Skip to content

Have You Been Refused A Receipt By The DWP? Read This

April 15, 2015

Thanks to Jayne Linney for sharing this useful information on Facebook.

They will make a certified copy. So you hand them your documents or whatever, they go away and photocopy it, stamp it with their official stamp and sign and date it. It’s exactly what most people want and certainly what I wanted. I only found out about it by accident because they had to give me a “receipt” of some sort for a document they wanted from me and this is how they did it.

So don’t ask for a receipt ask for a certified copy instead.

From https://www.whatdotheyknow.com/…/receipts_for_documents_han…

Sexualising disability or normalising life with an illness?

April 15, 2015

sam's avatarSo Bad Ass

As my photographs of an old photo shoot with my stoma have gone viral last week, I have been subject to a few comments about sexualising disability (and some just telling me that ostomies are gross and I should put it away, but that is a WHOLE other story!!!) and I wonder am I guilty of that?

The short answer is fuck yeah! And you know why?  Because my sexuality, my femininity and the person I am didn’t get removed along with my colon.  The long answer is about how disability is seen in our society and also how women are viewed in society.

In 2013 when I had my colectomy and an ileostomy formed, I did what we all do in times of uncertainty and I googled it.  What I found were some great charities such as Crohns and Colitis UK and I A Support, but what I wanted…

View original post 810 more words

New Claims: The DWP Doesn’t Tell You This

April 15, 2015

I spotted this on Facebook yesterday and thought it might be useful.

Sat with Legal Advisor at Foodbank today, learned that for new claims with up to six weeks wait, you can ask for an interim payment of your forthcoming benefits, this however is not being passed on via DWP advisors, please pass on to anyone, groups who may already be aware but just in case, any new info learned will also be passed on, and 100% success rate overturning sanctions too, so people must appeal, most are overturned, also most Foodbanks have free Legal Advice on certain days of week

Stephen Hawking Sings Monty Python’s Galaxy Song

April 15, 2015

And there is a related video game which you can play here.

Open letter to P.I.P. assessors

April 15, 2015

Tig's avatarStarring Role in YOUR own Life

Dear PIP Assessor,

When you visited my home I answered the door to you myself because there was no one else. Had I not been expecting you, I would not have got up and walked very painfully, albeit without apparent struggle, to let you in.

You spotted the piano as you came into my sitting room and commented on it; I told you I hadn’t touched it since coming out of remission as I have brain fog and no motivation. I wish I had encouraged you to run your hand over the dusty keys, then you might not have used my owning a piano as evidence of my rich inner life (am I supposed to sell all implements of pleasure now I’m sick?). You also mentioned the books. I told you they were kept out of sentimentality as I have not been able to concentrate on a book since my…

View original post 675 more words

Tory Manifesto Includes Plans To Review Enforced Treatment For The Long Term Sick

April 14, 2015

Benefits And Work report:

To aid their attack on poverty the Tories have also committed to review how people with long-term treatable conditions ‘such as drug or alcohol addiction, or obesity’, can be helped back into work. People who refuse help will face having their benefits cut, as the manifesto explains:

‘People who might benefit from treatment should get the medical help they need so they can return to work. If they refuse a recommended treatment, we will review whether their benefits should be reduced.

There is also a promise of ‘significant new support for mental health, benefiting thousands of people claiming out-of-work benefits or being supported by Fit for Work’.

Whether refusing this help, likely to be primarily online and telephone-based cognitive behavioural therapy, will also lead to benefits cuts was not discussed in the document.

However, there is no doubt that conditions such as anxiety and depression are regarded as ‘treatable’ conditions by the DWP. There is, therefore, no obvious logical reason why they should not be dealt with in a similar way to conditions such as substance dependency, which will very frequently have a mental health element.

People With MH Conditions Should Wear Wristbands Says Tory Candidate

April 14, 2015

A Tory parliamentary candidate has sparked outrage after claiming mental health patients should wear wristbands to identify their conditions.

Cambridge candidate Chamali Fernando was speaking at a hustings event hosted by the campaign group Keep Our NHS Public when she made the comment.

She said wearing wristbands indicating the nature of the person’s condition would be helpful to professionals as they often could not explain themselves.

The statement was confirmed by Julian Huppert, current MP for Cambridge, who said: “I think it was also a spur of the moment thing rather than a prepared policy.”

Chamali explained those working in industries such as the legal profession could identify individuals based on wristband colour and this would place them a better position to help.

Political blogger Richard Taylor tweeted from the event and questioned if Chamali, who uses the Twitter handle @whereis007, was voicing her own opinion.

He wrote: “I wonder if wristbands for those with mental health problems is a Conservative policy or just @whereis007’s ?”

Speaking afterwards, he said: “She said as a barrister she would like to be able to help mentally ill people and suggested there should be more training for people in these kind of positions in common mental health conditions.

“She then said suggested a different coloured wristband for each mental health condition for those who are unable to communicate their conditions.

“This would immediately cause others to be prejudiced towards someone because you’ve given them a colour coding.

“She shouldn’t be coming up with a new policy at the spur of the moment.

“If she’s coming up with a new policy like this at a hustings what she do when she’s standing in parliament?”

The candidates present were Chamali Fernando (Conservative Party), Julian Huppert (Liberal Democrats), Rupert Read (Green Party), and Daniel Zeichner (Labour Party).

A Tory spokesperson said: “It is unfortunate that Richard Taylor has completely distorted the comment.

“The question that was asked is how could the authorities such as the police better deal with people with mental health issues.

“At Cambridge National Autistic Hustings the Chairman of CNAS said he carries a green card in his wallet to identify his condition.

“Julian Huppert was the person to bring up the Green Card Issue at the Autism Hustings.

“There are people who have come into contact with the police and due to an underlying mental health condition are unable to communicate their condition.

“It was not that they should wear a wristband. That would be draconian, needless to say it would seem that Richard Taylor is seeking to grab a headline here.

“Chamali Fernando gave the example of how people are wrongly accused of obstructing the course of justice for failure to co-operate with the police through no fault of their own and in those instances an identifier could prove useful.

“It would be a matter of individual choice and through consultation with experts and would need to be accompanied with the requisite training for health care and law enforcement professionals.”

Julian Huppert added: “I was really shocked at the suggestion that people with mental health problems should be expected to wear wristbands to identify themselves.

“I have fought hard for many years against the stigma people with mental health problems face. There is already far too much discrimination against mental health throughout our society, and a wristband saying ‘I am depressed’ is not going to help.

“We need to massively improve mental health support, which has been not good enough for many decades.

“I hope Chamali regrets her comments and will think carefully about her attitude to mental illness in the future.”

The Personal Is Political

April 14, 2015

“The Personal Is Political” started out as a feminist slogan. But when I heard of it recently, I was reminded of my early days as a disability blogger.

In the early days of Same Difference, I was asked what inspired me to go into politics. I responded that I wasn’t in politics, that politics was far too serious for me. I was just a person living with a lifelong disability and trying to show the outside world, through my writing, that disabled people can do amazing things and have positive lives, too.

To me, my wish to focus my writing on disability, on the positive things disabled people can do, was simply a personal one. It was inspired by a lifetime of personal struggles. A lifetime of being told that I couldn’t do what I wanted to do because I am disabled. A lifetime of watching my wonderful, intelligent, inspirational, personal friends struggle to prove their intelligence and go to school- because they are disabled.

It took me quite some time to realise that Disability Rights is politics. That I was in politics. That I am in politics. That I have been in politics, without knowing it, all my life. Since birth, in fact.

Because since birth, I’ve been part of the disability community. A community that has faced many struggles, as have feminists. A community that still has many struggles to face, and probably always will. A community that works hard to reduce struggles and improve situations for ourselves, and for those yet to join us.

I strongly believe that those who care for us- our parents, siblings and later, partners or spouses or even children, are also members of our community. Their support can be very valuable, because they, the non-disabled, are always taken seriously by wider society, while we disabled people, most of the time, sadly, are not.

Of course, I didn’t know all this at birth, and neither did my parents. In the early years of my life, we all faced very personal struggles to come to terms with the specific problems I would face, which were personal to me. My parents must have faced very natural and understandable feelings of sadness, maybe even grief, as we all realised exactly what my challenges and my limits would be.

What can be more personal to a person, to a family, than coming to terms with disability? With a difference, a very significant, visible difference, that was so unexpected to parents?

My parents had never heard of my disability before I came into their lives. Their friends had never heard of it. Many parents of disabled children describe facing difficulties when their friends don’t understand what their lives become. What can be more personal than that?

Studies have shown that couples who have disabled children are more likely to separate or divorce as a result. What can be more personal than that?

Yet the wide, welcoming, and in my eyes at least, wonderful, disability community that we have formed is far from personal. It has members of all races and religions. Members of all ages and nationalities. Members I meet every day and members I have never met.

And the political disability community has grown over my personal lifetime. In Western countries in the late 20th century, disabled people used to get together in small groups and protest on streets, chaining themselves to buses, buildings and similar. Now, the birth of the Internet has allowed the disability community to grow larger than ever before. It has made valuable information available to frightened parents, fast and free of charge, at the click of a mouse. It has allowed severely disabled people to make friends on social media, from the comfort, safety and accessibility of our own homes. Friends who offer valuable support and complete understanding- because they face the same situations in their daily lives, even though they may not live in the same town or even the same country. Most importantly, the birth of the Internet has made the politics of disability safely accessible to many people who can’t attend street protests because they, or the person they care for, are often too ill to participate.

The disability community has always been there, waiting to support and welcome those who were ready to look for advice and meet others who shared their challenges. Whenever a group of people who face similar challenges and struggles come together to fight their situation, a political movement is created.

So the personal has always been political for disabled people, too. Now, with the Internet, our personal is more political than ever before. So, feminists, I borrow your slogan, with thanks.

The C Word Role Brought Sheridan Smith To Tears

April 14, 2015

I had connections with Lisa Lynch on Twitter for some years. So did many of my UK readers. When the drama is screened, I will be watching it with interest. Meanwhile, I am linking to this interview with its star, Sheridan Smith, in case it interests any of you.

When Strangers Mocked Carly Findlay’s Photo Online, She Responded With This

April 14, 2015
 

 

Carly Findlay has a genetic condition called ichthyosis which causes her skin to be red, scaly and painful. It also affects her ears, eyes, digestive system, temperature, metabolism and hair.

She writes a blog detailing her experiences, and offering advice to other people with ichthyosis.

Recently, she discovered that someone had found a photo of her online and posted it in the r/WTF subreddit. The original post was horrible and mocking, but worse were some of the comments underneath:

“What does your vagina look like?”

“WTF is that? Looks like something that was partially digested by my dog.”

“Seeing people like this smile makes me uncomfortable. It looks like a lie; they are only smiling in an attempt to fool themselves that their lives aren’t horrible. You can see it in her eyes. The same rehearsed dead-eye mouth-smile in all her pictures. Gives me the willies.”

Carly has explained that the photo was actually taken on one of the happiest days of her life.

Bravely, Carly decided to enter the Reddit thread and respond to her anonymous abusers.

This is the comment she posted:

“I knew the day would come that someone would create a Reddit thread about me, using my photo, having a laugh at my appearance.

“For years, that fear was why I didn’t share photos of me online. But now, after gaining confidence and support through years of blogging, I couldn’t care whether they call me a lobster or silly putty.

“The love I have around me and success I have had through telling my own story to break down stigma like these Reddit threads is stronger than any of those words.

“Yes I have Ichthyosis. Yes that picture is me. Don’t fear it and don’t criticise it. I am proud of the way I look, what I have achieved and for telling my story.

“FYI: I have two forms of Ichthyosis – a mix of Netherton’s syndrome and erythroderma. My skin is shiny because I use paraffin. My body is less red than my face as it’s not exposed to the elements, but it is generally more painful. Ichthyosis is survivable – I have lived a very full life.

“To everyone who has shown such kindness here – Thank You! The level of kindness shown in these situations is always greater than the level of hate. The awful comments within this thread are far worse than the original post.

“Thanks for linking to my blog too, so people are informed of the real me rather than through the speculation on this thread. For those who missed it, you can read more about me at carlyfindlay.blogspot.com.”

We think Carly is truly inspirational!

PIP To Be Rolled Out To 49 New Areas From May

April 13, 2015

With many thanks to Benefits And Work.

The DWP have announced that 49 new postcode areas will be subject to personal independence payment (PIP) for renewals as well as new claims beginning in May, June and July 2015.

From 28 May 2015
The PIP reassessment areas extend to postcodes beginning: BS; CB; CM; CO; DA; GL; MK; PA; RM; SN; SP; SS

If you are in one of these areas and your fixed term DLA award is due to end on or after 12 October 2015 you will receive a PIP claim form rather than a DLA renewal claim form.

Any DLA claimant reporting a change in circumstances which might affect their award will be assessed for PIP rather than DLA from 28 May 2015 in these postcode districts, any existing DLA claimant who turns 16 years old may also be assessed for PIP.

From 22 June 2015
The PIP reassessment areas extend to postcodes beginning: BA; BH, BN; BR; CR; CT; DT; E; EC; GU; HP; IG; LU; ME; OX; RG; RH; SE; SG; SW; WC

If you are in one of these areas and your fixed term DLA award is due to end on or after 9 November 2015 you will receive a PIP claim form rather than a DLA renewal claim form.

Any DLA claimant reporting a change in circumstances which might affect their award will be assessed for PIP rather than DLA from 22 June 2015 in these postcode districts, any existing DLA claimant who turns 16 years old may also be assessed for PIP.

From 28 July 2015
The PIP reassessment areas extend to postcodes beginning: AL; EN; HA; HS; KT; KW; N; NW; SL; SM; TN; TW; UB; W; WD; ZE

If you are in one of these areas and your fixed term DLA award is due to end on or after 14 December 2015 you will receive a PIP claim form rather than a DLA renewal claim form.

Any DLA claimant reporting a change in circumstances which might affect their award will be assessed for PIP rather than DLA from 28 July 2015 in these postcode districts, any existing DLA claimant who turns 16 years old may also be assessed for PIP.

Labour’s Manifesto Pledge On The WCA

April 13, 2015

With many thanks to Michelle Kent for sharing this on Twitter today.

Embedded image permalink

Cerebral Palsy And Anorexia- One Man’s Experience

April 13, 2015

Ryan Branson told BBC Ouch about having Cerebral Palsy and anorexia.

When I was three I was diagnosed with cerebral palsy. Though described as “mild” it affects my mobility and balance so I use a walker-frame or scooter to get around.

Growing up was difficult because of my disability. People at school imitated my walking, called me “crip” and said hurtful things such as, “go and sit with your friends – oh you don’t have any”. I felt excluded and became very lonely.

When I got to secondary school I became fixated on people noticing my disability. I had no real friends, became very depressed and dreaded going to school every day.

I started to think I just wanted to disappear – I didn’t want to deal with people judging me. I thought that if I lost weight my peers would have nothing else to make fun of me about, even though looking back I can see I was already thin.

I was about 15 when I became scared of eating and developed an intense fear of getting fat. Every time I put food or drink into my mouth, I thought of the calorie content and how I could burn it off. Be it five or 500 calories, I felt compelled to do some form of exercise after eating or drinking.

I hid my feelings from my family because I didn’t want them to worry. I’d check the mirror or feel my body frequently and was always wrapping my hand around my wrist to see if I had gained weight. I felt I could control it and not let it get out of hand but though I tried with all my will power, the eating disorder was too strong.

Ryan was taunted at school because of his disability

My cerebral palsy had made me feel out of control of my body for so long, but as I began to lose weight it felt as though I was reclaiming that control in some way.

My parents soon noticed there was a problem, and mentioned how little I was eating, but I didn’t tell them anything about my internal struggles because I didn’t think they’d understand, and I didn’t want to worry them. I felt this was something I had to go through alone.

I did try to eat more, but I just couldn’t. My mind would just say no, don’t do it. By the time I was 17, I weighed very little. My mother took me to see an adolescent doctor and I was diagnosed with anorexia nervosa as soon as he weighed me, and heard my intention to lose more weight.

