I done as a parent? Caitlin reckons she never suffered from any lack of love or attention. Maybe there’s a positive connection between the young woman who now sees herself as being especially observant and sensible, and some of the added responsibilities she assumed at an early age. Although as Caitlin points out: ‘I like being sensible – and who’s to say I wouldn’t have been sensible anyway?”


How Pokemon Go Transformed Autistic Teen’s Life

August 1, 2016

A mobile phone game that has caught the attention of the world also appears to have caused a breakthrough with autism sufferers.

Pokémon Go, released in the UK in earlier this month, is played by users walking around the real world to catch virtual Pokémon animals.

It appears the game’s mix of real and virtual reality has helped to break down many of the social barriers autistic people feel when they are out in public.

Victoria Derbyshire, weekdays from 0900-1100 BST on BBC Two and the BBC News Channel. Follow the programme on Facebook and Twitter, and find all our content online.

DRUK And Stephen Brookes MBE Respond To Events In Japan

August 1, 2016
With many thanks to Disability Rights UK:

Disability Rights UK is shocked and alarmed at the news that 19 disabled people have been killed at a residential care centre in the Japanese city of Sagamihara.

It appears that the motive of the killer was hatred of disabled people.  The attacker is reported to have told police that ‘he wanted disabled people to disappear’.

Stephen Brookes MBE, co-ordinator of the Disability Hate Crime Network says:

“Hate Crime is an abhorrence Disability Rights UK and the Disability Hate Crime Network are continually fighting, and the terrible acts of murder and serious injury committed last night in Japan against disabled people by someone who saw us as valueless is yet another proof we are living in a seriously disengaged world. Targeted inhumanity and mass death is almost an expected news item every morning.

Politicians and prospective leaders have weak, and in too many cases almost complicit attitudes to directed abuse insult and hate performed in their name or policies, particularly in unregulated social media posts; to be courteous and considerate to others is almost becoming a questionable action. 

There is the reality of an increased level of violence becoming a media driven norm, where devaluation of life is ‘aided’ by PC games based on points and rewards for mass killing.

We need a real change at all levels in creating a set of values in which disabled people stand firm against the betrayal they face from disinterested society.”

Notes

  1. In this country the Home Affairs Committee intends to carry out an inquiry into hate crime and its consequences, including lone wolf attacks such as the killing of Jo Cox MP and this incident in Japan. Disability Rights UK will be responding to this inquiry – see www.disabilityrightsuk.org/news/2016/july/inquiry-hate-crime-and-its-violent-consequences
  2. The Crown Prosecution Service’s eighth Hate Crime Report details a 41 per cent increase in disability hate crime prosecutions, compared to 2014/15.

A Review Of Liz Carr’s Assisted Suicide- The Musical

August 1, 2016

A Disabled Man Living In Japan Responds To Last Week’s Events

July 31, 2016

This is a guest post by Michael Gillan Peckitt, a disabled man living in Japan. Thanks to Michael.

By Michael Gillan Peckitt, Kobe, Japan

As I write this it is now six days since Satoshi Uematsu stabbed 19 people, and injured 26 others at the Tsukui Yamayuri-en care home for the intellectually disabled in Sagamihara, Kanagawa Prefecture.

We now know that Uematsu, on February 15th 2016 took a hand delivered letter to the Speaker of the Japanese Diet’s Lower House. Here is the letter in full:

“Dear Lower House Speaker Tadamori Oshima,

Thank you very much for reading this letter. I can wipe out a total of 470 disabled individuals.

I am fully aware that my remark is eccentric. However, thinking about the tired faces of guardians, the dull eyes of caregivers working at the facility, I am not able to contain myself, and so I decided to take action today for the sake of Japan and the world.

My reasoning is that I may be able to revitalize the world economy and I thought it may be possible to prevent World War III.

I envision a world where a person with multiple disabilities can be euthanized, with an agreement from the guardians, when it is difficult for the person to carry out household and social activities.

I believe there is still no answer about the way of life for individuals with multiple disabilities. The disabled can only create misery.

I think now is the time to carry out a revolution and to make the inevitable but tough decision for the sake of all mankind. Let Japan take the first big step.

Would Mr. Tadamori Oshima, who bears the world, use his power to make the world proceed in a better direction?

I sincerely hope you would deliver this message to Mr. Shinzo Abe.

This is the answer I reached after serious thinking about what I can do for humankind.

Dear Lower House Speaker Tadamori Oshima, would you lend your power for the sake of dear Japan and all humankind?

Please give this full consideration.

Satoshi Uematsu

The Plot

It will be carried out during the night shift, when staffing is low.

The target will be two facilities where many multiply disabled people reside.

Staff on guard will be strapped with cable so they can’t move and can’t make contact with anyone outside.

The act will be carried out speedily, and definitely without harming the staff.

After wiping out the 260 people in two facilities, I will turn myself in.

In carrying out the act, I have several requests.

After my arrest, my incarceration should be up to two years, and please let me lead a free life afterward.

Innocence on grounds of insanity.

A new name (Takashi Iguro), government registration and documents such as a driver’s license needed for everyday life.

A disguise for regular society through plastic surgery.

Financial aid of 500 million yen ($5 million).

I would like these conditions to be promised.

If you can make your decision, I will carry it out at any time.

Please consider this fully for the sake of Japan and world peace.