I managed to convince him I could get better on my own, and wouldn’t require hospitalisation, but after a week I had lost even more weight. My parents were telling me I must eat but I would refuse, and tensions began to run high, as they became more desperate for me to eat.

By this time I was beginning to get chest pains and started to get really frightened. The doctor checked me into hospital for a week where they measured that my heart rate was dropping to 20 beats per minute when sleeping (it’s around 60 usually) and my blood pressure was very low. Despite these bad signs, I was still terrified of gaining weight – I just couldn’t shake the feeling. I began to realise I needed serious help, and after a week and a half I accepted I must go to an in-patient centre if I had a chance of beating the anorexia before it killed me.

 

I got through it but relapsed at 22 with similar symptoms. I could see my bones and ribs protruding when I looked in a mirror. But I didn’t feel disgusted, instead I felt a sense of achievement and power from seeing this.

It affected my bones and I was cold all the time. I was even more severely malnourished at in-patient admission at age 22, and had to be put on a feeding tube. There was concern that I wouldn’t survive. When they put the feeding tube in, they had to start re-feeding me very slowly, or the shock could have been too much for my body.

During this time I knew that I needed the help, being put on a feeding tube shocked me and made me realise how serious this had become.

During my in-patient stay I had regular therapy sessions, but I was completely outnumbered by females. Few male issues were ever addressed as a result – there were only three other male patients during my time there. And I was the only patient with the kind of physical disability who needed walking aids, so it was difficult for me to talk about the root causes of my eating disorder.

I think there is still a stigma when it comes to men and eating disorders. It is still too often associated with young females, and this can be very damaging. As a part of my volunteer work with a male eating disorder charity, I have spoken to males struggling with eating disorders who are scared to reach out for help. This breaks my heart because they should not have to worry about being judged for having a medical condition – eating disorders do not discriminate. The stigma is preventing them from getting help and more damage is possibly being done to their bodies each day as a result.

I am pursuing a career as a dietician for people with eating disorders, as I know and have seen the positive impacts that they have on people suffering. I really want to try and help young men who may have eating disorders, to try and get rid of some of the stigma.

Looking back now, I feel both my eating disorder and cerebral palsy have been blessings in disguise. Both of these make me different, and I realise now that isn’t such a bad thing. I have an opportunity to help make a difference to the lives of people who also experience these conditions by campaigning for more awareness and equal treatment.

I’m now a healthy weight and in control of my eating disorder. I realise it is something I will live with for the rest of my life, but today I feel happy and confident in my skin.

If you are affected by any of the issues in this piece you can contact the eating disorder charity, Beat on

0845 634 1414 for people over 18, or for the Youthline for under 25s on 0845 634 7650.

Pension Credit And ESA

April 13, 2015

With many thanks to Fightback:

Pension Credit:

Did you know if you claim ESA and and are close to retirement age you may be able to claim Pension Credit instead, even if you are claiming as a couple and one of you is older and eligible, both of you may be are entitled to pension credit couples rate, even if you are much younger than your partner.

Many people do not claim as they receive a small private pension etc, but may be entitled to it, as a basic rule if your income is less than about £150 a week then it may be topped up with Guaranteed Pension Credit. If you get even 1p of Pension credit you will open other doors and may even get Housing Benefit and other discounts. If your income is more than £150 then you may get some Savings Pension Credit. You may also be able to claim Attendance Allowance (which is basically DLA for pensioners which covers just the care element,) and this will add premiums onto how much you are deemed to need. If you are already getting DLA or get AA th3n it will increase the £150 cap to just over £200. so if your income is then less than £200 again it will be topped up.

The Pension Credit helpline is very good and you can check your eligibility on the gov.uk tracker page.

Update From UKIP Candidate Who Thinks Benefit Claimants Shouldn’t Drive

April 12, 2015

With many thanks to ATOS Miracles on Facebook.

We SO love Mum Juice the bogger-with-integrity who alerted us to the UKIP candidate, Lynton Yates, who was leafleting that unemployed people should not be allowed to drive. UKIP didn’t even know this until we publicised the fact thanks to Mum Juice.

UKIP suspended him in January but reinstated him in February (WHO on earth would do that?). He’s been acting the arse again and parking in a disabled bay. You’ll see his own comments show he has no concept at all about what restriction/disability is and what qualifies one for support.

Eg: he says: “I wasn’t stopping anyone from parking and I had a meeting at 10am.

“I’d like to apologise for any embarrassment.

“I don’t have a blue badge but I was only there for a fairly short time.

“My agency man was there and would have ran out if I was stopping others from getting in the disabled bays.”

…of COURSE he was stopping others from parking there…he filled the space…those of us searching for bays know what it’s like to slowly drive by and see the spaces filled up. We don’t look for a Lynton lackey to ask them to move…for many of us it means we just have to drive home and come back another day to see to our business….

The article says: ‘Mr Yates says he does have mobility issues and suffers from flat foot: “I have a growth on the heel that’s given me problems. I could apply for that as a disability but I don’t.

“I could claim benefits and it would allow me to park in the bays.” ‘

Really? Is Mr Yates SO out of touch with reality he thinks he can get a blue badge for such problems? The most basic conversation with constituents would show him wheelchair-bound people who cannot get blue badges…but we must respect him and his flat foot and growth…

UKIP should never have let him near any candidacy again after his mega-shambles to have cyclists go on pavements, etc., yet here he still is AND happily thinking himself above the laws and regulations in total disregard, disrespect and misunderstanding of what disability is and what the law and regulations are.

We already showed this guy up once helping UKIP to keep their candidacies clean but back they went like a ‘dog returning to its vomit’.

“If You Have Had A Child, Then Go Get A Job”

April 11, 2015
Readers, I’m not quite sure what to write right now. I feel like crying. I’m quite scared for the future of disability rights in the UK.
Late last night, the comment below was posted, in response to this post:
Willowbel permalink
April 10, 2015 11:38 pm

I don’t think people with sever (sic) disabilites should have children, if you are severely disabled and reciving (sic) disability support and money that shows that you are not capable of looking after yourself it shows that you cannot hold a job. If you are relying soley (sic) on the government to support you why should the tax payer have to support a lifestyle choice that you decided to to because you want to prove that you can do it. Well if you have had a child the (sic) go get a job and prove you don’t need to live of tax payers money.

It upset me very deeply, and I responded:
April 10, 2015 11:45 pm

This blog is open to all sides of opinion. However I have to say, this comment is one of the most offensive things I have ever read.

Can I just make one thing clear- receiving DLA/PIP DOES NOT necessarily mean a person is not capable of looking after themselves. DLA/PIP cover costs that would not be in a person’s life if they were not disabled. You ARE fully entitled to work and still recieve DLA/PIP. Many disabled people do.

For the record, I DO fully support the rights of disabled people to have children.

But I am shivering with fear at the level of hate that exists towards people claiming disability benefits in the UK today. I strongly believe that opinions like willobel’s are a direct result of welfare ‘reforms’ and media portrayal of these ‘reforms.’

But readers, this belief does not make willowbel’s words any less painful to read.

Today, readers, we’re being told we shouldn’t have children if we’re claiming disability benefits. Tomorrow we’ll be told we shouldn’t be alive if we’re claiming disability benefits.

Readers, I’m a strong person, a disability campaigner, with a lifetime of hearing such comments behind me. My tears will dry. However, if enough willowbels keep making similar comments, how long will it be before younger disabled people and those who become disabled later in life start believing the comments and limiting their lifestyles- or worse- their lives- as a result?

Labour’s 404 Error Page

April 11, 2015

Readers. this is not specifically disability related. But I came across the current ‘404 error’ page on the Labour Party’s official website last night. It made me laugh, so I thought I’d share it with you for some weekend fun.  The disability link is that I know many sick/disabled people and carers fully agree with what it says!

Screenshot (58)

An open letter to Katie Hopkins

April 10, 2015

jrbarlow's avatarOxxy Moron

Dear Katie,

Earlier today it came to my attention that you had tweeted your opinions about depression – the biggest mental health issue that faces this country, bar your ignorance.

Many believe that the opinions you spout are nothing more than a cry for attention much like when a dog defecates for the attention of its owner, which ironically is a form of separation anxiety.

When I read your tweets I was not surprised that you had decided to shit on the floor in the hopes of a reaction – Something you have done many times and will probably continue to do until you fade away into obscurity.
Unfortunately this is not the Big Brother house so you cannot be voted out and we cannot turn you down as you did to Lord Alan Sugar – because, like a bad smell you return to fill the nose of society with…

View original post 483 more words

A Message From Hayley Okines’ Family

April 10, 2015

Readers, Hayley Okines’ family are requesting that people set the picture below as their social media profile picture on Wednesday, April 15th, the day of Hayley’s funeral, in her memory.

hayleyokinestributepic

 

Hayley has always inspired me personally, and I’ve followed her story on Same Difference for years. So I will be doing this.I ask you to join me in paying this little tribute to Hayley.

Maximus Says Everyone Will Get An ESA50 Form

April 10, 2015

With many thanks to Benefits And Work.

Maximus, the company carrying out employment and support allowance (ESA) assessments, insist that they send out ESA50 forms to “everyone” and that their staff are not authorised to tell claimants that they will not get a form.

Benefits and Work has been investigating why some ESA claimants are not being sent ESA50 forms prior to a face-to-face medical assessment.

In previous articles we revealed that some claimants who do not get an ESA50 and who query this are being told things like:

“Not everyone will get a form.”

“One isn’t needed in your case.”

“You don’t need to fill one in.”

However, in relation to the first two quotes Maximus have now claimed:

“The above two quotes are not information our advisors are authorised to convey. If you are able to share the source of these quotes we will investigate accordingly. “

In relation to the final quote, they say that:

“This can be the case if a customer has been diagnosed with severe mental health conditions and it is too difficult for them to complete the form (which they will have been sent). We would however always encourage customers to complete an ESA50 so we are aware of how their condition affects them.”

Maximus went on to say that:

“For absolute clarity. Everyone who is referred is automatically sent an ESA50 and are asked to complete it if they are able to do so. If they are unable to complete the form they are encourage to nominate someone who can on their behalf. Ultimately failure to complete the form does not mean no assessment takes place, but every applicant receives the ESA 50 in the first instance.”

We are pleased to receive this clear reassurance from Maximus.

We would advise any reader who may be asked to attend a favce-to-face assessment for ESA without having received an ESA50 to contact Maximus and ask for a form to be sent out.

If this is refused, or you still do not receive one, then make a formal complaint as Maximus will clearly wish to investigate and put the matter right.

Vital Information Your JobCentre Doesn’t Want You To Know

April 10, 2015

Spotted on Justice4JobSeekers Facebook page. Please share widely.

If you have been sanctioned for not applying for enough jobs heres what you do, . as long as you have have applied for at least 3 jobs per week you will be okay, heres why as written in law… In section 7 (1), which provides; “A person is actively seeking work if he takes in that week such steps as he could reasonably be expected to have to take in order to have the best prospects of securing employment.”
More detail is set out in regulation 18 of the regulations. Regulation 18 (1) provides that;
A person shall be expected to have to take more than two steps in any given week unless taking one or two steps is all that is reasonable for that person to do in that week.
So what does this mean? it means the law says that the minimum steps to take in any given week when applying for jobs is two steps, so if you apply for at least three jobs per week that exceeds the minimum required by law. so if your advisor tells you that you must apply for 15 or 25 jobs per week or even more!!! you can refuse as if you apply for 3 jobs a week the law is your on your side.
Now appeal the sanction by asking for a mandatory reconsideration, mention the above infomation,
Regarding your Jobseekers agreement.
“Further, there is nothing in the act or the Regulations requiring that a claiment must comply with everything in the agreement. The reverse is the case. THE AGREEMENT MUST COMPLY WITH THE LAW. To be valid, a jobseekers agreement must comply with the test of actively seeking work in sections 1(2)(c) and 7 of the act and regulation 18 of the regulations and not the other way round.

Six-year-old boy diagnosed with epilepsy after parents watch episode of BBC Casualty

April 10, 2015

An Important DLA-PIP Transfer Tip From Fightback

April 10, 2015

I saw this on Facebook last night. I have a lifetime award of DLA, but it still worries me. Please share widely.

DLA-PIP transfer TIP

As DWP forge ahead with the changeover process around the country, we are informed that many of you are now receiving letters from DWP stating that your claim for DLA is going to end soon if you do not start the PIP process. Basically a letter is sent out at random, no matter whether you are due for renewal or not, inviting you to start the process, but informing you that if you do not do so within around 3-4 weeks then your DLA will be temporarily suspended. PLEASE NOTE that this only applies if you have received such a letter, try not to panic if you have not or have a lifetime award as its likely that you will be one of the last on the list to be transferred, unless you have a change in condition.

The initial process involves a phone call to PIP informing them you want to claim PIP, you have no choice but to start this if you want to keep your award, and there are some people who are not even getting this initial letter, or ignoring it in a hope it will go away. It will not, and your payments will cease if you do not comply with them, and we are getting a lot of scared people ringing and messaging as a result of this.

What do you need to do? You need to ring the number on the DWP letter, and give your national insurance no, GP details, Specialist details, which will then generate a PIP2 form, which is the form that explains how your disability affects you, we can fill these out for you in any area, over the phone or in person in the NW or if you can get to our office. We have an excellent success rate with this. The PIP2 form is sent second class and can take up to a month to arrive, and needs to be back into them within a month from the date on the letter, so ring them if you have not had adequate time to complete, as it was delayed as they will extend this for you.

Please note that assuming that because you have been on DLA for years, the DWP know your medical history or have contacted your GP in the past, and therefore you will not need to send the evidence in again is a dangerous assumption. The onus is on YOU to provide medical evidence to substantiate your claim, and the assessors will only write to your GP or Specialists in a small percentage of cases. So start gathering it now, and keep those appointment letters, and ask for the specialist to GP letters in advance, so that you are sure to have all the info you will need when the time comes. Do not wait until you get the dreaded letter, as you will only have a month to get the info back to them once you get the PIP2 form, this is inadequate time get them from GPs etc if available at all.

Being prepared is half of the battle.

Michelle

 

Birthday Gifts Stolen From Harry Procko’s Grave

April 9, 2015

Heartless thieves stole birthday balloons and presents from the graveside of a four-year-old boy.

Richard Clements and Marika Procko lost their son Harry Procko just days after he went to hospital with a suspected tummy bug.

The heartbroken couple decided to mark what would have been his fifth birthday by placing gifts, balloons and banners at his grave at Wilford Hill Cemetery.

But less than 24 hours later, they were devastated to discover the cruel criminals had struck.

Ms Procko, 45, of Ferrers Walk in St Ann’s, said: “We’d been down on his birthday to put up banners and balloons and some little gifts like ornaments and cuddly toys.

“When we went back the next day we found someone had just helped themselves.

“I couldn’t believe it. This was Harry’s first birthday since he died so I was devastated.

“They’d cut the banners down and ripped the balloons off – it was just so cruel.

“I ended up searching the cemetery to see if I could find the stuff, but it was gone.

“It wasn’t a lot of money’s worth, but it was for my little boy.”

Some of the gifts had been laid by Harry’s seven-year-old sister, Caitlin, last Monday.

Ms Procko added: “They could obviously see it was a child’s grave – that’s what’s so upsetting.”

The family has now replaced many of the gifts and balloons, but have resorted to tying them down with ribbons to make it harder for thieves to snatch them.

Dad Richard, 48, said: “I think it’s disgusting that someone would vandalise a grave, especially when they can see it was decorated for a birthday.

“It’s not the cost of the items that’s upsetting, it’s what it represents.

“I can’t understand why someone would want to take something that’s worth nothing to them.

“The trouble we have is that unless someone saw someone physically take the items, the police probably won’t be able to catch who did it.”

Harry, who was autistic, died on June 23 last year.

He had been taken to the Queen’s Medical Centre by his parents but was discharged after being weighed and observed. He died 48 hours later.

An inquest has been opened into the death and will be concluded at a later date.

A spokesman for Nottinghamshire Police confirmed they were investigating the theft from Harry’s grave.

Anyone with information is asked to call police on 101 quoting incident number 276 of April 7.

Disabled Artist Liz Crow Moulds 650 ‘Humans’ From Thames Mud

April 9, 2015

Sitting on the banks of the Thames, disabled artist and activist Liz Crow moulds little people from the raw river mud.

Over 10 consecutive days she is creating 650 figures to represent every constituency in the UK.

Liz wants to make people think about the people in power and how important each individual’s vote is in the upcoming election.

Coinciding with the tide times of the Thames, she has to be carried down to the river bed in a specially-made sling while the tide is low, and carried back up to safety when the tide comes in.

Although not the focus of the piece, Liz says that these difficulties contribute to the art that she is creating.

The project will impact her health severely and she says it will take months for her to recover from it.

“It is an invisible part of the piece,” she says, “but one of the things about the disability community is that massive judgements are made about what is seen in public and very little is known about what goes on behind closed doors.”

Proof That The WCA Is Rigged

April 9, 2015

I spotted this on Facebook last night:

Proof of how the #wca is rigged to fail thousands of the #disabled

proof

JobCentre Telling People Wrong Appointment Times So They Can Be Sanctioned

April 8, 2015

With many thanks to Job Seekers UK.

Just a heads up- the Job Centre have a new tactic. They’re booking appointments and telling people the wrong time so the miss the appointment and can be sanctioned. Remember to check the time listed on any letters and to make sure it’s what you expected.

 

ESA Changes May Be Very Harmful To Women, Warn Scottish Directors Of Public Health

April 8, 2015

With many thanks to Benefits And Work for keeping us updated with this very important piece of progress. *Trigger warning- suicide discussed.*

Changes to guidance on who qualifies for ESA first revealed in February by Benefits and Work “will potentially increase mental distress, self harm and even suicide” amongst women according to the Scottish Directors of Public Health.

Back in February Benefits and Work warned that that a new ESA scoring system deliberately makes it harder for women to qualify for the support group than for men.

For example, a man with a diagnosis of depression and a history of deliberate self-harm who is unemployed – generally the case for ESA claimants – will be eligible for the support group, according to the guidance.

But a woman in the same situation will not be eligible for the support group. Instead, she will have to also show that an additional factor – such as being homeless or divorced –applies to her.

Our article caused such concern to the Scottish Directors of Public Health that they have now issued a statement calling for a review and warning that the changes could be responsible for deaths amongst women claimants.

Doctors issuing the statement criticise the reasoning on which the guidance is based, explaining:

“The new guidance is proposing a very basic screening tool that seeks to predict who is at highest risk of suicide or other problems. However, this is highly problematic and not nearly sensitive enough. It is much more likely to discriminate against women. Due to a number of complex and interacting factors there is a higher incidence of self-harm amongst females than males, whilst the incidence of suicide is higher in males.”

The doctors go on to warn that:

This change to the criteria is a further blow to disadvantaged individuals, especially women, with mental health problems as it will potentially increase mental distress, self harm and even suicide; as well as increasing pressure on GP’s trying to support our most vulnerable patients.”

The full statement of the Scottish Directors of Public Health is set out below.

Changes To Employment Support Allowance Will Discriminate Against Women – Statement From Scottish Directors Of Public Health

The Directors of Public Health in Scotland warn that a new scoring system to decide if claimants with mental health issues can get Employment Support Allowance because of a risk of harm to themselves or someone else will discriminate against women.

The DWP have advised that four criteria should be taken into account when assessing ‘substantial risk for claimants with a mental function problem, particularly in relation to self-harm and suicide risk”.

The criteria state that men and women should be assessed differently –

  • one indicative “substantial risk” criterion and one high risk diagnosis and either: male and one personal factor or: female and two personal factors
  • or one high risk diagnosis and either: male, personal factor A and one other personal factor or: female, personal factor A and two other personal factors

The new guidance is proposing a very basic screening tool that seeks to predict who is at highest risk of suicide or other problems. However, this is highly problematic and not nearly sensitive enough. It is much more likely to discriminate against women. Due to a number of complex and interacting factors there is a higher incidence of self-harm amongst females than males, whilst the incidence of suicide is higher in males[1].

Loss of income and stigma through sanctioning or changes in benefits is a very large risk factor in precipitating mental health problems and suicide and the very fact that people are having their income changed creates a risk.

There are two major concerns about this updated guidance; first of all it discriminates against women with mental health conditions and at risk of suicide and/or self-harm.

And secondly it puts further pressure on GPs and health professionals when they are providing evidence to support patients claiming ESA as they will need to include additional information about their female patients.

The Directors of Public Health (DPH) in Scotland are calling for these new criteria to be reviewed to prevent the risk of women with mental health problems being unable to claim this benefit and the resulting risk of poverty for them and their families.

Dr Linda de Caestecker, DPH in Greater Glasgow and Clyde[2] said “These changes are very concerning and will discriminate against women and people with mental health problems.”

Dr Alison McCallum, DPH in NHS Lothian and chair of DPH in Scotland added “These changes place an added burden on women and people with mental health problems to prove their exceptional level of need. This is unfair, bureaucratic and unhelpful to people who should expect our support. Our experience to date indicates that that harm is likely to result from these changes”.

An Edinburgh GP commented, “The welfare benefit changes have been damaging to the health and wellbeing of a significant number of very vulnerable individuals. This has increased the workload of GP’s trying to improve our patient’s health. This change to the criteria is a further blow to disadvantaged individuals, especially women, with mental health problems as it will potentially increase mental distress, self harm and even suicide; as well as increasing pressure on GP’s trying to support our most vulnerable patients.”

ESA Claimants With MH Being Denied Chance To Do The ESA50

April 8, 2015

With many thanks to Benefits And Work for tracking and reporting on this very important issue.

Maximus, the company carrying out employment and support allowance assessments, claim to be operating a policy which appears to discriminate against some claimants with mental health conditions by not sending them an ESA50 form, Benefits and Work can reveal.

Regular readers will be aware that Benefits and Work has been investigating why some ESA claimants are not being sent ESA50 forms prior to a face-to-face medical assessment.

ESA50 forms give a claimant the opportunity to explain how their condition affects them and ensure that accurate evidence is available to the health professional carrying out a face-to-face assessment.

They are a vital part of the work capability assessment and not completing one puts a claimant at a serious disadvantage, as the decision maker is then likely to be obliged to rely primarily on the evidence from the Maximus health professional.

In ‘Missing forms, missing medicals, missing qualifications’ we revealed that some claimants who do not get an ESA50 and who query this are being told things like:

“Not everyone will get a form.”

“One isn’t needed in your case.”

“You don’t need to fill one in.”

We contacted Maximus – trading as the Centre for Health and Disability Assessment (CDHA) – about this and they informed us in an email that:

“An ESA50 is automatically issued once a referral is made. This needs to be completed and returned, along with any medical evidence, prior to an assessment taking place. If a person’s medical condition changes after the form is submitted, these changes can be discussed during the assessment. There is no need to fill in another form. We ask everyone to bring any additional medical evidence along with them, when they attend.”

However, they went on to say that:

“The only people that would be asked to attend an assessment without completing an ESA50 are those who a doctor has recorded on the referral, have a diagnosed mental health condition.”

For the avoidance of doubt we asked them to confirm that this is the policy that they are working to and they responded:

“That is correct, but we would like to emphasise to people that they should follow the advice they are given by CHDA.”

Benefits and Work believes that every claimant should be given the opportunity to complete an ESA50 immediately prior to attending an assessment.

It is entirely proper that where claimants with a mental health condition fail to return their ESA50 within the statutory time limit they still should be given the opportunity to have a face-to-face assessment. But to fail to send out an ESA50 appears at best to be an extremely misguided, and potentially unlawful, ‘concession’ to claimants with a mental health condition.

Benefits and Work will continue to investigate this issue.

In the meantime, we continue to urge readers who are not sent an ESA50 prior to their face-to-face assessment to strongly consider downloading a copy of the ESA50 form, completing it and submitting it in any case.

Katie Hopkins’ Disgraceful Dementia Comments

April 7, 2015

Katie Hopkins has been accused of making “disgraceful” and “ill-informed” remarks about dementia patients by a leading charity.

The controversial columnist, who is well-known for her outspoken and provocative comments, tweeted about dementia sufferers “blocking beds”.

“The day I am diagnosed with dementia is the day I book my ticket to Dignitas,” she continued.

“Ultimately, if your family member is in hospital with dementia because you are not caring for them – you have no right to be outraged.”

George McNamara, head of policy and public affairs at Alzheimer’s Society, said: “These disgraceful remarks only serve to reinforce the stigma that sadly prevents many people with dementia from feeling like valued members of society.

“Ill-informed comments such as these go against all that we know about dementia. People with the condition tell us that with the right support it is entirely possible to live well and take real enjoyment out of daily life.

“The 850,000 people living with dementia in the UK deserve far more than to be used as bait by people stoking controversy.”

Last week Hopkins, who writes for the Sun, was accused of behaving in “a dangerously provocative way” after she suggested Pakistani men in the Rochdale area were sex abusers.

Campaign Groups Call For Welfare Ceasefire With Online ‘Thunderclap’

April 7, 2015

Same Difference heard about this Thunderclap over the long weekend. We will be participatting with pleasure.

Benefits And Work report:

The Green party, Plaid Cymru and members of the SNP are all backing a call by CarerWatch and Pat’s Petition for a ‘Ceasefire in Welfare Reforms.’ Campaigners are now asking supporters to take part in a ‘thunderclap’ on April 16th.

Amongst other issues, the groups are calling for a temporary halt to ESA sanctions, the one year contribution-based ESA time-limit, the bedroom tax for ESA claimants and repeated work capability reassessments. The halt would allow time for a proper review of how sick and disabled people are being treated in relation to work, in particular.

They are also urging supporters to sign up to a ‘thunderclap’ which will broadcast a message from hundreds of supporters simultaneously via Twitter, Facebook and Tumblr on April 16th in the hope of moving benefits up the election agenda.

You can find out more about the ceasefire via the Disability News Service and sign up to the thunderclap here.

Work Related Activity Component Of ESA Could Be Cut To 50p

April 7, 2015

Benefits And Work report some leaked details of possible further cuts to welfare benefits, including:

taxing DLA, PIP and AA,

axeing contribution-based ESA and JSA,

cutting the work-related activity component of ESA to 50p,

cutting carers allowance numbers by 40%,

making people pay the first 10% of their housing benefit.

They are asking their readers two questions:

How would these cuts affect you?

What sort of income would you have left to live on and would it be possible to do so?

Same Difference would also be very interested in your thoughts on the possible cuts and your answers to the two questions.

Court Case Collapses Amid Claims Benefit Fraud Investigator ‘Pressured Witness’

April 7, 2015

So readers, this is going on at the DWP.

A PLYMOUTH benefit fraud investigator has faced disciplinary action for allegedly pressuring a witness to give a false statement.

One case handled by the man has been dropped at court – and it is understood other prosecutions have been abandoned because his evidence is tainted.

It means potentially guilty defendants will walk free and there will be no chance of recovering tens of thousands of pounds in overpaid benefits.

The man, thought to work at the Department for Work and Pensions St Levan’s Road office, could face criminal prosecution

A Crown Prosecution Service letter to a solicitor seen by The Herald said: “We are able to confirm that officer XXXX’s [name removed] disciplinary concerned the falsification of a witness statement by him. He placed pressure on a witness in another matter to give a statement that was not correct.”

The CPS, which takes cases to court on behalf of the DWP, was forced to drop a case at Plymouth Crown Court involving a pensioner accused of a £36,000 benefit fraud.

Raymond Watts, aged 69, from Ivybridge was charged with dishonestly claiming Pension Credit and council tax relief. He was allegedly overpaid about £33,000 in Pension Credit and £3,000 in council tax relief between 2007 and 2013.

A man of good character, he has always protested his innocence.

Sally Daulton, barrister for the CPS, offered no evidence against him.

Recorder John Williams recorded not guilty verdicts.

Nigel Hall, barrister for Mr Watts, told the court: “He is very pleased his name has been cleared”.

He added: “The reason the Crown are dropping it, is the investigating officer, may be dishonest is too strong a word, but it is his evidence, not just in this case, which has been tainted.”

The Crown Prosecution Service has apologised to Mr Watts for the delay in dropping the case. Mr Watts first appeared before city magistrates in December 2013.

The CPS said it had difficulty contacting another DWP officer, who was on long-term sick leave, about the disciplinary action.

CLEARED MAN: ‘BENEFITS ALLEGATIONS PUT ME THROUGH HELL’

SPEAKING after the case was dropped, Raymond Watts said he has still not been told what he did wrong.

He said: “I’ve been through absolute hell the last 18 months. The whole thing was totally unnecessary.

“The case was brought in December 2013 but I was interviewed by them in July 2013. It’s been hanging over me for nearly two years.

“No-one has explained to me what it is I’ve done wrong. It’s just dragged on and on.

“I’m exceedingly relieved. The whole thing appears to have been manufactured.

“It was reported in the press that I was charged and attended the Magistrates’ Court. I’ve had people looking at me ever since then and I know certain people must have been thinking ‘oh he’s charged with benefit fraud, he must be guilty’.

“One’s good character has been under a cloud for getting on two years and I’m still trying to find out what’s going on.

“I’ve queried evidence provided by the DWP ever since I was first charged. My experience was I was interviewed and part of the evidence was a transcription of that interview.

“However, when I read the transcription it wasn’t the interview I attended. To my mind it had been altered to reflect all the points they wanted. Why on earth anybody would do this I don’t know.”

Mr Watts, who used to work in finance in the City of London before being self-employed, said he has been told “all inquiries” by the DWP investigator have been “dropped”.

He said: “They’re exceedingly worried about his behaviour.”

A DWP spokesman said they would make no comment about the case.

Learning To Walk Again

April 7, 2015

Last December, BBC Disability Correspondent Nikki Fox walked for the first time in many years using a new exoskeleton. In this special programme, we hear from Nikki about her experience as well looking at how realistic it may be for these exoskeletons to become more widely available. Nikki also speaks to other people with disabilities, who have lost limbs or the use of their limbs, about their experiences and rehabilitation.

IDS’s CV Of Shame #dwp #fitforwork

April 7, 2015

This should give you some idea of IDS’s CV of shame when it comes to the WCA. With many thanks to Dr Eoin Clarke for sharing on Twitter over the long weekend.

Embedded image permalink

Wolverhampton Sikhs In Wheelchairs Forced To Sit Behind Screen While Worshipping At Temple

April 4, 2015

Worshippers are suing the largest Sikh temple in Wolverhampton after accusing it of discriminating against the elderly and disabled – by making people in wheelchairs sit behind a screen.

The group accuses the Guru Nanak Sikh Gurdwara in Blakenhall of leaving people in wheelchairs outside the main prayer room and making them sit behind screens in the dining room because they are unable to observe the custom of sitting on the floor.

Papers have been filed with the County Court in Birmingham and letters have been sent by Paul Uppal and Pat McFadden, both seeking re-election as MPs in Wolverhampton, reminding the Gurdwara of its obligations under disability discrimination laws. Around 10,000 people regularly use the Gurdawara in Sedgley Street.

The campaigners say people in wheelchairs cannot get up to the prayer room, the Dahar Sahib, because a lift is not always available. Those with mobility problems say they have to sit on benches outside the main room.

The committee says no-one is being excluded and that plans are in place for a new building that will improve access to the prayer room.

In the dining area there is a blue screen between the open plan floor, where worshippers sit for food, and an area with tables and chairs.

And in the prayer room on either side of the entrance are wooden screens with windows in, which the campaigners say will segregate people who sit on chairs at the back of the room.

Rajinder Bassi, chairman of the Sikh Forum Wolverhampton, said around £5,000 has been raised through donations to fund the legal challenge.

He said: “What is happening to disabled and older people is degrading. They are missing out on the spiritual aspect and want to be able to join others upstairs. There’s nothing in our faith that says the temple should do this.”

Dee Kaur, aged 63, of Yew Tree Lane, Tettenhall, has been in a wheelchair since 1996 and has brittle bones as well as a condition caused by problems with her antibodies. She said: “I want to go upstairs but can’t.

“The tables here are kept out of sight. We are being excluded.”

Malkit Singh, aged 38, of Massbrook Grove, Fallings Park, has cerebral palsy.