I hope with all my heart that this can be discussed with Prime Minister Shinzo Abe, although I am sorry to trouble him in an unimaginably busy schedule.

Satoshi Uematsu

(address, telephone number)

Worker at the Kanagawa Kyodokai”

 

We also know that on February 19th, Uematsu was questioned by the Tsukui Police, where upon he repeated his threat, and under Mental Health Laws, was ordered to undergo a mandatory hospitalization.  Marijuana was found in Uematsu’s blood and urine on February 20th.  According to The Asahi, on March 2nd Uematsu was discharged:

 

“saying that his symptoms had eased. At that time, he submitted a report to the hospital, which said, “I will live with my family after leaving the hospital.”

 

It is widely reported that around this time, Uematsu also became interested in the ideas of Adolf Hitler, telling a hospital employee that:

“The ideas of Hitler came to me two weeks ago…The Nazi government implemented a forced euthanasia program for the congenitally disabled, referred to by the Third Reich as “useless eaters” and ‘life unworthy of life’.”

 

Questions are now being asked what more could have been done to prevent the murders. As NHK World reports:

“Following his discharge, the care home installed more than a dozen security cameras based on police advice.

Kanagawa Prefecture oversees the facility. The Gov. Yuji Kuroiwa says his office was left in the dark and none of that information was shared with him.

“We believe there have been problems in the way authorities share information. We will cooperate with the authorities concerned so this kind of incident never happens again. We will verify the matter thoroughly in order to develop preventive measures,” he says.

The governor said people tend to think the suspect’s discharge was too early. But he said holding him any longer would have created a human rights issue. He said he wants to consult with experts on how to best deal with such a situation.

An expert on forensic psychiatry said more information is needed to tell whether proper measures were taken during Uematsu’s stay in the hospital.

“It’s hard to say at this point whether this incident was preventable or not. I have to say that there was no problem with him being released from hospital because the doctors saw that he was no longer mentally disturbed at that time,” Igarashi says.

But he says the problem is that there’s no proper follow-up system after such people are released.

“We have to carefully analyze his mental condition and how he was living his life in the period between his release and the attack. And we have to utilize the results to come up with effective measures to prevent this kind of tragedy,” Igarashi says.”

I have been living in Japan since August 26th 2012. I have left sided spastic hemiplegia, and my wife, Minae, a Japanese citizen, has athetoid cerebral palsy. As people with disabilities, the murder of intellectually disabled people at the care home in Sagamihara, Kanagawa certainly leaves us shaken. It is difficult not to be worried about friends who have disabilities, much more severe than ourselves, and to be reminded that there are people who view the lives of disabled people, as simply a life not worth living.

However, to conclude from the killings in Sagamihara that Japan somehow has some issue with physical disability, I believe is wrong.  Japan is on par with any country when it comes to having a disability, meaning that it is no paradise for disabled people, but neither is it a hell. Attitudes could be better in Japan it is true, it wasn’t long ago that disabled people, for having mild cerebral palsy were taken out of school and placed in residential care, but times are changing.

Employment law already stipulates that every public company must employ a certain amount of disabled people and on April 1st of 2016 The Law to Eliminate Discrimination against People with Disabilities was passed.  This is essentially a law that bans hate speech aimed at disabled people and enforces an anti-discrimination law. As The Japan Times explains:

What does the law ban and seek?

 

The law comprises two key parts. For the first time it bans “unjust discrimination” against people with disabilities. It also asks government agencies and private businesses to take “reasonable accommodation” to remove social barriers for such individuals.

 

What is considered discriminatory under the law?

 

The government has issued rough guidelines on examples of acts deemed discriminatory, under which organizations cannot refuse to serve people because of their disabilities, delay responses to their requests or bar their attendance to symposiums or other events. Signs that say “No people with disabilities” are now banned.

 

Examples of “reasonable accommodation” include “writing documents from dictation upon request,” “using illustrations, dictations, cards and PC tablets to communicate,” and “making seating arrangements in a way that take their disabilities into consideration.”

 

But the examples do not cover every situation and leave room for interpretation and negotiation. Also, the central and local governments are legally mandated to take measures, but private-sector entities are only asked to “strive” to take action. Private-sector organizations can be slapped with a fine of up to ¥200,000 if they don’t report to authorities on their practices when asked or make false claims in their reports.

 

Do these pointers provide enough information for people to take proper action?

 

Rights advocates say no. “The law does not clearly define what exactly constitutes discrimination,” said Kiyoshi Harada, an official at the secretariat of Japan Disability Forum. JDF is a nongovernmental network consisting of 13 national-level organizations working on behalf of people with impairments.

 

“The law’s significance lies in the fact that municipal governments and businesses are asked to take action. This has given people legal grounds to lodge complaints when they have issues,” Harada said.

 

He said “reasonable accommodation” is specific to individual needs and hard to generalize. “It’s different from ‘barrier-free’ regulations, where rules are much more clear-cut, such as the size of certain building equipment or angles of ramps.”

 

For example, blind workers might ask their employers to make documents available in Braille. Employers are required to respond to such requests to the best of their ability, but they might find it financially difficult to put all documents in Braille. In such cases, explaining their difficulty to those who made the requests and offering alternatives, such as providing documents in advance or electronic versions, can be regarded as fulfilling their obligation, Harada said, noting that, this way, blind employees have time to ask other people to read the documents for them or use computer software that reads out typed text.

 

Now that the law is in place, data on what kind of requests are made and how they are dealt with can be collected. Such a database will eventually set standards for unacceptable behavior and for recommended practices, he said.

 

What if parties disagree on the law’s requirements?

The law merely says the central and local governments should respond adequately to requests for consultation from people with disabilities, their families and other supporters to resolve disputes.

Specifically, welfare officials at both government levels are encouraged to create regional councils to help resolve conflicts, though it is not mandatory. Council members can include representatives of rights groups, family members, government officials and academics. According to a recent survey by the Cabinet Office, only 112, or 6 percent, of 1,741 municipalities in Japan had set up such councils before the law took effect. Exactly what these councils are supposed to do is not spelled out in the law, however.

 

The law must be reviewed in three years. How can it be improved?

 

Harada said the regional dispute-settlement mechanism should be beefed up, and ideally be separated from government oversight. Japan has no independent watchdog that handles issues related to human rights, not only for people with disabilities but also for other vulnerable members of society, including women.

 

“Ideally, we’d like to see something like the Board of Audit of Japan, which supervises government spending,” he said. “For example, the Justice Ministry has a bureau that deals with human rights issues, but because it is a ministry bureau questions (of neutrality) arise when it comes to human rights at prisons, which the ministry also supervises. We need a mechanism similar to the audit board.”

 

The law should also make it mandatory for companies to take “reasonable accommodation” on the issue, he added.

 

“I want people to know the law, as it is the first one of any kind banning discrimination,” Harada said. “The law could be the first step to creating a society where everyone — regardless of whether they have a disability — will be free of discrimination.”

 

In response to the stabbings Prime Minister Shinzo Abe has ordered a review of the Mental health care system. According to NHK World “Abe asked ministers to consider ways to improve safety at care facilities and the follow-up system for patients discharged from psychiatric facilities following compulsory hospitalization.”

I applaud such a review, I only wonder what took the Japanese government so long to undertake such a review.

We Need To Talk About Japan

July 31, 2016

Accessibility For Travellers With Disabilities

July 30, 2016

As many of us embark on our summer holidays this month Phil Williams, presenter of the late evening show on 5Live, discusses the issues of accessibility for travellers with disabilities.

Important New Legal Judgement Rules That Walking Through Pain Is Not Acceptable For PIP

July 29, 2016

With many thanks to Disability Rights UK.

A significant new legal judgment holds that while someone may ‘push through pain’ in order to continue walking this does not mean that they are walking to an “acceptable standard” for Personal Independence Payment (PIP) purposes.

The new judgment means that consideration should not only be given to whether a disabled claimant can reliably walk up to 20 metres or 50 metres in total.

In addition, consideration should also be given to whether they are walking through pain before reaching 20 metres or 50 metres.

In CPIP/665/2016, Upper Tribunal Judge Markus rejects the Secretary of State’s submission that if pain was not significant enough to prevent someone walking it is only at the stopping point at which the pain meant that walking was to an unacceptable standard.

While Judge Markus finds that while the appellant in this case had not succeeded in showing that he could not walk over 50 metres repeatedly or within a reasonable time period:

“… he said that he did so in considerable pain … and that he would rather push through the pain in order to stay as active and independent as possible.

The tribunal was wrong not to consider what the impact of pain was on the appellant’s ability to mobilise the distance found to an acceptable standard.”

Read fuller summary of CPIP/665/2016

Read full decision

Internet Sensation Jo Milne Gives Bangladesh Kids The Gift Of Hearing

July 29, 2016

Two years ago Jo Milne became an internet sensation when footage of her hearing for the first time appeared on YouTube. Since then she has rekindled a long-lost friendship, enlisted the support of 1970s pop group The Osmonds and travelled to Bangladesh to help hundreds of deaf children.

More than 10m people shared the moment when Jo Milne, who was born deaf, heard for the first time at the age of 39. She had been fitted with cochlear implants and the footage of her tears of joy on hearing a nurse read to her went viral.

Amid the flood of well-wishers was a long-lost friend – Amina Khan.

Jo had known her since she was 11 but, when Amina married at 16 and moved away to Bangladesh, the pair lost touch.

They had formed a close bond because they were both “different”, Amina said. Her family was the only Asian one on their Gateshead estate and Jo was deaf.

“It was a special bond because we were different and there was a little bit of bullying going on,” she said. “It was always a warm and friendly place, but there were some spiteful kids.

“But we were so close we didn’t even realise. We were in our own little world.”

They had plans for their future, too.

“As we were growing up we always used to say to each other that one day we would try to help the poor children of Bangladesh,” said Amina.

Support for the pair’s plans came from an unlikely source – The Osmonds, six brothers from Utah who formed a band with the intention of making money for their deaf elder brothers.

Members of band saw Jo’s video and were moved. They got in touch to ask her to be an ambassador for their charity, the Hearing Fund UK, and the wheels were set in motion to turn a vague childhood promise into reality.

Jo said 5% of children in Bangladesh – 1.2m – are deaf. The plan was to fit 500 of them with hearing aids in the space of two days.

Simply boosting sound, aids are a more basic solution than the cochlear implants Jo had fitted – electronic devices that replace the function of the damaged inner ear, sending sound signals to the brain.

Jo and Amina travelled to Dhaka, the capital of Bangladesh, to film the life-changing clinics.