He said: “I have to sit downstairs. It’s like I’m being hidden away.”

The forum’s vice chairman Iqbal Kaur added: “This has been going on for three years. It goes against their human rights.”

The management of the Gurdwara says more facilities for disabled worshippers will be provided under plans for a £2 million revamp.

In a statement a spokesman, who did not wish to give his name, said: “The services are provided in line with Sikh traditions where all are welcome to visit and pray at the Gurdwara Sahib. We make as far as possibly practical reasonable adjustments that are also consistent with our practices to accommodate people with disabilities taking account of our faith’s traditions.

“The Gurdwara is governed by direction from Akaal Takhat Sahib Jee – the Sikh Supreme Authority and this is written within the Gurdwara constitution registered with the Charities Commission since its establishment in 1969.

“In line with the Sikh principles of worship and serving the community through its open door policy for all regardless of gender, age, race, wealth or faith including those of no faith. The Guru Nanak Sikh Gurdwara Management Committee have over the years provided a series of ‘reasonable adjustments’ which cater for those who are unable to be seated in the two main areas of the Gurdwara, these being the Darbar Sahib where the religious programmes are held and the Langar Hall where the congregation are served blessed food and also socialise with family and friends.

“These provisions will be modernised once the approved new building costing nearly two million pounds is constructed this year.”

In a letter sent last year and published on the forum’s website, Conservative Mr Uppal said: “Since seating was removed in 2012 I understand that these members of the congregation have found it increasingly difficult to sit on the floor in the Dahar Sahib to listen and partake in prayers.

“It is incumbent upon me to remind the management committee that in many of the congregation’s views, this is perceived as discrimination and is understandably causing considerable concern to congregation members, as well as not complying with national legislation.”

Labour’s Mr McFadden also wrote: “I understand of course that in the Gurdwara people sit on the floor. All are equal and sit in the same way before the Guru Granth Sahib. This issue which has been raised with me is what provision should be made for worshippers who, by reason of disability or frailty, cannot sit on the floor. I understand that some Gurdwaras provide some seating to cater for such provision. It is not my role to make a religious judgement. I have, at my constituents’ request, checked the position with regard to the legislation which covers access for disabled people and its applicability to places of religious worship.”

#UKIP ally believes we disabled are contagious

April 4, 2015

jaynel62's avatarjaynelinney

The content of Tom Pride’s excellent post has enraged me enough to actually write; I’ve been away from the computer after a nasty fall which left me virtually unable to use the keyboard for almost a month. This in turn aggravated my Depression; ergo I’ve been quiet, but reading that a friend and ally of the vile little excuse for a man Farage, thinks “disability an “epidemic” infuriated me enough to blog.

Epidemic is defined by Collins as:

adjective

  1. (esp of a disease) attacking or affecting many persons simultaneously in a community or area

noun

  1. a widespread occurrence of a disease   ⇒ an influenza epidemic
  2. a rapid development, spread, or growth of something, esp something unpleasant;

This clearly suggests the leader of the Polish “New Right” Party Janusz Korwin-Mikke, views us disabled people as being contagious, and that we are all out to spread our various “impairment…

View original post 112 more words

Sandra Gives The Game Away: Jobcentres Given Sheriff’s Stars For Hitting Benefit Sanction Targets

April 3, 2015

Some old gold from December…

johnny void's avatarthe void

sanction-sheriffSandra Lambert, manager of 149 Jobcentres and self-styled lifestyle guru, has spent much of the last few days frantically blocking people on twitter who have been taking the piss out of the cringemaking motivational advice she inflicts on the poor bastards who work for her.

She wasn’t fast enough however to hide the tweet in which she awarded a Texas style sherriff’s badge to Jobcentres in the midlands for upholding their DMA decision rate – as spotted by @refuted.  A DMA means a referral to a Jobcentre ‘decision maker’ to process a benefit sanction.  It is the second time this month a DWP manager has been exposed praising their staff for hitting benefit sanction targets – targets that Iain Duncan Smith’s department have repeatedly claimed do not exist.

It is not just that the DWP are lying which is so contempible, all government departments lie after all.  It…

View original post 366 more words

This Was The Most Tweeted About Comment In Last Night’s Leaders’ Debate

April 3, 2015

“Here’s a fact, and I am sure the other people here will be mortified that I dare to talk about it. There are 7,000 diagnoses in this country every year for people who are HIV positive. It’s not a good place for any of them to be, I know.

“Sixty per cent of them are not British nationals. They can come into Britain from anywhere in the world and get diagnosed with HIV and get the retro-viral drugs that cost up to #25,000 per year per patient.

“I know there are some horrible things happening in many parts of the world, but what we need to do is put the NHS there for British people and families, who in many cases have paid into the system for decades.”

Thanks to ITV News for the full quote and the Twitter statistics!

So he’ll provide drugs to people with any sickness or disability, as long as they’re British. Readers, I’m British Asian, so am thanking goodness at this moment that I don’t take any regular medication for my disability! If I did, would I lose it under a UKIP government?

The Progeria Reseach Foundation’s Tribute To Hayley Okines

April 3, 2015

An emotional tribute to Hayley Okines from the charity that supported her and her family:

The entire Progeria family mourns together with many as we say goodbye to Hayley Okines, our smart, beautiful and spirited English Rose, who passed away today at age 17.

“Gone from our sight, but never our memories, gone from our touch but never our hearts…” We will miss you.

We share one of our favorite photos of Hayley and her mum, Kerry. Thank you all for your kind thoughts.

Hayley Okines Dies Aged 17

April 3, 2015

Readers, I have very sad news to bring you tonight. Hayley Okines’ mother Kerry posted this on her personal Facebook page two hours ago:

My baby girl has gone somewhere better. She took her last breath in my arms at 9.39pm x

Hayley Okines, as many of you know, had progeria. She thankfully lived four years longer than the life expectancy for people with her disability.

Same Difference followed Hayley’s story closely for several years.

I watched two documentaries on Hayley with great interest. Old Before My Time, her first autobiography, is sitting on my bookshelf at this moment, waiting to be read for the first time. When I do read it, I will now do so in her memory.I will also buy and read her second autobiography, Young At Heart, as soon as possible.

Hayley has always inspired me. I am feeling genuine sadness tonight at her death, even though we never met each other.

My thoughts are with Hayley’s family and friends, particularly her friends in the progeria community, most of whom are teenagers now. For while losing a friend at any age is very difficult, losing a friend who shares your disability  is one of the most difficult things a disabled person can experience. And helping teenagers through the loss of a friend is almost impossible for parents.

I send very sincere condolences to the Okines family and the whole progeria community on Hayley’s very sad death.

 

Further Universal Credit Rollout Lies

April 2, 2015

With many thanks to ATOS Miracles Facebook page:

Further Universal credit roll-outlies. Not only has UC been tried out in just a few regional areas but here Private Eye exposes the fact that only the simplest of cases within those areas have been transferred. 

"Further Universal credit roll-outlies. Not only has UC been tried out in just a few regional areas but here Private Eye exposes the fact that only the simplest of cases within those areas have been transferred. :P"

Pete Bennett, Big Brother’s First Disabled Winner, Is Now Homeless

April 2, 2015

I’m sad to read this. I love Pete Bennett. He was the first physically disabled housemate on Big Brother and their first physically disabled winner. (Although I admit to not knowing, in 2006, that Tourettes is a physical disability.)

Pete Bennett became rich after being crowned the winner of Big Brother 2006 but has now appeared on Jeremy Kyle admitting he’s HOMELESS and sleeping on friend’s sofas.

The spiky-haired former star, who suffers from Tourette’s syndrome, became famous for his swearing, twitching and fooling around and hoped his success on the show would give him a bright future.

But he revealed to Jeremy it had all gone wrong today after he got hooked on horse tranquiliser ketamine to cope with the loss of seven friends and ended up skint without anywhere to live.

In a moving video on the show, he said: “The work dried up pretty fast, no-one would touch me with a barge pole because I was to do with Big Brother. I lost it all.

“It all kind of went wrong, it didn’t go to plan. I had all that money and I didn’t know what to do with it. I put it on the wrong things. I was homeless after having so much money, it’s easy come, easy go. The fame pushed me in a way I didn’t want to go, I didn’t like it.

Pete, 33, said he had the worst case of Tourette’s syndrome in Europe and was in and out of hospital as a child and got hooked on drugs after his big win on the reality TV show.

He said: “I got into drugs 15 years ago, I’ve always been a party animal, I was addicted to ketamine. I went to get proper help for my addiction.

“He [the therapist] asked me about loss and I told him about all my friends that had died. I obviously hadn’t been dealing with it, I’d been taking K and being disassociated with it.”

Pete is now clean and says he’s got a plan when it comes to his career, adding that he doesn’t mind sleeping on people’s sofas in the mean time.

He told Jeremy: “I’m in a better place than I am, it would be nice to have my mates here and all that, I’ve been through a lot of loss. I’ve got into acting and I’ve got into films, my Tourette’s has calmed down … Hollywood is next.”

Richard Gatiss Jailed For 4 Years For Alan Barnes Attack

April 2, 2015

Despicable Richard Gatiss has been jailed for four years for the shocking attack on disabled pensioner Alan Barnes.

Well-wishers who were moved by the plight of 67-year-old Alan Barnes raised £330,000 for him within days of Richard Gatiss’s cowardly assault.

The 25-year-old pushed Mr Barnes over as he put out the bins, breaking his collar bone. Gatiss was desperate for money to buy so-called legal highs when he tried to mug him.

He was jailed at Newcastle Crown Court after previously admitting assault with intent to rob.

Judge Paul Sloan QC said: “I have no doubt he was picked on by you because of his vulnerability.

“It was on any view a despicable offence.”

Gatiss, from Split Crow Road, Gateshead, was caught after police retrieved DNA evidence from the pocket on Mr Barnes’s jacket.

He had run off empty handed from the mugging when Mr Barnes shouted for help.

While on remand, Gatiss was kept in segregation for his own safety due to the strong feelings his attack caused even among convicted criminals.

Mr Barnes, who was too scared to move back to his home in Low Fell, Gateshead, after the mugging, will buy a new house with the money raised online.

The fund was set up by local beautician Katie Cutler, 21, who initially hoped to raise £500, enough to buy new carpets or curtains.

But the appeal went viral and his family called a halt when the total reached £330,000. Many donors also left messages expressing their disgust that such a vulnerable man could be attacked.

Mr Barnes’s disabilities were caused when his mother contracted German measles during pregnancy.

He and Ms Cutler plan to use their new high profile to launch a foundation with the aim of raising £1 million for good causes.

Gatiss, who has a tattooed neck, with hair curly on top and short at the sides, did not visibly react when he was sentenced. He had wept during previous court hearings.

Nick Dry, prosecuting, said Mr Barnes’s disabilities led medics to believe his life expectancy was just nine years when he was born, but despite those problems, which meant he was unable to work, he was intelligent and had lived independently.

For more than six years he had lived in a housing complex for elderly and disabled people in a cul-de-sac.

Gatiss had failed to withdraw £10 from a cashpoint when he spotted Mr Barnes outside his bungalow on the evening of January 25.

Mr Barnes said he was aware of a shape coming towards him in the darkness and heard a man demand money.

Gatiss pushed the top of the frail pensioner’s head, forcing him to the floor, and rummaged through his pockets, Mr Dry said.

The broken collar bone stopped him washing or eating by himself.

Mr Dry said: “These restrictions he found extremely frustrating, impacting as they did on his fierce independence.”

The bone has since healed well, the court heard.

After he was arrested Gatiss denied being involved, saying he had been brought up better than that, then claimed a knifeman made him do it.

When he was challenged, he confessed and Mr Dry said: “He said he wanted money to buy legal highs to which he had become addicted, then breaking down, he was distressed at what he had done.”

This Grafitti About Esther McVey Appeared At A JobCentre Last Weekend

April 2, 2015

Last Saturday, this grafitti appeared at a Job Centre in Esther McVey’s Wirral West constituency.

It was painted over within hours and heavily criticised by local councillors.

 

 

Embedded image permalink

Happy World Autism Awareness Day 2015!

April 2, 2015

The eighth annual World Autism Awareness Day is April 2, 2015. Every year, autism organizations around the world celebrate the day with unique fundraising and awareness-raising events. How will you celebrate? 

Use #LIUB to share your experience accross social media and help light the world up blue this April! Click here to learn about autism. 

Join us to Light It Up Blue! Visit www.AutismSpeaks.org/LIUB

autism-awareness-day

Medical Details Of Thousands Of Sick And Disabled People ‘Being Sold To Fraudsters’

April 1, 2015

Details of thousands of peoples’ medical records are being sold to fraudsters, it has been reported.

Medical data for 3,000 sick or disabled people – including those who suffer with diabetes, high blood pressure, osteoporosis and arthritis – has been allegedly sold for 19p each, according to the Daily Mail.

The details are then said to be passed on to cold-callers and fraudsters.

The newspaper reported that the those with severe bladder problems as well as those who had hearing issues were particularly vulnerable to the alleged scheme.

The Information Commissioner’s Office (ICO) said the allegations send a “shiver down the spine”, and promised to investigate.

The allegations come just a day after the paper claimed pensioners’ salaries, the value of their investments and the size of their pensions are being sold for as little as 5p without their knowledge.

Dr Sarah Wollaston, Tory chair of the health select committee, was quoted by the Mail as saying that those caught selling the data without consent should be jailed, describing the claims as a “new low”.

“The people who are selling this kind of data should face jail sentences if they are found to have acted illegally – we should see severe penalties,” she said.

Steve Eckersley, head of enforcement at the ICO, said: “People rightly consider information about their health to be sensitive, and in a recent survey we found that half of people consider it to be extremely sensitive.

“To think such information could be in the hands of unscrupulous businesses looking to profit from it sends a shiver down the spine.”

Mother Claims Daughter, 3, Was Not Allowed On Blackpool Pleasure Beach Rides Because Of Downs Syndrome

April 1, 2015

A three-year-old girl was allegedly banned from going on children’s rides at Blackpool Pleasure Beach because she has Down’s syndrome. 

Emma Patrick, of Loughborough, claims she was told the theme park was ‘not for the disabled’ as she tried to enjoy a family day out with three-year-old Lucy, who is in a special chair.

Mrs Patrick, 33, said the family were told when they arrived that there were only four rides her daughter could go on because she is disabled, but when they attempted to board these they were only allowed on one.

The childminder claims the family were told ‘if you can’t walk, you can’t ride’ when they tried to board rides which included the teacups, carousel and Bikini Bottom bus tour. 

She claims they were refused to ride despite the theme park’s brochure saying the bus tour and the Pleasure Beach Express were suitable for disabled people. 

Mrs Patrick said she booked the tickets for her family online, and was not told it was not suitable for disabled people until they tried to get on the rides. 

She added: ‘They told us that the rides weren’t for the disabled and I wasn’t allowed to take her on.’

‘I could have carried her on with shoes on and they wouldn’t have said anything but because we turned up and she was in a chair,  they said no straight away.

‘We only tried to get on the baby rides. We didn’t try and get on massive rollercoasters.

Mrs Patrick claims they were told by Blackpool Pleasure Beach the rides was not suitable for disabled people.

‘I didn’t want special treatment, she will do what other children will do, but they took one look at her and wrote her off.’

Mrs Patrick and her husband Paul, 30, had travelled from Loughborough with Lucy and their four-year-old son AJ to enjoy a family day out last summer.

She said: ‘It spoiled the day with people treating her like that because to us she’s normal.

‘We thought it would be an enjoyable day out and a great place to take children but we felt so discriminated as they even have gates saying “disabled, enter here.” It’s wrong. 

‘There was absolutely no reason why Lucy shouldn’t have been allowed on.’

She claims to have raised her concerns with a manager at Blackpool Pleasure Beach and sent several letters of complaints to management since returning home, which have all been ignored. 

She added: ‘I want to warn other parents in my situation. If this is how they really feel then maybe they should say the Pleasure Beach isn’t for disabled people, so people don’t turn up and feel discriminated.

A spokesperson for Blackpool Pleasure Beach said: ‘Blackpool Pleasure Beach takes complaints of every nature very seriously and all are investigated.