The “hustle and bustle” of one of the most congested cities in the world was a shock to Jo’s newly revived sense of hearing.

“I was looking this way and that – I’ve never known so much traffic, so many people,” she said.

As the day of the first clinic dawned, the queue outside grew longer and longer.

Despite being highly planned with lots of volunteers, the sheer number of people needing help meant families waiting for hours in the intense Dhaka heat.

For hearing aids to be fitted, the ears need to be perfectly clean so many of the youngsters had to have theirs cleaned before moulds were made. Once the aid was fitted the volume was gradually turned up to reach the right level.

“Watching their eyes light up, they are all reacting differently to hearing sound,” Jo said.

“Some having a quiet reaction others crying. Watching them turning from left to right reacting to sound is amazing.”

The hearing aids worked for most, but not all, of the children.

Rokaya Begum, whose two sons and daughter had them fitted, said: “My children can hear me and have conversations – it doesn’t get much better.”

Sixteen-year-old Morium said she could hear the pigeons. “They sound good,” she said.

Her mother said it would mean she could get an education and job and be able to look after her parents.

To eventually see their dream of helping children in her home country come true had been “a very emotional journey” for them both, Amina said.

“I couldn’t have done it alone,” Jo said. “There were so many children involved.”

The hearing aids “had broken down all those isolating barriers,” she said.

For Jo, the chance to see the children’s reactions is priceless. Despite regaining her hearing, her disorder – Usher syndrome – means she is now losing her sight.

She uses a white stick and compares her diminishing vision to looking at the world “through a letterbox”.

“It was a thought provoking visit – being deaf is a very isolating condition anyway,” she added. “The stigma surrounding deafness is a world-wide issue.

“But there are thousands and thousands of children like Morium.

“At the end of the day it is a hearing world and hearing aids have enabled me to be a part of it.

“This has been a humbling experience, but it’s not over – there are so many more children that I want to reach.”

The Gift of Hearing will be shown at 19:30 GMT on 29 July on BBC One in the North East and Cumbria, and at 23:05 BST on 4 August on BBC Two nationwide.

Portraits Untold

July 28, 2016

Disabled artist Tanya Raabe-Webber’s new project is examining what connects us as humans.

Called Portraits Untold, she is painting four people who have achieved “great things” – including Dame Evelyn Glennie, a profoundly deaf percussionist, and Neil Baldwin, the Stoke City FC mascot who has a learning disability and was subject of the award-winning film Marvellous.

As she paints, she and the sitter have a conversation exploring diversity and humanity to “discover the fact that we are a united species of human beings”.

Large Number Of Claimants Wrongly Paid DLA And PIP At The Same Time

July 27, 2016

With many thanks to Benefits And Work.

 

Documents obtained by Benefits and Work suggest that a large number of claimants are wrongly being paid both disability living allowance (DLA) and personal independence payment (PIP) at the same time.

In a document entitled ‘Critical Process Points – PIP Top Must Do Actions’ DWP staff are warned that failure to follow instructions is leading to “high volumes of overpayments of PIP and DLA”.

The document states that:

“When processing all reassessment cases (including SRTI) you must wait for the task generated following receipt of the AP report before recording the decision. This task is purposely delayed by PIPCS whilst it starts a data extract process with DLACS.

“Failure to wait for this task or taking action to record the DLA other benefit information manually, is contributing to high volumes of overpayments of DLA and PIP. This is because the system has not had time to complete the data exchange process and both DLA and PIP can be in payment.”

Claimants who are told they have been overpaid benefits in this way should try to get help from a local advice agency or law centre.

New PIP Review Form

July 27, 2016

With many thanks to Benefits And Work.

 

Benefits and Work has obtained a sample copy of the Award Review (AR1) form introduced last month for personal independence payment (PIP) claimants. The form is being issued when a PIP award is due for renewal or where there is a change in a claimant’s condition or circumstances.

The Award Review form is meant to make it easier for claimants to tell the DWP what has changed without having to complete a whole ‘How your disability affects you’ form.

It is intended for use where a time-limited award is due for renewal or where claimants tell the DWP about a change in their circumstances. It may also be used where information provided by someone else suggests there may have been a change in a claimant’s condition.

The form is 12 pages long. It begins by explaining:

We know people’s lives can change making it easier or harder for people with a health condition or disability to do everyday things, so Personal Independence Payment (PIP) is awarded for a set time. This means we need to check to see if anything has changed.

For example, your needs may have changed, you may have had your home adapted, your medication or treatment may have changed or you may have worked out different ways to do things.

We need to ask about any changes in how your health condition or disability affects you since we last looked at your PIP claim.

This form is the easy way to tell us about any changes and help us get your PIP award right.

The form follows a standard format. So, for the ‘Preparing food’ activity, for example, you are asked to say whether doing so is:

  • Easier
  • Harder
  • No change

You are then asked what has happened and when. You are also asked to say how this has made things easier or harder in your life.

There are also questions about treatment and medication.

A decision maker will look at the form and either make a fresh decision based on the information in it, along with your previous assessment report and any new medical evidence, or refer the case to Maximus or Capita if they consider that more information is needed.

We’ll be publishing guidance on completing the AR1 in an updated version of our PIP guide later this summer.

Meanwhile, subscribers can download a sample copy of the PIP Award Review (AR1) form from the DWP Resources section of the PIP member’s area.