‘The procedure of how we investigate complaints has recently been overhauled to ensure it is more robust.

‘We will be contacting Mrs Patrick to apologise and explain the situation and the outcome of our investigation.’

Enter yo

Heart Disease Drug Tested For MS In New Trial

April 1, 2015

Depression and heart-disease drugs are to be tested in a trial to find treatments for Multiple Sclerosis (MS) from existing medicines.

There are currently no treatments in the secondary progressive stage of the debilitating disease.

More than 400 people will take part in the trial at University College London and the University of Edinburgh.

The BBC’s Health Editor Hugh Pym reports.

News Headlines: April 1 2015

April 1, 2015

Driverless Electric Wheelchair Invented- Disability Now

This year’s Best New Accessible Invention Award at NAIDEX was awarded to a group of technology experts at the University of Kent who have invented- wait for it- driverless electric wheelchairs. Using the technology behind driverless cars, they hope to provide disabled people who have previously been unable to use electric wheelchairs because they lack movement in their hands with a whole new level of independence. The wheelchairs will be on sale from midnight on Wednesday, April 1st and will cost £1Billion each. Happy Fundraising!

Chocolate Lips Act As A Sweet Communication Aid- Able Magazine

From the inventors of chocolate eyeballs, chocolate ears and chocolate noses come chocolate lips! Eating one of these sweet treats daily for the rest of your life is said to restore speech lost through a stroke or similar aquired brain injury. Sadly, these are not thought to work for people who have lacked verbal communication since birth. However, Stephen Hawking is said to be very excitedly awaiting delivery of a million packets.

Cheese Cures Cerebral Palsy- Bobath News

We write to inform you that a miraculous and surprising cure for Cerebral Palsy has recently been discovered. One of our senior physiotherapists often discusses lunch choices with her favourite patient. During one of these discussions, she found out that the patient, a lifelong fan of pizzas and cheese sandwiches, has experienced a very significant improvement in function after eating cheese as part of her lunch every day for a month. We plan to provide all our patients with a month’s free supply of cheese products starting on Wednesday, April 1st, to test this theory. We request that you feed your child a cheese product once a day for a month. If our theory is proved successful, we will close the Centre with regret at the end of April and dedicate our time to researching the lives of our founders, the Bobaths.

Potato Wheelchairs To Go On Sale- Tesco Magazine

From the creators of educational potato favourites Alpha-Bites comes a new educational and inclusive food- potato wheelchairs. Tesco will sell this new product with pride and pleasure at your local store from Wednesday, April 1st. We hope this will make disabled children proud to be wheelchair users and teach others what wheelchairs look like!

Blind Easter Bunnies– The Tablet

Easter Greetings, readers. We would like to invite you to your local Catholic Church at Midday on Wednesday, April 1st, where after a special pre-Easter Mass, the child in your life will be given a free Easter Egg by a blind Easter Bunny who will be guided by a white stick. We hope this will make disabled children feel welcomed and included in Church life, as well as teaching non disabled children that animals can be disabled, too. Yes, even the Easter Bunny.

It Had To Happen. Soon You Could Face An In-Work Benefit Sanction … For Going To Work

March 31, 2015

johnny void's avatarthe void

ids-anyonecanlivePart-time workers could face a benefit sanction for going to work under draconian new rules which force claimants of in-work benefits to constantly look for more, or better paid work.

When Universal Credit is fully introduced (stop laughing) Jobcentres will have the powers to dictate how many hours a claimant should be working to remain eligible for what are now called Tax Credits and Housing Benefit.  Those without children, who do not have a health condition, will be required to spend up to 35 hours a week either working or taking part in work related activity such as looking for additional work or even attending workfare.  Failure to comply will result in a sanction.

The implications are chilling.  Under the new rules part-time workers will have to attend a job interview with just 48 hours notice  or their benefits will be stopped.  This is likely to mean someone required to…

View original post 756 more words

Police Fear For Missing Boy Malakhi Chijiutomi-Ghosh, 10, With Rare Medical Condition

March 31, 2015

A 10-year-old boy with a rare medical condition who has gone missing may already have fallen into a coma, police believe.

Scotland Yard has issued an urgent appeal to trace Malakhi Chijiutomi-Ghosh, who suffers from adrenal hyperplasia and requires medication three times a day.

He was last seen on CCTV footage in Thornton Heath, south London, shortly after 7am.

A police spokesman said: “It is vital that he is found so that medication can be administered. Having received no medication today there is a very real chance that he may have already fallen into a coma.”

Malakhi does not have a mobile phone, an Oyster card or any cash with him.

He is a light skinned black male, 4ft 7in and of slim build with short black curly hair. He was last seen wearing a coat and hat with a long-sleeved red/orange top with a picture of a meerkat playing the drums on it.

Malakhi has connections to the Thornton Heath, Victoria and Croydon areas of London and may be travelling on public transport, although he does not have an Oyster card.

Anyone who has information on Malakhi’s whereabouts should contact police.

Update 5pm: I’ve just heard that he has, thankfully, been found!

Disabled Man Left With Life Threatening Injuries After St Leonards Attack

March 31, 2015

A disabled man on crutches was attacked in St Leonards leaving him with a life-threatening injury.

At 7.40pm on Sunday (29 March) police were called to St John’s Road at the junction with King’s Road, outside the Royal Hotel public house, after the 49-year-old local man had been kicked and punched by one of two men following a brief dispute.

The victim sustained a head injury and fell to the ground and was taken by road ambulance to King’s College Hospital in South London where his condition was assessed as life-threatening.

The two men, who ran off in the direction of Western Road, are both described as black. The man who is believed to have carried out the assault was wearing a black jacket and a dark baseball cap.

 

The second man was wearing a dark baseball cap with what is believed to be white peak. Detective inspector Gavin Patch said: “We are still making enquiries to clarify exactly what happened and the motive for the attack has not been established although it appears the victim and attackers may be known to each other. Anyone with information can email 101@sussex.pnn.police.uk or call 101. Alternatively call Crimestoppers anonymously on 0800 555 111 FREE.”

Disabled Couple Wins DHP DLA Case

March 31, 2015

Councils may have to review their emergency housing payment policies after a High Court ruled that routinely considering disability benefit when calculating discretionary housing payments is unlawful.

In a judgement published yesterday, the High Court quashed Sandwell Council’s decision to lower its discretionary housing payment (DHP) award to a bedroom-tax hit couple because they received disability living allowance (DLA).

In September 2013, the council granted a lower DHP award to disabled couple Michael and Jayne Hardy because it calculated their DLA as part of their income when they applied for help to cover the bedroom tax.

Mr and Mrs Hardy, who live in a three bedroomed specially adapted property, took a judicial review against the local authority in October 2013, arguing that its decision was discriminatory.

The judgement said: ‘The council’s policy of always taking into account DLA as income when assessing awards of DHP, as reflected in the Sandwell policy, fails to have due regard to the DHP guidance, constitutes a failure to exercise the council’s discretion and fetters any future exercise of that discretion.’

The court also ruled that Sandwell Council had discriminated against the couple.

Giles Peaker, partner at Anthony Gold Solicitors, wrote on his blog: ‘The court did not agree a blanket ban on taking into account DLA in calculating other benefits.

‘However, given the terms of the remaining areas of the judgment, any council that proposes to continue taking DLA into account in assessing income for DHP awards needs to consider it very carefully indeed.’

The decision is important because it means councils will now find it much harder to take DLA into account when calculating DHP awards, meaning they may have to redraw their policies.

Research by Inside Housing last year found at least 1,600 disabled people were denied DHP by councils.

Research by the Zacchaeus 2000 Trust, which intervened in the case, has found that 22 out of the 32 London boroughs consider DLA when determining the level of a DHP award. DHP has been cut most in London and the south east for the next financial year.

Joanna Kennedy, chief executive, Z2K, said she was ‘delighted’ by the decision.

She said: ‘We urge all authorities that currently count DLA as income in the calculation of discetionary any payment or benefit to cease this practice’

The DWP and Sandwell Council did not comment.

Cameron Refuses To Rule Out Taxing Disability Benefits

March 31, 2015

With many thanks to Benefits And Work.

When asked if he would rule out taxing disability benefits in a television interview on BBC breakfast this morning, David Cameron failed to do so, saying only:

“What we’ve done through this parliament is we’ve actually improved the money that goes to the most disabled people in our country. We’ve replaced one benefit – disability living allowance – with a new benefit – personal independence payment – it’s working well, it is also going to lead to some savings over time and we haven’t created that benefit in order to undermine it. We want to enhance it and safeguard it.

“As we look to find those welfare savings, we should apply some very clear principles: one, that work should always pay; two, that the most disabled should always be protected, we look after those in need; and third, people who have paid into the system and look forward to a dignified retirement, we should look after them too”.

The assertion that “the most disabled should always be protected” allows the Conservative party to decide who “the most disabled” are.  It leaves them free to, for example, do away with the work-related activity group (WRAG) of employment and support allowance on the grounds that people in the WRAG are not the most disabled.

The reality is that the majority of disabled people would be astonished to learn that the money they have received has been ‘improved’ under the coalition.

They would not be at all surprised at plans to cut their income via taxation after the next election.

LD Community Village Of Botton Under Threat

March 31, 2015

The village of Botton has been home to people with learning disabilities for 60 years, but there are claims that changes to employment laws are posing a threat to the community.

Volunteers live and work alongside people with learning disabilities in the North Yorkshire village.

However, these volunteers, who receive expenses, need to become paid employees under new regulations, although the money they receive will not increase.

Some residents feel this will threaten their community and way of life, as Nikki Fox reports.

Good At Darts? You Can’t Be Blind!

March 31, 2015

A blind man who held a charity marathon DARTS event was investigated over benefit fraud – because he was too GOOD.

Visually impaired Robert Boon, 50, organised a ten-hour ‘arrow’ throw to raise £500 to help buy two guide dogs.

Robert is registered blind as he is completely blind in one eye and only able to see shadows in the other.

He scored a whopping 61,000 points on the night by standing and playing darts on his own for ten hours.

Mr Boon says due to the repetitive action of dart throwing he was able to maintain some degree of accuracy.

But shortly after the event he was called to a meeting by the Department for Work and Pensions to assess his eligibility to claim benefits.

He was stunned to discover a member of the public had reported him – claiming someone that good at darts could not possibly be blind.

Mr Boon, of Paignton, Devon, said: “I got a letter saying I had to attend a meeting.

“I felt humiliated because I don’t think it is right to report me when I have tried to do something good.

“I rang the hospital to get my medical records on my eye condition.

“I don’t see why people should put me down.

“I feel really intimidated now.

“I am registered blond and can’t see virtually anything out of one eye and shadows in the other.

“To be fair when I spoke to the DWP they said they would not be taking the benefits away.

“I have other things lined up now including a comedy night and don’t intend to stop.”

The DWP have confirmed that after an investigation it does not intent to cut Robert’s benefits.

A spokesman said: “It’s only right that we investigate a person’s benefit claim when we receive information that suggests they may not be entitled.”

Robert held the charity event at Pond Coffee Shop in Paignton as part of a larger fundraising drive to raise #10,000 so he can buy two guide dogs.

Katie Cutler’s Big Challenge

March 31, 2015

Katie Cutler has set up a Foundation to fundraise for disabled people in random acts of kindness! She is aiming to raise £1 Million.

She is an amazing young person and her projects richly deserve all the publicity they can get.

Cathy Newman Asked George Osborne Whether He Would Cut Disability Benefits

March 31, 2015


He refused to definitively rule it out – instead saying that voters should judge the Conservatives on their record.

Vote Them Out (On May The 7th)

March 30, 2015

Music and lyrics by Media Blind; images by courtesy of @LivingstonePics.

Let’s get this to Number 1 as soon as possible, readers!

 

Anthony’s New Wheelchair: Eurocycle 2015

March 30, 2015

Posting this in support of a friend of Same Difference.

I will be cycling across Germany and Denmark to reach Sweden in June of this year and in doing so I’m trying to raise funds to help my friend Anthony who is physically disabled and in urgent need of a new electric wheelchair.

Anthony’s current chair has sadly reached the end of its days. It is central to his life, he relies on it for his independence, to get out and about, to keep active and to do his volunteer work.

These chairs are not cheap, they cost about £8000 so whatever you can give to help keep Anthony on the road will be deeply appreciated. The Nihal Armstrong Trust is co-ordinating all the fundraising on Anthony’s behalf.

My journey will be approximately 500 miles and should take 11 (eleven) days.

You can sponsor me by the mile, (a donation of £10 would be 2p a mile), I’ll leave you to work the other amounts out! Or simply make a one off donation.

There is much more information about Anthony and my trip in general on the event blog at www.anthonyschair.weebly.com

You will be able to keep up to date as I progress towards the event and also during the event, where I hope to be able to give daily updates.

Through Virgin Money Giving all donations will be quickly processed and passed to the charity. Virgin Money Giving is a not for profit organisation and will claim gift aid on the charity’s behalf where the donor is eligible for this.

We really do appreciate all your support and thank you for your donations.

David and Anthony

Election Fight Night

March 30, 2015

A press release about a new game I think we’ll all enjoy!

Crush Ed Miliband with a mansion or deport Nigel Farage in online mobile ready game

 

With the TV General Election debate looming, London creative marketing agency Brand & Deliver has today launched Election Fight Night, an online mobile-ready game offering the satisfying opportunity to punch the living daylights out of every major party leader – whilst taking a satirical swipe at the very electoral system itself.

 

The game is a hilarious mix of Newsnight-meets-Street Fighter, where players choose a party leader and quite literally beat the electoral seats out of the other party leaders.  The game features glossy, over the top American-news-style graphics and poignant ‘special moves’ that see each party leader falling foul of their own worst campaign ideas: Cameron rotting in an NHS hospital bed is particularly fun, as is Farage being deported and Miliband being crushed by a mansion.

 

The game not only provides a stress-relieving respite from the election itself, but it’s also providing a simple straw poll of opinion.  “Though it’s largely just a bit of fun, we anonymously log how many players choose each party, so in effect, we’re getting a sense of the possible election results” says CEO Ben Gallop.  “Come the election, our game might well have predicted the outcome.”

 

But it’s not all about poking fun at the system; it hopes to make a few serious points too.  “Mockery aside, we wanted to make the point that digital interaction is woefully under-used in politics.  Not least that we still can’t vote online, but that no party really understands how to engage with the youth electorate, known for extremely low voting turnout.  Use a medium that the target group care about, and make it interesting – then we may get some more votes coming in.  If the parties dare!”

 

The game is completely free, logs no cookie data and displays up-to-the-second updates of its election poll.  Play it at http://www.electionfightnight.co.uk

Goodbye readers, I’m off to play the game…

Anti Disablist Bullying And Inclusion Working In 2015 Films

March 30, 2015

An email from campaigner and friend of Same Difference, Richard Rieser:

Dear Colleagues,

With pleasure I draw your attention to the following films and resources made by World of Inclusion that are now available on line. Please circulate and utilise
6 films of workshops on challenging disablist bullying in six schools and supporting materials available at 
http://anti-bullyingalliance.org.uk/send-resources/challenging-disablism-classroom-resources/
Films of Incluision Working in 2015 on the World of Inclusion website. Two are up Wroxham and Emersons Green Primary Schools which will soon be joined by Priestnall Secondary.
http://worldofinclusion.com/inclusion-working-in-2015/

Best wishes 

Richard Rieser,
World of Inclusion Ltd

JobCentre Call Police On Claimant Because He Begs For Advisors’ Help

March 30, 2015

With many thanks to Justice4Jobseekers.

 

Thanks to Julie O’Dwyer for sharing this with us. More evidence of the increasing level of inhumanity shown by so-called Jobcentre advisers:

“I was in the job centre several weeks ago. Whilst waiting to be seen I could hear a gentleman begging for somebody to properly explain why he had been sanction. The advisor refused to speak to him any further and so the gentleman said he would sit and wait until somebody could explain things to him. He was totally non aggressive and not at all confrontational. The job centre called the police and they forcibly removed him from the building. I’ve never experienced anything like it in my life! The poor guy was desperate and the people who are there to supposedly support him just turned their backs and had him turfed out onto the street! That one incident said it all to me. So sad.”

Chilling Warnings From IDS About Benefit Cuts On Marr Show

March 30, 2015

With many thanks to Benefits And Work.

Iain Duncan Smith yesterday warned that claimants face “dramatic”, “life-changing” cuts if the Conservatives win the election. He refused to rule out cutting disability benefits and the support group, whilst explaining that the Conservatives “may not decide that it’s relevant” to tell people prior to the election where the cuts will be made.

Chilling warning
In an interview on the Andrew Marr show on Sunday, IDS gave what many sick and disabled claimants will view as a chilling warning that:

“I didn’t come into this job after years looking at this to just make cheese paring cuts.”

Instead, he said, he wanted to do things that will have a “life changing, dramatic effect, and that is about getting people back to work and improving their life chances.”

The ‘back to work’ reference appears to be a clear warning that employment and support allowance (ESA) claimants are in the firing line of any ‘dramatic’ changes.

This is especially the case as Jobseeker’s allowance (JSA) is expected to cost just £2.39 billion in 2016-17, when the cuts come in, compared to £14.47 billion for ESA. So cuts to JSA would go nowhere near meeting the £12 billion in welfare savings the Conservatives have said they will make in just two years.

Disability benefits
But cuts to ESA would still not go far enough and IDS refused to rule out an attack on disability benefits as well. He argued that:

“Throughout all of my changes, we have protected the most disabled, we have kept disability benefits out of the freeze and we’ve supported the support group.”

But when Marr asked: “Will that continue?”

IDS would only respond that:

“Well, as I said, as and when the time is right, we will make it very clear what our position is.”

“When we’re ready”
Unfortunately for voters, IDS repeatedly made it clear that the right time to reveal their plans may not be until after the election, saying that “when we’re right and when we’re ready, we will talk about what we plan to do.”

When specifically asked by Marr:

“Will they know before they vote what you plan to do?”

IDS replied:

“Well you know we may, we may not decide that it’s relevant to put something out there about

some of those changes.”

No decisions made yet
In fact, according to IDS it would be impossible for the Conservatives to reveal their plans to voters because, in spite of warning for two years that they planned to make £12 billion in benefits cuts, no decisions have been made yet about what to cut.

“I can tell you now no decisions have been made. As and when decisions are made, of course we will be very open to the public.”

Improved quality of life
Perhaps the most alarming claim made by IDS was that his time at the DWP has resulted in an improvement in people’s lives:

“And I’ve said that these changes would improve the quality of lives, and I have to tell you right now our welfare reforms have improved the quality of life for the vast majority of the British people and also saving taxpayers’ money – which is the key point.”

Sick and disabled claimants have already been hit by the bedroom tax, the switch from DLA to PIP, the time-limiting of contribution-based ESA, changes to council tax, changes to the way benefits are uprated and more.

The prospect of IDS spending another five years improving their lives may ensure a very high turnout of claimants on May 7th.

You can read the full transcript of the Andrew Marr interview here.

Leaked Tory Cuts ‘Not Deep Enough To Hit Targets’ Warns IFS

March 30, 2015

 

Even if all the benefits cuts leaked to the BBC last week were implemented, they would still not be deep enough to meet Conservative targets and more would need to be made. The scale of the cuts needed was revealed in a detailed analysis released on Friday by the Institute for Fiscal Studies (IFS).

Last week the BBC gave details of emails which showed that, in order to cut 12 billion from the benefits budget, the Conservatives are considering measures including:

Taxing disability living allowance (DLA), personal independence payment (PIP) and attendance allowance (AA).

Abolishing contribution based ESA and JSA entirely, so that only claimants who pass a means test can claim these benefits.

Cutting the number of people getting carer’s allowance by 40%.

Limiting child benefit to the first two children.

Other plans include replacing industrial injuries benefits with an insurance policy for employers, regional benefit caps and changes to council tax.

However, according to the IFS:

“If all of these were implemented, the total saving would be likely to fall well short of the missing £10 billion per year that the Conservatives intend to find by 2017–18”

This is particularly the case because some savings, such as to child benefit “would be unlikely to be fully realised for some years”.

The Conservatives have claimed that none of the leaked cuts are party policy, but the IFS believes it’s time for the party to come clean about what it does intend to do, saying:

“These may well not be the decisions that a future Conservative government would make. But it is likely they would have to make changes at least as radical as this to find £12 billion a year. We should be told what those changes would be.”

You can read the full IFS statement here.

A Headstone For Those Who Died In DWP-Related Circumstances

March 30, 2015

I spotted this on Justice4JobSeekers’ Facebook page.

Please share widely.

Katie Hopkins Tweets On Depression

March 30, 2015

BBC Free Speech are asking for thoughts on these Tweets from Katie Hopkins.

Personally I think it’s terrible that someone with such a large following has and reveals these views on what is, for many people, a very serious and severe mental health condition.

DWP Threatened To Cut Terminally Ill Woman’s Benefits- If She Paid For Her Own Funeral

March 28, 2015

A terminally-ill woman was told by the Department for Work and Pensions (DWP) that she risked being charged with an “offence” and would lose part of her benefits if she used an insurance policy windfall to pay for her own funeral.

DWP bosses told Sue Smith that spending the £3,700 in advance on her funeral would be seen as “deprivation of capital” – deliberately spending her savings in order to maintain entitlement to benefits.

Smith, from south Devon, had contacted DWP after being told about the £3,700 refund, because she wanted to be sure that she did not fall foul of any regulations if she spent the money on paying in advance for her funeral.

But when she approached DWP, and made it clear that she was terminally-ill, she was told that she could lose part of her employment and support allowance (ESA) payment – she has estimated that it could have cost her about £15 a week – and could even be seen as committing an “offence”.

Smith, who uses oxygen 24-hours-a-day, said she felt “threatened, hurt and distressed” by the warning, and was now at her “wit’s end”.

Full story at the Disability News Service.

I have no words, except to say that this needs to be shared as widely as possible because people need to know that it appears to be a crime in the eyes of the DWP for benefit claimants to pay for their own funerals.

Tory Benefit Cut Options Leaked

March 27, 2015

So, they’ve leaked the ‘options’ being considered for cutting the welfare bill.

These three ‘options’ would affect disabled people and carers most:

 

  • Carer’s Allowance – this could be restricted to those eligible for Universal Credit. Leaked documents suggest about 40% of claimants would lose out. DWP predicted saving – £1bn
  • The contributory element of Employment and Support Allowance and Job Seekers Allowance – currently claimants who have paid enough National Insurance contributions can get the benefits with little means testing; DWP analysis suggests 30% of claimants, over 300,000 families, would lose about £80 per week. DWP predicted saving – £1.3bn in 2018/19
  • Disability benefits – Disability Living Allowance, Personal Independence Payments and Attendance Allowance (for over 65s who have personal care needs) would no longer be paid tax free. Possible saving – £1.5bn per annum (based on IFS Green Budget calculation )

The BBC has the full list of ‘options’ here.

 

 

Back On Track: Don’t Let Incontinence Control Your Life

March 27, 2015

This is a guest post from Alice Hayward.

Incontinence can make you feel as though you are losing control thus leading to social isolation – but it’s important to try and not let this take over your everyday life.

This latest guest post runs through five straightforward and recognisably effective ways in which you can help manage the condition and its effects, and minimise the impact it makes on your daily life.
1. Exercises
There are a number of exercises which you can do to help limit incontinence. One exercise in particular is the Pelvic Floor exercise. This type of exercise strengthens your pelvic floor muscles, supporting the bladder and bowel.

See video below to help you with pelvic floor exercises:
https://www.youtube.com/watch?v=HZAGRlvCM_k

Another form of exercise which is good are Pilates, this gentle method is a great way to strengthen your pelvis.
Source: http://hu.wikipedia.org/wiki/Pilates

Losing excessive weight in general can massively help fight incontinence. This is because of the pressure from the fatty tissues on the bladder.

A recent study found that overweight or obese women who lost an average of 7.8 kg decreased the number of episodes of incontinence by almost 50%, compared to the group that lost only 1.5 kg, who decreased the number of episodes by 28%.

To find out what your body mass index is visit:
http://www.nhs.uk/Tools/Pages/Healthyweightcalculator.aspx

2. Diet
If you are a smoker you put yourself at risk because coughing can cause incontinence. Try to quit or cut down by using Nicotine patches or contact your GP.

Drink plenty of water, staying hydrated is important, eight glasses a day are the usual recommendation. A lot of people try to cut down on water because they believe that fluids increase the risk of incontinence, however restricting your intake can make matters worse because it reduces your bladders capacity.
Source: http://pixabay.com/en/photos/plastic%20bottles/

3. Lifestyle changes
Cut down on alcohol and caffeine; many experts believe that alcohol and caffeine irritate the bladder, so cutting down on the two may significantly help.

Some people believe that certain foods trigger urinary incontinence problems. Keep a diary of the foods you are eating and check to see if there is a pattern emerging.

4. Products
Certain products can help reduce the impact of incontinence; Tena pads from Home and Medical, for example, are useful and help you to manage the effects of the condition while using other techniques to help treat the causes.

5. Treatments
Acupuncture is done when a body’s vital energy cannot flow freely. Acupuncture has been said to have helped bladder and bowel conditions due to targeting certain points in these areas.

Any acupuncture practice must be provided by practitioners who have been trained to a standard that is recognised by accreditation bodies such as universities or registered bodies. Members of the British Acupuncture Council (BAcC), British Medical Acupuncture Council (BMAS) and the Acupuncture Association of Chartered physiotherapists (AACP) are recognised as achieving a level of safety and clinical knowledge to offer safe, effective acupuncture. When looking for recommended practitioners patients should be guided by these levels of scrutiny and professional standing.
Source: Bladder and Bowel Foundation

Hypnotherapy is also said to have helped reduce incontinence in that it helps the emotional and psychological issues of a person. Hypnosis is said to have helped some people by helping your subconscious understand the problem with the body, this then helps to address the problem.

Just remember there is no reason to feel ashamed, incontinence effects millions of people worldwide. Keep note of the steps above and you will be able to reduce if not overcome the issues you are facing.

Follow Twitter: @nursemaiden for further tips.

Taking the Plunge: Finding Support to Live Life to the Full

March 27, 2015

This is a guest post by Alice Hayward.

Once education is complete, and all extra support has been completed and signed off, someone with LD may still feel the need for extra support, but where do you go to find support that still enables you to lead a relatively independent life?

It is important that you feel in control and confident enough to live life to the fullest and sometimes, like everyone, extra support may come in handy. Community based support may be just the thing to get you set up for your adult life and give you opportunities that you may not feel confident enough to try alone.

The Numbers

Statistics show that 58,000 people who live with LD need extra support from external services, 28,000 adults of which still live with a family member that is over the age of 70. – Learning Disability Statistics: Support

People with LD deserve the opportunity to lead a fully social, fulfilling and exciting life yet may not have the confidence to go out and make friends or try something new alone. It’s important when looking for extra support to find the right kind of help that benefits you and your personality.

What to Think About

 Location, location, location.
 What community based support is right for you?
 What are the benefits?
Location, Location, Location

It’s essential when choosing community based support that you ensure each location caters to your specific needs. Hillcrest Learning Disabilities, for example, is a charity that caters their care plan wholly on what individuals and their family aims to get from the programme with each location specialising in particular disability support. To help you find a support centre that is right for you a list of community based support centres and their most recent checks can be found here.
What is Available?

Whether you are starting from scratch or have a general idea of what you are looking for from community based support, a great resource that can be extremely helpful is the Think Local, Act Personal resource: Making it Real. An easy read version is available.

What are the benefits?

There are loads of benefits of community based support depending on the type of support you are after. It enables adults to form friendships, increase their feeling of involvement in their community and focuses on what each individual wants out of life; enabling them to reach their full potential.

Whether you are looking for a place to live which caters to your needs or simply wanting support through the everyday building of your life, there is a range of help available to you. Take a look at having a good day for further information and help on what community based support is right for you.

Labour Has Unveiled Their Billboard Advert For The General Election

March 27, 2015

And it’s a guaranteed winner!

Maximus’ Contact Details Are Missing?

March 27, 2015

From Benefit Resolutions… please share:

Today, it has come to our attention, that although ATOS have gone and people have been waiting in excess of 14 months for an ESA medical.

That Maximus, I believe is either using ATOS’s letter headings and addresses and telephone numbers. And even though people have been waiting over 14 months,have been told that Maximus/ATOS cannot not give them an ESA/WCA assessments are in a queue and cannot give a time frame for how much longer they are going to wait.

This means people are struggling on £73 a week for over a year. Is this happening to you,is this acceptable?

Please share and let us know how many more this is affecting and is anyone getting confused to which company is now responsible for and ESA WCA ?

As Maximus name and contact details appears to be seriously missing and this also includes complaints that are already needed to be put forward.

A Tribute To DAN And DPAC Member Vicky Roberts

March 27, 2015

Campaigner Dennis Queen shares some sad news on Facebook this morning. DAN and DPAC member Vicky Roberts sadly passed away unexpectedly on Tuesday.

I didn’t know Vicky Roberts personally, but she was a member of the disability community and the loss of one of us always hits us all hard.

Below is Dennis Queen’s short but very sweet tribute to her personal friend.

Attention all DAN and DPAC folk… Re Vicky Roberts aka Deaf Vicky.

I am sad to tell you that we lost another of our incredible warriors on Tuesday.
Vicky passed away unexpectedly in her sleep during the day, curled up in bed after messaging her adored spouse Linda. At this stage it is not clear why.

Vicky was much loved by all her friends for her awesome sense of humour and gentle loving nature. There was always hugs when Vicky was around. As well as that, she was a fantastic protester and campaigner, someone you can trust on a lockdown. Vicky was a dear friend of mine and I’m gutted, we’ve spent a lot of personal time together over the years. Most of all she leaves behind her a widow Linda, and I ask you to share your Vicky love with her at this sad time.

From Linda:

There will be a celebration of Vicky’s life, probably between the 1st and 3rd week in April. It will be in Manchester, in an accessible venue with, of course, BSL interpretation! Jen, a good friend of Vicky’s, is helping me with the planning, but it’s still too soon to really get going with planning it properly. Anyone who would want to come, but for whatever reason cannot make it to the celebration, will be welcome to send a paragraph to be read out at the celebration – a memory, what made Vicky Vicky to you, etc. Also, if any of you have any pictures with Vicky in them from DAN demos or any other setting, I would appreciate, if at all possible, a copy – electronic is fine. This is a hard time for Vicky’s friends as well as me, and I would hope any of you who are Vicky’s friends feel that you can contact me. My email address is linda_marsh66@yahoo.co.uk (that’s an underscore, not dash)”

My thoughts are with all who are affected by Vicky Roberts’ sad death.

Vicky Roberts (right) Protesting in London. Photo credit- Dennis Queen/Jo Church.

Sanctioned For Missing JobCentre Appointment- The Day His Brother Died

March 27, 2015

And ten other bizarre reasons for sanctioning, from the Guardian:

The coalition’s benefit sanctions regime, under which more than 1 million jobseekers had their unemployment benefits stopped last year, has spawned hundreds of documentary accounts of claimants being penalised for capricious, cruel and often absurd reasons.

The recent MPs’ inquiry into sanctions heard copious evidence of claimants being docked hundreds of pounds and pitched into financial crisis for often absurdly trivial breaches of benefit conditions, or for administrative errors beyond their control.

A typical example is the following anonymised list of sanctions reported by food bank clients to the Trussell trust charity:

  1. Man who missed appointment due to being at hospital with his partner, who had just had a stillborn child.
  2. Man sanctioned for missing an appointment at the jobcentre on the day of his brother’s unexpected death. He had tried to phone Jobcentre Plus to explain, but could not get through and left a message which was consequently not relayed to the appropriate person.
  3. Man who carried out 60 job searches but missed one which matched his profile.
  4. Man had an appointment at the jobcentre on the Tuesday, was taken to hospital with a suspected heart attack that day, missed the appointment and was sanctioned for nine weeks.
  5. Man who secured employment and was due to start in three weeks. He was sanctioned in the interim period because JCP told him he was still duty bound to send his CV to other companies.
  6. Young couple who had not received any letters regarding an appointment that was thus subsequently missed. Their address at the Department for Work and Pensions was wrongly recorded. They were left with no money for over a month.
  7. One case where the claimant’s wife went into premature labour and had to go to hospital. This caused the claimant to miss an appointment. No leeway given.
  8. One man sanctioned for attending a job interview instead of Jobcentre Plus – he got the job so did not pursue grievance against the JCP.
  9. Man who requested permission to attend the funeral of his best friend; permission declined; sanctioned when he went anyway.
  10. A diabetic sanctioned and unable to buy food was sent to hospital by GP as a consequence.