Important: Capita Home Assessments

July 27, 2016

Japan Care Home Stabbing: Knifeman Wanted Disabled To ‘Disappear’

July 26, 2016

At first glance, the stabbing incident in the Japanese care home looks like simply a sacked employee seeking revenge. However, when you look closely at the knifeman’s recent words and actions, it becomes clear that this was actually a disability hate crime.

The BBC deserve our thanks for covering this aspect of the incident, which is of course extremely sad and shocking.

Nineteen residents have been killed in a knife attack at a care centre for people with mental disabilities in the Japanese city of Sagamihara.

Such attacks are extremely rare in Japan – the incident is the worst mass killing in decades.

Police have arrested a man who worked at the centre until February, and who turned himself into police after the attack.

He reportedly said he wanted people with disabilities to “disappear”.

The brutal killings have shocked Japan, one of the safest countries in the world.

Who was Japanese knife attacker?

Chief Cabinet Secretary Yoshihide Suga said it was “a very heart-wrenching and shocking incident in which many innocent people became victims”.

Letter to politicians

The suspect has been named as 26-year-old Satoshi Uematsu.

He sent letters to politicians in February in which he threatened to kill hundreds of disabled people during a night shift, Kyodo news agency reports.

“My goal is a world in which the severely disabled can be euthanised, with their guardians’ consent, if they are unable to live at home and be active in society,” Uematsu wrote in a letter to the speaker of the lower house of parliament, obtained by Kyodo.

He was kept in hospital for almost two weeks before being released.

The governor of Kanagawa prefecture, Yuji Koroiwa, has apologised for not acting on warning signs.

How the attack unfolded

Uematsu drove to the Tsukui Yamayuri-en care facility, located about 50km (31 miles) from Tokyo, in the early hours of the morning, armed with several knives.

He entered the building by breaking a window at 02:10 local time (17:10 GMT), a prefectural health official said, and began attacking residents by slashing their throats.

Staff called police around 20 minutes later to report what was happening.

The stabbing rampage lasted around 40 minutes, the Associated Press news agency reports. Uematsu’s 19 victims were aged between 19 and 70, Kyodo said, citing the Sagamihara City fire department.

Another 25 people were wounded, 20 seriously. Both men and women were reported to be among the dead.

Soon after the attack, Uematsu turned himself in at the Tsukui police station and reportedly admitted the attack, appearing to have driven himself there.

Pictures have emerged of the steering wheel of his car, stained with blood.

“When Uematsu turned himself in, he was found carrying kitchen knives and other types of knives stained with blood,” a Kanagawa official told reporters.

One local resident, Chikara Inabayashi, 68, told AFP he had been woken by the sound of sirens at about 03:00.

“I was astonished, that’s the only thing I can say.”

The facility, set in extensive grounds, had about 150 residents at the time of the attack, according to local officials. Eight staff members were on duty at the time.

One doctor told NHK: “The patients are very shocked and they cannot speak now.”

One woman who said she used to work at Tsukui Yamayuri-en told local media: “They are truly innocent people. What did they do?”

Officials have ruled out any link to terrorism.

Mass killings are extremely rare in Japan, in part because strict gun control laws means almost no-one has access to a firearm.

Important: Benefit Cap Changes From Autumn

July 26, 2016

With many thanks to Gail Ward.

 

From Autumn 2016 the benefit cap is going to be reduced and will be set at a different level depending on whether you live inside or outside London:
• £442.31 a week if you are a couple or have children and live in London
• £384.62 a week if you are a couple or have children and live outside London
• £296.35 a week if you are a single person and live in London
• £257.69 a week if you are a single person and live outside London

When the reduced benefit cap is introduced, the benefits included when seeing if your benefit income exceeds the cap will be:
• Child Benefit
• Child Tax Credit
• Housing Benefit
• Incapacity Benefit
• Income Support
• Jobseeker’s Allowance
• Employment and Support Allowance (except when in the support group)
• Maternity Allowance
• Severe Disablement Allowance
• Widowed Parent’s Allowance & Bereavement Allowance
If you are affected by the reduction in the benefit cap your Housing Benefit or Universal Credit will be reduced at some point after Autumn 2016. When this happens will depend on where you live and as yet no schedule has been released.

Neighbours Casts Disabled Actor As Corporate Whizzkid James Udagawa

July 26, 2016

Thank you, Neighbours. This disabled viewer is very proud to call herself a lifelong fan of your show.

Neighbours has cast Sam Humphrey in the guest role of corporate whizz kid James Udagawa.

The 22-year old actor was born with acrodysostosis – a generic disorder which affects growth development.

He was brought to the attention of casting directors after appearing on a documentary that focused on young people with physical disabilities and the challenges they face to achieve their goals.

The initial plan was to bring the acting newcomer in as an extra, but after bosses viewed some of his own self-produced videos online, a more substantial role was written for him.

Upon arriving in Erinsborough, highly-intelligent James will be given the task of saving Lassiters from financial ruin and also reining in troubled Terese Willis.

Speaking about joining the soap, Humphrey said: “I love the whole process and I’ve learnt so much on Neighbours.  I want to keep improving my skills and hopefully inspire other people to chase their dreams.”

Neighbours will air James’s first scenes in August.

Thursdays demonstration. Driven to a nervous breakdown and a 70 year old lady devastated.

July 25, 2016

Charlotte Hughes's avatarThe poor side of life

As soon as I arrived outside Ashton Under Lyne Jobcentre I was stopped by a lovely gentleman. He said to me that he had been waiting for me to arrive because he had been told that we would be there. He just wanted to tell me his story and to thank us. Here is his story. It’s not unusual by any means, but alot of people just dont see the reality of it all. You wouldn’t believe how many people still ask me what a sanction is. I suppose its the old addage, if it doesnt affet me then Im not bothered.

He didnt give me his name, that’s often the case. As Ive said before claimants want to protect their anonimity, and I respect their wishes. Not to do so would be very rude.

He had worked all his adult life, hardly had any time off sick and was…

View original post 682 more words

Disabled Grandmother’s Face Left ‘A Jigsaw’ By Iron Bar Attack

July 25, 2016

Same Difference doesn’t usually include photos in articles like this. However, we hope you understand why we have chosen to include the photo below, shocking as we know it is.

 

 

Barbara Dransfield

A GRANDMOTHER reliant on a wheelchair was violently attacked by two vicious thugs who had broken into her home.

Barbara Dransfield, 63, is now in intensive care after being rushed to hospital earlier this week.

Her heartbroken husband Leonard, 65, revealed she has been taken into the intensive care unit at Crumpsall Hospital and her condition is described as ‘life threatening’.

The attack happened at their home in Ashton-under-Lyme on Tuesday.
Top news stories today

He said: “She has been taken into ICU and put into a coma and on life support. The doctors said it is life threatening.

“During the night she took a turn for the worse. She seemed to be getting better but last night that was it.”

Shocking images of 63-year-old Barbara’s injuries were released by her family on Thursday in a bid to help police catch her attackers.

Doctors described her face as ‘like a jigsaw’ after she was treated at hospital.

Two men broke into the bungalow, where she lives with Leonard, using a stone to smash through the back door.

Barbara was woken by the noise and managed to get out of bed, into her wheelchair and out through the bedroom door before she was confronted by them.

A 29-year-old man was later arrested on suspicion of aggravated burglary. He has been released on bail until August 26.

Det Insp David Loughlin said: “This was a vile attack on a vulnerable woman who was alone at home.

“She has been left in hospital being treated for some nasty injuries which could have been even worse.

“We would urge anyone who may have seen anybody acting suspiciously in the area or knows anything that can aid our investigation to come forward and help us catch those responsible for this attack.”

 

Dr Tony Cox Feels ‘Martyred’ And Says He Will Fight ‘Political’ Sentence

July 25, 2016

A welfare activist claims he is the victim of a “political attack” and supporters say he’s being martyred after being found guilty of swearing at disability assessment centre staff.

Dr Tony Cox was sentenced to 150 hours of community service for the offence, which happened while he was accompanying a benefits claimant.

The Scottish Unemployed Workers Network volunteer plans to appeal against his conviction, which was handed down at Dundee Sheriff Court yesterday (Thursday, 21 July).

Cox attended the Maximus Assessment Centre at Caledonian House in Dundee on 15 November last year, and Maximus refused to allow him to accompany a vulnerable woman to her assessment and called the police.

The court heard that he argued with Maximus employees that the claimant had the right to be accompanied.

Cox was arrested and held overnight in police cells.

US-based company Maximus took over work capability assessments from French IT company Atos last year.

Cox, of Dundee, was unrepentant following his sentence. He said: “I am furious with the verdict, being made to carry out 150 hours of unpaid work within six months is a clear attack on my ability to carry out my work helping people through the Scottish Unemployed Workers Network.”

John McArdle, co-founder of disability rights campaign Black Triangle, said: “We allege that the conviction and sentence of Dr Tony Cox is a miscarriage of justice.

“Tony Cox is being martyred for reaching out to vulnerable people with physical and/or mental impairments in distress – whose fundamental human right it is to be accompanied to these notorious Work Capability Assessments by a person of their choosing.

“Black Triangle believes that the sheriff court has erred in its findings, which appear on the face of it not to have been made out by the prosecution to the required standard of proof, which is beyond a reasonable doubt in criminal cases.

“In stating that the court preferred the hearsay evidence of the Maximus employees over the corroboration of witnesses in Dr Cox’s defence, it appears to us that the conviction is unsafe, as a decision on Tony’s culpability seems to have been made on the standard of proof applicable to civil cases: the balance of probabilities.

“At most, we believe a verdict of not proven would have been the only option available to the crown.

“We will be supporting Dr Cox in his appeal and are confident that Tony will be exonerated once the evidence has been reviewed at appeal.”

Scottish Unemployed Workers Network activists held a protest outside the court, insisting “advocacy is not a crime”.

A spokesperson for the group said: “This case is of importance to welfare activists everywhere, who need to feel free to advocate for people needing help, to support people through an often hostile system, and to question misinterpretations of the rules. The Maximus assessors don’t like being checked up on and don’t react well to being corrected.

“When Tony Cox pointed out to one of the assessors that he was fully entitled to take notes and use them in any subsequent appeal, she took against him and called the police.

“However, the person he was accompanying was able to reassure them that no crime had taken place. When, months later, he attempted to accompany someone else to an assessment, that same assessor insisted he left the building. When he refused to abandon the person he was helping, the assessor called the police.”

Maximus has been asked for comment.

UK’s First Double Hand Transplant ‘Tremendous Success’

July 22, 2016

The UK’s first double hand transplant operation has taken place at Leeds General Infirmary and the patient says his new hands look “tremendous”.