Sometimes sanctions have a bizarre, nightmarish quality, such as this one, reported by Highbridge and Burnham-on-Sea food bank and cited in a recent Church Action on Poverty report:

We had a number of customers who had been sanctioned including one guy who had been sanctioned for being late for his appointment at the jobcentre because the queue was so long it took him to past his appointment time to be seen. He was sanctioned even though he had arrived at the jobcentre in plenty of time.

Pupils With LD Losing Rights To Sex Education

March 26, 2015

A very interesting article on a very important issue from the Guardian.

Off to the UN, this battle is far from over!

March 26, 2015

rockinpaddy's avatarRockinpaddy

After a day in the House of Commons & Lords, it feels right to share this press release from Inclusion London which we were happy to pass over to those I met today….please share.  I was honoured to help break the news along with others fighting so hard in the #SaveILF campaign:

PRESS RELEASE
EMBARGOED until 00.01 Wednesday 25/03/2015

UK Disabled people appeal to the UN over Independent Living fund closure

A complaint to the United Nations was today launched on behalf of disabled people in the UK whose rights have been breached by the closure of the Independent Living Fund (ILF). The ILF, which is the subject of an on-going and desperate battle between disabled people and the Department for Work and Pensions (1), is high on the priority list for disabled people deciding how to vote at the forthcoming election. The complaint brought by Inclusion London (2) on…

View original post 947 more words

The DWP Tweet Zayn Malik

March 26, 2015

This appears to have been sent to pop star Zayn Malik from the DWP’s official account:

Thoughts, readers?

Single parent? Attend the Jobcentre and get referred to social services as a troubled family. New trial at Ashton Jobcentre.

March 26, 2015

Charlotte Hughes's avatarThe poor side of life

Yesterday I heard something very disturbing. A lady contacted me, she was very upset. She attended the Jobcentre for her signing on appointment and was confronted with something totally unexpected. She’s a very intelligent lady and thankfully she acted quickly and appropriately. She said hello to the advisor or job coach as they call them now. I don’t know why because they don’t coach you into anything except desperation. She’s been attending a mandatory work related course and had despite this completed all her Job searches correctly. The meeting then took a totally different atmosphere. The advisor suggested to her that she should be willing to get involved with a trial that they are running with Tameside Council. They are asking single parents to be assigned a social worker and a key worker so they can keep an eye on her… The reason for this? Because they said she hadn’t…

View original post 697 more words

Why Same Difference Hopes The BBC Will Sack Jeremy Clarkson Today

March 25, 2015

Readers, Jeremy Clarkson is reportedly expected to be sacked by the BBC today.

Same Difference has been campaigning for his sacking for years.

Why?

Perhaps because of his unneccessary reference to Gordon Brown’s partial eyesight.

Perhaps because of his description of a Ferrari as having ‘special needs.’

Or perhaps because of his ‘Elephant Man’   jibe?

The simple fact is this- we here at Same Difference have spotted and highlighted Clarkson’s disablist comments for a long, long time. But the BBC barely blinked- until now.

Even now, he is not facing the sack for a disablist comment. However, we here at Same Difference believe that the BBC without Jeremy Clarkson in it will be a much less disablist place.

So we hope for his sacking today- whatever the reason, it will be a significant victory in the fight against disablism.

Missing Forms, Medicals And Qualifications

March 25, 2015

With many thanks to Benefits And Work.

Benefits and Work is continuing to receive reports of medical assessments for ESA and PIP not being carried out correctly.

Missing ESA50 forms
Following a recent article on the issue, we have now heard from over a dozen people who have been asked to attend a work capability assessment without first completing an ESA50 form.

People who challenge Maximus about the lack of an ESA50 claim they have been given explanations such as:

“Not everyone will get a form.”

“One isn’t needed in your case.”

“You don’t need to fill one in.”

In most cases, however, people have not queried the lack of a form, even if worried and puzzled by it.

One member rang Maximus and insisted that they wanted to complete an ESA50 and would download one, complete it and forward it. They did exactly that and the health professional had it there when they had their assessment.

In another case a member who had an assessment without being sent an ESA50 was afterwards contacted by a decision maker who was unhappy about the lack of a form. The decision maker insisted on sending out a new form and beginning the assessment process all over again.

We’re now taking this issue up with Maximus and we’ll let you know what response we get.

Meanwhile, we wouldn’t advise anyone to attend a WCA without completing an ESA50, even if you have to download it yourself and take it in on the day.

If you complete it using our guides it really does help ensure that you give accurate evidence both in the form and at your medical.

Missing qualifications
In addition, we have also heard from three members whose PIP report carried out by Capita doesn’t give the type of qualification held by the health professional. Instead, in the box for ‘Type of professional’ it simply states ‘Health professional’.

We’re not sure if this is now standard practice, but we don’t think it is in any way acceptable and we’ll be talking to Capita about it. We’ll let you know what they say.

Distant medicals
We haven’t heard from anyone else whose medical was cancelled because all the venues were too far away, but we have heard from several people who had to travel upwards of forty miles for their assessment. We’d be interested to hear from more readers on this issue.

Disability Minister’s Office Not Wheelchair Accessible

March 25, 2015

I’ve just found out this little ‘you couldn’t make it up’ fact in this article by Frances Ryan. The main point of the article is that inaccessible polling stations are preventing disabled people voting.

When Did It Start Being Okay To Treat People With LD Like Trash?

March 25, 2015

An extract from Kate Belgrave:

Yesterday, I visited Brent Council with Eddie* (name changed), an unemployed 51-year-old Kilburn man who has learning and literacy difficulties. I’ve been accompanying Eddie to his various council and jobcentre meetings for months now. The whole thing has been a right eye-opener, for me at least. It has certainly opened my eyes to the various systemic meltdowns that austerity has left us with, and the people who are on the rough end of the whole shambles.

This guy definitely is at that rough end. Last time I wrote about Eddie, I explained how he’d been shouted at by a jobcentre adviser at his latest appointment. The adviser had signed him up for a work choice course without telling him what it was about, or how to organise his travel to it (it’s on the Caledonian Road somewhere) and then took exception when he started to complain. We’d both sat there as the adviser listed his sins (loudly) as the jobcentre saw them. No concession was made to his learning or literacy difficulties during that unpleasant exchange. The only reason that I’d cut that adviser any slack at all was that she’d been reasonable in the past and looked purely exhausted on the day of the yelling-match. Maybe she’d just been bawled out by some sanctions-happy manager who didn’t think she was hitting targets. I generally wonder where the PCS is at these moments. It’s pretty clear to me that some jobcentre workers are too stressed-out to cope a lot of the time (this adviser told me several months ago that back in the day, she saw about five JSA claimants a day. These days, she sees about 15). There certainly are some sadists working at jobcentres, but there are also people who try to be reasonable. Unfortunately, it’s impossible to be reasonable when you’re working in an utterly unreasonable, punitive, sanctions-driven workplace. Anyway – more on that particular situation soon. We’re picking it up with the jobcentre later this week.

Yesterday, we were at the Brent council offices. We were there because Eddie has another problem – he’s about to be evicted from the crummy studio flat that he’s been living in for a couple of years. He had a meeting with the council to try and get registered as homeless. Eddie isn’t too worried about leaving the studio flat as such and you wouldn’t blame him for that if you saw the place. “Studio” is too romantic a word for it. “Hovel” would be closer to the mark.

Actor, Singer And TV Personality L’il Chris Dies By Believed Suicide Aged 24

March 24, 2015

Very sad news. RIP.

Actor, singer and TV personality Chris Hardman, whose stage name was Lil’ Chris, has died aged 24. The cause of death is believed to be suicide.

Hardman rose to fame on Channel 4 series Rock School in 2006 and went on to star in the stage premiere of James Bourne and Elliot Davis’s musical Loserville.

Speaking to WhatsOnStage, Davis said it was “awful, awful news”, and confirmed that Hardman suffered from depression.

“He was a super talented guy, so naturally gifted,” Davis added. “He just had something that the nation saw and it catapulted him to early fame, which perhaps caused problems.”

As Lil’ Chris – a nickname he picked up on Rock School – he released his debut album in 2006. Davis described him as a “fantastic” songwriter. He subsequently hosted his own talkshow Everybody Loves Lil’ Chris on Channel 4.

In Loserville, which premiered at West Yorkshire Playhouse in summer 2012 before transferring to the West End’s Garrick Theatre, he played Francis Weir.

“When you work with people on shows you become a close family very quickly,” said Davis. “He suffered from depression and like many people had struggled to find a way through it.”

Tory Minister Hugo Swire Recorded Mocking Benefit Claimants

March 24, 2015

Many thanks to Benefits And Work.

Tory minister Hugo Swire mocked claimants at last month’s £1,500 per place ‘black and white ball’ to raise funds for the Conservatives. His callous jibe was secretly recorded for the Channel 4 ‘Dispatches’ programme.

Swire, an Old Etonian, was acting as auctioneer whilst guests made bids for a bust of Margaret Thatcher, a weekend’s pheasant shooting and a shoe shopping trip with Theresa May, amongst other lots.

Whilst encouraging a bidder at Iain Duncan Smith’s table to increase his bid, Swire is heard to say:

“£60,000. Iain, persuade him. He’s not on benefits ,is he? Well, if he is then he can afford it. £55,000?”

Swire went on to joke that:

“It’s quite naff to have Bentleys and Rolls Royces and Ferraris, because anybody could have them

“In the good old days of MP’s expenses we could have them too. But we don’t any more.”

In the exceedingly unlikely event that Mr Swire is reading this: in reality a Jobseeker’s Allowance claimant would need to save every penny of their payments for 16 years to come up with £60,000.

Funny that, isn’t it?

Police Complaints Commission Type Body Should Investigate Benefit Deaths, Say MPs

March 24, 2015

With many thanks to Benefits And Work.

The influential Commons Work and Pensions committee has today called for “a body modelled on the Independent Police Complaints Commission,” to look into the deaths of working age benefits claimants.

Benefits deaths
The call for an investigative body to be set up, likely to infuriate Iain Duncan Smith, was included in a series of recommendations in a report into benefits sanctions by the committee.

The committee noted that there have been 49 investigations into claimant deaths by the DWP since February 2012 and has called on the DWP to reveal how many claimants were subject to a benefit sanction at the time of their death.

They then went on to demand that the DWP

“ . . . should seek to establish a body modelled on the Independent Police Complaints Commission, to conduct reviews, at the request of relatives, or automatically where no living relative remains, in all instances where an individual on an out-of-work working-age benefit dies whilst in receipt of that benefit.”

Independent review
The committee also renewed their call, first made in January 2014, for a full independent review to “investigate whether benefit sanctions are being applied appropriately, fairly and proportionately, across the Jobcentre Plus (JCP) network”

Dame Anne Begg MP, Chair of the Work and Pensions Committee, said:

“Benefit sanctions are controversial because they withhold subsistence-level benefits from people who may have little or no other income.

“We agree that benefit conditionality is necessary but it is essential that policy is based on clear evidence of what works in terms of encouraging people to take up the support which is available to help them get back into work. The policy must then be applied fairly and proportionately.

“The system must also be capable of identifying and protecting vulnerable people, including those with mental health problems and learning disabilities. And it should avoid causing severe financial hardship.

“The system as currently applied does not always achieve this.”

ESA sanctions
The committee also looked specifically at why employment and support allowance (ESA) claimants are being sanctioned in ever greater numbers.

They heard evidence from work programme providers that, because they had been so unsuccessful in getting ESA claimants into work, more mandatory activity had been forced on sick and disabled claimants. This, they said, “might be leading to more sanction doubts being raised.”

The committee recommended that work programme providers should be allowed to accept ‘good cause’ explanations from claimants as to why they hadn’t met a requirement, instead of having to refer every issue to the DWP.

You can download a copy of the report ‘Benefit sanctions policy beyond the Oakley Review’ from this link.

             

     

 

I stand quietly

March 24, 2015

homeedjilly's avatarDirty, Naked & Happy

I stand quietly while you do somersaults on the bed as you aren’t being naughty, you are just trying to get your out of sync body under control.

I stand quietly by the toilet door every time you need to go, and come with you around the house, and sometimes even just across the room, because I know you can feel truly frightened when you are not near me.

I stand quietly at the supermarket checkout while everyone stares at you barking like a dog and blowing raspberries on my arms to cope with the buzzing lights.

I stand quietly while you tell the baffled shop owner that you are looking for shoes that feel hard like splintered wood because your skin can’t bear soft things.

I stand quietly when the attendant gives us scornful looks when I ask for the key to the disabled toilet because the hand dryer…

View original post 800 more words

ATOS Assessment Errors

March 24, 2015

Useful information that I found on Facebook. Thanks to reader Nessie King:

If you have failed a Pip/esa assessment you must ring and ask for a copy of the full assessment report and scoresheet asap. You will be surprised at how many contain errors. Just today we have had complaints from 3 people who had ATOS PIP assessments this month all complaining that the reports have the words “passed the pinch and grip test” when there was NO test of either and the assessor didn’t even touch their hands nor observed them handling papers or a bag etc. 

You should write on a copy of the form where you disagree with the decision and why, ie that there are omissions or blatant misrepresentations and untruths based on no evidence etc. Don’t wait for it to arrive though before posting your reconsideration/sscs1 if you are running out of time, as dwp/atos won’t rush posting it to you, surprise surprise. 

I can honestly say the PIP assessments are getting worse in some areas and we have witnessed a few incidents which has made us raise serious complaints with DWP/ATOS & the MP’s we work closely with.

Finally remember if you had an atos WCA ESA assessment even if it’s been overturned in court, the assessors still have access, as we found out recently in Manchester Trinity Way ATOS centre, during a PIP assessment. Luckily the HCP mentioned the 2 yr old adverse report in passing, and as I had represented the client, and happened to have her file with the overturned tribunal decision notice in it, we showed her and explained it was discredited in court and overturned. The assessor listened and made the right decision to exclude the info from her reasoning. Our client was awarded higher rate of both components. 

Assessment tip: 

If you failed a WCA in last 2 years and had the decision overturned, take the decision with you to your ATOS assessment and show the assessor if they admit they have access to your old ESA assessment report.

Tory Council Candidate Gregg Peers Caught Posing Dressed As Oscar Pistorius

March 23, 2015

If he thinks this is funny, he is very wrong.

 

This is offensive to amputees, and a very painful sight for anyone who has ever lost anyone to murder.

Blindfold- Bringing Blind Musicians Into The Mainstream

March 23, 2015

ESA: ‘The fiscal fire starter’

March 23, 2015

Benefit Claimants Still Being Ripped Off By 0845 Numbers At DWP

March 23, 2015

Millions of claimants who phone benefit and pension advice services are still being charged for higher rate calls.

Ministers pledged two years ago to phase out the expensive 0845 numbers for people dialling government lines.

But figures show they are still being used – and there is no timetable for when they will be switched to cheaper lines.

A Parliamentary answer revealed that since 2012, a total of 12 million calls were made to the Pension Service on 0845 numbers. This includes 2.5million in 2014/15.

In the same period the 0845 number was used for 2.9 million calls to the Carer’s Allowance Unit, 530,282 calls to the Winter Fuel Payments line, and 360,439 calls to the Bereavement Benefits.

Government figures

Labour MP Frank Field, who unearthed the figures, blasted: “At the very point in their lives when millions of people are most in need, they are being fleeced by the Government and the phone companies.

“Ministers promised over a year ago that these rip-off lines would be scrapped. Might they now sanction such a move as quickly as they sanction claimants?”