Chris King, from Doncaster, lost both his hands, apart from the thumbs, in an accident involving a metal pressing machine at work three years ago.

The 57-year-old received two new hands from a donor and says he already has some movement in them.

Prof Simon Kay led the operation at the UK’s centre for hand transplants.

Mr King is the second person to have a hand transplant at Leeds, but the first to have both hands replaced.

He said: “I couldn’t wish for anything better. It’s better than a lottery win because you feel whole again.”

Mr King said the operation, which took place in the past few days, appeared to have been a complete success.

“They look absolutely tremendous,” he said.

“They’re my hands. They really are my hands. My blood’s going through them. My tendons are attached. They’re mine. They really are.”

Prof Kay, a consultant plastic surgeon, said: “It’s the first time as far as I’m aware that a hand transplant has been done which hasn’t been above the wrist, which has been within the substance of the hand, which makes it much more difficult and more complex.”

And he said there was more to think about when transplanting hands rather than internal organs.

“Nobody cares what their kidney looks like as long as it works.

“But not only do we have to match the hands immunologically, in the same way that we have to match kidneys and livers, they also have to look appropriate because the hands are on view the whole time.”

Prof Kay also said there could be a psychological impact on the patient of receiving hands from a donor.

Families also found it harder to contemplate donating the hands of a loved-one, he said.

Beer in hand

Mr King said he couldn’t wait to take the bandages off to look at them properly.

And he said he was really looking forward to holding a bottle of beer and wearing shirts with proper buttons again.

“It was just like the hands were made to measure. They absolutely fit,” he said.

“And it’s actually opened a memory because I could never remember what my hands looked like after the accident because that part of my brain shut down.”

He says he remembers the accident perfectly but said there was no pain and no trauma.

Mr King’s passion is cycling and he said he was now itching to ride properly again and start doing simple things, such as gardening and using his ride-on mower.

After his accident, Mr King was introduced by Prof Kay to Mark Cahill – the first person to have a hand transplant in the UK, in 2012.

He said Mr Cahill encouraged him to have the operation and they’re now good friends, he said.

“We’ll shake hands one day. It’s wonderful stuff.”

The team at Leeds General Infirmary is hoping to perform between two and four hand transplant operations a year and there are currently four people on the waiting list.

Mr King encouraged more people to pledge to donate their hands.

He said: “Even if you don’t have a card, just have the conversation with your family.

“There’s no greater gift.”

Sport England funding will increase sporting opportunities for deafblind people

July 22, 2016

A press release:

 

Grant of £424,958 has been awarded to national deafblind charity, Sense, to fund the ‘Sporting Sense’ project

 

(21 July 2016) – Sense, the national deafblind charity, has been awarded a grant of £424,958 from Sport England to increase opportunities for people with deafblindness to participate in sport and physical activity through its ‘Sporting Sense’ project.

Sense will use the investment to continue developing a wide range of physical activity programmes for England’s growing deafblind population, who are among the hardest to reach within the disability sector.

Participation in sport has significant physical, mental and emotional benefits, yet over 300,000 people with dual sensory loss in England encounter a number of complex barriers to take part inactivity. The funding from Sport England will enable Sense to develop the pathways that lead to appropriate, safe and accessible sport provision.

 

Sense’s National Sport Manager, Ian Carpenter, said:

“We know from our experience supporting people with deafblindness, that many encounter barriers to access sport. We believe the opportunity to participate in sport should be open to everyone. This grant from Sport England will enable more deafblind people to experience the benefits that sport provides. We’ll be working in partnership with other organisations supporting them to develop their own programmes. This will increase the demand and available opportunities for deafblind people to take part in meaningful sports activities.”

Sport England’s Director of Insight, Lisa O’Keefe, said:

“Sport England’s new strategy; Towards an Active Nation, sets out a vision that everyone, regardless of their age, background or level of ability feels able to engage in sport and physical activity. Sporting Sense provides the opportunity to do just that, enabling people with deafblindness to experience and enjoy physical activity or sport as part of an active life.”

The ‘Sporting Sense’ project, launched in June 2016, is set to run until May 2018. The project will see Sense setting up targeted sports activities for three different groups of the deafblind population, whilst working across the sports, health and social care sectors. The project will influence the development and delivery of local physical activity plans, which will include working alongside deafblind people.

Jeremy Corbyn’s Leadership Campaign Launch Speech Focuses On Welfare And Inequality In The Workplace

July 21, 2016

Same Difference would like to  take this opportunity to say that we fully support Jeremy Corbyn’s second leadership campaign. We wish it every success.

Reader’s Email: The Experiences Of A Disabled Student Studying Social Work

July 21, 2016

Same Difference received this this morning from reader Nick Wild. We ask you to share it widely, to get his story out there. Also, please share any similar experiences you may have had in the comments below.

 

I’m in a pretty desperate situation.

I qualified as a social worker a year ago today and I still can’t get a paid job.

I’ve been discriminated against throughout my university degree and the local authority also caused me problems.

The local authority wouldn’t place me as a student at first because they said it would be unfair on the children and too much responsibility to look after me. I walk with a stick.

By the time they apologised they had already given all the available placements to able bodied and younger students. By this stage I was already a year late in finishing.

The students that they gave the placements to were given full time posts when they finished. I wasn’t even offered an interview.

I should be earning about 39k but I’m having to go to food banks and I’m facing eviction.

I need support and I want an investigation into the experiences of disabled social workers and students, as I’ve heard that my story is quite common.

 I want to add that I’ve been told that I’m bloody good at my job but no one will give me a chance.

My partner developed cancer and I had surgery twice in my 2nd year at uni. I still struggled through and graduated. If I can do that, then I can do anything. My partner is also a social work student at a different university. He suffered discrimination when he got cancer.

Judged Fit For Work- After Losing A Leg At Work

July 21, 2016

When it comes to the government’s treatment of disabled people, we are now all too familiar with the punitive “fit-for-work” tests, the widely scorned assessment that determines who’s eligible for out of work sickness benefits and who’s not. But the story of Andy Davis – a disabled 55-year-old currently struggling through the endless hoops of the jobcentre – gives a stark insight into what is often obscured: what happens next.

Davis – a former oil rig labourer – had his leg almost completely severed in an accident at work 20 years ago. As he’s got older, the impact of the injury has taken its toll and he struggles to walk. “Every step requires concentration,” he tells me from his sheltered accommodation in Merseyside. “I either wince all day or doze off from the painkillers.”

The damage to his leg is severe enough to mean he’s been given a lifetime award of Industrial Injuries Disablement Benefit – and this year his doctor told him he’s not physically able to hold down a job. Regardless, in May, the Department for Work and Pensions (DWP) ruled Davis “fit to work”. Like every disabled or chronically ill person rejected for out-of-work sickness benefits, that means he has no choice but to claim jobseeker’s allowance (JSA) and look for work instead.

“When I got the assessment result letter, I went to the jobcentre and asked the adviser behind the desk, ‘Who on earth is going to employ somebody with a GP’s diagnosis as ‘unfit for work’?” Davis says. “The answer came lightning quick: ‘Nobody.’”

The adviser then told him that he didn’t have to tell prospective employers about the GP note or his leg, he adds. Davis now has to spend 35 hours per week searching for a job. Or he will have his benefit sanctioned.

The routine is as pointless as it is disheartening. He spends all day on Universal Jobmatch – the government’s much-maligned website for jobseekers – only to find work he’s not qualified for (teacher, nurse) or jobs he can’t physically do because they request fitness or strength (scaffolder, postroom worker). Each Monday or Friday – sometimes both – he has to get himself to a meeting with a jobcentre adviser and find a way to explain why he hasn’t found a job.

“I fear for my sanity,” he says. “I’m being instructed to mislead potential employers and spend 35 hours per week – compulsorily – applying for jobs I have no chance of obtaining. Or starve.”

This is the reality for the disabled and chronically ill people who, found “fit for work”, are then – to use Davis’s words – “thrown back into the main JSA pool”. Judged by the system as not disabled enough for disability unemployment benefits – but too disabled to have a fair chance in the job market.

There are two (related) issues at play here: government “fit-for-work” tests are routinely, inaccurately judging disabled people as not in need of out-of-work sickness benefits (as Davis puts it, “My doctor’s opinion can be legally ignored by the DWP”); and that they – as well as those disabled people who, with tailored support, could work – are being abandoned to a JSA system that assumes they are fit and healthy.

Davis tells me he has asked the jobcentre if he could see a disability employment adviser to get some specialist help. “‘Oh we don’t do them any more’, my adviser said,” he explains. Instead, he was booked on to a generic two-week employability course and told to update his CV.

The Conservatives are presiding over repellent rhetoric around disability and worklessness, but are less forward in doing anything to deal with the complexities of the real problem. On the contrary, they’re introducing policies that are proven to push disabled people further from work, and have cut the specialist disability employment advisers people like Davis need by over 60% in jobcentres across the country.

With little fuss, the DWP’s long-promised disability and employment white paper has just been quietly shelved. It’s hard to believe any answers are coming. Theresa May’s cabinet changes mean that Damian Green is the third work and pensions secretary in the space of a year.

Meanwhile, Davis is anxious about the future. JSA – barely £70 a week – is not designed as a long-term income but for him, it may have to be. “I’m sick and tired of the hunger,” he says. “It’s emotionally crippling.” His hopes rest on the DWP’s mandatory reconsideration overturning the “fit-for-work” ruling (after seven weeks, he’s had no word from them). If the DWP upholds the decision, Davis will have no choice but to apply for jobs or be sanctioned.

“I actually found myself out practising normal walking yesterday, seeing how long I could keep it up,” he says. “It’s a horrific situation to be in.”

All Existing ESA Claimants Will Have To Reapply For UC From 2019

July 20, 2016

Comedy Pilot Seeks Deaf Male Actor

July 20, 2016

Simon’s Close Encounters: Guardian Podcast On Disability, Marriage, Sex And Love

July 20, 2016

This is not suitable for work or young children.

Simon’s love life changed dramatically after an accident two years ago just before his honeymoon. Alix Fox hears what happened and how he and his partner have not let it get them down

WARNING: EXPLICIT CONTENT

Each edition of Close Encounters features an unguarded conversation about sex and relationships with journalist and sex educator Alix Fox.

In this podcast, Simon tells how an injury has affected his ability to have sex, and outlines the innovative ways that he and his partner have found to be physically intimate with each other.

Share your story: if you have a question about what you’ve heard, or want to share your own encounter, email us in confidence at closeencounters@theguardian.com.