The cost of 0845 numbers varies between 1p and 12p per minute depending on the time of day for landline customers and between 5p and 40p per minute for mobiles.

By contrast a call on 01, 02 and 03 numbers costs up to 9p from a landline and between 8p and 40p per minute from a mobile.

In 2012 it emerged callers had spent £56million calling Government departments over the course of the year.

After widespread outrage, the Cabinet Office finally issued new guidance to Ministers in 2013 stating: “It is inappropriate for callers to pay substantial charges for accessing core public services, particularly for vulnerable and low income groups.”

But two years later there is still no timetable for phasing the rip-off numbers out.

A Department for Work and Pensions (DWP) spokeswoman said work is opngoing to replace the helplines.

“DWP is already in the process of replacing all its 0845 number prefixes in use for its national helplines,” she said.

“We introduced 0345 numbers for DWP national helpline service numbers – this is alongside an 0845 option, which can currently be cheaper for some dependent on their telephony provider.”

Ashya King’s Parents Reveal He’s Been Cured!

March 23, 2015

There is fabulous news being reported today, readers. The parents of Ashya King have revealed that he has been cured of his brain tumour after the proton beam therapy they fought so hard to get for him last year.

The article I’m linking to comes from the Mirror.

The Kings have my very best wishes.

Kerry And Mark McDougall Forced To Flee Fife With Third Unborn Son Leaving Two Sons Behind

March 23, 2015

Proud Kerry McDougall is looking forward to the birth of her third son – but fears she may have a tough battle to keep him.

Kerry, 22, deemed by social workers to be “too dumb” to be a mum, has left her home and her two young sons 200 miles away in the hope of preventing her new baby being taken into care at birth.

She and husband Mark say leaving Sean, five and William, three, with the foster family they had been handed to was “the hardest thing”.

But Kerry added: “They’d already been taken from us. The social workers think because I can’t spell long words I’m incapable of love or caring for children.

“I can’t describe how it feels to know your children are somewhere else and are unhappy. I just have to trust one day we’ll get them back.”

The couple fear that if they return home when their son is born they will almost certainly lose him too. Born with a cleft palate, Kerry could not speak properly until she was six.

Her learning difficulties were termed “mild to moderate” by specialists. And she admits her reading and writing are not as good as many adults.

But her difficulties are largely academic. She cooks, and looks after the Belfast terrace house she has now made home – and is determined to have a career.

She is shy and speaks slowly but it’s clear that despite her mild speech problems, Kerry is kind and switched on. She rattles off her sons’ dates of birth and reads, then files the household bills.

The young Scottish mum even used to have a voluntary position as a ­childcare assistant for Fife council but had to leave when she first fled in 2010, when she was pregnant with Sean.

Kerry claims the couple were “tricked and trapped” by social services into returning to Scotland, where the two boys were taken from them last June.

She said: “It’s been proven time and time again that we’re good parents. Our children were happy and healthy.

“We’d been living happily in southern Ireland for three years and the authorities there thought we were good parents.

“We were led to believe that was proof enough for us to be left alone if we moved back. But Fife social services betrayed us.”

The couple had ­gathered up a few belongings and left for Ireland after social workers in Fife ordered registrars not to let Kerry’s wedding to Mark go ahead – with 48 hours’ notice – saying she lacked the mental capacity to marry.

And they were told their first child would be taken into care within hours of his birth, and could be put up for adoption.

Instead Sean was born in Waterford in the Irish Republic, followed two years later by brother William.

Social workers there monitored the family and, they say, had declared Kerry and Mark, 31, to be fit parents.

Kerry said: “We moved to Ireland because we knew we’d have a better chance of keeping the boys – they don’t have forced adoption.

“When we got there, the social workers ­monitoring us couldn’t understand why Fife had such a problem.

“They gradually withdrew their involvement and then left us alone to look after our boys. We were happy and healthy – all of us. Mark had a job and I would take the boys out every day, to the park, ­swimming, or for walks.

“Come rain or shine, we got our wellies on and went jumping in puddles. Life was everything we wanted, except we weren’t back home.”

Missing their families, the young parents contacted Fife social services and asked if they could go back without fear of losing their family now they had proved themselves. The answer, they claim, was a resounding yes.

And when hard-working Mark was offered a well paid job at Amazon in Fife, they decided to test the water.

But in what they claim was a ­devastating betrayal they were confronted again the day they moved back and the boys were put on the “at risk” register.

They say social services began to hound the family, in what MP John Hemmings later said had the appearance of a “vindictive settling of scores”.

Social workers claimed Kerry should not be alone with the children for longer than two hours, which she admits she did not adhere to.

And after sending a letter stating the child protection unit was withdrawing involvement last June, the boys were taken away days later.

The authorities maintain their ­decision was for the safety of the children.

Kerry, who says she watched her boys kick and scream as they were dragged off, said: “I felt I was letting them down because there was nothing I could do.

“I did my best to be a good mum. I never smoked, drank or did drugs. They were always clean, never hungry and were happy, happy boys. It wasn’t enough.

“For weeks before they were taken Sean begged for us to move so the social workers couldn’t take him away. I feel we failed him by not doing so sooner.”

At one meeting, four social workers claimed Mark had intimidated them and he was arrested for a breach of the peace.

He was cleared months later after CCTV footage showed no such incident.

But while on bail, he was under orders to keep away from the social workers in ­question – yet he claims child services scheduled access visits at the office where they worked. He is still awaiting a court hearing for allegedly breaking bail conditions.

The couple decided their only hope to get Sean and William home was to have a third child, moving back to Ireland to again prove they were capable parents.

Kerry said: “The Irish authorities have promised to help and we have to trust them because we have no one else on our side.”

Mark admitted: “I’ve been low – there have been times I didn’t think I could go on.

“The only thing that keeps me going is being with Kerry, and hoping we’ll get the boys back where they belong.”

As they try to plan their future, the couple can only cherish the hundreds of photos of their times as a happy family.

Kerry said: “Sometimes they’re hard to look at because they make it even harder to understand how this happened.

“But they make me smile, too, and remind me why we can never stop fighting.”

MP John Hemming’s view

It’s clear to me that Fife social services have acted vindictively against this young family.

They were living happily in Ireland and Mark and Kerry were considered to be suitable parents.

There has never been an incident to suggest they are not suitable parents.

Taking any child into care is extremely disruptive and traumatic and it should be done only when essential for the safety and well being of the child.

Fife social services’ view

We are not legally in a position to give details of individual cases which might help to give a fuller picture of the situation.

However, we do not recognise the description of our involvement as presented by the family.

Social workers do not have the authority to remove children from their parents. This is granted by a court or by the children’s hearing system.

Social work services try to support families to stay together wherever possible.

Belfast social services’ view

Due to issues of confidentiality Belfast Health and Social Care Trust cannot comment on individual cases.

We do everything we can to ensure the safety of children and try to keep families together wherever suitable and possible.

The judge’s view

Responsibility for the care of the children has been moved by Dunfermline Sheriff Court from Fife to Dundee City Council.

The judge ruled this was, to remove any problems which may arise from social workers being biased against the family due to historical events.

The parents’ view

We’ve never done anything to put our children at risk of cruelty or neglect. We love them and have only ever wanted the best for them. That is to be with us.

We have been made to make a decision no parent should have to make – to chose between
our two sons and our unborn baby.

We will fight until we are back together as a family.

Aidan: The Rarest Boy In The World

March 23, 2015

This will be on Channel 5 tomorrow at 10pm:

Documentary focusing on Aidan Smith, a boy with an extremely rare condition characterised by lumps and growths covering a large percentage of his body. The programme follows Aidan’s progress and that of his parents as they learn that he suffers from Cloves syndrome, a genetic disorder with fewer than 130 cases diagnosed worldwide to date.

Fiancee Vicky Promises To Marry Undateables Star Steve- Whatever Vile Bullies Say

March 22, 2015

As she prepares to walk down the aisle with the man of her dreams, Vicky Matthews should be on cloud nine.

Instead, the 33-year-old and her fiancé Steve Carruthers spend their days facing a torrent of abuse from cruel strangers – who say he is ugly and that she is stupid for marrying him.

Children’s nurse Vicky and retail worker Steve, who suffers from genetic condition Crouzon syndrome, are due to tie the knot in August.

But vile bullies have been trolling them online and even abusing them in the street because of Steve’s facial ­deformities, which are caused by his condition.

The pair, who met after Vicky fell for Steve when she saw him on hit Channel 4 show The Undateables, have pleaded to be left alone to enjoy their fairytale ending.

Vicky told the Sunday People: “Steve is perfect to me so the bullies just need to leave us alone now. The way people judge us on looks is disgusting.

“They stop in the street and take photos on their mobile phones like we’re some kind of freak show. I then worry about them posting them online and writing cruel comments.

“I love him, that’s the only thing that should matter.”

But instead of cheering them on, heartless bullies have been determined to ruin their romance.

Steve added: “After the show I got more than 20 messages on Facebook and Twitter, calling me ‘fish man’ and ‘googly eyes’. The insults were brutal.

“Some people even posted pictures of me next to pictures of the Hunchback of Notre Dame and the Honey Monster.

“But it was only when the first ­message landed in both of our Facebook inboxes that I was really devastated. It just said something simple like, ‘You’re ugly, what is your girlfriend doing with you?’

“Vicky was upset because I was upset and I felt guilty for dragging her into it all. It was horrible. We’re a young couple in love – this isn’t how it should be.”

The message should have been a blip in an otherwise fairytale romance.

Steve thought he’d never find love but Vicky proved him wrong, seeking him out after spotting him on screen.

The cowardly strangers went on to send more messages to Vicky on Twitter and Facebook, telling her that her fiancé was too ugly for love in a bid to make her call off the wedding.

Others have abused them in the streets of their home town of Manchester.

Vicky said: “When we walk down the street holding hands people stare or point and laugh at us.

“We were shopping in the Trafford Centre a few weeks back and someone walked past and said, ‘Look at the size of his eyes.’ It was completely shameless, as though Steve couldn’t hear.

“It’s not worth confronting them ­because you have to remember deep down that they’re the cowardly ones.

“But sometimes it’s hard not to let it get you down. I never thought I would end up with someone like Steve but I fell in love with him. I don’t know why people can’t accept that.”

The mean jibes have taken their toll. For Steve, the onslaught has been a ­painful echo of his childhood, which he lived in the shadow of school bullies.

He said: “It brought all the bullying of my childhood back to life and suddenly I was back in the playground being taunted about my face. This time it was worse – someone I love was being drawn into it.

“I felt angry and guilty at the same time. It’s not my fault but it’s ­because of me that it’s happening.”

The malicious ­comments and pressure from strangers have even impacted their wedding plans, something both of them resent.

Steve admitted: “Even as I planned the proposal, in the back of my mind I wondered whether people would stop and stare for the wrong reasons, or if someone would shout an insult and ruin it.

“Now we should be looking forward to the big day with no cares in the world but even though I’m excited I’m ­nervous about the wedding pictures because I know I always look awful.

“Everything else for the wedding is booked except the photographer ­because I’m really anxious about the pictures being good. I want us to be proud to show them to people.”

For years, Steve suffered from ­cripplingly low self-esteem, convinced that no woman would ever fall in love with him.

Eventually, he turned to TV matchmakers for help. His bid to find love on the C4 show was unsuccessful but Vicky saw Steve on telly and asked to be introduced to him via a mutual friend on Twitter.

They met in November 2013 – and it was love at first sight. Just six months later, Steve left his home in Sunderland and moved in with Vicky.

He could finally see a future of love and happiness he had never imagined and immediately began planning how he would propose. Three months later, last August, he popped the ­question.

Steve arranged for 20 of their closest friends and family to watch him go down on one knee before Vicky in public at a bustling Manchester ­shopping centre.

He even sang their favourite song, Come To Me by American rockers Goo Goo Dolls, with a busker – everything carefully planned in advance.

Thankfully, the proposal was as ­special as he had hoped, a brief ­respite from callous bullies. But the cruelty of strangers is not the only challenge the pair may face after their wedding, which will take place at a hotel in the Pennines.

Steve’s condition could mean he dies young, leaving Vicky alone – ­something he fears most. He had already lost his brother Mark at the age of 23 and sister Amanda at 21 when Vicky spotted him on TV.

And two months later, he suffered another terrible blow when his older brother Paul passed away from ­meningitis aged 32. Now the only ­remaining child, he fears he could be next – and that he could pass the ­disorder on to his own children, like his mum Susan did to him.

He said: “I try not to think about it but of course I worry about how Vicky would cope if I died. You shouldn’t be going into a ­marriage thinking that but it is on my mind.

“Both Mark and Amanda died in their sleep because of sleep apnoea which stops you from breathing properly, so Vicky is ­always checking in the night that I’m OK.

“I have a machine that helps to keep me breathing but I could still die early from a heart attack or high blood pressure – both common symptoms of Crouzon.”

It is also possible that any children Vicky and Steve have could be born with Crouzon. But they are determined to cross that bridge when they come to it. Steve said: “We’d like to start a family but we’re going to wait until after the ­wedding.

“There’s a chance I could have a child with Crouzon but I wouldn’t care – I have it and I never thought I could be this happy.”

Vicky said: “I’ve always wanted a big family and Steve feels the same. We spoke about the possibility of our children having Crouzon. That his mum had four with it was just luck of the draw.

“You can’t live your life worrying.

“Any baby could be born with a medical difficulty and you love them no matter what.”

Despite the huge ­challenges the couple have faced, the strength of their relationship is testament that love conquers all.

Vicky said: “To me, he is the most beautiful man in the world. I find him attractive on the outside and he’s such a lovely guy. To me he is perfect.”

Joy in wake of tragedy

Steve and his siblings all inherited genetic disorder Crouzon syndrome from his mother Susan.

She and her husband Ian have lost three children but they hope Steve and Vicky will have a long and happy future together.

No stranger to bullying herself, the cruel taunts of her son’s bullies have not tainted her joy over his new love. Susan, 58, said: “We’ve

been through so much as a family – losing Amanda, Mark and Paul. I never thought I would see one of my children get married.

“My reaction about the abuse was that you have to rise above it. I’ve had to have a thick skin my entire life. Vicky and Steve will survive everything. I’m so proud of them.”

Steve is working with changingfaces.org.uk.

Government Offering £21M Contract For Online Supported CBT In JobCentres

March 22, 2015

Earlier this week Same Difference discovered that the Budget contained plans for treatments for mental health conditions to be provided to benefit claimants in JobCentres.

Well readers, Same Difference has just seen this document which suggests that the Government are going to offer a contract for online supported Cognitive Behavioural Therapy to be provided in JobCentres.

The contract will be worth £21 Million and could start as early as next year.

Scary stuff.

LiveTweeting A Celebration Of Inclusive Education

March 21, 2015

25 years ago, two campaigners for inclusive education, Richard Rieser and Micheline Mason, wrote a book titled Disability Equality in the Classroom.

Last night, they celebrated the 25th anniversary of its publication with a night of films on the prevention of disablist bullying in mainstream schools and on inclusive education.

The films, shot in 2015, showed me, a child of the 80s and 90s, the amount of progress that has been made over the last 25 years in the recognition of disablist bullying, and in inclusive education as a whole.

I was proud to be asked to liveTweet from the event- my Tweets are collected below:

The films shown were shot at only three schools across England. They cannot represent every mainstream school yet. But they are fantastic resources that should be seen by as many teachers as possible. Links to them should be available online soon and I will do my best to share them as soon as I can.

Just What is The F***ing Point???

March 20, 2015

neilavaughan's avatarneilavaughan

I am on the Work program, it is now almost double figures the amount of interviews I have not had help to get to, I’m either told A) too far B) not far enough and on one occasion was told I’m getting too many interviews and it’ll reduce their profit to help me get to them!!! I’m now using all my benefit, I’ve had to travel 3 times over the past 7 days over 2 and a half hours each way for an assessment,a group interview,another assessment an individual interview and a group test, I have no money left now to pay rent,am on emergency electricity @1 day left, Little food, and can’t pay Council Tax, I applied for help from my council as they do crisis loans now, only to be told I don’t fit the criteria as I “CHOSE” to spend my benefit getting to these interviews…

View original post 31 more words